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CPAP challenges
My mother and I are caring for my father with Alzheimer’s. We have tried everything but we cannot get my father to use his CPAP. Curious if others struggle with this and have any advice or resources to share? It’s mostly behavioral and irritability — he takes it off after being frustrated and everyone has gone to sleep.
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How long did your loved ones stay in stage 5, 6, and 7?
I’ve read Tam Cummings staging and estimated duration of each. I’m curious as to everyone’s experience here on the time your LO’s spent in each of these stages? My DH went through 3 and 4 fast (just over a year) and is a solid 5 now with a couple of cognitive areas in 6. Do most make it to 7? I can handle a lot but am…
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How many broken TVs is the limit?
DH gets peeved some nights if I ask him to brush his teeth and he gets worked up if his phone charger is not cooperating & this has led to an eruption of him throwing his phone on a few occasions. Last time he broke the TV. Time before just missed my head. He threw it tonight & I have not checked the TV for damage…just…
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Facebook?
DH is at a point where technology is meaningless. He uses neither phone nor tv remote. The computer and ipad have been ignored for a year. I have solved the problem of his phone and email messages, but what do I do with his Facebook account? He recently had a birthday and people were posting birthday wishes to him. I…
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Need advice....
I have DPOA but not guardianship of my Mom who has moderate dementia (Alzheimer's and vascular) Do I need to get guardianship to place her if she is refusing? She is currently living with me and it is getting to be too much for myself and my daughter, I am a single mom and work full time with CG's at my house with her…
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Medicare and Leqembi
Hi! Anyone out there on Leqembi and have Medicare? My wife is on Leqembi and just turned 65 and signed up for original Part A and B Medicare. We’re wondering how much Medicare pays for Leqembi? And how much is left over for the patient to pay? The first few infusions were given when she was still on my BCBS insurance. So…
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Parent away from home and away from spouse
My dad is now living with my sister in Arizona because she is able to care for him. My mother is back in their permanent home in St. Louis, Missouri. It’s difficult for them to be apart, but my sisters want to limit the communication between them because my dad gets irritated and it makes him want to go home or talk about…
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[mouth hanging open]
Just had a phone conversation with my DH’s stepmom. She asked very specifically how I was doing, and then filled me in on what she was doing. Toward the end of the call, she finally asked how my DH, her stepson, was doing, but prefaced her question with, “but just a little bit; I don’t want to be sad.” I was flummoxed. As…
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Neurologists recommendation
Any recommendations for a neurologist in North Central Florida (Jacksonville, Tampa, Orlando, Gainesville, etc) who is particularly good?
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Visiting DON'T
I went to visit my dh yesterday, as I usually do on Sundays, but this time when we got to the exit door there was traffic. I waited for the person to finish coming in and for the door to lock before I entered the code and gave my dh "last hug" as I usually do. Just then several people arrived to come in so I slipped out,…
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Pulling the trigger on memory care
I am currently contemplating placing my DW into memory care. My original plan was to care for her at home until she died. I am beginning to feel overwhelmed and my health is beginning to suffer. Of course, I have all the conflicted feelings (guilt, feeling like I am abandoning her, etc). What pushed you over the edge and…
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Let me whine.
