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our posts are indexed globally
This is a meta-post about the things we post on this discussion group. I try to pay a lot of attention to my privacy online, and I've felt comfortable posting here because I believed it to be closed and safe. Then it occurred to me that web crawlers and indexers can probably gobble up posts here, because the posts are…
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Looking for a support group
Hello, all. Just signed up today. My mother is 83 and has had dementia and now Alzheimer's for probably 15 years by now, though the diagnosis of Alzheimer's came about a year ago. I have her in my home two days a week during the day, and have had increasing difficulty managing the stress of her forgetfulness. So now I'm…
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Moving to a new home
Good morning, my hubby was recently diagnosed with Moderate stage Alzheimer's. We had planned to downsize our home next spring. Now that we know his diagnosis, what has been your experience in moving at this stage? I am worried he won't think our new home is home and he will always be looking to go home. Is it best to just…
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How Do I delete this from incorrect forum?
My mom lives with me and has dementia. She needs assisted living and help with finances. Where do I start? She owns a home in South Carolina that I don’t want to sell, but may be my only option. Is there a way to protect the house? I believe she would qualify for Medicaid. Should I put the house in my name?
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Awareness of dementia
My husband was diagnosed with MCI about 7 years ago. At that time he told me I was going to have to start taking over some things such as bill paying, but he didn’t seem to be well educated about what the end result of his diagnosis is. I didn’t push for him to read up on it because I didn’t want him to get depressed. Now…
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Not Sure What Is Happening to Mom
Hi everyone - I’m new here and I’m kind of just looking for info and maybe some small emotional support. My mom is 73 and for the last 3-4 years she has been having random mood swings and changes in personality. Most of the time when I speak to her, she has a circular conversation and repeats the same story over and over.…
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First visit to Mom in MC - I survived!
I was dreading my first visit to Mom in MC, since I was the one who actually walked her in there. It's been just under 2 weeks. When I first arrived, I could see that she was in the activity room, so I first stopped by the office where the activity director and nurse manager were. I talked to them to see how things had…
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Be Light Care Consulting Caregiver videos…
I found this online and she has some really good videos with tips for dementia caregivers. https://www.facebook.com/share/r/19oR51H8qu/?mibextid=wwXIfr
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get cancer check-up?
My question is related to the recent one about a GYN appointment. DW had a thymectomy in 2021. She did not need follow-up radiation or chemo. She has had semi-annual check-ups since then and is now on an annual check-up schedule. So far all of them have been clear Her next one would be in October. It entails a blood draw,…
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Running out of money and no where to go!
Hi, new here. 92 year old mother with vascular dementia is running out of money. She is in CA and I am in TX. She is in Independent Living at a facility, has been there almost a year. She is getting lots of home care but it has depleted everything she has. She gets angry, yells and hangs up on me when I try to talk with…
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What a great story
I read this posting on another site and thought I would share it. It was written by Tony Copeland-Parker. The Long Goodbye The protracted period from diagnosis to death from Alzheimer’s disease. My wife of 26 years was diagnosed with Early Onset Alzheimer’s 11 years ago at the age of 53. Our initial response to the…
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Cousin may have Alzheimer's but her local family in denial
I'll try to keep this brief but it's hard: I think my younger cousin, 56, has Alzheimer's. Last January she had an MRI that (i think) showed some shrinkage in lobes of her brain (she reported this to me at the time, with the fear that she had Alzheimer's). She had a PET scan in April that showed elevated amyloid protein in…
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Frustrated
Just need to put this out there… I got mad yesterday at DH who has AL. I didn't say anything but he knew (stomping out of the room is pretty obvious), but I bit my tongue until I was out of hearing range. The "why" is irrelevent. It could have been anything. The point is that I cannot reason with him because his thinker…
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Stage 6, fading, thoughts on visits?
