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VISUAL DISFUNCTION IN DEMENTIA TIPS
i found this info about ALZ-Posterior Cortical Atrophy and thought I might help someone else. There is a tip sheet you can download at the link at the end of the first paragraph. Visual Disfunction also affects people with LBD. https://medschool.cuanschutz.edu/pca/what-is-pca/tips-for-living-with-PCA
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Change in mental status
My father, 88, broke his back in January,2023. Had surgery but he's not the same anymore. I learned that anesthesia and narcotics can affect his mental status and his dementia has been getting worse since then. He was given Lexapro, an antidepressant and he had an anaphylaxis attack. He fell recently and broke his pelvis.…
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PWD & physical/occupational therapy
Hi everyone :-) How do you know when to stop PT/OT? Brief context: Dad fell, broke his hip, had hip surgery, was diagnosed with dementia while in ER, was transferred to subacute rehab for PT/OT. We made the decision to bring him home because his mental health and cognition were heavily declining in SAR and he was not…
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Recliner chair
Does anyone have a recommendation for a good recliner? My mom is in AL but is rapidly losing cognitive abilities. Her recliner has a pull handle that pops the footrest out, but requires her to push it down with her legs until it clicks into place. She no longer has the strength or the understanding to do this. She leaves…
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I am reaching out/for what IDK? just some advice, comments or anything? Dimenitia
I am my mother's caregiver other than we have 54 hours of home care and without them ladies helping me, I wouldn't have made it this far, but its getting worse and my mother is 86 and she is starting to say how she hates me and just gets so mad when I try to prevent her from the main thing lately is she wants to go to my…
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Strategies I've Used
STRATEGIES FOR LIVING WITH AN ALZHEIMER’S VICTIM: Being reasonable, rational, and logical DOES NOT WORK!!! Neither does arguing, pleading or manipulating, keep communication simple and direct. They don’t have to be grounded in reality. There’s no need to re-live their pain. Distraction works. We don’t know what they can or…
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Anosognosia - How To Help When They Don't Know They're Ill
Sharing this article again: https://dailycaring.com/6-ways-to-help-someone-who-doesnt-know-theyre-ill-anosognosia-in-dementia/
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Bible Verse to Lift You Up 7/21/23
Dear Friends. Your comments are welcomed, and I read them. If you have any personal thoughts on the verse, please feel free to share. I just prayed for everyone who reads this discussion. Peace always, Ronnie (Veronica) * SHOUT FOR JOY BIBLE REFLECTION Psalm 33:1 (GNT) “All you that are righteous, shout for joy for what…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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If your loved one is in a facility
If your LO has advanced medical directives make sure the facility knows about them and remind them occasionally since there’s so much staff turnover. If they send your LO to the hospital do not assume they send a copy of the directive. Do not assume that the hospital has a copy. You may have to show up with a copy to make…
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NEW PERSON: need help/advice/don't know what to do
My mom and I do not know what to do about my dad. He has been acting irrational and loses his temper a lot. I have heard him tell my mom he wants a divorce and that she is no longer his wife and I am no longer his daughter. He has repeatedly say to my mom that he wants a divorce then a few hours later he claims he never…
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OT - sort of - 9/11 and Peggy
Peggy had gone to Hawaii and was supposed to come back home on 9/12/2001. Instead, all air traffic was grounded. Peggy ended up staying in Hawaii until the planes were allowed to fly again. This was a traumatizing event for her. She was always a nervous flyer, but this was it for her. She wanted no part of that flight…
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Accused of Stealing
My partner’s mother has accused my partner’s brother of stealing money, but we know this isn’t true as his mother has made similar accusations as a result of her forgetting where she keeps her money. Despite our attempts to remind her where her money is kept, she continues to make these statements which has frustrated and…
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Aging in Place Workshop (information originally from Michael Ellenbogen)
This looks like a good workshop: VIRTUAL WORKSHOP Aging in Place with Dementia September 13–15 | 12:30–4:15 PM (ET) The majority of older adults prefer to remain in their homes and communities as they age. For persons living with dementia and their care partners, there are both individual needs and community…
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A couple of new resources I just became aware of...
