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Driving
DH is 62 and has FTD semantic variant. I unfortunately had to turn him in to the DMV. He doesn’t know it was me. He had his evaluation Friday and they suspended his license. He is angry and doesn’t feel he is far enough in that he is unsafe to drive. He drives a lot for work so I am not sure what his plans are for that.…
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Living as dependent
My mother and I live together as her early onset Alzheimers gets worse. I am still considered her dependent, and as an added bonus have severe disabilities as well. She will not let me talk about finances with her. I dont know how to approach this the right way, because I have nowhere else to live if she went to memory…
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I need to go to MY house
My mom is in the middle stage. She is constantly wanting a ride home when she is already home. What are some ideas that to make her realize that she is at her own house. She is getting increasingly agitated when we try and explain that she is home.
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How People Can Help
Often friends will ask how they can help. For the ones that my husband doesn’t know well I let them know just checking in on me helps. And for the ones he does know the best help is taking him out of the house (for a walk or lunch) on a regular basis. It gives me time I can count on to focus on myself or errands, and it…
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Feeling Very Thankful
I just want to express my sincere appreciation to all of you who show up on this site. The shared experiences, rants and raves, insights, advice and love and shared vulnerabilities have made a real difference to me in how I’m able to navigate my day to day with my DW. Wishing You All the very best Thanksgiving possible.…
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Suggested Meds for Aggression
My DW is 61 years old and just recently has been started to be treated for Dementia/ALZ however the truth is she started showing signs about 6 years ago but it has been very difficult to have her cooperate with seeing a DR and progressively became worse to the point she became both verbally and physically abusive.…
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Hygiene...refused to brush teeth
My DH got a not so good report from the dentist about his gums receding. He hasn't been brushing his teeth, and now when I try to get him to do it, he refuses. I need suggestions.
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Slowly learning: don't argue, don't say no, don't correct, ETC.
So we've been on this journey with familial VD for over 7 years. Recently (last week!), I finally realized that 'arguing' with DH only upsets him and doesn't change him at all, BUT it makes ME feel terrible and guilty and wastes my energy. For MY MENTAL HEALTH I have to use the techniques endorsed by so many dementia…
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Afraid
My DH diagnosed with Alzheimer's has become increasingly agitated, even on meds. We meet with a neurologist every 6 months and the agitation has been ongoing for several years, although not this extreme. On Friday the neurologist nurse and I had a phone conversation to discuss the agitation, she suggested calling 911 or…
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My father
This might seem different, but my living situation has been that I live in a large mostly one floor house with my parents. My mom had retired at 69.5 (now 72) to take care of my dad and his Early Onset (diagnosed at 67, now almost 77). My mom recently just helped make sure my grandmother was taken care of too in her last…
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Everything is perfectly normal...maybe not
Just feel the need to "talk". DH in ES to MS Alz. He has seemed perfectly normal now for about two weeks. You'd have to live with him and pay attention to know anything was off. Well, there is the thing about needing to explain to him who is who and what that all means when we are watching TV and the thing about misnaming…
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Now a Chef
Never in my wildest dreams would I have thought I would be 100% responsible for planning the meals. My DW of 65 years can no longer remember how to so here I am saying my God what do I put together now. I can fix simple stuff but just can't eat the same thing over and over. I take her out to eat often but just can't do…
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Possible AZ prevention from anti virals + shingles vaccine
I have not read anything about this before:…
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Alz w/brain bleed complication.
