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Care documents
I tried enrolling my DW in day care a couple of days a week. After all paperwork was completed and just a couple of days before she was to begin, her enrollment was denied due to possible fecal incontinence. (The facility did not have a shower). This information is being mentioned because of things I may have subsequently…
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Doctored: Fraud, Arrogance, and Tragedy in the Quest to Cure Alzheimer's
Been hearing a lot about this book recently through podcasts and interviews with the author. Very important to know about this misconduct in the Alzheimer's research field. It's so discouraging to know this is happening. Doctored: Fraud, Arrogance, and Tragedy in the Quest to Cure Alzheimer's…
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Pros and cons of a safety gate
I've read other posts on safety gates, such as the ones used to prevent falling down stairs. Do you have experience in using a gate to prevent entry of a PWD to a kitchen? I suspect it will cause intense anger, but let me hope I can control that. I've tried to use distractions to prevent PWD from entering the kitchen and…
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The Guilt? Sorry for this being SO LONG.
My Mother was diagnosed a few years ago and is now mid stage, I guess. I live with my parents and my older brother. (Long story.) My parents are in their 80s. My brother is mid 50's and I am 48. I'm divorced (and single) and have 3 children of my own ages 15, 21 and 22. I work full time and commute an hour each day. I…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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The Laugh & Cry Moment of the Day
Ok, just venting here, but…DH leaked a bit into the multiple pairs of pants he wears (still trying to find some sort of disposables he will tolerate). He didn't say anything; I found them over on the air purifier and threw them into the laundry. This happens frequently, no big deal. I then asked if he would wash himself…
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Treatment for AD with Lecanemab injections
Has anyone undergone treatment for AD with Lecanemab injections which are given via infusions every 2 weeks? If so, I'd like to know how it's going, the length of time the treatment has been going on, and the efficacy of it. Do you see any improvement in cognition and memory? Has cognition and memory remained about the…
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In-home care for parent--where to start?
I recently moved back to near my family after decades away b/c my father was diagnosed w/ ALZ a few years ago. He and my mom are adamant about remaining at home. My dad has fallen 3x in the past couple of weeks. Does anyone have recommendations for where to begin to search for an entity/agency to start getting in-home…
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Living situation options
Mom has been recently diagnosed and extremely suspicious of Dad. So much so, that she does not want to live with him. She has wandered twice, but I've been quick enough to corral her which was tough even though I work from home (if it keeps happening, I'm sure my job wouldn't appreciate it). The second time was especially…
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What to do in emergency!!
I asked my wife if I collapse and was unresponsive what would you do. She had no idea who to call I told her 911, 15 min later I asked her again had no idea. This does worry me as shit happens. Has issues using phone. ANY IDEAS
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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tracking watches
Does anyone have experience of tracking watches? My husband can get slightly lost when driving so I would like to get ahead of the game. We are not terribly well off so am looking for something simple but effective.
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Sold my DO car
well… I finally figured out how to stop my DO from driving, I sold our other car. He always drove the jeep and now only “my” car is left. I told him I’m the primary driver so he can’t drive. So far it’s worked! Desperate times call for desperate measures, I feel so much safer. He tells me I don’t trust his driving anymore!…
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ho perso mia moglie a causa della sindrome Alzheimer/Corpi di Lewy.
