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Small Study at Cornell University
Hey Guys, if you are in the New York area there is a free new small study of 20 patients with early Alzheimer’s disease symptoms utilizing a monoclonal antibody that blocks ccr5 receptors called Leronlimab that theoretically decreases inflammation in the brain. This study will measure neuro inflammation pre and post…
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Game playing
My DH, who is in stage 4-5 likes to play Rummicube and we play weekly with some others. He is surprisingly quite good and wins about 50% of the time. Lately he can’t remember the rules of the game and it is giving my an anxiety attack, trying to convince him to follow the rules. Our fellow players are very patient and…
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New to the group
Hey There My spouse has mild late onset AD and polyneropathy. We're in what I call the Dr Jekyll and MS Hyde stage. She can shower when I get her too, go to the bathroom though I question the paperwork, and she can walk within the house. I do all the finance and meals. I started having some folks come over to help…
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What to do when father is ok, but mom has ALZ?
I’ve posted several times and am incredibly grateful for the responses. When I reach out for advice on my mother often times the replies are from people who have a single parent they are caring for with ALZ. Much of my struggle has to do with having a father who has no memory issue at 86, and a mother with mid-stage ALZ at…
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Impact of a transition between Memory Care locations
This is a follow-up to a previous post I made regarding us reconsidering MC. The reality is that we can't provide what my mother needs from home but I still have concerns regarding where she's placed. I noted in my previous post I was concerned about her being sad. I've come to terms with the fact that she will be homesick…
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How to help with guilt
My husband has had slight (?) dementia for the past few years with a bit of difficulty walking, always shuffled, and balance issues. He is also an alcoholic. He has fallen 4 times in less than 2 years and could not get up each time. He fell 2 months ago which caused him to have a minor heart attack. He was hospitalized and…
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Choosing In Home Care
I am needing someone to come to our home just a few hours (3-4) a week to start with to be a companion to my husband. Maybe take him to hit golf balls or get a cup of coffee. Or just visit at home. I want to make the days more interesting for him and I need some time to regroup. There are hundreds of agencies and other…
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Alzheimer's & Dementia Research Made Accessible - For ALL
AAIC For All: July 16, 2026Registration is still open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top AD experts about the latest research/news. There are two key sessions: AAIC 2026 Highlights A Lived Experience…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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Closer to the End: Firmly in Stage 7
It is sobering to come to the certain conclusion that my dear wife is in Stage 7 of vascular dementia. The Cavalry never showed up, but I do have Hospice here regularly to check on her progression, offer medications and supplies, and provide practical planning. Hospice admission – whether at home or in a facility – has…
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Just sharing: "Took my mom on her last overnight trip"
This is just for sharing and it will be therapeutic for me to share: My mom has been asking that I take her back to visit in the town she lived in for 60 years before moving near me. I finally did, booked 2 nights, took a 4-hour car ride, to visit her other granddaughter and great grandkids and a couple of her friends. My…
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Grieving her while she's still here
My mother's dementia journey has been a gradual but steady decline for the past six years, but in the past month she had a marked decline that took me by surprise. I had her treated for UTI but it seems that the cognitive loss is unrelated. She still knows who is who and can dress herself and make some decisions but is…
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Father Angry & Unhappy in SNF
My father(86 yo), who from what I’ve read has recently entered Stage 6, he has been in a SNF since April. Until recently he has been fairly happy there and hasn’t complained much. I’m not sure most days he really understands where he is, often times he calls it his apartment or thinks he is at work. Other than the dementia…
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Friend recently diagnosed - I'm seeking tips for interacting
Friend has consistent memory lapses. They often can't remember what day of the week it is. I meet them at the gym on Tuesdays and Thursdays. I send them a reminder text the night before and send one again the next morning about 45 minutes before we meet. They are unable to operate the locker combination at the gym without…
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Sudden Aggression
I knew this day was probably coming. Let me preface this rant by explaining that my "support" consists of my sister who lives with both me and the pwd. We have never gotten along (probably never will) and she is on mood altering medication. My other sister, out of state, who has more problems then you can shake a stick at…
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Tips for Caring From a Distance
I live in Oklahoma and my mother and stepdad live in Maryland. My stepdad is currently in a memory care facility with advanced Alzheimer's. My mother has a severe physical disability and has also recently been diagnosed with early stages of Alzheimer's. My sister and her husband moved into my mother's home to care for her,…
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Recently diagnosed
I wanted to introduce myself and get involved. I am recently diagnosed with "mild cognitive decline" related to Alzheimers. I am a recently retired pastor and have cared for many Alzheimer patients and their family so I know what is ahead of me. I have a million questions and don't know where to begin. Thank you.
