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What do you to talk about with your LOs?
My DH with Alz is in late stage 4, perhaps early stage 5. Most days he's still quite independent in caring for himself and doing household chores. The problem I'm having is that chatting with him has become such a mentally exhausting task. I find myself thinking "oh, I'll just tell him about this" and then I realize I…
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Long Winding, Descending Road
Hello: For 5 yrs. I am a primary caregiver living with 93 yr mother who has multiple health issues, vascular dementia (VaD) and on Hospice for several months. I believe the end of the road is near. I have been circling various stages of grief as I witness what she is living through (unable to walk, stand, loss of…
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Quick question
My DW is in late stage 5. The past month or so she has begun to shadow me wherever I go in the house. I tried daycare last couple of weeks which was a disaster. After about 2 hours there she began to cry uncontrollably saying that I left her there and wasn’t coming back. Today DW,s aunt came over to watch her while I got…
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Volunteer's?
hi, I'm new to the Vancouver area and I'm in need of volunteers and entertainers, and any ideas of who to reach out to?
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Palliative care
Hi all it’s been awhile since I had trouble with my password 🤦♀️ my daughter keeps wanting me to get my LO on Palliative Care. He is diagnosed Alzheimer’s stage 4-5. Our biggest problem now is getting him to eat. He just says I already ate or I’m not hungry. He talks to himself ALL day, I just don’t know if he would…
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seroquel
Hope everyone has survived the day. I'm searching for a solution to my newest dilemma and hoping you fine folks on here can shed some light. My DH is experiencing some hallucinations (people in the house, vehicle, etc), as well as ever increasing agitation, temper tantrums and fractured sleep. I've scheduled an appointment…
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Newly Diagnosed - Infusion Therapy?
Hi all, I am new to this group and am excited to learn from everyone! My Mom is 85 and recently diagnosed with "early stage" alz. The Neurologist is wanting an updated MRI, but feels that she is a good candidate for infusion therapy. Has anyone has experience with this?? She does very well (still drives and volunteers at…
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Early in journey and feel it is progressing faster than expected
My wife has been diagnosed with early stage Alzheimer’s. She is on Leqembi infusions (7 complete), aricept but feel she is progressing. She is still working part time at Trader Joe’s and they are so accommodating…that is great for her to keep her going. She drives pretty much locally. Has anyone’s LO been on Leqembi…did it…
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I Want To Live With Someone Else
My spouse with nearly complete aphasia has managed to pull out that full sentence for a couple of weeks now. She is soooooo sick of me being her caregiver. I now represent the person controlling her life and keeping her from driving to go see friends, etc. Which I am, though I'm providing her a safe, loving and comfortable…
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Do I let go or keep going?
My SO who is 46yo EOA is on hospice but thus far it has been more of palliative care. This last week has taken a HUGE turn. The week prior he was up and walking around during the day and would be resting/sleeping when I got home after work from about 5pm till bedtime (8pm/9pm). This last Thursday he lost balance and fell…
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Memory care guilt
My mom was driving and living alone 3 years ago and now can barely walk with a walker, has total incontinence, can't dress herself, and is furious I put her on memory care, where im sure frightens her because she sees her future there. I am overwhelmed with guilt over this decision. It was my decision alone because my…
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Becoming mean
My mom is 90, currently in independent living apartment. She picked the facility 10 years ago so she could access transitional help as she aged. I believe she is in the latter part of early stage dementia. The last year she bas become very argumentative with everyone … fired one cleaning service and “hates” the new one.…
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Hospice and new strategies
Good morning. Some off you know me. Briefly DW diagnosed in 2019. Clearly in later stages. I tend not to use the stage number because it gets confusing but she's clearly in stage 6 area. Non verbal except jabbers all the time in a sort of distressed manner. I think it would be classified as global aphasia. Not totally…
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ARIA - Do most medical professionals / EMTs know what this is???
I will soo start Leqembi and want to get a medical Id bracelet. I was thinking of putting "at risk for ARIA" but am not sure this is a well known term? Any insight?
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Anyone Using Tack GPS device?
Hi, Just got a Tack for my dad, pretty good, but it kicks my husband off if I'm on and vice versa. I also only want to see where he is, not share my location but it keep wanting my location and drains my phone battery. Any ideas?
