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Can you tell me more about visiting MC Facilities?
I helped my mother find a SNF for my grandmother decades ago, but there were like 3 choices in her area… and I don't think there were any MC options near her at the time. Now, I live in a city where the choices are overwhelming (which I imagine is actually a blessing). What am I looking for? I have read that I need to get…
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Just diagnosed with MCI and on Memantine 28mg - Need mental health help !
I am really struggling with this MCI diagnosis and what life is going to be like in 1, 2, 5 years ahead. My older sister died from ALZ and it was horrible. How do you live on day at a time with this diseases ?!?
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Leqembi
My DH starts Leqembi next week. I know the process takes at least 5 hours. My question is this: Can he bring drinks, snacks while he is having the treatment. He should bring something to read I would think. Is someone allowed to stay with him and or come and go during the treatment. Just curious so we can plan the day.
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MC costs
I’ve been reading a lot of posts about caregivers moving their loved ones into facilities once they can no longer care for them. I am not there and I’m praying that the time won’t come when I’m forced into a horrible decision like that. I feel that 80% of the folks that make the move can afford to do so. I’m just wondering…
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Someone’s Been in My Room
My mom has been in an assistant living residency for two years. She thinks that someone is coming into her unit in the middle of the night and disrupting things. It causes her to be very upset. I have cameras in the unit and I can see everything that comes in or out of her place even when I explained that I can see she is…
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New day New challenge
If I’ve learned anything about this terrible disease is everyday seems to bring on a new challenge to deal with. My current challenge is my DW is going into the bathroom to urinate and stands in front of the sink and just pees. This happens in the middle of the night when I’m sleeping. I’ve tried to prepare for when she…
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Having 'The Talk' About Getting a Diagnosis
Hello! Happy to have found this forum because I'm so concerned about my dad. He has had memory impairment, social withdrawal, apathy and basically several symptoms that seem to be in line with Alzheimer's or pre-Alzheimer's MCI to me. Mom has been aware of the memory issues but taking a wait-and-see approach. Some things…
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My Goodness
I’m on an early morning flight back from New York City. I really can’t even express completely how incredible the trip has been. Honestly. It felt like a series of religious experiences. I came to go to the opera at the Met. At first I thought, “what in the world was I thinking going to ‘La Traviata’ just 2 months after…
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Communication tips for caregivers of someone with dementia...
I thought these tips I read on Facebook might be helpful: You asked...and you shall receive! A blog reader recently asked me for a list of communication tips they could give family members for when they visited their parent with dementia. Here goes! Tips on Communicating with Someone Living with Dementia Connect, don’t…
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Mistakes Are Reminders
I have observed that every mistake my DH with ALZ makes causes me an instant wave of sadness because it is a reminder of this disease and the toll it is taking. It reminds me his remaining capabilities are all likely to slip away one by one. It reminds me of all the losses he has already experienced. It reminds me that I…
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Nap time
my DW, stage 5-6, is pleasant and compliant until she obviously needs a nap 2-3x per day. Ok again after a rest but lately she is less cooperative in lying down for a nap. Attitude gets very obstinate and angry. Any ideas how to persuade her to “stretch out” for a bit?
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My oldest dearest friend has dementia
My friend since 1980, the person who has stood by me through thick and thin, who has always been there for me, even when I was living far away…had a fall resulting in a brain bleed in October 2025. I had been visiting her one afternoon a week before this happened and even then, I thought there was a slight amount of…
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Fluctuating hearing
Does anyone have experience with their LO having fluctuating hearing loss? My DH with AL does have hearing loss, but has been able to understand me if I speak just a little louder than normal. But, lately, there have been several days when he hasn't heard me or everything is garbled for him. I cannot tell if he is actually…
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Worst Chapter Of My Life Begins ..
