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Testing/changes due to diagnosis of parent
Just curious if anyone has had testing due to the diagnosis of a parent. If so, what kind of testing? Has anyone taken any legal steps should you face the same diagnosis? What would you do differently? I am adamant that I do not want to be cared for by family in the event that I develop Alz. (My Mom, her Mom and my mom’s…
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Moving to memory care- how do I tell her?
We have made the decision to move my mom to memory care. We can't decide how to tell her. The facility says to just tell her the day she is going. Her cognition is still ok and she'll see this as us "tricking" her. We are considering having a discussion with her about this but we k ow she'll be resistant.....any advice?
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Just diagnosed
I’m scared. Every time I think about it. My mom had dementia and later it turned into Alzheimer’s. Her last 3 years of life was the worse way of living. She cried. Her tears ran down her face but we never heard what was in her mind, even though we all knew she was going through torture. I hate myself for always having…
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Can Sundowning happen in the morning
My husband is in late stage dementia and the regressive changes are happening quickly. Sundowning at around 5 pm is a familiar pattern, and we have come up with some steps that reduce the effects. A new problem — In the morning, we're seeing something like sundowning. He might withdraw, he might get angry, it's a new thing…
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So tired
I’m a month into my broken ankle and foot and I am so tired. I am still not supposed to weight bear on the cast and since it’s my right foot I can’t drive. Let me just say I am trying every day to be thankful my DH is still able to walk and is NOT incontinent. But still….He does not understand half (or more) of what I say…
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Lock bedroom doors in MC?
About three weeks ago, we moved my mom from Assisted Living to memory care because she was going outside on her own and we were afraid she would wander off. She absolutely hates it memory care and always tells us she wants to go home, which I hear should be expected. To my when he got to her room there was a lady in there…
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Going out or staying home
My DH is in the middle of stage 5. He can care for himself physically but has no executive function or short term memory. He has a friend who will take him to play TopGolf. They are scheduled to go tomorrow but tonight my DH got so confused and upset because he couldn’t understand the plans that he gave up and went to bed…
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I would like some acknowledgment for all I do.
My DH is in stage 3-4 and seems to not even realize thatI do everything around the house, including the usual cooking, cleaning, grocery shopping, managing finances, investments, bill paying, car maintenance, etc. He is not at the stage of needing help with bathing, dressing but he needs help with his medication schedule…
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Sad, stressed, and need to talk to others
I am new to this site. My significant other (SO), is battling Alzheimer's. I just need to know what I am able to do to make both our lives easier. I feel like I have already lost a lot of the man I married. He has good days and bad days. But, it has taken a toll on us. I am having to do the things he use to do along with…
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From 6 to 7 in no time
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Dental Care Options/ Ideas
My 81 yo mom lives in memory care two blocks from me. I go over every day and bring the necessary amount of overnight and daytime diapers for a 24 hour period because otherwise some staff will take her supplies and use them for other residents. I have gone through long stretches where I was cleaning, changing and putting…
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Stages
I have personally never seen the benefit of knowing "what stage". Why? because every one of our loved ones is going down a road with a pretty clear ending. While loved one is going to go through predictable changes the changes can not really be grouped. They overlap. Additionally not everyone has what is earmarked for a…
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Opinion on Hallucinating
Hi all. Taking care of my mom that has Alzheimer's. Working with the neurologist and PCP to get her on a medication that will help with her anxiety and hallucinating. So far one helps her take a 5 minute nap and sleep better at night. My mom is hallucinating all day. she may briefly speak to someone and make sense when out…
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Regaining Sense of Self
Hi, all I found the video below just yesterday; and in my case it was quite timely. The video is a little over 10 minutes, but I think it is worthwhile for those of you who feel like you’ve lost who you used to be through all this physical, emotional and mental stress of caregiving. And if you feel like sharing with others…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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Careing for mom
