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Share your Story with the Alzheimer’s Association
The Alzheimer's Association is dedicated to ensuring that everyone facing Alzheimer's or another dementia is able to access a timely diagnosis, available treatment options and quality care throughout their journey. To better understand the barriers people currently face, we are looking for people to share their experience…
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Moved: ALZConnected Q&A Thread
This discussion has been moved.
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Need Your Input Please
My name is Denise. I am posting this because I really need input for what I am experiencing. My husband is doing what I understand is vocal verbalizing. It has become increasingly loud and more frequent. We often go out with friends as he enjoys that. Unfortunately, it has become almost unbearable for my friends to deal…
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Montelukast for AD
Has anyone's doctor mentioned Montelukast as treatment for AD. I have read some studies showing it has a positive effect on the inflammation reaction in the brain?
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Who is responsible for following up on directives after release from hospital?
It seems I have a new concern each time I visit my mother in MC. Today's question of the day is "Who is responsible to ensure the medical staff and my mom's MC facility follows the orders given for care after someone is released from a hospital?" My sister is POA for everything with mom. (I used to have POA jointly with…
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Opinion - What I Learned From a Support Group for ADRD - Cost and Fit Are Key
Choosing the Right Group Therapy for ADRD Caregivers: Why Cost and Fit Matter Caring for a loved one with Alzheimer’s disease or related dementias (ADRD) is an emotional and demanding journey. Many caregivers seek support through group therapy, hoping to find understanding, practical advice, and emotional relief. But…
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Preparing LO For Death of a Friend
Hello everybody! I hope everyone is enjoying their summers so far. I am writing to try and gain some insight on how to handle this situation, for me and my mom. My mom is 61 and in the moderate stage of her Alzheimer’s. We live in an apartment building and have been very close friends with the woman that lives above us for…
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Help Me.
my name is Denise. I am a care partner to my husband who is diagnosed with Alzheimer’s disease recently. I find myself getting very impatient with him with his Tourette’s type syndrome weird sounds. I don’t know if anybody else is experiencing this. Would or assistance with how to stay calm. Once again, it’s 2:30 in the…
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In home help
Tomorrow I will be talking with an agency that will provide in home help for my DH so I can do so many needed things that I have been putting on hold since his diagnosis in January. I have been utilizing family and friends to spend time with him when i have appts or do something socially, but some of his needs are more…
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Won't drink enough!
How do you get your LO to drink fluids? I am tired of harping on mom to drink. She will ignore the water,juice, or tea in front of her face and keeps getting UTIs.
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Help and insight
Hi. I apologize if this seems off or redundant, I’m new to a lot of this. My grandfather has Alzheimer’s. It’s pretty bad. My mom lives with him to help and I’m over as much as I can. But lately he’s aggressive and wants to go home. Stating this is not his home. It’s definitely in the sundowners range because it’s usually…
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Caregiver Respite
My mom has alzheimers and my dad is her primary caregiver, I am with her every saturday. It is to the point that my mom cannot be left alone and I am worried about my dad. I am looking for adult day services or in home companion care in my area to give my Dad a break- Beaverton, Hillsboro, Aloha, OR, I am completely…
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Research - Brain stress & resilience after surgery
interesting article
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Need help with some little things
Hello. My grandma was diagnosed with the early stages of Alzheimer's and dementia about a year ago and is rapidly progressing. Her long-term memory is still okay so far but her short-term memory is definitely suffering and she is becoming more agitated and ornery. She has always been a very strong, independent woman so I…
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Depakote added with Seroquel
Has anyone had a loved one that takes both Depakote and Seroquel? If so, I am wondering what reaction you see in the person you care for that takes both medications, and was it also for agitation and aggression? DH is already on Seroquel but the Neurologist suggested adding Depakote along with Seroquel for DH anxiety and…
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Gene therapy shows promise for Alzheimer’s disease
Gene therapy shows promise for Alzheimer’s disease San Diego VA researchers demonstrated in mouse models that targeting specific brain neurons through gene therapy in early-stage Alzheimer’s disease may help preserve memory and stimulate neuron growth. The researchers focused on the protein Cav-1, which promotes the growth…
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Not sure the MC facility has my mother's ADLs addressed
About three months ago I noticed a few things lacking in my mother's room regarding her personal care. One was that she did not have any toothpaste, shower soap or washcloths. I wondered how they were properly bathing or brushing her teeth. I also noticed the toilet paper roll was down to the last few squares and there was…
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Anyone taking N-acetylcysteine?
