-
Stage 6 help
hello Having a bad day today. Everyday is a roller coaster. My 56yo DH has FTD, and within the past week I have now had to put him on Anxiety meds. He is obsessed with dying and now I can no longer leave him alone because he thinks he will die without me here. I have looked into MC, but the problem is, he’s so aware of…
-
Medicaid or home health? Rapid decline in mom
My mom recently was diagnosed 3 weeks with Alzheimer’s and vascular dementia and is rapidly getting worse. Is this a normal part of this process? Also, I’m trying to research home health care because she is forgetting to take her meds. I’m getting different answers through Medicare for her coverage. Any suggestions? What…
-
Dream last night….
I haven’t dreamt since 2023 when I was diagnosed with aggressive cancer and had no choice but to place my husband Lonny in Memory Care so I could get treatment. He passed last August 12. Last night I dreamt that I was on a trip and was desperately trying to get back to him. I couldn’t find my luggage or find my way back to…
-
Taking Away The Credit Card
My father was recently diagnosed with Alz. He understands the situation. Always had a very argumentative relationship with my mother and there are some trust issues. Now I received this from my mom: "A few days ago, your father was listening to a medical sales pitch on the internet, he was convinced that it was a product…
-
Long time reader and now DH officially diagnosed with MCI
Not very computer savy and hope this is posted in the right place. Thank you for all the great information and ideas and expect to be a poster from now on. Am in Nevada and DH and I are elder citizens in late 70's, early 80's,
-
Need Advice
My mom has dementia and its been hard lately because I can't fix it. Like everyone else no one wants to see their loved one going through anything like this. How do you manage with everything you want to do anything for them but in reality, you can't. It can be overwhelming, stressful and of course depressing because I…
-
From Maybe to Reality 4
Family had a big birthday party for DH (ALZ). I was afraid that it would be too much for him but he had the time of his life and at age 90, he danced every dance. The only think that I noticed was when 2 of the grandsons came over to the house before the party and spent time alone with him. He was telling some of his life…
-
Trusting the "Experts"
This is my first time posting on this website. I am almost 60 years old and my 90 year old mother was recently diagnosed with dementia. She and my father live in an RCAC 2 hours away from where my sister and I live. In the past few months my mom's memory has declined and has required more care. She and my dad have been…
-
Father keeps asking where my mother is...
I'm sure this has been addressed many times previously, but I just signed up today. So I'll ask. I moved my 85-year-old parents into a personal care facility 4 months ago. My mother needed the extra care, but my father was fine even though he was in the throes of dementia. My mother passed away after 3 weeks in the…
-
PACE and LIFE in NJ, is this my only hope?
As I try to learn "what can be" for my elderly Mom who is caring for my Dad with vascular dementia….I feel I am loosing precious time. Time is focused on the worst instead of connecting with my Father. Should anything happen to my Mom, I need to have an emergency plan in place. My parents do not have a plan. Has anyone…
-
Doing enough?
My wife is 56 years old, she was diagnosed with Early On Set 2 years ago. She has progressed into early stages of moderate. The day she was diagnosed we were given basic slow down med and off we went. They said there were clinical trials we could try etc, but when I look it doesn’t seem to fit her age range etc. I feel…
-
Arguing
This was on my facebook and I thought it was so relevant for us dealing with dementia I thought I would share. Relevant for both the pwd and difficult family. Helen Mirren once said: Before you argue with someone, ask yourself, is that person even mentally mature enough to grasp the concept of a different perspective.…
-
Working?
I’m in the stage in which I recognize my own diminished cognitive skills, but don’t have a diagnosis yet. My job performance is suffering, which is very stressful. How did you navigate this phase? Which came first, your diagnosis or problems at work? Did you resign, or use long term disability? Our family relies on my…
-
Dealing with the pain from LO tell me to get out.
