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Closing up the house
My DH starts “closing up the house” as he calls it around 6pm every night, while it is still light. He wants everything locked up and all the blinds down. He likes it dark inside. This is really not a problem but an irritation. I’m just curious if this is a typical response from those with Alzheimer’s.
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Dr. Dean Ornish’s Research- Worth the Read!
https://nutritionfacts.org/video/can-alzheimers-disease-be-reversed-with-a-plant-based-diet/ I have been reading about Dr. Ornish’s research and program for slowing up Alzheimer’s disease. I thought it was worth sharing with you. If you google his name, you will find more information on this program for heart and brain…
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Vascular dementia
We are new to vascular dementia. My husband was just diagnosed a month ago, as well as frontal lobe syndrome,, , my father has dementia, but I’m finding this vascular dementia different. My husband pushed me yesterday. I’m wondering if there are any medications to help with his mood swings any input would be helpful thank…
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Suspecting Dementia, Trying Not to Panic - Money Worries
My beloved husband is showing signs of cognitive decline. I'm dealing with the emotions and "what-ifs" throught therapy. I'm posting this duen to practical questions: - My 69 year old husband's work is our only source of income. - If he loses his job due to dementia how will we get by? We have no savings and rely on SS,…
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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FDA Approved Leqembi Subcutaneous Maintenance Dosing
On August 30, 2025, Eisai (Japanese company leading the development of Leqembi) published a press release announcing FDA approval of Leqembi subcutaneous maintenance dosing. After the initial 18 months of treatment via infusions every two weeks, patients will have the option of continuing with infusions every four weeks or…
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Sleeping Issues: need advice
Hi everyone, I’m looking for some advice and to see if anyone else has experienced something similar. My dad has been living with Alzheimer’s for about 10 years. He’s still fairly active—he can ride his bike and we go on walks together—but recently we’ve been struggling with sleep. When it’s time for bed, he just can’t…
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Grief! - Vent!
I am having a very hard time coping with anticipatory grief ! I have been caring for my DH for about 14 years. He is now stage 7 on Hospice. I have help almost every day for his care. I am trying so hard to keep myself in shape and fighting this depression. Today the grief and sadness seems overwhelming. The tears keep…
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A New Chuckle
I guess I need to post these to desperately try to keep my sense of humor. I thought I may have escaped the hyper-sexuality phase, and maybe I still have since this has only happened once. We shall see what tonight brings, but last night brought me this thought. Nothing is sexier in this world than your spouse with…
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Moving Mom
Hello all. We are in the process of moving my mom in with my niece; however she doesn't want to go because she can't take her 2 cats and 3 dogs with her. The critters will be staying with my dad and will be cared for, but my mom has to move (and I would rather not go into the backstory of why she can't stay with my dad)…
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Support groups
I'm not a caregiver, though I provide emotional support and conversation almost daily for my mom with Alzheimer's and my dad who is currently her caregiver and dealing with his own health issues. Is there a support group for family who are not caregivers?
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Forgetting her brother died
Last week my wife told me she was worried about her brother because she had not heard from him in awhile. He died in 2019. I dreaded telling her and, of course, when I did, she was grief stricken and surprised. I comforted her as best I could and she forgot about it within 30 minutes or so. Then last night she again told…
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Hearing aid use
My DH got hearing aids about 2 years ago but hasn’t worn them much bc he says they are uncomfortable. His hearing is not too awful as he can hear me if I talk fairly loud. I don’t know how much I should push him to wear them because his wearing them is more work for me. He spends considerable time everyday looking for lost…
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Newly diagnosed with MCI
I have had the MoCA test and 2 Quest Diagnostics blood test: PTAU 217 @ 0.18 (normal < or = 0.15) and PTAU 181 @ 1.48 (normal < or = 1.07) After reading about these test it appears to me that I likely have early stages of AD. My personal Dr. has played this down and just says I have MCI and wants me to do red light therapy…
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Futile?