Our neighbor was talking with us about n-acetylcysteine benefits for Alzheimer’s. Is anyone taking it and seeing improvements? I’m looking for a reputable product in case my wife decides to take it.
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Caregiving
Never in my life did I ever think that I would be a caregiver to a person with VD with a heart failure diagnosis. Some days I think I can get through it and then other days I question whether or not I am failing and needing to go to the nut house myself. I feel I am living a nightmare that just won't end, and I have no…
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Therapy, counseling for Alz caregiver
What's the best source for me to use to find a therapist/counselor who's familiar with caregivers for people with dimentia? I don't need it yet, but want to start before I do.
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Taking medication in AL
Moms Al does not watch her take her medication. They set it on the table and leave. I was told when she moved in the it is policy that staff must watch residents to make sure the medication is take. This was important to me since I found stray pills all over the floor in her home and many more in old purses that she had…
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Just Had to Cancel Mom's Move. Again.
For the second time in a month, my mom managed to (mostly) schedule movers to take her from AL back to her home. The information she provided both times was either incorrect or incomplete. She's been in AL about 3 months. When I canceled the first move, I didn't tell her, which made her feel betrayed for not being looped…
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Service dogs for people with Alzheimer’s article
https://www.nextavenue.org/canine-companions/ I came across this article on the website for the National Council of Dementia Minds My wife has an interview in June with a service dog organization and we’re hoping to get one soon. We’ve been volunteering with the organization and having a great time so far.
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What to do: working mom with 1 year old baby, family member with suspected dementia
Hi everyone, I'm new to this caregiver journey and looking for a place to share my story and any advice/words appreciated. I am a working mom with 1 year old baby. Recently, my husband and I came to suspect my mother-in-law to have dementia/Alzheimer's. I only learnt about this recently, but apparently for the past year…
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Visited mom in MC and found another resident sleeping on top of her bed
I visited my mom yesterday in her Memory Care apartment. The door was ajar. I walked inside and saw my mom in her bed under a couple blankets. To my surprise, there was a woman lying across the foot of her bed on top of it face up. Just sleeping there. I took a photo for evidence. Then went to get the attention of a staff…
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From NYT: When They Don't Recognize You
This should be a gifted link- https://www.nytimes.com/2025/04/20/health/dementia-family-recognition.html?unlocked_article_code=1.BE8.G3Pn.ikjbW50YMnR2&smid=url-share
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OBSERVATIONS & FEEDBACK
Caring for my DW at home. Early stage AD, complicated by recent stroke. Largely recovered from stroke and now eligible to resume donanemab infusions. DW in denial & angrily resistant to medical help, OT/PT, meds and any caregiver advice and acts. Lotsa verbal abuse & defiance. Observations: 1. We caregivers share similar…
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Hospice diagnosis
In reference to the lady I care for. I have a concern with conflicting information. Medical records from hospice Dr states type 2 diabetes. Nurse from hospice stated she was not diabetic. I mentioned this to her son and he had zero knowledge of his mother being diabetic. Should I press her son to get answers or am I being…
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Falling issues
So, my grandfather continues to prove that he is the most stubborn person in the world. I and my father are currently full time caregivers of my grandfather who has Parkinson's and Alzheimer's. He is currently a medium fall risk as diagnosed by his doc and physical therapist. He is still very independent, being able to do…
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Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
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NYT: A Woman with a Rare Genetic Mutation ... (FTD)
From the NYT: https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html?unlocked_article_code=1.jU4.Pogt.lww3UxG0uYFK&smid=url-share https://www.nytimes.com/2024/12/22/health/frontotemporal-dementia-genetic-mutation-linde-jacobs.html
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A new experimental treatment - in a nasal spray
Something to keep an eye on. The study focuses on those with moderate Alzheimer's. Can this nasal spray slow down Alzheimer's? Once couple is helping scientists find out