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Constant Falling
My Mother broke her hip a little over a year ago. Since that time, she now requires a walker as she has a significant limp from breaking her hip. She has also had repeated falls. Since she has broken her hip, she has fallen and broken her collarbone, then fell and broke her shoulder, and recently fell and busted her head…
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Nevermind
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Feedback on Kisunla
Hi. I am 75 F newly diagnosed ES Alz and leaning to try Kisunla. I have Medicare and BSBC but having problems getting a breakout of what is covered and what I must pay $ monthly. Id be so appreciative regarding on what you pay for Kisunla out of pocket. And any feedback on your or your LO has on Kisunla.
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Problems with some staff at the facility
I am new to the forum. I will try not to rattle on. My mom is in the early stages of Alzheimers. She is living in an assisted living facility in our close knit community. Being close knit, I knew most of the workers there and they were friendly, all except for one. We will call her Sara. When I heard Sara worked there I…
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Mom Recently Diagnosed
Hello! My mom was diagnosed in June with early onset ALZ. We had suspicions and they were confirmed, but it still hard to accept. She and my father live down the street from me. My dad has Parkinson's and she is his main caregiver. I help take them to doctor's appointments, often cook meals, do yardwork, help with finances…
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Dad with zero short term memory in nursing home
My dad has zero short term memory and just got put in a nursing home. He is desparate to get out and see family members visiting every day. Bottom line is I get 10-15 phone calls every day stating he is miserable and needs to see a family member. I can't visit every day because I am over an hour away. I just feel guilty…
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Leqembi
Just feeling blue this morning. Neurologist offered Leqembi infusions to DH with ALZ. DH is 90. It's 18 months of every other week infustions that will only delay the inevitble by months, not years, and if he does't have a brain hemmorage or stroke there are high odds of migranes and other side effects. We opted not to do…
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I Miss A Real Wife
Did that title grab your attention? This will be a somewhat long, therapeutic post. I have been married to my dear wife for 26 years, with nearly seven of those years in the dementia/caregiving scenario. Fully one quarter of my marriage has been overshadowed by dementia. I miss having a real wife. We had just 19 years…
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How normal is it?
How normal is it to have someone go from mid to late stage 5 back to a 1 or 2 for what I think has actually been weeks now? My DH is almost himself. Though I'm grateful, I'm trying to figure out what I'm dealing with. His mother died of dementia. His sister was DX'd with EO 3 years ago, given a 4 year prognosis, took the…
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Sundowners
Could this be sundowning? My DH was married to his first wife for 23 years. We have been married 32 years. This last week, in the evening only, he keeps telling me that he knows he divorced his first wife, but then asks me - did I ever remarry or do I have girlfriends? I’m wondering if this is part of sundowning because it…
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New to this
Greetings all. I thank you in advance for being here. Just over a year ago my dh of 48 years came home from routine Dr appointment with memory loss dx. For months we both questioned it. But in this moment I see that it was correct. Several weeks ago we had a difficult thing happen in our family. Significant enough to cause…
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Going on nine years
I am outside of my church that I go to every time I see my mom at the nursing home. It's the only way I can see her and not want to escape into my old ways of addiction. She has a rash now on her face and head. I know when I kissed her, hugged her and prayed with her she opened her eyes. She used to hum when I saw her,at…
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My DW isolating herself
My wife was recently diagnosed with AZD- following a rapid change in her behaviors and moods. Since her diagnosis a month and a half ago, she has increasingly removed herself from any social interaction (including with myself, our children, grandchildren and close friends by lying in bed and refusing to get up. When she…
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Long overdue update
It's been a long time since I have posted on this forum. Not sure if I belong here any longer but I can't find another forum that even comes close to fitting our situation. For a quick recap my DH has had cognitive issues for over a decade, due to TIA's, white matter disease and an autoimmune disease. Significant history…
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Hiccups
My dad has been diagnosed with both Alzheimer’s and Lewy Body dementia. One problem we are running into is that he always has the hiccups. It has been going on for almost 8 months. Medications do not work. Neurologists said not real tested to disease and primary says it does. In the meantime nobody is looking into the…
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Dementia Cruises/Vacations
When I searched this topic, I came up with a thread from a few years ago. Has anyone had recent experience with a travel company that takes specialized trips for PWD and their caregiver?
