-
Neuro Pyscological Testing
Well, mom's new pcp is on top of her game and I am so pleased. After mom failed her SLUMS test, the doctor finally was able to get my mom a neuro consult. She has an HMO, so annoying referrals are required.😢 Anyhow, referral obtained, appt made. Mom saw the neurologist today for them to review her MRI from July and consult…
-
His Birthday is Today
My husband just passed on June 19, and today is his birthday. While there is never a good time to go, this is just too close for me. I am struggling in every way. How does one get through these important dates? I know the first year will be the worst, but this is beyond awful. People are calling & texting, and I'm hiding…
-
Care conference
Mom moved to snf about 6 months ago. She is doing well for the most part. Her memory isn’t too bad, but she struggles with executive functioning, logic, and has bad anosognosia. She presents herself very well. I have a letter signed by two doctors stating she is not capable of making medical of financial decisions for…
-
Companionship for the caregiver
I live in MA and for the last 3 plus years as my wife’s condition has continued to worsen the isolation has become overwhelming. I need social contact, adult conversation. I cannot be alone with this struggle and my hope is to connect with a woman who may be experiencing issues and to at some point meet for lunch, coffee…
-
Hospice
It has happened. My DW has qualified for hospice. She lost 12 lbs in the last two months and can’t bathe herself anymore. That’s why she qualified, not because she is 6 months from dying or anything. Thought that might help some folks to know. Honestly though, I don’t see her making it to 2027. I am both a wreck and…
-
From NYT: Study Linked Cheese to Lower Dementia Risk
If you like high fat cheese, you may have a lower risk of developing dementia, but may raise risks for cardiovascular disease. Shared article: https://www.nytimes.com/2025/12/17/well/eat/cheese-dementia-study.html?unlocked_article_code=1.-E8.81Oo.E1xhBSaBlICz&smid=url-share
-
First time caller
My wife (60) has been struggling remembering things that happened yesterday or even an hour ago. I thought it was stress related because we had major events in our lives: retirement, moving across country, empty nest, new grandchildren. But that was just the start. We tried playing games like pickleball, cards, dice - most…
-
Meeting with the Neurologist
New to this forum…We have met with the neurologist 4 times over the coarse of the past year. My DW does not understand why we are there, yet we sit and talk about her condition in front of her. It is very uncomfortable for me. When we leave she resents what has been said and voices her dissatisfaction with the doctor. Is…
-
Bible Verse to Lift You Up 12/18/25
GOD IS OUR PEACE Isaiah 26:3 NIV You will keep in perfect peace those whose minds are steadfast, because they trust in you. John 14:27 NIV JESUS'S WORDS Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid. Pray + Trust the Lord = Peace
-
What do you wish your LO could know about you, do for you, or say to you?
I am a retired teacher. When I was teaching, one of my favorite books was I Wish My Teacher Knew, by Kyle Schwartz. I believe the book helped me to be a better teacher. Now, I am a caregiver for my husband (DH) who has dementia. To be a better caregiver, I want to know… What do you wish your spouse, loved one (LO), or…
-
Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…
-
Communication
First post, so forgive me for any missteps. My DW (61) was diagnosed with Alzheimers earlier this year, but symptoms have been present for about 3 years. Our major issue seems to be communication......it always seems to be confrontational. She feels I do not have any patience (somewhat true) and I feel she constantly…
-
Driving with MCI diagnosis
I am 77 years old and recently diagnosed with MCI. I have few symptoms. My husband went to a support group recently and was told I should not be driving. Because any symptoms I do have are not really difficult from those typical of “old age.” I hate giving up driving. Any thoughts?
-
Newbie ES
Background and introduction. I am a retired environmental chemistry professor who has experienced memory changes for the past couple years. This included headaches, dizziness and an inability to focus. It took 5 months to get an appointment with a neurologist. I finally got in in March 2025. (The waiting room was empty!)…
-
Memory Care Facility
There are so many MC facilities in So Cal that I just don't know what to do. Are any of you able to recommend a MC (or several MCs) to me in SoCal. Happy holidays, Russ
-
It’s finally real
I’ve known my mom has dementia for at least a few years but we finally got the official Alzheimer’s diagnosis a couple months ago. I moved her into an assisted living community a little over a year ago because it wasn’t safe at home but we were dancing around the dementia issue and focusing on getting her heathy otherwise.…
-
Im 40 and he was 46.