So, my husband and i moved in with my mom after my stepdad died. He left her with nothing and we didnt want her to be alone. About a,month after we moved in, mom had a stroke, only to find out that this was a second one she had,which came as a stock to my sister and i vecause she bever told us about the first one. So since…
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Forgot who I was dealing with :(
Just a vent… I made the tragic error today of forgetting that my mom is not really the same person anymore, the mom I used to be able to have meaningful talks and heart-to-hearts with. … We were having such a nice visit today. I took her my old baby book and we had such a fun time reading it together. Things took a turn…
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Latest news from International Alzheimer’s Conference
https://www.brightfocus.org/news/breaking-news-dispatch-diversifying-the-alzheimers-disease-treatment-portfolio/?lb=off&_hsenc=p2ANqtz-9RcHE4tcCXAihdlU1GsYo2oRgY1H54AcUgUjNJBgEkWl6C-QjUof2VsDazG6nAH-Yr9mXtlM7Cxff2mB5YFJTIbSxPFofcN6MDETaioD3pkgXAGqk&_hsmi=428947283&utm_term=donor&utm_campaign=fy27_adr_2607_adpd_ea1&utm_mediu…
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one of those self critical days
Hello dear community, I am having one of those days when I question my decisions and see faults and what's lacking. I know that's silly because over these 2+ years I've done several things that needed doing to keep dad safe. Ugh. The reality, though, is that even when I remind myself of the positives I still feel critical.…
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Help understanding the stage
Hello all. I am new here and feel like I’ve found myself on a very fast track in this journey. Starting around 2023, my DH’s doctors began mentioning dementia, but we never got a firm diagnosis or clear treatment plan. They just kept re-doing the SLUMS test, and while we knew something was wrong, things still felt somewhat…
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How much sleeping is "too much"
Hi, new to this community and have many questions, but the one that's top of mind today is that my DH, who was diagnosed with VD but also elevated levels of Alzheimer's last summer, seems to be slipping away faster all the time. He's now very weak and wants to sleep almost all the time. We've been letting him eat breakfast…
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How to handle repeated requests to buy a new car
Hello All, It's me again, with the ongoing car dilemma. We sold my husband's car in late May. He had not driven it in over a year. Now that it is gone, he is insistent that he needs a new car. He talks about it every day, to anyone who will listen. Every time we drive somewhere, he is pointing out how everyone has a new…
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Early onset Alzheimers
Good Morning, My DH was diagnosed with EOA 8 months ago. He is 54 I am 58. He was working as a lineman until 2024, he was working 70+ hrs a week, I am an ER nurse I work 24 hours nights. I have assumed the role of everything, which is ok but frustrating at times! Esp when he asks what can I do? in the beginning i would…
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"Fairly successful" outing to Museum yesterday
My mom (early-mid ALZ) lives in AL (without support, but has restrictions, not allowed to leave building w/out family) had tried to sign up to go into San Francisco in the AL van to see the Monet & Venice exhibit, but the AL appropriately didn't let her go, telling her it was booked. The residents are not chaperoned, just…
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DW wants to go home
My DW with MCI frequently tells me she wants to go home. However we have been in our home for 40 years. I don't know how to deflect her from that thought.
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Spouse
My husband was diagnosed with dementia yesterday and I’m not sure how to feel about this. I am 43 and he is 65
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Valuable Info re: Explosive Diarrhea Parasite Spreading Through Water? (How to Protect Yourself)
Timely info and very good presentation from a Scientist/Caregiver- Neal K. Shah, Research Triangle Park https://youtu.be/a8rPct94I-k?si=tFs6gF24oj_B1KeV
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Alzheimers disease and treatment podcast
The Peter Attia Drive podcast episode #399 with Gayatri Devi, MD - the evolution of Alzheimers disease and treatment. She shares some hopeful information about the future of treatment.
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Telling siblings
My DH was recently diagnosed with mild ALZ. We have a family reunion coming up and I feel like we should let his two siblings know. Is that something he should be a part of or should I be telling them without his knowing? So much of this journey makes me feel like I’m having to do or say things behind his back because he…
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Mixed Signals
Hi. A few weeks ago my mom was having issues communicating, seemingly out of nowhere. She would just stop talking and looking to me as if she wanted me to answer for her and shrugging. After lots of doctor’s appointments, they think it was TIA. Since starting Plavix, she’s had no more episodes, but during the barrage of…