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Moved exes in together
My 87y FIL, Alan, has mild dementia and has just gotten a pacemaker . 86y MIL, Sue, has Alzheimers...diagnosed 3 yrs ago. They are divorced (50+ yrs) but friends. Sue lived independently until 6 months ago, then moved in with her brother, 6 hours away. She's miserable and misses her family...and we miss her. Alan lived…
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My Mom passed away October 5th 2025
Hello, I dreaded the day I would be on this side of the discussion title. It's been two months and I am in unbelievable physical pain, I resigned from a easy job, am in debt, no insurance, searching for a new religion, I have fear, terrible anxiety, had a few panic attacks, am confused, hated people and do not trust…
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rough day w dad in MC "Get me out of here!"
Hi community, Dad was pretty agitated today during our visit. Redirecting was not working, so I had to cut my visit short. I'm wondering what I am missing or if you all have more ideas for me to consider. Here's some context plus what I'm seeing lately. He tells me that he just has to get out of there. Over and over. I…
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Hubby in memory care the nurse?
hubby in MC one month and 12 days. His reasoning skills are impaired. He cannot understand he can come home sometimes but has to go back there. Today he cried about going home and I cried too. I just couldn’t stand seeing him this way. One of the nurses or maybe she’s an aide said he’s cries all the time. That I should…
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Sticker for vehicle…
I saw this and realized it would help if you have a passenger in your car who has dementia. If there is an accident, this would be important. Also put something in your car or phone in case of emergency so they could contact a secondary caregiver. Anyone have their loved one wear a medical alert bracelet? I’m not sure my…
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How to answer if your DH says he is dying.
My DH is in the late stages of dementia. He has difficulty swallowing, and has lost nearly 40 lbs. He is wheelchair bound, sleeping a lot, and is double incontinent. During this Christmas season, the MC facility where is lives is having a lot of entertainment come in. Their performances are mostly Christmas music. He…
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Early onset Alheimer
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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Caring for parents - Long distance
New here, live out of state of my parents. Dad is over 90, now in a long term care facility for almost a year. Recently formally diagnosed with Alzheimer’s. Mentally he continues to deteriorate but for the moment he seems medically stable otherwise. My concern now is my mom, approx 90. She is having fairly severe short…
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Trouble lifting
I am brand new to this online discussion board. It’s been a hard longer years caring for my parents. My 92 yr old dad insists on keeping mom at home and we have paid caretakers for my mom who is 88 with late stage dementia. Just recently in the last two weeks she is no longer able to walk with her walker stand alone and…
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Mom is still Transitioning
This means dieing and it's been two days and she hasn't passed away yet. What should I be doing, while waiting. I am sick, tired, exhausted, and emotionally drained. But can't sleep. I was thinking about calling my family but they are feeling the same. I went to church and prayed. I have my cross next to me just waiting…
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Any Heterozygotes on Donanemab?
Got my APOE results back and I am E3/E4. Waiting for my next appt with the NP to discuss next steps. I know that E4/E4 is pretty much a no go for Donanemab. E3/E4 is supposedly 50% less chance of ARIA, but still a risk. My Centiloid is 144. So, lots of existing plaques. Donanemab is for clearing those. Lecanemab is for…
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Different respite question
Because my husband is on Hospice, I can get a three day respite. He would go to a Hospice house that is secure. My question is this: What would things be like once he came back to our home? Would he be more confused? Would it make things worse with his behaviors? Can anyone comment on their own experiences with their LO…
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Terminal Lucidity
My dad fell two months ago. Seemed to have accelerated Alzheimer’s. He pretty much stopped eating since and recently was only drinking very little. This past week he was admitted to hospital with severe dehydration. The dehydration caused his heart rate to accelerate to 130-140 and blood pressure to be lower at 95/60. I…
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Is sending a letter to mom with the truth a bad idea?
my second post here. I was light on details the first time. Mom has been in MC for about a year after being diagnosed with dementia. I was concerned about cognitive decline but ignoring it. She has had a lifelong distrust of the medical system so had not had regular medical checkups to monitor anything. There is also some…
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Hurt Feelings
A bit of background. I’m 69, my DH is 81. We have been together 35 years. I was a widow with two young daughters. He was divorced with no children. He raised my girls and they love him. We have 3 grandchildren. About 6 years ago we did a living trust with both girls splitting whatever we have. Last night, out of the blue,…
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Wants to constantly use the bathroom.
