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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Are our 'numbers' gone?
The numbers in the headings are gone. I sincerely hope this is not permanent, as I found that feature to be very helpful. It was helpful for greeting folks new to the forum, and sympathizing with those going through a rough time who may have been here longer. Just wondering - thanks.
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Excessive Sleeping
Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…
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Eating
Hello, my spouse does not remember that she has eaten and therefore constantly eats. She is struggling to fit into her clothes now and unfortunately, due to a bad hip, won't exercise. I've given up on trying to get her to eat healthy and I just make sure she does as often as possible. She also forgets when she has a glass…
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How do you Know when someone is going to stop walking?
One question I forgot to ask - my sister falls more and seems to lean to the right when she walks. How do we know when she's about ready to stop walking? I called the 24/7 help line and didn't get an answer to that question; I just got some tips on what questions to ask of facilities we are considering.
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New to this and Helpful books
I am wondering if this group has a reading list of helpful resources for those living with dementia and care partners. If not, I'd like to start one. My husband was recently diagnosed with Parkinson's . The initial diagnosis also included Alzheimer's. He was on medication for several weeks for both until further testing…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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DH has a hernia should he have an operation
My DH has been seen by urologist. He does not have any pain in the hernia but it is large. . The doctor has said that it is not urgent for my DH to have the operation. My husband has stage 3 dementia. He was in agreement that day but has forgotten about the examination and now said he doesn't want the operation. What…
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More information on efforts to improve care for dementia patients in hospitals
Michael keeps me update on the work of his team to improve care for dementia patients in hospitals. Here is the latest information he shared with me. https://alzheimersspeaks.com/its-time-to-improve-the-dementia-experience-in-hospital-settings/…
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New Fear Unlocked
I have benefited so much from different posts I've read since finding this site. Until recently, I allowed my DM to hold on her debit card and credit card since moving into an IL facility. After reading horror stories of scammers, both here and in the news, mom consented to having me keep her debit card. I left her credit…
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A new inappropriate behavior
As I have mentioned before on this site, I assist an old friend (age 70) who has ALZ by taking them swimming a couple of times per week. Today, I started to enter one of individual family changing rooms because the "available" tag on the door indicated that it was unoccupied. A woman standing outside the door told me that…
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Traveling with a Spouse who has dementia
My spouse is in the later stages of dementia although we still do outside activities. Each winter we do down south for 3 months. I am debating what to do this year. If we stay home LO will be in the house 7 days a week being cold. If we go south, she will at least get outside. I caN'T figure out what to do. Either way I…
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What tips or tricks do you have to help keep up with medications?
Hello! My MIL has Mild Alzheimer's and at this time lives alone. We just started a caretaker 2x per week but she has meds she needs to take morning/evening. We are 20 minutes away with 2 kids in elementary school and sports. Any tips on what has worked? We have a regular pill organized but it isnt helping she is missing…
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Friend Guilt Tripping Me b/c Mom in AL
I know people sometimes mean well when they give unsolicited advice. A long time friend has been messaging me videos of cases of elder abuse in nursing homes and telling be how wrong I am to have my mom in a MC AL facility. She says my mom is unhappy (she hasn’t seen my mom in years) and that I’m doing her a disservice. I…
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Mom’s (61 w/Alzheimers) Sister Died Suddenly Due to Medical Malpractice
Hi everyone! I know the title is,,,a lot. My mom is the youngest of 4, adores her older siblings. One of them unfortunately has passed two days ago, a doctor caused more damage than repair. It was completely sudden, and I am struggling with how to tell my mama. She is extremely emotional, and I’m concerned that telling her…
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Who is responsible for following up on directives after release from hospital?
