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I'm clueless, get frustrated, worried and and and and....
Hi, this is the first time I've come here. I'm looking for some tactics to deal with a few situations. My wife of 31 years has been diagnosed with early onset Alz. She's 69, I'm 62. Aside from the sadness of accepting the life I thought we'd have when I retire in a few years, I'm struggling with some specific issues she…
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Feeling like I'm a target
My brother is home most of the day when he is on days off, I come home from work and my hubby (has mixed dementia with Alzheimer's) and the minute I come thru the door my hubby instantly is talking to me with major disrespect and Moves his upper body back and forth at me. My brother said my hubby doesn't do this all day…
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Lack of energy
My wife is 83 with Alzheimer's and recently she has no energy at all and wants to sleep all the time. Is there something I can do. Joe
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New to the community
I'm looking for support as my husband was just diagnosed with PCA it's early yet but we knew it was coming but I've never had experience with this type of situation so any advice will be greatly appreciated and anyone who is local to me is more then welcome to reach out to me if you need a friend in the community that you…
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Plan to Improve Care for Dementia Patients in Hospitals
Michael Ellenbogen, who is a strong advocate for people with dementia and who has dementia himself, has worked with dementia experts to develop a plan to improve the care of dementia patients in hospitals. You can read more about it in the following link.…
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Notary for Power of Attorney in Pennsylvania - Questions
Loved one has dementia. Some days are more lucid than others. They need someone to handle their affairs though. Loved one has not paid property taxes or filed tax returns in a couple of years. We just paid their property tax for them (5K) although they have the assets to do this themself. The social worker at the memory…
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Bed ridden, never happy, VD
New here. My mother has VD. Broke her femur in May, nursing home in June. She is in physical therapy but doesn't remember her sessions. It's like starting over every day. My visits are filled with her tears, wanting to die, etc. I have stopped going every other day because she doesn't know/remember if I was there. Wearing…
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so how long does it take to get into care!!!
Seems to be extremely difficult to get treatment for my ALZ. Have contacted 4 treatment centers and had medical records and referals submitted as well. The first one simply said it can take some time to get in. ?? they have no idea even?? hmmmm. The second one said I could get an initial appointment next April, as in 2027!…
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mother, 86 years with dementia
My mother is now blaming my daughter for missing items in her home, trouble she is having with her computer and constantly threatening punishment if these issues are not resolved. She gets very agitated and cannot process. She lives alone in the midwest and her family is on the east coast. I am trying to figure out how to…
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Help
I need some advice regarding my parents and how I can best support them. My mom has Alzheimer’s, and as a result, my dad has had to pick up much of the slack around the house. He is 92 and I can see that he is wearing out. I have offered to help as much as I can by grocery shopping, preparing meals, running errands, and…
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Memory Care Challenges
Hi Everyone, My DM has been in MC for about five months after her AL said they couldn't manage her eloping and sundowning episodes any longer. Overall, the MC facility is nice, most of the staff really love my DM so I'd say it is a 6-7 on a scale of 10. The usual issues with lots of turnover which is frustrating. My mom…
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not sure of next step
wife was diagnosed with frontal lobe 2.5 years ago. thought i could handle this myself today she said I wish *** this is the breaking point for me. absolutely overwhelmed where do i go?
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Dad concerning behavior
my dad has Alzheimer’s and vd. He is currently living with me for the past two months. He is not happy about it and frequently upset that he feels he should be able to live in his own home. Last week we spent time in a rental cottage boating swimming with my children and grandchildren. I believe that that he had a great…
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Science Friday: What can moments of lucidity teach us about Alzheimer’s?
I found this to be an interesting interview. No solutions presented, but presents what is being researched. Podcast description: Watching a loved one with Alzheimer’s or dementia slowly lose their cognitive abilities can be heartbreaking. While the person you once knew seems to be slipping away, sometimes people with…
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Changing role as spouse with husband in full-time care
I am wrestling with how to be a spouse when my husband is in full-time care. He still recognizes me, though I know that one day he won't. I feel like I am in an odd space between married and widowed. After caring for him 24/7, I have time now for exercise class, impromptu dinner with friends, shopping without rushing, and…
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later stages and dental treatment
DW is stage 6. Her last routine visit to our dentist was in February. She could not comply with basic instructions and we were unable to get her teeth cleaned. Fortunately her check up prior to that was successful and no issues were identified. Yesterday while eating, a crown fell off one of her molars. I saved the crown…
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New to This...
