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Virginia Housing Help
Hi! I’m wondering if there’s any help to attain housing in VA for my mother. She lives in Puerto Rico but there’s no family to care for her there. I live in VA- but is unorthodox living. I need to get her near me in VA. I have been dealing with the federal courts for almost 8 years trying to clear my name from a vindictive…
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Telling children
husband newly diagnosed with MCI and subsequent MRI found atrophy in areas of brain associated with Alzheimer’s. I’m wondering when I should tell our adult children? Husband still functions independently and I think they will be surprised.
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Days are getting tougher
Over the last week or so my DW who consistently identified me as her father is now thinking I am her grandfather as well. When her grandfather leaves, I automatically become her father again. Whatever she thinks I am I just go along with it as best as I can. It becomes especially hard when I have things to do and she wants…
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Vision in left eye
We had noticed that my FIL was having issues with what seemed to be his vision, squinting, rubbing his left eye and then Saturday evening we were watching tv and my husband said he was sitting there with his left eye closed. He had a scheduled eye appointment at the VA yesterday and apparently he has Ischemic Optic…
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Need to say no
I asked this in another discussion but came here due to the recent loss of my husband just a month ago. I am frozen right now with grief and am not ready to socialize. A cousin asked me to lunch tomorrow (we are not that close), as he is passing thru my area, and I said yes, but now I really don't want to go. And my…
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93 yo Mom that has Late Stage Dementia ALZ I am at Caregiver Burnout Stage
I have a 93 year to be Mom that is in the middle late stages of ALZ Dementia I have two businesses that I cannot run and must fulfill my broadcast schedule on the road broadcasting high school games. I have no to little help and neighbors and friends ask but advise or critique me on how to care for my mom but not lending a…
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How or if to tell my parents they are moving to memory care
I am about to move my parents into memory care in a few weeks. They are both 95 with stage 4/5 dementia. They have been living in assisted living for the past 4 years so the move would just be across the courtyard to a more secure facility with more support. My question for this group is when, how, or if to tell them they…
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In-person group for those with Alzheimer's
My wife is in the mild stages, and is having a hard time talking with others in her situation. Since her reading and writing skills are affected, an online forum is not working. Any suggestions of groups for those who have the disease?
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Puppy Care
just to lighten everyone’s load I thought I’d share the healing power of pets. DH had a fall on the grass a couple of weeks ago the outcome was three broken ribs and a day or two of pain. I called the ambulance DH, Milo our Schnoodle and myself had a limousine ride to the hospital. A day spent doing scans, ultrasounds, MRI…
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Advice needed to get Mom to agree to medicine management
Tomorrow we are meeting with the nurses at my Mom's AL facility to transition her medication management. Up until now my Mom has managed it herself but has been missing or mixing up doses from her pill box. She is very angry that this is taking place as "she can do it fine by herself". Any words of wisdom to get us over…
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Looking for programs to deal with violent dementia issue.
