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Alzheimer’s research comments by RFKJr
RFK Jr says corruption at NIH is the SOLE REASON there isn’t a cure for Alzheimer’s: “For 20 years, because of utter corruption and fraud, we were directing Alzheimer’s research to one hypothesis, and any other hypothesis was shut down. We should have the cure for Alzheimer’s today. We don’t have it PURELY because of…
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Long term meds and medical screening
My husband is seven years into this dementia journey. He has zero short term memory and confabulations constantly about places we’ve never been, ads he sees on TV etc. He can’t find anything in the kitchen. He’s 73 years old and obese but pretty healthy. The doctor wants him to have a colonoscopy and to start cholesterol…
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Moved mom to AL on Monday and now (Wednesday) she's in a psych ward
I'm horrified and don't know what to do (or what's even possible.) Sorry this is long, I need someone somewhere to understand the history of this since no one has asked us before (or after) committing her. My mom started having memory issues around 2020 but wasn't officially diagnosed with AD until this past January.…
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Dental Decision
Does anyone have experience with a late to mid stage Alzheimer's patient with 1 tooth abscess and 3 pulp exposures. Oral surgeon wants to put my dad under general anesthesia and extract all teeth. What will a 2-3 hour surgery like that do to a person in this stage? will there be much recovery or do we just let nature take…
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Sun downing
So this just started for my husband. Pulled two all nighters over the weekend. Around 4pm each day he starts getting very agitated. If I can manage to stay disconnected until 7pm and then distract him with a movie he might settle down, but does not want to get into bed. He packs, paces, usually with boots on and often goes…
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Time to get a medic alert device
My DW with EOAD is now in stages 5/6. She can’t tell me her phone number or where ashe lives. Her vocabulary has dwindled to a couple of hundred words. She spends most of her day folding clothes over and over. She talks to her special friends all day. The other day I wanted to see what she would do if I were to fall and…
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Mom has auditory hallucinations need help
My 96 year old mom has alzheimers and recently has been having auditory hallucinations - she hears the same part of a song over and over ( i can't id the song). this started about 6 weeks ago for 1 day, then again a month later the 14 days later and then 4 days later. it really upsets her. she thinks its coming from a…
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PBA
My DW’s psychiatrist seems to think she has PBA (Pseudobulbar affect). Is anyone familiar with this diagnosis? There is a medication available to help with this but Medicare doesn’t cover the drug so it is out of pocket and expensive ($1600.00)
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Just an observation
So, 30 minutes after we called our son to tell him happy birthday DW forgot that we had talked to him , but she remembers to the penny how much we spent at the grocery store yesterday. I know I am not supposed to try and make sense of all of this but sometimes it just amazes me.
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Where do I start?
My 63 yr old father has just been diagnosed with Alzheimer’s. He has not been told yet. He is still driving, but recently got in an accident and also lapsed his insurance. Anyway I don’t know where to start with telling him and planning and preparing for the future. What makes it harder is he only has an iq of 74 and lacks…
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Anyone With Resentment?
I'm going to post this before I chicken out. I have been married to my husband for 42 years. Now he has Alzheimer's/vascular dementia. Even in good times he could be difficult to live with, very controlling. Now I am bitterly resentful because I have to take care of him. Has anyone experienced this. I feel guilty and…
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DPOA ignored at mental hospital
disregard. found answer.
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Boundaries
Hello all, It's been a while since I've written. I've been busy taking care of loved ones. My mother passed away a few months ago, she had dementia and other health issues. My oldest sister also has dementia. She is in assisted living (as was my mother for the last two years of her life). I have been taking care of both of…
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Trouble getting mom to shower
My mom has dementia but it's still early onset. The two things I'm having problems with is getting her to change out of her PJs and getting her to shower. She said she doesn't get dirty bc all she does is sit in a chair. What can I do?
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AI and alzheimer's?
Excuse me if this has already been discussed, but I just read something that might show promise. https://scitechdaily.com/scientists-discover-hidden-cause-of-alzheimers-hiding-in-plain-sight/
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Constipation - Mom on hospice (and on soft diet) is constipated - suppository & food suggestions?
