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Grateful for returns to normalcy
My DW is showing signs of more deterioration. Getting her interested in a movie used to help, but now she has to repeatedly ask who the characters are related to, who the “good” guys and “bad” guys are, etc. Then she took a nap and we had two hours of normalcy. I am still smiling.
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One year to the day
Well, here we are. It's hard to believe that it's been exactly one year since my sister passed away due to "complications of clinically diagnosed Alzheimer's disease", as is stated on her death certificate. In some ways it still doesn't feel real, even though it very much is. I've been reflective today. The other two core…
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"Going home"
Hi - I'm new. I'm caring for my mom long distance. We had her at home with in-home care, but she just doesn't understand that she has any problems at all and wasn't cooperating with the help and just couldn't be left alone safely. So we moved her against her will into assisted living. She is essentially on the…
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Trying to do the right thing.
My mom is in memory care about 1.5 hours from me. Unfortunately because I have young kids, and do not live close, my visits are not as frequent as they should be. Next weekend I planned to bring the family to visit but now I’m not sure. My sister lives close to mom and visits often. She let me know today that the last few…
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Showering /refusing/thinking they have
I am a caregiver ,been one for 5 years. I have not ever came across anyone with this type of situation before. My client refuses to shower. She states that she already has taken one either morning or night but has not. Family has cameras up that proves she does not shower. I have used many tactics as to we can go to dinner…
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Could a moca test be wrong? Or I am in denial?
hi everyone I am new to the forum. This is my first post. I am a caregiver right now to my 86-year-old dad who has moderate dementia and I am struggling with processing and handling everything going on over the last few weeks. He was in the hospital then a rehab (foot infection) now back at home and the wheels have come…
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60 minutes interview
This was posted by a neighbor. Can you imagine being worried about retaliation for speaking about Alzheimer’s research?
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Ostomy management
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Looking for advice
Hi Everyone, this is my first post. My mother, age 75, has dementia. She and my dad live in their own home. My mom hasn't been feeling well for the last few weeks which led to a hospital trip this week for tests. All were negative except for a UTI which is her second one in the last few weeks. During this time I found out…
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feeling lost and depressed
Hello everyone, I feel like I need to vent a little bit. I can't talk to my family because I don't want them to be sad. They are feeling worried already. I'm feeling very depressed and wondering what I should do. I'm on antidepressants and meds to help me sleep because I've been having trouble with that lately. I'm feeling…
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Covid and he won’t stay away!
I came down with Covid 2 days ago. DH withVD has been ok so far. I am trying desperately to separate myself from him, asking him not to come into the bedroom to wear a mask but to no avail. I know he doesn’t understand/remember. It’s frustrating and I’m at my wits end. I want to rest, get better and not get him sick but he…
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video cameras to monitor hired in home care
For people who hire help in your home for respite care and such, what is your perspective and experiences with having cameras in the house to record / monitor what happens while you are gone? It has been recommended that I use cameras but I am concerned that it will interfere with the trust I hope to develop with the…
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Opinions please!
Hello, I am 50 years old and both of my parents have been diagnosed with Alzheimer’s within the last 3 years (both of them are 77 years old). I also found out that I have the e4 gene (only one instance though). With this info, my PCP wants me to go to a neurologist. Would you go at 50? What if they see some signs? Or is it…
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Speech Language Therapy
My husband was diagnosed with Mild Cognitive Impairment. He does well for himself, has no medications to manage, exercises, and sings in two choirs. He does have problems with word retrieval and sometimes needs time to process someone else's speech or express his own needs. We were referred to a speech language therapist.…
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Failed my first test
Since my husband’s diagnosis about a month ago, I have been super focused on not over reacting, arguing, correcting him if he’s wrong, etc. and have been doing really well. Yesterday out of the clear blue he told me he had made a decision. I asked what decision he had made. He told me that he decided he was going to go to…
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Struggling to regain control of my life
I've always been a strong positive woman with an internal locus of control...until blindsided by DH's dementia. These days my life runs me, time is not my own. I stay on top of all that needs to get done, take care of my husband but find there's no time or energy left for myself. We put everything in to caregiving and…
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Social worker coming .
