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New Fear Unlocked
I have benefited so much from different posts I've read since finding this site. Until recently, I allowed my DM to hold on her debit card and credit card since moving into an IL facility. After reading horror stories of scammers, both here and in the news, mom consented to having me keep her debit card. I left her credit…
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Father
So I’m kinda in the middle. I’m trying to stay positive and help my mom as she cares for my father yet the same time it’s like I’m mourning the loss of my dad, or the man who I knew as my dad. He’s in the stage now, where he’s talking about the past so much that he believes were in the past. He’s digging through stuff all…
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New hospital visit
my DW just went into hospital with pneumonia. She is now back at home with in home hospital care. She had this once before two years ago. 24 oxygen and daily nurse visits. It is demanding for me but better here than going to hospital. Another part of this journey.
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The Long Goodbye
My beautiful, sweet husband passed away a little while ago. I was sleeping, and I don’t know how I will ever forgive myself for not being with him. I have to comfort myself knowing that he is free from this awful disease; the pain and confusion. He was the best thing that ever happened to me, and I know this world is a…
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Newly diagnosed DH
My DH 57 years old just diagnosed. It was a long taxing diagnostic process of tests as I’m sure most or some can relate. My DH exhibits a terrible loss of emotions/cold/distant-he becomes mean and harsh- curses. It’s been difficult to let go, but he seems happiest at least for him, when he is alone doing yard work/watching…
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Physically Fit
When my mother went to the ER twice this spring for syncope (fainting spells), both doctors looked at her test results and marveled at how physically fit she is in spite of the dementia. She limps a little bit due to a troublesome hip, but she's strong. Her posture is good. She takes BP medication and Seroquel for anxiety,…
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Total Hip Replacement?
My DH is diagnosed with severe hip degeneration and is in need of a hip replacement. DH was always active, but now has little interest in anything but radio and tv and his phone. He started Leqembi 2 weeks ago and I am in a quandry of what to do… He has had steroid injection and intra articular with no relief. He is now…
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Dad needs care too, though.
Hey y'all! So my Dad is 82 and in relatively good health. My Mom is 80 and is in late state Alz. ( I think.) Her symptoms are a little different than some, in that she is unable to really hear…she can't see well…thank goodness, her attitude is usually upbeat and positive. However, she doesn't talk much now and when she…
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Reappearance of distanced siblings
My Father was diagnosed with VD with onset AL 4 years ago. I took over as POA due to a broken unrepairable bridge between my Sister the former POA, and Dad. I've learned so much about their former relationship in the last 4 years and frankly, I wish I woud have found out sooner in order to rescue Dad. She kept him in the…
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How to truly block spam phone calls
My father has dementia and is eager to talk to every telemarketer. This has the phone ringing dozens of times a day, with him wasting lots of time talking to people selling services he doesn't need. Worse, the caller is sometimes a scammer, and Dad is gullible enough that he's given away his credit card and other sensitive…
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Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
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Dating while still married and caring for my wife
I've been taking care of my wife for the last six years, and moved her into a memory home three months ago. I'm ready to move on with my life and start dating. I met a woman, but she's concerned I'm still married. I know there are other people out there successfully dealing with this situation. And I've even seen articles…
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Therapy?
My DH is probably between stages 3 and 4. I am mourning the loss of my life partner, stressed by my new responsibilities, and dreading what comes next. My sister wants me to see a therapist, but I view this as another task to complete in an already-busy day. I would appreciate anyone willing to share their experiences,…
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Keep Putting Off MC Visits
Placed DW in MC four years ago, and it was the right decision. Moved her from a deteriorating for-profit facility to a public facility providing excellent care. She is happy in her circumstances - still aware enough to interact on a limited basis with others, feed herself with assistance, and so on. As her early-onset AD…
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Sleeping Patterns Changing
Hi All, I’m noticing my LO isn’t sleeping well at night and now sleeping most of the day. He has severe sleep apnea and we have tried every gadget to help him sleep but he can’t handle the mask at all. He wakes up all night because of dreams that he interacts to. I finally moved to another room so I can get sleep but I…
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Has anyone come up with why they HATE to bath ???
