-
Looking for a regular online support meeting to attend
Hi, I am the life partner of someone with between mild to moderate dementia. He and I would like to attend something together so we can hear together what is ahead and what works to help with different aspects of the disease and its progression. Any links appreciated. Thank you
-
Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
-
Downsizing with Dementia
It's been three years since the official diagnosis though it was happening way before that. And I realize I haven't looked back. I haven't looked back at how we were before all of this crept in ever so slowly. And I actually forget who he was sometime back in our lives together when I never imagined anything like this. And…
-
How to get LO into assisted living
DW is in late stage six, with complications of paranoia, panic attacks, tachycardia, separation anxiety and is highly likely to have a complete meltdown upon being admitted to memory care or assisted living. How is this handled? I have been putting it off for over two years. Are strong sedatives an option? At least to get…
-
Caring for mom with a/s of dementia
my mom clearly has signs of dementia. Have taken her to her Kaiser PCP to confirm and get HELP as I have no idea on what I need to do. Unfortunately after four visits, still no diagnosis or referrals or assistance/advice except deal with symptoms as they come! It’s really hard dealing with this. I want the best for her but…
-
We Don't Talk Anymore
My wife has ALZ Stage 4, entering Stage 5 this year. There have been many noticeable changes, most obvious is that we don't talk anymore. She is very quiet, sometimes sitting and staring for long periods. Occasionally she tries to speak but can't think of the words and then just drops it. This is creating an atmosphere of…
-
Caregiver
I want to be my dad’s caregiver and get paid for it. He only has Medicare. Any suggestions?
-
Dementia
Lately, my wife doesn't wash herself or use deodorant and she wears the same clothes for days. Her memory is getting worse, but she maintains a good appetite. I would ask her about her hygiene but she feels as though I'm treating as a child.
-
Warning
My BF passed away last night unexpectedly. Her Dh has alz. Stage 6 .She took care of him by herself. Her kids have have no idea of what to do with their dad. They know nothing about his meds.,his sleep habits,how to get him changed or anything. She didnt keep them informed on anything. There is no poa or will or guardians…
-
SSDI and anosognosia
My DH is 56 and has been diagnosed with EOAD. He knows he has “memory issues,” but he does not know how severe. He accepted a voluntary severance package from his employer last September and has told me nearly every day since that he’s going to apply for jobs. He did apply for one job, and to make a long story short: he…
-
New to the group
I have just joined the group and Im not quite sure how it works. My husband (age 65) has early onset alzheimers. We have been struggling with issues for years, had numerous tests, no doctor has been willing to give an official diagnosis. He recently took the PTAU217 test and his numbers were completely off the chart. A…
-
Senile Dementia
My wife has been diagnosed with senile dementia with behavioral issues along with schizophrenia, paranoia, and hallucinations, she was discharged from the hospital this week as the hospital says this is her new baseline and there is nothing else they can or will do. What do I do now
-
Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
-
DH won’t let me change him
My DH is in memory care and won’t let the aides or me change his wet Depends. He gets very agitated if I ask him and has punched me. He does the same with the aides. It doesn’t matter what time of day I try. It is always a battle. The Dr put him on depakote to try to help with these behaviors but it hasn’t made a…
-
Lonliness when caring for a spouse with ALZ/dementia
My DH is not quite in the middle stage of ALZ, and most days he is "normal", but he isn't really. His critical thinking has diminished in most everything except math. We used to have spirited discussions about matters of faith, politics and so on. Now, half the time he can't hold a discussion about a movie that we watching…
-
I’m new
hi I’m new to this. I care for my dad who Alzheimer’s and I live with him. He’s 71
-
Diagnosed. Total confusion. Down then up?
There was an error rendering this rich post.
-
Help! Dealing with Agitation, Alligators and threats of dying
My mom, 80 (living at home w/my 80yr stepdad) She has been on multiple painkillers, trazadone, Valium for years (I believe clearly over medicated)...who is been diagnosed by some drs with dementia/alzheimers ...and other not...clearly is suffering from dementia and delusions. Been in and out of MC for last 2yrs. But at…
-
Dr. took mom off all meds
My mother was on Memantine, Donepezil and Quetiapine. The first 2 caused her explosive, continual diarrhea the last caused her extreme skin picking. This is the 2nd day and I have noticed that she is better so far. I read where Quetiapine should never be given to Alz patients, but at the day care center everyone of them…
-
Dads journey
my dad is 89 got diagnosed in 2018 with Alzheimer’s my wife and I moved in with him so he could stay in his home he hasn’t gotten to a violent or non verbal stage yet but his incontinence has become more prevalent because of the Alzheimer’s no it’s 4or 5 accidents he’s a veteran was in the Air Force for 20 years working on…
-
LGBTQ Eldery Father community
Hello my father was just recently diagnosed with Alzheimer’s via MRI Amyloid scan. Its still early stages but as we know the eventual progression as he decided, which my sisters are aligned on, to not test the brain infusion treatments which only recently have been approved, we want to try as best we can to speak now about…
-
I Had A Week Respite
Hey all. Most know I was able to take a week’s respite in early June. It’s been a bit over 5 years for me. I was burnt the heck out and had just decided to retire early this December. I needed it and for those able to somehow cobble something together, I am an even more staunch believer it getting whatever respite you can.…
-
Hallucinating and cussing at everything
Hello my mother was diagnosed with Alzheimer’s dementia about 4 years ago we have noticed lately she is hallucinating a lot and wakes up cussing at anything and everything and constantly yelling and saying I hate you,I hope you die, I’m going to kill you , and throwing out racial slurs . But more recently she took a fall…
-
The denial worsens
Hi, new to the group. My Dad was diagnosed 3 years ago. My Mom is showing early signs and we know we are in early stages. She is currently a caregiver. After a Doctor visit, it was determined she has memory loss but stage unknown. Bloodwork and MRI. She refuses to do anything. The MRI is scheduled for this Sunday. There is…
-
Podcast on Caregiver Stress
I found the following podcast by Mel Robbins very helpful… https://youtu.be/892M1vCEuUg?si=GAoYuLuvynSx_RqY
-
Drowning
Hi everyone I am a carer for my partners mum. My own mum has had to go into a home and I feel desperately guilty I've now left my work and am looking after someone else and I couldn't mum. I am in a different space now but I'm drowning in guilt.
-
Laundry day
Ugh! DH mostly made it to the toilet but there is a lot of BM in his underwear, I rinsed that out in the toilet later. So I'm wondering ….do you wash the underwear in the washer by itself maybe with rags or something, or with other regular laundry?
-
Parent getting meaner, no joy left
I am new to this forum and new to learning about Alzheimer's. My dad has had a steady memory decline but it finally was diagnosed as Alzheimer's. Recently I've noticed things have gotten way worse. Nearly every time we visit, the tension builds and he has an angry outburst directed at my boyfriend. This time he took a…
-
Kinsula treatment
Is anyone in this group being treated with Kinsula? If yes what has been your experience. I would like to know more about it before making a decision to start treatment.
-
Just need to talk to my friends (207)
Judith, I didn't get on the stepstool, stood on the floor and used a mirror. Hopefully, Beth will be able to post on 207 now.