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Christmas gratuities
I am wondering if anyone feels they should give a Christmas gift or gratuity to any of your caregivers? We have a person who has been with us over a year, and comes weekly for 4 hours. She brings us cookies— but I'm not sure I should reciprocate. She is well paid for her time.
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Hospice opinions
I put my DW on hospice about 5 o 6 weeks ago. I’m glad I did but I’m curious about people’s experiences. I’m a retired engineer so I know I can be a pain. But I feel like my primary nurse, although knowledgeable, is a little all over the place sometimes. I also have a hard time with the doctor, who will never meet my wife,…
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Trying to adjust
Wife 78 years old has dementia first noticed problems 4 years ago last year she was afraid to be alone and I quit job to care for her. Now she is at the stage where she can’t speak coherently and gets upset when I can’t understand what she is saying, Entered a memory care facility 2weeks ago after making sure for years…
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Emotional Support
I am living for 2 years now with my 78 year old mother who currently has dementia. She is now prone to falling cause she often gets confused while walking in our apartment. She had fallen last month cause she bent down to pick her glasses up off the floor. She then fell earlier tonight cause she didn't understand when I…
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Stage 5
My DH is now stage 5 cognitively and memory wise. He is still able to attend to his personal care. Our specialist said this stage can last 6 years….can you share your experience in terms length of time and behaviors? DH has had a couple of angry outbursts where he kicks us out the house, no recognition of me for over 6…
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How will I get through this
Hubby 78 diagnosed in august with amnestic mild cognitive impairment. Memory not good with paying bills or remembering what day it is. Asks all day long what’s today. He still drives and driving is fine. Goes to gym every day. Reads. Doesn’t follow tv shows so good and irritable. So irritating I want to leave. Im still…
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Dementia and Personality Disorders
I know there are many of us here who deal w persons w difficult personalities and dementia. I saw this Dr. Natalie video and wanted to share. My DH doesn't have a diagnosed PD or diagnosed dementia but he sure does "quack like a duck." 😁 Im sorry it isnt hyperlinked. I never seem to be able to get it pasted that way!…
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My partner
I was recently diagnosed in early December and have been more worried about how my partner is going to handle being a caregiver…. He is a very sensitive thoughtful and caring person but also suffers from depression. Hence my concern….he did go to one caregiver support meeting.
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Freezing Credit with Experian
Does anyone have a guide or experience with freezing credit for Spouse with AD with Experian? I have checked their site, called their number, but can't find specific instructions for protected consumers. Number is automated, chat doesn't have any information for incapacitation. AI generated answer says to follow Experian's…
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Awkward and Embarrassing
I am asking folks on this platform for advice on how to handle a spouse who no longer speaks with a filter, seems unable to "read the room", and says embarrassing things in public. I understand that my spouse is no longer the woman I married almost 50 years ago, and she is not to blame for the disease that controls her…
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Very interesting book
I almost hesitate to put this out there but decided to do so as I see improvements in my DH since starting him on this program. “Alzheimer’s Disease What if there is a Cure?” by Mary T Newport, MD is a very interesting read. I started following her suggestions with coconut oil and MCT oil on November 11th and have…
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Just Sharing
I stumbled upon this poem because the slide image of a dragonfly caught my eye. My dear wife, now gone for four months dearly loved dragonflies. I found them pretty and interesting but never quite understood her fascination. When we were at our condo in Florida sitting on the balcony, dragonflies would show up in numbers,…
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Decline when placed in Memory Care
Regret regret!!! My LO was placed in a Memory Care facility just three weeks ago. They were living alone and after three weeks needs wheelchair, has fallen four times, wears diapers, can hardly feed self and mumbles. He walked with walker into the facility on the day he was admitted.... what happened! Is it the change that…
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Bible Verse to Lift You Up 12/19/25
TODAY’S INSPIRATION THE LORD IS WITH YOU AND ME Psalm 3:5 New Living Translation I lay down and slept, yet I woke up in safety, for the Lord was watching over me. me: Our lives might be a struggle, but you and I are never alone without help. In Psalm 3, David writes the Lord is our shield and our glory; He hears us and…
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Bible Verse to Lift You Up 12/20/25
SET APART FOR GOD Psalm 4:3 NLT You can be sure of this: The Lord set apart the godly for himself. The Lord will answer when I call to him. MEDITATION How wonderful it is to be included in the people God has chosen for Himself. How hopeful and joyful to know He will answer us when we call Him. His answers are always best…
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Facebook and DH _ no way to delete my post??
