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Medicare GUIDE program
8 year program to provide help- hopefully a good start & will expand . 2 links below.
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Hospice at Home and Private Aide
Does anyone hospice at home but hired an aide to help? I am deciding what the best course of action is. It is less expensive to hire a live in and have hospice come to my home…I'm worried it will still be too much for me to handle. My mom is frail and is recovering from broken bones due to a fall. She is in pain, no longer…
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New here, are there any books aimed at the person who has dementia?
Hello, I had the slum test and was found to me on the border of mci and dementia. Thyroid test and b12 test came back normal range. Waiting on diabetes and will have an MRI on Friday. I am wondering if there any books you can recommend that are directed towards the patient and not necessarily the caregiver. I found a lot…
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Time change
My husband is so confused and upset about the time change today. He just doesn’t understand when I explain it to him. He thinks something is going on that is bad, something is doing this to him. I thought things were going better the last 2-3 days, now this. Guess that’s the way it is. Will I ever get used to this?
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How do I get my sister to the doctor?
Hi, I am new to the forum. I am sure this question has been asked by many people that are starting this journey. My sister thinks she is fine and ignores our requests to have her make an appointment to see a doctor. We know that she is not managing her finances properly and is making very poor decisions and possibly making…
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NY Times: Can Crosswords and Games Prevent Dementia?
Gifted link good for 30 days. Can Crosswords and Games Prevent Dementia? Experts say the answer is a puzzle. https://www.nytimes.com/2024/10/30/well/mind/dementia-brain-training-puzzles.html?unlocked_article_code=1.WU4.wf9A.a9CM36TJzQcw&smid=url-share Main take away: Perhaps Dr. Gandy summed up the debate best: “I don’t…
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My DH has lost his dentures
We are in our second year since diagnosis (probably 4 years since onset), and are somewhere in the fifth-sixth stage of ALZ. He has stopped wanting to take his denture out when we go to bed, so we have been cleaning it in the morning. Sometime last night he took it out and has misplaced it. I have looked everywhere for it,…
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Interesting (and untimely) legal lesson about cremation: should I have just lied and told them we w
I hope this might be helpful to someone else, for me it's been a huge headache and unnecessary firedrill on an already fraught Friday afternoon. And importantly, something that neither my memory care contacts nor the hospice social workers were aware of. And that the cremation company didn't catch until this afternoon,…
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Loves to talk to anyone who comes to the door
My DH has a routine list of things he talks about to anyone who will listen - I call it his yard tour. He starts with showing them the driveway, followed by every tree and plant in the front and back of the house. Some of it makes no sense, but most people will listen patiently, at some point probably realizing he has…
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Final chapter
My DH passed last night. I had seen him in the afternoon, and hope he heard me tell him how much I loved him. I am glad his suffering is done. It all happened so quickly after his last ER stay a couple weeks ago, that it’s hard for me to process. But he never rebounded from that awful experience and simply stopped eating…
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Everything is perfectly normal...maybe not
Just feel the need to "talk". DH in ES to MS Alz. He has seemed perfectly normal now for about two weeks. You'd have to live with him and pay attention to know anything was off. Well, there is the thing about needing to explain to him who is who and what that all means when we are watching TV and the thing about misnaming…
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Suggestions for daily activities
I am having trouble finding things for my spouse to do each day. He wants to be doing something all the time, but some tasks he simply can’t do successfully. Any activity suggested for a guy who wants to be busy?
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DH seems fine with everyone but me
My DH is starting his 10th year since Alz diagnosis. He exercised daily and ate healthy during the last 10 years and did exceptionally well. But he is declining now. He worries constantly about where his SS ck is … is our furniture paid for? … where do I live (we’ve been married 31 yrs) …. He thinks we just moved into this…
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What Do I Need to Learn?
