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help with anger and corrections
I'm 52 female, my DW is 66, recently diagnosed. We are in early stages of this journey - not a lot of memory issues, but trouble figuring out how to open doors, remembering to eat, figuring out how things work like showers, clothes, etc. I have a lot to learn, but would love some pointers on what to do about the anger -…
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Sandwich generation - having a baby while caregiving for dementia
Hi everyone, I have posted a few times here before and this forum has been so helpful. My dad (77, mid stage 5) moved to memory care in September. He has adjusted really well. He doesn't remember home or ask to leave, he is always engaged in activities when I visit, the staff love him, and I think he has made some friends…
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Need some advice
My grandfather (77) has Alzimers and early stage dementia. He has been having issues with his memory and I am trying my best to help him. But I'm having trouble getting through to him. For context, I along with my parents, are currently living with my grandfather. We try to keep the house clean, provide meals and assist…
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Mom needs eye surgery
Hi, I’m new here. My sister and I are caring for my mom, who lives in assisted living. Her cognitive decline seems to have sped up in the past 2 months. Now, she has a hole in her macula and needs surgery to repair it. I think she’ll be ok with the surgery itself but not with the requirement to stay face down for five days…
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dealing with our LO's anger
My DW have vascular dementia (sorry I can't use the acronym VD😂). About a year ago she became angry and has stayed that way. I spent every day trying to do things that would make her happy to no avail. I placed her in MC 3 months ago. She remains angry and upset with me. I visit her daily for about an hour. The first 30…
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Informing others of diagnosis
I was wondering if I should mention to acquaintances that my DH is showing signs of Alzheimer’s. Sometimes we meet up with friends we haven’t seen in a long time and my DH has gotten to the point where he has very little to say or when he does say something it shows his memory is not normal. I don’t know whether to mention…
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When do you decide to place your spouse in a Facility
My husband is only 61. The confusion started 3 years ago. In the last 7 weeks he has decided fast - no longer uses the restroom, does not eat, have to force him. Can stay up for 2 to 3 days with our much sleep (cat naps - 15 to 30 minutes), constantly pacing, has left the house in the middle of the night with no shoes,…
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Not sure how to feel
The last week of February my DH and myself tested positive for covid. Two weeks later we tested negative and his symptoms seem to have went away, but on the 19th of March we took him to the ER for a totally different issue when they found he has pneumonia and spent 3 days in the hospital. They said he tested positive for…
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Interesting observation
The nurse who evaluated my LO for hospice made an interesting observataion. He watched my LO's hands and asked if he had ever been screened for autism. ( I don't remember the exact wording, but he was very tactful) Later, he told me it looked like stimming behavoir, which is common with autism. My LO has no history of…
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Wanting to go outside all the time
I am my DH primary caregiver and he can no longer be left alone. In the past few months I feel that so many things are changing. Since the weather is getting nicer he has started to say "I just want to go in the yard for a few minutes" . He comes back in 5 minutes and does not leave the property. But then he does it over…
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Hi I'm 10 second Louie!!