...you might find them helpful too. First, I've been very much enjoying the podcast, Confessions of a Reluctant Caregiver, of which I became aware of when they booked me for a interview - hasn't aired yet, but a couple of weeks ago they interviewed Christina Keys, who I've known of in the caregiver space for awhile as a…
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Upcoming festival for dementia family caregiver documentary
Hey guys, I posted yesterday, but forgot to remove links that led to ticket purchases, so I'm just putting in the info, and if any of you are able to attend you can easily find the festivals. North Beach American Film Festival - North Beach, Maryland, Saturday, September 16 @12:30 pm Awareness Festival, Los Angeles, CA,…
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Wet Macular Degeneration shots
Last month Mom was diagnosed with wet macular degeneration. She had dry and it suddenly turned wet. She only got a few minutes notice that she was going to see a specialist upstairs and get a shot. The specialist turned Mom’s chair so that she was flat on her back, with her knees still bent. He didn’t didn’t walk her…
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How to help parents transition to new facility
Dad was hospitalized in FEB23 for uropathy. Since then, he has to rely on foley catheter for urination. To date, Dad's dementia(ALZ) went from stage 4 to late 6 within 4 months. Not only was it hard on Dad, it was also hard on Mom. Her dementia (vascular) also took a step down to mid stage 5. It is heartbreaking to watch…
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tamper-proofing machinery
My Dad has Alzheimer's and frequently checks the oil on his car, lawn mower, etc even when it doesn't need it. He often forgets to put the filler cap back and has ruined some equipment this way. Does anyone have suggestions on how to tamper-proof machinery so he can't damage it? We don't let him drive the car, but he likes…
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Kicked out of memory care for wandering
My Dad wanders into other people's rooms at memory care. Last week he did this when a patient's son was visiting and the son got very upset, which made my dad get upset and confused. The son complained saying that my dad is creating an unsafe environment. The memory care is now kicking my dad out because they are afraid of…
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Stabbed in the heart….😞
My dh has been in memory care for almost 2 years. Today I picked him up and met friends for breakfast and went to visit his sister and niece afterwards. Brought him home and basically had a good day sitting on deck and cooking dinner. He said “ should we leave early “?, meaning going back to mc… he thinks he works there.…
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Trying to support an aggressive grandfather
I’ve been taking care of my great grandfather for almost two years, the rest of the household is too harsh to him and it causes problems. I cannot convince them to get him help. I am 20, cannot drive and have put everything aside to take care of a three person household. How can I help my grandfather who has gotten worse,…
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VA Website for Geriatrics & Extended Care
Found this link today and it's very helpful if you have a Veteran who has memory loss. It also has some educational videos for caregivers. I read a report by the NIH that Veterans exposed to Agent Orange have a 50% more chance of having Alzheimer's or Dementia. Although it's not on the presumptive list, you can file a…
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Surgery with dementia?
I posted earlier in the week about mom reversing her sleep cycles. On Friday she fell and hurt her head and back. She was released from ED as no fractures or anything out of the ordinary in her labs. Returned to AL where she was unable to stand and get herself off the toilet. When I left on Friday evening she was a "2…
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Caregiving & College?
Hi everyone! I’m a new poster but long time lurker. I haven’t seen any threads on this topic so I thought I’d ask. I’ve been caregiving for more than a year for my grandma with dementia (taking shifts almost with another relative). I started caregiving when I was around 18 or 19 and I had to drop out of college, there was…
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Guardianship Reports (NYC Based)
Good Afternoon, I hope everyone is doing well. I know we are located all over the world, but I was wondering if those near the NYC/NYS vicinity had any recommendations on who could help me prepare my annual guardianship report- due this past May, so very late. I've asked 100 people and no one can help. I think I just need…
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Off Topic - I dodged a bullet - Burning Man
I go to Burning Man periodically, but had no plans to go this year. Peggy's caregiving has been intense the last couple of months. But some of my Burner friends almost convinced me to go with them - they had extra tickets and everything. It really is a place where, with no computer screens, intermittent cell phone service,…
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Kinda OT , 4 legged caregiver
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I Lost the War, but Never Gave Up
It comes with a completely destroyed heart... That my war is over. I never gave up. I tried my best and my best wasn't enough. My mom passed away on Monday the 12th of June at 6:05 pm. And everything about it was horrible. With all the ER visits and sleeping with her in many ICU's, It came to this. It felt like a movie.…
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Aromatherapy and Cognitive Function
This study used a diffuser for two hours a night on participants without dementia. The seven essential oils used separately were: rose, orange, eucalyptus, lemon, peppermint, rosemary, and lavender. https://cnlm.uci.edu/2023/08/01/sweet-smell-of-success-simple-fragrance-method-produces-major-memory-boost/ The 226 percent…