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Just when you think thing are doing prettygood
A slight change in a routine about locking the doors while I was at work.He became confused to why we need to.i have grand son I cant quit trust. He knows when I'm gone I I would the doors unlock.dh very upset when just thinks about him. Not quit sure what to do to make him less agitated.
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Accepting
Hello, This is my first post. My DH just turned 67 and was diagnosed with Alzheimer’s less than a year ago. I am still trying to adjust to this new reality and how quickly he seems to be declining. I found the posts on hallucinations very helpful. In the past several weeks he has awoken in the early morning (usually around…
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Experience with Caplyta
Hospice is recommending Caplyta for my DH with EO. Has anyone had experience with this drug?
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New to this Group
I am caring for my DH who has had cognitive decline over the past 4 yrs. As I write this, I can't believe it's been that long. I am trying to abide by the rules, however find myself breaking the rules, especially when I am in the middle of something, (like doing taxes today). He has alcohol dependance with a dementia /…
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An ugly discussion about poop!
Sorry, everyone, but I have a question about poop. My husband is in a memory care facility. Lately, his bowel movements have been very soft, and impossible for him to pass all of it while he is on the toilet. He is unable to wipe himself, so he ends up with poop everywhere. He doesn't tell staff when he has to go, so they…
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Medications?
My husband is starting to show signs of paranoia and hallucinations. He’s currently in a long term care facility. He’s in palliative care. I’d like to bring him home, but he has wandered in the past and sundowns. Does he need to see a neurologist for a diagnosis? How do I find out if he needs medication? I can talk with…
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DH in NH pinched another resident km
DH has been in NH for 2 months. He has been wandering into other people's rooms. Last night got a call that he had pinched a woman and caused bruising. Needless to say the female resident was yelling and extremly upset. I feel terrible he did that to her and today he's having a psych evaluation in house. Anyone ever go…
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Waiting for the ER
DH had a complete mental breakdown at his rehab center today, where he was recovering from a fractured tibia. He has been declining for a week now, and I’ve been begging and pleading for help from them which was not forthcoming. They finally decided tonight to send him to the hospital with a diagnosis of “altered mental…
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Question about adult daycare
I went to my support group today. At least three people there sounded like their loved ones could benefit from adult daycare, but they all said that their people were still too early in the disease and too aware to be willing to go without a fight. How might they approach the subject to make their loved ones more amenable…
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Difficult sibling
I probably already have a post with this title. My brother visits mom once a week and is kind and caring towards her. But! He dumps all his personal problems on her ( she worries constantly). He believes she should be informed and consulted on almost everything. He is obsessed with her “rights” even at the cost of her…
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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Need help accepting caregiver
We're trying to hire a caregiver/helper for a few hours a week, but my wife is very private and gets angry at the idea of having someone else in our home. We need some advice on how to resolve this. Thanks.
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Mother Passed Away/Car Keys
My mother passed away 3-4-25. Father was diagnosed with Alzheimer’s January 2023. He has been is early stage to date. Still takes care of himself, but can’t manage bills laundry or cook. I have 2 sisters. One lives right beside him & helps a lot, but works FT. One lives within 5 blocks, helps after work. I live 2 hrs away,…
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This may be crazy question.. but has anyone ever heard of someone staying in say Stage 4
has anyone ever heard of this ? I’m curious or hoping has anyone just at a say Stage 4-5 and never going further. ????
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Grief and Guilt
My Dad was diagnosed with dementia in 2019. He moved into an ALF when it was no longer safe to drive. He was living there for 3 month then Covid hit, they were basically locked down and he was kept in his apt with no outside stimulation. That's when he began to really decline. At that time he was living an hour away and I…
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Frail Elderly Waiver
If your loved one has a frail and elderly waiver, please tell us what services they get through this program. (Bonus points for Massachusetts). Thank you.
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When do you know it's time for a facility?
