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Help with my sister
My only sister and best friend was diagnosed with EO Alzheimers at 55. I am spiraling and want to find a support group for siblings. Can anyone please help? Thank you. Juli
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MY MOM HAS EXTREME PARANOIA TOWARDS ME
Hello-- 8months ago my Mom had an MRi done to her brain but there was no exact diagnosis based on the results of the MRI> We also saw a Neuro-Pysch-- and he only spent a few minutes with her and I had to be the one to tell the story about her accusing me of stealing her under garments, jewelries, clothing, remote control,…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Medication
My wife has been recently diagnosed with Early Dementia/ Alzheimer’s. I discovered yesterday that she has not been taking her prescribed medications on an everyday basis. After a huge battle, she finally relinquished control her pill box and leave it in a place where I can conveniently check. I have hidden her dementia…
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1st Lequimbi Infusion..
Is finally on my calendar for Oct 30. YAY!! It's been a long slog but it is almost a reality. Very pleased. 😁
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Contesting my mom's will.
My sister told me about how family members fight over the will. I've been naive thinking black and white and that the will is going to be carried out as intended by my mom.
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Will CPAP Really Help?
Hello friends, Dad is 79yo, had a CPAP maybe 20 years ago. Neuro thinks new CPAP is going to be a game changer/golden ticket bc of his brain scan and assessments. His sleep study showed low/moderate apnea. He's in a care home, not MC, so staff will check on him but they don't do intensive ADL's- I'd have to get home care…
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Mom has AD and husband abandoned her.
I am writing this because I don’t know where else to turn and I’m hoping somebody out there has gone through something similar. My mother and stepfather have been married for 21 years and I’ve had a pretty happy marriage. My stepfather came down with Parkinson’s a few years ago and is in the later stages now and in an AL…
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early onset dementia and memory care
My wife is 69 years old and has early onset (56 years old) vascular dementia. I placed her in memory care early last month. Her biggest complaint is that all the residents are older and more impaired than she is. Most of the other residents are late 70s and early 80s. Some are in the very late stages but many are not. My…
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How to handle transition to memory care
My sister has been living in an assisted living residence for about 3 years, but her cognitive abilities are quickly slipping into a need for more care. She's falling, wandering into other apartments, needing more assistance with hygiene, even having very strong delusions. She's openly expressed a fearful dread of being…
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Early onset support group in Illinois
My spouse has early onset Alzheimer's . We live in Elgin Illinois and I was wondering if there are any support groups that meet maybe weekly in the Northern Illinois area. I feel like it would help greatly if she could meet with others who have reduced memories in a small group setting. They have a memory cafe here that…
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The Weight of Waiting
There’s a lot of weight on my shoulders. My DH is stage 6 of Alzheimers and I find myself weighed down, emotionally stuck in the waiting room of his life, our life, my life. Time is timeless. Its a surreal world of melting clocks and drooping watches and living in a dream-like nightmare that did come true. The…
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Useful tips and products
Hello, I remember seeing a heading like this in our last format, and it was very helpful. People just kept adding helpful hints and they were all under this one topic. I listed a few: 1) Shampoo Caps: These are a blessing for me, as my DH hates to have his hair washed. Thsy are efficient, neat, and they do thoroughly clean…
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Support group
I came looking for help, understanding, support. Husband newly diagnosed. Without offense, I must say it’s scarier being here than being lost and alone in my real life. No. I didn’t come here for the fantasy of “it will be ok” but it’s all so hopeless. I see major failings in my husband every week. Something new every day…
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Mixed dementia
My dad has mixed dementia vascular and alzimers hes 95 I have carers coming in once a week to help me as I can’t deal with it alone sometimes I cry about it
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Newly Diagnosed Physician
I am a 60 yo newly diagnosed with Alzheimer's. I am a retired Family Physician who noticed issues approximately 18 months ago and was diagnosed with MCI. I stopped practicing medicine and was given disability benefits. I am fortunate to have had that option but despite all my expertise the process of getting a definitive…
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Other Caregivers Dealing With Menopause?