Any comments on palliative care ?
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Does anyone forget how far there LO is
Sometimes I forget what stage he is in. I think I do alot of scaffolding without realizing it. Today I went back and looked at his test results. Not good. He has both VD and Ad. It was just a reality check.
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Lessons learned
Sometimes we act emotionally instead of rationally. My DH with VD and I both miss the RV trips we used to take so I decided we should continue to make a few more memories while we can. This trip was more for me to have some recent memories when he's gone than for him. Not my wisest idea. We stayed close to home and only…
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Medication Thoughts: Quetiapine, Risperidone, Lorazapam, ABH Gel
My wife is in Stage 7 Alzheimers per the FAST Scale and has changed her behavior in the past weeks including being more Anxious, Confused and Combative. This week she had what I would describe as a hallucination episode and was very anxious, upset and uncontrollable for about 30 minutes. She has severely restricted her…
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Dad with Early Dementia
My mum has alzheimers and late on now but with Dad im experiencing far more of the i dont live here or getting taxi home and not sleeping at all. He gets up in night with clothes on occasionally and i stop him going but now i am wondering if thats the right approach as there is no "other" place/home. Really exhausted with…
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What was I THINKING 🤔
yesterday we / I decided to join our daughter at the Casino in Laughlin for dinner and play a few slots. Dinner was great then we all headed for the slots😆we all thought my LO( loved one) was with the other ? After about a half hour we realized we lost him 🤦♀️after searching we found him sitting alone at a machine with no…
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Coconut oil?
Been doing some research on diet changes and the effects it has on Alzheimer’s. Has anyone ever heard about/or tried coconut oil to slow the Alzheimer’s process? I know omega 3s are important. Just trying to see if there is anything else I should be doing for my mom besides the standard drug treatment.
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Just need to talk to my friends (203)
It has been a beautiful day, sunny and 75. Meant to check on the daffodils but forgot. The ones I can see from the kitchen window look okay! QVC has started their gardening shows so Spring is near. They had the perennial Gerbera daisies again today. So pretty. I bought them two years ago and had one bloom and they didn't…
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Advice
My husband was diagnosed with early stage Alzheimer’s three weeks ago. His doctor has recommended the leqembi treatment. I’ve read all of the risks and comments on this site. My problem is, do I tell my husband the risks and scare him even more or do I make the decision for him, knowing that he would want to try even with…
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Loneliness, Fear & Sadness
New to this forum. My husband has ALZ and is no longer the kind, considerate, thoughtful, brilliant man he was. I'm feeling overwhelmed with grief, loneliness and functional depression. Although I get through each day and night, I do it without grace. I struggle each day to find my old personality — I was kind, and patient…
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It's not 'agitation' - It is RAGE AND AGRESSION
and it gets worse. I have watched my husband who was officially diagnosed with Alzheimer's near 3 years ago simply marinate in his misery. Nothing I have tried has served to help him. There were unresolved issues that were percolating before the more serious onset of the disease (forced retirement with no interests,…
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Revenge
I didn’t know that a person with dementia could be so revengeful. My husband is a hoarder and he has been collecting things from all over the house. It could be trash it could be trinkets or food etc. He puts them in the corner of the room where he sits. I have to clean up or it will get unreal. I sometimes throw things in…
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New to caring for a parent with ALZ (and to this forum)
Hi all. I am new to this board/ website. I just found it today and figured I would dive in. I am not sure I know what I'm doing writing here other than sharing my story and letting it out in a safe place. It's ok if I don't get any responses, I just need to let it out. My dad turns 80 next month and has ALZ. He was…
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Advice for Going Back to Work
I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and days that seemed like my mom just needed someone to be with her. I was averaging about 20 hours a week rather than my full 40…