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TONIGHT TUES 8-26-25 ON ABC "Emma & Bruce Willis: The Unexpected journey"
Tonight is the airing of the ABC News special, "Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special," which airs at 8:00 p.m. EDT on ABC and streams the next day on Disney+ and Hulu. The special features Emma Heming Willis discussing their family's new reality since Bruce Willis's diagnosis with…
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New here, aging parent with vascular dementia and mom not capable of caregiving, where do I start?
Hi! I have never been on here before. My dad was diagnosed with vascular dementia years ago after insisting my mom bring him in. I have a fractured relationship with my mom and she is his primary caregiver. Lately my dad seems to be declining. He is disoriented at night, getting up and spilling things, having toileting…
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Tips to stop dementia refusals try these 3 tips
Hope you can view this video. 3 phrases to say to stop refusals. Haven’t tried these. https://www.facebook.com/share/r/1G9AEJzEJN/?mibextid=wwXIfr
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The Cavalry Is Not Coming
Reposting for the new platform. I have not posted here for quite a while, and I want to let you know that I am still here. I hope you all are doing well, and I also have a thought process to share with you. October 1, 2022 will mark seven years since my wife’s dementia became obvious, and that I knew for certain that this…
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Bathing
I live with my mom (88) who has AD. Getting her to bathe and wash her hair is a struggle and it ends up in a power struggle sometimes. She also won’t accept help with this. How can I support her independence but also assist her in maintaining good hygiene. I want to be respectful but she doesn’t understand and it’s getting…
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Activity/Busy Work Ideas
Hello everyone! My mom (61) is in mid-stage dementia right now. She lives at home with my dad (61) and me (27). My dad and I work full-time, and we have cobbled together paid and unpaid caregivers/friends who come hang out with her at the house while we are at work. Recently she has been trying more often to leave the…
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Alzheimer's help line
Please tell me how to contact the alz hot line I realize I need help, sooner than later. Thanks Do I have to talk to them on the phone can I just text bi don't want him to hear me and I live in a one room apt
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DH groped a female resident at his MC
Dear Forum Friends, first, thank you all for your support and understanding on my previous post. It helps so much to know you are all here and we are all here for each other. The social worker from DH MC called yesterday to tell me DH had been found in a female residents room during the night. He had his hand down the…
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Jeez
Of all the two clear sentences my DW could get out clean. Yesterday she said, "I can't talk. It makes me want to walk into the road in front of cars." Damn. What a gut punch.
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Thinking about infusions.... Leqembi or Kisunla??
I am looking into the two different infusions available for Alzheimer's where I live. I have like a thousand questions but here are a few.... Which "brand" is most effective? Which has least side effects? Are the infusions painful? If they do cause side effects... How long do they typically last? Can you "gut it out" or…
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The past three weekends have been so draining
For the last three weekends, including today, my mom's dementia has been at a 7, on a scale of 1 to 10. She's been a mix of emotional and delusional, rehashing the past with my deceased Dad of 13 years, forgetting where she put things she either put down or things of hers I keep in my room, or crying about how she wants to…
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.
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Advice With New Boyfriend
Hello all, I'm new here. My mom was diagnosed with Alzheimer's earlier this year after receiving a diagnosis of logopenic PPA last year. She is having an unusual progression where memory is not significantly affected. Her primary issues are with language (speaking, understanding others, reading, writing), performing…
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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I am so scared
I'm so scared of what this diagnosis means for me and my mom. I've worked with a number of Alz patients while working in emergency psychiatric departments or adult psychiatric departments. It was brutal. Devastating to their kids and devastating to see their moments of clarity, briefly realizing they are losing their…
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We're all figuring it out as we go....
I saw this on Facebook and thought it applied to us. Thinking of you all and praying for you and your loved ones. Diane.
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I feel like the song White Rabbit by Jefferson Airplane
It’s like the song “white rabbit.” I feel like Alice in Wonderland. “When logic and proportion have fallen sloppy dead.” There is no logic and some days I’m thrown completely off. Example: every night for at least 6 months, my husband asks what the two pills are he takes each night. I tell him antidepressants. He then asks…
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AAIC For All; Alzheimer's Association International Conference
The banner for the Alz Connected website indicates this site is "a dedicated community where people with Alzheimer’s, their caregivers, and others affected by the disease can share answers, opinions, ideas, and support." Along those lines, one idea would be for those interested in Alzheimer's research is to attend the…
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Grief! - Vent!
I am having a very hard time coping with anticipatory grief ! I have been caring for my DH for about 14 years. He is now stage 7 on Hospice. I have help almost every day for his care. I am trying so hard to keep myself in shape and fighting this depression. Today the grief and sadness seems overwhelming. The tears keep…
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Neuropsychological tests
I was diagnosed with Alzheimer's 5 months ago. I had been complaining on and off for 4 years that I was forgetful and having trouble with finding my words. I was given an MRI (2021) which shown a right lacuna infarction and mild chronic small vessel disease ( Neurologist said it was nothing to worry about). He then…
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New to Group
I am new to this group. My husband has been diagnosed with Alzheimer’s. I am grateful for this group support. We are hours away from family, and I am on my own navigating through this. My husband is a disabled veteran rated at 100 percent. Rating allows for covered in home care.
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He keeps pushing me
I know I trigger his aggression, but when he pulls off his pants when we try to go out , I try to put them on, then he pushes me and I fall, more than one time
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Mom and Dad with Alzheimer’s
About a year ago, my mom was diagnosed with Alzheimer’s. Last week, so was my dad. They live independently together about 15 minutes from me, my husband and our 15 year old son. We knew something was wrong long before Dad’s diagnosis…but by the time we got his cooperation and finally got him to a doctor as a new patient,…
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Moved: Denial
This discussion has been moved.
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Hello out there
Well, it's Sunday morning and the DW of 40 years is sleeping so I have my hour or two before the fun begins - lol. Just found this site! My wife was diagnosed in 2019 and is fairly well along on her journey. Too much to go through here but in summary, our kids are scattered, we have some of her family here, in fact a…
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Help with going to the bathroom
I am new to this discussion board and I'm hoping to get some help and ideas. I am living with my 89 year mom who has moderate Alzheimer's/dementia. She is not very stable when she walks and uses a walker all the time. She has a bathroom in her room but I put in a commode a few feet from her bed for use during the night and…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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What made you decide to place your LO in a SNF?
Hi, We don’t have money for MC or help at home. In fact, I stopped working early, depleted my savings and retirement, and my oldest son has been living with us and paying the bills for two years. Those might be enough reasons to place my partner in SNF—so I can work and my son can move on with his life. What brought me to…
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Memantine experiences
I'm a caregiver for my dad, who has been on Donepezil for a while now for his Alzheimer's. He is doing well for now, but it is only a matter of time before the doctor prescribes him Memantine, too, if I understood correctly. I've seen side effects, dizziness, headaches, confusion, etc. But I'm wondering, what are some…
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Tired of putting my life on hold
Why am I the only one making concessions, what about my life, my needs , I don't even like him, he takes up all I have within me and I am walking out the next time he raged at me Call me selfish? I have given him everything including myself. I deserve to live my life I promised for better or worse not abused