It seems I have a new concern each time I visit my mother in MC. Today's question of the day is "Who is responsible to ensure the medical staff and my mom's MC facility follows the orders given for care after someone is released from a hospital?" My sister is POA for everything with mom. (I used to have POA jointly with…
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I am a long distance caregiver with my siblings
My mom was diagnosed with Lewy Body Dementia about 8 years ago. My two brothers and I are her legal co-guardians. She lives with my older brother in another city and has hired caretakers to assist with her care. My younger brother lives in another city as well, but is much closer and visits once a week when he can. I try…
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helpful chart
It has been 3 years since my husband passed with this horrible disease. At the time I had a chart that say "When they say… you say. I guess I thought I would never need it again and I threw it away. Now I am in a retirement community and I have to watch a woman who is in charge of a 102 year old woman with Alzheimer's. She…
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HEARING AIDS
This is a very practical question. My wife has mid to early late stage dementia. She has delusions and hallucinations about "a man" who comes into her room and removes, moves, or takes her things. Because of this, she routinely hides her hearing aids. This usually happens before she takes a shower or before she goes to…
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My friend just got diagnosed
My last post disappeared, so I'll try to keep this one brief. Betty is a sweet friend of mine. An ex-school teacher, she is very smart, very kind and upbeat. I've been providing paid "companion care" for her this past year or so, 2 to 4 days a week. Her memory has been getting progressively worse for the last year or two,…
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Dreading the future as a caregiver is not productive?
I read that worrying too much about the future being a caregiver of a PWD is not good for one's well being. I mention this since I hear from fellow members of a caregiver's group, who have PWDs at different stages and they all progress at different rates, and we see glimpses of our future in their lives. (We see ourselves…
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beginning this journey with my mother. feeling alone
Hi, I feel really alone. I am new to all of this. This is the first time I have gotten into this website. Will have my first support group meeting next week. My mother lives far from me and I believe she has some sort of dementia, but early stage. My mother's short-term memory is not good. She has forgotten how to use the…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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Overwhelmed
My husband recently diagnosed with early onset Alzheimer's (63) and caring for aging parents. I am feeling very overwhelmed and sad and just all the feelings. I am really glad I found this group. I feel like I need somewhere to go to talk about what's happening and this seems like a safe place. I've already read some of…
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Any tips to help LO get into bed to rest on their SIDE?
Hello, My DH sleeps better if lying on his side, but he doesn't know how to get into that position, and weighs too much for me to put him into it by lifting or pulling. He suffers from apraxia, so has (cognitive) trouble with coordinated movements. If he starts by sitting on the bed (coming from the side), then lays his…
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Officially doing this again - vascular
My mom died 4 years ago after a very long battle with Alzheimers (early onset.) Now I'm going through it again with my dad, although it's vascular dementia this time. He passed out recently and the work up afterwards revealed the vascular brain changes, though I'm not surprised. His memory has been getting progressively…
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any advice on hospital bed mattress causing/contributing to migration and delirium
Hello community, My father is at home and started with hospice about a month and a half ago. they immediately provided a hospital bed,which looks to be almost a hundred years old- like something out of an asylum. I only recently tried it out myself and it made me feel so sad and angry that my dad has been sleeping in it…
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Advice on Mother's Paranoia
Hi. First time asking a question. My 93 year old Mother has Vascular Dementia. She's in the late stages. She has hallucinations and very paranoid. She told me today she wants to talk to two family members regarding, what she believes to be the family upset with her. She thinks she made them upset several years ago. She…
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Is Cousin Larry Taking Advantage?
I am a friend and part-time paid caregiver to 80 year old Betty, who is very newly diagnosed with early stage Alzheimer's, primarily manifesting now in short-term memory losses. Betty is financially secure, but has few family members; she's outlived those closest to her, yet there are a few extended family members, most of…
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Driving is risky reminder
91 year old killed one & injured folks at a Trader Joe's parking lot. Witness said driver said she pushed on the "brake" but car just sped up. https://abc7news.com/post/1-killed-4-hurt-car-hits-pedestrians-parking-lot-outside-trader-joes-los-angeless-fairfax-district-officials-say/19786314/?ex_cid=TA_KGO_FB Unknown if she…
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Should you tell a dementia patient that what they think really happened did not
my mother is in early to mid stage of dementia from vascular changes and Alzheimer’s disease. She is either hallucinating things or dreaming g them and then insisting that they really happened. She then gets very anxious and angry about what she thinks happened Should we tell her that these things did not occur? How do we…