-
Unable to change soiled clothing
** update** Thanks for the advice and words of encouragement. For some reason DH decided to change his clothing. He could not do it on his own. He let me help. Smelly clothing is now pre-soaking in washer. * * * * * * * * * * * * My DH with vascular dementia and Alzhiemer's hadn't showered or bathed for a few years.…
-
Determining "Stages"
Caring for my DH will be made easier if I can determine where he is in his progression. I noticed that many of the posts mention "Stage 3" or "Stage 6". I am not familiar with this staging technique. On the Alzheimer Assoc website there are three stages mentioned. Can someone help me understand the difference? Thanks for a…
-
Psychiatric Drugs for Alzheimer's patients
My parent has stage 4 Alzheimer's. My parent is in her mid 70s and is not happy with being at memory care which she arrived at 6 months ago. She just isn't adjusting well, won't engage in activities, stays in her room a lot, talks about leaving all the time, is depressed to be at memory care and is anxious. In the past few…
-
Issues editing comments
@ALZCModerator6 Anyone else having issues editing comments they’ve posted? I select edit on my comment. The box comes up. However when I start to type my edit, the box disappears. My user name on my comment changes to ‘member’ and my verbiage is gone. If I cancel out of the edit, my original comment is still just as it…
-
Bowel incontinence
My DH is stage 6. Up until recently he was bowel incontinent occasionally, maybe once or twice a week. Now it’s all the time. He’s always gone to the bathroom a couple if times a day, now I’m having to change him, clean him, 2-3 times a day. I guess he no longer has any control over it. I do have caregivers during the week…
-
Sleepiness
Hi - I’m new here. My mom is the primary caregiver of my dad diagnosed this past year with stage 4 Alzheimer’s. My mom is very unaccepting of the diagnosis and keeps hoping for a cure or that any medication he takes will improve his memory. One of the main issues is my dad’s sleepiness. Is this common? He wakes up in the…
-
DW realized her memory loss
My DW had the realization that she has a memory problem. Her two children confirmed it to her. Whether she accepts it or not remains to be seen. She has always called me a liar when I told her that she has become forgetful.
-
Getting a Diagnosis
Hi All, I'm new here. Over the past several months my mom has been experiencing severe paranoia and delusions. She thinks the house is bugged, the neighbors broke in to steal her house phone, the FBI is coming to get her, etc. Some of her stories have gotten incredibly dark and concerning, including texting family at late…
-
The Pain of Putting Parents in Nursing home
I feel so much pain and sorrow putting my parents into a nursing home. They both have dementia and seem to be spiraling further down since I put them in the nursing home just weeks ago. Both of them seem to not like their situation. It just hurts so much to have them suffer and it causes me great pain and grief.
-
Update on Memory Care transition
My DH has been in MC now for 34 days. He continues to have delusions about his safety and mine, but I have found that he starts down that path if I am with him too long and there are no outside activities going on. So for now what is working is coming for scheduled walks and bus rides on Tues. and Thursday, and taking him…
-
How to treat impending trauma?
Alzheimer's seems to take the whole family down. What are the ways to avoid that? I've been watching self-help videos about treating trauma. The videos I've come across address past trauma and how it impacts your physical and mental well-being. But what about those of us who are walking towards trauma? We're in the midst…
-
Why do they have to be so angry?
My husband has had alzy for 4 years. He is so verbally abusive to me. Like telling me I'm fat, I'm not good enough. He loves to see me get mad when he says these things. I use to talk back, however that doesn't work. So now I don't respond. Is this normal?
-
Hello!
My dad was diagnosed with late on-set Alzheimer's dementia type with depression in October of 2024. Although I have suspected for 4 years before his diagnosis. I have been living with him for 15 years, so I noticed the changes in his memory and how his brain worked as it was happening. I also have a daughter with her own…
-
Re: Grandson Wants to Watch his grandmother
Hello, I have a question: My nephew (a police detective) his wife and children want to have lunch with their grandmother, and he seems to want me to leave. They say it's so I can take a break. They've never watched her alone before and have two young children, 3 and 8 years old. I've been my mother's caregiver for nearly…
-
new skills
Today, I learned a new technique to get DW to change into clean clothes without a conflict. It feels good to be successful and to have learned something new and useful. The awful part of this is that whatever I learned that will work today,probably won't work tomorrow. It feels like the reward for success is decline and…
-
Contact Alzheimer's hotline
-
Medicaid approval mess
Mom was moved to a snf a few weeks ago. Her money is gone (or almost) and there was no way for her to pay for AL. I have spent the last few weeks getting everything they ask for. I have kept very carful track of money and receipts. They told me yesterday she was approved. I was so excited! I have been stressed about this…
-
From The Philadelphia Inquirer: Being Mom's Caregiver is Hard...
