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Medicare visit
Just a vent. My Dh had a Medicare yearly visit yesterday. Most all of you know the questions that it entities. When it came to the memory (clock )he couldn't do it . Became very agitated. I had the na stop it. She was not happy. I explain he already has the diagnosis and there is no sense in upsetting him. Just FYI last…
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She wants her car
79 yr old sister-in-law recently admitted to a MC Unit after a fall and broker her arm. We knew she was declining and this accident made us realize she can no longer live alone. We immediately got DPOA & POA Healthcare. She thinks she is in a hotel “that serves meals” and wants us to bring her car so she can go home.…
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Dreadful fear and the "Dark Thoughts"
My father died Jan 2nd (1 day before his 86th birthday). He had end stage Alzheimer's and a very aggressive form of cancer which was discovered just 2 weeks before his death. My Mom is seriously struggling with reality. She calls me at LEAST once a day and tells me people are trying to get into the house and that the "dark…
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I am a caregiver for my mother and brother I also have Alzheimer's
I took care of my Mother, Brother and myself . At time I was in a stage 2 of Alzheimer's My mother recently died , and I have my brother still to care for though it is getting harder and harder. As I am in stage 3 .I would like to see if I am eligible for trial but I have not heard any thing yet .Or perhaps I got lost in…
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Incontinence (fecal)
need to buy depends or whatever is out there for hubby with fecal incontinence. He has accidents during the night. Thank god so far not in the bed but he can’t seem to get to toilet on time and it happens on his way to bathroom. There goes another pair of underwear. I’m hoping there’s something that’s close to looking like…
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Dealing with lawyers
so I’m hiring a lawyer as I was told by my mothers social worker, Went on NELF, I got told a meeting to discuss elder care would be $400 and a durable power of attorney will be an additional $700. Is this normal? If it is are you aware of any grants that could cover this or cheaper options to get a DPA?
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Suffering from anxiety
I am only child in my late 50. Lost my mom to same disease 15 yrs ago. Now my dad . He has been in rehab/assisting living for year now. How do deal with sundown around 6pm he wants me to pick him and take him out. He curses and slams things around his room. This causes me anxiety and my blood pressure goes up. Sometimes I…
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So many posts remind me. . .
I see many posts and I think to myself we were there in the exact place 3 maybe four years ago and we are still not done. I feel sorry for those with years still left in trenches. My heart goes out to you because I was there as well and still am there. We are on the backside now but doesn't mean we don't have a long way to…
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Im new to this...Looking for guidance
Hello, I am new here and new to this world of dementia. My dad (lives with me) was diagnosed with ALZ last year. He is still independent for the most part and he is still driving (for now). I have started to take over paying his bills and keeping his banking straight. We do have the will and living will taken care of. What…
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Auto Response
I am a caregiver and I need some communication help. How do I respond to my client without making her feel like she doesn't remember. For example when she tells a story and she just told me I don't say anything about it. I usually ask the same questions or some what different to make her feel engaged. But what do I do if…
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New diagnosis, new to group. Having a rough ugly cry day.
I have been very emotional, ugly crying today. Today is hard, others are not- those days I am "numb". I am 41, married for 19 years, I have 5 kids ages 8, 10, 17, 18, 20. I have tested positive for PSEN1 which is one of 3 variants known to cause young onset Alzheimer’s. I have had cognitive symptoms since August 2023. I…
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Is there any hope?
I am turning 50 at the end of the month, I just got the PET scan done and it says I have AD. I have 4 adult kids and 2 grandbabies that are under 2. Is there any pill I can take?
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Perceived reality
My mom is having a day where her perceived reality is running wild. She believes that she will be going to go get food with another person. However, we do not have a car and she has had no contact with other people since she lost her phone at least a week ago. I haven't been able to replace it yet. She has asked me to go…
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Broken tooth and dentist
I've discovered that my DH has a broken tooth and he is digging into his mouth, thinking he's got something stuck between his teeth. He refuses to go to the dentist. What can I do???
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recommendations for elder law attorney in Minneapolis/St. Paul?
I've looked at the links that could help me locate an elder law attorney, but I'm curious if anyone has worked with, and can recommend, an elder law attorney in the Minneapolis/St. Paul area? I always like getting referrals from real people who have "been there and done that". 😉 Thanks in advance for any ideas!