Hello all, Thank you for your collective wisdom. I've been reading posts and learning. My DH was diagnosed with ALZ a month ago. We're early in the process with MCI right now. He works, drives, cooks, etc. (but is slowing down cognitively and short term memory is poor). I'm taking some time off of work to get some things…
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Glued to the tube
My wife of 39 years spends virtually all day every day watching TV. Mostly the news on a loop—and yet she asks me questions that make it clear that none of it’s sticking—ie. “who is running for president?”). It’s another beautiful fall day, but she has closed the blinds, is complaining of being cold (it’s not), and does…
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Visiting DH A Huge Success
As some of you may recall, I have only visited DH once since his placement 1-1/2 yrs ago given the very first visit was a huge disaster. With his neurologist telehealth appointment coming up in December, I figured I had better not make the telehealth appt day be my first "revisit." Moreover, I felt obligated to bring him…
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Adjusting to part time caregiver
I’ve been a full time caregiver for my husband for 5 years. He is in the moderate stage of Alzheimer’s and resists going to day programs. I hired an experienced part time caregiver to help me a few times a week. My husband doesn’t understand this new person in our home and was very irritated with me the second time I left…
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Here we go again
My LH loves woodworking. He is determined to work on a couple Christmas gifts. He has always been very independent with his projects and never needed assistance. Now I need to help him each step of the way taking my time and even then he can’t follow the directions and instructions or drawings or measurements that we…
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Getting Someone Diagnosed
Hello, my mom lives with me and I've been seeing signs of dementia, depression, anxiety in her. At times, she will say " I think there is something wrong" and when I suggest talking with a doctor, she immediately says "NO". I had a virtual appointment with her PCP and she couldn't believe what I was telling her. She said…
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Jekyll and Hyde
Has anyone else experienced their loved one being "in their face" for hours in the middle of the night screaming obscenties and accusations, forcable holding them down on the bed when they try to leave and then days later wanting nothing but sex from them?
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Article on long term care insurance
Not the most cheerful topic…. https://x.com/barronsonline/status/1849308096327246291 Covers the history of insurance , recent premium issues etc.
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The Lawn mower saga
Alzheimers just stinks, and makes simple things so complicated sometimes. My Dad’s riding mower, AKA the tractor, had a factor recall in July. My mother had a company pick it up for the factory warranty repair, which took a long time because they were waiting for a part. Then at the end July my mother was diagnosed with…
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Support group
My 76 year old wife was diagnosed in September with moderate Alzheimer's just 10 months after an initial MCI diagnosis. Luckily I have lots of local family support. I've just registered for an in-person support group. What can I expect from the meeting?
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So happy to have found this group!
Hi, All, I just joined this group. I posted the following as a reply in another discussion and someone suggested I create a new discussion to introduce myself: My partner's neurologist just moved his diagnosis from Mild Cognitive Impairment to Alzheimer's. This has been reported by law to the DMV and he will be heading…
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Benefits of therapy?
My mom fell 3 weeks ago and sliced up her arm on a dresser drawer handle. She had multiple sutures and wore a bulky dressing for 2 weeks, then had sutures removed. No longer needs the dressing. The injury appears to have healed well, for which i am grateful. She is no longer complaining of pain, not even during the suture…
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second home
I haven't seen conversation about owning a second home, or vacation home, and I know there are others like me who have a dw or dh with alzheimer's and have thoughts about how to handle it. Ours is a vacation home in a popular tourist area that we bought knowing that dw has alzheimer's but did it for her enjoyment knowing…
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Anger about not going to church
My dad is 75 and in the mid-stage of Alzheimer's. He lived in a different state until 14 months ago when he made the decision to be closer as I am his caregiver & POA. No other surviving family lived close. What had been nice since his diagnosis was that he was able to convey that he knew it was time for the next "step" in…
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Is It Dementia or Aphasia
my husband has Frontotemporal Alzheimer’s Dementia and Primary Progressive Aphasia. It seems to me his symptoms are the PPA more than the dementia. Is that possible? How do I tell the difference?
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Don't argue, redirect
The above is the one of the best ideas I have learned on this site. DW and I got home from a visit with our son this evening, and she got to complaining about the state of her wardrobe. This is a chronic problem. All 30 pairs of her shoes are "worn out", etc. I bought her a couple of new sweaters earlier this week, but she…
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…of course she isn’t really there
You’ve heard of phantom limb syndrome, well I’m having phantom wife syndrome. A number of times a week I very briefly, just for a moment, experience a feeling that my DW is with me. She’s been in an MCF for over two years and the hospice nurse tells me they have just determined she is Stage 7f (on the Fisher scale), the…