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writing to you all here helps so much
Hello dear community, It's been a little over a year for me and my dad on this journey. Emotionally it's still a roller coaster for me (as I know you all understand), but I can tell that I am improving in my knowledge and awareness of this disease. Am I still having the rug pulled out from underneath me from time to time?…
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Mom fell!
My mom fell a few days ago (was using her walker just like she always does) and it was right after she woke up to take her dog out so she was probably a bit groggy and it looks like she either lost her balance or her knee buckled but she went smack down on our sidewalk leading up to our door and fractured her pelvis in 3…
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DH now in MC - give it time-update
I moved my DH into MC late May. He is early stage 6. I got him there by saying our hardwood floors were being refinished and we are staying in a hotel. The first 6 weeks were absolutely awful. Highs and lows but mainly lows. He went from being continent to incontinent. He refused to eat. DH went from going in and out of…
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New to this disease
Hello everyone, I am not too sure what I'm seeking here, maybe a place to vent my frustrations, maybe advice or a friendly sentiment of I'm not alone in this journey. My father was diagnosed over three years ago with Dementia and Alzheimer's disease. His wife did an amazing job of hiding it from everyone until that was no…
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From the NYT: I’m Losing My Memory. Why Is My Husband Being Insensitive About It?
I thought this was a sensitive reminder of how emotional intelligence remains in dementia/memory loss. I liked, too, that the experience of the spouse was also explored. It should be a gifted link.…
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Seizures, are they part of the journey?
My DH, just turned 56, diagnosed with FD and EOAD, has had what I thought were dizzy spells. He's had 5 in the last 12 days. He's aware and alerts me to what's happening, they last about 15 minutes and his arms shake with exaggerated motion. The doctor thinks they are seizures and has ordered a CT scan. Is this normal,…
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life after memory care?
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DW Seizure
My DW who has been living with ALZ for 7 years (64 yr) had a seizure last week ( first one) about 9:30 AM in the morning. The seizure lasted about a min and to see your wife in convulsions was really shocking for me to and called 911. The EMT checked her out and although she was out of it all her vitals were ok and did not…
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Thinks she is in a new room at MC
Having her room moved has been a theme with mom for a while (even in AL) but does anyone know why after I get her a shower, she routinely thinks we are now in a different room? It is like going in the shower changes her whole perspective.
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Sister is having trouble utilizing bathroom
My sister recently went into MC, 1 month, and she is not using the bathroom but peeing in a trash can. She also does not bath properly so she smells. when the help assists with the shower my sister will only get wet and then get out. My local sister planned a meeting with the facility to see what we can do about my…
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Who am I?
Just thoughts … Year 5 since DH was diagnosed with vascular dementia. Looking back I realize how naive I was. Not knowing what to expect, what to ask, how to help him, how to help myself. And not surprisingly I still don’t know much! There are no answers! You think you’ve got it and then bam everything changes! I know that…
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Medication Dispensers
Hi friends. I’m looking for guidance on locked and timed medication dispensers. My Dad was diagnosed with Alzheimer’s a year and a half ago. He’s still living independently, and fortunately we live in the house right next door. He takes medication three times a day and I’ve been delivering his medication to him for…
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Another dementia milestone - Mom is moving to memory care
It was just 2 years ago that my mother was officially diagnosed with dementia at age 94. I'd estimate she was early stage 4 at the time. A few months later, in October, I made my first post on this forum feeling guilty for "pulling one over" on my mom by conspiring to have the doctor tell her to stop driving. She's been…
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Sundowning - Changes when new people arrive
Hi, my 80 yr mom seems to be having some severe sundowing with Agitation and hallucinations . On the worst nights, we have gone to intervene for my step dad. When my husband walks in (or EMS or police) she seems to snap back into reality and becomes herself again. Is this normal?