-
radio program about caring for PWD
I found this episode of Fresh Air on NPR to be a good listen especially for those just starting out on this journey. Dr. Sandeep Jauhar is a cardiologist in New York who also cared for his father with dementia. I'm looking forward to reading his book called "My Father's Brain." Even as a highly trained physician he had the…
-
PIVOT TRANSFER
im a new in home caregiver.i have been working with this 77 year old dementia patient.im just now getting to know her and find out things about myself as well.lets just say it's been one hell of an experience.i got hired w absolutely any experience.on april 14th ill be working with an 84 year old woman who is very weak due…
-
CAREGIVER STRESS
im currently working with a 77 year old lady w dementia.im an in home caregiver.i work every other week.i have only worked for one week.. and honestly do not think i can survive another..im on the verge of a nervous breakdown right now..they hired me with no experience at all..i thought it would be a breeze but have…
-
activies
my client has really bad anxiety if shes not doing anything..she loves coloring but she needs more things to do..i put music on for her, making jewelry with beads,hand massage, coloring, helping out around the house...if anyone knows more activies to share please let me know...thank you
-
burnout
im a new caregiver..no experience what so ever but got hired anyway...im running on EMPTY..im exhausted and stressed to the max...im caring for a 77 year old female dementia patient.i have been working going on a month..my client has anxiety and insomnia...i HAVE BOTH OF THEM and are currently on meds for them..they work…
-
Health Insurance Denied
My sister (who is now deceased) was recently sent to a skilled nursing rehab facility after a fall that left her non-ambulatory. Her health insurance pre-approval was denied, and after 2 appeals on my part, I have been told by the rehab facility that the reason for denial was because she had Alzheimers. The insurance…
-
New Group
Trying a new group chat where everyone can just talk about anything and everything realtering to caring for others with dementia and alzheimer's. That being good, bad, wanting to be herd, positive, tips and tricks, and any questions we can al help each other in any and every way we can. Story of your day/day's, Just want…
-
A day for yourself
I feel like I need at least one 24hour period all to myself to do as I want when the fancy strikes. I am constantly working or trying to care for mom and others trying to force me into social interactions with people who just don't understand "no, I'm exhausted from caring for mom, I want to be alone." I have so many…
-
Taking vacation
This week on Thursday my husband and I are trying to get away for a long weekend. My dad is in AL and I visit him almost every day. So this will be the first time I will be away from him for 5 days. I have arranged for my two sons and his brother to visit while we are away. Is there anything I should be thinking about or…
-
Are outings/visits to home for LO in MC good or harmful?
My mom has been in MC for just over two months now and I’m really struggling with trying to figure out if it is better to always visit her there or if it is OK to take her for outings, or if taking her out of her safe surroundings and routine does more harm than good. For the most part, she has settled in to her new…
-
quetiapine fumarate
Does this medicine help with hallucinations or delusions?
-
Why did your LO move from AL to MC?
My mother moved to AL in December. I worry (maybe unnecessarily) all the time about them telling me she needs to move to MC. I mainly worry about the increased cost and her running out of money faster. I'm hesitant to ask the facility what would necessitate the move, because they also own the MC and I don't want them to…
-
Link to Understanding the Dementia Experience
The alzconnected link to this article may no longer work. Try this instead Smashwords – Understanding the Dementia Experience – a book by Jennifer Ghent-Fuller
-
I am unable to access the Vanderbilt Survey by clicking on the link provided
Has anyone been able to access the Vanderbilt survey via the link? Or by copying and pasting the link into their browser?
