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Legal Repercussions
Hello, I am new to this site. My mom was recently diagnosed with Alzheimer’s. She was previously diagnosed with Mild Cognitive Impairment. For 5 years I have been paying her bills for her because she asked for help and could no longer do it herself. She still has access to all of her funds and we have only had a couple…
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The Constant Digs
just a vent. I could really use a day where I don’t get to hear from my DW how I just don’t quite treat her right and I don’t do enough for her. I am gentle, supportive and kind to her and I get back complaints about how something’s just not right with me. Oh honey…it’s not me. Grrrrr
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How do I get my smelly DH to put on clean clothes?
My DH had mixed dementia, both vascular dementia and Alzheimer's. I gave up on trying to get him to bath. it has been at least a year since he showered or washed up. He used to change his clothing every few days but now he refuses. I have tried everything I can think of. He sleeps in his clothes including his socks.…
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Visiting new Dr with Mom
we are going to our first Neurologist appointment with Mom and I wanted to get thoughts on how this could go. I feel like there is a lot we need to communicate to Dr so she has the full picture but I am sure Mom will not communicate. Do they typically meet with patient and then caretaker after as well? We have medical poa.…
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Frustrated That My Mom Won't Acknowledge Health Problems
I've been my mom's caregiver from 2013 (age 22) to now (age 34) . Right now, she has multiple health conditions colliding with each other: early dementia symptoms (currently trying to get a formal diagnosis), depression, dehydration, kidney problems. The depression isn't new to me or my siblings, but the other health…
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Lumbar puncture?
I have read multiple posts in which loved ones mention their PWD getting a lumbar puncture as a diagnostic procedure for Alzheimer's. My question is this? Isn't that terribly painful and is it worth putting my LO through for a definitive diagnosis?
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She’s forgetting me.😢
My mom lives in Delaware. Near my sister and her extended family. I live in Georgia. We lost our oldest sister 2 yrs ago and an older brother 7 yrs ago. That leaves the two of us. I’m 62. My sister is 66. The other day my mom told her Dr that she had 4 children but only has one surviving child. (my sister) My sister…
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Need some input
I have a situation that I need input on. I’m in the hospital recovering from cancer surgery on my liver and my wife’s daughter came to take my role until I can get home. I’ve been struggling with the decision to get out of here as soon as possible or wait until I’m fully recovered. All the advice I’ve got says stay here as…
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personal strength trainer?
Hello. I'm new to this group. My wife is 66 and is still in the early stages of her Alzheimer's. Does anyone know of a personal strength trainer or a gym that specializes in weight training for Alzheimer's patients? We live in Lowell, MA. Thanks.
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Strange eating habits
My husband has got to where if he starts snacking on something he will eat until it is all gone. For instance, I bought about 2 lbs of grapes this morning. Husband ate all of them within 2 hours. And I noticed other day, we had a 3 lb bag tangerines. He ate half of them in one day. I finally hid them from him. Is this just…
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Wants to "go home"
This is my first post. Husband was diagnosed with Alz/dementia a year ago, but in retrospect I know it began several years ago. Every day he says he wants to go home, even though he is home. When I tell him we are home, he gets upset and says "it's not my home." I don't know what to say or do. Any ideas would be…
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Terrified
Hello everyone, I'm new to the group. I've read your stories and am relieved to know I'm not alone in my feelings. So, here's my story… I was officially diagnosed last year at age 54. Hearing the words early onset Alzheimer's shook me to my core! My mom had dementia so I knew/know all too well what may come. Have you ever…
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Problem when we walk or bike
I feel like I’m being really whiny lately (and maybe “wine-y also 😉) but I have another question to pose to this group of creative thinkers. This has happened a few times now and I am not handling it correctly. We’ll be walking or biking and he wants to go a certain way. Ok, we go that way. But as we get farther away from…
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But what if it's something that could be treated?