I am new to caring for someone with Alzheimers. My dad was recently diagnosed and he is only 63. In April, his job required him to complete a "fitness for duty" exam by their occ. health doctor. Needless to say, he is no longer working. He drives very little, just around town to the same places he has been visiting for…
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Would love to hear tips/tricks from people caring for parent with Mild Alzheimers that also drinks
Dad was recently diagnosed with Alzheimers, its in the beginning stages. He's recently had his driving privileges revoked based on diagnosis by his doctor reporting. He is also an almost daily drinker, Id say 4x per week. His drinking, even when he only has one or two cocktails makes his symptoms so much worse eg: unsteady…
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Will not take a shower, bath is not available
My DW will not take a shower. Any thought on how to get to shower?
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Cannabis and Senior Living Facilities
Hi, I care for my 77 year old mom that has Alzheimers. She is in the early stages and still lives alone at home with help from me for errands, bill paying, groceries etc. It is progressing and we have started looking at senior living with all stages of care as she would like to start out independent with help from me at…
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Assisted Living Paperwork Q’s
Present address vs permanent - does it matter? My Mom has been at our home since February. We have never updated her address for anything. I vaguely recall a discussion about Social Security designated payee. Is it necessary to have one? Why or why not? I would like to receive all statements and bills at my address. Her…
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Partner not handling my deterioration well
I'm in Early Stage Alzheimer's and receiving Leqembi infusions. My friends say I don't exhibit much in the way of symptoms. My partner is not one to discuss the situation other than for passing on medical information and does not discuss feelings. He notices every slip and gets angry when I forget, make a mistake, get…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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So much guilt.
My mother passed away on June 15 20216. I would go see my mom every day. I would take her out of memory care and into the assisted living side. We would have dinner in the restaurant there or go play bingo or go to the movie theatre. It was really hard to keep that up but I did it. She started to not want to go out and…
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Saturday was a “normal” day so to speak
I don’t know what caused it but my DH seemed to be his old self. He spoke to me all day, without making accusations or getting angry. We carried on conversations as if nothing was wrong. It was a very rainy day here with tornado and severe thunderstorm warnings. I decided to make zucchini nut bread. DH came into the…
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Key loss "Frustangry"
Dad once again lost his lanyard with his attached key. I received a call from his caregiver's agency that he was overly agitated and both angry and frustrated. They recommended that I get out to him asap. I called him to get some more info or hopes of bringing him down a couple of notches. I spoke to his Friday caregiver…
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Me blowing up
The issue I'm having is the anger toward my wife. She has early to early mid Frontal Temporal Dementia. She can still stay and do most daily things by herself, including meals, meds, toilet, etc, therefore I am in and out of the house most of the day. Problem is that she will ask me a question on how to do something,…
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Just a vent….
You might remember I broke my foot in June and was in a non weight bearing cast for almost 8 weeks. This morning I had an early followup orthopedic visit with X-rays. My alarm was set to go off @ 6:30. In a panic I awoke @ 8:15, couldn’t find my phone and had clearly missed my appointment. DH had my phone and said “it was…
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The struggles when living in a very rural location - have you been there?
Just a little backstory to start…..My 70 yo DH was formally diagnosed with ALZ about a yr ago. His dr doesn’t think identifying stage is all that important. But in looking at the dbat, I would say he most definitely falls into stage 4 with a couple of things in stage 5. He probably can’t tell me the day of the week but…
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Disability denial - finding legal support
Hello, I am age 64, diagnosed with early onset Alzheimers. I did go on regular Social Security recently. We were encouraged to apply for the SSDI - as I am no longer able to work in my field - and also am declining in my ability to remember complex details and instructions. SSDI denied the claim, which we want to appeal -…