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huperzine a
supposed to increase acetylcholine in brain which is a chemical messenger impacting memory and neuroplasticity. ive read that when taken you should allow a day or two off periodically so that acetylcholine doesnt get too high. has anyone taken it? dosage (200 mg, other?),frequency? effectiveness?
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Memory Care Facility
Anyone in Massachusetts have their LO in a memory care facility and have to pay with their own finances being they do not qualify for Medicaid. I have checked into one near me and there is no way I could afford it without going bankrupt in a very short period time. Any information will be appreciated….thank you.
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ADL and respite care
Does anyone have any suggestions for in home companionship and care with ADLs for my husband.
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Dad's Almost Totally Impossible to Communicate With - Help Needed
[I've been a lurker for a few months, but I'm hoping to get some advice. Thanks, in advance.] My Dad (82) was diagnosed with early-stage Alzheimer's just under a year ago. Yes, I was floored. But it made sense, too. We'd been fighting for a few years regarding how he's [not] been communicating me in a reliable manner. For…
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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OT and Cognitive Therapy for Alz Dem
What types of things do you do in OT? My DH goes to OT and so far we have created an activity board to help him remember what he did during the day, and we are working on a Memory Book for him. What other things have you done? I want to make his iphone easier for him to use. Any other ideas that are helpful? Thanks!
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Depends or other for "egg shaped" man
Hello, My LO is a pretty typical shaped older man-5'9" 215# - big belly, flat butt and thin legs. His urinary incontinence is getting worse but nothing fits right so there are leaks, esp in the back. He's tried Depends pull ups and 2 of the disposable underwear style for men. Getting to the point that they're not optional,…
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Is this anxiety or something else?
My FIL can meet most of his ADL's except for an occasional bathroom accident and dressing correctly. He can feed himself but we have to fix his plate for him and lately he seems to have issues maybe figuring out silverware, we have noticed him using his fingers more. IADL's are another story, as far as I can tell he can't…
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Cell Phone
My father is starting to experience issues with the phone and keeps calling 911, as he thinks he needs to turn his phone off after every use. I really don't want to get rid of it as we're just 2 months past taking away his car which has been a hard adjustment. Any advice?
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A Little Humor (I hope)
I thought I'd share something I shared with a grief support group in hopes you might get at least a smile from it today. All any of us can do to find a smile a day is helpful, kinda like a vitamin a day:) In a recent post I expressed my frustration with knowing how to navigate this life after and feeling confused and…
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Another new development…
The past 3-4 weeks DH has been coming into the kitchen every 10 minutes while I am making dinner looking to see if dinner is ready. It is really putting pressure on me to get dinner ready immediately! Tell him I will let him know when it’s ready but doesn’t do any good . Anyone deal with this and how do you handle it? Any…
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SLEEP DIVORCE
My husband was diagnosed with EOAD at age 64. 3 years prior he underwent a major surgery and as a result of that and me going through menopause we decided to sleep in separate rooms. He was so restless during the night that I was not able to get any sleep. I still work full time. It made such a difference in our day to day…
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DW needs more nap time
my DW gets thru the day ok if she takes a couple naps for an hour or so each. If she takes only one she is a ness by bedtime. Can’t follow directions to undress and put on pj’S, go to bathroom, etc and gets angry (really at herself, I know). I try to coax her to nap but she is getting more resistant. Any ideas to help?
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When/how to get kids involved
I know this depends on family dynamics, but when should you tell the kids about your concerns of your DH having dementia and what you are going through? They see him quite regularly and have to notice things. However they never bring anything up.
