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Pronounced Lean
My DW has been taking Galantamine for a couple of years. Progression has been fast and she almost can't speak anymore. So, the neurologist said, "Let's try Memantime". I'm not sure why I said yes at this stage, but for the speech issue. Hoping against hope it might give DW a little more time speaking, I guess. I've noticed…
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New Medications for DH
My DH has been in the hospital in the geri-psych unit for a week now due to extreme agitation and aggression. Previously he was on Seroquel, Trazadone, and Lexapro. Due to the affects on his heart, Long QT, the doctor has changed his meds to Abilify and Zoloft. Do you think these will tamp down the aggression and agitation…
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interesting delusion
Today I dropped my DW (stage 5/6 vascular dementia) off at the salon to get a haircut. Fortunately, her stylist is very understanding and patient. I returned 45 minutes later to pick her up. I paid my wife's bill and scheduled her next appointment. The whole interaction was pleasant and uneventful. Several hours later…
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Not asking for any help
I had an initial consultation with elder law. Lots of paperwork and mom doesn't want lawyer to know about her finances. I asked mom about Medicaid planning and asset protection but showed no concern. I told her about her losing everything if she and dad need to be placed in a home and can't afford it in the long run. She…
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How and when should I tell my DH I am placing him in MC
Thanks to encouragement from people on this forum, I have decided to put my DH in a Adult Family Home dedicated to memory care. A bed will open up in about one month. I can't decide when to tell him he will be living somewhere away from me. If I tell him the day before placement, I am afraid he will refuse to get in the…
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New Symptoms and Much Denial in Spouse
At first I thought it was distraction. Not following through on plans, forgetting words. Then I thought it was depression. Denied. There was a change in smell and taste. Tests were negative. Now this could be early dementia. My spouse is 58 years old. I told her I was concerned and I was dismissed but she finally agreed to…
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What to expect in first month at MC
Taking the big step. My husband is going to MC today. A few things are bugging me. I’m not convinced either that he is ready and stabilized enough, or if this step would even be necessary if he had more appropriate hospital care in a geriatric GPU. Will be saying lots of prayers that this will all work out. Setting all…
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Boy do I need help
this is my first post. My 78 yr old DH is full into dementia. He had a stroke a few years ago then ended up in the hospital with Covid and pneumonia for a week. He was very delusional there and carried on when home. He is able to dress, do all personal hygiene, he can do pretty much all he’s even driving with the 6 month…
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update information scam
Just received our third call in three days to update our medical information. First call alluded that they were from CVS. Spoiler alert -they were not. Next two said 'medical supply company'. All three asked if I had back pain or leg pain. No idea what they were trying to sell me as my answer was the same each time --…
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Llooking for alternative treatment options
Hello, I am being evaluated for Vascular Dementia. MRI showed plaque build up, cognitive test showed difficulty in executive decision making. Live near Dallas. Looking for doctor/alternative treatment options .
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Meal Ideas
Hi everyone! My mom previously was an adventurous eater. Lately, she has trouble with finding foods she likes to eat. Her tastes have changed and she tends to just eat "junk" (chocolate, pretzels, peanut butter crackers, ice cream). Even things she liked a week ago, she says she does not like them anymore. We're trying to…
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Door Monitors/Alarms
Need suggestions for the best type of door monitor/alarms. I have just recently noticed my DH stops and stares - likes he's lost. This has happened the last two mornings. I want to be proactive in case he starts to wander. Could you please share with me your experience with door monitors/alarms? Thanks.
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Looking for a volunteer to add as Leader of the new caregivers group
Hi friends - I'm hoping someone will help with the new caregivers group. Anyone can add posts there, but I think I'm the only one who gets alerts when there is a new post. I'm hoping that someone (or several someones) will agree to be "leaders" so members, especially new members, will get responses if they post to the…
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I'm making a little progress with my brother
Today, his doctor's office actually called me back for the first time. They're going to send me a copy of the neuropsych report. They're calling it "mild" dementia. As we all know, it doesn't stay mild. It always progresses. I asked them to put me down as an emergency contact. They'll probably have to confirm that with…
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Medicare Advantage Dementia CSNP
Does anyone know of a Medicare CSNP (Chronic Special Needs Plan) that focuses on dementia patients?
