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Just need to vent today
I am really struggling. My 78 dh has VD and is declining physically. He can still do his ADLs but hasn't showered in 6 weeks, even with offers to help. I bought washing cloths, doesn't want them either. He is losing his mobility and needs to use a scooter cart or can use a rollator with a seat for very short distances. He…
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Mom is getting bored in Memory Supported AL
Hello to everyone here, I am appreciative of this board and those who participate in it! I am out of town but I talk to my mom and hear her complaints that there is nothing to do in MSAL. My sister has talked to the Activities Coordinator who allegedly has tried to do some actitivities one on one with my mom. I think the…
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Anger/Suspicion/Halucinations/Paranoia
My DW has recently (6 mos) been diagnosed with ES Alzheimers. She has been tested for LBD, PDD and had all the psychological testing. This included the blood tests and MRI. The result was Alzheimers Dementia with some underlying psychological issues. She is on Donepezil at a low dose. We have been married for 59 years , so…
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Nighttime incontinence leaks
my stage 5-6 DW is incontinent at night about 1/2 the time. Real problem is the Always Discreet pullups don’t hold the flow. The pj’s, and sheets are soaked but the save is the underpads that keep it off the mattress. I don’t have her drink anything after 5pm. Any ideas or a better brand? Thank you all for this forum.
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New to this
Hi Everyone. Been reading alot of your posts for the past few months and now am ready to jump in with our journey. DH is 67 and I am 58. I was able to retire in 2024 and noticed some behavior regarding his memory. Not able to multi task (more so than usual) Got all the testing done and DH was diagnosed w/Alz about a year…
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Wife screaming for no reason
She starts screaming for no reason.
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My Husband Just Diagnosed with Early Onset Alzheimer's
Hello everyone, this is my first message, and I can use any advice you can spare. My 59-year-old husband was just diagnosed with EOA. We're both devastated. He was told he had ADHD a few years ago, plus he wears hearing aids (he's lost 90% of hearing due to being a former construction worker) so we thought his…
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New to this community
Hello my Mom has Alzheimer's and I am really struggling. I want to make sure I am doing everything right. My mom keeps coming into the kitchen and making food, but she is not cooking the food properly and she eats and then forgets she ate and comes down to make another meal. How do you stop someone from cooking and…
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Greetings and question about stove safety
The short version: Has anyone tried "smart" knobs for a stove such as the TochTech SmartTurns, or other stove safety products? The long version: Some of you may remember I was a contributor here for years while caring for my mom with Alz. This forum was such a blessing when I was starting out. She's been gone since 2022…
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Actively dying
The Hospice Home Health Aide, arrived on Thursday, June 25 to give my husband a bath. He was sleepier than usual and at the end of her visit she said, “I think your husband is actively dying.” I said no, he will bounce back, he always bounces back. He’s had days like this where he just sleeps. She said I don’t think he’s…
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Joining my first club. Never wanted to be a part of
well here I am. I’m joining my first Alzheimers support group. My DH was diagnosed this year with YOD. Deeper digging/tests confirmed Alzheimers and Vascular Dementia. This was like the cherry on top of the PTSD that started 4 years ago. There’s no denial in this because it all makes sense now for the bad memory and…
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My DH passed away
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Need help with discreet hearing aids
My grandmother’s husband is going deaf, is showing signs of Alzheimer’s, and is refusing to go to the doctor for either issue or to buy hearing aids. My grandmother has never been great on the caregiving front, and her health taking a turn for the worse hasn’t helped things. They also live in the middle of nowhere England…
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After 10 long years mom has died, now what?
It was 10 years ago that I realized my mother's forgetfulness was more than just normal aging. The reality hit me like a ton of bricks, and nobody else in the immediate family wanted to face it or do any future planning. I had a general dread of what the future could hold but maintained hope that we could still find a way…
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Caring for Mom full time
Hi. I am new to this forum. I have moved my mom in with me due to her Alzheimer's progression. This was a quick decision not giving much time to prepare my home. I have recently needed to secure my home due to her hallucinations & exiting. I am on a Family leave of absence without help to relieve me. I live in a different…
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Experiences with anti-amyloid therapies (Leqembi or Kisunla)
Hi, I'm new to the community. My mom was recently diagnosed with MCI, blood test positive for AD. It seems there may be some serious risks with the anti-amyloid therapies but do the benefits out weigh the risks? I wanted to see if anyone would share their experiences with anti-amyloid therapies (Leqembi or Kisunla).
