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Fiblets causing problems later
I have read discussions of fiblets here and elsewhere, defined to be "an untold truth told to a person with dementia to make him feel better" or to make a PWD " is relieved and reassured" Do you see a fiblet causing problems later? Let's say a PWD and I mutually knows a person, who has a terminal disease the PWD is not…
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delusions money
My wife ,age 73 ,is at stage 4 {I think} Over the past 3 or 4 years she has accused me of taking cash or checks from her 5 different times. Yesterday I almost caught her taking $700 from my wallet. I'm sure she has it hid somewere by now. Her memory is very bad , so there's a good chance she will not remember she took the…
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Hospice
How do you know when to call Hospice for an evaluation??? He is Stage 6-7
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Renters Insurance and Liability in MC
When my LO moved into MC , the Director suggested we take renters insurance and liability, mostly in case my LO jammed up and forgot the water running and caused a flood. I let that go and now want to move forward with it since I can definitely see my LO putting things down the toilet or soaking something in the sink and…
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Hearth breaking
So Mother 92 showing signs of dementia, we went to meet geriatric doctor to perform memory testing . After all the testing , doctor said she has a short term memory profile , showing signs of Alzheimer disease with delirious thoughts she was prescribed Risperidone 0.25mg once a day. she does not want to take it … She is…
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Diabetes 3 and can Dementia be reversed with the right diet?
So the human body can run on two fuels, glucose and ketones. Glycogen is stored in the liver and muscles and is the main source of fuel for the body. When the liver and muscles run out of available glucose it switches to ketones. Around 100 years ago they found out infants that had seizures and were put on a low carb diet…
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Caretaking decisions are so hard
in the past year I’ve made so many decisions. Placing my mom in AL (moving her out of state to be closer to me). Taking her to two different neurologists and primary care docs. Taking her to the ER. Placing her in memory care, while figuring out if her NPH is treatable. I am not sure she’s ready for MC. She seems so much…
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Shoes for neuropathy - what a day
Mom is constantly complaining about her neuropathy. Her neurologist for neuropathy ( different one than her neurology NP for her dementia() doesn’t want to increase her gabapentin due to the risk of falls. She’s on 600 in the morning, 300 at lunch, and 600 at night. She is 85 and can’t take more than a couple steps without…
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Discussion with Authors on Dementia who have Dementia
This is a reunion of five authors who came together on June 15, 2021 to talk about their diagnoses, how they cope with their conditions, manage to keep active and vital, maintain a positive attitude, and much more. We wanted to get together two years later to see how their lives have changed since we first met. It may be…
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From delusions to happiness
This is unbelievable, for the last 9 months mother 92 was getting more and more delusions and paranoia , she did not trust her kids or anyone anymore, except doctors and pharmacist. she became more and more delusional, we managed to take her to a geriatric doctor who performed memory testing, the whole time , she could not…
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Non-stop talking
My dad has dementia, and we have been going through various stages with him over the past year that have been quite challenging. Recently he was having delusions that were causing him quite a lot of distress, and we were able to get him on Seroquel, which thankfully has helped with that. We have moved on to a new…
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At Home Salon & Spa
I found this online and thought I would share. I haven't used it yet but keeping it in case I need it later. They do haircuts, pedicures, manicures. They do not wash hair though. They also have senior companionship & house cleaning. They are in 12,000 cities in the US. If anyone has used them let us know how it went.…
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Bible Verse to Lift You Up 8/26/23
JESUS SAVES US * HE IS OUR SHEPHERD Isaiah 53:6-7 New King James Version 6 All we like sheep have gone astray; We have turned, every one, to his own way; And the Lord as laid on Him the iniquity of us all. John 10:27 NKJV 27 My sheep hear My voice, and I know them, and they follow Me. me: We've been compared to sheep. They…
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Being a Caregiver
I follow Mary Millben on Social Media. She posted this recently and it really hit home. "To most of you, you see the Mary onstage singing for U.S. Presidents, Prime Ministers, people across the world. But the real Mary, offstage, is a full-time caregiver. I am a caregiver to my precious mother. Caring for my mother,…
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Grandma refuses to see psychiatrist
I'm primary caretaker to my Grammie, who has multi-infarct vascular dementia. She's still in early stages and very present, but has recently developed compulsive behaviors, heightened anxiety, and obsessive thinking. I'm not sure if she has anosognosia or is uncomfortable with acknowledging these issues, but she refuses to…
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Probably too late - trying to get my mom to neurosurgery
I cannot believe this. My mom is in MC after a hospital stay. I have an appt with neurosurgeon to see if she has NPH and is a candidate tor a shunt. It’s in an hour and she is refusing to go. The staff are doing everything they can, including offering to go with her (unheard of). It was VERY hard to get this appointment.
