Welcome to ALZConnected! You are not alone.

Hello everyone. I am new to this group and board and have decided to become, I hope, a part of your community because I have been dealing with the Parkinson’s dementia of my Life Partner (my LO = Loved One) now for several years. I’ve thought for quite a long time that I would love to be able to attend a Caregiver’s…

Hi I'm on here. My partner of 20 years has was diagnosed with early onset alzheimers 18 months ago. We went awy on a short holiday to greece last week and it was a nightmare. My partner accused me of having sex with other men in the hotel toilet.

Hi, I am looking for support on finding in home care for my dad once or twice a week and how to navigate it financially. He is not on Medicare and early onset. My parents also most likely would not qualify for free services but cannot afford most private pay places. I am trying to find something in the middle near bucks…

Generally, when I post it is not positive. For about a week my mother has been cognizant, has not been frantically looking for either "mother" or her deceased sister. When that gets too intense we have had to medicate her. She has only gotten up once or twice during the night. Is not sleeping 20 hours a day. It is almost…

Hello, My name is Mark. My mother is in Stage 4/5 (my assesment based on a Behavioral Assesment Tool from Dr. Tam Cummings). My mother lives in Texas and lives with my little sister. I live in Virginia and my other sister (middle) lives in Washington. My mother and sister have lived together for 30 yrs and very…

How do I help get my dad back in the right sleep pattern when he is sundowning. All week he is has been going to be at 10 pm, and waking up anywhere between 1230 and 430. He is not getting good sleep or quality sleep as far as that goes. He has vascular dementia along with a slew of other health issues.

A relative of the PWD is a caregiver for her husband who has dementia. PWD asks how they are doing, and I stated what's going on, and the PWD was sad, saying the caregiver must be under so much stress, not knowing how it will progress, etc. — all true things that we know of. But given anosognosia, there's no realization…

A relative has passed and my questions is, do I attempt to take my precious wife to the funeral? It will be difficult as she does not get around very well without assistance. She has become very weak over the past months. I am not sure how this will affect her and is it worth the possible stress on her? CWB

as far as I know hallucinations are not present, my husband will get the mail multiple times if I let him, the day we are in at present are validated. We’ve been to Labcorp, the Neurologist, and SimonMed numerous times and we were never told if this is Alzheimer’s or dementia. My husband was told he carries the Alzheimer’s…

I am a 68-year-old husband, and my wife is 69. Last June (2025), she was formally diagnosed with mid-stage (Stage 5) Alzheimer's disease June 25'. I am transitioning her into a specialized memory care facility shortly. When I look at the calendar and look back at how we got here, I realize the painful truth that our…

Seems to be extremely difficult to get treatment for my ALZ. Have contacted 4 treatment centers and had medical records and referals submitted as well. The first one simply said it can take some time to get in. ?? they have no idea even?? hmmmm. The second one said I could get an initial appointment next April, as in 2027!…

Of course I am taking him to the doctor and consulting them about this. Still, I have found other people's experiences helpful on this dementia journey we are on. My dad recently fell, luckily he didn't hit the floor hard, I was able to slowly lower him to the ground. His legs became noodles and he couldn't hold himself up…

My brother is 25 days post-op from a procedure to remove his prostate, which he had on August 10, 2026. Before the surgery, I spoke with him every day by phone ( we live in diff. States) and noticed his memory slipping for over a year. Since the surgery, those changes have grown more pronounced, including forgetfulness,…

My mom is a hoarder! She lives in a nursing home with a roommate she really likes. It is almost impossible to get anything out of her room. My brother gave her popcorn in a tin for Christmas-she wants to keep the tin, she even saves empty single serve chip bags (no idea what that’s about), she saves all the cups they give…

I know everyone’s journey is different and some of us are at different stages but I read a quote yesterday by Emma Willis when asked how they’re coping. She said caring for someone with dementia is like “ living in a constant state of grief “ That statement is stuck in my head now cause it resonates so profoundly. I know…

My DH has been seen by urologist. He does not have any pain in the hernia but it is large. . The doctor has said that it is not urgent for my DH to have the operation. My husband has stage 3 dementia. He was in agreement that day but has forgotten about the examination and now said he doesn't want the operation. What…

One question I forgot to ask - my sister falls more and seems to lean to the right when she walks. How do we know when she's about ready to stop walking? I called the 24/7 help line and didn't get an answer to that question; I just got some tips on what questions to ask of facilities we are considering.

My DH seems to do well until about 3 p.m. or so when he gets very depressed and confused. Sometimes he gets restless but it is the depression that worries me the most. I can't get him to do any of the things that he used to enjoy doing.

My father is extremely susceptible to scams. I frequently make adjustments to his phone to help reduce the scammer's access to him. When they get their hooks in him, he is very suspicious of everyone BUT the scammer. He gets mad that his finances are restricted, but he is unable to conceptualize numbers due to his…

Hello to everyone. My name is Mary. I am in SC with my DH who was recently diagnosed with early Alzheimer's a month ago. He is 77. He is between stages 1-2 and having a hard time accepting all of this. He has good days and bad. Today is bad and the mood swings are hard to follow. He says and does things that are angry and…

I am so grateful for this space. My mother came to live me and my husband 4 years ago. She is in the moderate stage of Alzheimer's dementia. I moved her from her beloved home and her independence in South Carolina. This is a humble business, and we've learned so much and have so much to learn. We are entering a new stage…

I don't know what to do… We looked at a house this evening that would fix a lot of issues. It is in a neighborhood with an HOA. They mow the yard and shovel the driveway and sidewalk. For me, the big deal is that the primary bedroom is on the main floor. I have osteoarthritis and it isn't going to get better. The house is…

its me who feels like a petulant child not my DH who, I really adore. I am so tired of trying constantly and doing constantly, being creative where I can and trying to find solutions,It's so very frustrating and exhausting. I am still trying to have a life for us within the boundaries of dementia. I am trying various…

I wrote on Sept. 9th about my DH breaking his left hip and wrist. At that time, the doctor did not think he was going to survive since his lungs were filling up. The hospital talked to us about hospice care and I was thinking that would be what would happen when he got back to his MC. After DH removed the cast on his wrist…

Hi All, Decided to place another post. Been going through some things. Although my DW was officially diagnosed with Alzheimers a few months ago, she's been showing signs for years. Forgetfulness, repeating herself, trouble doing things that she used to do without second thought. She has also been having communication…

Looking for other people who have very recently been diagnosed and are early in their Alz journey. In addition to first line therapies such as the new Anti Amyloid drugs, what else are people doing to stave off further cognitive decline aside from working out and challenging their brains. The two most promising things I…

My DH besides 2 types of dementia has AFIB, Diabetes with Charcot of the foot which needs diligent care to not get wounds Like making sure always has proper shoes on, using cane, etc. He also has Sleep Apnea which he stops breathing. Medication is a constant monitoring. I become quite overwhelmed with Dr visits, physical &…

Not sure if I should be asking this question on this forum, but has anyone had success with CBD or CBD/THC combo in reducing loved one w/ dementia anxiety levels? I'm from California where it's legal. Let me know-Thanks