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Need some advice.
Looking for some advice, my mother has dementia and I have been trying to get her services for the better part of the year. I have done eight fair hearings so fair with professional help unfortunately her total allotted care is maxed out at 22.3 hour for the week. I have been as her condition progresses I can try again to…
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I feel
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For what it is worth...
For the past 2 years of caregiving my LO -- remotely and in my home 24/7 -- I tried to establish a 'signature' for her. By that I mean, something unique to connect us -- something that hopefully would remind her that I was a friendly. A secret handshake, if you will. Signature: My LO takes a drug called Olmesartan, for…
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How to overcome the frustration?
I take care of my mom who is in the middle stage of Alzheimers, she is not violent, on the contrary, she can says THANK YOU for every single thing around 30 times. I get very frustrated when she makes the same comment (about how beautiful is the day, how early or late it is, ask where is my husband when he has been ALL DAY…
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I want to go home(2)
my wife and I are caretakers for my 80 year old brother who I think is in stage 6 alzheimers. One thing he asks me is that he wants to go home. I think that he means the house he built here in the middle of Alaska. He insists that the house we all live in is not his home. Does he really want to go home to where he grew up…
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Down Syndrome, Alzheimer's Disease and Drug Trials
Stunningly; 90% of people with Down Syndrome will develop Alzheimer's Disease, much of the onset being in their 40's and 50's. Considering the recent disagreement re drug approval, this is an informative link, and in some aspects, heartbreaking. Well worth reading the entire article:…
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The Global Council on Brain Health (GCBH) examined the impact of delirium
https://www.aarp.org/content/dam/aarp/health/brain_health/2020/03/gcbh-delirium-report-english.doi.10.26419-2Fpia.00101.001.pdf
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Question concerning POA
Hi, I'm hoping for some help? My DH was diagnosed in July with Alzheimer's. Doctor told me I needed to get a durable POA. At first I had thought of just getting forms on line, and filling out and then having them witnessed and notorized. However, I m afraid my husband cannot even communicate reasonable enough for notary to…
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Child of someone with Alzheimer’s
Hi everyone. My 80-year old mom was diagnosed with Alzheimer’s a few years ago. She is doing well mostly, just repeats herself a lot and her short term memory is going. Long/term memory is okay. My dad (also 80) is her primary caregiver but all of my siblings and I frequently visit and prepare/cook meals, clean, run…
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Need Microwave recommendations
My mother is stage 5 dementia. She is starting to struggle with the microwave, with over cooking items. I've read in articles there are microwaves specifically for the elderly and dementia patients, that feature a shut-off sensor if foreign objects are placed in the microwave or if something is overcooking. However, I…
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Activities for PWD and visual impairments
Hi, this is my first time writing. My mom is in MS dementia I think (we do not have an official diagnosis). She also has severe visual perceptual impairment (which we thought was from a car accident years ago but is consistently getting worse). We have been through a lot of therapy for this and going back is not an option…
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Got the POA (Thank You Jesus!) Now what?
I haven't been online recently, but things have been going on. Got POA signed by the grace of God and a very kind and understanding attorney. Spoke with bank, but they won't allow me to put any kind of limit on her cash withdrawals. They cancelled her debit card because she was a risk to them due to many "suspicious…
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Narcissism, Intelligence, and Alzheimers
My LO has all of these issues. After 4 months, he is being very difficult to deal with. He is extremely intelligent and very narcissistic. He still can reason a bit, and seems to know whenwe are telling him fiblets. Has anybody dealt with this insane cocktail of issues. How did you deal with this ?
