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Mom
Hello, I have been seeing her with my sister recently. She sleeps all the time and as the desiese progresses well it is really terrible. I still kiss, hug, hold her hand and pray with her. Actually now my sister plays the Our Father in Italian for her. No matter if my mom responds to us, it's really all about her and not…
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Early Onset AZ Newbie
I’m new to this community. I am (51F) taking care of my dear husband (56M) who was diagnosed at the beginning of January of this year with mid-stage early onset Alzheimer’s dementia. There were signs starting about 3 years ago that I just didn’t associate with dementia, and I (mentally) kick myself for not realizing…
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2 parents with dementia/Alz advice please!
Hi there, I am brand new to this community and my siblings and I are at a loss. My dad was diagnosed recently with stage 4 Alzheimer's. He has trouble tracking and it is still in denial and continues to tell us he is fine and nothing is wrong. I am unsure if that will ever abate. The issue is that my stepmom is his…
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Equipment for dementia or ALZ patients
Dad is a fall risk due to frequent UTI issues. Having ALZ adds to the difficulty. We have part-time caregivers and my sister and I are there often but there are times he is alone and is generally ok. When he suddenly get a UTI he falls and is weak. We have went through a few devices with fall detection to no avail:…
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Challenge behavior?
Yesterday he started the inevitable. He forgot simple things, he repeated questions. Today, he stole my phone, hid it in his closet, he's being sneaky. When I found it, he went straight to where it was hiding to look. So I know he was aware that he took it, right? Then he unplugged my computer ( knowing I have school…
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Friend
I met him after he was diagnosed. It took me a while to realize how much he needed. He has moved in with me and I have a 4 year old daughter. At first I thought we would like eachother. Now that he's been in my home for two years, my feelings have changed. He needed my help and he helped me a lot. But I have changed our…
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Oh, dear
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Very Young Onset – No Answers Yet, Just Holding On
Hi everyone, My name is Cole, I’m 36, and my husband is 37 (turning 38 in July). I’m Autistic, and I’m very good at recognizing patterns — which is how I started putting pieces together that something was very wrong. Looking back, my brain started tracking the weirdness 2–3 years ago, but honestly, most of our marriage has…
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Move DW from Assisted Living to Memory Care
My DW was diagnosed with ALZ Dementia 5-6 years ago. She is now stage 6. We moved into an IL apartment 2+ years ago and just "upgraded" to AL. She has no episodic memory left and because of chronic pain and long-time mobility issues requires constant attention. She is often confused about where she is and who I am, but…
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Dad needs care too, though.
Hey y'all! So my Dad is 82 and in relatively good health. My Mom is 80 and is in late state Alz. ( I think.) Her symptoms are a little different than some, in that she is unable to really hear…she can't see well…thank goodness, her attitude is usually upbeat and positive. However, she doesn't talk much now and when she…
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New Alzheimers Diagnosis for 85 YO Dad
Looking for behaviors or actions that are "normal" ALZ behaviors and others to bring to attention to his Primary Care Doctor
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Just wondering
My Dh struggles with anxiety, anger and apathy. As you know, the neurologist appt. was a bust and I don’t trust his pcp. So I’ll have to start with finding a new pcp which is a challenge and start all over again. It’s been 3 years since the “official” DX and I feel like I’ve gotten nowhere. The goofy neurologist has him on…
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How to stop DH from getting up at night to pee
DH had a partial amputation of his foot due to gangrene (caused by peripheral artery disease). He is not yet supposed to walk on his foot and I have someone with him 24/7 at sub-acute rehab. He will be going back to MC next week. How do I prevent him from getting up in the middle of the night to pee, forgetting about the…
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Falling and New Facility Decision
Hello, My sister has been in a MCF for over a year. We know she won't be able to afford to stay there forever so we put her on the waiting list at the State Run Vet's Home. They informed me this week they have an available bed for her. They've assessed her and believe they can take care of her. I have one issue of concern…
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New
My husband is in the process of being diagnosed. He has no short term memory at all. He has lost his desire to play the guitar which he used to do all the time. He is wanting me home all the time and to be with me all the time. He gets upset. He is now having this anger outbursts usually at night. He thinks I want to leave…
