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Home care
DH diagnosed with vascular dementia 5 years ago is “progressing” in this horrible disease. He has difficulty walking due to major back issues short term memory deteriorating only leaves the house with me. I am looking into home care from some agencies nearby for companionship maybe 6 hrs a week and give me some time. What…
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New to CPAP
My DH was diagnosed with MCI, although I believe that he is a bit further along since he does showtime for doctors and nurses. Sleep studies determined that he has sleep apnea and his neurologist feels that it may be causing, or at least contributing to, his cognitive decline. So…he has a new mask and it's a challenge to…
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Sometimes I just want to hide
Hi all, been browsing thru these discussions. It nice to know I'm not alone. I'm 66 yrs old and my DW with Alts. is 68. I have allot of mental anguish for my loved one. 44 yrs of married life 2yrs of serious dementia issues. I have troubles with her sometimes telling me she doesn't know who I am-and wants me to get out of…
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Palliative Performance Scale
My wife was diagnosed with Alzheimer’s in July 2016. To keep track of her progress I used the Global Deterioration Scale, also known as the seven Clinical Stages of Alzheimer’s. She was recently placed on hospice and I was introduced to the Palliative Performance Scale. I shared it with a friend, whose wife is in the…
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Inhaled aromatherapy improves cognition in those with cognitive impairment
Unfortunately, I don't have access to the whole article, but here are some of the key findings from this meta-analysis. The effect of inhaled aromatherapy on cognitive function in patients with cognitive impairment: A systematic review and meta-analysis Inhaled aromatherapy improves cognitive function in patients with…
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Dementia caregivers in the UK
Is anyone here from the UK?
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Ups and downs toward the end
My DW has been in MC for almost a year now. She is stage 7 and every few days she is almost unresponsive and I've thought "this is it" but she bounces back. A few days ago when I was at the MC, I'm there twice daily to check on her, hold her hand, etc, the staff had laid her down in bed for an afternoon nap but she was…
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I am so angry and I can't help it
Forgive me for the ramblings but I don't know what else to do. I used to write on these boards about this but haven't written in a long time. My last email was breached so I'm writing under a new email. I am a religious person and believe that God knows what he is doing but I am still so angry and sad and full of grief. I…
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Recommendations for Group Disability Attorney
Any recommendations for a Florida attorney (focused on LTD and you've had success) to assist with the transition from active work status to FMLA/Short term/Long term disability (group benefits)?
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Work at neighbor’s - worried about DH’s reaction
One more thing to worry about…we have a section of chain link fence between us and our neighbor (fence is slightly on our property). It’s covered with a beautiful passion flower vine, which they planted so it’s rooted on their side. Now they plan on extending their vinyl fence inside the chain link which means pulling out…
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Coping
Hello. This is my first time ever joining any type of support group for anything. I am normally a very private person and have been debating for months on how to cope with the fact that my father has been dealing with memory issues for the last few years now. It’s really hard for me to see him so confused and repetitive.…
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Boredom
So it been almost 8 months since a moved my dad in. He still thinks he’s visiting. I work a time job from home and mainly the sole care giver for him. When he first got here his sleep pattern was off and he would sleep till 2pm if I didn’t wake him. He’s timing has recently changed which I feel is a good thing and now he’s…
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mom wants to go home
what do I tell my mom when she repeatedly wants to go home, cries, says she wants to die, it's heartbreaking
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MC just for meals
Hello All I heard from the Director of Nursing and they are moving my Mom to MC for meals. To assist her with feeding. Yes, my mom has been having issues with feeding herself . Is this "normal"… to be honest, I don't know what is normal anymore… but is this usually done? Will full time MC be next? Thank you
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New Here - Caring for My Mother
Hey everyone, I just found this support group website. I'm currently 32-years-old and caring for my 52-year-old mother who has early Alzheimer's. Does anyone recommend or know of a place I can find a social worker to help me out here? I'm supporting her financially, and I need to find a safe place for her to live. Thank…
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Financial crisis in the making part 2
I had posted here a couple of weeks ago. You are all so wonderful to have given me advice, which I am following through on as well as I am able. My dh is not able to make sensible decisions about money and his healthcare. He needs to see his neurologist and his primary care doctor. He has an appointment for the neurologist…
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Grief after loss of mom with Alzheimer’s
Hi there, new to the support forum and hoping I can find any whom are dealing with the grief of losing a mom to Alzheimer’s. I was her sole caregiver for nearly 7-10 years. I’m hoping there’s some other Alzheimer’s daughters out there. How do you handle the combined grief, trauma from caregiving and near debilitating fear…
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New guy
My first post here: my wife’s diagnosis is not confirmed, but the progression is not good. We’re both 77, still in our own home and on our own. Kids are sympathetic and eager to help, but they live at a distance and have their own lives anyway. My wife was a great teacher, and she has many colleagues and former students…
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Caregiver for parent diagnosed early in life.
