Welcome to ALZConnected! You are not alone.

I try to take my DH out to do things, like listen to music, a movie, dinner, grandkid’s ball games.It is such a project, he asks the same questions over and over even though it is a place we have been many ,many times. By the time we are ready to go, I feel like I don’t want to go because once we get there I have to tell…

what can I get in case something should happen to me , caregiver, when with my wife alone and she needs to get in touch with 911? It needs to be the simplest thing to use , remembering to dial or 911 is not an option. Any thoughts as every second of delay could be life threatening

I am having trouble getting DW to engage in any activities throughout the day. In the morning and right after the afternoon potty break, she will sort/shuffle her papers and talk for about an hour to an hour and a half. Then sits down and really is inactive in the between times. She used to work in an office environment…

DH in middle stage of ALZ: lately he has had several episodes of time shifting, not the day or time, but in years. For example: last week he told our daughter that he had lost a few pounds (not) and could finally fit into the khaki pants he wore when he got out of the army. In reality, that was 70 years and 25 pounds ago.…

Compassion fatigue TED Talk [https://youtu.be/ZsaorjIo1Yc?si=L07hszirRcCX-mXP]

My father needs a break from continuous full time care giving of my mother. Any suggestions on where to find adult day care for at least one day a week. I believe she is late mid stage.

My father has been declining rapidly mentally. His depression hasn't been able to be controlled with meds and he keeps getting meaner. He's in denial but sometimes I think what I say actually makes it to his thinking process sometimes but is often turned around on me and it's my fault or something I did or didn't do. I'm…

In addition to the information on the GUIDE Program I posted about a month ago, I got a call yesterday that we are eligible for 19 four hour increments of respite care per year, from July 1 to June 30. This means up until this June 30th, I can use all 19 segments. The next step is an in-home assessment. After that the…

My dad has been newly diagnosed with Alzheimer’s, vascular dementia. I’m all to familiar with this disease, my grandmother, several aunts and uncles, and my cousin have had it. Some starting with early onset. I have been so emotional and had such anxiety since hearing the actual diagnosis about my dad. I know how this…

If your LO has cognitive issues, it is time to look at how they are taking their medications. They could easily be taking too many or not taking them at all. One of the people in the ALZ support group that I attend told us about his wife. One day, he came in and she was asleep and he had a difficult time waking her up. He…

for the last two years I have been trying to care for both of my parents with Alzheimer’s. I only lasted 5 months with both of them and had to place mom in memory care facility., dad lived with me for an additional year and I just had to place him as well. I am devastated beyond belief. My brother has autism and wasn’t…

Hello all, once again I may be just venting and processing my thoughts, but I always get helpful feedback here. Dad, 88 has vascular dementia and moved to Assisted Living near me (facility has MC as well) about 6 months ago. After a lot of work to get him to agree the transition as gone well. But I am very conflicted about…

Hello community, Dad has been in his new care home since Wednesday, so almost a week. It is much smaller and in a home-like environment. He needed a new place after a stay at a geri psych inpatient hospital due to behavioral expressions. The entire 2 years at his previous home we struggled to address the anxiety he was…

I cannot care for my husband. I am ill myself and I am not able to be a good companion. I can barely take care of daily tasks like cooking, housekeeping and trying to manage both my husbands illness and my own. My husband tries to help but often he doesn’t have the skills to do simple things anymore. He looks to me for…

My 66 year old DW has been confirmed to have mild dementia through FAST testing and a pTau 217 blood test. This diagnosis was given to us approximately 2 weeks ago. She does not remember any testing and is in denial. Up until 3-4 weeks ago, my wife's symptoms were pretty mild (forgetfulness, asking same questions multiple…

My mother is 77 years old, living independently, and diagnosed with dementia/mild cognitive impairment, along with anxiety and depression. My father passed 3 years ago, after they were married 50 years. This was followed by the passing of my brother (my mom's youngest son) at 32 just last August. She has lived in the same…

Lawmakers and advocates urged Assembly members to pass a bill that would formalize data collection for FTD. Here is an article. Advocates push for early-onset dementia research legislation | Sacramento Bee https://share.google/C2MmVedpoxUvoAPYz Iris

Hello valued forum -- we are looking for existing lecanemab users and families - who can share their experience. my mother is approved and considering treatment. we have plenty of medical input and data - but looking for human stories and lifestyle comments. welcome a discussion here or offline too! tx, jennifer

I've been a part-time caregiver for my dad for almost two months. My brother and I split our time staying with him. My mom, who had been his full-time caregiver, passed away in June. They were married for 60 years. My mom kept the extent of his condition somewhat hidden from us. Over the past couple of months, my brother…

I am new here and looking for support for myself. I am caregiving my partner who is and has been caring for his wife, diagnosed with FTD in 2016. I have been with him for over 4 years. I would never have chosen this path for myself, except I have known him for 16 years and know the beautiful soul he is. I worked with this…

Our father has been going for extended periods (40 days at a time) without showering or changing his clothes, which has led to skin lesions. He also has incontinence issues on top of it. We are limited in our ability to intervene due to legal restrictions making these challenges difficult to address, especially when faced…

On July 3rd my DW had a delusion and started packing up her clothes and was waiting for her deceased sister to arrive so she could move to her home. I could usually calm down these delusions but this time it was much different and nothing I could say would calm her down. Being I thought even if I could have what would…

Has anyone's LO been prescribed with Abilify (ARIPIPRAZOLE) for dementia related anxiety. If so, how did it work out? My wife has been diagnosed with mild dementia and is going through some big time anxiety issues. Someone mentioned Rexulti on this forum, When I mentioned Rexulti to my LO's memory doctor, she prescribed…

My mom has Alzheimer’s and in is in an Assisted Living place. She has done okay up until recently when we discovered she will only take a shower on Friday evenings and she hasn’t been using soap or shampoo. We also noticed late last year she loses control of her bowels and doesn’t realize it. We have tried to get her to…

This is from “The Pilot” Southern Pines NC Alas I can’t remember how to footnote or put in MLA. This is a local paper which gets numerous awards and I thought you would find interesting. Dr. Ben Bahr, the William C. Friday Distinguished Professor at UNC Pembroke, has been named the recipient of the 2026 Dr. Philip J. Wyatt…

Hello. My DH with moderate dementia is having daily accidents that require cleanup. When he sits down to defecate, he pees over the top / through the gap between the toilet seat and the bowl, wetting the floor and his pants. He lacks awareness when he's doing this and won't remember a reminder to try to hold himself…

Mom is stage 4. She presents herself as very confident and self assured. In her mind she has no business being in a nursing home and is perfectly capable of living in her home alone. I am the DPOA and have a letter signed by two doctors stating she is not capable of making decisions for herself. The the nursing home has…

I live about an hour flight from my Mom and have been visiting her around every month or so. This trip she was asked who i was and one time she said "my sister," and another time "my sister-in-law." When someone told her i was her daughter she looked absolutely shocked. Yesterday we were looking at pictures and she pointed…

Is there a market for used tranquil watches for resale or donation?