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Caregiver
Caregiver for my husband. He has Alzheimer’s. Urinary and fecal incontinence starting. Suggestions on how to handle. Becoming hard to deal with.
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Getting my mom to her doctor appointment
I made my mom a Neurology appointment on 1/13. My dad is worried that if she finds out she'll have a total breakdown. So far she doesn't seem to have gotten any notifications about it, but she likely will get a text and/or email reminder for it. If we can even make it to the appointment day without her finding out and…
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Length of stages 6 & 7
How long was your loved one in stage 6 and stage 7….or for how long have they been? I think we’re mid stage 6….been here for about a year.
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Electric Razor
My husband has been diagnosed with ALZ for 5 years now. The progression has been slow, thankfully. I notice that he is having a hard time shaving. Can someone recommend an electric razor for me to buy that is very simple and basic. Thank you
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Apologies...
I came here today to apologize to this community. I belonged to 3 other groups in addition to this forum. I was asked by the moderator of one of those groups to no longer use the words "terrifying" or "heartbreaking" when I refer to Alzheimer's. The reasoning is that everyone progresses differently and some don't have the…
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New for me
Hi all, DH was finally diagnosed with early onset ALZ (he is 66, I had struggled to get him to get evaluated for the last few years, so the doctors say he is the end of early stage, beginning of middle stage - although I still don't know what all the terms mean). He was able to pass a driving test so has a conditional…
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PTSD with an ALZ diagnosis
New here. My DH (diagnosed at 55 now 57) previously struggled with PTSD. We still have a teenager I want to do the best for her as well as him. Does anyone have experience they can share - what helped navigate it? what didn't?
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Dizziness
Good morning all. We are in this journey now for about 10 years. My DW is in stage 4.5-5 or so. Two days ago she got very dizzy at the physical therapist and while it’s gotten better she continues to complain of being dizzy. At the PT a paramedic assessed her for the emergent problems of dizziness. Before we head to Urgent…
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How to deal with dangerous “lies”
Hi all, new here and first post. My husband is the primary caregiver for his elderly mom. Her dementia is progressing and as such, so is her misperception and “lying”. We attempt to redirect her when she claims her jewelry and money is missing or has been stolen. However, recently she told another family member that my…
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Looking for someone to help me launch Support Grouo.
I am the Pastor/Chaplain for Holbrook Acworth. I am looking for someone to help me facilitate a monthly support group at our location.
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Depends
How do you get them to wear deoends? My BF 45yo EOAsoils himself everyday. He has peed on my side of the bed several times and today on his side of the bed. I. Am. Over. It. He is convinced it's not him and yells at me that it's not. I tell him I'm not even home and that I'm potty trained. The caregiver wants him to wear…
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when should caretaker prepare for incontinence in bed?
Hoping for some advice from the more experienced here... I've been reading posts about pads and adult diapers and getting up with a demented spouses at night, and while we're not really there yet (no accidents, he gets up by himself at night), I expect we will get to that point at some point in the future. I would like to…
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Staying up ALL NIGHT?
My Mom was diagnosed about 6 months ago. We have struggled to find the right medicine combo for her—initially trying to treat her with just Zoloft and Gabapentin, but after so many days of truly despondent mornings, we decided to Zyprexa. At her initial dose, she had a very quick improvement in mood (though an increase in…
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My wife is becoming a chipmunk.
Something new going on. Now my DW, more than once, will "eat" something but, leave the food in her mouth without swallowing. For hours. I try to get her to open her mouth, but she refuses. EVENTUALLY she will open her mouth and I can see all the masticated food inside her lips and all around her teeth. With much cajoling I…
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This disease makes EVERYTHING harder
I sit here on New Years Eve hearing fireworks in the neighborhood with DH asking me every minute or so what those noises are, and checking around outside multiple times. I feel bad that it’s making him nervous and angry and I’m selfishly wishing that people would just celebrate quietly. It adds one more thing to the list…
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Hypnagogic hallucinations
My wife told me she's been having trouble when trying to fall asleep because she's seeing things like vivid scenes of people and something like static on an old TV. We did a Google search and it sounds like hypnagogic hallucinations. We haven't been able to find any connection with MCI or dementia. But this is something…
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Bible Verse to Lift You Up 1/1/25
When Enthusiasm Is Gone Isaiah 40:30-31New International Version 30 "Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." me: When my enthusiasm…
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Bible Verse to Lift You Up 1/1/25
When Enthusiasm Is Gone Isaiah 40:30-31New International Version30 "Even youths grow tired and weary, and young men stumble and fall; 31 but those who hope in the Lord will renew their strength. They will soar on wings like eagles; they will run and not grow weary, they will walk and not be faint." me: When my enthusiasm…
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Anyone have any luck with washable adult diapers?