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Newly diagnosed father with Alzheimer's
Hi all - so glad I found this site. My dad is 66 years old, and I am 27. He is still living on his own. We only recently got the diagnosis (within the past two weeks), and he is in the mild/moderate range of dementia. I live two states away, but my brother is within an hour. I am having a hard time figuring out what to do,…
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Medicaid Pending AL monthly payments
**update: I ended up paying. Director refused to put in writing that they will honor the overpay in credits. Said it would make him look "disingenuous". That he has to honor the credits or it would be Medicaid fraud. It was taking too much of a toll on my mental health to have this battle as my attorney's quit responding…
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Emotional aggression
My husband 81yo has it been formally diagnosed with dementia, although the kids and I suspect it. He forgets things from a discussion 10 minutes ago. He was an engineer and very smart - now it's me telling him how to do things correctly. He'll get upset that I'm telling him the practical way, so I've begun to just let him…
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New diagnosis
My 69 yo husband just diagnosed with MCI and MRI showed brain atrophy in areas of brain associated with Alzheimer’s. He still functions independently, but memory issues are increasing, and some difficulty with speech, spatial skills, and word finding. Next appt (for neurology and more memory tests is 3 months away. My Qs…
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How to handle wanting to drive
Hi All, My DH, who definitely should not be driving, talks about driving EVERY DAY. His car has a dead battery, and he has been told by his doctors that he should not drive, but he brings it up every day. He wants his precious car fixed. He wants to drive. He has driven 3 times in the past year, and the last time he swore…
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New Symptoms
Hi, my LO, 88, diagnosed Alzheimer’s 2024 but symptoms at least 2 years earlier. This is were we are now. Doesn’t drive, can’t cook, can’t remember his pin # for credit cards. Can’t pay bills or do meds. Latest hearing voices sing Happy Birthday at 1 AM and going outside to look for them. Hand tremors and absolutely no…
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Kisunla infusions
Recently diagnosed (after +18 month of waiting on testing and follow up Neuro appointments) and referred for Kisunla infusions. Dr deemed him with mild cognitive impairment but I see moving to moderate impairment based on testing last done 6 months ago. I am concerned as everything I read states Kisunla is for MILD…
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I haven't been able to post as much lately...
I've been reading the posts but haven't been able to post as much lately. As many of you know, I was diagnosed with cancer in Dec 2023 and had to place my DH in memory care so I could get treatment. I had chemo and major surgery in 2024. My DH passed in August 2024 from Alzheimer's-Posterior Cortical Atrophy. In December…
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Scam???
I had a person from ALZ. Connect messaged me. Tell me your thoughts on her message. I looked up her profile and she just joined on the same day I got the message. I want to think that the message is legitimate but just have a gut feeling that it isn’t. If it is legitimate please accept my apologies. We are all vulnerable…
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The Behavior is so Unpredictable
My DW just woke up from an afternoon nap. She accuses me of cutting her hair and stuffing ii onto her mouth. She also caustically accuses me of cutting her gums and teeth. Of course I deny it. Then she screams she hates me and wants me gone! Well I have somehow remained calm. I understand it is the disease. Now she will…
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lions mane with gingo biloba
supposed to improve concentration. has anyone tried it.
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Mother dissatisfied with live-in caregiver
My mom is fortunate enough to have a live-in caregiver, this is her second. (the first was for three weeks, didn't have a car, and was temporary until the caregiver with the car was available). The first person she had a really tough time with, and my mom got really mean and nasty to this person, they would get in shouting…
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Disposable toilet mats
I’m a newbie compared to most here, but I wish I found these much sooner. Cleaning the bathroom tile multiple times a day was exhausting in addition to all the other “jobs”
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Mom lives across the country & has early stage of dementia
Mother lives across the country and insist she is taking her medications regularly, but her BP says something different. She tells her doctor that she is taking her meds and feels that the doctor is calling her a liar. I know she is not taking them regularly and she meets the criteria of loss memory for the early stage.…
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Awakes during the night to urinate
I care for my 94 year old mother who lives with me. She is in moderate stage I believe and has days and nights mixed up. She needs assistance with everything but feeding and is in a wheelchair since breaking her hip and having surgery 2 years ago. She urinates a lot at night about every 2 to 3 hours and she calls me to…
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Moving to memory care- how do I tell her?
We have made the decision to move my mom to memory care. We can't decide how to tell her. The facility says to just tell her the day she is going. Her cognition is still ok and she'll see this as us "tricking" her. We are considering having a discussion with her about this but we k ow she'll be resistant.....any advice?