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I feel myself withdrawing emotionally
I still love my husband but I feel myself withdrawing emotionally. We've been together 39 yrs but our relationship is very different now. I see my husband declining cognitively and physically. He is 76 but acts more like 86. I am 68 and i on a good day feel more like 48. I know this disease is a one way street, there is no…
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Alzheimer’s Poem
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Concerned about Mom's progression
Hi, First post. Not quite sure how to do this but I need advice. My mom was diagnosed with MCI in 2023. She is only in her mid 40s. She is progressing towards early onset unfortunately more rapidly than we hoped. She also just went through Breast cancer treatment late last year and into this spring. I got married end of…
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Soo mad
Please everyone pardon my rant here. I am so sick and tired of my family always questioning my actions and decisions on the care of my DW. Why are you doing this or that, do you think that’s best for you, don’t you think it is time for MC. The reason I love this site is that you all understand my life because you are…
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From the NYT: A Ministroke Can Have Major Consequences
This should be a gifted link. https://www.nytimes.com/2025/05/17/health/elderly-tia-stroke.html?unlocked_article_code=1.IE8.BO37.xssaUFKSfe6y&smid=url-share
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Short term memory and spouse
I am 56 and started having memory issues this year and seems more prevalent recently. I dont have a diagnosis yet and see the neurologist in Nov. A recent example is my wife and I went on a hot air balloon ride in Africa. 8 days later she told friends we took the balloon ride and I interrupted her and said no we didnt. I…
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mobility issues
My DW is only 58, but is in later stage of disease. Mobility has been a rapidly worsening issue. She was walking with my assistance but recently won't (can't?) walk or even stand—Seems like legs are frozen. Makes changing incontinence briefs very hard. I have checked thoroughly for injuries but haven't found anything. Has…
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Geriatrician vs. Neurologist
My DH's PCP referred him to a geriatrician, but I wondered if a neurologist would be better. The geriatrician (we had first visit in January and will see her May 20th) is 30 miles from our house. We could see a neurologist locally. Does anyone have an opinion on who is better to treat Alzheimer's/vascular dementia?
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How to get right in my head...
I struggle with my own emotions dealing with this. I am luckier than many. We are not as far down the road as some. DH can still do all his ADLS but is so emotionally needy. He is safe at home by himself but prefers I sit with him 24/7 and watch reruns of the same TV show we've watched so many times before. I know many of…
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New Member, First Post - Power of Attorney
I have three siblings and one lives fifteen minutes away from my mom. I live in another state but manage all her finances and anything else I can to take the load off our sibling who lives locally. When I agreed to be my mom's power of attorney, I naively thought it would only come into play for her finances. However, this…
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Johns Hopkins
https://www.hopkinsmedicine.org/news/newsroom/news-releases/2024/10/clinical-trial-shows-synthetic-cannabis-reduces-agitation-in-alzheimers-disease#:~:text=In%20a%20study%20led%20by,by%20an%20average%20of%2030%25.
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Mom is losing weight
Hello, some people say when they stop eating that's when the end is near. I don't know,I believe it's up to God. My mom will be 89 this year God willing. The best part of visiting my mom today was that I saw her with my sister. And we really bonded today. It was very nice today. God bless.
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Recent Diagnosis for my wife. Seeking local support groups. Seattle
I am 68, my wife is 72. We are in Seattle. She was recently diagnosed with mild cognitive impairment, though I would place her at the upper end of that diagnosis. I tried to call to get pre-screened for caregiver support group. After waiting a while, the line went dead, then dropped. This year, our son had a brain tumor, a…
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How long……
My memory care np told me today that she has seen stage 6 last for 10 years!!! Scary but even more scary as moving to mc and concerned about costs!! Have long had your LO stayed in this stage?
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I'm new to this group
My mom is 91 and has had Dementia for almost 5 yrs. She moved in with me 1 1/2 yrs ago. She fell 2 mos ago and didn't break any bones but was badly bruised, in pain and had to be in a wheelchair. From the ER she was admitted into a PT Rehab. That was awful because they were not for memory care patients and mom couldn't…