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Help for Caregivers of Veterans-Elizabeth Dole Foundation
The Elizabeth Dole Foundation offers assistance for caregivers of veterans who were wounded or have an illness such as dementia. The veteran does not need to have a disability rating. They offer financial assistance, mental wellness, financial wellness course, webinars, and assistance navigating the VA system with aid and…
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Guilt and Regret
My wife passed away 8 months ago, and I was taking care of her 24/7. It was getting difficult, sometimes I lost patience and was abusive to her - other than the grief that I'm still going through for someone who I loved so much, how do I handle the guilt and regret that I feel at times? It was getting really tough at the…
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PWD refusing to pee with aide, instead ends up going on floor, help!
Looking for tips to improve a situation! My husband is not incontinent but sometimes needs help in the bathroom, either verbal cueing, or sometimes a bit of physical guidance, to either stand close enough to the bowl to aim or to sit down and pee that way. The problem is that now I'm back at work, the aide (who's in her…
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Geriatric Psychologist
Hi, My mom was recently diagnosed with Alzheimer's. She is still in stage 1 and can be independent. Has anyone gone to a geriatric psychologist and did it help?? I appreciate all the help I can get. Thank you!!
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Processing The Grief
My dear wife left us three weeks ago after her eight year battle with this evil disease. I have been her primary caregiver throughout, supported most recently by a couple of caregivers for several hours each day. The family and friends were there for us at the end and for the week or so after the funeral. They all must go…
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Anosognosia Is Overwhelming Me
I know my DH cannot help having Anosognosia as part of his Alzheimers but WOW is it taking a toll on me. I JUST NEED TO VENT. NO ADVICE PLEASE. I have always been a person who is grounded in facts and science. Now I must try to shift my core personality to accommodate my DH’s lack of understanding of either of these as it…
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pre loss grief
Interesting Article Understanding family members’ grief for a living loved one Study looks at factors that influence pre-loss grief May 10th, 2021 The symptoms of grief people feel for a loved one facing a life-limiting illness fluctuate over time, a new study found – suggesting that individuals can adjust to their…
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End Stage
Hi. Mom is 86 had Alzheimer’s for 8 or 9 years maybe more. She is definitely in late/end stage. She sleeps 90% of the time. Been non verbal for over a year at least. Getting frail. Is this possibly a sign that this is close to end? My sister lives the closest so I don’t get to see her a lot. And don’t get much feedback.…
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i am so confused
My DH has been diagnosed with early stage dementia. He has been tested and it is not Alzheimer's. His short term memory is getting worse every day. He cant remember where we are going at all. I do the driving now. As an example I will ask him over and over to put is partial plate in. By the time he gets up the stairs he…
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when to stop work
Hello family, My DH is not remembering who I am. Has our wedding picutures from one room to another. Im thinking this might be soon til , the is last time he remembers us. He sleeps alot and is awake til ??? During day I work 4 days 730-5. Should I quit working? I dont know
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How do I make this decision
My DH has had Alzheimer’s for about six years. He eats well, is somewhat responsive but does not engage in conversations, forgets to bathe and brush his teeth etc. He is not incontinent. We have hospice in once a week to help him shower, which he objects to, and a nurse to check vitals. He also has congestive heart…
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Maintaining my marriage
My MIL has not been diagnosed that we know of but she is extremely forgetful, paranoid, and just plain cruel. She swears the doctors have told her she does not have dementia but refuses to let any family or her husband go into the doctor's office with her so we seriously doubt that is true. My husband (her son) and I are…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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Considering Alzheimer's as a spiritual journey
Found this on Google, and thought it'd be a useful perspective: Alzheimer's is viewed as a potential spiritual journey for both the person with dementia and their caregiver, offering opportunities for growth, connection, and a deeper understanding of self and life's meaning, even amid loss and confusion. This perspective…
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New Job Offer & Whether To Move
I’m from NY and moved me and mom to Florida four years ago. I applied to a nationwide job and the NY office interviewed me During interview they said: we have offices in Manhattan, Suffolk, and Newburgh. Which do you prefer. They also asked if I preferred to be transferred to recruiting for the Miami office. I said…
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Update
I want to give an update on what's been happening with DH. In my last two thread I shared that the facility said the state told them he had to move because of an incident where he wandered and got into bed with a female resident and touched her in an inappropriate place. The Division of Health and Senior Services (DHHS)…
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PBM laser light therapy for Alzheimer’s
Have any of your love ones had PBM laser therapy treatments? If so, has it helped for cognition? The research on this therapy for Alzheimer’s is promising for delaying the progression.
