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Keep Putting Off MC Visits
Placed DW in MC four years ago, and it was the right decision. Moved her from a deteriorating for-profit facility to a public facility providing excellent care. She is happy in her circumstances - still aware enough to interact on a limited basis with others, feed herself with assistance, and so on. As her early-onset AD…
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Managing care
Hello, first post here. I am my dad's daughter and medical/durable POA. He has mid-stage LBD. He is physically pretty healthy except for chronic UTIs which we finally have managed. He is in a wonderful RCF with a nurse on staff and loving caregivers that adore him. But lately it seems like so many little things are…
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Sleeping Patterns Changing
Hi All, I’m noticing my LO isn’t sleeping well at night and now sleeping most of the day. He has severe sleep apnea and we have tried every gadget to help him sleep but he can’t handle the mask at all. He wakes up all night because of dreams that he interacts to. I finally moved to another room so I can get sleep but I…
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Has anyone come up with why they HATE to bath ???
Why is showing or bathing such an issue with this illness. I’m not there yet but not looking forward to that scenario.
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Thank you Alz Connected and All of you
I just wanted to say THANK YOU to each of you. Thank you for this association and for this page. My mama passed away at home on Thursday, June 19th at 2:30am. She was taken to the doctor on June 6th for what ended up being shingles and a UTI. At that visit, the doctor suggested that we may want to look into In home hospice…
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Books, and thermostats
Two questions today… Suggestions, please: My partner has always been a big reader, though she hasn't been able to follow a story (on tv or by reading) for a couple years now. She always wants to carry a book with her and does sort of read it. Everything we have at home has been deemed "too negative," or "not interesting"…
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Managing Early Stages
Good Morning from Michigan, I am the sole coordinator for my mom who is in "early" stages of Alzheimer's and recently moved to assisted living. My mom was overly independent for most of my life and this shift has been difficult for her as well as for me. I am trying to manage the constant contact over her hyper fixations…
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Dad in nursing home - desperate to leave
Hi - I had to put my Dad in a nursing home last week because of physical reasons and some low level dementia. He calls me 20-30 times a day telling me he is in a prison and wants to leave immediately. I am at a loss because my sister told me this is the only solution we can have for him (we have no money and medicaid and…
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Research- another approach in the search for answers about brain disorders
Explains a lot of behaviors.
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Does he think I’m his Mom?
My DH is stage 6. He’s at home with me. For awhile now he’s been calling my Mom quite often. Do you think he really thinks I’m his Mom?
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Hello
I am new on this site and excited to have found a place where I can learn from those that have already gone through much of what we are dealing with. My DH is in the early stages of Alzheimer's. He was first diagnosed with MCI in early 2022, but I did not learn about the diagnosis until June 2023. He misunderstood the…
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Adjustable bed suggestions (attached control)
Hi, I'm trying to find an adjustable bed for my mom, who lives with Alzheimer's. They all seem to have remote controls, and she really needs something that has only a few buttons and is hardwired (attached) to the bed. Otherwise, the remote will quickly go missing. Has anyone found a bed that's working well for them?
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I'm at then end of my rope as a caregiver.
my 93 year old mother was diagnosed with ALZ dementia 11 years ago (2014). she's required 24-7 care for the past 8 years. her illness has been advanced since 2017. i am the primary caregiver at her home. the past few months have been awful. her occasional threats and refusal to co-operate have become almost routine.…
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Taking Charge
I read this today in “Daily Comforts for Caregivers “ by Pat Samples. “When I’ve had to take charge of some areas of my loved one’s life, he doesn’t want to let go, even when he can’t manage anymore. He’s used to being in charge. Sometimes I have to be strong and insist. I can understand why he wants to maintain control,…
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Spouse of Father In Denial about His Condition
My father has dementia that is progressing, currently mid-stage symptoms, and his wife is in denial about his condition. She does not believes he has dementia and insists he is improving. I live several states away. There are some family members nearby my parents and they have tried to reason with her regarding his…
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Using Transcranial Magnetic Stimulation (TMS) to slow AD progression
Has anyone used TMS for AD? I know it is off label, and that it is a cash expense not covered by insurance, but I am looking for a provider in the Northeast (CT/MA/NY/ NH) who could treat my wife. The studies have been small, but reasonably positive in being able to slow progression.
