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When to stop Donepezil and Memantine?
My mom's hospice care suggested I let them stop Donepezil and Memantine because her FTD is very progressed. I always second guess what is the right decision with anything related to Mom's care. I asked the benefit to taking her off the meds, and they said (1) she's progressed so much that they don't help and (2) it's hard…
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Mom needs almost constant support
79-year-old mom lives in intermediate memory care unit within AL facility. She is very outgoing and has a good friend in AL. She is able to interact with people in AL and participate in their activities. She does not seem to enjoy most of the activities, however, or refuses to try them. But then she gets bored and doesn’t…
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Leqembi treatments for early dementia
Hello everyone. So my neurologist is sending me to a specialty clinic that does infusion Leqembi treatments. I was wondering if anyone here has been on it and if they have had any problems with brain bleeds or brain swelling. I'm trying to learn as much as I can about it so I can ask the right questions to the specialist.…
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Bible Verse to Lift You Up 6/21/21
CAREGIVERS, WE CAN TRUST THE LORD Psalm 91:14-15 Easy-to-Read Version 14 The Lord says, “If someone trusts me, I will save them. I will protect my followers who call to me for help. 15 When my followers call to me, I will answer them. I will be with them when they are in trouble. I will rescue them and honor them. YOUR…
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Seroquel
Based on posts I’ve read on here, I asked my husband‘s neurologist for Seroquel to help with sleep and behavior. I’d like to know from others experiences how long it took for the medication to work? How long before a noticeable difference was noticed? The main thing that I’m hoping for is successful sleep through the…
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50 years
In a few days we will have our 50th wedding anniversary. I know for a certainty that she is the best thing that ever happened to me in my life. She last recognized me in 2017 and has been bedridden since 2021. She is 73 lovely as ever, with a few streaks of grey in her hair. I have stunning wonderful memories rated from G…
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Days Out for MC Resident?
My dad has been in MC for about a year and is now about stage 5/6. We have brought him to our house for a meal and a visit of a few hours most weekends in good weather (no overnights). Mostly this has been OK. He likes the food, and hosting him in our home gives me some sense of satisfaction. He has put up very little…
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My husband has MCI and blind on rt side.
He’s has Mild Vascular Neuro Cognitive Dementia. I’m exhausted. And I Cry.
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Anyone heard of potential benefits of Kefir?
Hi Y'all, My wife was diagnosed 3 years ago with dementia, she is still very much with me, but I have seen many examples of her slow slide due to this horrible disease. Our GP prescribed two medications when she was diagnosed, Memantine and Donepezil. We have no idea how much they've helped. We have a good friend who's a…
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Early Onset of Dementia
My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared…
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DH with dementia no longer shows hand preference
My husband is in approximately late stage 5 of dementia. I noticed recently that he no longer shows a hand preference when eating, holding a pencil or reaching for an object. What does this mean? He was always left-handed, but will now try to eat with either hand. He requires assistance eating, but tries to do it himself.…
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Short term memory loss
my LW is currently in a nursing home for PT after surgery for diverticulitis. Happily, she did not need a colostomy bag. On the dementia scale, she is in the lower middle. She also has short term memory loss, which compounds her negative outbursts. If I am with her, I witness her anger at staff for slow responses.…
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PBS Cargiving Documentary
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Nevermind
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New to group
Hello I just wanted to introduce myself. My husband is 56 year old. He was diagnosed with PPA and frontotemporal dementia about 5 years ago. I believe we are now entering ALZ as well. This week I had to finally take away his right to drive and it was heartbreaking. I tried to blame it on the insurance company knowing he…
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Won't drink enough!
How do you get your LO to drink fluids? I am tired of harping on mom to drink. She will ignore the water,juice, or tea in front of her face and keeps getting UTIs.
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Assisted living room changes
My mom has been at the assisted living facility since October 2023. She is in a 2-room apartment, which we originally selected due her having 2 senior male dogs. At this point, the dogs are no longer there, and my mom is transitioning from moderate to severe. I was asked by the staff at the facility today how I would feel…
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National Alzheimer's Summit: A Virtual Experience
Michael Ellenbogen sent me this valuable information: This year’s theme, “From Personal Stories to Powerful Action: Making a Difference in Alzheimer’s,” will elevate the voices of patients and caregivers while driving impactful change through collaboration with government leaders, scientists, the private sector, and…
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National Alzheimer's Virtual Summit
Michael Ellenbogen sent me this. UsAgainstAlzheimer's is a good organization. This year’s theme, “ From Personal Stories to Powerful Action: Making a Difference in Alzheimer’s," will elevate the voices of patients and caregivers while driving impactful change through collaboration with government leaders, scientists, the…
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Psychosomatic pain?
Wondering if anyone has experience with pain complaints? My DW had a mastectomy 10 years ago. Early stage cancer, no chemotherapy or radiation. She’s now complaining constantly about pain in the other breast. Saying, “I want this one removed too.” Recent mammogram (1 month ago) was clear. There’s no fever, redness, or…
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Montelukast for AD
Has anyone's doctor mentioned Montelukast as treatment for AD. I have read some studies showing it has a positive effect on the inflammation reaction in the brain?
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Slow motion in Stage 8 (repost)
Posting from Spouse's forum also.
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Diagnosis process
Hello all, I was able to get my mother to be seen by a neuropsychologist for testing recently, which required very careful persuasion and lying to get her there. They now want to make an appointment to go over the results with her. I am considering not doing this and having them just send me the report, if I can get it. My…
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Still Here
I haven’t posted in a while, I am struggling with the situation here. DH is now on day 47 of not eating, over a month with no heart meds, and he’s refused fluids of any kind since Monday. The Hospice nurses are astounded that he’s still as strong as he is. He’s non-responsive to everyone but me…if take his hand and talk to…
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Having trouble crying? Then read this one: The Swimmers by Julie Otsuka
I haven't been on this site for a long time and was moved to post here by this book. Brilliantly written and tightly constructed, Julie takes us on the journey of her mom through her mom's decline. I think it was by chapter 3, I was sobbing, and then weeping at the description of the importance of trees. (I remember how my…
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Slow motion in Stage 8
Dear Forum mates, I am just checking in as the dust begins to settle (sort of) following my beloved DH's peaceful passing a few months ago, ending 6+ years of our devastating dance with dementia. I have thought of you all so many times, but have been alternating between some days of doing nothing but breathing and…
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Hospital woes (long story)
Mom developed another UTI at her MC. After a day of antibiotics, she refused all food, fluids and meds and stopped talking. Her facility sent her to ER and she was admitted. After some IV fluids and one dose of IV antibiotics, she perked up and was almost back to baseline. The hospital was ready to discharge her, but of…
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Alzheimer’s and Sugar
My MIL is diagnosed with Alzheimer’s Disease. The disease has progressed slowly (15 years), but she is now firmly in Stage 4. Among other changes in behavior, she has recently begun hoarding food…especially sweet foods. While I know hoarding and hiding is typical, my question is more about her overall diet. My FIL is her…
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Rexulti and increased confusion and restlessness?
DH has been taking Rexulti for 2 weeks now and he seems to be more confused, wanting to go see his parents, wanting to go skiing, more restless. I don’t know if it’s coincidence or is this a result of the medication. I don’t think it’s had any effect on the agitation so I’m inclined to stop it. His doctor said to go to the…
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Not sure the MC facility has my mother's ADLs addressed
About three months ago I noticed a few things lacking in my mother's room regarding her personal care. One was that she did not have any toothpaste, shower soap or washcloths. I wondered how they were properly bathing or brushing her teeth. I also noticed the toilet paper roll was down to the last few squares and there was…