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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
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LO urinating in other areas of house
I am asking for help on how to deal with my LO who is urinating on counter on bathroom,laundry room,garbage cans in kitchen, etc. LO has PCA and dementia. I have a red toilet seat,light above toilet pad around bottom of toilet. LO also has Anognosia. It is getting to where my whole house has a urine smell no matter how…
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Another question about progression
My DH's agitation and aggressive type behavior seemed to have subsided a lot. He actually got in the shower willing the other day and did not fight it. He has been much more agreeable. He has been on Serequel since December so I can't say it is the medication. The neurologist mentioned that when the behaviors stop that can…
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questioning my experience with DH
MY DH has recently been diagnosed with MCI and testing shows due to alzheimers. Our very good and supportive friends don't see symptoms i see causing me to question what i am seeing.
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Early onset Alzheimer's
This diagnosis is so difficult. How do you go on from this? And how do you do it alone? My heart goes out to anyone with this disease. I knew it from many years ago that there was a problem, But doctors always told me, it's just stress, Take this, you'll feel better. So many doctors, so many years later. I am so happy that…
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Would you share your experiences…?
If your LO is in this stage or you’ve passed it, please share your experiences, struggles, how things have progressed and tips! I’m especially interested in hearing how long your LO has been in this phase and what happened next for you. MY DH is stage 6 ALZ. Totally dependent but feeds and toilets himself. No incontenence.…
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Another wedding anniversary "celebrated"
Last weekend was our 34th anniversary. I celebrated it by feeding my husband pureed food for lunch, and then attending my sister-in-law's surprise 50th birthday party. No one knew it was my anniversary. DH continues on in the very, very last stage of dementia at his nursing home. He may be at this point for years to come,…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with LBD
Hi. I'm new here. I'm a granddaughter caring for a grandfather with lewy body dementia. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the last 2 years has started having symptoms of LBD. He accuses almost…
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Daily changes
My LO is very hateful towards me. I can't seem to do anything right to please him. However, when other people come around, he is very charming and kind and some people can't tell there's anything wrong. I feel like I live on adrenaline because I feel like I walk on eggshells. I am getting VISITING ANGELS to come for eight…
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Mom troublemaking at AL
I have a Care Plan Meeting coming up next week, and I want to be prepared to respond to some of the issues the staff has reported to me regarding my mom… Just in the past week alone, she has "caused a scene" (Director of Wellness's words) regarding her bedtime medication — it was late getting to her and she walked down to…
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Confused and scared!
I was diagnosed with Dementia 2024. So much has happened since then. I don't know how to manage all this. My hubby and I are in our 60s it's hard on both of us in so many ways. Just would like to find others going thru all this. Thank you
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Just need to talk to my friends (219)
Summer is here, I guess. Heat index today was 100+ and will be again tomorrow, then a little cooler. Carl, does the smoke alarm come with the battery or can you buy the battery separately to put in another one? There was a warning yesterday on tv to not put lithium batteries in the trash. Someone did and it started a fire…
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How to get ready…
I’ve talked to 3 separate members of my hospice team individually. They all believe my DW has maybe a year plus or minus. One nurse mentioned that some/much of it will be based on decisions I will have to make. For example when to treat a UTI and when not to. She said we are approaching these decision points. Looking for…
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More clothing struggles
I had mentioned earlier my mom doesn't wear any new clothes, bought since ALZ diagnosis 3 years ago. She constantly asks for new clothes, I take her shopping, she tries and chooses, we buy, she never wears. This group mentioned buying same/similar and also taking online bought clothes with us for her to try in dressing…
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Options for Mother with Dementia after ALF
After 2 years in ALF my mother is in need of a higher level of care - primary because of her needs at night like toileting and her inability to call for assistance when she needs it. ALF is giving me some time to decide what I will do, but I am having a hard time with the options I am considering - and would love different…
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Do I Follow Her To Skilled Nursing Memory Care?
My wife has mid-to-late-stage Alzheimer's disease and late-stage fibrotic lung disease. The doctor wants her to go to inpatient Skilled Nursing Member care for her declining lungs. She, of course, is resisting. The facility says I can rent a furnished apartment in Independent Living for 3 months as a transition at a…
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Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
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Early stages
My DH has been diagnosed but will not talk about it with me. When things happen like him buying stuff on Amazon we already own, if I bring it up, he gets angry at me. If it weren't so important I'd just let him be but I'm terrified of his poor decision making affecting our future.
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First Day of MC
I have finally got my MC facility choice down to the winner. Check in date is in about 10 days or so. I would have been #3 on the waiting list but just was informed that the #1 and #2 families weren’t ready so the room for my DW is available in about a week. For those of you who have your LO in MC, I just want to ask you…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Mom's brother passed away
My mom's brother passed away yesterday. We have not told her yet. She still knows who he is but hasn't seen him for a year and a half at a funeral and was years before that. I don't think she is going to be devastated by his passing (he had lots of health issues and my mom always had negative things to say). Mom is still…
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Are there any positive experiences for Memory Care?
I am not questioning the need for Memory Care. My mom, with ALZ, is still in AL, but I am trying to be prepared for when MC is needed. I read a lot of sad posts like dbarrylewis on When to Reconsider Memory Care and it was very emotional and sad, and it made me wonder if anyone has experienced a positive outcome. Having to…
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Venting
I come here to vent often. I tried a support group they were lovely but none of the other participants were living 24/7 with their pwd. I also lost my HHA and couldn't take the time anymore. I'm looking for a new HHA now. My mother has vascular dementia and LATE. We're in our second year with it, the prospect of this…
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Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.