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Can I Contact My DH’s Doctor Directly?
My husband has his own PCP and this doctor is very strict out privacy rules. In the past he has said I need to go through my DH if I want to send messages to him. What do I need to do to have the authority to speak with the doctor on my husband’s behalf? Is this when the DPOA comes in to play? Should I provide a copy to…
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Recently diagnosed
I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me…
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In pain, exhausted, and resentful
There is no one thing that I need to get off my chest. I'm just super annoyed and emotional. No matter how many of mom's doctors I give MY number to, they invariably or intentionally call hers. She cannot relay a straight message, and I am finding communicating with her to be a grand waste of time. This is a woman who was…
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New to this whole thing
My husband, my best friend, was just diagnosed with AD. He is 65. He's had a amyloid/tau protein blood test, MRI, PET scan, neuropsych testing and it was determined that was the diagnosis. The neurologist was very scientific about what AD is but wouldn't tell us anything about progression or what to expect or what stage he…
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Sleeping is increasing
My DW has been sleeping 10-13 hours a day. Until recently this sleeping has been all together. Bed at 5:00pm and up between 3:00-5:00am. Of course a couple of times each night to wander the house and return to bed. We were up this morning at 4:00am and it is now 1:00pm and she has already tucked herself in for the night.…
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Talking To One Who Knows
My dear wife left us in August, 2025. That was when the floodgates of grief were finally opened fully and all that I had been managing for years was allowed to be unleashed. As so many have described, it is overwhelming and far more difficult than handling the care of my dear wife for years. It is such a raw,…
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Angry
I’m not sure why, but all of a sudden I find myself angry at my husband. I snap at him when he asks me the same thing over and over. When he was diagnosed with ALZ I was able to stay calm and compassionate. Now I feel like I’m falling apart. Has anyone else experienced this. He’s in the early stages so he’s not even bad…
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Am I The Only One
I am trusting this group to be as tolerant, supportive and open as I have continued to promote to others as I share some thoughts that have only recently started to become clear to me. I am an older male born just after WWII and I know that I am perhaps out of touch with popular thinking about the role of the male in a…
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Leqembi Infusions
My husband is in early stage Alzheimers and our Neurologist recommended Leqembi. After much discussion my husband decided he wanted to try it even withe the serious side effects. After 3 infusions they did an MRI to look for side effects (brain bleeds). All was good. After the 5th infusion they repeated the MRI and it…
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Taking a Patient out of Memory Care for Christmas?
This is my first question to the group - my mother has pretty severe Alzheimer's and is in a lovely memory care facility which she believes is temporary while we are putting an addition on our house for her. I live close by the memory care facility and some times take her our for a meal, for church, even over night for…
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Finally at Peace
First of all, I want to thank everyone who makes this site possible and to all of you who have been my lifeline for the last 3+ years as I have navigated this ugly disease with my dad. I could have never gotten through it without all of you. Dad passed last evening around 5:30. It was so peaceful. No one knew it was coming…
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I am just learning my mom may have Alzheimers
I am a daughter of a 78yr old woman. Around 7yrs ago my mom took a fall and knocked out unconscious. As time went on she had little confusion. In the last several months my siblings and I noticed big differences with her confusion, forgetting things either we tell her or she tells us. She is also a caregiver for my 84yr…
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The day will come…
I saw this on Facebook and it could have been written by many care warriors here. The line that hit home to me is: “Have a plan then make another”. 💜 This moving commentary was written by a daughter, caring for her mother. Dear ones, The day will come when your loved one can no longer be alone. Not even for 5 minutes. The…
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Where do I start?
My 72yo Mom was just diagnosed with dementia. She lives alone. I have no clue what I’m doing. I have an appointment with senior services to do an assessment (not even sure what they do?) and an appointment with neurologist (not until end of next month). Is there a checklist somewhere? ugh, I don’t know where to start. I…
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Last Infusion and Encouraging PET Scan
Today I get my final Leqembi infusion, completing the course of 40. Last week, I saw my neurologist to go over my final PET scan. It was negative. No detectable Amyloid plaque. Amazing. <Bob gives a big exhale.> The doc offered options for maintenance. They were: Monthly infusions at the infusion center. Weekly self…
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Input requested for oxygen use on very late stage dementia
I’m sorry if this question is inappropriate for this forum but it asks a question about very end stage dementia and I thought those her might be more knowledgeable and willing to provide some insight. I has also posted this question on the spousal caregiver forum. My DW has been in Stage 7f for about a year. She is…
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Doctor prescribed 2 different medicines at the same time.
