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Discussion List
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Traveling Internationally With Dementia, Wandering Concerns, and Medical Alert Bracelet Recommendati
My dad is taking my mom to Mexico for stem cell treatment related to her dementia. He is going alone as her sole support person/caregiver. i’ve tried everything I could to try to stop this trip from happening not only does the procedure scare me with a alone. This is something that my dad is determined to do. My mom is a…
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DH doesn’t allow me to go to medical appointments
My DH of 50+ years has always been “difficult” and fiercely private. He goes to the VA for his medical care and has 100% disability rating. He has shown signs for a few years of cognitive decline and then was also in an accident 5 years ago where he had a tbi in the frontal region. He refuses to allow me to go to any of…
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Stress, guilt, confusion
My oldest sister told me she was diagnosed with Alzheimer's a month ago. I know she's had mild memory loss for years, but she hid it well. It still seems mild to me, but I've never known anyone with this disease. She calls me to tell me that I never call her, although we speak frequently. When the conversation starts, she…
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Do we pretend we're not caregivers with our Loved ones?
Here I am again, to vent or get support, or ask for advice. I'm just so numb with this journey I'm not sure what I'm wanting. Andsorry in advance as I know this will be long. I need to get it all of my chest and this is the only place I can do that. My DH is in mid stage 5 probably. Still able to care for himself, but…
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New to this group. Living overseas, trying to help mother who insists she is "fine"
Hello! I am living overseas and trying to support my mother in WA state who is clearly going through a decline. She is still independent in the sense that she can drive (short distances to routine locations around town), walks at a track daily and prepares simple meals (salads and microwaved foods). However, her short term…
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When your LO changes their minds
First let me say hello, I am new in this group. But not new to caregiving. That’s another story… This is about my sister is 91 and diagnosed as stage 4 with Alzheimer. She lives alone on the west coast. She still is quite intelligent, humorous and “with it” in terms of knowing friends and family and her long term memory is…
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A Visit, Perhaps
It's been nearly 6 months since my dear Suze passed away. I had 3 very busy months of memorial planning and respite trips away that I'd planned before she had passed. I was riding quite high on gratitude of knowing she wasn't suffering anymore and knowing how lucky we were to share the deep love we had. Still pretty high…
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recurrent UTIs
has anyone figured out how to address these for their parent? my mom keeps getting them. she lives with an aide but the aide is not paid to change her in the middle of the night. I dont know if that's what is causing these but they keep coming back and she is getting weaker and weaker. she takes cranberry each day. and she…
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Any Caregivers in or near Buford, Georgia?
Looking for other full time caregivers locally to me, that maybe we can connect and support each other. I am a full time caregiver for my father with dementia. I have siblings that do not help out with my dad and so it makes me feel alone. It would be nice to be able to help others and also find some like minded people to…
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Change of my getting a new car has caused the worst confusion ever
My DH and I only have one car and I do most of the driving. It’s a very old car and recently has become unreliable, so I took him with me to a dealership and bought a new car. This has caused severe confusion and he can’t seem to grasp that we now have a different car. He woke up in the middle of the night and was very…
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Is this the best we can do?
I'm sitting here waiting for my wife to die. She hasn't eaten and taken fluids in 7 days. Hospice tells me her body is shutting down and that she is not really suffering. And yet we are giving her morphine and ativan to "keep her comfortable". In this society we can put our animals "asleep" when they are terminal to keep…
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Driving - any ideas on softening the blow?
