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Clutching throat, "it's hot it hurts"
Mom keep clutching throat and crying it's hot, it hurts. She's had 8oz of ice cold water but is in tears. "Hysterical." Happened once before but not sure how we resolved it. Any ideas? It's an hour after her bedtime. Might have uti
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New to the site
Hello everyone! I’m new to this website. My brother and I along with my Mother was informed by a Neuropsychologist last week that she has early stage of Alzheimer’s. She still lives in her home with my brother. The doctor mentioned to me about getting a POA in place which I’ve never done before. Not sure if there are other…
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New to this
My mother has late stage dementia. My dad has hidden it from the world (family/medical) my mom was sent home on hospice care now. At home. Myself and father main caregivers. Hospice comes 3 hours a week. Issues: mom gets irate and combative when we try to change her. She sleeps all day and awake at night so I get zero…
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Swallowing assessment in a MC facility
When my mother was in the hospital and in rehab, the speech and language therapist did the swallowing assessments. Currently, she is in a memory care unit where there is no RN but CNAs. She is also under hospice, who do have nurse case managers who do weekly checkups or are on call as needed. Does hospice have speech and…
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Estrogen, Hormone Replacement Therapy, and Alzheimer's Disease
Early menopause and late hormone replacement therapy may both increase the risk for Alzheimer's disease, which may at first seem counterintuitive For awhile estrogen helps reduce myo-inositol levels which can be a factor in Alzheimer's disease. High glucose levels, high blood pressure due to high sodium levels, and Down…
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any options in MA, Alzheimer's & diabetes?
Hello, I'm new, but I'm glad I found this site. I have been very stressed out and have gotten too stuck too even move forward with any plans at this point. My mother has both Alzheimer's and diabetes. She was always somewhat dissociative, so even though she was diagnosed with early Alzheimer's a couple of years ago my…
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Moving back....
I've been living across the country from my family - including my EO LO. It's been 15 yrs since I lived near them. I just recently made the decision to move closer to all of them, including my EO LO (my sister). While it has been "easier" to manage my emotions from a distance, being closer will help with the little things…
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Communicating a Move into Memory Care
Hello. I've been overseeing care (mental, physical, financial, etc.) for my 96 year old Uncle for 4 years. He has been in assisted living and now needs to move into a memory care situation. What is the best way to tell him? Do I tell him or do I arrange for his things to moved one day while we are out and bring him back to…
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Hospice Misconception
If your LO has dementia due to ALZ or other conditions, they have a terminal disease. If they do not die of another cause(heart, etc) it will kill him. Having hospice attend your LO DOES NOT MEAN death is imminent. It simply recognizes the inevitability of their condition. There are numerous patients that are on hospice…
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Need fast acting relief for agitation.
My wife, stage 6, has occasional bouts of agitation. Some are severe, some are not; some last long, some are short. I believe it’s not often enough to keep her on full-time medication. I’m hoping for something I can give her near the beginning of an episode that will calm her down. Any ideas? I thank you in advance.
