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Question on medicare 5 year lookback
I have been taking care of my mother the last 8 years. She is geting worse and worse as each day passes. My question is...we never wrote up a verbal agreement but was understood that she would pay her fair share when she moved in with us. She pays for all the groceries and in the last 3 years has paid the phone and power…
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Thinking of you all
Now that hubby and I are on the other side of our five year dementia journey, I still read posts and I am commiserating with and praying for you all. We took care of my FIL first at his house, then our house, then 8 months in MC, then back at home for the final 10 months. There were times this year, I never thought this…
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I got it!
I have Covid! I’m very upset and feeling quite dumpy. I’m afraid I have already exposed my 85 yr old mom with late stage 7 Alzheimer’s and my newborn grandson who’s only 5 days old. Fortunately a friend came by to help me today and will hopefully come back tomorrow. The service we use pulled out. I am my mom’s hands on…
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Before she evens starts the new caregiver quit
I am not surprised and very relieved. Since my sister is no longer part of the care team my daughter, who helps me, & I will have to be more creative in the balancing act of our lives. My daughter helps me, as much as she can, between her 2 other part time job and raising 3 children. I am also going to take the suggestion…
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Incontinence Struggles
My sister has been experiencing nighttime incontinence for 3-4 months now. We have all the supplies - bed pads, mattress protectors, nighttime underwear, etc. Cleanup problems are minimal due to all the protective measures we have. The problem is my sister is really struggling to deal with it. I help her get cleaned up and…
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Changes to Veterans Administration Health Care Bennies - FYI
We had our Annual Case Review last week with the VA for my sister. According to the social worker, the new assessment tool they use indicates my sister is only eligible for 7-9 hours a week total for services, both day care and in home care. This past year, she was authorized for 25 hours of adult day care; we probably…
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How to take over finances?
Sadly my husband has become incapable of managing finances. Just this week he took one of my checks, wrote it out for $1000. and signed it, but left the name blank. Then he put it a neighbor's door. A few days later his wife came to my door and gave it back to me. Mike believes this neighbor Scott, speaks to him and has…
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New to group(7)
My mom is in the later stages of Alzheimer’s. Just curious when you get hospice involved. She talks but only makes sense about 1/2 the time. Is incontinent and lays around for the most part. We are just unsure where to turn at this point. Her dr is not a lot of help. So thinking we need to make the connection with hospice…
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I Miss My Mom…
I just want to share that I miss my mom, and no words can sufficiently, accurately describe the depths of pain I have been feeling. She’s here, and she’s not. I need her right now, more than ever, but she simply cannot be there as I know she’d want to and was before her symptoms started to ramp up (she’s stage 6 right…
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Confused and guilty
I have posted before about my dad. I am trying to care for him after my sister passed away 4 months ago that lived with him. I struggle with MC placement because I am now an only child and mom is gone too. I know he shouldn’t be alone but does ok. My plan is that I am researching visiting MC facilities. My dad fell last…
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Bible Verse to Lift You Up 12/10/22
A TIGHT REIN GOD THOUGHT: James 1:26 “Those who consider themselves religious and yet do not keep a tight rein on their tongues deceive themselves, and their religion is worthless.” VICTORY THOUGHT: My faith calls to be careful what I say. POWER PRAYER: Come into my heart, Lord Jesus, and govern my tongue, so my words will…
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Medicine noncompliance is maddening
My mom, a dementia patient, began having absence seizures after a fall resulting in concussion six years ago. She has been on Vimpat ever since, but for the last six months has become increasingly noncompliant with medications. It is a daily battle twice a day for the AL staff and caregivers. She will not listen to me. She…
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Involuntary commitment?(1)
Not sure what else to call it? My 86 YO dad is fine as long as I'm the only one caring for him. He will not allow respite care, my sister can help once in awhile but not enough to make a difference. Frankly, I'm done. He's in my home and I want him gone. I don't even care where... he's angry, his pathetic attempts to…
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Looking for Recommendations
Hello, I am looking for recommendations/suggestions. The first is for a good bedside commode that can fit over a toilet with a padded/comfortable seat. I have one with a hard plastic seat and am looking for something sturdier/comfortable. The second is for any ideas on how to make a hospital bed headboard/footboard look…
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Plateaus and Transition From Early to Mid Stage
