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I am forgetting, too
I usually am very organized, but with the stress of a DH with dementia, I am forgetting appts, lose things, and run around and getting nothing done. I know it is because of the caretaking, and am the ONLY caretaker because family has turned away from us because they just don't want to deal with this private hell
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Phantom Pain
I was just wondering if your loved ones with dementia experience phantom pains. My DH has been complaining of his thigh hurting for a few weeks. No visible signs of anything. I thought maybe a pulled muscle but after a few weeks it did not go away. He doesn't do anything physical activity except walk and that is only one…
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To My Fellow Warriors
This journey is the worst, yet we all get up, stiffen our spines and get back at taking good care of our LOs. We get irritable, cry, depressed, exhausted, and we still get up and take good care of our LOs. We put our needs second to make sure our LOs are safe and comfortable and get up the next day and do it again.…
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Struggling
My DH gets belligerent when I tell him No. We have a rodent problem in our subdivision and I’ve had to hire an exterminator to place bait traps in our fenced yard as I’ve explained to my DH that he cannot let the dogs out. And there are kill traps set in our shed that must remain closed. I just came out of the bathroom and…
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Lost partial denture - what about eating?
My wife lost her partial (upper only) dentures. It's been about 10 hours now. She has had new partial made but she can't get them for at least another week. The center she goes to has the dentist on Fridays only. I have several teeth missing, both top and bottom, and it doesn't bother me to eating soft or hard food. I do…
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Happier When I leave
Hello, So I noticed after 9 years of seeing my mom. I am happier when I leave the NH than when I go. I noticed that with the other visitors today as well. However thank God I saw her again. God bless.
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What is a "good" day for someone with dementia/alzheimers?
I've been told that my brother was diagnosed with Alzheimer's. However, when visiting him, I am not seeing any indication at all. Does having a good day mean the complete absence of symptoms? I am very concerned that his wife is exaggerating. I don't live in the same state, so I don't seem him all the time. However, my…
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Medication control
I have a delemia. HWD can no longer be in charge of taking his main pain med. He forgets when he takes it then takes more. I have started controlling the med bottle and omg it'd causing so much stress for him. I put his daily dosage out for him and as of late he's becoming more hostile and defiant. Name calling too. I hate…
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Refusing Treatment
My DW has moderate-to-advanced AD. I am her caregiver and managing without help thus far. DW has arthritis in her thumbs and frequently suffers from strained muscles in her lower back. We have seen specialists for both problems. The doctor's instructions were to use diclofenac sodium gel for the thumbs and lidocaine…
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Dementia advancing
My mom’s MC called, then hospice social worker who visited. Dementia is advancing. She fell again (getting out of chair), doesn’t use walker, was up all night. I saw her last night and it’s true she REALLY just wants to constantly be walking around. They said the redirection has been hard. They have to lock peoples rooms…
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New stage?
Mom states she had been having urinary urgency for the past 2 weeks. She denies any known symptoms of an UTI. She has an upcoming appointment with a urologist nonetheless. Last week, she was mortified when she did not make it to the toilet in time, ending up having her bladder totally emptying itself on the floor of her IL…
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How to help LO adjust to MC
My parent is mid stage of dementia and was placed in a high quality memory care facility (supposedly the best chain in the country per US World News and Reports). This facility has programs for all levels of dementia including higher functioning people like my mom. She has been there for 6 months and she is just not…
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Waking up multiple times a night very agitated and confusedted
I read many posts about spouses sleeping many hours at night and daytime sleepiness. My husband was prescribed trazadone, 150 mg, to help him sleep. It does help him sleep, falls asleep in 5 min or less but only for a 2-3 hrs. He moans and groans then startles awake, appearing scared or confused. When i ask what's wrong he…
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Question severe difficulty walking.
My DH has started shuffling when walking. His ability to walk has severely declined rather rapidly in the last few months. His gate is unstable snd takes baby steps. If anyone can share their experience. I am not sure what to do and if there is any help or therapy. Is this part of the Disease? Thanks for sharing.
