-
Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
-
Early in the process
My husband was advised by neurology dept that he probably has Alzheimer’s Doctor can’t see him for 4 months to confirm. What am I r do?
-
Parietal or Atypical Alzheimers
I’m just wondering if anyone out there has a loved one with parietal Alzheimer’s. My DH’s AD is on the left parietal lobe. This is a very different path than the usual AD. His first symptoms were severe deficits in Math. We noticed he kept over tipping waitresses, who didn’t mind at all. His social skills were the same for…
-
I Would Pay Money for a Little Anosognosia
As my DW loses her ability to speak and has started becoming more anxious and paranoid, she will say to me, "I am about to lose it all." and then she'll cry. So I cry and think of how utterly unfair it is that she knows, really knows that her brain is failing her. I know her thinking she has nothing wrong would bring it's…
-
Aunt's caregiver guilt
My aunt has no children, no spouse, no partner, ever. She is the kindest human, but a loner. I am her caregiver; she was diagnosed with moderate dementia. I know it is not safe for her to live alone and I took her keys away months ago. She wasn't caring for herself, eating appropriately, taking her meds, and I watched her…
-
Sad for DH, sad for me
The other night when DH came in to visit and have his nightly glass of wine, he started talking about some money that was deposited from a small income source and then tried explaining to me why the money was so little. This income source was in the field he had spent his entire working career in, but he couldn't find the…
-
Christmas gifts for someone with Alz
My wife has advanced Alzheimer's. She cannot walk or talk. What do others suggest for Christmas gifts for her?
-
How to respond / deal with the almost obsessive past work talk
My DH was diagnosed with Alz over a year ago. As with most of us I was noticing signs for 3 years prior to diagnosis. I'd say he's into early stage 5. He is still able to care for himself and do most things around the house. Of course he repeats his past stories, and asks alot of repeated questions. I'm dealing with those…
-
Saturday night
this is what Saturday night looks like at our place 🥲. How about yours? Lol
-
I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags and signs (there are many people at this very moment who have a family member with dementia and still do not realize it), and especially to help people navigate through…
-
I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
-
I feel so alone and lost at times
My husband was diagnosed with "MCI with a vascular presentation." The loss of his short term memory is jaw dropping. I'm observing a slow decline in him, but then some days, he seems "OK." I've noticed when he is around other people that do not see him on a daily basis, outwardly he seems fine. His adult children do not…
-
What Is Respite?
I’m so tired from 24 hours and going of aimless, but harmless, wandering, but, but… Today I have a caregiver for three hours. DW is accepting of her today. My respite is the garage door up with a soft rain, sitting in a lawn chair with the door into the garage locked so my DW stays with the caregiver, sitting here…
-
How long survive without fluids
my DH has been put on hospice. He is in hospital. He has had zero fluids for 3 days. He’s on morphine and Valium. His BP is still good, good oxygen, had some mottling which is now back to normal, strong pulse. He had death rattle which is now gone. Has anyone had this experience?
-
Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
-
Treatment Options and Initial Questions
My sister was diagnosed today and she is 66. She is already on Donepezil 5mg. I see discussion around infusions. Can someone enlighten me on this? Also wondering what some good initial questions are to ask the doctor when we have our first in person visit.
-
Tonight
As I sit here tonight at 9:56pm I think I have had a really rough evening with my DH….but I know what I think is bad now really isn’t. He is probably in early stage 5 and I know there are so many worse days/nights coming. I try to remind myself that really we are still fairly normal compared to what many are going through…
-
being prevented from communication
My DW of 45 years has ALZ and is living in an assisted care facility. The oldest daughter has POA. She and an unknown DR have implemented what they call a "NO CONTACT" plan where I am being prevented from any communication with my wife. They say this is for her "well being" and that it is permanent. She is taking 3 or 4…
-
Just needed to vent a bit
This post is just a vent to others here who know where I'm coming from. The people in my Alzheimer's support group are great and they totally get it too. My wife is 65 years old and about four years into this insanity that is Alzheimer's. She's been my best friend, wife, lover, mother of our children, grandmother now. But…
-
Useful resource, IDK?
Hello fellow caregivers. Like many of you I am on a solo journey caring for my LO with varying degrees of this baffling disease. Wondering if any of you have found AARP to be a useful resource? We live in a rural touristy mountain area, limited resources. I have been reading the 36 Hour Day which has been helpful. I ask…
-
Personality changes in caregivers
I read a very interesting comment in a Facebook caregiver group about how taking care of a person with dementia causes changes in the caregiver. Basically, the constant hypervigilance and responding to unpredictable and alarming behaviors over time produces emotional flattening and fatigue because our nervous systems…
-
Alzheimer's communication tips
Found this in another group and thought it'd help here: If you're caring for someone with Alzheimer’s, adjusting how you communicate can ease frustrations and improve understanding. From visual cues to gentle tone changes, these strategies can help build connection. Learn more about how to communicate effectively with…
-
92 years young no longer able to live independently
I have recently moved to my daughter’s home in Alaska as my memory has (lack of) caused me many problems. Doctors here indicate there is no conclusive testing for Alzheimer’s/brain disease and I have been given no clue as to my brain health or diagnosis. Parkinson’s was suggested but I do not have 2 of the 3 required…
-
How to tell a parent they are moving into a MC facility
I posted earlier about looking for a MC facility for my Dad. I forgot to ask, how do you tell them they are moving into a MC facility?
-
A Wife and A Partner
Not sure why I'm posting this……I'm not looking for validation and certainly don't need judgment. I guess just sharing my experience. My wife was diagnosed with early on-set Alzheimer's over 7 years ago. She is currently non-verbal, fully incontinent, and unable to do anything for herself. I am blessed that she is still…
-
Join Our Caregiver/Grief Support Group
https://chat.whatsapp.com/IyfD6t2EHeFB11LOSye1eIError link to join our WhatsApp support group. we also meet Thursday nights on zoom
-
Excellent information on infusion drugs
-
Excellent information on infusion drugs
-
Excellent information on Alzheimer’s infusion drugs
-
NOT DRIVING!
My wife who is three years into FTD announced this morning she intends to go driving. I told her that was not happening because her neurologist had written in her report she was not to drive and our insurance would be invalid. This, among many other reasons were enough to keep her off the road. Likely she will forget it…