-
primary caregiver diagnosed with terminal cancer
I am the primary caregiver to my longtime partner who has dementia. I just got diagnosed with terminal cancer and need to decide his next options. He has an adult daughter who is not very involved in his current care. And out of town siblings who might help. Who do I talk with first and when do I bring my partner into the…
-
Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
-
Obsessed with thinking the internet company is "Stealing"
Does anyone else have to do this or just our family?
-
Hypersexuality
My husband talks about sex constantly, uses language he never used before, and is grabby like a teenager ( he's 72). I am not dealing well with this, I see him differently now that I am his caretaker and he is incontinent and hates to shower. I usually change the subject but it's making him upset.
-
Ftdcaregiver1
@FTDCaregiver1 I saw your comment (on a different discussion ) about losing your loved one this week. Just wanted to tell you I was sorry for your loss.
-
Diaper Disposal Pail
Has anybody found a diaper disposal pail that works with adult diapers and prevents odors? I have seen several on line, but most seem to be for baby diapers, so looking for suggestions. Thank you!
-
The coming new year....
In my therapy session this past week, I told my therapist that I have nothing to look forward to this year. She said I needed to find something to look forward to. I have no ideas… DH's progression? Placement? A health crisis? But seriously, do you all have any ideas? Thank you in advance!
-
Just venting
From ohio. We received 10in of snow. Can't get out of driveway. Dh has 2 sons that live no more than 10mins away. They have not called to check on us. My sons live 30mins away and are coming tonight after work to dig us out. Just peves me off! They never check on him or see if he needs anything. Just peeves me off. Ok I'm…
-
Need advice and direction
my mom was diagnosed with early onset Alzheimer’s two years ago. In June the doctor gave a prognosis of 6 to 9 months. At this point mom walks with greater difficulty, is partially urine incontinent and in pull ups full time and I am assisting with shower temp, dressing, food prep, cutting food, etc. her sentences are…
-
Clinical Trial?
Just received a phone call about two clinical trials. Apparently (will call neurologist tomorrow- office closed now) his neurologist gave his name as a candidate for the trial. He had done a previous clinical trial that only involved him giving blood so I guess that indicated a willingness to be part of a trial. First— a…
-
I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
-
LO was recently diagnosed with YOAD
My dad, who is 55 years old, was recently diagnosed with early onset Alzheimer's. I believe he is in the middle stages Alzheimer's, I'm not sure. For some reason I don't want to talk about any of it with friends or family, however, because of that I haven't really been able to come to terms with or accept it. One of the…
-
I am at the end of my rope as a caregiver
Hi all, I am reaching out because I don't know where to turn. I am a very young and active 75 and I have noticed a steady decline in my husband, age 70. I have noticed a definite decline and even tried to get him into an Alzheimer's trial, but he wasn't accepted. So I was hopeful, however, now I think he just didn't have…
-
Police called update
I previously posted about my guy hearing music and calling the police. Many of you advised I needed to end the relationship. Updates on the current situation. He continues to hear music and has called police at least fifteen times. Police have called me 4 times. They are considering have paramedics check him out and take…
-
New Years Eve
How excited was I when we received an invitation to a NYE party from our Sailability Coordinator. I thought this will be great, they understand, we haven’t been out to a party for the last 4 years. When we arrived I noticed the table set for 6 that meant us, the hosts and another couple. We had perfectly cooked medium rare…
-
Poem for my friends written by me
I can’t help you to remember. I can’t help you to remember, I truly wish I could. You think I’m someone else, not a creature in my nature. With sweet magic I wish I would. You wander from room to room looking for treasures along the way. Putting them in safe places and forgetting where they lay. I can’t help you to…
-
At what stage of dementia did your parent move from Assisted Living to Memory Care?
Was it too early or too late? Words of advice? Currently my 96 year old mom is getting assisted living level care, supplemented by a private caregiver during the day for supervision and companionship. She has alz stage 4. Does not shadow, wander, or sundown. Has some awareness of her memory deficits, so is holding back…
-
Taboo subject of divorce
Ater reading others post and knowing my own situation I am just wondering if anyone has considered divorce. I hear and believe it is the disease but also think that no one should be treated the way some are. If we are only staying out of obligation are we doing the right thing. In my situation after giving my wife a last…
-
Sexual Behavior in Husbands
Super sexed DH II feel like I am the only 75+ caregivers whose husband is constantly wanting to make love or touch, lay with, hug or kiss me. Do others deal with this and shadowing? Does anyone have help or suggestions? I'm over loved😗
-
looking for some hearts and souls that understand
Hello Dear Community, Dad and I went to a neurologist appointment today to get him established with someone here after his move closer to me. You all have supported me through so much already. I thank you. It was our first time out together since his move here in late June. It was good to be out with him. I was so nervous…
-
Just need to talk to my friends(201)
Sorry this took so long, tablets are acting up. Will post more later
-
Update: Possibly FTD?
There hasn't been much to report since my DH was released from the hospital last Fall after needing surgery for a severe cellulitis infection due to being immune compromised and refusing to shower. In November he had his fourth round of multi-hour neuropsychic testing (we are on year 8 of trying to figure out what is wrong…
-
Caring for spouse
Wishing all a Happy New Year…..I am new to the group & desperately in need of a support group! My DH is 83 & up until 4 to 5 years ago doctors would tell me his behavior was just “normal aging” until finally he was diagnosed with “moderate dementia.” Initially, some of the family questioned how he got to moderate & not…
-
The bizarre way the dementia mind works!
This would have almost been funny if it hadn't been my DH talking to me! My DH has accused me of infidelity with a particular individual on more than one occasion. I have learned not to over-react after I got really angry the first time and then realized it made no difference. Last night he accused me again, but this time…
-
I can’t !!!!
Warning … rant coming! I am literally going to scream and there is nothing I can do to make this situation better! I have no privacy no space to call my own. DH is always sitting in our small kitchen almost in the middle of it all the time! I have to walk around him constantly to do anything in there. And he watches me go…
-
My Dad has gotten aggressive and totally opposite of how he used to be
I know so many are dealing with this horrible disease and know it is a struggle!! I stay with my parents to help my mom with my Dad and she doesnt have the best health herself and I am also a single mom to a 10 yr old boy. I feel as if I am trying to carry the world on my shoulders as between work and taking care of…
-
What's your pleasure?
This is my first post! This year has been very hard for me. I moved in with my parents in February, got them well enough to move to AL in April. My mom never fully recovered from the shock of moving and she died in June. My dad will go into MC next week. Along the way, I've tried to find a few moments, a few things to…
-
How to post a message
How do I post a question on this site? It says I need to inclued one receipent . But I am new & don't have this info
-
New To the A/D group as a Caregiver.
I am under emense stress, is there a group a can attend.....(Please)
-
It's my Birthday today and I have never been more miserable
Today is my birthday (76) and so far the day has been absolutely horrible…like most days. Of course DH doesn't remember and has done nothing but complain since he woke up. He lectured for almost 3 hrs about the collapse of the US dollar and then went on with his favorite one about how selfish I am because I sequester…