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Palliative and hospice care podcast
This is a very informative podcast about palliative and hospice care. Delete is not allowed. https://peterattiamd.com/bjmillerandbridgetsumser/?utm_source=podcast-feed&utm_medium=referral&utm_campaign=250623-pod-bjmillerandbridgetsumser&utm_content=250623-pod-bjmillerandbridgetsumser-podfeed
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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The Cavalry didn't come......
Last week, my DH had a mini-stroke. He has been declining quite rapidly, and the stroke made his decline even more significant. I have been struggling with all of the emotions surrounding a loved one who is dying such a sad, prolonged death. I broke down completely, and cried out for help from my DH's brother, and his…
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Communication/mis-communication frustrations
My husband with FTD, early stages, sometimes brings up a topic and I'l respond in a normal way, mild and "neither here nor there." Yet he'll take it as an attack of some kind and respond in an angry tone as if I've created an argument, or as if we're in an unpleasant debate about something. When this happens I leave the…
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Ivermectin for dementia
Has anyone heard about ivermectin for treating dementia? My sister told me about reading that it was very helpful but my searches only show that ivermectin does not help dementia. Thanks
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The anger issue
My DW’s dementia is progressing to the point where she will need to move out of our home to a MC facility. She gets increasingly angry with everything, and I can’t imagine how she will handle the move. Will the anger subside as her dementia continues progresses? Can medication help?
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Denied Hospice
For quite a while now, my mother has been declining cognitively. It isn't a steep decline but steady enough that I often notice things she used to do for herself that she no longer does. Also, Mom had two "spells" in the last four months where she spaced out, went cold and clammy with a low BP and low heart rate. Both…
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Vascular Dementia diagnosis
hi, I’ve been around here awhile. My LO (hubby) was diagnosed with Alzheimer’s 5 years ago although he has had clear symptoms for 8 years. I didn’t realize this at the time, but two years ago he had a heart attack which is most likely due to his vascular issues. We had an MRI two weeks ago to get this conclusive diagnosis.…
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Seroquel and Lorazepam
My DH had his doctor appt this week. The doctor added Lorazepam (for anxious episodes) to be taken as needed. He told me not to give his Seroquel (he takes 50mg am and pm) and Lorazepam at the same time or he would be extremely drowsy. Is anyone else’s LO on both of these meds? How far after the Seroquel do you give the…
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Recent diagnosis and vision trouble
My dad was just recently diagnosed with early onset Alzheimer's at age 63. While his memory is a little spotty, the toughest thing he's been dealing with is an increasing loss of vision that they believe is being caused by some small bleeds in the occipital lobe of his brain. He is still almost completely self-sufficient,…
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Meet N Greet
Hello, We are Scotty and Rachel. Married for 41 years. Rachel has been diagnosed with Mild Dimentia. We are new to this community and look forward to interacting , supporting and sharing. Our journey started about 3 years ago. With trial and error we have been coping on our own. Now that we have a community, we know we are…
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Bathing Assistance Issue
My 91 year old mother-in-law has lived in an apartment under my house for 8 years. She has always been very easy going and still often is for the most part. She has been experiencing memory issues for a couple years, but her memory has declined significantly since January. She was diagnosed with early stage Alzheimer's in…
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Brief & informative
This is a short piece written for nurses which I thought was very helpful for caregivers. When you look at your face in the mirror, you recognize your skin, your eyes, your imperfections, and your smile, because it’s you. But could you imagine looking at your reflection one day and having no idea who you were? It’s one of…
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Increased Saliva with Donepezil
Good morning! My DH was diagnosed last year with White Matter Small Vascular Disease and earlier this year was also confirmed with Alzheimer’s by blood test and Nuclear Pet Scan. He started the Donepezil in February. A lot of fatigue, a little nausea but manageable. However, it also seems like he has increased saliva…
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Just needing support
Hello everyone I'm new here, and figured it is time to build a community of support with people who are or who have been where I am. My dad was diagnosed with dementia this past year, although I am sure he has had it longer than that. I left my job for a more flexible one since he is getting combative with my mom. I am…
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When do you decide to place your spouse in a Facility
My husband is only 61. The confusion started 3 years ago. In the last 7 weeks he has decided fast - no longer uses the restroom, does not eat, have to force him. Can stay up for 2 to 3 days with our much sleep (cat naps - 15 to 30 minutes), constantly pacing, has left the house in the middle of the night with no shoes,…
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New Fear Unlocked
I have benefited so much from different posts I've read since finding this site. Until recently, I allowed my DM to hold on her debit card and credit card since moving into an IL facility. After reading horror stories of scammers, both here and in the news, mom consented to having me keep her debit card. I left her credit…
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Father
So I’m kinda in the middle. I’m trying to stay positive and help my mom as she cares for my father yet the same time it’s like I’m mourning the loss of my dad, or the man who I knew as my dad. He’s in the stage now, where he’s talking about the past so much that he believes were in the past. He’s digging through stuff all…
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New hospital visit
my DW just went into hospital with pneumonia. She is now back at home with in home hospital care. She had this once before two years ago. 24 oxygen and daily nurse visits. It is demanding for me but better here than going to hospital. Another part of this journey.
