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Medicines No Longer Working
Hi all! I haven’t posted in a while. My mom, now 68, has been in AL since January. Since then, she has been on MANY medications whether sedative, antidepressant, mood stabilizers etc. It’s gotten to the point the doctor at the home has told us she is no longer responsive to treatment. She no longer holds a conversation.…
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New to all this
My husband was officially diagnosed with alzheimer's 3 weeks ago, in the early stages of this. I have bounced back and forth between denial, anger, tears and fear for what our life will be and for how long. I'm not sure what to do, what the steps are to help him and myself manage this. He has problems finding the words to…
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Ectropion Relief
I searched forum for ectropion and read about someone weighing surgery for eptropion. MIL lower lids turn out exposing the red inner lid. We did surgery 1÷ year ago but they have sagged again. Same doctor now thinks face lift is needed! Not doing that. Does anyone have any suggestions to make her more comfortable, and to…
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Six Months Since Moving
It has been six months since we moved two states from our hometown of 72 years to be near our daughter. DH has ALZ. I am still profoundly homesick! I miss everything I left behind, my older brother, our friends, our doctors, our dentist, all our familiar places and routine. We are going back this week to visit my brother.…
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Working through the issues (and emotions) - giving and requesting ideas for help
Hi. I just joined this group and have reviewed a number of strings. I find it crazy that with as rampant as this disease is, each case is still somewhat unique and there is not one methodology to deal with all cases. I look forward to learning from you all! I want to ask for direction as well as share some things that our…
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Excellent Handout Packet: dementia, stages, CGs, actively dying - Tam Cummings
(Sharing here as well as Spouse/Partner CG Forum) - Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours. I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging…
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This is really hard!
Today is not a good day. I feel like I'm doing all that I have been instructed to do for my mom but it's really hard to not take it personally. I seem to be the target of everything that is wrong with her including the effects of my deceased father's indiscretions. She's 74, highly educated, financially independent but…
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I’m new to this forum, and to Alzheimer’s.
My question is, have any of you seen Alzheimer’s symptoms (in particular, alertness) improve? My relative is apparently in mid-late stages and I haven’t seen this person for almost a year. She has recently been assigned a new caregiver and I just learned she is doing so well she was taken off hospice after being on it for…
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Any Advice?
My DW is in stage 5+-, with anosgnosia and increasing aphasia. Other than when I can offer entertainment, projects, walks, outings, etc she spends a lot of her time either sitting in front of the TV, puttering in the yard, or walking the dog. She is often depressed and constantly complains that she has "nothing" going on…
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Humming
my DW is humming songs all the time that she is awake. She also fidgets with her fingers a lot. I ask her what she is humming and she says she’s not humming. Any thoughts?
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Looking for in person communication with spouses of the afflicted
Hello; I'm Gerry and I'm attempting to locate in person support groups within the Roanoke, Virginia area. Any ideas for me? Thank You!
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I desperately need help
My husband has Alzheimer’s, I work 40 hours a week, I’ve called everyone I can think of to sit with him , he wanders off from the house, has anyone have a solution, He won’t do daycare and I’m trying my best to keep him out of a nursing home, I have no one to rely on, feels like I’m losing my mind
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The Cavalry Is Not Coming: 9 Year Edition
This is an updated version of The Cavalry Is Not Coming. I repost this occasionally as I have been informed that this article has helped many caregivers. This edition is mostly the same, although I have brought it up to date and revised it to make it more helpful. October 1, 2024 marked nine years since my wife’s dementia…
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Vocabulary Disappearing
Of late I have noticed a drastic change in my DW’s vocabulary. Words don’t come easy if at all. When we go for a walk in the park we normally see lots of squirrels. Today, the squirrels became “damn idiots “. So sad to see the decline especially in the past month.
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My situation is getting confusing
Hi, My mom is 80 yrs old now and her dementia would be stage 5 progressing towards stage 6. I had brought her back to her house from my brother's place in June and my journey since then has been horrible. I have kept a caregiver too to take care of her needs. She was initially non cooperative and then later on in an…
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Geriatric case managers
Has anyone used a geriatric case manager before? Any tips on finding a good one? I assume the cost depends on the geographic area somewhat but what is a typical cost range? Does it still make sense to hire a geriatric case manager if your loved one needs to go to long term care?
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I am a child of a parent with Dementia with Aphasia
Hello My father has Dementia with Aphasia. My stepmother and sister have been his caregivers over the years but now mom has Metastatic Breast Cancer so will need to focus on that. I am flying to Texas to take over his care. I am new to this. So far he is starting to have "accidents" ie, cannot make it to the toilet due to…
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Stressed out
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End state dementia meds
My father has severe agitation that seemed to come and go. Now the hospice and adult care home are wanting to increase Halperidol, sleeping med, and a pain med to reduce the agitation and sleeping problems. It hasn't seemed to have helped much but they have pumped so many drugs in him. He has had agitation and sleeping…
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Hospice - Meds / Ensure
Hi All - I was visiting my parents while the hospice nurse came in for a check on both of my parents. It was the usual blood pressure, listening to the heart and lungs, etc. Since I was there, she brought up the fact that both of my parents are on Memantine and would I want them to discontinue it? I know hospice doesn't…
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New research on the timeline of Alzheimer's
Research is being called "ground breaking" Alzheimer’s May Progress in Two Phases, Transforming Understanding of Brain Damage - CogniFit Blog: Brain Health News
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Constant 😴 sleeping.
Has anyone had their loved one sleep 12-14 hours per day. Was there something medically going on to cause that.
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Struggling to get mother diagnosed
I have Medical POA thank goodness, but for last 6 weeks her dementia became worse very rapidly daily. I tried to get her to see her doctor, but she refused. I obtained mental health warrant and she was taken to a psychiatric hospital. My mom denied being suicidal, confused, and said I was trying to force her into a nursing…
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ho perso mia moglie a causa della sindrome Alzheimer/Corpi di Lewy.
Salve sono stato il marito di Margherita, la mia bellissima moglie, giovane intraprendente e amatissima compagna. Dopo alcuni anni di questa malattia incredibile lei se ne è andata lasciandomi solo con due figlie, Alice e Valentina, già grandi. Ma la sua assenza è incolmabile, per me e per loro anche se stanno reagendo…
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Voting
I've gotten so many personally written postcards stating that public record indicates my husband hasn't voted and asking him to do so.. A person even drove to our home today in a secluded rural dirt Rd to encourage him to vote. He brought his kid and was freaking out about his kid getting fingers dirty when I offered to…
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How to explain why hospice means no hospital?
Mom has been on hospice for 3 weeks. No matter how many times we tell her she is not dying, she won’t believe us. Hospice has added Seroquel and Ativan to her list of medications Fast forward- she fell Friday, didn’t hurt herself. She fell midnight Saturday night. I was called and told she didn’t hurt herself. I tried…
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Jo C
What was the name of that wonderful Christmas store?
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I have one more question
There are many people on the forum that I often think of. I know Jo C had some serious health problems, and I wonder how she is doing. Has anyone heard from her recently?
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Today is our anniversary
DH doesn't remember that it is. I have not mentioned it. He was always the one to remember the dates of everything. Just makes me sad.
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VD and Panic attacks, Fear
My mom has VD and I feel like she is entering another stage of disease. Lately she has been having daily panic attacks and is fearful of many things. I called her today and she was breathing heavily because she said she saw a racoon (which I think was a squirrel) and was scared that it was going to come into the house. She…