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From 6 to 7 in no time
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Do I stop treatment if my Centeloid score goes down??
Hi helpful friends, I'm 66, was diagnosed a year ago and have had monthly Kisunla injections for 7 months. When I was diagnosed, my Centeloid score was 95.5, but a PET scan yesterday showed a Centeloid of 6.7! Should I stop treatment? That scares me - what if the Amyloid plaques return? Liqembi has maintenance doses, but I…
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His journey is over
Dear friends, I wanted to let you know that my beloved husband, Alan, has completed his journey with vascular dementia and is now safely home with the Lord. Over these past months, I came here countless times looking for wisdom, reassurance, and practical advice as each new symptom and challenge appeared. So many of you…
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Advice
So, I am struggling getting my DH to take his meds. He has decided the meds is what is wrong with his brain. The meds are the only thing keeping him functioning as well as he is and he is starting to decline a little faster than in previous years. I don’t argue with him or try to reason with him, but I just say wait until…
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Prepared for so much EXECPT every new symptom my Dad has.
My DD stage 4 has been doing really well. He adapted to the lifestyle changes, the MIND diet. His MRI & bloodwork results are encouraging. He wanted to take a trip with me to see my daughter in Law School (it’s always been his dream to have an attorney in the family) we live in PA she is in IL. The plan was to fly out…
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NYT: Minimal Comfort Feeding for late-stage patients
A controversial issue: "Some consider the regular feeding of late-stage dementia patients to be nonnegotiable. Others see it as extending life unnecessarily." Shared gift link.
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From eating nothing to eating everything in site
DH has VD AND ALZ. He is on hospice now and diffintly has had some changes in the last couple of weeks. Needs more help dressing,inco.more bowl and bladder. But the biggest thing is he went from not eating anything to eating everything inside. As long as it's soft. Going through sweets like crazy. Has anyone else had this…
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Mom was just screened for dementia
Hello I am very new to all of this and am reaching out for support. My mom who is 83 was just screened for dementia in the doctors office. She failed the test - was not able to draw the clock or remember the words. My dad is her caregiver and now cooks all meals and is starting to manage her medications and doctor apts. on…
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Moving Caregivers Around in MC?
The MCF where my father lives has several discrete areas (“neighborhoods”), with a set of rooms, laundry, and dining room. These areas are not arranged by level of care; rooms are luck of the draw when moving in (whatever is open). Caregivers are assigned to one of the areas during a shift; nurses supervise two areas…
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Screaming into the Abyss
I am pretty new to this site so I hope if this post is not appropriate a moderator or one of you guys will let me know and I will delete it or have it taken down. So… A while ago when this journey was newer, to relieve pressure I would go into my shop, shove my face into a folded up hoodie sweatshirt and scream until I was…
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My Husband Just Diagnosed with Early Onset Alzheimer's
Hello everyone, this is my first message, and I can use any advice you can spare. My 59-year-old husband was just diagnosed with EOA. We're both devastated. He was told he had ADHD a few years ago, plus he wears hearing aids (he's lost 90% of hearing due to being a former construction worker) so we thought his…
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Hyperbaric Oxygen Therapy
I need your input, please. Hyperbaric oxygen therapy has been recommended for my MCI/Alz. I was diagnosed on 12/01/2025. It is mild at the moment. Please let me know if you or a loved one has tried this and whether or not it was helpful. Many thanks!
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Stage 5 Sleeping
Hello Dear Friends, My DH is stage 5 and has been sleeping more than usual! Would this be that he is going into a different stage? He talks alot during his sleep. I try to wake him up and he would rather sleep. Any recommendations or thoughts?
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Anyone know how care facilities do this?
Does anyone know how nursing care homes, care facilities,etc handle a patient who refuses to take their meds? What methods do they use? Thank you.
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How to introduce temporary care giver to my mom?
