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When to prepare
Hello I am new to this group. Glad to have found it. My father has dementia and is slowly refuses to chew and swallow. He is mostly on bed and cannot move at all. I am hoping for any type of supports and advises and when I should be prepared for the next steps in his life.
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Knowing What to do
My brother & I are working together now to support my mom who was just diagnosed officially with ALZ but has been showing symptoms now for at least 2 years. We want the best for her and to keep her safe and we both are heartbroken. Her short term memory is mostly gone. She has some word and name retrieval issues, and has…
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Keep hope alive!
Lets start with the premise that in the future, this will be gone or under control. Lets work backward. How to we get there with current technology. My premise is neuroplasticity where the brain develops new pathways to think and remember. Next premise is slowing down or eliminating plaque accumulation. Huperzine A is…
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Communitating with others
Hi All, My name is Vicki and I am new to this group. I am having difficulty communicating with "friends" who no longer want to listen to what I have to say! Also does anyone know of a support group on Zoom that has a ongoing discussion? Vicki
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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Is this Possible
My DH who has dementia and I estimate is in the beginning to mid stage 5. Just for the heck of it I asked him yesterday to draw a clock and put the hands at 3:00. He did it perfectly in less than a minute. This has really thrown me for a loop. Is this possible, has anyone had experience with this?
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Crying often, delusional
Hi, my 85 yo dad was diagnosed 2.5 years ago. Overnight, it seemed, his behaviors worsened. He cries a lot, says he wants to go home and asks where all the other people are. It’s heartbreaking to see this. I am his primary CG. My brother is flying in soon to take over for a few days. My world has shrunk so much. I want to…
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Sharing your LO's background with various providers
My mom has been in the hospital a few times (including the ER, behavioral health, ICU, regular hospital) and also has home care aides and home health nurses come by. Every time we interact with a new provider we need to repeat the same information over and over again, adding in anything new. I started collecting some of…
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Living with Alzheimer's
I was diagnosed with Alzheimer's two years ago. To others living with it - keep busy! I have joined a book club at the local library (which also offers activities), walk at the local park daily, church actiivities, senior citizen club, etc. Keep engaged! The Neurologist who diagnosed my illness was cold and offered no…
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Checking in
My sister lives 8 hours from me and is in a rather fluid period of decline. She has 24hr care as we navigate a new living situation. I have a ring camera that allows me to see her in her living room. I’m wondering if I should bother calling her when I see she is disengaged ( just sitting and staring) I have had one…
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OCD
Is OCD a symptom of dementia? My DH can spot a crumb on the floor 20 feet away and have to pick it up. We walk several miles every morning and he has to pick up every single little thing in the street and put it in a bag for trash – – yes, that includes leaves. He will vacuum up seeds that have fallen from a plant and…
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Aricept Medication
My mom with Alzheimer's was prescribed Aricept 5mg. She was doing fine on that. She is progressing more as expected, so nuero upped it to 10 mg. She said to look out for side effects like stomach issues and dizziness. She hasn't had any of those. What I did notice was it seems she has progressed even more in a short time.…
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EOAD
Are any of you folks dealing with a LO that has been diagnosed with EOAD? My DW was diagnosed October 2023 after a good year or more of jumping through the hoops with the medical/insurance industry. We finally had to go outside of our insurance to get the final diagnoses. In 2023 she was probably stage 4 but is now…
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Gamma Wave (Genus) Therapy
developed by MIT, now in clinical trials. supposed to activate brains immune cells to clear waste including amyloids. home devices (both light and sound) available although not fda approved. has anyone tried them?
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Telling children
husband newly diagnosed with MCI and subsequent MRI found atrophy in areas of brain associated with Alzheimer’s. I’m wondering when I should tell our adult children? Husband still functions independently and I think they will be surprised.
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huperzine a
supposed to increase acetylcholine in brain which is a chemical messenger impacting memory and neuroplasticity. ive read that when taken you should allow a day or two off periodically so that acetylcholine doesnt get too high. has anyone taken it? dosage (200 mg, other?),frequency? effectiveness?
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Memory Care Facility
Anyone in Massachusetts have their LO in a memory care facility and have to pay with their own finances being they do not qualify for Medicaid. I have checked into one near me and there is no way I could afford it without going bankrupt in a very short period time. Any information will be appreciated….thank you.
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ADL and respite care
Does anyone have any suggestions for in home companionship and care with ADLs for my husband.
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Dad's Almost Totally Impossible to Communicate With - Help Needed
[I've been a lurker for a few months, but I'm hoping to get some advice. Thanks, in advance.] My Dad (82) was diagnosed with early-stage Alzheimer's just under a year ago. Yes, I was floored. But it made sense, too. We'd been fighting for a few years regarding how he's [not] been communicating me in a reliable manner. For…
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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OT and Cognitive Therapy for Alz Dem
What types of things do you do in OT? My DH goes to OT and so far we have created an activity board to help him remember what he did during the day, and we are working on a Memory Book for him. What other things have you done? I want to make his iphone easier for him to use. Any other ideas that are helpful? Thanks!
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Navigating Long Distance
Good evening. I am new to this site; just searched for Alzheimer's support groups and this showed up. A little (moderately long) background: My mother is in a memory care facility in Washington state. My sister holds ALL of my mother's powers of attorney. My sister and I have been estranged for more than 15 years. For…
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Depends or other for "egg shaped" man
Hello, My LO is a pretty typical shaped older man-5'9" 215# - big belly, flat butt and thin legs. His urinary incontinence is getting worse but nothing fits right so there are leaks, esp in the back. He's tried Depends pull ups and 2 of the disposable underwear style for men. Getting to the point that they're not optional,…
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Is this anxiety or something else?
My FIL can meet most of his ADL's except for an occasional bathroom accident and dressing correctly. He can feed himself but we have to fix his plate for him and lately he seems to have issues maybe figuring out silverware, we have noticed him using his fingers more. IADL's are another story, as far as I can tell he can't…
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Cell Phone
My father is starting to experience issues with the phone and keeps calling 911, as he thinks he needs to turn his phone off after every use. I really don't want to get rid of it as we're just 2 months past taking away his car which has been a hard adjustment. Any advice?
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A Little Humor (I hope)
I thought I'd share something I shared with a grief support group in hopes you might get at least a smile from it today. All any of us can do to find a smile a day is helpful, kinda like a vitamin a day:) In a recent post I expressed my frustration with knowing how to navigate this life after and feeling confused and…
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Another new development…
The past 3-4 weeks DH has been coming into the kitchen every 10 minutes while I am making dinner looking to see if dinner is ready. It is really putting pressure on me to get dinner ready immediately! Tell him I will let him know when it’s ready but doesn’t do any good . Anyone deal with this and how do you handle it? Any…
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SLEEP DIVORCE
My husband was diagnosed with EOAD at age 64. 3 years prior he underwent a major surgery and as a result of that and me going through menopause we decided to sleep in separate rooms. He was so restless during the night that I was not able to get any sleep. I still work full time. It made such a difference in our day to day…
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DW needs more nap time
my DW gets thru the day ok if she takes a couple naps for an hour or so each. If she takes only one she is a ness by bedtime. Can’t follow directions to undress and put on pj’S, go to bathroom, etc and gets angry (really at herself, I know). I try to coax her to nap but she is getting more resistant. Any ideas to help?
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When/how to get kids involved
I know this depends on family dynamics, but when should you tell the kids about your concerns of your DH having dementia and what you are going through? They see him quite regularly and have to notice things. However they never bring anything up.