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What to do: working mom with 1 year old baby, family member with suspected dementia
Hi everyone, I'm new to this caregiver journey and looking for a place to share my story and any advice/words appreciated. I am a working mom with 1 year old baby. Recently, my husband and I came to suspect my mother-in-law to have dementia/Alzheimer's. I only learnt about this recently, but apparently for the past year…
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Bible Verse to Lift You Up 3/30/23
DECIDE TO LOVE * Kind: Having a benevolent, courteous, friendly, generous, gentle, liberal, sympathetic, or warm-hearted nature or disposition, marked by consideration for – and service to – others. From: Wiktionary Free Dictionary 1 Corinthians 13: 4 AMP …love is kind and thoughtful… * me: When we choose to be kind and…
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Need to care for myself...What to do with MOM
Hello, I have medical procedure scheduled in April which may require multiple days in hospital and weeks of downtime/recovery (medical second option pending). Has anyone had experience with placing 90 year-old mom or what to do for planning her care during this period (i.e. 3-4 weeks). As an only child and mom's medical…
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MRI Results(3)
I am not sure if this post is appropriate for this forum but here goes. My wife has had symptoms of dementia for over 3 years but we only recently had her primary care physician consulted. The 10 minute test scored very poorly and he requested an MRI. I read the results of the MRI and discussed them with the PCP. It seems…
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Father wants to return to former residence
My now 96 yo father has dementia and is in a progressive decline. After a safety issue in his former residence in May, 2022, my siblings and I encouraged him to move into AL. He agreed. That was in October, 2022. About two weeks after we moved him in, he began to call everyone, wanting to get the movers back, to take him…
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“Breathing on his own”
Three out of the last four days my dad has called to say once that he thought he was dying and twice that he has to “breathe on his own”. I think by saying breathing on his own that means he thinks he needs to concentrate on breathing or he won’t. He has been in AL for about 2.5 months now. When he says this I have had a…
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Bible Verse to Lift You Up 3/28/23
HOW DO WE LOVE? Wiktionary Free dictionary Patient: (of a person) Willing to wait if necessary; not losing one's temper while waiting. Constant in pursuit or exertion; persevering; calmly diligent. Serenity: The state of being serene; calmness; peacefulness. A lack of agitation or disturbance. * 1 Corinthians 13:4 …Love…
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What decisions can mom still make?
Mom was diagnosed with dementia. We went to a lawyer who was very good at explaining what should be done in very clear simple terms. I was appointed durable power of attorney financial and my brother and I for medical. Since the lawyer allowed her to sign these papers my brother now believes she is still able to make all…
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MIL is now in MC doing worse
My 81-year-old MIL is now starting to hold saliva in her mouth. She also will not move unless someone get her up. What does this mean? She does not have a bowel for 7 to 8 days without otc help and wants to drink very little. She will eat and wants to eat everything her appetite goes up and down, but when she eats, she…
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I WANT TO GO HOME(3)
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Calls 10 times a day and asks if I’m visiting
I don’t want to take her phone (we’re not there yet). I just can’t take calls while at work and even when I tell her I can’t talk, she will call again and again and again until I pick up and say “I’m so sorry but I’m busy and can’t talk.” She’s in an AL/MC facility but is lonely between meals. She also asks every day if…
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Guardianship(8)
My question is whether or not we should consider Guardianship. I have DPOA and Medical DPOA. However, Dad has moved in with an old girlfriend (Geri) who used to work with him, and she's been waiting years for him to decide to be with her. She's a lonely old lady who is desperate to be with Dad. He doesn't remember how they…
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Kicked out of MC
DH is kicked out of MC for violent behavior that could have been curtailed with competent staff. What do I tell the memory care places I am looking to move him to.
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How do I enjoy this?
I so appreciate this forum. I am grateful to be able to post here and read advice from others that understand this impossible journey. My mom is late stages of Alzheimer’s. I am mourning the mom that I raised me and I’m informed in what processes so I know where this is going. I have been told often to enjoy my time with…
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Dealing with mom that may have alcoholism and dementia, symptoms of bvFTD
My mom moved in with us about 3 years ago. My aunts were telling me a year prior that she was drinking alot (she was never a big drinker), and calling them late at night screaming at them. She said some hurtful things to them. I didn't believe them and we moved her in. When she is left alone I thought she might be drinking…
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Getting someone to go to a doctor for diagnosis
I have a close friend who lives out of state who developed memory issues and hallucinations in the past five months. I contacted her husband and brother to seek assistance in getting medical attention for her. They scheduled an appointment with a neurologist for today but she wouldn't go. The people who are close to her…
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Who should be on the care team?