My mother and father live outside Texas, my mother is talking about moving here with my father who has moderate to severe dementia. He has become increasingly irritable and violent, striking my mother repeatedly in the head, the last event causing a concussion and lacerations. I frankly do not know what to do about this…
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Husband hit 89 year old wife
My mother is caring for her husband (both 89) who has been diagnosed with Alzheimer's. Tonight he hit her twice in the face in their home when he become frustrated with something that she was doing (no excuse). To the best of my knowledge this has never happened before. I am interested in any advice or guidance on how we…
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Doctors visit gone wrong
Sorry for the long post. My DH is in year 5 of official diagnosis of vascular/FTD dementia. We have a wonderful doctor we see every 6 months. Or more if needed. In March he took what I call a hard dip and we went in for his 6 months appointment . A few medicine changes started taking place that seemed to make things worse.…
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Kisunla Infusions
Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…
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In between stages
Hi. I am new to this site. Actually I don’t know why I never joined despite my being aware of its existence. My father was diagnosed with Alzheimer’s and quickly progressed in his disease. He was then diagnosed with Parkinson’s a passed December 24, 2021. This all transpired in about 4 years. After he passed my brother and…
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Making the move from AL to MC
My mom is currently in AL but we have found that she has been wandering outside on her own, so we need to increase her supervision, therefore putting her in MC is the only option. Just wondering from others experience, how long should the transition take? She is in amazing physical health but currently has mid-stage…
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How to manage putting a pet down
Over the past several months our beloved cat’s nasal tumor has grown larger and her quality of life and weight have deteriorated. DW is middle-stage dementia and can’t seem to remember our discussions of when to let the cat go. Last week we agreed that it was time and scheduled it with the vet for tomorrow. We’ve talked…
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What to expect at the end
If talk of death/dying upsets you, please skip. My husband died last night. Thanks to hospice, he was able to take his final breath in a hospital bed in our living room. As a hospital nurse for 20+ years, I witnessed many deaths. While each situation is unique, my husband's passing followed a fairly predictable course.…
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Post ended
post done
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DW Doesn’t recognize me
My DW (65) has been battling Alzheimer’s for the past 8 years and is now in early Stage 7. I have been her primary caregiver throughout this journey, although earlier this year I hired a caregiver who comes four days a week during the daytime to help. Over the past several months, my wife has continued to decline. Most…
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Hubby in MC taking him to doctor first time out
hubby has been in memory care 7 months. The facility said they would take him to doctors appointment with aide and I’d meet them there. Now I find out they cannot do it so I’ll be taking him. It’s his first time out in 7 months. Trying to think what I can give him for the ride in car to distract him. The ride is about a…
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Preparing for the inevitable future.
My darling bride just turned 60 and has had a diagnosis for two years. Looking back she probably had symptoms in the past up to 5 years ago. We're still doing very well at home, and were able to do a lot of things, but I need to start preparing for the eventual time when she needs more help. My question is about what I…
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Who are we really?
We are partners, nurses, thinkers, rememberers, caretakers and captain of a ship we are trying desperately to keep from sinking. We think less of ourselves and more of who we care for. We are the lonely, the lost and often the forgotten. We are what none of us thought we would be. On the flip side of all that, we are…
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Finances
This is what worries me the most. How are we going to financially pay for my DH’s care. We rent our house, don’t have savings or long term insurance and we make too much for Medicaid. This totally freaks me out. My DH just thinks insurance is going to pay. I need to work. When the time comes I don’t know what to do
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Angry and argumentative vs quiet and accepting
I have often wondered why one person with dementia will become angry and argumentative while another seems to just seems a bit confused and tends to accept limitations without much concern. Do you think it could be related to their personality type before dementia? My mil always gave in to whatever my very strong willed…
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Dad gets aggressive
My dad has a bandage over his wound per his dr and wound clinic. It gets changed by the wound clinic as well as my sister and I every 3 days. The dr. Said it needs to stay on to help it heal. He forgets it needs to stay on and keeps trying to take it off; gets mad at us for not taking it off when he asks. He feels he…
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Elder law attorney specific recommendations?
Please excuse if this is not appropriate to ask. I've been interviewing elder law attorneys for Medicaid planning for my early-stage spouse and am wondering if anyone has any specific recommendations for Northern NJ, Bergen County in particular.
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I hung up on mom today
I called mom to say hi and check in on her (she is in a nursing home). She started by telling me she has a list of things she wants from her house when I go there next. I let her rattle off the list of things she doesn’t need and made no comments about how ridiculous these items are. Thing’s quickly snowballed and she…
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Bill Ritter talks to Maria Shriver about her Alzheimer's advocacy
Bill Ritter is a news anchor who was recently diagnosed with Alzheimer's.
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Early On Set Alzheimer's Diagnosis
My daughter, age 50, has been diagnosed with early on set alzheimer’s. It took us forever to find some place that would help us. She was diagnosed about 2 years ago. We had to go to Mayo Clinic in Rochester to get that! Washington University did not help. None of the doctors we went to in our area helped so much time was…