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Communication
First post, so forgive me for any missteps. My DW (61) was diagnosed with Alzheimers earlier this year, but symptoms have been present for about 3 years. Our major issue seems to be communication......it always seems to be confrontational. She feels I do not have any patience (somewhat true) and I feel she constantly…
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Driving with MCI diagnosis
I am 77 years old and recently diagnosed with MCI. I have few symptoms. My husband went to a support group recently and was told I should not be driving. Because any symptoms I do have are not really difficult from those typical of “old age.” I hate giving up driving. Any thoughts?
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Memory Care Facility
There are so many MC facilities in So Cal that I just don't know what to do. Are any of you able to recommend a MC (or several MCs) to me in SoCal. Happy holidays, Russ
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It’s finally real
I’ve known my mom has dementia for at least a few years but we finally got the official Alzheimer’s diagnosis a couple months ago. I moved her into an assisted living community a little over a year ago because it wasn’t safe at home but we were dancing around the dementia issue and focusing on getting her heathy otherwise.…
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Im 40 and he was 46.
My loved one of 6 years, 3 months, 26 days passed on November 29th. Today was my first day back to work. I was supposed to go in yesterday but anxiety struck me. I work in a pharmacy located in a doctor office. I only broke once today. However now I can't stop crying. I miss my Luis so much. I feel like i have been in…
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Dementia Paranoia Psychosis
My dad is in the hospital for a real physical ailment. But he is getting extremely angry and combative with staff. He is convinced they are all out to harm him. I don't know what I can do because I can't help him when he is delusional. I feel hopeless and out of control of the situation. He literally is refusing medication…
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It's a sad day
It's a sad day. I was in the backyard when I heard Donna bawling. I came in to see her yelling, jumping up and down and hitting the wall with her fist. When she saw me she charged at me saying I'm going to bash your face in (she stopped short) saying that if she had a gun she'd kill me. She's been on Quetiapine 25mg for…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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Using AI
I was curious as to how many of you may be using an AI platform like ChtGPT to converse about your LO. I have found this to be a very useful tool for several aspects: understanding observations, understanding the medications more in depth, confirming I'm doing the right things, confirming I'm not the only one that loses my…
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Hospice while in MC
Before I ask the people here at MC, can anyone comment on the benefits of having hospice while your LO is in MC? I’m not sure yet if he’ll qualify but wondering if it’s worth trying. He’s in late Stage 6. I don’t know how it works between hospice and the current staff nurses and caregivers. Just looking for some comments…
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TV Response
My DW with EO late stage 5 sits and watches a lot of TV lately. Her favorite is Hallmark movies but she does like to watch NCIS or Law and Order. The problem is she thinks the TV is real life. Watching Hallmark she is very calm but with the others , she jumps up and gets a foot away from the screen upset with what’s…
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Accusations
My mum is still officially undiagnosed but has been assessed by social workers and has confirmed memory loss. She always loses things (so do I) but it is literally everything with my mum. Unfortunately she accuses other people of taking things. She has accused my brother of stealing money and his daughter of stealing…
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Medicaid Cuts, Inside Info or Tea Leaf Readers?
Spoke to a Medicaid attorney about father's remaining $ and an irrevocable trust. You lose 1 month of Medicaid eligibility for every $10k you set aside (in CO). Problem is, $1 trillion cuts are set to go in effect 1/1/27 so the attorney said he can't guarantee any outcomes at this point. If those stay in effect, the care…
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Lost My Father Tragically - Learning How to Move Forward
Hi everyone, My father died as a result of dementia. During the night, he became confused and unsafe, something dementia had been causing more and more often. He left the house, and by the time my mother found him in the morning, it was too late. Writing that still feels unreal. What I am struggling with most now is guilt.…
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The Stage 8 Club
I first learned the term, stage 8, on this forum just a few days ago. Never new what i would call my life after she passed. It has been a little over three weeks since my dear wife left me and the family. It was a long eight year journey but thankfully she did not suffer physically or by some other health condition and she…
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Supplements?
