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Support groups
Hi. I live in an area that is very rural. Traveling an hour or so to a support group location is not an option. Is there online support groups available?
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Lawrence Welk
Today being Saturday, I had nothing for my DW to watch . So was channel surfing and accidentally I tuned to PBS a channel I don’t normally watch . Lawerence Welk was on and guess what . My DW loved the show remembering quite a few of the songs and most importantly enjoyed seeing the pretty lady singers all “dolled up “ and…
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Rough Week
A couple of weeks ago I went to my dermatologist for my annual skin check. She said a small mole on my back had changed color since last year and she removed it. I found out this week that it was a melanoma. She said it was early…in situ. She is going to have to take additional tissue to make sure to get all of it. I'm so…
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Guilt
This cannot be a new subject, although a quick search didn't yield what I was looking for. I am 84, have leukemia. My DH is in ES to MS ALZ and is 89. Several of our children have been doing research on new treatments to slow this down. At least once a week, I'll get a text . or a phone call …"Mom, I read about…" I makes…
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Where to find help
My wife has been diagnosed with MCI by the neurology department at Mayo Clinic. She functions normally in day-to-day activities: cooking, driving, personal care, and interaction with others. What's missing is the memory of recent events: times scheduled for events, meetings, community events. According to the tests, some…
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Ok - Need advice and suggestions multiple languages
I’ve become my mom’s full time care taker a few months ago. I sold my house, remodeled their basement and moved in to stay with her. My mom was my best friend we had fun together and did mostly everything together. She is 78 and we’ve been fighting this crappy disease for 4 years; unfortunately she is getting worse.…
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Facing the move to memory care
I have made the decision to move my DH who has late stage Alzheimer's to a small residential memory care home. He will be moving on November 12. The physicality and relentless needs of his care have simply become too much for me to bear. I have no idea how to face this move or make it a lighter burden for either of us.…
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Urinary Incontinence/retention
My brother lives with me and is struggling with urinary retention. He has Alzheimer's and Down Syndrome. One option that has been mentioned as a solution is a Suprapubic Catheter. Does anyone have experience with this?
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Wow, I underestimated the loneliness
My husband went to memory care this week. It's going fine. He's settling in fairly well. I feel like a jerk for even saying this. I'm lost and lonely. I've never lived alone before (family, college, roommates, then my husband). I'm trying to keep busy. Dishes are done. Laundry is caught up (for the first time in 2 years).…
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Medicare GUIDE program
8 year program to provide help- hopefully a good start & will expand . 2 links below.
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Hospice at Home and Private Aide
Does anyone hospice at home but hired an aide to help? I am deciding what the best course of action is. It is less expensive to hire a live in and have hospice come to my home…I'm worried it will still be too much for me to handle. My mom is frail and is recovering from broken bones due to a fall. She is in pain, no longer…
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New here, are there any books aimed at the person who has dementia?
Hello, I had the slum test and was found to me on the border of mci and dementia. Thyroid test and b12 test came back normal range. Waiting on diabetes and will have an MRI on Friday. I am wondering if there any books you can recommend that are directed towards the patient and not necessarily the caregiver. I found a lot…
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Time change
My husband is so confused and upset about the time change today. He just doesn’t understand when I explain it to him. He thinks something is going on that is bad, something is doing this to him. I thought things were going better the last 2-3 days, now this. Guess that’s the way it is. Will I ever get used to this?
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How do I get my sister to the doctor?
Hi, I am new to the forum. I am sure this question has been asked by many people that are starting this journey. My sister thinks she is fine and ignores our requests to have her make an appointment to see a doctor. We know that she is not managing her finances properly and is making very poor decisions and possibly making…
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NY Times: Can Crosswords and Games Prevent Dementia?
