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How to get ready…
I’ve talked to 3 separate members of my hospice team individually. They all believe my DW has maybe a year plus or minus. One nurse mentioned that some/much of it will be based on decisions I will have to make. For example when to treat a UTI and when not to. She said we are approaching these decision points. Looking for…
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More clothing struggles
I had mentioned earlier my mom doesn't wear any new clothes, bought since ALZ diagnosis 3 years ago. She constantly asks for new clothes, I take her shopping, she tries and chooses, we buy, she never wears. This group mentioned buying same/similar and also taking online bought clothes with us for her to try in dressing…
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Options for Mother with Dementia after ALF
After 2 years in ALF my mother is in need of a higher level of care - primary because of her needs at night like toileting and her inability to call for assistance when she needs it. ALF is giving me some time to decide what I will do, but I am having a hard time with the options I am considering - and would love different…
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Do I Follow Her To Skilled Nursing Memory Care?
My wife has mid-to-late-stage Alzheimer's disease and late-stage fibrotic lung disease. The doctor wants her to go to inpatient Skilled Nursing Member care for her declining lungs. She, of course, is resisting. The facility says I can rent a furnished apartment in Independent Living for 3 months as a transition at a…
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Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
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Early stages
My DH has been diagnosed but will not talk about it with me. When things happen like him buying stuff on Amazon we already own, if I bring it up, he gets angry at me. If it weren't so important I'd just let him be but I'm terrified of his poor decision making affecting our future.
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First Day of MC
I have finally got my MC facility choice down to the winner. Check in date is in about 10 days or so. I would have been #3 on the waiting list but just was informed that the #1 and #2 families weren’t ready so the room for my DW is available in about a week. For those of you who have your LO in MC, I just want to ask you…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Tell Us About Your TrialMatch Experience!
The Alzheimer's Association TrialMatch is looking for your feedback! To help us improve the tool and better support people living with dementia, caregivers, and healthy volunteers in finding clinical studies, we invite you to complete a brief survey. The survey takes less than five minutes to complete, and your input will…
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Mom's brother passed away
My mom's brother passed away yesterday. We have not told her yet. She still knows who he is but hasn't seen him for a year and a half at a funeral and was years before that. I don't think she is going to be devastated by his passing (he had lots of health issues and my mom always had negative things to say). Mom is still…
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Are there any positive experiences for Memory Care?
I am not questioning the need for Memory Care. My mom, with ALZ, is still in AL, but I am trying to be prepared for when MC is needed. I read a lot of sad posts like dbarrylewis on When to Reconsider Memory Care and it was very emotional and sad, and it made me wonder if anyone has experienced a positive outcome. Having to…
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Venting
I come here to vent often. I tried a support group they were lovely but none of the other participants were living 24/7 with their pwd. I also lost my HHA and couldn't take the time anymore. I'm looking for a new HHA now. My mother has vascular dementia and LATE. We're in our second year with it, the prospect of this…
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Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.
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Any experience with urge incontinence?
My DH with VD is still continent and can do his ADLs independently. His memory is pretty good, is aware of his surroundings, doesnt wander and is still ambulatory. We have a urinal in each vehicle to facilitate frequent urination and urge incontinence. He will use it, but sometimes struggles to get his jeans zipper down…
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Validating
I guess what I need is advice on how to deal with my mother's decline. Tonight she called me to tell me that she thinks someone drugged her because she slept past dinnertime (she lives in a memory care facility). I don't want to "humor" her by validating her fears because I don't think that's healthy. But, I don't know how…
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kikippa, a TV speaker for listening to gamma waves
I saw on TV a"kikippa", device that modulates gamma waves, through a box that resembles a sound bar, and was used for cognitive care for elderly in Japan. [1] Gamma wave modulation is said to help with some elderly cognitive therapy. [2]. It takes audio (like from a TV), and alters it to include the 40Hz sound that is…
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Gamma 40Hz light treatment
Has anyone tried this treatment? A friend of ours whose father is 92 and has dementia has seen a "dramatic" improvement in mood. So - we ordered a lamp for my father on Amazon (arrives tomorrow). I've read articles that state this 'light therapy' helps those with dementia (calms aggression, improves mood, etc). The reviews…
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Cataract surgery for someone between Stage 5 and Stage 6?
Hi all, My mom has advanced Alzheimers and Vascular Dementia. I guess it is between stage 5 and stage 6. She gets full time care in a skilled nursing home. She can´t do any daily tasks without assistance (though the nurse sets her up to wash her own face and brush her own teethI, can´t walk, needs a machine to take her to…
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My heart is broken
Here I am again unable to sleep because my mom has said I hate you, get out of here, you won’t give me my meds. I’ve devoted my life to her. Given up my own. It’s hard to wrap my head around this and I’m so burned out and depressed. I can’t find my footing or my hope. I really need someone to talk to who is going through…
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How to control non stop repetitive questions?
There is a non stop question about where to sleep by my mother who has Vascular Dementia and Alzheimer. She navigate all night without problem going in and out of her bedroom but during day, keep asking on and on, where to sleep. This can go hours and hours non stop. Any possible solution highly appreciated. Tried…
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Dirty Old Man Syndrome
My DH is stage 5 or 6 with Alzy's. He has been acting like a dirty old man. Talking about let's go have some fun (sex). We have been married 37 years and this behavior is out of norm. Very hard for me to say however, he grosses me out and has ED. My question is that has anyone else experienced this.
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Moving to Another Facility
I am in the process of moving my DH from a MC facility to a Care Home. I feel lucky to have found it because it has a much smaller caregiver to resident ratio and is actually in a residential house, so it is much smaller than the place he is in now. My DH is stage 6 ALZ and I believe he will benefit form the calmer…
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In his mind he’s home??
i visit hubby in MC every 2-3 days. As soon as he sees me he’s shocked and says why are you here. Don’t I live with you. Where am I. I redirect but through the visit he wants to know why he is there. He wants to come home. So sad. I spoke to nurse asking if I’m hurting him by visiting as often as I do. She told me it’s…
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progression of disease
my DH has been kind and fun and compliant although he needs 24-hour care.. but now he sits on the couch humming and staring for hours. i try to offer activities and he says no. the past two days at bedtime he has accused me of having an affair and says I need to leave the house. i just agree to leave and the next morning…
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Good news (I think)
My Dad was originally diagnosed with MCI Stage 3 and then the doctor upgraded him to Stage 4. He just had his MRI & blood work done. No proteins found in his blood and the MRI was not bad at all. He had Mild changes consistent with his age & Hypertension history. The doctor wants to give him another cognitive test to…