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It's obvious I'm not alone...
Though I feel very alone. I have been helping my 83-year-old mother who has had symptoms of dementia for at least 2 years. She had lived alone for 10 years after my dad passed. I kept trying to get her to move closer to me. In February she had some sort of psychotic event and I had her transferred to a memory care near me…
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Colonoscopy?
My DH is in the early to middle stage of Alzheimer’s. He has been getting colonoscopies every 5 yrs because of ongoing problems with polyps. Now he is past the 5 yr mark and his DR does not want him to get anymore. I’m not sure I agree bc he is in excellent physical health and could live for many years. If he develops a…
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Mom's New Diagnosis
Hello All! I can't tell you how happy I am to find this discussion board! My mom (76) was diagnosed with dementia a few weeks ago following an episode that involved her wandering the neighborhood at 3am and a horrific fall that landed us in the ER with a head injury. She told me that someone had stolen our furniture and…
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Am I out of line?
Hi, community. I'm currently unable to sleep. My Mom (75 years old) came to our house after an unidentified cognitive episode in February. She was diagnosed with Alzheimer's a few weeks later. As her identified POA, I, along with my brother, got to asking our mom her wishes and taking action to find a place for her to…
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DH in MC 3 days now...
DH is 73 in stage 5 teetering into to 6. He was scheduled to move into a different MC 8/21 but that fell apart and he moved into what I think is a good facility this week. He is confused and wants to leave. Not aggressive, but concerned about where his sister and I am. Today he wanted to leave with me and wanted me to…
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A question about swallowing difficulty
My DH is in about mid-stage 6 of mixed dementia. He is having trouble swallowing, and the difficulty keeps increasing. His diet is soft food cut up very small. He needs to be coached to swallow pretty much every bite, and sometimes has to try two or three times to get the food down. He is hand fed small bites with frequent…
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Family members
Hi, My DH was diagnosed with MCI about 7 years ago. His progression of Alzheimer’s has been slow but has now reached the point where he can’t do much at home other than bath and dress himself. He does walk the dog which helps tremendously. He seems to think he’s perfectly normal. He can’t remember anything much and seems…
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Door locks helped today!
I had to install some door locks high on the exit doors after DH had an overnight elopement. I usually lock them when we go to bed and unlock them when I get up. He gets up a couple times a night and walks around the house for an hour or more and I can hear him try to open the door, so it gives me peace of mind. But I…
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Home health care
I am 70, in reasonably good health, with some managed issues. DW is 67 in moderate stages. She has frequent urinary incontinence and needs assistance with dressing and bathing. I cook breakfast every day. We have an adult daughter nearby who really helps out a lot, frequently bringing meal preps and assisting 2-3 days per…
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New to ALZ Site - Caring for LO With Dementia
New here to the community, caring for a parent with severe dementia and their spouse. LO had a serious fall a few weeks ago, resulting in a brain bleed. Another fall or progression led to acute/chronic bilateral brain bleeds. LO had urgent brain surgery to alleviate this. Spouse is finally waking up to the fact that LO w/D…
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Help with moving unwilling mom to senior living
Hi, I'm new here. My 82 yo mom has mid stage alz, and is currently living with my dad in the home they've been in for 45 years. My dad 83 yo is very ready to move to a senior living community and is finally reaching the top of the wait list for his desired community that has assisted living and memory care available when…
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our posts are indexed globally
This is a meta-post about the things we post on this discussion group. I try to pay a lot of attention to my privacy online, and I've felt comfortable posting here because I believed it to be closed and safe. Then it occurred to me that web crawlers and indexers can probably gobble up posts here, because the posts are…
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Looking for a support group
Hello, all. Just signed up today. My mother is 83 and has had dementia and now Alzheimer's for probably 15 years by now, though the diagnosis of Alzheimer's came about a year ago. I have her in my home two days a week during the day, and have had increasing difficulty managing the stress of her forgetfulness. So now I'm…
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Moving to a new home
Good morning, my hubby was recently diagnosed with Moderate stage Alzheimer's. We had planned to downsize our home next spring. Now that we know his diagnosis, what has been your experience in moving at this stage? I am worried he won't think our new home is home and he will always be looking to go home. Is it best to just…
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How Do I delete this from incorrect forum?
My mom lives with me and has dementia. She needs assisted living and help with finances. Where do I start? She owns a home in South Carolina that I don’t want to sell, but may be my only option. Is there a way to protect the house? I believe she would qualify for Medicaid. Should I put the house in my name?
