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Dementia family caregiver documentary-1st official trailer!
We've got our first official trailer for the upcoming dementia family caregiver docuemtnary "Wine, Women, and Dementia." We're still going through the sound design and professional color, but this first trailer givers you a taste of the film to come. I hope you enjoy it! YouTube link:…
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AL or MC
What made you choose one over the other? We've been visiting AL facilities and MC places and one day think she'd do better in AL and the next day we think MC. She's in that in between stage of dementia. The MC places in our area we've visited house people who are pretty impacted by dementia. My mom can still get herself…
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Feeling Alone(7)
Hi everyone! I’m new to this forum. I’m an only child and cared for my Dad for 4 years (with my Mom and her partner’s help). Dad was diagnosed when he was 59 with vascular dementia. He is now 68 years old and lives in long term care. We reside in Canada. I’ve been feeling anxious and depressed, despite medication and my…
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Another setback
DH has been in memory care since mid August 2022. He has fallen many times,had some seizure like events and many other problems.We live in NC and the intestinal flu has been rampant. Sure enough he got it and along with it, severe diarrhea and vomiting. Several of the med techs and aides got it and....I got it a few days…
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Understanding what they are thinking
My sister is approaching the mid-stage of her disease, which hasn't been formally diagnosed since she refused to pursue a diagnosis. She was tested by her physician for memory loss, and failed abysmally. We've noticed her increased confusion that has accelerated quite a bit recently. She's begun to display behavior that…
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Looking for Resources as Well as Other to Talk To
I am son who has always been a 'momma's boy'. For the last three years I've witnessed my mother going through Dementia. My sister is her primary caregiver in another state. I've visited to assist with my mother's care as well as cared for her briefly under my own roof. Not only is her suffering breaking my heart, but it…
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current cell phone use thoughts
My brother uses his cell phone alot. Since he was a practicing attorney, phone use was very important. But now, since he is kind of stuck at his home,he uses his cell all of thr time….for entertainment ? to keep from getting bored ? to keep in touch with friends and family… there is a safety component too.. what are people…
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sudden decline(1)
Can someone with moderate-severe Alz suddenly go from reasonably cooperative to lashing out, getting in fights, and refusing to eat or take medicine? I'm accustomed to the steady decline of Alz, but this week it's like she fell off a cliff. She had to be taken to the ER on Friday and was admitted to the hospital over the…
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(For you) Alzheimer’s is…
In September of 2020, a post asked us to complete the sentence, “Alzheimer’s is…” At the time, my response was, “knowing that, if I can’t find it, it’s probably in her purse.” What a difference 2 years have made. She no longer has a purse. At the time, I had a 5-foot tall 5-year-old; now I have a 5-foot tall 3-year-old, in…
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Anxiety behaviors and meds
Hello, I have been lurking for 6 months ,just now posted our story.The forum is comforting, enlightening and therapeutic. My alz. Wife is always active moving items everywhere, walking all around the house tampering with everything,wanting to go outside, get out of here or for me to entertain her. Would this be considered…
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How to organize myself around a disorganized LO?
I am a person who obsessively plans (A, backup B, redundant C, etc) so please bear with me if I ramble. I am currently paralyzed with paths, figuring out the starting line, and am turning a blind eye to the end goal. None of which makes for the start of a good plan. Working backwards: Most recently my mother (nearly 80)…
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Talking to doctor about food and fluids intake?
Hello. To those who have in-home care for a loved one- How did your family deal with the changes in your LO when they stopped communicating needs for food and fluids?
