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Newly diagnosed father with Alzheimer's
Hi all - so glad I found this site. My dad is 66 years old, and I am 27. He is still living on his own. We only recently got the diagnosis (within the past two weeks), and he is in the mild/moderate range of dementia. I live two states away, but my brother is within an hour. I am having a hard time figuring out what to do,…
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Medicaid Pending AL monthly payments
**update: I ended up paying. Director refused to put in writing that they will honor the overpay in credits. Said it would make him look "disingenuous". That he has to honor the credits or it would be Medicaid fraud. It was taking too much of a toll on my mental health to have this battle as my attorney's quit responding…
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Emotional aggression
My husband 81yo has it been formally diagnosed with dementia, although the kids and I suspect it. He forgets things from a discussion 10 minutes ago. He was an engineer and very smart - now it's me telling him how to do things correctly. He'll get upset that I'm telling him the practical way, so I've begun to just let him…
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New diagnosis
My 69 yo husband just diagnosed with MCI and MRI showed brain atrophy in areas of brain associated with Alzheimer’s. He still functions independently, but memory issues are increasing, and some difficulty with speech, spatial skills, and word finding. Next appt (for neurology and more memory tests is 3 months away. My Qs…
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How to handle wanting to drive
Hi All, My DH, who definitely should not be driving, talks about driving EVERY DAY. His car has a dead battery, and he has been told by his doctors that he should not drive, but he brings it up every day. He wants his precious car fixed. He wants to drive. He has driven 3 times in the past year, and the last time he swore…
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Hubby in MC taking him to doctor first time out
hubby has been in memory care 7 months. The facility said they would take him to doctors appointment with aide and I’d meet them there. Now I find out they cannot do it so I’ll be taking him. It’s his first time out in 7 months. Trying to think what I can give him for the ride in car to distract him. The ride is about a…
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Suggestions for Sundowning and Agitation? Medications?
I am getting stressed out! DH has been Sun-downing for the past several months to the point where he gets into everything, gets agitated, will not sit down and when it comes to bed time he becomes angry. He had a brother, now passed away, who had this issue but his wife did not remember what medications the doctor put him…
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New Symptoms
Hi, my LO, 88, diagnosed Alzheimer’s 2024 but symptoms at least 2 years earlier. This is were we are now. Doesn’t drive, can’t cook, can’t remember his pin # for credit cards. Can’t pay bills or do meds. Latest hearing voices sing Happy Birthday at 1 AM and going outside to look for them. Hand tremors and absolutely no…
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Kisunla infusions
Recently diagnosed (after +18 month of waiting on testing and follow up Neuro appointments) and referred for Kisunla infusions. Dr deemed him with mild cognitive impairment but I see moving to moderate impairment based on testing last done 6 months ago. I am concerned as everything I read states Kisunla is for MILD…
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I haven't been able to post as much lately...
I've been reading the posts but haven't been able to post as much lately. As many of you know, I was diagnosed with cancer in Dec 2023 and had to place my DH in memory care so I could get treatment. I had chemo and major surgery in 2024. My DH passed in August 2024 from Alzheimer's-Posterior Cortical Atrophy. In December…
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Scam???
I had a person from ALZ. Connect messaged me. Tell me your thoughts on her message. I looked up her profile and she just joined on the same day I got the message. I want to think that the message is legitimate but just have a gut feeling that it isn’t. If it is legitimate please accept my apologies. We are all vulnerable…
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The Behavior is so Unpredictable
My DW just woke up from an afternoon nap. She accuses me of cutting her hair and stuffing ii onto her mouth. She also caustically accuses me of cutting her gums and teeth. Of course I deny it. Then she screams she hates me and wants me gone! Well I have somehow remained calm. I understand it is the disease. Now she will…
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lions mane with gingo biloba
supposed to improve concentration. has anyone tried it.
