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Leqembi
My DH has had 2 infusions. He is due this week for his first follow-up MRI. With both infusions he had a mild headache following the treatment. The side effects include headache, but Aria also includes headache along with other symptoms. Should I be worried, he may have ARIA or is a headache not that unusual.
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Looking for advice -caregiver for father with Alzheimer's
Hi all! I've been struggling lately with taking care of my father who has stage 5 Alzheimer's and vascular dementia. I've been his primary caregiver for the past 3 years. It's taking a toll on me that he is not remembering me recently. We were very close prior to the Alzheimer's diagnosis. Looking for advice on how to…
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DH asking “What’s wrong with me?”
DH is under hospice care, is bed bound, and I have been told he likely won’t last the summer. He asks me, “ what’s wrong with me.?… when can we leave?…why are we here?”…. I have not said “ You are dying”. I have mentioned Alzheimer’s is a difficult disease, that it is affecting how you feel…but he doesn’t remember or know…
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A new book for caregivers early into the journey
i have just read a book on kindle which is written by a caregiver concerning her journey with her DH. Very informative and a bit of lighthearted humor at times. I enjoyed reading it and find it will be especially helpful to a new caregiver. Wish I was able to read it a few years ago. its called “Coping when your loved one…
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Looking for activities for my dad who has advanced dimension
Hi- My dad’s hobbies before Parkinson’s and procrastinating, dementia, or photography, reading, classical music., and the TV show Doc Martin At this point, Doc Martin is too confusing for him and doesn’t want to watch it. I was able to find some simple books for dementia patients which he seems to enjoy. But perhaps for an…
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Iv infusions
does anyone have any iv infusion experiences?
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Everything
So this is just a vent but probably one many can relate to. It’s not enough that you have to watch your LO whither away piece by piece and be hyper vigilant 24hrs a day with care and feeding but in my case I also get to watch the house we spent 36 years making into a beautiful home become a wreck. I’ve had to move a lot of…
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Joe is gone
Good morning. I joined this discussion board over five years ago. Y'all have been with me as I learned the importance of seeing a lawyer, as I hoped to keep Joe home, as I placed him in memory care, as I negotiated the girlfriend in MC, and throughout the journey. I appreciate the people here—those who were here when I…
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Mom is Scared dad is going to hurt her
currently mom and dad still live together. Mom has not been officially diagnosed but we are sure she has dentists or Alzheimer’s. Neurologist appt is this week. Mom is so paranoid and untrusting of dad. Through out the day she will get scared he is going to hurt her or push her down . We try to tell her he isn’t and that…
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Good points about guilt and relief in caregiving.
I think it's hard for others to appreciate the guilt that accompanies caring for someone with dementia. I liked this brief video https://youtube.com/shorts/NXeU5SFW5lM?si=gQ-WLKsFEfOWWf6o
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Long Distance Dilema
I posted the following earlier in the week in a different discussion; the person who replied suggested this would be a more appropriate discussion topic as he/she was the only reply to the original post. I hope someone maybe has suggestions or has had a similar experience and let me know how they navigated the challenge. A…
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Needing to vent - progression - sorry in advance for the length
Hi everyone, After a 2 1/2week trip to Japan with my stage 5 (I think) DH we're trying to get back into a routine. I've been reading other posts here since my return, but after finding that I've been sort of ignoring my old routine of documenting his behaviors and progression I felt coming here and venting might help reset…
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Rinse and Repeat
Every so often depression rears its ugly head, throwing me off course. While helping my husband out of bed today he tells me he’s tired of sleeping under an X-ray, it hurts his legs. I calmly tell him I will make sure it doesn’t happen again. He feels better, I feel sad. He won’t remember the conversation. Live in the…
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New diagnosis/living with angry spouse
I am new here. Wife recently diagnosed with early dementia. How does a person cope with someone’s anger without throwing up your hands and running for the hills?
