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Hi Are there any courses within my area? Please let me know via email Thank you Zip code 46947 Marta Curtean Kelly

Hi, This is my first time of posting. I went looking for a support group for people living in Berlin who were English speakers living with AD and clicked up the discussion tab and ended here -- but I am feeling perhaps I am not in Germany anymore? I would love to find someone else who I could talk to about dealing with AD…

The MCF where my father lives has several discrete areas (“neighborhoods”), with a set of rooms, laundry, and dining room. These areas are not arranged by level of care; rooms are luck of the draw when moving in (whatever is open). Caregivers are assigned to one of the areas during a shift; nurses supervise two areas…

DH is early stage 6 and is currently being treated for a UTI, today will be day 4 of antibiotics after doc visit, a fall at midnight, EMS and later a trip to the ER to rule out injury and determine if any blockage in urinary tract. He was not admitted to hospital. It's a long story with more details that I wont share here…

I am certain every one of you has asked this question: what caused this to happen to my loved one. I have different thoughts at different times. But if I had to pick one guess I am going to say statins. Although correlation is not causation it’s hard to ignore the uptick in statin use with the uptick of dementia over the…

I like reading (caregiver for family) and I am looking for a book to help a spouse with best tips, coping suggestions for DH who is angry often, and she is fearful of getting hit again. Alz stage 4, he is currently (temporarily) removed from home -

My LO family member living with me now wants a book to read about his disease (alz stage 4) so tomorrow we are visiting the library, if you can recommend a book for him (not for the caregiver) - we have a lot of conversations- and understands the stages etc encouraging reading would help him.

Hi! I've written many times about the step we took to move my mother into a MC in April and her struggles to adjust to the environment. My initial worries were that it was too early as she had times when things were manageable, the problem was that the delusions ramped up very quickly and were extreme (e.g. felt she was…

My Mom move to an assisted living in May for mild cognitive impairment. She was forgetting her meds and was finding it difficult to balance her check book. I really wanted her to move in with me, but she insisted on her independence which I respect. She was worried she’d be forced to move off campus when the time came to…

My DH is now constantly thinking about sex. Follows me around and asks to be intimate. Even if we have been intimate he forgets and gets angry if i try to redirect him. Tries to leave the house to find someone to have sex with. His doctor has increased his meds because he was having dementia psychosis. That has improved. I…

My husband has mild dementia, and I am his caregiver. Recently, I applied for the Guide program because I was interested in the respite care benefit. I was approved, but it was only in the onboarding meeting that I learned that the respite care benefit is only available for patients with moderate dementia. I was pretty…

In a past life my DH and I spent years sailing around the Whitsundays and along the east coast of Australia. After DH was diagnosed with VD and aphasia I didn’t think we would ever sail again, but we have found Sailability, a wonderful organisation made up with the kindest and most understanding members. I am on the…

So tomorrow will be two weeks since my mom's death. Her MC director, while very kind with condolences, is pushing gently for me to get her room cleaned out so that they can paint and prepare it for a new resident. When I pointed out that mom was paid up for this month (and I was out of town for the first week after her…

Hello. I'm sorry for all of your loss and I'm about to be joining you soon. My mother is in the end stages in a nursing facility far away. I'm long distance. My dad is there with her. Last time I saw her was late Feb of this year and a few more times on video calls when she was eating well and looking pretty healthy and ok…

I try to take my DH out to do things, like listen to music, a movie, dinner, grandkid’s ball games.It is such a project, he asks the same questions over and over even though it is a place we have been many ,many times. By the time we are ready to go, I feel like I don’t want to go because once we get there I have to tell…

what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening

I am having trouble getting DW to engage in any activities throughout the day. In the morning and right after the afternoon potty break, she will sort/shuffle her papers and talk for about an hour to an hour and a half. Then sits down and really is inactive in the between times. She used to work in an office environment…

DH in middle stage of ALZ: lately he has had several episodes of time shifting, not the day or time, but in years. For example: last week he told our daughter that he had lost a few pounds (not) and could finally fit into the khaki pants he wore when he got out of the army. In reality, that was 70 years and 25 pounds ago.…

Compassion fatigue TED Talk [https://youtu.be/ZsaorjIo1Yc?si=L07hszirRcCX-mXP]

My father needs a break from continuous full time care giving of my mother. Any suggestions on where to find adult day care for at least one day a week. I believe she is late mid stage.

My father has been declining rapidly mentally. His depression hasn't been able to be controlled with meds and he keeps getting meaner. He's in denial but sometimes I think what I say actually makes it to his thinking process sometimes but is often turned around on me and it's my fault or something I did or didn't do. I'm…

In addition to the information on the GUIDE Program I posted about a month ago, I got a call yesterday that we are eligible for 19 four hour increments of respite care per year, from July 1 to June 30. This means up until this June 30th, I can use all 19 segments. The next step is an in-home assessment. After that the…

My dad has been newly diagnosed with Alzheimer’s, vascular dementia. I’m all to familiar with this disease, my grandmother, several aunts and uncles, and my cousin have had it. Some starting with early onset. I have been so emotional and had such anxiety since hearing the actual diagnosis about my dad. I know how this…

If your LO has cognitive issues, it is time to look at how they are taking their medications. They could easily be taking too many or not taking them at all. One of the people in the ALZ support group that I attend told us about his wife. One day, he came in and she was asleep and he had a difficult time waking her up. He…

for the last two years I have been trying to care for both of my parents with Alzheimer’s. I only lasted 5 months with both of them and had to place mom in memory care facility., dad lived with me for an additional year and I just had to place him as well. I am devastated beyond belief. My brother has autism and wasn’t…

Hello all, once again I may be just venting and processing my thoughts, but I always get helpful feedback here. Dad, 88 has vascular dementia and moved to Assisted Living near me (facility has MC as well) about 6 months ago. After a lot of work to get him to agree the transition as gone well. But I am very conflicted about…

Hello community, Dad has been in his new care home since Wednesday, so almost a week. It is much smaller and in a home-like environment. He needed a new place after a stay at a geri psych inpatient hospital due to behavioral expressions. The entire 2 years at his previous home we struggled to address the anxiety he was…

I cannot care for my husband. I am ill myself and I am not able to be a good companion. I can barely take care of daily tasks like cooking, housekeeping and trying to manage both my husbands illness and my own. My husband tries to help but often he doesn’t have the skills to do simple things anymore. He looks to me for…

My 66 year old DW has been confirmed to have mild dementia through FAST testing and a pTau 217 blood test. This diagnosis was given to us approximately 2 weeks ago. She does not remember any testing and is in denial. Up until 3-4 weeks ago, my wife's symptoms were pretty mild (forgetfulness, asking same questions multiple…

My mother is 77 years old, living independently, and diagnosed with dementia/mild cognitive impairment, along with anxiety and depression. My father passed 3 years ago, after they were married 50 years. This was followed by the passing of my brother (my mom's youngest son) at 32 just last August. She has lived in the same…