My mom’s declined since a very serious fall a month ago. Her care team called me last week to confirm end of life care (DNR etc.). She’s very much still in stage 6 - walks with walker, talks (although mostly random words, and a lot fewer), she still knows who I am but I can tell her recognition is fading. She’s lost a lot…
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undiagnosed parent
Hi there - This is my first time at any board or group. I've joined because neither me or my sister know what to do or how to move forward. My mother is 72 and physically very healthy, but I think that she has dementia, some form of Alzheimer's, or paranoia, or a combination. For the past two years or so she has been very…
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Lessons learned Mom's stroke, husband's Alzheimer's & Step-Dad's stroke
WARNING!! LONG POST. I've been thinking about this lately. I remember being lost and overwhelmed after my Mom's stroke several years ago, my husband's diagnosis of Alzheimer's 4 years ago and my Step-Dad's stroke last November. Some I learned through the school of hard knocks & some I learned on this forum. I hope this…
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28 and my mom just got diagnosed
Hi, My name is Julie. I'm 28 and my mom just got diagnosed with Alzheimer's. It wasn't really a surprise. My Nana (her mom) had it and it was pretty severe by the end. My mom has aged pretty rapidly in the last 5 years. When Covid was going on she got lyme disease and some other blood borne disease (I don't remember what…
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H.A.B.I.T. Program
Has anyone participated in the HABIT program offered through the Mayo Clinic? Was it valuable? My husband has MCI and I am considering applying for it. I think that the training may be worthwhile, at least to have him interact with others going through the same thing…
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Mom has Covid
A few days ago, Mom had a headache all day. That was all that was going on. But by the following morning, she was nauseated and throwing up and had a slight fever of 100.1 and was also having high blood pressure, well pretty high for her and also coughing a lot. So we made a doctors appointment and got her tested yesterday…
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Please help -having issue with Assisted Living facility LO is in
My LO is currently living in an assisted living facility. Her Alzheimers has progressed throughout the last year of living here and we have had many issues with this facility adapting to her changing needs. The biggest issue we are facing right now is she is having a lot of bowel issues which is causing clothes and sheets…
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Continuous Bathroom Visits
So, I'd like to find out why my Mom has to continously use the restroom. She will ask to go several times before we get ready to leave somewhere and she does the same thing constantly when we're just at home. I've heard that it's anxiety/fear or boredom and sitting on the toilet is "comforting" to her. I don't believe she…
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Running out of money with no where to go!
Hi, new here. 92 year old mother with vascular dementia is running out of money. She is in CA and I am in TX. She is in Independent Living at a facility, has been there almost a year. She is getting lots of home care but it has depleted everything she has. She gets angry, yells and hangs up on me when I try to talk with…
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Closing up the house
My DH starts “closing up the house” as he calls it around 6pm every night, while it is still light. He wants everything locked up and all the blinds down. He likes it dark inside. This is really not a problem but an irritation. I’m just curious if this is a typical response from those with Alzheimer’s.
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Dr. Dean Ornish’s Research- Worth the Read!
https://nutritionfacts.org/video/can-alzheimers-disease-be-reversed-with-a-plant-based-diet/ I have been reading about Dr. Ornish’s research and program for slowing up Alzheimer’s disease. I thought it was worth sharing with you. If you google his name, you will find more information on this program for heart and brain…
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Vascular dementia
We are new to vascular dementia. My husband was just diagnosed a month ago, as well as frontal lobe syndrome,, , my father has dementia, but I’m finding this vascular dementia different. My husband pushed me yesterday. I’m wondering if there are any medications to help with his mood swings any input would be helpful thank…
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Suspecting Dementia, Trying Not to Panic - Money Worries
My beloved husband is showing signs of cognitive decline. I'm dealing with the emotions and "what-ifs" throught therapy. I'm posting this duen to practical questions: - My 69 year old husband's work is our only source of income. - If he loses his job due to dementia how will we get by? We have no savings and rely on SS,…
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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FDA Approved Leqembi Subcutaneous Maintenance Dosing
On August 30, 2025, Eisai (Japanese company leading the development of Leqembi) published a press release announcing FDA approval of Leqembi subcutaneous maintenance dosing. After the initial 18 months of treatment via infusions every two weeks, patients will have the option of continuing with infusions every four weeks or…
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Sleeping Issues: need advice
Hi everyone, I’m looking for some advice and to see if anyone else has experienced something similar. My dad has been living with Alzheimer’s for about 10 years. He’s still fairly active—he can ride his bike and we go on walks together—but recently we’ve been struggling with sleep. When it’s time for bed, he just can’t…
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Grief! - Vent!
I am having a very hard time coping with anticipatory grief ! I have been caring for my DH for about 14 years. He is now stage 7 on Hospice. I have help almost every day for his care. I am trying so hard to keep myself in shape and fighting this depression. Today the grief and sadness seems overwhelming. The tears keep…