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Still Haven't Given Up
For those who have been following my story...I truly apologize for running away. My last post was about me giving up. I couldn't help my mother anymore. This was the 3rd time and the governor gave his reprieve at the last second. I wanted to come back and tell you all but I felt like the boy who cried wolf. She's gone,…
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I am SO tired of AuDHD; vent
I have been struggling so hard with my disabilities as being ASD and ADHD and trying to care for my mom this past year. I keep trying to figure out how I can manage myself while also taking care of her dementia and it's just so frustrating! Any stupid search I do online for any help is for NT PARENTS OF CHILDREN and none…
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Medicare Change: Will Now Pay For Drugs Having FDA Approval
Medicare will now pay for drugs that have FDA approval including newly approved drugs for dementia. MDs will have to report patient response: https://www.aol.com/news/medicare-plans-pay-alzheimers-drugs-203839696.html J.
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Can my Dad pay me as his full time caregiver?
I will also post this on the spouse or partner forum, since we have children caregivers there too. https://www.elderlawanswers.com/can-my-dad-pay-me-to-give-him-full-time-care-19770
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hospital bed options
Hi, I'm sure some folks here have experience with this and might have some suggestions. We are preparing to move my mom from SNF to assisted living. My brother and I were hoping to get a hospital bed for her in the new facility, because mom's knees are very bad and being able to raise and lower the bed, plus having the…
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Basic question - how to respond?
Hi all. My 87yo LO has mid- to late-Alz/VD. I had a thread recently about unrealistic travel plans and on that thread I learned about anosognosia, which I think he exhibits. He of course was there when the doctor diagnosed him, and we've mentioned dementia to him in the past. But he's also very very forgetful nowadays. The…
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Personal Story By Wife - Lyme Disease Mimicking Alzheimers and Misdiagnosis
https://www.today.com/health/essay/tick-bite-husband-undiagnosed-lyme-disease-rcna31268 This also happened with famed singer, Kris Kristofferson
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Caring for family member with LOMEDS
Is anyone caring for LOMEDS patients? My family member was born with Down Syndrome . Now has Alzheimer’s. Please reach out
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Bible Verse to Lift You Up 6/6/23
CALLED TO A GODLY LIFE BIBLE REFLECTION 2 Peter 1:2-3 (NIV) “Grace and peace be yours in abundance through the knowledge of God and of Jesus our Lord. “His divine power has given us everything we need for a godly life through our knowledge of him who called us by his own glory and goodness.” What are a few ways Christians…
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Mom wandered for the first time. Ready to give up on doing it myself (NYC)
I've been doing this for about 3 years now, It's exhausting, frustrating, but it was all I knew. She's EO (66 now) I love my mother but at the risk of sounding selfish I want to start the process ASAP of getting her proper care that doesn't involve me staying by her side 24/7. Because now I don't know when she'll just up…
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Trouble getting an appointment for diagnosis
Hello community - I am not sure if anyone has advice, but I am struggling to get an appointment for my mother to get diagnosed. Her primary care doctor believes Alzheimers is the likely diagnosis but we cannot get the right care plan in place without an official diagnosis. I am also scared for her safety - she seems to be…
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Feeling guilty and anxiety
Hi all, my mom is at a nursing home a little over an hour from me and has been for a few months now. Before this she was in the hospital for 4 months awaiting placement. In the last year or so my husband and I had not really taking time off due to moms increasing paranoia, hallucinations, and all the symptoms that come…
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When is it time to think of assisted living
My husband has had alzheimers for a few years now but it seems to be taking a negative turn, both physically and mentally. Nights, for me, are the worst as he is unsure of himself going to the bathroom (which he does alot), getting back to bed, etc. We have a helper most days but I work and this lack of sleep is making me…
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Drugs to Treat Alzheimer's Disease: Comparisons
There are two basic types of treatments for Alzheimer's disease: drugs that limit the formation of oxidants, and drugs/natural products that limit the formation of oxidants, remove them, and reverse part of the damage that they do to the brain. The second types of treatments are more effective. To limit the formation of…
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Recommendation needed for medicine containers
Hey Everyone, Thank you to everyone for their amazing support and knowledge. It sucks we are all on this road together. I need a recommendation. My mom is going to start taking her Galantamine, but I'm nervous she either won't take it or take too much. It's twice a day with food. She also needs her allergy pill. She…
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Resilience in Dementia Caregiving Webinar (sent by Michael Ellenbogen)
This seminiar looks like it could be interesting and valuable: The interagency Focus on Aging: Federal Partners’ Webinar Series addresses topics of interest for older adults, including those living with Alzheimer’s disease and other types of dementia. The next webinar in the Focus on Aging: Federal Partners’ Webinar…
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SSD denied
Hello, My 52 year old husband was diagnosed w EO Dementia/Alzheimer’s in February this year. He worked at a medical center at our State Univ from 2010-2022 then started a new job and had been there 6 months. He was denied SSD because he didn’t work where he contributed to SS over the past 10 years. He DID work at other…
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Next Steps, I'm at a Loss
Hi All, My heart goes out to anyone going through this. Thank you for standing with me, supporting me. I've written a couple of these discussion posts and gotten great advice, so I wanted to reach out again. Just as a mini-bit of feedback. I now have two parents with what we think is dementia. My father no longer speaks or…
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What can this be but that?
