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Devices or To ablet Apps with Pictures
Hi Folks, My 70 yr old DW cannot put names to items she wants or things she wants to do? Can anyone recommend a book, device or application for a tablet or cell phone that she can point to? Bill
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NHTD waiver for my Mom living with me Stage 6 Alzheimer’s
hi everyone, I’m pretty new on this forum especially posting a discussion so I’m not really sure if I’m doing this correctly. I live in upstate New York and I am my mom’s soul care provider. I moved my mother into my home eight months ago and I’m still trying to tap into NHTD waiver services in our area. Is there anyone…
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Should possible sudden delirium(?) change our plans?
Hi. Does anyone have experience with delirium or psychosis that came and went after a major life disruption? We are feeling desperate right now! It is regarding my husband’s parents (Sally 84, Fino 93). Background: They have refused to move to an AL over the years, and with some outside assistance, have managed to stay in…
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Medication Inquiry
MY DW neurologist prescribed Memantine medication to slow dementia progression. I am asking our community what side effects they have experienced and have there been positive results of using this medication?
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What to do with all the empty space when their journey ends?
I know this question has been posted before. However, when your loved one's journey has ended, what do you then do with all the spare time and energy you gave to them? My mother is in hospice now. I talked with hospice and arranged for a priest to visit her. It was not planned, but as I was entering my mother's MC…
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What to say
first, thx to all for your help and experience. My spouse is totally isolating, won’t go out and wants no visitors. I think I need to get out more, volunteering, church, etc. but what do I tell to so many people who want to see her, go to dinner, come over to watch TV? “She’s not feeling well” or “doesn’t want to leave the…
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"Survivor's" Guilt
I find that in addition to feeling guilty for the pain I am causing my mom by taking away her independence, I feel a form of "survivor's" guilt, in that it is very hard for me to allow myself to enjoy basically ANYTHING. I feel guilty feeling happy when I know she is struggling with so much (grief at the loss of her…
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Husband won't or can't ask for help.
I'm new to the group. Husband recenyly diagnosed with Vascular Dementia. I get anxiety & frustrated when my spouse is wet / lays on urine soaked bedpad & won't tell me. I'm completely new to this diagnosis. Suggestions/ recommendations welcomed.
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My father is convinced my mom is cheating (?)
Hello I am new to the group, and an unsure how to handle this issue. My father was diagnosed over a year ago, and IDK how to label his current progression. He is isolating, and unsteady of feet, has some issues with incontinence. Has difficulty following a movie or tv program. But he is still aware of who family are. He…
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Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
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Wit’s end
My widowed mom lives alone and is extremely stubborn and resistant to help. I’m an only child, and like many here, I’m also a working professional and a mom of teenagers. My mom’s memory and behaviors are steadily getting worse, and she also has anxiety. She’s manipulative and often passive aggressive with me, and she’s a…
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Obsession, Agitation, Anger
I need help and suggestions on what to do with my sister. I live with her and her husband. She is constantly getting angry over beliefs she has of her past that are not true! She's obsessed with a life that she believes was taken from her without any input from her. Not true. We can't correct her to guide her to the truth.…
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Going to sleep at night
DH with AL, Stage 3 or so, has trouble falling asleep at night. He does not take naps. Our Primary doc prescribed Rexulti, but that is going to run us nearly $200/month. Is it worth it and is there an alternative sleep aid that is okay for AL?
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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New to all of this and question about surgery
Hi, I am new to this. My 72 yo DH was diagnosed with mild Alzheimer’s, moderate vascular dementia and frontal lobe atrophy. It took 16 months to see a neurologist. In 2004, he had stage 4 lung cancer and 2005 they removed a brain tumor and he had whole brain radiation. He did fine until about 5 years ago and he began to…
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Sparring with Cousin
My dad is dying after a 2 year cancer battle. Mom has always had anxiety and some depression though masked both well. She is admitting herself for quite a while that she cannot do things. Cooking was classically the first. Decision making is not good and while ultimately my dad wasn't going to get cured, her cognitive…
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Juggling changes (driving, moving) with grief
My 84-year-old Mom lost her husband of 60 years — my dad — just 2.5 months ago. She is really grieving hard. So we are hesitant to add more unwanted changes to her life just yet. The problem is, we believe she is around Stage 3 or 4…. (Doctor just did MMES and she scored 24 out of 30, which was just below normal but we…
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Hyper Focus Help
I have been looking after my 89 Y.O. Mother trying to keep her in her home and have been quite successful for the last 6 years. However, this last year she has been turning against the caregivers that we have gotten to help me with looking after her. I have noticed that there are 2 Moms that I am dealing with - one being…
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How to Discuss Mental State
Hello. My mom moved in with me in October because she knew she could no longer live alone. I realized when she moved in that her memory loss and confusion had progressed much further than I thought. Recently, she has gotten into arguments with medical personnel and others when she is confused and doesn't understand what…
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Help me, I really messed up
Ever since my mother's stupid eye doctor told her she was okay to drive, she has been RELENTLESS. She won't drive unless I give her my blessing (thankfully), but it is so bad. In our daily phone call today, she yelled and swore at me the whole time, wanted to know why I insisted on treating her like a baby, why I don't…
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Newbie ES
Background and introduction. I am a retired environmental chemistry professor who has experienced memory changes for the past couple years. This included headaches, dizziness and an inability to focus. It took 5 months to get an appointment with a neurologist. I finally got in in March 2025. (The waiting room was empty!)…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Need Advice How To Overcome Emotions Putting Your Spouse In MC Home
Unfortunately, time has come for me to make a decision on putting my lovely wife of 55 years into MC. I just don’t know how I am going to handle this. Just the thought of it makes me cry especially when I put her to bed or when I am alone. Just feel so guilty. I can’t imagine being alone at home without her…. breaks my…
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MC to Nursing Home
my DH has been in MC for 5 months. He has declined substantially. He now can’t name objects, unsteady in feet, sometimes incontinent/BM so in depends, can’t understand to put medication in mouth, resistant to bathing/shaving/depends change. He wonders in and out of residents rooms as he can’t find his. I was just told he…
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Guilt
DH has been having episodes of aggression. Not really physical more like everything just aggravates him or makes him mad. We went to see his Nero yesterday and I was telling her about it. She increased his seraquel to 50 mg 2x a day. I don't know if I want to do this. Im afraid it's for me because I'm tired of walking on…
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FYI
For those of you who have adult children who are struggling with their parents dementia. Great place also if you are a husband or partner to your LO who has EOAD.
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CPAP advice
Our 82-year-old LO used a CPAP for years but as rapid onset dementia developed he stopped. He still seems able to sleep OK and the MC people say residents generally don’t have them (unless they know how to use them). Is that just the way it is?
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Cashing US Savings Bonds
Another post about banking and the DPOA reminded me of a different financial topic. When I was clearing out my dad’s safe deposit box before a cross-country move, I found a stash of paper US series EE savings bonds that were well past their maturity date. I was able to arrange to get these cashed by taking him to a bank…
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We can’t afford care for my mom
Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…
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Dad passed away
My dad died on Friday. He had memory issues that went unnoticed or swept under the rug for several years. He had knee replacement surgery in January. I stayed with him for a week and then my brother stayed the next week. It became quite apparent that he wasn’t safe to be by himself so he came to stay with me “until his PT…