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Helping mom with a move
Mom is healthy ready to move out of house to a more supported living environment. Dad has Alzheimer’s so they are moving to a multi care living complex. This includes independent living, assisted, living, memory care. Mom is the key caregiver and is excited to move. Dad doesn’t have any recollection of looking up places…
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physical changes as dementia progresses and scary moment
I'm curious to know what are common physical changes that happen to PWD. My 82 year old mom has moderate/late moderate dementia but was in good physical health until recently. I'm noticing she barely has an appetite anymore and eats very little. She seems to have a harder time chewing and swallowing. Because of this I am…
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Mom died yesterday(2)
I have not posted here in a long time, but wanted to share that my mother passed peacefully yesterday. She was in the end stage of this wretched disease, and stopped eating a week ago. Hospice was on board, and helped keep her comfortable. My sister and I were by her side when she left this world. Many thanks to the…
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Fidget Blankets(1)
My LO has a habit of getting tissues, putting them in her pocket and the twisted them over and over. She doesn't realize she is doing this. I saw some fidget blankets. Has anyone used them and do they help satisfy the need to keep her hands busy?
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Good news! Hospice care!
Hello. I have tried updating since last summer with moderate frequency since we moved our LO into our home from her assisted living facility. She was deemed "pre-hospice level of care" in January 2022, and just last month she was deemed hospice level of care. She has mostly lost the ability to move on her own. It is…
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What kind of lawyer
Need help to understand what type of lawyer I should reach out to. My sister and I have POA for our mom with dementia. We haven’t formally done anything with it yet, but slowly have been working to gain her trust so we can help her pay her bills, write checks for the home care aides, manage grocery costs, etc etc. I…
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Handling hypersexuality
He keeps posting what he's trying to search for on facebook status, and he's searching for porn. He says explicit stuff in the middle of a conversation and it's so gross. And if you're here to yell at me or judge me for not taking away his internet yet then I'm not here for it. I'm doing my absolute best. No one wants him…
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My Mother-In-Law always wants to go the hospital all the time!
My mother-in-law goes to the hospital once a week. She is not sick and the doctors have told her that. We think it's possibly an attention-getting behavior but we aren't sure. There is no talking her out of it and she will even call the ambulance herself. The strange thing is she will be pacing and carrying on until the…
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New to the message board(2)
Hi all! I'm new to the message boards, but, I really need support. My husband who has dementia needs to have extensive dental surgery. We are half way through the process with all of the fittings having been done and the actual dentures and partials are ready. The surgery was scheduled for yesterday, but, at the last…
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Brand new with no idea how to start. This is my first 20 minutes.
Hello. I strongly suspect, and I am not alone, that my wife's aunt is developing some form a dementia. She is 87, never been married, and always been the one to take care of people. 4 years ago, she lost her leg to cancer, and it was decided that her brother(80), my wife's father, would move in and support her financially…
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If you haven't seen it......
Read the "Exciting News About Alzconnected" (one of the stickies on the main page). We're going to a new UI, so you should know what to expect.
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Dad diagnosed with dementia refusing to go to doctor
My dad was diagnosed with dementia in July and I cannot get him to go to any doctors, he doesn’t want to give up ANY of his independence, and he’s just all around hard headed and untrusting. I know I need to get legal conservatorship, but after that I’m at a loss. I dont know what to expect, where to turn, or anything. My…
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Mom refuses help - What can we do?
