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Discussion List
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Need help
I'm a full time caregiver to my wife. She has good days and bad. She recently had a knee replacement which actually has gone pretty well. She's doing a great job recovering from that. My main concern is my sanity and health. Her Alzheimer's is really progressing and I'm having a hard time diverting her "discussions" which…
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Supporting a supporter
Hi there, community. Alzheimer’s and dementia gallop in my family. Currently, my grandfather is advancing and it’s very different from other family members. I think he’s facing a lot of fear as a man who is used to being very in control. My mom and uncle are caring for him though he is still living alone (and driving, god…
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Can’t get ADLO to understand he goes to social group only on Tuesday and Thursday
I need some advice. I can’t get my ADLO to understand that he goes to his social group only on Tuesday and Thursday. The five days that he is home are trying because he gets up and dressed to go and gets mad at me because I don’t take him there. He says that I don’t get it. Of course he doesn’t explain exactly what I don’t…
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Covid is still with us!
I am recovering from my third bout with Covid. I want to remind and warn everyone to continue to take precautions. I let my guard down and I got infected. I usually wear a mask and swab my area with disinfectant on a plane, but I didn't on my last trip, and three days later I came down with Covid. I had all the Covid…
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What happens between dementia appointments?
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Any gay caregiver caring for their spouse or partner in Vegas?
My husband was diagnosed with Alzhemiers in 2022, and after a fall, he has progressed rapidly. Currently he is in a memory care facility in Vegas. It seems that there arent any body in a similar situation as me, and it feels very isolating. Any one in Vegas in a similar situation?
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Sudden appetite increase?
My DW is at stage 7b per hospice. She has total aphasia. She’s lost about 40lbs over the last year and a half. She’s down to 100 lbs. She’s leveled off here for the last several months. Recently though, maybe the last month and a half, her appetite has really been up. She’s pretty much eating everything we put in front of…
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Need to vent- Struggling as a F 29 y/o caring for Dad
I don’t even know where to begin. I’m just looking to vent and feel seen as I feel most of my friends do not understand and I have no family. My dad is 84 and was diagnosed with frontotemporal dementia about 4 years ago. My parents divorced when I was young and I have 1 younger sister. When dad was no longer able to live…
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I Just want her back
During the nighttime bathroom break as we both rolled to our own side of the bed, I started crying. I know it was years ago but I want the original version back. The one who would cuddle up next to me. Every day we're together but I am alone. We barely have nice conversations, I tiptoe and she's always right to avoid…
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Asking "I want to go home"
Hello, I recently started to care for my mother-in-law she is recovering from a stroke and has mid stage dementia. We relocated her from another state as she can no longer live alone. She asks about going home every hour it seems like. I try to change the topic and divert the conversation and it works for a couple minutes.…
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"typical" behavior
We periodically check in with DW PCP and have regular visits from our palliative care nurse. DW's behavior has changed quite a bit as the disease progresses. However, it seems no matter what behavior I describe, the response from the medical professionals is always the same, "that is typical". Sleeps all the time or cannot…
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Making to transition to a memory care facility
My 89 year old step father has become increasingly angry and verbally abusive to my 89 year old mother who is currently caring for him. This has taken a real toll on her and her anxiety level is off the charts. She is reluctant to begin the conversation about locating a facility given his stated desire to remain at home as…
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Infusions
My husband will have his first Leqembi infusion this week. What symptoms should I expect after the first treatment? Will he need to sleep the rest of the day? Will he be nauseated, have a headache, generally be "out of it" and how long will any of these symptoms last after the first infusion. Will these same side effects…
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first time post
I joined because I feel like I could use some tips, advice and help. I don't do a bad job caring for my wife, but I could improve. I think I am sometimes too impatient with the seemingly endless challenging behaviors. There is rarely a single triggering issue, but usually the accumulation of behaviors, that makes my…
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Hospital Delirium Again
I won’t go into the horror story of my husbands last night in the hospital with delirium, but instead focus on a more humorous story he told. I left the hospital to feed our dogs and when I came back a nurse was in the room. She told me my husband was just telling her how he lost his fingers to a shark attack. I started…
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Stress and Guilt for how I feel about taking care of Dad
