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We lost our son today
I’m not sure that I’ve mentioned that my spouse and I have two adult sons. Today 4/24/2023, the worst happened and we lost our younger one, Nick, at the age of 31. I guess it is after midnight now, so yesterday. He lived almost 4 hours away from us and we had his boss, and then the police do a wellness check at his…
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Bible Study to Lift You Up 4/28/23
ANGRY? SAD? OVERWHELMED? WORRIED? * John 8:12 NKJV Then Jesus spoke to them again, saying, “I am the light of the world. He who follows Me shall not walk in darkness, but have the light of life.” * me: We get upset. We are only human, after all. But we Christians have God's wisdom and power living inside us. We are not…
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Parent on Hospice now has thrush
Hello All, Ma has been relatively stable even while on hospice and her dementia issues are not at the forefront as before. So, thought as her 24/7 caregivers, my spouse and I had time to exhale but then she developed oral thrush (also doesn't wear her dentures anymore). They put her on nystatin but it's hard to make her…
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Day Care Closing next week - 8 Days Notice!
I am so angry right now, I could spit. I received a phone call this morning from the SarahCare location my sister attends - They will be closing. Any participants who want to stay with SarahCare can transition to their other location about 40 minutes away (the current location is 15 minutes away). When must we transition?…
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Caregiver depression?
Hi everyone, my mom is doing relatively well. She is in AL, with a lot of support from me. I suspect if I went less then 3 times a week she would be in memory care. for now, it’s ok but it is wearing on me. I work full time. Others have it so much worse: caring for LO at home, etc. but I’m the primary caregiver and it…
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Hearing hallucinations
Mom is in mid stage, she still knows everyone but has no short term memory. Lately she is hearing sounds that no one else is hearing. She hears terrible wind (when the wind is not blowing) and today she heard a roaring engine. Is this related to dementia or something else altogether? I’m her full time care giver.
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Hearing aids advice
My mom has been in memory care for almost three months and we are still struggling to get staff to consistently assist her with her hearing aids. She has rechargeable hearing aids that need to be charged over night or they don’t work the next day. Helping her take them out and put them into the charger properly each night…
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Here we are at the rage stage, now with hallucinations
So much has happened - none of it good. Peggy had been falling a lot. This started about a month ago. After meeting with a neurologist, an outside RN, and an occupational therapist, we now have a hospital bed for her and a transport wheelchair. She doesn't use the wheelchair all the time, she only uses it when there's no…
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Little to no Energy
I've been struggling really hard with this for almost a year now but never really did anything about it beyond trying to get in-home care. Frequently on the days I watch my mom, I'm in pain and ache and it saps all my energy to do anything. Coupled with the days my depression and executive dysfunction are higher, this…
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Mom is now free.
Mom passed away early yesterday morning. She was comfortable and calm through the last moments. I want to thank you for all of the wisdom and advice through the years. I learned so much from all of you and everything I learned helped to support her and make her time living with this disease a little easier. No amount of…
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BURNOUT
i am so give out that I didn't even give yall any details..IM A LIVE IN CAREGIVER WORKING 7 DAYS A WEEK 24/7.. so its so much on me right now and its only fri...i dont get off until mon morning 😖 i work 7 days a week then off 7 days..i dont know what to do to not get stressed or anxious when shes having a dementia…
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Redirecting obsessions
My mother has been diagnosed with dementia and we have moved her from the assisted living she was in for 16 months to memory care 2 months ago. The move was difficult, we had to tell a fiblet that her AL apartment changed the rules about pets and if she wanted to keep her dog she had to move. After months of searching I…
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New Here - Hypoxic Dementia
Hello all. My mom has been dealing with some memory loss for about 9 years now. It accelerated in 2017/2018 when she developed a bad MSSA infection that went undiagnosed for 8 weeks. This was complicated by acute kidney failure from dehydration and pain meds. Her recovery was slow, and her memory never fully returned. Then…
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Alzheimer's Risk Factors: Air Pollutants
This is the most recent study on the link between air pollutants and Alzheimer's disease: Increased risk of Alzheimer's disease due to exposure to polycyclic aromatic hydrocarbons, suggests study One of the routes here is a familiar one: the overactivation of g protein-coupled receptors: "PAHs may bind and activate…
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House/Posessions Struggle