I have been diagnosed with Alz with the complication of excessive existing iron deposits. My neurologist is reluctant to prescribe either of the two infusions due to the risk of hemorrhaging. I have two questions/requests. Is there anyone out there that has this complication and has been prescribed a medication other than…
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Adjusting to MC
After bringing our 82 yo LO to MC for the first time (with no difficulty, thank God) one week later I had to take him to an outside doctor appt and he pretty quickly thought I was going to “bring him home.” When we returned to the MC he seemed mad about that (though thankfully did not refuse to go in). Staff says he is…
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Asking "I want to go home"
Hello, I recently started to care for my mother-in-law she is recovering from a stroke and has mid stage dementia. We relocated her from another state as she can no longer live alone. She asks about going home every hour it seems like. I try to change the topic and divert the conversation and it works for a couple minutes.…
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Just Sharing
It's been about 4 months since I've been on this forum. With the start of our 9th year since ALZ diagnosis, I just felt like I needed to share. I apologize for rambling. I recognize that everyone's journey is unique, so you may be able to relate or you may not. But I'm sure, as caregivers for your loved ones, you…
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stem cell therapy
Hello everyone: I'm considering stem cell therapy. I'm wondering if anyone has gone down this path or know anything about it. I've researched it, but I think its pretty new in Alz treatment. thanks Pam
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Light therapy
Does anybody have experience with light therapy. I am looking to purchase a 40 hz therapy light and a 10000 lux light box for my husband. I have read good things about using light therapy, I was wondering if anybody has had experience with this
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Taking car from dad
We have been trying to take the keys from my dad, not happening. He lost his keys, but remembered that my mom had a set so he took hers. He carries them with him even at home and will not let us have them back. When we tried to hide them he became furious and very agitated, the anger in his eyes is real and he looks like…
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I failed as caregiver today
Yesterday I picked up a nasty cold and had a really rough night last night trying to sleep. This morning my wife (who has Alzheimer's, stage 5) had another emotional meltdown. Partially accusing me of of keeping her here at our house to kill her or some such nonsense. I am at low ebb, having little to no patience this…
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Sleep too much?
My mother’s sleep patterns have changed over the month. She previously would sleep 9-10 and nap once during the day. Now, she goes to bed as early as 5pm and sleeps until 11am AND naps from about 1-4pm. It can change day by day, but she is just constantly sleeping. She’ll eat breakfast but that’s the only meal. No…
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How do I get him to accept respite care
I need respite but he refuses to go. What to do?
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No more intervention
So my father is a type 2 diabetic, stage 7 c or d(per hospice), possibly in heart failure and on Hospice for 4 weeks. He is in a memory care facility and eats well(too well, big boy:). They have to work hard to get him up and to breakfast or at least get some OJ in him every morning because of low blood sugar. Hospice…
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Feeling too responsible for my 101-year old dad with dementia
Hi! I am new here and this is my first post. My 101.5 year old father lives in his own home and has 4-5 different caregivers who provide 24-hour care. I would say he has moderately high dementia in that he is sometimes very confused, sleeps a lot, can't remember what day it is, etc. He walks with a walker, can converse…
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How to move forward?
Hi there. My mom was formally diagnosed 2 years ago, though we as a family have noticed she has been progressing more quickly than before for the past few months. Unfortunately, her dad, who also has Alzheimer's and lives in a memory home, needed to be set up with hospice care last week. This has caused an even further…
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reasoning
when logic fails https://www.facebook.com/reel/1219377039793212
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Ideas? Traveling and getting alone time.
My DH was diagnosed 1 1/2 years ago with Alz. Early to mid stage 5 is my best guess. He is still able to care for himself and do small projects and tasks around the house. Although he doesn't like to talk about it, he is very much aware that he is progressing. In April we are taking a 2 week trip to Japan to visit my…
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New to this whole thing
My husband was just diagnosed 4 months ago and we have been spending most of our time learning and trying to find every way we can do full progression or trying to get into clinical trials, we had so many plans. So many dreams.he is 62 and I will be 62 in the summer And after years together, we finally got married this…
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How do we get any sleep?
Mom has not yet been diagnosed with dementia but has an appt to see a vascular neurologist in May. She has small vessel disease in her brain and infarcts have been seen in frontal and corona radiata areas. Nights are horrible at our house. She isn't able to sleep and wants me to stay awake to make sure she is safe even if…