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Is there a zoom where folks are regularly meeting?
Hi there. I am new here - I am have intermittently active on the Mayo Clinic online platform for online support. I have been part-time caregiving for my mom the last few years now. In the last two years - the caregiving has pretty much become full-time. I am temporarily living back home with my parents to help my dad with…
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I can't believe this life
My husband is going into late stage alzheimer this has been going on 10 years now. I feel like a robot most of the time devoid of emotion because the days and nights both keep me from having a normal thought. It has been nearly two weeks since I been out of the house, The ambulance brought him home from a 5 day stay in the…
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Sharing Glen Campbell’s dementia film again
https://m.imdb.com/title/tt2049586/
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Memory Care Day 1
Today I took my DH to MC. Such a hard decision to make and a hard, hard thing to actually do. The staff was wonderfully welcoming, giving him big hugs, making him feel valued. I got an update this afternoon that he was doing well, had a good lunch, checked out every inch of the place, walked the path outside, enjoyed…
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caregiver for my dad who is 89 and has dementia
My dad had been living with a lady friend for 2 years then she felt she couldn't take care of him anymore which i understand. He lives with me now but goes to visit her everyday. My question is how do i deal with the fact that when its time for him to come home she isn't very helpful . I have to be the bad person all the…
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Days with more sleep
My DH is in late stage 6 AD, and been under Hospice care for 16 months. The past 10 days he sits most of the day, as opposed to waking around the house moving items from place to place. I know this is progression and not that unusual, however, every three days he is sleeping most of the day. A normal day he will go to bed…
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overwhelmed and need guidance
Hello I am a caregiver to my father. He has been diagnosed with severe alzheimer. He is 73 and he is slipping away and being lost to this disease. Each day is a blessing but so hard to see him decline. I am holding off as long as I am able to care for him at home. I need some advice on what activities or what other…
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caregiver lonleyness
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Looking for Work From Home Opportunities
Hello, I thought this would be a good place to ask since other people might have the same or a similar struggle. I stopped working in July after I abruptly decided to come care for my Grandmother who is level 5 LBD. I have since depleted my savings and I am not getting paid for her caregiving. Although I have applied for…
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CBD & Alzheimer’s
an FYI https://www.medicalnewstoday.com/articles/cbd-help-treat-reduce-inflammation-alzheimers-disease
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Feeling so Sad
Hi there - DH was diagnosed with MCI due to AD in July. He's 66; I'm 58. I posted last month and many of your responses to me were so helpful. I'm meeting with a counselor for my newfound anxiety. I'm anxious about his/our future. Although he's doing so well and he's in the early stages, daily I'm witnessing his…
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What type of longterm facility/community takes LO with Suicidal Ideations & Alzheimer’s?
null Dad is 87 diagnosed with mild-moderate Alzheimer’s a year ago and has been taken twice (to two different) Geri-psych units, went willingly with paramedics, for suicide ideations but refuses medication. He even wrote a goodbye letter. He sees no future, no purpose in living, at times. The Geri-psych unit did not…
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Medical alert watch band
My dad has Stage 5 ALZ and it is time to make sure he has a medical alert band - problem is he won’t wear a bracelet or necklace but he wears a watch - daily. Any ideas for a new watch band or add-on that acts as a medical alert? Thx.
