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The end is near
Today I was informed by the hospice nurse that they think my DW is in the very final stage. She is having difficulty swallowing and is taking in very little food or liquid. Yesterday she had only a few partial spoons of puréed food and juice. Today they are no longer able to give her medication as pills and so they will…
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CA-Sacramento/Amador County Hospice
hi, Does anyone know of a Hospice company that will permit the person to stay on their medication for dementia? Thanks
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Our mailbox relocated itself...
Occasionally (or maybe frequently) I like to pretend everything is normal and then something very strange happens that snaps me back to reality. Last week it was DH calling me to tell me that he went to get our mail and that someone had removed our mailbox and reattached it in a new location. After a few minutes of me…
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Caring for mom at home
I’ve been caring for my mom pretty much full time since 2020 but my Dad helped until he passed in early 2024. She already had mobility issues from a stroke and a fall, but since he died she’s gone downhill with her dementia. She’s maybe a mid-stage 5 but it’s hard to assess since I’ve been helping her do her ADLS for years…
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Partner to a Caregiver
I am new here and looking for support for myself. I am caregiving my partner who is and has been caring for his wife, diagnosed with FTD in 2016. I have been with him for over 4 years. I would never have chosen this path for myself, except I have known him for 16 years and know the beautiful soul he is. I worked with this…
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Update posted in comments - Move forward with hip surgery for DH?
I'm still not positive what stage my DH is in, but guessing stage 4 with some symptoms on 5 creeping in. Some days he seems close to "normal" and then there are days that are the opposite. He's still able to care for himself and even fixes dinner for us now and again. Still does his usual chores around the house. Withthat…
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How long has it been
I don't know any of you but I have told you more about me and my situation then I have told anyone else in the world. That seams kind of odd to me. I can't tell my own kids what is and has really happened. So I would like to share more about the people that I shared life details with. My wife of 50 years (we got married…
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New Alzheimer's Diagnosis
My 70 year old wife just diagnosed with moderate late onset alzheimer's dementia. Looking for caregivers in similar circumstances that would like to discuss what you are going through and share support.
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Home care aggression
Hi! I’m looking for some advice - mom my was “approved” for 24/7 at home care but we’ve been struggling with her being aggressive to outside caregivers. She’s so sweet - until she’s not- which seems to take about a week then she wants them “out of her house”. She’s on all the typical Alzheimer’s medications & mood behavior…
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Peeing all over himself
My DH with mixed dementia has started having accidents in the bathroom. Some of the urine goes into the toilet the rest ends up on the toilet, floor. He wets his pats and urine runs down his leg into his shoes. His shoes are washable but they need hours to dry. I bought him sone washable slippers so that I can get through…
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I need some positive vibes and a positive outlook. Help.
I had a hard visit to memory care and feel so sad for a lot of reasons. My parent is midstage, I'm power of attorney and live out of state and visit every couple of months. any way usually I try to keep myself emotionally detached from her symptoms and make it my goal to just give her a pleasant fun enjoyable visit and…
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A suggestion for early to midstage caregivers
I have learned so much from those of you who share your experiences with this awful disease. To stay I was depressed and overwhelmed when I learned my DH has VD is an understatement. You have taught me so much about this disease, it's progression, what to watch out for, how to prepare myself as best I can for what is…
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My mother hides her purse nightly
My mother hides her purse and wallet nightly in her room at her assisted living facility. For now, she has a private room that locks and is very secure. She swears that people come in nightly and steal her purse however after a diligent search of her room, the purse is always located. We have tried to be consistent with…
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Beginning to Resent My Mom
Hello everybody! My dear spouse recommended I write about my recent feelings in here to vent, maybe get some more insight. I am 26 and am the main caretaker for my mom for about 5 years now since her Alzheimer's diagnosis in 2022. Her main "team" is myself, my spouse, and my best friend who moved in with us. I realized I…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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An even sadder Day
I'm back home, sadly, Donna didn't make it. Due to there being no traffic I got to the hospital an hour before her pickup time (better early than late). When they brought her to me she was crying but I calmed her down by telling her she be home with Jazzy soon. Then we took a short walk, about 100 feet, to the car. Half…
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Donezepil and diarrhea
Hello, My mom has moderate vascular dementia and is on Donezepil 10 mg. While eating she gets diarrhea, I can’t hardly take her out. I always have a change of clothes for her in my car and the doctor ordered anti diarrhea meds. Any other tips? Or does anyone know of a med for vascular dementia that does not cause diarrhea?…
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No more intervention
So my father is a type 2 diabetic, stage 7 c or d(per hospice), possibly in heart failure and on Hospice for 4 weeks. He is in a memory care facility and eats well(too well, big boy:). They have to work hard to get him up and to breakfast or at least get some OJ in him every morning because of low blood sugar. Hospice…
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Feeling sorry for myself
Just got finished cleaning a foot of snow off and away from my car. Im 70 my husband who has alz and vd was in the house watching TV. Just having a woo is me day. Don't need to answer Just needed to vent. Thanks
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Travel documents for parent with dementia?
