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I am very sick with covid DW also infected. Help with ER visit
my DW has rapid Demetia, she is in late stage. Which is challenging enough, trying desperately to get some respite relief which I have been granted 12 hours a mont( which are now cancelled due to the Fact, we both now have Covid… DW doesn’t have the severity of symptoms as I do. I am trying to get to the hospital ASAP for…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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Total incontinence would be a blessing
DH still uses the toilet, usually with my guidance but occasionally he will try to do it on his own when I’m not watching. I have caught him going in places he shouldn’t, including a wicker trash can (wicker doesn’t hold liquid) and the corner of the bedroom. He will pull it out and start peeing even while walking to the…
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I just miss my mom
I am going to be 36 tomorrow, and my mom has been in memory care for about 6 days. I am a little devastated because I miss her. It is also devastating because she didn't sleep at all the first 4 or 5 days in memory care and when I went to visit her she looked HORRIBLE. Her face looked drastically different and it looked…
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diagnosis meaning?
My husband was diagnosed with Mild Cognitive Impairment secondary to Early Onset Alzheimers. I am unsure if that means he has Early Onset Alzheimer's and if I should apply for SSDI under the Compassionate Allowance, or if he is Mild Cognitive Impaired.
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Caregiver of DW 24/7 for almost 2 years w
The most amazing perfect woman has Severe Rapid Dementia, diagnosed officially September 2024. When we bot( refuted early from our careers, we owned businesses together, so being together has been wonderful… well, until truly these last 6-8 months. I stepped down for. My latest BUSIENSS as CEO, June of 2023. After noticing…
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new
Hi, I thought I sent a message but I don't know how to see it. After I post this will I be able to easily see the responses? My sister was diagnosed with Alzheimer's/Dementia last June after a PET scan. We finally have the follow-up appointment with her doctor Nov 7th. How does the doctor determine what stage/level my…
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Disposable Underwear who are NOT incontinent but leave 'skid marks'
Have any of you found a disposable pull-up underwear for a females (dementia elders) who are NOT incontinent but who leave 'fecal skid marks' due to memory decline? This female elder doesn't remember if she wiped or not. She also doesn't see well nor has the dexterity to remove all debris. Incontinence pullups are slightly…
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Any experience with Rexulti?
DH has been getting more delusional and agitated. Doc suggested a switch from olanzapine to rexulti. Wondered if there is any experience with rexulti out there. I know every PWD is different but would still like to hear about experiences with this med. Also what dose at what time of day? Doc suggested a cutback reducing…
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hello
hello
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Early Onset AZ Newbie
I’m new to this community. I am (51F) taking care of my dear husband (56M) who was diagnosed at the beginning of January of this year with mid-stage early onset Alzheimer’s dementia. There were signs starting about 3 years ago that I just didn’t associate with dementia, and I (mentally) kick myself for not realizing…
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When does PWD stop voting?
I have seen previous discussions of spouses assisting in varying capacities (sometimes total, wink wink) with early/mail-in voting process. In my state it clearly says POA is not permitted to vote for someone else and I respect that. I have a gentle conversation with DW and she can answer yes/no questions like do you want…
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Day care for Alzheimer’s mom
I live in Corona Ca, I take care of my mom in stage 5/6 Alzheimer’s. I’m trying to find a place to take my mom for the day to socialize and do fun activities but I haven’t found anything in the internet. Maybe someone knows a place? Thank you
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New person, first post - Trying to be the rock
To say I'm frustrated would be an understatement - my dad was finally diagnosed with dementia/alzheimers along with anxiety, depression, and OCD/fixation. We could sort of see signs of something not being quite right with him a year or so ago and I had to push my mom to get testing done. The first specialist they were…
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My DW not eating
My DW had a fall in the summer, with nothing but a small bruise. Then a kidney stone 2 months ago, resolved. Then, 2 weeks ago, she fell at home. 2 fractures in her pelvis (no surgery), Brain bleed with no lasting effects, large bruise in her abdomen. Admitted to ICU in a LOT of pain. She is now in a wonderful rehab and…
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Humor from my PWD
Me: are you sleeping? Her (with eyes closed) yes I am. Me: and talking too! Her: (eyes still closed) I’m talking and sleeping. I have many talents.
