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How do I enjoy this?
I so appreciate this forum. I am grateful to be able to post here and read advice from others that understand this impossible journey. My mom is late stages of Alzheimer’s. I am mourning the mom that I raised me and I’m informed in what processes so I know where this is going. I have been told often to enjoy my time with…
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Dealing with mom that may have alcoholism and dementia, symptoms of bvFTD
My mom moved in with us about 3 years ago. My aunts were telling me a year prior that she was drinking alot (she was never a big drinker), and calling them late at night screaming at them. She said some hurtful things to them. I didn't believe them and we moved her in. When she is left alone I thought she might be drinking…
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Getting someone to go to a doctor for diagnosis
I have a close friend who lives out of state who developed memory issues and hallucinations in the past five months. I contacted her husband and brother to seek assistance in getting medical attention for her. They scheduled an appointment with a neurologist for today but she wouldn't go. The people who are close to her…
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Who should be on the care team?
So a while ago now, my mother's geriatric doctor diagnosed her with "mild cognitive impairment." He diagnosed donepizil. Since mom is very healthy otherwise for her 83 years, we only see him twice a year and he's always astounded how well she's doing other than her mind. According to him, mom's dementia is "proceeding as…
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Help Getting Parent to See a Doctor
Mom has some form of dementia. Sometimes recognizing to a small degree. Won't go to a doctor. I am struggling with helping as she doesn't like accepting help so most often won't. Gets angry when I don't go along with delusions. Just struggling.
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Holiday
Easter will be the first holiday since my dad went to AL. In the past week he has been focused again on how long he will be there and things regarding his home. I have not taken him out of AL since he went in at the end of December. I am afraid because he doesn’t understand how AL works and I believe he thinks he is in…
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FYI- Time Travel
Just a heads up- many, but not all, of the threads currently on the first page of this forum are "zombies" from 2021. Many of those members are no longer participating and would not see a reply if you made one.
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Bible Verse to Lift You Up 3/26/23
Amplified Bible The Excellence of Love 13 If I speak with the tongues of men and of angels, but have not [a]love [for others growing out of God’s love for me], then I have become only a noisy gong or a clanging cymbal [just an annoying distraction]. 2 And if I have the gift of prophecy [and speak a new message from God to…
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PLEASE NOTE THAT SOMEONE HAS PULLED UP MULTIPLE OLD THREADS FROM TWO YEARS AGO, SO LOOK AT THE DATE
Had to get it all in the title. Someone has pulled up many very old Threads from 2021; these are no longer active and mostly, the person initiating the Post is no longer on the Board. Please look at the date of the original Thread and then the date of the last Post to ensure this is something you wish to spend time on…
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Need NYC Doctor Reccomendations
Good Afternoon All, I know that everyone's insurance is different, but I was hoping for at least a place to start. I need to find my mother a good neurologist. in NYC.... Her current doctor talks at her and not to her, she speeds through appointments and comes unprepared, and doesn't really seem to understand that having…
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how to travel with husband at stage 4 alzheimer's
At the neurologist appointment 3/1/23, my husband's diagnosis went from MCI to alzheimers. We were in Egypt 2/8-2/18/2023 with a packaged tour company where my husband became confused to time and place. Recently learning that I am now a caretaking wife (I just stepped down from working to retirement), how can we still…
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Experience with spinal tap to test for NPH
I am interested in hearing what other caregivers have experienced when taking their LO for testing for normal pressure hydrocephalus (NPH). I understand that fluid is removed with a spinal tap (lumbar puncture) and if NPH is the problem a temporary improvement in gait/mobility results. I am trying to think through the…
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Medication - when is it ethical to stop providing medication
The facility crushes my mother's medication and mixes it with pudding. My mother began to spit out her high blood pressure medications, along with some others. The result was she became unresponsive and the hospice nurse labeled her as imminent. We drove down to see her on her supposed death bed only to find her up…
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How to know when Hospice should get involved
My LO (mom) who is only 69 yo was diagnosed a year and a half ago with Mixed Dementi. She has vascular dementia and Alzheimer’s. Our original concern was that mom had lost significant weight and was spitting food out on the floor or in a napkin. She went from 132 to 91 pounds. She was screened for cancer and that was…
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World Premiere of Wine, Women, and Dementia
