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I hung up on mom today
I called mom to say hi and check in on her (she is in a nursing home). She started by telling me she has a list of things she wants from her house when I go there next. I let her rattle off the list of things she doesn’t need and made no comments about how ridiculous these items are. Thing’s quickly snowballed and she…
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shaky departure on a low staff day for dad's memory care plus recent "unwitnessed" injuries
Hello all, Dad really wanted to come with me today as I was leaving. He hasn't done that for a while, so I was out of practice. It was also a very low staff day today. For instance, I had to ring the doorbell three times (with long wait periods in between) for someone to come let me in. So I know there's a pretty good…
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Resentment
I’m finding it difficult to “do all things with great love”. My DH is really unable to follow through on any request, “put the screwdrivers away” “take out the trash” “put in a new trash bag” “feed the dogs”because he can’t hold onto the thought long enough to complete it. He used to be able to follow a one step direction…
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might b helpful for extra support for a loved one
i just rang 0330 053 2617 and got through to a company I believe called Kinly who were simply wonderful and felt I must share with anyone looking after someone with alzheimers. i saw it on the mirror this morning that the supermarket Iceland are involved in something where you can check for free if there’s any extra…
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Medicare Coverage
Can anyone share what their Medicare provider covers for in home care and memory care assisted living
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ApoE4 homozygote
Hello everyone, I'm 72 years old, was diagnosed with ALZ in Oct 2025 and started Leqembi infusions in Dec. I am still asymptomatic, but as an APoE4 homozygote I find myself waiting for the other shoe to drop. I have not met anyone else with two copies of the APoE4 allele (I understand we make up only 2% of the general…
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A poem
To When You Used to Know Me Living in this painful present, My days are overcast. Watching you disappear, Grieving the loss of all that’s passed. I can’t bring back our yesterdays Or share my memory. I can’t take your hand and lead you back to when you used to know me. When I lay you down beside me And think about…
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Moving out of state and need to chg Medicare Plans
We are moving to NC from CA and must select a new medicare plan. We currently have a MC advantage plan but have heard switching to original medicare at this point, since we are able to switch with the move, might be the right choice. I believe there is no health qualifications to switch during this time. DH has VD with a…
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Anniversary
My DW and I are married 48 years today. Sadly, I know that it will pass with little recognition. Yesterday, when I mentioned it, she said it can’t be because she’s not that old. I sat here this morning with my coffee and read the poem posted by Groovy’s Girl. It made me cry today. Such a terrible disease.
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Explaining the Concept of Time
First, thank you to all who generously contribute to this space. I’ve been benefiting from your wisdom for some time even though I’d found it hard to bring myself to post. I was wondering if anyone had any suggestions on how to deal with the confusion regarding time. My DH is in the moderate to severe stage. I calculate…
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Appt with CELA tomorrow
Our long awaited appointment with a Certified Elder Law Attorney is tomorrow. I have not discussed this with my Mom at all. I paid the required deposit for the consultation. She will no doubt balk at the idea - doesn’t need an attorney, too expensive, etc. I think that I will be able to reason with her regarding the will…
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Overwhelming Grief
i don't know what to do with my overwhelming grief. Today Sunday perfect sunny weather my DH our little Schnoodle and me, coffee in mugs, new wheel chair (that DH wouldn't use) in the car, down to the Marina walkway to wave off three 40’ yachts our friends going out for a day trip to the local island. Then a short walk…
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New Phone/Communication issues
I see a recent thread ("Dad almost totally impossible to communicate with") with a similar question but wanted to extend the conversation. My dad (just turned 88, vascular dementia) has been in assisted living for a few months and at first was calling over and over (both me and other friends and family.) But now not only…
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Having to move mom out of home
Hello. This is my first discussion as things are changing with my LO. My mom has Alzheimer's and was diagnosed about 5 years ago. After a year in, my daughter moved in with her to help care for her and was there 2 years, then my niece moved in for another 2 years. She has repeatedly vocalized wanting to stay in her home,…
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is it time for hospice
My DH has VD and Alz. .he just got out of the hospital from a 4 day stay. he had a heart attack and a gi bleed. He refuses all surgeries. There are are blockages from carotids to his femoral arteries, including a abdominal anyarisum that has been worked on once. he has such a long hx cant even go into it. My question is it…
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Kisunla Infusions
Hi everyone. I’m new here. My wife and I are trying to get my mother in law moved from LA out to PHX but it seems impossible to re-establish care in a new state while trying to create as smooth of a transition as possible. Hoping to get her started on Kisunla asap but insurance just denied it and now it feels like we are…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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Cochlear Implant
My DH who is 77 has mid stage Alzheimers , tinnitus and severe hearing loss. He qualifies for a cochlear Implant. I was hoping someone has gone through the experience of their loved one getting one. I am concerned about how my DH will handle getting used to it and ability to do so. Any help much appreciated.
