-
How do you handle such deep sorrow?
My DH has EOA and has been also suffering from complications of Ulcerative Colitis. He’s in the hospital. He won’t eat that much because he’s incredibly picky and can’t reason to himself that his body needs food even if every meal or protein drink isn’t perfect. He can’t walk anymore. He won’t even try. And his cognition…
-
A Spark Of Joy … follow up
I did it I now have my power boat licence. Thank you all so much for your support and wonderful words of encouragement. It felt so odd just for a short time thinking about me. I felt selfish, it felt wrong I had to keep pulling myself back to the job in hand (ha ha so important driving a boat literally around in circles on…
-
Can someone repair this site?
I have been logging into discussions for "those who have lost someone" for weeks now. Yesterday, I found that other conversations were also coming up on that section. Today, the same. Can one of the moderators fix this so we don't have to wade through a long list of conversations to find the topic we are looking for?…
-
Doing enough?
My wife is 56 years old, she was diagnosed with Early On Set 2 years ago. She has progressed into early stages of moderate. The day she was diagnosed we were given basic slow down med and off we went. They said there were clinical trials we could try etc, but when I look it doesn’t seem to fit her age range etc. I feel…
-
Wondering what to do
We are about 8 years into this ALZ nightmare. Big changes are not starting. She has started sundowning which I try to mitigate with walks outside around 4 PM each day. This seems to help. She is refusing to shower and change clothes. She has worn the same clothes day and night for 2 weeks now. She complains about my…
-
First time posting
My husband (74) was diagnosed with MCI due to AD and Vascular Cognitive Impairment about a year and a half ago. He also exhibits signs of anosognosia. His perception of his actions are not the reality but he doesn’t see that. He’s had 2 car accidents in 2 years- totaled 2 cars. Based on his neurologist’s recommendation, he…
-
Is it necessary for Nurologist it ask same questions that upset patient everytime?
some of you know me as I always have lots of questions but for those of you who don’t know my situation it’s that my wife , I feel , is handling this nitemare much better then most that being said I know can change in a heartbeat . It’s 3 yrs and other then not driving or cooking anymore not doing too bad, her short memory…
-
Need an updated DPOA easily and inexpensively
I’m new here and my DH is living at home with probably mid-stage Alzheimer’s. I need to update his DPOA and he will be able to understand and sign, but I need convenience and affordability. Suggestions on where others have made one easy, inexpensive trip to get this updated form in place. I have so many other questions and…
-
Mid-stage Dementia : Agitation and Aggression
My father has dementia. He lives with my mom in their home, and my mom is his primary caregiver- I am his secondary caregiver. About a year ago he started having issues with incontinence. A few months ago he was determined to be mid- stage dementia. After many months of urging my mom, she agreed to hire a part time…
-
moving
-
New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
-
Caring for my mom/ posterior cortical atrophy
Hello,new here and was just wondering if anyone has or have a lo with posterior cortical atrophy??
-
MOM IS WAKING FAMILY MEMBERS TO FIND CAT THROUGHOUT THE NIGHT … HELP !!
My mom lives in the same house as me and my family and has for the last 10 years. We have a family cat that over these years has decided, especially in the last six months to a year only have … meaning she is completely fixated and obsessed with all things cat related. All day she asks where the cat is if he’s not with…
-
When a long-term friendship is impacted
I’m concerned that a dear friend of mine may be experiencing early cognitive decline. They are in their mid-60s and recently lost a spouse. For the past two years, I’ve attributed their behavioral changes—especially increased frustration and verbal outbursts—to grief and the challenge of navigating life alone. However,…
-
Flameless kitchen
I saw a TV show on a flameless kitchen — where a gas rangetop was removed since it was a danger to a child who liked to fiddle with the knobs, and that forced the parent to keep an eye on it constantly. They instead relied on a multi-cooker (like an Instant Pot) along with a counter-top oven (a combo microwave / toaster…
-
New Life
Hello. I’m 43 and was diagnosed with dementia two weeks ago. Still doing mri to test this word I don’t remember and that word I don’t remember. Just wondering if anyone else has had this problem start this early in life. At this point I feel alone with all this.
