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Accusations
My mum is still officially undiagnosed but has been assessed by social workers and has confirmed memory loss. She always loses things (so do I) but it is literally everything with my mum. Unfortunately she accuses other people of taking things. She has accused my brother of stealing money and his daughter of stealing…
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Medicaid Cuts, Inside Info or Tea Leaf Readers?
Spoke to a Medicaid attorney about father's remaining $ and an irrevocable trust. You lose 1 month of Medicaid eligibility for every $10k you set aside (in CO). Problem is, $1 trillion cuts are set to go in effect 1/1/27 so the attorney said he can't guarantee any outcomes at this point. If those stay in effect, the care…
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Lost My Father Tragically - Learning How to Move Forward
Hi everyone, My father died as a result of dementia. During the night, he became confused and unsafe, something dementia had been causing more and more often. He left the house, and by the time my mother found him in the morning, it was too late. Writing that still feels unreal. What I am struggling with most now is guilt.…
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The Stage 8 Club
I first learned the term, stage 8, on this forum just a few days ago. Never new what i would call my life after she passed. It has been a little over three weeks since my dear wife left me and the family. It was a long eight year journey but thankfully she did not suffer physically or by some other health condition and she…
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Supplements?
Hi All, This is my 2nd question here I’m posting. Knowing now that my dad has dementia, I’m now interested in taking any conceivable preventative actions to benefit myself. To my knowledge there are (at least) 2 well-known OTC Memory Supplements on the market. One of them is Prevagen and I’m not sure offhand the name of…
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87 yr old man with dementia missing…
Please don’t leave your loved ones with dementia alone for any period of time. When you are caring for them, have locks on the inside of all exits. This is so sad! Petro Kugo an 87-year-old man with dementia, reported missing and endangered from Largo, Florida, as of December 13, 2025. 😢🙏
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transition to incontinence
Most of us understand that we will eventually have to deal with this, but are any of us really prepared? This weekend DW went from having a rare, occasional accident to being unable to use the toilet. It felt like she was peeing everywhere but in the toilet. She still has good mobility and seems to get up when it is time…
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Did I draw the short straw...
I have really enjoyed being part of this forum. I get a lot of good information and it's great to share experiences. One thing I notice though is that many of you mention 'watching tv' or 'listening to music' or just in general interacting with your LOs in ways that I can't relate to anymore. And you say they are in the…
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Working?
I’m in the stage in which I recognize my own diminished cognitive skills, but don’t have a diagnosis yet. My job performance is suffering, which is very stressful. How did you navigate this phase? Which came first, your diagnosis or problems at work? Did you resign, or use long term disability? Our family relies on my…
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PET Scan Amyloid results
DH just had amyloid pet scan. Just reaching out to see if anyone has any insight on where he might be with all of this based on the widespread findings. Findings were: "Tracer activity is noted in the brainstem and cerebellar peduncles but not in the cerebellar hemispheres. Tracer activity is noted in the frontal,…
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My DH is wanting to spend every minute with me
My DH is recovering well from knee surgery. I have been caring for him and not leaving the house for 4 weeks. He gets around with a walker and I can take the dog out for a walk now. He gets mad if I am out longer talking to neighbor. Doesn’t know what to do with himself. I looked into having a caregiver come to our house…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Anger
My DW was recently diagnosed with ES. She suddenly turned angry at me as if I was to blame. She is violent in her behavior with horrible language, extremely scary facial expressions, and on a couple occasions physically striking me. Should this type of behavior be expected or is it evidence of another behavioral issue? At…
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Husband recently diagnosed with Alzheimer's.
I would love to hear from others who have been a caregiver for your loved one with what I need to do, be aware of, or what was the biggest help for you as you began your journey.
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Snacking problem
My DH (stage 4-ish ALZ) is snacking constantly. I've stopped buying anything "junk food" (nuts, cookies, etc) and have been buying him grapes, raisins, and mandarins which he will consume as much of as I leave out. I've hidden most of the foods that he can snack on but I'm at my wits end. He goes through the fridge,…
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The final blow to my Christmas spirit.....
