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Being accused of any and everything
I am caring for my grandmother. I was wondering if anyone has any tips for a specific and main hardship I'm having. She accuses me of being "the biggest liar she has ever met" about everything. She will ask me a seemingly easy question for example, she will be holding a peice of mail and ask me where it came from. So I…
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Anxiety building
i am going to visit my mother tomorrow mainly because she needs her wine, she goes though a box wine (34 glasses) every 4 days it's very bad on her part I have tried to intervene but she says she will never give it up. Tried consulting a doctor and my mother refuses any treatment. I have to cover her seat in my car with…
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Any point to Namenda at this point?
I'm so tired. DH was diagnosed with dementia 16 years ago and was placed on Namenda and Galantamine. It appears they did slow progression but at age 78 he is now in a memory care facility. The Galantamine was discontinued a year ago but the Namenda was continued. . At this time his dementia has progressed mentally- he is…
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A Trip
I have to make a confession. I've been telling people here how difficult taking trips with my DW in Stage 5/6 have been and recommending not to do them. Then, the glutton for punishment I am, I decided I'd try again to bring my DW to our old hometown. She went to college here and has wonderful friends and family here that…
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When or if or why to call ambulance if notable changes in bp and demeanor
hi all…my mom has late stage Alzheimer’s but lives at home with 24/7 care. My dad prob also has dementia but always thinks something is wrong. Yesterday she was much more dazed than usual and higher BP than usual. My dad wanted to call an ambulance. Mom just existing no expression of pain. I told him to let her be. I want…
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Need help with finding a new facility for my Dad in NY/NJ
My Dad has Alzheimer’s for the last 4 years and in the last year the disease has progressed with some combativeness, resistance to care and lack of inhibition. He has been discharged from two AL/MC facilities as I learned they are not equipped to deal with those symptoms of the disease. He has been hospitalized in…
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A little tip about door locks
The first time DH locked himself in the bathroom I realized that I don’t have keys to those locks or to the bedroom doors. I bought emergency key pins to open the push button locks. These worked for me, but maybe even a little screwdriver would work. Just make sure you have a way to open all locks so you can get in if they…
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Venting: I'm married to a teenager
My husband had been having colon issues for a couple weeks. He finally called his doctor, and they said to go to the ER. I took him to the ER, and I realized he can't manage his own health anymore. He went back for testing and samples while I waited in the lobby. He came back, and we were to wait for the results—thankfully…
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DH's reaction to memory book for my kids
M6 DH was diagnosed a year ago with Alz, he's 72. I noticed symptoms years before the diagnosis. I'd say he's mid stage, still pretty capable. With that said ... I had been working on a memory book for my children (from a previou marriages) for several years. Now that I'm retired I was finally able to finish it. It's via…
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Obsession with his cat
My DH was diagnosed with Alz a year ago, but I was seeing symptoms for at least 3 years prior. He still comes across "ok" to others. Just not able to come up with words alot of the time, but I see much more than this of course. We have two cats and DH is particularly attached to one. He now seems rather obsessed with it.…
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Guilt and Grief
My wife of 47 years died from Alzheimer’s in July 2025 on her 75th birthday. I was her only caregiver for the past 10 years. During the last 12 months or more of her life I prayed and asked others to pray for me to have more patience and understanding of her affliction. I knew at times I was being impatient and knew it was…
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Thank you all for advise and steps to take
i appreciate every ones input and allowing me to vent a little I have no one to talk to.
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Upcoming Events
Here are some upcoming events that Michael Ellenbogen shared with me: Updates, Announcements & Upcoming Events GUIDE Affinity Group Biweekly Sessions Join the ADC Program for one hour of real-world insights, best practices on GUIDE-related topics, and open Q&A on every other Wednesday, 8:00–9:00 AM PT / 11 - 12 Eastern.…
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Insomnia
hello…me again..so my mother has been tried on Mirtazipine and Celexa and Melatonin and she is not sleeping at night with anything given to her. Her doctor is trying to find a medication that will work, I really would like to keep my mother at home because she always told us that she did not want to be put in a nursing…
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Kinsua then Leqembi ??