I had already posted about this in the past, but can't seem to see a way to delete a post? My DH is in stage 4 going into 5, a year after alz diagnosis. He's still able to care for his daily needs and does many routine chores on his own. He's been on Facebook since 2019 and enjoys reading posts and posting his own things.…
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Drumming in his sleep
My DH is at moderate stage 5 and sleeps well through the night. He went to sleep at 7:30 this evening. In his sleep, from about 11:15pm to 11:30pm, he started a very fast, vigorous rhythmical drumming with his finger tips on the wall behind his head, lasting from 3 to 25 seconds each and less than a minute apart. My quick…
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Security system
Hello I’m new to the community. My father was diagnosed 2 years ago with ALZ. This past he has had a rapid decline in cognition and I need to set up door alarms and locks. Does anyone have a recommendation? I am pretty tech inclined. Was looking at Simplisafe VS. creating a piecemeal system. Any suggestions welcomed!…
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Christmas tree
With all the issues there are to deal with, this seems so very trivial. But, maybe someone here has some wisdom for me. I used to LOVE putting up the Christmas tree. It was almost a "ceremony" for me, with holiday music playing and every single ornament being hung on the tree. Window swags, candles, a village of ceramic…
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Neuro Pyscological Testing
Well, mom's new pcp is on top of her game and I am so pleased. After mom failed her SLUMS test, the doctor finally was able to get my mom a neuro consult. She has an HMO, so annoying referrals are required.😢 Anyhow, referral obtained, appt made. Mom saw the neurologist today for them to review her MRI from July and consult…
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His Birthday is Today
My husband just passed on June 19, and today is his birthday. While there is never a good time to go, this is just too close for me. I am struggling in every way. How does one get through these important dates? I know the first year will be the worst, but this is beyond awful. People are calling & texting, and I'm hiding…
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Care conference
Mom moved to snf about 6 months ago. She is doing well for the most part. Her memory isn’t too bad, but she struggles with executive functioning, logic, and has bad anosognosia. She presents herself very well. I have a letter signed by two doctors stating she is not capable of making medical of financial decisions for…
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Companionship for the caregiver
I live in MA and for the last 3 plus years as my wife’s condition has continued to worsen the isolation has become overwhelming. I need social contact, adult conversation. I cannot be alone with this struggle and my hope is to connect with a woman who may be experiencing issues and to at some point meet for lunch, coffee…
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Hospice
It has happened. My DW has qualified for hospice. She lost 12 lbs in the last two months and can’t bathe herself anymore. That’s why she qualified, not because she is 6 months from dying or anything. Thought that might help some folks to know. Honestly though, I don’t see her making it to 2027. I am both a wreck and…
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From NYT: Study Linked Cheese to Lower Dementia Risk
If you like high fat cheese, you may have a lower risk of developing dementia, but may raise risks for cardiovascular disease. Shared article: https://www.nytimes.com/2025/12/17/well/eat/cheese-dementia-study.html?unlocked_article_code=1.-E8.81Oo.E1xhBSaBlICz&smid=url-share
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First time caller
My wife (60) has been struggling remembering things that happened yesterday or even an hour ago. I thought it was stress related because we had major events in our lives: retirement, moving across country, empty nest, new grandchildren. But that was just the start. We tried playing games like pickleball, cards, dice - most…
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Meeting with the Neurologist
New to this forum…We have met with the neurologist 4 times over the coarse of the past year. My DW does not understand why we are there, yet we sit and talk about her condition in front of her. It is very uncomfortable for me. When we leave she resents what has been said and voices her dissatisfaction with the doctor. Is…
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Bible Verse to Lift You Up 12/18/25
GOD IS OUR PEACE Isaiah 26:3 NIV You will keep in perfect peace those whose minds are steadfast, because they trust in you. John 14:27 NIV JESUS'S WORDS Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. Pray + Trust the Lord = Peace
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What do you wish your LO could know about you, do for you, or say to you?
I am a retired teacher. When I was teaching, one of my favorite books was I Wish My Teacher Knew, by Kyle Schwartz. I believe the book helped me to be a better teacher. Now, I am a caregiver for my husband (DH) who has dementia. To be a better caregiver, I want to know… What do you wish your spouse, loved one (LO), or…
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Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…