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So far so good … guardianship in the process
92 years old living alone in Senior Housing appartement, still very physically in shape but loosing it .. We finally managed to bring mother to 2nd doctor’s appointment to have her tested and send off the papers to the Notary for our Protection Mandate to be homologated ( I think guardianship in US) we are in Canada. Not…
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Monoclonal antibody not effective in pre-clinical Alzheimer’s Disease. NEJM
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Caregiver Burden and Lack of Support with Loved One with Dementia (Behavioral)
Hi All, My grandma was diagnosed with bipolar in her 40s, and since her 70s has further been diagnosed with dementia. She is an Italian immigrant with little education, but has lived in the US since the 1960s. Her spouse passed years ago, so her support system includes my mom, and only a few of her siblings (my mom is my…
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Regarding my other cousin
I am posting to get an idea of how much I should push. This is regarding y my 85 year old cousin who had knee replacement surgery eight days ago on the other side of the country. She has now been in a rehab hospital for two days. For two days, she has not had any physical therapy. They are still "evaluating" her. She was…
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Bad night-Need to vent, share my solutions & discuss options.
My DH, 78, diagnosed 2 years ago, recent changed diagnosis not good: Rare ALZ-Posterior Cortical Atrophy. He's Stage 4 on the ALZ-PCA staging which is Stage 5 on the ALZ Dementia Staging. He's been angry & agitated & is on 1/2 tab Risperidone am & pm which is not helping. He's also been very depressed lately saying he…
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Recounting events that didn't happen
My mom was diagnosed with mild dementia a little over a year ago. Up until this point the main issue is her not remembering appointments, paying bills, eating meals, etc. She has also forgotten how to use the computer, find programs on the TV, do her taxes, etc. Yesterday my mom told me that she had a long phone…
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A heartwarming story
From The Washington Post. At Japan’s dementia cafes, forgotten orders are all part of the service https://www.washingtonpost.com/world/2023/09/19/japan-aging-elderly-dementia-care/
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QuickZip Sheets? Are they worth it?
Has anyone used the QuickZip sheets or something similar? They are expensive and just wondered if they are worth it vs just layering regular sheets. My daughter is coming over to help me put a waterproof mattress pad on the bed and I want to do at least an extra layer while she's here. So far no bed wetting but he's…
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caring for a LO with paranoia
I am new at caring for a person with ALZ. My LO has thought that she expresses to me about suspicions, frustrations and resentments of other family members. I don't know what, if any to share, what to blow off and what to help with. He throught become obsessions some times and I am afraid family members who don't quite…
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Speaker for TV for hard of hearing
My mother was diagnosed with MCI in 2018. She is getting worse slowly but I can deal with most things. She is hard of hearing and wears hearing aids. The issue is she will be moving in with me soon and she keeps her TV very loud. At night in bed, she takes out her hearing aids and the TV is on full blast. She leaves it on…
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Lecanemab Treatment in the US; Remternetug trials in the UK/Europe?
Hello. I am new to this forum. My beautiful Mother has just been diagnosed with Alzheimer's. She recently tried for the UK-based Aducanumab trial but sadly failed the criteria test by a few points. We want to explore the option for her to go to the US for Lecanemab treatment (as this is now fully FDA approved over there)…
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Questions to ask of a Home Care provider?
