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Emergency Respite Care
Hello! I’ve been a longtime member here but haven’t checked in for several months. I wanted to share my recent experience with my own emergency situation and what happened with DH. Although he was diagnosed in 2013, he’s been declining very quickly during the past year and a half. He’s probably very late stage 6. He…
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Antibiotics for (presumed) UTI
I noticed on mom's last pharmacy bill that she'd been prescribed an antibiotic in mid November. I had heard nothing about this so I contacted the NP who provides care at mom's MC. She replied that the med was prescribed "at request of staff due to some behaviors." I also heard nothing from MC last month about unusual…
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Can't remember my DW pre-dementia
I am in stage 8. My DW was diagnosed in 2016 and died in August of this year. Her symptoms started in 2012. I cannot remember what my DW was like pre-dementia. It makes me so sad. I hope those memories will eventually come back…
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No Time For Grieving
My heart is broken. My Mom passed away a week ago and she was my rock. She couldn’t help me physically with my DH who has Parkinson’s/dementia but she was always there to talk and keep me sane. Now she’s gone and I want to crawl up in a ball and just grieve but I can’t because all the things we do for our spouses still…
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Extremely overwhelmed
my husband is in the hospital, I spent Christmas there. When I got home I was so relieved. However all his many tests showed he was fine. Apparently his meds are the problem. We called 911 because he was unresponsive and fading fast. I’m sure they will release him today and I don’t know what to do. I was told by a nurse…
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How have you handled this care issue?
We seem to have reached a new stage in this affair in that my DH is no longer able to stand from sitting for me to get him onto the toilet. He seems to just get stuck and can’t connect how to stand from sitting. Although he can still perform this activity, it’s getting more and more frequent that I can’t, even with…
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My DH to begin Leqembi infusions
My 82 y/o DH has been diagnosed with Alzhemer's and qualifies for these infusions that will start soon. Anyone else here have experience with this medication.
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Problems with aides because DH is a difficult patient
Today I went in earlier than usual to visit my DH in a SNF. I waited in the hall while the hospice aide and SNF aide washed and changed my DH. Here and there I could hear him yelling and calling the hospice aide a b*tch. In the meantime, a maintenance worker, who didn't see me, went into the room and said, "mind if I join…
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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Mother wanting to leave AL - arranging movers
I just moved my mom into AL the day before Thanksgiving - not even two weeks ago. That day she said she’d “sleep on the couch” (I haven’t sold her condo yet). I said she was moving that day, and she had to stay there. She’s been in the decision-making process of where to go. I tried to pick the best possible place, and…
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What Should I Say?
I am visiting with my parents for a few days and my Mom is very confused. She has Alzheimer’s . She often does not recognize my Dad and thinks he’s an imposter. She is scared of him. He will tell her it’s him. My brother lives with her and he says “that’s Dad.” My Mom is very confused. She says the only two people she…
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New diagnosis
My husband had been diagnosed with moderate dementia/Alzheimers. He goes in for MRI the first of the year. He is only 69. He also was diagnosed with chronic myeloid leukemia.
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Waiting and waiting to finish last Dx test
I see so many here who have been newly diagnosed, and I truly hope you can all get the support you need. I have had all the medical Dx tests—MRIs, biomarker blood work, PET scan. They all point to early stage ALZ, but I still need to have the comprehensive neuropsyche evaluation, but I need to wait until late March to…
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Need suggestions on responses, please...
I am new here, and I have been reading through some posts and it is really comforting knowing that I am not alone and this is reasonably "normal". However, I could really use some advice: My mom is now in a memory care unit, she believes it to be a hotel. She will keep asking me if she needs to go to the front desk to pay…
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Electrical work
Hi. This is my first post. I have a relative who is in the middle stages of cognitive decline and is waiting for an appointment to receive a more official diagnosis. Their spouse insists that he live at home. Over the years he's done most of his home repairs. He believes he is still capable of doing such repairs and helps…
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Looking for Support Here
Hello all, I have some form of dementia that may be vascular or Alzheimers. I have had the ususal tests, MRIs, blood work for biomarkers, PET scan and consultation with well respected neurologists in Northern Virginia. I am looking more for support both emotionally and in terms of locating resources for support available…
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New
Hello, I am new to this site. I have just now felt the need to reach out for support. I have been telling my wife that the presents are not to be opened till Christmas. Well, she opened hers and her son's Christmas Eve. I was so disappointed. A few years ago, while we were in Michigan, my wife was given depression pills.…
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Anyone experiencing body pains
hi am am newly diagnosed early onset dementia, My doctor is still finding out what kind dementia I have My understanding is I have Alzheimer’s in my blood but not reached my brain yet , what the heck does that mean ? I am having a Pet scan next , I kind feel like my doc just dumped me or put me on hold , I don’t know if…
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Alone This Holiday?