It has been two years that we brought mom to live with us who is diagnosed with Vasular Dementia and Alzheimer. I am her primary care giver who needs some break once a while. What is best way to introduce a temporary care giver? We tried once for only 2 hours but she got so upset that we regret the experience. Need…
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poignant question
We had a scare recently. Sometimes we don't know whether what is happening is mental or physical. She was feeling like her leg was underwater, her feet were cold. It was very disconcerting. I suspected it was mental because the symptoms were so odd. The doctor agreed with me. We just had to let it ride. Her voice is…
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Light therapy
Does anybody have experience with light therapy. I am looking to purchase a 40 hz therapy light and a 10000 lux light box for my husband. I have read good things about using light therapy, I was wondering if anybody has had experience with this
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Negative Nellie here
My therapist wants me to journal something positive or a good thing that happens to me each day. I’m finding that difficult. Today I went to the dentist to have my teeth cleaned & checked. The dentist found a cavity. It’s the story of my life anymore. I really cannot find the good. My husband’s memory lapses are…
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Next steps
Hello, I am new to this group. My mother was recently diagnosed with Alzheimers. In the past month her condition has rapidly worsened. I have asked her neurologist about support and what steps to take next and she referred me to this website. Does anyone know what the next steps should be if my mom has become so paranoid…
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Suggestions for Getting Mom to take her Meds
It's definitely not an issue of compliance—mom is very agreeable about most things, all things considered. It's much more her forgetting. Just appealing to the group to help brainstorm a solution.
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Temporary home visit
I would like to take my wife home for about an hour so she can play with our cats. Our home is about 5 minutes from the memory care center. Cathy is in the upper levels of dementia. She can walk okay. The apartment is on the second floor (no elevator). She can walk okay. Please let me know if this is a good idea. On the…
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40Hz Light & Sound Brain Stimulation
I have been doing a lot of reading on how 40Hz Light/Sound Brain Stimulation can help Alzheimer (and other dementia) patients. This approach was hatched at MIT by a pair of MIT professors so there is science behind it. Two start-up companies are doing significant trials with their 40Hz products. The most prominent, is…
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Late middle stage dementia
I need some advice about my GF of 13years. My GF's dementia has been getting worse over the last 6 years. We live in Florida. She is at the point that she didn't recognize me when I drove up to her in my golf cart. She also didn't recognize my son last month. She has left at least 1 pot burning on the stove. She has gotten…
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New to this site
My husband of 40 years (he's 85) has dementia and recently the sundowning started. It is so frustrating and I don't even know how to respond. He thinks our bedroom is a hotel, that we are not in a house, that we don't own the house, etc. He is so confused at night. He doesn't know night from daytime. :(
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Anger and depression
My father has been declining rapidly mentally. His depression hasn't been able to be controlled with meds and he keeps getting meaner. He's in denial but sometimes I think what I say actually makes it to his thinking process sometimes but is often turned around on me and it's my fault or something I did or didn't do. I'm…
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Feeling alienated
My husband was diagnosed with early Alzheimer’s in 2023. My guess he is in the moderate stage now. We moved to another state in 2022. I thought it would be a good move for him, as there would be groups he could join and be active. We also wanted to be closer to our grandchildren. We have not seen the grandkids as often as…
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Incidence of AZ fallen by about 1/3rd over past 40 years
https://www.alzforum.org/news/research-news/dementia-incidence-still-dropping-birth-cohort-data-say-yes This is encouraging. Maintaining good overall health has really helped.
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next step with incontinence when no diaper products work
I am so fed up with wet sheets, blankets, clothing blankets etc. I posted in May and got lots of good suggestions on better products than Depends, but even with products that say Maximum absorption, he is wet every night. This morning I got him up at 5AM changed everything and at 830 he and the bedding were completely wet…
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Can Sundowning happen in the morning
My husband is in late stage dementia and the regressive changes are happening quickly. Sundowning at around 5 pm is a familiar pattern, and we have come up with some steps that reduce the effects. A new problem — In the morning, we're seeing something like sundowning. He might withdraw, he might get angry, it's a new thing…
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What a hell-a-la-boo
My story has been shared over the past 2.5 years, so I will pick up from where I left off. Mom is recovering nicely from her Ablation. I thank God for that. I am thankful also that her UTI and URI are both in the past. Sadly, what is also in the past, is her memory of events that led to her hospitalization 2 weeks ago,…