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I wonder if I am seeing things not there
My wonderful husband of 49 years was diagnosed 2 years ago with MCI, he is slipping more (forgetting conversations that just occurred, throwing out items we need, personality changes, etc.) and I anticipate at our appointment with his neurologist later this month, he will "upgrade" his diagnosis. All of this being said, my…
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Leqembi
Just feeling blue this morning. Neurologist offered Leqembi infusions to DH with ALZ. DH is 90. It's 18 months of every other week infustions that will only delay the inevitble by months, not years, and if he does't have a brain hemmorage or stroke there are high odds of migranes and other side effects. We opted not to do…
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My DH has changed and I’m afraid
my DH just turned 70 but has been struggling with issues for awhile. He changes moods, is depressed and withdrawn, does not have healthy hygiene , smokes both pot and cigarettes , drinks a lot ( beer wine) has juvenile diabetes insulin dependent . He has started to misplace things, wallet keys, checkbook. He doesn’t pay…
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DH fixated on being able to drive.
DH is so fixated on being able to drive again he has become very depressed and says life is not worth living. He says he feels like he is in jail and can't do anything. I can drive him anyplace he would like to go. When I ask him where he would like to go he doesn't have an answer. Dr.'s have told him he shouldn't drive…
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T shirt question
A basic question about T shirts…the undershirt kind. DH has lost so much weight-and height-. that his size large T shirts are way too large now. The T shirts are very roomy and so long they come below his hips. When I get him dressed I am stuffing all this extra material in his pants so it doesn't hang below the outer…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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Sharing a tip to get DW to change clothes
DW is early stage 6. For the past few months it has been a struggle / conflict to get her to change her clothes. I have found something that seems to work (for now) and would like to share. If I tell her to change right when she wakes from sleep, we are able to get into clean clothes with minimal to no resistance.…
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My Friend is legally blind: needs bookkeeping, billpay, computer assistance
Hello Alz community. I am a Reno based CPA and have a friend (She is located in Reno NV) who needs assistance with bookkeeping, bill pay, computer assistance and reading her mail to take care of her personal business matters starting at once a week. Do you have any recommendations?
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Balance
My DH is 25 year older than I am. He is 94, I am 69. I've known this was coming for about 15 years. Early years were challenging, but COVID was the hammer that drove nails into the structure of our lives. I moved him into a MC about a year ago. I was dealing with other "stuff" at the (my brother was killed in an automobile…
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I’m new
Im new to group chats and im new to my dad having dementia, im not new to dementia i did at home health care when I worked and i thought if my parents needed me to care for them i would b a pro but dementia is the worst disease. My dad is 65 and lived a very healthy life and that made him happy but I’m like my mom I just…
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Balance
My DH is 25 year older than I am. He is 94, I am 69. I've known this was coming for about 15 years. Early years were challenging, but COVID was the hammer that drove nails into the structure of our lives. I moved him into a MC about a year ago. I was dealing with other "stuff" at the (my brother was killed in an automobile…
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In Loving Memory of “Jo C”
I’m reaching out, again, on behalf of my beautiful mom, Johanna “Jo C” Richardson, a passionate Peer Volunteer for nearly 20 years. Many of you knew that Jo C had been diagnosed with a progressive lung disease a couple of years ago. The disease did progress and Mom passed away peacefully at home the evening of June 19,…
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Dad confused in his apartment - looking for stairs that don't exist
I'm looking for suggestions / tips about how to address my dad's search for stairs to go to his other apartment. He is 92, in a wheelchair - probably Stage 5 Alzheimers. He lives in a Memory Care facility in a studio apartment. He keeps looking for the stairs from the basement or to the 2nd floor to get to his "other"…
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Continuing ALZ Research
https://www.sciencedaily.com/releases/2025/11/251118220052.htm#google_vignette
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Alzheimer's Screening and Prevention (ASAP) Act
It's a start and hopefully it will lead to more. I also posted this under General Topics. https://www.alz.org/news/2025/house-introduces-bipartisan-legislation-asap-act-alzheimers-screening#:~:text=This%20transformative%20bill%20will%20provide,and%20dramatically%20improve%20early%20detection.
