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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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ALZ for 6 yrs, newly diagnosed with Parkinson's. Is it LBD?
My mom has lived with us for 11 yrs, diagnosed with ALZ almost 6 yrs ago. The hand tremors started last summer, pill rolling of the thumbs started last fall. She was diagnosed with Parkinson's yesterday. She was also put on meds a few years ago for incontinence and swallowing issues that we now believe could be early…
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Dentist recommended all teeth be extracted
According to my mother in laws dentist/oral surgeon, she needs to have all of her remaining teeth extracted due to the extent of decay. This is scheduled to happen in one appointment. I am worried because she does not remember this appointment is approaching, and it will likely seem very scary for her after it has happened…
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Sex is not my friend
DH has been quiet about this for several months now. All of the sudden now he wants it again (he also has ED and things were not going well before). He grabbed a beer when we got home from church and then wanted to get all frisky. Unfortunately, I made the remark that he looked like he was more worried about getting a beer…
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Neurologist appointment 5 years in
Hi! Real quick summary and then my questions. My mil has been living with us for about 8 months now. She was diagnosed with FTD, specifically PPA, five years ago. She has not had a neurological appointment in about 2 years and this one was only scheduled at my request as I had very little (as in no prior) involvement in…
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Attending church
We had a great church group, with several dear friends. We stopped attending but maintained the friendships. My husband now has advanced Alzheimer’s. Is it possible to return to church services now? There are some who would accept him easily, but I am concerned that this would be a distraction for members who don’t know…
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Long Distance Mom has Dementia, and I am the only Child
Hello, I live a plane flight or 1.5-days driving away from my mom and I am only son. She has dementia and lives alone with her dog and cat. I can see her deterioration and have taken over all of her bills, taxes, online shopping, ordering food deliveries, etc for her. I have three children (teenagers) living with me and…
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FRUSTRATED!!
My husband has been approved for the infusion treatments and the center that does them doesn’t take our secondary insurance. Our doctor’s office is trying to find another location but is having difficulty. This stinks. Maybe it’s a sign he shouldn’t have them??
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Toddler comparison
This is a rant. I’ve been caring for my DH who has been diagnosed with Alzheimer’s nearly 3 years ago which was at least 2 years after I had been begging for a diagnosis. When someone compares caring for a spouse with Alzheimer’s is like caring for a toddler I want to scream. It is such a dismissive comment for the person…
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Assistance with dressing
I have been laying out clothes for my husband each day for some time. Now he’s having trouble putting clothes on. Does anyone have any suggestions for how to help an adult put on a tshirt or sweater?
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What's the worst that could happen?
Setting the scene: My mother has three pieces of property, a springing POA and a stubborn streak the size of Jupiter. She is currently between showing signs between stages 4-6 of dementia (not my first rodeo with the disease). It will not be long before she needs supervision. Issue #1: She refuses to see a doctor. Issue…
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In case of an emergency to caregivers
what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening
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Caregiver webinar
Michael Ellenbogen sent me this caregiving seminar to share on Alzconnected. We are excited to announce our upcoming webinar, Bridging Care: Training Providers to Integrate Family Caregivers into the Healthcare Team! We will explore real-life caregiving experiences, and introduce the “Caregivers As Partners in Care Teams”…
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Help with deciding next step with mom
My mom has had ALZ since 2017 and is now in the later stages; not bed ridden yet but now a fall risk, unable to speak in full sentences and very agitated, and needs to move to skilled nursing. This will move her to Medicaid and I need a resource with knowledge of Pennsylvania and Maryland law because my sister and I can’t…
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Alzheimer’s/Dementia or Just Narcissistic?
My covert narcissistic mom has had some off/on memory issues for the past couple years like where she puts things. My brother and I can’t tell whether it is normal aging or more than that. In the past two months, she has suddenly started making up stories about her youngest sister doing black magic, trying to break into…
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Filing for Long Term Care Insurance too early?