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Any Advice on Calming an Anxious, Aggressive Sufferer?
My wife is now more frequently becoming upset and anxious over (usually imaginary) concerns. I no longer attempt to reason or disagree with her, but have trouble calming her down. She is sometimes very verbally and physically abusive. She will calm down if I have her talk to her daughter on the phone. If I can't reach her…
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One Year Evaluation Showed in Improvement in AD Symptoms
My DH was diagnosed on January 25, 2024 as having AD after cognitive testing, testing for ApoE4 and a PET Scan revealing amyloid plaque. He began taking Donepezil 5 mg 1 x/day in September 2023, which was upped to 10mg 1 x/day in October with Memantine 5mg 2x/day added. On February 28, 2024 he began Leqembi infusions and…
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DH Diagnosed with Young Alzheimer’s
Hello! I am new here. My husband was just recently diagnosed with Young Onset Alzheimer’s. He is only 55 (as am I). He was misdiagnosed for the last 4 years with Pseudo Denentia (meaning he was having memory issues to do this severe depression that came on suddenly). I had to have DH hospitalized for the depression 4 times…
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Early onset dementia webinar
From Michael Ellenbogen: On September 16, 2024, from 2:00-3:00 p.m. ET, the National Alzheimer’s and Dementia Resource Center will host the webinar, The Experience of Younger Onset Alzheimer’s Disease and the Importance of Community Support. A description of the webinar and registration information follows. Living with…
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Mom with lewy body dementia
My mother is in the nursing home which she hates. She has terrible hallucinations of men with long white beards and no teeth who torture her every waking moment. She says they pull her hair out and spray powder in the air where she can't breathe. She says they make her hands and knees hurt. She has rheumatoid arthritis.…
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NPH and dementia unspecified
Happy Sunday all caregivers. Just wondering if anyone else has NPH diagnosis for their loved one. My mom has this ( I’ve posted a lot about it on the Caring for a Parent forum.). I finally scheduled shunt surgery and she refused. It’s the ONLY treatment available for what she has. The Neurosurgery physician assistant…
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Post surgery symptoms and medications
My DH was diagnosed with AD in Jan '24. I started noticing problems a year before that, when he couldn't seem to comprehend things that were being said to him, couldn't remember who he'd talked to on the phone or what had been said, got very upset and cried about things very easily, said he felt like he was losing his…
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Just finished tests
I guess Iam in denial but the MRI and other tests don’t show anything abnormal. My dh has a score of 22 on cognitive test so our gp wants him to take aircept. I know you have all been down this path but it’s just so vague. Is this all there is to this. I guess we just start down the path. Very strange a devastating disease…
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MC Facilities questions
my kids driving me crazy to get plan if something happens to me, my wife is not in bad shape with Dementia other then short term and confused otherwise you wouldn’t know. Question kids ask can you be put on waiting list when it’s really not needed ????
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Scared
Hi everybody. My loved one with Alzheimer's Disease is my dear mama and I am her main caretaker. I've posted a few times already in here and the support that I receive means more than any of you could possibly know. Todays discussion is just me talking about how scared I am about off this. I mean, when I was a kid and I…
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My husband was in the hospital. Again.
I can only write this post because my husband was just released from his second hospitalization in a month. Last Friday,after he had been at memory care for only seven days,I I got a call from the nurse. She said my husband was running into walls and doors deliberately, and if he didn’t stop, she’d have to send him out. An…
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Early Onset Webinar
I just watched the Early Onset webinar that Lane Simonian had posted from Michael Ellenbogen. Most of the information is what is discussed here all the time, about signs and symptoms, having to leave work, and isolation. There were suggestions about setting up a support group. Here are some websites. The webinar itself may…
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I need help finding
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DH is diabetic, has a sweet tooth
added problem with DH with Dementia is diabetic, lately he sneaks in the kitchen & will eat anything sweet, icecream, candy etc, shoots his diabetes up! i hid the cookies, wont order any more ice-cream,, its hard to keep an eye all day & night. Would rather not put a lock on the cupboard & fridge ! anyone else facing this…