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camera monitoring
Funny (or not) story: When my mom lived alone, 4 hours from me, and no one checking on her, she gave me permission to install a camera that could show her kitchen and livingroom area. It gave me peace of mind that I could check she was okay or at least moving into areas of her home. I was able to see she was eating dinner…
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Use Assisted Living physicians?
My MIL is moving into an assisted living community that contracts with a service that provides primary care through their own physicians and nurse practitioners. I'm wondering if it's best to switch her records over to them, with the obvious benefit that most of her health care visits won't require her to leave the…
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Delivering Bad News
Looking for some advice on how to have difficult conversations with someone with dementia. My mom was diagnosed with frontotemporal dementia in January. We recently moved her into an assisted living facility as she is not able to live alone safely anymore. She is relatively young, 63, and while she definitely has some…
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Dementia and gardening
My SO has severe dementia, communicating with them is extremely difficult as 5 minutes after you think he understands he does the complete opposite. Throughout winter he decided everything in the garden needed pruning as a consequence several plant collections have been destroyed. Now with spring he believes everything…
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To choose or not to choose
I'm recently diagnosed positive for early stage Alzheimer. Currently I am taking a prescription to help with some memory issues. My Neurologist wants me to decide on one of two intravenous medicine. I am not crazy about the possible side affects. I would like to hear from someone who is on this one and of any side affects.
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FTD
I’m very new to all of this. So my dad and I just found out this week that my mom has Middle stage of Alzheimer’s. We knew something was going on with her mind but we found out how bad her memory really is. I have read a few things on trying to deal with the anger issues and it is so hard to. How does the caregivers keep…
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Unhappy Birthday
It was my birthday today. And as my dad sang me happy birthday from his bed in a nursing home, my mom was just glazed over. It didn't register at all. It was a profound moment for me. Only 2 years ago she had it in a loop in her mind to tell people that her kids were born on the same day. The people she told were family…
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Successful Strategy: Circumventing Buying Expensive Shampoo
My mom moved near me with a small very expensive bottle of shampoo that her old salon had been selling her. $60 for 8 ounces! And she kept demanding more once she moved here. I tried and tried to explain how it wasn't necessary to pay that much. I even researched shampoos that would give "similar" results at a reasonable…
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Just diagnosed
I’m scared. Every time I think about it. My mom had dementia and later it turned into Alzheimer’s. Her last 3 years of life was the worse way of living. She cried. Her tears ran down her face but we never heard what was in her mind, even though we all knew she was going through torture. I hate myself for always having…
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Early Onset In Person Groups
My brother was diagnosed 6 months ago with Alzheimer’s after a very long 2 year period of many appointments and tests. He is 61. I’m trying to find him an in-person group in the Los Angeles area with others with early onset. He currently does a virtual program but I think in-person with others closer to his age would be…
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Not Eligible For Infusion Treatments
My 75-year-old dad was diagnosed with vascular dementia and Alzheimer's three months ago. We were hoping he could do the infusions, but have learned he can't today. This feels almost as bad as when he was first diagnosed. He has APOE 4/4 and signs of one Superficial Siderosis on his ARIA MRI which makes it too dangerous to…
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Vascular Dementia and Alzheimer Diagnosis
My dad who is an incredibly healthy 75 year old (exercises, good weight, good diet, social, optimist) was diagnosed with Vascular Dementia and Alzheimer's Disease two months ago. Right now he is in the mild cognitive phase. Does anyone have someone in their life who has both? I'm trying to grasp any idea of the timeline…
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Daughter of a dementia parent
I am new to this group. I am the oldest sibling and I do most of the caring for my mother and I need some tools that I can use so I don’t lose my ever loving mind every time I’m over there
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How to stop POA from calling/answering scam numbers
DH did it again, he called a number that was on his Ipad . I am guessing that he keeps clicking on something on FB that triggers a lockdown of his Ipad. This has been going on for several months. Unbeknownst to me, accompanying the lockdown is a message to call a certain number as the account has been hacked. Without going…
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Admitting to something you didnt do??
I know that part of being the caregiver for a person with Dementia is being accused of stealing when they misplace stuff, (like shampoo, coats, glasses) etc. When you find the item you are accused of stealing they say "oh no thats the new one I just bought" or they say "you just brought that back after stealing it". Or…
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Wondering if this happens to other parents.
