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sudden decline(1)
Can someone with moderate-severe Alz suddenly go from reasonably cooperative to lashing out, getting in fights, and refusing to eat or take medicine? I'm accustomed to the steady decline of Alz, but this week it's like she fell off a cliff. She had to be taken to the ER on Friday and was admitted to the hospital over the…
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(For you) Alzheimer’s is…
In September of 2020, a post asked us to complete the sentence, “Alzheimer’s is…” At the time, my response was, “knowing that, if I can’t find it, it’s probably in her purse.” What a difference 2 years have made. She no longer has a purse. At the time, I had a 5-foot tall 5-year-old; now I have a 5-foot tall 3-year-old, in…
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Anxiety behaviors and meds
Hello, I have been lurking for 6 months ,just now posted our story.The forum is comforting, enlightening and therapeutic. My alz. Wife is always active moving items everywhere, walking all around the house tampering with everything,wanting to go outside, get out of here or for me to entertain her. Would this be considered…
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How to organize myself around a disorganized LO?
I am a person who obsessively plans (A, backup B, redundant C, etc) so please bear with me if I ramble. I am currently paralyzed with paths, figuring out the starting line, and am turning a blind eye to the end goal. None of which makes for the start of a good plan. Working backwards: Most recently my mother (nearly 80)…
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Talking to doctor about food and fluids intake?
Hello. To those who have in-home care for a loved one- How did your family deal with the changes in your LO when they stopped communicating needs for food and fluids?
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Called a hospice place
Hello. Some background: we've been caring for our LO in our home as her disease has progressed Her disease has dramatically progressed since last August. She no longer moves on her own unless prompted. She cannot walk because she has no balance and does not have the muscle strength. She has incontinence daily. She cannot…
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Assisted Living Transition Best Practices
Hello, My mother-in-law has cognitive impairment, most likely Vascular Dementia due to other illnesses. She has been on hospice care since March of last year and we have kept her in her home as long as possible with care givers. Due to her safety risk, her main care giver leaving the agency we were using, and a financial…
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How to bring up Power of Attorney
Happy Sunday fellow caregivers. All still going well for mom at MC/AL and it’s a relief. She’s happy, facility has taken on med management; and we even have an appt with a primary care physician. Lots of others with Alzheimer’s/dementia there and families. It’s a huge relief. Next hurdle was getting her spending and I…
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not comfortable with fentanyl for hubby
Hospice started him on it two days ago , a patch. He has not even been on morphine daily, just occasionally as needed. I am supposed to remove the patch tomorrow and put a new one on. From what I read even getting a small amount on someone who has never had an opiod can lead to death. Anyone freaked out by this med? Would…
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Pantry proof your house
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sometimes refusing to sit on the toilet or chair
This morning my DW, after getting out of bed, refused to sit on the toilet. This is not the first time this has happened. She has also refused to sit down on chairs and couch. This morning she also refused to take down her pants or underpants. Sometimes she has asked me to help her. This morning she was also experiencing…
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Caregiver Depression(2)
Has anyone else experienced this? I have been living with my mom for 1.5 years and it has definitely taken a toll on my mental health. I have lost 20 lbs and my hair is falling out. My mother is in constant need of companionship. I spend a lot of time driving her around because she does not like to be in her apartment. She…
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Lawyer appointment - successful
I met with a lawyer this morning regarding my sister's mismanagement of our mother's money. She is guilty of embezzlement and conversion. The remedy has to occur in stages. First the lawyer is going to send her a letter and suggest a payment plan, if she resists then we move in another direction. Also we, the other…
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Minor Ventilation
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How to get out of town family to understand what's going on....
My mom was officially diagnosed with ALZ in December, but she's been having symptoms for a couple of years now. She moved to Indiana to be closer to us about 3 years ago. My brother, who lives near where she used to live, shipped her off to us because he can't deal with her. So we've been caring for her, a little to begin…
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Latest interview
Our latest interview with you for “Exploring Different Brains" is now released and viewable on our site differentbrains.org, and the podcast version and transcription are both available on the same page as the video. The podcast version is also available on: Apple Podcasts | Stitcher | SoundCloud The direct link to the 26…
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This Disease is So Strange
My 90 year old ADLO has been living with me for over three years now. The disease has definitely progressed over time but until now, she has had some level of cognitive ability and enough strength to perform normal daily functions (eating, sitting walking with assistance, going to the bathroom on her own, etc.) . Her…
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Anyone ever experience Hospitals do not feed advanced dementia patients?