My mother has always been afraid of ALZ because as her own mother aged, as soon as she became moody and forgetful, her sisters insisted this was ALZ and sent her to live in a gross, smelly facility (my mother's words, but not untrue). Now as she is in her mid-80s, my mother is showing signs of memory loss and potentially…
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Waiting
Hi friends. My bf (45yo eoa) had his neurologist video visit this last week. I also had the conversation of MC admittance via hospice to a facility with his pcp. Pcp said he put the referral in and should have heard by end of last week beginning of this week. His neurologist said he is in stage 7b. My heart aches. I know…
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I'm sorry for the download. I thought I was typing in another place... sorry. If I don't belong here
→ Shaun has joined S Shaun 16:46:51 first time here But I need help S Shaun 16:48:27 My step-father has dementia, Alzheimer's. S Shaun 16:49:58 we have him in a memory care unit nearby but its REALLY complicated. Not him being there. It's the urge to get him out S Shaun 16:52:29 ok going to stop with trying to make this…
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New To Forum. Mom has UTI that has progressed dementia symptoms
Hi all. I'm 34 & I've been my mom's primary caregiver since I was 22. For the past decade, she's had some memory problems (misplacing things, forgetting what day it is, forgetting how to navigate some driving routes, forgetting there's a boiling pan on the stove). Yet this was always managable with my help until recently.…
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funny
DH has started Kisunla. I told him we were going to leave soon for his infusion. He asked why we were going as he had enough confusion and didn’t need more.
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DW Waking up 3 AM
First time on this Forum. Some background my wife was diagnosed with EO Alzheimer when she was 58. Now 6 years later she has lost her ability to communicate, self care, and starting to have trouble walking. I am her sole caregiver (married 38 yr) and basically have to do everything like feeding, bathing, dressing.and…
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For profit memory care
Virtually all the MC facilities in Tucson are run by big nationwide (for the most part) companies. All of them no doubt are responsible for generating income for their investors, who expect returns of 8-10%, All of them have issues related to the need to cut costs so investors may profit. Today I heard of a local entity…
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When do you decide to place your spouse in a Facility
My husband is only 61. The confusion started 3 years ago. In the last 7 weeks he has decided fast - no longer uses the restroom, does not eat, have to force him. Can stay up for 2 to 3 days with our much sleep (cat naps - 15 to 30 minutes), constantly pacing, has left the house in the middle of the night with no shoes,…
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Caregiver
I started caring for my ex-husband who was diagnosed with Alzheimer’s last August. We have been friends since we got divorced over 30 years ago. I sold my condo that I lived in for 23 years and sold his home and we have a mutual home now. I knew that this was not going to be easy, but I really didn’t know how difficult it…
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The weight of the world on my shoulders
Hi - I'm new to this forum. Warning - this is going to be a lengthy post as I just need to let some of this out** Thank you for being kind. I finally sat down and joined because I am at a breaking point with being a caregiver to my mother, a mother of two teen girls, a wife and the primary (and only) income earner in my…
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CBD and Irregular Sleep Patterns
Good Morning from sunny SoCal. Over the last couple of months my husbands has been getting up two or three times a night to "go to work" - which is actually sitting at the kitchen table with his newspapers and other misc stuff. I've tried melatonin and really didn't get any good results. Has anyone tried using CBD or THC…
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recognizing and treating UTIs
My DW is late stage 5, early stage 6. She is still able to toilet by herself, but her hygiene is deteriorating. I am doing my best to help her stay clean and dry, but success is limited due to lack of cooperation. From what I have read, I should expect UTIs to become increasingly common. How will I recognize when she has…
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From NPR: A piece on "Caregiver Identity Theory"
An interesting read-
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My wife of 50 years diagnosed with dementia
Hello , my name is Neal and I'm reaching out because I'm so emotionally upset and tired . My wife was diagnosed last nov. In the first few months she was doing everything to be pro active .. Mostly what the neurologist suggested. As of now she has a lot of anxiety and is not eating and drinking right. I do have support…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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Pictures from Michael Ellenbogen's Trip to Africa
Attached are amazing pictures from Michael Ellenbogen's trip to southern Africa. Some of you know Michael from his time on this message board. For those who don't, Michael has dementia and has been a global advocate for people with dementia for many years. Enjoy the photographs.
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Seizure
My DW (EOAD) had a seizure this morning while we were having breakfast. I had never witnessed a seizure before and it was very scary. Luckily I was with my MIL and she was able to call 911. She had a large contusion and we had a CT which found no bleeding in the brain. She is home now. My question is does having a seizure…