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Taking Charge
I read this today in “Daily Comforts for Caregivers “ by Pat Samples. “When I’ve had to take charge of some areas of my loved one’s life, he doesn’t want to let go, even when he can’t manage anymore. He’s used to being in charge. Sometimes I have to be strong and insist. I can understand why he wants to maintain control,…
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Spouse of Father In Denial about His Condition
My father has dementia that is progressing, currently mid-stage symptoms, and his wife is in denial about his condition. She does not believes he has dementia and insists he is improving. I live several states away. There are some family members nearby my parents and they have tried to reason with her regarding his…
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Using Transcranial Magnetic Stimulation (TMS) to slow AD progression
Has anyone used TMS for AD? I know it is off label, and that it is a cash expense not covered by insurance, but I am looking for a provider in the Northeast (CT/MA/NY/ NH) who could treat my wife. The studies have been small, but reasonably positive in being able to slow progression.
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Durable Power of Attorney and More
This may be one of the most important topics on this forum, so I will keep it brief. Disclaimer: This is not legal advice; please seek counsel from a certified elder law attorney. There is a big difference between Power of Attorney (POA) and Durable Power of Attorney (DPOA). The documents you want are certainly the Durable…
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Education for Healthy Parent
Has anyone dealt with the healthy parent not understanding this disease ? My dad is primary caregiver for my mom. He can’t understand how to engage with her. My siblings and I have all tried to give tips, his friend who’s been through it gives him advice on deescalation but he doesn’t get it. He corrects her on facts that…
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dont know what to do
my DH is 60 years old and has been diagnostic for alzheimer, we have been in surch of a reason of his behavior,depression,etc ,for 3 years ….in november 2024 we had the answer. I dont know what to do, how this is going to turn out, i feel overwhelmed. Its very dificult to loose your spouse , becouse he dosn´t feel anymore😪
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Father should be in nursing home but I can't do it
Hi - I have a father who keeps falling and going to the hospital. I think he would be better off in a nursing home. He also has dementia and no short term memory. My dilemma is he is absolutely 100% against going to a nursing home. He literally cried in front of me saying it is not what he wants to do. I have requested…
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Assisted Living vs. Memory Care
My mom was diagnosed with Alzheimer’s about 8 years ago. She is now 69 and is around stage 4/5. She is still living in independent living as her boyfriend visits almost daily and takes her to her doctor appointments and gets her out of her room for walks or lunch. I handle all of her finances, groceries and personal stuff.…
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Obsessed about driving!
I know this has been discussed and I have read all the posts regarding this topic, but I just don’t know what to do. DH with vascular dementia cannot remember what happened 5 minutes ago or what he did today is totally obsessed with wanting his car! We have spoken about when it’s time to stop driving and safety etc and of…
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Taking away her car
Help! I am having trouble taking away car from my mother . She started swerving in lanes, and ignored the driving rules constantly . She recently crashed into a parked car and that was enough for us to say no more driving for her :( tried hiding keys, she went crazy. Tried taking away the car, but she keeps asking every…
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Ruby's Choice
I had to spread the word on this movie I came across on Amazon Prime. Jane Seymour is the lead actress in this movie. She stars as the Mother and Grandmother who suffers from Dementia. Her husband passed years ago and she's been told that he's on a business trip. Without giving away too much, her memory loss is confirmed…
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therapist
Looking for therapist for 23 year old daughter mMother is 72 with moderate dementia. Thanks
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Infusion #10
Tomorrow afternoon is Leqembi infusion #10. You'd think by now I wouldn't be so anxious about it. I've been taking anti-anxiety medication since the beginning, but ANXIOUS I am! I have all these racing thoughts, feel everything and nothing all at the same time. I know how that sounds, but it's the only way to describe it.…
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Geriatrician vs. Neurologist
My DH's PCP referred him to a geriatrician, but I wondered if a neurologist would be better. The geriatrician (we had first visit in January and will see her May 20th) is 30 miles from our house. We could see a neurologist locally. Does anyone have an opinion on who is better to treat Alzheimer's/vascular dementia?
