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Guilt lingers where love was poured without measure...
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Where I Find Peace
My dear wife left us in August, 2025 after her 8+ year struggle with this nightmare. The going remains very hard at this point at home or trying to get out. After her burial, I waited until the cemetery notified me that her name had been installed on our grave site to visit. Unfortunately the cemetery is not close by,…
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Guardian-family angry at my decisions
I have been a guardian for 5 years. We make very difficult decisions daily. Family members always think it is their right to tell me my decisions are wrong. I always ask prior for professional advice. My person has not asked for their wedding ring. I have been told to not give valuables to your loved one. Yet family…
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Feeling upset
I am new here. Mom's 78 with Dementia & Diabetic going on 4 yrs now. The agitation is the worst. Today she wonder off. I had officer friendly contact me to find her. She took a bus and got lost. She is on meds but I'm like is it making it worse. I am exhausted of all this drama. Nursing home is not even an option. Long…
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Stuff animals with Dementia
I am curious to find if anyone has a parent who plays with dolls or teddy bears. Mom's lives with me and thinks the teddy bear is her baby. She will feed it real food and share her drinks with it. She calls the baby by my siblings names. And it goes everywhere with her in a cart. I was ok with it until she gets angry…
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Possible AZ prevention from anti virals + shingles vaccine
I have not read anything about this before:…
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Home health care
I am 70, in reasonably good health, with some managed issues. DW is 67 in moderate stages. She has frequent urinary incontinence and needs assistance with dressing and bathing. I cook breakfast every day. We have an adult daughter nearby who really helps out a lot, frequently bringing meal preps and assisting 2-3 days per…
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New to community with Alzheimers
Hi my name is Katie. I am 67 years old, from MS and diagnosed in 2018. I am moderate stage. Looking for support, coping skills and living with anxiety.
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How many caregivers are keeping their spouses at home until the nightmare ends?
I’m absolutely determined to see my DH through this nightmare. I am determined to keep him home until the end. Are there others out there that are doing this and have you managed to keep your sanity through it? My husband is in stage late 4/early 5. He’s always been extremely calm, kind, gentle, helpful, loving. I just…
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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Our Theme Song?
I ran across this song yesterday and it got me all weepy. Love it though. For everyone on this journey; you’re not alone. https://youtu.be/E5488fUMLXs?si=ddyuj-Xm6_Housq5
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How did you decide who lives with who?
Looking for tips on what should be considered when deciding to move a loved one in with you, or if you should move in with them. We have a list of pros, cons and costs for each. but we keep flip flopping on what is "best". For example, if she moves in with us, she will have 2 small rooms. we will need to remodel the…
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Need Advice on Preventing Falls
My DH, who is in the later stages of Alzheimer's and lives in MC, is having two different issues with falling on the floor. The first issue is that he is becoming more and more unstable when he walks and has fallen a few times and split open his forehead. Now I'm told that he is hallucinating and reaching down to the floor…
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Ways to be in touch in later stages
Hi all, new to these forums and am my mother's primary (long-distance) caregiver since she moved into a very good MC facility in 2023. My mother is in a good way, quite positive and at peace thankfully, if alot of tiredness and some moments of frustration. As I am based in Europe and she's in the Washington, DC area, I…
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Other expiriences
My DH is blaming his Alzheimer’s on his CPAP. He found a water bottle he uses and he thinks this is a miracle cure. He talks about from the time he gets up until he goes to bed. It gets tiring most days. He also thinks the doctors know this but they just want more patients and people who use CPAPs are all going to get…
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personal hygiene
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SAD/Angry/SAD/Guilt/SAD
I have read this situation here but have never experienced it myself until recently: My DH is stage 5 VD and some days cannot dress himself. He has a son, daughter and stepdaughter from a previous marriage. The stepdaughter has caused a big riff in the family. She seems to have turned the son and daughter somewhat against…
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Questions for the neurologist & Can we keep it a secret for now?
Hi everyone, We have an upcoming appointment with a neurologist — it will be our first since we received confirmation that my mom has AD, based on a recent PET CT Amyloid scan. I’d appreciate advice on what questions to ask during the visit. I expect we’ll discuss medications, side effects, and general care planning. One…
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A Fall
Falling has become more of a thing for my poor DW. This last one was my fault…trying to get pants pulled up and down she went. Now at the emergency room as her wrist looked a mess. Damnit.
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Denial
My dh was diagnosed last year. He is in denial that he has Alzheimer’s or I should say he thinks he is getting better. If you try to talk to him about it he just gets angry and I am a b. Not a nice word. Has anyone had this problem.
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Memory care-Taking all clothes out of drawers
My mother is in interim memory care, and is constantly taking the dirty clothes out of the hamper before the staff can get to them and unpacks ALL her drawers and closet and folds it on her bed. I have tried giving her other things to organize (costume jewlery/photos) but she keeps coming back to the clothing. 1) Has…
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Is a formal diagnosis needed?
How important is a formal diagnosis? My best guess is she's stage 4 or 5 from what I read. but does ALZ vs dementia, vs old age really matter? she is 82, still living on her own, though that needs to change very soon. she no longer drives, and the most recent development is her losing track of her phone, not knowing how to…
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new to group but not to dementia
Hi All, I am not sure what I can do to help my husband when he yells at me so much. I can't write DH because he has been verbally abusive for a very long time. He also has GAD,OCD and depression. That is along with dementia. His mother had dementia as well so he watched what happened to her. He has been on Aricept for…
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Input requested for oxygen use on very late stage dementia
My DW has been in Stage 7f for about a year. She is minimally conscious and I am told that her cognition at this point consists mainly of core brain stem functions, her only obvious action is a primitive feeding response. She makes no other movements or responses to any outside activity. She has been starting to exhibit…
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Big bathtime mistake and confusion with geting dressed
DH hadn't showered in two weeks and I was trying a different approach on Saturday. Rather than telling him he needed to take a shower which is always met with resistance, I asked him if he would rather take a bath or a shower. Naturally, he chose a bath. It almost turned out to be a disaster! He fell to a sitting position…
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Exhausted and Bewildered
It is 522 AM and I have been up since 1AM trying to deal with my DW. She woke up claiming some men were raping her. I tried to calm her and tell her I was here with her. She when accused me of watching this all happen and that I did mothing. I tried denying all this , tried to assure her this was not happening and that I…
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The pain of living with ALZ
Tonight was the hardest night so far. Which makes it the hardest day. Of the hardest week. Of the hardest month. Of the hardest year. So far. He forgot me for the first time. He promised he wouldn't, but I knew he couldn't possibly keep that promise. It just came so much faster than I was prepared for.
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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Update on DW
I haven't been around in a while but thought I'd post and update on how my DW is doing. She has been in MC and hospice for over a year now and on comfort meds. MC has been both good and bad, usually short staffed. They take reasonably good care of her. My DW has been bed or gerri chair bound for a year, stage 7, and has…
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When Leqembi causes ARIA
I'm not out to discourage anyone getting treatment. I'd like to add my experience just to show there is another side of Leqembi. I am 69 years old, diagnosed about 18 months ago. I don't have APOE4 so I felt that was a a risk reduction as well. I was very excited to start my infusions. My first treatment went great. No…