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What's the one thing that gets to you the most
Just curious. What is the single most difficult aspect of your LO's behavior that gets to you the most. For me, it is the constant vocalization of my DW. I know that many say that silence is even more difficult but that is hard for me to imagine. From the minute she wakes up until she goes to sleep 12 to 14 hours later she…
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Kisunla vs Liqembi
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
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Facing a Diagnosis this Week
I am meeting with our neurologist this Thursday along with my husband. I have already heard from this doctor that my husband's recent scan is positive and is consistent with Alzheimers. It indicates frequent amyloid neuritic plaques. I am alternating between depression, fright and a will to rise up and be strong. Can any…
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Bible Verse to Lift You Up 1/21/26
LIVE A LIFE FILLED WITH LOVE "Imitate God, therefore, in everything you do, because you are his dear children. Live a life filled with love, following the example of Christ. He loved us and offered himself as a sacrifice for us, a pleasing aroma to God." Ephesians 5:1-2 NLT Join me. HOLY SPIRIT, please help me to want to…
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Newly diagnosed this week
67 yrs old and just diagnosed with Alzheimers. For the past 6 yrs I've been diagnosed with mild cognitive decline but it just started getting worse. The memory clinic I go to had me go through a spinal tap, mri, amyloid PET/CAT, and genetic testing. All tests revealed frequent Amyloid which is now in the gray matter of my…
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Painting pictures for our loved ones…
Cristian’s St. Peter’s’ song speaks to me of the Alzheimer’s Journey. My Michael sits by my side a little while longer while I “paint pictures” of our years together. I found it moving and wanted to share it with you, my community of beautiful carers who also paint pictures for your loved ones to briefly touch and know. Be…
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He’s been gone for 2 weeks now…
My DH passed on Jan 3. He was late Stage 6 and it was sudden - likely his heart. So he found his “exit ramp” before moving to Stage 7. I wanted to share my observations and some things I’ve learned. 1st: Focus on the little joys each day and what you’re grateful for, even in Stage 8. During this journey, I try to journal…
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Forgetting a loved one has passed
What do you tell a person with dementia when they don’t remember their spouse has passed away? How do you deal with them feeling like the death just happened even though it has been years?
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Feeling misty eyed after visiting DH yesterday
Yesterday, I made the short drive to my DH's MC like I always do on Sunday's. As usual, he was glad to see me and we had a nice visit. By a nice visit I mean I tried to show him a picture album from a trip he took to Africa in 2005 while he pointed to the animals and tried to cound them. He has no memory of his "trip of a…
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Losing my Temper With my DW
I feel so sorry for losing my temper with my DW. She just pushes the same issues over and over again to solve issues that I have no control over such as her delusions and hallucinations she continues to have. She demands that I stop imaginary people from our home who are stealing and trying to hurt and kill her. She has…
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Aphasia
I realised this morning at 6 o’clock when we were having an early cup of tea on the front deck as usual that I can no longer have any conversation with my DH virtually no sensible words and only jibberish sentences making no sense. I try as always to piece together the words that he is trying to say and it has become…
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Does It Start Over, And Over, And ....
