-
Just diagnosed
My name is Steve. I was just diagnosed with early onset dementia. I am 61 and have non idea what i will be in for. Any suggestions or info would be most welcome.
-
Take your own care seriously…
I met a woman yesterday that was pondering placement of her husband in MC. She was recently diagnosed with breast cancer and is now undergoing chemo - surgeries including a hysterectomy will be following. She told me that for 8 years while she took care of her husband, she neglected her own health, not getting mammograms…
-
Angry
My DH has been diagnosed with Vascular Dementia almost a year ago. Recently he’s become easily agitated and angered. I spoke to his neurologist about it and he denied all of it. I was hoping to change his antidepressants. She said she thought it wasn’t necessary. She thought pain might be the cause since he has chronic…
-
Declined fast because of other health issues
My DH is 56 with EOA. He had memory issues for about 4 years and was diagnosed this May. And then I discovered this forum and began asking questions. I'm guessing he was about Stage 3-4 a month ago. He has changed in just one month. He is currently in the hospital for a colitis flare-up and blood clots in his legs. At this…
-
Significant other confusion
My DH thinks that I have a twin. I am the only one with him but he is always asking where the other person is. Has anyone else experienced this with their significant other?
-
Approved for hospice
DH has had palliative care since early this year. At the last visit 10/29/25, the nurse told me he is at 6e on the FAST scale. She called me the following day and said he now qualifies for hospice. I told her I would call her back to let her know if I want to sign him up. I know it's my decision, but I wanted to know what…
-
Got the Job. Now What?
I was offered the job in Manhattan. Start date 10/20. 3 weeks from now. I should be celebrating, but it just complicates my situation. I have three options, none of which seem very good: 1. Take the job, and move both me and my mom up there, somehow, in 3 weeks. Find new apartments in NY, break leases, hire moving company,…
-
Recent diagnosis and vision trouble
My dad was just recently diagnosed with early onset Alzheimer's at age 63. While his memory is a little spotty, the toughest thing he's been dealing with is an increasing loss of vision that they believe is being caused by some small bleeds in the occipital lobe of his brain. He is still almost completely self-sufficient,…
-
Incontinence?
My 63 year old husband is in the middle stages of Alzheimers. Although he is not exactly incontinent, there is definitely an issue with bowel movements. He goes to the bathroom, however, much of the feces does not end up in the toilet. It ends up on the floor, the toilet rim, and definitely on his hands. The hands are a…
-
COVID Vaccine Side Effects
Is anyone else’s LO’s dementia adversely affected by the COVID vaccine? My DH becomes even foggier than usual, falls a lot & becomes more hostile for about 2 days, then returns to baseline. Trying to avoid hospitalization this time.🤞
-
Recently Diagnosed with Alzheimer's
If you were recently diagnosed with Alzheimer's disease and are interested in clinical trials or participating in research there is a site you can go to see if you might qualify to participate in a mild Alzheimer's study. www.MildAlzheimersStudy.com
-
Queen of my Castle ?
Long Rant Sorry I’m waiting to be that “Queen of my castle, Large and in charge”. - reference to Bill’s wonderful essay a few years back! Right now I feel in charge of nothing - playing heat police once again this season as DH keeps turning thermostat up, he refuses to open drapes or blinds b/c he’s cold, he won’t stop…
-
Scared
My wife is 54 and was just diagnosed with early onset Alzheimer’s. I’m scared for her and myself. The changes I’ve seen in the past year now has a name. But that’s not much comfort. I think I’m still in denial. But I know I can’t stay in this place and I need this support. 👍
-
I don't understand...
I really don't understand all of this. My mom has dementia, it is diagnosed. But her care is not covered by medicare, even though it is a disease. What is this hole in the system?
-
Am l really losing her now?
My DW is 72. She was diagnosed MCI 12 years ago. The last two weeks things are changing. She asks if I’m her husband, sometimes with a frightened look on her face and sometimes with an embarrassed look. Some mornings I then spend a couple of hours sitting with our coffee convincing her that we are in fact married and this…
-
A very resistant FIL - clearly dementia but refusing to sign a POA, see doctor, etc
Hey all, hope you’re keeping well. I made a post about being new to this situation recently and was super helpful and supportive. I was looking for some more advice if possible! We are in the UK if that helps. My bf is looking after his dad at the mo who clearly has dementia. He wanders and gets lost in his two bed flat,…
-
When it rains...
When it rains, the grass gets wet. I know better than to traverse the back yard walking my dogs in the dark with wet grass. I was distracted. Tuesday, I had taken the day off work to go spend with my mother in MC, so I actually had more time to walk them leisurely. I slipped down a hill and broke my ankle. As I lay there…
-
When is it time for more?
So, when do you know it's time for MC or 24 hour nursing at home? I'm dealing with my father who was previously diagnosed with VD and onsight ALZ with PTSD on top of all else. He's been in AL since February under the guise of home modifications for him to safely come home. Since he's been so happy in the facility, I've…
-
Trying to help primary caregiver
Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…
-
Ashamed father doing bare minimum for wife, home and self
I live at home with my senior parents, acting as a part time caretaker. My dad is in his late 60s and my mom just turned 70. She was an alcoholic, had a stroke at 65 and was diagnosed with vascular dementia (VD). Before her stroke, their marriage was strained and he was planning on a divorce. For 3 years she was in…
-
Hubby in MC wants to come home. Help!
I stayed away one week. Hubby happy to see me but crying. Wants to come home. Very difficult to redirect. I’ve been bringing cards games which helps but then he starts up he wants to go home. We are letting a doctor dictate where he can live. Anyway any suggestions how to handle this. Maybe there are meds for him to take…
-
Bathing-when the water feels wrong - not refusing-afraid..
I saw this on a Facebook post and hope this helps someone caring for their loved one. In the book "The 36 Hour Day" it lists some reasons your loved one doesn't bathe or shower: Fear, not remembering how to shower (there are steps), water too hot or cold, room too hot or cold, fear of falling, the water may actually hurt…
-
Just when you think your loved one is no longer able to understand....
My DH is nearing the end of his journey. He has difficulty swallowing and is losing weight quickly. His speech is usually slurred, and he can't hold any kind of conversation. When I am feeding him, I remind him to swallow (or else he starts coughing violently) but I try to keep it light and smile a lot so he doesn't think…
-
Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
-
Considering Alzheimer's as a spiritual journey
Found this on Google, and thought it'd be a useful perspective: Alzheimer's is viewed as a potential spiritual journey for both the person with dementia and their caregiver, offering opportunities for growth, connection, and a deeper understanding of self and life's meaning, even amid loss and confusion. This perspective…
-
$300 speaker
my DW threw away a nice Bose speaker while taking out the trash. I know there’s nothing I can do about it now. Just venting.
-
Solutions for Missing Laundry in MC?
Compared to many other challenges, this one is minor, but I am hoping someone has a workable solution. My father has been in MC for more than a year. I visit many times a week and would rather focus on being with him than on constantly surveilling for missing items. To date we have lost four sets of sheets, one unique…
-
The money is gone!
Mom has been in Al for a year and a half. When we moved her in they said they accepted Medicaid waiver. I was never told family would need to pay the remaining. Partly my fault, I should have asked better questions. The facility is not what I had hoped it would be and I’m not sure how much longer she could safely stay…
-
NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
-
Simple technology for ederly
I'm starting this discussion because I've finally found some peace as a caregiver. I am a caregiver for my dad, who has Alzheimer's. At one point, everything became too much for me. He started to be more needy, and his memory is getting worse. I have to leave the house to go to work, and he would call me for every single…