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Moving My DW to a Home
I am moving my DW to an assisted living facility this week. It’s been long in the making. I won’t get into how we got here but instead I need to know how to make the transition for her and me as smooth as possible. For starters she does not know it’s happening. We have been to the facility together twice. And she does not…
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Medications
Has anyone added a second medication like memantine for memory and thought it has promoted a decline in memory and confusion? I have considered stopping it for my husband but don't know if it's the med or just the quick progression of the disease.
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Leaving Mother with Sitters
I would welcome advise on the best way to leave my mother with her sitters. We built her a small apartment onto our home and when my husband and I try to leave for a few days my mom gets super upset and says she wants to go back home and stay with my brothers who all live 10 hours away and they along with their wives would…
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Not sure what's going on, but I'll take it!
My DH was diagnosed a few months ago. Like everyone else, it really brought me down. He was doing the shuffling walk, forgeting everything he used to know and do, eating and sleeping habits changed drastically and we could barely carry on a conversation. In the past week and a half, there has been a real turn around.…
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Galantamine
I've never heard of this drug, much less, someone on it. My mom's neurologist suggested this medication that will not reverse the damage or retrieve lost functions. It is intended to help her retain the abilities she still currently has in stage 5. Anyone?
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Violent episode
In Canada where we live, we have access to short term respite at a LTC facility. At day 4 of a 7 day stay there was an incident that I am trying to process. Having played hockey at a very high level as a young man it appears he thought he was at hockey practice, started running and body checked a resident, sending the…
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The end is near.
Apri 9th I fell the end is near. They have padded bandages on her elbows now because she sits in a wheelchair all day and can't move. They try to move her hands and she won't let them. I fear she has given up. They told me today, that they have started turning her every two hours to prevent her from getting any more bed…
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Leqembi Feedback
Recently diagnosed with Alzheimers. Have just been approved to begin Leqembi infusions and will start within next week or two. Would love to hear feedback from those on this therapy. Thanks!
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Using Lequembi infusions
Hi- just wanted to connect with anyone who is using Lequembi. DH has had three bi monthly infusioNs to date and one MRI, which showed no abnormal brain bleeds. Seems to be tolerating it well. Our understanding is that it can’t replace current memory loss, but it can dissolve existing plaque and help prevent more from…
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Therapeutic Fibs / Compassionate Fibs
Moving on a bit from the previous topic - I think we resolved a couple things that my mom was upset with basically because my Dad realized he was arguing too much with my mom so she was reacting to that mostly. Now we need to learn how to use Therapeutic Fibs / Compassionate Lying and make them work for my mom. I also…
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Feeling alone
Hello, I'm new here. Part time care giver for my mom, my best friend. I feel so alone in my grief. I know I'm not but this has been the hardest thing I've ever gone through and it almost feels like no one around me even notices. I feel like my family (dad & brother) and I are so isolated. No one ever really checks in on…
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ALZ Talk: Opening the Door to New Alzheimer's Treatments
On April 2, Elizabeth Edgerly, PhD, Senior Director of Care & Support Programs and Services interviewed Christopher Weber, PhD, Director of Global Sciences Initiatives. They are both with the Alzheimer's Association, and I have personally met both of them through my role as an Early-Stage Advisor. I've found Dr. Edgerly…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Hallucinations
My husband was diagnosed with Alzheimers last year. He is experiencing quite a few hallucinations nearly all day. Has anyone dealt with this much and if so what did you do? He is aware that what he is seeing is probably not there but is confused because he really sees it. Just wondering if there is any meds out there that…
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visiting MC facilities
I'm going to have to start visiting MC Facilities and was wondering about dropping by unannounced vs making an appointment. The glossy ads all look so wonderful and the reviews give a different picture, so was thinking that it might be better to just stop in, so that it is not staged. Anyone have experience with this?
