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Any advice on severe emotional hysteria?
My mom was diagnosed with early onset Posterior Cortical Atrophy (a form of Alzheimer's) around 2 years ago. She is only 59. She has been going through a pretty rapid decline and we ended up moving her into assisted living last year. Obviously this has been tough on her and it's been an emotional roller coaster, but she…
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all the emotions
I am a nurse with my mom having dementia.I have never in my life had a bad patient as this .We used to get along well.Now we clash.She cusses at me.She is not the same loving person .At times I see this look of hatred for me.Im having a hard time dealing with all of this .
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Mom doesn’t want to see me in MC
anyone ever dealt with this? My mom doesn’t want to see me. Like pushes me away and says “exit exit exit.” She won’t talk to me. It’s relatively new but definitely tied to her decline. What can I do? I don’t want to just leave, but don’t want to upset her either. Any advice?
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just an insurance company rant...
This year, my employer changed to the company providing prescription drug insurance coverage. Today I got a letter indicated DW extended release memantine 28mg is no longer a covered. We are instead expected to use the standard version of the pill. So instead of one extended release memantine pill per day we are expected…
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Laundry Obsession
I had previously posted and asked for advice for my Dad who is obssed with doing laundry. It is now getting so bad that the whole facility is trying to come up with something to make him stop. I know he feeels useful and needed but, it's getting out of control. His private caregivers, he has 3 different ones thru the week…
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Am I expecting too much from family?
I’m pretty certain my DH aspirated some fluid night before last. I gave him some medication in the night 2 nights ago, and he immediately began with violent coughing episodes with very wet sounding coughs…which continued all night long. He said he was having trouble breathing and his oxygen level dropped to 86-88. The on…
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DH gets frustrated so easiy
It's really hard to see my DH struggle so with simple daily tasks. Today he struggled getting his seat belt buckled in the car, swearing and calling it a POS. He then complained about how uncomfortable seatbelts are for the rest of the drive. He cussed out the POS TV remote control when it was clearly operator error....He…
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Finally Got POA! Now What?
Hi everyone! So today is the day that I finally focused on getting POA over my mom, and thank god I did. Poor thing could barely do her signature she kept getting so anxious :( But regardless, yay we got it done! Now who do I need to send it to?? Do I just give it to all of her doctors, her bank, her landlord?? Should I be…
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Email account mistake
I thought I would share this in the hopes of preventing others from making the same mistake. Then again maybe maybe it’s obvious to others and I just wasn’t thinking clearly. Mom is old enough that she has never had an email. When I started helping her with bills and finances maybe 5 years ago, over the years I created…
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Need tips to help mom taking medicine
Hello, my mom, who has alzheimer needs to take medicine daily. She is good with most medicine except the calcium supplements. She couldn't swallow it. I crushed the pill and mixed with food. She spilled it out, thinking they are rocks. I don't want she to feel someone put rocks in her meal since she has been lately…
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Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
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DH hallucinating that he's going to have an affair
I am going to post this, because I haven't seen anything quite like our story. My husband is in Stage 5-6 of This Crappy Disease, and he is now telling me that he would like to start a new relationship. The woman he's interested in is a neighbor whose name we don't know. He has been irritated with me because I am the…
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Imaginary People in Our House
My DW sees imaginary people in our house at all hours. Right now at 10 AM she is talking to them and telling them to get out. She asks me ifi they are my friends and why I let them in. I am at odds at how to deal with this every day and night occurrence. I welcome any input you may have to help me deal with this. how have…
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The next milestone on this horrid journey
It was a hard afternoon. DH had his license medically suspended in 9/2025 and today we made the trek into the DMV office to surrender the suspended license for a photo ID. It doesn’t change anything really but I can’t help but think it was a hard thing for him to do. He was so quiet on the drive. The staffer was very kind…
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activities to pass time
I thought I'd mention an activity I used to give my DH to do. I found some colored wire connectors, marettes, keys in his garage organizer. I would set these out and give him a few plastic bowls to sort them into by color. He took it very seriously, struggling to match the colors. It also exhausted him and he would often…
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Mom Diagnosed with Early Onset at 60
Hello, I am new here and looking for advice. My mom had been experiencing some forgetfulness the past couple years. She lost her job about a year ago because she couldn't handle the tasks required of her. My brother and I tried to get her to go to the doctor multiple times for diagnosis but she refused until… she was a…
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TV show??
