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Discussion List
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Trying to reduce anxiety with DW's anxiety
Not sure if I should be asking this question on this forum, but has anyone had success with CBD or CBD/THC combo in reducing loved one w/ dementia anxiety levels? I'm from California where it's legal. Let me know-Thanks
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Whipple Procedure for Pancreatic Cancer: Treatment Goals and Recovery
In the classic Whipple procedure (pancreaticoduodenectomy), the surgeon removes the head of the pancreas, the first part of the small intestine (duodenum), the gallbladder, part of the main bile duct, and a portion of the stomach. In a pylorus-preserving Whipple procedure, the pylorus and a small part of the proximal…
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dad talking about -- content warning self harm
Hi friends, Dad has started mentioning wanting to kill himself. He barely has language ability, so for him to get a whole thought like this out is unusual and obviously the content of his thought is alarming. He is stage 6. On hospice. History of behavioral expressions that lead to a geri psych inpatient stay in July and a…
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Boundaries
Hello all, It's been a while since I've written. I've been busy taking care of loved ones. My mother passed away a few months ago, she had dementia and other health issues. My oldest sister also has dementia. She is in assisted living (as was my mother for the last two years of her life). I have been taking care of both of…
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Traveling with a Spouse who has dementia
My spouse is in the later stages of dementia although we still do outside activities. Each winter we do down south for 3 months. I am debating what to do this year. If we stay home LO will be in the house 7 days a week being cold. If we go south, she will at least get outside. I caN'T figure out what to do. Either way I…
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WHAT TO DO?
My precious wife has come to the stage where she either won't eat, or at best eats very little. Is there anything I can do? I have read the articles about eating issues, and know that I cannot force, cajole, or threaten her. Your help in this matter will be greatly appreciated. CWB
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in denial
My husband whom was diagnosed mild to moderate mixed dementia w/alzheimers isn't accepting his diagnosis well. I have explained it to him and even showed him the seven stages and he tells me it isn't going to happen then he goes on to tell me that he hates me deep in his heart and blames me for things that has happened in…
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Rushing into caregiver arrangements
Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…
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Coping methods
most times i'm fine. sometimes i feed either angry, sad or frustrated. the following help me cope; walking away for several minutes when i'm getting angry. regular exercise both cardio and weights. some cardio gets endorphins flowing providing euphoria. living in the moment -enjoying the good times together and know the…
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who's place is this
my spouse wakes up in the morning inquiring as to who's place is this. (we are in our home of 50 years). How about all those other places that we have…(we have no other places) How should I respond to this. I am her caregiver…married 57 years this month.
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So much!
First, I am glad to have the connection with you all as it does help to read others' posts and ideas for dealing with this disease. Also, not sure why I am listed as a he/him - I am the wife and caretaker of my husband. My hubby really has left me with such anxiety and worry the past 36 hours. He keeps walking out the…
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Eating
Hello, my spouse does not remember that she has eaten and therefore constantly eats. She is struggling to fit into her clothes now and unfortunately, due to a bad hip, won't exercise. I've given up on trying to get her to eat healthy and I just make sure she does as often as possible. She also forgets when she has a glass…
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Constantly in a state of Anxiousness and Anticipatory Grief
For the past year I haven't been able to be "happy" or "calm" at all. I am constantly thinking the "worse" and Anticipatory Grief is truly getting to me. I have my moments where I am calm and all but immediately feel regret, sadness, anxiousness and worry. Every time I call my parents the moment I hand up I start to cry…
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new here - hostile family member with dementia
I'm not able to provide any care. She won't accept it. She lives alone, which is dangerous for her and perhaps her neighbors too, seeing as she could leave a pot burning anytime. She is paranoid and very hostile. I've tried all the social services over and over. They say they can't get involved unless she cooperates. I'm…
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Grief is so hard
It's been 6 weeks since my EO LO passed away. I moved across the country to see her one last time - and I made it. But now, I am missing her…memories flood my mind…I know we "lose them" when the disease progresses. But this is hard…still so hard. She is one of the people who has been in my entire life and now she is gone.…
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Sharing a travel story
We just returned from a long weekend in Chicago (from CA), with another couple. They are long time friends and my DH travels well with them. We stayed in a hotel, and during the night DH became confused because he did not recognize the toilet! When he would stir I would take him to the toilet and all was well. The second…
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My parents live with me and Dad has dementia how do I accept I'm breaking down?
