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My mom forgot my name today
It's been two years in my mom has early onset and it's accelerating quickly. I'm 33 my mom is in her 60s my husband is in the military so I'm taking care of her at a distance. Until medicaid takes overy husband I have been paying out of our own pockets. My mom was my best friend we were close. I call her everyday and I…
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Four months
It has been four months since Mom died. I find myself feeling I should call her, I should be going to the AL to see her. By that I mean that I feel guilty that I’m not doing those things any more. It’s not exactly that I miss doing them- it wasn’t as if mom was capable ( for several years) of being someone to carry on a…
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Infusion #10
Tomorrow afternoon is Leqembi infusion #10. You'd think by now I wouldn't be so anxious about it. I've been taking anti-anxiety medication since the beginning, but ANXIOUS I am! I have all these racing thoughts, feel everything and nothing all at the same time. I know how that sounds, but it's the only way to describe it.…
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Anosognosia Challenge
This is just a vent. I am NOT asking for advice or tips. But I would like to read about your experiences with this caregiver challenge. My DH with mild/moderate dementia thinks the meds he takes will cure his “small” issues. While he admits to some short term memory loss, he rejects my determinations that he should not…
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Attending church
We had a great church group, with several dear friends. We stopped attending but maintained the friendships. My husband now has advanced Alzheimer’s. Is it possible to return to church services now? There are some who would accept him easily, but I am concerned that this would be a distraction for members who don’t know…
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Phone Scams
My PWD is in early stages, but the sharpness is going. She was almost scammed out of eleven grand by somebody claiming to be an inspector general. He told her that her social security number had been compromised and she would be getting a new one. She needed to clear out her account so the new payments could be made. There…
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Mom incompetent
I have DPOA of mom. So far I'm doing everything for her and act on her behalf. However I'm scared that she might be angry towards me if I do something against her will. She might want to revoke the DPOA. The only was to secure the DPOA is to confirm Mom is incompetent and can't make rational decisions. I just had Mom visit…
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What to say.
Yesterday my DW said if she would die tomorrow I would be happy because I would be free of her and her problems. I know this is the disease talking, but it is hard to understand. Does she think I don't love ? How do y'all handle this ? Thanks.
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Advice please
My mu. Has just been moved to retiment living, as we thought it would be better for her having people around to sit with through the day. The problem we have she is awake most of the night and going out of her flat and knocking on everyone's doors until some one answers. She gets upset and feels lost. She is not using the…
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Personal Hygeine
My father & his wife are in assisted living & have recently resisted showering. I will be approaching the subject with them, but could use any advice you have on how best to approach. I do not live close enough to be onsite to assist on a regular basis.
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Legal Repercussions
Hello, I am new to this site. My mom was recently diagnosed with Alzheimer’s. She was previously diagnosed with Mild Cognitive Impairment. For 5 years I have been paying her bills for her because she asked for help and could no longer do it herself. She still has access to all of her funds and we have only had a couple…
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Elder law appointment
I finally have an appointment with elder law 5/20. The initial consultation is free for 1.5 hrs. I am taking my mom there and discuss her will, setting up a trust fund, Medicaid planning and estate planning. Mom is very concerned about the lawyer fees. I am afraid she will not proceed with the lawyer after the…
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Just need Support - My Dad fell and is in the hospital
Hi- I just need some support at this moment. My dad with dementia fell and smacked his head on the pavement. He now has a traumatic brain injury with bleeding occuring in his brain. I just spoke with him tonight and he sounded so slow when speaking to me that I am worried its now a permanent condition due to the TBI. Just…
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Meeting her in her reality doesn't always work.
Most of the time when my mother says things that aren't true, I can just go along with it and meet her where she is, but how do you handle it when she doesn't recognize my father, and wants to know who the man in her bed is? Or asks where her husband is when he's right there with her. Any advice would be appreciated!
