-
NIH funding update- the truth…
I saw a post on social media this week that there were cuts being made at the NIH. My husband died in August from Alzheimer's and I have been fighting cancer since 2017 so this worried me greatly. Also my daughter works for a major cancer hospital that receives funding for cancer research So I decided to look into it…
-
Our Last Mile
Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct. And he was thought for sure to be in…
-
What to Do When My Grandmother Brings Up Her Dead Brother
Hello all. My grandmother has undiagnosed dementia (probably stage 4 or 5). She seems almost fine in the morning, but is a major sundowner and can't hold a conversation after about 6:30 PM. Her brother died in May, but I'm not sure if she remembers. Her long-term is usually fine, but she hasn't brought it up once since the…
-
X2 now
My dad was diagnosed with Alzheimer’s the Monday after Thanksgiving in 2022. Luckily, it has been progressing very slowly. He lives with my mother and is watched by her full time. On Monday, my mom was also diagnosed with Alzheimer’s. It completely threw me for a loop and I am completely devastated. I’m their only son (I…
-
Just venting, I guess
It's been almost 9 years since we first noticed Jenny having trouble with forgetfulness. I don't guess it really matters when, "they" say to exercise the body and mind? If any of you knew or know her, you know she definitely did both. The first few years no one really noticed, maybe we didn't want to see, but it was there.…
-
New to group and majorly overwhelmed
I'm trying to care for my grandmother from about 5 hours away. Her memory is declining quickly. I'm the only family to help her. I do have an aunt that lives 20 minutes away from her but my grandmother only trusts her so much and my aunt actually makes things worse. She lives alone and are working to get her into assisted…
-
Confusing Wishes
Hello, new here. I've been reading comments on this forum for awhile which have been VERY helpful, and I finally decided it's time to get on here and start asking advice/thoughts and maybe share my experiences on others' posts if I can be helpful as well. My mom is almost 84, moved in with us from her hometown of over 40…
-
Genetic Testing
Is an order for genetic testing routine for those diagnosed with AZ?
-
Self-care (for the caregivers)
I'm helping to care for a parent (ALZ) with my sister. Mom even lives in a retirement community (still independent living) so day to day I do have my own life. It is still so hard. I went to visit for lunch today and now feel exhausted and can't refocus on work. I can't even imagine how much more difficult if I had her in…
-
Bible Verse to Lift You Up 2/15/25
BE STRONG AND COURAGEOUS! Joshua 1:9 New International Version 9 Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.” Joshua 1:9Amplified Bible, Classic Edition9 Have not I commanded you? Be strong, vigorous, and very…
-
Bible Verse to Lift You Up 2/23/25
GOD’S GRACE AND DOING GOOD Ephesians 2:8-10 New International Version 8 For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God— 9 not by works, so that no one can boast. 10 For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in…
-
Bible Verse to Lift You Up 2/23/25
GOD’S GRACE AND DOING GOOD Ephesians 2:8-10 New International Version 8 For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God— 9 not by works, so that no one can boast. 10 For we are God’s handiwork, created in Christ Jesus to do good works, which God prepared in…
-
Overwhelmed
My mom 65 is currently in the process of getting diagnosed with dementia. Her current symptoms or confusion she doesn't know who we are ( siblings or cousin) she is also paranoid and always thinks people are in the house she believes that my dad is stealing money and is cheating on her, however in the same breath doesn't…
-
Do signs work?
My MIL is in a MC facility. She constantly asks to go home, says her purse and keys have been stolen, and doesn’t know what to do about her car. She’ll even call to say she was in a car accident. Would putting signs up around her room help? Was thinking about making signs that say “You are home”, “you live here”, “you…
-
NIH Research cuts?