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AL care plan, doctor's weak follow-up
I had a care plan meeting at Mom's ALF 2 weeks ago. I left the meeting feeling really good because the staff there really seemed to understand everything that was going on with my mom, have observed the same things I have, and seemed to have a good plan of attack for helping her with some things like her anxiety and her…
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Mom - Brain in Circles
My Mom is having difficulties with reality and understanding. As this possible a part of dementia it has become hard to have her diagnosed by her primary care. As she refuses, she will not go. When I finally did get her to go, she went to the wrong doctor. She thought she Awas seeing her back doctor. According to her, the…
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Plan to improve care for dementia patients in hospitals
Michael Ellenbogen, who is a strong advocate for people with dementia and who has dementia himself, has been working with dementia experts to develop a plan to improve care for dementia patients in hospitals. Here is a link with more information.…
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My Second Appt after initial Alz Test
Note, I expect I will go to a funny farm after this and I will need to rob a bank as I need to pay someone to get me to these tests I met with my neurologist today about Alz and the next few weeks. I am basically just listing what will happen and will fill it in as time goes on. My writing represents both ALZ but also my…
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Latest news from International Alzheimer’s Conference
https://www.brightfocus.org/news/breaking-news-dispatch-diversifying-the-alzheimers-disease-treatment-portfolio/?lb=off&_hsenc=p2ANqtz-9RcHE4tcCXAihdlU1GsYo2oRgY1H54AcUgUjNJBgEkWl6C-QjUof2VsDazG6nAH-Yr9mXtlM7Cxff2mB5YFJTIbSxPFofcN6MDETaioD3pkgXAGqk&_hsmi=428947283&utm_term=donor&utm_campaign=fy27_adr_2607_adpd_ea1&utm_mediu…
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Medical Alert ID/sunflower lanyard
Does anyone use the any form of Medical Alert ID? Like a bracelet or something you can attach to a watch band? My DH stills wears a watch-it is a GPS watch and he will wear as long as I put it on him. I was thinking of getting one of scannable medical alert tags you can attach to a watch. One for myself and one for him.…
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New To All of This
Hello. I was diagnosed with mild cognitive decline 2 years ago. I'm 66, disabled due to a bad back and I'm venturing into new territory. My family pushed me into getting another brain scan, which I will do. My question is, what is the simplest way diagnose alzheimer's? Thanks!
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Early Onset of Dementia
My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared…
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Seeking a Large Visual Memory System and Apple Watch for Safer Independent Living
Hi everyone, My name is Christopher. I want to be transparent that I have medically documented mild cognitive impairment and post-concussion symptoms following motor-vehicle accidents, rather than a diagnosis of Alzheimer’s or another form of dementia. I am posting here because many members have valuable lived experience…
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Am 63 and have MCI - getting tested for ALZ
I am a 63 yo Psychotherapist getting tested for possible ALZ. I have been thru 2 different blood draws, a brain MRI, and a recent amyvid PET scan. The PET scan once again showed things that suggest ALZ. I have not seen the Neurologist yet to go over the results. I single, no kids and am attempting to figure out where I can…
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My Empire of Dirt
Sorry for posting this I don’t mean to sound like Donny Downer and it’s way too long. I am sorry. So I was looking on the internet for available resources in my area, had Johnny Cash on YouTube for background music. One of the songs hit me raw. The first half of the song from me the second half from DW, my sweetest friend.…
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Mental Trauma
My wife is ALZ Stage 6 and has most of the expected symptoms. She remains physically active and independent but her memory and cognitive skills are mostly gone. Lately she has been having mental episodes where she seems in extreme mental distress. These last 15 or 20 minutes, then it's over. Her doctor has given her a…
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VA Reach Program for Caregivers of Vets
https://hero-connection.mn.co/posts/caregiver-resource-library-va-caregiver-reach-program
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Early Onset
Hello. I am new here and came searching for support and connection. My sister, age 55, was Dx with MCI several months ago as the doctors continued all the testing. We just received confirmation that the petscan was positive. Reading the reports before seeing the doctor is so challenging. We have reached out to get an…