-
“Woozy, Head Feels Heavy”
Question for you caregivers—does your LO ever report their head feels, “heavy” and they are “woozy”? If so, has anyone consulted any doctor about this? Thank you in advance for sharing.
-
memory loss
My husband is being treated for a third breast cancer recurrence. It has been 6 years of: masectomy, chemo, radiation, injections and constant meds. He sees an oncologist and neurologist but no one has addressed his memory loss. He is losing words unable to find the label for things, memories, directions to familiar…
-
Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…
-
Do any of you folks have early dementia yourselves and live alone?
Everywhere I look, I find support, even on Blogs for caregivers, but I have yet to find something to assist the person who has dementia.
-
Dementia and cancer
I need major advice. My mom has dementia and was just diagnosed with stage 1 lung cancer. Very treatable, if not curable. All she has to do is go through some radiation. She is probably in stage 5 or 6 with dementia... very very paranoid about everything and anything medical all but traumatizes her. She is also a recent…
-
When both parents need support!
Hi everyone, This is my first post. My parents are both almost 79 and live in a 55+ community. My mom has moderate dementia, and my dad, who has Parkinson’s (and possibly some early cognitive issues himself), is her primary caregiver. One of the biggest challenges is helping him understand that my mom needs simple, clear…
-
Deleted
-
Spending time with mom with Alzheimers
We are getting ready to put my mom in a MC facility. Physically, she is in great shape. She loves to go for walks if the weather is nice. I was planning on picking her up often from MC and taking her on walks to enjoy the beauty of Colorado. I was recently told from a friend that that was a bad idea. When we go to visit…
-
Going crazy
Taking care of my mother in law and we are so lost is anyone available to talk
-
Father Diagnosed, What Now?
Hello everyone! My father was just yesterday diagnosed with EOAD after his father was hit with Alzheimer's, and his brother is exhibiting the same symptoms. In January my father will be tested to see if there's a genetic link, but my understanding is that it will be almost certain that I will have the same condition this…
-
Ivermectin for dementia
Ivermectin gained popularity during COVID-19, where some people claimed it could treat or prevent the virus. The problem is, sometimes, news articles or social media can misinterpret early research and spread misinformation. When it comes to dementia, what most scientists and major health organisations, like the…
-
Progression and caregiver changes
DH continued to decline with the rivastigmine and has developed significant hallucinations and a persistent delusion about a dead friend who isn't dead. The companion who had been with him almost a year quit because he couldn't tolerate DH's rants and accusations. He was started on Trazodone and Buspirone due to his…
-
Moving mom with alzheimers to a different state
My dad passed in 2020 and once he passed, my mom mentally checked out. My brother has lived with her since then and the Alzheimers has gotten worse. I live in a different state and come out every other month for a month at a time. It's straining my relationship with my family and my brother is mentally/emotionally done. We…
-
Questions to ask Memory Care Facility
My brother and I are wanting to move my mom to a MCF. My dad, thankfully, bought long-term care insurance and after 5 years, we just mentally can't do it anymore. I have made note of the obvious questions to ask on my visit, but wondering if there's some questions that I may not have thought of. Also, has anyone else had…
-
Seeing Two of Things
My mom has advanced dementia, about stage 5. She is constantly saying we have two dogs or two cats (we only have one). Sometimes she will double a person and say ‘Dan and Dan went there etc.’ Has anyone else encountered this doubling? Is she really seeing two of things?
-
Looking for a regular online support meeting to attend
Hi, I am the life partner of someone with between mild to moderate dementia. He and I would like to attend something together so we can hear together what is ahead and what works to help with different aspects of the disease and its progression. Any links appreciated. Thank you
-
Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
-
Downsizing with Dementia
It's been three years since the official diagnosis though it was happening way before that. And I realize I haven't looked back. I haven't looked back at how we were before all of this crept in ever so slowly. And I actually forget who he was sometime back in our lives together when I never imagined anything like this. And…
-
How to get LO into assisted living
DW is in late stage six, with complications of paranoia, panic attacks, tachycardia, separation anxiety and is highly likely to have a complete meltdown upon being admitted to memory care or assisted living. How is this handled? I have been putting it off for over two years. Are strong sedatives an option? At least to get…
-
Caring for mom with a/s of dementia
my mom clearly has signs of dementia. Have taken her to her Kaiser PCP to confirm and get HELP as I have no idea on what I need to do. Unfortunately after four visits, still no diagnosis or referrals or assistance/advice except deal with symptoms as they come! It’s really hard dealing with this. I want the best for her but…
-
We Don't Talk Anymore
My wife has ALZ Stage 4, entering Stage 5 this year. There have been many noticeable changes, most obvious is that we don't talk anymore. She is very quiet, sometimes sitting and staring for long periods. Occasionally she tries to speak but can't think of the words and then just drops it. This is creating an atmosphere of…
-
Dementia
Lately, my wife doesn't wash herself or use deodorant and she wears the same clothes for days. Her memory is getting worse, but she maintains a good appetite. I would ask her about her hygiene but she feels as though I'm treating as a child.
-
Warning
My BF passed away last night unexpectedly. Her Dh has alz. Stage 6 .She took care of him by herself. Her kids have have no idea of what to do with their dad. They know nothing about his meds.,his sleep habits,how to get him changed or anything. She didnt keep them informed on anything. There is no poa or will or guardians…
-
SSDI and anosognosia
My DH is 56 and has been diagnosed with EOAD. He knows he has “memory issues,” but he does not know how severe. He accepted a voluntary severance package from his employer last September and has told me nearly every day since that he’s going to apply for jobs. He did apply for one job, and to make a long story short: he…
-
New to the group
I have just joined the group and Im not quite sure how it works. My husband (age 65) has early onset alzheimers. We have been struggling with issues for years, had numerous tests, no doctor has been willing to give an official diagnosis. He recently took the PTAU217 test and his numbers were completely off the chart. A…
-
Senile Dementia
My wife has been diagnosed with senile dementia with behavioral issues along with schizophrenia, paranoia, and hallucinations, she was discharged from the hospital this week as the hospital says this is her new baseline and there is nothing else they can or will do. What do I do now
-
Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
-
DH won’t let me change him
My DH is in memory care and won’t let the aides or me change his wet Depends. He gets very agitated if I ask him and has punched me. He does the same with the aides. It doesn’t matter what time of day I try. It is always a battle. The Dr put him on depakote to try to help with these behaviors but it hasn’t made a…
-
Caregiver
I want to be my dad’s caregiver and get paid for it. He only has Medicare. Any suggestions?
-
Lonliness when caring for a spouse with ALZ/dementia
My DH is not quite in the middle stage of ALZ, and most days he is "normal", but he isn't really. His critical thinking has diminished in most everything except math. We used to have spirited discussions about matters of faith, politics and so on. Now, half the time he can't hold a discussion about a movie that we watching…