Hello - wondering if anyone can recommend good questions to ask of a potential Home Care provider? I have an introductory or "in take" meeting scheduled with a representative at a local Home Care company later this week at my parents' house. Parents are aged 85 and 88 and currently living independently at their home, and…
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VISUAL DISFUNCTION IN DEMENTIA TIPS
i found this info about ALZ-Posterior Cortical Atrophy and thought I might help someone else. There is a tip sheet you can download at the link at the end of the first paragraph. Visual Disfunction also affects people with LBD. https://medschool.cuanschutz.edu/pca/what-is-pca/tips-for-living-with-PCA
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Change in mental status
My father, 88, broke his back in January,2023. Had surgery but he's not the same anymore. I learned that anesthesia and narcotics can affect his mental status and his dementia has been getting worse since then. He was given Lexapro, an antidepressant and he had an anaphylaxis attack. He fell recently and broke his pelvis.…
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PWD & physical/occupational therapy
Hi everyone :-) How do you know when to stop PT/OT? Brief context: Dad fell, broke his hip, had hip surgery, was diagnosed with dementia while in ER, was transferred to subacute rehab for PT/OT. We made the decision to bring him home because his mental health and cognition were heavily declining in SAR and he was not…
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Recliner chair
Does anyone have a recommendation for a good recliner? My mom is in AL but is rapidly losing cognitive abilities. Her recliner has a pull handle that pops the footrest out, but requires her to push it down with her legs until it clicks into place. She no longer has the strength or the understanding to do this. She leaves…
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I am reaching out/for what IDK? just some advice, comments or anything? Dimenitia
I am my mother's caregiver other than we have 54 hours of home care and without them ladies helping me, I wouldn't have made it this far, but its getting worse and my mother is 86 and she is starting to say how she hates me and just gets so mad when I try to prevent her from the main thing lately is she wants to go to my…
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Strategies I've Used
STRATEGIES FOR LIVING WITH AN ALZHEIMER’S VICTIM: Being reasonable, rational, and logical DOES NOT WORK!!! Neither does arguing, pleading or manipulating, keep communication simple and direct. They don’t have to be grounded in reality. There’s no need to re-live their pain. Distraction works. We don’t know what they can or…
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Anosognosia - How To Help When They Don't Know They're Ill
Sharing this article again: https://dailycaring.com/6-ways-to-help-someone-who-doesnt-know-theyre-ill-anosognosia-in-dementia/
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Bible Verse to Lift You Up 7/21/23
Dear Friends. Your comments are welcomed, and I read them. If you have any personal thoughts on the verse, please feel free to share. I just prayed for everyone who reads this discussion. Peace always, Ronnie (Veronica) * SHOUT FOR JOY BIBLE REFLECTION Psalm 33:1 (GNT) “All you that are righteous, shout for joy for what…
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Bible Verse to Lift You Up 9/12/23
Friends, again I thank you so much for your messages. Hugs to all of you! LOVE THE LORD * Deuteronomy 6:5 New King James Version 5 You shall love the Lord your God with all your heart, with all your soul, and with all your strength. * Whatever we desire most becomes most important to us. * Be loyal to Jesus, our Savior and…
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If your loved one is in a facility
If your LO has advanced medical directives make sure the facility knows about them and remind them occasionally since there’s so much staff turnover. If they send your LO to the hospital do not assume they send a copy of the directive. Do not assume that the hospital has a copy. You may have to show up with a copy to make…
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NEW PERSON: need help/advice/don't know what to do
My mom and I do not know what to do about my dad. He has been acting irrational and loses his temper a lot. I have heard him tell my mom he wants a divorce and that she is no longer his wife and I am no longer his daughter. He has repeatedly say to my mom that he wants a divorce then a few hours later he claims he never…
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OT - sort of - 9/11 and Peggy
Peggy had gone to Hawaii and was supposed to come back home on 9/12/2001. Instead, all air traffic was grounded. Peggy ended up staying in Hawaii until the planes were allowed to fly again. This was a traumatizing event for her. She was always a nervous flyer, but this was it for her. She wanted no part of that flight…
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Accused of Stealing
My partner’s mother has accused my partner’s brother of stealing money, but we know this isn’t true as his mother has made similar accusations as a result of her forgetting where she keeps her money. Despite our attempts to remind her where her money is kept, she continues to make these statements which has frustrated and…
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Aging in Place Workshop (information originally from Michael Ellenbogen)
This looks like a good workshop: VIRTUAL WORKSHOP Aging in Place with Dementia September 13–15 | 12:30–4:15 PM (ET) The majority of older adults prefer to remain in their homes and communities as they age. For persons living with dementia and their care partners, there are both individual needs and community…
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A couple of new resources I just became aware of...
...you might find them helpful too. First, I've been very much enjoying the podcast, Confessions of a Reluctant Caregiver, of which I became aware of when they booked me for a interview - hasn't aired yet, but a couple of weeks ago they interviewed Christina Keys, who I've known of in the caregiver space for awhile as a…
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Upcoming festival for dementia family caregiver documentary
Hey guys, I posted yesterday, but forgot to remove links that led to ticket purchases, so I'm just putting in the info, and if any of you are able to attend you can easily find the festivals. North Beach American Film Festival - North Beach, Maryland, Saturday, September 16 @12:30 pm Awareness Festival, Los Angeles, CA,…
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Wet Macular Degeneration shots
Last month Mom was diagnosed with wet macular degeneration. She had dry and it suddenly turned wet. She only got a few minutes notice that she was going to see a specialist upstairs and get a shot. The specialist turned Mom’s chair so that she was flat on her back, with her knees still bent. He didn’t didn’t walk her…
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How to help parents transition to new facility
Dad was hospitalized in FEB23 for uropathy. Since then, he has to rely on foley catheter for urination. To date, Dad's dementia(ALZ) went from stage 4 to late 6 within 4 months. Not only was it hard on Dad, it was also hard on Mom. Her dementia (vascular) also took a step down to mid stage 5. It is heartbreaking to watch…