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On the night of the 3rd my DW started emptying out her drawers and packing up her clothes. I ask what are you doing and she said I am going home as soon as my sister comes(her sister has been dead for years). I did everything I could to convince her that she is home and no need to pack up her things, but she wasn't hearing…

I am 68, was just diagnosed with early AD….im scared. How does everyone feel about the infusions? Im leaning toward going ahead with them, would just like input from those who have.

Two years ago I thought I knew what love required. I thought it was anniversaries, vacations, inside jokes, holding hands in church, dreaming about the future. Then a thief named dementia walked through our front door and rewrote every definition. Love became lifting instead of leading, briefs instead of bouquets,…

Hi everyone, my mother was diagnosed with early onset Alzheimer's and I started living with her about a month ago because she requires full time care. She was able to hide her mental decline for a long time because she has always been very independent, and we didn't have the best relationship. She is already in stage 5 or…

My father has late-stage dementia and is exhibiting challenging behaviors that are making it difficult to maintain our home. He’s been pouring food down the toilets, which has caused clogs and damage. He also removed the bolts from one toilet, breaking the wax seal, and it’s now unusable. He’s fixated on guarding the…

The general advice is to take care of yourself so you can take care of someone else. I can't even get to a #$%& dental appointment. Frustrating is not the word for it. Thanks for listening.

Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…

Hello, My mom, 87yrs old, with mixed dementia, Alzheimer's and vascular has continued to decline over the years and lives in a MC facility. I am an only child and visit regularly and her biggest advocate. She has been on hospice care since Oct. 2024. Her health has been like a roller coaster since that time. She is still…

My dad who cares for my mom at home wants to move into Memory Care with her. Dad is 88 years and my mom is 87. He has been caring for her at home and in the past 9 months she's declined quickly. We have hospice now, bath aide 2x a week and he needs help all the time, especially with her "sundowning' daily and with…

Hello. I’m new here and I have a father diagnosed with late onset Alzheimer’s. I take him to all of his various appointments but I don’t quite understand why the providers rely on him for answers on his health. Sure I can provide some of the information but questions about his own depression levels or nausea only he can…

Hello, new to this group. My dad is currently in a memory care facility and has had alot of issues with inappropriate sexual behavior with other residents. Other than just watching them and keeping separate they’ve done nothing else Also has been sent out to the hosp for a fall but told me that it was because he fell and…

The local senior center just canceled my dad's favorite light exercise class and I am looking for something to replace it. Does anyone have any online/youtube classes that their PWD enjoys and can follow without assistance? My dad has a Lewy Body Dementia diagnosis and the class he enjoyed was a straightforward light…

Hello- Mom has been in a NH for about a year due to dementia. They are doing a very good job but I had to fight to get her Lexapro antidepressant restarted after she went downhill very quickly a few months ago. She became very depressed and has not been eating or drinking much. Before the stoppage, She would not eat a…

Hi, Please share any medication that you have found that helps with vascular dementia. My mom is on Donezapil but she is have negative side effects. Thanks so much!

Hey Guys, if you are in the New York area there is a free new small study of 20 patients with early Alzheimer’s disease symptoms utilizing a monoclonal antibody that blocks ccr5 receptors called Leronlimab that theoretically decreases inflammation in the brain. This study will measure neuro inflammation pre and post…

My DH, who is in stage 4-5 likes to play Rummicube and we play weekly with some others. He is surprisingly quite good and wins about 50% of the time. Lately he can’t remember the rules of the game and it is giving my an anxiety attack, trying to convince him to follow the rules. Our fellow players are very patient and…

Hey There My spouse has mild late onset AD and polyneropathy. We're in what I call the Dr Jekyll and MS Hyde stage. She can shower when I get her too, go to the bathroom though I question the paperwork, and she can walk within the house. I do all the finance and meals. I started having some folks come over to help…

I’ve posted several times and am incredibly grateful for the responses. When I reach out for advice on my mother often times the replies are from people who have a single parent they are caring for with ALZ. Much of my struggle has to do with having a father who has no memory issue at 86, and a mother with mid-stage ALZ at…

This is a follow-up to a previous post I made regarding us reconsidering MC. The reality is that we can't provide what my mother needs from home but I still have concerns regarding where she's placed. I noted in my previous post I was concerned about her being sad. I've come to terms with the fact that she will be homesick…

My husband has had slight (?) dementia for the past few years with a bit of difficulty walking, always shuffled, and balance issues. He is also an alcoholic. He has fallen 4 times in less than 2 years and could not get up each time. He fell 2 months ago which caused him to have a minor heart attack. He was hospitalized and…

AAIC For All: July 16, 2026Registration is still open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top AD experts about the latest research/news. There are two key sessions: AAIC 2026 Highlights A Lived Experience…

It is sobering to come to the certain conclusion that my dear wife is in Stage 7 of vascular dementia. The Cavalry never showed up, but I do have Hospice here regularly to check on her progression, offer medications and supplies, and provide practical planning. Hospice admission – whether at home or in a facility – has…

This is just for sharing and it will be therapeutic for me to share: My mom has been asking that I take her back to visit in the town she lived in for 60 years before moving near me. I finally did, booked 2 nights, took a 4-hour car ride, to visit her other granddaughter and great grandkids and a couple of her friends. My…

My mother's dementia journey has been a gradual but steady decline for the past six years, but in the past month she had a marked decline that took me by surprise. I had her treated for UTI but it seems that the cognitive loss is unrelated. She still knows who is who and can dress herself and make some decisions but is…

My father(86 yo), who from what I’ve read has recently entered Stage 6, he has been in a SNF since April. Until recently he has been fairly happy there and hasn’t complained much. I’m not sure most days he really understands where he is, often times he calls it his apartment or thinks he is at work. Other than the dementia…

Friend has consistent memory lapses. They often can't remember what day of the week it is. I meet them at the gym on Tuesdays and Thursdays. I send them a reminder text the night before and send one again the next morning about 45 minutes before we meet. They are unable to operate the locker combination at the gym without…

I knew this day was probably coming. Let me preface this rant by explaining that my "support" consists of my sister who lives with both me and the pwd. We have never gotten along (probably never will) and she is on mood altering medication. My other sister, out of state, who has more problems then you can shake a stick at…

I live in Oklahoma and my mother and stepdad live in Maryland. My stepdad is currently in a memory care facility with advanced Alzheimer's. My mother has a severe physical disability and has also recently been diagnosed with early stages of Alzheimer's. My sister and her husband moved into my mother's home to care for her,…

I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…

I am asking for help on how to deal with my LO who is urinating on counter on bathroom,laundry room,garbage cans in kitchen, etc. LO has PCA and dementia. I have a red toilet seat,light above toilet pad around bottom of toilet. LO also has Anognosia. It is getting to where my whole house has a urine smell no matter how…