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radio program about caring for PWD
I found this episode of Fresh Air on NPR to be a good listen especially for those just starting out on this journey. Dr. Sandeep Jauhar is a cardiologist in New York who also cared for his father with dementia. I'm looking forward to reading his book called "My Father's Brain." Even as a highly trained physician he had the…
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PIVOT TRANSFER
im a new in home caregiver.i have been working with this 77 year old dementia patient.im just now getting to know her and find out things about myself as well.lets just say it's been one hell of an experience.i got hired w absolutely any experience.on april 14th ill be working with an 84 year old woman who is very weak due…
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CAREGIVER STRESS
im currently working with a 77 year old lady w dementia.im an in home caregiver.i work every other week.i have only worked for one week.. and honestly do not think i can survive another..im on the verge of a nervous breakdown right now..they hired me with no experience at all..i thought it would be a breeze but have…
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activies
my client has really bad anxiety if shes not doing anything..she loves coloring but she needs more things to do..i put music on for her, making jewelry with beads,hand massage, coloring, helping out around the house...if anyone knows more activies to share please let me know...thank you
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burnout
im a new caregiver..no experience what so ever but got hired anyway...im running on EMPTY..im exhausted and stressed to the max...im caring for a 77 year old female dementia patient.i have been working going on a month..my client has anxiety and insomnia...i HAVE BOTH OF THEM and are currently on meds for them..they work…
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Health Insurance Denied
My sister (who is now deceased) was recently sent to a skilled nursing rehab facility after a fall that left her non-ambulatory. Her health insurance pre-approval was denied, and after 2 appeals on my part, I have been told by the rehab facility that the reason for denial was because she had Alzheimers. The insurance…
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New Group
Trying a new group chat where everyone can just talk about anything and everything realtering to caring for others with dementia and alzheimer's. That being good, bad, wanting to be herd, positive, tips and tricks, and any questions we can al help each other in any and every way we can. Story of your day/day's, Just want…
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A day for yourself
I feel like I need at least one 24hour period all to myself to do as I want when the fancy strikes. I am constantly working or trying to care for mom and others trying to force me into social interactions with people who just don't understand "no, I'm exhausted from caring for mom, I want to be alone." I have so many…
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Taking vacation
This week on Thursday my husband and I are trying to get away for a long weekend. My dad is in AL and I visit him almost every day. So this will be the first time I will be away from him for 5 days. I have arranged for my two sons and his brother to visit while we are away. Is there anything I should be thinking about or…
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Are outings/visits to home for LO in MC good or harmful?
My mom has been in MC for just over two months now and I’m really struggling with trying to figure out if it is better to always visit her there or if it is OK to take her for outings, or if taking her out of her safe surroundings and routine does more harm than good. For the most part, she has settled in to her new…
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quetiapine fumarate
Does this medicine help with hallucinations or delusions?
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Why did your LO move from AL to MC?
My mother moved to AL in December. I worry (maybe unnecessarily) all the time about them telling me she needs to move to MC. I mainly worry about the increased cost and her running out of money faster. I'm hesitant to ask the facility what would necessitate the move, because they also own the MC and I don't want them to…
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Link to Understanding the Dementia Experience
The alzconnected link to this article may no longer work. Try this instead Smashwords – Understanding the Dementia Experience – a book by Jennifer Ghent-Fuller
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I am unable to access the Vanderbilt Survey by clicking on the link provided
Has anyone been able to access the Vanderbilt survey via the link? Or by copying and pasting the link into their browser?
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Therapist for Dementia Caregivers in Philadelphia area
Can anyone recommend a therapist in the Philadelphia area who specializes in therapy for dementia caregivers? I’m the type of person who likes to be in control and plan for what will be happening. Of course, that’s completely impossible for helping my sister who is in the early stages of dementia. I know there is no…
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Two Months at Memory Care/Assisted Living and Suddenly Showing More Confusion
Hello, My mom has vascular dementia mixed with Alzheimer's. She is high functioning however does get confused with where she is and time. She is independent in many ways with showering, eating and toileting. She went to this Memory Care facility unwillingly but once arrived and became involved with activities she enjoyed…
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Looking for the positive regarding the new alzconnected platform
I am deflated. Navigating the new platform is wearing on me. I am frustrated. I am 58. I consider myself a very experienced computer user. Before I left the workforce in 2020, I'd say I am proficient in evaluating information system development life cycles (SDLC). A noteworthy positive is the new alzconnected community…
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Remote caregiving ... don't know what to do
Hi all. I did not see a separate forum for Remote Caregivers so I hope it is OK to post here. I'm sure every conceivable topic has already been asked and answered on this forum but I'm just too worn out to read through thousands of posts. So forgive me if I am asking the same old things. My current conundrum is: Should I…
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Daughter with early onset
Are there no others in this quiet sorrow? I am a retired nurse with long dementia care experience. It's my 58 year old daughter in this instance, and her sister and I are overseeing her care. We are not fitting any present category but wish there was more info addressing this topic, parents caring for child with dementia.…
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So angry at dead people
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