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leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
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Caregiving Song
When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…
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Goodbye
My cancer has progressed to stage 4. I have stopped treatment. As this forum told me, I can’t care for my DW with the side effects of chemo. I’ve entered hospice. After an aborted attempt to move into an assisted living facility locally, I found an opening in memory care facility near where her daughter lives. I told my DW…
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Fear-based refusal to walk
A little background… My mom has advanced ALZ. On Jan 23 she and my dad moved from their home of 45 years to an independent living apartment in a senior community building. She had always been very resistant to this move, but seemed to initially be rolling with it much better than we'd anticipated. However, her personal…
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Managing incontinence
Hello all- does anyone have advice on ideas for getting urine odor out of bedding and clothing. My dad is incontinent of urine mostly and despite washing everything daily there always seems to be a lingering ammonia odor. Any advice of what can be used besides regular detergent to help!!??
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Family Dynamics while caring for Alzheimer’s
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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How common is elopement?
my parent escaped from her new memory care on the third day. She doesn't look like a memory care resident (too young) so she snuck out the door with a visitor who didn't realize she is a new resident. She also escaped from her old memory care but this was more aggressive exit seeking and going out the emergency exits. I'm…
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Dealing with Alzheimer’s and family dynamics
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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communication
LEAP is a particular method of communication where listening and collaboration are prioritized that has been utilized both in mental health and non-mental health diplomatic discussions. The purpose of LEAP is not to establish facts or to talk someone out of what they believe. Rather, it is to listen at a deep level and to…
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Adult Daycare Adjustment
I’ve been reading the post for a while but, this is my first time posting myself. My DW of 48 years has been diagnosed with dementia for several years now. She is moderate level, probably stage 5 some 6 on the AD scale. I can no longer leave her alone and have been trying to get her to go to Adult Daycare for a few days a…
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Moving my mom to a new memory care tomorrow
so I'm on the process of moving my mom to a new memory care in a different state so she can be by me, her daughter and POA. This whole process is throwing me for a loop. She complained non stop about her old memory care and was highly un engaged and isolated. She talked frequently about moving out to be by me. So the day…
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Is this normal for Alzheimer's
my parent has major delusions and hallucinations. It started out mild back in maybe October and now is rampant. She now literally has imaginary people in her life and tells us all about these few people and has full conversations with them and also has conversations in the air with real people who are not present. one of…
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Is behavior issues already starting
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My first post.
I hope I'm doing this correctly, I'm not very tech savvy. We live in Washington state. My DH was diagnosed with MCI a year ago. But before that, we went and did a research study on alzheimers. He tested positive for the p-tau protein but chose not to participate in the study. His mother died from alzheimers and we've…
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FB Cure Scams
Just need to hear how you have handled your loved ones when he/she comes to you touting this new "cure" that Bill Gates, or Elon Musk, or Phil Donahue, or some other celebrity has discovered. My sister is constantly coming to tell us if this cures and wants to buy the honey or gummy that gets rid of Alzheimers. These fake…
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Is your LO on O2? Have you changed providers?
Bless this community, having a hard time today. 2 questions: Does anyone have experience with an Inogen-like portable concentrator that's continuous flow? What about liquid ogygen? Or another otion besides the clunky green tanks? He's on 4 liters and is in a care home, but not 24 hour nuring care. And, I HATE Preferred…
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wanting to go home/validation
https://www.facebook.com/reel/1172167977204030
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Physical Violence
And today I found out my mom is actually getting physically violent with my father when he presses her on something. I'm back at my parents for the week. I thought it was just screaming when he suggests getting help in but actual hitting as well? The worst part of all of this is that most of the time she is acting fine and…
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Two Months
I posted this on the regular caregiver thread by accident. I'm so used to going to that particular part of this board. Anyway. Here it is. I just needed to get it out. Two months ago on this day, my DW passed away peacefully at home. I am sitting on a plane, flying to New York City to see an opera with a friend. A respite…
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3 weeks tomorrow since husband passed
The quiet , the lack of activity. I had no time to think before he passed away. Now my mind is flooded with thoughts. Taking care of an alzheimer spouse is so hard and the abrupt end is really something else to deal with. My life was consumed for 10 years. Once never thought what the end would actually be
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Anyone have advice about power outage?? and Life in General?? My first post.
Today our home lost power for no apparent reason.. Maybe car hit a pole.. maybe lightning? I don't know.. but my parents, mostly my mom with Alz COULD NOT understand that I couldn't call someone and just have it fixed. It was out for about an hour and the complete off the chain conversation had me completely dumbfounded?!?…
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Adult family/group homes
I never seriously considered adult family homes as a care option but I recently spoke with a care provider specializing in dementia that adult family homes can be a good option for some people. Thoughts?
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New member. Caring for DH
My DH is somewhere between early and middle stage. He was diagnosed in 2022, at age 71, 13 months after my mother died of Alzheimer’s (she stopped taking nourishment) at the age of 93. That was a nightmare because it was Covid with my mom and no paid caregivers were available when she started needing 24 h caregiving so it…
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Wishing you all a peaceful Easter
Our lives are not what we expected them to be but i wish you some peaceful moments today and the ability to find/make some positive memories with your LO's while they are still with us, regardless of how different they are now. Sending hugs and prayers of support to all of you.
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Need Advice
Hello, My dad is being discharged from a hospital soon after treatment for a blood clot and heart failure. We aren't sure what is primary right now, the heart disease or the memory loss, but he's very immobile so we're afraid he'll get a clot again. He lives with my mother and my disabled sister (my mom has her hands very…
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How to answer “I want to go home”
saw this and thought it was helpful: https://www.facebook.com/share/v/1E8hMkJNtW/?mibextid=wwXIfr
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GRIEF
Often I write to help myself cope with my grief. A friend shared his feelings regarding the word "gone". He states that it is a word he dislikes and refuses to use in any way, especially to describe our loved one, as in "sorry he/she is gone". I agree with his feelings and hearing it stated openly triggered some thoughts I…
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Brain swelling (edema) on Kisunla
I'm hoping that others who have had brain swelling as a side effect of Kisunla can give me some ideas and some hope. I've had a really easy time with Kisunla (Donanemab) since I started in August, and all of my MRIs were perfect. There was break in MRIs from month 5 to month 7, but when I had my MRI last week in…
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Coping with delusions toward caregiver
My mother is entering the stage where she has fixations and delusions. One day she feels strongly the cats are trying to warn her of some imminent danger. The next day she is certain she’s pregnant and upset nobody will bring her to the hospital. This all ramped up in the last few months and it’s been a challenge. We’ve…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…