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Can’t be pleased 😞
Coming here mostly to just vent. Mom has lived with us a little over a year now. Moved from one part of this BIG state to another after 40 years so BIG changes in every way. Left behind her bffs, the option to drive (her choice not to), the familiar, her own house, had to sell a lot of her things or put them into storage,…
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Working Through This New Diagnosis
I am now 57 and was diagnosed officially earlier this year. The doctors had an idea a few years ago, but after suffering the first Covid in 2020, they were unable to tell what cognitive impairment from the virus compared to dementia due to Alzheimer's disease. I had a 3-hour cognitive eval, the doctors agreed to wait to…
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Question about Cognitive Reserve
I understand that a high level of cognitive reserve can make a person show fewer symptoms than others with the same level of brain deterioration. My question is this - does this mean they might be more advanced in the disease progression than their symptoms indicate? Is it possible that you think someone is stage 4 based…
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I’m Scared and Alone
My dad was diagnosed with MD about a year ago. When mom was alive (she passed from cancer about 3 years ago) she was already saying dad was headed down this path although he wasn’t diagnosed. I saw it too. I noticed dad was getting worse a little bit at a time. But still, at least I thought, was doing pretty well. A week…
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Compassionate Use or Expanded Access options
Is anyone getting any therapies through Compassionate Use or Expanded Access programs? I saw a comment from someone in a Facebook group who was considering TB006 a compound being developed by True Binding. So it made me wonder if anyone here has considered it or other experimental options that are in development.
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More seizures
5 seizures in 3 months. EOAD. DW is on Keppra now. I can’t imagine this is not affecting her progression of this disease. Any thoughts!!
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Speech
My DW is in year 3 of EOAD. She’s always been a talker, talking to whomever would listen. The last few months she still talks but with her limited vocabulary she makes no sense. Her words are very clear but all mixed up. I’ve just noticed this past week that now when she talks it starts with a few clear words but then…
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MI MADRE ESTÁ PERDIENDO LA MEMORIA
Hola, soy nueva, recién pude encontrar una página que puede ayudarme, mi mamá tiene 81 años, soy su única hija, empecé a notar que algo no andaba bien hace dos años, lamentablemente por mi trabajo me enviaron a una zona de dificil acceso, aunque bajo a verla los fines de semana solo disfruto 1 día con ella, he notado…
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Automated pill dispensers
hi. Does anyone know of a good automated pill dispenser? I was on the alzstore.com and I ordered an automated pill dispenser made by med ready and it doesn’t work. For some reason I thought this store was connected with the Alzheimer’s Association, even though it doesn’t say so, and it turns out the return policy is really…
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Title Co Trouble
My DH has vascular dementia, and he’s wheelchair bound since his stroke in July of last year. He lives with me at home and I move him around with a hoyer lift. I do my best to make his life as enjoyable as possible. One thing that would make his life more enjoyable is if I had a wheelchair van to take him on rides and go…
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Who can I trust?
Hello all, it's been a while. My bf (46yo EOA) is a very active stage 7b. He is still mobile. We have entered the stage of not wanting to shower but I can get him in there (not fighting l, yelling or scratching tonight). Here is my predicament. I have been trying to find an Adult Foster Home but there aren't many around. I…
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Falls asleep but doesn't stay asleep
DH falls asleep easily at bedtime but doesn't stay asleep. I give him Mirtazapine and I added Benadryl but they don't help. Melatonin didn't help him. He wakes me up three to four times every night, turning on lights, walking around or just sitting on the edge of the bed. Is this common in people with dementia? Is there…
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Missing my mom
I think my mom has dementia, but she's in denial. I've had concerns for the past 3-4 years, but she won't get assessed. I resigned myself to the fact that there would likely be some sort of crisis and hoped that she would be open to help then. The crisis happened in February when she attempted suicide by overdosing on…
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We made it
My husband passed peacefully this morning. I woke just before and was holding his hand. I had been hoping that he could find an off-ramp, and he did. We have been blessed. My deepest thanks to all of you for your support, sympathy and advice on this long hard road. I'll come back here often. Wishing all of you peace as you…
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Just need to vent a little
On June 5th we left my DH's Neurologists office and were told that he has months to live. We werent told an actual amount of months, just months. Today being fathers day I thought maybe I would get some extra help from one or more of our 4 adult children, but basically it was on me the whole day. Im so frustrated I cant…
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When to stop Donepezil and Memantine?
My mom's hospice care suggested I let them stop Donepezil and Memantine because her FTD is very progressed. I always second guess what is the right decision with anything related to Mom's care. I asked the benefit to taking her off the meds, and they said (1) she's progressed so much that they don't help and (2) it's hard…