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Guiding the Care Journey: Building Dementia Workforce and System Capacity through Care Navigation
Care navigation can help close gaps in dementia care by coordinating medical and social services, partnering with caregivers, and facilitating access to disease education and community-based services. More from @MilkenInstitute here: http://bit.ly/3LGxWQK
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Elder Lawyer vs. Regular Lawyer
I am pretty new to this and doing it alone, my sister lives halfway across the country and the rest of our family is in CA. I keep seeing people talking about Elder Lawyers and was wondering if I need to see an elder lawyer specifically to set up a POA or what ever the state requires or if a regular lawyer can do this? I…
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DH 57 just diagnosed w/posterior cortical atrophy EO
My 57 year old husband of 35 years was just diagnosed with Posterior Cortical Atrophy, Early Onset Alzheimer's. He can no longer drive or work. I'm reeling from shock, grieving what should not be happening at this time in our lives and desperately trying to figure out next steps emotionally, financially, etc. I'm the…
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mom wants to go home(6)
My mom had 2 major anxiety attacks the week between Christmas and New Years that required 2 trips to the ER. I figured out it was from not taking her medicine because she had hidden it and couldn't remember where. Ever since then she does not know/realize that she is in our house. She has lived here for 20 years but keeps…
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How to help my mother in law .
I just joined this forum today and am hoping for some suggestions. My dear MIL has been diagnosed with early stage Alzheimer’s. I am married to her oldest son and she has 3 more sons, no daughters. As the DIL that has been in the family the longest (37 years) and am the closest to her, it is falling on me to be her main…
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Mother WD verbal abuse
My 82 yr old mother resides at home with my 84 yr old father. We have seen her memory decline the last 2 years or so. Six months ago, we were together with my 2 siblings at the wedding of my niece. Since that event my mother has spiraled out of control with verbal abuse, accusations and physical abuse toward my father. My…
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Disheartened that memory care is recommended-help please
I “put” my 91 year old mother in AL in November due to delusions/paranoia/hallucinations. She longed to go home and it was heartbreaking to hear nearly daily. She began to isolate more and not go to the dining room. The Nurse Practitioner changed some meds, and it seemed she became angrier, not violent or verbally abusive,…
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Mom in Law in Late Stage - Advice Needed
She's getting increasingly verbally combative and today went for a walk thinking she was going to walk to target (more than 5 miles away). When my husband and family friend went after her, she tried to flag a policeman down because he wouldn't take her to target. There's a reason we don't. They finally got her home and she…
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Therapy for the LO
Some members of my family want my EO LO to get therapy. Has anyone actually done this before? I understand the need for the family to experience therapy to support my LO. But I am not sure how beneficial it would be for the EO LO. She is entering the later stages of the disease. Any opinions/thoughts? TIA
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Missing mom
Just over two weeks ago, my mother with dementia moved from my house to a SNF. I was told she was fitting right in and attending all the activities and doing very well. I just called yesterday, and they said she is wandering around a lot, into other people's rooms, and hanging out by the door trying to get out. It's an all…
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Incontinence(24)
My mother is declining mentally. She is in assisted living. But, she is incontinent and refuses to wear the adult underwear at night. Any suggestions on how to get her to wear them? She is a very stubborn woman, and her stubborness has only increased as her mental decline is progressing. She is 92 Thank you for any…
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Income tax write off
My niece's husband is a CPA. For the first time I was able to write off my DH's memory care rent for the 4 and 1/2 mo he was in Memory care in 2022. Making out the long form you can also deduct medical items like Depends, RX's etc. This gave me a much larger federal return.
