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Worried about return to workplace
I don't know if I'm the only one here who is a Fed. But now with the return to the workplace my sister and I are scrambling trying to figure out the best way someone can be with mom during the day that is affordable. Everything is so stressful with the info coming from above changing daily - sometimes hourly. I don't know…
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Night time sleeplessness and pain
I am noticing a pattern of my dad being in a lot of pain at night. Is this part of sundowners, or Parkinson's or Alzheimers? He has them all on top of a collapsed hip ball. The hip would be a logical explanation for pain, but it is a pattern no matter how much pain meds he is given. He stays up most of the night shifting…
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Bible Verse to Lift You Up 2/8/25
THE LORD IS MY SHEPHERD Psalm 23 Amplified Bible A Psalm of David. 23 The Lord is my Shepherd [to feed, to guide and to shield me], I shall not want. 2 He lets me lie down in green pastures; He leads me beside the still and quiet waters. 3 He refreshes and restores my soul (life); He leads me in the paths of righteousness…
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My timeline taking montelukast
This February marks nine years that I have been taking the anti-inflammatory asthma drug montelukast multiple times a day for treating the extreme mental fatigue that I was experiencing. Here is a timeline of events. 1995 - My mother was diagnosed with early stage Alzheimers. 2009 - I retired from the the Department of…
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Bringing him home for now
Those of you who were on this site last year may remember my distress at putting DH in memory care in February. I have never been so desolate and could not accept that he couldn't be at home. I entertained the idea of having him half-in, half-out (thanks to all of you who told me this was a bad idea) and thought about…
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Ombudsmen, Residents, and Retaliation in Assisted Living Facilities
Michael Ellenbogen sent me this detailed report on problems in assisted living facilities. The second link is to an article on the report. https://www.mcknightsseniorliving.com/news/ombudsmen-can-be-partners-in-ensuring-resident-dignity-safety-expert-says/
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Wife will not help herself
my wife of 57 years has AD, MMD and high anxiety. She refuses to take walks, exercise of any form, stopped doing anything around the house, because of hip and knee replacements, cannot cook anymore because she can’t remember how. She constantly picks at me for how dirty the house is when I’ve cleaned it and how bad my…
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…
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Over Stimulation
My DH son and girlfriend recently visited with their 2 year old grandson and he was SO loud and rambunctious. The next morning my DH didn't feel well, said he was cold (no fever) was stumbling and talking completely out of his head about something we couldn't understand. I think he lost most of the day. Later in the…
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From Maybe to Reality
Just need to share with someone who won't have to carry my burden…i.e. the kids. Twice within this week DH has told me he isn't thinking very well. It is possibly because he has been working on the taxes. I thought that he would be able to gather all the necessary paperwork this year and we planned on filling out the forms…
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F&$! Dementia
I sometimes have a mouth of a sailor, but seriously, to hell with this cruel disease. Woke up at 5am with poop all over the bathroom floor and it all over my DW’s legs. She’s so confused and doesn’t know why it’s happening. So bowel incontinence has started. I wish I could pull dementia out of her and kick its awful, mean…
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Please get rid of all the spam messages on this site
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Social security disability claim denied
UPDATE 2/20/25: the local office was closed because of a snow storm (no more working from home I guess) so we called the national line and waited on hold for 2 hours (yes that’s right, can’t wait to see if AI decreases wait times in the future) just to find out that the person on the phone didn’t seem to be able to find…
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APHASIA the sadness of not being able to communicate
My DH is stage 5 or 6 dementia with very advanced APHASIA. Within himself and between us we are very happy but it’s so sad we often only communicate by touch, smiles and often single words. He was always a great talker and during the night or early morning he will have a great conversation with me and I often can’t…
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Info on types of accounts, roles to have help managing finances
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New to group any advice
don’t know if I’m even at the place I need to be🤷♀️. My husband was told 8 months ago he had Alzheimer’s. He refuses to talk about it or tell anyone. Actually he’s in denial and says he just missed a couple questions. Spend most of his day away from me,,, he can’t relax never could,, and it’s like he gonna show people…
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Compassionate Allowances Act (faster payment for SSDI)
I’ve noticed some people believe they have to wait the two year period to received SSDI for Alzheimer’s. This is not true. If you are denied, please contact social security and make sure you are being reviewed under compassionate allowances. Read below. Thankfully, since 2010 Social Security has helped by adding…
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My 93 Year Old Mom With Late Stage Dementia Broke Her Hip Yesterday
My 93 year old mom is in late stage dementia and broke her hip yesterday. She’s lived with me for 6 years and this is the first major issue that requires a hospital stay and potential surgery. I’m waiting to speak with the orthopedic doctor and get his recommendations on treatment. I feel so guilty about what has happened.…
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Mom broke her hip two days ago
This past Sunday, I got a call from my Mom's Memory care. She had fallen and they thought her hip was broken. She was sent ambulance to the nearest trauma center and it was determined she did indeed break her hip (femoral head). They did surgery the same day and replaced the femoral head. My Mom was fully ambulatory, and…
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Time for Part-Time In-Home Help?
My DH is stage 5 and digressing. I am looking for part-time in home help. I have Osteoarthritis in left knee and my stamina is not what it used to be. How do you determine when is the proper time and how much time? Does the in home help clean house, etc? I'm in the information gathering stage but realize it will be in the…
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Virtual talk on -Secrets to Brain Vitality-
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What really happens to someone who has no family and alone with Alzheimer’s???
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Eating and eating and eating
I know this topic can’t only be something that I’m dealing with. Some background here my fiancé and myself moved in with his grandfather a year ago whose health had deteriorated tremendously in the previous year. I thought we would be temporary until he got back on track. Well I decided to remove my blinders about 2 months…
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Not understanding
I do not understand what to think. Last summer DW had hallucinations, didn’t know me or our house, had sundowners real bad. She did know her kids and grand children We started her on mementine and donepezal along with quietinine. Now she is back to normal with some changes to her personality and lost many memories from the…
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The Finale?
So my mom has stopped eating and drinking much of anything. Been hospitalized twice within 2 months, now diagnosed with CHF. It’s been 2 weeks since the last hospitalization and she is not bouncing back. Unfortunately I had a trip to Costa Rica planned for several months now and no cancellation policy. Well of course she…
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Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
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This is TBE checking in from Stage 8
It's been a long time since I have posted on here. It's 15 months since dw passed, but never forgotten. Today I walked by a craft section and she was there, grief, just not as bad. So I would like to recap for some who may not have ever read any of my posts. Dw had alzthiemers for 15 yrs the first 9 were not very bad. For…
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Financial crisis in the making
My dh was diagnosed with early onset Alzheimer’s in May 2024. He is 52. He was a partner in a law firm. He made a lot of money….then. Due to his disease, he had to leave work and now he has nothing to do but spend money. He gets daily deliveries of things that he doesn’t use. Sometimes , he doesn’t even open the packages.…
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Poem - When I am older...
I read this poem today and it touched me. I know my husband Lonny knew he loved me and that I loved him until the end. The last sentence he said to me before he passed in August was "I love you too Babe"… When I am older I might not remember I might get confused And I might lose my temper And there may be times When I…