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Speech and Language Referral
My DH has AD and Logopenic Aphasia. Last summer his neurologist (in a Memory and Cognition Clinic) referred him for a speech and language evaluation, and after a 2 session lengthy assessment we were basically told that the aphasia was too far progressed for her interventions and it would just be frustrating for him. She…
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The Unexpected Journey 8/26 on abc
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Newly diagnosed with MCI
I have had the MoCA test and 2 Quest Diagnostics blood test: PTAU 217 @ 0.18 (normal < or = 0.15) and PTAU 181 @ 1.48 (normal < or = 1.07) After reading about these test it appears to me that I likely have early stages of AD. My personal Dr. has played this down and just says I have MCI and wants me to do red light therapy…
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Neighbor Gave my Mom A Cat...
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Two weeks in
My husband was diagnosed with dementia two weeks ago. He is on anti-seizure medication. The insurance continues to deny the doctor's request for a special Pet Scan. I am just beginning and with his denial that he has dementia and the problems with the insurance company, I don't know if I can do this. I have stage 4 cancer…
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Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
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Mom's been in MC for a week
She is confused by the move. The MC staff say she's handling it better than most. She is "polite and compliant" and willingly joins activities. For that I am grateful, because she was always a very social person. Mom is now early Stage 6, but still has strong social skills, and there are some other ladies in MC like that…
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Moving Day is tomorrow.
I have been with my loved one since July of 2019. Luis was diagnosed in August of 2023 with early onset alzheimerz stage 4/5 at the age of 44. This has been a long journey. I longed for the days to have a normal life. I knew the day would come when he would have to go into a facility of some sort. Well tomorrow is the day.…
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My own irritability as a caregiver
my DH has Alz, early to mid stage. My mood is so up and down in this caregiver role. I can feel very irritable, and angry with his responses. Other days I’m able to cope. I don’t like myself when I get so negative and can’t seem to let it go. I don’t take it out on him but I’m sure it shows. Any suggestions how to stop…
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POA financial decisions
I'm the POA/trustee for my parent. The legal documents say that all costs related to care of the person will be paid by the parent. I live out of state. Flying out there is a significant cost for me and flying out as a family is prohibitively expensive. My husband was laid off a few months ago and my job is at risk. Flying…
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So over this...
I hate my husband. I've been thinking this way for a long time and just felt like I needed to say it. I hate everything about him and this disease. I have no help, so the last 7 years have been very difficult. I have some in home help starting soon. Sorry to burden everyone with such a negative post.
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Should we visit every time my LO in MC calls and is scared?
I so appreciate this group the ability to ask this question. I am supporting my mom long distance who is supporting her sister (my aunt) who is in memory care for Alzheimer’s. My aunt never married and has no children of her own. My aunt calls my mom several times a day confused about where she is and sounding scared. My…
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Have no support
Once I reached out to family and friends about DH , they avoid me like a disease. Now I am fully isolated and am constantly apologizing for him or arguing with him.
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Becoming a Caregiver
I've heard that individuals can be designated as a paid caregiver, or a care aid. Does anyone have experience with this process? I want to set-up my wife as a care aid, where she checks on my dad (early onset dementia) a few times a week to make sure he is getting his medications right, is eating well, has a clean house,…
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Exhausted By Mood Swings
Hello all. I’m new to the forum. My mom lives with me and was recently diagnosed with Alzheimer’s and vascular dementia. Does anyone else deal with what seems like hourly mood swings? One minute she’s fine and knows who I am and the next she thinks I’m someone else and she’s just visiting. It changes so many times during…
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Moved Mom to Assisted Living
Hello, I am new here and just hoping for some suggestions and insight. My mom was diagnosed about 2 years ago. She recently fell and broke her hip. I have been trying to move her for over a year with no success. She is in complete denial and insists that she can take care of herself. She is 89 years old, doesn't drive, and…