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Trying to decide what is the best interest of my mom
Hi! I am my mom's caregiver and POA. I am an only child and I have been handling all of her needs on my own (my husband is supportive) for 4 years. Today I got a call from my uncle who suggested I move her closer to him in assisted living. He has worked at the assisted living place and it is a clean place that has nice…
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I’m new too and overwhelmed for now
Both my parents have dementia and I quit work to live with them 8 years ago. I am divorced with no children and an only child who moved from my town to theirs. My mom was hospitalized a month ago and when she came home she brought Covid. We are all vaccinated and recovered well. My mom started physical therapy this week…
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Shock of my life (x2)
Part 1: I wrote a long post earlier, chronicling our latest adventure. It reported a happy ending but really a mystery and when I went to post, it disappeared. Didn't have much more time to leave DH to his own devices so I elected not to retype it at the time. All's well that ends well, though! The short version is, he…
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two PWDs living together
Hi, I have two PWDs who have been living together with me as caregiver for a few years. It has been manageable as they have been mild to moderately demented but they complement each other thus actually make my work easier in some ways (for example, they can keep each other company so I can have more free time). However,…
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My mother is gone
She was boosted but Omicron, or perhaps quarantine, proved to be too much for her. It sent her down a spiral she couldn’t come back from. It seemed incredibly sudden despite the fact that I’ve been preparing for this, sometimes even hoping for this, for a long time. She lived with some level of Alz for at least 10 years,…
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Finding old posts
Hi everyone, I was active on this forum while caregiving for my mother with dementia. I lost her in July 2019. I am finally ready to start writing about the experience, and it would be very helpful to go through the posts that I made during that time, and the things that people said and response. I'm wondering how I can…
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A Promise
I promised my wife that our home will always be her "safe place" even as she has become more disabled. It is a promise I intend to keep. She cannot communicate other than through fear or need-based reactions, which I can address on the spot. The decision by myself and her doctor to call Hospice has been a huge relief. They…
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Forgetting everything
She’s just forgetting how to do everything. Helping her do things turns into manhandling her which irritates because she forgets what she wanted to do. If she’s trying to stand up and we help her she gets distracted and forgets she was trying to stand up. Watching her struggle hurts. She spends her day getting in and out…
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How do you know when comfort care or Hospice are appropriate?
My mom has lost a lot of ground over the last couple of months. She is now incontinent, no longer able to walk, requires assistance to stand and transfer, she can not feed herself and her food must be puréed. She only weighs 95 pounds. But she can chat up a storm at times. Not able to hold conversation but talks about…
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Ready for AL
Up to this point my father has continued to live alone despite exhibiting symptoms of the late moderate to early severe stages. We have introduced a caregiver who comes for 5 hours a day, but we are too nervous now about leaving him alone for longer periods of the day. We have also come to learn that a neighbor has been…
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New here, need caregiver advice.
My husband is 68 and has Alzheimer’s, I’m not sure what stage but he needs my support constantly now. He can’t make a phone call or turn on the TV without my help, and needs help choosing the right clothing. He struggles with words of course and at times is delusional. (He thinks he was responsible for starting the Jan 6th…
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Time for Memory Care?
Hi, My dad (78) has AD and is around stage 5-6. His symptoms may be a bit atypical, in that he is mostly non-verbal (talking mostly in short, pre-programmed phrases) but shows zero physical symptoms or personality changes. He bowled a 180 last week, but forgets basic hygeine activities and struggled to remember his…
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Mom's psychiatrist gives you all good marks!
Just wanted to share something funny from a conversation with mom's psychiatrist yesterday. We were talking about meds and I kept saying things like "the folks on the ALZ boards said..." and "I know lots of the LOs on the boards have success with..." and she said "Well, they must know what they are talking about because…
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Spiritual Help
Hello again. This isn't so much needing advice as just needing a safe space to vent with people who are in a similar situation. I am a Christian and I have always believed that everything happens for a reason and that God has a plan for everything and He works everything out for the good. It's taken awhile, but I have…
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Surgery(1)
Hello, it's been awhile since I posted anything, but just a few days ago my Grandfather with AD fell and broke his hip. he had to have surgery to fix it. I was wondering, if any of your loved ones with AD have had surgery, and did the anastesia make their AD symptoms worse?