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New to group
This is my first posting to the group. My DH was recently diagnost with Alzheimer's. It's not too bad right now, but he is also a Diabetic and a Kidnery receipient. He takes so many medications now wtih anti-rejection drugs I'm not sure how any new drugs will affect everything. Has anyone had any experience with Diabeties…
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Early onset Alzheimer's 56 Female i need others to help navigate please
My Diagnoises was October 2025. My SSD was approved. Now that is completed and my career of 30 years is over, i sit here still in shock. I am not sure what to do now. Help I need others like me to talk to. I am a mother of 4 grown children and 4 bio grandchildren. I am also a wife to a loving husband who has taken on so…
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Psychiatric hospitalization
so long story short I'm with my parent at a room in the er in the behavioral area. They are going to admit her. I'm wondering when is the best time for me to leave. I was waiting on the decision of the hospital on what they were going to decide to do with her and speak with the county crisis worker. I did this and now…
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Anyone Living in Assisted Care with LO?
As I continue my research on possible future options to meet my DH’s needs (and mine), I would like to hear your experiences if you or someone you know has lived in assisted care as a couple —-one healthy and one with ALZ. Some care facilities allow this and some don’t in our area. But, as you know, the real information…
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MC Cost
I often hear that a plan B must be explored when the time comes that I cannot provide the care my DW needs. I have looked into a memory care facility and the cost for this is astronomical….$586.00 a day. My financial situation does not qualify for Medicaid so this would completely bankrupt us in a very short period of…
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I need advice - My husband with dementia keeps scissors for 'protection'
My husband has dementia and has become very focused on keeping a pair of scissors with him because he believes he may need them if an intruder comes into the house. He keeps them close at all times, carries them in his back pocket, and even sleeps with them. I have thought about taking them away while he is in the shower,…
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Hospice/burned out.
My DW is in hospice now. She doesn't really understand what is happening to her. She doesn't eat regularly and doesn't sleep. Her skin is turning a yellowish color. She can only stand up to use her walker if someone is there to help lift her, then she can take 3 to 4 steps before sitting down. The care home is wonderful…
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leqembi question
My dad is going to start the leqembi treatment soon. Will these fusion treatments affect his immune system? Any information is greatly appreciative. 😀
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Caregiving Song
When your wife is diagnosed with Alzheimer's and you dedicate your life staying with her at a nursing home. This song is written for both of us. Being a caregiver is not easy, this is my way of coping with the everyday stress. Hopefully, you enjoy the song as much as I did making it.…
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Goodbye
My cancer has progressed to stage 4. I have stopped treatment. As this forum told me, I can’t care for my DW with the side effects of chemo. I’ve entered hospice. After an aborted attempt to move into an assisted living facility locally, I found an opening in memory care facility near where her daughter lives. I told my DW…
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Fear-based refusal to walk
A little background… My mom has advanced ALZ. On Jan 23 she and my dad moved from their home of 45 years to an independent living apartment in a senior community building. She had always been very resistant to this move, but seemed to initially be rolling with it much better than we'd anticipated. However, her personal…
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Managing incontinence
Hello all- does anyone have advice on ideas for getting urine odor out of bedding and clothing. My dad is incontinent of urine mostly and despite washing everything daily there always seems to be a lingering ammonia odor. Any advice of what can be used besides regular detergent to help!!??
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Family Dynamics while caring for Alzheimer’s
Hello, My name is Elbert Denina the son of someone who has Alzheimer’s. My sister recently just passed from cancer and I’m trying to navigate how I should handle breaking the news to my mom if she asks about my sister in a daily basis. Also how should I handle bringing my mom to her funeral. I’m not sure how to handle this…
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A new book for caregivers early into the journey
i have just read a book on kindle which is written by a caregiver concerning her journey with her DH. Very informative and a bit of lighthearted humor at times. I enjoyed reading it and find it will be especially helpful to a new caregiver. Wish I was able to read it a few years ago. its called “Coping when your loved one…
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How common is elopement?
my parent escaped from her new memory care on the third day. She doesn't look like a memory care resident (too young) so she snuck out the door with a visitor who didn't realize she is a new resident. She also escaped from her old memory care but this was more aggressive exit seeking and going out the emergency exits. I'm…