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
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Newly Diagnosed with Mild Cognitive Impairment
Hi everyone..I am 58 year old School Counselor newly diagnosed with MCI, based on Montreal Assesment. I have a variety of risk factors--family hx on paternal side (Grandmother, Uncle, Father) plus I have Type II Diabetes, Sleep Apnia, Peripheral arterial disease, etc. I am scheduled for a workup--blood test, MRI, and…
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Results from Aircept
Have any of your parents been on Aircrpt? Did it help? Hurt? Side Effects?
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Recently diagnosed
I was diagnosed by a neurologist a few months ago The only testing I s were 2 EEG‘s one in office and a 2 day one at home and the psycologist with neurology which included variety of memory/skills testing. After that she said I had mild cognitive and she thought it was probably Lewy Body. Suggested driving test and sent me…
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In Loving Memory of “Jo C”
I’m reaching out, again, on behalf of my beautiful mom, Johanna “Jo C” Richardson, a passionate Peer Volunteer for nearly 20 years. Many of you knew that Jo C had been diagnosed with a progressive lung disease a couple of years ago. The disease did progress and Mom passed away peacefully at home the evening of June 19,…
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Help! Overwhelmed and Dad won't address things
My mom (79) has dementia. I don't think she'll ever have any diagnosis. She won't even take her temperature. My dad (78) still has POA but won't do what's necessary for taking care of himself let alone her (i.e. meds, driving, home safety, home help, future planning, etc.) He/they don't know what state to live in when they…
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So Frustrated with Dr
DH with VD from several strokes has had interrupted sleep for 7+ yrs. Dr has him on trazadone 150 and now he is only up 5x night instead of 15-20. He now has nightmare episodes at night. We had a video appt with Dr today to discuss changing or adjusting meds to help us BOTH sleep, my idea.. I emailed Dr a heads up with the…
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Caregiver
My DH, has Alzheimer’s and I am the caregiver. My fear is that I won’t know when the best time will come for an outside care giver to come in and assist or even when it might be better if he were in a facility with more care than can do. My desire is to have him at home as long as possible. He’s 81 and I’m only 70. I’m…
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What to do when vascular dementia causes your husband of communication
We are at the stage of his dementia where we cannot carry on a conversation. I cannot understand what he is trying to say. He has many health issues and I am afraid I won’t be able to know what is wrong. This is my first post. I don’t know what to do. Thanks
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New here, young adult child looking for connection and support
Hi, I’m 33 years old and my 74 year old mom was recently diagnosed, although we’ve seen it for the last couple years. I live in California and she lives in Ohio with my dad. I also have an older sister that lives a few hours away from my parents. Mom and I have been really close and talk on the phone every day on my drive…
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Caregiver for dad
My Dad is 75 & has dementia. It’s so bad that he wasn’t paying his mortgage for over 7 months. My husband and family had to move in to help save the house. I work full time but took some time off to help get my dad situated. We’ve been living with him for a month now and I’m mentally, physically and emotionally exhausted…
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Alzheimer's quick progression after an illness?
My LO has been experiencing a Colitis flare-up and is really having a hard time. He was seen by a doctor, and we have a follow-up appointment scheduled. But it seems like his Alzheimer's has progressed a lot within just a week. I did see a video that mentions that people may "take a step" down after experiencing an…
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Angry right now
Anyone out there ever get frustrated to the point of even being angry at the total LACK of answers available for this disease? My mom is in (I think) Stage 4 Alzheimers. But then it could be Stage 5. I can’t get a good answer from a doctor. There are no good answers. No good answers on how long I can expect each stage to…
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How to have patience and not start resenting your spouse.
Hi: My DW has had VD for 3 years and I'm the sole care giver. It's 24/7 year-round. Today she woke me screaming to come wipe her bottom. Yes, I have had to do many times, but to get woke up out of a deep sleep to her screaming clean my bottom. I almost lost my temper; how does someone not get up start resenting your…