It has been five months as of January 16 since my dear wife went to sleep for the last time holding my hands. The journey since has been difficult, painful, sleepless, guilt ridden, an abundance of tears at unexpected moments, lonely, oh so lonely and as the previous month began to wane, I found a day here or there when I…
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Bible Verse to Lift You Up 12/1/25
"FOR WHEN I AM WEAK, THEN I AM STRONG” 2 Corinthians 12:6-10 New Living Translation Paul's Words “If I wanted to boast, I would be no fool in doing so, because I would be telling the truth. But I won’t do it, because I don’t want anyone to give me credit beyond what they can see in my life or hear in my message, even…
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Tired
Sometimes life is just tiresome and I just need to vent. This is the scene; the weather here is hot 35c humid rainy and wet. I used to love this time of year swimming in the pool, sweaty bbq’s outside under a balmy night sky, walks along the beach (no swimming due to stingers and the occasional crocodile spotting) but now…
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I Feel Lost, Depressed and So Very Sad
Hello. I am new to ALZ Connect. I am looking to connect with others who have or are experiencing what I am going through as an adult child with a parent with ALZ and another parent who is losing it as the care giver. I am hoping to connect with others who feel similar to what I feel so maybe I won't feel so alone in this…
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Toileting
I am now having to assist my DH in all aspects of using the toilet. I know it is only a matter of time before he will need pads or Depends. My question is whether anyone has considered trimming or shaving around the genitals and anus? I feel as though it would make things easier in the cleanup process. I'm pretty sure my…
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Night at the ER
Well, I am eating my words from a recent post where I said I wanted to avoid ER visits for my mom at her stage. How do you avoid this when she trips and takes a header into the corner of a countertop? When the facility calls and says she's in the ambulance, just two hours after I had dinner with her? Here are the…
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FOR WANDERINGS
https://metalert.shop/products/gps-smartsole?srsltid=AfmBOoomVnrnFFaEk2afyLWGX0KANm7d69tqaHr4VOuuY_eKTiLiY1o0&selling_plan=3595567348&variant=42783777587444 This is one…google for others
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Convincing person with dementia to go to parents' memorial
My parent with dementia had their parents both recently pass away in close proximity of each other. There will be a memorial service at an informal venue. My parent is local to the memorial celebration. My parent with dementia visited her parents regularly in the past year when she moved close to them to go to memory care.…
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Notice to police or first responders
Does anyone know if there is a program or something to alert first responders that the person at home has dementia? This afternoon my husband flagged down the police for no reason. I was on my way home from work and his aide had already left. Apparently they were in the neighborhood and he went out our front door and…
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Physical Aggression
What if he does hit me? Do I call 911? Do I call my son? Do I leave the house? Do I lock myself in the bathroom? What do I do?
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Can’t communicate
My wife is in later stages Alzheimer’s and can’t communicate properly anymore. She speaks to me and I can’t understand what she wants. Likewise she struggles to make sense of anything I say. How do you cope with this? It’s exhausting.
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Just Curious
Don't know what stage my DH is but quite frequently he will look at me and ask where his uncle is or if he went home or if he went to bed already. His uncle died long before I met my DH and we have been married almost 40 years. I know who he's talking about. I usually just answer him that I'm not sure or yes he's already…
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Geographic infusion discussions
My husband had been diagnosed with Mild Cognitive Impairment and we are being advised to begin infusion treatment. The challenge is that we are snowbirds living half a year in Florida and the other half up north. Has anyone had experience navigating this type of situation where the 18 month treatment is coordinated between…
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Continued follow up after diagnosis
DH was diagnosed with FTD Semantic variant. There is no treatment so is there still a need to be followed by a neurologist? I am unsure what the benefits would be if there is no treatment. What have you all done?
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What do you do for self-care?
My DH received his alz diagnosis 5 mo ago. He is no longer driving but manages most of his ADL’s & putters around our small farm. Most of my caregiving at this point is around appointments, finances, cooking, groceries, mostly typical household things. I can be away from home altho I try to spend as much time here as…
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Constantly saying Help Me please
I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary. He has a caregiver in the morning and my brother comes in the evening for a small amount of time. I’m left alone to hear him…
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What You Took From Me
Dear Friends, I wrote this on July 9, 2025: There is a beautiful woman here making dinner for us. She asked me how my day went today. The kitchen smells so good with dinner on the stove. She put her arm around me and gave me a kiss. It is so nice to have a wonderful wife who really loves me and is here to support me…
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Early stages of the disease
Hello, I am hopeful these discussions can offer me insight and a community to share our journey. My husband is 54 years old and has been experiencing cognitive decline over the past few years. In the Spring of 2025 he had an MRI and a CT scan of his brain. All appeared normal. His blood work showed his p-tau 181 levels…
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4.5 years in caregiving
It’s been 4.5 years since my dad died and I became caregiver for my mom. At this point we’ve fallen into a rhythm (of sorts), she’s settled in MC, but it’s sad and hard and financially scary and I feel sorry for myself. Almost all of my free time on weekends goes to her. I feel guilty for even complaining. I dread seeing…