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Mother dissatisfied with live-in caregiver
My mom is fortunate enough to have a live-in caregiver, this is her second. (the first was for three weeks, didn't have a car, and was temporary until the caregiver with the car was available). The first person she had a really tough time with, and my mom got really mean and nasty to this person, they would get in shouting…
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More clothing struggles
I had mentioned earlier my mom doesn't wear any new clothes, bought since ALZ diagnosis 3 years ago. She constantly asks for new clothes, I take her shopping, she tries and chooses, we buy, she never wears. This group mentioned buying same/similar and also taking online bought clothes with us for her to try in dressing…
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Disposable toilet mats
I’m a newbie compared to most here, but I wish I found these much sooner. Cleaning the bathroom tile multiple times a day was exhausting in addition to all the other “jobs”
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Mom lives across the country & has early stage of dementia
Mother lives across the country and insist she is taking her medications regularly, but her BP says something different. She tells her doctor that she is taking her meds and feels that the doctor is calling her a liar. I know she is not taking them regularly and she meets the criteria of loss memory for the early stage.…
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Awakes during the night to urinate
I care for my 94 year old mother who lives with me. She is in moderate stage I believe and has days and nights mixed up. She needs assistance with everything but feeding and is in a wheelchair since breaking her hip and having surgery 2 years ago. She urinates a lot at night about every 2 to 3 hours and she calls me to…
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Moving to memory care- how do I tell her?
We have made the decision to move my mom to memory care. We can't decide how to tell her. The facility says to just tell her the day she is going. Her cognition is still ok and she'll see this as us "tricking" her. We are considering having a discussion with her about this but we k ow she'll be resistant.....any advice?
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In memory care and taking hubby out
hubby has been in memory care facility since mid October. He always in confusion. He says where am I. What am I doing here. I want to go home. This is all he talks about. I thought I’d be able to take him home thanksgiving but no way. I’m not sure he will ever be ready to go out. I can’t imagine taking him to a diner.…
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Control of financial power DH has Alz
hello caregivers has anyone had to control/limit their spouses powers, regarding finances, investments in particular? My DH is fine with money at home, and does not go out without me. A problem arises on rare occasions when he considers our investments. We are seeing his neurologist in three days. Do I need to get the Dr…
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CARE AT HOME UNSUSTAINABLE
My DW’s psychiatrist and non-residential memory care activities director have recommended residency, telling me that my caring for her at home is “unsustainable” and that I’m harming myself by trying to be her sole caregiver. What form could/will that “harm” take? What could happen to me? I’m stressed, sure, but feel that…
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lack of empathy with my mother
My mother was diagnosed with Alzheimer's in September 2025. At the moment it is a medium/mild disorder, she still lives alone with my support. She is not able to take her medicine independently, she does not know how to do the shopping, she has difficulty preparing meals. She is not yet a danger to herself even if more and…
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Early On Set Alzheimer's Diagnosis
My daughter, age 50, has been diagnosed with early on set alzheimer’s. It took us forever to find some place that would help us. She was diagnosed about 2 years ago. We had to go to Mayo Clinic in Rochester to get that! Washington University did not help. None of the doctors we went to in our area helped so much time was…
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Mom is in memory care, she “wants to buy a condo”
I just had to put my mom in memory care in March. Prior to that, she was in the assisted living side of the facility, and I hoped it would meet her needs. She first moved to the facility in November. It’s been a quick progression. Then, and especially now, she wants to buy a new condo. She knew that we had to sell the old…
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Night time sickness
My mom every night wants to call the ambulance because she feels nauseous and shaking. She has sundowners and gets fidgety and can't sleep. She also has congestive heart failure and her blood pressure gets really low. Not sure what to give her to help her relax and sleep. Doctor not much help, wants her to take Xanax.…
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Rational father trying to relate to emotional mother in stage 5/6
Hello. We moved my mother into memory care a couple weeks ago and she is slowly starting to adjust except when my father visits. My father is, by nature, very logical and rational. My mother is, by nature, very emotional with a tendency to complain/argue with my father (it's been that way for decades). When visiting, my…
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Accountant or bookkeeper recommendations
Hi there, Anyone know a good accountant or bookkeeper that understands trusts and Medicaid? I'm the POA for my mom, who has Alz. As part of an awful experience called Medicaid planning, a lawyer is recommending my mom put some assets into a living trust; plus open a Qualified Income Trust; plus open a Medicaid Compliant…
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Looking for activities for my dad who has advanced dimension
Hi- My dad’s hobbies before Parkinson’s and procrastinating, dementia, or photography, reading, classical music., and the TV show Doc Martin At this point, Doc Martin is too confusing for him and doesn’t want to watch it. I was able to find some simple books for dementia patients which he seems to enjoy. But perhaps for an…
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Both FTD and AD
Last August my DW was diagnosed with both FTD and AD. In the last few weeks she has repeatedly identified me as her dead father and is very comfortable with it but very upset as to where her husband has gone…usually says he is off with his buddy who she does not know the name of. Yesterday she was doing a wash of clothes…