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Need advice....
I have DPOA but not guardianship of my Mom who has moderate dementia (Alzheimer's and vascular) Do I need to get guardianship to place her if she is refusing? She is currently living with me and it is getting to be too much for myself and my daughter, I am a single mom and work full time with CG's at my house with her…
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Parent away from home and away from spouse
My dad is now living with my sister in Arizona because she is able to care for him. My mother is back in their permanent home in St. Louis, Missouri. It’s difficult for them to be apart, but my sisters want to limit the communication between them because my dad gets irritated and it makes him want to go home or talk about…
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[mouth hanging open]
Just had a phone conversation with my DH’s stepmom. She asked very specifically how I was doing, and then filled me in on what she was doing. Toward the end of the call, she finally asked how my DH, her stepson, was doing, but prefaced her question with, “but just a little bit; I don’t want to be sad.” I was flummoxed. As…
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Visiting DON'T
I went to visit my dh yesterday, as I usually do on Sundays, but this time when we got to the exit door there was traffic. I waited for the person to finish coming in and for the door to lock before I entered the code and gave my dh "last hug" as I usually do. Just then several people arrived to come in so I slipped out,…
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Pulling the trigger on memory care
I am currently contemplating placing my DW into memory care. My original plan was to care for her at home until she died. I am beginning to feel overwhelmed and my health is beginning to suffer. Of course, I have all the conflicted feelings (guilt, feeling like I am abandoning her, etc). What pushed you over the edge and…
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Let me whine.
Seriously feeling sorry for myself today. Please understand I love DH. What he's going through is worse than what I am. BUT… I'm still feeling sorry for myself. This disease goes on FOREVER. Symptoms first showed up 16+ years ago. When I was barely into my 40s (DH was about 45) and still a stay at home mom. I went back to…
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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Update on Mom in AL
It has now been about 2 months since she has been in AL, and 10 weeks since she broke her wrist. The bones are officially healing. She asks almost every visit when she will move back to IL. She is playing bridge once a week (kudos to the rec director who started it as an official activity - after a few weeks it whittled…
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New here
My mom was diagnosed just this year. I think she's in the early stages of Alzheimer's. But seems to be progressing unfortunately! My brother and I are the only children from my parents. My dad is the primary caretaker for my mom considering they live together. My brother lives next door and I live an hour away. My brother…
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Managing Work and Caregiving
I am struggling with how to juggle both a full time job and caregiving. My DH was dignosed with Alzheimer's at 60…4 years later and I am thinking it is time to leave work and stay home full time with him as I am worried about his recent decline. Also, thinking I need to sell our home to fund his care…so much anxiety over…
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Medicare Discharge,observation status & representative status: advise & help video
[also posting in Caregivers & Parent sections] After a call with Medicare that, shall we say, didn't go as expected I researched to plan my next steps and found this video. There is a no-cost CMS Medicare service called : qio = quality improvement organization that is supplied [as of the video date 2020] by two…
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Medicare Discharge,observation status & representative status: advise & help video
[also posting in Spouse/partner & Parent sections] After a call with Medicare that, shall we say, didn't go as expected I researched to plan my next steps and found this video. There is a no-cost CMS Medicare service called : qio = quality improvement organization that is supplied [as of the video date 2020] by two…
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DPOA
I went with my mother to her follow up after starting Aricept. The neurologist confirmed an Alzheimer’s diagnosis, which I’d put together, but it wasn’t in writing on the test results I’d seen. Its in early stages and my mom is very able at this point, although I’ve noticed she does better focusing on one thing at a time…
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Methazolamide
Has anyone tried Methazolamide yet and has any experience to share?
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Introduction- looking for advice
Hello everyone - I am new to this forum and wanted to introduce myself. I have been married to my DH for 28 years and have recently become very concerned about him. I feel that he may have some form of dementia - but it has not yet been diagnosed. He blames his symptoms on stress at work, but I disagree. I feel the stress…
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How do I get my smelly DH to put on clean clothes?
