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Challenges ways to deal with unwilling placement of LO.
I did briefly mention in another thread that my mother will be placed soon. Though given the nature of her behaviors my options were extremely limited, due to that. That one place that accepted my mother is dirty, unkempt, does not have a welcoming vibe, staff seems mesisreable overworked and they also appear understaffed.…
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I am a unpaid caregiver
Hello, since my mom has Alzheimer's and is in a NH. I have become my Dad's caregiver, it happened during the Pandemic. I have been told I cannot get paid to take care of my Dad who is 81 and with Glucoma because my mother is in the nursing home. Has anyone had this experience and if so, can you please explain to me if this…
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Sister’s Psychiatrist Encouraging her to move in with boyfriend 3 hrs away.
My sister, who has ALZ, lives with me and I am her primary caregiver. We recently had an appointment with her psychiatrist at the VA in which the topic of my sister moving in with her boyfriend came up. My concerns with her moving in with him include that he is 3 hours away from any of our family and he works second shift…
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How do you stay calm
looking for ideas / tricks / tips / when your LO asks the same question a thousand times in a matter of 20 mins. How do you not look your cool and stay calm?
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Gamma 40Hz light treatment
Has anyone tried this treatment? A friend of ours whose father is 92 and has dementia has seen a "dramatic" improvement in mood. So - we ordered a lamp for my father on Amazon (arrives tomorrow). I've read articles that state this 'light therapy' helps those with dementia (calms aggression, improves mood, etc). The reviews…
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OT re: Betty White
Betty White supported the Los Angeles Zoo. The zoo has created a self-guided Betty's L.A. Zoo Tour, honoring her contributions to the facility. The tour includes signs at 16 stops where guests can learn about her connection to a particular animal or location. The walking tour will be up through January 31st. The tour can…
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Anyone have their mom/dad say things that aren't there?
*My mom hasn't been diagnosed with dementia/alzheimers.* I have my mom telling me since 2020, that people were talking to her from tv. Anything on tv. And that one of the news reporter was her daughter (my supposed twin...but the woman is 10 years older than me). Everyday is the same thing. I tried telling her in the…
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Any experience around “why are you here?”
I have a Mom who I am full-time caregiver for over the last six years or so. She is now 66 and I am 38. Her condition has advanced and while I do maintain control of the situation most of the time, there are a couple situations I run into that just stump me. To be brief, months ago she believed I was an intruder living in…
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I cry and laugh
One minute Mom calls me a son of a bitch (I am her daughter btw) when I am trying to get her to do the things she may not want to. A few minutes later she will say "Thank you my sweet darling". I have to laugh sometimes. Or cry. Depends on the day.
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Bible Verse to Lift You Up 1/12/22
GOD'S FAITHFULNESS * Psalm 13:5 Amplified Bible “But I have trusted and relied on and been confident in Your lovingkindness and faithfulness; My heart shall rejoice and delight in Your salvation.” 1 Corinthians 13:4 AMP “Love endures with patience and serenity, love is kind and thoughtful…” John 13:34-35 AMP “I am giving…
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spouse very condesending
my spouse is super smart, but does not have one ounce of compassion toward my situation with ALZ . . she gets frustrated that I need to have time to focus on my conversations with out people - she even gets aggravated that I sometimes get confused, she wants immediate action on everything when she wants it - meantime for…
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Phone(3)
My MIL is still living at home (alone ). She has 2 phones, a landline and a cell. Her children usually call her on her cell, but mil often misplaces it, so they'll call the landline. She has caller id and has been good about not answering unknown calls. Recently she has started answering the landline and twice has given…
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No Unrealistic expectations but hard not to hope
Hi all My mom had a rough time through the holidays and her behaviors changed. She thought my dad ( who died 39 years ago) was not calling her and cheating on her. She was very angry and difficult to pivot She wasn’t sleeping which exacerbated things. Neuro put her on trazadone and a week later upped the duloxetine ( she…
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VA caregiver funding
NPR was talking today about a new VA program(or a change in policy) that will pay an in home caregiver(like a spouse). You must apply for it + it specifically mentioned that ALZ could be covered even though the ‘disability’ was not service related. It sounded like it could be worth looking into for LOs who need ADLs and…
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My Sister pulled my Mom from MC because of COVID
So we finally all agreed to place my mom in a brand new lovely (well as nice as MC can be) MC facility. I needed to move into her house anyway at least for a while until I can make other arrangements. I was around someone with COVID at Christmas so they asked me to stay away from my mom until she got placed so I agreed.…
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Teepa Interview
https://www.blogtalkradio.com/alzheimersspeaks https://www.blogtalkradio.com/alzheimersspeaks/2022/01/18/an-enlightening-conversation-with-two-leaders-in-dementia-care
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Guardianship Conservatorship
Hello Long story so i apologize. My brother and i were granted guardianship and conservator 18 months ago. It was dumped on me to do all the work. Bills, investments, cars, property. He doesnt go see mom. His wife (not part of g/c) signs into court account and monitors what i do, calls the drs, nurses, memory care and…
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It's time for hospice...
