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Maintaining independence during early stages
Hi, my mom (58 years old) was recently diagnosed with mild dementia. My siblings and I are trying to navigate this new reality and find a balance between keeping her safe and allowing her some independence. She’s on medical leave from her job because her performance had been declining. This means she’s home 24/7. Seeing…
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New to group
My mom is 80 years old and is in her second year of diagnosis. She is the church organist at our church but needs my brother or I to prompt her when to play. She can no longer do they planning or get up in time to make it to church so the church says she has to retire which I understand. However, some days she remembers…
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Dementia Family Dog Workshop Webinar
I started following this group that’s based in Scotland because my wife who is in the early stage of Alzheimer’s expressed interest in getting a service dog. This free webinar is an “educational workshop to guide families affected by dementia who have, or would like to get, their own pet dog”
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Nights are the worst...
I'm sure I'm not alone with dreading the nighttime and my DH with VD's increased agitation. He does well during the day but when he goes to bed, he is asleep within 5 minutes but his sleep is so restless. He is up and down all night going to the restroom, pulling, fighting with and getting entangled in the sheets and…
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visit with PCP
We had a regular visit with our PCP today. As is often the case, our loved ones are further along than we recognize or admit. I have my DW in early stage 6. The PCP evaluated both of us and said I should start looking into memory care facilities. The good ones have waiting lists and I am supposed to be prepared for the…
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New to This - Caregiver (not family - paid)
Hi everyone! Let me introduce myself. My name is Jane and I care for a man with Lewy body Dementia. I started working for him just on weekends about 2 1/2 yrs ago. I worked 9-5 on Saturday & Sunday. His daughter hired me, she worked the rest of the week. He did not have any care from 5pm until the next morning at 9 am.…
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Toileting Issues
I need some ideas … my husband (with Alz) is urinating while standing up and is terrible aim! I am tired of cleaning pee from the toilet, the back of the toilet, the floor, etc. multiple times a day. Does anyone know of a product that would cover those areas?
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This journey
It’s been 3.5 years since my dad passed and I became my mom’s caretaker and her dementia took a fast slide. She moved out of state to be close to me 2 years ago. Many of you have been right there with me on this journey. Staging: she was probably stage 3-4 before dad passed, 5 when she moved here. Now she’s in stage 6 in a…
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New here Caregiver for my Mom
Hello all! I have really been struggling and looking for support and I am very happy to have found this community! My Mom is 77 diagnosed in December 2024. She lives with me and my husband in an in-law that we put on for her. I have so many questions but the biggest issue right now is she has been online shopping,…
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Dealing with Burnout
Hi, all. Haven't been here in a while. I'm dealing with severe burnout. The last few years were incredibly stressful, having my mom live with me as her dementia progressed. I placed her in an MCF last fall, which turned out to be a nightmare, and now she's in a lovely ACH where she's cared for very lovingly and with…
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New to this group .
Hi I am new to this group . I am really haven a hard time dealing with my dad have dementia and stage 5 kidney failure . He has been in hospice for almost 2 months now. I am feeling extremely guilty for placing him into a nursing facility . I truly tried to take care of him but it took a mental & physical toll on me . All…
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My DH is getting increasingly aggressive and hard to handle
My DH is very restless and agitated, and always wants something to do. The problem is, when I can't go out with him - ex. at 6:00 a.m. today he wanted to go for a bike ride - then he gets loud and aggressive and says he will go anyway. Today he started for the door and said he was going. He gets lost in our apartment…
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seroquel usage for 93 year old with dementia for the past 11 years.
i'm at the end of my rope as far as care-giving goes. my mother was diagnosed in 2014 with AD/dementia. she advanced quickly and has been in late stages for the past 9 years (requires complete care 24/7). her delusions and bad behavior have become difficult to manage. she's started throwing dishes and glasses of food/drink…
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Dad with necrosis
My dad, 89, VD, has started getting necrosis in his feet. How serious is that? He is bed bound and his feet are wrapped up with foam to prevent them from rubbing against each other. Is this terminal? What should I expect? Anybody here have any experience with this?