Hi everyone. I don't post often, but reading all of your insightful threads and responses is always something that brings me comfort and knowledge. My father is in what I would consider the latter part of early stage Alzheimer’s. He is 92 years old and lost his wife about 18 months ago to cancer. She was his caregiver and…
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Bible Verse to Lift You Up 12/5/22
OVERCOME EVIL GOD THOUGHT: Romans 12:19-21 “Do not take revenge, my dear friends, but leave room for God’s wrath, for it is written: ‘It is mine to avenge; I will repay,’ says the Lord. On the contrary: “‘If your enemy is hungry, feed him; if he is thirsty, give him something to drink. In doing this, you will heap burning…
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Seroquel not appropriate for rehab
In a previous post I mentiond my mom was put on Zoloft, but I wasn't seeing any benefit. She had an emergency admission to the hospital on Sunday due to increased confusion and they ended up adding Seroquel to her Zoloft. She discharged to rehab yesteday and I got a call from them telling me that Seroquel isn't really…
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advancing symptoms
This week has been awful--my husband seems to be entering another stage in his illness (Alzheimers). He can't remember how to do things that 2 weeks ago he could do (with some effort, but he could complete tasks). He just seems so utterly confused and perplexed about everything. And he's sad, because he realizes he is…
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Need info about Trazodone
My father's doctor just put him on 50mg of Trazodone. Does anyone have any info on how effective this drug is and possible side effects? Reading online about this drug or almost any drug scares me. My father is 101 and his sleeping at night has gotten worse and worse. He talks, yells, shouts, and gets up to use the…
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Can a person tell you they have alzheimer's, and still have anosognosia?
Gothic Gremlin had a thread that made me think about that. Here's what I came up with. This is interesting. Can a person tell you they have alzheimer's, and still have anosognosia? I think the answer comes down to if they understand they have the symptoms they have. If their banking account always needs to be corrected,…
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Waking up every day like it is the first time in memory care
Thank you in advance for your suggestions. My mother-in-law is in memory care and has been there for about a month now. She wakes up every day and thinks it is her first day there. She calls my husband every day (several times a day) and says she is ready to leave but she doesn't have anywhere to go. It makes me feel awful…
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Trying to understand anosognosia
The other day Peggy said to me, "I know what's going on. I know I have Alzheimer's." It seemed kind of an insightful thing for her to say given that she's mid to later stage 6. But even though she acknowledges that she has Alzheimer's, I don't think she fully understands what that means. And I don't think she realizes how…
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Bruises
This morning I noticed two bruises on the right side of my wife’s forehead. I have no idea how she got them or even when. I understand that many people in stage 6, as she is, develop stability problems. I hope this is not the beginning.
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New here - many questions
Hi all, My Mom has Alzheimer’s and was living alone in her home and we were having private care givers visit her for four hours a day (it’s very expensive). My Mom was declining and broke her foot while alone with no recollection of how it happened or that it was even broken. I live about 5 mins away and have been her…
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Newbie here - is it essential my husband see a neuro?
Almost 2 years ago, my husband was diagnosed by our GP as most likely being in the beginning stages of Alzheimer’s. He did not recommend we see a neurologist to confirm his theory, but he immediately started my husband on a medication to slow the progression. He has changed to a medicine called Nazmaric now which is…
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She's gone...(1)
My sweet Mama, Betty went home to Jesus at 10:04 Friday, December 2. Her earthly suffering is finally over and though I am sad because for now we are apart, I rejoice in the fact that one day we will be together again and in the mean time she is well and healthy. This past year has been such a hard one for her. Her…
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I thought this was good and from the heart.
https://www.youtube.com/watch?v=hrMHjj0ANko
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Used to fall a lot, now doesn't?
Just something that I've been thinking about for a while now about mom (73, early onset Alzheimer's, for those that don't know). She used to fall a lot, like once every three months it seemed. Falling out of bed, falling trying to get in bed, falling down the stairs trying to go up or down, falling from sudden loss of…
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Memory Book
So with Christmas on the horizon, I'm thinking about helping mom make a memory book. I've ordered basic supplies like a 3 ring binder, some colored paper, photo paper to print out family photos, glue, etc. However, I'm finding so many different templates out there on the internet I'm not really sure where to start. I'm…
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Need outlet
So glad I found this site! Been trying to get thru this situation with my mom the best I can, and was looking for some support from others going thru similar situations. She is reluctant to move and as she can live on her own for now, I do know that things are going to have to change in the very near future. We have an…