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How to help my mom: she forgets that she went to the bathroom (#2) only a few hours after going
Hi everyone! My mom is almost 83, and in great health, but her memory is not the same over the past year. Over the past few weeks, my mom keeps on thinking that she is constipated, and that she hasn't passed a bowel movement in two days. I explain to her that she did so earlier, and it still doesn't register. She continues…
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Holiday celebrations
Hello Friends, My DH is moderate - late stage ALZ. He is not oriented to date/place/time, he is basically non-verbal. He is very unsteady on his feet. He requires help in the bathroom. He recognizes family when he sees faces, but I’m not sure if he knows our names. I am struggling with depression and dread the upcoming…
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Mom is consumed with sadness...
My 58-year old mom with early-onset Alzheimers lives with me. She has been with me now for a year and a half. Her type of dementia effects her visual comprehension first and foremost, which prevents her from doing any of the things she enjoys. She can see, but she doesn't understand what she is looking at. Lately, she has…
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Just Diagnosed with AD
Good Morning, New to this group. I was just diagnosed with AD (early stage). I am 60 and I still function at a high level. Because I can function at a high level, it is very difficult to accept this. My biggest fear is that of the unknown. How long am I going to be able function at this level? When will the debilitating…
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Care Givers and Spouse Online Communication
Looking for an easy way for our two care givers and myself to share daily information regarding the experiences with my wife. Would like to be able to privately post information such as meals consumed, surprises, issues, helpful tips, questions among the group, etc. Has anyone used an app or program they might suggest?
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Lecanemab 3 year data
We listened to a presentation the other day by doctor at Duke University. He mentioned there is 3 year data now on lecanemab. He presented the info in a support group for those who are getting lecanemab or who may be interested in getting it. Open Label Extension Data Shows Lecanemab’s Continued Effect on Alzheimer Disease…
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Seloquel
I am new here. My mother was diagnosed with ES VD in August. She has been prescribed Seloquel which is very concerning to me. Based on the info I have been able to gather, she does not have any behavior issues that would warrant being prescribed this drug. She is docile, but has had some anxiety and sadness in the…
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Activities for Mom, middle stage alzheimers
My mom gets bored and starts roaming around the house. We are trying to find some activities, but it's difficult. She doesn't comprehend games real well, like solitaire or anything like that on phones/tablets/computers, she doesn't like puzzles, and she is showing signs that she can't comprehend things like words and…
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Three Years in Memory Care
Today marks 3 years since I placed DW in Memory Care. I have been blessed as DW acclimated immediately to MC & has been happy and well cared for there. This morning I made her blueberry pancakes and brought them to her for breakfast. At this point she needs to be hand fed and no longer communicates but since she cleaned…
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Alzheimer’s-Posterior Cortical Atrophy
I also posted this on Caring for Spouse page. Don’t remember if I posted this already but I recently realized symptoms my husband had early on several years way before diagnosis. He complained of dry eyes but I think he just couldn’t describe what he was seeing. He also had difficulty spelling common words and doing simple…
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Caring for dad
Hello, I am at a loss for words as to how to handle my father with dementia. He was diagnosed over a year ago and was holding up ok for awhile but it has taken a turn for the worse. Recently, he has become very aggressive and has become physical with his family. I had to call 911 this week because we just couldn't handle…
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The Long Goodbye is Over
My dear husband passed away early Monday morning. He was at home and with me and our two children. He was diagnosed 3 1/2 years ago and had been slowly progressing over time. He was always cheerful and I am so thankful for that and for all of the support that we had. About three weeks ago, he was becoming so weak that we…
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Did the SLUMS test....outcome....Dementia
Hello, I really don't feel like I belong here bc I don't know all the big test names that everyone else seems to know, but I'm scared and looking for ppl who understand. I've had a brain MRI that came back as normal, But I knew in my heart that something is majorly wrong with my memory, so I requested to have a cognitive…
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Granddaughter to one suffering from Alzheimer's and Hospice professional
Hi everybody! I am new to this site, but wanted to sign up, to try to help others caring for/living with someone suffering from Alzheimer's/dementia. I have recently started working as an account executive/community liaison for a hospice company, where I have learned so much already. My grandmother also has dementia, so I…
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New member
Just signed up today! Hope to get a better understanding of what is yet to come.
