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Dad with Early Dementia
My mum has alzheimers and late on now but with Dad im experiencing far more of the i dont live here or getting taxi home and not sleeping at all. He gets up in night with clothes on occasionally and i stop him going but now i am wondering if thats the right approach as there is no "other" place/home. Really exhausted with…
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What was I THINKING 🤔
yesterday we / I decided to join our daughter at the Casino in Laughlin for dinner and play a few slots. Dinner was great then we all headed for the slots😆we all thought my LO( loved one) was with the other ? After about a half hour we realized we lost him 🤦♀️after searching we found him sitting alone at a machine with no…
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Coconut oil?
Been doing some research on diet changes and the effects it has on Alzheimer’s. Has anyone ever heard about/or tried coconut oil to slow the Alzheimer’s process? I know omega 3s are important. Just trying to see if there is anything else I should be doing for my mom besides the standard drug treatment.
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Just need to talk to my friends (203)
It has been a beautiful day, sunny and 75. Meant to check on the daffodils but forgot. The ones I can see from the kitchen window look okay! QVC has started their gardening shows so Spring is near. They had the perennial Gerbera daisies again today. So pretty. I bought them two years ago and had one bloom and they didn't…
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Advice
My husband was diagnosed with early stage Alzheimer’s three weeks ago. His doctor has recommended the leqembi treatment. I’ve read all of the risks and comments on this site. My problem is, do I tell my husband the risks and scare him even more or do I make the decision for him, knowing that he would want to try even with…
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Loneliness, Fear & Sadness
New to this forum. My husband has ALZ and is no longer the kind, considerate, thoughtful, brilliant man he was. I'm feeling overwhelmed with grief, loneliness and functional depression. Although I get through each day and night, I do it without grace. I struggle each day to find my old personality — I was kind, and patient…
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It's not 'agitation' - It is RAGE AND AGRESSION
and it gets worse. I have watched my husband who was officially diagnosed with Alzheimer's near 3 years ago simply marinate in his misery. Nothing I have tried has served to help him. There were unresolved issues that were percolating before the more serious onset of the disease (forced retirement with no interests,…
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Revenge
I didn’t know that a person with dementia could be so revengeful. My husband is a hoarder and he has been collecting things from all over the house. It could be trash it could be trinkets or food etc. He puts them in the corner of the room where he sits. I have to clean up or it will get unreal. I sometimes throw things in…
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New to caring for a parent with ALZ (and to this forum)
Hi all. I am new to this board/ website. I just found it today and figured I would dive in. I am not sure I know what I'm doing writing here other than sharing my story and letting it out in a safe place. It's ok if I don't get any responses, I just need to let it out. My dad turns 80 next month and has ALZ. He was…
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Advice for Going Back to Work
I took FMLA for a year to assist with the new diagnosis of Alzheimers for my mom. It was intermittent FMLA so while I still worked, I was able to take off for appointments, my own mental health, and days that seemed like my mom just needed someone to be with her. I was averaging about 20 hours a week rather than my full 40…
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The hurt from letting go
My DW is in the middle stage of memory loss. When she was lucid, she said she felt I didn’t love her anymore. I have to admit that my feelings are changing. Her behavior can exhaust me, and I realize that I communicate less simply in order to reduce my stress. It is a lousy spot to be in for both of us, but I don’t see any…
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A Wife and A Partner
Not sure why I'm posting this……I'm not looking for validation and certainly don't need judgment. I guess just sharing my experience. My wife was diagnosed with early on-set Alzheimer's over 7 years ago. She is currently non-verbal, fully incontinent, and unable to do anything for herself. I am blessed that she is still…
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How do you know when it's time for hospice?
Several people here have shared their experiences with hospice. I'm not familiar with it at all, so any advice/explanation would help. My DH is showing more physical signs of decline: losing weight even though he still eats well (160 lbs from 196), is starting to stumble, and becoming incontinent. I know some of that is…
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UTI, Pneumonia, Sepsis and Hospital = Sharp Mental Decline
I have read here many times about how UTI's and hospital admittance escalates dementia and now I am experiencing it. My DH is in stage 5 of Vascular dementia. He was admitted in hospital Sunday evening with UTI, pneumonia and sepsis. He is 83 years old. Fortunately, we came home yesterday afternoon as he responded very…
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My First Community Post
In the words of the poet, "please allow me to introduce myself," although when it comes to "wealth and taste," I'm lacking on both counts. LOL. I was born and raised in the Chicago area, not far from Midway Airport, with spina bifida and hydrocephalus, which caused me to spend a lot of time with doctors. It has been…
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Planning first visit to memory care
I'm planning my first visit to see my parent in memory care. I'm out of state so it's a big endeavor. I'm traveling by myself without my family. Besides visiting with my mom, The purpose of the trip is to check out the memory care facility, meet the staff and then check out the surrounding area to plan excursions with a…
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Providing Support for my Family
Hi, I am looking for some advice. For some background, my mom (58) was recently diagnosed with EOA. She no longer works and is home during the day with my brother (28 with down syndrome). My dad lives with them, but works full time. I (25) live nearby with my fiancé and I also work full time. My mom is obviously going…
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How often do you visit your LO in Memory Care?
