-
Has anyone done self-pay for Kisunla?
Hello, we just prepaid for the first 4 treatments of Kisunla because it was denied by insurance bc my DH is "too young" (less than 60 years old). We were told it would be about $30K a year, but the estimate we got from the provider was $30K for the first 4 treatments. Anyway, has anyone else decided to self-pay and what…
-
Parent with middle stage vascular dementia hiding things and paranoid
Hello My parent 87 y.o lives in an ALF. She hides and loses items in her room and believes people are stealing, stuff like her underwear and PJs. should I take some of her clothes out of the closet so she can find stuff easier? Also she starts calling me at 1 am even while taking trazadone 100 mg. Sometimes she is…
-
Plan B
I thought I had more time. I prayed I had more time.😢 I have advocated for mom to get a name for what caused her dementia. Her neurologist believes hers is multi-focal, meaning hers have many causes, vascular being one. The PA asked mom last month if she wanted to be tested specifically for Alzheimers. To which she said,…
-
Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
-
Alzeimers and blindness
Hi. I am new to this community. My mom has the disease but to complicated it she has about10% vision and is obsessed with going to the bathroom. She is also very restless and doesn't sleep some nights. This makes caregiving difficult because she wants to use the bathroom every 5 minutes even though nothing happens at…
-
Care from out of state
Hello. I am in Atlanta and my parents are in Cincinnati. My mother has Alzheimer's and my father is her primary caregiver. I am feeling more and more that my dad needs more help than he is asking for and maybe even a respite care partner to come to the house for my mom so he can have a break. My godmother currently comes…
-
Vascular dementia medication
Hi, Please share any medication that you have found that helps with vascular dementia. My mom is on Donezapil but she is have negative side effects. Thanks so much!
-
memory care visits are very difficult
My 89-year-old mom was moved to memory care about 3 weeks ago after a stay in a geriatric-psych ward for medical stabilization. We cared for her for the last 5 years with more round-the-clock care over the last year due to behaviors that made her unsafe. She was very unhappy with her situation then, didn’t really enjoy…
-
Lucid and logical
My DH had two falls two days apart at his MC, where he has lived for about five weeks or so. The second fall, yesterday, occasioned a trip to the ER. Other than a knot on his head and some bruises and scrapes, he was allowed to go back to MC. Today when I visited him, he was more lucid than he'd been since he went in there…
-
CA-Sacramento/Amador County Hospice
hi, Does anyone know of a Hospice company that will permit the person to stay on their medication for dementia? Thanks
-
Spousal Imposter
Posting for my elderly stepfather but does anyone know how to best manage a DW with who does not recognize her husband or her home every single night? She is fine during the day but around 7:00 gets incredibly mean, accusatory, and fearful?
-
Need tips to help mom taking medicine
Hello, my mom, who has alzheimer needs to take medicine daily. She is good with most medicine except the calcium supplements. She couldn't swallow it. I crushed the pill and mixed with food. She spilled it out, thinking they are rocks. I don't want she to feel someone put rocks in her meal since she has been lately…
-
Magnesium Citrate
DH has always been rather constipated, I've been giving him a small dose of MiraLax daily and prune juice for months with fairly good success. ….but now he hasnt had a movement in 10 days. He doesn't eat muh anyway, but he does eat, I know something is there! The hospice nurse said to give him a bottle of magnesium…
-
Losing me!
We do so much, give so much, care so much and as a result we lose who we are, who we were! Please I miss me! I miss my belly laughs, I miss my glass full, I miss my friends, family, life, laughter, that joy of each day! How do we reclaim the “me”? I won’t give up on DH nor will I give up on me, but how do I reclaim that…
-
VA social worker
I called the veteran's affair clinic because they now offer a 'coordinated' team approach to treating vets with cognitive problems. I received a call back from a VA social worker,but couldn't take it because HWD was hovering and I wouldn't have been able to talk. I was wondering if anyone else has had experience with them…
-
Do toddler door knob covers work?
