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Hospice had denied my hubby three months ago but now
they Ok'd him for services. And not due to his dementia but because of his heart issues. They already had oxygen delivered in case he needs it and a "comfort" pack of meds. They said a nurse will come over once a week and can get an aide, a chaplain and social worker. They will order most of his meds now. The nurse that…
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Financial Exploitation
What do you do when you believe that your parent is a victim of exploitation?
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Just the Beginning(1)
I am new to this forum. My mom was officially diagnosed with ALZ February, 2022. She had COVID double pneumonia in December 2020 and was never the same after that. There are studies being done about the mental effect COVID may have on people outside of the quarantines and masks. My mom will be 80 in July (has a family…
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Driving Advice
Hi, I joined this group to see if I can get some ideas and other view points on helping my mom care for my dad who has Alzheimers. He is now at the point where his memory is on a 3-5 minute short term loop. In addition to this, my mom was just diagnosed with Ovarian Cancer and is seeking serious treatment. What I am…
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My grandmother - thank you
Hi all, I posted last week about my grandmother's rapid decline. A lot of posters here were very kind and replied saying this was likely the end and hospice should be called in. I deleted the thread because I was so distraught and didn't want to look at it. It turned out that the following day, the hospital suggested we…
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New here(51)
I'm new to this. I am almost 60 and working, taking care of a husband with MS and my mother with Alzheimer's. I had to make the decision to put my mother in a nursing facility about 8 months ago. It was the hardest thing I have ever had to do, besides having to preplan her funeral. I have 2 sisters who could careless so I…
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I’m scared....don’t know what to do
Hello everyone, I had a scary episode with Mom and don’t know what to do. Mom started taking Seroquel (25mg) for over a week to help her sleep throughout the night. Things were going great until Tuesday, February 15th. Around 4:30am Mom came in my room and said, it’s time to get dressed and go home. I told her I wanted to…
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Kinto app by NIH for Alz Assn
I've just read the top sticky announcement about this Kinto app they are so enthused about. While this is an interesting offering, I myself would be very leery of letting a free app of any kind learn any of my financial information. If anybody participates, please please make sure you forbid the app any permissions! I…
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Are new dentures worth the effort?
Dad lost his upper denture. Didn't want to see dentist. Should I keep trying or do others find this is a lost cause? Would love your experiences/thoughts.
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Throwing in the Towel
Hi everyone. I've been on here before, discussing my MIL with Alz and her children's inability to make any type of decision about her. They're still letting her drive and she's way into mid-stage. I have had that conversation with some of you on here about that and luckily, my SIL vehicle stopped working and she is using…
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Bible Verse to Lift You Up 2/17/22
Friends, below I share some of my writings on social media. Prayed for all of you! Veronica PRAYER FOR YOU & ME: * LORD, help me to trust you. Please don't let my fears triumph over me." * Psalm 25 Of David. "1 In you, Lord my God, I put my trust. 2 I trust in you; do not let me be put to shame, nor let my enemies triumph…
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New here ... lots of questions and concerns
Hi everyone ... I'm new to this site, which I found while looking for a support group for family members/care givers for Alzheimer's patients. My mom (78 years old) was officially diagnosed about 2 years ago and as the disease progresses and her symptoms worsen, I have more and more questions and concerns. I'm an only…
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Feel like a one-armed caregiver, but doing my best
Good morning, Because my wife and I have limited resources, I have been managing her care for the last 3 years. We have had ups and downs, but lately, her disease is becoming more aggressive. Sue is delusional much of the time, but am thankful she is not agitated; just inquisitive about things that don't exist. More than…
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Has your relationship with your adult offspring suffered?