I don't post very often but do a lot of reading of other post. My father was diagnosed 6 years ago with Dementia but was wondering about things I have observed over the last few weeks with my Dad. Over the last few weeks my mother and I, they both live with me as I help care give for them both, have noticed my Dad tends to…
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Dementia progressing...
My mom's dementia has been progressing so fast. She lives in a skilled nursing home, but no longer knows where she is. Although I am not her caregiver, I am her primary everything else. It is so hard to talk to her and hear her be so lost and confused. There's times where her voice sounds so familiar, like we can just have…
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Successful Strategy: Amazon "Teen" Account
I want to share an amazing, life-altering, successful strategy I've been implementing for 3 years with my mom (mild-mod ALZ). My mom has always been an Amazon-aholic. Before I moved her near me into AL, she would buy all this stuff and try to return them and getting confused and I had to straighten it all out. Now I am the…
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Parent making insulting remarks towards visitors and other residents
My parents is on a geripsych unit and I get so uncomfortable when she makes insulting remarks about other residents and visitors regarding their appearance or being crazy. She makes these remarks to me but says them so loud so they can hear. I'm scared when she says mean judgemental things about other residents and…
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Grief Differences Among Family
I wanted to reach out to others here for feedback. I struggle trying to help family understand why their grief for the loss of their mother or grandmother looks so much different than the overwhelming grief they see in me. I know each and every one misses her terribly, so it is definitely not because they cared less or…
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LEQEMBI Testimonials
Hello, I would like to hear testimonials from people, who have already completed LEQEMBI infusions. Was the cost and risk worth the benefit?
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Need a TV remote for dementia patients - any experience?
My DH is having great difficulty with the remote and then I have to try to figure out how to get it back to the stations we use. I have been looking online but haven't found what we need. Anyone have experience with either a simpler remote, voice remote or Alexa for controlling the TV? I feel so badly for my husband as he…
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What do you do when they push you away?
Dementia has really hurt my family tremendously. I live long distance from the rest of the family. My aunt has dementia. She's pretty upset with me for setting boundaries for myself. Long story short, I was expected to be her caregiver without any consent from me. So, when I would call my aunt, she would yell and cry…
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Question related to effect of repetition on memory.
I help a friend go to the gym a couple of times per week. At first, friend could not remember that they had a membership card and that they needed to scan it to gain entry. After several trips, they now always remember. At first, for many trips, friend could not remember how to use the built-in combination locks at the gym…
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Tipps and tricks needed
I have been caring for my DH for the last 13+ years with FTD. Hospices is on board and I have help from the VA. I am so grateful. My DH is beginning not to be able to walk even with assistance and is starting not to stand from bed to wheelchair. So staying in bed is becoming a reality for him. I am able to get him out of…
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Need to say no
I asked this in another discussion but came here due to the recent loss of my husband just a month ago. I am frozen right now with grief and am not ready to socialize. A cousin asked me to lunch tomorrow (we are not that close), as he is passing thru my area, and I said yes, but now I really don't want to go. And my…
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A New Level of Loneliness
I see that I had a post last year about the loneliness of living with a spouse with AL. Of course, the disease has progressed. I'm guessing that he is more stage 4 than 3. Really, who can tell for sure. We have a daughter who is not currently speaking to us as she works through some things. Exactly what things, she did not…
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Alzheimer's Research at NIH
RFK Jr.: "We should have the cure for Alzheimer’s today. We don’t have it PURELY because of corruption at NIH. And we are going to have it quickly." He said that the scientists at the NIH focused on a single hypothesis and discounted multiple other hypotheses due to corruption. The NIH will now focus on finding a cure. I…
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How do you find help
I am new here. My mother was dx Alzheimers/Dementia. I believe it is early stages, but we do not know yet. We have a more in depth eval on 5/20 w Loma Linda in Cali. My question is, how do we get help? I was told by her insurance to just call around and talk w/ nursing homes to see if they will accept her and if they offer…
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FTD then reassessed with Alzheimer's disease
DW was diagnosed with logopenic variant of Primary Progressive Aphasia in March 2022. In August 2024, it was recommend to have an amyloid PET Scan. The PET Scan showed and confirmed that Alzheimer's disease was causing the aphasia not frontotemporal lobe degeneration. I've seen it referred to as atypical Alzheimer’s. Also,…