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Rapid progressing AD because of seizures???
Hi everyone, My mom is in her late 60's. She was diagnosed with mild dementia about a year and a half ago. She has been having seizures and it seems to be progressing the dementia at a very rapid rate. They're now saying she's got Moderate dementia, which seems accurate based on what we're seeing and the level of care…
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Jury Duty
DH voted in the last election. The ballot was long, and he only voted for a few that he knew, but he voted. Our jury summons are pulled from the voting lists. Today’s mail had a notice for DH that his name was pulled for Grand Jury duty. No way can DH be on a jury. His short term memory is almost nil. There was a link…
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Managing Incontinence
I’m new here. My DH was diagnosed about 2 years ago with FTD and possible ALZ. We are now dealing with incontinence. I am ok with pull-ups but he has a bad habit of missing the toilet and peeing on the bathroom marble floor. I try to get him to go to the bathroom on a schedule but he just won’t cooperate. I’m not sure he…
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Visiting a stage 7 patient
DW has not had the slightest cognitive reaction for 3-4 years. She can still swallow but reacts to nothing else. She has excellent care. So why do I visit? It is no practical use to her and emotionally very trying for me. But I do.
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I Feel so Awful….
my DH is cognitively stage 6. He layers clothes, confuses hand cream for tooth paste, hasn’t known me for a long time, (though he likes me). When he is having a good day and 4 hour respite, it’s easy but he has to stay continuously busy which is hard. He loves the out doors, hasn’t wondered but daily gets cuts from picking…
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Rapid Progression
My mom is 91 and has had early onset of dementia for the last couple of years. She recently got a UTI and has since then gone into a place that I do not even know how to cope deal with or even have a conversation with her. I have her at a skilled nursing while I figure out how I can either a bring her back home with me or…
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Combative and Unreachable
I'm reaching out to the most knowledgeable group of individuals who never wanted to be here, hoping someone may have some insight and guidance as I have reached my wall. My DH, love of my life, married 56 years, has been in memory care since last July - he has mixed Dementia - alzheimers and vascular. Diagnosed 15 yrs ago…
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Anger issues
when my DW’s memory lapses, I expect her disorientation. What surprises me is the anger that accompanies it. It’s like she is two different people. All I can do is be patient, but it is very stressful. The
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Caretaker of Mom with new Dx of Alzhiemer's Dementia
Hello - My mother (78) has fought me every step of the was through her Dx of dementia and now Alzheimer's. Today we saw a memory doc to discuss the possibility of the new medications for those with early onset. I was hopeful this would help my mom prolong the progression of Alzheimer's. Unfortunately she does not qualify…
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Re: Respite
Everyone tells me I need to take advantage of the respite being offered by friends - I have complied several times, however the fact that nothing is going to change with regard to caring for my spouse, especially at night. It’s only going to get more difficult and having an afternoon to do whatever for myself is like…
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Medicine refusal
My mother has dementia, which has now become more serious with delusions and not recognizing her children and other close relatives. For 3 months following a hip replacement operation she was incapable of doing most daily activities and has had the help of a live-in caregiver for basic things like changing her diaper or…
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Medicaid and Nursing Homes: Not Political: Just Necessary to Speak Our
I depend on this site for emotional support. It also has made me aware how lucky I am that my husband and I had good jobs and were super savers. I just finished a meeting with a money guy who went over my finances. He walked me through how I can afford good private memory care for my DH without complete exhausting the…
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Mush
My brain is turning to mush. Can anyone else relate to this? My DH not only has VD he also has APHASIA so we often live in silence. We have quite a few activities together walking, sailing, gardening etc but like everyone else it’s mostly 24/7 care, dressing, showering, food then household chores. Today we had a lovely…
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memory care leases
I started touring memory care places in case it comes to that. For those who have a PWD in memory care, do you have a lease that specifies a specific rate for a specific term? If so, how long is the lease? Are there any interesting terms to the lease that let you get out of the lease? Month to month for memory care sounds…
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Hello Everyone - just diagnosed with AD
I am a retired engineer, 71 years old, born and raised in Ponce, Puerto Rico, but I have been living on the mainland since 1984. I am a widower living alone and was recently diagnosed with very early stage AD based on the results of my PET Scan, even though my PTAU 217 levels showed normal. I do not have the PTOE 4 (is…
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Adult daycare
I need to get DH out among people and looking into adult daycare . Very few in my area but some 20-30 min away . Thinking of taking him with me is this a good idea or should I check them out in my own first?