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My Mom Keeps Misplacing Things & Thinking My Late Dad Is Still Alive
My mom has a UTI (urinary tract infection) that is causing dementia symptoms. For the past month and a half, she's been misplacing things and then blaming it on my late Dad and insisting he is alive and messing with her. He's been dead for more than a decade, but she never came to terms with it. She was taking meds for the…
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Home care hopefully will help ?
After struggling with the thought of bringing in help only because so far my DW has made it clear that no one but no one was going to come in and help . She has stuck to she just wants me and her . Well I can't keep watching her get weaker because of not eating hardly, and if course I have not been able to get her bathed.…
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"I'm leaving to go home"
I am new to this forum. In September 2024, We took in my MIL who has Alzheimer's, stage 5. All in all things are going well. She always is trying to go pack up her belongings and get ready to go "Home". We do tell her that she lives with us now, she's safe and redirect her to something else, walk, go out for a drive etc.…
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"Girlfriend" in Memory Care
DH has been in MC a little over 2 weeks, he just stopped packing up to go home every day, and seemed to be acclimating. Now, he is attached to a woman in MC! I know it happens often, and is supposedly innocent, but I have found them in his room. It is not so innocent. His wedding ring is missing, today, when I went to…
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I moved DW to memory care (part 1)
This is my (very long) saga of moving DW to memory care, and how we reached that point. I hope you will find it interesting, if not useful. I used to participate in this forum until a few months ago. Then DW's condition made it impossible. She needed my attention, demanded my attention. I remember reading other people's…
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Advice!!
I am new to the group and need advice. My Mom has late stages Alzheimer’s and has been able to be alone for part of the day while I work. This week every day she has been scared, anxious and leaves the house and then cannot figure out how to get back. I have a caregiver but she only comes from 12 to 1 as that is all I can…
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young adult children of Alzheimer’s patient forums?
I am looking to connect with any other young adults that are helping caregiver for their parent. I am 28 and while most of my friends parents are healthy and well my father, my own personal super hero, one of my favorite people on earth is becoming someone I don’t even recognize anymore. Just looking for support from peers.
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Personal Care Tips
Hi all - my mother is in the later stages of dementia and has all but stopped her personal hygiene. I obviously try to get her into the shower. She resists say she has already showered earlier, or that she will shower later that evening, or a lot of other excuses. When in the shower, I am not sure she is doing a very good…
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Covid vaccines/boosters
Has anyone had parents that took the Covid 19 vaccines that contained mRNA be diagnosed with Alzheimers or Dementia? Both my parents did and we have no previous history of Alzheimers on either sides of the family.
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Anyone have a solution to avoid loosing wallet or money?
This is the third time this week hubby has misplaced money but this time he lost his wallet. He is still capable of going to store himself and I don't want to take that away from him yet. Any ideas on how to avoid this?
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Depakote or Haldol for agitation and combativeness?
I'm reaching out once again to this group of fellow travelers down this road none of us has chosen. My DH is 77 and in stage 6 of his dementia - in Memory Care since last July. He is still quite strong and has become very combative when showering is attempted. Just wondering if anyone has had experience with either or both…
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New to this
Hello, My mother was diagnosed with Louie Body Dimentia 3 months ago and progressed quite quickly. She is in late stage 6. She is so weak that she is bed bound. 2 days ago she was put on hospice and we thought we only had days, but today she was having 1-3 word conversations and ate 2 corn muffins and half a sandwich. I…
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How to talk to Parent about moving to Independent Living when they don't want to leave their home
Any advice on how to talk to parent with mild dementia who does not want to move out of their house into a care facility? For reference, my mom got diagnosed last Fall and is now having issues with remembering to take her medicine and eat, also can't keep track of days and is forgetting how to use her oven. My sister and I…
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I CANT DO IT!!!
I'm 39yo female caring for the kindest, all giving to anyone in need 45yo EOA bf. I hate this f**cing disease so bad. Tomorrow i have an assessment with the facility i plan to put my loved one in. The fast track to get him into MC is via hospice. We had that intake on friday. My anxiety is at a high right now and I'm…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Mild Cognitive Impairment
This is my first post. In July 2023 I noted to family that my 81 year-old DW was having significant memory problems. In January 2024 she was diagnosed with Mild Cognitive Impairment (MCI). I am particularly interested in others who have a LO diagnosed with MCI and for how many years or did it eventually progress to a more…