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I’m new
hi I’m new to this. I care for my dad who Alzheimer’s and I live with him. He’s 71
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Diagnosed. Total confusion. Down then up?
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Help! Dealing with Agitation, Alligators and threats of dying
My mom, 80 (living at home w/my 80yr stepdad) She has been on multiple painkillers, trazadone, Valium for years (I believe clearly over medicated)...who is been diagnosed by some drs with dementia/alzheimers ...and other not...clearly is suffering from dementia and delusions. Been in and out of MC for last 2yrs. But at…
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Dr. took mom off all meds
My mother was on Memantine, Donepezil and Quetiapine. The first 2 caused her explosive, continual diarrhea the last caused her extreme skin picking. This is the 2nd day and I have noticed that she is better so far. I read where Quetiapine should never be given to Alz patients, but at the day care center everyone of them…
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Dads journey
my dad is 89 got diagnosed in 2018 with Alzheimer’s my wife and I moved in with him so he could stay in his home he hasn’t gotten to a violent or non verbal stage yet but his incontinence has become more prevalent because of the Alzheimer’s no it’s 4or 5 accidents he’s a veteran was in the Air Force for 20 years working on…
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LGBTQ Eldery Father community
Hello my father was just recently diagnosed with Alzheimer’s via MRI Amyloid scan. Its still early stages but as we know the eventual progression as he decided, which my sisters are aligned on, to not test the brain infusion treatments which only recently have been approved, we want to try as best we can to speak now about…
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I Had A Week Respite
Hey all. Most know I was able to take a week’s respite in early June. It’s been a bit over 5 years for me. I was burnt the heck out and had just decided to retire early this December. I needed it and for those able to somehow cobble something together, I am an even more staunch believer it getting whatever respite you can.…
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Hallucinating and cussing at everything
Hello my mother was diagnosed with Alzheimer’s dementia about 4 years ago we have noticed lately she is hallucinating a lot and wakes up cussing at anything and everything and constantly yelling and saying I hate you,I hope you die, I’m going to kill you , and throwing out racial slurs . But more recently she took a fall…
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The denial worsens
Hi, new to the group. My Dad was diagnosed 3 years ago. My Mom is showing early signs and we know we are in early stages. She is currently a caregiver. After a Doctor visit, it was determined she has memory loss but stage unknown. Bloodwork and MRI. She refuses to do anything. The MRI is scheduled for this Sunday. There is…
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Podcast on Caregiver Stress
I found the following podcast by Mel Robbins very helpful… https://youtu.be/892M1vCEuUg?si=GAoYuLuvynSx_RqY
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Laundry day
Ugh! DH mostly made it to the toilet but there is a lot of BM in his underwear, I rinsed that out in the toilet later. So I'm wondering ….do you wash the underwear in the washer by itself maybe with rags or something, or with other regular laundry?
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Parent getting meaner, no joy left
I am new to this forum and new to learning about Alzheimer's. My dad has had a steady memory decline but it finally was diagnosed as Alzheimer's. Recently I've noticed things have gotten way worse. Nearly every time we visit, the tension builds and he has an angry outburst directed at my boyfriend. This time he took a…
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Kinsula treatment
Is anyone in this group being treated with Kinsula? If yes what has been your experience. I would like to know more about it before making a decision to start treatment.
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Drowning
Hi everyone I am a carer for my partners mum. My own mum has had to go into a home and I feel desperately guilty I've now left my work and am looking after someone else and I couldn't mum. I am in a different space now but I'm drowning in guilt.
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Just need to talk to my friends (207)
Judith, I didn't get on the stepstool, stood on the floor and used a mirror. Hopefully, Beth will be able to post on 207 now.
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Is this considered wandering?
DH is in Stage 6 and I’m having an awful time with keeping him busy. One thing we’ve been doing is walking, even in the Florida heat (not ideal, but if he wants to, it occupies some time). However, he walks and walks as if it’s a one way trip - he wants to go a certain way and I have a terrible time getting him to walk…
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Newly Diagnosed and I have questions
Hello this is my first time posting and I have questions. Of course I didn't think of these while we were in the doctors office today and won't be back until Oct. Anyways, my mom was just diagnosed with Alzheimer's today and was told to take 2 different medications. They are memantine and donepezil. My first question is…
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His Birthday is Today
My husband just passed on June 19, and today is his birthday. While there is never a good time to go, this is just too close for me. I am struggling in every way. How does one get through these important dates? I know the first year will be the worst, but this is beyond awful. People are calling & texting, and I'm hiding…
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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Not much support from family,
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Plan B
Hi guys! Again, I am so eternally grateful to have found this group. I have learned so much in a short space of time. One of the biggest lessons learned is that a pwd can live 15-20 years with this vile disease. Anyone who has interacted with me before, knows that in December, my DM was diagnosed with MCI/Early Dementia.…
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Ready to place hubby in memory care
after 4 years I’m ready to put hubby in memory care I have been in touch with the place for 3 years so familiar with director. talking to hubby about it but he doesn’t want to go. I’m facing what I never wanted to do and that is leave him there. Has anyone gone through this. My hubby is 82 and memory is terrible. Won’t…
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Anyone able to keep alzheimer spouse home until death
I have been trying to find anyone with experience keeping spouse at home with help of hospice until the end. My husband is finishing up stage 6 right now. And so far I have been sole caregiver with no outside help. He is 71 can still walk. Can eat on his own like a 2 year old. I have to shower and dress him. He just had…
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Travel and confusion
My DW of 48 years seems to get more agitated and confused when we are away from home. She is mid to late stages of Alzheimer's. We are supposed to go to the coast with our adult children and their families, but I am beginning to have second thoughts. Between the new location and chaotic nature of a large family gathering…
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Girlfriend reprise
You may recall last winter my dh had a girlfriend in his MCF. He was moved to the next higher level of care, and because that higher level of care has two separate wings I thought we had solved that problem. Today I find that girlfriend has been moved over as well and is now two doors down from him. I don't know why they…
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Alexa assistance
Good morning! I am new to this community. My father, who lives in Florida, was diagnosed last fall with Mild Cognitive Impairment. Upon further testing, it was determined Alzheimers related. I'm in Wisconsin. He lives independently, but has a partner he spends his days with. He does not live with her. She is 85 and has…
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How to remain positive
Many of you on here seem to deal with things really well I have arthritis which makes life more difficult doing everything & sometimes I feel overwhelmed with everything & miss my old life Any advice please
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Paradoxical Lucidity
Over the past couple of weeks, my mother has declined rapidly. After another evaluation from a different provider, she qualified for hospice this time. She's incontinent, refusing to eat regularly, and sleeping most of the day now. Her ambulation has become more unstable with the shuffling gait so common with dementia. I…
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Memory Care closing
I received notice today that my mother’s memory care facility is permanently closing. She moved in September 2024 and has finally started to learn her way around and trust the staff I am angry and stressed. I know a move will not be good for her. And I am alarmed by this change. Is anyone else going through these sudden…
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Respite to hospital
DH is on hospice due to heart condition including Alzheimer’s. My son got him to go to the nursing home by inviting him to go to his favorite place, McDonald’s. I had been sick for 3 weeks with what I thought was a recurring bout of diverticulitis. So I headed to the hospital where The CT scan showed a mass on my pancreas.…