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Where to start?
Hello- new to this virtual support group and relieved since it looks like caregiver support options are limited where we live (central Kentucky). My main questions is how do caregivers orient where they (and the LO) are in this journey? And when to gage on the next step. Our story: I'm 38 and sandwiched between my 9 & 4…
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Is your PWD aware they are incontinent
I know that incontinence is something that eventually occurs with dementia. I fear it is beginning for my husband. He has experienced small amounts of leakage for about a year, but it has been something small that he seemed to notice and take care of. He is on 2 different meds for an enlarged prostate. I thought that was…
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I’m puzzled
My love is alzheimer type. In 2021 I went to see his cousin and sister to visit and kind of tell them you have a few years left to get in touch with him. Cousin never called again even for his birthday and his sister once or twice a year. A day late for his birthday. I wished they would have called him once a month. 2…
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Not Recognizing Family Members
Any advice would be appreciated. We are only 1 1/2 yrs into this (I think] still no diagnosis. My DH has been suffering with memory loss, trouble finding foods and difficulty recognizing objects. It come and goes, some days better than others. Yesterday at our grandson’s high school graduation party he didn’t know ho our…
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New Stubborn Behaviors
I mentioned in a previous post that my DH was recently in a Memory Care facility for 30 days of respite care while I recovered from a broken ankle. He’s been home for 3 weeks now. Since home, he’s experiencing some VERY stubborn and rude behaviors and refusing to cooperate with necessary care. I don’t know if it’s the…
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…
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Alvin didn’t make it…maybe more
My sad Christmas story. I’ve been trying to catch Alvin for 2 weeks now. Alvin the chipmunk has been stuck in my walls and I’m afraid of what he might be eating so I set a trap. I opened my silverware drawer a couple days ago and Alvin scared the sh•• out of me. I thought maybe I was seeing things cause of stress but then…
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Emergency Respite Care
Hello! I’ve been a longtime member here but haven’t checked in for several months. I wanted to share my recent experience with my own emergency situation and what happened with DH. Although he was diagnosed in 2013, he’s been declining very quickly during the past year and a half. He’s probably very late stage 6. He…
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Antibiotics for (presumed) UTI
I noticed on mom's last pharmacy bill that she'd been prescribed an antibiotic in mid November. I had heard nothing about this so I contacted the NP who provides care at mom's MC. She replied that the med was prescribed "at request of staff due to some behaviors." I also heard nothing from MC last month about unusual…
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Can't remember my DW pre-dementia
I am in stage 8. My DW was diagnosed in 2016 and died in August of this year. Her symptoms started in 2012. I cannot remember what my DW was like pre-dementia. It makes me so sad. I hope those memories will eventually come back…
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No Time For Grieving
My heart is broken. My Mom passed away a week ago and she was my rock. She couldn’t help me physically with my DH who has Parkinson’s/dementia but she was always there to talk and keep me sane. Now she’s gone and I want to crawl up in a ball and just grieve but I can’t because all the things we do for our spouses still…
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Extremely overwhelmed
my husband is in the hospital, I spent Christmas there. When I got home I was so relieved. However all his many tests showed he was fine. Apparently his meds are the problem. We called 911 because he was unresponsive and fading fast. I’m sure they will release him today and I don’t know what to do. I was told by a nurse…
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How have you handled this care issue?
We seem to have reached a new stage in this affair in that my DH is no longer able to stand from sitting for me to get him onto the toilet. He seems to just get stuck and can’t connect how to stand from sitting. Although he can still perform this activity, it’s getting more and more frequent that I can’t, even with…
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My DH to begin Leqembi infusions
My 82 y/o DH has been diagnosed with Alzhemer's and qualifies for these infusions that will start soon. Anyone else here have experience with this medication.
