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Weight loss in late stage
My DH is late stage 6/early stage 7 and under hospice care. From the first of March to the first of April he lost 3 lbs. I weighed him yesterday and since the first of April he has lost 6 lbs. He is eating what I give him at meals and I make him a milkshake nearly every day and always give him snacks as well, but is still…
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Sex is not my friend
DH has been quiet about this for several months now. All of the sudden now he wants it again (he also has ED and things were not going well before). He grabbed a beer when we got home from church and then wanted to get all frisky. Unfortunately, I made the remark that he looked like he was more worried about getting a beer…
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Neurologist appointment 5 years in
Hi! Real quick summary and then my questions. My mil has been living with us for about 8 months now. She was diagnosed with FTD, specifically PPA, five years ago. She has not had a neurological appointment in about 2 years and this one was only scheduled at my request as I had very little (as in no prior) involvement in…
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Hospice qualification
Thanks to all of you who responded to my recent request for information about hospice. I took your advice and worked with his doctor, and yesterday he qualified. It isn't about how long he will live, since no one knows that, but about his level of compromise. Even though nothing has happened yet, I feel immensely relieved…
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Learning to live with the sadness
That's what I was thinking about driving home from MC today. DH has been in MC for 15 months and I am still so very lonely at times that I start crying. I thought he was adjusting well after a rough time last summer. The last two times I have visited however he has asked to come home. It broke my heart when he said, " I…
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Navigating Alzheimer’s Risk While Caring for Both Kids & a Parent—How Are You Coping?
Hi everyone, I’m in my 40s, raising kids, and also caring for a parent with Alzheimer’s. My mom has APOE4 x2. Lately, I’ve been thinking a lot about what this means for my own future—both emotionally and proactively. I recently started looking into early detection tests, including: • APOE4 genetic testing • Blood biomarker…
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Cell phone
My DW is 70, diagnosed with Alzheimer’s about 10 months ago, but looking back, it’s been a few years. I think she is stage 3 or 4, but, I don’t know what to do about her cellphone. She has given out too much info to scam callers who have sold it to other scammers. I put her phone on “silence unknown callers” , but she gets…
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Struggling with Refusals for Doctor appointments
DH has become livid and screaming and throwing things when I notify him of another appointment. I have been very conscience of limiting the unnecessary appointments, but this time it is the Neurologist. I am sure it is partially fear, but I do not know how to help him feel like it will be OK and the doctor is there to help…
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My mom forgot my name today
It's been two years in my mom has early onset and it's accelerating quickly. I'm 33 my mom is in her 60s my husband is in the military so I'm taking care of her at a distance. Until medicaid takes overy husband I have been paying out of our own pockets. My mom was my best friend we were close. I call her everyday and I…
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Four months
It has been four months since Mom died. I find myself feeling I should call her, I should be going to the AL to see her. By that I mean that I feel guilty that I’m not doing those things any more. It’s not exactly that I miss doing them- it wasn’t as if mom was capable ( for several years) of being someone to carry on a…
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Anosognosia Challenge
This is just a vent. I am NOT asking for advice or tips. But I would like to read about your experiences with this caregiver challenge. My DH with mild/moderate dementia thinks the meds he takes will cure his “small” issues. While he admits to some short term memory loss, he rejects my determinations that he should not…
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Attending church
We had a great church group, with several dear friends. We stopped attending but maintained the friendships. My husband now has advanced Alzheimer’s. Is it possible to return to church services now? There are some who would accept him easily, but I am concerned that this would be a distraction for members who don’t know…
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Phone Scams
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Mom incompetent
I have DPOA of mom. So far I'm doing everything for her and act on her behalf. However I'm scared that she might be angry towards me if I do something against her will. She might want to revoke the DPOA. The only was to secure the DPOA is to confirm Mom is incompetent and can't make rational decisions. I just had Mom visit…
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What to say.
Yesterday my DW said if she would die tomorrow I would be happy because I would be free of her and her problems. I know this is the disease talking, but it is hard to understand. Does she think I don't love ? How do y'all handle this ? Thanks.
