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Rapid Decline
My DH dropped 3 points on the MMSE in 6 months. I was told this is rapid decline. His score is 18 but they said he has/had high cognitive reserves. I put him at a solid stage 5 with a foot in stage 6 on Tam Cummings. Has anybody experienced this with their LO? Does it continue dropping at a rapid rate or can it be a one…
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I Would Pay Money for a Little Anosognosia
As my DW loses her ability to speak and has started becoming more anxious and paranoid, she will say to me, "I am about to lose it all." and then she'll cry. So I cry and think of how utterly unfair it is that she knows, really knows that her brain is failing her. I know her thinking she has nothing wrong would bring it's…
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Little kids visiting advanced stages?
My mom is in the advanced stages of EO alz. We recently moved her into memory care. I decided to travel to visit a week later to offer support to my dad who was struggling with the decision and to see my mom. I brought my two young children (6 and 2 yo)with me to visit mom. My mom often does not seem to know what is going…
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When to seek hospice assessment?
Hi, My mother is my father main caregiver but I see her increasingly doing more than her body can handle. She is not getting enough sleep because he keeps her up at night. She has to hold him up, and now she's starting to feed him. My father is a different person he was in the Spring. Now he sleeps constantly and barely…
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Unwanted Advice
Back story, My mom (83) was just diagnosed with dementia along with multiple other health issues. I have been bathing her and taking her to appointments since February (since and hospital and rehab stay). Now I also cook her meals. My dad does the best he can but he is 88. I work a part-time job, a seasonal job and own a…
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desperately seeking advice for unique situation
Hello everyone, I’m new to this board and am hoping some of you can offer me some advice because I have no idea where to turn. This is all really a lot so I appreciate all of you who take the time to read it. My aunt and uncle both started showing signs of memory decline approximately 10 years ago. No matter how hard my…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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Don’t know what to respond
My DH has just moved to a new MC after he was “dumped” in the ER by the prior facility. He is now getting great care, but the stay in the ER did a lot of damage. He cannot walk, has vision problems and his speech, which was poor, has become almost unintelligible. So he has lost the ability to communicate with the care…
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New at this. HELP
My wife has short term memory loss, higher than normal fear levels, general agitation and breaks down and cries far too often and easily. Don't know how to get into her world and probably support and help. Need advice and counsel ASAP.
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Struggling with mom in NH
Mom has been in NH for over a year and has quickly become aggressive, more disrespectful then normal, talking continuously without taking a breath, hitting her call light 12 times in 4 hours for nothing important, obsessing over Money and wants to purchase hundreds of dollars of stuff she doesn’t need. Calls me names and…
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reframe my thinking?
Hello community, I think I need a reframe for my thinking. Taking some time away from visiting my dad due to his anxiety and agitation. He has been in MC here closer to me for about a month. I've stayed away for a week and half previously and am currently in the midst of another week away. I keep thinking that he is…
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Today
Good day but cooler today. Becoming Autumn. Doing fine with some gummy assistance Sat PM now but nothing is really happening now? Anyone around?
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forgetting things
hi, yesterday mum found a coffee satchet in her handbag. she had no idea how it got there. i tried to reassure her as she was thinking oh did i steel it but my mother would never do such a thing. i told her what would of happen but she panicked for an hour about it and had a panicked attack and i had to give her a valium…
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Lost laundry and the wedding dress
Mom is in AL and as you would expect some of her clothes have come up missing. Sometimes they return other times they don’t. It’s frustrating, but kind of to be expected. Mom is so frustrated she is now washing laundry in her bathroom sink. We set up something to hang things in the shower to dry. Her comprehension socks…
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Looking in the rear view mirror
Why do we spend so much time on looking in the rear view mirror? It is so useless. We ask ourselves those questions that have no satisfactory answers. We torture ourselves with guilt, regret, resentment and remorse. Why? We complain that it is so unfair that our retirement that was dreamed of and planned for ends up in…
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Delusions- how to respond
Please help me with how to respond to delusions and paranoia. My parent is very paranoid about someone stealing his items. He often hides tools and important things, forgets where he puts it, but then accuses someone of stealing. How do I respond to this without upsetting him?
