-
Ordering Supplements
Hello, this is my first post here, though I have read through many discussions and found them insightful and therapeutic. My DH was diagnosed with AD last year, had been showing symptoms of dementia for several years, and had a previous diagnosis of MCI. For several years, he's been ordering various supplements that claim…
-
The Long Quiet
Dear Friends, I am quickly approaching ten years as a caregiver for my dear wife with late Stage 6 dementia. Alzheimer’s and dementia have long been known as The Long Goodbye because of the painfully long duration of the disease. No one knows how long their journey as a caregiver will go on, but I never imagined myself…
-
How to answer questions about going home.
My lo is in assisted living for past 3 weeks, she constantly cries that she wants to go home. She has moderate dementia and is 95 years old
-
How to Respond to Family/ Friends who mean well but their comments are a bit much at Times
A family friend says tell your mother Hello, even though she may not remember me. Or I heard she is really bad off.
-
A little pick-me-up
Sometimes the smallest kindest can make you feel so blessed. An old friend from our ski club who found out my circumstances sent me a gift box with this beautiful mug. I loved the message on it and wanted to pass it on to all of you awesome caregivers. We didn’t choose this life but we’re making the best of it out of love…
-
Should you tell mom that her brother has passed away?
New to the group here. Mom has late stage dementia, is 93 and her brother who lives in another state passed away. My dad who is 94 insists on telling her. I don’t think we should. I’ve gotten advice from medical professionals explaining the risks (and lean towards not telling her). I have to respect my dad‘s decision, but…
-
My Heart Will Go On..
I lost my husband and soulmate to Alzheimer’s one year ago today. It’s been a rough day. I miss him so much it hurts. I'm thankful for the beautiful memories we made. Love you LonHo! 🙏💜 Every night in my dreams I see you, I feel you That is how I know you go on Far across the distance And spaces between us You have come to…
-
vitamin B12 abnormally High
Hello I recently had a diagnosis changed from early onset dementia to Mild cognitive Impairment after psychological testing. a few weeks ago I had a lumbar puncture test done and some blood work. In my cerebral spinal fluid I had abnormally very high vitamin b12 and abnormally high Red Blood cells in my CSF as well. my…
-
New to community with Alzheimers
Hi my name is Katie. I am 67 years old, from MS and diagnosed in 2018. I am moderate stage. Looking for support, coping skills and living with anxiety.
-
Dementia study done by the UK
Interesting.
-
End stage
My father insists on taking care of my mom till the very end. He is struggling medically as well and they need lots of support. They are currently in assisted-living however I’m wondering at one point do I insist on memory care?
-
Gentleness and Continuation
I guess after reading about so many other situations I have it very easy. My DH is not aggressive, he’s very sweet and kind the sort of person that everyone loves. He gave up driving relatively easily and is quite good as a passenger, he accommodates most of my wishes if I manipulate the circumstances to suit. We go to the…
-
Wedding Ring
My DH lost his wedding a while back but keeps thinking he just lost it. He just told me he lost his wedding ring and said “ I know I had it yesterday” but he didn’t. I’m concerned now cause of the distress this is causing him. I’m acting nonchalant but he’s clearly worried. Should I go buy a new one and pretend I found it?…
-
worried about my own memory
My husband was diagnosed with early stage Alzheimers and lately I am wondering if I have alzheimers. I do not know if it is from the stress. He is very negative and constantly talking about what is wrong with him. I try to be patient but it is sometimes difficult with his pessimistic attitude. I am not sure if anyone else…
-
Bathing why it’s a struggle
I’m new to all this and the group. Yesterday was a bad day for me I have never reached out before but mum for the first time ever got so angry and nasty to me it was a shock never has she done this before in my whole life and I’m 52. All because I’m trying to get her to bathe. I hope and pray she doesn’t start to associate…
-
"Exhaustion" by Michael J Whelan
I follow Michael on X (Twitter). His is a stage 4 cancer survivor & his wife Rebecca has Parkinson's & now Parkinson's Dementia. He has such a way with words. He expresses what many of us feel. He posted this today: "A Letter to Exhaustion.by Michael Whelan Chapter 21. An except from my memoir. Dear Exhaustion, You didn’t…