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Advice please
My mu. Has just been moved to retiment living, as we thought it would be better for her having people around to sit with through the day. The problem we have she is awake most of the night and going out of her flat and knocking on everyone's doors until some one answers. She gets upset and feels lost. She is not using the…
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Personal Hygeine
My father & his wife are in assisted living & have recently resisted showering. I will be approaching the subject with them, but could use any advice you have on how best to approach. I do not live close enough to be onsite to assist on a regular basis.
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Legal Repercussions
Hello, I am new to this site. My mom was recently diagnosed with Alzheimer’s. She was previously diagnosed with Mild Cognitive Impairment. For 5 years I have been paying her bills for her because she asked for help and could no longer do it herself. She still has access to all of her funds and we have only had a couple…
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Elder law appointment
I finally have an appointment with elder law 5/20. The initial consultation is free for 1.5 hrs. I am taking my mom there and discuss her will, setting up a trust fund, Medicaid planning and estate planning. Mom is very concerned about the lawyer fees. I am afraid she will not proceed with the lawyer after the…
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Just need Support - My Dad fell and is in the hospital
Hi- I just need some support at this moment. My dad with dementia fell and smacked his head on the pavement. He now has a traumatic brain injury with bleeding occuring in his brain. I just spoke with him tonight and he sounded so slow when speaking to me that I am worried its now a permanent condition due to the TBI. Just…
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Meeting her in her reality doesn't always work.
Most of the time when my mother says things that aren't true, I can just go along with it and meet her where she is, but how do you handle it when she doesn't recognize my father, and wants to know who the man in her bed is? Or asks where her husband is when he's right there with her. Any advice would be appreciated!
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First Post
I’ve been following along for months now and decided it’s time to jump in. My DH is 68 and was diagnosed with EOAD and logopenic progressive aphasia. His latest neurology visit in December had him in stage 5, but I think he’s probably been dipping into stage 6 for a few months now. We’ve been married 40 years and needless…
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Subacute rehab vent
My DH Is in a subacute rehab after having his toes and part of his foot amputated due to gangrene. He is not supposed to put weight on his foot until the doctor gives the ok. Last Friday night while sundowning, he got out of bed, walked into the next room and fell. He cut his arm and has a big bruise, but nothing else. The…
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Struggling in Stage 8
my DH Lonny passed last August. I miss him so much it hurts. While I expected the mental pain I didn’t expect the physical reaction every time I think of him. I’ve been doing things to honor his memory. I moved in with my daughter and son-in-law but I feel alone. I don’t have any friends nearby and family is so busy. My…
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Importance of connection for caregivers
Just thought I would share a recent experience. My DH bounces back and forth between stage 4 and 5-mostly five. We recently took a car trip to visit family and he handled the car ride very well which surprised me. While we were there he had a really bad night where he was extremely confused(more than normal), extreme temp…
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Don’t know what to do
My mom is 87 and quite stubborn and very mean, uncooperative and vindictive. She has enjoy of her wits about her to know when she’s doing as well as saying things to irritate me. She can say some very mean and hurtful things. This has always been her way like u hit me I’m going to hit you as hard as I can. She has always…
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Impossible Mom
Hello. I've been dealing with my mom for a few years now and am becoming desensitized and hopeless. I'll try and stick to the main details otherwise this will be a book. Background on mom: she'll be 87 in August. She had Lupus for years in the 70s and 80s but went into remission somewhere around the end of the 80's. Back…
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CBD to help manage symptoms
Any one have experience with CBD to help manage anxiety and agitation in your loved ones?
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Talking to who knows
My DW spends a good part of her day talking to people who I have no idea who they are. This is all in her mind as we are the only ones present. Is this a normal act of Alzheimer’s? Is it considered delusional or hallucinations? Should I be concerned about it and call the neurologist? Is there medications that help? I’m at…
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Home care, will this work or not ?
Through this journey I have realized several things . 1 . Don't set your expectations high . 2 . Throw out everything that made sense to you at one time . 3 . Seek as much help as you can . 4 . Last but not least stop feeling guilty when you didn't succeed in getting your loved one to do any of the things that come with…