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My mom
So my mother had her Eeg test done on the 17th of March 2023. She was hospitalized for 6 days and then released... Her results were: Focal unaware Complex partial seizures Presumably left temporal lobe onset. Given all that she has gone through/goes through as some details given in previous posts..... Can this lead to…
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Donanemab
Does anyone have any more information on this new study? Said it might slow progression by attacking the plaques or eliminating them.
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The Alzheimers Association site has become just to complicated for me and I am really thinking
The Alzheimers Association site has become just to complicated for me and I am really thinking of giving up. I have asked for help from moderators and they just ignore you. That don car one bit about those with dementia and the caregivers. This change was a disaster and they are maying changes by the seat of their paints.…
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When other residents leave AL / MC does mom understand?
My mom has been in AL for over a year now. She is fully integrated in the community and has friends and is well liked by staff. Lately sadly there have been several departures. A few folks passed, and a few folks are moving to families homes or out of state. Today one of my moms best friends had to say good bye and when…
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Had a hilarious 'conversation' with Peggy today
So, I didn't go to memory care today, but I called Peggy on the phone. The first thing she asked me was if our parents had passed away. I said "yes...." waiting for the meltdown to start. Instead, she said "Oh! I didn't know!" So we talked about our parents for a few moments. Then she asked if me and my brother had also…
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Suggestions for In Home Sitter
Hello and sorry I don't get on here much....hard to find the time in my new role as a live-in caregiver with two jobs. Mom has gotten worse and we are looking for someone to sit with her during the days or nights when I can't be here. Does anyone have any suggestions as to where I begin? I live in the Memphis, TN area.…
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Need Help - Fecal Stain Removal
We had a guest stop and visit this weekend at our house. Unfortunately, this individual who shall remain unidentified, had a bout of food poisoning he/she thinks. On the way to the bathroom, they lost control of their bowels and had some liquid "matter" leak onto our carpeting. Omigosh. Needless to say, the person is…
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Meds and falls
Hello,my wife at stage 6E started taking risperidone 0.5mG five days ago at bedtime .this morning she is to shakey and to off balance to walk on her own. I am afraid she will fall.Has anyone had any ..experience with risperidone like this. I will call her Nero phyc and ask as well.The med seems to be reducing her…
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AL/Memory Care or In Home Care
As I posted previously, my sister's adult day care is closing. She can go to another one of their locations and we are going to try that. If that doesn't work, we'll need to try something else and I'm torn: In Home Care or just move into a facility? My sister is only 57 years old and has enough money to pay for about two…
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Bible Verse to Lift You Up 4/30/23
YOU AND I ARE LOVED! Romans 8:38-39 New Living Translation 38 And I am convinced that nothing can ever separate us from God’s love. Neither death nor life, neither angels nor demons, neither our fears for today nor our worries about tomorrow—not even the powers of hell can separate us from God’s love. 39 No power in the…
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Struggling with anxiety and depression as my mother just entered a Memory Care Facility
My mother recently entered a long-term care facility and is in the memory care unit. Although it is only been a week and a half since she entered I have seen a significant decline in her appearance and cognitive abilities and now she is experiencing some Daytime urinary incontinence which never happened before. I was told…
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Daughter of Dementia - memory care
New to this site. I wish I had found it sooner. My father had a stroke last year. He left the hospital without discharge under the dr’s strong recommendation that he stay. When this happened I moved him closer to me. He has lived alone for 20+ years and refused to stay with my family. Please help. My question: can prostate…
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Mom with Mid-stage AD, dad running on empty - Is this our future?
I have been on this site for a few years. I started visiting as I realized mom has AD, and dad will not admit it. They refuse to get tested. I needed to know what to do with this new dynamic, and how to care give to parents who will not acknowledge any decline. Dad handles every aspect of their lives. Mom is 85 and dad is…
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After power of attorney
I just got durable power of attorney for financial and also health surrogate and so on. What is a good next step for my situation? She is wetting the bed through her depends up to 3 times per day some days, and is increasingly struggling with the walker to use the bathroom and shower. Most of the time she wants me to be…
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stages
I know there isn't a clear cut line between stages of dementia, but how do you know if someone is in advanced as opposed to mid stage, etc?
