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Mom stopped walking, starting hospice consultation
I’m exhausted. Mom moved in with us 2.5 months ago. We rehabilitated her after a failed rehab stay following a hospitalization. But she’s declining. Hospice support sounds promising because I need more help. She stopped walking today due to intense pain in her bad hip, but she also shuffles/drags her feet so maybe it’s…
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New Alzheimer’s treatment being studied!
https://scitechdaily.com/a-breath-away-from-a-cure-how-xenon-gas-could-transform-alzheimers-treatment/
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New diagnosis, new to group. Having a rough ugly cry day.
I have been very emotional, ugly crying today. Today is hard, others are not- those days I am "numb". I am 41, married for 19 years, I have 5 kids ages 8, 10, 17, 18, 20. I have tested positive for PSEN1 which is one of 3 variants known to cause young onset Alzheimer’s. I have had cognitive symptoms since August 2023. I…
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Early Onset of Dementia
My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared…
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LO Continues to Lose Weight
I had posted earlier about when it is time to get Hospice involved. I have been busy getting my LO set up with home health three times a week, and Palliative care. My concern is still that my LO will not eat food. This weekend she aspirated twice on soup and coke. I also noticed that she is not snoring at night. This is a…
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New issue
My DH had a physical spell early this morning. He wanted up to go to bathroom about 5 a.m. this morning. I made sure he made it to the toilet and let him have some privacy. He was in there a little longer than usual, so asked if he needed some help. Found him weak and very pale and clammy. I helped get him back to bed and…
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When to move?
My husband was diagnosed with MCI a year ago and is declining. We had planned to downsize, but now I'm wondering if that would be too disorienting for him. He already carries a lot of anxiety before this diagnosis, and I worry that a move will accelerate his condition. On the other hand, it really is time to get out of…
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I wrote this essay to help others after losing my father to a long battle with Alzheimer's.
After losing my father to a long battle with Alzheimer's, I wrote this essay to help people navigate through the devastating journey of having a loved one with Alzheimer's, because it is the family and those closest to the individual with the disease who bear the greatest burden. Most people find themselves thrust into…
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obsessions
New to this support area. My DW seems to be declining slowly but in bursts. Latest is waking at 2-4 AM very agitated, obsessing about eggs and chicken, angry, saying she is leaving, spitting and hitting if I try to calm her. Some nights doesn't happen? Can occur during day too--no idea where this came from. No matter how…
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Paperwork
I finally got the paperwork done for durable POA and Guardianship over my 45yo EOA boyfriend. I have been taking care of him for the last year and a half so why not. His one side of the family you know the ones who say "if you need anything I'll be there for you or let me know" yeah they are gonna be upset. I had my…
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Lequimbe
Hello. I'm new to the group and I'm hoping for advice and information as I navigate this new life with my LO. A year ago at 59, he was diagnosed with MCI. This has been going on for four years now, and in the last six months it seems to be progressing quickly. The dr wants to start him on Lequinbe but he hasn't had a…
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Daily Catholic Mass Podcast
For any Catholics, lapsed Catholics, or Catholic curious here’s a link to the daily mass readings. I left the church at age 14 & became an atheist but returned this October at age 52. It’s the best thing I've ever done for myself. I hope this gift reaches others.
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Dad is new to community and NOT going well HELP!!
My dad was moved to MC. We are moving him to a closer community that has residents at his level - walkies-talkies. But he is having a hard time adjusting. He is not eating and tells us he wants to come home. He ended up in MC bc he left to find the bus to take him home. He is not drinking his cranberry juice, eating meals…
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ALZ and type 1 diabetes
my DH is both. Memory worsening and has shut off his insulin pump several times and forgot. I'm afraid he needs help managing diabetes. He is also becoming difficult to live with because of anger and just forgetting what we are discussing during a conversation. He refuses assisted living. They say I can't force him. I am…
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New here, looking for support
My mom has been on a steady cognitive decline over the past 2 years after a big fall and some medications she was placed on. We have not been given the diagnosis of Dementia due to the fact that she will not get tested and gets extremely angry when it is suggested. (She has always had anger issues and does not let anyone…
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Arguments that seem impossible to stop
Hi, alright I am new on this and taking care of my 72 year old mother. Are there any simple ways to get a person with dementia to stop arguing? Once my mother gets mad it seems impossible to get her to even attempt to think of something different. She likes to just make it seem like I have ruined her entire life and no…
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Did I Give Up Too Soon?
