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I feel myself withdrawing emotionally
I still love my husband but I feel myself withdrawing emotionally. We've been together 39 yrs but our relationship is very different now. I see my husband declining cognitively and physically. He is 76 but acts more like 86. I am 68 and i on a good day feel more like 48. I know this disease is a one way street, there is no…
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Alzheimer’s Poem
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Concerned about Mom's progression
Hi, First post. Not quite sure how to do this but I need advice. My mom was diagnosed with MCI in 2023. She is only in her mid 40s. She is progressing towards early onset unfortunately more rapidly than we hoped. She also just went through Breast cancer treatment late last year and into this spring. I got married end of…
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Soo mad
Please everyone pardon my rant here. I am so sick and tired of my family always questioning my actions and decisions on the care of my DW. Why are you doing this or that, do you think that’s best for you, don’t you think it is time for MC. The reason I love this site is that you all understand my life because you are…
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From the NYT: A Ministroke Can Have Major Consequences
This should be a gifted link. https://www.nytimes.com/2025/05/17/health/elderly-tia-stroke.html?unlocked_article_code=1.IE8.BO37.xssaUFKSfe6y&smid=url-share
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Short term memory and spouse
I am 56 and started having memory issues this year and seems more prevalent recently. I dont have a diagnosis yet and see the neurologist in Nov. A recent example is my wife and I went on a hot air balloon ride in Africa. 8 days later she told friends we took the balloon ride and I interrupted her and said no we didnt. I…
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mobility issues
My DW is only 58, but is in later stage of disease. Mobility has been a rapidly worsening issue. She was walking with my assistance but recently won't (can't?) walk or even stand—Seems like legs are frozen. Makes changing incontinence briefs very hard. I have checked thoroughly for injuries but haven't found anything. Has…
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How to get right in my head...
I struggle with my own emotions dealing with this. I am luckier than many. We are not as far down the road as some. DH can still do all his ADLS but is so emotionally needy. He is safe at home by himself but prefers I sit with him 24/7 and watch reruns of the same TV show we've watched so many times before. I know many of…
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New Member, First Post - Power of Attorney
I have three siblings and one lives fifteen minutes away from my mom. I live in another state but manage all her finances and anything else I can to take the load off our sibling who lives locally. When I agreed to be my mom's power of attorney, I naively thought it would only come into play for her finances. However, this…
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Johns Hopkins
https://www.hopkinsmedicine.org/news/newsroom/news-releases/2024/10/clinical-trial-shows-synthetic-cannabis-reduces-agitation-in-alzheimers-disease#:~:text=In%20a%20study%20led%20by,by%20an%20average%20of%2030%25.
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Mom is losing weight
Hello, some people say when they stop eating that's when the end is near. I don't know,I believe it's up to God. My mom will be 89 this year God willing. The best part of visiting my mom today was that I saw her with my sister. And we really bonded today. It was very nice today. God bless.
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Recent Diagnosis for my wife. Seeking local support groups. Seattle
I am 68, my wife is 72. We are in Seattle. She was recently diagnosed with mild cognitive impairment, though I would place her at the upper end of that diagnosis. I tried to call to get pre-screened for caregiver support group. After waiting a while, the line went dead, then dropped. This year, our son had a brain tumor, a…
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How long……
My memory care np told me today that she has seen stage 6 last for 10 years!!! Scary but even more scary as moving to mc and concerned about costs!! Have long had your LO stayed in this stage?
