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Not want to go out
What is the best way to get your Alz’s aunt to go to the doctor when she doesn’t like him and says she isn’t going but you have an appointment?
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GUIDE Program - Experiences?
Good day, I am the caregiver for someone with Alzheimer's. My LO's care provider has enrolled her in the Medicare GUIDE program, which is supposed to provide intensive case management to individuals with dementia who reside at home. Does anyone have experience with this program? Can you share what the program has done for…
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end-of-life decisions
What are the options for a dignified death if your state has not legalized medical-aid-in dying (MAID)?
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Fmla or mental health disability leave from work
has anyone taken a leave from work to help their loved one get situated into a care environment? I'm contemplating taking a leave from work to do this and it would either be fmla (partially paid by the state if I qualify) or mental health disability (paid through company disability insurance). I'm really overwhelmed trying…
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Long term Care Insurance
I’m looking for info on long term care insurance. Will I be able to purchase it for my husband if he has been diagnosed with dementia? How much does Medicare cover for in home assistance? How much does it cover if he needs to be in a memory care facility at some point? Is this kind of insurance worth the expense? Thanks…
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There is no 29th day!
Hey yall!! Life Has had it's ups and downs. I lost my loving partner (Luis) of 6 years on Novemebr 29th to EOA, he was 46. December anniversary sucked!!!! It was a Monday. Luckily I was in the position at work that keeps you the busiest so I didnt have to think about him being gone. And thanks goodness for my anti-anxiety…
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Dressing and Laundry
My DW has a very had time dressing. She will put 2 (and sometimes 3) tops/blouses/sweaters, wear pants and a dress at the same time; put her clothes inside out, and/or front and back reversed; you name it, it's all a mess. And the worst part is she will not let me help her fix it after I tell her. She wears earrings that…
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I was Angry and then tears (Venting)
Last night was terrible for me. My DW was agitated and confrontational all night. She kept me up until 1am. I was angry but I kept it to myself. In the morning, my DW was loving just like the person I married. I hate this disease! On our way to lunch today she was so affectionate. I couldn't hold back my tears because I…
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what do I do
what do expect for my wife who is 78 hears old with alzheimer's, severe RA, bed-ridden and on hospice. WHAT can I do for her, beyond my daily visits. I don't even know what or who to ask.
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Just need to talk to my friends (215)
Happy February! I'm glad January is over. Maybe February will be a better month for weather and everything else. Only six more weeks until Spring. Almost time to order caladiums. Hopefully, the daffodils are okay after the freezing weather we have had this past week.
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Mixed Dementia Care Partner - I am new here
Good morning, I just found this resource and decided to reach out with my situation. My DH has a dementia diagnosis, not confirmed via MRI or bloodwork, but neuropsychological testing revealed "likely mixed dementia, due to vascular and alzheimer's". He has an aneurysm clip that is not MRI compatible. The neurologist says…
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Changes with food behaviours
Hello community, I wanted to see if anyone had observed a similar situation: since a couple of months, my dad (FTD-Parkinson, not Alzheimer, advanced stage) is spitting most food we propose to him that are salty, including those that he used to love. We thought it might be for his teeth (as he has some issues) but if we…
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88yo mother
88yo mother in memory care after a broken hip. 88yo dad living home alone visits every dad about 7-8 hours. Mom with her dementia blames him for her circumstances and he gets angry and frustrated, blows up and storms out of the facility despite the fact we tell him constantly she cant help what she saying and talking to…
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How to handle selling the toys
Hi. I am new to all of this. My DH has been diagnosed with moderate to severe LBD. We live in the country and he has many toys. I have all the keys to the toys but it is almost a daily game of asking if he can use the John Deere to move the snow or another piece of equipment. I know I will need to sell the toys, but do I…
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A bit of humor
My DH (mid-stage AD + Parkinsonism) now often struggles to name things. The other night he was standing at the kitchen sink, when this conversation ensued: Him: Did you put the pill in the whirlpool? Me: The whirlpool? What do you mean? (Thinking). Oh, do you mean did I put the soap pod in the dishwasher? That was indeed…
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Bible Verse to Lift You Up 2/28/26
Psalm 5:3 WAITING EXPECTANTLY New Living Translation Listen to my voice in the morning, Lord. Each morning I bring my requests to you and wait expectantly. HOLY SPIRIT, please continue to help me think Your thoughts so I remain strong on the inside, so I am able to serve and glorify Jesus as a loving caregiver. In His name…
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Newly Diagnosed Physician
I am a 60 yo newly diagnosed with Alzheimer's. I am a retired Family Physician who noticed issues approximately 18 months ago and was diagnosed with MCI. I stopped practicing medicine and was given disability benefits. I am fortunate to have had that option but despite all my expertise the process of getting a definitive…
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What stage he’s at?
