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Struggles on the farm
This is my first post. I have read & benefited a great deal from reading about your experiences. I've finally gotten up enough nerve to share... My DH was diagnosed with EOAD officially 2 years ago, but I realized it started much earlier. He is still social & most who aren't aware can't see it. There are times when he will…
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Looking for Feedback on Quetiapine
At my DW's last visit with her neurologist it was suggested that she begin low dose quetiapine twice a day. (split 25 mg tablet). OK. So I never start her on a new medication before I have had an opportunity to evaluate the potential risks/rewards of using the medication. Reading the manufacturers medication guide #1 of…
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Venting
My DH has AD & recently moved into a VA facility. This transition has been so hard - for both of us. He wants to come home, I know I can no longer take care of him, I dread going out to see him b/c my husband is no longer there, just a shell full of confusion. We started looking for a diagnosis when he was 58, only to be…
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Just Starting This Journey
This will be a short post. I read a few other posts and so far my situation is not as concerning as others. My husband REM has an early diagnosis of Mild Cognitive Impairment most likely caused by Alzheimer's. He has issues with short term memory and repeatedly asking me the same questions over and over. He has developed a…
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I’m here for you
We met in 2010. Married in 2013. Just the two of us building a life on conversation, travel, curiosity, and the kind of partnership that doesn't need an explanation. The diagnoses of EOAD arrived in October 2023. The disease that started years before had progressed to the point where DW could no longer manage her own…
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Has anyone done self-pay for Kisunla?
Hello, we just prepaid for the first 4 treatments of Kisunla because it was denied by insurance bc my DH is "too young" (less than 60 years old). We were told it would be about $30K a year, but the estimate we got from the provider was $30K for the first 4 treatments. Anyway, has anyone else decided to self-pay and what…
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Parent with middle stage vascular dementia hiding things and paranoid
Hello My parent 87 y.o lives in an ALF. She hides and loses items in her room and believes people are stealing, stuff like her underwear and PJs. should I take some of her clothes out of the closet so she can find stuff easier? Also she starts calling me at 1 am even while taking trazadone 100 mg. Sometimes she is…
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Just venting
Yesterday was not a good day for my DW….It was a total delusional day. she thought there was people in the house, her dead sister, father, mother and our sons who live in another state. when no one has been here. She has been started on a new medication which seems to have very little effect, but it is early. She got up…
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Plan B
I thought I had more time. I prayed I had more time.😢 I have advocated for mom to get a name for what caused her dementia. Her neurologist believes hers is multi-focal, meaning hers have many causes, vascular being one. The PA asked mom last month if she wanted to be tested specifically for Alzheimers. To which she said,…
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Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
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Alzeimers and blindness
Hi. I am new to this community. My mom has the disease but to complicated it she has about10% vision and is obsessed with going to the bathroom. She is also very restless and doesn't sleep some nights. This makes caregiving difficult because she wants to use the bathroom every 5 minutes even though nothing happens at…
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Care from out of state
Hello. I am in Atlanta and my parents are in Cincinnati. My mother has Alzheimer's and my father is her primary caregiver. I am feeling more and more that my dad needs more help than he is asking for and maybe even a respite care partner to come to the house for my mom so he can have a break. My godmother currently comes…
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Vascular dementia medication
Hi, Please share any medication that you have found that helps with vascular dementia. My mom is on Donezapil but she is have negative side effects. Thanks so much!
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memory care visits are very difficult
My 89-year-old mom was moved to memory care about 3 weeks ago after a stay in a geriatric-psych ward for medical stabilization. We cared for her for the last 5 years with more round-the-clock care over the last year due to behaviors that made her unsafe. She was very unhappy with her situation then, didn’t really enjoy…
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Lucid and logical
My DH had two falls two days apart at his MC, where he has lived for about five weeks or so. The second fall, yesterday, occasioned a trip to the ER. Other than a knot on his head and some bruises and scrapes, he was allowed to go back to MC. Today when I visited him, he was more lucid than he'd been since he went in there…
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CA-Sacramento/Amador County Hospice
hi, Does anyone know of a Hospice company that will permit the person to stay on their medication for dementia? Thanks
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Spousal Imposter
Posting for my elderly stepfather but does anyone know how to best manage a DW with who does not recognize her husband or her home every single night? She is fine during the day but around 7:00 gets incredibly mean, accusatory, and fearful?
