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A beautiful song about Alzheimer's.
My cousin, Gary Brown, wrote a beautiful, haunting song about his experience watching as his mother, Valda Brown, declined with Alzheimer's and ultimately passed away. As I my mother lives with Alzheimer's, the song comes to my mind often. It can be found on youtube.com at this link:…
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MC for family member age 50
I am doing research for my family in Texas (I'm in Georgia) looking for inpatient memory care for my 50 year old niece in San Antonio who was diagnosed 2 years ago with early onset Alzheimer's. She has been living with her mother (my sister) since her diagnosis but she has progressed to the point that inpatient MC is going…
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How do I answer garbled questions?
My dad's dementia is getting worse. Today he's been asking me garbled question that don't make any sense, such as "What are the seeds?" or "What are the seas?" How do I answer questions like this?
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Pain from unknown causes
My DH was diagnosed VD last May. He complains of pain in several parts of his body. I've taken him to his doctor and ERs but they can find anything wrong. Marijuana seems to help. Is pain like this in anyway normal with VD?
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Anybody under the age of 30 on here??
I’ve been feeling very lonely in my journey with my dad. I think part of it is seeing all my friends my age (26) have healthy parents. No one can come close to understanding the pain I’m going through. I think being so young and losing a parent to this kind of disease is especially hard. I know losing a parent at any age…
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Mixed Dementia new diagnosis not just Alzheimer's
My son's neurologist/Alzheimer specialist has decided his many challenges are due to an unknown "mixed dementia" instead of the working diagnosis of Alzheimer's and some unknown possible psychosis. This is not often to get this diagnosis from a living patient but my son does have PET brain scans showing clearly all the…
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Cognitive impairment and memory loss diagnosis. Coping?
HHi. My dad has not been diagnosed with alz or dimentia but has been diagnosed with cog. Impairment and memory loss. He can still do many things but writing and communication are difficult sometimes. Hes has days of worry, agitation, pacing, a feeling something is off and worrying about someone taking advanyof him. I have…
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Input on How to Get Parent to Doctor for Diagnosis
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Bible Verse 3/8/22
Romans 13:8-12 Amplified Bible "Owe nothing to anyone except to love and seek the best for one another; for he who [unselfishly] loves his neighbor has fulfilled the [essence of the] law [relating to one’s fellowman]. 9 The commandments, 'You shall not commit adultery, you shall not murder, you shall not steal, you shall…
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DESTRUCTION WOMAN
hey GUYS !!! here is one i am CURIOUS ABOUT... my MOM is about MID STAGE... i feel like she is moving to a LATER STAGE... but, in general, she is in GREAT SPIRITS... likes to have FUN... we (or her and an aide!) go out to a RESTAURANT for LUNCH every day... she SUNDOWNS... she REPEATS... but, like i said... she is…
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Ward of the State?
Does anyone have knowledge/experience with making a loved one a ward of the state? Any information/facts will be greatly appreciated. I am starting this thread in an attempt to help a new member here. Thank you. Sincerely, abc123
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Please do your part of local
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Probably a Longshot for PA/NJ people
A free matinee and discussion led by a Certified Alzheimer's Group Facilitator. Free Matinee at The Newtown Theatre on March 16, 2022 (newtownyardley.com)
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Parent stuck in the middle, what can I do about placement?
