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Hospice care
Today I called hospice care and will be waiting to see if my DW is eligible for their care . This was a very hard decision but I feel that if I can't get my wife to eat and all the weight that she has lost it would be best for both of us .
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Wife called police on me
My wife, who has Alzheimer’s, called the police on me this morning while I was out. Our daughter managed to explain the situation to them on the phone and now my wife seems to have forgotten the whole episode. So far no one has come to the house. My wife has forgotten who I am several times now. I don’t know what to do,…
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Paranoia/Delusions While On Donezepil and Now Memantine?
Hi, all, Long story short, my mom took Donezepil and Sertraline for about a month earlier this year. Her cognitive abilities improved, and we were psyched. And then…she started having paranoia and delusions, nightmares, and something like a psychotic break happened. Her doctors didn't think that Donezepil was the cause,…
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How do you deal with the guilt?
Hello everyone. I recently found this forum and have been reading a little here and there. My mother was diagnosed with Dementia back in 2018, or 2019. Type or cause is unknown, although there is evidence of a small stroke. I, their only child, was living far away and Dad took care of Mom. Then Dad went through a round of…
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Asst Living-VS-??
We recently placed my mother in an Assisted Living facility. She had a heart attack and the doctors said “she can’t live alone anymore, we don’t believe she is managing meds correctly among other things.” And honestly, they were right and we were already on this path, this just sped it up. Physically, she is fine. But we…
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How to arrange a week of respite
I know that all the facilities around that say they do respite care will only do it for assisted living, not memory care, and my DH needs lots of assistance with dressing and navigating. MC facilities don't do it because it's too much work (all the paperwork for placement) and because they are usually full. I have a…
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Resources
Could someone recommend a book that you like that explains stages and symptoms of Alzheimer’s? Thanks
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Period of inactivity
My DH sat down in a chair in our den the other night at 8:30 and sat there with his eyes open and didn’t move for 6 1/2 hours. I checked on him every hour and ask if he wanted to go to bed and I could tell what I was saying wasn’t registering with him. At 3:00 am he finally would get up and go to bed. Has anyone else…
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Anger and anxiety
I am looking for ideas to help my DH deal with anger and anxiety. He is in the Moderate Stage. He seems to be jealous of me and our Grandchildren. He is taking Seroquel, but it might be making things worse.
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Resentful and Losing patience
Truth, my DH and I had problems and about 10 years ago I asked him to leave and we moved to separate bedrooms. I became complacent, we shared the household expenses and eventually became friends and occasional travelling companions. I'd ask him to leave occasionally, he would say no, and that was it. No one with the…
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Sleeping so much
My DH, age 75, is in stage 6 Alzheimer's. He is still physically in pretty good shape, just mentally compromised. In the last month he's been sleeping 18 - 20 hours per day. Is this common? Does this mark a step toward the end of this road? He always says he is tired. He eats well (often only one meal per day because he…
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FRUSTRATED!!
My husband has been approved for the infusion treatments and the center that does them doesn’t take our secondary insurance. Our doctor’s office is trying to find another location but is having difficulty. This stinks. Maybe it’s a sign he shouldn’t have them??
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Betrayed
my lo knew he was having serious cognitive impairment. I knew long before he was willing to admit it and long before his law firm asked him to step down. He was aware enough to prepare legal action including DPOA of his finances. He named friends rather than me. I cannot even describe the nightmare that has ensued. He…
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DW despondent and feels useless
DW used to be a college professor. She still thinks or hopes that faculty or students will come to the house (or, well, she's now in MC) for her advice and guidance. The fact that they don't (she's been retired for 13 years) makes her feel useless and despondent. She sometimes talks about death and doesn't see the point of…
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Im new here but need to vent.