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Need tips to help mom taking medicine
Hello, my mom, who has alzheimer needs to take medicine daily. She is good with most medicine except the calcium supplements. She couldn't swallow it. I crushed the pill and mixed with food. She spilled it out, thinking they are rocks. I don't want she to feel someone put rocks in her meal since she has been lately…
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Lost my mother January 27, 2026
I was my mothers full- time caregiver for her last 10 years of her life with Alzheimer’s Having difficulties dealing with the grieving process and nobody seems to understand Thank you
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Magnesium Citrate
DH has always been rather constipated, I've been giving him a small dose of MiraLax daily and prune juice for months with fairly good success. ….but now he hasnt had a movement in 10 days. He doesn't eat muh anyway, but he does eat, I know something is there! The hospice nurse said to give him a bottle of magnesium…
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Losing me!
We do so much, give so much, care so much and as a result we lose who we are, who we were! Please I miss me! I miss my belly laughs, I miss my glass full, I miss my friends, family, life, laughter, that joy of each day! How do we reclaim the “me”? I won’t give up on DH nor will I give up on me, but how do I reclaim that…
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VA social worker
I called the veteran's affair clinic because they now offer a 'coordinated' team approach to treating vets with cognitive problems. I received a call back from a VA social worker,but couldn't take it because HWD was hovering and I wouldn't have been able to talk. I was wondering if anyone else has had experience with them…
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Do toddler door knob covers work?
Do toddler door knob covers work or will my DW figure it out? How does a LO respond to seeing them? I don't need another battle. I'm sure it depends on the individual and what stage they are in. I'm just curious because I need something.
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Recommendations on companion services
My mom has PCA, a form of Alzheimer's. She is only 59 but we have already seen a severe cognitive decline and she is unable to live on her own. She is in assisted living right now. They do offer activities throughout the day, but usually the ones in the afternoon are either too difficult for my mom to participate in or she…
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Incessant calling
Hello all, this is a minor issue in the grand scheme of things but the past 6 months have been hellish getting my dad first to stop driving and then moving him to assisted living (with a memory care option for the future.) He has only been there 2 weeks and seems to like it. It is a relief to have him safe- I worried…
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Transistioning to Memory Care/Assisted Living
Hello - my mom was diagnosed with vascular dementia/alzheimer's last spring - but she had been having memory issues for a couple years now. We finally got my dad on board with moving them into an assisted living center in December of last year - he was older and falling quite a bit himself and we felt he needed more care…
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Totally frustrated
I am at the point I hate to see the evening arrive. My DW every evening here lately it's like a switch has been flipped and I become her father and her husband has left. I tried playing the role as her father to assure her she is safe, but she gets very angry as to why her husband has left for the night and nothing I can…
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Mom with Parkinson’s dementia LTC guilt
Hello. This is my first time posting. My Mom is in LTC. She’s been there 6 months after a fall. She guilts me and wants me to let her go home. She cried today because she doesn’t think she belongs there. Her bf is wanting her to go back home too, though he complained when she lived in the home about how difficult it was.…
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New territory with vascular dementia
Hello! My mom just turned 96. As both my husband and I work full time (and all my siblings are out of the area), we helped mom sell her house two years ago to move to a brand new assisted living community in the same town, 8 minutes from our house. She had cognitive impairment, was forgetting her meds, not paying bills,…
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To those with LO in memory care
My wife has been in memory care for about 9 months. She had a stroke 10 months ago. Our marriage has not been close for a long time, but she doesn't remember what our problems were. I would like to know how others are dealing with their spouses being in memory care. I feel kind of trapped. I can never go back and don't…