-
Does insurance company need to know
Reviewing Renewal on house and auto insurance and just wondering if I have to inform the auto insurance that husband has dementia and is no longer driving? By law do I have to do this? We still have his car but he doesn’t drive . Tks for your input
-
Medication for Anxiety
Our neurologist has prescribed Quetiapine for anxiety as a once per day med at bedtime. I crush and mix the pill into my DW evening food at she refuses to take a pill. Sometimes the 25MG dosage works well and we can get a good night's sleep. Our neurologist has now prescribed a 50MG dosage in an effort to improve the…
-
statins, pros and cons?
I tried to search for an old conversation on this, but didn't find one; feel free to redirect me if this has been discussed before. A few years ago, the provider in Geriatrics put my partner on a statin because her cholesterol was something like 240. The next time she saw her primary, they took her off the statin. I was…
-
First appointment - what should I ask?
Looking back on what you now know, what should I - the caretaker - ask the neurologist at the first appointment? What do you wish you had asked? My wife is 61 with a father and grandmother who had AD. She had a blood test last week with a positive for tau (whatever?) and a ct scan that was “not terrible” (upon brief review…
-
Altzheimer
My DW(85) has recently been diagnosed with this terrible disease…she is still able to function fairly well. My daily routine is looking for articles she has misplaced but the most frustrating thing to deal with is the delusions. It is very difficult for me to respond to things like "when are the other people coming for…
-
Help With Checking for Dementia
Needing help with the beginning process of figuring out how to check for dementia. My mil just had a CT scan and is going to have an apt to check the results tomorrow. She has a lot of signs already, but more recently it's been forgetfulness more so plus incontinence (she doesn't try to go to the toilet anymore) and won't…
-
FREE access to e-books/audiobooks about dementia (including "The 36-Hour Day")
I have been using OverDrive for years. OverDrive allows library card holders to borrow digital content (e-books, audiobooks, magazines) for free. I read or listen to them via the Libby app. (Libby is a free mobile app developed by OverDrive.) Today, I learned that anyone can sign up for the Dementia Australia library and…
-
Rehab to Memory Care
Hello, my mom is 77 and has advanced dementia. She has been living in memory care since this past March. She had lived alone for 20 years but was getting progressively worse, then couldn't stand up, ended up in the hospital last Jan. Then rehab for 2 months where she got better physically. The Dr's there thought she needed…
-
Yes, I'm still around
Most of you will not recognize my name because my wife passed 3 1/2 years ago, and I rarely get on here much anymore. I hope everyone could make the most of the situation for Christmas. There may be a ray of "hope for this dreaded disease. It's not here yet, but the news is encouraging.…
-
My mother
My mom has dementia and extreme aphasia (trouble with speaking/words). I have a tough time dealing with active grief around certain things like forgetting it’s my birthday and other life events. Wha suggestions do you have?
-
DW's wallet and losing her purse
Two times now my DW has misplaced her purse. After the first time I placed an Apple fob in her purse to locate it. She has credit cards, a debit card, her driver's license (but she doesn't drive anymore), her Medicare cards, and a checkbook. She is used to carrying her purse with her everywhere. Has anyone had any…
-
communication
https://www.facebook.com/reel/776766741094996
-
New dementia diagnosis and questions on surgery
My 72 yo DH was diagnosed last year with mild Alzheimer’s, moderate vascular dementia and Frontal lobe atrophy. In 2004, he had stage 4 lung cancer and 2005 brain tumor removed and whole brain radiation. He has CoPd. It took us 16 months to see a neurologist, she wanted to put him on Leqimbi for the AZ but his MRI showed…
-
I need advice please
My DH (64) is mid stage 5 dementia. We live about 20 miles out of town in the country. I still work full time in town Monday thru Friday. He no longer drives and is at home alone while I work. I have installed cameras so I can check on him visually throughout the day. In the last few months his short term memory has become…