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Question about Cognitive Reserve
I understand that a high level of cognitive reserve can make a person show fewer symptoms than others with the same level of brain deterioration. My question is this - does this mean they might be more advanced in the disease progression than their symptoms indicate? Is it possible that you think someone is stage 4 based…
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I’m Scared and Alone
My dad was diagnosed with MD about a year ago. When mom was alive (she passed from cancer about 3 years ago) she was already saying dad was headed down this path although he wasn’t diagnosed. I saw it too. I noticed dad was getting worse a little bit at a time. But still, at least I thought, was doing pretty well. A week…
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
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Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
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More seizures
5 seizures in 3 months. EOAD. DW is on Keppra now. I can’t imagine this is not affecting her progression of this disease. Any thoughts!!
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Speech
My DW is in year 3 of EOAD. She’s always been a talker, talking to whomever would listen. The last few months she still talks but with her limited vocabulary she makes no sense. Her words are very clear but all mixed up. I’ve just noticed this past week that now when she talks it starts with a few clear words but then…
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MI MADRE ESTÁ PERDIENDO LA MEMORIA
Hola, soy nueva, recién pude encontrar una página que puede ayudarme, mi mamá tiene 81 años, soy su única hija, empecé a notar que algo no andaba bien hace dos años, lamentablemente por mi trabajo me enviaron a una zona de dificil acceso, aunque bajo a verla los fines de semana solo disfruto 1 día con ella, he notado…
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Automated pill dispensers
hi. Does anyone know of a good automated pill dispenser? I was on the alzstore.com and I ordered an automated pill dispenser made by med ready and it doesn’t work. For some reason I thought this store was connected with the Alzheimer’s Association, even though it doesn’t say so, and it turns out the return policy is really…
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Title Co Trouble
My DH has vascular dementia, and he’s wheelchair bound since his stroke in July of last year. He lives with me at home and I move him around with a hoyer lift. I do my best to make his life as enjoyable as possible. One thing that would make his life more enjoyable is if I had a wheelchair van to take him on rides and go…
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Falls asleep but doesn't stay asleep
DH falls asleep easily at bedtime but doesn't stay asleep. I give him Mirtazapine and I added Benadryl but they don't help. Melatonin didn't help him. He wakes me up three to four times every night, turning on lights, walking around or just sitting on the edge of the bed. Is this common in people with dementia? Is there…
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Missing my mom
I think my mom has dementia, but she's in denial. I've had concerns for the past 3-4 years, but she won't get assessed. I resigned myself to the fact that there would likely be some sort of crisis and hoped that she would be open to help then. The crisis happened in February when she attempted suicide by overdosing on…
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We made it
My husband passed peacefully this morning. I woke just before and was holding his hand. I had been hoping that he could find an off-ramp, and he did. We have been blessed. My deepest thanks to all of you for your support, sympathy and advice on this long hard road. I'll come back here often. Wishing all of you peace as you…
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Just need to vent a little
On June 5th we left my DH's Neurologists office and were told that he has months to live. We werent told an actual amount of months, just months. Today being fathers day I thought maybe I would get some extra help from one or more of our 4 adult children, but basically it was on me the whole day. Im so frustrated I cant…
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When to stop Donepezil and Memantine?
My mom's hospice care suggested I let them stop Donepezil and Memantine because her FTD is very progressed. I always second guess what is the right decision with anything related to Mom's care. I asked the benefit to taking her off the meds, and they said (1) she's progressed so much that they don't help and (2) it's hard…
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Mom needs almost constant support
79-year-old mom lives in intermediate memory care unit within AL facility. She is very outgoing and has a good friend in AL. She is able to interact with people in AL and participate in their activities. She does not seem to enjoy most of the activities, however, or refuses to try them. But then she gets bored and doesn’t…
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Bible Verse to Lift You Up 6/21/21
CAREGIVERS, WE CAN TRUST THE LORD Psalm 91:14-15 Easy-to-Read Version 14 The Lord says, “If someone trusts me, I will save them. I will protect my followers who call to me for help. 15 When my followers call to me, I will answer them. I will be with them when they are in trouble. I will rescue them and honor them. YOUR…
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Seroquel
Based on posts I’ve read on here, I asked my husband‘s neurologist for Seroquel to help with sleep and behavior. I’d like to know from others experiences how long it took for the medication to work? How long before a noticeable difference was noticed? The main thing that I’m hoping for is successful sleep through the…
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50 years
In a few days we will have our 50th wedding anniversary. I know for a certainty that she is the best thing that ever happened to me in my life. She last recognized me in 2017 and has been bedridden since 2021. She is 73 lovely as ever, with a few streaks of grey in her hair. I have stunning wonderful memories rated from G…
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Days Out for MC Resident?
My dad has been in MC for about a year and is now about stage 5/6. We have brought him to our house for a meal and a visit of a few hours most weekends in good weather (no overnights). Mostly this has been OK. He likes the food, and hosting him in our home gives me some sense of satisfaction. He has put up very little…
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My husband has MCI and blind on rt side.
He’s has Mild Vascular Neuro Cognitive Dementia. I’m exhausted. And I Cry.
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Anyone heard of potential benefits of Kefir?
Hi Y'all, My wife was diagnosed 3 years ago with dementia, she is still very much with me, but I have seen many examples of her slow slide due to this horrible disease. Our GP prescribed two medications when she was diagnosed, Memantine and Donepezil. We have no idea how much they've helped. We have a good friend who's a…
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Early Onset of Dementia
My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared…
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Who can I trust?
Hello all, it's been a while. My bf (46yo EOA) is a very active stage 7b. He is still mobile. We have entered the stage of not wanting to shower but I can get him in there (not fighting l, yelling or scratching tonight). Here is my predicament. I have been trying to find an Adult Foster Home but there aren't many around. I…
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DH with dementia no longer shows hand preference
My husband is in approximately late stage 5 of dementia. I noticed recently that he no longer shows a hand preference when eating, holding a pencil or reaching for an object. What does this mean? He was always left-handed, but will now try to eat with either hand. He requires assistance eating, but tries to do it himself.…
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Short term memory loss
my LW is currently in a nursing home for PT after surgery for diverticulitis. Happily, she did not need a colostomy bag. On the dementia scale, she is in the lower middle. She also has short term memory loss, which compounds her negative outbursts. If I am with her, I witness her anger at staff for slow responses.…
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PBS Cargiving Documentary
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New to group
Hello I just wanted to introduce myself. My husband is 56 year old. He was diagnosed with PPA and frontotemporal dementia about 5 years ago. I believe we are now entering ALZ as well. This week I had to finally take away his right to drive and it was heartbreaking. I tried to blame it on the insurance company knowing he…
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Won't drink enough!
How do you get your LO to drink fluids? I am tired of harping on mom to drink. She will ignore the water,juice, or tea in front of her face and keeps getting UTIs.
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Assisted living room changes
My mom has been at the assisted living facility since October 2023. She is in a 2-room apartment, which we originally selected due her having 2 senior male dogs. At this point, the dogs are no longer there, and my mom is transitioning from moderate to severe. I was asked by the staff at the facility today how I would feel…
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National Alzheimer's Summit: A Virtual Experience
Michael Ellenbogen sent me this valuable information: This year’s theme, “From Personal Stories to Powerful Action: Making a Difference in Alzheimer’s,” will elevate the voices of patients and caregivers while driving impactful change through collaboration with government leaders, scientists, the private sector, and…