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New Caregiver Advice Needed
Hello - I'm new to this caregiving role and am navigating these responsibilities on top of raising 2 young kids, looking for a new job, and all the other things. Where are the best places to start in seeking help and locating resources? My mother currently has a pseudodementia diagnosis and I'm wondering if anyone else has…
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Just trying to stay alive through this nightmare
I haven’t been active here, where I do need to be because I just got out of the hospital. I was unable to eat for 4 days and lost another 10 pounds from vomiting, diarrhea, and dry heaving. I’m now at 75 pounds. I see my primary tomorrow. DH has been so mean and cruel. I am broken and grieving the loss of 54 years of…
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concerned
My dad is in a MC. He is probably stage 6 but I don't know for sure. When the aide took him to his room to clean him and change him(he is totally incontinent) he tried to choke her. He has not shown any violence before. She said she was squatted down at the time so I wonder if he thought she was some sort of animal. He…
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Medicare Question
Hi everyone, My mom was just diagnosed with Alzheimer's (mild) state. She currently has Medicare under an Advantage Plan - United Healthcare. Because of her new diagnosis, we are considering moving her back to Original Medicare in order to have more options for care. Does anyone have advice about this (i.e. having Original…
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In hospital and medicine
In the hospital they have him on serquel in day and Ativan at night he is on Ativan, at night He keeps trying to get out of bed but is too groggy. He is very upset and keeps saying he wants to come home. But more aware, sort of. How can I calm him or should I leave him alone for now?
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Does anyone have someone their caring for have any interest in what they have
just curious if anyone taking care of loved ones if they ever ask about this illness and what it’s all about and out come
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Talking and doing things together
My DH with Alz often says he misses me . Even though we've been tosh all day. Especially if we've had a particularly quiet day without too much communication between us. I try to think of things to do together, but not every day. We live by the beach and do take walks together most days. He has given up most of his…
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Coconut Oil
I just heard about using coconut oil at one of the caregiver's groups. They said 1and 1/2 tsp per day. Has anyone used this and did they see an improvement?
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It’s finally happening. Placing hubby in MC
this week he gets TB screening required and I get medical forms filled out. Date can be as soon as next week. Telling him we are checking out a new building for brain fog care. He calls what he has brainfog. I’ll work out with place to take him somewhere and then I’ll get suitcase from car and leave with them. Any other…
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Finding his way around the kitchen
My parents live together in an independent living apartment that is part of a community that has multiple levels of care. My brother lives near by and helps them with urgent issues. I live about 2.5 hrs away. My father has been recently diagnosed with ALZ and is becoming stressed because he's having trouble finding things…
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Finding help for teeth grinding
My mother has cerebral amyloid angiopathy (CAA) and the dementia that also comes with it. She has had two strokes, cannot communicate, cannot follow directions, requests, or commands, and her awareness of her surroundings varies strongly by the day. If we gently work at it, we can get her to open her teeth a small bit, but…
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Hospice at home?
mom has Alzheimer’s, stage four or five. Her husband of 71 years is now going into hospice. We are debating on whether to bring him home so she can spend time with him or placing him in a hospice facility. My fear is that my mom will not remember what is going on and having him here will be harder on her than if we had to…
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Want to do the best for my Mom
Hello all This is my first post but I have been reading the discussions (parent caregiving) and see what a great community this is. Background- my 96 yr old mother was diagnosed with mixed dementia (vascular /alz) Oct 2023. I’m also wondering if she has LATE dementia due to the age at diagnosis. She was hospitalized Nov…
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Tips for husbands
I mentioned these in a reply a few days ago but thought they might be worth repeating in a post. For those husbands caring for DWs here's a few things I've picked up along the way: bra straps for bra straps. Yes, they make these small straps that go in the back that connect the two that go over the shoulder if your wife…
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Mom caring for adult child with memory loss
My first post. I'm 84 and my adult child was diagnosed with moderate cognitive decline 4 months ago. Has been on doctor prescribed vitamin /depression /antipsychotic protocol since then. Has anyone else got this issue?
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Should I move my mom?
Hello, My mom is in a memory unit of an assisted living facility. She is nearly 98 years old, wheelchair bound, and can still have basic conversations. The details are below but to make a long story short, they sent my mom to the ER without an aid and without informing me. The details: The other morning I got a call from…
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'Word Salad'
Good evening, Returned from a week-long visit to my hometown. Went with my Mom to see my Dad (PWD) in the memory care unit 3 times while I was there. I was very happy to see he is doing better after having spent time in the hospital for medication management. He had been sleep deprived, depressed, anxious, agitated; then…