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Service dog
UPDATE 8/1/25: it’s been about 15 months since my post about looking into getting a service dog for my wife. Today, we received an invitation offering us a trained service dog from EENP! My wife is at a stage in her diagnosis where she can still drive and has just mild cognitive impairment. So now is the best time for her…
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Where do I go from here?
My mother was diagnosed 1.5 years ago with ALZ. She lives at home with her boyfriend of 15+ years and has lived there for about 8 years. She has gone off for a walk twice now within the last 4 months. The first time she walked 4 miles to her sisters house. The second time she was angry, left the house, seems to have been…
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I've been away for a while and need to talk
Since I was last on this site, we moved to a smaller townhouse 1 1/2 away from that awful town. He did ok with the move. I'll just skip to now. he had 2 seizures a month ago in which the hospital labeled as "fainting" yet put him on antiseizure meds. he is going to get an ultrasound on his carotid artery, then and EEG. he…
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Overwhelmed caregiver.
My mom just got diagnosed with frontotemporal dementia 6month ago. Sometimes she will be her normal self then she someone I don’t recognize. Someday I can get her to take her medication with no problem then another day she resist. I’m having hard time keeping the house clean because she leaves things everywhere and brings…
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Becoming a personal care surrogate
Hi! I am brand new to this group and so appreciate the networking with others who are navigating the care of a parent with Alzheimer’s. I’ve been trying to be proactive about this. My brother and I hired an elder law attorney. We established power of attorney for my brother and Healthcare proxy for both. He and I work…
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Great News on Treatment Advance
This made my day! This will not cure my DH, but it gives me great hope for my children and grandchildren. Medical research matters! Thank you to the devoted scientists at Harvard who have been working on this for ten years. Hopefully, tes5ing will commence very shortly.…
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Walking Through Dementia With My Brother
These past few months have been some of the hardest of my life. My brother’s dementia symptoms keeps increasing, and it’s heartbreaking watching someone I love so deeply change in ways I never imagined. The last time I saw him, I watch pieces of him slowly slip away his memory, his spark, the conversations we used to…
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Deaf Only Child, Struggles with guidance..
hello amazing caregivers, This may be a long post, which I am typing as I think and go. Please bear with me as I do so. mum was DX with vascular dementia on Presidents’ Day this year. Hubs and I suspected it longer than that, as she is stubborn to seek medical help. This is a tough situation and subject to share. Mum…
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How do you assess your spouse
My Dh is c/o light headless and chest discomfort. Im retired nurse so I've done all the steps. BP is fine heartrate is fine no further symptoms. Up walking around like nothing wrong. Was at er last week for back pain. Found nothing that would cause it. Given his meds for BP baby aspirin. Will cont to monitor him,but it…
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Dealing with my feelings of resentment
I'm married to a man who was verbally abusive to me during the first 10-15 years of our marriage. When I tried to leave, he begged me to stay. I regret staying, expecially because of my children. We've now been married 40 years and we really don't have what I would call a close relationship. I had to pull away when he was…
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Seroquel / Quetiapine Dr. prescribed
In reading the posts here about this drug, it appears that it is given for those that are not sleeping at night. It was prescribed to my DH for hallucinations. The man does not have trouble sleeping at all. Just a few episodes when he had too much coffee or has had long naps during the day. Is this something that will work…
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Hello
I am new on this site and excited to have found a place where I can learn from those that have already gone through much of what we are dealing with. My DH is in the early stages of Alzheimer's. He was first diagnosed with MCI in early 2022, but I did not learn about the diagnosis until June 2023. He misunderstood the…
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Evacuating in an Emergency
Greetings. When the Guadalupe River recently flooded, the police ordered everyone on my street to evacuate. It was a very scary experience. Here are some lessons I learned: It could happen to anyone at anytime Follow the directives of the authorities Be calm and be firm with your PWD Know where to go and how to get there…
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Joining with a thank you
Hello, After a few months of reading and searching this site, I have decided to join to thank those who have posted advice. You have been a lifeline, and I hope that my experiences can be helpful to others here. DH (77) was fully independent, driving, paying his own bills, and living a good life a year ago. Looking back, I…
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Hoping he will forget me
Wondering if my DH forgets me, will things be better? It’s an awful thing to say, I know especially with all our circumstances. But, I’m faltering, fading and losing all hope. From the moment he sees me in the morning till bedtime, he insults me. I fix all 3 meals from scratch and the moment the food is put in front of…
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Is it my imagination?