-
Therapist for Dementia Caregivers in Philadelphia area
Can anyone recommend a therapist in the Philadelphia area who specializes in therapy for dementia caregivers? I’m the type of person who likes to be in control and plan for what will be happening. Of course, that’s completely impossible for helping my sister who is in the early stages of dementia. I know there is no…
-
Two Months at Memory Care/Assisted Living and Suddenly Showing More Confusion
Hello, My mom has vascular dementia mixed with Alzheimer's. She is high functioning however does get confused with where she is and time. She is independent in many ways with showering, eating and toileting. She went to this Memory Care facility unwillingly but once arrived and became involved with activities she enjoyed…
-
Looking for the positive regarding the new alzconnected platform
I am deflated. Navigating the new platform is wearing on me. I am frustrated. I am 58. I consider myself a very experienced computer user. Before I left the workforce in 2020, I'd say I am proficient in evaluating information system development life cycles (SDLC). A noteworthy positive is the new alzconnected community…
-
Remote caregiving ... don't know what to do
Hi all. I did not see a separate forum for Remote Caregivers so I hope it is OK to post here. I'm sure every conceivable topic has already been asked and answered on this forum but I'm just too worn out to read through thousands of posts. So forgive me if I am asking the same old things. My current conundrum is: Should I…
-
Daughter with early onset
Are there no others in this quiet sorrow? I am a retired nurse with long dementia care experience. It's my 58 year old daughter in this instance, and her sister and I are overseeing her care. We are not fitting any present category but wish there was more info addressing this topic, parents caring for child with dementia.…
-
So angry at dead people
No formatter is installed for the format not-found
-
Trouble with in-home care
We've been having in-home caregivers from an agency coming to help out around the house and to tend to mom since late July/early August. One thing that I've noticed is that no one sticks around for much more than a month. I know one got fired from the agency, at least one had health complications and can't work anymore,…
-
Bible Verse to Lift You Up 4/15/23
TOO WONDERFUL FOR ME * Job 42:1-3 New Living Translation Job Responds to the Lord 42 Then Job replied to the Lord: 2 “I know that you can do anything, and no one can stop you. 3 You asked, ‘Who is this that questions my wisdom with such ignorance?’ It is I—and I was talking about things I knew nothing about, things far too…
-
FIL has dementia, can't handle finances, but is unwilling to relinquish control
First, I'm new here, and decided that rather than doing a bunch of research I'd risk it and just go ahead and ask my question. I'm sure its a common one. My FIL has early stage Alzheimer's but he's convinced that nothing is wrong and its just normal aging. He's not aware of his deficits which can make him difficult to…
-
Rate and manner of progression?
Hi all. My Dad just turned 87 and was diagnosed with Alz/VD about two months ago and has several other various health issues. He is in a good CCRC and moved from IL to AL about six weeks ago. I'm new here so I don't know if the 7 stages at alzinfo.org is a common framework, but it seems helpful to me. I think my Dad is…
-
out of the house Activities
Trying to fine things for seniors to do in the Rock Hill, South Carolina area that can work with people that have Alzheimers. Any suggestions? Also needing companionship for female. Suggestions?
-
Not Changing Clothes
My mother dresses herself. However, she keeps wearing the same clothes, maybe changing her shirt occasionally. When I have her shower, I put out all fresh clothing in a neat pile on the bathroom counter and ask her to give me her dirty clothing so I can do laundry when she's done. She comes out in the same clothes she had…
-
Increasing the view of the discussion (since the current fonts and images appear so small)
Greetings all. Like many of you, I am having difficulty with the smaller avatars and fonts. My workaround is to increase the view of the discussion. This works when I am on my laptop. I have no idea what works on a mobile device. Once I am at the page I am interested in, I press [control] and then [+]. I usually have to…
-
Looking for attorney who represents adult children with Alzheimer's parent
Hi Everyone, My mother has Alzheimer's. I now live with my parents. We have difficult family issues. My father is in denial and focuses on himself. I understand his fear. The real problem is his four sisters. They have hated my mother since they started dating. Although my father came from poverty, my mother came from a…
-
Cutting edge care
https://dementiaallianceinternational.org/blog/balancing-risk-and-engagement-the-dutch-approach-to-dementia-design
-
Hypochondria
Hello! My mother was diagnosed about two years ago. She has likely been struggling with it much longer but was very independent and hid it well... plus, well, the pandemic and isolation. Fast forward to today. She has had a "sore throat and aches" every day since February 2022. She wakes up and is "very sick" often…