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Driving Stress and Key Keeping
Hello. Would love opinions today! My mom has stage 5 dementia. She is currently obsessed with driving again. She failed the cognitive exam and as a result, has had her license suspended. Her car lives in her garage. I have BOTH sets of her keys. One I swiped when she first exhibited scary driving symptoms (she doesn't know…
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caregiver needs help
My wife has vascular dementia. She is very articulate, very social and very stubborn. She has had several falls resulting in broken hips and vertebrae, but doesn't think she needs help. I have employed a caregiver couple half-days a week. Generally this provide a nasty response each time the person arrives. Regularly she…
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Yet another car discussion
DH has only driven his car once in two years (last time was March 2023) and because of non-use, the battery is dead. Thank goodness. I have no intention of getting it fixed or telling him its the battery. Instead, I just say, "its broken." He occasionally thinks about driving but when he does, he goes out to the car and…
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10 things "I've" learned about MC's.
These are just a few of the things I've seen in the last 6mo. My DW is in a fairly decent facility but there is no perfect place. When you place your LO in an MC facility and walk away, that will be one of the hardest days of your life. The staff are generally well meaning, caring and perform an incredibly difficult job…
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working with incontinence
DH is beginning to have wetting issues…he goes to toilet but it takes him forever to pee, then after he finishes there is wet all over his pants. I think this is age as much as Alz, but hate for him to be out on public and visible. I believe there are pads to put in his underwear, looking for suggestions and brands, please.
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I don’t know what to do, & no real support
My mom is 82, lives with me annd my husband and has VD, DM2,CKD4. She recently spent a week and 1/2 in the hospital after I found her non responsive for severe UTI w/3 ureter stones. Her blood sugars are wnl. We noticed even before her hospitalization she was sleeping more and saying she wasn’t hungry or that she was…
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Caregiver for parent diagnosed early in life.
Hi, My mother (60) was diagnosed with Alzheimer’s early this year. It’s been a big change for her of course but I am now her sole caregiver (F25). Running her life and taking over her finances. love my mom and I am so grateful I am able to be with her while she still is in the early stages. But I am struggling with getting…
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Can't wake her up. Has this ever happened to anyone?
While visiting my mom who has moderate dementia she fell asleep sitting on the couch next to me (she was snoring). When it was time for bed I went to wake her up and she would not wake up. My dad and I were shaking her, talking to her, laying her down on the couch but she never opened her eyes or responded to us in any…
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It’s a marathon, not a sprint
Sitting by my sleeping husband’s bedside in the ER for his fifth agitation/aggression admission since May, have been reflecting on what I’ve learned about hospitalizations. When his memory care called me last night with the news he had had another altercation and was going to the ER, first I took a deep breath. Then I…
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Special needs trust
We’re meeting with a lawyer to go over our wills. There’s going to be a discussion about “self settled special needs trust” vs “third party trust”. My wife is turning 65 on October 12. She was just diagnosed this year. I’m thinking a third party trust would be fine. Does that make sense?
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Burn out
how do you all deal with burn out! I just visited my sister, her situation is dire. Can’t walk (broke hip 2 years ago - the original reason she’s at assisted living; then broke both legs a year later - her fermur bone literally snapped, the other leg broke when she went down ), legs severely swollen (she refuses to elevate…
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Need support hubby needs assisted living
I’m at my wits end. I can’t handle having him here anymore. He’s having incontinence a few times a week. Sleeps until noon or 1 pm. Can’t remember last time he showered. I gave up on asking him. Didn’t shave etc. I just had talk with him saying it might be a good idea if we move him to assisted living. He just stared at me…
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How much longer does my dad have to be humiliated
my dad was diagnosed ALZ Dementia and aphasia in 2020. He was able to live in his house with little assistance for 2 years then just needed more and more help and got more and more confused. I had to place him in MC in august 2023 but he was still walking everyday and pretty good at trying to communicate. In the last month…
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Donepezil side effects
My mom has been on donepezil for a little over a month. I felt like the pills were making things worse for a while, but the last couple of weeks she seems to have been a little better, remembering more conversations and walking me through her bookkeeping process. I was starting to feel hopeful. She’s been complaining that…
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For my auntie
Just joined, walking in Tinley Park Saturday, interested in starting a support group at a wellness comm center.