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Its been a minute...Update
Hello, all you wonderful people. Though Im sure you don't feel so wonderful. But don't forget, you are. There are so few people on the planet, that can do what you're doing. Keep it up. I'm on the other side now. However, I'm not the perfect example, yet. It's been only 143 days since my mom left. The whole time I cared…
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I'm burnt
I was listening to a guilty pleasure goth band I like (Ashbury Heights - if they were a mainstream band, they'd be Abba), and the lyric "On the worst of days I'm a burned out candle" hit home. That would be me, the burned out candle. I've always tended to love my work, so burn out hasn't been a thing for me in the past.…
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Won't do this again
My partner got both a flu shot and the covid booster yesterday, and when i got to her MC today about noon she was in bad shape-confused, shaking, hurting all over, and she'd had diarrhea during the night. Appears to have been too much for her system to give them simultaneously. She slept all afternoon-some better when i…
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Persistent Hallucination?
I'm not even sure what to call it. Peggy has a frequent, recurring hallucination of The Lady. When Peggy refers to The Lady you can hear the capital letters just in the way Peggy brings her up. This hallucination is really upsetting for Peggy. The Lady is always going to do something "bad." Obviously there's no one there.…
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Mom is unhappy, but well cared for
Dear Mom has Alzheimer’s. I estimate Stage 5. My dad is her primary caregiver. I am the back-up hands on caregiver. We all live in the same house since mom was discharged from the rehab hospital in late September. Mom was in the rehab hospital bc she fell and broke her leg/hip. Home Health is providing occupational therapy…
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Bible Verse to Lift You Up 11/1/23
ALL MY HEART Matthew 22:37 New Living Translation 37 Jesus replied, “‘You must love the Lord your God with all your heart, all your soul, and all your mind.’ TODAY’S VITAMIN When we love God with all our heart, soul and mind, it means we put Him first in our lives. Nothing is more important than spending time with Him in…
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One step forward , ten step back !
Guardianship process is still underway .. Protection Mandate in Canada last month was rather smooth, she started Risperidone .25mg once a day it seemed to calm her paranoia, but now looks like it is wearing off..doctor will increase the dosage The geriatric doctor who did all the testing has advised the Driving Bureau by…
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Destroying Things
I care for my mother-in-law and she spends a lot of time destroying things. Tearing things apart (especially anything made of paper or cardboard) and writing on things (marble coasters, artwork, kitchen tools, anything), cutting things up (the corners of furniture). I have no idea what to do. I don’t give her a hard time…
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Why the PWD cannot handle Questions
I’ve been reading that PWD cannot handle questions. I can see this in my DH. He does not know how to respond or says something that is not true. It’s a really astounding thing b/c it cuts off so much of the verbal communication you’d normal have & highlights the PWD’s passivity and disability/dependency. I’m just…
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Green tea study
This interesting study suggests that epigallogatechin (EGGC) in green tea can help breakup tau tangles, which would improve neurotransmissions. https://www.nia.nih.gov/news/study-green-tea-and-other-molecules-uncovers-new-therapeutic-strategy-alzheimers Hyperphosphorylation and nitration can cause tau to aggregate, both of…
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92 Year Old Grandmother (Dementia due to aging) & 63 Year Old Uncle (Frontotemporal Dementia)
My wife and I were recently appointed guardianship of her grandmother as her son whom has lived with her his entire life , he had epilepsy and had a right frontal lobotomy 20 years ago, she is suffering with extreme anosognosia of nothing being wrong with her (CHF,Fibroids, had 1 minor stroke and 2 heart attacks) and that…
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My grandma is too anxious to watch TV that she used to love. Is this because of Alzheimer's?
Thanks a lot for your help in my previous post about my grandma repeating questions. I have a new question and appreciate you sharing your experiences. My grandma used to love watching TV, especially drama series and opera. But she seems to now lose interest. Even if I setup the TV and play one in front of her, she will…
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Not blame PWD, but blame myself for frustration
I'm sure most of you have figured this out, but it was so easy to blame the PWD for behavior. I would get frustrated and say (often to myself) "Why did you mix the salt with the sugar?" or "Why did you unplug the charger?" I realize that I would never think that way if a young child (or even a cat for that matter!) behaves…
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Medication help - Mother forgets she has taken her AM pills and is insistent she needs them (during
Hello! This is my first post here (after joining last year) because I have been able to read all the wonderful advice everyone has given for those who have had questions regarding the care of their loved ones and I have experienced the same things. I now need some advice regarding my mom's medication and how to handle her…
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Just like a shut down my web sites I am shutting down the information I share here
I can not continue to share 3rd party information that I feel would help you all. I have access to the best folks in and always hot off the press. When I thought it would be helpful I shared it with you . But I am really getting tired of being the one that has to defend things here. If someone wants to step up to receive…
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Progressive Aphasia
Is Aphasia similar to Alzheimer's disease in the stages of progression?
