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Finally! Much Needed Family Meeting.
My sister suffered a fall followed by 4 days in the hospital and a rehab stay. She's set to discharge from rehab soon and the plan has been for me to bring her home with temporary ramps, etc. Then we had our follow up visit with the orthopedic doctor. Based on what he said, I believe my home has too many obstacles for my…
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Speaking of music ... music therapy
I saw this article on The Guardian (from the UK) today. I like it. From the article: Music therapy has been found to ameliorate symptoms of dementia, such as anxiety, apathy, depression and agitation. Its impact is similar to exercise in releasing endorphins, with recreational group singing in particular leading to…
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Caregiving Apps
Hi there, I just downloaded the free app, Carely, to see if we can organize care and visits for my aunt. Her husband is her full-time caregiver and we are trying to make it easy for him to let us know when he would like a break or help. Have any of you used Carely or other app? Any good tips? Thank you.
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New Here & Need to vent - Mom has Alzheimer's and Dad is stubborn...
Hi Everyone - I am so happy to find this community as I am definitely struggling with many things! I mostly just need to share and vent and I appreciate the space to do so. Here goes. My parents (married 60 years) live together in a 55+ community (independent - no outside help except family) about 30 minutes from me. My…
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Temporary Mc stay?
My sister, who lives with me, recently fell and fractured a bone in her foot. She is currently in rehab set to discharge this week. The original plan was to bring her back home with me, but,.now I'm not so sure. The orthopedic Dr has waffles a bit about how much weight she should bear on her injured foot. My home is…
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Help
I’m thinking I’m a bad daughter bc I am not a patient person and when my mom ask me the same question 16 to 18 times I start to get a little mad. I know it’s hard in her and she doesn’t understand but working full time and taking of her . Let me fill you in. I took care of my step dad and my mom . My first husband died 20…
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Brother with VD, diagnosed in July '23
Hi. I am new to this. My first post. My brother is newly diagnosed with VD, but a neurologist just said he is in mid stage. She said to keep his brain active but I'm struggling with finding an option. He hates puzzles and solitaire and is not computer savvy. He used to do wood working but we need to keep him away from…
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Return From Respite Stay?
I've been reading posts on respite stays but haven't found any answer to one question I have. How did your LO do upon return home? How did they readjust to being home?
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Seeking ideas for finicky eaters
I care for my wife who suffers from AD. A big family Thanksgiving dinner yesterday made me aware just finicky her eating has become. No to turkey, mashed potatoes, stuffing, green bean casserole. We ending up giving her two of her favorites - steamed green beans and blueberry muffins. Ice cream did go down easily as well.…
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Care.com
I searched the archives and didn't see a discussion about this. Has anyone hired a caregiver through Care.com? What was your experience? Did you pay for their service to handle the payroll taxes?
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CCRC's. Good idea or bad idea.
New to Forum. Me 62/She 56. She was just diagnosed with early onset 2 days ago. We will be relocating from South America back to the USA. I am open to different States as we do not want to return to cold dark Alaska. (WA,TX,NV,UT,AZ, maybe FL.) I have looked at a few of these and they seem to offer many different options &…
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An observation
I think it's very interesting the things my husband hangs onto versus the things he has forgotten. Some things that I thought would be muscle memory are gone, such as which direction to turn a faucet. But other things seem to stick, such as speaking in a gentle voice to animals. One really surprised me today. I was…
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Tempers and Outrage
My mother has been diagnosed with Dementia and Parkinson's but is refusing to admit she has it which I am aware that this is normal. She is going against everything I try to assist her with including what the doctors have suggested for her. She has made me out to be the "bad guy" very publicly as well as point blank to my…
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When does this end? Advice needed
Heres our story,,we live in a small town in rural Kentucky, seeing as there are no good memory care homes my MIL lives with my brother in law she is 85 years old, was assigned hospice in Jan 2023 6 months later, hospice renewed for another 6 months,,coming up for another 6 months renewal in a couple of weeks,,mother is…
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Lack of care at AL- how to address
There have been multiple times that my mother has not received the care she supposed to receive in her assisted-living facility. The things she has not received are not life-threatening or anything (showering, helping get dressed or get ready for bed), but I am feeling very frustrated by this considering the huge amount of…
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PWD over-estimating their abilities - any strategies for coping?
