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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Working with the 90-second rule
I realize it depends on the stage, but has anyone worked with the 90-second rule and made it work effectively? "Give patient’s at least 90 seconds to process what you are asking and allow them to react" I feel that if the caregiver is waiting for 90-seconds (or whatever is appropriate), the PWD may forget what was asked by…
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Food options
My spouse has been on hospice for 4 weeks. Hasn't gotten out of hospital bed in our living room during that time. Still interested in eating for several hours a day. I put the head of bed up and he self feeds finger foods. Lots of coughing, but his lungs still sounds clear. Lots of food remaining in mouth after eating. Not…
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Needing Some Reassurance about Putting My Sister in AL
Hi and a big thank-you to all of you who have contributed your very helpful advice and experiences to this wonderful forum. I have learned so much from all of you. I appreciate each and every word you have contributed! My sister has stage 5 to 6 Alzheimer's (my estimate). My NP said she had advanced AZ. I am waiting on the…
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Hallucinations
I am the 24/7 caregiver for my wife who suffers from mid to early late term dementia. She has had various hallucinations, usually after wakening in the AM, but recently has had one that repeats itself, and she bring it up all day long. She repeated insists that "a man" comes to her bedroom and disrupts her things by either…
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Advice for MC Front Desk Receptionist?
A less critical question than usual, but I am interested in your views: This week I will have a meeting at my dad’s MC, and I will be asked a routine question about my experience as a frequent family visitor. The facility has two receptionists. One is marvelous: kind, compassionate, genuine. The other, newer person is…
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responsibility for taking to doctor from MC
I'm new to all of this. From a recent assessment and from what I read here, I think DH is at stage 5 dementia. So I think placement in MC is needed, within the year probably. General question: I assume that once placed, I will be the person to take him to MD appointments as needed? (I have done that for him for years). I'm…
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Husband hit 89 year old wife
My mother is caring for her husband (both 89) who has been diagnosed with Alzheimer's. Tonight he hit her twice in the face in their home when he become frustrated with something that she was doing (no excuse). To the best of my knowledge this has never happened before. I am interested in any advice or guidance on how we…
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Alzheimers and Christian Science
My "mother in law" (boyfriend's mother) was recently diagnosed with Alzheimers. We've had suspicions for a while. As we are starting to navigate more caregiving with her around this, we consistently run into tension around her faith, Christian Science. She basically believes it's mind over matter, she will be healed thru…
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Social distancing for caregivers
Just wondering if other caregivers feel like they have lost all social connection with the outside world. My DH has isolated us with his bizarre behavior and obsessions. There are too many weird behaviors to name when we go out in public. I have actually started avoiding outings due to embarrassment. He has no social…
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This disease has made it POSSIBLE to....
There were so many great responses to the question about what the disease has made it impossible to do, I wonder how many important growth and learning opportunities we have experienced. For example: …become more accepting of things we can't change. …Reexamine our faith and spirituality ….learn things about family…
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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Caring for everyone shouldn't mean losing yourself.
Nobody talks about this part of caring for someone you love. It's not the physical part that breaks you. It's carrying all of this in your head. At the same time. Every single day. → Prescriptions and refills → Doctor appointments and follow-ups → Bills and insurance paperwork → Phone calls that cannot be missed → Small…
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Just starting the journey
My DW has dementia and I will be the primary caregiver. We have been married 52 years and I am at a loss as to what to do, how to start, what to do or not do.
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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At home activities
Would like to receive any suggestions for an activity my husband can do with moderate ALZ.
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questions
My grandma has dementia and needs help doing things. She has been wanting moved every 5 mins to her chair and bed. She keep saying she don’t no what’s wrong and can’t see her dog in front of her everything is on repeat for her. How do I confront her or help her? Trying to not get upset but it’s hard
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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New Here - Suggestions for Getting Spouse To Give Up Driving?
To be clear - I have joined this group on behalf of my niece who is the caregiver of her 62 year old husband with ALZ. She still works full time (so has little time to do this kind of online research herself) and he is home alone all day. He is now at the point where he shouldn't drive anymore, both because of his current…
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Time to whine!
Had a terrible screaming match with my former partner. Diagnosed with Mci 5 years ago. His treatment is with the VA. I feel he is beyond mci. He no longer lives with me. He is in is own condo. Dresses himself, feeds himself, drives his car, bowls and golfs. Finances are out of control. Not paid or paid twice. We broke up…
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Finding My Way
Hello! I recently moved my 79 y/o brother in with me from a different state after the death of his wife last November. He is wheelchair bound with multiple sclerosis and has just been diagnosed with mid stage Alzheimer's. He's had a difficult time adjusting to the new changes and has no desire to meet people in this area.…
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Over 80 at time of diagnosis
Has anyone had a LO who was diagnosed after 80 and if so do you feel like their age advanced the dementia timeline?
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might b helpful for extra support for a loved one
i just rang 0330 053 2617 and got through to a company I believe called Kinly who were simply wonderful and felt I must share with anyone looking after someone with alzheimers. i saw it on the mirror this morning that the supermarket Iceland are involved in something where you can check for free if there’s any extra…
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Kisunla Infusions
Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…
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Don't know what to do
Over the past few weeks our cat Squeak hides under the bed when we go to bed. (Probably senses the stress and anxiety) And every night LO spends hours calling Squeak and crawling around the bed trying to get Squeak up. Last night was the same but it turned into a horrible night. LO's frustration over not being able to get…
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Sharing your LO's background with various providers
My mom has been in the hospital a few times (including the ER, behavioral health, ICU, regular hospital) and also has home care aides and home health nurses come by. Every time we interact with a new provider we need to repeat the same information over and over again, adding in anything new. I started collecting some of…
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Suggestions for Sundowning and Agitation? Medications?
I am getting stressed out! DH has been Sun-downing for the past several months to the point where he gets into everything, gets agitated, will not sit down and when it comes to bed time he becomes angry. He had a brother, now passed away, who had this issue but his wife did not remember what medications the doctor put him…
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Kisunla infusions
Recently diagnosed (after +18 month of waiting on testing and follow up Neuro appointments) and referred for Kisunla infusions. Dr deemed him with mild cognitive impairment but I see moving to moderate impairment based on testing last done 6 months ago. I am concerned as everything I read states Kisunla is for MILD…
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Early On Set Alzheimer's Diagnosis
My daughter, age 50, has been diagnosed with early on set alzheimer’s. It took us forever to find some place that would help us. She was diagnosed about 2 years ago. We had to go to Mayo Clinic in Rochester to get that! Washington University did not help. None of the doctors we went to in our area helped so much time was…
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Mom is in memory care, she “wants to buy a condo”
I just had to put my mom in memory care in March. Prior to that, she was in the assisted living side of the facility, and I hoped it would meet her needs. She first moved to the facility in November. It’s been a quick progression. Then, and especially now, she wants to buy a new condo. She knew that we had to sell the old…
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Time to move Loved One into care center
Hello. I have not been on this site for a long time. But when I was, the info I received was so helpful. I care for my twin brother with Alzheimer's heading into Mid/late stage, progressing quickly. He is 71. He has been approved to go into a care center June 8th. Looking for guidance, suggestions for how to tell him and…