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Navigating Senior Care/Nursing home/Memory Care
Hey again! I am overwhelmed with all the the things involving how to pay for my moms care when she will need a nursing home or assisted living or memory care. I am trying to find all the differences and which one fits her needs. But not now. She is ok for now. I just know I need to make a plan before she needs it. We have…
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How Do I Stop Being Angry?
My Asian mom's dementia suddenly surfaced in early March during a traumatizing incident that resulted in me getting kicked out of the house in the middle of the night. Since then, my older sister (who is my mom's long-distance caregiver) has made plans to move me & my mom to VA to live with her in a new house that's…
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Brand new. Need help.
I can't get my DW to go to a doctor, much less to get a diagnosis. She refuses to talk about the possibility of her getting D. It runs in her family. She is very functional but showing personality and memory changes over the last several years. How do I trick her into going to a doctor then getting the doctor to perform…
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New to the Group
Where to begin……… I have so many questions/concerns. My aunt of 68 years young has been forgetting things on a regular basis for the last year. It has gotten progressively worse the last few months. She has owned her own business for the last 40 years and has been a independent single women her entire life, she doesn't…
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I am seriously flipped out
I made the cardinal sin and physically took off my husband's shirt because his stomach was hanging out. Now he is calling me a b____and I suppose I am Now I asked him if he still loved me. Of course not. sometimes I just say I love you to him just to hear it back I still don't know how to navigate this private hell
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Mom rapidly declining cognitively
All of this seems to have started in May when my Dad had a catastrophic brain bleed and now is in a group home/hospice. I am trying to manage my Mom's life from 2,000 miles away though I am making my third trip out there since May in 2 weeks. I have hired a caregiver ( we are on the third one) to help my Mom around the…
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So many questions...
Hello. My husband was diagnosed with Alzheimer's on August 6. The Neurologist didn't mention a stage but our GP said it's moderate to severe. His has trouble speaking, he can't find words. His short term memory is severely impacted. Normally an optimist, he's become severely depressed. He's now on Namenda, Rexulti &…
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Mobile tracker/newly diagnosed
Hello. My dad was recently diagnosed with dementia. It breaks my heart to see the changes. I am so thankful to God that he is still here but it still hurts. He is the best dad in the world. I try not to think about what the future could hold, but its difficult. His doctor suggested we put a mobile tracker in his phone…
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Sleeping at night
My DW has recently begun sleeping for 10-12 hours at night. We usually go to bed around 10:00 - 10:30 pm. She fights getting in bed but once I get her in bed she immediately falls to sleep. She doesn’t wake up until anywhere around 10:30 to 11:30 am. She then lied in bed and gets angry with me if I encourage her to get up…
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Kisunla vs Liqembi
I was recently diagnosed with AD after having MCI for the past 5 years. My neurologist is recommending that I start a monoclonal antibody treatment regimen and has suggested Liqembi. As I do my own research, it looks like Kisunla is considerably more effective. It more aggressively removes existing plaque while preventing…
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Just a teeny vent to those who understand
I was sitting outside with my DH. It was 104 degrees during the day and still 94 degrees at night when we were outside. We were talking about how the crowd at the community music concert was really small this week. I said it was probably the weather because it was hot. He said no because the weather was mild. I just looked…
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Stopped Memantine
Hey everyone! So I just wanted to share a bit of my journey with my Mom with Dementia. We were giving her Memantine and the whole time she was on it she was having vivid dreams that woke her up and made her really upset in the mornings. We consulted our doctor and we stopped taking it. There have been fewer wake ups and no…
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I need to hear a "poor baby" from someone please
DH is end stage EOAD. He is in hospice so I have contacted his nurse to help with medication adjustments. He had not peed all day, I was texting his RN to ask about this when he went into his room and peed all over his bed. Because I have a plastic mattress protector on there was a puddle of pee. He then dragged his pillow…
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Mother won't stop walking
Hi, a week ago my mother began walking non stop. She sits or gets in bed and is up in a minute. One day she walked for 22 hours straight, no sleep. She is 101! I am exhausted. Has anyone experienced this and any ideas on what to do? p.s. the drs. prescribed Haldol, Lorazepam, Seroquel, Doxepin and nothing worked
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Reality
Just wanted to share my reality. My DH is a very physically fit 72 year old who was diagnosed with AD 3.5 years ago. One year ago today, August 23, 2024, he looked at me and said "who are you and where is my wife" Known as Capgras Syndrome, he knows most people, especially old friends, thinks I look like something like his…
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Sometimes you just have to laugh
So, I have a port wine birthmark on my face and I didn’t feel like putting on makeup to cover but I wanted to go get fresh beans and corn for dinner. DH says “I don’t know what you’re worried about, no one is going to pay attention to an old worn out lady like you” Then proceeded to say “you’re really acting crazy and not…
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Anger Issues
My sister was diagnosed with dementia in April of 2024. She has recently become very angry with her daughter and myself. It seems that whatever we do it is not right. She doesn’t give us a chance to explain when she misunderstands what the conversation is about. She continues to talk over you and says we don’t hear or…
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Frustrated
My mother is dealing with memory loss and refuses to see a doctor. We have tried to convince her that she needs to have a check up, she get physical with any of us it we try to put her in the car. How do you get someone evaluated if they refuse to go?
