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Can't find previous discussion.
I'd posted about when to know to move somebody from one home to another....my LO is constantly being sent out to the hospital, and they don't want me to visit her or take her out for a while....says it agitates her when I leave. Is this reasonable? She was so sad the last time I saw her (in the hospital), how can I not…
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Can't figure out the site.
I posted a message, thought I saw that there were some responses but can't figure out how to see them. Cannot find a phone # for any assistance.
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Choosing a facility for memory care
I’ve been taking care of my mother for the past three years. Although I raised concerns to her various doctors about her cognitive problems since at least 2017, she was only diagnosed at the beginning of this year with mixed dementia (AD and VD). I am at a point where I will need to make a decision on placing her in a…
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Making changes to routines better sooner than later
I read in the forum that it's better to make some changes sooner than later, since a PWD can still adjust to it. Examples: use of a bidet, use of safety equipment, senior's telephone. Thus learn to use those before you're unable to learn. I was under the impression that a PWD can only/mostly recall things from many years…
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Good article about Alzheimer's & music - and a recent music experience I had with Peggy
I saw this article about music and Alzheimer's, which spoke to me, so I thought I'd share it along with some music news about Peggy. The article: Still there: Alzheimer's has ravaged his mother's memory, but music brings her back This is the same for Peggy. We were listening to Madonna in Peggy's room the other day, and I…
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Late Stage / Hospice
I'm looking for insights from anyone who has experience with hospice care, particularly for someone with Alzheimer's disease. My sweet 91-year-old father has recently experienced a significant decline. He has lost a considerable amount of weight because he has almost completely stopped eating (a couple of bites a day for…
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OT Musical break
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Nighttime sleep disruption
My DH with Alzheimers has recently been experiencing disruptive sleep. He will awake feeling quite anxious and restless, feeling like he can't get a breath. He will get up and wander around, turn on lights and then return to bed. No sooner does he lie down and the pattern repeats itself less than five minutes later. It…
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Bible Verse to Lift You Up 9/29/23
*Friends, As always, thank you for your comments. May God bless each one of you. Ronnie FAITH OR SINK Matthew 14:30-31 New King James Version But when he saw that the wind was boisterous, he was afraid; and beginning to sink he cried out, saying, “Lord, save me!” And immediately Jesus stretched out His hand and caught him,…
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My mask fail at Peggy's memory care
I'm kicking myself for this one... I always wear a mask when I'm in memory care, for many reasons, and I try to keep them cheerful. Over the last year I've been wearing this mask: Candide. When my s.o. reordered, he accidentally got me one that looks like this: Chakra. It's a blue pattern and I didn't think anything of it.…
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SafetyNet - how to get them to wear it?
My DH, 78, Stage 5 going into Stage 6. He tried to leave the apartment the other night to use the bathroom. The VA gave us an alert button that has a clip for his belt but he won't wear it. Does anyone use SafetyNet? Our Sheriff's office uses it and it is a watch. Just don't think he will wear it either.
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Memory Aid
I'm new here. I have a wife diagnosed with Alzheimer's and a mentally-handicapped some now diagnosed with rapidly advancing dementia. This is due to his mental disabilities. He is going to a rehab center from the hospital and we want to put something electronic together for him to help with his loneliness, as well as…
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Started mirtazapine last night - issues falling asleep
UPDATE 9/30 - Good news!! The Geri Psychiatrist took him off the Mirtazapine after 2 bad nights. She said she will discuss it at his next visit 10/17. And more good news, he has had 3 good nights after he came off it. I added a CBD gummy at night and that seems to help. I added more light in the bathroom and left our…
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Venting, not sure how
I don’t know how all of you do this day in day out care giving. I am a patient as I can be, ( I a nurse for heaven’s sake!) I do all I can to help, fix the meals, so the laundry, pill box, dry erase board… on and on and on, yet he still acts like I am going out to a party when I go to work. Or when I work at home, he acts…
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Recommendations of Videos to watch
We are bracing ourself for a long haul ;) would love recommendations on Videos my family and I could watch to help us understand this incredibly destabilizing disease so far I watched a few videos from Teepa Snow , good but not very well filmed ..
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Donepezil withdrawal - anxiety/ADD?
