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Kinsula treatment
Is anyone in this group being treated with Kinsula? If yes what has been your experience. I would like to know more about it before making a decision to start treatment.
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Never been so exhausted
I am new to this forum. My mom has alz and vascular. I have been taking care of her since she was diagnosed 4 years ago. My husband retired early so he could help me(last September) Over the past 1 1/2 years she has gotten progressively worse. I had no idea how much harder that it was going to be as time went on. I sleep…
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What to do in an emergency??
it’s me again haha. I play a game with my wife that I’m feeling ill and become unconscious I ask her what do yo do , by the time she even says I don’t know I could be gone. My question is what to do ? Has trouble using phone or remembering numbers or even where those numbers are , even 911 is an issue. She’s very bad with…
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When Does Long-Distance Caregiving Stop Working?
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Does It Matter?
My mom has been living at a Memory Care Facility for a little over a year (but has had dementia for approximately 8 years) and while she still knows people that have been in her life for a long time, she essentially has no short term memory and is "stuck" where she was about 8 years ago (living in the same house, my dad…
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VENT - Pooping Confusion
DH has been in disposable briefs for quite a while. I watch him like a hawk when he is my eye sight to get him to the bathroom. And he has gotten much better at telling me when he feels the need to go. This morning DH let me know that he needed to go to the bathroom. I got him successfully to the toilet. He later told me…
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@harshedbuzz
I believe it was you who posted a link to a great article about preventing falls. I have been searching for that discussion but I can't find it. Can you point me in the right direction? Iris
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Not sure
hello everyone. I’m new here. I thought I would try this site before giving up. I joined another site a few years ago when my husband, the love of my life first showed signs of cognitive decline. There was so much negativity on what will happen and people were very harsh. I just wanted support. I got very depressed and…
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Refuses to brush teeth
Over time it’s gotten more and more difficult to get DH to brush. I first resigned to once a day, moved it from bedtime to morning when his mood was better, put the paste on both our brushes and hand him the brush. He knows what to do but now just gets mad and throws the brush in the sink because he “hates doing that and…
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BIBLE VERSES TO INSPIRE CAREGIVERS 4/4/25
THANKFUL, INSPIRED & WILLING Ephesians 2:10 Good News Translation “For it is by God's grace that you have been saved through faith. It is not the result of your own efforts but God's gift, so that no one can boast about it. God has made us what we are, and in our union with Christ Jesus he has created us for a life of good…
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Looking for a group of active early onset people in Seattle/Issaquah area
Hello, I am hoping to find other people in my community with early onset that are still active. My husband is a very active 62 YO with FTD who desperately wants to be out in the community helping and socializing to try and preserve, as best he can, his speech and communication skills. He hates being alone and I work…
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Moment of Being Overwhelmed with WHY?
Please no advice! Just a listening ear is what I need. I am sitting at a Panera alone with an iced tea. I fled our home—literally—-a bit ago because I could not take another moment of being in the presence of DH with mild cognitive impairment from ALZ. I feel utterly alone in this moment and overwhelmed. I have no one to…
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Getting better, wants to come home??!
We moved my mom (75) into memory care assisted living in September. At that time she was wandering often, trying to hurt herself, not sleeping, and needed to be watched 24/7 to stay safe. The first 3 months in MC she was confused and generally accepted where she was living. She was depressed and not eating so was started…
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Taking away financial agency and bvFTD
Hi all, My dad is 77 and was diagnosed with bvFTD a few months ago. He always handled all the finances and rarely spoke of money to my mom. When I realized something was terribly wrong about 2 years ago, I started the process and now (thanks largely to advice on this board!) I have DPOA and health care proxy for both my…
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Urinary urgency
My sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and aMy sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and a half ago. She has always had problems with urgency, but now she wants to go every five minutes. She had a number of falls so now…
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Questions: Cleaning up poop with shaving cream
* Does it matter what kind of shaving cream I use to clean up poop? * Does shaving gel also work to clean up poop? * Should anything menthol be avoided? * Do I just slather the shaving cream on, then wipe it off? * Do I rinse DH after wiping off the shaving cream? * Can shaving cream also be used for the bathroom clean-up,…
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Spouse prone to anger if I disagree
My spouse might be angry about a person or incident and insist that I give her a simple yes or no as to whether I agree with her. I cannot in good conscience agree but if I don’t I know she will be very agitated and angry at me. Or she might be demanding that I tell her I will do something very important to her when I’m…
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Feeling Conflicted and Guilty about moving on…
My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind and needs help with everything. I am her caregiver and have given up most of my exercise and outdoor activities to support…
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Experience with Rallies or burst of energy prior to death
Hello! My mother was diagnosed with early onset Alzheimer's 15 years ago and to say the least its been a long road! She lost the ability to walk and eat on her own about 2 years ago and has been very steadily declining since then. Last week she got very bad and was bed ridden and unconscious for a full day with fluid in…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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6th infusion
Today was # six Leqembi infusion. So far so good! Although I do have a headache and feel exhausted. I'm scheduled for a second MRI this Friday. My husband keeps reassuring me I'm doing so good and how strong I am, but I don't feel strong. I guess I'm just having a bad day. (pity party for one) anyone else out there…
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how to update neurologist
I have not seen my neurologist in a year and have declined frighteningly in last 12 months. How do I explain all the changes?
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Bad day
Sitting here reading through some of the post/discussions, hoping to find someone to connect with. I just feel so alone. Even when I'm with family and friends. I'm anxious about an upcoming appointment with my Neurologist (Thursday)even though Leqembi infusion treatments have been going well. Every morning, I wake up and…
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bathroom issues(6)
Hello this is my first post and am willing to listen to any/all recommendations for this problem. Has anyone experienced the loved one with dimentia having poop problems? The issue is she seems to some time poop on the floor. She also puts her hands in her poop. Today, I ended up loosing my cool when she had poop all over…
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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State Law Regarding Patient to Employee ratio at Memory Care Facilities
Did you know that the State of Florida allows the same ratio of staffing for Assisted Living residents as it does for Memory Care! How is this possible when many of those in Memory Care required much more daily support? As individuals we are helpless without the support of organizations like the ALZ Association and…
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Took part in Alzheimers Research study
My father clearly had some form of dementia but didn't get an actual diagnosis, it was just described as senile dementia. I have never had a great memory, but it was getting worse. I recently participated in a research study looking for the biomarker for Alzheimers. Blood tests showed I have the biomarker for Alzheimers.…
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DW just diagnosed with Early onset Alzheimer's
My DW (63) has recently been diagnosed with early onset Alzheimer's so we are in the beginning stages of dealing with it. We've been through 5 months of testing. Her mother is in assisted living and soon to be in memory care for alzheimers so she sees and knows the likely progression. We have 3 grandbabies and more on the…
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Confusion in transition from sleep to awake
I have been searching for information on this site, but cannot find much about this. My DH is developing a pattern of confusion or ??? During the period of coming awake. The duration varies, from a few minutes to half an hour. During that time, he does unexpected things like needing to empty the dishwasher unclothed, or…