Is there a TV show a person with dementia can follow? Do you have any suggestions? We used to watch TV together a lot, but there doesn't seem to be a show DH can follow anymore.
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Medicaid's Home and Community-Based Services (HCBS) waivers.
Does anyone have experiences with Medicaid's Home and Community-Based Services (HCBS) waivers for at-home care? My elder law attorney said I should call and apply for an in-home care Medicaid waiver. I did so yesterday. They will call me to set up an in-home evaluation of my DW. From what I can gather, if approved they…
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Special Supplemental Benefits for the Chronically Ill (SSBCI)
Is anyone familiar with SSBCI? One of the eligible conditions is Dementia. What are the benefits? And how long does it take to process? I would appreciate hearing from anyone who has gone through the process. Thank you in advance for your comments.
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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Can neuropsych test results be wrong?
Here is some background and the reason he was tested: My DH has been complaining for several years about memory problems. At first I brushed it off, but in the past 2 yrs I see it for myself. Other things that concern me are his difficulties in dealing with his phone and computer. He was always way ahead of me with…
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Bathroom troubles
Forgive me if this has been asked before. My DH no longer knows what the toilet is or what he needs to do when in front of it. I have been assisting with a urinal for him to pee into. (Also, i have a raised commode on the toilet as he resists sitting and I'm struggling getting him too sit down for a BM.) I am at my wits…
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Late middle stage dementia
I need some advice about my GF of 13years. My GF's dementia has been getting worse over the last 6 years. We live in Florida. She is at the point that she didn't recognize me when I drove up to her in my golf cart. She also didn't recognize my son last month. She has left at least 1 pot burning on the stove. She has gotten…
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Just Starting This Journey
This will be a short post. I read a few other posts and so far my situation is not as concerning as others. My husband REM has an early diagnosis of Mild Cognitive Impairment most likely caused by Alzheimer's. He has issues with short term memory and repeatedly asking me the same questions over and over. He has developed a…
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Slipping Away
My spouse, so long as I have known her (14 years) has always been somewhat reality-challenged, fabricating things in her brain (much about me) that just isn't true, and resisting all attempts to impart truth. It just made her very angry to threaten the fictional world view. It's been frustrating, but tolerable so long as…
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I am new to this forum
Hi Im taking care of my 72 years old wife who was diagnosed for the last 5 years. She's manageable and taking all prescribed meds. Did any one has an experience with recent new IV anti-amyloid infusions Donanemab or lecanemab? She was not qualified because she is in moderate stage. Even if we are willing to pay out of…
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This says it all…
I’ve been in Stage 8 now for almost 2 months. I read this today and this puts in words exactly how we feel through this journey. My thoughts are with those of you still struggling with your LO or with the final goodbye.
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How do you hold it together and respond kindly?
Hi there - I think i mostly need to vent ... again. <sigh> My 73 year old DH has Alz. My best guess is early to mid stage 5. He still does all of his self care and small projects around the house. Although some tasks he really seems to obsess over. Like where the cats are, or cleaning constantly. He has difficulty with…
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Irrational thinking
Not making sound dental care decisions. History repeating itself with her health. “I’m in charge”. How do you let someone suffer because of poor choices hoping they will eventually see the light? Not diagnosed with Alz or dementia at this time.
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Phantom items
For a couple of months or so my DH will believe he has something in his hand and will want to give it to me. At first it was occasionally, but now it is multiple times each day. I just pretend I take it from him. Today he was very careful with what he “had” in his hand and did hand it to me so I made sure to be very gentle…