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Durable Power of Attorney and More
This may be one of the most important topics on this forum, so I will keep it brief. Disclaimer: This is not legal advice; please seek counsel from a certified elder law attorney. There is a big difference between Power of Attorney (POA) and Durable Power of Attorney (DPOA). The documents you want are certainly the Durable…
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Education for Healthy Parent
Has anyone dealt with the healthy parent not understanding this disease ? My dad is primary caregiver for my mom. He can’t understand how to engage with her. My siblings and I have all tried to give tips, his friend who’s been through it gives him advice on deescalation but he doesn’t get it. He corrects her on facts that…
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dont know what to do
my DH is 60 years old and has been diagnostic for alzheimer, we have been in surch of a reason of his behavior,depression,etc ,for 3 years ….in november 2024 we had the answer. I dont know what to do, how this is going to turn out, i feel overwhelmed. Its very dificult to loose your spouse , becouse he dosn´t feel anymore😪
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Father should be in nursing home but I can't do it
Hi - I have a father who keeps falling and going to the hospital. I think he would be better off in a nursing home. He also has dementia and no short term memory. My dilemma is he is absolutely 100% against going to a nursing home. He literally cried in front of me saying it is not what he wants to do. I have requested…
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Assisted Living vs. Memory Care
My mom was diagnosed with Alzheimer’s about 8 years ago. She is now 69 and is around stage 4/5. She is still living in independent living as her boyfriend visits almost daily and takes her to her doctor appointments and gets her out of her room for walks or lunch. I handle all of her finances, groceries and personal stuff.…
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Obsessed about driving!
I know this has been discussed and I have read all the posts regarding this topic, but I just don’t know what to do. DH with vascular dementia cannot remember what happened 5 minutes ago or what he did today is totally obsessed with wanting his car! We have spoken about when it’s time to stop driving and safety etc and of…
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Taking away her car
Help! I am having trouble taking away car from my mother . She started swerving in lanes, and ignored the driving rules constantly . She recently crashed into a parked car and that was enough for us to say no more driving for her :( tried hiding keys, she went crazy. Tried taking away the car, but she keeps asking every…
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Ruby's Choice
I had to spread the word on this movie I came across on Amazon Prime. Jane Seymour is the lead actress in this movie. She stars as the Mother and Grandmother who suffers from Dementia. Her husband passed years ago and she's been told that he's on a business trip. Without giving away too much, her memory loss is confirmed…
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therapist
Looking for therapist for 23 year old daughter mMother is 72 with moderate dementia. Thanks
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Infusion #10
Tomorrow afternoon is Leqembi infusion #10. You'd think by now I wouldn't be so anxious about it. I've been taking anti-anxiety medication since the beginning, but ANXIOUS I am! I have all these racing thoughts, feel everything and nothing all at the same time. I know how that sounds, but it's the only way to describe it.…
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Geriatrician vs. Neurologist
My DH's PCP referred him to a geriatrician, but I wondered if a neurologist would be better. The geriatrician (we had first visit in January and will see her May 20th) is 30 miles from our house. We could see a neurologist locally. Does anyone have an opinion on who is better to treat Alzheimer's/vascular dementia?
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When to go to memory care
I sense that I will need to consider this for my DW later this year. When that happens, will she have periods of remembering?
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Can’t be pleased 😞
Coming here mostly to just vent. Mom has lived with us a little over a year now. Moved from one part of this BIG state to another after 40 years so BIG changes in every way. Left behind her bffs, the option to drive (her choice not to), the familiar, her own house, had to sell a lot of her things or put them into storage,…
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Working Through This New Diagnosis
I am now 57 and was diagnosed officially earlier this year. The doctors had an idea a few years ago, but after suffering the first Covid in 2020, they were unable to tell what cognitive impairment from the virus compared to dementia due to Alzheimer's disease. I had a 3-hour cognitive eval, the doctors agreed to wait to…