Hello All, Mom was discharged on Sunday from SNF to home for hospice care. She is on soft diet due to recent stroke. Her bowel movement since discharge indicate constipation and some impaction. In addition to some doses of Senna, Hospice nurse gave her a suppository last night which was productive (somewhat). But I can see…
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I’m so lost - mother is 90, English is a second language
I am so lost. My father recently passed away - somewhat unexpectedly - and, as an only child, am left to care for my 90 year old mother. I had not realized just how bad her short-term memory loss had gotten (dad never said) and I suspect she has onset dementia, She refuses to talk to a doctor or anyone about her mental…
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Mom is afraid to stay alone with Dad
Hi, my Dad has dementia. I think he's in the middle stages (gets angry, hallucinates, thinks the bank is stealing from him). Couple of days he had an episode and woke up at 3:30 a.m. Left the house and told my mom if she doesn't move, he will hit her. Thank God my aunt was there and went after him. He returned but was…
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New Dementia diagnosis
I was diagnosed with Dementia several months ago (I can’t remember exactly) and am having trouble dealing with the memory problems. I am on Memantine and Galantamine with good response…..well at least in the beginning. I feel like I am getting worse. I plan on taking to my doctor. I am wondering if I need to see a…
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Mom and Dad with Alzheimer’s
About a year ago, my mom was diagnosed with Alzheimer’s. Last week, so was my dad. They live independently together about 15 minutes from me, my husband and our 15 year old son. We knew something was wrong long before Dad’s diagnosis…but by the time we got his cooperation and finally got him to a doctor as a new patient,…
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Top of stairs gate
Hi Everyone! This is my first post. I live with my mom. She has moderate to severe AD. We will be living in a home with stairs. Any suggestions on keeping her upstairs, while we all sleep? I have read a 42” gate is appropriate. Any help would be greatly appreciated! Thank you.
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The Move to Memory Care is Here
So after over 4 weeks in Rehab for his knee and 5 weeks in a Geri Psych unit, my husband is finally being moved to Memory Care tomorrow. This facility wasn't my first, second or even third choice, but nobody wanted him! He went through multiple care assessments, and they all basically said "we don't think he's a good fit…
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Very Regrettable Appt.
Just to get it off my chest post….I know I know the calvary are not coming but darn darn darn… We went to the neurologist today after the 911 incident. I guess I was hoping for some back up but now I know there isn’t any. The Drs nurse wanted to know what I was doing to agitate him. I calmly explained, nothing…. And then…
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Anyone have any luck with washable adult diapers?
Hello, Few hours till 2025 here in the east coast, but Alzheimer's doesn't care. It goes on. We're spending a fortune on adult diapers as my LO pees constantly throughout the day given the special nutrition therapy she's on. It keeps her hydrated and well-nourished, and calm, but… it makes her pee constantly. Changing 5 or…
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how do you return to the MCF after an outing?
DW has been in MC for four weeks. I've contemplated taking her out of the facility for some activities, like going to a restaurant or a park or the zoo. But I can't figure out how I would get her to return willingly to the facility. Every time I visit, she talks about wanting to go home. Seeking advice and insights…
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Real ID or passport problems
Hi everyone and thank you in advance for any assistance. I live in Colorado but my mother is in a memory care facility in SC. As her disease progresses, it’s just too hard to have her so far away. I’m desperately trying to get her to CO to a new facility but I don’t have her original birth certificate or SS card and she…
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New here and looking for advice
Hi, I am the 58 year old son of a 89 y/o father who is entering mid-stage Alzheimer’s. I live in California, and my parents live in Southwest Florida. I had recently taken FMLA to fly out for 3 weeks to help my 85 year old Mom find an assisted living facility for him(she is unable to care for him any longer). We did find…
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Just dropping in
I just wanted to wish all the ladies a Happy Mother's Day. It's really hard to appreciate an occasion like this when you have your hands full, but try to take time to pat yourself on the back, and find the time to do something for yourself that will lessen the load, if even for only a little while. It's been a while since…
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Advice on phone calls
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10 Absolutes in Dementia Care
Shared by another member here - Thanks Chug! Here is one you can download or print: