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Just Sharing
It's been about 4 months since I've been on this forum. With the start of our 9th year since ALZ diagnosis, I just felt like I needed to share. I apologize for rambling. I recognize that everyone's journey is unique, so you may be able to relate or you may not. But I'm sure, as caregivers for your loved ones, you…
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Light therapy
Does anybody have experience with light therapy. I am looking to purchase a 40 hz therapy light and a 10000 lux light box for my husband. I have read good things about using light therapy, I was wondering if anybody has had experience with this
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How do I get him to accept respite care
I need respite but he refuses to go. What to do?
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reasoning
when logic fails https://www.facebook.com/reel/1219377039793212
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Ideas? Traveling and getting alone time.
My DH was diagnosed 1 1/2 years ago with Alz. Early to mid stage 5 is my best guess. He is still able to care for himself and do small projects and tasks around the house. Although he doesn't like to talk about it, he is very much aware that he is progressing. In April we are taking a 2 week trip to Japan to visit my…
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New to this whole thing
My husband was just diagnosed 4 months ago and we have been spending most of our time learning and trying to find every way we can do full progression or trying to get into clinical trials, we had so many plans. So many dreams.he is 62 and I will be 62 in the summer And after years together, we finally got married this…
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OVERLOADED WITH INFORMATION / NEWLY DIAGNOSED
My husband was recently diagnosed at age 64 with EOAD. It has been 6 months since diagnosis, and I will say it is very overwhelming. Sometimes I just have to stay off the internet / social media. I feel like 98% is all negative. I am just surviving the now. And trying to be present and accept the now. Everything is…
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Hallucinations
New to the forum. Excited to have a resource like this. My wife has early onset Alzheimer's. Her life is so disrupted by another person that she believes lives with us. She believes that this person steals and eats her food, steals and drinks her drinks, sleeps in the bed with us, wears her clothes, and on and on. She…
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Figetting
My DW is in stage 5/6 and will not sit still. Is there any medication that will calm her down.I have constantly follow her around and it's exhausting!
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Looking for advice ..
DH has VD from previous strokes and poor CV health. We have Kaiser Senior Advantage and supplemental insurance from his work. He is an army vet but never signed up for VA medical after separation. I would like to get him signed up for VA medical, not necessarily for drs visits or meds, but down the road as he progresses he…
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Trying to leave the house
My DW who is 67 years old is in stage 5 with some aspects into stage 6. I have my daughter at home to help me so I can run errands from time to time. Just about every time I leave (only for a hour or less) my DW wants to leave the house. My daughter tries to prevent her from leaving but then my DW gets aggressive towards…
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How do you deal with the trauma of witnessing this disease take over your LO?
It has been 10 years since I knew in my heart that mom had this disease, and that hoping her behaviors were brought about by something else no longer made sense. Before any doctor weighed in, I just "knew". Until two years ago, I watched my dad care for her at home. He carried the weight of the world on his shoulders. My…
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Adamant LO refuses to move!
I started to notice the cognitive decline of my mother in 2016, she blamed her issues on taking care of my step dad & his declining health. He passed 5 months later. She lived in their home until the pandemic was over & then moved closer to me, my sister is out of state. When she moved, she refused to look at any…
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My spouse can’t stop eating.
He goes out several times a day to buy food. He has hypertension and heart disease. He eats highly salted food. I am afraid he will have a stroke. Any one relate?
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Incontinence pants
just saw an ad on line for Dryment incontinence pants. Anyone know about these, are they all they say they are ? Thanks for your input!
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Problem when we walk or bike
I feel like I’m being really whiny lately (and maybe “wine-y also 😉) but I have another question to pose to this group of creative thinkers. This has happened a few times now and I am not handling it correctly. We’ll be walking or biking and he wants to go a certain way. Ok, we go that way. But as we get farther away from…
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Alzheimers and PCA
My husband was dx with moderate Alzheimers and Posterior Cortical Atrophy. He will not admit there is anything going on with him. He has difficulties seeing his food, car door handles among other things. I was giving him Memantine and Donepezil, and I had to titrate him off because he was refusing to take. We are going in…
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How About This?
I’m sorry I’m technology challenged. People.com. ❤️ I like It!
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The Long Goodbye has come to an end
I have lost my wonderful, clever, beautiful wife, lover, and life partner. There was no Hallmark ending for us. Her active dying, as they call it, was the worst 3+ weeks of my life. Watching my DW die like this was excruciating. They of course assured me that it was peaceful for her, as they always tell LOs to try to make…
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How do you handle such deep sorrow?
My DH has EOA and has been also suffering from complications of Ulcerative Colitis. He’s in the hospital. He won’t eat that much because he’s incredibly picky and can’t reason to himself that his body needs food even if every meal or protein drink isn’t perfect. He can’t walk anymore. He won’t even try. And his cognition…
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A Spark Of Joy … follow up
I did it I now have my power boat licence. Thank you all so much for your support and wonderful words of encouragement. It felt so odd just for a short time thinking about me. I felt selfish, it felt wrong I had to keep pulling myself back to the job in hand (ha ha so important driving a boat literally around in circles on…
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Wondering what to do
We are about 8 years into this ALZ nightmare. Big changes are not starting. She has started sundowning which I try to mitigate with walks outside around 4 PM each day. This seems to help. She is refusing to shower and change clothes. She has worn the same clothes day and night for 2 weeks now. She complains about my…
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Is it necessary for Nurologist it ask same questions that upset patient everytime?
some of you know me as I always have lots of questions but for those of you who don’t know my situation it’s that my wife , I feel , is handling this nitemare much better then most that being said I know can change in a heartbeat . It’s 3 yrs and other then not driving or cooking anymore not doing too bad, her short memory…
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Need an updated DPOA easily and inexpensively
I’m new here and my DH is living at home with probably mid-stage Alzheimer’s. I need to update his DPOA and he will be able to understand and sign, but I need convenience and affordability. Suggestions on where others have made one easy, inexpensive trip to get this updated form in place. I have so many other questions and…
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moving
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When a long-term friendship is impacted
I’m concerned that a dear friend of mine may be experiencing early cognitive decline. They are in their mid-60s and recently lost a spouse. For the past two years, I’ve attributed their behavioral changes—especially increased frustration and verbal outbursts—to grief and the challenge of navigating life alone. However,…
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Does insurance company need to know
Reviewing Renewal on house and auto insurance and just wondering if I have to inform the auto insurance that husband has dementia and is no longer driving? By law do I have to do this? We still have his car but he doesn’t drive . Tks for your input
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Medication for Anxiety
Our neurologist has prescribed Quetiapine for anxiety as a once per day med at bedtime. I crush and mix the pill into my DW evening food at she refuses to take a pill. Sometimes the 25MG dosage works well and we can get a good night's sleep. Our neurologist has now prescribed a 50MG dosage in an effort to improve the…
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statins, pros and cons?
I tried to search for an old conversation on this, but didn't find one; feel free to redirect me if this has been discussed before. A few years ago, the provider in Geriatrics put my partner on a statin because her cholesterol was something like 240. The next time she saw her primary, they took her off the statin. I was…
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Altzheimer
My DW(85) has recently been diagnosed with this terrible disease…she is still able to function fairly well. My daily routine is looking for articles she has misplaced but the most frustrating thing to deal with is the delusions. It is very difficult for me to respond to things like "when are the other people coming for…