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A Different Perspective Today
Almost nine months since I lost my DW to this nightmare disease. Deep in grief now and hard to see a way out of it. Day to day, it is all I can do for now. And then, as I was reflecting on my situation and that of so many others on this forum, a new view of my situation emerged. I hate being where I am without my DW. But,…
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Memory
My DH has had major short term memory loss. I have realized that it has been about 20 years he has lost. Recently he asked how my Mom was doing. She has passed 25 years ago in a car crash. He then asked if I talked to my sister “Teri”. My sister is Carol. Teri is his ex- wife’s sister. He hasn’t talked to her in maybe 40…
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How to we get Mom to leave for a nursing home (against her will!)?
I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. So many mentioned she could just be tricked- no it's just not possible and despite having a diagnosis of severe, she IS aware enough to know what is going on. drs have classified as severe…
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New here...
Only child caring for 90 YO Mom. Started with neuro last year, and he diagnosed dementia. Didn't really tell much info. She'd had several episodes of people spying on her, trying to break in, etc. We put up cameras, etc and that seemed to stop that kind of thing. That let us know there were things indicative of something…
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For those of us who feel guilty from time to time
This video has really helped me:
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Mother is seeing insects at night
I am new here. My mother was diagnosed 5 years ago and does fairly well considering. She has recently started hallucinating seeing insects flying on her ceiling at night, and even when she first wakes up. She says they disappear when I come in or she starts getting up. I mentioned it to her neuro after the first event, but…
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Centiloid Score
My SO had a brain scan last fall and I just found out the other day that the Centiloid Score was 147.5. I hadn't heard of this score before and the limited research I have done doesn't sound good. Anyone here familiar with this? TIA
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Shoe Recommendations Shuffling
My father recently began shuffling more when he walks which is making him more of a fall risk. I recently bought him a new pair of Sketchers slip in sneakers but with the shuffling he keeps catching the front of his foot when he walks and it is tripping him up. His SNF just recently introduced a walker to him, which he is…
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PWD easily startled
I find that a mid-stage PWD is easily startled recently. If I appear in their path if they are walking, a PWD is startled and surprised. A quick web search shows it's common as their vision and processing ability deteriorates. It's not clear what type of caregiver action can avoid this. One suggestion is to approach…
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From the NYT: The Pain of Caring for a Parent Who Abused You
Gifted link. C&P into your browser. https://www.nytimes.com/2026/06/15/magazine/elder-care-parent-abuse.html?unlocked_article_code=1.qVA.g6x3.dCf7rxwmWlbP&smid=url-share
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Wearing Depends
My 79 y/o brother has MS and Alzheimer's. He's experiencing urinary and bowel incontinence and refuses to wear Depends. He doesn't wear underwear because it slows down his ability to use the toilet. (He can barely stand and transfer from wheelchair to the commode, requiring a pole for support. Has anyone found a solution…
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Getting into bed
Long story short Doug now has a hospital bed so I ordered a twin bed and mattress so I could sleep beside him. I had taken my mattress upstairs to the game room to sleep in the meantime. The first two nights went fine. Then Monday night he got up around 11 to use the bathroom and I heard him fall in the bedroom. So I moved…
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Searching for Korean speaking caregivers in San Antonio
Are there PAS/Caregiver/Attendant in San Antonio who is fluent in Korean to assist my 82-year-old mother on an hourly basis at her home in San Antonio (78239). There are larger Korean communities in Dallas, Houston, and Austin that I am aware of, but moving there is not an option. My mother has progressive dementia and…
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New to the Discussion
Hello. My mother is in a memory care facility. She believes other residents are breaking into her room (picking her lock, or have a key) and stealing from her. This is not new. When she lived in her own apartment, she thought the maintenance man was coming in sabotaging things in her apartment. I set up a camera and saw…
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mom is getting agressive at the bank
Mom has had her $ taken away- but she can still view her accts. She goes to the bank several times a week to ask if her money is still there. The regional VP has gotten involved as they are both worried and alarmed at her behavior stating it is aggressive. Mom's dr looked into a 5150 but declined to do it (Cya I think!).…
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Worried About My Mom
The symptoms are certainly not new but especially over the past year they seem to be getting worse and worse. I'm getting to the point where I feel confident that I know what is happening to Mom and I don't really know what I can do. My mom and I have always had a really difficult relationship and I live across the country…
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Suggestions needed
If you have read my previous posts you know that my husband and I are caregivers for his father on the weekend and his sister is the caregiver the rest of the time. The last several weeks when we have gone to the store with him, when we get home he gets upset and thinks his wife (dead), daughter and or granddaughter has…
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Phantom smells
I’m 63 and have had phantom smells for almost 2 years. My primary care doc dismissed them 1+ years ago as Covid-related. Since then I’ve begun having memory problems, definitely a personality change (much crying/depression), and difficulty problem-solving. My mom had EO and my dad some form of dementia. I had a PET scan…
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Vascular and alz.