Hello, Few hours till 2025 here in the east coast, but Alzheimer's doesn't care. It goes on. We're spending a fortune on adult diapers as my LO pees constantly throughout the day given the special nutrition therapy she's on. It keeps her hydrated and well-nourished, and calm, but… it makes her pee constantly. Changing 5 or…
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Hello all, new to this
Hi everyone. My DH was diagnosed with VD within last few months. Short term memory impacted and difficulty with organization. Has gotten "off track" when walking the dogs but recognizes that and can make his way back. Consistency in his routine really helps. Overall he's pleasant. Just wanted to say hello. I've found…
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A funny story
This forum is wonderful for those of us who struggle with caring for our LO. But I find that there are no funny stories here. We often focus on the hardships, but today, I want to share a story that I consider funny. Last year, my DW was able to do her own Christmas shopping. She bought me a sweater online and when it…
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Some people just don't get it
Most friends and family members have some idea of how to relate to my DH who has dementia. But there are a few who don't understand they can't have the same kind of conversation they used to have with him. They keep correcting him when he mixes up details, or says something totally nonsensical. Even had a visiting nurse…
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I Can Buy Myself Flowers
What a rough Christmas for me emotionally. DW not sure where she is a lot of the time, hard 5 hour drive getting her to her family on what may be the last Christmas I make that drive with her, and she got everyone a present but me. I took her shopping and realized later the gift I thought was for me…wasn’t. I have been…
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Rapid Progressive Dementia/Covid19 Related
MY DW passed on 12/06. After a relatively short, but intensely difficult journey. We did not have a confirmed diagnosis, as the tests were all negative and normal for her age. Her health eas rest of a healthy 45 year old, had not had any hospitalizations, rarely sick with a cold. Sometimes allergies. P. She wa sky…
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No Support From My Kids
As expected, this was the worst Christmas ever. My DW goes to the Alzheimer’s Activity Centre 7 hrs a day 5 days a week , however , they are now closed for the Christmas Holidays… reopening on the 2nd Jan 2025 as such It has been very tough for me. Keeping her occupied is brutal . Watching TV for hours is all she does and…
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What planning?
I used to love the start of a new year and being able to plan events. After my mother receiving her diagnosis this past fall, it kind of feels like 2020 again when we never knew how long we would all be stuck. She’s doing well right now and I probably wouldn’t hesitate to leave her alone for a week, but I have no idea what…
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Refuses help
My mother-in-law has Alzheimers and still lives alone but in a senior apt community. She refuses to let us take over and help her with finances although we do have power of attorney for medical and our son was given and accepted the financial power of attorney. In the past when we've mentioned she needs the help, she has…
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Dealing with early stages of this awful disease
Hi I am new here and appreciate this type of forum as we are all having to adapt to this disease. Before we moved out of state we found out that our MIL had a brain tumor. We never had a conversation with her doctor but we could tell there were signs of slight memory loss. My husband made the move out of state before the…
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Is this a stupid question?
But if some one has short term memory loss and is age 85 does that mean AD or just old age? This year, DH short term memory loss has got worse, seemingly quite quickly. I'm very depressed by this as I feel I'm losing him mentally. Is this the start of AD?
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How do I get a diagnosis for a spouse?
I am new to this site. I have noticed behaviors for about a year in my husband. Many of the issues you mention on this site are the behaviors I observed. I have a friend whose husband had Alzheimer’s and she has been so helpful. My husband will never admit he has symptoms. How do I get a diagnosis? He does allow me to go…