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Mom
Hello, I have been seeing her with my sister recently. She sleeps all the time and as the desiese progresses well it is really terrible. I still kiss, hug, hold her hand and pray with her. Actually now my sister plays the Our Father in Italian for her. No matter if my mom responds to us, it's really all about her and not…
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Early Onset AZ Newbie
I’m new to this community. I am (51F) taking care of my dear husband (56M) who was diagnosed at the beginning of January of this year with mid-stage early onset Alzheimer’s dementia. There were signs starting about 3 years ago that I just didn’t associate with dementia, and I (mentally) kick myself for not realizing…
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2 parents with dementia/Alz advice please!
Hi there, I am brand new to this community and my siblings and I are at a loss. My dad was diagnosed recently with stage 4 Alzheimer's. He has trouble tracking and it is still in denial and continues to tell us he is fine and nothing is wrong. I am unsure if that will ever abate. The issue is that my stepmom is his…
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Equipment for dementia or ALZ patients
Dad is a fall risk due to frequent UTI issues. Having ALZ adds to the difficulty. We have part-time caregivers and my sister and I are there often but there are times he is alone and is generally ok. When he suddenly get a UTI he falls and is weak. We have went through a few devices with fall detection to no avail:…
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Challenge behavior?
Yesterday he started the inevitable. He forgot simple things, he repeated questions. Today, he stole my phone, hid it in his closet, he's being sneaky. When I found it, he went straight to where it was hiding to look. So I know he was aware that he took it, right? Then he unplugged my computer ( knowing I have school…
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Friend
I met him after he was diagnosed. It took me a while to realize how much he needed. He has moved in with me and I have a 4 year old daughter. At first I thought we would like eachother. Now that he's been in my home for two years, my feelings have changed. He needed my help and he helped me a lot. But I have changed our…
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Very Young Onset – No Answers Yet, Just Holding On
Hi everyone, My name is Cole, I’m 36, and my husband is 37 (turning 38 in July). I’m Autistic, and I’m very good at recognizing patterns — which is how I started putting pieces together that something was very wrong. Looking back, my brain started tracking the weirdness 2–3 years ago, but honestly, most of our marriage has…
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Move DW from Assisted Living to Memory Care
My DW was diagnosed with ALZ Dementia 5-6 years ago. She is now stage 6. We moved into an IL apartment 2+ years ago and just "upgraded" to AL. She has no episodic memory left and because of chronic pain and long-time mobility issues requires constant attention. She is often confused about where she is and who I am, but…
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New Alzheimers Diagnosis for 85 YO Dad
Looking for behaviors or actions that are "normal" ALZ behaviors and others to bring to attention to his Primary Care Doctor
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Just wondering
My Dh struggles with anxiety, anger and apathy. As you know, the neurologist appt. was a bust and I don’t trust his pcp. So I’ll have to start with finding a new pcp which is a challenge and start all over again. It’s been 3 years since the “official” DX and I feel like I’ve gotten nowhere. The goofy neurologist has him on…
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How to stop DH from getting up at night to pee
DH had a partial amputation of his foot due to gangrene (caused by peripheral artery disease). He is not yet supposed to walk on his foot and I have someone with him 24/7 at sub-acute rehab. He will be going back to MC next week. How do I prevent him from getting up in the middle of the night to pee, forgetting about the…
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Falling and New Facility Decision
Hello, My sister has been in a MCF for over a year. We know she won't be able to afford to stay there forever so we put her on the waiting list at the State Run Vet's Home. They informed me this week they have an available bed for her. They've assessed her and believe they can take care of her. I have one issue of concern…
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New
My husband is in the process of being diagnosed. He has no short term memory at all. He has lost his desire to play the guitar which he used to do all the time. He is wanting me home all the time and to be with me all the time. He gets upset. He is now having this anger outbursts usually at night. He thinks I want to leave…