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talking to people who aren't there
My wife has for a long time had delusions and some hallucinations (about 3 years) but she has recently started to talk to people that are not there. She is I think early stage 7, but in the DBAT it has that in the section of the final weeks. I know every case is different but for those that have experienced this what has…
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Not Showering
My wife is in midstage Alzheimer’s, living at home with me as her only caregiver. She manages all her ADLs except showering. I remind her in the morning to shower, and most days she skips it. I know because either I don’t hear the shower running, or if she does turn it on I know she doesn’t get in because her towels are…
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Memory care / Medicaid / quality of care in New Jersey VS New York
Hello everyone, I’m in the process of attempting to move my dad who is in the early to mid stages of Alzheimer’s from a retirement community in Arizona to the east coast where i am. There’s no other family around and we both want to be closer to each other. This process is beyond overwhelming. I began my search a few…
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Hallucinations
Hi everyone!! Hope you are all well, especially my fellow snowed-ins. My mama is most likely in stage 6 of her Alzheimer’s, and she just mentioned to me that she sees beetles in our window. I tried to have her point where she was seeing them and eventually realized that she was seeing them, but they are not there. I know…
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97.5 year old with Dementia/AZ
Hello, new to the group. My father's dementia started after a brain bleed at age 95. His other health is great for someone his age. He can walk, talk, feed himself and use bathroom on his own. Unfortunately, he experiences sun downers or agitation bordering on violent behavior almost every other day. He is still at home…
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unsure of what and where to start for help with my dad
I'm caring for my father who has alz. I moved in about a year ago so he could stay home like my mom and dad had said they wanted to do . My mom passed 5 years ago. And my oldest sister passed away about 2 Yrs ago, so now I'm the one to care for my father with no help. But now he can't sleep and is getting mad because his…
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Trying to keep him at home
My DH is late stage 6 and is on hospice. I have a wonderful caregiver who comes to our home during the weekdays. Lately though he’s unsteady on his feet. Very difficult for me to get him out of bed and walk him to the bathroom for me to change him, give him his bath. We had a hospital bed delivered this week. My caregiver…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…
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Aromatherapy(1)
Has any one tried aromatherapy for dementia in their LO? If so, which oils help? I hear music and aromatherapy help. May be it will help him stay awake. DH sleeps at least 3 hours in the afternoon, though he goes for a one mile daily morning walk by himself. We take one mile evening walk together. I told him he should keep…
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Lonely but longing to be alone…
Hello- New to posting, though I have looked in on others for several years. My DH (age 70) has Alzheimer’s and Vascular Dementia, heading into moderate stage although not yet problems with ADLs. We have known this was coming (through testing) for around 10 years. Slow progression, so I feel fortunate for that. SO many of…
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Entering fast stage 7
I don't know if it's harder on me or my wife. She still knows who I'm but doesn't know what day of the week it is. Watching stage 7 with (VD) is very hard on me to have to watch her going thru losing control of her bodily functions. One day see is her old self and the next day something else. I see her every day for an…
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Heartbroken but comforted DH No Longer Suffering
It’s been a rough road for a while. My DH ended up in hospital before being transferred to palliative. He died peacefully 7 days later. We will miss him being physically here; however, we are at peace knowing he is no longer suffering. I thank this group for being so authentic and raw in questions and answers. I’ve gone…
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Sleeping almost all the time now
My DH is declining. He was probably only awake 2-3 hours yesterday. Hospice has brought a hospital bed here because many days I can’t walk him to the bedroom. Yesterday it took me and the caregiver just to get him from the hospital bed to the chair. What can I expect from here? He still eats but not as much. For those of…
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how do you talk to an elderlaw attorney?