Gifted link good for 30 days. Can Crosswords and Games Prevent Dementia? Experts say the answer is a puzzle. https://www.nytimes.com/2024/10/30/well/mind/dementia-brain-training-puzzles.html?unlocked_article_code=1.WU4.wf9A.a9CM36TJzQcw&smid=url-share Main take away: Perhaps Dr. Gandy summed up the debate best: “I don’t…
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My DH has lost his dentures
We are in our second year since diagnosis (probably 4 years since onset), and are somewhere in the fifth-sixth stage of ALZ. He has stopped wanting to take his denture out when we go to bed, so we have been cleaning it in the morning. Sometime last night he took it out and has misplaced it. I have looked everywhere for it,…
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Interesting (and untimely) legal lesson about cremation: should I have just lied and told them we w
I hope this might be helpful to someone else, for me it's been a huge headache and unnecessary firedrill on an already fraught Friday afternoon. And importantly, something that neither my memory care contacts nor the hospice social workers were aware of. And that the cremation company didn't catch until this afternoon,…
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Loves to talk to anyone who comes to the door
My DH has a routine list of things he talks about to anyone who will listen - I call it his yard tour. He starts with showing them the driveway, followed by every tree and plant in the front and back of the house. Some of it makes no sense, but most people will listen patiently, at some point probably realizing he has…
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Final chapter
My DH passed last night. I had seen him in the afternoon, and hope he heard me tell him how much I loved him. I am glad his suffering is done. It all happened so quickly after his last ER stay a couple weeks ago, that it’s hard for me to process. But he never rebounded from that awful experience and simply stopped eating…
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Everything is perfectly normal...maybe not
Just feel the need to "talk". DH in ES to MS Alz. He has seemed perfectly normal now for about two weeks. You'd have to live with him and pay attention to know anything was off. Well, there is the thing about needing to explain to him who is who and what that all means when we are watching TV and the thing about misnaming…
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Suggestions for daily activities
I am having trouble finding things for my spouse to do each day. He wants to be doing something all the time, but some tasks he simply can’t do successfully. Any activity suggested for a guy who wants to be busy?
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DH seems fine with everyone but me
My DH is starting his 10th year since Alz diagnosis. He exercised daily and ate healthy during the last 10 years and did exceptionally well. But he is declining now. He worries constantly about where his SS ck is … is our furniture paid for? … where do I live (we’ve been married 31 yrs) …. He thinks we just moved into this…
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Glued to the tube
My wife of 39 years spends virtually all day every day watching TV. Mostly the news on a loop—and yet she asks me questions that make it clear that none of it’s sticking—ie. “who is running for president?”). It’s another beautiful fall day, but she has closed the blinds, is complaining of being cold (it’s not), and does…
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Visiting DH A Huge Success
As some of you may recall, I have only visited DH once since his placement 1-1/2 yrs ago given the very first visit was a huge disaster. With his neurologist telehealth appointment coming up in December, I figured I had better not make the telehealth appt day be my first "revisit." Moreover, I felt obligated to bring him…
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Adjusting to part time caregiver
I’ve been a full time caregiver for my husband for 5 years. He is in the moderate stage of Alzheimer’s and resists going to day programs. I hired an experienced part time caregiver to help me a few times a week. My husband doesn’t understand this new person in our home and was very irritated with me the second time I left…
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Here we go again
My LH loves woodworking. He is determined to work on a couple Christmas gifts. He has always been very independent with his projects and never needed assistance. Now I need to help him each step of the way taking my time and even then he can’t follow the directions and instructions or drawings or measurements that we…
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Getting Someone Diagnosed
Hello, my mom lives with me and I've been seeing signs of dementia, depression, anxiety in her. At times, she will say " I think there is something wrong" and when I suggest talking with a doctor, she immediately says "NO". I had a virtual appointment with her PCP and she couldn't believe what I was telling her. She said…
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Jekyll and Hyde
Has anyone else experienced their loved one being "in their face" for hours in the middle of the night screaming obscenties and accusations, forcable holding them down on the bed when they try to leave and then days later wanting nothing but sex from them?
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Article on long term care insurance
Not the most cheerful topic…. https://x.com/barronsonline/status/1849308096327246291 Covers the history of insurance , recent premium issues etc.
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The Lawn mower saga
Alzheimers just stinks, and makes simple things so complicated sometimes. My Dad’s riding mower, AKA the tractor, had a factor recall in July. My mother had a company pick it up for the factory warranty repair, which took a long time because they were waiting for a part. Then at the end July my mother was diagnosed with…