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Discussion List
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My husband resists meds, doctor recommendations. Undiagnosed and making risky decisions.
I have many tools but feel alone and vulnerable. Anyone else in a similar situation?
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In-home healthcare advice for spouse
My father placed my mother in a memory care facility after her delusions became so extreme, and the agitation and physical aggression toward my father became a worry. We encouraged this out of fear for them both and the toll it was taking on my fathers health. It seemed our only option. Since then I’ve read so much more…
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Just letting off some steam
Hubby was doing fine today, then suddenly he got irritated with me. He's shouting at me that he's taking my name off his accounts, he can drive anywhere he wants and quit telling him what he should do. Of course I walked away, took deep breaths and seperated myself from him for a bit. Not much later, he comes back into the…
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Odd Mirror Behavior
Today I found my DW having a full-on conversation with herself in front of a large mirror we have. She has some aphasia so I could only understand a few words here and there. She was asking questions, seemed to answer or respond, smiling, making facial expressions, laughing, and hand motions. Looking directly in the…
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iPhone "Assistive Access" - Enables simple phone use!
Hi Friends, My DW and I are normally home or shopping together, so I wasn’t concerned when using her iPhone became too complicated and she stopped using it. However, I’d like to sometimes visit the gym or have coffee with a friend, but I'm concerned she couldn’t contact me if I was away. I came across the “Assistive…
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Does anyone have suggestions about which home products to get for home safety?
I will be looking for medical bracelet, home camera, door chimes, stove knob covers, plug in devices, etc. I am the wife and caregiver and it is time to safeguard. Thanks... Feel a bit overwhelmed
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My Mom passed away October 5th 2025
Hello, I dreaded the day I would be on this side of the discussion title. It's been two months and I am in unbelievable physical pain, I resigned from a easy job, am in debt, no insurance, searching for a new religion, I have fear, terrible anxiety, had a few panic attacks, am confused, hated people and do not trust…
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Research , looks positive
https://stanfordmag.org/contents/the-search?mkt_tok=ODg0LUZTQi0zMDcAAAGkaZS98bCsw4mnTVDbXVdr1d6spOx_JFs9w-pDp2ncAgKpA63xXOFkWoStrAXY71xX1RfJz7cW7UCDByw5Acc7wFjBFwOOxXjZ3jG99w44j6CB2w
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Some Days it Just Feels Like Too Much, and then. . .
. . . and then I remember this quote from St. Francis of Assisi (which fortuitously came up in my weekly planner this week): "Start by doing what's necessary; then do what's possible; and suddenly you are doing the impossible." I try to remember this when everything that I think I HAVE to do on any given day seems like too…
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New to this
Hi there, I’m new here. My husband, who’s 64, seems to be heading down the path of Alzheimer’s, which is hereditary in his family. He’s seen a doctor and had scans that confirmed there’s something happening. He prefers a natural approach and doesn’t feel the need for medication due to potential side effects. He’s always…
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Having hallucinations
Hello, I was wondering if anyone is or has hallucinations? I have been getting them more and more lately. They feel so real and it takes me a bit to realize that they are not real. I’m not sure what to do. I don’t want to hurt myself nor do these hallucinations suggest anything like that. I’m on aricept 10mg. Is this a…
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Full Time Social Worker/Caregiver
Hello, Our neuro office sent over a RX for a Full Time Social Worker/Caregiver for my MIL. It states at her residence and diagnosis-g30-Alzheimers. They didn't however, explain what next steps are. Does this mean they are suggesting full time care for her? Do I start now with her Insurance? How does one find a good social…
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Mom plans to smuggle meds into AL
UGH. I'm so tired of dealing with this immaturity! My mom has been having lots of back pain, but she refuses any sort of medical help for it, aside from Tylenol. As is common with AL, medications, including OTC, are not allowed in her room and must be dispensed by the staff. She knows this, she understands this, and she…
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After Leqembi
My wife has just been diagnosed with early onset Alzheimer’s and has been approved for treatment with Leqembi. We are wondering what comes after the 18 month treatment. Does the disease return to its original course or is it delayed for some period of time. I guess I am asking what we can expect after the treatment.
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Mom constantly asks to go home, even when at home.
