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Bible Verse to Lift You Up 3/26/23
Amplified Bible The Excellence of Love 13 If I speak with the tongues of men and of angels, but have not [a]love [for others growing out of God’s love for me], then I have become only a noisy gong or a clanging cymbal [just an annoying distraction]. 2 And if I have the gift of prophecy [and speak a new message from God to…
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PLEASE NOTE THAT SOMEONE HAS PULLED UP MULTIPLE OLD THREADS FROM TWO YEARS AGO, SO LOOK AT THE DATE
Had to get it all in the title. Someone has pulled up many very old Threads from 2021; these are no longer active and mostly, the person initiating the Post is no longer on the Board. Please look at the date of the original Thread and then the date of the last Post to ensure this is something you wish to spend time on…
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Need NYC Doctor Reccomendations
Good Afternoon All, I know that everyone's insurance is different, but I was hoping for at least a place to start. I need to find my mother a good neurologist. in NYC.... Her current doctor talks at her and not to her, she speeds through appointments and comes unprepared, and doesn't really seem to understand that having…
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how to travel with husband at stage 4 alzheimer's
At the neurologist appointment 3/1/23, my husband's diagnosis went from MCI to alzheimers. We were in Egypt 2/8-2/18/2023 with a packaged tour company where my husband became confused to time and place. Recently learning that I am now a caretaking wife (I just stepped down from working to retirement), how can we still…
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Experience with spinal tap to test for NPH
I am interested in hearing what other caregivers have experienced when taking their LO for testing for normal pressure hydrocephalus (NPH). I understand that fluid is removed with a spinal tap (lumbar puncture) and if NPH is the problem a temporary improvement in gait/mobility results. I am trying to think through the…
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Medication - when is it ethical to stop providing medication
The facility crushes my mother's medication and mixes it with pudding. My mother began to spit out her high blood pressure medications, along with some others. The result was she became unresponsive and the hospice nurse labeled her as imminent. We drove down to see her on her supposed death bed only to find her up…
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How to know when Hospice should get involved
My LO (mom) who is only 69 yo was diagnosed a year and a half ago with Mixed Dementi. She has vascular dementia and Alzheimer’s. Our original concern was that mom had lost significant weight and was spitting food out on the floor or in a napkin. She went from 132 to 91 pounds. She was screened for cancer and that was…
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World Premiere of Wine, Women, and Dementia
Pop the corks! Throw the confetti! We are pleased as a punch in the face to let you know the dementia family caregiver documentary Wine, Women, and Dementia has been accepted in to the Julien Dubuque International Film Festival, April 26 - 30, 2023! We don't have a schedule for our screenings yet, but if you've been…
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Is this the end?(3)
Mom has been rapidly declining over the past few weeks with two stroke-like events and increased drowsiness, declining communication ability, and increased Mobility issues. Now, today, she is barely able to stay awake. They were having to wake her between bites of food to get her to eat anything. One thing to consider is…
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2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and T
The National Institute on Aging (NIA) will host the third triennial National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers/Care Partners on March 20-22, 2023. The Summit will build on the progress of the previous Summits to review research progress, highlight innovative and…
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Interesting Alz pre diagnosis
Early Alzheimer’s disease could be diagnosed through eye exams, new study suggests | Fox News
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Re: new platform
If there are threads that you want to refer back to, be aware that bookmarks from the current platform probably will not work on the new platform. Also, you will not be able to search for a particular thread by date, because the archived threads will all have the same date, or close to the same date. This is how it…
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What do you wish you had done in preparation for the severe stage?
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@ Doctor Tim
Welcome. I see that you are a doctor for your local Conservator's Office. I am wondering what type of new information you are seeking? I was a doctor in my working years, in pediatrics. I knew next to nothing about dementia. I have since learned a lot. Iris L.
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My wife's EO is causing me to feel hopelessness every day.
