Welcome to ALZConnected! You are not alone.

I am a 68-year-old husband, and my wife is 69. Last June (2025), she was formally diagnosed with mid-stage (Stage 5) Alzheimer's disease June 25'. I am transitioning her into a specialized memory care facility shortly. When I look at the calendar and look back at how we got here, I realize the painful truth that our…

Seems to be extremely difficult to get treatment for my ALZ. Have contacted 4 treatment centers and had medical records and referals submitted as well. The first one simply said it can take some time to get in. ?? they have no idea even?? hmmmm. The second one said I could get an initial appointment next April, as in 2027!…

Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…

My brother is 25 days post-op from a procedure to remove his prostate, which he had on August 10, 2026. Before the surgery, I spoke with him every day by phone ( we live in diff. States) and noticed his memory slipping for over a year. Since the surgery, those changes have grown more pronounced, including forgetfulness,…

My mom is a hoarder! She lives in a nursing home with a roommate she really likes. It is almost impossible to get anything out of her room. My brother gave her popcorn in a tin for Christmas-she wants to keep the tin, she even saves empty single serve chip bags (no idea what that’s about), she saves all the cups they give…

I know everyone’s journey is different and some of us are at different stages but I read a quote yesterday by Emma Willis when asked how they’re coping. She said caring for someone with dementia is like “ living in a constant state of grief “ That statement is stuck in my head now cause it resonates so profoundly. I know…

My DH has been seen by urologist. He does not have any pain in the hernia but it is large. . The doctor has said that it is not urgent for my DH to have the operation. My husband has stage 3 dementia. He was in agreement that day but has forgotten about the examination and now said he doesn't want the operation. What…

One question I forgot to ask - my sister falls more and seems to lean to the right when she walks. How do we know when she's about ready to stop walking? I called the 24/7 help line and didn't get an answer to that question; I just got some tips on what questions to ask of facilities we are considering.

My DH seems to do well until about 3 p.m. or so when he gets very depressed and confused. Sometimes he gets restless but it is the depression that worries me the most. I can't get him to do any of the things that he used to enjoy doing.

My father is extremely susceptible to scams. I frequently make adjustments to his phone to help reduce the scammer's access to him. When they get their hooks in him, he is very suspicious of everyone BUT the scammer. He gets mad that his finances are restricted, but he is unable to conceptualize numbers due to his…

Hello to everyone. My name is Mary. I am in SC with my DH who was recently diagnosed with early Alzheimer's a month ago. He is 77. He is between stages 1-2 and having a hard time accepting all of this. He has good days and bad. Today is bad and the mood swings are hard to follow. He says and does things that are angry and…

I am so grateful for this space. My mother came to live me and my husband 4 years ago. She is in the moderate stage of Alzheimer's dementia. I moved her from her beloved home and her independence in South Carolina. This is a humble business, and we've learned so much and have so much to learn. We are entering a new stage…

I don't know what to do… We looked at a house this evening that would fix a lot of issues. It is in a neighborhood with an HOA. They mow the yard and shovel the driveway and sidewalk. For me, the big deal is that the primary bedroom is on the main floor. I have osteoarthritis and it isn't going to get better. The house is…

its me who feels like a petulant child not my DH who, I really adore. I am so tired of trying constantly and doing constantly, being creative where I can and trying to find solutions,It's so very frustrating and exhausting. I am still trying to have a life for us within the boundaries of dementia. I am trying various…

I wrote on Sept. 9th about my DH breaking his left hip and wrist. At that time, the doctor did not think he was going to survive since his lungs were filling up. The hospital talked to us about hospice care and I was thinking that would be what would happen when he got back to his MC. After DH removed the cast on his wrist…

Looking for other people who have very recently been diagnosed and are early in their Alz journey. In addition to first line therapies such as the new Anti Amyloid drugs, what else are people doing to stave off further cognitive decline aside from working out and challenging their brains. The two most promising things I…

My DH besides 2 types of dementia has AFIB, Diabetes with Charcot of the foot which needs diligent care to not get wounds Like making sure always has proper shoes on, using cane, etc. He also has Sleep Apnea which he stops breathing. Medication is a constant monitoring. I become quite overwhelmed with Dr visits, physical &…

Not sure if I should be asking this question on this forum, but has anyone had success with CBD or CBD/THC combo in reducing loved one w/ dementia anxiety levels? I'm from California where it's legal. Let me know-Thanks

In the classic Whipple procedure (pancreaticoduodenectomy), the surgeon removes the head of the pancreas, the first part of the small intestine (duodenum), the gallbladder, part of the main bile duct, and a portion of the stomach. In a pylorus-preserving Whipple procedure, the pylorus and a small part of the proximal…

Hi friends, Dad has started mentioning wanting to kill himself. He barely has language ability, so for him to get a whole thought like this out is unusual and obviously the content of his thought is alarming. He is stage 6. On hospice. History of behavioral expressions that lead to a geri psych inpatient stay in July and a…

Hello all, It's been a while since I've written. I've been busy taking care of loved ones. My mother passed away a few months ago, she had dementia and other health issues. My oldest sister also has dementia. She is in assisted living (as was my mother for the last two years of her life). I have been taking care of both of…

My spouse is in the later stages of dementia although we still do outside activities. Each winter we do down south for 3 months. I am debating what to do this year. If we stay home LO will be in the house 7 days a week being cold. If we go south, she will at least get outside. I caN'T figure out what to do. Either way I…

My precious wife has come to the stage where she either won't eat, or at best eats very little. Is there anything I can do? I have read the articles about eating issues, and know that I cannot force, cajole, or threaten her. Your help in this matter will be greatly appreciated. CWB

My husband whom was diagnosed mild to moderate mixed dementia w/alzheimers isn't accepting his diagnosis well. I have explained it to him and even showed him the seven stages and he tells me it isn't going to happen then he goes on to tell me that he hates me deep in his heart and blames me for things that has happened in…

Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…

most times i'm fine. sometimes i feed either angry, sad or frustrated. the following help me cope; walking away for several minutes when i'm getting angry. regular exercise both cardio and weights. some cardio gets endorphins flowing providing euphoria. living in the moment -enjoying the good times together and know the…

my spouse wakes up in the morning inquiring as to who's place is this. (we are in our home of 50 years). How about all those other places that we have…(we have no other places) How should I respond to this. I am her caregiver…married 57 years this month.

First, I am glad to have the connection with you all as it does help to read others' posts and ideas for dealing with this disease. Also, not sure why I am listed as a he/him - I am the wife and caretaker of my husband. My hubby really has left me with such anxiety and worry the past 36 hours. He keeps walking out the…

Hello, my spouse does not remember that she has eaten and therefore constantly eats. She is struggling to fit into her clothes now and unfortunately, due to a bad hip, won't exercise. I've given up on trying to get her to eat healthy and I just make sure she does as often as possible. She also forgets when she has a glass…