Following a violent outburst (mom attacked her in home caregiver) when she had a UTI, I made the difficult decision to place mom in MC. Tomorrow will be 2 weeks. She is more lucid than the other residents in her MC, but 'loops' verbally a lot, and it is clear that there's significant decline within the past 3 months. I am…
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How to tell your spouse she has ALZ
Do you tell your spouse she has ALZ or you let someone else, or you just don't tell her? This is all new to us.
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Sister was diagnosed 11-12 yrs ago...
I joined this forum in Sept 2022 because I was caring for my husband who was diagnosed with Alzheimer's-Posterior Cortical Atrophy in 2021. I had to place my DH in memory care in Dec 2023 due to my cancer diagnosis. My husband Lonny passed August 12. Because I was overwhelmed with caring for my DH & my cancer diagnosis, I…
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Helping caregiver long distance
Hi. I’m new to this group. My niece takes care of my sister who has been diagnosed with Alzheimer’s. They live in the same home together. Please advise how I can support them, especially my niece, an only child who’s raising a teenage daughter. Thank you.
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Memory Friendly Phone
does anyone have a recommendation for a phone? I’ve looked at a brand called Raz. It looks good online but would love everyone’s input/experience. thank you
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Early Onset
Hi, I am 59 years old and was just diagnosed with early onset Alzheimer's. To say the least I am devastated. Lots and lots of ugly crying. I am trying to get my hands around all of this, so many things to do and so many questions? Has anyone ever been on a clinical trial? What was it like? I have started taking…
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No idea what to do next…
Hello, my name is Sandy and I am turning 51 years old this coming spring. I have not actually been diagnosed with early onset Alzheimer’s or dementia, but I am in need of help in knowing whether I should accept what my neurologist is telling me or if I should be more aggressive in figuring all this out on my own. A little…
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New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.
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Diagnosis questions
I mentioned in my first thread that I'm not a primary caregiver for my MIL, but I want to try to be informed and helpful when I do interact with her. What I'm curious about is the diagnosis of dementia, from a qualified medical professional. My sister-in-law has medical power-of-attorney for my MIL, and she and her husband…
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How to handle long distance Mother
First time poster here. My Mom lives in NV I live in MO. For the last 3 years it seems my Mom has signs and symptoms of dementia. No diagnosis and my Mom will not go to a doctor for anything. She is fit, healthy, active but it is clear her cognitive abilities are intermittently affected by “dementia?” She takes no…
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Safeguard your sanctuary
Because he snores, jerks, and rolls over on to me, I sleep in a windowless room in the basement. In trying to engage my husband in a task I asked him to help me clean the light fixtures in the basement (holding the screws, wiping the inside of the fixtures, etc.) Now he states that he never knew about this room and insists…
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Aphasia
My poor DW. Her aphasia is now to the point where she really, really struggles to get a full sentence out. Many of her "sentences" are just a mix of random words, but she really thinks she's telling me things. Her frustration is growing and now she thinks I'm not understanding on purpose or not listening to her. I had done…
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visiting assisted living facilities
Hopefully DH will be able to stay home through most of this journey, he is fully stage 5 and moving towards stage 6. I visited one memory care and want to see a few more, for "just in case." The first one, I made an appointment, DH is not aware of this and I don't plan to take him to any. But I'm wondering how a visit goes…
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MIL Needs Help But Has No Official Diagnosis - We Need Doctor to Come to Her
My MIL regularly does not recognize her family, has no short term memory and appears to be creating false memories, no longer knows how to do things like use a phone, is frequently hostile, thinks people live in her house, has wandered, no longer wants to bathe - I could go on and on - the problem is that she has always…