I am 77, newly diagnosed with MCI and my doctor is recommending Leqembi. Would like to know if anyone has experience with starting on Kinsua and then moving onto Leqembi ?? Thanks
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bedtime ritual
Anytime we lay down on the bed, whether for a nap, but especially at bedtime my DW is constantly up and down. She's at that stage where she continually paces and jabbers so I suppose this is an extension. But the bed thing - I can tell she's exhausted but she will spend an hour up and down up and down, in and out. Very…
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in a dilemna re ALZ/divorce...any lawyers or people having had this experience?
My wife and I amicably separated at 65 years with no intention or desire to reconcile. It should have no bearing but to avoid judgement from y'all I will share that I tried FOR YEARS everything I could to address the lack of intimacy (emotional, physical - not talking just sex) and SHE refused and gave me an ultimatum:…
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From NYT: Is It Healthy to Grief Before a Loss
A piece on anticipatory grief. https://www.nytimes.com/2025/10/17/well/anticipatory-grief.html?unlocked_article_code=1.uU8.ctMJ.nGw1BRIf_CY5&smid=url-share
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How get a reputable medical alert bracelet
Do you need to have patient permission to get one ? My mom won’t do this for herself. Dad too. Mom has moderate Alzheimer’s and still drives. When I Google there are way too many choices. Obviously mom isn’t going to ask docktor and her doctor probably doesn’t care to mention to her. That’s why she needs a new doctor too
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Living with my grandmother as a 30 year, how do I make my own life?
Hello, I am 30 years old and live with and care for my 90-year-old grandmother full-time while working as a high school counselor. Long story short, my mom is a narcissist and comes up with 100 excuses on why she can't help me. She lives about an hour away and visits 1-2x a week and only takes her out to lunch, never…
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DW not urinating enough
Lately, my DW is down to one urination in the morning and that's it. I don't believe her fluid intake is any less than usual. I have always known her to have a pretty strong bladder (i.e. not needing to go very often) but this has me worried. I have antibiotics that I give her from time to time but I really don't think…
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🤯😠😩😤🤬 Lost it today 😢
oh boy! Never thought I'd not recognize myself but today after my rant and I mean all day rant I had no idea who I was! He crossed the line, broke my back, went beyond what I could handle. Not just today but building for days maybe weeks and I just lost it! Patience, understanding, etc etc. just done today! Yelling at me…
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Short Term Memory
Just a question…my DH short term memory is almost completely gone. He can do something or ask a question and within one minute have no memory of anything. Here's the question…He can still drive into town and run to the store with no issue. How can his memory be so bad but yet he can navigate into town driving in the car…
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Nurse daughter long distance to mom with moderate Alzheimer’s
Mom is 78 and lives with dad 4 hours away. Sisters in town but I’m supposed to help with the medical stuff. Problem is mom still drives ( I know) she has always been dads caretaker although he is only with slight memory loss and gets around but distant with diagnosis. Mom says she’s fine. We want to get her a neurologist…
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92 Year Old Grandmother (Dementia due to aging) & 63 Year Old Uncle (Frontotemporal Dementia)
My wife and I were recently appointed guardianship of her grandmother as her son whom has lived with her his entire life , he had epilepsy and had a right frontal lobotomy 20 years ago, she is suffering with extreme anosognosia of nothing being wrong with her (CHF,Fibroids, had 1 minor stroke and 2 heart attacks) and that…
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Couldn’t Find the Toilet
I’m thankful that I have had two nights of sleep and could cope with this. In the middle of the night it instantly reminded me of an old joke “he thought it was the WC but it was the cupboard” I didn’t hear my darling DH get up to go to the WC but I woke when I heard the tinkling and he was urinating into our puppy’s…
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New here.Very stressed and heartbroken
My mom was diagnosed over 3yrs ago but is declining more each day. I went to see her and she took all the family pictures off the walls and moved all her clothes I had to put them back on walls and rehang the clothes. She didn't remember my brother's name and was saying my little sister almost got hit by a car, she often…
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New Here
Hello. I am new here. I am assisting my father with taking care of my mother who is 87 years old. She’s having a lot of insomnia lately and stays awake all day and night for two days. She’s been prescribed medication but that doesn’t seem to help. Any suggestions?
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Zoom Meetings
If any of you want to join our zoom meetings, let me know.