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I cry every day. I don't know if I can go on like this. Too tired to seek help.
My DH is probably Stage 6. He gets agitated, angry, cursing at least a few times a day. Otherwise, he lies there watching TV. He wants to get out and then he doesn't. I'm taking care of him on my own. No kids or friends available nearby. I tried bringing in help but DH is very resistant and throws them out of the house. I…
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Tired
My wife is in the beginning stages she forgets a lot of daily conversations and can’t find the right words to make a sentence. I like to go exercise walk but can only be gone for two hours. She wakes up mad at me almost every day. I go walking daily just to have me time. I take care of everything, finances, cooking,…
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moving into memory care, not sure if we should wait longer
My mom has been on the waiting list at a memory care facility for a long time. My sister and I are both burnt out. There is a room available now that shares a bathroom with another person. My mom hates sharing bathrooms with strangers and gets grossed out easily by other people in her personal space. I am not sure if we…
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What I miss the most
No question just how I feel. I have had a couple of drinks and am sitting in an empty house thinking (drinking and thinking maybe a dangerous combination). I have been married for 49 years and during the first 25 years I thought we had as close to perfect marriage as possible. the last 24 years has been much less than…
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I would like to speak with someone else who has Alzheimer's
People without Alzheimer's keep responding to my entries. I would love to join a forum where I can actually interact with people who have Alzheimer's, not mci and not caregivers. Thanks
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have covid can’t visit MC
We had to move my dad who is 82 to memory care about three weeks ago because we couldn’t lift him to change him anymore. He’s in hospice with heart failure and the dementia. In the process my mom (80) and I (51) caught covid and it’s been a week but we are both still symptomatic and testing positive. We are brokenhearted…
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Can you be kicked out of MC for not complying with continence care?
I was not imagining the aids at my mom’s place were asking about taking her home. We had a follow up care meeting and the directors basically told me if my mom can’t become more compliant re: incontinence (mostly urinary) they may not be able to keep her. First off the big problem is their rugs. She needs her carpets…
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New here and need to talk to others
Hello. My name is Jacki and I am 68, diagnosed with moderate cognitive impairment that is not Alzheimer’s. Right now I’m having a heck of a time trying to convince my insurance to let me go to a huge brain and memory center run by the Universty of Washington. We have one neurologist in town who is doing a lot with…
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Caregiving for Parent when you have a full time job and a teenager
Good morning. I am new to this forum and located in Wichita, KS. My mother has some memory issues resulting from an unknown stroke about a year go but discovered after she had a fender bender last March. I am 55, work a full time job, have a 16yo at home and two dog :smile: . She has always lived independently (my dad…
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Mom is in Assisted Living now
After rehab we were able to get her directly into an Assisted Living in a new community. I was all set to go with the same community where she lived for simplicity, but they were unwilling to work with us to get her placed directly and wanted her to go back to her apartment for a week or two, even though they had a room in…
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Checking on Butterfly Wings
just aware of your absence, hope things are okay…
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It's time
My husband's progression keeps marching on. His gait has been unsteady and this week he had a bad fall. In the end he had some bad bruising, but thankfully no other injuries. He's had two more falls since. I'm finally accepting that I can't keep him safely at home. I've started the process to place him. I hate this so…
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mother refuses health aid in home
Mother is refusing the nurse to come in for home health aid and threatens to call the police and yells for nurse to leave. The she complains that I do not come to see her. When I come to care for her, she forgets all that I have done and asks over and over, when am I coming to see her. I asks her to please let the health…
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Lots of strangers coming and going at home
I started with in home care for my DH back in the summer. I'll be honest, I was so overwhelmed at the time, that just having a few hours to myself was amazing. I also had to hire contractors to do many things my husband use to do or that we would do together. I went through 3 cleaning services alone, not to mention the…