-
Terrified
Hello everyone, I'm new to the group. I've read your stories and am relieved to know I'm not alone in my feelings. So, here's my story… I was officially diagnosed last year at age 54. Hearing the words early onset Alzheimer's shook me to my core! My mom had dementia so I knew/know all too well what may come. Have you ever…
-
Problem when we walk or bike
I feel like I’m being really whiny lately (and maybe “wine-y also 😉) but I have another question to pose to this group of creative thinkers. This has happened a few times now and I am not handling it correctly. We’ll be walking or biking and he wants to go a certain way. Ok, we go that way. But as we get farther away from…
-
But what if it's something that could be treated?
My mother has always been afraid of ALZ because as her own mother aged, as soon as she became moody and forgetful, her sisters insisted this was ALZ and sent her to live in a gross, smelly facility (my mother's words, but not untrue). Now as she is in her mid-80s, my mother is showing signs of memory loss and potentially…
-
Waiting
Hi friends. My bf (45yo eoa) had his neurologist video visit this last week. I also had the conversation of MC admittance via hospice to a facility with his pcp. Pcp said he put the referral in and should have heard by end of last week beginning of this week. His neurologist said he is in stage 7b. My heart aches. I know…
-
I'm sorry for the download. I thought I was typing in another place... sorry. If I don't belong here
→ Shaun has joined S Shaun 16:46:51 first time here But I need help S Shaun 16:48:27 My step-father has dementia, Alzheimer's. S Shaun 16:49:58 we have him in a memory care unit nearby but its REALLY complicated. Not him being there. It's the urge to get him out S Shaun 16:52:29 ok going to stop with trying to make this…
-
New To Forum. Mom has UTI that has progressed dementia symptoms
Hi all. I'm 34 & I've been my mom's primary caregiver since I was 22. For the past decade, she's had some memory problems (misplacing things, forgetting what day it is, forgetting how to navigate some driving routes, forgetting there's a boiling pan on the stove). Yet this was always managable with my help until recently.…
-
funny
DH has started Kisunla. I told him we were going to leave soon for his infusion. He asked why we were going as he had enough confusion and didn’t need more.
-
For profit memory care
Virtually all the MC facilities in Tucson are run by big nationwide (for the most part) companies. All of them no doubt are responsible for generating income for their investors, who expect returns of 8-10%, All of them have issues related to the need to cut costs so investors may profit. Today I heard of a local entity…
-
Caregiver
I started caring for my ex-husband who was diagnosed with Alzheimer’s last August. We have been friends since we got divorced over 30 years ago. I sold my condo that I lived in for 23 years and sold his home and we have a mutual home now. I knew that this was not going to be easy, but I really didn’t know how difficult it…
-
The weight of the world on my shoulders
Hi - I'm new to this forum. Warning - this is going to be a lengthy post as I just need to let some of this out** Thank you for being kind. I finally sat down and joined because I am at a breaking point with being a caregiver to my mother, a mother of two teen girls, a wife and the primary (and only) income earner in my…
-
CBD and Irregular Sleep Patterns
Good Morning from sunny SoCal. Over the last couple of months my husbands has been getting up two or three times a night to "go to work" - which is actually sitting at the kitchen table with his newspapers and other misc stuff. I've tried melatonin and really didn't get any good results. Has anyone tried using CBD or THC…
-
recognizing and treating UTIs
My DW is late stage 5, early stage 6. She is still able to toilet by herself, but her hygiene is deteriorating. I am doing my best to help her stay clean and dry, but success is limited due to lack of cooperation. From what I have read, I should expect UTIs to become increasingly common. How will I recognize when she has…
-
My wife of 50 years diagnosed with dementia
Hello , my name is Neal and I'm reaching out because I'm so emotionally upset and tired . My wife was diagnosed last nov. In the first few months she was doing everything to be pro active .. Mostly what the neurologist suggested. As of now she has a lot of anxiety and is not eating and drinking right. I do have support…
-
Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
-
Pictures from Michael Ellenbogen's Trip to Africa
Attached are amazing pictures from Michael Ellenbogen's trip to southern Africa. Some of you know Michael from his time on this message board. For those who don't, Michael has dementia and has been a global advocate for people with dementia for many years. Enjoy the photographs.