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Repost: LEMitch/Surgery for LO with Dementia
Reposting for LSMitch who cross posted on another thread. Hello, This is my first post but I've read numerous posts and this appears to be a very helpful group. My mother has dementia and a mengionoma(sp). We have to decide if she's going to have surgery or just leave it alone. She's 80yrs old and our concern is her…
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Video landline phone
Hello! I wonder if anyone has suggestions for a video landline phone? My mom has dementia and I am trying to find a way to connect with her via video. She will answer a landline phone, but is not comfortable with a cell phone, tablet, etc. Thank you in advance for any suggestions! Rebecca
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cell phone suggestion for early stage dementia?
Hi, wondering if anyone has idea for phone option with new diagnosed early stage AD? my aunt has a hard time with the phone and I am having a hard time finding a simplified cell phone for seniors. she often puts her phone on airplane, or blocks people and often can not remember to charge the phone (but living with me now,…
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Hospice had denied my hubby three months ago but now
they Ok'd him for services. And not due to his dementia but because of his heart issues. They already had oxygen delivered in case he needs it and a "comfort" pack of meds. They said a nurse will come over once a week and can get an aide, a chaplain and social worker. They will order most of his meds now. The nurse that…
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Financial Exploitation
What do you do when you believe that your parent is a victim of exploitation?
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Just the Beginning(1)
I am new to this forum. My mom was officially diagnosed with ALZ February, 2022. She had COVID double pneumonia in December 2020 and was never the same after that. There are studies being done about the mental effect COVID may have on people outside of the quarantines and masks. My mom will be 80 in July (has a family…
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Driving Advice
Hi, I joined this group to see if I can get some ideas and other view points on helping my mom care for my dad who has Alzheimers. He is now at the point where his memory is on a 3-5 minute short term loop. In addition to this, my mom was just diagnosed with Ovarian Cancer and is seeking serious treatment. What I am…
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My grandmother - thank you
Hi all, I posted last week about my grandmother's rapid decline. A lot of posters here were very kind and replied saying this was likely the end and hospice should be called in. I deleted the thread because I was so distraught and didn't want to look at it. It turned out that the following day, the hospital suggested we…
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New here(51)
I'm new to this. I am almost 60 and working, taking care of a husband with MS and my mother with Alzheimer's. I had to make the decision to put my mother in a nursing facility about 8 months ago. It was the hardest thing I have ever had to do, besides having to preplan her funeral. I have 2 sisters who could careless so I…
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I’m scared....don’t know what to do
Hello everyone, I had a scary episode with Mom and don’t know what to do. Mom started taking Seroquel (25mg) for over a week to help her sleep throughout the night. Things were going great until Tuesday, February 15th. Around 4:30am Mom came in my room and said, it’s time to get dressed and go home. I told her I wanted to…
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Kinto app by NIH for Alz Assn
I've just read the top sticky announcement about this Kinto app they are so enthused about. While this is an interesting offering, I myself would be very leery of letting a free app of any kind learn any of my financial information. If anybody participates, please please make sure you forbid the app any permissions! I…
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Are new dentures worth the effort?
Dad lost his upper denture. Didn't want to see dentist. Should I keep trying or do others find this is a lost cause? Would love your experiences/thoughts.
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Throwing in the Towel
Hi everyone. I've been on here before, discussing my MIL with Alz and her children's inability to make any type of decision about her. They're still letting her drive and she's way into mid-stage. I have had that conversation with some of you on here about that and luckily, my SIL vehicle stopped working and she is using…
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Bible Verse to Lift You Up 2/17/22
Friends, below I share some of my writings on social media. Prayed for all of you! Veronica PRAYER FOR YOU & ME: * LORD, help me to trust you. Please don't let my fears triumph over me." * Psalm 25 Of David. "1 In you, Lord my God, I put my trust. 2 I trust in you; do not let me be put to shame, nor let my enemies triumph…
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New here ... lots of questions and concerns
Hi everyone ... I'm new to this site, which I found while looking for a support group for family members/care givers for Alzheimer's patients. My mom (78 years old) was officially diagnosed about 2 years ago and as the disease progresses and her symptoms worsen, I have more and more questions and concerns. I'm an only…