Salve sono stato il marito di Margherita, la mia bellissima moglie, giovane intraprendente e amatissima compagna. Dopo alcuni anni di questa malattia incredibile lei se ne è andata lasciandomi solo con due figlie, Alice e Valentina, già grandi. Ma la sua assenza è incolmabile, per me e per loro anche se stanno reagendo…
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Phone concerns
Hello. I'm new on here and newer to this in general. My great aunt is in AL and was diagnosed with dementia back in November when she was declared incapacity by 2 doctors. She doesn't want to accept this. She is constantly using her phone to make calls to the library to get phone numbers. To call her insurance company and…
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Burnout
Well…I sure have it. I don't know how so many of you have been able to manage caregiving and working. I finally got some day caregiving in place, but a bit too late for my own mental health. I'm not physically having issues, but I just cannot get myself up and out of the sad, crying all the time, agitated and worn out hole…
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COVID Isolation at MC
I saw my mother on Sunday (Jan 26). She was in good spirits and more like herself than she has been for a long time. We had a nice visit. I hugged her goodbye, and everything was fine. I got a call from the MC unit at work this morning, Monday (Jan 27), and they said she tested positive for COVID. I was shocked. The more I…
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UTI/Constipation
Hello all, Does anyone have issues with the person they care for getting UTIs consistently? We’ve been using wipes and cranberry pills, but my mother keeps getting them. Any other remedies that worked for anyone would be helpful! Also she had been consistently constipated. She has Metamucil every day as well as a glass of…
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How can I stop seeing a particular discussion?
I love this site and the community brought together by this horrible, isolating disease. Sometimes a discussion goes to a place i don't want to see and I would like to stop following that single conversation. Is there any way to block just one conversation? Thanks jehjeh
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Thank you so much!
I am so grateful to this group for having given me advice and directed me to resources to help get my parent to a safe place where she is well cared for and seemingly content. This is a small miracle to me seeing as this journey started out with her living on her own states away from family, very isolated, in denial or…
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Quote for today…..
My life is a fairy tale but I now know the author was German.
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How many caregivers are keeping their spouses at home until the nightmare ends?
I’m absolutely determined to see my DH through this nightmare. I am determined to keep him home until the end. Are there others out there that are doing this and have you managed to keep your sanity through it? My husband is in stage late 4/early 5. He’s always been extremely calm, kind, gentle, helpful, loving. I just…
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Haven't spoken to aunt in months with dementia
I live out of state. Aunt has dementia and incontinence. She has family who live closer. My cousin was good about giving me updates on my aunt when she wanted me to come and take over. Since I drilled that that was impossible, I rarely hear from her. I sent cousin a text asking how she was doing. She hasn't responded. Aunt…
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Bible Verse to Lift You Up 2/2/25
LOVE John 3:16 NIV For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. John 14:16 And I will ask the Father, and he will give you another advocate to help you and be with you forever— James 1:5 If any of you lacks wisdom, you should ask God, who…
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Bible Verse to Lift You Up 2/2/25
LOVE John 3:16 NIV For God so loved the world that he gave his one and only Son, that whoever believes in him shall not perish but have eternal life. John 14:16 And I will ask the Father, and he will give you another advocate to help you and be with you forever— James 1:5 If any of you lacks wisdom, you should ask God, who…
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Drivers License / State ID
Hello - My Mom's drivers license is expiring next month. She currently is in Assisted Living with moderate symptoms. She is under Hospice care and Broda chair bound so there is no way I can get her to renew the license or really change it to a state ID. Does she need a State ID? I checked and the only thing I can find is…
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Does your spouse resent that you put him/her into Memory Care?
How common is it that a person entered into Memory Care against their will resents and refuses to let their spouse to visit them? My concern is that she no longer wants to see me after I put her in memory care. Background: My DW has a moderate to advanced level of Dementia. She is in denial there is a problem. She already…
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How can I stop his lectures...he is driving me crazy!
My HWD has always gone on and on about things and lectured for hours if he could get away with it…people would actually ask me if he has an 'off button'. Now, with alz, he is unbearable. After 2 relatively normal days…no major meltdowns anyway…he has had 2 days of constant ranting, raving and lecturing…for 5 and 6 hrs at a…
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Vascular Dementia
Hello everyone, Im new in this group and i just find out about my father that he is diagnose with Vascular Dementia and this is new in our family. Since i decide to be his caregiving for him i would like to know more what support i need! He is 77 years old .
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Familial AD
Hi everyone. I am new to this group and am in shock. I recently learned that my father and grandfather both died of EOA. I was adopted so I did not know this history until recently. They both started symptoms in mid 60s and died at 69 and 70. I am devastated, terrified, depressed, lost. I have been reading everything I can…