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STAGE 8 - There is no other side of grief...
My soulmate husband Lonny passed August 12. I feel lost most of the time but am trying to find myself without him. Found this on a Facebook post today. So true. I had my own notion of grief. I thought it was the sad time, that followed the death of someone you love. And you had to push through it to get to the other side.…
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Dreams
DH with ALZ has started dreaming. In the past he has said that he was unaware of any dreams. Now, they are vivid enough for him to remember. Additionaly, he is tearing up his bed in his sleep to the point where all bedding is on the floor. I did not aske him about his dreams whichh I see now that I probably need to do. He…
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New here
Good afternoon, informative sight. Thx
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Just went to the hospital HELP
This morning when he got up he couldn't walk very well and could not stand up I called 911 to assist and they suggested to take him in for tests So here I am all tests including,CT came back normal so they will admit him sometime today or tomorrow And maybe do a lumbar puncture for further analysis per his doctor He is…
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Start of incontinence
I knew the day would come. DH is now urinary incontinent for about a week now. I’ve been lucky it held off for as long as it did. He’s always been very resistant to my helping him in the bathroom with cleaning himself, etc, and it’s worse now. I don’t know how I’m going to get him to wear pull-ups when it’s hard to even…
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Still Need more HELP husband in the hospital
I have read the comments to my previous posts and just need reassurance that I did the right thing in letting the paramedics take him in for further evaluation. I am desperate
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MC in Minnesota
Is anyone familiar with any of the Suite Living MC facilities in the Twin Cities?
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Grief
·onpstordSei2 f40m :M5 mtfA29m1s01mg3m5m77ittg3actA9u0i5u3at · Jim Carrey once said: Grief is not just an emotion—it’s an unraveling, a space where something once lived but is now gone. It carves through you, leaving a hollow ache where love once resided. In the beginning, it feels unbearable, like a wound that will never…
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A Chuckle
I just ordered a mattress protector for any "spills". It asked me if I wanted to send a gift message.
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So I was planning to do something productive today for once…
My plans for a productive day came to an end mid morning when hospice called. The hospice nurse regularly calls to update me on his visit. Today he told me first that my DW was being recertified, and assured me that there was no chance she will ever not be recertified based on her condition. While doing so he told me that…
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TONIGHT TUES 8-26-25 ON ABC "Emma & Bruce Willis: The Unexpected journey"
Tonight is the airing of the ABC News special, "Emma and Bruce Willis: The Unexpected Journey – A Diane Sawyer Special," which airs at 8:00 p.m. EDT on ABC and streams the next day on Disney+ and Hulu. The special features Emma Heming Willis discussing their family's new reality since Bruce Willis's diagnosis with…
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Tips to stop dementia refusals try these 3 tips
Hope you can view this video. 3 phrases to say to stop refusals. Haven’t tried these. https://www.facebook.com/share/r/1G9AEJzEJN/?mibextid=wwXIfr
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Alzheimer's help line
Please tell me how to contact the alz hot line I realize I need help, sooner than later. Thanks Do I have to talk to them on the phone can I just text bi don't want him to hear me and I live in a one room apt
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DH groped a female resident at his MC
Dear Forum Friends, first, thank you all for your support and understanding on my previous post. It helps so much to know you are all here and we are all here for each other. The social worker from DH MC called yesterday to tell me DH had been found in a female residents room during the night. He had his hand down the…
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Jeez
Of all the two clear sentences my DW could get out clean. Yesterday she said, "I can't talk. It makes me want to walk into the road in front of cars." Damn. What a gut punch.
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Questions about Lecanemab
Hello, Is anyone on this site receiving Lecanemab infusions or know someone who is or has received it. The doctor has offered this therapy to my husband. I am interested in hearing the experiences of others who are or have received this infusion. Thank you.
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We're all figuring it out as we go....
I saw this on Facebook and thought it applied to us. Thinking of you all and praying for you and your loved ones. Diane.
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I feel like the song White Rabbit by Jefferson Airplane
It’s like the song “white rabbit.” I feel like Alice in Wonderland. “When logic and proportion have fallen sloppy dead.” There is no logic and some days I’m thrown completely off. Example: every night for at least 6 months, my husband asks what the two pills are he takes each night. I tell him antidepressants. He then asks…
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New to Group
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He keeps pushing me
I know I trigger his aggression, but when he pulls off his pants when we try to go out , I try to put them on, then he pushes me and I fall, more than one time
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Hello out there
Well, it's Sunday morning and the DW of 40 years is sleeping so I have my hour or two before the fun begins - lol. Just found this site! My wife was diagnosed in 2019 and is fairly well along on her journey. Too much to go through here but in summary, our kids are scattered, we have some of her family here, in fact a…
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Tired of putting my life on hold
Why am I the only one making concessions, what about my life, my needs , I don't even like him, he takes up all I have within me and I am walking out the next time he raged at me Call me selfish? I have given him everything including myself. I deserve to live my life I promised for better or worse not abused
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I am seriously flipped out
I made the cardinal sin and physically took off my husband's shirt because his stomach was hanging out. Now he is calling me a b____and I suppose I am Now I asked him if he still loved me. Of course not. sometimes I just say I love you to him just to hear it back I still don't know how to navigate this private hell
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Mom rapidly declining cognitively
All of this seems to have started in May when my Dad had a catastrophic brain bleed and now is in a group home/hospice. I am trying to manage my Mom's life from 2,000 miles away though I am making my third trip out there since May in 2 weeks. I have hired a caregiver ( we are on the third one) to help my Mom around the…
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So many questions...
Hello. My husband was diagnosed with Alzheimer's on August 6. The Neurologist didn't mention a stage but our GP said it's moderate to severe. His has trouble speaking, he can't find words. His short term memory is severely impacted. Normally an optimist, he's become severely depressed. He's now on Namenda, Rexulti &…
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Sleeping at night
My DW has recently begun sleeping for 10-12 hours at night. We usually go to bed around 10:00 - 10:30 pm. She fights getting in bed but once I get her in bed she immediately falls to sleep. She doesn’t wake up until anywhere around 10:30 to 11:30 am. She then lied in bed and gets angry with me if I encourage her to get up…
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Just a teeny vent to those who understand
I was sitting outside with my DH. It was 104 degrees during the day and still 94 degrees at night when we were outside. We were talking about how the crowd at the community music concert was really small this week. I said it was probably the weather because it was hot. He said no because the weather was mild. I just looked…
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I need to hear a "poor baby" from someone please
DH is end stage EOAD. He is in hospice so I have contacted his nurse to help with medication adjustments. He had not peed all day, I was texting his RN to ask about this when he went into his room and peed all over his bed. Because I have a plastic mattress protector on there was a puddle of pee. He then dragged his pillow…
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Mother won't stop walking
Hi, a week ago my mother began walking non stop. She sits or gets in bed and is up in a minute. One day she walked for 22 hours straight, no sleep. She is 101! I am exhausted. Has anyone experienced this and any ideas on what to do? p.s. the drs. prescribed Haldol, Lorazepam, Seroquel, Doxepin and nothing worked
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Reality
Just wanted to share my reality. My DH is a very physically fit 72 year old who was diagnosed with AD 3.5 years ago. One year ago today, August 23, 2024, he looked at me and said "who are you and where is my wife" Known as Capgras Syndrome, he knows most people, especially old friends, thinks I look like something like his…