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Called a hospice place
Hello. Some background: we've been caring for our LO in our home as her disease has progressed Her disease has dramatically progressed since last August. She no longer moves on her own unless prompted. She cannot walk because she has no balance and does not have the muscle strength. She has incontinence daily. She cannot…
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Assisted Living Transition Best Practices
Hello, My mother-in-law has cognitive impairment, most likely Vascular Dementia due to other illnesses. She has been on hospice care since March of last year and we have kept her in her home as long as possible with care givers. Due to her safety risk, her main care giver leaving the agency we were using, and a financial…
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How to bring up Power of Attorney
Happy Sunday fellow caregivers. All still going well for mom at MC/AL and it’s a relief. She’s happy, facility has taken on med management; and we even have an appt with a primary care physician. Lots of others with Alzheimer’s/dementia there and families. It’s a huge relief. Next hurdle was getting her spending and I…
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not comfortable with fentanyl for hubby
Hospice started him on it two days ago , a patch. He has not even been on morphine daily, just occasionally as needed. I am supposed to remove the patch tomorrow and put a new one on. From what I read even getting a small amount on someone who has never had an opiod can lead to death. Anyone freaked out by this med? Would…
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Pantry proof your house
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sometimes refusing to sit on the toilet or chair
This morning my DW, after getting out of bed, refused to sit on the toilet. This is not the first time this has happened. She has also refused to sit down on chairs and couch. This morning she also refused to take down her pants or underpants. Sometimes she has asked me to help her. This morning she was also experiencing…
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Caregiver Depression(2)
Has anyone else experienced this? I have been living with my mom for 1.5 years and it has definitely taken a toll on my mental health. I have lost 20 lbs and my hair is falling out. My mother is in constant need of companionship. I spend a lot of time driving her around because she does not like to be in her apartment. She…
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Lawyer appointment - successful
I met with a lawyer this morning regarding my sister's mismanagement of our mother's money. She is guilty of embezzlement and conversion. The remedy has to occur in stages. First the lawyer is going to send her a letter and suggest a payment plan, if she resists then we move in another direction. Also we, the other…
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Minor Ventilation
I just need a brief vent... I know, I know... You can't or shouldn't take the things they say serious at all...but dammit I'm not at the stage where I can just be a rock with no feeling and ignore. I'm not even sure I ever want to get to that place, but I wish I were a minute ago. I'm on my computer and she comes in and…
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How to get out of town family to understand what's going on....
My mom was officially diagnosed with ALZ in December, but she's been having symptoms for a couple of years now. She moved to Indiana to be closer to us about 3 years ago. My brother, who lives near where she used to live, shipped her off to us because he can't deal with her. So we've been caring for her, a little to begin…
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Latest interview
Our latest interview with you for “Exploring Different Brains" is now released and viewable on our site differentbrains.org, and the podcast version and transcription are both available on the same page as the video. The podcast version is also available on: Apple Podcasts | Stitcher | SoundCloud The direct link to the 26…
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This Disease is So Strange
My 90 year old ADLO has been living with me for over three years now. The disease has definitely progressed over time but until now, she has had some level of cognitive ability and enough strength to perform normal daily functions (eating, sitting walking with assistance, going to the bathroom on her own, etc.) . Her…
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Anyone ever experience Hospitals do not feed advanced dementia patients?
I recently found out that Stonybrook University Hospital did not want to feed my mom but wanted to keep her hospitalized for a week claiming they were waiting for her UTI test results?
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Bible Verse to Lift You Up 1/30/23
WE PRAY FOR OTHERS Ephesians 1:15-23 New Living Translation Paul’s Prayer for Spiritual Wisdom “15 Ever since I first heard of your strong faith in the Lord Jesus and your love for God’s people everywhere, 16 I have not stopped thanking God for you. I pray for you constantly, 17 asking God, the glorious Father of our Lord…
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Help with talking to the doctor
Both Mom (84) and Dad (87) have dementia, Mom has been diagnosed with Alzheimer's, Dad is undiagnosed but is showing signs of dementia. Last year they chose to move into an assisted living facility, mainly because Dad could no longer help care for Mom. Both of them have become increasing paranoid and are making up lots of…
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Is there a procedure to apply for Medicaid, Guardianship on my own?
I may not be able to pay the continued retainer for a CELA and may have to be forced to re-evaluate my options for handling my demented loved one who is suddenly entering late stages of dementia.
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New caregiver looking for advice
Our neighbor was diagnosed with early/moderate Alzheimer's in March 2022. She has no one to help her except myself and three other neighbors. I have become her primary caregiver this past summer. She is living by herself but we help her with meds/doctor appts, finances, groceries etc. I am trying to educate myself as…
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My frail neighbor
I am writing regarding my 90 year old frail neighbor who does not have dementia. She is a cardiac patient and is mostly homebound, she is also legally blind. Last week she fell in the shower. I told her to call her HMO and tell them that she needed home physical therapy for balance. This would enable her to have a nurse…