Welcome to ALZConnected! You are not alone.

My DH has started Saying I Don't Know What To Do. This started when he wakes up at night and now has progessed to morning and occasionally threw out the day. Has anyone experienced this? And if so is this a temporary change or has it become permanent? 5 1/2 years diagnosed. Thanks

Which of these scales have you folks found to be helpful? I am the sole caregiver for my 72 yo DH with dementia/Alz. We live in a rural mountain area. (We have all 4 seasons here).

My DH has ALZ, somewhere in Stage 3-4. Last night, we were having a conversation and he stopped mid-sentence with a blank look on his face. When he recovered a few seconds later, he realized that something was "off" and obviously very concerned about what had happened. He had forgotten what he was talking about. He was…

My DH has a habit of eating his meal very quickly, like he's aftaid he'll never see food again. We have accidents of him knocking his glass over, dripping food everywhere, but so far no choking, which I worry about. He was a firefighter for 33 years and I know they all ate very quickly in case the alarm went off, so I'm…

I thought I knew what it meant… I mean, generally, yeah. But for a caregiver of a spouse with YOA, I'm realizing I kinda don't know what that actually looks like. I'm going 110mph all the time and my brain hurts (not to mention my eyes from all the reading, forms, etc.). I'm looking for hacks & visualization re: what…

It’s been said that no good deed goes unpunished…how true this idiom is. My husband had been wanting a dog since we lost our last one. I wasn’t sure we were ready but in a weaker moment I saw a dog on the county shelter site that looked like she would be perfect. She is 8 years old so no longer a puppy, was supposedly…

Back in February my mom wasn't answering her phone one morning. I went to her house and found her on the floor of her bedroom, presumably she had been there most of the night. Long story short, after a month in skilled care, she went to an assisted living facility and she will not be going home. She is not adjusting well…

Hello, I thought this would be a good place to ask since other people might have the same or a similar struggle. I stopped working in July after I abruptly decided to come care for my Grandmother who is level 5 LBD. I have since depleted my savings and I am not getting paid for her caregiving. Although I have applied for…

My dad has not been diagnosed yet but we are in a difficult situation. My dad is having short term memory loss issues. He is 86. He is a physician and probably the smartest man I have ever known. He has always been the patriarch of the family and in charge of everything. He does not want to relinquish any of that control.…

My MIL has taken to spitting in the house. She'll eat a meal, and I guess bits of food will stay in her mouth, even though we tell her to stay at the table until she's finished swallowing and try to get her to drink before leaving the room. Once she gets settled in the living room, she'll start spitting those bits of food…

My mom moved in with my wife and me about 5 years ago (all my wife's wishes). The dynamics have been rough especially with a language barrier. I'm stuck translating and lately the fights are bad. My mom doesn't want to have caregivers on Sunday late afternoons 2-6pm so that my wife and I can have date night. She wants to…

Hi: My DW has had VD for almost 3 years. She is 78. She has now been in Hospice for 4 months. I go to see her daily, she is bed bound. She can no longer walk, talk, feed herself or help herself daily bathroom care. The must put her in a wheelchair in the morning so she can be feed. She cannot move her hands or feet. If she…

My head has been pounding all day. My DM made me her all-in-all as it pertains to her end of life matters. Out of 2 children borne, only 1 remain. Me! A terminally ill retired RN. When mom was in her "right mind," she NEVER wanted surgical attempts be made to correct her Afib. With Vascular Dementia and Alzheimers now…

Sorry this post is so long. Guess I really needed to vent in addition to asking this question. Here I am again after a while away. Seems life with my DH has consumed me a bit. I realize I need to come out from that and get back into reading posts here and asking for help. My DH is mid stage 5, but still able to care for…

MOm has been hospitalized - no injuries but they would rec waiting a few weeks before travel. For the 3.5 hour flight we'd need to find someone to assist my brother- do we look for a nurse or ? How do we find such a person- are there any resources for these sorts of things? thanks My brother will be there, I will not. We…

or take apart. My husband fiddled with taking apart an old garage door opener the other day (why he thought it needed taking apart is a mystery) and I thought more things like this would be good to have around to keep him occupied both here and at the day program he attends. They are having trouble with him being anxious…

Hi, My mom's dr confirmed that she has Alzheimer's. She had some early memory problems on and off for about a year now. My parents are in their late 70's and my dad and I will be her primary caregivers for now. But I'm a wife and parent of two children, 7 and 15...I also work full time. I'm just exploring support for all…

My grandmother was diagnosed with moderate dementia not long ago.. I moved in with her a year ago. And my husband and I are really the only family members involved.. well, about a month ago she was complaining daily about how many medications she had to take and said she didn't need all of them. I explained well, most of…

It's real now, we are moving from CA to NC. New house closes Friday, getting our home here ready for listing. We are leaving Kaiser Medicare Advantage and i am thinking of original medicare for my husband, since we are moving out of state and keeping Kaiser is not an option. We have the rare opportunity to select Original…

i wonder if a psychiatrist will help my DW with her delusions? My DW has had a noticeable increase in delusions of someone trying to kill her and also of my imagined infidelity. These delusions occurring day and night are causing her to express ongoing anger, anxiety and sometimes depression. What has been the experience…

Hello Everyone, I’ve been reading posts since I found alzconnected last week. Before that I think I was in denial about my DH; lately I can only read small doses of all of your helpful posts without feeling really down. But I am getting braver. My DH is diagnosed with late onset Alzheimer’s mild with anxiety. He doesn’t…

It's becoming clear that it's time to apply for Memory Care waitlists. My LO is rapidly declining and we are no longer able to leave her for any amount of time (she's been living with us for 18 months). We've been unsuccessful finding in home help and we both work. I've cut back to working 3 days a week and my husband and…

Hi all! I just joined needing support , advice, somewhere to vent. My mother has had several mini strokes (TIA) in the past few years. Since then she has rapidly declined with memory, decision making, daily functioning etc. She is now diagnosed with mixed dimentia (vascular dimentia and alzheimers). It explains her…

Just thinking ahead a bit—it's so hard to gauge. We have several excellent caregivers, and I kind of hate to think of telling them "Well, he's gone, bye." What do you think about telling them we'll give them 2 weeks pay afterwards so they're not left in the lurch?

I am new here. My Dw and I have been on this journey for 6+ years. There were signs before that but they didn’t register until later. We have been going along since. I have looked for advice on how to do specific tasks, activities, appointments, etc. from our Primary DR, Neurologist DR, Senior Center, Alzheimer's…

Hello, I am new to this community and looking for support and help. I am 78, and my husband is 5.5 years younger. I have spoken at length with my doctor about what's going on in my life, and she has been very supportive and suggested I come here for guidance. I have seen my husband's decline over the past several years,…

No formatter is installed for the format not-found

On the night of the 3rd my DW started emptying out her drawers and packing up her clothes. I ask what are you doing and she said I am going home as soon as my sister comes(her sister has been dead for years). I did everything I could to convince her that she is home and no need to pack up her things, but she wasn't hearing…

I am 68, was just diagnosed with early AD….im scared. How does everyone feel about the infusions? Im leaning toward going ahead with them, would just like input from those who have.

Two years ago I thought I knew what love required. I thought it was anniversaries, vacations, inside jokes, holding hands in church, dreaming about the future. Then a thief named dementia walked through our front door and rewrote every definition. Love became lifting instead of leading, briefs instead of bouquets,…