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help(19)
So, does anyone have experience with Terminal Agitation? This term was brought to my attention yesterday by my dad's medical team. I've read a couple of articles and they describe my dad so accurately. This is him the past month..he weighs less than 97lbs, he's on hospise care, wheelchair bound but forgets and tries to…
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Decisions(2)
Mom had some forgetfulness and living with m who was able to be independent with getting in and out of chair and dressing etc. now since illness and in rehab Mom with needs a lot more cueing to do things such as ear or when walking which direction to go, needs to have assistance with hygiene and dressing. Now needs to be…
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Best wishes for the New Year
Caregiving is the hardest thing I have ever done in my life. I was blessed to be able to be by my husband's side on his Alzheimer's journey. DH passed in April 2022. I now assist in the care of my mother. The journey with my mother is different, because my role is different. But it is still very very hard. One thing that I…
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Ten years of progression
Ten years ago this month, my wife reported memory loss to her doctor. She was 58. This is a summary of her progression. January 2013; age 58 Reported memory loss to her doctor. 2 years, 9 months; age 61 Problems at work; attendance and work quality 3 years, 0 months; age 61 Short term leave of absence 3 years, 6 months;…
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Mom is confused, a high fall risk and a wanderer, where to place her?
Mom is 83 and is entering a later stage of Alzheimers. She is at a SNF in OT/PT after a sequence of falls (stitches, a couple of black eyes, one small brain bleed, etc.) with the last a hospitalization. She is now under palliative care level as extreme medical interventions could be catastrophic due to her frailness. Due…
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Should I stay up
Like all of us, we need our sleep. my wife and I normally go to bed around 9 or 10. We are caregivers for my brother. I am a fairly light sleeper. My dog wakes me up at night so I can let him out….when I do, i can hear my brother walking around the main floor of his house. Is it safe for us to sleep while he wanders about,…
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how to deal with cell phone use
Brand new to this message board. Probably should have done this sooner since sometimes we feel at the end of our ropes! My mother, 89, diagnosed a year and a half ago, we have seen a lot of progression in the last few months. I think she's probably in mid stage. Most recent difficulty is she has a cell phone and has been…
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survivor's guilt
Hello all. I am new to this site. Have posted in "musings" which helped me frame this question for "caregivers forum." My mum is 82 and is living in AL. She was diagnosed several years ago with MCI, then some time later with ALZ. My father, 84, was her primary caretaker for far too long for his health. Now he is living…
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FORGETTING WHERE HE IS
my PWD is having trouble remembering where his shower is. He also does not believe that he lives in the house that he built 45 years ago. Is this typical ?
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Closed system urinal for men - highly recommended
Hi, all I purchased this urinal for my Dad to use at the bedside and it was amazing. It allowed him to just stand up and use it at night and then hang the urinal on the 'bed assist' handle that we added to fit under the mattress. Less chance of spillage! No 'trips' to the bathroom at night! There are several options and we…
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I just got chewed out…..
Well, I guess my New Year’s Day hit a snag. My mother called me from her AL facility and really let me have it for “putting her there”. She had been having hallucinations/ paranoia. I stayed calm & let her rant, then tried to explain the doctors didn’t feel that she needed to be alone. She hung up on me eventually. I…
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simple, indoor exercises for PWD
I found this website recently and have used it successfully with my mom who has dementia. She is able to do the exercises independently. I stream them on my computer and use an exterior speaker so we can make it loud enough for her. Here is the link: https://yes2next.com/free-workout-videos/#walking
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Questions for CCRCs
Looking for advice/tips to ask CCRCs as I begin my search in my area for giving options to my parents, one of which has advanced dementia. My dear dad has serious medical conditions too which he ignores taking care of my mom, and, it's starting to affect him physically. In-house caregivers aren't working out and there are…
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In home Dr. visit
The in home doctor visit went well. I think the most helpful aspect was that she was at home. He said her heart sounded good and her blood pressure was good. He wanted to rule out a stroke and he was satisfied after doing a few simple tests such a grip strength, leg lifting and checking her eye tracking. I watched, it was…
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Neurologist in Portland or area
I have been trying to find a neurologist in the area without much success. Any tips? Many say 'not accepting new patients'.
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giving away valuables
My mom was diagnosed 2 years ago with probable Alzheimer's and maybe some vascular dementia mixed in. I'm her caregiver and she goes to a day program once weekly. At the beginning of pandemic, while she was still rational, she told me she was going to give me her jewelry because I was the one taking care of her. Over the…
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New Here - New issues have begun with Father
Hoping for thoughts on how to approach issues with my mother (81) (she and I help take care of my father together) that my father (81) is beginning to have. Over the last few months he has started to use the kitchen waste basket as a bathroom and over the holiday he had a BM in his pants (first time for this). No one…