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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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How do you Know when someone is going to stop walking?
One question I forgot to ask - my sister falls more and seems to lean to the right when she walks. How do we know when she's about ready to stop walking? I called the 24/7 help line and didn't get an answer to that question; I just got some tips on what questions to ask of facilities we are considering.
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Dementia Toolkit
although the following link is specific to SC - it contains a lot of useful info that would apply to all
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FDA approves first blood test from Fujirebio for diagnosing Alzheimer's
This can be less expensive than PET scans or less invasive than examining spinal fluid
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So, this happened...
This article doesn't come right out and state the driver had dementia, but I suspect the son is going to be having the conversation about the car keys HB
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Sneaky "news"
Just a heads up- I've been noticing fake "news" Youtubes lately. Topics have been mainly political- they involve things like sitting Supreme Court justices or government officials sitting solo in Congress for hearings that never happened. There are tiny text disclaimers or slides saying "this is entertainment " but the…
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Will There Ever Be A Succesful Treatment for Alzheimer's Disease
Some important findings about Alzheimer's disease came out from MIT and Harvard scientists recently that can be encapsulated in the following quotes: “One possibility is that maybe there’s more than one cause of Alzheimer’s, and that even in a single person, there could be multiple contributing factors,” Fraenkel said.…
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Toddler comparison
This is a rant. I’ve been caring for my DH who has been diagnosed with Alzheimer’s nearly 3 years ago which was at least 2 years after I had been begging for a diagnosis. When someone compares caring for a spouse with Alzheimer’s is like caring for a toddler I want to scream. It is such a dismissive comment for the person…
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Caregiving
Never in my life did I ever think that I would be a caregiver to a person with VD with a heart failure diagnosis. Some days I think I can get through it and then other days I question whether or not I am failing and needing to go to the nut house myself. I feel I am living a nightmare that just won't end, and I have no…
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Help and insight
Hi. I apologize if this seems off or redundant, I’m new to a lot of this. My grandfather has Alzheimer’s. It’s pretty bad. My mom lives with him to help and I’m over as much as I can. But lately he’s aggressive and wants to go home. Stating this is not his home. It’s definitely in the sundowners range because it’s usually…
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How to respond when DH does this
We have been married 33 years. DH has anger attacks. There has been never any talk about leaving. We have been through even his helicopter accident. Saying this there has been some recent anger episodes where it is late at night or early morning, he comes in yelling “If you are so unhappy then leave. Just go! Do you want…
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Psychosomatic pain?
Wondering if anyone has experience with pain complaints? My DW had a mastectomy 10 years ago. Early stage cancer, no chemotherapy or radiation. She’s now complaining constantly about pain in the other breast. Saying, “I want this one removed too.” Recent mammogram (1 month ago) was clear. There’s no fever, redness, or…
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Oh, dear
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Won't drink enough!
How do you get your LO to drink fluids? I am tired of harping on mom to drink. She will ignore the water,juice, or tea in front of her face and keeps getting UTIs.
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Falling and New Facility Decision
Hello, My sister has been in a MCF for over a year. We know she won't be able to afford to stay there forever so we put her on the waiting list at the State Run Vet's Home. They informed me this week they have an available bed for her. They've assessed her and believe they can take care of her. I have one issue of concern…
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New
My husband is in the process of being diagnosed. He has no short term memory at all. He has lost his desire to play the guitar which he used to do all the time. He is wanting me home all the time and to be with me all the time. He gets upset. He is now having this anger outbursts usually at night. He thinks I want to leave…
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From the NYT: A Ministroke Can Have Major Consequences
This should be a gifted link. https://www.nytimes.com/2025/05/17/health/elderly-tia-stroke.html?unlocked_article_code=1.IE8.BO37.xssaUFKSfe6y&smid=url-share
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Excessive Sleeping
Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…
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Falling issues
So, my grandfather continues to prove that he is the most stubborn person in the world. I and my father are currently full time caregivers of my grandfather who has Parkinson's and Alzheimer's. He is currently a medium fall risk as diagnosed by his doc and physical therapist. He is still very independent, being able to do…
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Boundaries
Hello all, It's been a while since I've written. I've been busy taking care of loved ones. My mother passed away a few months ago, she had dementia and other health issues. My oldest sister also has dementia. She is in assisted living (as was my mother for the last two years of her life). I have been taking care of both of…
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Constipation - Mom on hospice (and on soft diet) is constipated - suppository & food suggestions?
Hello All, Mom was discharged on Sunday from SNF to home for hospice care. She is on soft diet due to recent stroke. Her bowel movement since discharge indicate constipation and some impaction. In addition to some doses of Senna, Hospice nurse gave her a suppository last night which was productive (somewhat). But I can see…
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Real ID or passport problems
Hi everyone and thank you in advance for any assistance. I live in Colorado but my mother is in a memory care facility in SC. As her disease progresses, it’s just too hard to have her so far away. I’m desperately trying to get her to CO to a new facility but I don’t have her original birth certificate or SS card and she…
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help for a friend
I care three times a week for elderly woman who is mother to close friend. although early stages we shop shop shop i pick her up and drive her wherever she wants to go. we eat then shop she is allowed $60 a day and inevitably goes over forcing me to dig in my pockets which i do willing she is kind then mean and discusses…
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Introduction and Question
Hello! Grateful for this group. Here I go. Introduction, Question, and probably too much background for one post. My father passed away in December 2024 while my mom was in ICU. Since her discharge, I've transitioned her to Assisted Living in the town where I grew up/they continued to reside—location per her wishes. ( I've…
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New to caregiving and I have no idea what I'm doing
Hello… My amazing aunt was diagnosed with Alzheimers/Dementia about 18 months ago. I'm not entirely sure how long she was really struggling before I stepped in, but I fear it was several years due to the things I have been discovering in her files as well as learning about the disease. Hindsight is 20/20 and what I thought…
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To moms...
To those who are moms - have a beautiful mother's day. To those who are taking care of moms - may it be a peaceful day.
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Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
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Decompressing after a tough visit
I guess all we can do is take a deep breath and exhale, right? I visited my mom yesterday. She is in Memory Care. I put my game face on. I went through the locked doors she now lives behind. I walk through the community to my mom's apartment, and as I do I smile and wave at other residents I have come to know and say their…
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Caregiver using public bathroom, husband wanders off
My mom is the caregiver and she takes my dad, who has middle stage alzheimer's, to walmart. He follows her around the aisles. If my mom has to go to the bathroom, she doesn't know what to do with him. She has told him to stay with the cart, but she never knows if he'll still be there when she comes out of the bathroom.…
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Anyone else taking care of otherwise healthy dementia patient?
Taking care of 85 year old with late stages but body is amazingly healthy, amazes the nurses and doctors each time,,,strong heart, good breathing, strong appetite, and can feed herself most of the time. One should be delighted right? But she is in late stages requires 24 care, is beyond any kind of converstation, but gets…
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New Journey Caregiving for friend-former spouse with Vascular Dementia
I can't believe that I am now a caregiver to my ex-husband, who has no other family member, who was diagnosed with vascular dementia. Back in 2022 I thought something was a little off with his memory but just thought it had to do with normal aging. But back in January 2025 something drastically changed. He was not making…