My 94 yo mother was diagnosed with dementia last July. She is in stage 4. She lives in a CCRC. She's been there 6 years in a cottage living independently. Now we have a succession of aides coming in for various tasks, like medication management and general supervision. She complained about that a lot at first, but seems to…
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So tired of this
I am having trouble caring any longer. I have two LOs with dementia. Both are is assisted living (together). One is my mother. I’m okay with her. She’s sweet and easy to care for. The bigger issue for me is my sister. She’s a complainer, always has been. I do feel for her, but I never expected or wanted to be her…
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Follow the bouncing ball
MIL is in MC with dementia. She was in Hospice but was discharged because she had stabilized and was doing fairly well. Now MC asked us to bring Hospice back. Because MIL is declining at a rapid rate. MC cited mobility problems, loss of appetite and severe confusion. I have seen all of this myself. (No UTI) Two days and a…
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Time for the move out of her home...but she's a smoker...plus I'm not sure how to pay for it...
I know it's time for my mom to either move to a memory care center, or move in with me. I live 2 hours from her. She has been doing well on her own, but in the past week her memory and verbal ability has taken a a downhill turn. Her house is getting dirty and she's not bathing. Everything is tidy and she is neatly coifed,…
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Getting Up and sleeping More
Hi, my mum has alzheimers, was daignosed 3 years ago roughly. I have posted in my mum and dad before. When we eat now she gets up literally every 30 seconds and wanders about and my dad says she does the same at night, its driving him mad. She also sleeps a lot during the day which would explain the walking at night. Any…
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FTD Group
Hi - @GG06 started a group for FTD caregivers. Sharing the link under the general caregiver board in case you don't look at the spouse board. https://alzconnected.org/group/28-ftd
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I do not think mom was ever happy, could there be a link?
I believe any answer to my question could never have a scientific basis or ever be proved or disproved, but sometimes I just wonder if my mother's overall unhappy status with her life might have any connection to her current dementia. Plenty of times my mother could be cheerful, happy, sociable, and funny. She has had…
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Off topic: pneumonia in dogs associated with kennels and group settings like daycare
For the dog lovers among us, the Washington Post had an article yesterday about a brewing outbreak of respiratory illness in dogs that is highly fatal and unresponsive to treatment (probably viral but they are not sure yet). It's showing up in group settings like kennels and daycare, and can start with a cough like the…
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Simple Universal Remote
I am looking for a simple, large button, remote control that handles the TV, Cable box, and sound bar. Mom is still in the milder dementia days and finds two remotes too difficult to remember. Unfortunately the remotes I'm finding by Googleing only control two things not three. I was hoping people in the group can…
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I'm asking a question but she thinks I'm giving orders..
That's what I think is happening. I ask..."are you ready to go to bed?" She says, "I guess." She doesn't sound thrilled but she goes upstairs. I get that a lot and I sometimes think she does the "I guess" or shrugs her shoulders because she thinks she's being ordered to do something. I'm asking, not ordering & I try to use…
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Thankful
This is a bit early, but the granddaughters put me in the mood. They do this on their kitchen window every year. I personally am grateful--to be alive, to have support of family, friends, this forum.
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Thinking someone is 2 different people
So my mom has been doing this thing. It started with her granddaughter (who she is very close with) and now me. Over a year ago she began thinking there were two Mayas (her granddaughter) - one older, one young. I figured it was because she remembers Maya as very young and now she’s a young woman. She would regularly ask…
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Mother with early onset Alzheimer’s
Hi everyone! I’m here for support through this hard to wrap my head around diagnosis. My mother is only 62 and has been diagnosed with early onset Alzheimer’s. She has been living alone and has been doing ok as far as I know. She had been repeating herself but nothing else was alarming keeping her from living…
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Finding support group for the person with dementia
There seem to be numerous in-person support groups for caregivers, but I have not found an in-person support group for the people who have dementia. My mother recently received a dementia diagnosis. I think she might benefit from discussing her feelings with others who are going through this. If you or the person you care…
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Rosalynn Carter
Rosalynn Carter, former First Lady, passed away this morning. She was age 96 and was diagnosed with dementia.