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Awareness of dementia
My husband was diagnosed with MCI about 7 years ago. At that time he told me I was going to have to start taking over some things such as bill paying, but he didn’t seem to be well educated about what the end result of his diagnosis is. I didn’t push for him to read up on it because I didn’t want him to get depressed. Now…
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Not Sure What Is Happening to Mom
Hi everyone - I’m new here and I’m kind of just looking for info and maybe some small emotional support. My mom is 73 and for the last 3-4 years she has been having random mood swings and changes in personality. Most of the time when I speak to her, she has a circular conversation and repeats the same story over and over.…
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First visit to Mom in MC - I survived!
I was dreading my first visit to Mom in MC, since I was the one who actually walked her in there. It's been just under 2 weeks. When I first arrived, I could see that she was in the activity room, so I first stopped by the office where the activity director and nurse manager were. I talked to them to see how things had…
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Be Light Care Consulting Caregiver videos…
I found this online and she has some really good videos with tips for dementia caregivers. https://www.facebook.com/share/r/19oR51H8qu/?mibextid=wwXIfr
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get cancer check-up?
My question is related to the recent one about a GYN appointment. DW had a thymectomy in 2021. She did not need follow-up radiation or chemo. She has had semi-annual check-ups since then and is now on an annual check-up schedule. So far all of them have been clear Her next one would be in October. It entails a blood draw,…
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Running out of money and no where to go!
Hi, new here. 92 year old mother with vascular dementia is running out of money. She is in CA and I am in TX. She is in Independent Living at a facility, has been there almost a year. She is getting lots of home care but it has depleted everything she has. She gets angry, yells and hangs up on me when I try to talk with…
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What a great story
I read this posting on another site and thought I would share it. It was written by Tony Copeland-Parker. The Long Goodbye The protracted period from diagnosis to death from Alzheimer’s disease. My wife of 26 years was diagnosed with Early Onset Alzheimer’s 11 years ago at the age of 53. Our initial response to the…
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Cousin may have Alzheimer's but her local family in denial
I'll try to keep this brief but it's hard: I think my younger cousin, 56, has Alzheimer's. Last January she had an MRI that (i think) showed some shrinkage in lobes of her brain (she reported this to me at the time, with the fear that she had Alzheimer's). She had a PET scan in April that showed elevated amyloid protein in…
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Frustrated
Just need to put this out there… I got mad yesterday at DH who has AL. I didn't say anything but he knew (stomping out of the room is pretty obvious), but I bit my tongue until I was out of hearing range. The "why" is irrelevent. It could have been anything. The point is that I cannot reason with him because his thinker…
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Stage 6, fading, thoughts on visits?
My mom’s declined since a very serious fall a month ago. Her care team called me last week to confirm end of life care (DNR etc.). She’s very much still in stage 6 - walks with walker, talks (although mostly random words, and a lot fewer), she still knows who I am but I can tell her recognition is fading. She’s lost a lot…
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undiagnosed parent
Hi there - This is my first time at any board or group. I've joined because neither me or my sister know what to do or how to move forward. My mother is 72 and physically very healthy, but I think that she has dementia, some form of Alzheimer's, or paranoia, or a combination. For the past two years or so she has been very…
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Lessons learned Mom's stroke, husband's Alzheimer's & Step-Dad's stroke
WARNING!! LONG POST. I've been thinking about this lately. I remember being lost and overwhelmed after my Mom's stroke several years ago, my husband's diagnosis of Alzheimer's 4 years ago and my Step-Dad's stroke last November. Some I learned through the school of hard knocks & some I learned on this forum. I hope this…
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28 and my mom just got diagnosed
Hi, My name is Julie. I'm 28 and my mom just got diagnosed with Alzheimer's. It wasn't really a surprise. My Nana (her mom) had it and it was pretty severe by the end. My mom has aged pretty rapidly in the last 5 years. When Covid was going on she got lyme disease and some other blood borne disease (I don't remember what…
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H.A.B.I.T. Program
Has anyone participated in the HABIT program offered through the Mayo Clinic? Was it valuable? My husband has MCI and I am considering applying for it. I think that the training may be worthwhile, at least to have him interact with others going through the same thing…
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Mom has Covid
A few days ago, Mom had a headache all day. That was all that was going on. But by the following morning, she was nauseated and throwing up and had a slight fever of 100.1 and was also having high blood pressure, well pretty high for her and also coughing a lot. So we made a doctors appointment and got her tested yesterday…