Hi I am new looking for some advise on maybe how to distract my person from this behavior. My DH is in moderate stage Alz. He does not understand time and has just started becoming obsessed about using the bathroom to urinate. He will use the bathroom and a few minutes later wants try again and of course cannot go and…
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I’ve never lived there.
Tonight my DH asked me to take him to the city he grew up in, home. He even recited his old childhood address which no longer exists. I asked him if he ever lived in _________(the name of our town). He said no, I’ve never lived there, but I did live in Chicago for 11 yrs. I thought how sad, all the memories in our house…
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Mom passed away 10/5/25 at 12:09 pm
She is in Heaven now. And a sleep not suffering anymore. Thank you God for mercy. Jesus preached the good news. He said if we believe in him we will be with him in heaven. And when Jesus returns he will raise the dead and death will be no more in a new Kingdom under him. My Mother was a minister with her Church and…
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I wont let dementia steal any more…
I saw this today in a divorce Facebook group and it hit home. A daughter told her Mom who didn’t want to decorate for the holidays to not allow divorce to steal your joy. Dementia took so much. Our future and my soulmate. I am going to work very hard to not allow it to steal my joy and the rest of my life. My husband…
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Hello! ☺️
I'm new here, I am an adult taking care of my elderly mom who was recently diagnosed with Dementia. I often find it difficult to understand her strange choices and behavior, and become highly stressed over them. I am wondering whether anyone else is familiar with this, and have any information on how best to help her.
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My mom just said she is the most comfortable she has been in her life
I know this won’t last. She came home for a visit. We’re hanging out on the couch watching Yule log after a meal I cooked (poorly). She is on hospice, needs an aide 6 hours a day, and hardly says full words. But for just one moment…I asked if she was comfortable and she looked at me and said “believe it or not, I’m…
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Alcohol and dementia
My DH was diagnosed with early onset dementia 3 months ago. It was suggested he limit alcohol to 2 or 3 drinks a day. He has been regularly drinking each day at mid-afternoon and passes out by 6 pm for a couple of hours. He cut back briefly but he’s gradually increasing again. We had an argument about it tonight and I got…
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Any heterozygotes on Donanemab?
Got my APOE results back and I am E3/E4. Waiting for my next appt with the NP to discuss next steps. I know that E4/E4 is pretty much a no go for Donanemab. E3/E4 is supposedly 50% less chance of ARIA, but still a risk. My Centiloid is 144. So, lots of existing plaques. Donanemab is for clearing those. Lecanemab is for…
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Does anyone else feel this way?
I’ve been on this site now 3 yrs ever since wife diagnosed with mild Dementia, I’ve read books seen videos and heard numerous stories on this site. Wife in stage 4-5. Still takes care of herself other then no driving and cooking and short memory has gotten worse and does get confused. My question is do any of you feel that…
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Don't know where we are in this
My 65 y.o. DH was diagnosed with early stage Alzheimer's this past July. I know things haven't been right for a couple years even before the diagnosis. I didn't know much of anything about AD and I'm trying to learn. He is still fully functional, has a lot of trouble remembering words, losing his train of thought, working…
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Accusations
i am new to the group….my DH has early stage dementia..he hasnt been tested as he refuses…the accusations and delusions are getting much more frequent..the dr prescribed meds for his anxiety but he is refusing to take all his meds as he says i am trying to kill him….he is with me always..refuses to have me go anywhere on…
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Dealership sold car to father just before Alzheimer diagnosis
He lived a couple hours away when this occurred, we were still working towards an understanding on what was causing the repetition in conversation. At the same time he had been making his rounds around a few dealerships, picked out a blazer at one to purchase and showed up at a Hyundai dealer with that blazer flyer only…
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UTI
DH had a low grade fever this morn, 99.7, gave aspirin, agitated more than norm. I used the home UTI test strip and showed positive for UTI. We went to ER with urine sample in hand. ER said couldn't use the sample, no problem, cause DH soon needed to relieve himself again. ER tested fresh sample and said negative for UTI.…
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Terminal Lucidity?
My dad fell two months ago. Seemed to have accelerated Alzheimer’s. He pretty much stopped eating since and recently was only drinking very little. This past week he was admitted to hospital with severe dehydration. The dehydration caused his heart rate to accelerate to 130-140 and blood pressure to be lower at 95/60. I…
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Sundowning
Hello, I’m very new to this group and confused on this newly diagnoses of Dementia for my mother! We are still going through a lot of appointments and tests and we don’t have a actual diagnosis of what type of dementia my mom has but they are leaning more towards Lewy body because she has a tremor on her hand! My question…