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What to say to loved one.
I am asking for advice. My sister and I are the only children and our dad has vascular dementia. He lived alone until it wasn't safe. We are two hours away but visited several times a week and of course called two-three times daily. We started looking for a place but it was so hard with the money situation. He got covid…
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Medications for irritability
Hello. My mom has recently become on edge. She is battling bouts of severe depression and anxiety because she is losing her independence and ability to dress herself. Lexapro has now been prescribed to her but I would like to hear of our caregiver struggles with this topic.
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Newest Numbers on Seroquel Just In
Here we go. I have posted how this drug has initially proven to be a lifesaver for me and my mom (In dealing with the "Sundowning" sitch). So, I didn't do much research into this drug I guess because it was such a horrible issue, and I was just glad to hear this might be the answer to my prayers. And it seems to be!!…
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How do you know when it's no longer safe to stay alone
My dad is in moderate stages of Alzheimers (84 y/o) and lives with my mom. As he declines, we are struggling to know how to assess if he is safe to stay home along for short periods of time. It has been fine as long as we have meals prepared for him. He is not yet wandering and spends most of his time napping or watching…
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Another bad morning, wish me luck!
Commiserate with me please. I woke up tired and sore and I've got a migraine in the works that is taking up all my energy today. I can barely focus on anything here before me and we've got a new person coming in shortly for training to be mom's in home aide. Supposedly our regular Monday person is coming and will do the…
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Bible Verse to Lift You Up 1/24/23
GOD IS ALL POWERFUL Jeremiah 32:17 NIV * “Ah, Sovereign Lord, you have made the heavens and the earth by your great power and outstretched arm. Nothing is too hard for you." * The Lord gives us what we need for today. We may think we need so much more, but He knows what we truly need. And sometimes we want something that…
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The chair story continues
As I was getting ready for bed I heard bumping noises. I come out to the dining room to discover mom has brought 2 dining table chairs back to the table, they were in the sunroom. I tell her those chairs are not safe, they have wobbly legs & loose backs(fiblet). Now she is using the word whatever, just like my dad did as…
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I need help!(1)
My LO has was diagnosed with Alzheimer’s in 2020. He has had signs of it since 2017. He is probably in stage 4 with signs of stage 5. I’m not doing well. We are together 24/7 and he always wants to be with me. It’s hard. He knows he has it but has no idea of how tough it is to be with him all the time. I try to be patient…
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Need to vent - can’t take Mom’s cussing/nasty texts
Just venting more than anything because I’m at the end of my rope today. Our mom was diagnosed with Alzheimer’s and “behavioral disturbance” about 2 years ago. She has refused to move out of her home and into a facility even though the neurologist told her it would happen when she was first diagnosed and asked that she be…
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Best overnight incontinence product?
Does anyone know of any overnight urinary incontinence briefs that work really well? And I mean REALLY well. We've been using Depends Maximum Absorbency (not sure if that's the right name, but it's one of the Depends) for awhile. They are fine in the daytime, but overnight she often leaks through and soaks her pajamas and…
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Worried about being eaten - pt 2 - a partial answer to the mystery
This has take us all some time to figure out. My original thread is here: https://www.alzconnected.org/discussion.aspx?g=posts&t=2147563686 This last week Peggy's friend D talked to Peggy on the phone (D is part of my team of three). Somehow, over the course of the phone call D got Peggy to talk about our uncle without her…
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Stunning Death in Assisted Living With False Reporting
Stunning, horrific, and penalties on facility so low as to be ridiculous: https://www.yahoo.com/news/were-told-mothers-death-peaceful-045500616.html I feel so bad for the family that has to bear this. J.