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I'm new to this group
My mom is 91 and has had Dementia for almost 5 yrs. She moved in with me 1 1/2 yrs ago. She fell 2 mos ago and didn't break any bones but was badly bruised, in pain and had to be in a wheelchair. From the ER she was admitted into a PT Rehab. That was awful because they were not for memory care patients and mom couldn't…
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Excessive Sleeping
Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…
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This Cruel, Cruel disease
Today I took my husband to Respite Care for 2 days. Just a few months ago I would have never thought I would do that but things have changed so much. My DH is not a husband anymore and I am truly just his caregiver. I needed the break. Never would I have thought it would come to this as he was the man I loved more than I…
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From NPR: A piece on "Caregiver Identity Theory"
An interesting read-
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Another Newbie
Hi, I'm 66 and new to the group. I was diagnosed with AD in Jan. 2025 (MCI stage). Taking Lequmbi infusions every 2 weeks. AD is really a shock to the system. Overwhelmed wth stress & planning for the future (when should I start memory care?).Living with a partner in Florida whose done the caretaker thing twce before and…
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Alzheimer’s research comments by RFKJr
RFK Jr says corruption at NIH is the SOLE REASON there isn’t a cure for Alzheimer’s: “For 20 years, because of utter corruption and fraud, we were directing Alzheimer’s research to one hypothesis, and any other hypothesis was shut down. We should have the cure for Alzheimer’s today. We don’t have it PURELY because of…
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Long term meds and medical screening
My husband is seven years into this dementia journey. He has zero short term memory and confabulations constantly about places we’ve never been, ads he sees on TV etc. He can’t find anything in the kitchen. He’s 73 years old and obese but pretty healthy. The doctor wants him to have a colonoscopy and to start cholesterol…
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Moved mom to AL on Monday and now (Wednesday) she's in a psych ward
I'm horrified and don't know what to do (or what's even possible.) Sorry this is long, I need someone somewhere to understand the history of this since no one has asked us before (or after) committing her. My mom started having memory issues around 2020 but wasn't officially diagnosed with AD until this past January.…
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Dental Decision
Does anyone have experience with a late to mid stage Alzheimer's patient with 1 tooth abscess and 3 pulp exposures. Oral surgeon wants to put my dad under general anesthesia and extract all teeth. What will a 2-3 hour surgery like that do to a person in this stage? will there be much recovery or do we just let nature take…
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Sun downing
So this just started for my husband. Pulled two all nighters over the weekend. Around 4pm each day he starts getting very agitated. If I can manage to stay disconnected until 7pm and then distract him with a movie he might settle down, but does not want to get into bed. He packs, paces, usually with boots on and often goes…
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Time to get a medic alert device
My DW with EOAD is now in stages 5/6. She can’t tell me her phone number or where ashe lives. Her vocabulary has dwindled to a couple of hundred words. She spends most of her day folding clothes over and over. She talks to her special friends all day. The other day I wanted to see what she would do if I were to fall and…
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Mom has auditory hallucinations need help
My 96 year old mom has alzheimers and recently has been having auditory hallucinations - she hears the same part of a song over and over ( i can't id the song). this started about 6 weeks ago for 1 day, then again a month later the 14 days later and then 4 days later. it really upsets her. she thinks its coming from a…
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PBA
My DW’s psychiatrist seems to think she has PBA (Pseudobulbar affect). Is anyone familiar with this diagnosis? There is a medication available to help with this but Medicare doesn’t cover the drug so it is out of pocket and expensive ($1600.00)
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Just an observation
So, 30 minutes after we called our son to tell him happy birthday DW forgot that we had talked to him , but she remembers to the penny how much we spent at the grocery store yesterday. I know I am not supposed to try and make sense of all of this but sometimes it just amazes me.
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Where do I start?
My 63 yr old father has just been diagnosed with Alzheimer’s. He has not been told yet. He is still driving, but recently got in an accident and also lapsed his insurance. Anyway I don’t know where to start with telling him and planning and preparing for the future. What makes it harder is he only has an iq of 74 and lacks…
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Anyone With Resentment?
I'm going to post this before I chicken out. I have been married to my husband for 42 years. Now he has Alzheimer's/vascular dementia. Even in good times he could be difficult to live with, very controlling. Now I am bitterly resentful because I have to take care of him. Has anyone experienced this. I feel guilty and…
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DPOA ignored at mental hospital
disregard. found answer.