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Results from Aircept
Have any of your parents been on Aircrpt? Did it help? Hurt? Side Effects?
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Recently diagnosed
I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me…
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In Loving Memory of “Jo C”
I’m reaching out, again, on behalf of my beautiful mom, Johanna “Jo C” Richardson, a passionate Peer Volunteer for nearly 20 years. Many of you knew that Jo C had been diagnosed with a progressive lung disease a couple of years ago. The disease did progress and Mom passed away peacefully at home the evening of June 19,…
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Help! Overwhelmed and Dad won't address things
My mom (79) has dementia. I don't think she'll ever have any diagnosis. She won't even take her temperature. My dad (78) still has POA but won't do what's necessary for taking care of himself let alone her (i.e. meds, driving, home safety, home help, future planning, etc.) He/they don't know what state to live in when they…
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So Frustrated with Dr
DH with VD from several strokes has had interrupted sleep for 7+ yrs. Dr has him on trazadone 150 and now he is only up 5x night instead of 15-20. He now has nightmare episodes at night. We had a video appt with Dr today to discuss changing or adjusting meds to help us BOTH sleep, my idea.. I emailed Dr a heads up with the…
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Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…
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What to do when vascular dementia causes your husband of communication
We are at the stage of his dementia where we cannot carry on a conversation. I cannot understand what he is trying to say. He has many health issues and I am afraid I won’t be able to know what is wrong. This is my first post. I don’t know what to do. Thanks
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New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
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Caregiver for dad
My Dad is 75 & has dementia. It’s so bad that he wasn’t paying his mortgage for over 7 months. My husband and family had to move in to help save the house. I work full time but took some time off to help get my dad situated. We’ve been living with him for a month now and I’m mentally, physically and emotionally exhausted…
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Alzheimer's quick progression after an illness?
My LO has been experiencing a Colitis flare-up and is really having a hard time. He was seen by a doctor, and we have a follow-up appointment scheduled. But it seems like his Alzheimer's has progressed a lot within just a week. I did see a video that mentions that people may "take a step" down after experiencing an…
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Angry right now
Anyone out there ever get frustrated to the point of even being angry at the total LACK of answers available for this disease? My mom is in (I think) Stage 4 Alzheimers. But then it could be Stage 5. I can’t get a good answer from a doctor. There are no good answers. No good answers on how long I can expect each stage to…
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How to have patience and not start resenting your spouse.
Hi: My DW has had VD for 3 years and I'm the sole care giver. It's 24/7 year-round. Today she woke me screaming to come wipe her bottom. Yes, I have had to do many times, but to get woke up out of a deep sleep to her screaming clean my bottom. I almost lost my temper; how does someone not get up start resenting your…
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Husband
Hi all, My husband has Lewy bodies and was saying last night he’s dying, he said it again in the early hours of this morning, can anyone give advice please.
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risperidone
My HWD is currently taking Donepezil and Sertraline. He has been so agitated and verbally abusive lately that his PCP has written a prescription for risperidone 5 mg. The listed side effects are pretty scary, but maybe at this low dosage they are not a big risk. I was wondering if anyone has experience with it that they…
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Decline after caregiver?
Mom lives with us and has for about a year and a half, but we had a daily caregiver (8 hours a day) coming for a little over 2 months to help with Mom after she had fallen late July of this year. It was usually the same person M-F and then another person who came for the weekends. Both ladies were awesome, and of course…
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Medication administration
Hi ! my mother has been getting very confused with taking her medication despite me setting up the pill organizer each week . It is clear I need to get some help because I can’t get there each day and night. What are your experiences ? Is this something Medicare covers ? Are there agencies that will just come in for this ?…
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We can't persuade her to take a shower anymore.
Hello, My 85-year-old mother-in-law with Alzheimer's lives with me and my husband. He works full-time and I am at home due to disability. We used to be able to remind her to take a shower every few days and she would grumble a little and do it. Then she started resisting more strongly. We tried asking her if there was…
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Feeling extremely overwhelmed
I am a 55-year-old female caring for my 80-year-old mother. There are so many things to discuss, so I will try to start small. I live an hour and a half away from her, so expense-wise, and my own extreme anxiety and depression, it is hard to be there all the time. I call her daily to check in, but that conversation always…
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Safety gate for stairs?
Morning all, I'm new here and caregiving for my mom who's in stage 5. Increasing wondering at night, mostly in the upstairs hallway but occasionally venturing downstairs. Any stair gate recommendations? Thanks!
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Anyone experiencing body pains
hi am am newly diagnosed early onset dementia, My doctor is still finding out what kind dementia I have My understanding is I have Alzheimer’s in my blood but not reached my brain yet , what the heck does that mean ? I am having a Pet scan next , I kind feel like my doc just dumped me or put me on hold , I don’t know if…
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Update: Mood swings and anger issues
I want to think everyone who responded to my last post. That night I got a call from hospice to discuss my wife’s condition. I mentioned her anger and was told that the memory care staff had Lorazepam on hand that they could give her with my permission. I said that was alright with me and was told it would be passed on. On…
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Wow, I underestimated the loneliness
My husband went to memory care this week. It's going fine. He's settling in fairly well. I feel like a jerk for even saying this. I'm lost and lonely. I've never lived alone before (family, college, roommates, then my husband). I'm trying to keep busy. Dishes are done. Laundry is caught up (for the first time in 2 years).…
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A different stage
Hello my friends, all day I have beencalled a bitch, move out, pay bills with my small paycheck and my DH needs his SSI $1000 income. I am feeling like scared,, he will lash out. Also I cant be around him
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First Post
This is my first post, although I have been reading conversations on this forum for months. You are all so knowledgeable and compassionate and I have gained more knowledge here than with all the doctors or well meaning friends and family combined. Here's our story: I've known my DH for 30 years. We have been incredible…
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Unhappy Anniversary
Today is our 13th wedding anniversary. Last year DW jumped out of bed and gave me a big kiss and wished me a happy anniversary. This morning I told her happy anniversary and she had no reaction just continued to talk about something that made no sense. I guess this year is the beginning of unhappy anniversaries for me.…
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structure and expense of long term care and hospice
This is a CNBC video I found interesting. How senior care became a $600 billion business | Watch
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What to do, what to do…
My father in law suffers from dementia. He has lived by himself for the past two years and is capable of caring for his daily needs. Still fine with the few meds he takes. He has regular interactions with each of his kids as well as occasional visits from family friends. He sundowns pretty severely each evening. We…
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Leqembi Infusions
My husband is in early stage Alzheimers and our Neurologist recommended Leqembi. After much discussion my husband decided he wanted to try it even withe the serious side effects. After 3 infusions they did an MRI to look for side effects (brain bleeds). All was good. After the 5th infusion they repeated the MRI and it…
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Being accused of any and everything
I am caring for my grandmother. I was wondering if anyone has any tips for a specific and main hardship I'm having. She accuses me of being "the biggest liar she has ever met" about everything. She will ask me a seemingly easy question for example, she will be holding a peice of mail and ask me where it came from. So I…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…