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Been a long 6 years
My BH, age 65 now, is very close to the end of his journey. If someone has a “to do” list I would love feedback.
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Dementia
My Dad was diagnosed with Dementia. He's a widower of 4 years, living alone and not wanting to be in Memory Care. His Home town Dr. and Home health care givers have deemed him to not be able to care for himself and I have had to put him in a home for his own well being. It has been difficult on all of us. He'd like to be…
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Do I know the answer?
Today my DH said he had a dream last night about Montreal. He said “ don’t you remember when we were there” … it was him and his ex wife. Does it mean he’s mixing us up now?
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Hyperfocus on a Topic
My DW gets hyper focused on topics particularly when events, trips are forthcoming. She asks many times over a day/days regarding the calendar, who is coming, whats next etc. Writing it down, reviewing a calendar, white board or sticky notes isn't working as she knows to ask but can't retain the answer causing anxiety. Any…
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"Incident" in MC, what to do?
I was told there was an incident involving my mother in memory care. Nobody at her facility contacted me about it. I heard it from one of her friends who called me to inquire about it, and she said she was told from my sister who has POA. I called the Director of Nursing. In her words she said "Yes, there was an incident…
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Startle response
My wife is in early to mid stage 7. When I arrived to see her she was sleeping but awoke shortly. After a short moment, her whole body jumped like she was startled. This happened about eight times within a couple of minutes. Does anyone know if this means anything?
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Maintaining independence during early stages
Hi, my mom (58 years old) was recently diagnosed with mild dementia. My siblings and I are trying to navigate this new reality and find a balance between keeping her safe and allowing her some independence. She’s on medical leave from her job because her performance had been declining. This means she’s home 24/7. Seeing…
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New to group
My mom is 80 years old and is in her second year of diagnosis. She is the church organist at our church but needs my brother or I to prompt her when to play. She can no longer do they planning or get up in time to make it to church so the church says she has to retire which I understand. However, some days she remembers…
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Dementia Family Dog Workshop Webinar
I started following this group that’s based in Scotland because my wife who is in the early stage of Alzheimer’s expressed interest in getting a service dog. This free webinar is an “educational workshop to guide families affected by dementia who have, or would like to get, their own pet dog”
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Nights are the worst...
I'm sure I'm not alone with dreading the nighttime and my DH with VD's increased agitation. He does well during the day but when he goes to bed, he is asleep within 5 minutes but his sleep is so restless. He is up and down all night going to the restroom, pulling, fighting with and getting entangled in the sheets and…
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visit with PCP
We had a regular visit with our PCP today. As is often the case, our loved ones are further along than we recognize or admit. I have my DW in early stage 6. The PCP evaluated both of us and said I should start looking into memory care facilities. The good ones have waiting lists and I am supposed to be prepared for the…
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New to This - Caregiver (not family - paid)
Hi everyone! Let me introduce myself. My name is Jane and I care for a man with Lewy body Dementia. I started working for him just on weekends about 2 1/2 yrs ago. I worked 9-5 on Saturday & Sunday. His daughter hired me, she worked the rest of the week. He did not have any care from 5pm until the next morning at 9 am.…
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Toileting Issues
I need some ideas … my husband (with Alz) is urinating while standing up and is terrible aim! I am tired of cleaning pee from the toilet, the back of the toilet, the floor, etc. multiple times a day. Does anyone know of a product that would cover those areas?
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Anyone With Resentment?
I'm going to post this before I chicken out. I have been married to my husband for 42 years. Now he has Alzheimer's/vascular dementia. Even in good times he could be difficult to live with, very controlling. Now I am bitterly resentful because I have to take care of him. Has anyone experienced this. I feel guilty and…
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This journey
It’s been 3.5 years since my dad passed and I became my mom’s caretaker and her dementia took a fast slide. She moved out of state to be close to me 2 years ago. Many of you have been right there with me on this journey. Staging: she was probably stage 3-4 before dad passed, 5 when she moved here. Now she’s in stage 6 in a…
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New here Caregiver for my Mom
Hello all! I have really been struggling and looking for support and I am very happy to have found this community! My Mom is 77 diagnosed in December 2024. She lives with me and my husband in an in-law that we put on for her. I have so many questions but the biggest issue right now is she has been online shopping,…
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Dealing with Burnout
Hi, all. Haven't been here in a while. I'm dealing with severe burnout. The last few years were incredibly stressful, having my mom live with me as her dementia progressed. I placed her in an MCF last fall, which turned out to be a nightmare, and now she's in a lovely ACH where she's cared for very lovingly and with…
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New to this group .
