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Shower issues
I apologize if there is already a thread about this…. My mother is constantly refusing her showers, I understand the facility cannot make her shower but my concern is UTI/health issues, as she has a history with them. How long can they actually let her refuse to shower? My sister and I try to be available on her shower day…
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Early onset Alheimer
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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Early onset Alzheimer
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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My spouse does not remember who I am.
My spouse does not recognize me all the time. I cannot control her in anyway when she forgets who I am. What can I do about that?
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Father in memory care one day loves it one day hates it
our family is on a rollercoaster with my father. He is in a memory care facility now. He calls one part of the day in good spirits and hours later he is agitated and irritated with the facility. He upsets my mother tremendously and she does not know how to handle it. She, herself, is recovering from a stroke, which is why…
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Losing his thermostat - supposed to do anything?
My DH is into early stage 5 probably. Diagnosed a year ago with Alz. I've noticed the last few months his hands and feet are often cold. Circulation issue I imagine. He's also been keeping the house around 70 at all times. Tonight we happen to be in a hotel room on our way to visit the grandkids for Thanksgiving.…
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TV help
I just heard about Jubilee TV. A caregiver can control a LO's TV from afar via a smartphone app. This might solve a lot of headaches. Iris
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Swelling in ankles and feet
My DH is stage 7 and under Hospice care. His mobility has decreased quite a bit in the last month. From time to time he has had swollen ankles, and now this past week his feet are very swollen to where we can’t get his shoes on. Hospice nurse doesn’t seem overly concerned. I do plan to buy a lift recliner this weekend as…
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Mom 89 has alz dementia is having anger and agression
Mom was diagnosed about a year ago and is now having anger and agression issues. She's taking medication for the moods but its not cutting it. She has good minute and bad minutes and back to good again. I was going to say good days but felt that wasnt correct. I believe she is still capable to shower and take care of her…
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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My DH is wanting to spend every minute with me
My DH is recovering well from knee surgery. I have been caring for him and not leaving the house for 4 weeks. He gets around with a walker and I can take the dog out for a walk now. He gets mad if I am out longer talking to neighbor. Doesn’t know what to do with himself. I looked into having a caregiver come to our house…
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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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Home visit
My wife has been in memory care for 3 years now and Im thinking of bringing her home for thanksgiving dinner with our daughters and grandchildren. My youngest daughter has had Thanksgiving and Christmas for the last 5 years, but cannot this year. My older daughter does not have a large enough house to accommodate everyone.…
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Home health care
I'm 70 and in reasonably good health, some issues that are well managed. DW is 67, about 3 years or so in. I would say moderate stages. A fair amount of urinary incontinence, needs assistance with bathing and dressing. We have an adult daughter who's doing all she can to help us. I cook breakfast every day, and either our…
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Dogs and Alzheimer’s
my husband was diagnosed with MCI and now in stage 1 of Alzheimer’s Does anyone have a recommendation about a puppy/dog for my DH? I am still working and he does not have many hobbies, I was hoping this would give him a companion and something to care for and keep him busy. He loves small dogs and we are considering but…
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Respite
As my DW keeps moving more into Stage 6, I've been thinking about how I have fought to get respite this past year and how much I am changed by it…in the best ways. I retired early, after crashing hard at my new job. Had to take an FMLA I had gotten so low and after having two weeks off with me just sitting in a chair,…
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POAs and requirements for incompetence
My mom was recently diagnosed with Alzheimer’s, and I’ve started the planning process with her. One thing I’m struggling with and can’t seem to get a straight answer on is the wording of her health care POA, It states that she needs to be determined incompetent by a medical professional before decisions can be made on her…
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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Knee surgery for PWD?
Both of my DH's knees are severely deteriorated and he qualifies for knee replacement surgery. He has MCI but most likely has progressed to stage 4. I'm terrified to have him go through the surgery because 1) I've read that general anesthesia can cause further cognitive decline, and 2) I'm not sure that he will have the…
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Take a cruise?
DH sooo wants to travel still. He is in late stage 5, some into 6. He is continent, unstable but still walking especially with me beside.. He is very opposed to using a wheelchair. He knows me, does not sundown, is compliant. He has limited vision so doesn't wander. I would like to travel, too, and I worry about logistics…
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Grief Counseling: Yay or Nay?
My beautiful Mom transitioned this past August. I miss her every single day. It's painful, actually, and I know only a couple of months have passed, but time is not healing. Every day without her is painful. As her only child and primary beneficiary, I have access to grief counseling that her health insurance policy offers…
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Feeling sad and drained.
Hi everyone. I am new to this group, as I am finally trying to better myself by seeking some sort of help. I am 20 years old, and my mom has just been officially diagnosed with Alzheimers. I am the youngest of 4 siblings by 10+ years and I am still living at home and going to school. My dad is still working and my siblings…
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Worn out and stressed out
Hello all. I’m currently dealing with an 87 year old father with dementia. He has fallen at home about 15 times this year, and ended up breaking his hip in July. I moved him into assisted living as I didn’t feel he was safe to be alone at home. He was a smoker and the last time I was there I watched him not pay attention…
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New diagnosis
I'm 72 years old. I was diagnosed with Alzheimer's in September 2025. My neurologist said I will be at this stage 2 1/2 to 3 years. Then I will progress to next stage. I'm not eligible for infusion because of brain bleed and APOE 4 type. I live alone. This is very scary. I don't know how long I should plan to be able to…
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Experiences with anti-amyloid therapies (Leqembi or Kisunla)
Hi, I'm new to the community. My mom was recently diagnosed with MCI, blood test positive for AD. It seems there may be some serious risks with the anti-amyloid therapies but do the benefits out weigh the risks? I wanted to see if anyone would share their experiences with anti-amyloid therapies (Leqembi or Kisunla).
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Early onset Alzehiers
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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Early onsite alzeheirs
My brother 62 has been diagnose with Early On Alzeheirs could someone share what does a through evaluation look like: what does the team who would look over his care look like: what are question he should be asking: I need specifics because as of now, his primary care doctor is making all the calls on his treatment plan…
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Dementia
My father that is almost 70 has recently been diagnosed with mild dementia which was shocking for me because a year ago he was diagnosed with psychosis so I assumed his case has developed to schizophrenia but turns out I was wrong. He refuses treatment and therapy in every way. I try my hardest to support him with my…
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New here and learning
Hi! My mom is 95 and mid stage dementia. I moved her in about 6 mos ago and I am the only sibling left. I was able to get her on hospice for her COPD (also has cancer but they are keeping her on hospice for the COPD) but she is not actively dying. In fact, her dementia is far more difficult than her illnesses. They come 5…