I am just curious how many others of you are spending holidays alone. Our children’s rotation is to in-laws this year. We normally get an invitation from friends to at least one holiday gathering but no invitations this year. I can’t help but conclude that it is because we are becoming more and more isolated because of…
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“Fiblets”
I am having a very difficult time lying to my husband who has dementia! I have always been that person who people could trust and know I would be honest! But now I find I am being dishonest and lying to my husband. I just want to tell him he is not allowed to drive anymore and it’s not safe and that his beloved truck is in…
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Crying out of nowhere.
It’s funny how certain things will trigger our emotions. My DW and I were sitting comfortably in our recliners last night listening to Christmas music. We were both enjoying the time and then came an Elvis Christmas song “Santa bring my baby back to me”. Out of nowhere I just lost it and started weeping.
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At peace
My DH is at peace. I held his hand as he took his last breaths listening to Chopin and the Lords Prayer at 3am this morning in bed at home. I am grateful that I was awake to say “I love you” as he took his final breaths. The end came quickly after he lost his ability to swallow any liquid three days ago. His last words to…
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DH is going to MC and I am not OK
I’ve been quiet for a while and my DH has gotten much worse in the past 6 months after having back surgery and spine injections without any pain relief. Naturally, this along with the pain pills have caused him to go downhill. He is solidly in stage 6 of vascular dementia (eight years into this journey). Our grown kids had…
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Hospital to Rehap = Late Stage of Alzheimer's
My DH was taken to the hospital where he was discovered to have fluid in his lungs. While being treated for 5 days he caught the flu there. He walked into the hospital and could clearly be understood. After spending 3 weeks there and losing 22 pounds he was transferred to rehap. Now he does not walk, can barely speak and…
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When you can no longer provide care
I came across this helpful post on another forum so I decided to share it. It's a response to a person in CA, so medi Cal is mentioned, but I feel like this is universally helpful. It was written by David Halpern, author of "Overwhelmed With Family Caregiving-Now take Control." It is very courageous for you to post your…
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Minor illnesses
I’m finding it challenging when I get a bad cold, flu etc and don’t feel like doing all the meals and other household duties. I get very upset because I just can’t do it all when I’m sick. Luckily it’s not very often.
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New here. Need help understanding.
I’m at the beginning stages of learning about dementia and how to help my mom navigate dementia. She recently became aggressive toward me and accused me of stealing some dolls from her. She told me I was the devil and she was going to shoot me with a gun. Although I wasn’t in any real danger, it was still scary and it…
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Valuable resources from Michael Ellenbogen
Michael recently sent me this valuable information: https://mybrainguide.org/clinical-trials/ https://mybrainguide.org/?gad_source=1&gad_campaignid=23068332846&gbraid=0AAAABBAIqH7frDwN-d8NcMo_n74usOgPt&gclid=EAIaIQobChMIsNSssuzKkQMVoSvUAR0n_wuOEAAYAiAAEgLdy
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Hospice for Alzheimer's
I think I have read here about people who have had their loved one receive hospice care paid by Medicaid even if they were not judged with less than 6 months to live. Did I read correctly? As Medicaid is a federal program, I don't understand that "exceptions" would be made, so how is this handled? Does the doctor lead the…
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I've been sick. Now depressed and worried.
Right before Thanksgiving, a virus was going around DH MC and he got it. So did I. We both got pneumonia. This is the second time I have gotten pneumonia this year and it is really taking me down. My energy and strength are low and I am still coughing. On top of that, I have been having trouble with my legs. They tingle…