My DH is in hospice care, and I know this will be his last Christmas. I have been trying to find some joy here and there, but on Wednesday my beloved 14-year-old kitty had to be put down. He had a mass in his abdomen and had stopped eating. His brother, my other kitty, died in September. I just feel like everything from my…
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How to decide if family member with cognitive decline can be allowed to stay in home, living alone.
I am writing for advice about my sister who has been diagnosed with dementia that is vascular related, not Alzheimers. For the last five years, her declining decision making and ability to engage in executive functions, such as managing medications or finances, has become evident to me, her health care provider, and her…
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Impulsive
DW decided this morning that she "had" to be at church early this morning to tell the pastors something. I caught myself realizing that this was one of those situations where I knew there would be no reasoning with her broken reasoner so we went early and upon arrival I just dropped her off at the door and parked the car…
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I wish you all peace
This is an extremely difficult, unexpected journey we are all on. Every day has so many challenges, it sometimes feels like the rest of life is passing us by because our loved ones and our focus have become narrower. While everyone else is getting ready for Christmas, we struggle every day to give our very best and run on…
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Capgras Syndrome
I believe my mother has Alzheimers. She is 78 years old. My father is her primary caregiver. The challenge is she often seems to have Capgras Syndrome. She will go through periods where she does not recognise him and thinks he is an imposter. My brother lives with them and tells her this is Dad. My Dad tells her it's him,…
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Newly diagnosed with Dementia. Caregiver.
I am a caregiver for my husband who has Dementia. I am very sad to see my partner in life in this stage. Some days he is better than others. What book or reading materials would you recommend for me? Thank you.
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Interesting article
After reading this, I truly believe that Gabapentin caused my DW’s EOAD. She was taking this prescription for her lower back pain caused by a car accident many years ago. Chronic and interventional painRisk of dementia following gabapentin prescription in chronic low back pain patients…
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VETERANS NEW BENEFIT - Accelerated Benefit life insurance option
If your spouse is a veteran and has Veterans Group Life Insurance the new benefit allows a family member or an alternate applicant to apply for an Accelerated Benefit Option (ABO) on a member’s behalf, such as when a member is medically incapacitated. With accelerated benefits, you can get up to 50% of the face value of…
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Behavior/cognitive changes after discontinuing donepezil and memantine
My DH just entered hospice. He was on maximum dosage of both donepezil and memantine but the hospice doctor immediately wanted to discontinue donepezil and lower memantine with the goal of stopping it as well. First, let me say, it was obvious my DH’s physical ability was declining when he was screened for hospice, but…
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found out
I just found out today that my mom has Alzheimers. she's in her 60s and yes im in my 30s but its still a shock. I had to tell my 17yr old son today. The doctors caught it early on, however its still hitting me hard. how does someone cope with this news?
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DH with mild dementia, sleeps a lot
DH sleeps 3 hours in the afternoon, @ 9 pm his eyes are closing. If I mention that he sleeps a lot, he gets angry and verbally Abusive. He is unable to help me in simple chores around the house that he used to. He doesn’t do much all day except go for one mile walk twice a day. Is this normal? How do I tackle this?
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Wanting to go home...
I saw this on a Facebook post by Creative Carer. Great tips on what to say or do when our loved one says they want to "go home"… The desire to “go home” is heartbreakingly common in the later stages of dementia. During the last few years of my mum’s life, she often spoke about her parents and longed to be back with…
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Refusing to shower
I have tried everything under the sun to try and help my mother (70) to shower. I have read articles, books, these discussions, you name it. I've tried things like a shower chair, washing her hair in the sink, washing her face in the sink, baby wipes. NOTHING helps when it comes to showering. Every time we approach the…
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Feeling lonely and loosing hope.
This is my first post here, as I just joined today. My dear wife (DW) was diagnosed with early-onset Alzheimer’s back in February of 2022. I have been doing the best I can since the beginning, but I now realize I need some outside help. I’ve always been the type of person who thinks they can handle a lot and get things…
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Our 1st day
My wife (65) had lab work done recently and today the results were posted to her account that the lab work indicated that she has Alzheimer’s and we received a referral for a PET scan that is needed by insurance to ok the IV treatment. My wife is devastated and I have no idea how to begin to comfort her.