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My journey so far
Here’s my story. About 2 years ago I began to notice changes in my husband’s memory and behavior. We were big outdoor enthusiasts, travelers and longtime birders and my husband loved photography. He began to complain about his binoculars and camera, they were not working he said and replaced them. I discovered he wasn’t…
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Fatal fall
My Dad, 89, with VD, has so many fractures due to several falls in the past 2 years. He fractured his spine, humerus, elbow, hip and pelvis. He's completely bed bound, double incontinent, needs to be fed, and he's kept comfortable with pain pills (narco, morphine). He is under hospice care in assisted living. He still has…
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Reaching my stress level point
Hi- I am a caregiver for my two parents living in one household. One has mild cognitive impairment and the other has low to moderate dementia. I have been caring for them for the past year. My issue is that my mother has become increasingly worse in the past couple of weeks. She can't seem to remember how to do any tasks…
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Ten Depends a Day?
My dad recently transitioned to memory care from assisted living. After he moved, we noticed he is using 9-10 Depends a day. A caregiver there noticed that he is wearing three pair at a time. I have gently asked about how he uses Depends. "What may be going on, to cause a burn rate of 10 a day?" His replies are defensive,…
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How to Know if Skilled Nursing Center/Nursing Home is Better than MC
Mom ended up in a skilled nursing center for rehab about 4 months ago.We didn't bring her back home because we felt it safer for her at the center. Each wing has a nurse, doctors and PA's, dentist, xrays, etc. are available there if necessary. Since she's been there she has become too weak to walk and is in a wheelchair…
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Scared to be alone
I don’t know what to say anymore when my mom says ‘I’m lonely. When are you coming back? Promise?’ I see her in MC almost every day. I know that she is scared bc she understands to some degree that she is losing her mind and afraid of what’s to come. Today she said to me ‘I’m really going to miss you. I’m running out of…
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PWD needs to go into AL, says she wants to, but won't cooperate.
I have DPOA, and I'm my PWD's only remaining kin. Once a very prim and proper woman, she now yells verbal abuse at me regularly and even curses sometimes - completely opposite her former behavior. We had toured a facility last year, and first she said she liked it, then later she said absolutely not. Recently, she's been…
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New skills
My wife was a home maker so she did all most all the cooking and cleaning, then about 3 years ago I was doing all the house work. I bought her some new pants and just yesterday I figured out how to thread the sewing machine and hem her pants up. No big deal but I never thought about doing all those things. My wife is in MC…
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feeling lost and depressed
Hello everyone, I feel like I need to vent a little bit. I can't talk to my family because I don't want them to be sad. They are feeling worried already. I'm feeling very depressed and wondering what I should do. I'm on antidepressants and meds to help me sleep because I've been having trouble with that lately. I'm feeling…
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And so it begins....
My mom just shit on the floor. Completely missed the toilet. I am trying to get her medical insurance figured out but it's been difficult to get through to social services. We can't afford a house cleaner and we can't afford a full-time caregiver. I am a single mom and a student. I don't have time for this. I guess I just…
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New here, looking for support
My mom has been on a steady cognitive decline over the past 2 years after a big fall and some medications she was placed on. We have not been given the diagnosis of Dementia due to the fact that she will not get tested and gets extremely angry when it is suggested. (She has always had anger issues and does not let anyone…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Talking merciless nonsense
Why when we are in company does my OH, who is moderate/severe stage of dementia, not utter a word, but when he is with me or his sons, he talks relentlessly. Nothing makes sense. All day long he wants to go home, Within seconds of me telling him we are home he starts again. i've tried every way suggested to distract him…
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Constant phone calls
Hi everyone, my mother is in MC. She constantly calls me, and gets upset if I don’t pick up the phone. I have blocked her number. I call her most days to check on her. She is now talking other residents and an aide to call my number from their phones. Do I need to figure out each new number and block that? I also don’t…
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LO Depression in Early Phases
we are in the earlier stages where my DH is very aware of his decline. He feels “stupid” when he can’t remember things or people. He has told me since the diagnosis that he wasn’t going to stick around for the whole journey. He is taking anxiety medication now but I think we need to add an Antidepressant. Have any of you…
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Newly diagnosed DH with early onset Alzeheimers