I'm being a total b**ch to everyone except my parents and I really feel like I hate everyone. No one offers to help and it seems like everyone wants something but if I don't do it exactly how they want I'm the bad personðŸ˜
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Difficulty finding ltc for mom with openings in my area.
Hello. New to the discussion board. I have been reading lots of post and so happy to have found a tribe. My mom lives with me and my husband. She was diagnosed with alz and lbd a year ago. It's heartbreaking, frustrating, difficult, and exhausting. I'm pretty much on my own caring for her as my brother passed away several…
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Social Security Disability and Medicare
My husband has been diagnosed with Alzheimer's at the age of 61. He will be leaving his job and going on Social Security Disability before the year is over. If, I am understanding correctly, he will not be able to get Medicare for his medical expenses until after 24 months. Can someone tell me if this is indeed true.…
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Shoe issue
My DH has an old pair of shoes he loves and he doesn’t want to wear any others. They are totally worn out especially the backs and inter soles with holes. I bought him a new pair which is identical to the old ones but he refuses to wear them because he says the old ones are more comfortable. The issue is he spends some…
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what is expected in memory care?
I am trying to understand what is expected in a memory care facility regarding personal hygiene, dietary needs and housekeeping. We just moved my dad (just turned 86) from on memory care place to a new one, mostly to get him closer to mom so she can see him every day. THe old place had a TERRIBLE menu. Supposed to have…
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It is national assisted living week
I have never understood why memory care is always in an assisted living setting but it is what it is. This week is national assisted living week to celebrate residents and care givers. Those of us who are spending our life savings and 401ks on our spouses assisted living are not being celebrated or recognized. Typical of…
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Slipping Further
Just spent the last 20 minutes trying to persuade and was essentially begging and pleading for my 94 year old dementia and other health ridden foster mom to take her bed time medicine. She had sundowned earlier than usual today.. and I was met with her saying okay and falling back to sleep, rolling back to her side, not…
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Capgrass Syndrome
Hey folks, Hope some of you are having a pleasant day. I shared on an earlier post that my DW was forgetting who I am, mostly in the afternoon/ evenings. Now she is waking up not knowing who I am. The memory social worker mentioned that my wife more than likely has Capgrass Syndrome. She has been diagnosed with alzheimers…
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Mom's REPETITIVE Calling on Cell Phone - HELP & SUGGESTIONS needed
Mom is calling siblings, extended family and friends a huge amount of times a day asking for assistance in moving her back to her home from care center. An example...my sister received 30 calls on Tuesday and by early afternoon yesterday had 15. My brother received 15 calls yesterday and his wife as well. Care staff…
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Early onset support
Hello, I'm Scott and riding on this journey with you. I received official diagnosis this past February 2026 then jumped on the merry-go-round of initiating treatment. After many pitfalls and several months trying to gain access, I ultimately joined a clinical trial for a new drug. Yes, the trial comes with its own…
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New to this and Helpful books
I am wondering if this group has a reading list of helpful resources for those living with dementia and care partners. If not, I'd like to start one. My husband was recently diagnosed with Parkinson's . The initial diagnosis also included Alzheimer's. He was on medication for several weeks for both until further testing…
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I am in denial. How do I accept this?
My mom got diagnosed with dementia about a month ago. We knew there were some problems going on for 2 or so years but things got hard trying to get her to go in and get testing done to get formally diagnosed (long story). I speak with her on the phone almost daily for 10-15 minutes (or until she is no longer able/ not…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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Looking for independent caregiver
Hello! I am looking for an independent caregiver (not with an agency) for my 80 year old father who has moderate stage Alzheimer's. I would appreciate any advice on good ways to go about finding someone, please. Thank you!
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
Looking for information and support for Alzheimer's disease or other dementias? Click here to view our Dementia Resources
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