My DH has periods of being so close to normal at times except for some short term stuff. Its weird but it worries me more when he is in this stage because usually when he changes it's usually worse than when he started in the normal period. I don't know if that makes sense to anyone or if anyone has has noticed this.
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is it time for hospice
My DH has VD and Alz. .he just got out of the hospital from a 4 day stay. he had a heart attack and a gi bleed. He refuses all surgeries. There are are blockages from carotids to his femoral arteries, including a abdominal anyarisum that has been worked on once. he has such a long hx cant even go into it. My question is it…
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Attitude shift with son
Good morning, My 89 y.o. mother-in-law has lived with us since March. She had a health event in December that seemed to trigger a sharp decline in her dementia and she lived with her daughter for a few months after that while we bought a house that could accommodate her. Some days she's argumentative, others she's…
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How to Find In-Home Support
I'm at the point where I need to hire some in-home help for my DH, probably 1 or 2 days per week. I found several possible candidates through care.com and some other sites, but wondered how others went down this path. How did you conduct interviews and get started? I'm sure that DH will be resistant at first and I have no…
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Undiagnosed Gram - In need of 24hr care & I need to get back to my life
I love my gram more than anything!! However, I’m facing a difficult situation where she can no longer be left alone but I also need to get back to my life which is 1hr away. I have a business I run with my husband, two teens, and two huskies. I cannot be gone long. I live 1hr away as does my father. He will have POA once…
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How to convince a loved one to move into an assisted living facility
hello. I am a caregiver for my father. He currently lives alone. I live very close to him. His Alzheimer’s has progressed and I’m concerned about him living alone. I’ve had some things in place the last few years that have allowed him to remain home but his behaviors, especially late in the day, are concerning me. The…
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How did you know it was time for memory care from assisted living?
My mom moved into assisted living this past January. She has progressively declined since then but loves her new apartment and seems cheerful and happy when we visit and talk (which is multiple times a week between my sisters and myself). However, she has lost the cognitive skill to engage with the activities. She…
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Aricept Medication
My mom with Alzheimer's was prescribed Aricept 5mg. She was doing fine on that. She is progressing more as expected, so nuero upped it to 10 mg. She said to look out for side effects like stomach issues and dizziness. She hasn't had any of those. What I did notice was it seems she has progressed even more in a short time.…
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Starting LEQEMBI next week need some advice
Just was diagnosd 4 weeks ago and start my Leqembi next weeek ….I hate needles and I would like some information on what to expect…Thank you so much.. I have had 2 TIA's and am a little worried about this whole Leqembi thing. Is the first time really bad or is it doable? thank you so much for this web site I had no idea…
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Alarmed!
This just happened! In referring to my husband, my mom said, "The man who ate dinner with us," was the one who gave her the 2 boxes of pictures. I said, "Who, my husband (——)?" She laughed and said, "Yes, I couldn't remember his name." Omg! I've been married for 35 years and have known my hubby for 38 years. HE is the one…
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Seeing my mom out smiling with my sister
I am so greatful my sister can come when she can!! She just sent myself and my dad a picture of the two of the smiling at quabbin Reservoir where my mom loves. I got so emotional seeing this picture and I am crying!! I feel guilty for not being there yet relieved my sister is and I am not at the same time. Help! How do I…
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Visual cues for Memory Loss
Has anyone had experience with their PWD recalling a lost memory with their own hand writing ? I was thinking of having my Dad write things down while he still has the ability to. Things like instructions of his requests. How he wants his money spent…his living situation…etc. My hope is if I incorporate using it now, and…