-
Norovirus at assisted living
My mom had norovirus but no longer has symptoms, but her whole facility is on lockdown and she is really confused and decompensating fast (being isolated). We are being told to stay away, and I have kids myself, so I'm trying to decide if it is safe enough to go over and try to at least find her remote, find her phone, put…
-
Leqembi/Kisunla
My dad was recently diagnosed by his neurologist with Alzheimer's. He is 63 and is still considered to be in the "normal" to mild cognitive function. His neurologist said he is a great candidate for Leqembi or Kisunla. We are having a hard time choosing between the two. Does anyone have any experience with either? Our…
-
Hypersexuality
Its been a long time since I've posted, but his hypersexuality is much worse. He is not angry, or mean, or delusional, just talks about sex non stop. The only thing that makes me feel better is that I have caregivers who aren't nt phased by it, having seen it a million times. It makes me feel like I'm in a more normal world
-
California Fires
I pray to God that none of our dear Members are affected by these horrific fires. We have enough on our plates without having to contend with this. What a way to start 2025
-
How to handle leaving DH at MC
My DH has severe Alzheimer's and LBD and I anticipate moving him to MC in the near future. My question is—specifically—what to say to him, how to handle the day of the move. A few day ago, I saw a discussion on this site where the author attached a written description of how he handled it but of course I can't find the…
-
Separating Mom & Dad
Hi y'all. My sister and I are navigating next steps for Mom and Dad. They both have ALZ. Mom is much further along in her journey, she is 80. Dad is 87. They are both in AL but Mom's needs have grown significantly and Dad prevents the caregivers from coming in due to privacy and pride. His sense of logic is dwindling and…
-
New to site & need support
Over the last several months, my HCP’s have diagnosed me with Mild Cognitive Impairment, Parkinson’s Disease, and/or Vascular Dementia/AD. I’m cognizant all these overlap within the domain of neurodegenerative disorders. Treatment for PD with levodopa/carbidopa has significantly improved my leg spasticity and ataxia but…
-
I’m impossible
This morning DH wanted to go back to bed after breakfast. I reminded him to brush his teeth first. He said he would do it when he got up. I said no, do it now or you will forget and I will too. He said you are impossible and I agreed with him. He said you are getting more impossible all the time and I agreed saying I…
-
Put Mom in MC - Feeling Guilty
Yesterday I pur my 89 year old Mother in MC. I am feeling so guilty, like I failed her. I got her there under the guise of meeting a friend, then I just left her. I had ask the staff while preparing her room about leaving phones and tablets for her, they said leave it. Last evening my mom start posting things on Facebook…
-
A Local Nightmare
This was in the news not far from me. A woman was found wandering near 2 very busy streets in a primarily residential (mostly single-family homes) area. It's interesting that she seems dressed for the weather.
-
Guardianship case
I just want to ask if anyone had any experiences with winning a guardianship case. My DH with mild vascular dementia got served on Friday with a petition case of guardianship from daughter. I have durable POA for financial/property and POA for health care. Our court appearance is scheduled on February 4th. Any advice will…
-
Timeline
Took my mom to her appointment on Thursday and we were given an estimate of how long we have with her and I just don’t believe it. She still walks and talks. Yes, she needs care with showing and toileting and only sometimes how to eat. But has so much personality still. Has anyone ever got an estimate and how accurate was…
-
Recently Widowed Dad With Mild Dementia
Hey Folks, I'm new to the forum. It was recommended to me by a help line here in Michigan. My dad has had 2 strokes within the past 10 years and this has resulted in some mild dementia. It comes and goes, but he's usually fairly sharp. It manifests itself in strange ways like hygiene, eating mannerisms and a bit of…
-
My dad has dementia and my mom who was his caregiver justpassed away.
I am struggling to support my dad who has dementia and is declining. My mom was his caregiver and she recently passed away after a 4 year bout with Pancreatic Cancer. My dad keeps forgetting she died and my brother and I have to retell him over and over. He gets very distraught but then eventually forgets again. He asks…
-
Female spouse w/young kids looking for mom in similar situation?