-
Seizure
My DW (EOAD) had a seizure this morning while we were having breakfast. I had never witnessed a seizure before and it was very scary. Luckily I was with my MIL and she was able to call 911. She had a large contusion and we had a CT which found no bleeding in the brain. She is home now. My question is does having a seizure…
-
no meds
My DW was diagnosed with dementia of the altzheimer type frontal lobe complicated by depression. The main concern that I have is I do not know how to help her take her meds. When I offer she either becomrs very agitated with the final statement that she is stupid or says she will. She was given 24 amocycilin by a dentist a…
-
Words I never thought I would say
We've all said things to our partner with dementia that we wish we could take back — angry, frustrated, sad, words that they can't begin to understand the reason for. Fortunately they forget quickly. Lately I've said something to friends and family that I never expected to. I'm ready for my husband to die. DH has been home…
-
New to group - brother closing in on his dx
It’s been a tough few weeks as I’ve watch my 64 yr old brother (I’m 62) get the dx work up for Alzheimer’s. He had a neuro consult today to review blood and he’s definitely starting treatment for Alzheimer’s asap. He’s like a twin to me and I’ve just felt so sad all day. I haven’t had this sense of grief since our dad…
-
Vascular dementia
My husband has had several strokes and has VD. He was diagnosed a few yrs ago. I read many of the alz posts and I understand dementia shares many common behaviors and the ultimate end is the same but instead of memory issues, my husband presents more executive function issues. Difficulty problem solving, multi step…
-
Never been so exhausted
I am new to this forum. My mom has alz and vascular. I have been taking care of her since she was diagnosed 4 years ago. My husband retired early so he could help me(last September) Over the past 1 1/2 years she has gotten progressively worse. I had no idea how much harder that it was going to be as time went on. I sleep…
-
What to do in an emergency??
it’s me again haha. I play a game with my wife that I’m feeling ill and become unconscious I ask her what do yo do , by the time she even says I don’t know I could be gone. My question is what to do ? Has trouble using phone or remembering numbers or even where those numbers are , even 911 is an issue. She’s very bad with…
-
When Does Long-Distance Caregiving Stop Working?
-
Does It Matter?
My mom has been living at a Memory Care Facility for a little over a year (but has had dementia for approximately 8 years) and while she still knows people that have been in her life for a long time, she essentially has no short term memory and is "stuck" where she was about 8 years ago (living in the same house, my dad…
-
VENT - Pooping Confusion
DH has been in disposable briefs for quite a while. I watch him like a hawk when he is my eye sight to get him to the bathroom. And he has gotten much better at telling me when he feels the need to go. This morning DH let me know that he needed to go to the bathroom. I got him successfully to the toilet. He later told me…
-
@harshedbuzz
I believe it was you who posted a link to a great article about preventing falls. I have been searching for that discussion but I can't find it. Can you point me in the right direction? Iris
-
Not sure
hello everyone. I’m new here. I thought I would try this site before giving up. I joined another site a few years ago when my husband, the love of my life first showed signs of cognitive decline. There was so much negativity on what will happen and people were very harsh. I just wanted support. I got very depressed and…
-
Refuses to brush teeth
Over time it’s gotten more and more difficult to get DH to brush. I first resigned to once a day, moved it from bedtime to morning when his mood was better, put the paste on both our brushes and hand him the brush. He knows what to do but now just gets mad and throws the brush in the sink because he “hates doing that and…
-
BIBLE VERSES TO INSPIRE CAREGIVERS 4/4/25
THANKFUL, INSPIRED & WILLING Ephesians 2:10 Good News Translation “For it is by God's grace that you have been saved through faith. It is not the result of your own efforts but God's gift, so that no one can boast about it. God has made us what we are, and in our union with Christ Jesus he has created us for a life of good…
-
Looking for a group of active early onset people in Seattle/Issaquah area
Hello, I am hoping to find other people in my community with early onset that are still active. My husband is a very active 62 YO with FTD who desperately wants to be out in the community helping and socializing to try and preserve, as best he can, his speech and communication skills. He hates being alone and I work…