So if you have ever seen the movie 50 first dates with Adam Sandler I am currently living with "10 second Tom" this weekend. For those who have not seen the movie it starts Drew Barrymore as a young girl who was in car accident and has brain trauma. This trauma caused it so that her brain resets every night and she relives…
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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Feels Like a Lose-Lose
We moved my 82-year-old stage 3-4 Alzheimer’s mom from an independent living place near me to an urban assisted living place while she was on a trip last week. She is very angry and refuses to let us stay when we visit. She says she is being surveilled and kept prisoner (she can walk out anytime she wants, she just has to…
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Talking about someone in the 3rd person while speaking to them
We suspect my 89-year-old mother is progressing from early- to mid-stage dementia but don't have a diagnosis yet. Recently, there have been a couple of instances where she's referred to the person she's speaking to in the third person. Like telling her granddaughter, Lauren, about "the basket that Lauren made" or telling…
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Not adapting well to memory care
My mom who has stage 4 Alzheimer's moved to memory care a couple of months ago. She went to memory care after living with family for a few months after she could no longer live alone any more. She doesn't seem to be doing well after 2 months. I'm confident that this is the best memory care place within 1 hour of my…
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Struggling to Cope
Hi everyone. I'm 27 years old and two years ago my father was diagnosed with Alzheimer's. Things have been going really smooth. Up until the last few months. He's progressed somewhat quickly and I had a really jarring experience with him yesterday. He's been having conversations with himself which I just let him do, but…
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Early Onset of Dementia
My name is Bonnie and I live near Dillsburg, Pa. I am 57 and was just diagnosed with early onset of Alzheimer’s. I am trying to get treated with Leqembi. I am on a wait list… they said maybe July. I was just reaching out to learn or hear about anything that is helpful for this disease. The more I know, the better prepared…
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New Here - Caregiver Fatigue
Hi all. I’m a caregiver for my Mom who was diagnosed with slow progression Alzheimer’s but has since sped up. She can still maintain her daily hygiene, knows to eat, etc. Prior to being formally diagnosed, I was living out of state with my husband and then college bound son. I decided that it was best I moved, temporarily,…
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Delusional talking
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Looking for advice on parent who wants to travel but can’t
My mom’s sister recently passed. She lived 2000 miles away from us and had no kin. I need to travel to help handle the estate, etc. My mom keeps insisting she’s going and I have to explain that she can’t travel. She gets disoriented in her own home and needs supervision 24/7. As much as I wish I could take her with me,…
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MCI Diagnosis
My DH has been diagnosed with MCI after a fairly brief evaluation from a neurologist (with review of his MRI and bloowork). It appears that this is an umbrella term that could mean any number of things, so I'm confused about his actual diagnosis. I'm contemplating getting a more detailed neuropsych evaluation but hear that…
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Support
My mother is in a nursing home, funds are low, and my income isn't enough to help. I hate the idea of selling the house and I feel like I've betrayed her, as she's always upset when I go to visit. But at the same time, feel my care to live with her would not be enough. I really wish I could just bring her home and be…
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Advice on Deed
I need to get some advice from you folks on what to do with our home deed. The deed is in both my and my DW name. It is also included in our Trust. I will probably need to sell house to help defray the costs of MC some day. When and if we get to that day, my DW will probably not be able to sigh any documents. I do have a…
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How to move from assisted living to memory care
My mom has been living in AL almost 2 years after difficult move out to California from Michigan. She did well the first year, but then AL decided to renovate and the disruption triggered fear. She’s 77 years old and was diagnosed with likely dementia, has aphasia and recently has been having auditory hallucinations. She’s…
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Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
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stability issues at toilet
DH is becoming more unstable in general, he hasn't fallen much -yet- but I'm looking for suggestions using the toilet. He is trying to see if he can pee sitting down, but standing is such an ingrained habit it may not be workable. He needs something to hold onto whether he sits or stands. I have heard the suggestion to put…
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My Mom
My Mom is 65 and showing all the signs of dementia. Her biggest one is she thinks her loving husband of 35 years is cheating on her. She’s making his life miserable. She’s always accusing him and being nasty. She refuses to even talk about the fact that she might have something wrong with her and won’t go to the doctors.…
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Age 59 early onset with a six year
My husband (currently separated) is in the early stages of being diagnosed. There is a months long wait to get into a neurologist to get an official diagnosis. Meanwhile, I’m now a 41 year old single mom to six year old. His undiagnosed symptoms have caused financial ruin for our family. He isn’t able to work and is…
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PPA (primary progressive aphasia) - a type of Alzheimer’s
my sister, age 77, has been diagnosed with “logopenic PPA” and Alzheimer’s - and is living at home with her husband. She can do all the ADL’s, is working out, socializing and seeing a speech therapist. She has no memory loss but struggles to find words, has trouble writing and reading. On Aricept today, however her…
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Hospice assessment
I'm ready to have my husband assessed for hospice. He doesn't meet all the criteria on the checklist, but I've been encouraged to have a home assessment. Any tips for those of you that have done this? I plan to tell him it's an assessment for insurance coverage, without mentioning the word hospice. Anything I should be…