Do toddler door knob covers work or will my DW figure it out? How does a LO respond to seeing them? I don't need another battle. I'm sure it depends on the individual and what stage they are in. I'm just curious because I need something.
-
Recommendations on companion services
My mom has PCA, a form of Alzheimer's. She is only 59 but we have already seen a severe cognitive decline and she is unable to live on her own. She is in assisted living right now. They do offer activities throughout the day, but usually the ones in the afternoon are either too difficult for my mom to participate in or she…
-
Incessant calling
Hello all, this is a minor issue in the grand scheme of things but the past 6 months have been hellish getting my dad first to stop driving and then moving him to assisted living (with a memory care option for the future.) He has only been there 2 weeks and seems to like it. It is a relief to have him safe- I worried…
-
Transistioning to Memory Care/Assisted Living
Hello - my mom was diagnosed with vascular dementia/alzheimer's last spring - but she had been having memory issues for a couple years now. We finally got my dad on board with moving them into an assisted living center in December of last year - he was older and falling quite a bit himself and we felt he needed more care…
-
Totally frustrated
I am at the point I hate to see the evening arrive. My DW every evening here lately it's like a switch has been flipped and I become her father and her husband has left. I tried playing the role as her father to assure her she is safe, but she gets very angry as to why her husband has left for the night and nothing I can…
-
Mom with Parkinson’s dementia LTC guilt
Hello. This is my first time posting. My Mom is in LTC. She’s been there 6 months after a fall. She guilts me and wants me to let her go home. She cried today because she doesn’t think she belongs there. Her bf is wanting her to go back home too, though he complained when she lived in the home about how difficult it was.…
-
New territory with vascular dementia
Hello! My mom just turned 96. As both my husband and I work full time (and all my siblings are out of the area), we helped mom sell her house two years ago to move to a brand new assisted living community in the same town, 8 minutes from our house. She had cognitive impairment, was forgetting her meds, not paying bills,…
-
To those with LO in memory care
My wife has been in memory care for about 9 months. She had a stroke 10 months ago. Our marriage has not been close for a long time, but she doesn't remember what our problems were. I would like to know how others are dealing with their spouses being in memory care. I feel kind of trapped. I can never go back and don't…
-
Clear cup vs opaque cup for drinking
It depends on the PWD but I read of two conflicting views online: PWD forgets there's something to drink in an opaque mug, so putting it into a clear cup makes PWD realize there's something to drink. Otherwise, PWD just forgets or just stares at it. Clear cups may "disappear" or is hard to see for PWD, as do clear contents…
-
Fear and refusal of standing/transfers?
Prefacing with my mom seems to be in the later stages. She recently does not want to get up or stand up. In the morning, she will not want to sit up in bed. Once we get her in a sitting position, she is refusing to stand up. She would rather just sit there. When we get her up with a gait belt, she gets very angry and…
-
Struggling to make this all work
My dad died in October and that seemed to just pressure cook the dementia into mom....She makes little to no sense when she talks, is aggressive towards my grandkids, tells me and everyone who will listen she hates my m-i-l, who also lives with us, but they chit chat all day, is snarky to my husband, refuses to pick up…
-
Giving up outside appointments
How long has anyone been able to keep up routine dental care for your PWD? I have actually been taking my mom for cleanings every 3 months, on the advice of the dentist since she doesn't do a good job with brushing. Staff at her MC are supposed to assist her, but I think it happens in a hit or miss fashion depending on…
-
Life Insurance
Unfortunately I had to cancel an expense policy when my husband lost his job. At that time I didn't know he would be diagnosed with ALZ. Now I'm having trouble just getting a basic policy for him. Can anyone offer some help? He's 65. Thanks, CM
-
Trouble writing
Hi there...my husband has Alzheimer's at age 64. I can barely sign his name anymore and can write numbers. What do you all recommend I do? Do I need a power of attorney to complete this task for him now? I appreciate anyone with some knowledge on this subject. CM
-
New challenge
My dad just recently started saying that there are men in his house. He tells us where they are standing, but doesn't say he knows who they are. So far they have been in the bathroom and living room. Has anyone else experienced this with their love one?