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Sleeping so much
My DH, age 75, is in stage 6 Alzheimer's. He is still physically in pretty good shape, just mentally compromised. In the last month he's been sleeping 18 - 20 hours per day. Is this common? Does this mark a step toward the end of this road? He always says he is tired. He eats well (often only one meal per day because he…
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FRUSTRATED!!
My husband has been approved for the infusion treatments and the center that does them doesn’t take our secondary insurance. Our doctor’s office is trying to find another location but is having difficulty. This stinks. Maybe it’s a sign he shouldn’t have them??
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Betrayed
my lo knew he was having serious cognitive impairment. I knew long before he was willing to admit it and long before his law firm asked him to step down. He was aware enough to prepare legal action including DPOA of his finances. He named friends rather than me. I cannot even describe the nightmare that has ensued. He…
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DW despondent and feels useless
DW used to be a college professor. She still thinks or hopes that faculty or students will come to the house (or, well, she's now in MC) for her advice and guidance. The fact that they don't (she's been retired for 13 years) makes her feel useless and despondent. She sometimes talks about death and doesn't see the point of…
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Im new here but need to vent.
My mom is in the process of being diagnosed. Her doctor told her it sounded like Alzheimer’s not just normal aging. I finally convinced her to go to her primary care doctor about 3 years ago but she refused to go to the neurologist. I’m assuming after her liver transplant my step dad who is now deceased had brought her to…
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Idk what I’m looking for
This time last year my 72 year old mom moved into AL. 4 months later we moved her into MC in a closer facility. She was doing ‘ok’ overall. (Not sure stage but she is able to walk, can shower herself with encouragement but lots of resistance, remembers us but with confusion. wears pads). Diagnosed with Alzheimers. she’s…
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Long overdue update
We hit the 3 year mark in MC a couple of months ago. It's been a 15 year trip with dementia so far. I know I posted here before about how I feel so "old" because this is typically a disease that hits older people. Managing end of life decisions and all that planning at 50 makes you feel old. Currently DH is 61, I'm 57. The…
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Long Distance Mom has Dementia, and I am the only Child
Hello, I live a plane flight or 1.5-days driving away from my mom and I am only son. She has dementia and lives alone with her dog and cat. I can see her deterioration and have taken over all of her bills, taxes, online shopping, ordering food deliveries, etc for her. I have three children (teenagers) living with me and…
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Care Home Referral/Search resources
New here, both to this discussion board and to the situation. My father has moderate and rapidly progressing dementia (Alzheimer’s). Previously he was very compliant, but this continuing decline has brought out a strong, stubborn streak in addition to everything else. My siblings and I think it is time for memory care. He…
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My new tattoo
I’ve begun the process of touring memory care facilities and the costs are sometimes just ridiculous. Today I visited a nice place, not grand but nice. The price for a private room in MC was $12,245 with an additional fee of $600 per month for incontinence. So I’ve decided I should tattoo that total on my wrist so I can…
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Loss of spouse/significant other bereavement group
Unfortunately, there was no interest in the group so it no longer exists.
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Long Geri-Psych Stay!
At the end of last month/beginning of this month, I posted that DH had a complete mental breakdown at his rehab center, where he was recovering from a fractured tibia. He was transferred to the local ER. Here's the update: After 2 days in the ER, on April 2, he was transferred to an inpatient Geri Psych facility. He's…
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Reminders that don't remind.
My spouse is at the point where she functions normally for most things: caring for herself and the house, driving, shopping, vising friends, etc. We create a to-do list every day, and although it's right in front of her, she doesn't follow it. She understands its importance, and knows that it's there, but doesn't do any of…
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Updating 602A Report Annually
Here in CA it appears MCFs are required by law to have residents' 602A doctor's report updated annually. Currently, with the addition of Depakote it would appear on paper that DH seems highly functioning and doesn't need memory care. I suppose the only ADLs he can't do is cook meals, drive, and that he requires supervision…
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Short term memory gone now what?
Curious if there is stage where short term memory is just gone? DH has been declining with his short term memory but the past week it’s just not there! The verbal cues aren’t working, or verbal suggestions. Thought I’d have him literally write a list of 3 to-do’s , read it with him, asked what he will do first, got a reply…
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ALZ for 6 yrs, newly diagnosed with Parkinson's. Is it LBD?
