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Leqembi infusions
We're looking into getting my DW on Leqembi infusions. Can anyone using this Med tell me if it works or causes more harm?
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Financial crisis in the making part 2
I had posted here a couple of weeks ago. You are all so wonderful to have given me advice, which I am following through on as well as I am able. My dh is not able to make sensible decisions about money and his healthcare. He needs to see his neurologist and his primary care doctor. He has an appointment for the neurologist…
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Grief after loss of mom with Alzheimer’s
Hi there, new to the support forum and hoping I can find any whom are dealing with the grief of losing a mom to Alzheimer’s. I was her sole caregiver for nearly 7-10 years. I’m hoping there’s some other Alzheimer’s daughters out there. How do you handle the combined grief, trauma from caregiving and near debilitating fear…
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New guy
My first post here: my wife’s diagnosis is not confirmed, but the progression is not good. We’re both 77, still in our own home and on our own. Kids are sympathetic and eager to help, but they live at a distance and have their own lives anyway. My wife was a great teacher, and she has many colleagues and former students…
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REM Sleep Behavior Disorder/Lewy Body?
Hello! I am new to this message board and would love to get involved with this community. I am a 52 year old female diagnosed with sleep apnea and Persistent limb movement disorder at age 42. I self-diagnosed REM sleep behavior disorder from incidents in the past 20 years where I have injured myself by kicking nightstand,…
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New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.
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Caregiver for parent diagnosed early in life.
Hi, My mother (60) was diagnosed with Alzheimer’s early this year. It’s been a big change for her of course but I am now her sole caregiver (F25). Running her life and taking over her finances. love my mom and I am so grateful I am able to be with her while she still is in the early stages. But I am struggling with getting…
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Leqembi Concerns
I have read the posts on "The Problem with Leqembi" and recognize that it's no silver bullet. However, my DH with ES read in the newspaper about its FDA approval and wants to try it. He asked me to make an appointment with his neurologist next week. Background: DH is 84 this month. He was first evaluated in 2018 and…
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Hypersexuality
My DH has been driving me crazy for a few years with sexual comments all day. The other day at doctor's office he told the nurse she had sexy shoes. This is the first time such comments were made to others. Never before this disease would he say something like that. Several months I spoke with his geriatric doctor about…
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Overwhelmed
New to this discussion and hopeful for some assistance/direction, words of wisdom….my husband was recently diagnosed with EOAD, with lvppa variant. Went to 3 neurologists. Told he is in mild stage. Scored 19, 20 on MOCA. Had a silent stroke but don't know when….cognitive and some immediate memory issues prompted PCP visit…
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Nights are the worst...
I'm sure I'm not alone with dreading the nighttime and my DH with VD's increased agitation. He does well during the day but when he goes to bed, he is asleep within 5 minutes but his sleep is so restless. He is up and down all night going to the restroom, pulling, fighting with and getting entangled in the sheets and…
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Showboating?
Does anyone know how LO’s are capable of showboating? If they can behave differently with others, why do they challenge their caregivers in unreasonable and even harsh ways? If the brain is “broken” how do they seem to temporarily “fix” it in front of others?
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Living with Alzheimer's - A Caregiver's Journey
My wife was diagnosed with early onset Alzheimer's eight years ago when she was just 60 years old. I have been her primary caregiver every day since then until her death last month. As a means to help me cope with this terrible disease I wrote a detailed journal of my experience over that entire time. The writing is in two…
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The dementia routine
I know all of our journeys are different but many are scarily similar. My husband has no initiative and does the same pattern everyday. His day is focused on eating and going to the bathroom. Other than those things, (which seem to occupy a great deal of time everyday), he would just sit in his recliner in front of the TV.…
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Hello I'm back
I've been in the hospital almost the entire month of February withe the flu I'm almost back to normal. My main problem is I have hard time standing up without help. I hope pt will help me get better.
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Overwhelmed and not sure what to do.
Hello, I'm new here. I joined because I need advice on how to help my mom. She's eighty years old, started showing signs of dementia and possibly some other cognitive issues over the last three years. A bit of background; My mother's reasoning has always been questionable since she was a child but it was dismissed as -…
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Time shift
My mom has Alzheimer's and seems stuck 31 years ago when her step dad passed away. She keeps insisting on going to the funeral home and make his arrangements. I have tried everything including telling her I have already done it to he's been gone for many years. She gets angry over it. Not really sure how to handle this. My…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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Guilt around visiting MCF
Hello, I’m a new member and I was referred by a Dr. to connect with some others going/gone through it. I am in my early 30s and I cared for my mom for ~4 years at our family home before it became too difficult for me to care for her. I didn’t have the skills to provide the care she needed nor the mental strength. I was in…
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Getting very difficult
Hello, my first post. My husband has moderate Alzheimer's. Officially diagnosed last year but it's been going on since about 2017. He has no short-term memory at this point. He had emergency triple bypass in 2021, and it progressed a lot since then. Goes to Adult Day Care three days a week and he's in his third year. He…
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Caretaker for parents with dementia
Both of my parents have dementia. My brother is autistic and we found a residence for him. He moved 2 months ago. My father has rage outbursts b/c my brother isn’t home. I want them to speak with each other. However I’m afraid of the chaos they will cause demanding that he come home but it’s not safe for my brother to live…
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Marijuana for aggression?
Has any caregivers had doctor prescribe marijuana for LO with agressive behavior? If so, did it help?
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Scam phone calls
Has anyone else’s PWD come to them with the news that someone called to tell them they won the Publisher’s Clearing House sweepstakes? It’s happened twice now. Sadly, the second time she didn’t remember the first time or she probably wouldn’t have chatted with the caller. Fortunately, she still has some reasoning faculties…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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When is the right time to intervene?
Hello, my mom is 76 and has been living alone for a little over 10 years after losing my dad. She has heart disease along with artery disease from genetics and smoking 2 packs a day for over 30 year......damage is presenting now. Most of the time she doesn't know what day it is, she can't do her bills or sort her meds…
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Leqembi treatments for early dementia
Hello everyone. So my neurologist is sending me to a specialty clinic that does infusion Leqembi treatments. I was wondering if anyone here has been on it and if they have had any problems with brain bleeds or brain swelling. I'm trying to learn as much as I can about it so I can ask the right questions to the specialist.…
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Incontinence
Has anyone had success using a wireless floor mat alarm? If so, where did you purchase it?
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New diagnosis, new to group. Having a rough ugly cry day.
I have been very emotional, ugly crying today. Today is hard, others are not- those days I am "numb". I am 41, married for 19 years, I have 5 kids ages 8, 10, 17, 18, 20. I have tested positive for PSEN1 which is one of 3 variants known to cause young onset Alzheimer’s. I have had cognitive symptoms since August 2023. I…
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Hypersexuality
My husband talks about sex constantly, uses language he never used before, and is grabby like a teenager ( he's 72). I am not dealing well with this, I see him differently now that I am his caretaker and he is incontinent and hates to shower. I usually change the subject but it's making him upset.
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How do you respond to family inquiries?
My DW is was diagnosed with EO several years back. She is 60yo and deep into stage 5. She has a very supportive and loving family (parent and siblings) that are several states away. They are good people and I am fortunate to have such pleasant in laws. They reach out to us periodically to ask "how are things going?" In the…