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Newly diagnosed
I’m 54 and was diagnosed formally 3 weeks ago. Having a tough time dealing with it, but I’ getting help, have lots of support and understand that all these emotions are pretty normal. I had my first Leqembi infusion last week and am hoping that helps. I am just not sure what to expect in the near term and could use some…
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A helllful
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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How long is it safe to leave someone with Stage 6 Moderately Severe Dementia alone?
Hi all, new to the forum, been supporting my mother diagnosed 5 years ago with Alzheimer's. Most of my support has been to help my father, the sole caregiver, take some breaks and figure out next steps, and to increase the contentedness my mother has and decrease her anxiety. I spent half of the last two years off and on…
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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Am I out of line?
Hi, community. I'm currently unable to sleep. My Mom (75 years old) came to our house after an unidentified cognitive episode in February. She was diagnosed with Alzheimer's a few weeks later. As her identified POA, I, along with my brother, got to asking our mom her wishes and taking action to find a place for her to…
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Lost
I'm new to these discussions and I feel completely lost. My DH has become increasingly detached from reality. He doesn't know me at all. He thinks I am mean, even though I do everything for him. He daily wants to "go home" even though we are at home. Has anyone else had this experience?
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Wife has stocks in her name
my wife has some securities in her name, what can be done if you don’t want to sell just now, can you have transfer to my name or what to do??
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Tests and medications
Here is a philosophical question for everyone to ponder. As healthy human beings, we all do what we can to insure as long of a life that we can have. We eat right, we exercise, we take supplements. We do all the tests that is required by our age group like mammograms, colonoscopies, and so forth. We get flu vaccinations,…
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Mom refusing to be active
I am struggling to get my mom up and around more. She has never been really active honestly but she would work out about 3 to 4 times a week. Since my Dad was sick about 4 years ago, she has had a hard time taking care of herself. He passed 2 years ago after being sick for 2 years. She was out of practice while he was ill…
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Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
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How to motivate your AD spouse to do things that will help her.
My AD spouse isn’t self-motivated. I have made dot papers for her to complete with her name, address, phone number… I am continually helping her navigate her phone and texting… I am helping everyday to work the tv remote… she was a music director so I have enlarged music for her to sing with(words only)… I write our day’s…
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…
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Bad fall
Just as things were finally settling in to normal my mom had a bad fall. A very serious and deep cut/head injury requiring staples and stitches. Fortunately great health care near her MC. The doctor even discussed pros and cons of keeping her overnight while waiting for test results (we opted to bring her back to the MC…
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“Woozy, Head Feels Heavy”
Question for you caregivers—does your LO ever report their head feels, “heavy” and they are “woozy”? If so, has anyone consulted any doctor about this? Thank you in advance for sharing.
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memory loss
My husband is being treated for a third breast cancer recurrence. It has been 6 years of: masectomy, chemo, radiation, injections and constant meds. He sees an oncologist and neurologist but no one has addressed his memory loss. He is losing words unable to find the label for things, memories, directions to familiar…
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Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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Do any of you folks have early dementia yourselves and live alone?
Everywhere I look, I find support, even on Blogs for caregivers, but I have yet to find something to assist the person who has dementia.
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Dementia and cancer
I need major advice. My mom has dementia and was just diagnosed with stage 1 lung cancer. Very treatable, if not curable. All she has to do is go through some radiation. She is probably in stage 5 or 6 with dementia... very very paranoid about everything and anything medical all but traumatizes her. She is also a recent…
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When both parents need support!
Hi everyone, This is my first post. My parents are both almost 79 and live in a 55+ community. My mom has moderate dementia, and my dad, who has Parkinson’s (and possibly some early cognitive issues himself), is her primary caregiver. One of the biggest challenges is helping him understand that my mom needs simple, clear…
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Spending time with mom with Alzheimers
We are getting ready to put my mom in a MC facility. Physically, she is in great shape. She loves to go for walks if the weather is nice. I was planning on picking her up often from MC and taking her on walks to enjoy the beauty of Colorado. I was recently told from a friend that that was a bad idea. When we go to visit…
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Evacuating in an Emergency
Greetings. When the Guadalupe River recently flooded, the police ordered everyone on my street to evacuate. It was a very scary experience. Here are some lessons I learned: It could happen to anyone at anytime Follow the directives of the authorities Be calm and be firm with your PWD Know where to go and how to get there…
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Going crazy
Taking care of my mother in law and we are so lost is anyone available to talk
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Father Diagnosed, What Now?
Hello everyone! My father was just yesterday diagnosed with EOAD after his father was hit with Alzheimer's, and his brother is exhibiting the same symptoms. In January my father will be tested to see if there's a genetic link, but my understanding is that it will be almost certain that I will have the same condition this…
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Ivermectin for dementia
Ivermectin gained popularity during COVID-19, where some people claimed it could treat or prevent the virus. The problem is, sometimes, news articles or social media can misinterpret early research and spread misinformation. When it comes to dementia, what most scientists and major health organisations, like the…
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Progression and caregiver changes
DH continued to decline with the rivastigmine and has developed significant hallucinations and a persistent delusion about a dead friend who isn't dead. The companion who had been with him almost a year quit because he couldn't tolerate DH's rants and accusations. He was started on Trazodone and Buspirone due to his…
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Moving mom with alzheimers to a different state
My dad passed in 2020 and once he passed, my mom mentally checked out. My brother has lived with her since then and the Alzheimers has gotten worse. I live in a different state and come out every other month for a month at a time. It's straining my relationship with my family and my brother is mentally/emotionally done. We…
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Questions to ask Memory Care Facility
My brother and I are wanting to move my mom to a MCF. My dad, thankfully, bought long-term care insurance and after 5 years, we just mentally can't do it anymore. I have made note of the obvious questions to ask on my visit, but wondering if there's some questions that I may not have thought of. Also, has anyone else had…
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Seeing Two of Things
My mom has advanced dementia, about stage 5. She is constantly saying we have two dogs or two cats (we only have one). Sometimes she will double a person and say ‘Dan and Dan went there etc.’ Has anyone else encountered this doubling? Is she really seeing two of things?