So a while ago now, my mother's geriatric doctor diagnosed her with "mild cognitive impairment." He diagnosed donepizil. Since mom is very healthy otherwise for her 83 years, we only see him twice a year and he's always astounded how well she's doing other than her mind. According to him, mom's dementia is "proceeding as…
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Help Getting Parent to See a Doctor
Mom has some form of dementia. Sometimes recognizing to a small degree. Won't go to a doctor. I am struggling with helping as she doesn't like accepting help so most often won't. Gets angry when I don't go along with delusions. Just struggling.
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Holiday
Easter will be the first holiday since my dad went to AL. In the past week he has been focused again on how long he will be there and things regarding his home. I have not taken him out of AL since he went in at the end of December. I am afraid because he doesn’t understand how AL works and I believe he thinks he is in…
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FYI- Time Travel
Just a heads up- many, but not all, of the threads currently on the first page of this forum are "zombies" from 2021. Many of those members are no longer participating and would not see a reply if you made one.
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Bible Verse to Lift You Up 3/26/23
Amplified Bible The Excellence of Love 13 If I speak with the tongues of men and of angels, but have not [a]love [for others growing out of God’s love for me], then I have become only a noisy gong or a clanging cymbal [just an annoying distraction]. 2 And if I have the gift of prophecy [and speak a new message from God to…
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PLEASE NOTE THAT SOMEONE HAS PULLED UP MULTIPLE OLD THREADS FROM TWO YEARS AGO, SO LOOK AT THE DATE
Had to get it all in the title. Someone has pulled up many very old Threads from 2021; these are no longer active and mostly, the person initiating the Post is no longer on the Board. Please look at the date of the original Thread and then the date of the last Post to ensure this is something you wish to spend time on…
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Need NYC Doctor Reccomendations
Good Afternoon All, I know that everyone's insurance is different, but I was hoping for at least a place to start. I need to find my mother a good neurologist. in NYC.... Her current doctor talks at her and not to her, she speeds through appointments and comes unprepared, and doesn't really seem to understand that having…
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how to travel with husband at stage 4 alzheimer's
At the neurologist appointment 3/1/23, my husband's diagnosis went from MCI to alzheimers. We were in Egypt 2/8-2/18/2023 with a packaged tour company where my husband became confused to time and place. Recently learning that I am now a caretaking wife (I just stepped down from working to retirement), how can we still…
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Experience with spinal tap to test for NPH
I am interested in hearing what other caregivers have experienced when taking their LO for testing for normal pressure hydrocephalus (NPH). I understand that fluid is removed with a spinal tap (lumbar puncture) and if NPH is the problem a temporary improvement in gait/mobility results. I am trying to think through the…
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Medication - when is it ethical to stop providing medication
The facility crushes my mother's medication and mixes it with pudding. My mother began to spit out her high blood pressure medications, along with some others. The result was she became unresponsive and the hospice nurse labeled her as imminent. We drove down to see her on her supposed death bed only to find her up…
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How to know when Hospice should get involved
My LO (mom) who is only 69 yo was diagnosed a year and a half ago with Mixed Dementi. She has vascular dementia and Alzheimer’s. Our original concern was that mom had lost significant weight and was spitting food out on the floor or in a napkin. She went from 132 to 91 pounds. She was screened for cancer and that was…
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World Premiere of Wine, Women, and Dementia
Pop the corks! Throw the confetti! We are pleased as a punch in the face to let you know the dementia family caregiver documentary Wine, Women, and Dementia has been accepted in to the Julien Dubuque International Film Festival, April 26 - 30, 2023! We don't have a schedule for our screenings yet, but if you've been…
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Is this the end?(3)
Mom has been rapidly declining over the past few weeks with two stroke-like events and increased drowsiness, declining communication ability, and increased Mobility issues. Now, today, she is barely able to stay awake. They were having to wake her between bites of food to get her to eat anything. One thing to consider is…
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2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and T
The National Institute on Aging (NIA) will host the third triennial National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers/Care Partners on March 20-22, 2023. The Summit will build on the progress of the previous Summits to review research progress, highlight innovative and…