-
Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
-
Moved: ALZConnected Q&A Thread
This discussion has been moved.
-
Anyone Using Tack GPS device?
Hi, Just got a Tack for my dad, pretty good, but it kicks my husband off if I'm on and vice versa. I also only want to see where he is, not share my location but it keep wanting my location and drains my phone battery. Any ideas?
-
Caregivers Dealing With Menopause
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
-
Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
-
recommendations for elder law attorney in Minneapolis/St. Paul?
I've looked at the links that could help me locate an elder law attorney, but I'm curious if anyone has worked with, and can recommend, an elder law attorney in the Minneapolis/St. Paul area? I always like getting referrals from real people who have "been there and done that". 😉 Thanks in advance for any ideas!
-
Travel With Alzheimer’s
My wife has Alzheimer’s, and she really wants to move back to her hometown, which is 2500 miles from where we live now. We can either fly or drive (money is not a concern), but I can see potential problems for either. Driving will mean many hours in the car each day, and she doesn’t like that idea. Flying presents other…
-
Adult day care
My father needs a break from continuous full time care giving of my mother. Any suggestions on where to find adult day care for at least one day a week. I believe she is late mid stage.
-
Caring for my grandma
My grandma was recently diagnosed with dementia and has move in with us a couple days ago. It's me, my brother and mom who all live here and we each help out when or where we need to. For the last 2-3 years, I've helped to care for my mom sometimes since she has serious health issues of her own. She has also been taking…
-
Prayers appreciated
Hi my name is Charity and for the last 4 years I have been the live in sole cargiver for my daughter in laws aunt and was for her uncle before he passed. I have worked in Healthcare for 28 years and memory care and dementia have been the majority part of my career. I never thought of how hard it would be to become the live…
-
Early in journey and feel it is progressing faster than expected
My wife has been diagnosed with early stage Alzheimer’s. She is on Leqembi infusions (7 complete), aricept but feel she is progressing. She is still working part time at Trader Joe’s and they are so accommodating…that is great for her to keep her going. She drives pretty much locally. Has anyone’s LO been on Leqembi…did it…
-
Not Political... but for Texas voters on the forums
On the Texas ballot this November is Texas Proposition 14 which establishes the Dementia Prevention and Research Institute of Texas using $3 billion from general funds. The amendment would task the institute with researching causes, means of prevention, and treatments for dementia and dementia related diseases such as…
-
shingles vaccine
A study, in Wales, found that the zoster vaccine reduced the probability of a new dementia diagnosis by approximately one-fifth over a seven-year follow-up period. https://www.nature.com/articles/s41586-025-08800-x The Zoster vaccine in the United States is no longer available, and has been replaced by the two dose…
-
Hi! I'm new here... I'm a granddaughter taking care of a grandfather with suspected dementia
Hi. I'm new here. I'm a granddaughter caring for a grandfather with suspected dementia. He has a lot of the symptoms of dementia, but hasn't been diagnosed yet. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the…
-
Falsely accused of elder abuse
My husband and I help care for his mom who lives in an assisted living facility and has dementia that seems to be progressing more rapidly. Over the past five years since we have been helping her, she has been sharing some increasingly bizarre stories about members of her community. In the past couple of years, I have been…
-
Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
Hi! I was on the boards here 7+ years ago for my dad, and now I'm back for my cousin. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth.…
-
Transitioning to senior living facility
Hello everyone - I am currently caregiving for my 87 year old mom since February of this year (I am her daughter and POA). We are going to move her to senior living in December and I need advice on making the transition happen. She thinks she can live on her own and doesn't think she needs to move. Does anyone have…
-
Teepa Snow video on challenging behaviors
When a PWD shows a challenging behavior, I often dismiss it as due to a broken brain, and I often just try to distract or ignore it. In other words, a broken brain means there may not be a good rhyme or reason to consider. So why bother? I learned that some detective work can help. I saw this Teepa Snow video on YouTube,…
-
Home Care Agency Recommendations in San Antonio, TX
We are moving to San Antonio, TX 78218 and am asking for any personal recommendations for in-home care agencies in the area. If anyone has used a company in that area for their loved one, I would greatly appreciate hearing from you.
-
She thinks she's "done something bad"
My mother has later stage Alzheimers dementia. She sometimes recognizes her children but doesn't know our names and requires assistance with all of her ADLs. We care for her in the home she has lived in for over 60 years. She has recently been perseverating on "I've done something bad" We can't find any pattern or…
-
Experiences with refrigerator locks
I've seen posts in this forum about refrigerator locks, such as the ones sold at Amazon that adheres to the door and main case, and has a cable connecting to the two parts with a lock. What experiences have people had with them? I suspect that it will trigger anger, and pulling on the door until the glued pads fall off. I…
-
Memory & Moving
My DH doesn’t remember anything that has happened in the last 20 years. We are going to need to be moving soon. One minute he seems more normal. After 30 minutes, he has already forgotten us talking about moving. Everything and I mean everything is falling on my shoulders. This move is going to be incredibly difficult. DH…
-
Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
-
My 55 yr old DH was recently diagnosed
Hello, I am loving these forums from just a little bit that I have seen so far. My DH had the PET scan in August and it confirmed signs of early on-set Alzheimer's. I noticed about 3 years ago that his personality started to change a little but the since 2024 his decline has been rather rapid (hindsight). I have looked up…
-
Rookie needs advise on neurologist
Rookie here.I learn a lot from the discussions and I intend to continue. I'm the caretaker of mu 82 year old wife, who was recently diagnosed with lesions on her brain, but no indication of stroke. The docs only say "altered mental status". She was fine one day and then started to lose it the next. She has COPD and is…
-
clearing mucus from the chest in late dementia
Alzheimer's has taken my 83yo wife into its late stage, and she recently caught a cold or pneumonia. She improved in the hospital, appears not to have an infection now, but three weeks later at home she still has a wet cough, usually when lying in bed, which is most of her time. The cough interrupts her badly-needed sleep.…
-
Help with my sister
My only sister and best friend was diagnosed with EO Alzheimers at 55. I am spiraling and want to find a support group for siblings. Can anyone please help? Thank you. Juli
-
Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
-
Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
-
What to do when vascular dementia causes your husband of communication
We are at the stage of his dementia where we cannot carry on a conversation. I cannot understand what he is trying to say. He has many health issues and I am afraid I won’t be able to know what is wrong. This is my first post. I don’t know what to do. Thanks
-
Feeling extremely overwhelmed
I am a 55-year-old female caring for my 80-year-old mother. There are so many things to discuss, so I will try to start small. I live an hour and a half away from her, so expense-wise, and my own extreme anxiety and depression, it is hard to be there all the time. I call her daily to check in, but that conversation always…
-
structure and expense of long term care and hospice
This is a CNBC video I found interesting. How senior care became a $600 billion business | Watch