(Apologies, but I feel like I have to redact this post and the follow-ups at this point to keep some details private. Thank you all, especially H1235 and Victoriaredux.)
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stem cell therapy
Hello everyone: I'm considering stem cell therapy. I'm wondering if anyone has gone down this path or know anything about it. I've researched it, but I think its pretty new in Alz treatment. thanks Pam
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onset of possible panic attacks and fear of falling
My mom is 87, diagnosed with Alzheimer's, with very little short-term memory and not much long-term memory. On friday, Jan 9, 2026, over a 3 hour time period, she had a dramatic change in her condition. She started slurring and having uncontrollable shaking of her body (arms, legs, hands) - almost like a seizure (although…
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Early-Onset ALZ Diagnosis
Hi! I am 56 years old, and I received my early-onset ALZ diagnosis two weeks ago. I had a positive Amyloid & Tau PET scan. I'm waiting for my APOE test to come back to decide whether I can or will move forward with donanemab treatment. I'm very emotional, sad & scared of the side effects and my future
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Laundry addiction
Quite unique and bothersome issue here. Dad;s currently in AL and I'[m looking for an open and reputable vetran friendly MC. He has been in MC for 18 months. He is addicted to doing the residents' laundry. He's claiming that he has been given this job by management/front office. He has gotten so bad that his private aides…
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Dad newly diagnosed, lives alone 3 hours away & I don't know where to start
My 75yo father has been experiencing memory issues for years. We just received the alz diagnosis with a blood test confirmation. Living alone, no family other than me, driving, medications, food, safety, poa - all of it is a lot, but we are navigating. My biggest question and concern is where and how to navigate his…
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Help me please
Hello, I'm caring for my mother that moved in with me a week and a half before christmas. And my brother filed for guardianship over her, and unfortunally he got it. Well here is the problem he is supposed to be getting this so called guardianship account set up. And I'm living off of a very limited income. We are slowing…
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Asking for Help
My dad is scheduled in February to start Leqembi. I am having a hard time wanting to try this experimental treatment. I love my dad. I am worrying about the negative side effects. My dad is at stage 3-4 of Alzheimers. He is coherent. My mom agrees with my dad. I have already let go of my father. He isn't the father, I once…
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Dad newly diagnosed
Hi Everyone. This is my first post. My dad was newly diagnosed this past June with early onset Alzheimer’s. I feel like I am in a state of complete shock. I have gone into “panic mode” and I want to make sure I’m doing all of the right things. My dad is still very early on, but the not knowing of what’s next and when is…
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CSVD and behavioral changes
I was diagnosed last year with CSVD, but for about the last 3 years, I’ve gotten angrier, losing my short term memory, so much to the point where I can’t even hold proper conversations, because I’m often getting in arguments with my adult children, and often can’t remember what it was about. Is this common with CSVD? Thank…
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Early Onset
Hello. I am new here and came searching for support and connection. My sister, age 55, was Dx with MCI several months ago as the doctors continued all the testing. We just received confirmation that the petscan was positive. Reading the reports before seeing the doctor is so challenging. We have reached out to get an…