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DH wants to go all the time
My DH was diagnosed in September of 22, although I am sure he has had Alz beginning about 2014. Since he has been diagnosed and taking Mementine and Exelon patch all he wants to do is for us to go all the time. Per the neurologist the patch should give him more energy to want to work in his wood shop. She told him that his…
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Unusual twitching in sleep
I've not notice this myself but my dad has. He says that sometimes mom (pwd) will twitch a lot while sleeping and then wake up and start meandering around. I think it's not subtle or like REM sleep type twitching if my dad is bringing it up, but he can't describe it as anything other than twitching. This seems to happen…
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Worth Looking At - Significant Discount Pricing On Prescription Medications
Off comes my Peer Volunteer hat. While I am NOT personally recommending this, I wanted to share a bit of interesting news you may want to take a look at as I know from so many Postings written by Members that prescription costs have been a significant problem for many. Billionaire Mark Cuban has been a critic of the…
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Father and Brother
ALZHEIMERS is so interesting. My brother does not sleep well. I can hear him wandering around during the night. While watching him during the day, I have noticed that he falls asleep/naps while he is sitting in his couch. He falls asleep with his chin resting on his chest.This position is eerily similar to my father, who…
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The chair - rant
I am so angry right now about this dining table chair. Mom was fine with it at every meal yesterday & breakfast this morning - lunch today - that's a BIG nope. I had it at her place, turned my back to make lunch & she switched it. I think 1 issue is that the arms make her feel confined. I feel my biggest source of anger is…
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Swing and a miss on medication
Just had to share/vent: I was so close to potentially starting a conversation about medicating my mom today. We went for her wellness check with her PCP. I had written to the doctor ahead to remind her of the mild cognitive impairment diagnosis from Mom's neurologist. We're in the office with the doctor, Mom's not…
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end-stage sign of pain & discomfort?
Hi all, My mom is bed-bound with end-stage Parkinson's and late-stage Alzheimer's. She recently became bed-bound; having previously been bed & chair bound (on days where she was more alert, she would transfer into a Broda wheelchair via the Hoyer lift.) She no longer bears her own weight / walks / or transfers with assist.…
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The chair and home health care
I am in Michigan & my mother is 89. I was just told, by my mom's doctor, that a home health care agency turned my mother away. The woman said 'the office in your area probably has their limit of Medicare clients.' No she did not sound sure of herself as to this answer, said she was reading the intake unit's notes. Has…
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COLORADO—New to Long Term Care: Switch Facilities or Providing Emotional Support
Hello all, About a month ago we moved our dad into a nursing care facility in Colorado. While it has a good reputation, it just seems to be lacking in emotional support, structure and activities. My dad has resisted the limited activities they offer and sits in his room alone all the time. The staff are kind of throwing up…
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Late Stage ALZ - Taking of ALZ Meds
My Mom (82yo) has been in assisted living for 5 1/2 years. She is under hospice care due to extreme weight loss/failure to thrive. But she constantly walks and is now a high risk for falling (which she has done 15 times since October and has broken two bones). This last two months she is now waking and wandering at night…
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Fast progression?
New here. My father (88) was diagnosed with Alzheimer's last November (2022). He had very mild signs ahead of this and was functioning well given his age - no other medical conditions except mild high blood pressure. But is September he fell down and hit his head pretty hard - was in hospital for a couple days. Even after…
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It Doesn't Have To Be This Hard?
When speaking/thinking about "it doesn't have to be this hard...", I believe it's perspectives over ability. My mother has made this statement in her current state. She is speaking from 2+ decades of memories when her role for family/friend was different from my current role (caring for her). She never lived with the…
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Newbie - need help/advice
Hi everyone and thank you for letting me join you. I am going to try to keep this a short as a can, but it is quite a situation I have found myself in. My mother and father are 86/84 and were living out of state for many years. When the pandemic set in I recommended to them that they stay there (more rural area - less…
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That middle ground between AL and Memory Care
My parents are in assisted living less than a mile from me. Both have dementia (one Alzheimer's, the other TBI from a fall and surgery), and are declining slowly but steadily. They are doing well in their current facility due to a combination of being able to support each other, a kind and caring staff, and my daily…
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Rolling head on the table?
Has anyone heard of Alzheimers patient rolling their face from side to side on the table? My MIL (84) will do this all day long alternating between sweeping the floor with her feet. She doesn't want to use a broom. She also repeatedly wipes the counters off with her sleeve. Then will go back to rolling her face on the…
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Bible Verse to Lift You Up 1/19/23
FRIENDS, always feel free to write below. I enjoy and appreciate your comments. Peace always, Ronnie, (VKB, Veronica Kelly Badowski) GOD'S WAYS AND THOUGHTS ARE HIGHER Isaiah 55:9 New International Version "As the heavens are higher than the earth, so are my ways higher than your ways and my thoughts than your thoughts."…
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moving parent from Memory Care back home because $$ is gone
Has anyone done this?