I'd love to find a caregiver like myself to exchange texts with, like our own mini support group. This is likely too specific, but ideally it would be a woman whose partner is in the early stages of Alzheimer's (like, very very early stages where most people can't tell) and whose kids are still living at home (our kids are…
-
peeing on furniture
my brother has a special spot where he likes to sit and/or nap. Recently though, I noticed that he has been sitting where I like to sit. This morning I noticed that there is a distinct wet spot between the cushions where I am sitting. I put my hand down there, and indeed, it was wet, and when i smelled my fingers, it was…
-
Excessive Talking/ Social Cues
I am still waiting for the doctors appt. to try and get a diagnosis. My question my DH is totally clueless when it comes to social cues. He doesn’t know when people are wanting to speak, or wanting him to stop speaking. Another behavior I notice is excessive talking. I mean excessive, he will call someone and talk…
-
Feel like I’m becoming reclusive
Out of necessity, DH is stage 6. It’s just too hard to do things with him. He won’t tolerate caregivers so it’s mostly all on me except for family helping at times. Won’t go to day care. Just going to the grocery store alone is rare. Taking him out in public is hard because his speech is garbled and he tries to talk to…
-
If you can’t beat ‘em, join ‘em
I was so frustrated and angry today trying to do chores but having to follow DH around and “babysit” etc. I broke all the rules this morning—argued, corrected, over explained, got mad. Got some stuff done then decided that I’d rather give in and relax than ruminate or come on here to complain. About to take a little nap on…
-
Communication is gone
By reading the posts I can tell my situation is maybe unusual-? My DH is stage 6, I’m sole caregiver. His speech for over a year has been jumbled, made up words. (Aphasia?) He’ll talk quite a bit but there is no way to understand him. And when I ask him questions (Do you have to go to the bathroom?) his response is not yes…
-
How many years did or has your loved one lived in a facility?
I was told that a typical stay in memory care is 2-3 years. This surprised me because this would indicate that either people are coming from assisted living or somehow families are caring for their loved ones at home. Granted the cost of assisted living and memory care is so high so any care option is hard. I wonder…
-
Dad removes depends during night
Hi, I am new to this. My father is dealing with dementia. He's 80 years old. My mom is 82. I live here with them. What's brought me here is that I'm looking for any suggestions. My dad, during the night is removing his Depends briefs. This is something new as of this week. They will be on the floor or nightstand. My mom is…
-
Dad has moderate alzheimers
I knew he been off but I scheduled an assessment w his doctor and he was so mad when I told the doc about his sun downing; hallucinations; aggression; and now he won’t do his blood work or brain scan before we can go see his neurologist to confirm where he’s at w Alzheimer’s but where would I even start as far as getting…
-
Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
-
The Need to Talk
Life sometimes is just plain exhausting. It seemed a simple task. With a contractor finally prepared to do my little laundry renovation, my sole task was to go to the hardware store and purchase a laundry tub plus a broom cupboard, off we went. Of course the exact products weren’t there, so more decisions with my DH…
-
early onset dementia and memory care
My wife is 69 years old and has early onset (56 years old) vascular dementia. I placed her in memory care early last month. Her biggest complaint is that all the residents are older and more impaired than she is. Most of the other residents are late 70s and early 80s. Some are in the very late stages but many are not. My…
-
How does hospice work with MC and MC services?
This is not urgent. This is me trying to get educated before I need it. I realized that I don't understand how hospice works with MC and how it effects or supplements or takes the place of the services that the MC provides. And how does hospice interact with care levels and care level charges as the PWD becomes less mobile…
-
Gotta work, DH can't be alone but not ready to be placed, holy Cr. what do I do?
I work part-time because we can't make it without the extra income. Both of us are on SS. I've been able to leave my DH for 6-7 hour stretch for the last year an a half but that's coming to an end. He is good when I'm home and can take care of him and make sure he's safe, but in the past month I am realizing that he's not…
-
When to tell family and friends
My DH was diagnosed with Alzheimer's 2 years ago. He is ashamed of this disease and didn't want to tell his family; including his daughters. I did tell his daughters he was experiencing symptoms and the results of his tests. They have been very supportive. He has responded to ALZ medications, but his short-term memory has…
-
How to deal with a spouse who won't advocate for your parent with Dementia
My mother's husband is standing in the way of every suggestion I have that would help my mother stay active and deal with some important things that are affecting her because of her dementia. She is still kind, social, funny, can hold great conversations, remember lots of things, and in my opinion needs help with some…