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Firsts
Six months into my grief for the loss of my dear wife and rolling into the new year the changes seem forever and overwhelming. As soon as you think you have completed all the distasteful changes required, another pops up. In trying to encourage friends and family, who are not impacted as directly by a loss, to build…
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Changing personality
This is my 1st time on here. I needed to vent. My wife has early onset and has mild cognitive impairment. She is still high functioning but has become very anxious. She gets riled up fast and takes it out on me. I am finding that I lose my temper when she is angry at me. Afterward, I feel bad cause “I should know better.”…
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On the verge of a nervous breakdown
Hi everyone I am new here and not sure what to say or even where to start I just feel like I am losing my sanity. I do not know if I am the only person this type of situation has ever happened to or if I really am going crazy. It is a complex story; 7 years ago, I moved in with my mom who had had a stroke and was in the…
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Father in hospital, begging me to set him free
This is my first post here. My dad was diagnosed with Alzheimer's disease 3 years ago, and I have been his caregiver ever since. I am his sole caregiver, and we have no family nearby. He had declined to the point recently where I began arranging a room in a nearby memory care facility for him. The weekend before his…
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PET scan -Update
Update: The Neurologist said he is eligible for IV infusion medications based on his PET scan. We need to have a blood test done that would provide info regarding the likelihood of ARIA (brain bleeds), so we’re set to do that next week. If that comes back okay, they will set up the therapy plan and present it for insurance…
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Seroquel 25 mg
My DH started having started having delusions, some hallucations with hearing noises. He thinks men are hitting on me…family members, repairmen. Wants to go grocery store with me so men won't hit on me. Follows me around constantly. I am wondering if things will go down hill from here. The doctor precribed Seroquel 25 mg.…
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I am new to this group and am grateful!
Hello! My DH was recently diagnosed (December 2025) with AD at 70yo. In hindsight, I began noticing "questionable" moments here and there probably 2-1/2 to 3 years ago, but he had just retired and I chalked it up to a major life shift. About 18 months ago, my worry intensified but he would not hear of it. As the months…
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Caregiving Song
When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…
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Learning what not to do
My husband has alzheimers. I just need a place to get good advice as to how to handle certain situations
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Re: Respite
Everyone tells me I need to take advantage of the respite being offered by friends - I have complied several times, however the fact that nothing is going to change with regard to caring for my spouse, especially at night. It’s only going to get more difficult and having an afternoon to do whatever for myself is like…
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Watching Alzheimer’s Take My Grandmother Changed Me! Now I Want to Build Something That Helps
After losing my grandmother to Alzheimer’s, I’ve been thinking a lot about how difficult this journey is for families and caregivers. I’m an engineer and want to use technology to make people’s lives more comfortable and better in this space, but I know I need to understand the real problems first. If you’ve worked in…
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end-of-life decisions
What are the options for a dignified death if your state has not legalized medical-aid-in dying (MAID)?
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When friendship is impacted
I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…
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Seeking volunteers to serve on Alzheimer's Association Early-Stage Advisory Group
I'm a member of the Alzheimer's Association Early-Stage Advisory Group (ESAG). This year's diverse group includes 10 others besides myself, with a variety of education and work experiences. I've learned they are all much better communicators than I am. :) ESAG members serveone year terms, the new group will start on July…
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Sudden Changes and transitions
My daddy has had dementia for awhile. He was walking and following directions while he was with my mother in assisted living. They actually were quite active. Unfortunately, they were not in a facility that provided good care. I received a call informed me that my dad's legs were swollen. I checked them and took him to the…
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Leqembi Infusions
I am due to start my first leqmbi infussion next week. I am very hopefull it will be benificial as my dx was recent and I am currently displaying very few symptoms other than failry typical age related forgetting.