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Social Media post/comments
My DH is into the mid stage of Alz I believe. Diagnosed over a year ago. He's still able to care for himself, but speaking and following instructions etc. Are definate difficult. Along with other things he gets confused on he is not able to write very well any more. Always asking me how to spell words. He has been on FB…
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Stage 5 and not aware
My wife has ALZ , solid Stage 5 showing some Stage 6 symptoms. I have told her she has Alzheimer's, she then looks puzzled and forgets it 5 minutes later. She is unaware of her condition and appears to think she leads a normal life. She is getting more difficult to manage and has most of the nasty symptoms you hear about.…
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Parents Against Me
Has anyone else experienced their parents completely turning on them? My parents were both narcissistic before dementia, and it’s been a nightmare since the disease progressed. I moved them out of their unsafe house with stairs, brought them across the country to be closer to family, and got them into assisted living…
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Heading into the Holidays Alone
The coming holidays will be my first without my mother or Roger. It seems like there is a lot out there about navigating the holidays around family and friends, but no real advice for those of us who have neither. The usual advice about finding a community dinner to attend or volunteer at just doesn't ring true for me. And…
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My Mom Died November 1st
Hi everybody, I have been reading these posts for years. My mom had Alzheimer’s for about 15 years. 3 years ago, my father died and I took over the caregiving for my mom. She was bedridden for those 3 years. But she was the sweetest little lady. She had forgotten who I was, but she gave me kisses everyday. She died on…
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When the marriage was not good.
I am embarrassed about my title, but it is my truth and I have to find out if I am alone in my situation. In my family it has always been that when we get old, the veil of self-delusion about our lives lifts, and we are faced with our truths. My husband of 38 years has been the absolute love of my life, I have remained IN…
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Sundowners
I've been caring for my wife who is suffering from Alzheimer's. She is in the middle stages and it is progressing. Since the time change her sundowners is getting worst every night She does not know I'm her husband Demands I Leave the house, its her house and not mine. I currently only have the help from her sister but it…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags (there are many people who, at this very moment, have a family member with dementia yet still do not realize it), and especially to help people navigate through the…
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Yin and Yang
How can i be so happy and sad at the same time. It’s our birthday’s mine is the 8th DH 9th we have always celebrated together. It’s always been such a fun time of family and friends parties and dinners. Now it’s too uncomfortable to go out to dinner DH needs to be fed and food falls either on the floor or down his shirt,…
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Jason Aldean song “Help You Remember”
He is raising money for Alzheimer’s. He had a family member with dementia. Beautiful song. https://m.youtube.com/watch?v=fKEVGVOYG84
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in stage 8 after a fall
My wonderful husband passed last Thursday near midnight. He had been experiencing some episodes of lashing out toward the staff of his memory care home (utterly unlike any behaviors before) and I had met with executive staff who thought because he'd had a week with out of town visitors, being taken to golf range, etc. he…
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Home for the Holidays
Hi to all, I ran across this video while checking to see if any new ones popped up on my YouTube channel. I found it to be quite helpful and relevant for this time of year. The title is “Caregiving and the Holidays: From Stress to Success” through the Wellmed Charitable Foundation. (If the link below doesn’t open for you,…
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‘Me Time’ Confusion
I just need to talk about my confused reaction to ‘me time’. With the generosity of the Government I now have subsidised help every fortnight in the house, floors, bathroom, changing sheets on the bed etc; and garden maintenance mowing the lawn. This is a great relief. I also have a Carer that comes weekly for two hours…
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No short term memory
I’m so worried. My DH was diagnosed with Alzheimer’s 4 years ago. It has been a gradual decline until now. He has no short term memory. Within minutes or seconds he is asking the same questions or cannot understand a situation. Yet he looks and acts perfectly normal around others. From your experience where do we go from…
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Urge to pee but no pee
Been dealing with toileting issues at night the last couple months with the last few weeks increasing in frequency but this is a new one. MIL has been up and down multiple times during the night feeling like she has to pee but is not able to pee. She had two urine tests last week. First was inconclusive. Second was done…