-
Social security disability claim denied
UPDATE 2/20/25: the local office was closed because of a snow storm (no more working from home I guess) so we called the national line and waited on hold for 2 hours (yes that’s right, can’t wait to see if AI decreases wait times in the future) just to find out that the person on the phone didn’t seem to be able to find…
-
APHASIA the sadness of not being able to communicate
My DH is stage 5 or 6 dementia with very advanced APHASIA. Within himself and between us we are very happy but it’s so sad we often only communicate by touch, smiles and often single words. He was always a great talker and during the night or early morning he will have a great conversation with me and I often can’t…
-
Info on types of accounts, roles to have help managing finances
No formatter is installed for the format not-found
-
New to group any advice
don’t know if I’m even at the place I need to be🤷♀️. My husband was told 8 months ago he had Alzheimer’s. He refuses to talk about it or tell anyone. Actually he’s in denial and says he just missed a couple questions. Spend most of his day away from me,,, he can’t relax never could,, and it’s like he gonna show people…
-
Compassionate Allowances Act (faster payment for SSDI)
I’ve noticed some people believe they have to wait the two year period to received SSDI for Alzheimer’s. This is not true. If you are denied, please contact social security and make sure you are being reviewed under compassionate allowances. Read below. Thankfully, since 2010 Social Security has helped by adding…
-
My 93 Year Old Mom With Late Stage Dementia Broke Her Hip Yesterday
My 93 year old mom is in late stage dementia and broke her hip yesterday. She’s lived with me for 6 years and this is the first major issue that requires a hospital stay and potential surgery. I’m waiting to speak with the orthopedic doctor and get his recommendations on treatment. I feel so guilty about what has happened.…
-
Mom broke her hip two days ago
This past Sunday, I got a call from my Mom's Memory care. She had fallen and they thought her hip was broken. She was sent ambulance to the nearest trauma center and it was determined she did indeed break her hip (femoral head). They did surgery the same day and replaced the femoral head. My Mom was fully ambulatory, and…
-
Time for Part-Time In-Home Help?
My DH is stage 5 and digressing. I am looking for part-time in home help. I have Osteoarthritis in left knee and my stamina is not what it used to be. How do you determine when is the proper time and how much time? Does the in home help clean house, etc? I'm in the information gathering stage but realize it will be in the…
-
Virtual talk on -Secrets to Brain Vitality-
No formatter is installed for the format not-found
-
What really happens to someone who has no family and alone with Alzheimer’s???
-
Eating and eating and eating
I know this topic can’t only be something that I’m dealing with. Some background here my fiancé and myself moved in with his grandfather a year ago whose health had deteriorated tremendously in the previous year. I thought we would be temporary until he got back on track. Well I decided to remove my blinders about 2 months…
-
Not understanding
I do not understand what to think. Last summer DW had hallucinations, didn’t know me or our house, had sundowners real bad. She did know her kids and grand children We started her on mementine and donepezal along with quietinine. Now she is back to normal with some changes to her personality and lost many memories from the…
-
Please get rid of all the spam messages on this site
-
h
-
The Finale?
So my mom has stopped eating and drinking much of anything. Been hospitalized twice within 2 months, now diagnosed with CHF. It’s been 2 weeks since the last hospitalization and she is not bouncing back. Unfortunately I had a trip to Costa Rica planned for several months now and no cancellation policy. Well of course she…
-
Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
-
This is TBE checking in from Stage 8
It's been a long time since I have posted on here. It's 15 months since dw passed, but never forgotten. Today I walked by a craft section and she was there, grief, just not as bad. So I would like to recap for some who may not have ever read any of my posts. Dw had alzthiemers for 15 yrs the first 9 were not very bad. For…
-
Financial crisis in the making
My dh was diagnosed with early onset Alzheimer’s in May 2024. He is 52. He was a partner in a law firm. He made a lot of money….then. Due to his disease, he had to leave work and now he has nothing to do but spend money. He gets daily deliveries of things that he doesn’t use. Sometimes , he doesn’t even open the packages.…
-
Poem - When I am older...
I read this poem today and it touched me. I know my husband Lonny knew he loved me and that I loved him until the end. The last sentence he said to me before he passed in August was "I love you too Babe"… When I am older I might not remember I might get confused And I might lose my temper And there may be times When I…
-
My father doesn't think he has a problem
My father has been dealing with sun downers about 5 years and now he is on the onset of ALZ . He doesn't think he has a problem at all . My parents have taken in my brothers kids due to my brother lost them because of drinking and drugs . But he has been so irratbel and he is being so mean and it doesn't seem he cares if…
-
Moving parents from home to IL/AL
Both parents have ALZ diagnosis and currently live independently with support from a 2x/week care giver and daily support from sibling living nearby. Their needs are increasing and we want to move them to an IL w/cont home health aide support. The place has AL (currently no openings) but no MC. The mom is very resistant to…
-
DH Died Last Night
My beloved husband died last night. Roger was a kind, gentle soul and was well loved by the facility staff, residents, and our hospice team. His hospice nurse and I thought he had a few more days, but his progression accelerated very quickly, and he was gone within an hour. I was there, holding his hand and talking to him,…
-
Moving to Memory Care
I have been agonizing over how I will move my wife of 65 years to memory care. I know it will come unless I die first. Friends of ours live in an assisted living apartment. She needs assistance with many things but he does not. This is expensive but they are still together. I've been thinking this could be a solution for…
-
Dementia or UTi
Hi I live with my mom and have an aide that helps me out so I can go to work. For a while now my mom would talk to any of her friends or family. The only problem was she was repeating the same conversations or stories. We just dealt with it! It is what it is! Until recently now she sees my dead father, she becomes easily…
-
Can anyone recommend a simple Digital Picture Frame without WiFi?
Hi All, My mother who has stage 4 Alzheimer's which is progressing quickly loves to reminisce over pictures. We thought having a digital picture frame full of pictures in her room would be very welcome by her. It would have to be incredibly simple. Turn it on and turn it off; even an auto off function would be welcome. No…
-
Planning for Future Young moderate Early Onset Alzheimer
My DH was diagnosed with young moderate early onset Alzheimer's at the age of 57. He lost his job one year ago. He was also diagnosed with LADA Type 1 Diabetes at age 55. Needless to say, it has been devasting. We have been fortunate to finally secure Social Security Disability. We are now planning for the future. I am…
-
DH in nursing facility
I haven't posted for awhile. A lot has happened. My DH is in a nursing facility due to falls at home. After being in the hospital for two days I received a call from his Dr stating he needed 24/7 care which I was unable to do. The decision was made for me that he needed to go to a nursing facility. He has been there 2…
-
Homeopathic Care for Dementia
Good morning all Just discussing with a coworker and he mentioned having a pretty life-altering appointment with a homeopathic practitioner for an ailment and suggested maybe reaching out for help regarding my father and dementia. Maybe something diet related, or supplement wise could help with the day to day struggles. I…
-
hijacked by spam
It is really so sad when someone wants to hijack a forum where we are actually helping each other. For what? attention? scamming? both… I try to flag most of them when I see them, but it is really just disheartening. For anyone who is not familiar with it, please do not click on links or make phone calls to anything that…
-
Need advice on companion care
My DW is 60. She was diagnosed with EO ALZ several years back confirmed with a PET scan. She is deep in stage 5. I work from home. I would like to hiring some companion care so I can go into the office a couple days a week and get some time away. I need to prepare for a future in which I am not doing this alone. However,…