Hi All, This is my 2nd question here I’m posting. Knowing now that my dad has dementia, I’m now interested in taking any conceivable preventative actions to benefit myself. To my knowledge there are (at least) 2 well-known OTC Memory Supplements on the market. One of them is Prevagen and I’m not sure offhand the name of…
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87 yr old man with dementia missing…
Please don’t leave your loved ones with dementia alone for any period of time. When you are caring for them, have locks on the inside of all exits. This is so sad! Petro Kugo an 87-year-old man with dementia, reported missing and endangered from Largo, Florida, as of December 13, 2025. 😢🙏
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transition to incontinence
Most of us understand that we will eventually have to deal with this, but are any of us really prepared? This weekend DW went from having a rare, occasional accident to being unable to use the toilet. It felt like she was peeing everywhere but in the toilet. She still has good mobility and seems to get up when it is time…
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Did I draw the short straw...
I have really enjoyed being part of this forum. I get a lot of good information and it's great to share experiences. One thing I notice though is that many of you mention 'watching tv' or 'listening to music' or just in general interacting with your LOs in ways that I can't relate to anymore. And you say they are in the…
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Working?
I’m in the stage in which I recognize my own diminished cognitive skills, but don’t have a diagnosis yet. My job performance is suffering, which is very stressful. How did you navigate this phase? Which came first, your diagnosis or problems at work? Did you resign, or use long term disability? Our family relies on my…
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PET Scan Amyloid results
DH just had amyloid pet scan. Just reaching out to see if anyone has any insight on where he might be with all of this based on the widespread findings. Findings were: "Tracer activity is noted in the brainstem and cerebellar peduncles but not in the cerebellar hemispheres. Tracer activity is noted in the frontal,…
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My DH is wanting to spend every minute with me
My DH is recovering well from knee surgery. I have been caring for him and not leaving the house for 4 weeks. He gets around with a walker and I can take the dog out for a walk now. He gets mad if I am out longer talking to neighbor. Doesn’t know what to do with himself. I looked into having a caregiver come to our house…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Anger
My DW was recently diagnosed with ES. She suddenly turned angry at me as if I was to blame. She is violent in her behavior with horrible language, extremely scary facial expressions, and on a couple occasions physically striking me. Should this type of behavior be expected or is it evidence of another behavioral issue? At…
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Husband recently diagnosed with Alzheimer's.
I would love to hear from others who have been a caregiver for your loved one with what I need to do, be aware of, or what was the biggest help for you as you began your journey.
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Snacking problem
My DH (stage 4-ish ALZ) is snacking constantly. I've stopped buying anything "junk food" (nuts, cookies, etc) and have been buying him grapes, raisins, and mandarins which he will consume as much of as I leave out. I've hidden most of the foods that he can snack on but I'm at my wits end. He goes through the fridge,…
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The final blow to my Christmas spirit.....
My DH is in hospice care, and I know this will be his last Christmas. I have been trying to find some joy here and there, but on Wednesday my beloved 14-year-old kitty had to be put down. He had a mass in his abdomen and had stopped eating. His brother, my other kitty, died in September. I just feel like everything from my…
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How to decide if family member with cognitive decline can be allowed to stay in home, living alone.
I am writing for advice about my sister who has been diagnosed with dementia that is vascular related, not Alzheimers. For the last five years, her declining decision making and ability to engage in executive functions, such as managing medications or finances, has become evident to me, her health care provider, and her…
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Impulsive
DW decided this morning that she "had" to be at church early this morning to tell the pastors something. I caught myself realizing that this was one of those situations where I knew there would be no reasoning with her broken reasoner so we went early and upon arrival I just dropped her off at the door and parked the car…
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I wish you all peace
This is an extremely difficult, unexpected journey we are all on. Every day has so many challenges, it sometimes feels like the rest of life is passing us by because our loved ones and our focus have become narrower. While everyone else is getting ready for Christmas, we struggle every day to give our very best and run on…