-
Support Groups for DH
Hello Again - I have found so much support for me, as a spouse of a DH, but not so much for my husband, or for the both of us to attend. He is still at a stage where he might benefit from others' perspectives. Mostly, I'm looking for outside validation for things like driving… Warmly, —CydS
-
Elizabeth Dole Foundation assistance for caregivers of veterans
if you are the caregiver of a veteran, contact the Elizabeth Dole Foundation for assistance. Veterans do not have to have a disability rating to qualify for assistance. Go on their website and fill out the intake form. I posted further information on the caregiver information page with their phone number and assistance…
-
Kisunla
Good morning to all. I hope you’re finding peace somewhere along this journey that we’re all on together. I don’t post very often, but a friend sent me an article about a new monthly infusion called Kisunla. I’m wondering if anybody out there is aware of this or has had any experience with it. This is advertised as yet…
-
The move from Al to a SNF
We moved mom yesterday. We told her about a week before the move (my brother insisted). When we got there she had packed up everything in the room. My brother insisted we bring whatever she wants, that there is room for. When I asked mom what boxes go she points to a pile. I bring them to my car and they have sewing…
-
It Is Over
Three weeks ago my dear wife of 57+ years ended her battle with this cruel and heartless disease, Alzheimer/Dementia. She declined very fast over the few weeks prior. I promised her at the start that I would do my best to never put her somewhere for her care but, rather, have her at home forever. While it does nothing to…
-
I wonder if I am seeing things not there
My wonderful husband of 49 years was diagnosed 2 years ago with MCI, he is slipping more (forgetting conversations that just occurred, throwing out items we need, personality changes, etc.) and I anticipate at our appointment with his neurologist later this month, he will "upgrade" his diagnosis. All of this being said, my…
-
Stopped Memantine
Hey everyone! So I just wanted to share a bit of my journey with my Mom with Dementia. We were giving her Memantine and the whole time she was on it she was having vivid dreams that woke her up and made her really upset in the mornings. We consulted our doctor and we stopped taking it. There have been fewer wake ups and no…
-
When did you insist they stop driving?
DH is in the early stages - mostly stage 3 with some stage 4. I do 90% of the driving, but on the occasions that he does drive, I haven't noticed any difficulties. However, I am noticing more instances of general confusion in following conversations, understanding instructions, maintaining a calendar, etc. He is awful with…
-
I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
-
beginning this journey with my mother. feeling alone
Hi, I feel really alone. I am new to all of this. This is the first time I have gotten into this website. Will have my first support group meeting next week. My mother lives far from me and I believe she has some sort of dementia, but early stage. My mother's short-term memory is not good. She has forgotten how to use the…
-
Notary for Power of Attorney in Pennsylvania - Questions
Loved one has dementia. Some days are more lucid than others. They need someone to handle their affairs though. Loved one has not paid property taxes or filed tax returns in a couple of years. We just paid their property tax for them (5K) although they have the assets to do this themself. The social worker at the memory…
-
DW’s anger
I have noticed that my DW easily angers and directs it at me, but will turn around and be polite to others. Has anyone experienced this?
-
Morning thoughts
This morning…The Puzzle I emptied the new puzzle package onto the table I use for my newest obsession, assembling puzzles. I usually work on 1,000-piece puzzles but this one seemed to have 10,000 pieces. It seemed impossible at first, but I resisted the notion of discarding it. I figured there must be a solution. I was…
-
Mother rejected from two memory care facilities
My mother was rejected from two memory care facilities.Because she did not want to stay there and wanted to go home. We're running out of options and we're not able to get her the care she needs. She is staying in a mental health facility, and they're wanting to discharge her. We are unable to care for her. We don't know…