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When is it time to stop Rivastigamine?
Friends, Dad is stage FAST 6/d, or prox. Had a big memory decline in the last month. Can't do any part of showering unassisted, can't remember where his room is in small care home. Tam Cummings (?) said something to the effect that the acetylcholine meds have benefit but also just make the worse stages longer. My words,…
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When to know
I currently live with my mom and she was diagnosed with vascular dementia and Alzheimers six months ago or so. She is definitely starting to change but its hard for me to tell because I am around her all the time. She still drives, etc., and I am not sure when I will know i should take her keys away, etc.
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Hospice/burned out.
My DW is in hospice now. She doesn't really understand what is happening to her. She doesn't eat regularly and doesn't sleep. Her skin is turning a yellowish color. She can only stand up to use her walker if someone is there to help lift her, then she can take 3 to 4 steps before sitting down. The care home is wonderful…
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OVERLOADED WITH INFORMATION / NEWLY DIAGNOSED
My husband was recently diagnosed at age 64 with EOAD. It has been 6 months since diagnosis, and I will say it is very overwhelming. Sometimes I just have to stay off the internet / social media. I feel like 98% is all negative. I am just surviving the now. And trying to be present and accept the now. Everything is…
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Help with phone
My 83 year old dad is in the mid to late stages of dementia. Most days he has difficulty operating his iPhone. Are there any phones for seniors/dementia patients that would be easier for him to navigate?
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Knowing doesn't change the losses
I am recently DX'd w/ early onset Alzheimer's (who I call Al, who is friends with my other guy ARThritis). I am a Former Alzheimer's specialist serving as the director of a local Alzheimer's association, Developer and creator of residential services and, in my youth, a personal care worker for those with Alzheimer's. None…
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Hallucinations
New to the forum. Excited to have a resource like this. My wife has early onset Alzheimer's. Her life is so disrupted by another person that she believes lives with us. She believes that this person steals and eats her food, steals and drinks her drinks, sleeps in the bed with us, wears her clothes, and on and on. She…
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Figetting
My DW is in stage 5/6 and will not sit still. Is there any medication that will calm her down.I have constantly follow her around and it's exhausting!
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Need to say no
I asked this in another discussion but came here due to the recent loss of my husband just a month ago. I am frozen right now with grief and am not ready to socialize. A cousin asked me to lunch tomorrow (we are not that close), as he is passing thru my area, and I said yes, but now I really don't want to go. And my…
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New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.
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father
My father has a detailed advance directive for his health. It states if he has less than 6 months to live all interventions should stop. He is on hospice now and whether he will live 6 months, no one knows. Will he live a year? I don't think so. Question: He is on insulin for type 2. I'm struggling to have them stop this…
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Venting - In Law refuse to move into Memory Care
Three years ago, we added a 600 sq ft apartment to the back of our house for my in-laws. My MIL had started wandering and going to neighbors’ houses saying there was a strange man in her house. (It was my FIL). They sold their house to help pay for the addition to our home. My MIL has advanced AD and is now giving the…
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Bible Verse to Lift You Up 2/17/26
THANK YOU, LORD! Psalm 34:9-10 New International Version 9 Fear the Lord, you his holy people, for those who fear him lack nothing. 10 The lions may grow weak and hungry, but those who seek the Lord lack no good thing. me: Life can be the pits; it can be confusing and hurting. Yet The Holy Spirit whispers encouragement and…
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Caregiving from afar
Hi there, I am new to this group and new to the dementia journey with my mom. My father passed away right before Christmas, and now she is alone in their home. I live 2.5 hours away, and my only other sibling is 5 hours away from her. Mom has been showing signs of dementia for about 2 years, but has really declined over…
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Looking for advice ..
DH has VD from previous strokes and poor CV health. We have Kaiser Senior Advantage and supplemental insurance from his work. He is an army vet but never signed up for VA medical after separation. I would like to get him signed up for VA medical, not necessarily for drs visits or meds, but down the road as he progresses he…
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Trying to leave the house
My DW who is 67 years old is in stage 5 with some aspects into stage 6. I have my daughter at home to help me so I can run errands from time to time. Just about every time I leave (only for a hour or less) my DW wants to leave the house. My daughter tries to prevent her from leaving but then my DW gets aggressive towards…
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My patient is diagnosed with Dementia
Hi, I am a licensed Practical Nurse, the business owner for a caregiving service called ' Divine Home Care Services in Jamaica 🇯🇲. One of my patient has short term memory loss and Sundown Syndrome. She loves to eat snacks and not cook food but she's calm and kind. She gets confused when the sun sets. Time confusion & where…
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New clinical trial for MCI
https://www.brightfocus.org/resource/the-ahead-study-can-alzheimers-be-prevented-or-slowed-before-symptoms-begin/
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Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.
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I'm confused (again)
My Dad has Alzheimer's/vascular dementia. He was diagnosed three or four years ago, has been in memory care for two years, and on hospice for 8 months. He sleeps a lot. Probably 20 hours a day on average - he's awake from about 7:30 to 11:30 in the mornings. He gets out of bed about half of the mornings. He has lost a lot…
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How do you deal with the trauma of witnessing this disease take over your LO?
It has been 10 years since I knew in my heart that mom had this disease, and that hoping her behaviors were brought about by something else no longer made sense. Before any doctor weighed in, I just "knew". Until two years ago, I watched my dad care for her at home. He carried the weight of the world on his shoulders. My…
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Long Story
Hi all, I am new to the online support group. My husband has both vascular and FTD. I was wondering if any other spouses abruptly left their family home during an illness that presented as psychiatric, but was later diagnosed with dementia after many unfortunate events, say 2 years. We finally had to place my husband in a…
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Memory Care and Home Visits
Is it always the case that someone in a Memory Care environment should not visit their old home for fear of triggering confusion or a desire to stay there again? Or are there examples where it can be a positive temporary experience? (In our case no one else is currently living in that home. It is located about 20 minutes…
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Adamant LO refuses to move!
I started to notice the cognitive decline of my mother in 2016, she blamed her issues on taking care of my step dad & his declining health. He passed 5 months later. She lived in their home until the pandemic was over & then moved closer to me, my sister is out of state. When she moved, she refused to look at any…
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Need prayers.
I learned today my cancer has returned. 😢. I was diagnosed in Dec 2023 and had to place my husband in memory care so I could get treatment. had chemo and then surgery in April 2024. I’ve been cancer free for 20 months. My husband passed in August 2024. I will now have more chemo and more surgery. I’m thankful my DH never…
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My spouse can’t stop eating.
He goes out several times a day to buy food. He has hypertension and heart disease. He eats highly salted food. I am afraid he will have a stroke. Any one relate?
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Incontinence pants
just saw an ad on line for Dryment incontinence pants. Anyone know about these, are they all they say they are ? Thanks for your input!
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donate adaptive clothing?
I have multiple sweatpants/t-shirt zip up the back clothing items from Buck and Buck. Where can I donate them to get them to someone else in need? They are such a specialty item I do not want to just drop off at Goodwill, but I may resort to that if I can't find other takers. Any suggestions?
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Suggestions needed
My husband and I moved in with my mother in law (83) about a year ago to help her. She lives in a large home with an inground pool and the maintenance was becoming difficult for her to handle. We also noticed that she did not remember questions she had already asked us, or if she put food in the oven and would forget about…
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Mom moved in
Hi , this is my first time on this site. My mom moved in with us in November because she stopped taking care of herself . I am wondering if anyone knows of a reputable service to use for someone to come into the house 2 days a week or so to help her so that my family and I can still maintain our own life .