Does it /did it ever seem to feel like, look like the PWD was almost your imagination? The cycles, the moods, the feeling that the old DH is back? (I'm still pretty new to this journey.)
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combative at night
Hi, I'm new to this group. We have no diagnosis but I am starting to wonder what is going on. My husband is a different person at night, usually after 10 pm He becomes defiant, combative, and says things that are just typical of his normal behavior. Is this Sundowning? Thanks
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Dementia Friendsgiving
This looks like a good event (via Michael Ellenbogen): Save the Date for Dementia Friendsgiving! Save November 18, 11:00 AM–3:00 PM ET for Dementia Friendly America’s inaugural Dementia Friendsgiving! We’re giving thanks for people and organizations from every corner of the dementia-friendly movement. Sign up to find out…
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Selling the House DH doesn't understand
I have power of attorney Can I sell the house without him and use my power of attorney to do so. Also how can I get him into a memory home if he won't go. His outbursts and violence are getting out of my control al
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Feeling Low
I have been feeling so low today. Usually I’m on top of things, we do all sorts of wonderful things to stop the sads rushing in but today I realised how silent I have become. DH has VD and aphasia, word salad is now the norm day and night, sounds and hand signals too. If I am in the garden and he wants me he lets out a…
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Eliquis questions
My mom,who recently fell, is in physical therapy and occupational rehab hospital right now. She is scheduled to probably be released in a few weeks, and she may or may not be walking on her own by then. I had reported the fall to her heart doctor because she also is on again off again in A-fib and has been for a very long…
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When is it time?
my DH is 56 years old and has FTD and is now losing his memory and he has no real speech or comprehension. I’ve already spoken with the family ahead of time that I know I am not special enough to be able handle things when we get to the later stages. My question is, how did everyone else decide when it was time for MC? How…
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Ultimate Answer
We discuss and share our lives and living with a LO with dementia But the ultimate answer is our relationship with God and to pray and give all your troubles to Him Only then will we see his answers and not ours
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Clothing and hygiene matters.
My DW of 48 years no longer cares about how she dresses and more often than not believes she has showered, brushed her teeth and is ready for the day. If I mention that her blouse is inside out or pants are on backward she gets upset at me and says "no-one but you will notice". When I mention showering or teeth brushing…
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Surrendering leased car and alternatives to driving
We will be turning my mom's leased car in this Friday. My mom, who was diagnosed with Alzheimer's in 2021, seems to be an OK driver (no accidents yet) but we recently moved her from NH to MA to an independent living facility in my neighborhood. She already let her NH license lapse and would never be able to handle the…
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Establishing level of capacity of judgement
Anyone have experience evaluating capacity of judgment? I am being referred to Forensic Psychiatry at a cost of $5,000 to $10,000. Gotta be a better way.
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How to find a doctor to do capacity assessment for DPOA
We've been dealing with Mom's dementia for a while now, and we really need to activate her DPOA. It requires us to get an assessment from two "licensed physicians." Problem: I called Mom's doctor, and they had no clue. The office people don't think the doctor has ever done that. I don't know what kind of a process I need…
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Questions about Lequmbi
I'm getting my 12th infusion in a couple of days. Everything is going ok- no side effects, feeling fine in general. With no advanced symptoms, I'm wondering if the Lequmbi is holding the progression of AD at the mild cognitive leveI. If and when I stop, I'm assuming that I'll be displaying more severe AD symptoms. Will…