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questions
My grandma has dementia and needs help doing things. She has been wanting moved every 5 mins to her chair and bed. She keep saying she don’t no what’s wrong and can’t see her dog in front of her everything is on repeat for her. How do I confront her or help her? Trying to not get upset but it’s hard
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Turning the corner
My last post, about mom's progression, was five days ago. Things have taken a huge downturn since then. She is eating nothing, sleeping 99% of the day, opens her eyes to my voice (sometimes) but no longer reacts with recognition. No speech or sound. MC staff got her to the table this morning but she just slumped sideways…
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Roommates kids bringing in stuff for mom
My mom is a hoarder! She lives in a nursing home with a roommate she really likes. It is almost impossible to get anything out of her room. My brother gave her popcorn in a tin for Christmas-she wants to keep the tin, she even saves empty single serve chip bags (no idea what that’s about), she saves all the cups they give…
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This disease has made it impossible to _______
Any one of us could fill in the blank, this disease has made it impossible to_________. I have many answers for that blank, but my current answer would be, to dress my DH. Putting on and taking off shirts, especially over the head has become impossible. He fights it, and having a contracted left hand plastered to his belly…
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Is it time?
DH almost set the house on fire today by putting hot coals from the wood stove into a cardboard box & leaving it out on the deck. It must have been smoldering all day. We (adult kids & I) discovered this just a few minutes ago.
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First Time I Couldn’t Wake Dad Up
My dad is in MC (stage 6, age 92) and has been sleeping more and more this whole year. He is almost always in bed asleep when I visit in the late afternoons. I am told he is often up for a few hours in the mornings. I work full time and cannot visit weekend mornings either. Usually he wakes up when I arrive, and I get him…
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Technology Question
Hi all, I am lucky enough to still work and have part time care at home. DH has lost the ability to use his phone (no executive functioning). At the beginning of the year I purchased a Memory Board to set up reminders (that I had fed the dog, that I would be home at X time, etc.). For the first few months he checked it…
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House Arrest
It's been a long time since I've posted or visited. It's four years since since I quit working full time. Husband is progressing. He is still continent and feeds himself but can't do much else expect walk within the house and up the driveway; anything else exhausts him. He is very happy. He is driving everyone crazy with…
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Advice Needed After Moving My YOA Mom from AL to MC
I posted here a while back when my mom was first diagnosed with ALZ and I was trying to move her from FL to GA to be closer to me. She’s 65, I’m 30, and I’ve been her POA for about a year. She’s divorced, so this has all been pretty overwhelming at times. After a really tough few months, my sister and I were able to get…
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Anxiety and Depression
Please share medications that have worked for anxiety and depression for dementia parents. My sweet mother is in late stages of dementia and cries at the drop of a hat and we have no idea why and she can’t tell us. I’ve read about different options but many meds state they’re not good for those with dementia and can cause…
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Mom making dementia/ALZ assessment spreadsheets
My mom, (mild-mod ALZ), (AL w/no leveled support) loves making spreadsheets on Google Sheets. I have access to her acct and review it daily to see what she is up to. She makes lots of lists and writes letters to companies and friends and it is a good look into what she's thinking. One spreadsheet she makes is copying and…
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Sad realization
We are visiting our grandchildren and yesterday while playing games with my DH and 4 year old grand daughter I realized she got the rules quicker than her grandfather. She kept saying, “It’s ok, and your color is red and mine is blue etc. while playing Candy Land. He could not keep the pieces straight or match the colors.…
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Infusion Therapy
First time on here and so happy I found this group. Husband was recently diagnosed with AD. Be interested if anyone’s LO has gone through infusion therapy. Any side effects, what stage they were in when started, drug used, etc. Did they get aPOE4 genetic tested? TIA for your feedback and support
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New Here - Suggestions for Getting Spouse To Give Up Driving?