Hi I am new to this group . I am really haven a hard time dealing with my dad have dementia and stage 5 kidney failure . He has been in hospice for almost 2 months now. I am feeling extremely guilty for placing him into a nursing facility . I truly tried to take care of him but it took a mental & physical toll on me . All…
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My DH is getting increasingly aggressive and hard to handle
My DH is very restless and agitated, and always wants something to do. The problem is, when I can't go out with him - ex. at 6:00 a.m. today he wanted to go for a bike ride - then he gets loud and aggressive and says he will go anyway. Today he started for the door and said he was going. He gets lost in our apartment…
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seroquel usage for 93 year old with dementia for the past 11 years.
i'm at the end of my rope as far as care-giving goes. my mother was diagnosed in 2014 with AD/dementia. she advanced quickly and has been in late stages for the past 9 years (requires complete care 24/7). her delusions and bad behavior have become difficult to manage. she's started throwing dishes and glasses of food/drink…
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Dad with necrosis
My dad, 89, VD, has started getting necrosis in his feet. How serious is that? He is bed bound and his feet are wrapped up with foam to prevent them from rubbing against each other. Is this terminal? What should I expect? Anybody here have any experience with this?
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I moved DW to memory care (part 2)
So, that's the background. All of our family and friends were supportive of placing DW in MC, even urging me to do so, reminding me that I had to take care of myself. The conundrum for me was, how was I going to get her in the door? How was I going to get her things to the MC facility? One suggestion was to say her doctor…
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My Mom Keeps Misplacing Things & Thinking My Late Dad Is Still Alive
My mom has a UTI (urinary tract infection) that is causing dementia symptoms. For the past month and a half, she's been misplacing things and then blaming it on my late Dad and insisting he is alive and messing with her. He's been dead for more than a decade, but she never came to terms with it. She was taking meds for the…
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Home care hopefully will help ?
After struggling with the thought of bringing in help only because so far my DW has made it clear that no one but no one was going to come in and help . She has stuck to she just wants me and her . Well I can't keep watching her get weaker because of not eating hardly, and if course I have not been able to get her bathed.…
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"I'm leaving to go home"
I am new to this forum. In September 2024, We took in my MIL who has Alzheimer's, stage 5. All in all things are going well. She always is trying to go pack up her belongings and get ready to go "Home". We do tell her that she lives with us now, she's safe and redirect her to something else, walk, go out for a drive etc.…
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"Girlfriend" in Memory Care
DH has been in MC a little over 2 weeks, he just stopped packing up to go home every day, and seemed to be acclimating. Now, he is attached to a woman in MC! I know it happens often, and is supposedly innocent, but I have found them in his room. It is not so innocent. His wedding ring is missing, today, when I went to…
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I moved DW to memory care (part 1)
This is my (very long) saga of moving DW to memory care, and how we reached that point. I hope you will find it interesting, if not useful. I used to participate in this forum until a few months ago. Then DW's condition made it impossible. She needed my attention, demanded my attention. I remember reading other people's…
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Advice!!
I am new to the group and need advice. My Mom has late stages Alzheimer’s and has been able to be alone for part of the day while I work. This week every day she has been scared, anxious and leaves the house and then cannot figure out how to get back. I have a caregiver but she only comes from 12 to 1 as that is all I can…
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young adult children of Alzheimer’s patient forums?
I am looking to connect with any other young adults that are helping caregiver for their parent. I am 28 and while most of my friends parents are healthy and well my father, my own personal super hero, one of my favorite people on earth is becoming someone I don’t even recognize anymore. Just looking for support from peers.
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Managing Incontinence
I’m new here. My DH was diagnosed about 2 years ago with FTD and possible ALZ. We are now dealing with incontinence. I am ok with pull-ups but he has a bad habit of missing the toilet and peeing on the bathroom marble floor. I try to get him to go to the bathroom on a schedule but he just won’t cooperate. I’m not sure he…