I am new to this group. My mother likely has dementia, but will not go for tests, see doctors for a proper diagnosis. She resists taking any new medicine, claiming that her children and doctors are trying to kill her, or she doesn't need medicine. She realizes that something is wrong with her brain, but she just asks if…
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communication(3)
Hello, My mother ,82, has dementia and communication with her is nearly impossible now. I dont know if I am having to much expectations in wanting to communicate with her , maybe she just cant , but its frustrating for us both .A lot of times she ends up just getting mad at me , whether its because I dont understand or…
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Need advice - how to support my husband
Hey all, I need some advice, words of wisdom from y'all. My father in law has dementia and is deteriorating rapidly. My husband knows this and acknowledges his dad has dementia, but he isn't putting anything into action (not sure what it would be, but he's doing nothing right now). My FIL lives on our property in his own…
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Extreme Distress About Confusion
My 81 year old father has dementia and is rapidly declining. He is so distressed and anxious about his confusion . He’s constantly saying how messed up things are…he doesn’t know what to do…he will say he needs help, but then says he doesn’t know what he needs help with. He is distressed and anxious to the point of tears.…
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Eating Constantly
I am new here, DH has alzheimers for 8 plus years, and is now eating all the time, He just finishes dinner and 10 min. later he says he is hungry. also he gets up in middle of night and I found him in kitchen trying to eat a piece of frozen chicken likes its a popsicle. has anyone had this problem, I really don't know what…
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OT Rainy Day Recess
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Being Mortal - highly recommended book is also a film. Link here
I did not know this was a film. Will be watching it tonight. Expecting to help me accept what I know is coming with my DH (and all of us at some point!). With so many decisions asked of us as caregivers, it can be tough to know what is best at times. Just like with 'fiblets' I learned here that the right answer is the one…
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New suckage
Because the old suckage was not enough. Peggy fell again. I'm working on getting a hospital bed and a walker. I feel so bad for her, all of this is happening to her, and she's just not that old. She doesn't yet qualify for Medicare. Remember how happy I was last night about my virtual goth night? Not a half hour after I…
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Bible Verse to Lift You Up 2/24/23
OUR GOOD SHEPHERD * John 10:27 NIV “My sheep listen to my voice; I know them, and they follow me.” * VITAMIN C 1 If we need more joy, we need more time with Jesus. Vitamin C 2 We won't get lost if we keep our eyes on the Shepherd. me: Like sheep we need a shepherd, and the only good one for us humans is JESUS. Also, like…
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Edema in Alz patients
I realize this isn't the perfect place to ask this but I'm sure alot of you are familiar with this. Mom's furomeside has been increased to 60mg but her ankles are swollen and heavy as ever. She is also complaining of cloudy vision that could be caused from said increase three weeks ago. I hate to see her (89 yrs) with…
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Getting Started(1)
Friends: I’ve been lurking on this caregiver’s forum for a while, but this is my first (of probably many) posts. I’m thankful the forum is here. It’s encouraging to see heartfelt responses from personal experiences. I hope I’ll find the support I need for my particular situation: After forty years in another city, I am…
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Newbie here...when is it time move to Assisted Living?
Both of my parents who are 82yrs old, were recently diagnosed with dementia and started on Memantine. Both have diabetes and my dad has congestive heart failure. Both have had COVID and the Flu (dad being hospitalized due to this) and it seems that each time they experience an illness, it takes more and more out of them…
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Placement
Update on my father: he is still being held in the hospital with his meds being adjusted. This has seemed to improve his agitation and anger. Unfortunately, his ADL needs have increased while in the hospital to a point he will not be able to come home, while we find a memory care or skilled nursing placement for him. It…
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Quickly losing ADL abilities, including reading ability....
My Mom was diagnosed with probable Lewy Body Dementia in mid October of last year. I think she was having visual hallucinations and runny nose for 3-5 years before her diagnosis. She has had difficulties walking for a decade, and gave up driving 7 years ago. Fast forward to today and she has lost her ability to read or…
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Rapid Onset Dementia Question
After nine months of isolation during the pandemic lockdown, my mother shifted suddenly into cognitive decline with extreme short-term memory problems and eventually confusion and dementia. After a fall six months into the decline, she passed away a month later. My question is how common is it for there to be a sudden…
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Hi Lo Bed
Does anyone have experience with Hi Lo or floor beds? This is a bed that lowers right to the floor- the concept is that the Dementia patient can’t get out of bed at night and wander. We are struggling my Mom wandering at night in the care facility and falling. They have suggested we purchase or rent this bed- want to see…
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Mom starting to have falls - Hate medications - But any truly worked for sleep?
Hello ALZ Connected, Been caring for my mom who has ALZ every since 2018. This April it will be 5 years. Have no idea how I made it except 1) I knew placement was a no-go 2) Took her off all the drugs all the doctors had her on/wanted to have her on. Over the years my mom got calmer and calmer once I got a new doctor who…
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If I get dementia
My wife’s sister posted this on Face Book and I wanted to share it. If I get dementia, I’d like my family to hang this wish list up on the wall where I live. I want them to remember these things. 1. If I get dementia, I want my friends and family to embrace my reality. 2. If I think my spouse is still alive, or if I think…