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Got the Job. Now What?
I was offered the job in Manhattan. Start date 10/20. 3 weeks from now. I should be celebrating, but it just complicates my situation. I have three options, none of which seem very good: 1. Take the job, and move both me and my mom up there, somehow, in 3 weeks. Find new apartments in NY, break leases, hire moving company,…
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Sharing a tip to get DW to change clothes
DW is early stage 6. For the past few months it has been a struggle / conflict to get her to change her clothes. I have found something that seems to work (for now) and would like to share. If I tell her to change right when she wakes from sleep, we are able to get into clean clothes with minimal to no resistance.…
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THC for caregiver
So this may not be for everyone. But I became so desperate for some relief I figured, why not. It had been over 40 years since I had my last puff so I went to one of these smoke shops and got some gummies. I go lightly, just using a half of one. My wife of 40 years is in her later stages and we go through all the stuff you…
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What did the techs just do here?
@ALZConnected Moderator I couldn’t get to posts for a few minutes. Now that I can member’s profile are randomly showing up next to their screen name on their comments including mine. So I have edited my profile to say ‘removed’. Which didn’t help because my profile info showed up on this comment
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Processing The Grief
My dear wife left us three weeks ago after her eight year battle with this evil disease. I have been her primary caregiver throughout, supported most recently by a couple of caregivers for several hours each day. The family and friends were there for us at the end and for the week or so after the funeral. They all must go…
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ALZ Caregiver Zoom
For anyone who may be interested, I created a Zoom meeting for next Tuesday, September 23 at 6 PM EST. I hope some of you see this and will join :) Elyse Caldwell is inviting you to a scheduled Zoom meeting. Join Zoom Meeting https://us02web.zoom.us/j/89572217820?pwd=eBt4xrqL3OB87URTZedzCr1ZZ0okPZ.1 Meeting ID: 895 7221…
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Medicare Question
Hi everyone, My mom was just diagnosed with Alzheimer's (mild) state. She currently has Medicare under an Advantage Plan - United Healthcare. Because of her new diagnosis, we are considering moving her back to Original Medicare in order to have more options for care. Does anyone have advice about this (i.e. having Original…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Just need to talk to my friends (210)
I started this months new thread, 210, but entitled it 110. I tried to delete or change it but didn't work. Maybe this will. The other one is saved somewhere. So sorry for the confusion.
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Alzheimer’s
I was diagnosed with Alzheimer’s about 6 months ago. Is anyone being treated with Kisunla? I started infusions about four months ago. After each infusion I get terrible headaches for about two days.
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risperidone vs seroquel
I've recently only learned about seroquel by being on this site. My DW has been on risperidone for a very long time. One of the side effects is akathisia, or restlessness. Over the last several months she literally is spending 90% of the day on her feet pacing. She can't sit for more than a few seconds and she's up again.…
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Wanting to go home
Does it ever end, talking about going home? DH says "I need to head to the house" or "I need to go home." Please tell me it will stop. It's driving me crazy.
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Do You Ever?
Do you ever get so confused listening to your PWD that you wonder if you are the one impaired? There are times my DH’s view of reality is so different from mine that it makes me question who is grounded in accurate memory of the event. It is hard to describe but his verbal skills are excellent and in tact. He made his…
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How to help mom when dad has the disease
My mom and dad are living in a memory care facility. My dad has Alzheimers and my mom does not. My dad is in the later stages of the disease and has recently begun calling my mom his ex-wife AND has been seen holding hands with other female residents. My mom has been sobbing uncontrollably. She's feeling guilty when she…
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Feeling Guilty
Both my father and mother entered a nursing home a few months ago. I stop by each week to visit them. Its so clear they are unhappy there. They look at it as a huge loss to their freedom. The staff tell them what do - "sit here" "sit there". They are adults but treated like children sometimes. I feel terribly guilty and…
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Area Agency on Aging assessment
Has anyone gone through a screening assessment with the Area Agency on Aging for Medicaid waiver in Florida? From what I understand, based on your answers you get assigned a priority for the waitlist for the waiver. If anyone has experience with this, I’d appreciate any advice or tips.
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Interview a doctor?
Hello, Nice to meet you all- I'm looking to pick a new primary or geriatric spanish speaking doc for my Mom (75) with early alzheimers when open enrollment happens for Medicare. But, I wish there was a way to interview them first before making them her doctor. Is that a thing? Is it weird to do that? Do people do that?…
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Seroquel vs Mirtazapine
I've been reading a lot on this forum about Seroquel. DH is on Mirtazapine, and I've wondered if Seroquel would be better. Has anyone here switched from Mirtazapine to Seroquel? When I asked our PCP about it, she said she could research it, but she also suggested that I ask the wonderful people here if they've had any…
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Seroquel
The neurologist just prescribed seroquel. Any comments
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We need guidance 🙏
We moved my MIL (83alz) out of her state and into our home in a different state 9 months ago. She is mid-late stage and still physically capable. She obsesses over 2 specific things and we haven’t been able to redirect or stop it. 1- she thinks she needs to go to the bathroom constantly. She goes back and forth from one…
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Urge to pee but no pee
Been dealing with toileting issues at night the last couple months with the last few weeks increasing in frequency but this is a new one. MIL has been up and down multiple times during the night feeling like she has to pee but is not able to pee. She had two urine tests last week. First was inconclusive. Second was done…
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Here's a new one I wasn't ready for
Dad was diagnosed with VD and onsight AZ almost 4 years ago. He has been in AL for the past 6 months awaiting "home renovations" and plans to move into the home when finished (depending on the day and time of course as it changes daily for him). He's doing really well and 99% of the time he absolutely loves it and the…
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I have EO alzheimer's
It took forever to accept this diagnosis. My family has always held me to very high standards. Along with the diagnosis they all stopped contacting me. I have begged anyone even my husband to come talk to my doctor during my appointments. They all tell me this is my problem. My doctor thinks I need to find alternative…
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Project Lifesaver- free gps tracking watch
https://projectlifesaver.org/ Project Lifesavers is part of local sheriff’s offices. They give out free gps tacking watches to Alzheimer’s and dementia patients. They will take information on your loved one in the event he or she is lost.
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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Facebook Alzheimer/Dementia Group
I am curious if members here are aware of the Facebook group titled "Alzheimer's/Dementia Help & Support Group". A I have noted in other posts, I only learned about this forum later in my wife's condition but found it, and continue to do so, extremely helpful. Not being active at all on social media until very recently and…
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Rushing into caregiver arrangements
Although being with my DH with Alz 24/7 is driving me crazy, the nuances and limitations of working with a caregiver have begun to reveal themselves. I finally reached out to some people on Care.com and found myself rushing into an arrangement set to begin in a week with the first caregiver I met. The arrangement is based…
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What made you decide to place your LO in a SNF?
Hi, We don’t have money for MC or help at home. In fact, I stopped working early, depleted my savings and retirement, and my oldest son has been living with us and paying the bills for two years. Those might be enough reasons to place my partner in SNF—so I can work and my son can move on with his life. What brought me to…
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Frustrated and overwhelmed
This is my first post. I am not tech savvy. I am so frustrated and overwhelmed with my husband. I try to be patient but I find myself getting mad at him and it isn’t fair.my heart knows this but in the moment I lash out. I am in NH and can’t seem to find a local support group that I can attend in person. I do think if I…