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Daughter with early onset
Are there no others in this quiet sorrow? I am a retired nurse with long dementia care experience. It's my 58 year old daughter in this instance, and her sister and I are overseeing her care. We are not fitting any present category but wish there was more info addressing this topic, parents caring for child with dementia.…
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So angry at dead people
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Trouble with in-home care
We've been having in-home caregivers from an agency coming to help out around the house and to tend to mom since late July/early August. One thing that I've noticed is that no one sticks around for much more than a month. I know one got fired from the agency, at least one had health complications and can't work anymore,…
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Bible Verse to Lift You Up 4/15/23
TOO WONDERFUL FOR ME * Job 42:1-3 New Living Translation Job Responds to the Lord 42 Then Job replied to the Lord: 2 “I know that you can do anything, and no one can stop you. 3 You asked, ‘Who is this that questions my wisdom with such ignorance?’ It is I—and I was talking about things I knew nothing about, things far too…
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FIL has dementia, can't handle finances, but is unwilling to relinquish control
First, I'm new here, and decided that rather than doing a bunch of research I'd risk it and just go ahead and ask my question. I'm sure its a common one. My FIL has early stage Alzheimer's but he's convinced that nothing is wrong and its just normal aging. He's not aware of his deficits which can make him difficult to…
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Rate and manner of progression?
Hi all. My Dad just turned 87 and was diagnosed with Alz/VD about two months ago and has several other various health issues. He is in a good CCRC and moved from IL to AL about six weeks ago. I'm new here so I don't know if the 7 stages at alzinfo.org is a common framework, but it seems helpful to me. I think my Dad is…
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out of the house Activities
Trying to fine things for seniors to do in the Rock Hill, South Carolina area that can work with people that have Alzheimers. Any suggestions? Also needing companionship for female. Suggestions?
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Not Changing Clothes
My mother dresses herself. However, she keeps wearing the same clothes, maybe changing her shirt occasionally. When I have her shower, I put out all fresh clothing in a neat pile on the bathroom counter and ask her to give me her dirty clothing so I can do laundry when she's done. She comes out in the same clothes she had…
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Increasing the view of the discussion (since the current fonts and images appear so small)
Greetings all. Like many of you, I am having difficulty with the smaller avatars and fonts. My workaround is to increase the view of the discussion. This works when I am on my laptop. I have no idea what works on a mobile device. Once I am at the page I am interested in, I press [control] and then [+]. I usually have to…
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Looking for attorney who represents adult children with Alzheimer's parent
Hi Everyone, My mother has Alzheimer's. I now live with my parents. We have difficult family issues. My father is in denial and focuses on himself. I understand his fear. The real problem is his four sisters. They have hated my mother since they started dating. Although my father came from poverty, my mother came from a…
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Cutting edge care
https://dementiaallianceinternational.org/blog/balancing-risk-and-engagement-the-dutch-approach-to-dementia-design
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Hypochondria
Hello! My mother was diagnosed about two years ago. She has likely been struggling with it much longer but was very independent and hid it well... plus, well, the pandemic and isolation. Fast forward to today. She has had a "sore throat and aches" every day since February 2022. She wakes up and is "very sick" often…
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Finding In-Home care for spouse
Wife has ALZ. She can still dress, bath, bathroom, hold conversations, drive (that will end soon), light cooking...but her decision making is faltering. I still have to work and cannot give her the attention she needs - the guilt is overwhelming. We don't have family nearby and have limited friends. None who are…
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Understanding Alzheimer's Disease
I have been studying Alzheimer's disease for almost twenty years now. When I started in 2004, my aunt and cousin were in the late stages of the disease and my mother was in the early stages of the disease. This is an extraordinarily complicted disease, but its underlying basis is fairly simple and can be summarized in the…
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Chasing Monsters LBD documentary short
I just wanted to pass this short documentary on to you all. My mom didn't have LBD/Parkinsons but I still related to Kevin and his wife Marie and how they are experiencing Kevin's disease. If you got 18 minutes give it a go! https://www.youtube.com/watch?v=MHnLtponti4
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Wowza! Looks great!
