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Early onset of my husband
I’m new to this group. My husband and I just moved abroad 2years ago when my husband retired. My husband struggled with depression after retiring, finding his purpose ect. Once he got settled in o started seeing some…missteps in his thinking. His dad is in his 80’s with Alzheimer’s. So I kind of thought this might happen.…
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Early onset at age 60
Hello, my husband was recently diagnosed with Early Onset Alzheimer's at age 60. We live in the Erie, PA area. The support groups in the area don't seem to fit our demographic. Although we do enjoy the company of folks older than us, some of the challenges we are facing are a lot different than if we were in our later…
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I'm in the moderately severe stagr
So far I am doing okay Memory is disappearing I'm getting ready to sell my house while I still have my witts about me I will.move into the care center sometime soon
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How to Help My Sister Have Access to Spending Money
My sister is in mid-stage Alzheimer's and lives in an assisted living community. They take day trips to Krogers and other places and she enjoys buying things for herself. She used to be able to manage a debit card, but has lost it several times and can't remember her pin. She now believes we are withholding money from her.…
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Travel With Alzheimer’s
My wife has Alzheimer’s, and she really wants to move back to her hometown, which is 2500 miles from where we live now. We can either fly or drive (money is not a concern), but I can see potential problems for either. Driving will mean many hours in the car each day, and she doesn’t like that idea. Flying presents other…
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SLUMS got me in a slump
My DM who is my pwd was given the SLUMS test today. She has been diagnosed with mild cognitive impairment/early stage Dementia, in December 2024. After much pleading she got authorized for an MRI. In July, she was diagnosed with Vascular Dementia. She is not on any meds. She refused both, Aricept and Memantine. I've…
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Memory Care + Aide - Make it make sense
I'm trying so hard not to vent, not to be angry. But my mom's MC is asking me to pay for a person to be with her 12 hours a day because of the falling. We literally can't afford this full time, so I'll be doing it on weekends. I get that they can't be with her 1:1 all day, but it's just incredible. The cost seems…
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Anger Issues with mom and losing caregivers
My mom is 89 years old with moderate Alzheimer's and Binswanger disease. She lives with my step-dad (they have been married over 50 years) who also was just diagnosed. I live 250 miles away and have been staying with my parents first for one week out of every month and now two weeks out of every month for over two years…
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Oregon Caregiver Conference
This discussion was created to help Oregon and Southwest Washington caregivers stay connected.
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After Years of Caregiving, Uncle w/Dementia Needs Remote Support - Affordable Tech/Dev Suggestions
I'm at a major crossroads and feeling a huge mix of relief, guilt, and stress. I'm hoping for some practical advice, especially from those who've managed long-distance care for someone with dementia. For the past few years, my life has been completely dedicated to caring for my uncle. He got divorced about 10 years ago and…
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Feeling lost, dad has passed and am struggling to handle his estate
My dad passed a week ago. My mom preceded him in death. I have a copy of their will and I was his activated POA. The attorney that created the will is no longer living. What do I do next? Do I need to hire an attorney to instruct us how to process the will, file his taxes, etc.? Is there a checklist of all the things I…
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How to deal with a mom that thinks you're stealing.
Hello, first time poster and just wanted to get some advice. My 87yr young mother is in early/mid stage dementia. Her short term memory is at maybe 30%. And unfortunately she's begun to confuse long term memories with recent ones. Example, she thinks my grandma who passed away 47 yrs ago just passed away a couple years ago…
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Lots of ‘Pams’
Looking for some feedback on lorazepam. Hospice is suggesting (for nighttime when it gets very difficult) getting off of temazepam, increasing serequol and start using lorazepam as needed. Anyone been through a similar path? She sleeps well on temazepam it’s just getting there that’s the challenge.
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Well Meaning Friends
My husband is losing memories. It’s funny, how we’ll be at a dinner party, or run into old friends at the supermarket, and he tells them he is getting forgetful. In most cases, they immediately respond with, “Me too!” and then go on to tell of forgetting where they put their glasses, failing to remember the name of a prior…
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Correlation- Active Dreams w Movement and Dementia?
Hi, Has anyone else seen info that if you have dreams where you're usually fighting something off and you move/thrash, especially kicking or running motion, that it's an almost slam-dunk predictor of degenerative brain diseases? I saw a couple studies that got quoted in many news items.
