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Is this Stage 5 and to what degree?
My mom last week recognized me but didn't think of me as a daughter but maybe a cousin when I asked who do you think I am? Later in the day she kept asking what my relationship was to my brother. If I knew my Dad - I think she forgot about my Dad until we started going down memory lane. She was glad to know my dad was at…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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Cataract surgery with dementia
New here…. and I am finding this forum very helpful. My mom is 85 and is blind in one eye and they are recommending cataract surgery for her good eye. She is definitely in mid stage of dementia. I scheduled this procedure for her and am nervous if I am doing the right thing. The surgery will take 10 minutes and I will be…
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Motor Skills help
DH is late stage 6/early 7. We have been told that the next milestones for him will be mobility issues and then eating issues. He seems to be unable to do things like lift his foot on command. He will go up and down stairs (slowly) but when I ask him to lift his foot to get his pajamas on he seems to be unable to do so. I…
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“Borrowing” memories that aren’t their own?
My mom lives with us and has for a little over a year (moved from one part of a very large state to a very very much different part of the state, very far in distance even if driving in one day). She has twice brought up “I remember when…” memories of events she wasn’t here for but that we had gone to and described or…
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Not sure what to do anymore
My mother has dementia that has not officially been diagnosed because she refuses to cooperate with any doctors or complete any testing. I believe she has vascular dementia due to her consistently dangerously high blood pressures (that she refuses to take meds for, which are prescribed) and a CAT Scan showed damage, but no…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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New Here – Caring for My Husband and Our Young Family
Hi everyone, I’m new to the community and just wanted to introduce myself. I’m 45, and I’ve been caring for my 51-year-old husband who has dementia caused by Primary Progressive Multiple Sclerosis (PPMS). We’ve been together for years, and it’s heartbreaking to see how much this disease has taken from him—and from us. He…
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New to the group
Hi everyone, I am so relieved to have found this group. Mh (67) was diagnosed in January. Early stage of dementia. He is also a type 1 diabetic. I’m trying my best to cope and get through each day. It is hard to say the least. I say to myself, let’s have a good day! Some days are better than others. I have ordered the 36…
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Taking care of my Mom
My Mom has Dementia, still living home with my dad, and I go to their home every day to help them. She accuses my dad that he is having sex with a 13 year old girl along with me and my 2 other sisters. Some days she is good then other days really off the wall. I get very upset because I protect my dad. I know I shouldn’t…
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Taking Away Driving Privileges
My DH (57) was diagnosed a little over a year ago with EOAD. He’s not quite in stage 4 yet, and still drives only to places in a 5 mile radius of home. And only to places that he goes regularly like the grocery store and they gym. I know that eventually he will have to stop driving but I dread that because he feels that’s…
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New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
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Sister care giver♥️
I am 16 years younger then my sis who is now living with me and my Husband and grown children and my granddaughter . She is forgetting who we are earlier each day. And constantly wants to go home. I my sister has been my rock my whole life and I’m not sure I can keep doing this it’s making me sick , high blood pressure…
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Caregiving help for a parent - what has worked well for you?
My brother and I care 24/7 for a mom with ALZ, probably middle stage. We both work full time, but my brother is able to work from home, so that is the only way we have been able to manage it. We have both developed chronic health problems, probably from the years of stress as we have been managing Mom's care for several…
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Newly diagnosed
I’m 54 and was diagnosed formally 3 weeks ago. Having a tough time dealing with it, but I’ getting help, have lots of support and understand that all these emotions are pretty normal. I had my first Leqembi infusion last week and am hoping that helps. I am just not sure what to expect in the near term and could use some…
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MIL with dementia
My first time posting. My husband and I are the primary caregivers for his parents who live in their own house next door. Mom is 83 with vascular dementia and Dad is 86 with Alzheimer’s. Mom is getting more and more agitated. They still love playing game and cards but if mom doesn’t get her way she becomes very mean to me.…
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Hallucinations
I am the 24/7 caregiver for my wife who suffers from mid to early late term dementia. She has had various hallucinations, usually after wakening in the AM, but recently has had one that repeats itself, and she bring it up all day long. She repeated insists that "a man" comes to her bedroom and disrupts her things by either…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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What tests did they use to diagnose your loved on with Alzheimer's Disease?
My mother is currently in the processed of being diagnosed. The doctor is doing a few blood tests to rule out reversable causes for the cognitive difficulties but otherwise says no tests are needed besides a brief cognitive measure (MOCA) to diagnose Alzheimer's. What was your experience like? Did they do more testing or…
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New to caregiving for self-centered husband
My husband was recently diagnosed with Alzheimer's and vascular dimentia, although I have seen the progression for many years. My hardest times are when he doesn't recognize me as his wife. He says I can't drive the cars because I am not on his insurance, he says he is single and doesn't want anyone living with him, that I…
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Hello
I am new on this site and excited to have found a place where I can learn from those that have already gone through much of what we are dealing with. My DH is in the early stages of Alzheimer's. He was first diagnosed with MCI in early 2022, but I did not learn about the diagnosis until June 2023. He misunderstood the…
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Holidays are the worst
As a caregiver for my DH who has mixed dementia and is in a mid to late stage of the disease I dread holidays. On July 4th people will be going places and doing things. I will be home but not quite home alone. DH does sleep much and is in a constant state of rage to the point where it is best if I don't talk to him at all.…
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Bowel incontinence
My DH is still in the mild stage. I can leave him home alone for a few hours. He walks the dog without getting lost. But, he has urinary incontinence at night. Lately he has developed bowel incontinence. I’m not sure what to do about the bowel incontinence. Any ideas?
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Medications for mood
DH is in stage 5 EOAD. He takes 100 mg of Zoloft for depression and anxiety. It mostly helps but he continues to walk around the house saying he is lonely and nobody wants to be with him. I am always there except when I work. I have caregivers in the house so when he says he lonely I remind him I am right here. I actually…
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Numb to other causes of sadness now?
I’ve been grieving and sad since my husband’s diagnosis last month. This week, my mother unexpectedly passed. I cried the day she died. But then I haven’t been crying about that. I wonder if I’m emotionally numb from so much trauma or if someone unexpectedly passing is easier (for lack of a better term) than being with…
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Am I going to die?
Recently my DH (56 yo EOA & FTD) has been asking me if he is going to die from this? He’s progressing and he’s scared and noticing the problems he’s having. How do I answer this? I don’t want to scare him or get him upset. I try to answer as vague as I can without getting upset every time he asks.
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Only Mean to Caregiver
My 89-year-old father was diagnosed with Alzheimer's 6 months ago. He reserves all his anger, paranoia and hurtful words for my mother (caregiver). No one else sees/hears it. I am learning that he did this on a smaller scale for a lot of years but mom never told me until now because it has been amplified due to the…
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New member caregiver needing a support group
I would like to connect with other spouses whose loved one is in assisted living. I've tried Alz.support groups with all caregivers, but having DH in a facility (just starting year 6) creates some different feelings than when he was home.
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Peapod Mats
Until the last month or so I didn’t understand why I’d have to worry about the furniture or mattress. My husband wears the really good incontinence briefs from Parentgiving. But lately he seems to have forgotten what the toilet is for, and has multiple accidents a day. The briefs can only hold so much. I try to change him…
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Sexual Behavior in Husbands
Super sexed DH II feel like I am the only 75+ caregivers whose husband is constantly wanting to make love or touch, lay with, hug or kiss me. Do others deal with this and shadowing? Does anyone have help or suggestions? I'm over loved😗