as far as I know hallucinations are not present, my husband will get the mail multiple times if I let him, the day we are in at present are validated. We’ve been to Labcorp, the Neurologist, and SimonMed numerous times and we were never told if this is Alzheimer’s or dementia. My husband was told he carries the Alzheimer’s…
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New Here - Spouse with Young Onset
Hi all, I'm new here. My wife was formally diagnosed at the ripe young age of 51 this past December. I, myself, am her 34 year old wife. I just wanted to come in here and say hi and kind of vent to folks who may know. These past 2 years of confusion and emotional and financial upheaval have been incredibly difficult to…
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Psych Exam for exit behavior
Our LO, likely with FTD, has been at MC for close to 3 weeks but after an initial period of apparently positive acclimation they report he has started to attempt exiting the facility more often, wanting his car, resisting redirection. They will have a psych consult via state mental health services. My questions are what…
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What is next
New member here Spouse is somewhere in 5 or moving into 6of the seven stages. What is coming next? Is it time for respite care? She just said she did not know my name or that we are married. Sleeps all the time ,moves slowly, eats little. Takes her meds if I am there to watch. Showers when I remind her but now needs help…
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Learned Something New About Alzheimer’s
My DH (57) was diagnosed exactly 2 years ago with EOAD. Progression has been slowed a bit by Leqembi but he had to stop due to ARIA. Now I’m seeing more signs of progression. One are I see it in most is his loss of words. He struggles more an more just to get out a few sentences. But a few nights ago he had a dream where…
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Struggle with my identity 🥴
I received a call from my dad gf he was transitioning a year ago, I tell her to call ambulance, something felt off. Dad is hospitalized, no longer walked, multiple infections, and weird things begin happening with his girlfriend. She blocked me, she told hospital they were married, she would talk to him like a brainwashing…
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Funeral for a friend
The husband of a dear friend died and his funeral is at the church we used to attend tomorrow. I would like to attend but would need to bring my DH who now travels in a wheelchair due to falling issues. He's in stage 6. Would this be too much?
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Night time wakefulness
I’m looking for any suggestions about how to deal with my DH’s newly developed night time waking. I know many of you have dealt with similar issues and hope you can provide some ideas. My DH is wheelchair dependent and cannot get in or out of bed independently. I have a hoyer lift and can get him into bed by myself using…
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The Cavalry Is Not Coming: 9 Year Edition
This is an updated version of The Cavalry Is Not Coming. I repost this occasionally as I have been informed that this article has helped many caregivers. This edition is mostly the same, although I have brought it up to date and revised it to make it more helpful. October 1, 2024 marked nine years since my wife’s dementia…
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For the eagle-watchers
Jackie and Shadow seem to be preparing a new nest. Here is the site of the live Webcam. Some members like to observe for a break in their routine. Livestream - Friends of Big Bear Valley https://share.google/Y8pyvVpGQPuUXhFar Here is an article about the pair. 2026 nesting season underway for Big Bear’s famed bald eagles –…
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I am new
Good morning, I"m new to everything and struggling. My husband has memory issues and has gone through a personality change. It has been hard the past 2 years and getting harder. Right now I just need a group like this or some sort of support. I love my friends but they don't really understand. He has alienated some of them…
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Lorazepam and hallucinations
My wife has a prescription for Lorazepam as needed for anxiety. She has taken it a few times and it has helped but today she was upset so the MC gave her the Lorazepam and she Had hallucinations and delusions most of the day. She was talking to people that were not there. She was happy, so that is good. She has had some…
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I really miss the wife I married
I can no longer have a meaningful conversation with my DW. I try, but she isn't all there. When she speaks, it's mostly gibberish which I simply respond in agreement or positive manner. The simple affection is almost gone. Everyday consists monitoring her and helping her with showering, hygiene and getting dressing. I miss…