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Funny / not funny
Found dozens like this in mom’s text messages. She tried.
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Possible diagnosis
Waiting for the diagnosis to come in but considering what it’ll take to just admit it’s Alzheimer’s. The Amyloid score was 44.3 and he is clearly symptomatic. (Been about 2years) This waiting phase is hard - I want to start reaching out for help and notifying family. But the neurologist follow up isn’t for another month.
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What do you to talk about with your LOs?
My DH with Alz is in late stage 4, perhaps early stage 5. Most days he's still quite independent in caring for himself and doing household chores. The problem I'm having is that chatting with him has become such a mentally exhausting task. I find myself thinking "oh, I'll just tell him about this" and then I realize I…
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Long Winding, Descending Road
Hello: For 5 yrs. I am a primary caregiver living with 93 yr mother who has multiple health issues, vascular dementia (VaD) and on Hospice for several months. I believe the end of the road is near. I have been circling various stages of grief as I witness what she is living through (unable to walk, stand, loss of…
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Quick question
My DW is in late stage 5. The past month or so she has begun to shadow me wherever I go in the house. I tried daycare last couple of weeks which was a disaster. After about 2 hours there she began to cry uncontrollably saying that I left her there and wasn’t coming back. Today DW,s aunt came over to watch her while I got…
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Volunteer's?
hi, I'm new to the Vancouver area and I'm in need of volunteers and entertainers, and any ideas of who to reach out to?
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Palliative care
Hi all it’s been awhile since I had trouble with my password 🤦♀️ my daughter keeps wanting me to get my LO on Palliative Care. He is diagnosed Alzheimer’s stage 4-5. Our biggest problem now is getting him to eat. He just says I already ate or I’m not hungry. He talks to himself ALL day, I just don’t know if he would…
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seroquel
Hope everyone has survived the day. I'm searching for a solution to my newest dilemma and hoping you fine folks on here can shed some light. My DH is experiencing some hallucinations (people in the house, vehicle, etc), as well as ever increasing agitation, temper tantrums and fractured sleep. I've scheduled an appointment…
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Newly Diagnosed - Infusion Therapy?
Hi all, I am new to this group and am excited to learn from everyone! My Mom is 85 and recently diagnosed with "early stage" alz. The Neurologist is wanting an updated MRI, but feels that she is a good candidate for infusion therapy. Has anyone has experience with this?? She does very well (still drives and volunteers at…
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Early in journey and feel it is progressing faster than expected
My wife has been diagnosed with early stage Alzheimer’s. She is on Leqembi infusions (7 complete), aricept but feel she is progressing. She is still working part time at Trader Joe’s and they are so accommodating…that is great for her to keep her going. She drives pretty much locally. Has anyone’s LO been on Leqembi…did it…
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I Want To Live With Someone Else
My spouse with nearly complete aphasia has managed to pull out that full sentence for a couple of weeks now. She is soooooo sick of me being her caregiver. I now represent the person controlling her life and keeping her from driving to go see friends, etc. Which I am, though I'm providing her a safe, loving and comfortable…
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Do I let go or keep going?
My SO who is 46yo EOA is on hospice but thus far it has been more of palliative care. This last week has taken a HUGE turn. The week prior he was up and walking around during the day and would be resting/sleeping when I got home after work from about 5pm till bedtime (8pm/9pm). This last Thursday he lost balance and fell…
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Becoming mean
My mom is 90, currently in independent living apartment. She picked the facility 10 years ago so she could access transitional help as she aged. I believe she is in the latter part of early stage dementia. The last year she bas become very argumentative with everyone … fired one cleaning service and “hates” the new one.…
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Hospice and new strategies
Good morning. Some off you know me. Briefly DW diagnosed in 2019. Clearly in later stages. I tend not to use the stage number because it gets confusing but she's clearly in stage 6 area. Non verbal except jabbers all the time in a sort of distressed manner. I think it would be classified as global aphasia. Not totally…
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ARIA - Do most medical professionals / EMTs know what this is???
I will soo start Leqembi and want to get a medical Id bracelet. I was thinking of putting "at risk for ARIA" but am not sure this is a well known term? Any insight?