-
Medicare Coverage for Leqembi via Michael Ellenbogen
https://www.cms.gov/newsroom/press-releases/statement-broader-medicare-coverage-leqembi-available-following-fda-traditional-approval
-
Some help for Air travel with a PWD
My DW is well beyond the ability to travel. But I occasionally read here about caregivers who are concerned about air travel with their PWD. So I thought I would mention a program for air travel that I just became aware of. It is called the Sunflower Lanyard Program and is available at many US airports. An announcement…
-
How do I get my mom back to MC when she won't go?
Placed my mother in MC a month ago and it's heartbreaking for her and I understand. My DW is deep into Alzheimer's as well and my mom can't stay with me. I know I should never take her out of MC but can't let her feel abandoned so I do. It's so locked down there that she can't even go outside into the locked courtyard for…
-
I am not an official caregiver
My oldest and dearest friend has some type of dementia, not officially diagnosed yet, but I would say she's somewhere mid/late stage. She's been very evasive about talking about her medical care until very recently. She lives in assisted living and has no family in the area, and she's largely estranged from her out of town…
-
Leqembi cost etc
So, at a cost of $90,000 a year for 5 months delay in Alz symptoms over 18 months of treatment(total cost for 18 months e $135,000) with possible catastrophic side effects. Am I the only one that finds this ludicrous?
-
Cataracts & Glaucoma
Hi everyone, My mother is 84 years old in stage 5/6 Alzheimer’s. Her eye doctor says she has cataracts and glaucoma in both eyes, but couldn’t give us a sense of how quickly the conditions could progress. I expressed my concerns about whether my mother could handle the surgical procedures for both conditions given her…
-
Estranged from my mother
My mother is 83 - exhibiting signs of dementia, but not diagnosed. Living alone, refusing to talk to me. I did not get guardianship and now I am just missing her living apart from her. She lives in a gated community and has refused to see me. There were never any relatives or friends to talk to. She is in Florida and there…
-
Recommend a pill crusher
I am the caregiver for my spouse who has Alzheimer’s. It’s getting harder and harder for her to swallow her pills. Can anyone please recommend a pill crusher? thank you Cheryl
-
Brain donation / autopsy
My dad is in the final stages of Alzheimer’s. My siblings and I would like to get an autopsy done to learn more about his specific diagnosis. The Brain Donor Project rejected us. Have others gotten private autopsies? We’ve been quoted 4000$ for a private autopsy which seems worth it for closure/to see if there is a higher…
-
Just need to get others ideas.
I am the sole caregiver to my husband who is only 67 and in late stage of Alzheimer’s . I so want to keep him at home, but I am so tired. He has started wetting anywhere and doing #2 standing up anywhere too. If I don't follow him everywhere he just goes. He starts pacing about 10am and it goes on for hours. Digging,…
-
Activities for Reluctant Mom
Hey all, First post here. Long story short, my mom was diagnosed with EO Alzheimer's about 4-5 years ago. At the time, she was still somewhat active and she and my dad would go for daily walks or bike rides. She maintained this activity until about a year ago. My dad cannot get her to go for a walk or do much activity at…
-
Vascular Dementia - Moaning and Mumbling
Mother was diagnosed with early vascular dementia in February 2023 and it has progressed rapidly due to her preexisting medical conditions. She was hospitalized in May due to an issue with medication and since returning home has slept 85-90% of the time and moans continuously. She is on pain management, and home hospice…
-
Preying on elders, disabled, PWDs - Beware
What can a spouse or other caregiver do if a situation like this begins unfolding? Asking for a friend. Urgent. '99% of the world has no idea': inside the shocking legal guardianship industry | Movies | The Guardian And this. Our Shocking Introduction To The Guardianship System (sistersletter.com)
-
EATING
Need to know how to get a senior to eat again. Doctor put her on Donepezil (Aricept) and she stop eating. My mother went from a size 14 now to 8. Weight is 121 from 135. I was preparing meals daily but the food was being thrown away if she didn't want to eat anything. When my mother get up in the morning she might get her…
-
Dealing with Pets
Since his diagnosis, my DH and our dog do not get along. While he has never hit the dog, he looms and yells. He is rough when picking him up. Our dog has taken to hiding under the bed whenever my DH calls for him. It doesn't help that my dog has become increasingly protective of me and barks more than he used to. I know…
-
Am I Crazy?