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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
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LO urinating in other areas of house
I am asking for help on how to deal with my LO who is urinating on counter on bathroom,laundry room,garbage cans in kitchen, etc. LO has PCA and dementia. I have a red toilet seat,light above toilet pad around bottom of toilet. LO also has Anognosia. It is getting to where my whole house has a urine smell no matter how…
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Another question about progression
My DH's agitation and aggressive type behavior seemed to have subsided a lot. He actually got in the shower willing the other day and did not fight it. He has been much more agreeable. He has been on Serequel since December so I can't say it is the medication. The neurologist mentioned that when the behaviors stop that can…
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questioning my experience with DH
MY DH has recently been diagnosed with MCI and testing shows due to alzheimers. Our very good and supportive friends don't see symptoms i see causing me to question what i am seeing.
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Early onset Alzheimer's
This diagnosis is so difficult. How do you go on from this? And how do you do it alone? My heart goes out to anyone with this disease. I knew it from many years ago that there was a problem, But doctors always told me, it's just stress, Take this, you'll feel better. So many doctors, so many years later. I am so happy that…
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Would you share your experiences…?
If your LO is in this stage or you’ve passed it, please share your experiences, struggles, how things have progressed and tips! I’m especially interested in hearing how long your LO has been in this phase and what happened next for you. MY DH is stage 6 ALZ. Totally dependent but feeds and toilets himself. No incontenence.…
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Where do you live
I love this site. Great people suffering alongside with me giving the best experiences and helpful information. I would love to hear where all of you live. My DW and I live in Northern California.
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Another wedding anniversary "celebrated"
Last weekend was our 34th anniversary. I celebrated it by feeding my husband pureed food for lunch, and then attending my sister-in-law's surprise 50th birthday party. No one knew it was my anniversary. DH continues on in the very, very last stage of dementia at his nursing home. He may be at this point for years to come,…
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Hi! I'm new here... I'm a granddaughter taking care of a grandfather with LBD
Hi. I'm new here. I'm a granddaughter caring for a grandfather with lewy body dementia. I talked to a lady at AA WNY chapter and she suggested I try some support groups. A little back story about my journey so far... My grandfather is 94 and over the last 2 years has started having symptoms of LBD. He accuses almost…
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Daily changes
My LO is very hateful towards me. I can't seem to do anything right to please him. However, when other people come around, he is very charming and kind and some people can't tell there's anything wrong. I feel like I live on adrenaline because I feel like I walk on eggshells. I am getting VISITING ANGELS to come for eight…
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Mom troublemaking at AL
I have a Care Plan Meeting coming up next week, and I want to be prepared to respond to some of the issues the staff has reported to me regarding my mom… Just in the past week alone, she has "caused a scene" (Director of Wellness's words) regarding her bedtime medication — it was late getting to her and she walked down to…
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Confused and scared!
I was diagnosed with Dementia 2024. So much has happened since then. I don't know how to manage all this. My hubby and I are in our 60s it's hard on both of us in so many ways. Just would like to find others going thru all this. Thank you
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Just need to talk to my friends (219)
Summer is here, I guess. Heat index today was 100+ and will be again tomorrow, then a little cooler. Carl, does the smoke alarm come with the battery or can you buy the battery separately to put in another one? There was a warning yesterday on tv to not put lithium batteries in the trash. Someone did and it started a fire…