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A bad infection
My dad has a bad infection in his lower jaw bone. He’s being transferred a couple of hours away by ambulance and I’m going to follow him there.
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Bible Verse to Lift You Up 2/7/22
Only Seeking God's Presence, Nothing More ** Psalms 42:1 NIV "As the deer pants for streams of water, so my soul pants for you, my God." * me: Let's often make plans to visit with our Lord, just so we can sit at His feet and soak in His radiant presence. Some ways we can do this are through prayer along with reading and…
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Dementia and family dynamics
Hello all! I recently found my way to the message boards and was glad to read the experiences of others. My dad was diagnosed with dementia in 2020. He is in his late 70's and I am 38 - It doesn't seem young in the grand scheme of things but I was not expecting to deal with this until later in my life. My mom passed away…
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In over my head...
Hello! I am very new to the site and new to being a caregiver. My sister is coming to visit in 2 weeks to visit several AL and MC facilities in the area. Unfortunately my mom is willing to relocate one day and the next it's an absolute "no/you're forcing me" meltdown. Is there a way to help your LO make the transition…
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Mixed dementia and hallucinations
I believe we are experiencing and new stage with hallucinations with my mother in law. She is finally sharing this with us..what do we do? Are there medications that may help or will they hinder? I have been using natural calming tablets for her anxiety and frustration but this seems to be frightening her
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Issues With My Mom’s Care Facility
My 83 yr old mom, with moderate to severe lbd has been living in a specialty care facility since early Jan. She was very adverse to it but we told her to give it a chance. It is very expensive and we are paying for it out of pocket ($18k a month!). Of course we were over promised on what type of care she would receive and…
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Hospice / ombudsman
My advice for those of you placing a LO, put them on hospice before placement! Hospice will be a second set of eyes on how well your LO is being treated. Especially if they are on Medicaid. Also, get to know your local ombudsman. Yet another set of eyes!
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Is this diagnosis and prognosis real? Should we seek a second opinion?
I've posted a few times now, the most recent being "How to respond to despair, depression, threats of suicide?" (https://www.alzconnected.org/discussion.aspx?g=posts&t=2147559727). My mom has been in the hospital for almost two weeks. The current plan to release her this Tuesday (which will be the two-week mark for her…
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Terrified(1)
I don't even know how or where to start but I've been trying to manage this alone and well I feel like I fail my mom everyday and I do . I Just can't keep up and she is the most important person in my life I'm divorced no kids 52 she has been my biggest cheerleader and the only one 8 believe that ever believed in me and…
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When LO Refuses Care Options
Hello! Our LO unfortunately says "no" when we suggest homecare services, adult daycare or MC. An attorney said our LO has the right to say "no", even with a diagnosis of moderate ALZ and LBD. We have no POA for our LO. The same attorney said our LO wouldn't be competent to understand and sign POA documents due to LBD. We…
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Help with swallowing pills?
thank you for all your wisdom and help for us dealing with Dementia and aging parents. Mum has lived with me for just over a year now, and her dementia in progressing so that I'm sad, especially when I am tired - which is now so I'm asking for help. She is having more issues with swallowing her pills, so I have a pill…
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Delusions(12)
Lots of false stories of events that never took place.
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Singing to our LO's
A member on another thread mentioned her singing Clapton and Winwood songs to her husband and it made me smile. So I decided to share my singing adventure with ya'll. Momma doesn't say much these days but she is aware of what's going on in the room, sometimes. I decided I'd sing an old hymn to her. She always sang at…
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How to stop LO from opening new accounts?
Any thoughts, ideas, suggestions or experience you have had with your LO opening accounts without your knowledge? My aunt with early dementia still drives and will go to the bank teller to withdraw cash. Some times a lot of cash, in my opinion, but I rarely carry cash anymore. One day she closed her bank account with one…
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crazy six days!
