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Vasculitis and Vascular Dementia running in families?
Hi All, I'm the daughter of a parent with Alzheimer's (my mom.) My mother's sister - my aunt - also had Alzheimer's and passed from complications due to AD. Recently I learned that I may have vasculitis; it's not clear yet and we're still doing testing. My question for the group is about Vascular Dementia and if we know…
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Books for ALZ patients
Hi, I'd welcome book suggestions for Alzheimer patients. My mom is 85 and has been in assisted living for a year now. My dad, who was with her in AL, died of Covid last month. I live in Canada and have not been able to cross the border often to spend time with her. Mom often phones, asking where she is supposed to be and…
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The importance of respite
I haven't managed to take any real time off since ..... um .... 2019? Trying to get on top of my sister's Alzheimer's, the pandemic, work - it all takes a toll, and probably impacts my ability to be a good care giver. Finally, last week, once I was satisfied that she was doing well in memory care, I took a "spa day". In my…
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We're in the final days/hours
Guys...I'm so tired. So very, very tired. Just a heads up that this post is very much me grieving. If you're feeling fragile today, please skip it. We're all juggling enough right now. My mom is peaceful. She is resting well and breathing deeply (if very slowly). She had a fever, but we brought it down. We're doing…
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Pondering the Irony
Just an FYI - I was Lee1992 and changed my user name to MarLee92, just so nobody's to confused. I've posted about my MIL and my LO not being able to accept it. Last night I was thinking of my own widowed mom. 2 years ago she suffered a massive stroke, that was terrible. She was in rehab for 2 months, to learn to walk…
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Neuropsychology Evaluation? First Post
Hello, My mother was fairly recently diagnosed with Alzheimer's. We had been waiting months (it had been postponed once due to "insurance issues") for a neuropsychology evaluation which was scheduled for today. Unfortunately, the neurologist's child got sick and it was cancelled at the last moment. -- How important is this…
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Parent refusing care
My mom with EO is refusing to move into assisted living. I brought her to tour a place last week and she threw a fit in the parking lot & the facility said she can’t come back without a psych eval & meds. On the way driving her back to her home she attacked me in the car. I called adult protective services & they said she…
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LO was recently diagnosed with YOAD
My dad, who is 55 years old, was recently diagnosed with early onset Alzheimer's. I believe he is in the middle stages Alzheimer's, I'm not sure. For some reason I don't want to talk about any of it with friends or family, however, because of that I haven't really been able to come to terms with or accept it. One of the…
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Went to Court
Wanted to share an update on my father. We went to court this week and unbelievably my sister and me agreed to drop being guardian for my dad and went with a court appointed 3rd party. The good news is two fold, 1) it's a law firm my lawyer knows well and said they'll do great job taking care of my dad's affairs. But, 2)…
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Feeling lost and overwhelmed - New
My 75yo Mother was just diagnosed with stage 4/5 Alzheimer's, everything is happening so fast for us. So many questions and not sure where to find them. I currently for POA of both my Mother and Father, but the doctor said I need to go to court for guardianship of my Mother and both my Dad and Siblings agreed with him. Now…
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Memory care-when to begin visits
My mom was just placed in MC last week. She is 69 and in that part of stage 5 where she's physically still well and ambulatory but very disoriented--confused why she is there and a lot of exit seeking. We were advised to keep visits to a minimum to help her with the transition and I'm in agreement as I know visitors would…
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I new here.
I’m Liz. My 80 y.o. DH was just diagnosed with dementia. He is stage 4/5 out of 7. I’m 18 years younger. I knew he was changing for almost 2 years because I was becoming increasingly annoyed with him and things he was doing. Now he has been diagnosed this month. He also suffers with severe uncontrolled diabetes. Most of…
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1st post, 90 yr old mom thinks my dad still alive
HI, My 90 year old mom was recently diagnosed with Alzheimer's. My latest concern is she said yesterday that my dad went into the hospital a few days ago and she wants us to ask the doctors if he can come home for Thanksgiving. How do I respond to that? Do I tell her he died 9 years ago??