Hi, I am posting for the first time regarding my 83 year old Grandma. She has had cognitive and memory issues for years, but in the past month she was properly diagnosed with dementia. I had previously lived with her 3 years ago after she was a scam victim, but after about a half of year, I moved back home. I am now…
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From NYT: When They Don't Recognize You
This should be a gifted link- https://www.nytimes.com/2025/04/20/health/dementia-family-recognition.html?unlocked_article_code=1.BE8.G3Pn.ikjbW50YMnR2&smid=url-share
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Wife called police on me
My wife, who has Alzheimer’s, called the police on me this morning while I was out. Our daughter managed to explain the situation to them on the phone and now my wife seems to have forgotten the whole episode. So far no one has come to the house. My wife has forgotten who I am several times now. I don’t know what to do,…
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Happy Easter Everyone
I hope that all who celebrate had a beautiful day.
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Dementia
My Dad was diagnosed with Dementia. He's a widower of 4 years, living alone and not wanting to be in Memory Care. His Home town Dr. and Home health care givers have deemed him to not be able to care for himself and I have had to put him in a home for his own well being. It has been difficult on all of us. He'd like to be…
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"Incident" in MC, what to do?
I was told there was an incident involving my mother in memory care. Nobody at her facility contacted me about it. I heard it from one of her friends who called me to inquire about it, and she said she was told from my sister who has POA. I called the Director of Nursing. In her words she said "Yes, there was an incident…
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Dementia Family Dog Workshop Webinar
I started following this group that’s based in Scotland because my wife who is in the early stage of Alzheimer’s expressed interest in getting a service dog. This free webinar is an “educational workshop to guide families affected by dementia who have, or would like to get, their own pet dog”
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New to This - Caregiver (not family - paid)
Hi everyone! Let me introduce myself. My name is Jane and I care for a man with Lewy body Dementia. I started working for him just on weekends about 2 1/2 yrs ago. I worked 9-5 on Saturday & Sunday. His daughter hired me, she worked the rest of the week. He did not have any care from 5pm until the next morning at 9 am.…
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seroquel usage for 93 year old with dementia for the past 11 years.
i'm at the end of my rope as far as care-giving goes. my mother was diagnosed in 2014 with AD/dementia. she advanced quickly and has been in late stages for the past 9 years (requires complete care 24/7). her delusions and bad behavior have become difficult to manage. she's started throwing dishes and glasses of food/drink…
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"I'm leaving to go home"
I am new to this forum. In September 2024, We took in my MIL who has Alzheimer's, stage 5. All in all things are going well. She always is trying to go pack up her belongings and get ready to go "Home". We do tell her that she lives with us now, she's safe and redirect her to something else, walk, go out for a drive etc.…
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young adult children of Alzheimer’s patient forums?
I am looking to connect with any other young adults that are helping caregiver for their parent. I am 28 and while most of my friends parents are healthy and well my father, my own personal super hero, one of my favorite people on earth is becoming someone I don’t even recognize anymore. Just looking for support from peers.
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New to this
Hello, My mother was diagnosed with Louie Body Dimentia 3 months ago and progressed quite quickly. She is in late stage 6. She is so weak that she is bed bound. 2 days ago she was put on hospice and we thought we only had days, but today she was having 1-3 word conversations and ate 2 corn muffins and half a sandwich. I…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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New Treatment?
Hello, I recently read about studies using Benfotiamine to treat early AD and MCI. It seems to work. According to the NIH "Results: Participants were treated with benfotiamine (34) or placebo (36). Benfotiamine treatment was safe. The increase in ADAS-Cog was 43% lower in the benfotiamine group than in the placebo group,…
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Are home health care costs tax deductible?
I realize this is a loaded question that only a tax accountant in my home state (or) can answer but I wanted to do some research before engaging him. I have recently brought my wife back from a memory care facility and have engaged a home health care service to provide night coverage to address wandering. This is expensive…
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How to Persuade Loved One to accept Day Care or Home Help?
My family has just intervened, to help me accept that DH should no longer be home alone. I’ve tried to persuade him that we need more household help, but apart from periodic cleaners he doesn’t want anyone else in the home. He is still strong and able bodied, but making so many poor decisions. I do think he would benefit…