Hi Everyone, Thank you to everyone who has offered me help and advice, it is beyond appreciated. I have posted something along the lines of this, but now that I have more information, I wanted to reach out with a specific question, instead of a large post with lots of stuff at once. My mother is sick and I know that…
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By QBC- a vent about parents
I visited my parents in the AL today. My mom was out walking with the physical therapist when I got there. Which gave my step-dad the opening to tell me he wasn’t going to his first neurologist appointment next month. Because, of course, there is nothing wrong with him. It’s just so frustrating to try to deal with all his…
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Sitting in car with mom waiting for not real person
Usually she gives up it’s been 1.5 hours I don’t know how to get her to come to my house today
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Both parents in assisted living
Hello! My family and I are new to an Alzheimer's diagnosis. In fact, we have never had a relative with any kind of dementia, other than very mild cognitive decline, and that at a very advanced age. However, my 88-year-old father was diagnosed with Alzheimer's in September of 2022, and at that time he was likely heading…
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The new normal - which makes me bone tired
After the last few months of instability, I think Peggy is settling into a new normal as she hovers at the beginning of Stage 7. She eats only finger food now, none of us let her walk by herself anymore because she's likely to fall. She doesn't eat in the dining room anymore because there are too many people in there for…
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Caregiver with a Mother that has just been diagnosed with Dementia.
Pleasure to meet everyone and I'm very happy to find this group. My mother who is 78, has recently been diagnosed with Alzheimer's with a potential pathway of Dementia. Though this did not come as somewhat shock to myself and my siblings, we primarily found out after she was evicted from her apartment, her spouse left her…
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Help needed with severe situation.
I have posted about my current situation before. That both parents have cognitive problems. My dad went out for over 1 hour and 20 minutes on Sunday on a suspended Drivers license and no wallet with id. Then my mom tried to erase the camera system by powering down the cameras on the power strip. She additionally told the…
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Head's up to you caregivers!
I often read that caregivers put up calendars so their LOs with dementia can be prepared for appointments and events. I don't have Alzheimer's Disease but my memory and cognition are very bad and I want to tell you my experience. This afternoon I received a voice-mail message. Apparently, I had missed my medical…
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Lapse in Judgement
My mom was diagnosed with focal unaware seizures presumably left temporal onset ..and I want know if lapses of judgement can be seizure related or if Alzheimers or dementia might be setting in. My mom had a major lapse of judgement today. Today despite me warning her not to, she decided to open the door for a total…
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Self pay to Medicaid
Hello all, I am looking for any help I can get. I also need direction. I have a LO (82) MIL with VD who is currently in MC. The issue is that she will be running out of her retirement funds sometime during this time next year. I don't want to sound insensitive but can't take care of her any-more. I have my own MP. My…
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Need advice(26)
My husband and I moved his mother from Arizona to Minnesota about 2.5 years ago. She had the beginnings of dementia at the time and not surprisingly it has progressed. She is currently living in an assisted living facility (not in memory care). My husband and I visit her about once a week at her residence and, when she is…
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Bible Verse to Lift You Up 5/30/23
CHRIST GIVES ME STRENGTH * TODAY’S BIBLE VERSE Philippians 4:13 New King James Version “I can do all things through Christ who strengthens me.” * MEDITATION My parents were always there for my husband, our two children and me. Yet, I struggled as their caregiver, feeling sorry for myself. I thought, “Why me? Why do I have…