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First Post
I’ve been following along for months now and decided it’s time to jump in. My DH is 68 and was diagnosed with EOAD and logopenic progressive aphasia. His latest neurology visit in December had him in stage 5, but I think he’s probably been dipping into stage 6 for a few months now. We’ve been married 40 years and needless…
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Subacute rehab vent
My DH Is in a subacute rehab after having his toes and part of his foot amputated due to gangrene. He is not supposed to put weight on his foot until the doctor gives the ok. Last Friday night while sundowning, he got out of bed, walked into the next room and fell. He cut his arm and has a big bruise, but nothing else. The…
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Struggling in Stage 8
my DH Lonny passed last August. I miss him so much it hurts. While I expected the mental pain I didn’t expect the physical reaction every time I think of him. I’ve been doing things to honor his memory. I moved in with my daughter and son-in-law but I feel alone. I don’t have any friends nearby and family is so busy. My…
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Diagnosis process
Hello all, I was able to get my mother to be seen by a neuropsychologist for testing recently, which required very careful persuasion and lying to get her there. They now want to make an appointment to go over the results with her. I am considering not doing this and having them just send me the report, if I can get it. My…
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Importance of connection for caregivers
Just thought I would share a recent experience. My DH bounces back and forth between stage 4 and 5-mostly five. We recently took a car trip to visit family and he handled the car ride very well which surprised me. While we were there he had a really bad night where he was extremely confused(more than normal), extreme temp…
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Don’t know what to do
My mom is 87 and quite stubborn and very mean, uncooperative and vindictive. She has enjoy of her wits about her to know when she’s doing as well as saying things to irritate me. She can say some very mean and hurtful things. This has always been her way like u hit me I’m going to hit you as hard as I can. She has always…
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Dad needs care too, though.
Hey y'all! So my Dad is 82 and in relatively good health. My Mom is 80 and is in late state Alz. ( I think.) Her symptoms are a little different than some, in that she is unable to really hear…she can't see well…thank goodness, her attitude is usually upbeat and positive. However, she doesn't talk much now and when she…
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Impossible Mom
Hello. I've been dealing with my mom for a few years now and am becoming desensitized and hopeless. I'll try and stick to the main details otherwise this will be a book. Background on mom: she'll be 87 in August. She had Lupus for years in the 70s and 80s but went into remission somewhere around the end of the 80's. Back…
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CBD to help manage symptoms
Any one have experience with CBD to help manage anxiety and agitation in your loved ones?
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Talking to who knows
My DW spends a good part of her day talking to people who I have no idea who they are. This is all in her mind as we are the only ones present. Is this a normal act of Alzheimer’s? Is it considered delusional or hallucinations? Should I be concerned about it and call the neurologist? Is there medications that help? I’m at…
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Home care, will this work or not ?
Through this journey I have realized several things . 1 . Don't set your expectations high . 2 . Throw out everything that made sense to you at one time . 3 . Seek as much help as you can . 4 . Last but not least stop feeling guilty when you didn't succeed in getting your loved one to do any of the things that come with…
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Moving Advice
Hello, My mom was diagnosed with major neuro cognitive disorder in November. She has a follow up with a neurologist for further testing in August. She has no idea that there’s anything wrong with her which is making helping her just impossible for my sister and brother and myself. She is refusing to let one of us be at her…
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DW does not want to see a sister
My DW is 62 and has been living with AZ for the last 7 years. In the last 4 weeks she has become extremely agitated by the mere mention of her sisters name. We don’t understand why and the sister was obviously very upset although I think she understands my wife cannot help it. I was hoping that it was an aberration but the…
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Dealing with possible anosognosia and FTD
We have been living with my MIL for about 6 months. She was diagnosed with FTD approximately 5 years ago. I could not say definitively what stage she is at as my SIL managed most of her care previously as she lived closest but was not able to move her into her home. The decision to have her move in with us was prompted by…
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Toddler comparison
This is a rant. I’ve been caring for my DH who has been diagnosed with Alzheimer’s nearly 3 years ago which was at least 2 years after I had been begging for a diagnosis. When someone compares caring for a spouse with Alzheimer’s is like caring for a toddler I want to scream. It is such a dismissive comment for the person…
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The Cavalry Is Not Coming: 9 Year Edition
This is an updated version of The Cavalry Is Not Coming. I repost this occasionally as I have been informed that this article has helped many caregivers. This edition is mostly the same, although I have brought it up to date and revised it to make it more helpful. October 1, 2024 marked nine years since my wife’s dementia…