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Caretaker of Mom with new Dx of Alzhiemer's Dementia
Hello - My mother (78) has fought me every step of the was through her Dx of dementia and now Alzheimer's. Today we saw a memory doc to discuss the possibility of the new medications for those with early onset. I was hopeful this would help my mom prolong the progression of Alzheimer's. Unfortunately she does not qualify…
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Re: Respite
Everyone tells me I need to take advantage of the respite being offered by friends - I have complied several times, however the fact that nothing is going to change with regard to caring for my spouse, especially at night. It’s only going to get more difficult and having an afternoon to do whatever for myself is like…
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Medicaid and Nursing Homes: Not Political: Just Necessary to Speak Our
I depend on this site for emotional support. It also has made me aware how lucky I am that my husband and I had good jobs and were super savers. I just finished a meeting with a money guy who went over my finances. He walked me through how I can afford good private memory care for my DH without complete exhausting the…
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Mush
My brain is turning to mush. Can anyone else relate to this? My DH not only has VD he also has APHASIA so we often live in silence. We have quite a few activities together walking, sailing, gardening etc but like everyone else it’s mostly 24/7 care, dressing, showering, food then household chores. Today we had a lovely…
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memory care leases
I started touring memory care places in case it comes to that. For those who have a PWD in memory care, do you have a lease that specifies a specific rate for a specific term? If so, how long is the lease? Are there any interesting terms to the lease that let you get out of the lease? Month to month for memory care sounds…
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Adult daycare
I need to get DH out among people and looking into adult daycare . Very few in my area but some 20-30 min away . Thinking of taking him with me is this a good idea or should I check them out in my own first?
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Early Onset AZ Newbie
I’m new to this community. I am (51F) taking care of my dear husband (56M) who was diagnosed at the beginning of January of this year with mid-stage early onset Alzheimer’s dementia. There were signs starting about 3 years ago that I just didn’t associate with dementia, and I (mentally) kick myself for not realizing…
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Challenge behavior?
Yesterday he started the inevitable. He forgot simple things, he repeated questions. Today, he stole my phone, hid it in his closet, he's being sneaky. When I found it, he went straight to where it was hiding to look. So I know he was aware that he took it, right? Then he unplugged my computer ( knowing I have school…
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Friend
I met him after he was diagnosed. It took me a while to realize how much he needed. He has moved in with me and I have a 4 year old daughter. At first I thought we would like eachother. Now that he's been in my home for two years, my feelings have changed. He needed my help and he helped me a lot. But I have changed our…
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Very Young Onset – No Answers Yet, Just Holding On
Hi everyone, My name is Cole, I’m 36, and my husband is 37 (turning 38 in July). I’m Autistic, and I’m very good at recognizing patterns — which is how I started putting pieces together that something was very wrong. Looking back, my brain started tracking the weirdness 2–3 years ago, but honestly, most of our marriage has…
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Move DW from Assisted Living to Memory Care
My DW was diagnosed with ALZ Dementia 5-6 years ago. She is now stage 6. We moved into an IL apartment 2+ years ago and just "upgraded" to AL. She has no episodic memory left and because of chronic pain and long-time mobility issues requires constant attention. She is often confused about where she is and who I am, but…
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Just wondering
My Dh struggles with anxiety, anger and apathy. As you know, the neurologist appt. was a bust and I don’t trust his pcp. So I’ll have to start with finding a new pcp which is a challenge and start all over again. It’s been 3 years since the “official” DX and I feel like I’ve gotten nowhere. The goofy neurologist has him on…
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How to stop DH from getting up at night to pee
DH had a partial amputation of his foot due to gangrene (caused by peripheral artery disease). He is not yet supposed to walk on his foot and I have someone with him 24/7 at sub-acute rehab. He will be going back to MC next week. How do I prevent him from getting up in the middle of the night to pee, forgetting about the…
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I feel myself withdrawing emotionally
I still love my husband but I feel myself withdrawing emotionally. We've been together 39 yrs but our relationship is very different now. I see my husband declining cognitively and physically. He is 76 but acts more like 86. I am 68 and i on a good day feel more like 48. I know this disease is a one way street, there is no…
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Alzheimer’s Poem
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Soo mad
Please everyone pardon my rant here. I am so sick and tired of my family always questioning my actions and decisions on the care of my DW. Why are you doing this or that, do you think that’s best for you, don’t you think it is time for MC. The reason I love this site is that you all understand my life because you are…
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mobility issues
My DW is only 58, but is in later stage of disease. Mobility has been a rapidly worsening issue. She was walking with my assistance but recently won't (can't?) walk or even stand—Seems like legs are frozen. Makes changing incontinence briefs very hard. I have checked thoroughly for injuries but haven't found anything. Has…
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How to get right in my head...