My DH was diagnosed with early onset ALZ November 2023 at the age of 62. We are doing a trial drug through Lily in Plymouth Meeting, PA. He'll have been in the trial for over 15 months as of Feb 2025. I am wondering what early symptoms I should look out for. He has a bad short term memory, finds it difficult to find words…
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Eating everything
husband with Alzheimer’s has no sense of being full after eating a meal. Goes directly for refrigerator for something else to eat. He has no sense, which I know is not his fault. I do all shopping, cooking, bills, pills, reminders for showers, wearing clean clothes, etc. It sets me off when he cuts off a big hunk of Romano…
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Conflicting Neuroquant MRI and Petscan
I am have started Kisunla infusions, and after my first treatment I had a “ neuroquant MRI” in order to detect if there has been any brain hemorrhages due to the medication. The results fortunately came back negative and the report also mentioned that I do not have brain atrophy. Other MRIs have said I have more brain…
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Home care services in Omaha
My brother will have to move from assisted living back to his partner`s appartment. I`m visiting from Germany and trying to help. He will need 1)someone to come in 4 hours a day to relieve the caregiver 2)Showering and clothes change 3 times a week 3)some meals brought in. Initially it will be out of pocket. So many places…
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Declining leg strength and postural instability
My husband has VD and osteoperosis, both progressing. His has a shuffling gait, forward lean, and its difficult for him to walk or stand. He uses a walker when we leave the house but refuses to use one in our home. His osteoperosis causes back pain and standing for more than a few minutes is impossible. Has anyone on this…
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Has anyone tried Lorazepam for anti anxiety med with donepezil
HWD is becoming increasingly agitated, angry and just plain mean. I messaged his PCP and she recommended Lorazepam…he is taking donepezil at the moment. I am a little frightened by the side effects especially dizziness since he is moving so slowly and is a bit unsteady already. Have any of you tried this med? I've gotten…
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Alcohol and guns
Hi, I am new to this community and have been desperately trying to find a support system while caring for my partner. we were both widowed 16 years ago when we met. Timing was perfect and we have enjoyed many years of companionship. 3 years ago I notices he could not retain complicated problems. In August he was diagnosed…
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New to the group. Need a listener pls
Hi. My dad has dementia and in MC in a dif state. I’m his guardian and take care of things for him but haven’t talked to him in few months as I suffer from ptsd and he’s my trigger. He mailed me a letter of sorts - various scraps of paper, misspellings and incoherent sentences. I can’t stop crying. It’s so hard to see his…
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Initial transition from home to care facility
I’ve been told to expect an immediate health decline when my parent is placed in a care facility. My M is extremely anti-social and my biggest concern is her thriving in this environment. Can anyone share their experiences in detail?
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Huge fiblet: spouse is "dead." Is it justified?
I've been living with/caring for Mom, in MS ALZ, for 5 weeks since Dad (also ALZ) fell and broke his hip: always our worst case scenario. Finally have her paperwork almost done for admission to a MC near me (700 miles from their home, which has made this all so hard). The plan is to take her on a plane for a "short visit"…
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What happens if you can't afford AL anymore?
My Mom is so worried that she cannot afford to keep my Dad in AL. What happens to people who cannot afford to place their LO in facilities but can't take care of them themselves? Is going on Medicaid the only option? What if they don't qualify for Medicaid?
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Paperwork
I finally got the paperwork done for durable POA and Guardianship over my 45yo EOA boyfriend. I have been taking care of him for the last year and a half so why not. His one side of the family you know the ones who say "if you need anything I'll be there for you or let me know" yeah they are gonna be upset. I had my…
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Packing up to go to other home
My DH is packing up the car to go to his house. When I ask him where that is, he says our address. I have him look outside to see the neighbor's house, the street we live on, the yard, etc. He will agree this is the address, but there is another place. He has been going in an out so much the house is freezing! ( it is 21…
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Professional Guardian
Has anyone had any experience using a professional guardian in Colorado? I am working on getting a petition for guardianship filed but do not want to be the guardian myself. While I reside in the same state, my relationship with my father has been very bad for many years and I am frequently out of the country. There is no…
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One year MC anniversary
Today marks the one year anniversary of my DH going to MC. One of the worst days of my life. I knew the day was coming. I just didn't know it was going to come the way it did. He had pneumonia and was in the hospital and so weak he couldn't stand by himself. The doctor told me he couldn't go home. He said I could no longer…