I wake up with panic attacks, if I sleep a full night at all. The stress from my situation is affecting my health. It has taken over my life for over two years now. Let me explain. My parents married as teenagers. They were married long enough to have me and my sister. Then they divorced and remarried. My Dad married a…
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Surprised
Just when I think I’ve got this I am hit with a “you’ve got to be kidding me moment”. My shock rears its head and I want to scream (I didn’t) “what were you thinking”? Today my DH used a serated knife to “clean the sticky stuff” off the dining room table. He took the finish off down to bare wood at least 5 inches across!…
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Struggling with providing care for my very willful Mom
I'm new here, but desperate for help with handling these difficult things, and feeling like I'm really botching this pretty badly. A little over a year ago, I moved in to look after my Mom, who was diagnosed with Alzheimer's when she was still somewhere in the middle stages. My family was never good with communication or…
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Can anyone recommend a GPS device in the form of a bracelet or necklace so I can track my mother mov
Looking for a device that my mother can where so I can track her whereabouts? She doesn't always take her phone with her when she goes out. So I thought if she could have a device on that she doesn't remove so I can track here on my phone. She doesn't wander at the moment but I rather be prepared in case she does
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How to know when to use hospice
Hello, I don't know where to start. My Dad is 88 and has alzheimers and its getting worse. His short term memory is almost gone, now some long term and he has can't understand things very much anymore. He lives in assisted living, but he is getting worse and his physical health is failing. My sister and I are durable…
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Fingernails and toenails getting long
My DW won't trim her fingernails and toenails. She won't allow me to trim them either. She's not quite as bad as how Howard Hughes was. 🤣 Any ideas to this one? Thanks.
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Switching from daughter to caregiver… resources, advice, anything?
As the title states, I’m wanting to know the wheres, whats, whens, whos, hows, and whys do you utilize the most? Not getting much help from my dad’s (newly diagnosed early onset Alzheimer’s) doctor. When I asked for some recommendations (medicine management, in home care, support groups, etc.), all I got was checkout the…
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Just need to talk to my friends (220)
Welcome to July!! One of my least favorite months because it is so hot. You all be careful In the heat. Not really sure.how long it will.be before I get the test results. One place I read said 72 hours and another said up to 14 days. My doctor did say it might be that I'm.not far enough along in the incubation period to…
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need help dealing with delusions
My DH has told me that the neighbors across the street have 20 or more children in their basement. He claims he saw it on live video through the Zillow real estate app. He asked my opinion of what he should do about it. I advised him to do nothing right now. He sits and mulls it over in his head and worries. I don't think…
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Early onset and very critical?
My (f65) wife (61) was diagnosed earlier this year with early onset. She has very minor cognitive impairment, but I feel like she is becoming increasingly critical and sensitive to minor things. This is really affecting our relationship. How do I cope with this?
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Recently diagnosed
I wanted to introduce myself and get involved. I am recently diagnosed with "mild cognitive decline" related to Alzheimers. I am a recently retired pastor and have cared for many Alzheimer patients and their family so I know what is ahead of me. I have a million questions and don't know where to begin. Thank you.
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Help! I don't know what to do.
My mother will not acknowledge that she has Alz. or that she needs help from a paid caregiver when I am at work. My husband has rearranged his work schedule so that he can be home 2 days out of the work week. The other three we have hired a non medical aid (private pay). My mother does need this help, but she is throwing a…
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The long journey is over
My precious dear wife passed yesterday after an 8 1/2 - year journey with early onset Alzheimer's. She was 55 when first diagnosed and had just turned 64 this month. Of course, I am deeply saddened by her passing but also relieved at the same time. It has been a long hard journey for us both. There are so many of you on…
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I’m not me
My DH looked me square in the eye today and said “ where’s rose. “ He’s been asking now for sometime and I never know quite what to say. That got me thinking. I think I’m so scared, overwhelmed and beyond exhausted that I am in fact a completely different person. I’m not me anymore and DH knows this. But how or can you…
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Hospice
Usually I come here to rant and vent. 😁 But not today. Today I'm here to sing the praises of Hospice. DH was placed on Hospice almost 4 years ago. DH was in memory care at the time, and losing weight and had just entered a big decline. I decided to call hospice and see if he would qualify. He did. In the last 4 years they…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
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