My wife has FTD. Her neurologist has ordered new PET scan and new Psychological testing. They are repeating the tests which gave us her diagnosis. Since there is no treatment for FTD, I question the need to keep testing her. The supposed purpose is to determine the rate of progression of the disease. I just wonder what…
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Goodbye Glasses
I went to visit my mother today. The staff told me she had hidden her glasses. I don't know if she hid them on purpose or if she just misplaced them. I was concerned at first because my mother has worn glasses all her life. I looked everywhere. The staff said they had done the same and would check her trash each day before…
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Always tired
is always feeling tired even when just getting up part of this illness? Wife doesn’t sleep all day but does nap watching tv a lot
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Another hit to my heart
I posted a couple of months ago regarding my DW not remembering our anniversary and how it really hurt me. Well guess what, today is her birthday and she had no idea that she had a birthday. I should be used to this but it still hurts. That’s all
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Type 1 diabetes, vascular dementia - stage 8.
I have told bits and pieces of my DW's story. I will tell her story now for the chance that we may be able to help others in similar circumstances. She developed type 1 diabetes when she was 8 years old. In 2012 (age 56) she suddenly developed dizziness and lost excecutive function. She underwent physical therapy and her…
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Sister w Alzheimer's wanting to take control of everything
My sister who has been diagnosed with Alzheimer's is determined to re-take control of her finances, among other things. Neuro-psychological testing has shown she is incapable of doing so. She can't even write a check. Prior to diagnosis and testing, she had a year of not paying bills, having power or phone shut off…
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30 day respite
I just placed my DH/alz in memory care for a 30 day respite. It was a lot of prep work but it went ok. The staff took him to the dining room and I set up his room. I told him the doctors and nurses wanted to monitor his medications for a few weeks. A year ago he would have fussed about it but he just said “Ok”. He does…
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Feeling Vulnerable and Grieving
I am a newbie here, been "lurking" at posts of interest and pleased with what I've been seeing as a supportive group of caring individuals experiencing life as caregiver for LO's. My LO is my DW of 60 years. We have a long history together starting as a military family stationed overseas in the Vietnam era. We had three…
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DH in hospital
Not sure what happened Friday night, but, something went horribly wrong and I had to call 911 for my DH. I knew immediately that vit wasn't normal morning alz confusion. It was more like delirium. They admitted him and so far all tests have come back normal but he has become even more delirious and now aggressive and…
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Sex
Ok all of a sudden, my DH is so interested in sex. Its not like sex was a priority adter all these years being married. He never even talked about it. Whats up with this.
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Respite care for a vacation
As I waffle about MC placement, I know that what I really want is to take a vacation, by myself, preferably for 2 weeks. I have no family who would be free to care for DH. MC facilities in Tucson advertise respite care but they will say "only if we have a bed available" which makes it hard to plan. Has anyone successfully…
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Expat living in France caring for DH know nothing of French system
Im 67 my husband of 39 years is 79. We have only lived in France for 3 years come December. My husband is awaiting scan and the start of the formal process. I wondered if anyone here is in France and can tell me what the care/support/system is like over here for dementia patients please. I’m a Doctor (now recently…
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Need Respite Care
careworncarer She/her/hers / Ella Member Posts: 1 First Comment Member August 29 edited August 29 My mom lives with my husband and me and we have not had more than a day away since she moved in with us. She can dress, toilet, and feed herself. Most of the time she is content to watch tv and pet our little dog. She is…
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Lumipulse pTau-217/Beta Amyloid 42 Ratio
Has anyone here read anything about this dementia test? If I ever show cognitive decline, I think I would like to get this test. Then maybe have an exit plan.
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Where to go if Long-Term Memory Care will not accept my sister's combative behavior?
My sister with EOAD has been in a Geriatric Psych unit for a month now. She was removed from her Assisted Living Memory Care facility after only a week for aggressive and combative behavior. During an incident she was sent to the ER where after that she was admitted to the Geriatric Psych unit to develop a medication and…
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My husband is lucid much of the time
My husband is not so far gone that I could not leave him in memory care or nursing home but when he gets into a rage there is nothing I can do And he is still having trouble walking What should I do? Guilty ridden