My sister is the main caregiver, but I have concerns. My mother, who has the dementia, went away for a week and had a uti, and loss of appetite, and lots of picking. She put a call into doctor and doctor prescribed antibiotics, and remeron, and zoloft. Took her off the buspar. And added the 2 new meds. My concern is that…
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Mom (MS-LS, more LS) just broke her hip in Memory Care
Hello, Long time lurker, first time poster. Mom (88) was ambulatory with walker in MC with what is probably early Late Stage dementia (word salad, often incontinent, but still sometimes in on the conversation.) She fell and broke her hip early AM yesterday. We were told she is not a candidate for surgical repair - between…
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Wife with Early Onset Alzheimer's
Hello, My wife is almost 41 and late stage 5 with EO. Both her brothers as well as her mother have already passed from the disease. Its been a struggle lately to say the least but both my parents and her parents are watching her during the day. We need to transition to a caregiver for 30-40 hours a week while I work. We do…
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The Cavalry Is Not Coming
Reposting for the new platform. I have not posted here for quite a while, and I want to let you know that I am still here. I hope you all are doing well, and I also have a thought process to share with you. October 1, 2022 will mark seven years since my wife’s dementia became obvious, and that I knew for certain that this…
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Neurological Symptoms
I am here because my DH has been struggling with short-term memory loss for a couple years now. We don't have an official diagnosis yet, but the general consensus seems to be vascular dementia. He asks the same questions over and over again, as if on repeat. We went to his niece's wedding, and then he forgot she got…
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Take a cruise?
DH sooo wants to travel still. He is in late stage 5, some into 6. He is continent, unstable but still walking especially with me beside.. He is very opposed to using a wheelchair. He knows me, does not sundown, is compliant. He has limited vision so doesn't wander. I would like to travel, too, and I worry about logistics…
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What do you do with your big feelings?
What do you do to keep from exploding inside? (That’s an exaggeration of course.) I’m at the beginning of this long ride and I don’t know how you all do it. My DH keeps forgetting things we’ve agreed to, like replacing our old couch, or planning a trip to visit our grandkids, etc. So, we have the same…
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Not Sure Where to Turn
The last 5 years have been a roller coaster. No doctors agree. Some say dementia. Others say not. We've been chasing a diagnosis and hopeful for any help. It's gotten to the point where I know it is dementia. My wife and I are 61 years old. I need a doctor who cares and doesn't want to spend 5 minutes once a month and then…
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Frustration and Delay getting ID
Yesterday was a day filled with frustration trying to arrange what I would think would be a simple procedure. I want to replace my DW's (now expired) real ID driver's license with a Massachusetts real ID. The procedure is handled by the RMV. I've now realized that my DW no longer has any kind of valid ID for government…
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More about spitting…
It’s been a long time since I’ve checked in. My husband is still going strong physically and he’s on eighteen years since learning he had a diagnosis of MCI. Probably twenty five years if counting behavioral changes proceeding memory loss. He’s considered to be in advanced stages of loss of cognition, but I’m not…
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FTD - Frontotemporal Specific Staging Tool (by Dr. Tam Cummings for FTD)
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Unprepared
With every decline, I feel so unprepared. I know what is coming, and yet each decline surprises me and breaks my heart. DH was accepted for hospice at home in September. I didn’t think he would qualify because he was still speaking and eating, not losing weight, able to swallow. But he was non-ambulatory. Yesterday he was…
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New here~~~~
I am not currently experiencing symptoms of Alzheimer's but have been placed in a clinical trial for "pre-clinical" Alzheimer's. I'm APOE 2/4 and have experienced 2 incidences of ARIA E. I'm concerned about continuing in the trials. Any input???? and HELLO everyone!
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Knowing doesn't change the losses
I am recently DX'd w/ early onset Alzheimer's (who I call Al, who is friends with my other guy ARThritis). I am a Former Alzheimer's specialist serving as the director of a local Alzheimer's association, Developer and creator of residential services and, in my youth, a personal care worker for those with Alzheimer's. None…