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Sundowning now all day
My DW has been sundowning for quite a while but this past week it seems to start up each morning. She goes to bed crying and wakes up crying. I can calm her down most times and get her redirected but next thing I know she is crying again. When I ask her what’s going on, she says she doesn’t know anything and doesn’t want…
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Driving
So, Dad's been living with Vascular Dementia and the beginnings of Alzheimers since 2023. HIs short term memory is gone and his ability to cook is gone as well. With me myself and I as his POA, I pay his bills( I provoide him with his junk mail and solicitations) which he syas h e has to pay and sits it in a pile. When he…
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From Maybe to Reality 3
Family had a big birthday party for DH (ALZ). I was afraid that it would be too much for him but he had the time of his life and at age 90, he danced every dance. The only think that I noticed was when 2 of the grandsons came over to the house before the party and spent time alone with him. He was telling some of his life…
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Trying to think ahead
What type of documentation does the Police Dept need to show that a spouse has dementia? Does taking the med bottles as proof meet this requirement? Just thinking ahead …just in case.
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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911 saga
Does anyone have a suggestion for getting DH to the neurologist? I called to get an official letter from DH neurologist but they said he hasn’t been seen in 11months and he needs to be reevaluated. I explained I needed some documentation for the police. So she fit us in on Monday, but should I tell him the appointment is…
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New Journey Caregiving for friend-former spouse with Vascular Dementia
I can't believe that I am now a caregiver to my ex-husband, who has no other family member, who was diagnosed with vascular dementia. Back in 2022 I thought something was a little off with his memory but just thought it had to do with normal aging. But back in January 2025 something drastically changed. He was not making…
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Did I Give Up Too Soon?
Following a violent outburst (mom attacked her in home caregiver) when she had a UTI, I made the difficult decision to place mom in MC. Tomorrow will be 2 weeks. She is more lucid than the other residents in her MC, but 'loops' verbally a lot, and it is clear that there's significant decline within the past 3 months. I am…
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Dealing with the 'loss' of my mother
Hi all. Very new to this. My mother (57) has just been officially diagnosed with early onset Alzheimer's. We've been noticing it for the past 2 years, but only recently has she been given a diagnosis. Unfortunately, because of her age, it's progressing pretty rapidly. I'm pretty young (24) and just had my first daughter 2…
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Has anyone had to make the decision for their parent to move to assisted living?
Hi. I'm new here. My mom has been living w/dementia and officially diagnosed with Alzheimer's a few months ago. She lives alone in her own home but my sister who lives nearby has supposed to have been helping her out with routine things. (Sister lives 10 minutes away, is not working, is health care proxy and primary POA.)…
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Picking Skin
There is a big fancy word called Dermatillomanina which is a OCD thing of picking one's on skin. My spouse picks her arms over and over and over. They bleed. It is messy and it is frustrating. The Doc raised the antidepressant but it didn't help. Just curious if anyone else has had this issue and any luck of how to control…
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At My Wits End
At 830 tonight, my DH called the paramedics on me. So I’m in my locked bedroom and I hear footsteps…. 2 paramedics and 2 policemen are banging on my bedroom door. I’m shaking so bad I can’t even type. He told them I’m not taking my medicine ( I only take one blood pressure pill and a Zyrtec for allergies ). They were…
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Where do you find support?
I am caring for my mom who is only 74. She had an episode that resulted with her moving in with us while we get her into someplace more appropriate for her needs. Since coming to our home she has improved in many ways. Through this experience, I find that I am struggling to understand her diagnosis. The way that her…
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My mom refuses help
My mother has been in decline for about 10 years, probably, but we’ve only just started to notice major decline in the last few years. My mother refuses to get diagnosed and has been very stubborn with regard to accepting help from anyone other than her husband. And even with him she pushes back. Self-care has deteriorated…
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Any spouse caregivers of Alz patient with teens in the house?
This is my first post. My DH was diagnosed with Alzheimer's in February with APOE3/APOE4 variant. He has had two Kisluna infusions. I am 56 and he is 70, and we are both still working, though he will not be as actively working now. We have a 10th grader at home. She knows about the diagnosis. I am so worried about her and…
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Unusual Question
When moving to MC, should I take lots familiar photos in frames….or will this make DH realize people/dogs are not around and be a constant ‘where is everyone’ thought. Any advice of things to take/not take will be appreciated..
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What next when they can't swallow pills?
I know from experience that today's occasional problem is tomorrow's permanent limitation. In recent weeks, my DW has struggled with swallowing her pills. What comes after unable to swallow pills and how do I know it when it is time for that?
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Feedback on Kisunla
Hi. I am 75 F newly diagnosed ES Alz and leaning to try Kisunla. I have Medicare and BSBC but having problems getting a breakout of what is covered and what I must pay $ monthly. Id be so appreciative regarding on what you pay for Kisunla out of pocket. And any feedback on your or your LO has on Kisunla.
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No idea what he's asking...Help me deal please
Sometimes my DH asks me something and I have no idea what he's talking about and when I have no clue what he's talking about he accuses me of needing my head examined and gets so frustrated with me. Example just a moment ago, him: "what was that thing you put on the thing to make it do that thing"? I had no idea what he…
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Phone calls
Probably an insane question, but is there a phone service available for my mom to call and talk to random people? I know this sounds silly but I would love for her to be able to speak to other people going through what she is going through. If not, we need to create one!
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Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted into the study in January. After taking 5 doses, one injection each week for five weeks, I started getting side effects. I…
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Gotta work, DH can't be alone but not ready to be placed, holy Cr. what do I do?
I work part-time because we can't make it without the extra income. Both of us are on SS. I've been able to leave my DH for 6-7 hour stretch for the last year an a half but that's coming to an end. He is good when I'm home and can take care of him and make sure he's safe, but in the past month I am realizing that he's not…
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Hello I'm back
I've been in the hospital almost the entire month of February withe the flu I'm almost back to normal. My main problem is I have hard time standing up without help. I hope pt will help me get better.
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Freedom feels so good!!
I’ve been the solo caretaker for my DW for almost three years. We moved back to California after her diagnosis to be closer to her family. Well to say the least it didn’t help me with her. Virtually no support except maybe a short visit every couple of months. Her best friend since the third grade lives about 900 miles…
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Managing bowels
Hi. Any suggestions on how to help mom keep track of bowel movements? A chart or calendar in the bathroom? Thanks.
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Mom’s negative trigger
My mom has had vascular dementia since 2020. For many years I was my mom’s main caregiver until we moved her to AL. For the past year she still resides at the same facility but now with a live in aide. I live near my mom 6 months out of the year, and out of state the other 6. When I’m in the area I visit my mom 2 to 3 days…
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Dementia, meds, alcohol
This has taken me a very long time to post and I'm not sure why. Perhaps because I'm disclosing the thing that my DH would most like to keep secret, but I need help. In addition to dementia, hubby has had multiple health problems, including numerous surgeries which have left him with chronic pain. As a result, his pain…
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Buproprion vs. Seroquel
DW has been taking buproprion for many years for anxiety/depression. She has been in MC for three weeks now. She seems to be having some trouble adjusting, and sometimes she's very down. The facility's psychiatrist plans to wean her off the buproprion and start Seroquel. Does this sound like a good idea? (I realize I…
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Next Steps
Hello! I'm new to this group and glad to be here. Wondering what I should be considering for next steps. My DH has MCI which is getting worse. So far, he still takes good care of himself. I prepare all meals, make sure he takes his meds, try to keep him active (He tends to sit and fall asleep otherwise). If I have to leave…