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poignant question
We had a scare recently. Sometimes we don't know whether what is happening is mental or physical. She was feeling like her leg was underwater, her feet were cold. It was very disconcerting. I suspected it was mental because the symptoms were so odd. The doctor agreed with me. We just had to let it ride. Her voice is…
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Light therapy
Does anybody have experience with light therapy. I am looking to purchase a 40 hz therapy light and a 10000 lux light box for my husband. I have read good things about using light therapy, I was wondering if anybody has had experience with this
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Negative Nellie here
My therapist wants me to journal something positive or a good thing that happens to me each day. I’m finding that difficult. Today I went to the dentist to have my teeth cleaned & checked. The dentist found a cavity. It’s the story of my life anymore. I really cannot find the good. My husband’s memory lapses are…
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Next steps
Hello, I am new to this group. My mother was recently diagnosed with Alzheimers. In the past month her condition has rapidly worsened. I have asked her neurologist about support and what steps to take next and she referred me to this website. Does anyone know what the next steps should be if my mom has become so paranoid…
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Suggestions for Getting Mom to take her Meds
It's definitely not an issue of compliance—mom is very agreeable about most things, all things considered. It's much more her forgetting. Just appealing to the group to help brainstorm a solution.
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40Hz Light & Sound Brain Stimulation
I have been doing a lot of reading on how 40Hz Light/Sound Brain Stimulation can help Alzheimer (and other dementia) patients. This approach was hatched at MIT by a pair of MIT professors so there is science behind it. Two start-up companies are doing significant trials with their 40Hz products. The most prominent, is…
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Late middle stage dementia
I need some advice about my GF of 13years. My GF's dementia has been getting worse over the last 6 years. We live in Florida. She is at the point that she didn't recognize me when I drove up to her in my golf cart. She also didn't recognize my son last month. She has left at least 1 pot burning on the stove. She has gotten…
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New to this site
My husband of 40 years (he's 85) has dementia and recently the sundowning started. It is so frustrating and I don't even know how to respond. He thinks our bedroom is a hotel, that we are not in a house, that we don't own the house, etc. He is so confused at night. He doesn't know night from daytime. :(
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Feeling alienated
My husband was diagnosed with early Alzheimer’s in 2023. My guess he is in the moderate stage now. We moved to another state in 2022. I thought it would be a good move for him, as there would be groups he could join and be active. We also wanted to be closer to our grandchildren. We have not seen the grandkids as often as…
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next step with incontinence when no diaper products work
I am so fed up with wet sheets, blankets, clothing blankets etc. I posted in May and got lots of good suggestions on better products than Depends, but even with products that say Maximum absorption, he is wet every night. This morning I got him up at 5AM changed everything and at 830 he and the bedding were completely wet…
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What a hell-a-la-boo
My story has been shared over the past 2.5 years, so I will pick up from where I left off. Mom is recovering nicely from her Ablation. I thank God for that. I am thankful also that her UTI and URI are both in the past. Sadly, what is also in the past, is her memory of events that led to her hospitalization 2 weeks ago,…
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long distant relationship
I have been with my partner for a couple years ,this week they was diagnosed with early Alzheimer's and I do not want to walk away ,I want to stay and go through this with them, looking for anyone who is going thru this for advice.
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Mom is in MC but we are still questioning if it was too soon
Please help. We moved our mom from assisted living to memory care (within the same facility) a little over 2 weeks ago. She wasn't functioning great in AL in terms of her ability to engage in activities, go on the errand trips, etc. But she was happy. She would walk around the building, say hello and chat with people and…
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Sexual aggression in MC
First post here...my dad was diagnosed with vascular dementia last summer. We recently had to move him into MC. He was adjusting well, but then he began exposing himself to others and some touching between him and others. He was moved out of MC onto a regular nursing home floor. A few days ago, the night nurse found him…
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Aricept dose adjustments
When our LO was diagnosed with dementia in Dec 2024, he was started on aricept, continues to take it before bed and right now not at his house so unsure of his dose. I estimate given the symptoms we are seeing he is probably mid to late stage 5. At this point in time would asking for his dose to be adjusted up, help with…
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I Need Help
Hello! My name is Aaliyah. I am 23. I was adopted by my grandparents when I was 2 months old. They've raised me without any help from my biological parents. In 2016, my freshmen year of highschool, I lost my grandfather to Alzheimer's. I took it insanely hard. I was one of the only ones he remembered in the end. I had…
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At the end
Day 5 of no food/water. Emotional rollercoaster. I've spent years anticipating this, but I didn't expect it to be this difficult. Yesterday I found a pressure ulcer on his coccyx because I've been avoiding the pain of repositioning. As a retired nurse, this absolutely gutted me.