I am sure there is no routine or common visiting schedule. Someone recently asked me how often I visit my mom, and I told them about once a week. In reality, it is less than that. I guess I thought if I told them the honest truth, I would sound like a horrible person. Truth be told, I could visit my mom every single day…
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how to pay for long term care/MC
Hello, My father has unspecified dementia-has never been officially diagnosed. Like others, he refused to go to an MD in fear of being "locked up" in a nursing home. Now he's in the hospital- which brings up future plans of LTC or MC when the time comes. However, my mother has no Medicaid, no long term care insurance, and…
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My first post - coping as a young person in a family with a history of alzheimers
Hello, I am a 24 year old woman who helps to care for my grandmother who has alzheimers. I live about 3 hours from her, my mom and grandpa are her primary care givers. I make trips to visit about once a month. I have joined this forum in hopes of finding folks to talk to about my experience as a young person who has…
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The Constant Digs
just a vent. I could really use a day where I don’t get to hear from my DW how I just don’t quite treat her right and I don’t do enough for her. I am gentle, supportive and kind to her and I get back complaints about how something’s just not right with me. Oh honey…it’s not me. Grrrrr
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How do I get my smelly DH to put on clean clothes?
My DH had mixed dementia, both vascular dementia and Alzheimer's. I gave up on trying to get him to bath. it has been at least a year since he showered or washed up. He used to change his clothing every few days but now he refuses. I have tried everything I can think of. He sleeps in his clothes including his socks.…
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Visiting new Dr with Mom
we are going to our first Neurologist appointment with Mom and I wanted to get thoughts on how this could go. I feel like there is a lot we need to communicate to Dr so she has the full picture but I am sure Mom will not communicate. Do they typically meet with patient and then caretaker after as well? We have medical poa.…
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Frustrated That My Mom Won't Acknowledge Health Problems
I've been my mom's caregiver from 2013 (age 22) to now (age 34) . Right now, she has multiple health conditions colliding with each other: early dementia symptoms (currently trying to get a formal diagnosis), depression, dehydration, kidney problems. The depression isn't new to me or my siblings, but the other health…
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Lumbar puncture?
I have read multiple posts in which loved ones mention their PWD getting a lumbar puncture as a diagnostic procedure for Alzheimer's. My question is this? Isn't that terribly painful and is it worth putting my LO through for a definitive diagnosis?
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She’s forgetting me.😢
My mom lives in Delaware. Near my sister and her extended family. I live in Georgia. We lost our oldest sister 2 yrs ago and an older brother 7 yrs ago. That leaves the two of us. I’m 62. My sister is 66. The other day my mom told her Dr that she had 4 children but only has one surviving child. (my sister) My sister…
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Need some input
I have a situation that I need input on. I’m in the hospital recovering from cancer surgery on my liver and my wife’s daughter came to take my role until I can get home. I’ve been struggling with the decision to get out of here as soon as possible or wait until I’m fully recovered. All the advice I’ve got says stay here as…
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personal strength trainer?
Hello. I'm new to this group. My wife is 66 and is still in the early stages of her Alzheimer's. Does anyone know of a personal strength trainer or a gym that specializes in weight training for Alzheimer's patients? We live in Lowell, MA. Thanks.
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Strange eating habits
My husband has got to where if he starts snacking on something he will eat until it is all gone. For instance, I bought about 2 lbs of grapes this morning. Husband ate all of them within 2 hours. And I noticed other day, we had a 3 lb bag tangerines. He ate half of them in one day. I finally hid them from him. Is this just…
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Wants to "go home"
This is my first post. Husband was diagnosed with Alz/dementia a year ago, but in retrospect I know it began several years ago. Every day he says he wants to go home, even though he is home. When I tell him we are home, he gets upset and says "it's not my home." I don't know what to say or do. Any ideas would be…