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Futile?
My wife has FTD. Her neurologist has ordered new PET scan and new Psychological testing. They are repeating the tests which gave us her diagnosis. Since there is no treatment for FTD, I question the need to keep testing her. The supposed purpose is to determine the rate of progression of the disease. I just wonder what…
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Goodbye Glasses
I went to visit my mother today. The staff told me she had hidden her glasses. I don't know if she hid them on purpose or if she just misplaced them. I was concerned at first because my mother has worn glasses all her life. I looked everywhere. The staff said they had done the same and would check her trash each day before…
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Always tired
is always feeling tired even when just getting up part of this illness? Wife doesn’t sleep all day but does nap watching tv a lot
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Another hit to my heart
I posted a couple of months ago regarding my DW not remembering our anniversary and how it really hurt me. Well guess what, today is her birthday and she had no idea that she had a birthday. I should be used to this but it still hurts. That’s all
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Type 1 diabetes, vascular dementia - stage 8.
I have told bits and pieces of my DW's story. I will tell her story now for the chance that we may be able to help others in similar circumstances. She developed type 1 diabetes when she was 8 years old. In 2012 (age 56) she suddenly developed dizziness and lost excecutive function. She underwent physical therapy and her…
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Sister w Alzheimer's wanting to take control of everything
My sister who has been diagnosed with Alzheimer's is determined to re-take control of her finances, among other things. Neuro-psychological testing has shown she is incapable of doing so. She can't even write a check. Prior to diagnosis and testing, she had a year of not paying bills, having power or phone shut off…
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30 day respite
I just placed my DH/alz in memory care for a 30 day respite. It was a lot of prep work but it went ok. The staff took him to the dining room and I set up his room. I told him the doctors and nurses wanted to monitor his medications for a few weeks. A year ago he would have fussed about it but he just said “Ok”. He does…
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Feeling Vulnerable and Grieving
I am a newbie here, been "lurking" at posts of interest and pleased with what I've been seeing as a supportive group of caring individuals experiencing life as caregiver for LO's. My LO is my DW of 60 years. We have a long history together starting as a military family stationed overseas in the Vietnam era. We had three…
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DH in hospital
Not sure what happened Friday night, but, something went horribly wrong and I had to call 911 for my DH. I knew immediately that vit wasn't normal morning alz confusion. It was more like delirium. They admitted him and so far all tests have come back normal but he has become even more delirious and now aggressive and…
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Sex
Ok all of a sudden, my DH is so interested in sex. Its not like sex was a priority adter all these years being married. He never even talked about it. Whats up with this.
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Respite care for a vacation
As I waffle about MC placement, I know that what I really want is to take a vacation, by myself, preferably for 2 weeks. I have no family who would be free to care for DH. MC facilities in Tucson advertise respite care but they will say "only if we have a bed available" which makes it hard to plan. Has anyone successfully…
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Expat living in France caring for DH know nothing of French system
Im 67 my husband of 39 years is 79. We have only lived in France for 3 years come December. My husband is awaiting scan and the start of the formal process. I wondered if anyone here is in France and can tell me what the care/support/system is like over here for dementia patients please. I’m a Doctor (now recently…
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Need Respite Care
careworncarer She/her/hers / Ella Member Posts: 1 First Comment Member August 29 edited August 29 My mom lives with my husband and me and we have not had more than a day away since she moved in with us. She can dress, toilet, and feed herself. Most of the time she is content to watch tv and pet our little dog. She is…
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Lumipulse pTau-217/Beta Amyloid 42 Ratio
Has anyone here read anything about this dementia test? If I ever show cognitive decline, I think I would like to get this test. Then maybe have an exit plan.
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Where to go if Long-Term Memory Care will not accept my sister's combative behavior?