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Pros and cons of reminiscing
This article states that reminiscing can be a part of a daily plan. I agree that remembering pleasant parts of the past may bring joy. However, I am afraid that if it reveals people who have passed away, or recalls good things that are no longer here today, it may bring sadness. So I may need to be selective. Does anyone…
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Don’t know if this is funny or terrifying!
So far we’re laughing and just shaking our heads. My husband came to me frustrated, exclaiming that our water heater had quit, with just a towel on. We all know how daunting that news is. I took a few and then went to a sink and tried it. (Meanwhile he’s rushed into the crawl space, a difficult place to repair or replace a…
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Shoulder Rehab with Dementia?
My mother with Lewy Body Dementia broke her upper arm with a fall, just below her shoulder a couple weeks ago. At the time, the ortho surgeon on duty recommended "conservative approach" rather than surgery, so we have been resting with physical and occupational therapy in home since coming home after the 2 day hospital…
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Driving - got Mom’s doctor to have “the talk” - I feel so guilty
This is my first post. I apologize it’s so long. My 94 y.o. mother was diagnosed with dementia in July (mixed ALZ/vascular). I’d say she’s gone from stage 3 to stage 4 in just a few months. My brothers and I have been trying to get her stop driving. We encouraged her to take advantage of the on-call driver in her CCRC…
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Bible Verse to Lift You Up 10/14/23
Hoping all my friends here are strong in the Holy Spirit. Hugs to all, Ronnie (Veronica Kelly Badowski) FORGET THE PAST & PRESS ON Philippians 3:12-14 New Living Translation “I don’t mean to say that I have already achieved these things or that I have already reached perfection. But I press on to possess that perfection…
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DICE Approach?
Anyone have experience with DICE Approach, specifically their caregiver training material?
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Humor for animal lovers
During our nine hours in the ER today i commiserated with my partner and told her i bet she felt like she'd been hit by a truck. You need to know that a) she's an animal lover, and b) her hearing is not great. "Hit by a duck?" she cried, "oh, i hope i didn't hurt it!" I think we have a new family saying.
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Who Would Have Thought To Look There?
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DH will not see a doctor
I am new to the group. Thank you for support and comments. My husband has all the systems, but refuses to see a doctor. He has other health issues that he also ignores. We have no children or relatives near. I am the one he takes all of his aggression and anger on. Does anyone have experience with the loved one refusing to…
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Replacing hearing aids
My mother is in skilled nursing facility with mid-stage dementia. She has hearing aids and has lost one of them. It is normal for her to have them come out during the day and need to be put back in. We had them on a cord attached to her shirt but she still managed to lose one. My quandary is- to I replace the missing aid?…
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It's been a while
So it's been a while since I've posted. Mom went into memory care during peak COVID in 2020. I visited her when I could. Then I fell off. I was dealing with so many personal issues that I just couldn't handle the visits. Last time I had seen her, she still knew who I was and was happy to see me. This time, it's been so…
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FTD caregiver thread on Spouse Board
Hi all- we started a thread for caregivers whose LOs have FTD over in the spouse/partner section. Just wanted to share in case you're interested but don't spend time in that part of the forum. https://alzconnected.org/discussion/66798/calling-all-ftd-caregivers#latest
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To Bra or Not to Bra?
That is the question. I liberated Mom last month and removed the bra from our daily dressing routine. The bra straps and back strap were leaving red marks in her skin. After sleeping in her clothes one night, she woke up rubbing at the areas irritated by the straps. The bra is sized correctly, but her skin is getting…
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Sister Refusing to Get Ready This Morning
This morning, my sister was having difficulty with the buttons on her pj top. She has gained some weight so the top buttons pop open. We need to buy her some different PJs without buttons. She & I are the only ones in the house so it rarely bothers her that she goes to the bathroom with some buttons undone. In the…