-
Daughter to Mother with Dementia, just moved from the Lebanon to Los Angeles
My mother, almost 79, was diagnosed in November 2020. We've had to move out of our home of 20+ years in order to make a new life here. The move has been really hard on both of us, especially her. My dad had to stay behind until he can get his visa to move in with us. Her body is suddenly failing to do simple things, she…
-
My mom is declining
Hi everyone. My mom is declining now and I am so afraid. I knew eventually this decline would come but I am still struggling so bad with it. She is still awake and eats some. But she is not drinking much, if anything, at all. She doesn't talk or walk anymore. She rarely smiles anymore. She was admitted to hospice 3 months…
-
From Maybe to Reality
DH in ES thought. Then, several episodes of mis-rememering, including asking our adult son if he remembered a certain episode from his (DH's) youth. For the past 3 weeks he has been just fine, more or less, just the occasional lost word. In my mind I knew he still had Alz, but it just seemed like , well, maybe it will be a…
-
Looking for Support: MCI Diagnosis with Normal Test Results at 51
Hi everyone. I'm looking for others who might have gone through something similar. I'm 51 and recently received a diagnosis of mild cognitive impairment (MCI) after experiencing memory issues, headaches, and possibly some minor balance issues. Given that my mother has Alzheimer's (I'm her primary caregiver), this diagnosis…
-
step down symptoms of vascular dementia
Hi, my mom was diagnosed 9 years ago with vascular dementia. She is currently 92. Does anyone know the stages or steps of this disease? Just trying to better prepare myself. I am her only caregiver.
-
How can I get DH to sleep at night?
Hubby would probably be a wanderer if we still lived in a large house rather than a condo. He also needs my assistance getting around, even with a walker. So every night we're up and down going from the bed to toilet, to bed, to living room... he wakes me 8-10 times a night. Sometimes he does need to urinate but usually he…
-
Paranoia
My wife has become paranoid. She has accused me of stealing her mail, and is convinced that our daughter has stolen bed pillows and jewelry from her. I’ve tried reasoning with her, but to no avail. Any ideas on how to deal with this?
-
When you have to correct LO
My LO is certain her home is across the street and will head that way from time to time. The only distraction is to offer a ride home. Works. I know we are not supposed to correct lo’s, but how can you tell your LO that that house and others are not their home with out creating a stressful situation… Kind of an odd…
-
Spinning our wheels
I got a call this week from a speech therapist my mother saw a year ago. She said the staff at the MC facility had asked her to renew her services with my mother and that she sent me paperwork via email to sign that would allow her to begin a consultation. There is a copay agreement. Apparently, the staff was having…
-
New here and trying to start vascular dementia discussions
Hello, I am FaustinaMary and am hoping to learn more from you. My loved parent is supposed as suffering from vascular dementia after an extended bout of rapid ventricular response. I am hoping to begin a subgroup here for those associated with "Vascular Dementia". Please join it for discussions if this pertains to you,…
-
Excellent Handout Packet: dementia, stages, CGs, actively dying - Tam Cummings
(Sharing here as well as Spouse/Partner CG Forum) - Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours. I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging…
-
Sitting Vigil
I am sitting vigil tonight at DH's bedside. It took three tries to insert a new Foley catheter this morning. Each insertion in recent months had been more and more difficult. He began bleeding out. He has an enlarged prostate and a latent tumor that he's had for 23 years. He may have a new tumor, too. He has lost a great…
-
I Think It's Time
Not for MC, though that will be coming soon. Time to quit my job. I thought I could hang in there with it, but I simply cannot do it. I find the job so frustrating — a super dysfunctional org with lots of disrespect thrown around. And, I'm an utter wreck from feeling split every hour of the day between trying to keep some…
-
They are still there
My wife was formally diagnosed with early onset ALZ in 2018 at age 61. Her symptoms had started 2-3 years earlier. She was enrolled in a research protocol in 2019. Unfortunately the disease has marched on and now she in in a memory care facility with late stage disease. It has been a difficult journey. One thing that keeps…
-
Cost of Memory Care
If you have a LO in memory care or you've done some pricing please post the prices you've found/paid and whether Medicaid or Medicare cover any of the cost. I am in Massachusetts and the average cost of memory care (according to Google) is $8,500. I am sure you can pay much more. Thank you!