My DH had mixed dementia, both vascular dementia and Alzheimer's. I gave up on trying to get him to bath. it has been at least a year since he showered or washed up. He used to change his clothing every few days but now he refuses. I have tried everything I can think of. He sleeps in his clothes including his socks.…
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Medicare Discharge,observation status & representative status: advise & help video
[also posting in Caregivers & Spouse/parents sections] After a call with Medicare that, shall we say, didn't go as expected I researched to plan my next steps and found this video. There is a no-cost CMS Medicare service called : qio = quality improvement organization that is supplied [as of the video date 2020] by two…
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Psych Hospitals, Confidentiality, and Need for Legal Guardianship?
Writing this in part to help others prepare and understand the situations you can end up in due to lack of preparation. Also, to ask for advice. My parent was admitted to a (very well known) psych hosp. They were transferred from another area hospital. I have been their sole caretaker for the last eight months. I took my…
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Narcissists , before & after dementia ...
I recall a number of posters mentioning that their parent , now with dementia , was cold and a narcissist even before the disease manifested . By accident I came across this interview on narcissists . Who knew how many flavors there are! It's a real ketchup factory. I found it interesting that one of the ways to deal with…
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Dad continues to be ready to move out of MC plus staffing changes
Hi Community, Dad continues to talk about moving out. The difference I see now is that he is not only packing up and talking about it like before. Now he puts his jacket on and starts carrying his things to the MC door. The time it was most escalated a staff member was able to redirect him into his room to show her the…
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New to the group. Need a listener pls
Hi. My dad has dementia and in MC in a dif state. I’m his guardian and take care of things for him but haven’t talked to him in few months as I suffer from ptsd and he’s my trigger. He mailed me a letter of sorts - various scraps of paper, misspellings and incoherent sentences. I can’t stop crying. It’s so hard to see his…
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The other shoe has dropped
Well the inevitable happened this afternoon, she took another bad fall and has a spiral fracture of her right proximal humerus (dominant arm of course). We are in the ER and awaiting transfer to inpatient hospice, this is going to require a morphine drip and pray that it’s quick from here. There won’t be any coming back…
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Who else just misses their (still-living) parent?
I miss my dad. I miss being able to call him just to talk about whatever is on the top of my mind at that moment, or ask his opinion about something — anything. But especially being able to ask for his advice about life or what to do while trying to navigate this world. I miss his wisdom from a long life of experience,…
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Get me through this day!
Just venting here: The windows in our home are over 40 years old. The seals are broken on some, and others actually whistle from the draft. So after much procrastination, I decided to have them replaced. I figured they would send a couple of guys, and they would make their way through the house one room at a time and I…
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Not liking my feelings
Losing my empathy. I’m finding everything my DH does is irritating me! I can’t stand him not showering, wearing the same clothes for days on end - even sleeping in them, his constant watching my every move, lack of help with the smallest of tasks. He won’t go out unless he’s with me to provide entertainment. I actually…
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FAST Scale and info sheet
@harshedbuzz shared this link on a different discussion. I’m bringing the link here to discuss the info sheet about the FAST scale. https://alzconnected.org/home/leaving?allowTrusted=1&target=https%3A%2F%2Fmccare.com%2Fpdf%2Ffast.pdf We’ve always said that a PWD can skip stages or have symptoms from different stages at the…
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Just sad! Rant.
I am sad just plain sad. 10 years into this disease with my DH. No real end in sight. Days become weeks, week become years and the beat goes on! My DH is progressing toward his transition and I am wondering what the heck is next for me. Today is rough. I can't stop crying. I just want to turn back the clock. The past…
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speech therapy?
Hi, All, We have a speech therapy order from my partner's neurologist. They provided it at my request even though they were not very positive about yet I have read that it can be helpful for people with Alzheimers who are having difficulty speaking. Has anyone had any experience with this and could share? I would…
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Should I share my own surgery recovery with my LO that is in assisted living?
I have been caregiving for my mom for 4 years, moved her to assisted-living two months ago. I was consistently visiting her 4 to 5 times a week to assure her she is still loved and we are not abandoning her. She has vascular dementia and is resistant to much care so she doesn’t let the assisted-living staff do hardly…
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Suggestions please
My DH was diagnosed a few months ago with younger onset and we're both struggling with how to process it and move forward. Even though we've been pushing for the diagnosis for several years it's still turned our world upside down. We're in our 40's with kids and I'm just not sure how to navigate or handle everything or…