My 91 year old mom has been in a group home for almost four years. It used to be a pretty good place and then the best caregiver quit because of the toxic culture created by a few people in management. My mom really declined after they hired some very sub par people (I cannot call them caregivers because they don’t care!)…
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Incontinence(23)
I wanted to share the recent situation with my mother. For the past 3 weeks she does not get up to go to the bathroom. During the day I urge her to go but during the night she doesn't. Up until 3 weeks ago she would go at least once during the night and also change her pull-up diaper herself. Now I find her bedsheets,…
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Ted Talk on Dementia Prevention
I came across this today and thought I'd share. I count myself as one who is terrified of succumbing to the ravages of the disease that plagues my Father and I found the references to the research and lifestyle recommendations helpful: https://www.youtube.com/watch?v=f0WCb23KPEw&ab_channel=TEDxTalks
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We've hit a brick wall
It's been a while since I have posted and things are progressing. Two months ago Mom (92) was caught up in an $18 mil scam where she was to send $15,000 to the scammer who would then send her the 18 mil. She went to the bank and drew 2 checks for $7500 each and included a personal check for $15,000. In addition the scammer…
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Suction Cup Grab Bars
Has any one used the suction cup grab bars in a shower? Any results, good or bad? We have tile and I would prefer not to drill to install the regular grab bars. Something like these: https://www.amazon.com/AmeriLuck-Suction-Indicators-Bathroom-Handicap/dp/B078JJ54RC/
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How to handle forgetful times
Hello. Thank you for reading and providing some advice. My LO has started to have times that she thinks she is at work and needs a ride home. She lives in an assisted living facility currently and doesn't remember that it is her "new apartment". She does have times when she wanders so I'm trying to figure out the best way…
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Mom's aggression
Hi, I'm new here and hope you can help me. Some background: My mom was diagnosed with dementia in 2016 and in 2020 that diagnosis was further specified (upgraded?) as Alzheimer's and has progressively gotten worse to the point my Stepfather raised his hand and declared he wanted some help with mom's care. This wasn't a…
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Forthcoming Book on Aromatherapy and Alzheimer's Disease
The following book will not be available until June 7th, but I am very excited to read it. I figure if I live long enough I will catch up to the truth or the truth will catch up to me. Alzheimer's, Aromatherapy, and the Sense of Smell Essential Oils to Prevent Cognitive Loss and Restore Memory By Jean-Pierre Willem About…
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Update on Mom(12)
She’s doing well. Really well at my house. With the help of a great hospice team and a private CNA , her meds are under control. Her BM’s are once or twice a day as opposed to 3 to 4 times a day. She is happy and comfortable. She hasn’t once asked about where she is, her house back in Texas or Dad. But when Dad calls, I…
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Cleveland Area Home Care
Hi everyone. First time posting here, which I'm nervous about for some reason? Anyway, I'm looking for my dad to get some daily help at home (light cleaning, medication reminders, encouragement to take walks, etc. – nothing medical yet). Does anyone in the Cleveland/NE Ohio area have experience with agencies that they…
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Just Wondering...(1)
Ok, so my mom went to the hospital in August with Sepsis and pneumonia, no UTI. Prior to hospital she was living on her own and caring for my brother with DS. After 19 day hospital stay, mom no longer recognizes her own computer, iPad or most of her belongings. I realize from these posts that an illness can cause confusion…
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How to help LO keep diaper/pull up/underwear on
Hello, My dad has started to suffer from bowel incontinence. He won't leave any clothes on much less a pull up. He gets poop everywhere and I'm afraid his caregivers are going to quit. Is there medication to help control is urge to disrobe or at least control the incontinence?
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Trip to the ER last night
Got a call from MC late afternoon yesterday that her wrist was red and swollen so they sent her by ambulance to the ER. When I got there wrist had already been x-rayed and wasn't broken so they did some blood work and decided on a arthritic infection in the joint. That's all fine and good (script for antibiotic and we were…
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Mom's Smoking
HELP! After a month of no smoking and feeling like we have passed the hard part, mom suddenly is asking for her smokes again. She is becoming very angry at the issue. She is on O2 and has end stage COPD. On New Years day she was admitted to the hospital for severe pneumonia. That night, as her heath care proxy, I was asked…
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Taking time off work to care for LO.
This will be a series of personal questions, and I apologize. * Has anyone taken time off of work to care for a LO? * If so did you regret it? * What challenges did you and or your LO face? * Did you take advantage of family care giver programs? * Did you have issues getting back into the work force? * Did you leave the…
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How to respond to despair, depression, threats of suicide?
Hi all. First, a huge-thank you to this wonderful and supportive forum. I've posted several times now, the two most recent being "Crisis management: Emergency Response Services, Emergency Rooms, Respite Care" (https://www.alzconnected.org/discussion.aspx?g=posts&t=2147559584) and "In crisis mode with Mom; nothing has been…