Hospice is coming to evaluate my LO this Wednesday. Is there anything in particular I should be aware of or any questions I should ask. I know the basics, but if you've been here before, you'd know more of the "things I wish I knew" before and after starting hospice. It was ordered by his primary care doctor so his doctor…
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LO does want to get dressed, shaved or shower
My husband has dementia. At what stage I am not positive. He had a wonderful memory and seldom made a list of things that he needed. He was a person that was always busy, always repairing things and seldom just sat unless it was quick afternoon nap and back into his hobby garage. All of his life he had enjoyed as a hobby…
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Late Stage Alzheimers and Awake all night
Hi, My father was in hospital in November since he had not eaten for a couple of days and my brother was worried. When my father returned home after 2+ weeks he was severely diminished. The hospital doctor told my brother he thought this was the end stage and that my dad would continue to go downhill. At that point I went…
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New Blood Test PrecivityAD
Hi there, I'm just curious if anyone on here has experience with this test. From what I've read it's available but not yet FDA cleared (?) but seems like a much simpler way to confirm a AD Diagnosis vs. PET and lumbar puncture. IF anyone has experience with it, would be curious to hear.
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Swallowing Problem?
My mom is 95 and has been in nursing home for 3 years, she has dementia that has progressed since the start of Covid. I think this has a lot to do with lack of stimulation from the nursing home and family visits due to Covid. I noticed that my mom was pocketing food when she was sleepy, so I asked that since her behavior…
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Neurologist suggest atorvastatin
I took my LO to the neurologist last week for a follow up and told the Dr. that my mom was more energetic, talking more and doing more activities. She has been less combative and more working to help us around the house. He understands that she is on no meds but takes vitamins and minerals and eats all natural organic…
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Don't Take For Granted
No matter who the person is in your life who has dementia, no matter how bad it gets for you as a caregiver, remember this especially at the hardest of times: Don't take for granted you can take a shower by yourself. You know what soap is You can prepare a meal You can assist your patient even if it's limited. You can care…
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Covid and Dementia and what's left?
I had a call from the nursing home. Mom is testing positive for Covid again. She has had it twice and now they think it's a 3rd time. She is vaccinated. At first we though it was just that she's still testing positive from when she had Covid in December but she's now not eating or drinking well and she sleeps most of the…
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Help! No paperwork done
My mother started showing signs of dementia in 2018. She lives alone and still does. My sister and I convinced her to have some tests done and she "passed" but they told us to come back in a year - of course that didn't happen because we couldn't convince her there were any issues. I'm learning this isn't necessarily…
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Stopped Showering and Does not Change Her Clothes.
About November, my wife stopped taking regular showers. Use to be she took a shower at least very Wednesday and Saturday. I'd adjust the water for her and she would clean herself a bit and even wash her hair sometimes. Now, when I suggest she shower she clams she took a shower or gave her self a sponge-bath in the morning.…
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the despair poem i just had to write
I feel like the boxer in the ring I took this on and did the hard thing No one helped and no one tried I did it all and so much I cried I have no regrets except this one I gave myself and dementia won Mom lives on, her body anyway But the end seems close to any day My heart is broken and I miss her so Grief and fear are…
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What is life like when LO in MC?
Good morning all, I have been following the many threads on placement of a LO. I am starting to research and have pulled together the recommendations others have posted and that in itself will be challenging evaluating the many options in our area (CT). I have also read and heard that sometimes it may entail a couple of…
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Trying to follow all the advice, but...
I am sure there will be many out there that have dealt with the same thing, and the long termers will think 'oh another post just like a million in the past'. But I'm new, I've read through a page of topics and not exactly finding answers for my particular situation. I actually don't even know what my questions are, to be…