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VA - Veteran benefits
Just wanted to give an update on possible Veterans Benefits. Service connected disability: File for it if the Veteran meets the qualifications. There is a list of diseases that are presumptive for Agent Orange. Parkinson's is on the list and I believe Alzheimer's & Dementia should be. I would file for Social Security…
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I need to tell my story of how I am here and how it has affected me
I am struggling, and have been masking for what seems like too long. I am burned out. I need someone to talk to about this, it's been a wild ride. I am in need of a listening ear. My husband has been diagnosed and I am really struggling to cope.
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Negativity
My DH has been diagnosed with mild cognitive impairment by his primary care physician. So far, this has been really hard. I wrote a list of all the behaviors I see at home, it is not his memory it is “faulty” thinking. I gave my list secretly to the neurologist’s medical assistant to give to the doctor. Then the doctor…
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Behavior change question.
My DH has started Saying I Don't Know What To Do. This started when he wakes up at night and now has progessed to morning and occasionally threw out the day. Has anyone experienced this? And if so is this a temporary change or has it become permanent? 5 1/2 years diagnosed. Thanks
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DBAT Scale; FAST Scale; and others?
Which of these scales have you folks found to be helpful? I am the sole caregiver for my 72 yo DH with dementia/Alz. We live in a rural mountain area. (We have all 4 seasons here).
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Looking for advice
My DH has ALZ, somewhere in Stage 3-4. Last night, we were having a conversation and he stopped mid-sentence with a blank look on his face. When he recovered a few seconds later, he realized that something was "off" and obviously very concerned about what had happened. He had forgotten what he was talking about. He was…
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Eating habits
My DH has a habit of eating his meal very quickly, like he's aftaid he'll never see food again. We have accidents of him knocking his glass over, dripping food everywhere, but so far no choking, which I worry about. He was a firefighter for 33 years and I know they all ate very quickly in case the alarm went off, so I'm…
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Defining "self-care" as a caregiver?
I thought I knew what it meant… I mean, generally, yeah. But for a caregiver of a spouse with YOA, I'm realizing I kinda don't know what that actually looks like. I'm going 110mph all the time and my brain hurts (not to mention my eyes from all the reading, forms, etc.). I'm looking for hacks & visualization re: what…
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I just need to vent
It’s been said that no good deed goes unpunished…how true this idiom is. My husband had been wanting a dog since we lost our last one. I wasn’t sure we were ready but in a weaker moment I saw a dog on the county shelter site that looked like she would be perfect. She is 8 years old so no longer a puppy, was supposedly…
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Not sure what to do!
Back in February my mom wasn't answering her phone one morning. I went to her house and found her on the floor of her bedroom, presumably she had been there most of the night. Long story short, after a month in skilled care, she went to an assisted living facility and she will not be going home. She is not adjusting well…
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Looking for Work From Home Opportunities
Hello, I thought this would be a good place to ask since other people might have the same or a similar struggle. I stopped working in July after I abruptly decided to come care for my Grandmother who is level 5 LBD. I have since depleted my savings and I am not getting paid for her caregiving. Although I have applied for…
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Before diagnosis
My dad has not been diagnosed yet but we are in a difficult situation. My dad is having short term memory loss issues. He is 86. He is a physician and probably the smartest man I have ever known. He has always been the patriarch of the family and in charge of everything. He does not want to relinquish any of that control.…
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Ideas for managing bad habits
My MIL has taken to spitting in the house. She'll eat a meal, and I guess bits of food will stay in her mouth, even though we tell her to stay at the table until she's finished swallowing and try to get her to drink before leaving the room. Once she gets settled in the living room, she'll start spitting those bits of food…