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Stage 5
My DH is now stage 5 cognitively and memory wise. He is still able to attend to his personal care. Our specialist said this stage can last 6 years….can you share your experience in terms length of time and behaviors? DH has had a couple of angry outbursts where he kicks us out the house, no recognition of me for over 6…
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How will I get through this
Hubby 78 diagnosed in august with amnestic mild cognitive impairment. Memory not good with paying bills or remembering what day it is. Asks all day long what’s today. He still drives and driving is fine. Goes to gym every day. Reads. Doesn’t follow tv shows so good and irritable. So irritating I want to leave. Im still…
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Dementia and Personality Disorders
I know there are many of us here who deal w persons w difficult personalities and dementia. I saw this Dr. Natalie video and wanted to share. My DH doesn't have a diagnosed PD or diagnosed dementia but he sure does "quack like a duck." 😁 Im sorry it isnt hyperlinked. I never seem to be able to get it pasted that way!…
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My partner
I was recently diagnosed in early December and have been more worried about how my partner is going to handle being a caregiver…. He is a very sensitive thoughtful and caring person but also suffers from depression. Hence my concern….he did go to one caregiver support meeting.
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Freezing Credit with Experian
Does anyone have a guide or experience with freezing credit for Spouse with AD with Experian? I have checked their site, called their number, but can't find specific instructions for protected consumers. Number is automated, chat doesn't have any information for incapacitation. AI generated answer says to follow Experian's…
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Awkward and Embarrassing
I am asking folks on this platform for advice on how to handle a spouse who no longer speaks with a filter, seems unable to "read the room", and says embarrassing things in public. I understand that my spouse is no longer the woman I married almost 50 years ago, and she is not to blame for the disease that controls her…
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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Very interesting book
I almost hesitate to put this out there but decided to do so as I see improvements in my DH since starting him on this program. “Alzheimer’s Disease What if there is a Cure?” by Mary T Newport, MD is a very interesting read. I started following her suggestions with coconut oil and MCT oil on November 11th and have…
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Just Sharing
I stumbled upon this poem because the slide image of a dragonfly caught my eye. My dear wife, now gone for four months dearly loved dragonflies. I found them pretty and interesting but never quite understood her fascination. When we were at our condo in Florida sitting on the balcony, dragonflies would show up in numbers,…
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Decline when placed in Memory Care
Regret regret!!! My LO was placed in a Memory Care facility just three weeks ago. They were living alone and after three weeks needs wheelchair, has fallen four times, wears diapers, can hardly feed self and mumbles. He walked with walker into the facility on the day he was admitted.... what happened! Is it the change that…
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Barely Surviving Everday…
Hi, I am new here. By a grace of God, I was given this website, believe it or not from a woman that was a customer service representative at the Treasury Department. My mom has Alzheimer’s, and I suspected it four years ago and sent the alarm to the family. Nobody believed me, and thought it was natural aging, and…
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Bible Verse to Lift You Up 12/1/25
"FOR WHEN I AM WEAK, THEN I AM STRONG” 2 Corinthians 12:6-10 New Living Translation Paul's Words “If I wanted to boast, I would be no fool in doing so, because I would be telling the truth. But I won’t do it, because I don’t want anyone to give me credit beyond what they can see in my life or hear in my message, even…
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Bible Verse to Lift You Up 12/19/25
TODAY’S INSPIRATION THE LORD IS WITH YOU AND ME Psalm 3:5 New Living Translation I lay down and slept, yet I woke up in safety, for the Lord was watching over me. me: Our lives might be a struggle, but you and I are never alone without help. In Psalm 3, David writes the Lord is our shield and our glory; He hears us and…
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Bible Verse to Lift You Up 12/20/25
SET APART FOR GOD Psalm 4:3 NLT You can be sure of this: The Lord set apart the godly for himself. The Lord will answer when I call to him. MEDITATION How wonderful it is to be included in the people God has chosen for Himself. How hopeful and joyful to know He will answer us when we call Him. His answers are always best…
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Facebook and DH _ no way to delete my post??