Hi, My mother (60) was diagnosed with Alzheimer’s early this year. It’s been a big change for her of course but I am now her sole caregiver (F25). Running her life and taking over her finances. love my mom and I am so grateful I am able to be with her while she still is in the early stages. But I am struggling with getting…
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Leqembi Concerns
I have read the posts on "The Problem with Leqembi" and recognize that it's no silver bullet. However, my DH with ES read in the newspaper about its FDA approval and wants to try it. He asked me to make an appointment with his neurologist next week. Background: DH is 84 this month. He was first evaluated in 2018 and…
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Hypersexuality
My DH has been driving me crazy for a few years with sexual comments all day. The other day at doctor's office he told the nurse she had sexy shoes. This is the first time such comments were made to others. Never before this disease would he say something like that. Several months I spoke with his geriatric doctor about…
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Showboating?
Does anyone know how LO’s are capable of showboating? If they can behave differently with others, why do they challenge their caregivers in unreasonable and even harsh ways? If the brain is “broken” how do they seem to temporarily “fix” it in front of others?
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Living with Alzheimer's - A Caregiver's Journey
My wife was diagnosed with early onset Alzheimer's eight years ago when she was just 60 years old. I have been her primary caregiver every day since then until her death last month. As a means to help me cope with this terrible disease I wrote a detailed journal of my experience over that entire time. The writing is in two…
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The dementia routine
I know all of our journeys are different but many are scarily similar. My husband has no initiative and does the same pattern everyday. His day is focused on eating and going to the bathroom. Other than those things, (which seem to occupy a great deal of time everyday), he would just sit in his recliner in front of the TV.…
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Overwhelmed and not sure what to do.
Hello, I'm new here. I joined because I need advice on how to help my mom. She's eighty years old, started showing signs of dementia and possibly some other cognitive issues over the last three years. A bit of background; My mother's reasoning has always been questionable since she was a child but it was dismissed as -…
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Time shift
My mom has Alzheimer's and seems stuck 31 years ago when her step dad passed away. She keeps insisting on going to the funeral home and make his arrangements. I have tried everything including telling her I have already done it to he's been gone for many years. She gets angry over it. Not really sure how to handle this. My…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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Guilt around visiting MCF
Hello, I’m a new member and I was referred by a Dr. to connect with some others going/gone through it. I am in my early 30s and I cared for my mom for ~4 years at our family home before it became too difficult for me to care for her. I didn’t have the skills to provide the care she needed nor the mental strength. I was in…
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Getting very difficult
Hello, my first post. My husband has moderate Alzheimer's. Officially diagnosed last year but it's been going on since about 2017. He has no short-term memory at this point. He had emergency triple bypass in 2021, and it progressed a lot since then. Goes to Adult Day Care three days a week and he's in his third year. He…
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Caretaker for parents with dementia
Both of my parents have dementia. My brother is autistic and we found a residence for him. He moved 2 months ago. My father has rage outbursts b/c my brother isn’t home. I want them to speak with each other. However I’m afraid of the chaos they will cause demanding that he come home but it’s not safe for my brother to live…