Pop the corks! Throw the confetti! We are pleased as a punch in the face to let you know the dementia family caregiver documentary Wine, Women, and Dementia has been accepted in to the Julien Dubuque International Film Festival, April 26 - 30, 2023! We don't have a schedule for our screenings yet, but if you've been…
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Is this the end?(3)
Mom has been rapidly declining over the past few weeks with two stroke-like events and increased drowsiness, declining communication ability, and increased Mobility issues. Now, today, she is barely able to stay awake. They were having to wake her between bites of food to get her to eat anything. One thing to consider is…
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2023 National Research Summit on Care, Services, and Supports for Persons Living with Dementia and T
The National Institute on Aging (NIA) will host the third triennial National Research Summit on Care, Services, and Supports for Persons with Dementia and their Caregivers/Care Partners on March 20-22, 2023. The Summit will build on the progress of the previous Summits to review research progress, highlight innovative and…
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Interesting Alz pre diagnosis
Early Alzheimer’s disease could be diagnosed through eye exams, new study suggests | Fox News
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Re: new platform
If there are threads that you want to refer back to, be aware that bookmarks from the current platform probably will not work on the new platform. Also, you will not be able to search for a particular thread by date, because the archived threads will all have the same date, or close to the same date. This is how it…
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What do you wish you had done in preparation for the severe stage?
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@ Doctor Tim
Welcome. I see that you are a doctor for your local Conservator's Office. I am wondering what type of new information you are seeking? I was a doctor in my working years, in pediatrics. I knew next to nothing about dementia. I have since learned a lot. Iris L.
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My wife's EO is causing me to feel hopelessness every day.
I feel overwhelmed by the severity and frequency of my wife's symptoms. Yesterday, she stood next to the wrong car in the parking lot. It was not even the same color as our car (which we have had for years). I had to convince her that she was standing next to the wrong car. She has lost much of her ability to read. She…
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Type 2 diabetic or hypoglycemia - Medicare changes
Continuous glucose monitors will now be covered under Medicare for people on basal(one a day) insulin shots or for problematic hypoglycemia. I believe we have a member with the latter condition? The prior requirement was three plus shots a day. My spouse and I are thrilled. Even with recently enhanced GoodRX support, we’ve…
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For Profit Memory care
Hello wonderful people, Our father is suffering from a type of dementia stemming from brain concussions (falls). He is 94 years old. Worked all his life until he fell too many times. The family is still working through shock and grief. He is in a non-profit rehabilitation center. The family is considering searching for the…
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Need your help for building a survey for those Under 65
I am trying to build a survey that impacts those under 65. What does it mean to their families and kids not to mention financially once they have cognitive issues in the job. It is so much worse than those over 65. Do you have any other ideas I should us or remove or reword. I hope to pass this on to an organization to do…
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covid 19 and dementia
i would like to know if anybody has any thoughts about the relationship between covid 19 anddementia. If somebody has dementia, and catches covid 19, has anybody noticed an acceleration of the development of dementia
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IPhone help wanted
So we are in the standard early phases of this disease. What I am looking for I hope someone else has already figured out. My mom has a sister in California. We are in North Carolina. Is there a way to control contacts in her IPhone so if she tries to call them it will not ring through until normal daytime in California?…
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My wife is gettting aggressive.
My DW is beginning to get aggressive and I'm not sure if I can handle it or how to handle it. She's now starting to urinate on the floor during the daytime, when I'm distracted doing something else. I have to watch her every minute of the day. I have been getting quite frustated and question whether I really have the…
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The Road
My biological mother, Rv, has always had a problematic relationship with myself and her family. We frequently step/ped in to assist whenever she painted herself into a corner. We spent a lifetime getting ghosted unless she needed something or saw an immediate benefit in engaging w/ one of us. Needless to say the family…
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move from SNF to MC?
I'm wondering if anyone has input on advantages/disadvantages to moving my mom from SNF to MC/AL. Long story short: in October 2021 we moved swiftly to get my mom on Medicaid and placed in SNF following a hospital stay because of a fall at home. We were directed down this path by both the hospital social workers and the…