My mom is in the process of being diagnosed. Her doctor told her it sounded like Alzheimer’s not just normal aging. I finally convinced her to go to her primary care doctor about 3 years ago but she refused to go to the neurologist. I’m assuming after her liver transplant my step dad who is now deceased had brought her to…
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Idk what I’m looking for
This time last year my 72 year old mom moved into AL. 4 months later we moved her into MC in a closer facility. She was doing ‘ok’ overall. (Not sure stage but she is able to walk, can shower herself with encouragement but lots of resistance, remembers us but with confusion. wears pads). Diagnosed with Alzheimers. she’s…
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Long overdue update
We hit the 3 year mark in MC a couple of months ago. It's been a 15 year trip with dementia so far. I know I posted here before about how I feel so "old" because this is typically a disease that hits older people. Managing end of life decisions and all that planning at 50 makes you feel old. Currently DH is 61, I'm 57. The…
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Long Distance Mom has Dementia, and I am the only Child
Hello, I live a plane flight or 1.5-days driving away from my mom and I am only son. She has dementia and lives alone with her dog and cat. I can see her deterioration and have taken over all of her bills, taxes, online shopping, ordering food deliveries, etc for her. I have three children (teenagers) living with me and…
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Care Home Referral/Search resources
New here, both to this discussion board and to the situation. My father has moderate and rapidly progressing dementia (Alzheimer’s). Previously he was very compliant, but this continuing decline has brought out a strong, stubborn streak in addition to everything else. My siblings and I think it is time for memory care. He…
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My new tattoo
I’ve begun the process of touring memory care facilities and the costs are sometimes just ridiculous. Today I visited a nice place, not grand but nice. The price for a private room in MC was $12,245 with an additional fee of $600 per month for incontinence. So I’ve decided I should tattoo that total on my wrist so I can…
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Loss of spouse/significant other bereavement group
Unfortunately, there was no interest in the group so it no longer exists.
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Long Geri-Psych Stay!
At the end of last month/beginning of this month, I posted that DH had a complete mental breakdown at his rehab center, where he was recovering from a fractured tibia. He was transferred to the local ER. Here's the update: After 2 days in the ER, on April 2, he was transferred to an inpatient Geri Psych facility. He's…
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Reminders that don't remind.
My spouse is at the point where she functions normally for most things: caring for herself and the house, driving, shopping, vising friends, etc. We create a to-do list every day, and although it's right in front of her, she doesn't follow it. She understands its importance, and knows that it's there, but doesn't do any of…
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Updating 602A Report Annually
Here in CA it appears MCFs are required by law to have residents' 602A doctor's report updated annually. Currently, with the addition of Depakote it would appear on paper that DH seems highly functioning and doesn't need memory care. I suppose the only ADLs he can't do is cook meals, drive, and that he requires supervision…
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ALZ for 6 yrs, newly diagnosed with Parkinson's. Is it LBD?
My mom has lived with us for 11 yrs, diagnosed with ALZ almost 6 yrs ago. The hand tremors started last summer, pill rolling of the thumbs started last fall. She was diagnosed with Parkinson's yesterday. She was also put on meds a few years ago for incontinence and swallowing issues that we now believe could be early…
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Mom Now Living With Us
Hello all. I am new here and wanted to give some background on our journey so far. I am looking for any guidance or anyone in a similar stage of life to talk to. I really am struggling mentally and emotionally. My mom is 81 with late moderate dementia (Vascular and Alzheimers, defined as stage 6f on the FAST scale.) I also…
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Constant eating
My DH eats constantly. He goes to the refrigerator every 10 minutes. Is there a medication I can ask the doctor about to help with this? He has been on palliative hospice care for about six weeks. Any help would be appreciated.
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Just need to talk to my friends (204)
Time to begin segment 2O4 of our thread. Thought this would be a good time before morning posts. GG, if you stew the prunes, they won't be shriveled. My day was good. I may take Stormy for a ride everyday. the enjoys it so much. I need to get a pair of safety glasses for him. He likes to ride with the window down. This is…
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Dentist recommended all teeth be extracted
According to my mother in laws dentist/oral surgeon, she needs to have all of her remaining teeth extracted due to the extent of decay. This is scheduled to happen in one appointment. I am worried because she does not remember this appointment is approaching, and it will likely seem very scary for her after it has happened…
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17 Months in Care
I'm sure this has been discussed... my wife has been in residential care for over 17 months now. Her main deficit is short term memory loss. Incontinence, doesn't walk. Predominantly in bed except for hospice showers, there is sooo much more to this. She was a registered nurse, bright, still sweet in so many ways. I see…