My mom has lived with us for 11 yrs, diagnosed with ALZ almost 6 yrs ago. The hand tremors started last summer, pill rolling of the thumbs started last fall. She was diagnosed with Parkinson's yesterday. She was also put on meds a few years ago for incontinence and swallowing issues that we now believe could be early…
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Mom Now Living With Us
Hello all. I am new here and wanted to give some background on our journey so far. I am looking for any guidance or anyone in a similar stage of life to talk to. I really am struggling mentally and emotionally. My mom is 81 with late moderate dementia (Vascular and Alzheimers, defined as stage 6f on the FAST scale.) I also…
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Constant eating
My DH eats constantly. He goes to the refrigerator every 10 minutes. Is there a medication I can ask the doctor about to help with this? He has been on palliative hospice care for about six weeks. Any help would be appreciated.
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Just need to talk to my friends (204)
Time to begin segment 2O4 of our thread. Thought this would be a good time before morning posts. GG, if you stew the prunes, they won't be shriveled. My day was good. I may take Stormy for a ride everyday. the enjoys it so much. I need to get a pair of safety glasses for him. He likes to ride with the window down. This is…
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Dentist recommended all teeth be extracted
According to my mother in laws dentist/oral surgeon, she needs to have all of her remaining teeth extracted due to the extent of decay. This is scheduled to happen in one appointment. I am worried because she does not remember this appointment is approaching, and it will likely seem very scary for her after it has happened…
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17 Months in Care
I'm sure this has been discussed... my wife has been in residential care for over 17 months now. Her main deficit is short term memory loss. Incontinence, doesn't walk. Predominantly in bed except for hospice showers, there is sooo much more to this. She was a registered nurse, bright, still sweet in so many ways. I see…
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I just have got P.O.A for husband - how or if to communicate - any ideas?
My husband is still pretty "with it", spends lots of money at yard sales and has accounts at building supply stores. Yesterday I got POA and feel terrible - he will go ballistic when he finds out and I am looking for the least ballistic way of working with this and wonder if anyone has any ideas? I am going to the bank…
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Weight loss in late stage
My DH is late stage 6/early stage 7 and under hospice care. From the first of March to the first of April he lost 3 lbs. I weighed him yesterday and since the first of April he has lost 6 lbs. He is eating what I give him at meals and I make him a milkshake nearly every day and always give him snacks as well, but is still…
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Sex is not my friend
DH has been quiet about this for several months now. All of the sudden now he wants it again (he also has ED and things were not going well before). He grabbed a beer when we got home from church and then wanted to get all frisky. Unfortunately, I made the remark that he looked like he was more worried about getting a beer…
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Neurologist appointment 5 years in
Hi! Real quick summary and then my questions. My mil has been living with us for about 8 months now. She was diagnosed with FTD, specifically PPA, five years ago. She has not had a neurological appointment in about 2 years and this one was only scheduled at my request as I had very little (as in no prior) involvement in…
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Hospice qualification
Thanks to all of you who responded to my recent request for information about hospice. I took your advice and worked with his doctor, and yesterday he qualified. It isn't about how long he will live, since no one knows that, but about his level of compromise. Even though nothing has happened yet, I feel immensely relieved…
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Learning to live with the sadness
That's what I was thinking about driving home from MC today. DH has been in MC for 15 months and I am still so very lonely at times that I start crying. I thought he was adjusting well after a rough time last summer. The last two times I have visited however he has asked to come home. It broke my heart when he said, " I…
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Navigating Alzheimer’s Risk While Caring for Both Kids & a Parent—How Are You Coping?
Hi everyone, I’m in my 40s, raising kids, and also caring for a parent with Alzheimer’s. My mom has APOE4 x2. Lately, I’ve been thinking a lot about what this means for my own future—both emotionally and proactively. I recently started looking into early detection tests, including: • APOE4 genetic testing • Blood biomarker…
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Cell phone
My DW is 70, diagnosed with Alzheimer’s about 10 months ago, but looking back, it’s been a few years. I think she is stage 3 or 4, but, I don’t know what to do about her cellphone. She has given out too much info to scam callers who have sold it to other scammers. I put her phone on “silence unknown callers” , but she gets…
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Struggling with Refusals for Doctor appointments
DH has become livid and screaming and throwing things when I notify him of another appointment. I have been very conscience of limiting the unnecessary appointments, but this time it is the Neurologist. I am sure it is partially fear, but I do not know how to help him feel like it will be OK and the doctor is there to help…