I recently found out that Stonybrook University Hospital did not want to feed my mom but wanted to keep her hospitalized for a week claiming they were waiting for her UTI test results?
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Bible Verse to Lift You Up 1/30/23
WE PRAY FOR OTHERS Ephesians 1:15-23 New Living Translation Paul’s Prayer for Spiritual Wisdom “15 Ever since I first heard of your strong faith in the Lord Jesus and your love for God’s people everywhere, 16 I have not stopped thanking God for you. I pray for you constantly, 17 asking God, the glorious Father of our Lord…
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Help with talking to the doctor
Both Mom (84) and Dad (87) have dementia, Mom has been diagnosed with Alzheimer's, Dad is undiagnosed but is showing signs of dementia. Last year they chose to move into an assisted living facility, mainly because Dad could no longer help care for Mom. Both of them have become increasing paranoid and are making up lots of…
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Is there a procedure to apply for Medicaid, Guardianship on my own?
I may not be able to pay the continued retainer for a CELA and may have to be forced to re-evaluate my options for handling my demented loved one who is suddenly entering late stages of dementia.
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New caregiver looking for advice
Our neighbor was diagnosed with early/moderate Alzheimer's in March 2022. She has no one to help her except myself and three other neighbors. I have become her primary caregiver this past summer. She is living by herself but we help her with meds/doctor appts, finances, groceries etc. I am trying to educate myself as…
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My frail neighbor
I am writing regarding my 90 year old frail neighbor who does not have dementia. She is a cardiac patient and is mostly homebound, she is also legally blind. Last week she fell in the shower. I told her to call her HMO and tell them that she needed home physical therapy for balance. This would enable her to have a nurse…
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Need to vent(3)
Hello I am new here. Need to vent about my situation My Dad was my Moms primary caregiver but he denied she had any type of dementia. He was 87my Mom just turned 88. My Dad ended up in the hospital for 3 weeks and never made it out and passed on Sept 4th 2022. I took care of my Mommy myself while he was in hospital and…
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Caregiver Looking for Advice
My soon to be 80 year old mom has early to mid Alzheimer's. She also has macular degeneration which has rendered her legally blind. I am her only caregiver. She has severe depression and anxiety from events in her life and now declining health. She has a hard time accepting what she can no longer do or remember. One of our…
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A thread from the spouse and partner forum
I posted this a few days ago over there. But I think people should know about the possibilities. It's worth reading. https://neurosciencenews.com/bvftd-brain-sagging-22351/
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Ventilation
Venting again. There is no battling this disease. No one knows or no one cares. There is no getting better. There is no cure and there isn't even an understanding on how to maintain it. We're all the hopeful idiots. Hoping for normalcy. Little glimpse of what was. But it's gone. If it isn't yet, it will be soon. My mom is…
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Adaptive clothing w/stoma
Hello. Has anyone seen adaptive clothing that has the ability to access a stoma bag for changing and emptying? My father is late stage Alzheimer’s and also has a stoma bag. It’s been very difficult managing both but having him wear a one-piece outfit that has a zippered or buttoned option in the front to access the bag as…
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VENT - Sharing the Caring
Greetings all. I'm feeling resentful and this is a VENT. My Dear Mother (83yo) has moderate dementia. My Dear Father (85yo) is her primary caregiver. I believe I have earned my caregiving badge in the trenches by caring for my EOAD DH until his death in April 2022. I know a little bit about caregiving, although I am not a…
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Alzheimer's or other dementia?
I brought my 94 year old mother who has many dementia symptoms to her first neurologist appointment yesterday. Her primary care doctor had acknowledged the dementia but had not felt the need for another doctor. However, because she has become noncompliant with her medications, her absence seizures are surfacing and I…