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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Scary and depressing delusions - how to respond?
My mother is in stage 4 of dementia. She's been anxious for over a year. Since she hates meds, I haven't felt it's severe enough to push for anxiety medication. I've been increasingly aware she is having delusions that cause more anxiety. I know the general advice is to accept their reality and not argue with how they are…
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Severe dementia- yet Mom refuses to move out
Edit- I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. drs have classified as severe dementia and highly recd she not live alone. They state there is nothing we can do other than wait for a crisis here (Kaiser-California). Mom will not…
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Occupying Time
My father has recently lost the ability to drive and is particularly bored. My mom is home with him, but I know it's taxing for her, and all the children are located elsewhere, so we can't support. Can anyone offer suggestions so he isn't just on his phone all day?
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How to we get Mom to leave for a nursing home (against her will!)?
I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. So many mentioned she could just be tricked- no it's just not possible and despite having a diagnosis of severe, she IS aware enough to know what is going on. drs have classified as severe…
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Camera advice
Hi I am caring for my aunt who has Alzheimer's and vascular dementia. I have one family member who is trying to go against everything that we are trying to do for my aunt. I had place cameras in her apt ( common areas only) as well as sensors on her doors to obviously keep her safe. WELL her brother told her about the…
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Memory Concerns
Facing recent memory problems while caring for loved ones? We’re a university research team studying older adults who have noticed changes in their recent memory. Our goal is not to diagnose or screen for Alzheimer’s, but to better understand everyday memory changes as people age. We know caregivers already have many…
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Stages - emotions and functions
I came across this video, yes it promotes a service but I found the video independently did a good job of explaining the Stages in terms of functions and emotions. Also, why PWD "showboat" with Doctors and people they rarely see .
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Durable POA
My mom and stepdad have a document titled durable power of attorney. However, in the document itself, it says that one of them have to die for the other to have the power. Both parents have dementia. Does the fact that it’s a durable pile attorney give the secondary power of attorney’s access
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After 10 long years mom has died, now what?
It was 10 years ago that I realized my mother's forgetfulness was more than just normal aging. The reality hit me like a ton of bricks, and nobody else in the immediate family wanted to face it or do any future planning. I had a general dread of what the future could hold but maintained hope that we could still find a way…
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Patient care
Hey guys im new here but j have been working with dementia patients for almost while now. However last year i took a full time caregiving shift and would like to know if anyone else has or is experiencing this. So its two caregivers, when the morning caregiver leaves and i come in my patient starts asking for sweets and…
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Has anyone used out-of-pocket AD biomarker blood tests (p-tau217, amyloid blood test)
Posting on behalf of a family in Virginia dealing with a frustrating situation. My friend's father is showing clear functional decline in daily life — the family has noticed definite changes — but his screaning test(maybe MoCA?) came back normal. Because of that result, his doctor is refusing to order further workup like…
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Wife Slow to Move her Mom
My FIL passed away at the beginning of January. He was the sole caretaker for my MIL. They live in a very rural area. He never had her officially diagnosed. Now my wife and I are living with my MIL who according to her PCP has moderate to advanced dementia. As you all know, some days are just infuriating. She will obsess…
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I needed an outlet to rant sorry I rambled
I am 25 and I quit my job about a year ago to help my parents take care of my grandmother with Alzheimer's. She lives with my parents but I do not live with them. I take care of my grandmother during the day and anytime my parents need help on the weekends, which isn't too much. Lately she's become very combative and…
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Sex
my elderly husband was recently diagnosed with dementia/Alzheimers. He has always looked at porn but lately he has started interacting. He asked one if they could meet up for sex. He sent a picture of his genitals to another. And he has said negative comments about me. We were having sex 2-3 times a week. We’re both 72. I…
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Using updatable photo frames to communicate schedules/information
This is a helpful tip (I hope), and also a question if others can recommend frame brands. My mother has grown increasingly confused about organizing her day. She is solidly in Stage 4, so I think this post is most applicable around that phase. We have found it very helpful to give her a photo frame on her dining table.…
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Compound caregiving
Hello fellow caregivers. I'm curious if anyone else is on a similar journey to my own. Both my mother and husband were initially diagnosed with MCI two weeks apart, four years ago. At the time she was 78 and he was 63. I placed her in AL two years ago because there was no way I could care for two at home by myself. Now…
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Feeling alone
Hello, I'm new here. Part time care giver for my mom, my best friend. I feel so alone in my grief. I know I'm not but this has been the hardest thing I've ever gone through and it almost feels like no one around me even notices. I feel like my family (dad & brother) and I are so isolated. No one ever really checks in on…
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Leqembi infusion/ personality Change
My dad had to stop the Leqembi infusions because of brain swelling and bleeding about a month ago. I have noticed his personality changed towards me negatively and not at my mom. His next doctor's appointment is in June. I will contact his doctors then. Is this a normal occurrence from leqembi or this the progression of…
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Wandering Prevention Feedback?
Hello everyone, I'm a Industrial Design student currently trying to design a product that could help prevent dangerous wandering in people living with dementia. My grandmother has dementia, and right after moving houses she had a few bad wandering incidents at night that could have ended badly if she hadn't been found by…
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New controversy with Donanemab (marketed in the US as Kisunla)
Donanemab: Conflicts of interest found in FDA committee that approved new Alzheimer’s drug https://www.bmj.com/content/386/bmj.q2010
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My oldest dearest friend has dementia
My friend since 1980, the person who has stood by me through thick and thin, who has always been there for me, even when I was living far away…had a fall resulting in a brain bleed in October 2025. I had been visiting her one afternoon a week before this happened and even then, I thought there was a slight amount of…
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Managing incontinence
Hello all- does anyone have advice on ideas for getting urine odor out of bedding and clothing. My dad is incontinent of urine mostly and despite washing everything daily there always seems to be a lingering ammonia odor. Any advice of what can be used besides regular detergent to help!!??
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FB Cure Scams
Just need to hear how you have handled your loved ones when he/she comes to you touting this new "cure" that Bill Gates, or Elon Musk, or Phil Donahue, or some other celebrity has discovered. My sister is constantly coming to tell us if this cures and wants to buy the honey or gummy that gets rid of Alzheimers. These fake…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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overnight pullups advice for incontinence
Hello wonderful people, I was wondering if anyone has advice for a brand of overnight pull-ups that is the most absorbent. Lately my LO often soaks through even the brands that say they hold the most liquid. He does sleep over 12 hours sometimes, so i know that would be a challenge for any product. Our family has tried…
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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Trouble with letting go of desire for control
For a year my brother dealt with stomach cancer. There were signs that my mom's memory was failing, but it didn't seem too bad. With all the attention on my brother, we put a blind eye on those issues. When he died, we couldn't be blind any more. We could handle taking over paying her bills, managing her doctor's…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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Bank Doesn't Recognize POA
Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…