My mom and I have always been very close we've either lived together or next door to each for most of my life. She has been my rock and me hers my entire life. She got really sick with covid then rehab, then sick again with stomach issues in hospital for almost 3 weeks then back to rehab took much longer to get her…
-
Flood in bathroom
Last night he left sink on and the sink was already clogged, so water went everywhere and damaged downstairs unit and we are liable for the damage I just cannot live like this and don't care about him anymore But I don't want him to engage with others because he does not make sense when he talks He talks in riddles but I…
-
When Hospice?
How early is too early for hospice? My LO has been in a MCF almost a year- is physically mobile (seeks exit & agitated due to sundowning increase) - capable of feeding & toileting herself. Also very depressed, cries much of the day and won’t socialize even though capable. Medication changes haven’t helped with her…
-
Mom swings from engaged to zombie
Hello all, I’ve been caring for my 91 year old mom with Alzheimer’s for 5 years, along with my sister and a team of in-home PSWs. Over the last 8 months mom will have periods where she is zombie-like, barely awake, sleeps a lot, almost slurs her words, not interested in anything. Then within a week she is back to her…
-
Deleted
-
I’m so frustrated and scared
My DH has been doing fairly well but the last week he’s really failed. He had ear surgery and ever since has been so confused with delusion after delusion. He wet the bed last night for the first time ever and is refusing to wear depends tonight. He says he doesn’t need it. Can anybody suggest anything for tonight and also…
-
Angery Mother
I’m having major problems with my mom. Within the last four weeks if she doesn’t get her way, she will call me names not the nice ones either. I also moved in with her two years ago when she was first diagnosed with dementia she will also tell me that I need to move out. If she’s not getting her way. We have an appointment…
-
I keep trying to take control
I am trying to help but I am really trying take control of everything, and it only makes things worse I think he knows I am doing this and he gets mad and I know I should just leave him alone.
-
Need advice/support on next steps
DH is Stage 5 moving to 6. He is pretty good in the morning but gets confused and has sun downing in the afternoon/evening along with some delusions and hallucinations. He can be agitated and angry at times but that is not frequent at this time. I still work full time and had a companion with him who abruptly quit a few…
-
Questions about taking Donepezil Brand names: Aricept
Hi all, I was diagnosed with ALZ a year ago at 62. I have had several tests to rule out other possible problems. 2 Neurological Eeg test a year apart same results that show a large decline in my processing score. My symptoms, of anxiety, mood swings, balance, memory are increasing. I take mematine for memory and they…
-
Caregiving daily and trying to prepare for the future
How do you keep 1 foot in the here and now: care giving, taking care of everything and also tackle more long term things? The cavalry's not coming and I know i am in charge. I take care of DH and all the day to day stuff. I also think about the future, so much needs to be done. Deferred mainenance for over 10 yrs. DH has a…
-
Transition into memory care
I moved my mom into memory care 10 days ago. She loves when I take her for rides or out to eat. Do you think it is okay for me to take her to my house some days? Or should I let her get acclimated to her new home first? So far she hasn't fought going back but I have only taken her on rides or to stores.
-
Unable to change soiled clothing
** update** Thanks for the advice and words of encouragement. For some reason DH decided to change his clothing. He could not do it on his own. He let me help. Smelly clothing is now pre-soaking in washer. * * * * * * * * * * * * My DH with vascular dementia and Alzhiemer's hadn't showered or bathed for a few years.…
-
Determining "Stages"
Caring for my DH will be made easier if I can determine where he is in his progression. I noticed that many of the posts mention "Stage 3" or "Stage 6". I am not familiar with this staging technique. On the Alzheimer Assoc website there are three stages mentioned. Can someone help me understand the difference? Thanks for a…
-
US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
-
DW’s anger
I have noticed that my DW easily angers and directs it at me, but will turn around and be polite to others. Has anyone experienced this?
-
Psychiatric Drugs for Alzheimer's patients
My parent has stage 4 Alzheimer's. My parent is in her mid 70s and is not happy with being at memory care which she arrived at 6 months ago. She just isn't adjusting well, won't engage in activities, stays in her room a lot, talks about leaving all the time, is depressed to be at memory care and is anxious. In the past few…