-
Latest interview
Our latest interview with you for “Exploring Different Brains" is now released and viewable on our site differentbrains.org, and the podcast version and transcription are both available on the same page as the video. The podcast version is also available on: Apple Podcasts | Stitcher | SoundCloud The direct link to the 26…
-
This Disease is So Strange
My 90 year old ADLO has been living with me for over three years now. The disease has definitely progressed over time but until now, she has had some level of cognitive ability and enough strength to perform normal daily functions (eating, sitting walking with assistance, going to the bathroom on her own, etc.) . Her…
-
Anyone ever experience Hospitals do not feed advanced dementia patients?
I recently found out that Stonybrook University Hospital did not want to feed my mom but wanted to keep her hospitalized for a week claiming they were waiting for her UTI test results?
-
Bible Verse to Lift You Up 1/30/23
WE PRAY FOR OTHERS Ephesians 1:15-23 New Living Translation Paul’s Prayer for Spiritual Wisdom “15 Ever since I first heard of your strong faith in the Lord Jesus and your love for God’s people everywhere, 16 I have not stopped thanking God for you. I pray for you constantly, 17 asking God, the glorious Father of our Lord…
-
Help with talking to the doctor
Both Mom (84) and Dad (87) have dementia, Mom has been diagnosed with Alzheimer's, Dad is undiagnosed but is showing signs of dementia. Last year they chose to move into an assisted living facility, mainly because Dad could no longer help care for Mom. Both of them have become increasing paranoid and are making up lots of…
-
Is there a procedure to apply for Medicaid, Guardianship on my own?
I may not be able to pay the continued retainer for a CELA and may have to be forced to re-evaluate my options for handling my demented loved one who is suddenly entering late stages of dementia.
-
New caregiver looking for advice
Our neighbor was diagnosed with early/moderate Alzheimer's in March 2022. She has no one to help her except myself and three other neighbors. I have become her primary caregiver this past summer. She is living by herself but we help her with meds/doctor appts, finances, groceries etc. I am trying to educate myself as…
-
My frail neighbor
I am writing regarding my 90 year old frail neighbor who does not have dementia. She is a cardiac patient and is mostly homebound, she is also legally blind. Last week she fell in the shower. I told her to call her HMO and tell them that she needed home physical therapy for balance. This would enable her to have a nurse…
-
Need to vent(3)
Hello I am new here. Need to vent about my situation My Dad was my Moms primary caregiver but he denied she had any type of dementia. He was 87my Mom just turned 88. My Dad ended up in the hospital for 3 weeks and never made it out and passed on Sept 4th 2022. I took care of my Mommy myself while he was in hospital and…
-
Caregiver Looking for Advice
My soon to be 80 year old mom has early to mid Alzheimer's. She also has macular degeneration which has rendered her legally blind. I am her only caregiver. She has severe depression and anxiety from events in her life and now declining health. She has a hard time accepting what she can no longer do or remember. One of our…
-
A thread from the spouse and partner forum
I posted this a few days ago over there. But I think people should know about the possibilities. It's worth reading. https://neurosciencenews.com/bvftd-brain-sagging-22351/
-
Ventilation
Venting again. There is no battling this disease. No one knows or no one cares. There is no getting better. There is no cure and there isn't even an understanding on how to maintain it. We're all the hopeful idiots. Hoping for normalcy. Little glimpse of what was. But it's gone. If it isn't yet, it will be soon. My mom is…
-
Adaptive clothing w/stoma
Hello. Has anyone seen adaptive clothing that has the ability to access a stoma bag for changing and emptying? My father is late stage Alzheimer’s and also has a stoma bag. It’s been very difficult managing both but having him wear a one-piece outfit that has a zippered or buttoned option in the front to access the bag as…
-
VENT - Sharing the Caring
Greetings all. I'm feeling resentful and this is a VENT. My Dear Mother (83yo) has moderate dementia. My Dear Father (85yo) is her primary caregiver. I believe I have earned my caregiving badge in the trenches by caring for my EOAD DH until his death in April 2022. I know a little bit about caregiving, although I am not a…
-
Alzheimer's or other dementia?
