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Hello friends, Dad (79) is in an assisted living, not full nursing home. He really likes it there and our goal is he can stay there as long as possible. Urinary incontinence is happening more, but he can still get to the bathroom or be reminded to go and it's ok. The facility doesn't have a person who would help with that.…

Hi everyone. Thank you to anyone who has time to read my long introduction: Four years ago my husband, young-adult child, and I moved in next door to my mother, who had been diagnosed with MCI around 2016, I think. She has not been diagnosed yet with AD, because she won't get the PET scan. However, she seems to be…

Recently I had an electrician out to give me an estimate on several things. Very nice guy. Quite. It was really more than I had planned to spend so after a little back and forth I just said ok. I don’t think he had gotten a good look at my wife (stage 7b) when he came to do the estimate. When he came to do the work it was…

I will be looking discussions and participating for information and support. I have looked at a few discussions and have noticed the stages mentioned. Is this something that my wife's Dr. would evaluate? We have known that she has had memory problems for some time, but she also has MS, so diagnosis has been difficult. Her…

My DW and I are married 48 years today. Sadly, I know that it will pass with little recognition. Yesterday, when I mentioned it, she said it can’t be because she’s not that old. I sat here this morning with my coffee and read the poem posted by Groovy’s Girl. It made me cry today. Such a terrible disease.

For the last 4.5 years I’ve tried convincing my mom to see a doctor because I was concerned. She is unable to see her symptoms. It took behind the scenes convincing my stepdad that she was a getting worse for over a year and him finally noticing to get us to the point that we had an appointment with a geriatric doctor this…

Has anyone here been approached by a Longevity representative regarding switching from Molina Advantage to the Longevity health plan? Looking for any advice pertaining to the pros/cons of this matter. Thank you, Megan

My mom was starting to show signs of Alzheimer’s but she refused to admit it. I was doing all the work when she needed help or forgot things and finally had to step back for a few months so my brothers would step up. Now they see how bad it is and after a 2 am phone call they see she should not be living alone. The only…

I need advice honest advice that I know I can get from this amazing community. My dream since my children have grown married and have children of their own is to vacation all together. All 16 of us together in our vacation place in NC. Well finally it was arranged! Children took same vacation week, they rented a house near…

My DH is at the beginning to mid part of his diagnosis. Does anyone have any advice on getting children involved in caretaking and better understanding the disease? I am a stepmother to my DH’s kids and they have not been very engaged. Any suggestions would be helpful.

My DH with Alzheimer’s has been very agitated and angry these past weeks about his father. He at first remembered that his father had passed away (24 years ago) but then seemed to repeatedly experience that realization and was obviously distraught and traumatized, and then believed he was still alive and his dad’s widow…

My 78 y/o Dad had general anesthesia for the very first time in his life last December 2025. I noticed his cognition was worse post surgery. . I had requested a PETSCAN AFTER HIS SURGERY but we wereDENIED). In Feb/March 26 he develops an earache that has never gone away. 6 months worth of different tests/treatments from…

I stumbled upon this song just now as my body once again refuses to sleep. It expresses my heart. I am sure I am not alone when I say, "I Am Not Okay." I hate this disease! I hate what it is doing to my darling mommy, diminishing her bit by bit by bit. I hate also that it leaves me begging/praying/wishing for some family…

My partner has been diagnosed recently. When he forgets something or says a wrong thing, should I tell him or let it go?

Hi Friends, My dear wife is home from a 4-day respite stay. Her hospice team recommended that I take the 5-day respite that Medicare provides for caregivers of dementia patients currently on hospice. If you have not already checked on hospice services for your loved one, especially if they are into Stage 5 symptoms or…

My mom was living in an assisted living memory care facility up until she broke her hip and had surgery. The hospital she was at lied and told the rehab facility that my mom has ‘a little confusion’, so the rehab facility accepted her to be transferred there. The hospital did not tell the rehab facility the severity of her…

It breaks my heart when he told me he feels worthless because he can’t do the things he used to do. I reaffirmed the things he’s doing right but that’s not enough. He still says he feels useless and good for nothing.🥲

My mom is extemely mean to me at times. She has Alzheimer's and I have been taking care of her for 8 years. When I suggest something like for example, "You can put on your pajamas since its night time" She'll respond, "Yeah I'm not stupid, I know what I'm doing" I try to give her as much autonomy as I can, but she is in…

My mother lives with me and has early stage Alzheimer's. My dad lives close by on his own and is getting testing for dementia. My mom has been really depressed for the last few months. It's hard on everyone but my husband does not understand how to talk with and have patience for my mom. I am not sure what to do. Does…

My DH with EOA now for 4 years acts like such a big baby. He sulks around, slams draws and stomps around when the day doesn't go his way. I went to visit my grandkid and told him I would be gone until 2pm. When I left, he was fine with that. When I walked into the house at 2pm he was MAD. He seems to not want me to have a…

My DW has been receiving an ever increasing amount of spam calls on her cell phone lately. She is currently stage 4 and I while I don't want to discourage her from using the phone, I want to make sure that she is safe. While looking for solutions, I came across the National Do Not Call Registry (donotcall.gov) Not sure if…

My LW, 79, diagnosed w/early onset Alz last year, was discharged from the hospital last week. She was admitted for diarrhea/vomiting, fever and disorientation. Found out a lot of what she didn't have, nothing on the cause of the fever and digestive issues. She was sent home with antibiotics. She finished them 5 days ago.…

My mom has EO and she insists that we need to go grocery shopping every single day. Not in the sense that she is aware it is daily and believes it to be a daily task, but that she asks constantly, for hours at a time. Daily. It doesn't matter how much food we have she just wants to go. She will open the fridge and say "we…

We've qualified for 24 hours of help from a home health aid paid by our insurance but I don't know what to ask of this person (if we can find one!). We are both ambulatory, ride bikes together and I manage household chores. My DH is easy going, polite, charming but needs to ask questions all the time and repeats himself…

I got DW (61) registered with UCLA's Easton Center and waiting on a recommended Doc appt. HUGE relief! Sitting up on a recent lengthy insomnia (anxiety induced) bout, she began sharing her fears with me about where this goes, how it goes, then tearfully, please don't leave me (My answer then and always: "Never! This is…

My LO has dementia. My mother is the primary caregiver but we live close. My LO is still at home with no outside help. LO is becoming increasingly paranoid about who his wife is. He is antipsychotics. How do you decide ifits time to have live in help or memory care of just a Rxadjustment

This is my first post. I have gotten a lot of good information from reading other posts on this topic, but have not found the answer to this question. My DW has had several falls, and I must hire a CNA to help out, and perhaps give me respite time, time to do errands, research care living alternatives, etc. I do not feel I…

Hello! I have been on here for about a month or so now and have found everyone so very helpful. I have some thoughts I’d like to share and hopefully someone can give some insight into whether or not it would help my situation. So my dad has VD, or so we have been told. He is in a NH that he hates and he “WANTS TO GO HOME”.…

Hi fam! What a hell of a ride this caregiving journey has been. Having had my DM move in with me 2.5 months ago has been a great eye-opener. Mom has been showtiming like a pro and boy was I fooled. Anyhoo, I wanted to share what I just found out. My mom's PCP has a case manager. She has called me a few times since mom's…

Hi: Linda (my wife) passed tonight. I had seen her this morning and this afternoon I got the call.