I struggle with my own emotions dealing with this. I am luckier than many. We are not as far down the road as some. DH can still do all his ADLS but is so emotionally needy. He is safe at home by himself but prefers I sit with him 24/7 and watch reruns of the same TV show we've watched so many times before. I know many of…
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Johns Hopkins
https://www.hopkinsmedicine.org/news/newsroom/news-releases/2024/10/clinical-trial-shows-synthetic-cannabis-reduces-agitation-in-alzheimers-disease#:~:text=In%20a%20study%20led%20by,by%20an%20average%20of%2030%25.
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Recent Diagnosis for my wife. Seeking local support groups. Seattle
I am 68, my wife is 72. We are in Seattle. She was recently diagnosed with mild cognitive impairment, though I would place her at the upper end of that diagnosis. I tried to call to get pre-screened for caregiver support group. After waiting a while, the line went dead, then dropped. This year, our son had a brain tumor, a…
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How long……
My memory care np told me today that she has seen stage 6 last for 10 years!!! Scary but even more scary as moving to mc and concerned about costs!! Have long had your LO stayed in this stage?
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This Cruel, Cruel disease
Today I took my husband to Respite Care for 2 days. Just a few months ago I would have never thought I would do that but things have changed so much. My DH is not a husband anymore and I am truly just his caregiver. I needed the break. Never would I have thought it would come to this as he was the man I loved more than I…
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From NPR: A piece on "Caregiver Identity Theory"
An interesting read-
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Alzheimer’s research comments by RFKJr
RFK Jr says corruption at NIH is the SOLE REASON there isn’t a cure for Alzheimer’s: “For 20 years, because of utter corruption and fraud, we were directing Alzheimer’s research to one hypothesis, and any other hypothesis was shut down. We should have the cure for Alzheimer’s today. We don’t have it PURELY because of…
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Long term meds and medical screening
My husband is seven years into this dementia journey. He has zero short term memory and confabulations constantly about places we’ve never been, ads he sees on TV etc. He can’t find anything in the kitchen. He’s 73 years old and obese but pretty healthy. The doctor wants him to have a colonoscopy and to start cholesterol…
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Dental Decision
Does anyone have experience with a late to mid stage Alzheimer's patient with 1 tooth abscess and 3 pulp exposures. Oral surgeon wants to put my dad under general anesthesia and extract all teeth. What will a 2-3 hour surgery like that do to a person in this stage? will there be much recovery or do we just let nature take…
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Sun downing
So this just started for my husband. Pulled two all nighters over the weekend. Around 4pm each day he starts getting very agitated. If I can manage to stay disconnected until 7pm and then distract him with a movie he might settle down, but does not want to get into bed. He packs, paces, usually with boots on and often goes…
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Time to get a medic alert device
My DW with EOAD is now in stages 5/6. She can’t tell me her phone number or where ashe lives. Her vocabulary has dwindled to a couple of hundred words. She spends most of her day folding clothes over and over. She talks to her special friends all day. The other day I wanted to see what she would do if I were to fall and…
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PBA
My DW’s psychiatrist seems to think she has PBA (Pseudobulbar affect). Is anyone familiar with this diagnosis? There is a medication available to help with this but Medicare doesn’t cover the drug so it is out of pocket and expensive ($1600.00)
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Just an observation
So, 30 minutes after we called our son to tell him happy birthday DW forgot that we had talked to him , but she remembers to the penny how much we spent at the grocery store yesterday. I know I am not supposed to try and make sense of all of this but sometimes it just amazes me.