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Christmas tree
With all the issues there are to deal with, this seems so very trivial. But, maybe someone here has some wisdom for me. I used to LOVE putting up the Christmas tree. It was almost a "ceremony" for me, with holiday music playing and every single ornament being hung on the tree. Window swags, candles, a village of ceramic…
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Update: Mood swings and anger issues
I want to think everyone who responded to my last post. That night I got a call from hospice to discuss my wife’s condition. I mentioned her anger and was told that the memory care staff had Lorazepam on hand that they could give her with my permission. I said that was alright with me and was told it would be passed on. On…
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cant do it anymore
I have finally reached breaking point to look after my dad anymore too many obsticales by his ex wife who is involved . if i walk away am i a bad person
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How to have patience and not start resenting your spouse.
Hi: My DW has had VD for 3 years and I'm the sole care giver. It's 24/7 year-round. Today she woke me screaming to come wipe her bottom. Yes, I have had to do many times, but to get woke up out of a deep sleep to her screaming clean my bottom. I almost lost my temper; how does someone not get up start resenting your…
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I'm feeling a little disturbed
My parent called me upset that she had received notice that a family friend had just passed away unexpectedly. She had this whole elaborate story abut how she received notice via a phone call and was quite upset about this as this is someone she interacts with in the present. Her recollection was so vivid and her emotions…
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Speech Therapy
I am just wondering what are the thoughts on speech therapy. My DH has VD about stage 6 and advanced aphasia. I am beginning to feel like a bad person because I have not taken him to a Speech Therapist. It was brought up in conversation with a Dementia Support worker. He can’t remember instructions and definitely finds…
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Mom was newly diagnosed
my mom was newly diagnosed , and she has lost the ability to keep track of the day , dates , appointment times. She will ask multiple times daily what time an appointment is , or what is the day /date even though it’s a week away , and even wake early in the morning & start to get ready saying I’m picking her up to go. She…
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My Mom Passed
Hello All Been a tough few days… my Mom passed away on Wednesday. Hospice gave me a call and said it would be a good idea to gather the family. My husband and I picked up by Aunt, and met my son there at my mom's bedside. We put a phone by her ear and my daughter was able to call and talk to my mom. We stayed for the…
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Xmas
Every year we celebrate xmas here. There is 13 people. My Dh didn't do well at Thanksgiving here,there was about 20. So i really don't know what to do. I want to spend xmas with my kids but Thanksgiving was stressful. He was agitated and hateful. I tried keeping him distracted and a place for him to get away,did not work.…
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Am I a bad person
I wake up every morning and pray that God gives me the strength and patience to get through another day of caring for my DW. She is in late stage 5/ early stage 6 and we have been on this journey a little over 3 years. Lately she has just cried every day wanting to go home and asking for her deceased parents and saying she…
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Trying to plan ahead
Sorry! I hit a key I shouldn’t have! I run a bed and breakfast in our home. I just love doing this. It’s good for me and it’s good for my husband with AD……so far! He’s probably in Stage 5 or so. He’s still functional but needs guidance. He is able to help me in the kitchen (dishes and clean up) and really wants to! He can…
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Not dementia but an aging game changer being tested
https://news.stanford.edu/stories/2025/11/joint-cartilage-aging-osteoarthritis-therapy-research "A new study suggests it may be possible to regenerate cartilage lost to aging or arthritis with an oral drug or local injection, rendering knee and hip replacement unnecessary." Years away most likely but good news .
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From the NYT: A Different Type of Dementia Is Changing What’s Known About Cognitive Decline
https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?unlocked_article_code=1.5E8.jeiC.EuBZiHfxb5a8&smid=url-share An article about LATE, a recently recognized form of dementia.
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What Is Looking After Yourself
This might seem a bit silly but it’s said to me often by medical staff “look after yourself” Could I ask what does everyone do to look after themselves. Apart from getting enough sleep which is hard, is it a frame of mind, time out on your own once or twice a week and then where do you go. When you have a baby you never…
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Thank you
I have been mainly reading posts on this for two years. It helped. I lost my dear husband this Saturday. It was a peaceful profound and passing. His room was filled with love and music. Having an iron clad molt really helped. When the Er doctors mentioned a respirator, we knew to say no. He had comfort care only. Thank you…
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MCI diagnosis
Hello. I was diagnosed with MCI a few months ago. I'm mid 50's and have shown symptoms for the past year which I initially wrote off as normal aging. My PET scan showed structures in my brain that are interfering with my short term memory. A couple of weeks ago I had a lumbar injection of medication. It's been a long road…
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Trying to plan ag
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Is anyone in the Denver area?
I was diagnosed with EO AD last week. Would love to connect with others in the area. Maybe meet for coffee or walk.
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Anyone experiencing body pains
hi am am newly diagnosed early onset dementia, My doctor is still finding out what kind dementia I have My understanding is I have Alzheimer’s in my blood but not reached my brain yet , what the heck does that mean ? I am having a Pet scan next , I kind feel like my doc just dumped me or put me on hold , I don’t know if…
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Anyone using Paxil for severe agitation?
My mom is 94 - diagnosed 11 years ago with Alz dementia. She has been in an advanced stage requiring full care for almost 10 years. Her neurologist advised us to try Paxil to help with her severe agitation. She is taking seroquel as well. She's starting throwing plates of food lately. Things are rough but I'm nervous about…
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both parents with dementia, cost of care very high
Both parents with ALZ, different presentations (ie agitated v. calm) and we have been getting by with paid caregiver 4 days a week and the rest done by myself, sibling occasionally helps out. Care needs are escalating and a tour of local senior livings has been cost-sobering. One place that had AL with solid cognitive…
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Support Group Cookie Exchange? No!
Just need to vent about endlessly unreasonable expectations…with the “you need to take care of yourself” heading that list today. You need to (fill in the blank) sleep, meditate, journal, blog, do yoga, do cardio, take a break, take a walk, join a support group…while being sure to show up at work fully present, care for…
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Newly Diagnosed Physician
I am a 60 yo newly diagnosed with Alzheimer's. I am a retired Family Physician who noticed issues approximately 18 months ago and was diagnosed with MCI. I stopped practicing medicine and was given disability benefits. I am fortunate to have had that option but despite all my expertise the process of getting a definitive…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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Intimacy.
Moderators. R we allowed to asked questions about intimacy? The issue was I was showing my wife of 45 years, and I became visibly aroused. She got highly agitated and started filing her hands etc. I was able to get her out of the shower and calmed downed. this has never happened since she has had dementia. Has anyone else…
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Grief Differences Among Family
I wanted to reach out to others here for feedback. I struggle trying to help family understand why their grief for the loss of their mother or grandmother looks so much different than the overwhelming grief they see in me. I know each and every one misses her terribly, so it is definitely not because they cared less or…
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Question
What do the two icons in the upper right and the bottom corner of posts mean? How do I comment on a posts?
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Thank you all who had time to listen
I just want to say thank you to all of you who listened to me earlier in the year, as a new caregiver, to my husband who was diagnosed with HF and Vascular dementia in January 2025. He passed away on Friday, 11/28/205, peacefully. The dementia took it's full course and not the HF. He blew through Stage 3 to Stage 7 in 8…
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Agitation
My DH has recently had episodes of being delusional and gets agitated because he’s so confused. Does anyone know if there are medications that are good for occasional use in this situation. How about THC gummies or other varieties? Any input is appreciated.