Mom’s neurology NP is weaning her off of Donepezil due to the bowel issues it caused. Mom was extremely bothered by the bowel issues and the resulting clean up needs. Originally mom was on the 5mg level for several months and then raised to the 10 mg level a few months ago. The NP considered the 10 mg the therapeutic…
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Fall Prevention
It's Fall, and this is the time to review fall prevention tactics. This is valuable for all older adults, not just PWDs. Some hospitals or senior centers offer free or low cost balance evaluations and/or balance exercises. There are many sites on the internet to review fall prevention. A somber note: forty percent of hip…
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detailed question list to assess progression?
Sometime in the past, I did an interview as part of some research study and I was asked a series of really detailed questions about what my partner could and couldn't do for herself. The questions really got me thinking and now that some time has passed, I'd love to look at that list again and think about how the answers…
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So far so good … guardianship in the process
92 years old living alone in Senior Housing appartement, still very physically in shape but loosing it .. We finally managed to bring mother to 2nd doctor’s appointment to have her tested and send off the papers to the Notary for our Protection Mandate to be homologated ( I think guardianship in US) we are in Canada. Not…
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Monoclonal antibody not effective in pre-clinical Alzheimer’s Disease. NEJM
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Caregiver Burden and Lack of Support with Loved One with Dementia (Behavioral)
Hi All, My grandma was diagnosed with bipolar in her 40s, and since her 70s has further been diagnosed with dementia. She is an Italian immigrant with little education, but has lived in the US since the 1960s. Her spouse passed years ago, so her support system includes my mom, and only a few of her siblings (my mom is my…
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Regarding my other cousin
I am posting to get an idea of how much I should push. This is regarding y my 85 year old cousin who had knee replacement surgery eight days ago on the other side of the country. She has now been in a rehab hospital for two days. For two days, she has not had any physical therapy. They are still "evaluating" her. She was…
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Bad night-Need to vent, share my solutions & discuss options.
My DH, 78, diagnosed 2 years ago, recent changed diagnosis not good: Rare ALZ-Posterior Cortical Atrophy. He's Stage 4 on the ALZ-PCA staging which is Stage 5 on the ALZ Dementia Staging. He's been angry & agitated & is on 1/2 tab Risperidone am & pm which is not helping. He's also been very depressed lately saying he…
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Recounting events that didn't happen
My mom was diagnosed with mild dementia a little over a year ago. Up until this point the main issue is her not remembering appointments, paying bills, eating meals, etc. She has also forgotten how to use the computer, find programs on the TV, do her taxes, etc. Yesterday my mom told me that she had a long phone…
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A heartwarming story
From The Washington Post. At Japan’s dementia cafes, forgotten orders are all part of the service https://www.washingtonpost.com/world/2023/09/19/japan-aging-elderly-dementia-care/
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QuickZip Sheets? Are they worth it?
Has anyone used the QuickZip sheets or something similar? They are expensive and just wondered if they are worth it vs just layering regular sheets. My daughter is coming over to help me put a waterproof mattress pad on the bed and I want to do at least an extra layer while she's here. So far no bed wetting but he's…
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caring for a LO with paranoia
I am new at caring for a person with ALZ. My LO has thought that she expresses to me about suspicions, frustrations and resentments of other family members. I don't know what, if any to share, what to blow off and what to help with. He throught become obsessions some times and I am afraid family members who don't quite…
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Speaker for TV for hard of hearing
My mother was diagnosed with MCI in 2018. She is getting worse slowly but I can deal with most things. She is hard of hearing and wears hearing aids. The issue is she will be moving in with me soon and she keeps her TV very loud. At night in bed, she takes out her hearing aids and the TV is on full blast. She leaves it on…
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Lecanemab Treatment in the US; Remternetug trials in the UK/Europe?
Hello. I am new to this forum. My beautiful Mother has just been diagnosed with Alzheimer's. She recently tried for the UK-based Aducanumab trial but sadly failed the criteria test by a few points. We want to explore the option for her to go to the US for Lecanemab treatment (as this is now fully FDA approved over there)…
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Questions to ask of a Home Care provider?
Hello - wondering if anyone can recommend good questions to ask of a potential Home Care provider? I have an introductory or "in take" meeting scheduled with a representative at a local Home Care company later this week at my parents' house. Parents are aged 85 and 88 and currently living independently at their home, and…