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Spits his food out
I don’t know if this is a phase or just a progression of the disease. My DH is losing roughly 4 lbs. per week, and I’m sure it’s due to spitting food out. He will take a few bites, swallow, then the rest of the bites he spits out. What can I do about this? Nothing? I’m curious if others are dealing with this same issue.…
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Mom is 89=Alzheimer, Dad is 95=Pancreatic Cancer
Hello everyone~I just signed up with ALZConnected bc I am in need of experience, advise, support with my elderly "independent" parents whom I love so much! Here I go: My mother is 89 years old. May 2025 she was diagnosed with type 2 diabetes which has been challenging due to memory declining over the past several years.…
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Starting LEQEMBI next week need some advice
Just was diagnosd 4 weeks ago and start my Leqembi next weeek ….I hate needles and I would like some information on what to expect…Thank you so much.. I have had 2 TIA's and am a little worried about this whole Leqembi thing. Is the first time really bad or is it doable? thank you so much for this web site I had no idea…
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DH and my constant sobbing
I have read some of your posts and I feel terribly guilty about posting at all. My DH has had dementia for about three years and I believe he is in stage 6c. I'm trying to stave off incontinence by taking him to the bathroom at regular intervals. Being the toddler he is, there is no guarantee that this will work. So the…
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From the NYT: Blood tests for predicting Alzheimers
NYT Article shared. "Could a Blood Test Predict if You’ll Get Alzheimer’s? The tests could help to improve dementia care, but scientists say there are still some caveats and unknowns." There's a lot of nuance in this article. I think the main question for patients is: If you get a positive result, what do you do? It…
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Sundowning
Hello, I’m very new to this group and confused on this newly diagnoses of Dementia for my mother! We are still going through a lot of appointments and tests and we don’t have a actual diagnosis of what type of dementia my mom has but they are leaning more towards Lewy body because she has a tremor on her hand! My question…
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A New Level of Loneliness
I see that I had a post last year about the loneliness of living with a spouse with AL. Of course, the disease has progressed. I'm guessing that he is more stage 4 than 3. Really, who can tell for sure. We have a daughter who is not currently speaking to us as she works through some things. Exactly what things, she did not…
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Coping
I'm a caregiver for my Mom long distance. I don't have any support and I'm not sure how to cope anymore. She is declining and I feel she needs different meds because she is starting to show side effects. Not sure how to straighten this out. I've asked for help from docs but nothing changes or they are very vague on the…
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Grumpy Old Man
My DH is always mean to me. He thinks it is real funny when he locks me in a room. He loves to see me get angry. Always tells me I am fat. First thing in morning he says, Wheres my breakfast!! Like I am his servant. My 8 yr old grandson was visiting and it was constant teasing. MY grandson gets so confused that he is very…
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Helpful Resource
This site is an amazing resource of help and support for so many. I also saw a post in another section of a video on a particular subject. I found the information, presentation and vocabulary right on target for this audience so I thought I would share it here. It is offered just as another resource and supplement to this…
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Need to whine about moms house
Mom is a hoarder and her house is full. The house is an hour’s drive away. I have averaged one full 8 hour day a week there for the last three years. I replaced the carpet and sealed and painted the walls in the living room that had cat spray, I dug a path to the water heater and had that replaced and I got all the food…
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Mom in hospice care and seeing and talking to people
I hear this is common. Is it? My mom is in hospice care at her MC facility. I was with for a couple hours today. I would talk to her and she would answer back. She was more alert than she has been in a couple of days. I felt like it was a gift to be able once again to say something to her and she responded. It was mumbled,…
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Vascular Dementia and hyperactivity at night
My mom has been very active at night, talking to herself, calling me, can’t settle down etc. anxious any suggestions? she is on 100 mg of Trazadone, rispiridal, buspar, visteral and nothing is helping her to sleep! She was also recently diagnosed with stage 4 kidney failure from an arthritis medication side effect. i feel…
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Any of you dealing with sarcopenia?
My DH appears to be declining physically more quickly than cognitively. He has VD but both his mother and older brother died from alz, so he may have mixed dementia but not diagnosed. He sits most of the day and has for years. His legs and hips are weak and getting weaker, he has difficulty: rising from sitting, standing…