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Traditional Medicare assistance with at home long term care
Finally a major candidate is talking about long term care being covered by Medicare for people other than those covered only by Medicaid. I heard Harris talking about it on The View earlier today and now it’s being talked about on several news broadcasts. If only……
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Resources for spouse?
Are there any support groups specifically for spouses of Alz patients? The spouse dynamic is VERY different from the child dynamic. I’m really struggling with the intimacy aspect and desperately need to talk with people who understand.
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Another step down
Since his stay in the ER, my DH has continued to deteriorate. Before, he could speak a little and was able to recognize me and say he loved me. Now, he is not speaking, is eating very little, and sleeping pretty much all of the time. As I live 3 hours distant from the MC, it is devastating to make the trip and not have any…
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First Bout of Pneumonia
A week ago, Monday, had the ambulance take DW to the hospital with what turned out to be right lobe pneumonia. 2 1/2 days in and got her right back home. Week later, she's made almost a complete recovery. Pleased with the nursing she received; CNAs needed prodding though on skills for 1 on 1 feedings, fall risk precautions…
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Father packing to fly back home
Hello all, It’s been a minute. My father has been here about 3 months and we are now at a point where fiblets don’t work. He is now demanding to go home and even if I say we are figuring it out or I can’t because of work he is going to get his own flight to go home. (I am POA I have all his ids and credit cards) wifi is…
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Am I being written out of DH history?
DH is in ES stage ALZ, but most likely moving into MS. Married 65 years. This week DH has told two stories from our joint history where he has written me out of the story for the most part. What he did was to take credit for things that I had done. I don't care so much about that as I am wondering if this is a "thing" that…
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Well here we are…
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BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
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Learning to communicate again
My DW is in her fourth year with Alzhiemers. Lately I find that I have more difficulty understanding what she says. She is unaware thratedat what she says is not always what she means. I get frustrated and that does not help.
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Is staying outside of a facility better during early to moderate stages?
Like a lot of older people and people with dementia, my loved one dislikes the whole concept of a facility or even senior independent living. She finds even the nicest of places depressing because she thinks the whole concept is sad and seems to have a fear of aging and illness. So I'm wondering if I might be able to come…
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Mom’s latest explanation
I know you all have been there, done this. This is more or less a vent/ update. Mom has told me she doesn’t feel good for a couple weeks now. There’s no real physical issue other than she won’t always wear her oxygen and therefore feels even more tired than normal. She’s 86. I don’t expect her to ever feel perky again. I…
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New Here
My DH of 64 years has had signs of some dementia for over 20 years. His Mother and her siblings all had full blown Alzheimer’s before they died. So it wasn’t hard to think that he might have it. About 3 years ago it came to a point that I just couldn’t cope and I finally talked to our primary care Dr. who we also consider…
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Enter into their reality…@
❤️
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BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
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BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
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BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
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Cycles of doubt
This seems to happen every few weeks or even every ten days or so. I’m sure it’s a sign of burnout, but I want to run away. I want to be alone. I want to enjoy my home and my time, which are no longer mine. Like every other carer, especially spouses, my life is no longer my own and I cannot predict if or when it will ever…
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looking for some hearts and souls that understand
Hello Dear Community, Dad and I went to a neurologist appointment today to get him established with someone here after his move closer to me. You all have supported me through so much already. I thank you. It was our first time out together since his move here in late June. It was good to be out with him. I was so nervous…
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New to Alzconnected
Hello. My name is Christine, my mother has Alzheimer’s. Soft diagnosis was in August 2023 and the final diagnosis was January 2024. It has been a wild ride to say the least. She has been on Memantine for about 6 months now and recently received her 2nd dose of Leqembi via infusion. During and immediately after the infusion…
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Need immediate advice
My parent has gotten it into their head that they want to take a trip back to their former house states away. My parent is currently living with me. they got this into their head because they found out that the dmv changed their drivers license requirements so they may be able to get their expired livense renewed. And…
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Seeing DH slowly fade away
The worse part of visiting is leaving & driving 3 hours back to an empty house. The worse part is also seeing the other veterans there that are farther along in their dementia journey knowing what's coming for my DH. This weekly refreshed reminders of loss & grief are dragging me down.
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55 and have early/mild Alzheimer's
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Early On-Set Rate of Down-Slide?
Hello, My DH has been living with aphasia for the last 2 years and was only recently (within the last month) diagnosed with AD. Since the diagnosis, he appears to be rapidly devolving - - anxiety about a number of different world events (hurricanes, war, covid, etc.) and amnestic symptoms, neither of which had been an…
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Leaving alone
This may be an obvious question, but I'd still like your thoughts. All of the literature says don't leave your person with dementia alone after a certain stage. My husband is clearly stage 5. However, he absolutely does not wander (doesn't leave the house), doesn't try to use appliances, pretty much sits in his chair when…
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The other woman
My mother in law lives with my husband and I. In the evenings she believes that my husband, her son, Is her deceased husband. That prompts her to ask him to come to bed at night. When he tells her I'm not going to bed yet "MOM", she gets upset sometimes telling him she Is not his mom, other times getting very upset telling…
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How to answer DH's questions?
Here I am, on a beautiful Saturday, all alone, wallowing in self-pity. The need to visit DH is upon me now—ready or not—as he has a telehealth appointment with his neurologist coming up soon and I need to be present for that. Guilt has weighed heavily on me ever since I decided not to visit him after the first visit last…
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Good ways to talk to DH's doctor?
Hi all! DH has a PCP doctor appointment on Wednesday and I usually attend with him. The doctor is aware of DH cognitive issues and is fairly saavy and I usually update her the day before by leaving a message with issues, details, requests. The doc can throw me under the bus sometimes in the appointment by saying, "you wife…
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Help! I am second-guessing my decisions
My DH got COVID last month. For all of his 33-day hospitalization, they forced in to stay in bed (for falls precaution) and would restrain him much of the time. They barely walked him because he required 2 people (staffing issues or laziness?). PT might have come around 4 times in the 33 days. He was transferred to a rehab…
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Robotic therapy cat
I thought about getting a cat at one time but most of the responders on this forum discouraged the idea and I agreed with them that it would be too much stress for me as he gets worse. Even now he leaves the door open a lot so I’d be constantly worried the cat would get out. I’ve been thinking about the robotic cats and…
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My lifeblood is in MC
Hi all, I have not been of much help lately, have not been able to post. As of last Thursday, my Guy has been in a memory care unit, He had a paralysis in mid August, went to hospital for a week, then to a TCU for several weeks.. Now to a memory care facility that, actually, I could live in for $500 more a month. Diagnosis…