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Need to move mom; don't know where to start...
Hi, Hoping for some guidance from those who have lived it. Need to move my mom out of her home (she refuses) due to decreasing cognitive abilities (dementia). She lives 8 hours away in the middle of nowhere, with no facilities to move into in her community (rural, northern MI). She has too much money to qualify for help,…
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Therapist offering free workshop on caring for caregivers this Friday 11-1pm
hey everyone, I have a friend, psychotherapist, Lia Avellino who is offering a virtual workshop, Caregiving for the Caregiver. It's for anyone supporting others whether at home, at work, or in your community, definitely those with Alzehimer's. It's a 2-hour live workshop as an opportunity to slow down, reflect, and explore…
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Sitting Vigil
I am sitting vigil tonight at DH's bedside. It took three tries to insert a new Foley catheter this morning. Each insertion in recent months had been more and more difficult. He began bleeding out. He has an enlarged prostate and a latent tumor that he's had for 23 years. He may have a new tumor, too. He has lost a great…
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Barely Surviving Everday…
Hi, I am new here. By a grace of God, I was given this website, believe it or not from a woman that was a customer service representative at the Treasury Department. My mom has Alzheimer’s, and I suspected it four years ago and sent the alarm to the family. Nobody believed me, and thought it was natural aging, and…
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Not one to post pics or memes, but this struck a chord
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His Battle Has Ended
The love of my life, my DH Joe, lost his battle with dementia on October 31. He was diagnosed 15 years ago and progression was slow until the last year when he was in memory care. It broke my heart to move him there but it got to the point where I couldn't keep him or myself safe. Hardest decision of my life. In Aug/Sept,…
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Why isn't Alzheimer's mentioned more?
So, here we all are. Why isn't Alzheimer's and dementia talked about more in our society? It's crippling and life-altering to us caregivers and our loved ones. My DW has it. Her mother has it. Her grandmother had it. My dad had it. My uncle had hit. My brother-in-law's brother has it and my 1st cousins wife has it. It's an…
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NEED TO FIND A SUPPORT GROUP in or NEAR LOVELAND, COLORADO
My wife of 46+ years is developing dementia. I'll confess it's pretty heavy for me at present. I need to find a support group for myself and maybe with her in the Loveland or Berthoud, Colorado area. I do not want to go as far as Fort Collins - an hours drive and it's a college town. She is 78 and I'm 79 and a retired…
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Stages of Alz
I see many mentions of stages that your loved one is at. Where can I find this information. My DH is in the later stages but I'm curious which one and how it is defined. Thank you.
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Relieved, sad, brutalized, and bewildered
My spouse passed away yesterday. Diagnosed with MCI/EOAD after a spinal tap 11/2021 age 61 Hospice 6/2025 age 65 Died at home 1/21/2025 age 65 Early onset can go fast, but that young heart can keep going at the brutal, brutal end. 6 days with no food or water, 2 days of agonal gasping. Excruciating. I am so glad it is over…
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wandering
With so many of you having concerns about your LO wandering from the home,I thought I'd mention child locks on the outside doors. I installed these at the top of the door, above eye height, and my DH has no idea they are there. Even if he did, he does not have the dexterity or the mental capacity to figure out how to slide…
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Mother to Mother
Hi everyone, My name is Stacey. My mom was diagnosed with Alzheimer’s last year at 64 years old. We saw signs for a few years now looking back, but we always just chalked it up to anxiety symptoms. My mom is my best friend and I am having such a hard time with this diagnosis. Since last year, things have really progressed…
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Early in the process
My husband was advised by neurology dept that he probably has Alzheimer’s Doctor can’t see him for 4 months to confirm. What am I r do?