I'm in the beginning stages of talking to a (not officially certified) elderlaw attorney. We already have wills, health care proxies, etc., but I wanted another pair of eyes to see whether we missed something. Here's my problem. DW has anosognosia and gets angry at any suggestion that she has a problem. How can I discuss…
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Now We Wait
Last Thursday was the last time my DW got out of bed. She’s been in and out of consciousness for most of that time, not eating or drinking much. Tiny amounts. Hospice nurse believes she is transitioning and I agree, though of course she could rally. She mentioned days to a few weeks. I don’t know if it’s these years of…
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The end is near
Today I was informed by the hospice nurse that they think my DW is in the very final stage. She is having difficulty swallowing and is taking in very little food or liquid. Yesterday she had only a few partial spoons of puréed food and juice. Today they are no longer able to give her medication as pills and so they will…
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CA-Sacramento/Amador County Hospice
hi, Does anyone know of a Hospice company that will permit the person to stay on their medication for dementia? Thanks
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Our mailbox relocated itself...
Occasionally (or maybe frequently) I like to pretend everything is normal and then something very strange happens that snaps me back to reality. Last week it was DH calling me to tell me that he went to get our mail and that someone had removed our mailbox and reattached it in a new location. After a few minutes of me…
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Caring for mom at home
I’ve been caring for my mom pretty much full time since 2020 but my Dad helped until he passed in early 2024. She already had mobility issues from a stroke and a fall, but since he died she’s gone downhill with her dementia. She’s maybe a mid-stage 5 but it’s hard to assess since I’ve been helping her do her ADLS for years…
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Partner to a Caregiver
I am new here and looking for support for myself. I am caregiving my partner who is and has been caring for his wife, diagnosed with FTD in 2016. I have been with him for over 4 years. I would never have chosen this path for myself, except I have known him for 16 years and know the beautiful soul he is. I worked with this…
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Update posted in comments - Move forward with hip surgery for DH?
I'm still not positive what stage my DH is in, but guessing stage 4 with some symptoms on 5 creeping in. Some days he seems close to "normal" and then there are days that are the opposite. He's still able to care for himself and even fixes dinner for us now and again. Still does his usual chores around the house. Withthat…
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How long has it been
I don't know any of you but I have told you more about me and my situation then I have told anyone else in the world. That seams kind of odd to me. I can't tell my own kids what is and has really happened. So I would like to share more about the people that I shared life details with. My wife of 50 years (we got married…
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Peeing all over himself
My DH with mixed dementia has started having accidents in the bathroom. Some of the urine goes into the toilet the rest ends up on the toilet, floor. He wets his pats and urine runs down his leg into his shoes. His shoes are washable but they need hours to dry. I bought him sone washable slippers so that I can get through…
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I need some positive vibes and a positive outlook. Help.
I had a hard visit to memory care and feel so sad for a lot of reasons. My parent is midstage, I'm power of attorney and live out of state and visit every couple of months. any way usually I try to keep myself emotionally detached from her symptoms and make it my goal to just give her a pleasant fun enjoyable visit and…
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A suggestion for early to midstage caregivers
I have learned so much from those of you who share your experiences with this awful disease. To stay I was depressed and overwhelmed when I learned my DH has VD is an understatement. You have taught me so much about this disease, it's progression, what to watch out for, how to prepare myself as best I can for what is…
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My mother hides her purse nightly
My mother hides her purse and wallet nightly in her room at her assisted living facility. For now, she has a private room that locks and is very secure. She swears that people come in nightly and steal her purse however after a diligent search of her room, the purse is always located. We have tried to be consistent with…
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Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…
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An even sadder Day
I'm back home, sadly, Donna didn't make it. Due to there being no traffic I got to the hospital an hour before her pickup time (better early than late). When they brought her to me she was crying but I calmed her down by telling her she be home with Jazzy soon. Then we took a short walk, about 100 feet, to the car. Half…
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Donezepil and diarrhea
Hello, My mom has moderate vascular dementia and is on Donezepil 10 mg. While eating she gets diarrhea, I can’t hardly take her out. I always have a change of clothes for her in my car and the doctor ordered anti diarrhea meds. Any other tips? Or does anyone know of a med for vascular dementia that does not cause diarrhea?…
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Feeling sorry for myself
Just got finished cleaning a foot of snow off and away from my car. Im 70 my husband who has alz and vd was in the house watching TV. Just having a woo is me day. Don't need to answer Just needed to vent. Thanks