My parent is 65, and I am 27 their only child. They have a diagnosis of unspecified dementia, their progression has stalled so to speak. My parent is on Medicaid, but unfortunately given their level of functionality they have not qualified for many home care hours. They mostly require prompting and supervisory care, been…
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Risperidone - doc prescribing 0.25mg - any insight
I searched the forum and found posts relating to this drug from a few years ago. Just thought I would check in with the group to see if anyone has had more recent experience with Risperidone & their LO? My father is 72 and in stage 6E. His agitation, pacing (and shadowing) is wearing on my mother (primary caregiver). Doc…
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How to get ADLO to accept home help
Hi I'm the SO of an EO women. I'm in the early phase of this journey. My first goal is to be able to have her stay in her house as long as possible. I'm with her nearly 7X24. I don't think this is healthy for either one of us. She has no insight into her condition and believes she can manage herself and her house on her…
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White House: Changes Re Quality Of Care In NHs
https://www.whitehouse.gov/briefing-room/statements-releases/2022/02/28/fact-sheet-protecting-seniors-and-people-with-disabilities-by-improving-safety-and-quality-of-care-in-the-nations-nursing-homes/?emci=d8173310-de98-ec11-a507-281878b83d8a&emdi=6a962eed-e098-ec11-a507-281878b83d8a&ceid=4164101
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The sandwich generation
I’m 39 years old and married. We have 2 girls, ages 11 and 6. My dad is 72 years old and lives with us. He is comfortable in his bedroom watching tv all day. He will fall asleep in his recliner and confuse his days and nights. He will come sit with us in the living room but only for a few minutes. I’m trying to make a…
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Acting out/Hallucinations led to an ER visit
Hello, I am new to this support group but should have joined years ago. My 85yr old dad is in mid to late stage Alzheimer's. My mom is the main caregiver but is overwhelmed and starting to make bad decisions or not do anything at all. She is very resistant to in home care to give her a break and resistant to my attempts at…
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My mother is taking my father on a cruise
My mother planned this cruise for her and my father. She said she wasn't getting any younger and she works hard. I said she deserved it and told her to send me lots of pics. She arrived yesterday on the ship and sent me a video of my father dancing to the music. At first I wasn't sure what to make of this trip; whether or…
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Standing/walking
My FIL is quickly approaching the point he cannot stand or walk without two people. Even then, DH and I are practically carrying him. I’m pretty sure he is strong enough, he just does not know how to move his feet anymore. What now? I have been getting him from the bed to a bedside chair in the mornings by myself, but that…
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Guardianship Question
I have a question for those of you who are guardians. My father’s wife recently passed and as a condition of a rather contentious coguardianship we split the joint bank account assets down the middle, to establish the guardianship account. Now that she has passed, I have a slew of late bills from her expenses living in his…
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Trust for management of assets
Good grief, this is my third post in the last three days. I am very needy lately with a thousand things to think about. When Mom's house is sold the proceeds are supposed to go towards paying for her care. And only her care. I'm in the process of getting her admitted to a facility. The problem is that my brother has POA…
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Hallucinations(22)
Both of my parents have dementia. They are still very functional though. What worries me is my mom’s recent belief that there are more than her and my dad living with them. Basically, she thinks my dad is two different people. Is this a common or typical symptom ?
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Dad has vivid sexual hallucinations causing problems
My dad has been diagnosed with Lewy body dementia and is experiencing vivid visual hallucinations where he sees my mom having sex with other men and women in her bed. We have separated bedrooms and that has helped somewhat but he still asks about sex countless times during the day and can’t understand why she won’t sleep…
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should I stop visiting LO?
Hello All, I'm the only child of my mother, who is in a SNF and was diagnosed with Alzheimer's in 2014. We have a close and loving relationship and I cared for her in-home for several years. For many years, I've been "her person" (she didn't remarry after divorcing my father, so there's no partner in the picture) and I…
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Serequol
Mom seems to be worse on it. She's getting 200 mgs a day. Either she's getting worse or my expectation is making it seem so. She won't get up to go to the bathroom even when she's soaking wet and then won't sit down on the toilet so I can change her. It takes me and my brother to get through this. I hoped this med would…
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Can't afford memory care or assisted living. What to do?
Hi all. I’m new but needing input. My dad lived with us for almost seven months. Dad was not much trouble beyond normal dementia behavior. No aggression but likes to roam/wander, trouble sleeping at times, and always asking for different people that use to be in his life - busy fellow. However, my husband could not handle…
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LTC - virtual assessment today - pitfalls to watch out for?
The LTC company set up a zoom call with a nurse from their subcontractor and we need to take the call on a cell phone in Dad's room at memory care. The MC director of nursing is irritated that they won't just accept her care plan and forego the assessment. She is tied up with a COVID outbreak in the facility. (Yes, the…
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Looking for help/advice
Hi, My MIL has moderate dementia and lives in a MC nearby. I hope that someone can offer advice and suggestions. * I may be wrong, but it seems like most people on these boards are caring for their LOs at home. Although there are many overlapping issues, I am wondering if there is a different site I should look at for…