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Psych Hospitals, Confidentiality, and Need for Legal Guardianship?
Writing this in part to help others prepare and understand the situations you can end up in due to lack of preparation. Also, to ask for advice. My parent was admitted to a (very well known) psych hosp. They were transferred from another area hospital. I have been their sole caretaker for the last eight months. I took my…
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Exhausted and Frustrated
Hello!! I am new to the site. My mom and sister are caring for my dad with dementia-I live in another state. My dad often “loses” my mom during the day and gets very upset and my mom and sister spend countless hours trying to console him and help him “find” her. It is exhausting and increasing in frequency. He also has to…
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Fair Hearing
Hello everybody! I have a fair hearing coming up on November 7th for myself to be enrolled in the CDPAP program, and I am quite anxious about it. I applied for the CDPAP program last year as I can't work due to being a full time care giver for my mother, and while the state declared that we were eligible for it, my…
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I Need HELP!
Hello, I am new here and living with and caring for my almost 82 yo mother with Alzheimer’s /Dementia. For the last month/weeks (this week especially) has been increasingly agitated, angry, verbally abusive, wondering off and PHYSICALLY aggressive. I spoke with her doctor who suggested a UTI and started her on antibiotics…
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Today's question
I have not been to see my mom in about ten days, due to my husband being quite ill in the hospital ... and work, and child care ... finally made it over to see her today. She smiled sweetly and asked me, "where is your mother?" I have to admit, I was stumped for a minute. She repeated the question. I touched her hand and…
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Hospice to Stage 8 in 35 Days
I'm heartbroken at the loss of my LO. He took his last breath at 5.15 am today while I held him in my arms. I am thankful I was able to keep my promise to keep him home until the end. It was gut wrenching to watch the life leave him. I guess we all know the day will come to let them go but I thought we would have more…
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New here
Thought I would introduce myself to the community and glad I found it. DW was diagnosed recently with AD after a lengthy and somewhat frustrating medical journey. She’s 55 and pretty far along as far as the scales go-in the 6’s. Anyone have any insight into the awareness of the disease. She seems pretty aware of what’s…
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What is the best incontinence brief for men?
I know this has been asked before, but we are just now dealing with urinary incontinence with my DH. He is in memory care, but the product they use is chafing the inside of his thighs, not to mention that it also doesn't work very well. I would prefer to provide him with something comfortable and effective. Thank you all…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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Attempted suicide and does not remember
She attempted suicide this morning with a knife , struggling with staff, they sent her off to a mental hospital and now she does not remember … Anybody experienced that ? Wondering if Alzheimer alone is causing this or another form of dementia or mental illness
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Memory Care - Last Option
My 89 year old mother absolutely refuses to accept anything is wrong with her. I live on the West Coast she lives on the East Coast. I have spent the last 4 months taking care of her. Her doctor agrees she can no longer be left alone without some outside support. She refused a home health aid or live in because she says…
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Help
Maybe I'm a failure at this. I know I shouldn't argue, and I try hard not to, but what do you do when your DH gets so angry at things? (Not physically ever at all, but starts swearing and telling him I am never on his side or never agree, etc). I am on edge every minute. I'm really trying - I even got a prescription for…
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Genetic tests showed that certain patients were predisposed to brain injuries if they took Leqembi
NYT: What Drugmakers Did Not Tell Volunteers in Alzheimer’s Trials Gift link. https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?unlocked_article_code=1.UU4.KqG8.FPSRwXrExKTl&smid=url-share
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I have a legal question about POAs
My brother has (finally) signed POAs. He assigned his stepdaughter as his primary. He once told me that I'm mentioned as a successor agent, but I'm not sure whether I'm second or third. Anyway, his stepdaughter just gave birth on Saturday. She said she can't serve in that capacity and has asked if I can do that. I think…