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Refusing Bathing in MC
Hi Everyone, mom is now on a twice a week bathing schedule, and has done ok so far. However, this week, she refused both showers. I'm wondering how other MC's handle this. Is there a length of time they allow the resident to refuse, are they always allowed to refuse? I understand its a difficult dilemma for many residents,…
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First post - not sure where to start
My mother (75) has shown increasing signs of dementia over the past 2 years, but it was slow and sporadic. However, during the past 2 months, we have seen a rapid decline in her cognitive abilities. This is a woman who was a powerful top executive, sharp, in-control of all situations, and stubborn-stubborn-stubborn. Both…
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Television, streaming services, and streaming Internet ideas and REVIEWS
Hello. I'm looking for engagement ideas and want any advice you can give. This is for my mom, who is in mid-stage of Alzheimer's. We have had hit-and-miss with various televised programs, streaming service programs (Netflix, Amazon Prime) and Internet streaming videos (YouTube and others). Unlike Siskel and Ebert of the…
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Mom is obsessed about money in memory care
Whenever I visit my mom in memory care she becomes fixated on me bringing her money. Each time I tell her I forgot and will bring it to her next time she erupts that I keep promising to bring her cash but I never do. I try to divert her, change the subject, but she keeps coming back to it. Why don't I bring her money?…
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Advice - Placement issues for LO with EO Alzheimer's & stroke
Hello, My father was diagnosed with EO Alzheimer's in January at the age of 54. Soon after getting his diagnosis, he suffered a major stroke that left deficits on his left side and he is no longer able to stand on his own. We noticed the stroke also progressed his disease immensely. He was placed in a nursing facility…
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Irrevocable Family Trust
My parents put some of their assets in an irrevocable trust. If my father wants to go to assisted living will the trust be protected. On the other hand too would we be able to get the assets back. If you have assets do you have more of a choice to be accepted from Assisted living? They still have some assets. I am also…
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Won't Give Up the iPhone and Accusing Everyone of Stealing
Hi everyone! My grandmother (73) has been diagnosed with middle to late stage Alz. Her body is very capable, except for her memory. She lives in an AL residence currently but is still holding onto her iPhone and she refuses to give it up. However, she constantly calling people multiple times or even calling in the middle…
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Odd situation
Sounds strange but I care for my girlfriend's wife. She was originally diagnosed with Parkinson's 8 years ago then it was determined it was parkinsonism. Progressive super nuclear policy with dementia, her father had lewy body dementia. My problem is her delusions and hallucinations are directed with my daughter it's a…
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Palliative care for LO with dementia?
Hi, I am primary caregiver for my 83 yr old mom with RA and dementia. She moved into our home (husband and me, lots of pets) 3 years ago when she was having difficulty continuing on in her AL apartment. She has continued to decline and in the last 3 months has had severe falls landing/injuries to her head. It’s really…
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Advice for Managing with Sexual Aggression
I was hoping to hear from the folks in the community on what may have worked for your loved one if you've gone through this. Since my father moved into a MC he has unfortunately fallen into a pattern of sexual aggression with the other female residents. Over the last two years, we have tried many different therapeutics but…
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I want to help my mom help her mom, but I don't know what to do
Hi everyone - first-time poster. I apologize in advance for my complete lack of knowledge and understanding of the disease, but I'm trying to figure out how I can help. My grandmother has been struggling with Alzheimer's for several years. She lives in an independent living facility, and has full-time caregivers, including…
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So My Mom is not getting the Booster Shot
HHello everyone, this COVID 19 is back. I just need to vent again. I don't have the final Say when it comes to my mother's care so she is not getting a booster shot. I am not happy about it. I am my Dad's primary caretaker and made sure he got it. Just wondering if anyone is going through this, where you want your LO to…
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tentative calm
Emergency hearing went well. Our CELA attorney was great. To quote my little brother, " it was like we brought an uzi to a knifefight." Permanent trust agreement is pending. I expect an irrevocable trust and care manager to be in place a little after Thanksgiving. No guarantee to actually see Dad, but a very trusted and…
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Therapeutic Fibbing?
Hello all! I haven't posted on here in awhile. My GM and I can tell that my Grandfather's AD is getting a little worse. He often remembers things that never happened, like thinking we went out somewhere when we actually stayed home, or thinking that he went to work when he's been retired for a long time. My GM and I…
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New to the board-mom of 2 little ones w/ dementia mom living with us now
Hi everyone, I'm a 46 year old mom of a 1 1/2 year old and a 4 year old. My husband (who is 52) and I have been married almost 5 years, been in our home 3 years. I say this because we started our family late in life and are smack in the middle of enjoying our young family. My mother has Dementia (diagnosed last February)…
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New to board--my mom has dementia
Hi, My mom's memory has been declining for several years but especially in the last year. She and my dad (ages 85 and 86) moved to a graduated living facility 3 years ago. Now as mom goes through the stages of dementia I've read about, I'm mostly worried about my dad serving as a 24/7 caregiver. Mom is mostly happy and…
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Just got the dementia diagnosis
DH was diagnosed with dementia this week. Went from mild memory loss in April to moderate to severe this week. He seems content, but sleeps most of the time. Gets up to eat then back to bed. Needs to be reminded to complete personal hygiene tasks such as bathing and putting on clean close. Doesn't talk much. I am so sad…