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We lost our son today
I’m not sure that I’ve mentioned that my spouse and I have two adult sons. Today 4/24/2023, the worst happened and we lost our younger one, Nick, at the age of 31. I guess it is after midnight now, so yesterday. He lived almost 4 hours away from us and we had his boss, and then the police do a wellness check at his…
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Bible Study to Lift You Up 4/28/23
ANGRY? SAD? OVERWHELMED? WORRIED? * John 8:12 NKJV Then Jesus spoke to them again, saying, “I am the light of the world. He who follows Me shall not walk in darkness, but have the light of life.” * me: We get upset. We are only human, after all. But we Christians have God's wisdom and power living inside us. We are not…
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Parent on Hospice now has thrush
Hello All, Ma has been relatively stable even while on hospice and her dementia issues are not at the forefront as before. So, thought as her 24/7 caregivers, my spouse and I had time to exhale but then she developed oral thrush (also doesn't wear her dentures anymore). They put her on nystatin but it's hard to make her…
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Day Care Closing next week - 8 Days Notice!
I am so angry right now, I could spit. I received a phone call this morning from the SarahCare location my sister attends - They will be closing. Any participants who want to stay with SarahCare can transition to their other location about 40 minutes away (the current location is 15 minutes away). When must we transition?…
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Caregiver depression?
Hi everyone, my mom is doing relatively well. She is in AL, with a lot of support from me. I suspect if I went less then 3 times a week she would be in memory care. for now, it’s ok but it is wearing on me. I work full time. Others have it so much worse: caring for LO at home, etc. but I’m the primary caregiver and it…
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Hearing hallucinations
Mom is in mid stage, she still knows everyone but has no short term memory. Lately she is hearing sounds that no one else is hearing. She hears terrible wind (when the wind is not blowing) and today she heard a roaring engine. Is this related to dementia or something else altogether? I’m her full time care giver.
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Hearing aids advice
My mom has been in memory care for almost three months and we are still struggling to get staff to consistently assist her with her hearing aids. She has rechargeable hearing aids that need to be charged over night or they don’t work the next day. Helping her take them out and put them into the charger properly each night…
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Here we are at the rage stage, now with hallucinations
So much has happened - none of it good. Peggy had been falling a lot. This started about a month ago. After meeting with a neurologist, an outside RN, and an occupational therapist, we now have a hospital bed for her and a transport wheelchair. She doesn't use the wheelchair all the time, she only uses it when there's no…
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Little to no Energy
I've been struggling really hard with this for almost a year now but never really did anything about it beyond trying to get in-home care. Frequently on the days I watch my mom, I'm in pain and ache and it saps all my energy to do anything. Coupled with the days my depression and executive dysfunction are higher, this…
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Mom is now free.
Mom passed away early yesterday morning. She was comfortable and calm through the last moments. I want to thank you for all of the wisdom and advice through the years. I learned so much from all of you and everything I learned helped to support her and make her time living with this disease a little easier. No amount of…
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BURNOUT
i am so give out that I didn't even give yall any details..IM A LIVE IN CAREGIVER WORKING 7 DAYS A WEEK 24/7.. so its so much on me right now and its only fri...i dont get off until mon morning 😖 i work 7 days a week then off 7 days..i dont know what to do to not get stressed or anxious when shes having a dementia…
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Redirecting obsessions
My mother has been diagnosed with dementia and we have moved her from the assisted living she was in for 16 months to memory care 2 months ago. The move was difficult, we had to tell a fiblet that her AL apartment changed the rules about pets and if she wanted to keep her dog she had to move. After months of searching I…
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New Here - Hypoxic Dementia
Hello all. My mom has been dealing with some memory loss for about 9 years now. It accelerated in 2017/2018 when she developed a bad MSSA infection that went undiagnosed for 8 weeks. This was complicated by acute kidney failure from dehydration and pain meds. Her recovery was slow, and her memory never fully returned. Then…
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Alzheimer's Risk Factors: Air Pollutants
This is the most recent study on the link between air pollutants and Alzheimer's disease: Increased risk of Alzheimer's disease due to exposure to polycyclic aromatic hydrocarbons, suggests study One of the routes here is a familiar one: the overactivation of g protein-coupled receptors: "PAHs may bind and activate…
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House/Posessions Struggle
My dad is in AL and I know he can never come home. He does not and almost four months in still occasionally asks about how long he has to stay there. I tell him the fiblets if I don’t know, doctor has to decide etc. I am fine with that but do get uneasy as I fear there will be a day that he just adamantly wants to go home.…