I brought my 94 year old mother who has many dementia symptoms to her first neurologist appointment yesterday. Her primary care doctor had acknowledged the dementia but had not felt the need for another doctor. However, because she has become noncompliant with her medications, her absence seizures are surfacing and I…
-
DIAPERS- new name PLEASE
PLEASE PLEASE START A MOVEMENT TO STOP CALLING ADULT INCONTINENT UNDERWEAR DIAPERS. Many of our afflicted loved ones HEAR AND UNDERSTAND THE IMPLICATIONS OF THIS WORD, AND IT HURTS THEM. It is degrading. It reinforces to them that they are losing their status as adults. I have to remind aides to stop, and they often do…
-
Sling for commode use - hole or U?
My SO can't stand up anymore so I can't transfer him to the commode by myself. Will start to use the lift but can't decide what kind of sling to buy: the one with a hole or the U-shaped? I've been reading Amazon reviews and it seems people can fall through the ones with the hole, while the U-shaped ones are pricier and…
-
Teenagers…
I’m just curious if there are others out there in a similar situation. I’ve got teenagers and am their daytime caregiver to my mom. All 4 are challenging and needy.
-
unsure if something I did backfired...
My mother has been in AL since early November (against her will, I might add) but she had begun having delusions and seemingly hallucinations. My father died last February at the age of 94. I threw a small funeral together hastily, there were not many people in attendance due to Covid, and he simply had no other relatives…
-
Difficult Behavior(3)
Recently my 101 year old dad with dimension was admitted to the hospital with a UTI. He was released after 8 days to a short term rehab center to get his strength back. During this short hospital stay he lost the ability to walk and his mental state is worse. Now he will at times spit out his pills, he sometimes tries to…
-
Hospice and Medicare Advantage
Recently my mom was sent to the emergency room. The insurance company refused to pay the claim because she is under hospice care. Medicare also refuses to pay so the bills are coming back to her. When you go into hospice care does that mean you lose all your other benefits?
-
Internet scammer targeted my mother
I'm hoping someone has some suggestion on how to handle this situation. About a month ago, my mother somehow began texting with a scammer. I deleted everything on her phone to do with this guy. And I immediately bought the full Norton Lifelock service. Today she emailed an address he had given her. I didn't know that she…
-
Showers(2)
My mother and father-in-law both have a form of dementia. They both are at different levels of progression and tend to rub off on each other. They do not shower as often as they should. My mother-in-law does not accept her diagnosis and thinks she is perfectly fine. She is not approachable with a lot of things. My…
-
Worried about mum
Hi, I’m in the UK but seeking help anywhere I can get it. My mum has started forgetting certain things. For example she moved a load of stuff to a seat in the house but then 30 mins later she swore blind she didn’t do it and it was already like that. There have been 3 or 4 of these episodes on different things. She also…
-
demands to leave facility
Last time I posted here, my wife (moderate-to-severe Alz) was living at home and I was the 24/7 caregiver. Doctors, friends, and relatives all urged me to find a good residential facility that could take care of her properly and let me recover. Until recently she's been doing well there, but lately she insists that she…
-
caring for an unliked parent
I feel like there is no-one I can talk to about this. I am spending so much time trying to help my mom; my brother has basically distanced himself years ago, and in the last five weeks of crisis has called and emailed her once, while I have dropped my work and flown across the country to spend three our of five weeks…
-
Home Health Aid(1)
Hi, New to the forums. My mom has alzheimers and she lives in her condo. She cannot live here alone, and needs care 24 hours a day. Us, the children, take shifts. She needs help with everything, including how to go to the bathroom. She is homebound as she cannot leave the house. I was looking at her insurance, she has BCBS…
-
Mom's Alzheimer's Has Me Spinning
So, I thought I'd try this out, this is my first time reaching out. My mom has Alzheimer's, was diagnosed in August 2021. I met with her, along with my estranged brother (whom she lives with) and my uncle, my mother's brother, in March of 2022 to go over her accounts at her bank. At that time, she was still lucid,…
-
Refusing to shower(1)
How can you help someone with AD who refuse to shower?
-
Guilt(18)
I feel alone in this battle and yet I know I'm not but the fact that she is not with me every day is consuming me with guilt. I have a child at home, she was diagnosed with a medical condition that did not allow me to keep her at home because I could not be there 24/7. She is in a memory care facility which is wonderful…