-
Hoping to Start an Ongoing Conversation Space for Those Living with Dementia
Hi everyone ,My name is Kerry. I’m living with dementia, and like many of you, I’m navigating a lot of feelings and emotions. I’ve reached a point where I’m really craving connection with others who understand this from the inside, not as caregivers, not as observers, but as people living it every day. I’ve noticed that…
-
Hope I am doing the right thinng
I am taking my wife to a memory care center in a couple of days. I really don't want to but Cathy is not improving. She is very inconsistent. Some days I can change her clothes with little issues yet other days it's liking herding cats. The PACE (Program of All-Inclusive Care for the Elderly) facility she is a member of…
-
Dying of boredom
The total silence, the reproachful stare because I can't figure out what will entertain him, the complete lack of awareness of the state of the world, his family, me. Someone on this site said, wisely, we can't make them happy, only make them safe. But what do we do with our days while they sit and wait for us to make a…
-
Crying often, delusional
Hi, my 85 yo dad was diagnosed 2.5 years ago. Overnight, it seemed, his behaviors worsened. He cries a lot, says he wants to go home and asks where all the other people are. It’s heartbreaking to see this. I am his primary CG. My brother is flying in soon to take over for a few days. My world has shrunk so much. I want to…
-
Scam???
I had a person from ALZ. Connect messaged me. Tell me your thoughts on her message. I looked up her profile and she just joined on the same day I got the message. I want to think that the message is legitimate but just have a gut feeling that it isn’t. If it is legitimate please accept my apologies. We are all vulnerable…
-
Dementia and Dating
Ok, just going to be straight-forward here. I've made the decision to get out and date again, find that special someone I can be with moving forward with. I'm exhausted caring my LO who's essentially a 6 yr. old at this point. I'm still in my mid-50s and don't want to continue on this way without a mate whom I can really…
-
Communication Challenges
I’m really struggling with communication and would appreciate any advice. My partner was diagnosed with severe dementia and has continued to decline. They now refuse to visit any doctors, and I am the sole caregiver. Most of the time, it’s very difficult to understand what he's saying. At the same time, he often tells me…
-
Circles of friends and contact lists
I recently received an email from one of my sister's friends who is feeling guilty about not contacting me before my sister was diagnosed with FTD and early onset Alzheimer's. Here's a portion of her email: I asked her to share your phone number with me but it was an odd request and she looked at me like she didn't…
-
TRAVEL CAUSES DISORIENTATION
My LO is 64 with a diagnosis of EOAD. He is progressing faster than anticipated. Everyone is saying 'travel / do things / take them places'. But what I have discovered is there is a huge price to pay. Halfway through the 'experience' I see him start declining mentally. I can see it in his eyes and the disorientation…
-
Severe dementia- yet Mom refuses to move out
Edit- I do have dpoa, on healthcare directive- drs say tough luck if she wont go voluntarily or is not easily tricked then wait for a crisis. drs have classified as severe dementia and highly recd she not live alone. They state there is nothing we can do other than wait for a crisis here (Kaiser-California). Mom will not…
-
Dealing with my mom and driving
Hi. I am new here. My mom who is considered to have Stage 4 Mild Alzheimer's diagnosed about a year ago. She does not believe she has this disease. They told her to not drive and she could take the test through DMV to see if she could continue. We didn't do it at the time. Now a year later she is pushing to drive but I…
-
As POA how do we protect loved one from large purchases they don't understand
My dad has Alzheimer's & can no longer drive. He wound up purchasing a car that he cannot drive when we were navigating his illness last year. (Note: Due to his 3-5 min memory the attorney general is currently investigating that purchase). He forgets that he cannot drive and has made his way to another dealership and…
-
Preparing for someone to take my place
I cannot care for my husband. I am ill myself and I am not able to be a good companion. I can barely take care of daily tasks like cooking, housekeeping and trying to manage both my husbands illness and my own. My husband tries to help but often he doesn’t have the skills to do simple things anymore. He looks to me for…
-
Caregiver Resources
Just a quick note to caregivers about two resources which may offer you some help. Hilarity For Charity, https://wearehfc.org/ Careyaya, https://www.careyaya.org/ Both offer free resources in forums, blogs and some home care support.
-
Hi new here…
My name is Dana, and my husband is in the process of his diagnosis, although we are pretty sure it’s early onset Alzheimer’s as that is an issue on his father’s side of the family. He is upset with a family member right now, unfairly, but there is no way to reason with him. My question is, do any of you have suggestions…
-
Buying
It's been a lifelong problem, prepping. A recent move necessitated giving away an entire cellar of goods she had bought, saved for the future. Now at the beginning of our Alzheimer's journey, we're in two rooms. Today I saw her list, we don't need to prep. When I brought it up it became that I wasn't going to control money…
-
Buspar and Caregiver Anxiety!