My 40 year old son is mad at us. He and his family were at our home for Christmas, stayed in a hotel that night, and stopped back by the next day. He stopped and visited his grandparents first. He spent most of the 30 minutes in our home making passive aggressive jokes about us being old and needing nursing homes.…
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Dirty laundry
Hi, My M-I-L lives in MC and my F-I-L lives with us (with his own medical issues). We have found out that she is not letting the staff clean her room or do her laundry. That said, we believe the staff must get in at times because she and her room appear clean. It seems she washes her underwear by hand (with hand soap)…
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Family has no clue
Our mom has been diagnosed with Alzheimer’s for about a year. I have a big family (I am one of 8 children) and only a few actually help with our mom. One of our sisters would come from out of town every other month to stay for 1-2 weeks and give the two here doing everything with mom some much needed relief-until this past…
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Daily Struggle with Sundowner's
Our LO around 4pm almost daily puts on her coat and packs a bag of clothing. She tells us she is ready to go to her original home. She mentions that our current house is a duplicate of her original one. In a calm tone, we find ourselves gently reminding her she is in a safe place to stay and won't have to worry about…
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Easing the transition to a residential memory care facility + depression
My 68 year old mother with dementia just moved into a residential memory care facility on Tuesday. She was taken there directly from the hospital, where she'd been for two weeks. The situation went from pretend everything's fine to, in the span of a few weeks: completely unmanageable, severe sundowners/nighttime psychosis…
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New Here - Difficult Decision Coming Soon
My mother wrote a notarized 'Advanced Health Care Directive' that instructs us to not replace her pacemaker/battery if she has been diagnosed with dementia and there is no chance of improvement. She watched her father and mother both experience alzheimer's and it was deeply disturbing to her. She has a year left on the…
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There's a whole lot of her missing.
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Stage 6, still talks up a storm
Hi All, up to this point I've just been a lurker, but I really appreciate all the advice and expertise everyone shares in this forum. Would love to hear your experiences with the below: My mom, approximately stage 6c of Alz, lives with my husband and I and she still talks up a storm! While she of course cannot find…
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How to Respond?(1)
Technically, my mom could still do many things around the house - but doesn't - because she doesn't think of it/remember or doesn't have a concept of time - she always says she will do it later, but later never comes - so I've just started doing most everything. I have no problem doing all of the tasks (laundry, dishes,…
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New here.(2)
Hi all: My mother was diagnosed around a year ago, but has been exhibiting symptoms of dementia for some time before that. After my father's death late last summer, mom's symptoms have accelerated. She has limited financial resources, and lived with my sister for 3 months until she began to accuse my sister and her partner…
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At a Loss - LO in AL Thinks People are Stealing from Her
Hello all, This is really long, but I am seeking feedback from those caregivers who have supported their LOs with sundowning.. My LO is in assisted living and has begun exhibiting severe sundowning issues. She insists that someone is coming into her apartment and stealing items while she sleeps. Of course, no one is…
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Hello, New here
Hello everybody, I’m so glad that I found this site. My Dad has dementia, we are not sure exactly what kind. He was first diagnosed with mild cognitive disorder. He has gotten really bad over the past year. We are definitely fortunate that my mom can be with him all the time and is his caregiver. I’m not sure what he knows…
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My Dad Passed Away This Morning
While I was as prepared as I could be, I am heartbroken. At the same time, I am so happy he passed peacefully in his sleep. The past 3 weeks have been especially difficult for him.. I'm so glad he's not suffering anymore. I am so happy I got the opportunity to take care of him. I am so happy he didn't die alone. I slept on…
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New here and looking for help(1)
Good afternoon My name is Kathy and I believe my mom has some form of dementia. She will be 84 in a couple weeks. I've noticed some things in the past year and, at the suggestion of my PCP, I contacted her doctor to see about getting her to ask the right questions in order to get my mom tested, but the doctor never…
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So overwhelmed, I feel like I am going to break.
To make a long story short, placing my dad in a facility is not an option at this time. There is no one else to care for him except me and a paid caregiver. I am so overwhelmed and stressed thinking about living another year like I have been. I have a care giver during the day when I am at work and I will be increasing the…
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Losing your wife
She's still here, but every day Alzheimer's takes away a little more. I'm the sole caregiver. She cries a lot of the time. Nothing consoles her. I'm having a hard time after three years remembering the woman I married ...
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My mother has locked me out
My mother has exhibited many signs of dementia, has very impaired hearing and vision. She has not been diagnosed with anything as she has refused to see a neurologist or similar in the last 10 years and she can pass as having capacity. She started accusing me and my daughter of being against her and eventually restricted…