My dad is in AL and I know he can never come home. He does not and almost four months in still occasionally asks about how long he has to stay there. I tell him the fiblets if I don’t know, doctor has to decide etc. I am fine with that but do get uneasy as I fear there will be a day that he just adamantly wants to go home.…
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OT stress reliever 4 minute video
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Bible Verse to Lift You Up 4/24/23
“TRAILING CLOUDS OF GLORY” * John 1:12 New Living Translation But to all who believed him and accepted him, he gave the right to become children of God. * “Humans are more than flesh and blood. We are of the divine. We come, as Wordsworth said, ‘trailing clouds of glory…from God, who is our home.’ And when we pass from…
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Clutching throat, "it's hot it hurts"
Mom keep clutching throat and crying it's hot, it hurts. She's had 8oz of ice cold water but is in tears. "Hysterical." Happened once before but not sure how we resolved it. Any ideas? It's an hour after her bedtime. Might have uti
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New to the site
Hello everyone! I’m new to this website. My brother and I along with my Mother was informed by a Neuropsychologist last week that she has early stage of Alzheimer’s. She still lives in her home with my brother. The doctor mentioned to me about getting a POA in place which I’ve never done before. Not sure if there are other…
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New to this
My mother has late stage dementia. My dad has hidden it from the world (family/medical) my mom was sent home on hospice care now. At home. Myself and father main caregivers. Hospice comes 3 hours a week. Issues: mom gets irate and combative when we try to change her. She sleeps all day and awake at night so I get zero…
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Swallowing assessment in a MC facility
When my mother was in the hospital and in rehab, the speech and language therapist did the swallowing assessments. Currently, she is in a memory care unit where there is no RN but CNAs. She is also under hospice, who do have nurse case managers who do weekly checkups or are on call as needed. Does hospice have speech and…
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Estrogen, Hormone Replacement Therapy, and Alzheimer's Disease
Early menopause and late hormone replacement therapy may both increase the risk for Alzheimer's disease, which may at first seem counterintuitive For awhile estrogen helps reduce myo-inositol levels which can be a factor in Alzheimer's disease. High glucose levels, high blood pressure due to high sodium levels, and Down…
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any options in MA, Alzheimer's & diabetes?
Hello, I'm new, but I'm glad I found this site. I have been very stressed out and have gotten too stuck too even move forward with any plans at this point. My mother has both Alzheimer's and diabetes. She was always somewhat dissociative, so even though she was diagnosed with early Alzheimer's a couple of years ago my…
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Moving back....
I've been living across the country from my family - including my EO LO. It's been 15 yrs since I lived near them. I just recently made the decision to move closer to all of them, including my EO LO (my sister). While it has been "easier" to manage my emotions from a distance, being closer will help with the little things…
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Communicating a Move into Memory Care
Hello. I've been overseeing care (mental, physical, financial, etc.) for my 96 year old Uncle for 4 years. He has been in assisted living and now needs to move into a memory care situation. What is the best way to tell him? Do I tell him or do I arrange for his things to moved one day while we are out and bring him back to…
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Hospice Misconception
If your LO has dementia due to ALZ or other conditions, they have a terminal disease. If they do not die of another cause(heart, etc) it will kill him. Having hospice attend your LO DOES NOT MEAN death is imminent. It simply recognizes the inevitability of their condition. There are numerous patients that are on hospice…
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Need fast acting relief for agitation.
My wife, stage 6, has occasional bouts of agitation. Some are severe, some are not; some last long, some are short. I believe it’s not often enough to keep her on full-time medication. I’m hoping for something I can give her near the beginning of an episode that will calm her down. Any ideas? I thank you in advance.
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radio program about caring for PWD
I found this episode of Fresh Air on NPR to be a good listen especially for those just starting out on this journey. Dr. Sandeep Jauhar is a cardiologist in New York who also cared for his father with dementia. I'm looking forward to reading his book called "My Father's Brain." Even as a highly trained physician he had the…
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PIVOT TRANSFER
im a new in home caregiver.i have been working with this 77 year old dementia patient.im just now getting to know her and find out things about myself as well.lets just say it's been one hell of an experience.i got hired w absolutely any experience.on april 14th ill be working with an 84 year old woman who is very weak due…
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CAREGIVER STRESS
im currently working with a 77 year old lady w dementia.im an in home caregiver.i work every other week.i have only worked for one week.. and honestly do not think i can survive another..im on the verge of a nervous breakdown right now..they hired me with no experience at all..i thought it would be a breeze but have…