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Getting better, wants to come home??!
We moved my mom (75) into memory care assisted living in September. At that time she was wandering often, trying to hurt herself, not sleeping, and needed to be watched 24/7 to stay safe. The first 3 months in MC she was confused and generally accepted where she was living. She was depressed and not eating so was started…
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Taking away financial agency and bvFTD
Hi all, My dad is 77 and was diagnosed with bvFTD a few months ago. He always handled all the finances and rarely spoke of money to my mom. When I realized something was terribly wrong about 2 years ago, I started the process and now (thanks largely to advice on this board!) I have DPOA and health care proxy for both my…
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Urinary urgency
My sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and aMy sister is now in an assisted living community. She was diagnosed with Alzheimer’s a year and a half ago. She has always had problems with urgency, but now she wants to go every five minutes. She had a number of falls so now…
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Questions: Cleaning up poop with shaving cream
* Does it matter what kind of shaving cream I use to clean up poop? * Does shaving gel also work to clean up poop? * Should anything menthol be avoided? * Do I just slather the shaving cream on, then wipe it off? * Do I rinse DH after wiping off the shaving cream? * Can shaving cream also be used for the bathroom clean-up,…
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Spouse prone to anger if I disagree
My spouse might be angry about a person or incident and insist that I give her a simple yes or no as to whether I agree with her. I cannot in good conscience agree but if I don’t I know she will be very agitated and angry at me. Or she might be demanding that I tell her I will do something very important to her when I’m…
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Feeling Conflicted and Guilty about moving on…
My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind and needs help with everything. I am her caregiver and have given up most of my exercise and outdoor activities to support…
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Experience with Rallies or burst of energy prior to death
Hello! My mother was diagnosed with early onset Alzheimer's 15 years ago and to say the least its been a long road! She lost the ability to walk and eat on her own about 2 years ago and has been very steadily declining since then. Last week she got very bad and was bed ridden and unconscious for a full day with fluid in…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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6th infusion
Today was # six Leqembi infusion. So far so good! Although I do have a headache and feel exhausted. I'm scheduled for a second MRI this Friday. My husband keeps reassuring me I'm doing so good and how strong I am, but I don't feel strong. I guess I'm just having a bad day. (pity party for one) anyone else out there…
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how to update neurologist
I have not seen my neurologist in a year and have declined frighteningly in last 12 months. How do I explain all the changes?
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Bad day
Sitting here reading through some of the post/discussions, hoping to find someone to connect with. I just feel so alone. Even when I'm with family and friends. I'm anxious about an upcoming appointment with my Neurologist (Thursday)even though Leqembi infusion treatments have been going well. Every morning, I wake up and…
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bathroom issues(6)
Hello this is my first post and am willing to listen to any/all recommendations for this problem. Has anyone experienced the loved one with dimentia having poop problems? The issue is she seems to some time poop on the floor. She also puts her hands in her poop. Today, I ended up loosing my cool when she had poop all over…
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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State Law Regarding Patient to Employee ratio at Memory Care Facilities
Did you know that the State of Florida allows the same ratio of staffing for Assisted Living residents as it does for Memory Care! How is this possible when many of those in Memory Care required much more daily support? As individuals we are helpless without the support of organizations like the ALZ Association and…
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Took part in Alzheimers Research study
My father clearly had some form of dementia but didn't get an actual diagnosis, it was just described as senile dementia. I have never had a great memory, but it was getting worse. I recently participated in a research study looking for the biomarker for Alzheimers. Blood tests showed I have the biomarker for Alzheimers.…
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DW just diagnosed with Early onset Alzheimer's
My DW (63) has recently been diagnosed with early onset Alzheimer's so we are in the beginning stages of dealing with it. We've been through 5 months of testing. Her mother is in assisted living and soon to be in memory care for alzheimers so she sees and knows the likely progression. We have 3 grandbabies and more on the…
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Confusion in transition from sleep to awake
I have been searching for information on this site, but cannot find much about this. My DH is developing a pattern of confusion or ??? During the period of coming awake. The duration varies, from a few minutes to half an hour. During that time, he does unexpected things like needing to empty the dishwasher unclothed, or…
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Just when you think thing are doing prettygood
A slight change in a routine about locking the doors while I was at work.He became confused to why we need to.i have grand son I cant quit trust. He knows when I'm gone I I would the doors unlock.dh very upset when just thinks about him. Not quit sure what to do to make him less agitated.
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Accepting
Hello, This is my first post. My DH just turned 67 and was diagnosed with Alzheimer’s less than a year ago. I am still trying to adjust to this new reality and how quickly he seems to be declining. I found the posts on hallucinations very helpful. In the past several weeks he has awoken in the early morning (usually around…
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Experience with Caplyta
Hospice is recommending Caplyta for my DH with EO. Has anyone had experience with this drug?
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New to this Group
I am caring for my DH who has had cognitive decline over the past 4 yrs. As I write this, I can't believe it's been that long. I am trying to abide by the rules, however find myself breaking the rules, especially when I am in the middle of something, (like doing taxes today). He has alcohol dependance with a dementia /…
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An ugly discussion about poop!
Sorry, everyone, but I have a question about poop. My husband is in a memory care facility. Lately, his bowel movements have been very soft, and impossible for him to pass all of it while he is on the toilet. He is unable to wipe himself, so he ends up with poop everywhere. He doesn't tell staff when he has to go, so they…
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Medications?
My husband is starting to show signs of paranoia and hallucinations. He’s currently in a long term care facility. He’s in palliative care. I’d like to bring him home, but he has wandered in the past and sundowns. Does he need to see a neurologist for a diagnosis? How do I find out if he needs medication? I can talk with…
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DH in NH pinched another resident km
DH has been in NH for 2 months. He has been wandering into other people's rooms. Last night got a call that he had pinched a woman and caused bruising. Needless to say the female resident was yelling and extremly upset. I feel terrible he did that to her and today he's having a psych evaluation in house. Anyone ever go…
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Waiting for the ER
DH had a complete mental breakdown at his rehab center today, where he was recovering from a fractured tibia. He has been declining for a week now, and I’ve been begging and pleading for help from them which was not forthcoming. They finally decided tonight to send him to the hospital with a diagnosis of “altered mental…
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Question about adult daycare
I went to my support group today. At least three people there sounded like their loved ones could benefit from adult daycare, but they all said that their people were still too early in the disease and too aware to be willing to go without a fight. How might they approach the subject to make their loved ones more amenable…
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Difficult sibling
I probably already have a post with this title. My brother visits mom once a week and is kind and caring towards her. But! He dumps all his personal problems on her ( she worries constantly). He believes she should be informed and consulted on almost everything. He is obsessed with her “rights” even at the cost of her…
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Need help accepting caregiver
We're trying to hire a caregiver/helper for a few hours a week, but my wife is very private and gets angry at the idea of having someone else in our home. We need some advice on how to resolve this. Thanks.
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Mother Passed Away/Car Keys
My mother passed away 3-4-25. Father was diagnosed with Alzheimer’s January 2023. He has been is early stage to date. Still takes care of himself, but can’t manage bills laundry or cook. I have 2 sisters. One lives right beside him & helps a lot, but works FT. One lives within 5 blocks, helps after work. I live 2 hrs away,…