I saw a post on social media this week that there were cuts being made at the NIH. My husband died in August from Alzheimer's and I have been fighting cancer since 2017 so this worried me greatly. Also my daughter works for a major cancer hospital that receives funding for cancer research So I decided to look into it…
-
Brands new. 1st Post! :)
Hi. So... I've suspected my mom's been dealing with far more than grief from her husband (almost 30 years) passing away for awhile now. There's SO MUCH... Well... the "doctor" she sees is AWFUL. Not just as a doctor but as a human being in general! He is FULLY AWARE that my mother is dealing with more than schizophrenia or…
-
Our last mile
*posting in spouse/partner forum too Well forum mates - friends, there have been many near-misses and false alarms on this long journey. My beloved DH has fooled us many times, or let's say trickster dementia has. Some of you will recall I saved his life at least a couple of times, knee-jerk reaction and loving instinct.…
-
Mom is at peace now
My mom has ended her journey with dementia. She became ill last week at her memory care facility and ended up in the hospital for 5 days. They did as much as they could without going to extreme measures. Probably more than she would have wanted. They made her comfortable and she passed quickly and peacefully. I didn't post…
-
DH put on in home hospice care
The long road is heading towards the end. I am trying to stay strong, but with each passing day, the road becomes more treacherous. Last night DH fell after getting out of bed in the dark. In the process, he lost control of his bowels, in his Depends. Hospice said to call 911 for a non emergency lift assist. This is the…
-
Not eating food
Hello I am from India My grandmother has dementia she forget daily tasks but remember family members. Now she is not able to eat food Md difficulty in walking while standing she rejects to walk.She prefers to sleep only as much as. Kindly suggest me how can i make here to. Regain eating and walking activities
-
Trying to understand the crying/sobing
Every time one of her kids visits her at the memory care (every 2 days ) , she is lying on her bed crying and often sobing.. It take at least 15 minutes to console her (she does not know why she is crying ) and then everything is ok , and she is in a good mood when we leave . Is she really in a turmoil or is it the brain…
-
Haven't spoken to aunt in months with dementia
I live out of state. Aunt has dementia and incontinence. She has family who live closer. My cousin was good about giving me updates on my aunt when she wanted me to come and take over. Since I drilled that that was impossible, I rarely hear from her. I sent cousin a text asking how she was doing. She hasn't responded. Aunt…
-
Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
-
Dreaming of the future
We spend so much time caring for our demented spouses. Our lives are turned upside down and inside out, being dragged down the rabbit hole with our spouses to "dementia land". Our days look so very different with more work than we can accomplish and little time for ourselves and our needs. My husband is sleeping more these…
-
Revealing diagnosis
How and when does one begin the process of revealing the diagnosis?
-
Cooking doesn’t get much easier
Super Easy Mexican Chicken 1 can cheddar cheese soup 1 can cream of chicken soup 1 can chicken breast small or large can (I don’t see much difference) 1 can Rotel tomatoes 1 small can diced green chilis Flour tortillas About 4 oz. Mexican cheese Mix first 5 ingredients together Lightly spray PAM in 8X8 or 9X9 baking dish…
-
Journey's end
Fellow travellers on the dementia journey: for most of the last 17 years I have been a sporadic visitor here. Apologies for being out of touch so often. I have always found this place to be a great source of support on my caregiving journey and I am grateful to so many friends whose location and names I will never know.…
-
Leqembi infusions
Have your persons been doing Leqembi infusions? Has it helped? What can you tell me about these infusions.
-
Your humor for the day...
I posted a few days ago a question about men's briefs and it was suggested that I purchase male "guards" as a way to combat the beginning urinary issues….several people answered, and then, today, we had this new turn of events. I thought folks might enjoy…. Well, a chuckle for those who answered my initial question…..DH…
-
Transition to MC Planning
We have had a really tough couple of weeks leading to a MC move decision. I am looking for insights from those who have done the MC placement. I think I have a fiblet that could work for the transition - I am not well, too fatigued and I have to go in for tests and likely TCU and the medical folks arranged for him to be at…