Why is showing or bathing such an issue with this illness. I’m not there yet but not looking forward to that scenario.
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Thank you Alz Connected and All of you
I just wanted to say THANK YOU to each of you. Thank you for this association and for this page. My mama passed away at home on Thursday, June 19th at 2:30am. She was taken to the doctor on June 6th for what ended up being shingles and a UTI. At that visit, the doctor suggested that we may want to look into In home hospice…
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Books, and thermostats
Two questions today… Suggestions, please: My partner has always been a big reader, though she hasn't been able to follow a story (on tv or by reading) for a couple years now. She always wants to carry a book with her and does sort of read it. Everything we have at home has been deemed "too negative," or "not interesting"…
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Managing Early Stages
Good Morning from Michigan, I am the sole coordinator for my mom who is in "early" stages of Alzheimer's and recently moved to assisted living. My mom was overly independent for most of my life and this shift has been difficult for her as well as for me. I am trying to manage the constant contact over her hyper fixations…
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Dad in nursing home - desperate to leave
Hi - I had to put my Dad in a nursing home last week because of physical reasons and some low level dementia. He calls me 20-30 times a day telling me he is in a prison and wants to leave immediately. I am at a loss because my sister told me this is the only solution we can have for him (we have no money and medicaid and…
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Research- another approach in the search for answers about brain disorders
Explains a lot of behaviors.
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Does he think I’m his Mom?
My DH is stage 6. He’s at home with me. For awhile now he’s been calling my Mom quite often. Do you think he really thinks I’m his Mom?
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
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I'm at then end of my rope as a caregiver.
my 93 year old mother was diagnosed with ALZ dementia 11 years ago (2014). she's required 24-7 care for the past 8 years. her illness has been advanced since 2017. i am the primary caregiver at her home. the past few months have been awful. her occasional threats and refusal to co-operate have become almost routine.…
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Taking Charge
I read this today in “Daily Comforts for Caregivers “ by Pat Samples. “When I’ve had to take charge of some areas of my loved one’s life, he doesn’t want to let go, even when he can’t manage anymore. He’s used to being in charge. Sometimes I have to be strong and insist. I can understand why he wants to maintain control,…
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Spouse of Father In Denial about His Condition
My father has dementia that is progressing, currently mid-stage symptoms, and his wife is in denial about his condition. She does not believes he has dementia and insists he is improving. I live several states away. There are some family members nearby my parents and they have tried to reason with her regarding his…
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Using Transcranial Magnetic Stimulation (TMS) to slow AD progression
Has anyone used TMS for AD? I know it is off label, and that it is a cash expense not covered by insurance, but I am looking for a provider in the Northeast (CT/MA/NY/ NH) who could treat my wife. The studies have been small, but reasonably positive in being able to slow progression.
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Durable Power of Attorney and More
This may be one of the most important topics on this forum, so I will keep it brief. Disclaimer: This is not legal advice; please seek counsel from a certified elder law attorney. There is a big difference between Power of Attorney (POA) and Durable Power of Attorney (DPOA). The documents you want are certainly the Durable…
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Education for Healthy Parent
Has anyone dealt with the healthy parent not understanding this disease ? My dad is primary caregiver for my mom. He can’t understand how to engage with her. My siblings and I have all tried to give tips, his friend who’s been through it gives him advice on deescalation but he doesn’t get it. He corrects her on facts that…
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dont know what to do
my DH is 60 years old and has been diagnostic for alzheimer, we have been in surch of a reason of his behavior,depression,etc ,for 3 years ….in november 2024 we had the answer. I dont know what to do, how this is going to turn out, i feel overwhelmed. Its very dificult to loose your spouse , becouse he dosn´t feel anymore😪