-
Catheter in RCFE or MC
I've searched posts on catheter issues…and i'm concerned. (i'm a new member). Dad is 82, slow advancing prostate cancer, ALZ and probably undiagnosed Parkinson's. He is in AL but since mid dec we've hired 24 hour care due to fall risk in AL. We have plans to move him in one week to a board and care. Stage 4 or 5 of ALZ. No…
-
white matter detected on my brain...
Good evening peeps, I saw my neurologist today and they found some white matter on my MRI which he said could account for my falling, balance problems. He wants to see me back in 3 months after I have another PET scan. He also wants me to go to the Cleveland Clinic Lou Ruvo Center for Brain Health here in Las Vegas. He…
-
Why?????
(Insert scream at top of lungs) Why??? Why my bf who is 45??? Why anybody??? Freaking WHY!!!!????? I HATE THIS DISEASE SO MUCH!!!!! Ill never understand why? We are all in this together 💜
-
Torn and heartbroken
Hello all. I am coming to ask advise and what others have done. I have been advised by my hubby's doctor that it may be wise to get a divorce. What?!?!? Heart is not accepting that. They stated it was so that the state doesn't take all our assets for his care. If we do it now, it is early and they won't override it. Have…
-
Sydney to Hobart Yacht Race
Sailing was what we did, always together, we started sailing joined our 1st Yacht Club in 1971. This is what I wrote on Boxing Day with a very sad heart. The Sydney Hobart Yacht Race All morning he’s said to me. What time is it on, I don’t want to miss it, I must put it on The cricket was going, the time ticked around,…
-
Secrets
Mom is in AL. She worries about everything! She is probably towards the end of stage 4. She is a bit difficult than most here since her memory is still good. She lacks good judgment, bad anosognosia, and lack of empathy. My adult daughter has been sick since Christmas and just got home from an intensive care hospital stay.…
-
speech therapy?
Hi, All, We have a speech therapy order from my partner's neurologist. They provided it at my request even though they were not very positive about yet I have read that it can be helpful for people with Alzheimers who are having difficulty speaking. Has anyone had any experience with this and could share? I would…
-
Nonstop for my dad. Need suggestions.
My mother has had dementia for 2 years. My father is taking care of her in our own home. Recently, she has been nonstop needing something after helping her just 5 minutes ago. If no one answers right away, she'll throw her cup on the floor, then she will knock her tray down. She also intentionally tries to roll of the…
-
Difficult for him but a bit of "light" for me - SSDI approved
My husband had two appts for SSDI a couple of weeks ago. He hasn't worked for two years, and financially I am struggling. On a side note, I didn't know initially that I could apply for my 15 yr old son as well. I guess I should do that now. I was worried about those two appts because his neurologist has never said "I think…
-
Hospital bed time. Moving really fast
I added an Update in the comments I got a call tonight from the AL nurse. Mom rolled out of bed tonight. Since this counts as a fall ( in my opinion), it’s three falls in 9 days. The AL nurse had previously told hospice that mom didn’t need a hospital bed as her platform twin bed raises and lowers at the head and feet. I…
-
New to group, in process of getting diagnosis
This is my first post. DH had neuropsych testing done today and now more aware of his memory loss than before. He has been depressed and PCP treating that. Going to first neurologist appointment in 3 weeks. Tonight he gave his drug addicted daughter his credit card number so she could get an uber. This is uncharacteristic…
-
In need of support
Hi all, I’m new here, and new to supporting someone with dementia. The long and short is, my aunt has dementia. We haven’t been close, and I hadn’t seen or heard from her much in 30 years. I reconnected with her about 1.5 years ago and she was mostly lucid. She was determined to move to Colorado with me and my kids as she…
-
What Do I Need to Learn?
Hello all, Thank you for your collective wisdom. I've been reading posts and learning. My DH was diagnosed with ALZ a month ago. We're early in the process with MCI right now. He works, drives, cooks, etc. (but is slowing down cognitively and short term memory is poor). I'm taking some time off of work to get some things…
-
Adult Child Caregiver Support Group
I am new to this forum, but wondering if anyone has thoughts about an adult-child caregiver support group, particularly for caregivers at a distance. My mother is a widow and has MCI and may have mild dementia. We have a somewhat complicated relationship, but I am an only child and thinking of re-locating her to my area…
-
Nighttime Delusions and Refusing to Go to Bed
I am not only becoming exhausted and burnt out, but I am running out of effective ways to respond. Trying to redirect him has not helped in his nighttime delusions, nor his times of anger and aggression. Help any ideas or solutions ? I am ashamed to say my patience and compassion is not what it should be right now.