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Christmas Cards
In a year filled with bad news, I am sitting here with a box of Christmas cards wondering what to write. I want to send cards; this is the only contact I have with many of the friends and relatives on my list. Caregiving is isolating enough without letting my last few contacts in the outside world slip through my fingers.…
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Forgetting how to get in bed
Anyone dealt with a fairly functiontioning PWD but whom can’t seem to remember how to get herself in bed? My mom is still in AL despite some decline recently. She’s still able to use toilet and bathe herself, feed herself so not quite ready for MC (she doesn’t wander either). Previously she’d get herself in bed like a…
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Aggression and violence-early onset
Hi I have a dear friend that is dealing with her husbands combative, violent aggression. He is an early onset patient and 70 years young. He was placed in MC and they had to transport him to ER because he was harming the staff. The ER sent him to a geriatric psych facility 2 hours away. After 10 days there the psych…
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Eating less & sleeping more
I guess this is “normal” progression, but my DH has been eating half as much for a while and has been sleeping a few extra hours a day for a couple of months now. I put him somewhere in stage 6. Today, he put himself to bed at about 7 pm and ate very little. I guess I’m freaking out a little b/c I’m seeing (maybe a faster)…
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behavioral advice needed
Hi, A few months ago my husband and I joined a state funded Medicaid/Medicare association that provides day care, OT, PT, medical care, etc. So far it's been great for both of us as he is an 85 yr old with ALZ and I am his wife/caretaker, 75 year old with physical disabilities. We go 3 days a week to the daycare to give me…
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Hi - I really need input about end of life
My sweet husband is nearing the end. I feel so alone. We’ve been married for 24 years. No kids. What family he has walked away when he got diagnosed 6 years ago. He resides in a memory care facility in Los Angeles where they take really good care of him and love him. He was only 59 when he got it and now he’s 65. Had a…
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Zoom or online chats
Is there place to go to be on a live support group chat or zoom call? The posts can be helpful it would be nice to talk to people in real time. I don't have the energy to go through all the posts. Thanks
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sensitivity extremes
Does anyone experience LO being overly sensitive to things like light, noise,temperature? My DH complains when I get a pan out of cupboard that I am making too much noise. He gets upset when lawn guy runs the mower or blower. Everything is too bright, too loud, too hot, too cold when they are not that bad. Thanks for input
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Approaching stage 8
My DH, who has been on hospice in a nursing home for a month, had a big downturn last night. He can no longer swallow and is aspirating on his saliva. Hospice has discontinued all food and drink, and now it is a waiting game. He’s getting morphine and Ativan every four hours and seems to be comfortable. It’s hard to…
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Memory Care “Incidents”
My mom has been in memory care for two months and has been in three “incidents” so far where other residents grab her (physically) when she’s entering or leaving her room because, in their state, they think my mom’s room is their room or they think she has something of hers, which she doesn’t. After each incident, she…
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New Here - Very Overwhelmed
Taking a deep breath here because I am not exactly sure where to even begin. My father is 75 and we do not yet have a full diagnosis but there is definite memory loss. My father has a lot going on, in addition to trying to figure this out, he also has cancer and is diabetic. He's experienced a lot of loss, as many people…
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In person support group for mom
Hello! Mom has been struggling with "age-related dementia" (malarkey) for a few years. Been working on diagnosis for almost a year. Finally have PET scan diagnosis- Moderate AD. My mil passed w AD so I know what's coming. But I didn't expect it to happen so abruptly. Mom lives with me most of the time. Goes to stay with…
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Help with not eating
My mother has virtually stopped eating. She has lost nearly 50 pounds in the last 4-5 months. Her eating has dropped to maybe a half cup of food maybe twice a day. She a is still active and very independent including cooking for herself and my father. I need help. I have tried everything I can think of. Where can I turn?
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Should I replace my Mom’s Computer?
My mom is now in her third month in AL after a fall presented the opportunity for a change she had been resisting. She’s not as happy as before, but she’s managing and at least she really likes the food. Recently her ancient Chromebook died. She does post on FB occasionally and checks her email maybe once a week. She also…
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This is fantastic! 5 day course from Dr. Natalie Edmonds
A few years ago I took a 5 day course from Dr. Natalie Edmonds. I was told I could share it. This was supposed to not be available anymore, but I was cleaning out my emails tonight, and decided to try the links. They are live. I thought the class was excellent!! If you watch the first one, you'll know if it's for you. I…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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Am I being overly concerned?