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Hired companions to supplement MC.
I’m new here. I started writing a long backstory and decided to cut it down to the immediate situation. Mom has been in MC for about a year after being diagnosed with dementia. She went from living independently and walking regularly to MC in a matter of weeks. She has been unhappy depressed and angry about her situation.…
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How to handle transition to memory care
My sister has been living in an assisted living residence for about 3 years, but her cognitive abilities are quickly slipping into a need for more care. She's falling, wandering into other apartments, needing more assistance with hygiene, even having very strong delusions. She's openly expressed a fearful dread of being…
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Progressing too fast
It’s been awhile since I posted. My mom, 73, has been in MC for over a year. This past month she went from being okay to almost completely mute. No UTI. Her suite mate was her security/friend. But she started having bad mood swings and taking it out on my mom. My mom has since become withdrawn and just this past…
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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Husband has dementia plus OCD
I hardly know where to start! My husband has a physical disability and has had symptoms of OCD (never officially diagnosed) for many years. The first signs of dementia started about ten years ago. I don't think it is Alzheimer's but three different providers have called it dementia (frontal-temporal or even Lewy body are…
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Loved one is too restless, won't sleep or rest
Hello, my wife will only sleep a few hours a night, and when she's awake she cannot sit still or lie down to rest for more than a few minutes. Then she wants to walk around the house, again and again and again. She needs assistance walking, so this need for constant attention puts a strain on myself and even our 24/7…
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Tired and Sad
I thought I was handling things quite well. But short of sleep for the last couple of nights then this morning started at 5.30 with DH saying come on get up, I mumble back, 6 o’clock is get up time and then we’ll have a cup of tea. DH was agitated thinking we had a doctors appointment and we had to get ready. It’s Saturday…
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Transitioning to senior living facility
Hello everyone - I am currently caregiving for my 87 year old mom since February of this year (I am her daughter and POA). We are going to move her to senior living in December and I need advice on making the transition happen. She thinks she can live on her own and doesn't think she needs to move. Does anyone have…
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Just got the scan results - now what?
Hi — we just received the results of the PET‑CT amyloid, and they are not good. My mom is 76 and has some memory issues, but nothing severe. To be honest, we saw the neurologist mainly to check whether she had any problems; I had no idea she might really have Alzheimer’s disease. Now she has to take a psychoneurological…
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Agitation emotional swings
My DW is in the moderate stages. She had been sleeping well through the night. But lately she has been waking in the middle of the night or very early in the morning with wet depends. She is then very emotional, often crying uncontrollably, and refusing to let me help her get changed. Her mood swings have become frequent…
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general anxiety
hello-I am new to this group and discussion forum as my husband is now in a group home/assisted living facility and I am on my own. The more time away from each other, the more memories pop up that now seem 'weird' and signs of the dementia beginning, but I had no idea and just shrugged it off. Over and over agin, doctors…
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Another UTI
My husband has yet another UTI but we were able to keep him out of the hospital this time. He is non-symptomatic when he has one. He was hospitalized a few months ago for 3 days with a UTI, pneumonia and sepsis. He was so disoriented in the hospital, trying to leave, get out of bed, pulling out IV tubes, etc. He doesn't…
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In Senior Homes, A.I. Technology Is Sensing Falls Before They Happen
From the NYT: https://www.nytimes.com/2025/10/29/realestate/in-senior-homes-ai-technology-is-sensing-falls-before-they-happen.html?unlocked_article_code=1.yU8.Ql1h.G871_DJXIX_E&smid=url-share (free for 30 days)
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Dentist appointment
Have an upcoming dental cleaning appt scheduled for this Tuesday and not looking forward to it. The last appt, 6 months ago, was uneventful. However, in the last 6 months, my DHs patience level has disappeared and his agitation levels have increased. I will be bringing his new sitter with us, but any insight as to managing…
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New here.
Hello! I’m new here, but unfortunately not new to dementia. My mom was diagnosed about 3 years ago, and this past March we decided that things were getting to the point we were unable to handle her care. We found a great MC facility. And she is doing the best she can. The hardest thing I’m having to deal with is my dad. My…