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Mother's Day
Happy Mother's Day to all the mothers dealing with this horrible disease and all the caregivers who are mothers as well.. God bless
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Wants me near always
My husband only wants me with him to care for him - no relatives or caregivers. He wants me around all the time and if I leave the house, he forgets where I am and thinks I am dead, even with reminders from the relative or caregiver with him. He worries the whole time I am gone. I am his everything, which is a lot to…
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What I did today...another form of venting
Here is what I did today at the multi-thousand dollar MC where my DH lives: Woke him from a nap at 11:15 AM Brushed his hair Cleaned his smudged glasses Shaved him Took a short walk with him Requested the aide change his soiled briefs (yes, I checked them first) Walked to lunch (he didn't eat the overcooked broccoli -I…
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Use of "Buy Nothing" Facebook groups
Regarding my mom's constant requests (and demands) for things, I have found my local community Buy Nothing group has been great! Mom mom has set up a miniature "office" in her bedroom in her AL apartment. She had a large home office throughout her life and she always had it stocked (over stocked) with office stuff. So she…
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Recent Diagnosis
I am really glad a community like this exists. I recently moved back to live with my family since my mom's dementia diagnosis earlier this year. I was working and living a few states away and am a few years out of college. It has been a lot of big changes for my family recently and I am never sure I am making the right…
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Medicare question
We currently have a medicare advantage plan in CA, Kaiser Sr Advantage. We are moving to NC and need to select a different plan because Kaiser is not avail there. We like medicare advantage plans because they cover parts A, B and C but I have been following with interest the thread about tge GUIDE program through Medicare.…
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Have I missed something???
Had a Neurologist app't with my DW and all went well until he ask how her social life is going. My DW said "good' I talk with my family and neighbors often. He then said it would be even better if she would visit other social groups outside of that. I really didn't know what to make of that being my DW's conversations are…
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Angels Of Mercy...
As a recent spouse of my DW diagnosed with Alzheimer's I struggle with depression, sadness and loneliness. Once joining this site and reading posts I see that I need to shed the "woe is me" thoughts. So very many folks have situations far worse than she and I at the moment. I sincerely applaud all of you for what you are…
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Showtiming Is Fascinating
My husband (56 with EOA) recently had a 4-week hospital stay due to Ulcerative Colitis, which led to blood clots and malnutrition. He is currently at home. He can barely walk. He eats maybe 500 calories a day. He argues with me about taking his medications every single morning. He did the same thing in the hospital and had…
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Early Onset Alzheimer's at 49
Hello, I was diagnosed with early onset Alzheimer's in October at the age of 49. I've had the the test and it does show I have one variance of the APOE/4 gene and the only kind of Alzheimer's we have my family is on my mom's side and they were diagnosed in their middle to late '70s. This is just been a shock I knew…
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Long Slow Good-bye
My mother is living with dementia, and I wanted to honor her while she is still here. What started as a simple poem, about the last half of her life, somehow turned into a song. I poured my words onto paper, then worked with AI to add the music and vocals. The process was long, emotional, and honestly one of the most…
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Where Are They Now?
Do you feel that your loved one is still present for you in some way? Are you surprised at times by a sound, a smell, a touch that feels as if from your loved one? Can you feel them near you somewhere in some way? Do you talk to them (I do) and feel you get some form of a response? Do you find being at their grave peaceful…
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Young diagnosis of early onset ALZwgat to do first?
I’m a new member. My husband (48) was diagnosed Ed last week with Early AZ via blood test and pet scan. What do I do now?? I’m lost. Sad. Angry and need a path.
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CG for Spouse with ADHD & early stage AD
I am SO losing it. I have been at the end of my rope for years living with a spouse with uncompensated ADHD. His early AD complicated by ADHD is driving me over the edge. I was able to have him seen for neuro-cognitive rehab, but that was futile because he refuses to acknowledge he has a problem either with ADHD or AD. I…
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Moved to Assisted Living but thinks there is a return home
I live far from my sister. I was requested by her friend to check in on her and was surprised at her decline. We immediately put her into assisted living. When we arrived she was open to visiting assisted living facilities but I believe she thought it would be a year away or that her same friend who called would go to the…
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Resources
Just wanted to offer a couple resources I found afterwards. I wish resources for us were better promoted but if we all share what we find, it might help one person. The two I will mention are: Hilarity For Charity (commonly referred to as HFC) https://wearehfc.org/ CareYaYa https://www.careyaya.org/about I can personally…