I had already posted about this in the past, but can't seem to see a way to delete a post? My DH is in stage 4 going into 5, a year after alz diagnosis. He's still able to care for his daily needs and does many routine chores on his own. He's been on Facebook since 2019 and enjoys reading posts and posting his own things.…
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Looking to connect in or near Houston Tx area
Hello friends- I am newly diagnosed Early Onset. I'm looking for support groups, counselors or therapists/social workers who can offer support in this stage. I am in my early 50s, still working, kids in college, mortgage, mom with Alz. I need help and a place to be able to talk about what this means for my life. Like,…
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Drumming in his sleep
My DH is at moderate stage 5 and sleeps well through the night. He went to sleep at 7:30 this evening. In his sleep, from about 11:15pm to 11:30pm, he started a very fast, vigorous rhythmical drumming with his finger tips on the wall behind his head, lasting from 3 to 25 seconds each and less than a minute apart. My quick…
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Security system
Hello I’m new to the community. My father was diagnosed 2 years ago with ALZ. This past he has had a rapid decline in cognition and I need to set up door alarms and locks. Does anyone have a recommendation? I am pretty tech inclined. Was looking at Simplisafe VS. creating a piecemeal system. Any suggestions welcomed!…
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Christmas tree
With all the issues there are to deal with, this seems so very trivial. But, maybe someone here has some wisdom for me. I used to LOVE putting up the Christmas tree. It was almost a "ceremony" for me, with holiday music playing and every single ornament being hung on the tree. Window swags, candles, a village of ceramic…
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What Is Respite?
I’m so tired from 24 hours and going of aimless, but harmless, wandering, but, but… Today I have a caregiver for three hours. DW is accepting of her today. My respite is the garage door up with a soft rain, sitting in a lawn chair with the door into the garage locked so my DW stays with the caregiver, sitting here…
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Neurologist
How can I get an appointment for my sister before October of next year? UAB has no openings till then and no wait list to get on. The needs of the patient come first and it is a shame appointments are too far off when a train wreck is about to happen.
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Neuro Pyscological Testing
Well, mom's new pcp is on top of her game and I am so pleased. After mom failed her SLUMS test, the doctor finally was able to get my mom a neuro consult. She has an HMO, so annoying referrals are required.😢 Anyhow, referral obtained, appt made. Mom saw the neurologist today for them to review her MRI from July and consult…
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His Birthday is Today
My husband just passed on June 19, and today is his birthday. While there is never a good time to go, this is just too close for me. I am struggling in every way. How does one get through these important dates? I know the first year will be the worst, but this is beyond awful. People are calling & texting, and I'm hiding…
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Care conference
Mom moved to snf about 6 months ago. She is doing well for the most part. Her memory isn’t too bad, but she struggles with executive functioning, logic, and has bad anosognosia. She presents herself very well. I have a letter signed by two doctors stating she is not capable of making medical of financial decisions for…
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Companionship for the caregiver
I live in MA and for the last 3 plus years as my wife’s condition has continued to worsen the isolation has become overwhelming. I need social contact, adult conversation. I cannot be alone with this struggle and my hope is to connect with a woman who may be experiencing issues and to at some point meet for lunch, coffee…
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Hospice
It has happened. My DW has qualified for hospice. She lost 12 lbs in the last two months and can’t bathe herself anymore. That’s why she qualified, not because she is 6 months from dying or anything. Thought that might help some folks to know. Honestly though, I don’t see her making it to 2027. I am both a wreck and…
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From NYT: Study Linked Cheese to Lower Dementia Risk
If you like high fat cheese, you may have a lower risk of developing dementia, but may raise risks for cardiovascular disease. Shared article: https://www.nytimes.com/2025/12/17/well/eat/cheese-dementia-study.html?unlocked_article_code=1.-E8.81Oo.E1xhBSaBlICz&smid=url-share
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First time caller
My wife (60) has been struggling remembering things that happened yesterday or even an hour ago. I thought it was stress related because we had major events in our lives: retirement, moving across country, empty nest, new grandchildren. But that was just the start. We tried playing games like pickleball, cards, dice - most…
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Meeting with the Neurologist
New to this forum…We have met with the neurologist 4 times over the coarse of the past year. My DW does not understand why we are there, yet we sit and talk about her condition in front of her. It is very uncomfortable for me. When we leave she resents what has been said and voices her dissatisfaction with the doctor. Is…
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Quite shocked
Hi....my dr. was not expecting a diagnosis of Alzheimers. (neither was I!) He's a great neurologist and he could barely talk. We are going to move into an retirement community that has help with memory, etc. I just hate thinking about Az every moment. Thanks for listening.