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Don't know what to do
Over the past few weeks our cat Squeak hides under the bed when we go to bed. (Probably senses the stress and anxiety) And every night LO spends hours calling Squeak and crawling around the bed trying to get Squeak up. Last night was the same but it turned into a horrible night. LO's frustration over not being able to get…
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Neuropathic pain
My DH has severe bilateral knee pain that nothing is helping. His orthopedist thinks it may be referred from his back and ordered an epidural steroid injection. That gave him just a few hours of relief. I wondered if anyone has any insight into adding gabapentin (Neurontin) or duloxetine (Cymbalta) to see if that would…
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Finally have answers, now what?!
I had been telling the doctors that something was going with my mom for a year and they finally did test. This year the test confirmed that her memory is fading. I just hate that it took so long. My mom started needing more care now, so I had to put her in a rehab, because I am exhausted. I’ve been taking care of her since…
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Just need to vent
My DH can’t accept that he has Alzheimer’s. Everyday things are getting harder for him and when I try to help or think of things to make ie easier for him and it doesn’t work I get yelled at and so does God. He refuses medication to help him so I feel like I am at a loss. Thank you for letting me vent.
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Long Covid coexisting with Alzheimer’s
Hello. I have MCI/Alz confirmed by pTau217 and PetScan on December 1, 2025. I have not started either of the antiamyloid treatments yet. In researching both treatments, the side effects were concerning especially since I have Long Covid which causes neuro inflammation. Has anyone had antiamyloid treatment while they have…
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Just need to talk to my friends (218)
Happy May Day!! Hard to believe the year is one- third gone already. Hopefully May will will be less stormy but with more rain. We're still in a drought in most of Oklahoma. Carl, I looked at pictures of your new car. I think it's pretty and looks roomy.. Hope you enjoy it.
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Transitioning Colorado to Illinois
Good morning, My parents are both in various stages of dementia. Father Lewy Body and mom Alztimers. I do their finances, set them up with DivvyDose pharmacy, made sure they have no access to driving. My father recently had a pacemaker put in and has slid downhill the last few weeks. They are currently in Colorado and we…
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Safe Return Medallion
Has anyone ordered one of these? I understand there is one for the "patient" and one for the caregiver. I read about it in a book and I can't find a place to order one.
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Not thriving in MC
This is my mother’s sixth week in MC. There have been highs and lows in that time. If I’m being honest with myself the low periods are increasing in both duration and intensity. She rarely participates in activities and often needs encouragement to go to meals. We were hoping to see some improvement and it seems the…
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Respite stay
Asking your thoughts on respite care. Where we live there are MC facilities that offer 30 day respite stays for the caregiver to get a break. I’m sure they would like to keep the PWD permanently so they offer this. I would love to have a break like this and also curious to see how my DW does but afraid the move there and…
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Living Drama
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Family Conflicts
My mom’s dementia was diagnosed 2yrs ago. I don’t get along with my 2 sisters. In the past 2yrs I have asked for help several times, especially to hire caretakers. They (POA) won’t hire more help. They are monitoring her through a Ring Doorbell Cam. Now, I believe they are monitoring me through this cam, which seems very…