My loved one of 6 years, 3 months, 26 days passed on November 29th. Today was my first day back to work. I was supposed to go in yesterday but anxiety struck me. I work in a pharmacy located in a doctor office. I only broke once today. However now I can't stop crying. I miss my Luis so much. I feel like i have been in…
-
Dementia Paranoia Psychosis
My dad is in the hospital for a real physical ailment. But he is getting extremely angry and combative with staff. He is convinced they are all out to harm him. I don't know what I can do because I can't help him when he is delusional. I feel hopeless and out of control of the situation. He literally is refusing medication…
-
It's a sad day
It's a sad day. I was in the backyard when I heard Donna bawling. I came in to see her yelling, jumping up and down and hitting the wall with her fist. When she saw me she charged at me saying I'm going to bash your face in (she stopped short) saying that if she had a gun she'd kill me. She's been on Quetiapine 25mg for…
-
Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
-
Using AI
I was curious as to how many of you may be using an AI platform like ChtGPT to converse about your LO. I have found this to be a very useful tool for several aspects: understanding observations, understanding the medications more in depth, confirming I'm doing the right things, confirming I'm not the only one that loses my…
-
Hospice while in MC
Before I ask the people here at MC, can anyone comment on the benefits of having hospice while your LO is in MC? I’m not sure yet if he’ll qualify but wondering if it’s worth trying. He’s in late Stage 6. I don’t know how it works between hospice and the current staff nurses and caregivers. Just looking for some comments…
-
TV Response
My DW with EO late stage 5 sits and watches a lot of TV lately. Her favorite is Hallmark movies but she does like to watch NCIS or Law and Order. The problem is she thinks the TV is real life. Watching Hallmark she is very calm but with the others , she jumps up and gets a foot away from the screen upset with what’s…
-
Accusations
My mum is still officially undiagnosed but has been assessed by social workers and has confirmed memory loss. She always loses things (so do I) but it is literally everything with my mum. Unfortunately she accuses other people of taking things. She has accused my brother of stealing money and his daughter of stealing…
-
Medicaid Cuts, Inside Info or Tea Leaf Readers?
Spoke to a Medicaid attorney about father's remaining $ and an irrevocable trust. You lose 1 month of Medicaid eligibility for every $10k you set aside (in CO). Problem is, $1 trillion cuts are set to go in effect 1/1/27 so the attorney said he can't guarantee any outcomes at this point. If those stay in effect, the care…
-
Lost My Father Tragically - Learning How to Move Forward
Hi everyone, My father died as a result of dementia. During the night, he became confused and unsafe, something dementia had been causing more and more often. He left the house, and by the time my mother found him in the morning, it was too late. Writing that still feels unreal. What I am struggling with most now is guilt.…
-
87 yr old man with dementia missing…
Please don’t leave your loved ones with dementia alone for any period of time. When you are caring for them, have locks on the inside of all exits. This is so sad! Petro Kugo an 87-year-old man with dementia, reported missing and endangered from Largo, Florida, as of December 13, 2025. 😢🙏
-
The Stage 8 Club
I first learned the term, stage 8, on this forum just a few days ago. Never new what i would call my life after she passed. It has been a little over three weeks since my dear wife left me and the family. It was a long eight year journey but thankfully she did not suffer physically or by some other health condition and she…
-
Supplements?
Hi All, This is my 2nd question here I’m posting. Knowing now that my dad has dementia, I’m now interested in taking any conceivable preventative actions to benefit myself. To my knowledge there are (at least) 2 well-known OTC Memory Supplements on the market. One of them is Prevagen and I’m not sure offhand the name of…
-
transition to incontinence
Most of us understand that we will eventually have to deal with this, but are any of us really prepared? This weekend DW went from having a rare, occasional accident to being unable to use the toilet. It felt like she was peeing everywhere but in the toilet. She still has good mobility and seems to get up when it is time…