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Promising News for New Anti-Amyloid Antibody Treatment
Sharing because I wish this was around when my mom was diagnosed with Alzheimer's... There's a new drug that seems like it has a good chance of becoming a game-changer for Alzheimer's, called Trontinemab. It was developed by Roche Alzforum.org posted an article today about this new antibody, the article summarizes the…
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Lost Keys
Where does everyone store their extra keys? I’m trying to figure out a place where my husband can’t access it. My husband lost a key to our back room. In looking for the lost key he went through the box where we keep our spare keys. He didn’t know what the keys were for, even though they were marked, so he threw most of…
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How to stop concerning behavior
How do you stop your LO from doing inappropriate things? Two examples… When we walk in the neighborhood, DH sometimes wants to walk up people’s driveways so he can look at the water behind their house. I can’t think of anything to stop him other than saying that’s private property, then he gets angry at me and cusses me…
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Decline in verbal ability?
My Dad is 89 and in stage 5/6 of mixed Alz/vascular dementia. He lives in a MC facility and has been on hospice for almost three months. He seems relatively stable except for mostly one thing: his verbal abilities are declining quite a bit. He has gone from mostly full sentences with some word finding difficulties where we…
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get cancer check-up?
My question is related to the recent one about a GYN appointment. DW had a thymectomy in 2021. She did not need follow-up radiation or chemo. She has had semi-annual check-ups since then and is now on an annual check-up schedule. So far all of them have been clear Her next one would be in October. It entails a blood draw,…
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How much do they know
Hi I’m a regular contributor to the spouse caregiving group, but have a question that maybe some that has EOAD can answer for me. My DW was diagnosed at 53 with EOAD and is now 56 and solidly in stage 5 with signs of entering stage 6. She sits and cries a lot during the day saying that she doesn’t want to be this way and…
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Journal
I have never journal before. I thought I would start. I am thinking it will give me a way to get my thoughts out. Does anyone else do this?
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Alzheimer's & Alcoholism
My grandmother is a functioning alcoholic & just got diagnosed with Alzheimer's. She refused to have the all day testing done because she would rather sit at home and drink & she hasn't been deemed incompetent to make her own medical decisions so we can't make her do anything she doesn't want to do but they were able to…
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…
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Moving Mom
My sister and I are getting things ready in my mom's new room in Memory care. She will be moving in on the 2nd. Any advice from those that have already moved their parent? What things did you find helpful? What didn't go so great? Necessary items for the room? Any advice would be helpful!
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New Diagnosis Support
Hello, My husband was diagnosed with MCI two years ago and within the last year we have had diagnostic testing for diagnosis of Ealry Alzheimers. He is doing well and on medications, but my question is about sharing diagnosis information with family. I have kept this private for the first year and then finally shared with…
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GYN Appointment
My 69 y/o wife is in stage 5 Alzheimer's. She has her annual GYN appointment coming up next month. She has declined significantly since last year and I have a couple of concerns. 1) Her personal hygiene has deteriorated and she resists my attempts to help and 2) She might not understand the purpose of the exam and become…