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Problems with aides because DH is a difficult patient
Today I went in earlier than usual to visit my DH in a SNF. I waited in the hall while the hospice aide and SNF aide washed and changed my DH. Here and there I could hear him yelling and calling the hospice aide a b*tch. In the meantime, a maintenance worker, who didn't see me, went into the room and said, "mind if I join…
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An even sadder Day
I'm back home, sadly, Donna didn't make it. Due to there being no traffic I got to the hospital an hour before her pickup time (better early than late). When they brought her to me she was crying but I calmed her down by telling her she be home with Jazzy soon. Then we took a short walk, about 100 feet, to the car. Half…
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Really Need Help With My Mom and Dad, Could This be Dementia? Dad’s Behavior
Hi, I’m 49 and living with both of my aging parents. My dad is almost 80 and has been obsessively bringing up my mom’s past—accusing, interrogating, then apologizing and repeating it again. It started suddenly in early May. He has also: Forgotten recent events or where he placed items Told the same old stories repeatedly…
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Mother wanting to leave AL - arranging movers
I just moved my mom into AL the day before Thanksgiving - not even two weeks ago. That day she said she’d “sleep on the couch” (I haven’t sold her condo yet). I said she was moving that day, and she had to stay there. She’s been in the decision-making process of where to go. I tried to pick the best possible place, and…
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What Should I Say?
I am visiting with my parents for a few days and my Mom is very confused. She has Alzheimer’s . She often does not recognize my Dad and thinks he’s an imposter. She is scared of him. He will tell her it’s him. My brother lives with her and he says “that’s Dad.” My Mom is very confused. She says the only two people she…
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New diagnosis
My husband had been diagnosed with moderate dementia/Alzheimers. He goes in for MRI the first of the year. He is only 69. He also was diagnosed with chronic myeloid leukemia.
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Waiting and waiting to finish last Dx test
I see so many here who have been newly diagnosed, and I truly hope you can all get the support you need. I have had all the medical Dx tests—MRIs, biomarker blood work, PET scan. They all point to early stage ALZ, but I still need to have the comprehensive neuropsyche evaluation, but I need to wait until late March to…
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Need suggestions on responses, please...
I am new here, and I have been reading through some posts and it is really comforting knowing that I am not alone and this is reasonably "normal". However, I could really use some advice: My mom is now in a memory care unit, she believes it to be a hotel. She will keep asking me if she needs to go to the front desk to pay…
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Electrical work
Hi. This is my first post. I have a relative who is in the middle stages of cognitive decline and is waiting for an appointment to receive a more official diagnosis. Their spouse insists that he live at home. Over the years he's done most of his home repairs. He believes he is still capable of doing such repairs and helps…
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Looking for Support Here
Hello all, I have some form of dementia that may be vascular or Alzheimers. I have had the ususal tests, MRIs, blood work for biomarkers, PET scan and consultation with well respected neurologists in Northern Virginia. I am looking more for support both emotionally and in terms of locating resources for support available…
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New
Hello, I am new to this site. I have just now felt the need to reach out for support. I have been telling my wife that the presents are not to be opened till Christmas. Well, she opened hers and her son's Christmas Eve. I was so disappointed. A few years ago, while we were in Michigan, my wife was given depression pills.…
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Anyone experiencing body pains
hi am am newly diagnosed early onset dementia, My doctor is still finding out what kind dementia I have My understanding is I have Alzheimer’s in my blood but not reached my brain yet , what the heck does that mean ? I am having a Pet scan next , I kind feel like my doc just dumped me or put me on hold , I don’t know if…
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Alone This Holiday?
I am just curious how many others of you are spending holidays alone. Our children’s rotation is to in-laws this year. We normally get an invitation from friends to at least one holiday gathering but no invitations this year. I can’t help but conclude that it is because we are becoming more and more isolated because of…
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“Fiblets”
I am having a very difficult time lying to my husband who has dementia! I have always been that person who people could trust and know I would be honest! But now I find I am being dishonest and lying to my husband. I just want to tell him he is not allowed to drive anymore and it’s not safe and that his beloved truck is in…
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Crying out of nowhere.
It’s funny how certain things will trigger our emotions. My DW and I were sitting comfortably in our recliners last night listening to Christmas music. We were both enjoying the time and then came an Elvis Christmas song “Santa bring my baby back to me”. Out of nowhere I just lost it and started weeping.