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Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
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This is TBE checking in from Stage 8
It's been a long time since I have posted on here. It's 15 months since dw passed, but never forgotten. Today I walked by a craft section and she was there, grief, just not as bad. So I would like to recap for some who may not have ever read any of my posts. Dw had alzthiemers for 15 yrs the first 9 were not very bad. For…
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Financial crisis in the making
My dh was diagnosed with early onset Alzheimer’s in May 2024. He is 52. He was a partner in a law firm. He made a lot of money….then. Due to his disease, he had to leave work and now he has nothing to do but spend money. He gets daily deliveries of things that he doesn’t use. Sometimes , he doesn’t even open the packages.…
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Poem - When I am older...
I read this poem today and it touched me. I know my husband Lonny knew he loved me and that I loved him until the end. The last sentence he said to me before he passed in August was "I love you too Babe"… When I am older I might not remember I might get confused And I might lose my temper And there may be times When I…
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My father doesn't think he has a problem
My father has been dealing with sun downers about 5 years and now he is on the onset of ALZ . He doesn't think he has a problem at all . My parents have taken in my brothers kids due to my brother lost them because of drinking and drugs . But he has been so irratbel and he is being so mean and it doesn't seem he cares if…
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Moving parents from home to IL/AL
Both parents have ALZ diagnosis and currently live independently with support from a 2x/week care giver and daily support from sibling living nearby. Their needs are increasing and we want to move them to an IL w/cont home health aide support. The place has AL (currently no openings) but no MC. The mom is very resistant to…
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DH Died Last Night
My beloved husband died last night. Roger was a kind, gentle soul and was well loved by the facility staff, residents, and our hospice team. His hospice nurse and I thought he had a few more days, but his progression accelerated very quickly, and he was gone within an hour. I was there, holding his hand and talking to him,…
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Moving to Memory Care
I have been agonizing over how I will move my wife of 65 years to memory care. I know it will come unless I die first. Friends of ours live in an assisted living apartment. She needs assistance with many things but he does not. This is expensive but they are still together. I've been thinking this could be a solution for…
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Dementia or UTi
Hi I live with my mom and have an aide that helps me out so I can go to work. For a while now my mom would talk to any of her friends or family. The only problem was she was repeating the same conversations or stories. We just dealt with it! It is what it is! Until recently now she sees my dead father, she becomes easily…
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Can anyone recommend a simple Digital Picture Frame without WiFi?
Hi All, My mother who has stage 4 Alzheimer's which is progressing quickly loves to reminisce over pictures. We thought having a digital picture frame full of pictures in her room would be very welcome by her. It would have to be incredibly simple. Turn it on and turn it off; even an auto off function would be welcome. No…
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Planning for Future Young moderate Early Onset Alzheimer
My DH was diagnosed with young moderate early onset Alzheimer's at the age of 57. He lost his job one year ago. He was also diagnosed with LADA Type 1 Diabetes at age 55. Needless to say, it has been devasting. We have been fortunate to finally secure Social Security Disability. We are now planning for the future. I am…
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DH in nursing facility
I haven't posted for awhile. A lot has happened. My DH is in a nursing facility due to falls at home. After being in the hospital for two days I received a call from his Dr stating he needed 24/7 care which I was unable to do. The decision was made for me that he needed to go to a nursing facility. He has been there 2…
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Homeopathic Care for Dementia
Good morning all Just discussing with a coworker and he mentioned having a pretty life-altering appointment with a homeopathic practitioner for an ailment and suggested maybe reaching out for help regarding my father and dementia. Maybe something diet related, or supplement wise could help with the day to day struggles. I…
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hijacked by spam
It is really so sad when someone wants to hijack a forum where we are actually helping each other. For what? attention? scamming? both… I try to flag most of them when I see them, but it is really just disheartening. For anyone who is not familiar with it, please do not click on links or make phone calls to anything that…
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Need advice on companion care
My DW is 60. She was diagnosed with EO ALZ several years back confirmed with a PET scan. She is deep in stage 5. I work from home. I would like to hiring some companion care so I can go into the office a couple days a week and get some time away. I need to prepare for a future in which I am not doing this alone. However,…
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I'm too proud to ask....
Hi y'all. My bf 45yo eoa is my person. I love him with all i got. He has 2 sides of family. His adopted mom (aunt) and his uncle have been a blessing for me. His mom will take my bf maybe once a month or every few months for a few hours so I can go do some errands. I try not to ask too much tho as she is older as well and…
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"Help! I'm stuck with deranged people (in MC)."
what does one say to this plea? My mom is in stage 4 of Alzheimer's and went to memory care at a facility that has a program for mild to moderate dementia. She is on the younger side, early 70s. She is physically active a healthy physically. She is only moved to memory care a few weeks ago. It seems like memory care has…
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Orange County Memory Care
Is anyone currently paying for memory care in Orange County, CA? We are not at the stage where it’s needed yet, but I would like some idea of actual cost. I do t tend to believe the accuracy those sites that give averages for different areas. Most websites don’t post cost. They want information from you first. Atria in…
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Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted into the study in January. After taking 5 doses, one injection each week for five weeks, I started getting side effects. I…
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My grandfather sudden change
Hello, my grandfather,87, has been slowly losing his memory and in more recent months it’s progressed to not remembering what’s happened that day or who visited. I go over to my grandparents house for a couple of hours once a week to stay connected to them. But today as I was visiting, I noticed a change in his behavior.…
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Reversed sleep patterns
My DW was diagnosed in 2021 and at our last visit with the neurologist he said she was at Moderate/Severe stage. According to what I have read that would be Stage 6 somewhere. She has always been a night owl and almost always went to bed long after me. There was a period where she was overdoing the wine so she would stay…
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Starting incontinence
I know this has been discussed many times before but I am hoping for some suggestions. My DW is still very functional. She does almost all of her ADL's alone. She was diagnosed 4 years ago and the progression has been slow so far. Recently however, she has had a couple random episodes of urinary incontinence. This is after…
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Best clothing labels
When looking for clothing labels, I find a bazillion sources. Any suggestions for a reliable quality source?
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lying
Hello, I am torn about constantly lying to my mom, she has dementia, is hard of hearing and has severe vision issues, We recently moved her into an assisted living facility after my dad passed away. She is constantly calling us in tears because she wants to move out and find her "own little place" where she can cook her…
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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Safe Cold Cough meds for Alz and LBD LO?????
Hi. There are long list of unsafe drugs formy LO with Alzheimer's and LBD, but I need to know what folks CAN use. And some experiences you may have had with otcs for these symptoms. I'm following all the "dont take"lists I can find (none of which seem to be full lists...aaaargh!). Is there anything safe to use to help with…
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Mom thinks we move her daily
Mom is in an AL and has been living there since November. Daily she tells me “I am just so tired of being moved to a new place every day”. Any suggestions on what to say to this? When I try to reassure her she will stay in that room, she never believes me.
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Watching TV is a challenge
I know this is the least of our problems, but since we stay home a lot we watch TV, all the time 🤦♀️problem is he absolutely cannot follow any new program, so we continue to watch all the old shows we’ve seen a dozen times. They are new to my LO but I just can’t continue to watch them. He says turn on anything but then…
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walker suggestion
Does anyone have a suggestion for a walker for a 6'2 person? Looking online there doesn't seem to be much. I think it would help with the very arthritic knees and bad alzheimer's balance!
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New to the group
So I’m new to the group and not sure this is where I need to be but we had to put Mom in a memory care unit last May after her living with us for one year. I have so much guilt that I wasn’t able to keep her at home with me especially being a nurse, but it was just a lot. there anyone else going through this?