Hello. My name is Maria and I'm new to this forum. My mother will be 83 in July and is still living independently in a 2 story townhome with laundry in the basement. She has a companion that comes from 11:30 - 4:30 on weekdays. My sister and I spend time with her every Wednesday evening and on weekends when we can. We are…
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Worried about Mom
My parents have different stages of dementia. My dad, 89, is well situated in a care home under hospice care. He is very easy to take care of since he is totally bed bound at stage 7. My Mom, 84, on the other hand, is going to be a challenge. She has realization that her memory is getting worse and she knows she has…
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Dad won't get out of bed
He has stage 6 Alzheimers, and I received a call that my dad will not get out of bed and refuses to eat anything. Here are a few bullet points describing our situation: He is in an excellent facility. He has 2-3 family visits a week from myself and my brother. Last week I visited him 4 days in a row, including taking him…
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Seroquel use in Alzheimer’s patients
DH is very agitated and having hallucinations. Doc prescribed Seroquel. Researching Mayo Clinic said it should not be used for Alzheimer’s patients. I am confused as it is often recommended. Thanks ! !
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Sibling does not help nor gives support!
I have been a caregiver of my Mom since 2017. Her onset was around age 66. She is now 77 Years. Even before her diagnosis which was offically at 70 years ( I had known she was losing her memory) my twin sister never wanted or even wants today to deal with it in any way. Not only has very minimal contact with our Mom but,…
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Wondering if I need a CELA?
Hoping you all can enlighten me, i need to redo my will and am trying to find an attorney that does estate planning, wills. What can a CELA offer that an estate planning attorney can not? My DH is at home with me, stage 6. Hoping to keep him at home but I’m also investigating MC homes just in case at some point I can not…
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Brussel Sprouts
I have been looking forward and craving brussel sprouts for a few days. It's hard for me to cook in the kitchen as my bf (45yo EOA) likes to be in there with me. I try to ask him to be out of the kitchen while I'm cooking as I don't want him to get hurt. Well, I cut up some baked chicken from Costco and was seasoning my…
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Change in voice
My DH is late stage 6, early 7 and under Hospice care. His vocabulary is mostly word salad but the last week or so his voice is different, sounds like when he has a bad cold, little deeper and a little raspy. Anyone else experienced difference in their voice??
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One parent with ALZ.. one with encepalothopy and rejecting any help.. not sure what to do
So my dad (61) was in the hospital/ rehab nearly 3 months for a bowel perforation and other issues. He is a lifelong alcoholic. During that time, my mother (66) was diagnosed with alzheimers. He discharged himself from the hospital AMA twice now. He does not care (or have the ability to care) about my mom's diagnosis. He…
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What to Look For at MC Facilities
While I'm hoping to not need it soon, I want to get "my ducks in a row." I'll be touring a number of MC facilities within the next couple of weeks. Other than the usual (patient to staff ratios, Med staff, etc.) What red flags should I be looking for? Any questions you wished you asked? Any help or guidance is greatly…
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Anxiety attacks
I have an appointment for my bf (45yo EOA) this Wednesday with his pcp to discuss hospice admittance. Hospice is the quick route to get him into MC. I am having anxiety and hate taking my meds. I know this is the best step for him but when I think of him being there and him feeling alone or remembering me and I'm not…
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End of life?
Me and my brother are both helping to care for my grandad, my nan too and he has carers come in multiple times a day because it's a lot for us to deal with. He's recently stopped breathing, or struggled breathing every day for the last 7-10 days. Breaths every 30-40 seconds and in a lot of pain, he's had care come out for…
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helping my brother with short term memory loss as his guardian
I am at a loss. My brother lost his wife and continued to drink heavily. Became real sick and ended up with dementia/short term memory loss. He was able to gain a little back but I don't know what to do. I took him away from his home because there was no one there to care for him when he left the hospital. My husband I…
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Feeling So Sad 11
Please don’t laugh 🤣 I sat on my phone and cut off my sadness post. Maybe that was a good thing it was enough to break my melancholy. I feel better but it happens quite a bit. My DH often asks who am I? Where do I sleep? Do I have a brother? etc mostly I just happily move on but it got to me today and I felt so very sad.…