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Parietal or Atypical Alzheimers
I’m just wondering if anyone out there has a loved one with parietal Alzheimer’s. My DH’s AD is on the left parietal lobe. This is a very different path than the usual AD. His first symptoms were severe deficits in Math. We noticed he kept over tipping waitresses, who didn’t mind at all. His social skills were the same for…
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I Would Pay Money for a Little Anosognosia
As my DW loses her ability to speak and has started becoming more anxious and paranoid, she will say to me, "I am about to lose it all." and then she'll cry. So I cry and think of how utterly unfair it is that she knows, really knows that her brain is failing her. I know her thinking she has nothing wrong would bring it's…
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Aunt's caregiver guilt
My aunt has no children, no spouse, no partner, ever. She is the kindest human, but a loner. I am her caregiver; she was diagnosed with moderate dementia. I know it is not safe for her to live alone and I took her keys away months ago. She wasn't caring for herself, eating appropriately, taking her meds, and I watched her…
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Sad for DH, sad for me
The other night when DH came in to visit and have his nightly glass of wine, he started talking about some money that was deposited from a small income source and then tried explaining to me why the money was so little. This income source was in the field he had spent his entire working career in, but he couldn't find the…
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My DW is always hot, then cold, then cold, then hot. Repeat...
I was wondering if anyone else has experienced this phenomenon. My DW is always complaining about being too cold. I then turn up the thermostat, and she then complains that she's too hot. So, I turn the thermostat back down. The process repeats and the hot and cold complaints are less than a minute or two of each other.
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Christmas gifts for someone with Alz
My wife has advanced Alzheimer's. She cannot walk or talk. What do others suggest for Christmas gifts for her?
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How to respond / deal with the almost obsessive past work talk
My DH was diagnosed with Alz over a year ago. As with most of us I was noticing signs for 3 years prior to diagnosis. I'd say he's into early stage 5. He is still able to care for himself and do most things around the house. Of course he repeats his past stories, and asks alot of repeated questions. I'm dealing with those…
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Saturday night
this is what Saturday night looks like at our place 🥲. How about yours? Lol
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's disease.
After losing my father to a long battle with Alzheimer's, I wrote this essay to give a glimpse into this horrific disease, draw attention to the red flags and signs (there are many people at this very moment who have a family member with dementia and still do not realize it), and especially to help people navigate through…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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I feel so alone and lost at times
My husband was diagnosed with "MCI with a vascular presentation." The loss of his short term memory is jaw dropping. I'm observing a slow decline in him, but then some days, he seems "OK." I've noticed when he is around other people that do not see him on a daily basis, outwardly he seems fine. His adult children do not…
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What Is Respite?
I’m so tired from 24 hours and going of aimless, but harmless, wandering, but, but… Today I have a caregiver for three hours. DW is accepting of her today. My respite is the garage door up with a soft rain, sitting in a lawn chair with the door into the garage locked so my DW stays with the caregiver, sitting here…
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How long survive without fluids
my DH has been put on hospice. He is in hospital. He has had zero fluids for 3 days. He’s on morphine and Valium. His BP is still good, good oxygen, had some mottling which is now back to normal, strong pulse. He had death rattle which is now gone. Has anyone had this experience?
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Her Sun Has Risen...
I know the discussion title is a little unusual, but I chose to title it that way to reflect her freedom from the disease on this side of life. That's how I like to think of it anyway in order to retain some sort of sanity. My mom, diagnosed with Alzheimer's in 2018, transitioned in late-August of this year. I am her only…
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Treatment Options and Initial Questions
My sister was diagnosed today and she is 66. She is already on Donepezil 5mg. I see discussion around infusions. Can someone enlighten me on this? Also wondering what some good initial questions are to ask the doctor when we have our first in person visit.
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Tonight
As I sit here tonight at 9:56pm I think I have had a really rough evening with my DH….but I know what I think is bad now really isn’t. He is probably in early stage 5 and I know there are so many worse days/nights coming. I try to remind myself that really we are still fairly normal compared to what many are going through…
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being prevented from communication
My DW of 45 years has ALZ and is living in an assisted care facility. The oldest daughter has POA. She and an unknown DR have implemented what they call a "NO CONTACT" plan where I am being prevented from any communication with my wife. They say this is for her "well being" and that it is permanent. She is taking 3 or 4…