My husband is in the mid stage Alzheimer. He showers 3 times a week. On the days he doesn't, he will get dressed before he comes out of our room. I am usually up hours before him. He will put his clothes over his PJ's, won't change his underwear, socks or tee shirt. It drives me crazy. Should I just happy he does it 3…
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Memory Care Activities
My wife has ALZ Stage 4-5. One of my big problems in caring for her is finding things for her to do. She has lost interest in many things and depends on me to fill in her time. We go to our Senior Center often, go for walks and have lunch out at shopping malls. In the evenings we watch TV together. While she is at home now…
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Unplugging Cord for Fear of Fire
My mother is in memory care and has been diagnosed with moderate dementia. Lately, and especially when she is staying with one of us children, we find her unplugging everything in her room at the assisted living before she leaves and in her bedroom at our houses when she goes to bed because she’s afraid she’s going to…
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Help Please
Hello everyone - I am hoping you can help direct me on next steps. We just got back from an appointment with my husbands general practitioner. I spoke with the Dr outside of the exam room about my concerns about my husbands change in behavior and attitude. While I didn't expect him to fix it at this appointment I was…
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My brother
I'm new here. My brother has early onset dementia. He lives a few states away from me. He is married to a wonderful person. He is very angry at her. He claims there is too much clutter in the house and wants it all removed by a certain date or he is leaving and moving up by me. I love my brother and we are very close. I am…
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Parent in denial
Hello, I am new to this forum and am seeking some assistance in how to best navigate getting someone to be seen for concerns of dementia/alzheimers? My mother has been exhibiting symptoms for a few years and her memory and ability to convey her thoughts clearly are greatly diminishing. She refuses to acknowledge this…
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Hearing aid use and dementia
Another paper found to be wrong. I just read an article about hearing aids aiding in the fight about staving off dementia. I posted a link, but I received a message that their robot would not allow the link. First time I've seen that. I'm sure you could find it with a search. the original paper, “Association between…
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Cameras indoor
Hi, does anyone have a suggestion on indoor cameras? My mother is living alone for now and I put a camera in kitchen & one by her favorite chair & on patio. These cameras follow movement and also have a red light and she notices them and unplugs them. I’m not sure if they make a camera without the red light coming on or…
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New to the group: Mom won’t stop shopping online
Hi there, My mother has been suffering from memory decline for a few years and was just officially diagnosed with Alzheimer’s, in the early enough stages we’re talking about Lecanemab and I’m sure I’ll be back asking questions about that! One thing we’re dealing with that I feel like others have also struggled with is that…
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New to the group: Dad diagnosed with MCI, what now?
First time posting here, glad to have found this group! My dad is a widower and lives alone. In the past few months, his memory and cognitive skills have noticeably declined. Primary care doctor referred us to a neurologist and my dad scored 20 on the MOCA. My dad was very agitated by the appointment, said he didn’t trust…
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Mom is at peace
Mom passed away early this afternoon. My son and I were with her. I hadn’t been there very long. The change between last night and noon today was a lot. She’s at peace now. I’m continuing to feel numb - but l do feel relief.
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How to convince a loved one to move into an assisted living facility
hello. I am a caregiver for my father. He currently lives alone. I live very close to him. His Alzheimer’s has progressed and I’m concerned about him living alone. I’ve had some things in place the last few years that have allowed him to remain home but his behaviors, especially late in the day, are concerning me. The…
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Thanksgiving MC
I don’t know what to do about thanksgiving. My mom is in MC. Has been since August. She keeps bringing up Thanksgiving and my sister who usually hosts. My sister and I were hoping that bringing our families together at the MC’s Thanksgiving holiday buffet celebration would help but it hasn’t. She’s fixated on Thanksgiving…
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Dad with early stage, worsening
Hi, My sweet dad, 84, is declining and he knows it. It’s utterly heartbreaking. He has begun saying he lives in another house that is exactly like his. Most days, he falls asleep in his chair in the afternoon. I also have to make sure he eats because he won’t think to or he gets overwhelmed thinking about it. Until one day…