After being together for 56 years , I am going to be separated from my lovely wife who suffers from this dreaded disease…I did my best to keep her home for the longest of time but unfortunately, being Carer 24/7 has taken a toll on me Next week she goes into an Assisted Living Home. Just looking at her brings tears to my…
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Moving My DW to a Home
I am moving my DW to an assisted living facility this week. It’s been long in the making. I won’t get into how we got here but instead I need to know how to make the transition for her and me as smooth as possible. For starters she does not know it’s happening. We have been to the facility together twice. And she does not…
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Medications
Has anyone added a second medication like memantine for memory and thought it has promoted a decline in memory and confusion? I have considered stopping it for my husband but don't know if it's the med or just the quick progression of the disease.
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Leaving Mother with Sitters
I would welcome advise on the best way to leave my mother with her sitters. We built her a small apartment onto our home and when my husband and I try to leave for a few days my mom gets super upset and says she wants to go back home and stay with my brothers who all live 10 hours away and they along with their wives would…
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Not sure what's going on, but I'll take it!
My DH was diagnosed a few months ago. Like everyone else, it really brought me down. He was doing the shuffling walk, forgeting everything he used to know and do, eating and sleeping habits changed drastically and we could barely carry on a conversation. In the past week and a half, there has been a real turn around.…
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Galantamine
I've never heard of this drug, much less, someone on it. My mom's neurologist suggested this medication that will not reverse the damage or retrieve lost functions. It is intended to help her retain the abilities she still currently has in stage 5. Anyone?
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Violent episode
In Canada where we live, we have access to short term respite at a LTC facility. At day 4 of a 7 day stay there was an incident that I am trying to process. Having played hockey at a very high level as a young man it appears he thought he was at hockey practice, started running and body checked a resident, sending the…
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Using Lequembi infusions
Hi- just wanted to connect with anyone who is using Lequembi. DH has had three bi monthly infusioNs to date and one MRI, which showed no abnormal brain bleeds. Seems to be tolerating it well. Our understanding is that it can’t replace current memory loss, but it can dissolve existing plaque and help prevent more from…
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Therapeutic Fibs / Compassionate Fibs
Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…
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ALZ Talk: Opening the Door to New Alzheimer's Treatments
On April 2, Elizabeth Edgerly, PhD, Senior Director of Care & Support Programs and Services interviewed Christopher Weber, PhD, Director of Global Sciences Initiatives. They are both with the Alzheimer's Association, and I have personally met both of them through my role as an Early-Stage Advisor. I've found Dr. Edgerly…
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visiting MC facilities
I'm going to have to start visiting MC Facilities and was wondering about dropping by unannounced vs making an appointment. The glossy ads all look so wonderful and the reviews give a different picture, so was thinking that it might be better to just stop in, so that it is not staged. Anyone have experience with this?
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New to group
This is my first posting to the group. My DH was recently diagnost with Alzheimer's. It's not too bad right now, but he is also a Diabetic and a Kidnery receipient. He takes so many medications now wtih anti-rejection drugs I'm not sure how any new drugs will affect everything. Has anyone had any experience with Diabeties…
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Anyone Living in Assisted Care with LO?
As I continue my research on possible future options to meet my DH’s needs (and mine), I would like to hear your experiences if you or someone you know has lived in assisted care as a couple —-one healthy and one with ALZ. Some care facilities allow this and some don’t in our area. But, as you know, the real information…
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MC Cost
I often hear that a plan B must be explored when the time comes that I cannot provide the care my DW needs. I have looked into a memory care facility and the cost for this is astronomical….$586.00 a day. My financial situation does not qualify for Medicaid so this would completely bankrupt us in a very short period of…
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I need advice - My husband with dementia keeps scissors for 'protection'
My husband has dementia and has become very focused on keeping a pair of scissors with him because he believes he may need them if an intruder comes into the house. He keeps them close at all times, carries them in his back pocket, and even sleeps with them. I have thought about taking them away while he is in the shower,…
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Hospice/burned out.
My DW is in hospice now. She doesn't really understand what is happening to her. She doesn't eat regularly and doesn't sleep. Her skin is turning a yellowish color. She can only stand up to use her walker if someone is there to help lift her, then she can take 3 to 4 steps before sitting down. The care home is wonderful…