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Florida memory care (Medicaid LTC) recommendations?
Anyone personally familiar with any memory care unit(s) -- Medicaid LTC eligible -- in Florida? Please reach out, if so. DM, if you'd like. (I don't need a list of SNF's with memory care. I've got that. Looking for personal recommendations.)
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Young Adults Dementia Relatives
This is something that often goes unheard when it comes to young adults in the world who loving as they are, when it comes to many of the concerns on how to care for a relative(s) that have Dementia, they don't have the full training in being a caregiver. People around them know they're the best family member, so they're…
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My Mom Died
Hi there. I haven't been on here for awhile since my mom was in Stage 7 and nothing much changes then. For some reason though I felt the need to come here today to report to you all that she died on Saturday. I guess it's just to have those of you who know what it's like witness her. It was September last year that I…
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Steep decline from severe to late-stage from mirtazapine (Remeron)?
My mom used to have severe dementia, but her geriatric specialist prescribed mirtazapine (generic Remeron) for my Mom's anxiety. My mom is tiny, 108lbs, so the doc prescribed a quarter of a 15mg tablet for the first two days (3.75mg), then half after that (7.5mg). Even after the first tiny dose that first evening, my Mom…
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Time sensitive: Mom is in a delirium but is refusing treatment
Hello community - my mom is experiencing a delirium of some sort right now but is refusing to get treated. She's been sick recently and her regular doctor has said she should go to the ER, but mom is refusing. I tried to take her myself yesterday but she almost jumped out of the car while it was moving, so we didn't make…
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Memory Care Discussion - Financial Exploitation
Looking for suggestions on how to encourage a family member to go into a memory care facility. Although she is very good with her activities of daily living, she has been exploited financially by someone posing as her best friend. I think we now have that situation under control, however, we feel she can no longer live…
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Bathroom help
My mom is in mc since April. She is having trouble finding the bathroom, so when she has to go, she is literally pulling her pants down and having accidents all over the facility. We have upped her care, so they are with her and taking her to the bathroom at least every two hours. But she will lay in her bed and get up and…
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Re: Family Caregivers
"A New Medicare Proposal Would Cover Training for Family Caregivers" Kaiser Health News. www.kffhealthnews.org Scroll down to this article. Family caregiver usually get no training. This could help. Sorry, I cannot make a hot link. Iris
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Standards or regulations related to changing diapers
Mom recently shifted from walking and occasional incontinence to being wheelchair / bed-ridden. She's in rehab now (South Florida) following surgery. My question is around expectations (and legal/regulatory) for how often they should be cleaning/changing her. The rehab facility is "ok" in general. However, tonight around…
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Activities for LO with Dementia/AD
I am new here. I am caring for my DH who was diagnosed about 2.5 years ago, although I believe the disease process began years earlier. He was always an avid golfer and belonged to a summer league. Last summer he began having trouble keeping up with his golf buddies, and this year he gave up the league entirely. A neighbor…
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Need alarm help or tips. DH gets up & goes into the closet instead of bathroom
any tips on how to keep my DH from going into the closet instead of going to the bathroom? He's done it 4 times. He says he "gets lost" but it's almost like he's sleep walking. The 4 episodes have been in the last few months. So far he has made enough noise it woke me up and I redirected him, but afraid I won't make it in…
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Florida Elder Affairs Survey
Please see this link to a survey of caregivers by the Florida Dept. Of Elder Affairs, for those who live in Florida. https://app.smartsheet.com/b/form/5b2b041b2d1244f68dc138f9da85c6f5?fbclid=IwAR2NanJHMMNdSErh-kMKUiRiQreKkYuYYvUK8iuJ2XWY39BSvIKbqfwehGU
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Fall on vacation, broken bones & worse dementia
So my mother owns a house where she and my father lived before he passed away. She insists on going there every summer since we convinced her winters are too harsh in lake effect snow, and until this year we had no problems because my sister is a school teacher and goes with her every year. Unfortunately this year mom had…