My husband has Alzheimers and is slowly getting worse. 3 doctors and some friends have said he shouldn't be driving. He went for a road test but failed the eye test so couldn't do the road test then went to an optometrist who said he was Ok to drive and sent in the forms from the DMV. We haven't heard from DMV and I made…
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Needing to talk to someone, anyone who can relate
My mom was diagnosed with Alzheimer's in February. This was after years of me pushing and pushing. Till she finally realized she needed help. She would get lost while driving every day. At that point she was still working 12-hour shifts 3 days a week. We got the diagnosis and everything turned upside down. She couldn't…
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Stuck & Need Some Hope
I am and utilizing as many resources as I can to try and get my mom to possibly get into a memory care unit or home health care. She is starting to get more aggressive I feel like I am in an abusive relationship. I don't know what my day is going to be like good or bad. We are still working with adjusting her medication so…
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New & Scared
Hello, my husband just had a brain scan and one doctor said it showed early signs of Alzheimer's. When we went to see his general practitioner and the doctor who ordered the scan, he said no that the scan showed normal narrowing of arteries & veins and some shrinkage of the brain that he found normal for a 79 yr old man. I…
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I did the best that I could
I get tired of hearing about the people who were able to care for their spouses at home until the spouse passed away. I cared for my DH for as long as I could. His doctor and much of my family tell me I took care of him a few months longer than I should have. My DH was mean and angry most of the time. He wouldn't let me…
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Need to vent about my brother
Mom is diabetic and has edema in her legs. She refuses to wear support stockings and eats any sweet treat she is offered, yet asks me every time I bring her snacks if they are low calorie (not low carb), because she is worried about her diabetes. If I buy her low carb stuff she doesn’t like it, so I’m usually vague and…
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Just need to vent today
I am really struggling. My 78 dh has VD and is declining physically. He can still do his ADLs but hasn't showered in 6 weeks, even with offers to help. I bought washing cloths, doesn't want them either. He is losing his mobility and needs to use a scooter cart or can use a rollator with a seat for very short distances. He…
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Mom is getting bored in Memory Supported AL
Hello to everyone here, I am appreciative of this board and those who participate in it! I am out of town but I talk to my mom and hear her complaints that there is nothing to do in MSAL. My sister has talked to the Activities Coordinator who allegedly has tried to do some actitivities one on one with my mom. I think the…
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Anger/Suspicion/Halucinations/Paranoia
My DW has recently (6 mos) been diagnosed with ES Alzheimers. She has been tested for LBD, PDD and had all the psychological testing. This included the blood tests and MRI. The result was Alzheimers Dementia with some underlying psychological issues. She is on Donepezil at a low dose. We have been married for 59 years , so…
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Nighttime incontinence leaks
my stage 5-6 DW is incontinent at night about 1/2 the time. Real problem is the Always Discreet pullups don’t hold the flow. The pj’s, and sheets are soaked but the save is the underpads that keep it off the mattress. I don’t have her drink anything after 5pm. Any ideas or a better brand? Thank you all for this forum.
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New to this
Hi Everyone. Been reading alot of your posts for the past few months and now am ready to jump in with our journey. DH is 67 and I am 58. I was able to retire in 2024 and noticed some behavior regarding his memory. Not able to multi task (more so than usual) Got all the testing done and DH was diagnosed w/Alz about a year…
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Wife screaming for no reason
She starts screaming for no reason.
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My Husband Just Diagnosed with Early Onset Alzheimer's
Hello everyone, this is my first message, and I can use any advice you can spare. My 59-year-old husband was just diagnosed with EOA. We're both devastated. He was told he had ADHD a few years ago, plus he wears hearing aids (he's lost 90% of hearing due to being a former construction worker) so we thought his…
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New to this community
Hello my Mom has Alzheimer's and I am really struggling. I want to make sure I am doing everything right. My mom keeps coming into the kitchen and making food, but she is not cooking the food properly and she eats and then forgets she ate and comes down to make another meal. How do you stop someone from cooking and…
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Greetings and question about stove safety
The short version: Has anyone tried "smart" knobs for a stove such as the TochTech SmartTurns, or other stove safety products? The long version: Some of you may remember I was a contributor here for years while caring for my mom with Alz. This forum was such a blessing when I was starting out. She's been gone since 2022…
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Actively dying
The Hospice Home Health Aide, arrived on Thursday, June 25 to give my husband a bath. He was sleepier than usual and at the end of her visit she said, “I think your husband is actively dying.” I said no, he will bounce back, he always bounces back. He’s had days like this where he just sleeps. She said I don’t think he’s…
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Joining my first club. Never wanted to be a part of
well here I am. I’m joining my first Alzheimers support group. My DH was diagnosed this year with YOD. Deeper digging/tests confirmed Alzheimers and Vascular Dementia. This was like the cherry on top of the PTSD that started 4 years ago. There’s no denial in this because it all makes sense now for the bad memory and…
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My DH passed away
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Need help with discreet hearing aids
My grandmother’s husband is going deaf, is showing signs of Alzheimer’s, and is refusing to go to the doctor for either issue or to buy hearing aids. My grandmother has never been great on the caregiving front, and her health taking a turn for the worse hasn’t helped things. They also live in the middle of nowhere England…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
Looking for information and support for Alzheimer's disease or other dementias? Click here to view our Dementia Resources
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