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The Long Goodbye
My beautiful, sweet husband passed away a little while ago. I was sleeping, and I don’t know how I will ever forgive myself for not being with him. I have to comfort myself knowing that he is free from this awful disease; the pain and confusion. He was the best thing that ever happened to me, and I know this world is a…
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Newly diagnosed DH
My DH 57 years old just diagnosed. It was a long taxing diagnostic process of tests as I’m sure most or some can relate. My DH exhibits a terrible loss of emotions/cold/distant-he becomes mean and harsh- curses. It’s been difficult to let go, but he seems happiest at least for him, when he is alone doing yard work/watching…
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Physically Fit
When my mother went to the ER twice this spring for syncope (fainting spells), both doctors looked at her test results and marveled at how physically fit she is in spite of the dementia. She limps a little bit due to a troublesome hip, but she's strong. Her posture is good. She takes BP medication and Seroquel for anxiety,…
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Total Hip Replacement?
My DH is diagnosed with severe hip degeneration and is in need of a hip replacement. DH was always active, but now has little interest in anything but radio and tv and his phone. He started Leqembi 2 weeks ago and I am in a quandry of what to do… He has had steroid injection and intra articular with no relief. He is now…
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Dad needs care too, though.
Hey y'all! So my Dad is 82 and in relatively good health. My Mom is 80 and is in late state Alz. ( I think.) Her symptoms are a little different than some, in that she is unable to really hear…she can't see well…thank goodness, her attitude is usually upbeat and positive. However, she doesn't talk much now and when she…
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Reappearance of distanced siblings
My Father was diagnosed with VD with onset AL 4 years ago. I took over as POA due to a broken unrepairable bridge between my Sister the former POA, and Dad. I've learned so much about their former relationship in the last 4 years and frankly, I wish I woud have found out sooner in order to rescue Dad. She kept him in the…
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How to truly block spam phone calls
My father has dementia and is eager to talk to every telemarketer. This has the phone ringing dozens of times a day, with him wasting lots of time talking to people selling services he doesn't need. Worse, the caller is sometimes a scammer, and Dad is gullible enough that he's given away his credit card and other sensitive…
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Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
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Dating while still married and caring for my wife
I've been taking care of my wife for the last six years, and moved her into a memory home three months ago. I'm ready to move on with my life and start dating. I met a woman, but she's concerned I'm still married. I know there are other people out there successfully dealing with this situation. And I've even seen articles…
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Therapy?
My DH is probably between stages 3 and 4. I am mourning the loss of my life partner, stressed by my new responsibilities, and dreading what comes next. My sister wants me to see a therapist, but I view this as another task to complete in an already-busy day. I would appreciate anyone willing to share their experiences,…
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Keep Putting Off MC Visits
Placed DW in MC four years ago, and it was the right decision. Moved her from a deteriorating for-profit facility to a public facility providing excellent care. She is happy in her circumstances - still aware enough to interact on a limited basis with others, feed herself with assistance, and so on. As her early-onset AD…