My sister with EOAD has been in a Geriatric Psych unit for a month now. She was removed from her Assisted Living Memory Care facility after only a week for aggressive and combative behavior. During an incident she was sent to the ER where after that she was admitted to the Geriatric Psych unit to develop a medication and…
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My husband is lucid much of the time
My husband is not so far gone that I could not leave him in memory care or nursing home but when he gets into a rage there is nothing I can do And he is still having trouble walking What should I do? Guilty ridden
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Bathroom
hello! Recently my dad who has EO has been waking up in the middle of the nights to use the bathroom and he has been unable to find the toilet. Causing him to pee on the carpet and honestly anywhere except the toilet! Any advice? I’ve thought about the alarms to wake me up when he gets out of bed but I’m looking for…
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Just need to talk to my friends (209)
We just had a nice shower, just before my groceries were delivered. Still sprinkling a little and it's nice and cool. Wonderful weather for the first day of August. Another six weeks and our hot summer will be getting cooler. I'm ready. Need to finish putting away the groceries but wanted to get 209 started. Back later.
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Just need to talk to my friends (210)
Thanks for reminding me. Time goes by so fast. Partly cloudy here with rain around. I wouldn't mind getting some more. Before I got up I was thinking about snakes. What a subject! I remembered that a woman we worked with was going down the street in her car and felt something on her foot. She looked down and it was a…
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Moving
This is the first time I have posted… My husband is 66 and has EOAD. We are moving to be near our son and his family (6 hours away) so I can get some help. They have graciously offered to help as my husband's dementia is getting worse, and requires me to be with him pretty much 24/7. We don't travel anymore as it caused…
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Yes, I'm back for a visit, and need a little input
I hope you are all holding up well. It's been a while since I've visited. As always, make sure you somehow get a little time for yourself, away from caregiving, if possible. Do something nice for YOU. About 2 years ago, I knew of a woman in her 20's or maybe 30s who was working at a local Target store as a cashier. I don't…
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Gas stove knob locks
Looking for recommendations for gas stove knob locks. I have a GE Cafe gas stove with the knobs on the front. My DH has attempted to cook for years but I want to be safe. There are alot on Amazon but mostly geared toward children. Any recommendations?
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Is Zoloft any good?
My DH just got out of the hospital and was sent home on Zoloft for anxiety. I had hoped they would have given him Klonopin or something similar to use PRN. Nope, it’s addictive. He went in for chest pains and my thought is that it’s more anxiety related. All tests were thankfully negative for a heart attack. I told them…
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Onset
Hello, My husband is a vital, active and engaged 74 old man. Lately he has been more forgetful than usual, has some difficulty managing everyday tasks, and I see subtle changes in his personality. Our oldest son came to visit and yesterday I observed my husband struggling to hang a banner with our son. He was having…
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How To Be More Empathetic Towards Mom's Dementia Flashbacks
So my older sister (long-distance caregiver who visits every 1-2 months) just took my Asian mom to her first therapy session to work out the grief from my Dad's death (He died 13 years ago) and other emotional issues that fuel my mom's dementia flashbacks. We are going to do more sessions (virtually since I don't drive)…
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
I will try to keep this shortish. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth. Since May she has been manic, paranoid, delusional,…
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Caustic Behavior While Traveling in Our Car
My DW and I used to travel extensively all over the US to visit parks and botanical gardens. With her increasing dementia episodes travel in our car is limited to no longer than 15 minutes. My DW tells me very caustically I drive too fast (as we travel at less than the speed limit) that there are cars always right on our…
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I feel likeI have been mourning for the last two years
My sweet husband had to go to a nursing home two weeks ago. I didn't realize how much I cared for him physically. I feel lonely and lost. I just got a cancer diagnosis, and I have to travel for treatment, and I will be gone for weeks at a time. I don't know how to process this feeling of loss I am experiencing, as he was…
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looking for hygiene video recommendations
The last couple of months it has gotten really hard to help DW with cleaning up after using toilet, and with bathing. I have tried different approaches, but they generally all end at the same place. At some point my patience ends. I just take over and do what needs to be done and she has her meltdown. I watched a few…
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I See and Feel her slipping away
My DW is living with undiagnosed ALZ. DW of our 36-year marriage had a cerebral hemorrhage about 1 year ago and I have seen her gradually slip away mentally at times. She was also left visually impaired by the operation which adds another challenge to overcome. She can see some things but not well enough to read. I…