Seriously feeling sorry for myself today. Please understand I love DH. What he's going through is worse than what I am. BUT… I'm still feeling sorry for myself. This disease goes on FOREVER. Symptoms first showed up 16+ years ago. When I was barely into my 40s (DH was about 45) and still a stay at home mom. I went back to…
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Advice request
Hi everyone - this is my first visit to this board. I seem to recognize more names here than I do on the spouse board. It's nice to see all your familiar names. I'm having a problem that all of you would be best to ask for advice. DH is getting closer to finally moving on. It could be weeks, it could be months. Maybe even…
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A toaster oven in AL
Mom asked her doctor that comes to see her at AL if she could have a toaster oven. The doctor talked with AL they decided it was fine and told her she could have one. I as DPOA was never included in the conversation. I am so mad. I know she can’t actually have a toaster oven unless I buy one for her or bring her to the…
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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Update on Mom in AL
It has now been about 2 months since she has been in AL, and 10 weeks since she broke her wrist. The bones are officially healing. She asks almost every visit when she will move back to IL. She is playing bridge once a week (kudos to the rec director who started it as an official activity - after a few weeks it whittled…
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New here
My mom was diagnosed just this year. I think she's in the early stages of Alzheimer's. But seems to be progressing unfortunately! My brother and I are the only children from my parents. My dad is the primary caretaker for my mom considering they live together. My brother lives next door and I live an hour away. My brother…
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Arguments that seem impossible to stop
Hi, alright I am new on this and taking care of my 72 year old mother. Are there any simple ways to get a person with dementia to stop arguing? Once my mother gets mad it seems impossible to get her to even attempt to think of something different. She likes to just make it seem like I have ruined her entire life and no…
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Managing Work and Caregiving
I am struggling with how to juggle both a full time job and caregiving. My DH was dignosed with Alzheimer's at 60…4 years later and I am thinking it is time to leave work and stay home full time with him as I am worried about his recent decline. Also, thinking I need to sell our home to fund his care…so much anxiety over…
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Medicare Discharge,observation status & representative status: advise & help video
[also posting in Caregivers & Parent sections] After a call with Medicare that, shall we say, didn't go as expected I researched to plan my next steps and found this video. There is a no-cost CMS Medicare service called : qio = quality improvement organization that is supplied [as of the video date 2020] by two…
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Medicare Discharge,observation status & representative status: advise & help video
[also posting in Spouse/partner & Parent sections] After a call with Medicare that, shall we say, didn't go as expected I researched to plan my next steps and found this video. There is a no-cost CMS Medicare service called : qio = quality improvement organization that is supplied [as of the video date 2020] by two…
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DPOA
I went with my mother to her follow up after starting Aricept. The neurologist confirmed an Alzheimer’s diagnosis, which I’d put together, but it wasn’t in writing on the test results I’d seen. Its in early stages and my mom is very able at this point, although I’ve noticed she does better focusing on one thing at a time…
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Methazolamide
Has anyone tried Methazolamide yet and has any experience to share?
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Introduction- looking for advice
Hello everyone - I am new to this forum and wanted to introduce myself. I have been married to my DH for 28 years and have recently become very concerned about him. I feel that he may have some form of dementia - but it has not yet been diagnosed. He blames his symptoms on stress at work, but I disagree. I feel the stress…
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My brother
I just heard from his doctor's office. The doctor doesn't believe that my brother is impaired in any way and he won't do anything to restrict his driving. He seems to think that the MMSE that he administered supercedes the more thorough neuropsychological testing that was done in August. I'm done. There isn't a blasted…
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How do I get my smelly DH to put on clean clothes?
My DH had mixed dementia, both vascular dementia and Alzheimer's. I gave up on trying to get him to bath. it has been at least a year since he showered or washed up. He used to change his clothing every few days but now he refuses. I have tried everything I can think of. He sleeps in his clothes including his socks.…
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Medicare Discharge,observation status & representative status: advise & help video
[also posting in Caregivers & Spouse/parents sections] After a call with Medicare that, shall we say, didn't go as expected I researched to plan my next steps and found this video. There is a no-cost CMS Medicare service called : qio = quality improvement organization that is supplied [as of the video date 2020] by two…
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Psych Hospitals, Confidentiality, and Need for Legal Guardianship?
Writing this in part to help others prepare and understand the situations you can end up in due to lack of preparation. Also, to ask for advice. My parent was admitted to a (very well known) psych hosp. They were transferred from another area hospital. I have been their sole caretaker for the last eight months. I took my…
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Narcissists , before & after dementia ...
I recall a number of posters mentioning that their parent , now with dementia , was cold and a narcissist even before the disease manifested . By accident I came across this interview on narcissists . Who knew how many flavors there are! It's a real ketchup factory. I found it interesting that one of the ways to deal with…
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Dad continues to be ready to move out of MC plus staffing changes
Hi Community, Dad continues to talk about moving out. The difference I see now is that he is not only packing up and talking about it like before. Now he puts his jacket on and starts carrying his things to the MC door. The time it was most escalated a staff member was able to redirect him into his room to show her the…