https://www.msn.com/en-us/health/other/being-mom-s-caregiver-is-hard-caring-for-her-together-with-siblings-is-harder/ar-AA1EPtI1?ocid=msedgntp&pc=LCTS&cvid=68a1f1ab60494c6fac7692f4bcf5c1e7&ei=25 Surviving caregiving in a sibling group. HB
-
Medication depression or anxiety
has your doctor prescribed medication for anxiety that is worth the side effects- I have been experiencing really bad anxiety particularly when it comes to bedtime was wondering if others have similar experiences and any solutions
-
Went to memory clinic for my dad's mental health, not a positive outcome.
Hi, looking for any information, that may help my parents financially? Not sure where to start? For the past almost 8 years, our family has been struggling to keep up with my dad's mental condition. I would say out of the 8 years, the last 4 years has been really stressful. Recently went to a memory clinic, my dad scored…
-
Unbelievable rage
Last night we argued about sleeping in his jeans I asked him wouldn't you be more comfortable if he took them off Hours later he raged downstairs and told me to get out of the house He said he was going to call the police I had to leave for my safety slept in a hotel But let down my guard and went home Now I wish I just…
-
Anosognosia, alcohol and dementia
DH has AL and small vessel disease. I was thinking that he was living in denial but I'm pretty sure that is is anosognosia. Having said that and my pointing out to him that alcohol will destroy more brain cells, he still has a glass of wine every night, sometimes two and a margarita if we go out. He is borderline dementia.…
-
GLP-1's in Demetia Patients
Hello Everyone, Itws been quite a while since I"ve posted and been around. I have some things I'd like some advice on from our community. My Dad started this journey about 2 years ago and it has only become more complex and complicated. He has a myriad of health issues so I wont get into all of them, but with his Demetia…
-
Showering
DH is late stage 5 and into 6. Limited vision and quite unsteady. We have a shower with a built in bench, but to get into the shower he has to step over the border that goes around the floor. I am considering a remodel, but am interested in tips and practical suggestions on getting the shower done overall. Do you both get…
-
Mom lives in Independent Living Fac, needs to move to AL, hard 'No!'
I am new to this forum. I have found many discussions relevant to my situation. I received a lot of good information from these discussions, but I figured I'd post my question on the off chance some more information may come to light. I currently care for my Mother with the help of my wife. My mom moved from out of state…
-
Frozen in time for a minute
I would appreciate any insight into this issue. My DH and I returned from a night flight Portland Oregon to Philadelphia, PA after seeing family for a week. Two days later he awoke around 7am as usual talking about going for a bike ride. Suddenly his body seemed to freeze, arms in mid-air for about a minute. He was staring…
-
ugh I am just so sad
I hope that everyone on this platform is surviving this nightmare. I have been taking care of my sweet husband for 5 years or so. This past week, he ended up in the ER for a bowel obstruction, which is not the first one he has experienced, so I was aware of the signs before it got out of hand. While he was in the hospital,…
-
I am forgetting, too
I usually am very organized, but with the stress of a DH with dementia, I am forgetting appts, lose things, and run around and getting nothing done. I know it is because of the caretaking, and am the ONLY caretaker because family has turned away from us because they just don't want to deal with this private hell
-
Phantom Pain
I was just wondering if your loved ones with dementia experience phantom pains. My DH has been complaining of his thigh hurting for a few weeks. No visible signs of anything. I thought maybe a pulled muscle but after a few weeks it did not go away. He doesn't do anything physical activity except walk and that is only one…
-
To My Fellow Warriors
This journey is the worst, yet we all get up, stiffen our spines and get back at taking good care of our LOs. We get irritable, cry, depressed, exhausted, and we still get up and take good care of our LOs. We put our needs second to make sure our LOs are safe and comfortable and get up the next day and do it again.…