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Just dropping in
I just wanted to wish all the ladies a Happy Mother's Day. It's really hard to appreciate an occasion like this when you have your hands full, but try to take time to pat yourself on the back, and find the time to do something for yourself that will lessen the load, if even for only a little while. It's been a while since…
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Advice on phone calls
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10 Absolutes in Dementia Care
Shared by another member here - Thanks Chug! Here is one you can download or print:
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Is it necessary for Nurologist it ask same questions that upset patient everytime?
some of you know me as I always have lots of questions but for those of you who don’t know my situation it’s that my wife , I feel , is handling this nitemare much better then most that being said I know can change in a heartbeat . It’s 3 yrs and other then not driving or cooking anymore not doing too bad, her short memory…
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Won't drink enough!
How do you get your LO to drink fluids? I am tired of harping on mom to drink. She will ignore the water,juice, or tea in front of her face and keeps getting UTIs.
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Awareness of condition
My DW lapsed into the lost memory phase, and had a particularly hard time. She still knew me but said she felt lost. This made me wonder if she had any awareness that something is wrong.
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Therapist or counsellor
Hi there, my wife’s mother was diagnosed with early onset Alzheimer’s. She is understandably finding it emotionally tough. Could anyone recommend a therapist who specialises in this (for my wife)? Many thanks in advance
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help for a friend
I care three times a week for elderly woman who is mother to close friend. although early stages we shop shop shop i pick her up and drive her wherever she wants to go. we eat then shop she is allowed $60 a day and inevitably goes over forcing me to dig in my pockets which i do willing she is kind then mean and discusses…
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How often do you visit?
I made the mistake of visiting my mom (every other day) the first time she was placed in a nursing home. It just kept her from acclimating and each time I visited her she thought I was taking her home. It was doing her more harm than good. So, this time around (I took her out of the nursing home but had to put her back in…
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Caregiving
Never in my life did I ever think that I would be a caregiver to a person with VD with a heart failure diagnosis. Some days I think I can get through it and then other days I question whether or not I am failing and needing to go to the nut house myself. I feel I am living a nightmare that just won't end, and I have no…
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On the Upside
I just wanted to share a few positive wins in this land of the seemingly ever-down life. We are now 7 weeks post-MC move-in. Last weekend, in honor of Mother's Day, the care facility hosted a breakfast with mimosas and small fresh flowers for each Mom. It was a treat to share that with my DH since life with FTD is…
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Mom isn't talking to me
Hi, I'm new to this. Mom was diagnosed earlier this year with stage 3 Alzheimer's. I was caregiving for her. I had to stop because it was affecting my mental health. Mom is mad and hasn't talked to me for several months. I use to talk to her every morning. Has anyone else experienced this? How did you deal with this? Did…
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Introduction and Question
Hello! Grateful for this group. Here I go. Introduction, Question, and probably too much background for one post. My father passed away in December 2024 while my mom was in ICU. Since her discharge, I've transitioned her to Assisted Living in the town where I grew up/they continued to reside—location per her wishes. ( I've…
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Book that Gets It
Like we have time to reas? If you do, however, this novel by a writer whose husband died of Lewy Body Disease is good fictional treatment t of the rabbit hole we caregivers fall into. https://www.forewordreviews.com/reviews/counting-backwards/
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Downsizing from Assisted Living to Memory Care
My FIL is currently in a one-bedroom apartment in assisted living. Unfortunately, his dementia has progressed to the point where it is time for him to transition to memory care in the same facility. (In addition to general decline, he has become combative and aggressive.) His memory care room will be much smaller than his…
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Reappearance of distanced siblings
My Father was diagnosed with VD with onset AL 4 years ago. I took over as POA due to a broken unrepairable bridge between my Sister the former POA, and Dad. I've learned so much about their former relationship in the last 4 years and frankly, I wish I woud have found out sooner in order to rescue Dad. She kept him in the…
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I moved DW to memory care (part 2)
So, that's the background. All of our family and friends were supportive of placing DW in MC, even urging me to do so, reminding me that I had to take care of myself. The conundrum for me was, how was I going to get her in the door? How was I going to get her things to the MC facility? One suggestion was to say her doctor…
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Started with hospice care .
Lots of help and support . Also I kept a home care person who is working out well . Hoping to be able to have some time to be myself this week . We had a nice mother's day with the grandkids visiting . Of course it was hard for them but important they got to see their grandmother now and not later as this progresses. My…
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Short term memory and spouse
I am 56 and started having memory issues this year and seems more prevalent recently. I dont have a diagnosis yet and see the neurologist in Nov. A recent example is my wife and I went on a hot air balloon ride in Africa. 8 days later she told friends we took the balloon ride and I interrupted her and said no we didnt. I…
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I Feel so Awful….
my DH is cognitively stage 6. He layers clothes, confuses hand cream for tooth paste, hasn’t known me for a long time, (though he likes me). When he is having a good day and 4 hour respite, it’s easy but he has to stay continuously busy which is hard. He loves the out doors, hasn’t wondered but daily gets cuts from picking…
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New to caregiving and I have no idea what I'm doing
Hello… My amazing aunt was diagnosed with Alzheimers/Dementia about 18 months ago. I'm not entirely sure how long she was really struggling before I stepped in, but I fear it was several years due to the things I have been discovering in her files as well as learning about the disease. Hindsight is 20/20 and what I thought…
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To moms...
To those who are moms - have a beautiful mother's day. To those who are taking care of moms - may it be a peaceful day.
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Next?
Mom has a brain hemorrhage and is in critical condition at a local hospital. She is going to die before my dad. He has step 7 vascular dementia and he will accept the fact that Mom died? Geeze, both parents with life threatening conditions. I'm medical POA and need to make the ultimate decision. This is so hard.
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Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
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Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
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Hope and hospice
My husband started on hospice a month ago. I find it has heightened my hope that the end will be here soon. Sadly, a side effect is I am getting exhausted from the waiting. I visit every day and don't feel like I can really separate sufficiently to do something like take a weekend away. I don't feel my presence is that…
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Focus on the Now, the Positive, the Moments
My name is Vickie B. I turn 50 in 4 days, and I've been living with younger onset Alzheimer’s since 2021. Have I cried? Yep- a few short times. BUT I have made it my mission to not stay/live in my sadness. I choose daily to see and find beauty and joy around me. And if I have a bad day, I give myself some grace. Honestly,…
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Decompressing after a tough visit
I guess all we can do is take a deep breath and exhale, right? I visited my mom yesterday. She is in Memory Care. I put my game face on. I went through the locked doors she now lives behind. I walk through the community to my mom's apartment, and as I do I smile and wave at other residents I have come to know and say their…
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New, Scared and Confused...
I'm obviously a newbie to this site, as well as the amazing and mysterious world of Alzheimer’s. I began seeing a neurologist last summer because of an inability to think as clearly as I once did. Memory didn't seem like much of a problem since as far as I can remember, I always had a bad memory. Other issues that I…
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Is there any other way to relieve agitation besides medication?
My dear grandmother was diagnosed with Alzheimer's last year, and just in the previous few months, she has gotten worse. She has been yelling, berating, and crying lately, more like a manic patient. Sometimes she yells at my grandpa, mom, and aunts over a small thing. We are all heartbroken. And she refuses to take her…