My DH is participating in an annual memory evaluation study through the Alzheimer's Disease Research Center (ADRC). After a thorough evaluation, the team diagnosed him with Alzheimer's and had several useful recommendations about diet, exercise, etc. They also highly recommended that my DH stop taking Lorazepam and start…
-
Change in behavior
My mom was diagnosed with Alzheimer’s two years ago. Recently, we have observed some extreme changes in behavior with delusions, anger and agitation. Since her Dr consulted AI for medication suggestions, I thought I would check here. Her doctor prescribed Rexaulti but we are having some issues getting Medicare to cover it.…
-
Any guys have have the HHA lady hit on them - How did you handle?
Hello, I am a single man in his late 40s who is caring for his mom with dementia. My mom is now bed-bound and I need help to assist with her. I've had different home health agencies over the years and I live in a very pricey area. We're not moving, not feasible nor can we afford it. So, I'm stuck with what I can get as far…
-
My mom believes deceased spouse has returned to earth
Has anyone experienced this? My mom has dementia. My dad died a year ago today. For the past 8-9 months my mom has believed that he came back to earth and is now healed. However, she also thinks that he is cheating on her with a lady she can see out her memory home window (there are duplexes for senior living outside her…
-
Bible Verse to Lift You Up 5/15/26
GOOD FRUIT Galatians 5:22-23 New Living Translation 22 But the Holy Spirit produces this kind of fruit in our lives: love, joy, peace, patience, kindness, goodness, faithfulness, 23 gentleness, and self-control. There is no law against these things! When I was a caregiver, I wasn’t perfect but the Holy Spirit’s fruit…
-
Living with Alzheimer's
I was diagnosed with Alzheimer's two years ago. To others living with it - keep busy! I have joined a book club at the local library (which also offers activities), walk at the local park daily, church actiivities, senior citizen club, etc. Keep engaged! The Neurologist who diagnosed my illness was cold and offered no…
-
DEMENTIA WITH GRACE - book & videos on Youtube
I saw this on a podcast and thought it would be helpful to so many. The book is available on Amazon or the link below is for the Youtube videos https://www.youtube.com/c/dementiawithgrace
-
lack of empathy with my mother
My mother was diagnosed with Alzheimer's in September 2025. At the moment it is a medium/mild disorder, she still lives alone with my support. She is not able to take her medicine independently, she does not know how to do the shopping, she has difficulty preparing meals. She is not yet a danger to herself even if more and…
-
Anxiety and Agitation getting worse
I wrote a couple of weeks ago that my DH in MC is having a lot of what I guess is anxiety and agitation. He is constantly in motion. The nurse and aides told me yesterday that he wanders the halls all night going in and out of other residents rooms. He has trouble sitting still in one place for very long. Now he had gotten…
-
FDA Approves First Non-Antipsychotic Drug to Treat Agitation Associated with Dementia
For Immediate Release: April 30, 2026 https://www.fda.gov/news-events/press-announcements/fda-approves-first-non-antipsychotic-drug-treat-agitation-associated-dementia The U.S. Food and Drug Administration today approved an expanded use for Auvelity (dextromethorphan hydrobromide and bupropion hydrochloride)…
-
Early Onset Alzheimers - before diagnosis
I would love to see how many of us has 'horrible' years leading up to the unveiling of the diagnosis. The two years prior were full of arguments / fights / resentment. I look back and I cringe now that I can associate all of those times to his EOAD symptoms. I wonder how many marriages crumbled before diagnosis and the LO…
-
New here
Hi All, I’m 59 and my DH is 63. He has just been diagnosed with Alzheimer’s/Dementia. He is moderate to severe. I knew something was wrong and tried to get him to seek help earlier, but he refused. He isn’t accepting the diagnosis, he just says he’s going to die. We have been married for 31 years and have had a wonderful…
-
long distance
Hi, I live in Hawaii, but my brother Dan was recently diagnosed with dementia in San Diego. My family there is being lacking with details, and I am having a really tough time processing this from a distance. I would love to join a virtual local support group here in Hawaii or anywhere just to listen, connect with others,…
-
Non-emergency "lift assist" rather than a 911 call is useful
This is not specific to dementia, but if your LO falls and you can't lift the patient, you can request "lift assist" in some towns, which will avoid dispatching a full set of vehicles with sirens (or even a police car) to provide medical assistance. It may take a bit longer since it a non-emergency. I have not requested…