To be clear - I have joined this group on behalf of my niece who is the caregiver of her 62 year old husband with ALZ. She still works full time (so has little time to do this kind of online research herself) and he is home alone all day. He is now at the point where he shouldn't drive anymore, both because of his current…
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Diagnosis restarts, conflicting medpro views, I'm burning out
I'm new here. I tried searching discussions & not much new—the uncertainty of everything is getting to me. My Mate (DW) 61 was diagnosed with EO (gene, fam history, 6 months of testing with long delays between, PET scans etc) in early February '26 (after getting a neurologist back in August. They referred her to an one of…
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Just another day
I took my DW out shopping for a new pair of sneakers, found a pair she loved. The next day we were going out and she wore the new sneakers and raved about them. When we got home she put them back in the box and placed them on the couch. The next morning I noticed the sneakers were gone from the couch but didn't say…
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Time to whine!
Had a terrible screaming match with my former partner. Diagnosed with Mci 5 years ago. His treatment is with the VA. I feel he is beyond mci. He no longer lives with me. He is in is own condo. Dresses himself, feeds himself, drives his car, bowls and golfs. Finances are out of control. Not paid or paid twice. We broke up…
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Mushrooms
My son, always holding hope found this article in the NY Post. I don’t discount the possibility of magic mushrooms providing temporary lucidity. Would love to see your thoughts. https://nypost.com/2026/06/04/health/alzheimers-patient-recovers-speech-continence-and-memory-with-this-drug/
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Shock at seeing the reality of dementia
Our local library held its first Memory Cafe yesterday…for caretakers of people with dementia and their partner. My DH is in early Stage 4 and seems "normal" most of the time. There were several people there who were quite advanced in dementia. Although I have read everything about dementia and watched numerous videos, I…
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Finding My Way
Hello! I recently moved my 79 y/o brother in with me from a different state after the death of his wife last November. He is wheelchair bound with multiple sclerosis and has just been diagnosed with mid stage Alzheimer's. He's had a difficult time adjusting to the new changes and has no desire to meet people in this area.…
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Over 80 at time of diagnosis
Has anyone had a LO who was diagnosed after 80 and if so do you feel like their age advanced the dementia timeline?
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massage or facials for ALZ moms
Do any of you have any experience with your LO getting a massage or a facial at a spa? I was gifted an hour massage, followed by an hour facial today. It was heaven and I couldn't help thinking, during the facial, if my mom could have a facial and enjoy it. I'm not sure she ever has had one (professionally). I know that as…
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Room to Room
We have a bathroom that’s got two doors, one from the hallway and one from the kitchen. You can literally walk into bathroom from hall, go through it and exit on the kitchen side and walk around back to hallway and complete the circle. Well that’s what my DW with EOAD has been doing literally for the past hour or so. It’s…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Sleeping in everything
He's wanting to wear his glasses and sneakers to bed. The glasses press into his skin and irritate it if he does keep them on in the night. He has very oily skin so it builds up under the glasses as well. The sneakers aren't bothering his skin right now but I do worry that they may contribute to pressure sores in the…
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Insults
DH just told me that the truck that just drove by us has a picture of me on it! It was a pork truck with a big fat pig on the side! It hurt but I let it go. Looking at my grandsons HS graduation's pictures and DH said wow Look at those bags under your eyes! Cried and walked outside! Do not tell me it’s the dementia he has…
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Will My Marriage Just Vanish?
This is just a therapeutic post on my part. My wife and I were married 30 years ago, and we have lived in the same house the entire time. Our 30th anniversary came and went with no fanfare, as she has not understood any significant dates for over a decade. Dementia has destroyed ten and a half years of our marriage. As…
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Dilemma about Memory Care
I have two questions: First, almost universally the memory care facilities I have visited say you should place your person sooner rather than later. I wonder what the evidence is for this, or whether it's easier for them to have less impaired people. What I see, almost everywhere, is people who are mostly pretty far along…
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New to this site & in distress
My DW of 55 years was diagnosed with AZ, VD, LB in December of 2025. She has a wide range of health issues, which I have helped her handle for our entire marriage, The latest issue that I have struggled to deal with is her diabetic control. She has been a diabetic since she was 12YO. She has had an insulin pump for nearly…
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Living with Alzheimer’s or Other Dementias
Living with Alzheimer’s disease or other forms of dementia presents significant challenges for both the individual and their loved ones. These conditions progressively impair memory, thinking, and behavior, impacting daily life. Below is a concise guide on managing Alzheimer’s or dementia, tailored to your interest in…