My sister's day care is closing in a few weeks. The owner of her day care has another location we can send her to. It's only a few miles further than the current location, but traffic is worse, making transporting her more difficult. I've arranged transportation through an organization that provides rides to the disabled…
-
shoes for swollen feet
Hi, I'm sure this has come up before but I'm trying to find some shoes for mom, whose feet are extremely swollen due to a combination of kidney disease and being in a wheelchair most of the time. I tried these shoes from Amazon, but they weren't big enough—flap going over the top of the foot wouldn't reach the velcro on…
-
Mother with early-onset dementia - advice?
This is my first time posting here, and I'm looking for some advice. My 70-year-old mother has early-onset dementia. She is extremely independent - she lives alone in an apartment, still works outside of the house, spends much of her time alone. She has had symptoms of memory loss, speech disturbance, and TIA. She's had a…
-
Family Care Guide - alz.org
I found this on the VA's website and I'm sure it's on here somewhere but I hadn't seen it before. It may help someone knew to this terrible disease. I'm sending it to family members. https://www.alz.org/media/manh/documents/Family-Care-Guide-FINAL.pdf
-
How often to visit? Counseling Advice
My mom was recently moved from independent living to memory care when her ability to walk was affected by muscle weakness, and there was a general decline. She’s in a wheelchair now. I was able to do this for her because I hold her POAs. My 4 siblings, all out of town, are fully supportive of this move. My dad asked me to…
-
Can anyone share thoughts on a mobile service for getting mani-pedis at home?
Hello - I am wondering if anyone has had experience with having a mobile service provide in-home manicures or pedicures, and if you could share tips. I am not asking for any specific name of a business, just what your experience has been, pros or cons? My mom is 85, living at home with very limited mobility. Usually, dad…
-
Experiences with simple pets like fish
My wife was diagnosed with dementia 8 years ago and it has progressed much as expected - troubles walking, talking, bathroom, etc. She enjoyed animals and various pets all her life, but we presently do not have any. I am unable to add something like a dog since I cannot spare the cycles to do the required care. I was…
-
Advice for dealing with mom's extreme anger and resistance
Hello ALZ community - I previously posted about having trouble getting my mom in for a neuropsych appointment - all hospitals in the area are a year out on appointments. The good news update: I was able to find a private facility that can do the testing; insurance won't cover most of it but I am so desperate to get some…
-
Bible Verse to Lift You Up 6/29/23
First, thank all of you who have made comments. I appreciate them. God bless everyone who comes here. Peace always, Ronnie (Veronica Kelly Badowski, VKB) CIRCLE OF LOVE Galatians 5:13 New Living Translation For you have been called to live in freedom, my brothers and sisters. But don’t use your freedom to satisfy your…
-
Clothing for Assisted Living
Hopefully, Mom will be moving into an Assisted Living facility next month. The facility has an associated Memory Care Unit, but based on their preliminary assessment she is about average for the residents in the assisted living side so she will start out there. Now I am trying to figure out how to deal with her clothes.…
-
This family caregiver doc won the same film festival...
...TWICE! The dementia family caregiver documentary, "Wine, Women, & Dementia" took home the Jury Award for Best Documentary Feature AND Audience Choice Award for Best Documentary Feature at last week's Vero Beach Wine and Film Festival! We've added the latest accolades to our Audience Choice Award from Julien Dubuque…
-
Memory Care Elopement
My father is in Memory Care, but he's physically in great shape and higher functioning. They take dad to other non-locked floors so that he can participate in activities and eat with other non memory care residents. However, last week Dad walked out the front door and down the street and wasn't willing to go back inside…
-
Does anyone understand the Health Care documents in NJ?
I am having trouble wrapping my head around what I need for mom as far as health care proxies. I have tried talking to a Elder Care Attorney, two in fact. One blew me off completely, and other wanted me to sign an $8,000 contract before further discussion. So I have become somewhat disenchanted with that route. Most of the…
-
A Phone for Grandpa
Hello everyone, my grandfather was diagnosed with early onset dementia about a year ago now, he was on some medication that was helping for a while but its not helping as much anymore. He has recently forgotten how to use the landline he's had in his home for the past 10-15 years. My dad and I have been struggling to find…
-
Another twist in accusations
Following up my initial post ..see below Mother accusing me of stealing in her bank account ( ongoing for 8 months) , using her phone number to make long distance calls etc. she say’s she has proof but there is none. My younger sister told her it was impossible and was kicked out.. She then told the older sister she wanted…