Hi, Newbie here. My mom was dx with alzheimer's about 5 years ago. She was in a slow decline (mostly just short term memory) until about 8 months ago. Now she gets very confused, is forgetting certain people, sometimes even my dad. He is her primary caregiver. We have hired part time help so he can leave her to run errands…
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Testing
We're at a standstill. At least 8 month wait for testing, I've called every place in Maine. I can't take 8 months of arguing and denial, it's already been years before anyone else saw decline, I don't know what to do.
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“Don’t Do This to Me!”: Spiraling Down
Tonight my spouse and I went to visit my 92-year-old dad in MC and had dinner with him. All was fine until it wasn’t. After the meal he grew increasingly agitated and wanted me to call his mother and see if we could stop by and visit her for a while tonight. What was surprising is that despite all efforts at redirection,…
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Incontinence Issues
Parent refuses to wear disposable briefs/diapers Any recommendations?
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Hygiene issues
my wife was diagnosed 4 years ago initially with FTD but turned out to be Alzheimer’s. I’m managing things ok as I will get a caregiver one morning per week to start and then increase as warranted. The problem is that she refuses the bath or shower, was her hair and brush her teeth. Many times she ends up sleeping at night…
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New and overwhelming
Hi everyone. I’m new here and am grateful to have found a place where I can talk with other spouses who understand what this is like. My husband is 74 and I’m 68. We’ve been married for 43 years. He was recently diagnosed with mild cognitive impairment, but over the past few weeks we’ve begun experiencing some changes that…
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Dementia/Memory loss
Hi, I am new here. I hear because I know my mom has been having some congnitive decline. She has had afib (controlled) for maybe 9 years and sees a cardiologist yearly for a check up. He made an appointment with a doctor to establish her as a new patient and oddly enough she was willing to let me go with her. I wasn’t…
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Finding engagement for mom
How are you guys keeping your parents engaged? I cannot watch my mother all the time and I find that she needs constant interaction.
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Neuropsych Assessment/role in diagnosis
Husband with recent diagnosis of mild cognitive impairment based on assessments given by PCP & neurologist. Definitely struggling with executive functioning, short term memory and word finding/communication. MRI showed nothing out of the ordinary for his age. Did make note of a gilial scar on frontal lobe but indicated it…
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Alone with no visitors
My DH is transitioning between stage 7 and stage 8. He has mixed dementia and is receiving hospice care. He is now in a memory care facility. There are at least two other people in his section who are also dying. I have been with my DH for 6 to 8 hours each day for a week now. So far I haven't seen anyone in his section…
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Changing Neurologists
We are seeing a new neurologist tomorrow and I'm very nervous. My husband was diagnosed a year ago at age 65. The neurologist was saw wasn't very helpful. Just said take Aricept. We received a letter that the doctor went into research and we needed to find another. Any suggestions on what questions I should ask? The…
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Dietary Changes
Hello! I have found this site very helpful thus far, and am hopeful for any advice regarding meals. My DH is late Stage 5 and moving into Stage 6 (DBAT). Before AD, he had a vast palate and would eat anything I cooked. From simple to complex flavors, textures, tastes, etc….and I have always enjoyed experimenting with…
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Later stages
Mom moving into late stage. She’s been on hospice over a year (gets really good care!) and is not depressed or anxious. But she is progressing. If I bring treats I now sometimes (often) have to feed them to her. It hurts to type this. Any advice on getting through these layer stages? I can’t just check out, but being with…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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How early should spouse assume all driving or financial matters?
I sometimes wonder if I took on my wife’s usual tasks (driving, finances, etc.) too soon in an effort to avoid seeing her have an accident or to keep finances becoming too complicated. If she’s comfortable with me doing both, should I just continue, or should I encourage her to return to these tasks with a limited role in…
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Moved to NC, 2640 miles one driver, DH with VD and 2 dogs!
My son and his family live here and now so do we. I felt the window of opportunity closing rapidly. DH's mobity is declining rapidly. Difficult to walk with a walker or stand independently. He is still capable of understanding and thankfully was able to sign the papers for selling and buying the homes. I did underestimate…
Commonly Used Abbreviations
DH = Dear Husband
DW= Dear Wife, Darling Wife
LO = Loved One
ES = Early Stage
EO = Early Onset
FTD = Frontotemporal Dementia
VD = Vascular Dementia
MC = Memory Care
AL = Assisted Living
POA = Power of Attorney
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Dementia Resources
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