Nice job, Alzconnected Team! The layout and design, the smoothness of the command executions - looks and feels wonderful! However, I will miss the warm and fuzzy nostalgia I had for the 90's every time I logged onto the old site. ;)
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Mom is withdrawing from her social activities
Hi Everyone, My husband, 15-year old daughter, and I moved from out of state a few months ago to live next door to Mom, because we wanted to be here for her as her memory declines. Her short-term memory is pretty bad, but prior to our move, she had still been going to her women's club activities/luncheons. It could be my…
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By QBC - Medicare DNR forms
The Medicare DNR forms also have a section on full, selective, or comfort care. The nurse told me to have their forms placed on the refrigerator - I think the AL puts them on the back of specific cabinets in the kitchen. Here are my comments and then a question: Their doctor discussed the DNR part with them, but not the…
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by Jo C. Hints Re Choosing Recliners and Lift Chairs
It is a good idea to seek input and measure before buying a chair. What we found out the hard way was that one needs to do a bit of research and measuring of our Loved One (LO); and so much also depends on what our LOs capabilities are. Since such chairs are pricey, it would be good to know whether you want to invest in a…
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Looking for honest Tax person, familiar with Alz icing on cake - Urgent
Hi Everyone, This is my first post. My mom has Alz. My dad is in some denial. I am the oldest of three children and I now live with them as an adult. We are in Milwaukee. My parents grew up poor, tight circles of friends. The same friend has been doing their taxes for 40 years. She had a health scare last week. My parents…
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Treatment for Mom's Depression?
Hello, My Mom was diagnosed with moderate dementia about two years ago. She was doing OK. In December, she fell and broke her hip. She had surgery, survived and went into a skilled nursing facility for rehab. She is 96. She was doing ok, but apparently, she was crying a lot when I wasn't visiting. The nurse practitioner…
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Neuro Psych Visit
Hi everyone and Happy Easter, if you celebrate. My last post (which was also my first) was regarding vascular dementia following a bleeding stroke and brain surgery. Although he has not be officially diagnosed, my ex-partner manifests many symptoms of dementia. Took him to neuro psych on Friday; 2 hour testing session is…
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Reposting new discussion for amylmaris (April 10)
the following was posted on an old thread from 2021: Oh goodness. I’m not alone. My mom 91 has been living in ‘not reality’ for a while now but as soon as we put her in a care facility she went down fast. I’m looking for tools to have a conversation that doesn’t bring me into the crazy house with her. I need to…
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The Downward Spiral
Only my gothic gallows sense of humor is going to get me through this. The summer has seen the rapid decline in my sister, with the worst being from July to August. There was a brief plateau, and now she's heading down again. She was diagnosed with early onset Alzheimer's in Aug. 2018, but I suspect (and worked backwards),…
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Sundowners(8)
I’m fairly new to this forum. I have found comfort here knowing I’m not the only one experiencing complications and emotions with this terrible/sad condition. My husband and I were taking care of both my mom and dad since 2020. Mom passed away in September. They were married for 63 years. Now we have dad without his other…
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How to forgive others after family caregiving ends.
I know so many of us struggle with relatives and friends making the caregiver journey that much harder by their attitudes or just flat out defection. I thought this article interesting and may help some of us let go. https://www.aarp.org/caregiving/basics/info-2023/finding-forgiveness-after-caregiving-ends.html
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Family and Alzheimer’s
My mother is newly diagnosed with advanced Alzheimer’s. She has good and bad days. But her brother whom lives 5 hours away is trying to help her. He doesn’t understand her condition as he’s not with her daily as I am. My mom tells him one thing ie- needing a new driveway. So he calls someone to come give an estimate. I…
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Sam Bennett - Masters tournament golfer whose dad had Alzheimer's
Have you heard about Sam Bennett? He's 23, and is playing in the Masters Tournament this year. His dad was diagnosed with Alzheimer's at age 45, passed 2 years ago. He has a tattoo on his arm of the last thing his dad wrote, "Don't wait to do something." I guess his dad said that to him, then he asked his dad to write it…
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Being non confrontational
The Assisted Living where my mom currently resides starting changing her antidepressant medications because she was crying a lot. My brother and I were also getting a lot of phone calls. She does not have a cell phone (because she kept calling 911), so she uses the phone in the library. One evening she wanted to call a…
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How do you keep bowels on schedule
I have searched the forum and found some ideas, a prune a day or a mixture of applesauce and bran. Lately I have been dealing with no bowel movement for several days and then 3 or more in one day with my mother. Any help is appreciated. I am thinking to start a prune a day with her.