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Repercussions from shunt surgery.
My husband had a shunt put in for NPH (Normal pressure hydrocephalus) in July. Before that he had early Alzheimer’s dementia. After surgery, its a lot worse. We had to put door handle locks on the doors, shower & bathroom bars in the bathroom. He doesn’t remember anything. He makes things up, hallucinates. He’s losing his…
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Need advice
I am hoping someone out there has experienced a something similar and can provide some guidance. Background: My husband was diagnosed with Alzheimer’s “with a vascular contributing factor” in 2023. I would say he is probably in the moderate stage now. To the average person, he seems normal. Short term memory is really bad;…
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Moving Mom
My sister and I are getting things ready in my mom's new room in Memory care. She will be moving in on the 2nd. Any advice from those that have already moved their parent? What things did you find helpful? What didn't go so great? Necessary items for the room? Any advice would be helpful!
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Organizing home care
Hi everybody! I have learned much from this forum (thanks!), but now I face a new problem and need your kind advice again. My DW (82) has late-stage dementia. So far, I have been able to take full care of her (besides a bit of respite care from an aide), but all my current arrangements depend on my wife's ability to walk…
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At home caregiver help
Hello All! I am looking into hiring a helper for the weekdays for my Mom. I feel like she needs more attention than we can give her. What kind of questions should I ask a potential helper? I am meeting with a facility that hires out helpers this Saturday. I have vetted the company itself as much as I can online. I am…
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I don’t think I can do this
My mother and stepfather had both been in decline for several years and I have tried multiple types of interventions and been spending about half of my time with them at their house 2 ½ hrs from me for about a year. Two months ago my stepfather became ill and he died a week ago yesterday. I had been at their house pretty…
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Ordering Supplements
Hello, this is my first post here, though I have read through many discussions and found them insightful and therapeutic. My DH was diagnosed with AD last year, had been showing symptoms of dementia for several years, and had a previous diagnosis of MCI. For several years, he's been ordering various supplements that claim…
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The Long Quiet
Dear Friends, I am quickly approaching ten years as a caregiver for my dear wife with late Stage 6 dementia. Alzheimer’s and dementia have long been known as The Long Goodbye because of the painfully long duration of the disease. No one knows how long their journey as a caregiver will go on, but I never imagined myself…
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How to answer questions about going home.
My lo is in assisted living for past 3 weeks, she constantly cries that she wants to go home. She has moderate dementia and is 95 years old
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How to Respond to Family/ Friends who mean well but their comments are a bit much at Times
A family friend says tell your mother Hello, even though she may not remember me. Or I heard she is really bad off.
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A little pick-me-up
Sometimes the smallest kindest can make you feel so blessed. An old friend from our ski club who found out my circumstances sent me a gift box with this beautiful mug. I loved the message on it and wanted to pass it on to all of you awesome caregivers. We didn’t choose this life but we’re making the best of it out of love…
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Should you tell mom that her brother has passed away?
New to the group here. Mom has late stage dementia, is 93 and her brother who lives in another state passed away. My dad who is 94 insists on telling her. I don’t think we should. I’ve gotten advice from medical professionals explaining the risks (and lean towards not telling her). I have to respect my dad‘s decision, but…
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My Heart Will Go On..
I lost my husband and soulmate to Alzheimer’s one year ago today. It’s been a rough day. I miss him so much it hurts. I'm thankful for the beautiful memories we made. Love you LonHo! 🙏💜 Every night in my dreams I see you, I feel you That is how I know you go on Far across the distance And spaces between us You have come to…