I feel overwhelmed by the severity and frequency of my wife's symptoms. Yesterday, she stood next to the wrong car in the parking lot. It was not even the same color as our car (which we have had for years). I had to convince her that she was standing next to the wrong car. She has lost much of her ability to read. She…
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Type 2 diabetic or hypoglycemia - Medicare changes
Continuous glucose monitors will now be covered under Medicare for people on basal(one a day) insulin shots or for problematic hypoglycemia. I believe we have a member with the latter condition? The prior requirement was three plus shots a day. My spouse and I are thrilled. Even with recently enhanced GoodRX support, we’ve…
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For Profit Memory care
Hello wonderful people, Our father is suffering from a type of dementia stemming from brain concussions (falls). He is 94 years old. Worked all his life until he fell too many times. The family is still working through shock and grief. He is in a non-profit rehabilitation center. The family is considering searching for the…
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Need your help for building a survey for those Under 65
I am trying to build a survey that impacts those under 65. What does it mean to their families and kids not to mention financially once they have cognitive issues in the job. It is so much worse than those over 65. Do you have any other ideas I should us or remove or reword. I hope to pass this on to an organization to do…
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covid 19 and dementia
i would like to know if anybody has any thoughts about the relationship between covid 19 anddementia. If somebody has dementia, and catches covid 19, has anybody noticed an acceleration of the development of dementia
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IPhone help wanted
So we are in the standard early phases of this disease. What I am looking for I hope someone else has already figured out. My mom has a sister in California. We are in North Carolina. Is there a way to control contacts in her IPhone so if she tries to call them it will not ring through until normal daytime in California?…
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My wife is gettting aggressive.
My DW is beginning to get aggressive and I'm not sure if I can handle it or how to handle it. She's now starting to urinate on the floor during the daytime, when I'm distracted doing something else. I have to watch her every minute of the day. I have been getting quite frustated and question whether I really have the…
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The Road
My biological mother, Rv, has always had a problematic relationship with myself and her family. We frequently step/ped in to assist whenever she painted herself into a corner. We spent a lifetime getting ghosted unless she needed something or saw an immediate benefit in engaging w/ one of us. Needless to say the family…
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move from SNF to MC?
I'm wondering if anyone has input on advantages/disadvantages to moving my mom from SNF to MC/AL. Long story short: in October 2021 we moved swiftly to get my mom on Medicaid and placed in SNF following a hospital stay because of a fall at home. We were directed down this path by both the hospital social workers and the…
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Should we get house out of Mom's name
My mother has early dementia. I've been told that Medicare can take her house to pay for her assisted living costs. Should we think about getting the house out of her name? (if she will even agree to that) Sorry, this is all new to me and I have tons of questions. Thanks, G
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Roller coaster of emotions
DH is in memory care and is on Hospice. On a Monday, he had another one of the events where he is drooling and non responsive for several minutes. He also fell. Hospice Dr RXd an Ativan and DH recovered. On Wed my nephew and wife visited after a 4 hr drive here and DH seemed to be ok. Fast forward 4 days and memory care…
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New - Desperate
Hey there. I'm new here. I haven't looked around, but I will. But I'm desperate for help, support, advice, direction, ideas, or just a shoulder to cry on. I'm 54. My father is 82. He invited my husband and I to move in with him in 2015. The idea was that he'd purchase a house in all three of our names (hubby, Dad, and I),…
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When will she stop packing
Gosh this journey has been so hard. I love my Mom dearly but my patience is running thinner and thinner. She packs up her stuff daily at MC and I unpack and fib that it will be a couple more days before the doctor releases her to go home. When will it stop, been doing this for a couple months.
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Negativity towards CareGiver
My Mom has 24/7 care with a fabulous, kind, and patient in-home care giver. Whenever she is out of the house with someone else, all my Mom does is talk negatively about the caregiver - she doesn't like this about her or that about her, it can be anything! Distracting her, talking about other things, ignoring, etc. isn't…
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New here. I think my mom is stage 4... advice?
Hi! This is my first day here. I live three hours away from my mom and visit every 2-3 months I have two kids at home. My mom and I used to talk on FB messenger most days. Over the past few months, she talks less and less online. I'm concerned that she may be in stage 4 already. She said she sometimes gets lost in her own…
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New to this(9)
We’ve suspected that my mom has Alzheimer’s for about six months. It felt like overnight she went from maybe forgetting the word for something here and there to repeating stories and forgetting details about things she’d known cold before. But we kept hoping that maybe it was something else - she doesn’t (to our knowledge)…