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Activities for a workaholic
Hi all, My mother loved work, and even when she fought cancer she continued to work since it brought her joy and purpose. Now in her middle-stage dementia, it is clear she misses it, but ends up being a little destructive! She is constantly moving papers and books around her room, seeing "deadlines" and worrying about…
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Bible Verse to Lift You Up 3/19/23
GOD’S UNFAILING LOVE * Romans 8:38-39 New International Version “38 For I am convinced that neither death nor life, neither angels nor demons, neither the present nor the future, nor any powers, 39 neither height nor depth, nor anything else in all creation, will be able to separate us from the love of God that is in…
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Type 1 Diabetic LO with Alz
Hi everyone, My mom has an insulin pump with Type 1 diabetes and Alzheimers (diagnosed by a neurologist). Her endocrinologist gave her a 1 month trial period for us to get a grip on how her independence with diabetes management is declining. My dad is her primary caregiver and is in such denial. He's refusing for her or…
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My mom has dementia and my dad just passed away
Hello, my mom has dementia and she keeps forgetting my dad has passed away. Sometimes, throughout the day, she remembers. But everyday, at least once, she forgets. She will start looking for my dad and she asks where he went. It’s very hard for me to tell her and make her experience it all over again. But if I don’t tell…
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Disappointed & sad
I went to visit Mom today. I went to her room and she wasn't there so I went to ask somebody where she was. They said that they moved her to the secured side already. I was a little upset. Apparently they took her clothes and nothing else. Her favorite blanket was on the other person's bed and all of her pictures were…
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A word of hope (power of attorney/advance medical directive/ will)
Spent the day with my mom getting will, power of attorney, advanced medical directive done. Doctors appt in 3 weeks Now all that is left is to be annoyed when she calls 10 x a day, feel guilty for being annoyed, be relieved she is somewhere safe; feel like I’m spending too much time with her, worry I’m. Kt spending enough…
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First post and question on impact of other health issues
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Bad Advice?
I just got an Email from some group....CareBlazers? I first assumed any input about care is well received and welcomed...Bring it on! I need all the help I can get! Topic was how re-direction is bad advice. They went on saying how we need to get to bottom of the distress and fix things that way. That we're dismissing their…
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Blood work
Hello everyone.my stage 6e LO will not submit to giving blood samples or taking injections.She refuses and becomes combative.Has anyone else experienced this and what might be done to help her comply.thank you all. Also some personal hygiene resistance
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Her own bank account
My mother wants to open her own bank account because she believes I am stealing/misusing her money. She has already tried to close the bank account we share without contacting SS or the school district she worked for to change the deposit info. Her Alzheimer's and Vascular Dementia diagnosis was just done last month, but I…
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Seeking recommendations for services in NYC/Manhattan
hi all. new to the boards and thankful to have found this resource! we moved mom back to NYC (after she retired + COVID) this year. she's officially diagnosed with mild cognitive impairment and anxiety/depression. doctors in her previous home (SC) said she could live independently with a little help, but in 6 months, the…
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New Here-What if she Refuses to take Meds?
Hello all, I just joined this site and I'm hoping to get support and advice when needed along the way as my Mom progresses with Dementia. I sold my home and moved in with her. My mother has never been a fan of taking pills of any kind. She stopped her donepizil abruptly and it sent her into a tailspin of hallucinations and…
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father's paranoia
My 88 yr old father has been paranoid for most of his life (I have felt he needed psychiatric care for many years), however now he seems to be experiencing dementia, some hallucinations, etc. He also can't see well, hear well, is living by himself in the country. He can still bath by himself, needs us to buy him food (is…
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Eeg??
What is an EEG?? Is that a standard test in determining alheimers or dementia?? My mom had a telehealth phone visit with neurology today. She questioned them about her medication, and they went over with multiple times and even though she read along, and repeated what they told her...she soon forgot it, and couldn't grasp…
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End of Life Care
From the NYT. This isn't specific to dementia, but an interesting read about end-of-life choices and quality of life.…
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Not being taken seriously
I know that most agree that telling "fiblets" are the way to handle alot of situations...but what do you do when situations call for a "truth" that is not understood? My mom gets regularly encouraged by her doctors to memorize her medication names, dosages, and scheduling. When she goes to the doctors they directly hand…
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I don't have anybody....
My parents had me much later in life so I'm the youngest and very much out of sync with my 4 siblings who are all married with children and have their other families as support. Me? I have nobody....never married, no kids. My parents were my closest confidants because I grew like an only child. Then my dad died of cancer…
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Rallly and a decline
My LO has been in a Memory Care Facility for about 2 months. When she was first moved there, she didn’t really know where she was but was very involved in activities and talking and eating very well. However in the last month she has had a decline to the effect that she is now confined to a wheelchair, barely able to…