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How to respond
My LO has recently taken a large turn for the worst. I am 12 years his junior and still work full time but have homecare during the day. It is getting much more difficult at nights. He keeps asking every ten minutes for me to take him home or he needs to go home. I say ok lets go and a lot of times I will drive around the…
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Bible Verse to Lift You Up 10/27/24
Dear Caregiver, there are many verses here, so my suggestion: Read a bit now, pray and think about it, and come back later to read a bit more. It is always worthwhile rereading and meditating on familiar verses especially these about love. You give up and do so much because you choose to help someone who needs you. That is…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are among His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day.…
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Bible Verse to Lift You Up 11/19/24
THE LORD BLESSES US Psalm 29:11 New International Version 11 The Lord gives strength to his people; the Lord blesses his people with peace. me: When you and I love and obey the Lord, we too are His people. Lord, You are my God. Thank you for always being with me and giving me the strength and peace I need each day. In…
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What does having a short memory loop feel like?
I wonder what a PWD with a short memory loop, unable to create new short-term memory, feels like? For example, when I wake up from sleeping, I may remember some dreams, or maybe having gone to sleep. Maybe a better example is awakening from anesthesia. In either case, you remember very little until you go about the process…
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When’s the time for a nursing home?
Hey everyone, my dad is 94 with stage 6 Alzheimers. He lives with my mum who is 90 and they’ve had carers 3 x a day. We are in the UK. Dad’s just had a hospital stay for getting on for two weeks due to an infection. He’s very wobbly on his legs and has had some falls. He can’t shower by himself or dress himself and he’s…
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"Ants in his pants"
Has anyone experienced what i call "ants in his pants"? My DH can not sit for more than 10 minutes. He keeps going to the kitchen, opening the refrigerator, freezer, kitchen cabinets looking for something to eat. He just won't sit. It is so exhausting as I have to get up and see what he is up to? Any suggestions?
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I'm ready for adult day care
I have concluded that I have to have help with this. My wife has stage 5 AD and my 50 year old son has a stew of cognitive disorders, and I am the caretaker for both. He lives in an RCF and she lives with me. Taking the two of them anywhere is very stressful for me and them, because they trigger each other. DW needs 24/7…
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Leqembi update
After four infusions we had an MRI. There was no swelling or bleeding on the brain and the white matter has stayed the same and has not expanded. Mild side effects continue with fatigue and mild tremors (not sure if it’s from the Leqembi or the Alzheimer’s). Anyway we decided to continue the infusions and hopefully we keep…
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Tremors
Hello again, Does anyone’s family member get tremors? This started about a month ago. Not sure if it’s from the Leqembi or totally unrelated. They told me she would get chills from the Leqembi, but these are definitely not chills. Just curious. Thanks in advance.
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Important date organizer
Hello all. I’m currently caring for my mother who has mid stage Alzheimer’s. Her current hurdle is the inability to read calendars. Does anyone know of any good product that may organize important dates for her in an easy to read/understand way? Thank you!
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My DW not eating
My DW had a fall in the summer, with nothing but a small bruise. Then a kidney stone 2 months ago, resolved. Then, 2 weeks ago, she fell at home. 2 fractures in her pelvis (no surgery), Brain bleed with no lasting effects, large bruise in her abdomen. Admitted to ICU in a LOT of pain. She is now in a wonderful rehab and…
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Diagnosis Difficulties
Hello everyone, I'm new to this site. I guess for me as a caregiver for my husband is knowing what the diagnosis is. He was recently hospitalized and I was given three possible diagnosis. (Ubspecified pyschosis, frontotemporal dementia, paranoid delusions). He was hospitalized several times within a short span of time and…
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Moving LO to a condo
Both my parents have dementia/AD. They both are in the moderate stage and they can no longer live in their house far from any family. My siblings want to buy a condo with my parent’s funds, move them to it and get them 24/7 care. They think my parents will easily adjust. I’m not convinced this is the right solution. I’m…