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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Keppra anecdotal study
I just saw an article stating that researchers have noticed anecdotal ‘evidence’ that Keppra may prevent dementia or slowdown decline in those already have it. Keppra is an anti seizure drug. I know some members here have loved ones taking Keppra for dementia related seizures. Have you noticed that the dementia progression…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Rationales for PT for late stage in MC?
My dad in MC is sleeping most of the time. I recently had a care meeting with the facility director. When I mentioned in passing that he is seeming weaker, she said that maybe PT would help. I said, “Huh, maybe,” and we went on to other things. Fast forward a week, and I am getting email from a PT agency affiliated with…
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South Florida “Board and Care” Small Memory Care Facility
Hi, I was wondering if anyone has resources about “board and care” small group facilities in South Florida, particularly in the Delray Beach and Boca Raton area. Thank you so much.
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Unsure of how to proceed
i am my 76 year old grandmother’s only family and caregiver. She lost her husband (my pop) 5 years and and her son (my dad) 30 years ago. She has always been hyper independent and very successful. Last year she noticed some changes in her memory and sought treatment from a neurologist. In September she scored a 21/30 on…
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After 10+ years on this message board, I wanted to share my Mom's obituary.
February 18, 2026 My Mom died this afternoon in the bedroom of the old family home where she has lived for the past 62 years. It was peaceful and all four of her children were with her. My Mom has navigated the complex maze of Alzheimer's dementia for the past 12 years. After her diagnosis we put together a team to help…
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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Long term Care Insurance
I’m looking for info on long term care insurance. Will I be able to purchase it for my husband if he has been diagnosed with dementia? How much does Medicare cover for in home assistance? How much does it cover if he needs to be in a memory care facility at some point? Is this kind of insurance worth the expense? Thanks…
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I was Angry and then tears (Venting)
Last night was terrible for me. My DW was agitated and confrontational all night. She kept me up until 1am. I was angry but I kept it to myself. In the morning, my DW was loving just like the person I married. I hate this disease! On our way to lunch today she was so affectionate. I couldn't hold back my tears because I…
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Psych Exam for exit behavior
Our LO, likely with FTD, has been at MC for close to 3 weeks but after an initial period of apparently positive acclimation they report he has started to attempt exiting the facility more often, wanting his car, resisting redirection. They will have a psych consult via state mental health services. My questions are what…
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Possible AZ prevention from anti virals + shingles vaccine
I have not read anything about this before:…
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Adjusting to MC
After bringing our 82 yo LO to MC for the first time (with no difficulty, thank God) one week later I had to take him to an outside doctor appt and he pretty quickly thought I was going to “bring him home.” When we returned to the MC he seemed mad about that (though thankfully did not refuse to go in). Staff says he is…
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No more intervention
So my father is a type 2 diabetic, stage 7 c or d(per hospice), possibly in heart failure and on Hospice for 4 weeks. He is in a memory care facility and eats well(too well, big boy:). They have to work hard to get him up and to breakfast or at least get some OJ in him every morning because of low blood sugar. Hospice…
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Sitters
My husband is wandering outside during the day. I would like to find a sitter to stay with him once a week so that I can run errands. Has anyone used Care.com, Visiting Angels, etc? What was your experience with them? Can you tell me the hourly cost? Just looking for someone who can keep him company while I am gone. I live…
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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Venting - In Law refuse to move into Memory Care
Three years ago, we added a 600 sq ft apartment to the back of our house for my in-laws. My MIL had started wandering and going to neighbors’ houses saying there was a strange man in her house. (It was my FIL). They sold their house to help pay for the addition to our home. My MIL has advanced AD and is now giving the…
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Bible Verse to Lift You Up 2/17/26
THANK YOU, LORD! Psalm 34:9-10 New International Version 9 Fear the Lord, you his holy people, for those who fear him lack nothing. 10 The lions may grow weak and hungry, but those who seek the Lord lack no good thing. me: Life can be the pits; it can be confusing and hurting. Yet The Holy Spirit whispers encouragement and…
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My patient is diagnosed with Dementia
Hi, I am a licensed Practical Nurse, the business owner for a caregiving service called ' Divine Home Care Services in Jamaica 🇯🇲. One of my patient has short term memory loss and Sundown Syndrome. She loves to eat snacks and not cook food but she's calm and kind. She gets confused when the sun sets. Time confusion & where…
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I'm confused (again)
My Dad has Alzheimer's/vascular dementia. He was diagnosed three or four years ago, has been in memory care for two years, and on hospice for 8 months. He sleeps a lot. Probably 20 hours a day on average - he's awake from about 7:30 to 11:30 in the mornings. He gets out of bed about half of the mornings. He has lost a lot…
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donate adaptive clothing?
I have multiple sweatpants/t-shirt zip up the back clothing items from Buck and Buck. Where can I donate them to get them to someone else in need? They are such a specialty item I do not want to just drop off at Goodwill, but I may resort to that if I can't find other takers. Any suggestions?
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Safety app that performs a daily check-in
I came across a free smartphone app called Snug Safety that helps people who live alone do a quick daily check-in to confirm they’re okay, and if they miss their check-in it notifies chosen emergency contacts so someone can check on them. [P.S. on Feb. 19… This app is a good option for caregivers. If something happens to…
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My patient is diagnosed with Dementia
Sundown Syndrome can be very frustrating, she gets very confused as to where she is, what time of day it is but she always knows when its supper time.
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My patient is diagnosed with Dementia
Hi, I am a certified Practical Nurse who provides care for patients with Dementia/Alzhimer. My current patient is 96 years old and she has short term memory & Sundown Syndrome. She's not aggressive but stubborn at times and loves th eat snacks a lot.
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First time posting
My husband (74) was diagnosed with MCI due to AD and Vascular Cognitive Impairment about a year and a half ago. He also exhibits signs of anosognosia. His perception of his actions are not the reality but he doesn’t see that. He’s had 2 car accidents in 2 years- totaled 2 cars. Based on his neurologist’s recommendation, he…
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Mid-stage Dementia : Agitation and Aggression
My father has dementia. He lives with my mom in their home, and my mom is his primary caregiver- I am his secondary caregiver. About a year ago he started having issues with incontinence. A few months ago he was determined to be mid- stage dementia. After many months of urging my mom, she agreed to hire a part time…
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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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Flameless kitchen
I saw a TV show on a flameless kitchen — where a gas rangetop was removed since it was a danger to a child who liked to fiddle with the knobs, and that forced the parent to keep an eye on it constantly. They instead relied on a multi-cooker (like an Instant Pot) along with a counter-top oven (a combo microwave / toaster…
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First appointment - what should I ask?
Looking back on what you now know, what should I - the caretaker - ask the neurologist at the first appointment? What do you wish you had asked? My wife is 61 with a father and grandmother who had AD. She had a blood test last week with a positive for tau (whatever?) and a ct scan that was “not terrible” (upon brief review…
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My Grandma has been diagnose but family won't accept it!
Hey there... long story short, my Grandma was diagnosed with dementia back in 2023 and my mom and aunts and uncles didn't share this information with anyone! Fast forward to today, my Grandma was in the hospital due to an UTI infection, and while I was there, the doctor mentioned her vascular dementia diagnosis and said he…
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Valentines Day
I just want to wish all caregivers a Happy Valentines Day. Although for me, as I am sure it is for most of us, it is not quite the same as in the past.