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Hopeless
Happy New Year. This actually is my first post. My DH just turned 60 and seems to be in moderate point in his battle (been dealing for 4 yrs). Someone said how guilty they feel having happiness while their DH is going through this. I also feel guilty. I have a full time job and am exhausted. I hate to say this but I feel…
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EO Long Island long term care
I believe is my first time posting. My loved one will be 60 in April. He was diagnosed five years ago, but of course symptoms were prior to that. I have MS and really can no longer care for him at home. I’m having difficulties even leaving the house to go to work Because he follows me all the time. I’ve looked into Memory…
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Highly Recommend Citicoline Supplement
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Why Stay?
I hate the life I am living now. Why do I stay? I love DH but not his behavior. He is not his behavior but much more. He does not choose to behave this way. This disease chose him. Fifty two years ago I vowed “in sickness and in health”. I keep my promises. This disease may rob me of him but not of our pre-ALZ life we…
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Electric Razor
My husband has been diagnosed with ALZ for 5 years now. The progression has been slow, thankfully. I notice that he is having a hard time shaving. Can someone recommend an electric razor for me to buy that is very simple and basic. Thank you
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Apologies...
I came here today to apologize to this community. I belonged to 3 other groups in addition to this forum. I was asked by the moderator of one of those groups to no longer use the words "terrifying" or "heartbreaking" when I refer to Alzheimer's. The reasoning is that everyone progresses differently and some don't have the…
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New for me
Hi all, DH was finally diagnosed with early onset ALZ (he is 66, I had struggled to get him to get evaluated for the last few years, so the doctors say he is the end of early stage, beginning of middle stage - although I still don't know what all the terms mean). He was able to pass a driving test so has a conditional…
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PTSD with an ALZ diagnosis
New here. My DH (diagnosed at 55 now 57) previously struggled with PTSD. We still have a teenager I want to do the best for her as well as him. Does anyone have experience they can share - what helped navigate it? what didn't?
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Dizziness
Good morning all. We are in this journey now for about 10 years. My DW is in stage 4.5-5 or so. Two days ago she got very dizzy at the physical therapist and while it’s gotten better she continues to complain of being dizzy. At the PT a paramedic assessed her for the emergent problems of dizziness. Before we head to Urgent…
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Depends
How do you get them to wear deoends? My BF 45yo EOAsoils himself everyday. He has peed on my side of the bed several times and today on his side of the bed. I. Am. Over. It. He is convinced it's not him and yells at me that it's not. I tell him I'm not even home and that I'm potty trained. The caregiver wants him to wear…
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when should caretaker prepare for incontinence in bed?
Hoping for some advice from the more experienced here... I've been reading posts about pads and adult diapers and getting up with a demented spouses at night, and while we're not really there yet (no accidents, he gets up by himself at night), I expect we will get to that point at some point in the future. I would like to…
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This disease makes EVERYTHING harder
I sit here on New Years Eve hearing fireworks in the neighborhood with DH asking me every minute or so what those noises are, and checking around outside multiple times. I feel bad that it’s making him nervous and angry and I’m selfishly wishing that people would just celebrate quietly. It adds one more thing to the list…
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Hello all, new to this
Hi everyone. My DH was diagnosed with VD within last few months. Short term memory impacted and difficulty with organization. Has gotten "off track" when walking the dogs but recognizes that and can make his way back. Consistency in his routine really helps. Overall he's pleasant. Just wanted to say hello. I've found…
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A funny story
This forum is wonderful for those of us who struggle with caring for our LO. But I find that there are no funny stories here. We often focus on the hardships, but today, I want to share a story that I consider funny. Last year, my DW was able to do her own Christmas shopping. She bought me a sweater online and when it…
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Some people just don't get it
Most friends and family members have some idea of how to relate to my DH who has dementia. But there are a few who don't understand they can't have the same kind of conversation they used to have with him. They keep correcting him when he mixes up details, or says something totally nonsensical. Even had a visiting nurse…
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I Can Buy Myself Flowers
What a rough Christmas for me emotionally. DW not sure where she is a lot of the time, hard 5 hour drive getting her to her family on what may be the last Christmas I make that drive with her, and she got everyone a present but me. I took her shopping and realized later the gift I thought was for me…wasn’t. I have been…
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Rapid Progressive Dementia/Covid19 Related
MY DW passed on 12/06. After a relatively short, but intensely difficult journey. We did not have a confirmed diagnosis, as the tests were all negative and normal for her age. Her health eas rest of a healthy 45 year old, had not had any hospitalizations, rarely sick with a cold. Sometimes allergies. P. She wa sky…
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No Support From My Kids
As expected, this was the worst Christmas ever. My DW goes to the Alzheimer’s Activity Centre 7 hrs a day 5 days a week , however , they are now closed for the Christmas Holidays… reopening on the 2nd Jan 2025 as such It has been very tough for me. Keeping her occupied is brutal . Watching TV for hours is all she does and…
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Is this a stupid question?
But if some one has short term memory loss and is age 85 does that mean AD or just old age? This year, DH short term memory loss has got worse, seemingly quite quickly. I'm very depressed by this as I feel I'm losing him mentally. Is this the start of AD?
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How do I get a diagnosis for a spouse?
I am new to this site. I have noticed behaviors for about a year in my husband. Many of the issues you mention on this site are the behaviors I observed. I have a friend whose husband had Alzheimer’s and she has been so helpful. My husband will never admit he has symptoms. How do I get a diagnosis? He does allow me to go…
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Did the Antidepressant make my DH worse? Need some advice please.
My DH was diagnosed 4 years ago. Back then he was able to drive, run his computer, use his smart phone and manage the TV selector. Fast forward to now, he is incapable of doing any of the above, thinks there are people sitting in our house. Last Sunday I came home the front door was wide open and I spotted him walking up…
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Walking on eggshells
Dh has young onset and I feel like I'm losing my mind. Feels like I'm constantly walking on eggshells so that I don't say or do the wrong thing. And like I'm constantly running interference between him and two oldest kids. He has very little patience with them and says that they're constantly giving him attitude or talking…
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Hours of PCA care
I remember my grandmother had 24 hour aides from Medicaid or Medicare in her last years of dementia (1989-1993). I was not too aware of what was happening at the time but I recall certain facts. My aunt lived with her and was her FT carer…did not have a job..and GM still got round the clock aides. I am in the same boat as…
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Haven't yet figured out dx, but new symptom
…has cropped up. Brief history: DH was struggling. MRI in Oct 2023 showed brain shrinkage. Initial dx: moderate cognitive decline (13 of 30 MOCA), suspect Parkinsons, and Alz. In March, Speech therapist suspected Ataxia and so far indications seem correct dx. Neurologist is waiting on Mayo Clinic results of genetic…
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How long does it take for a loved one to adjust to memory care
It has been 5 weeks since my DH was placed in memory care. Every time I go, he says things like, "when can I go home, I want to be with you, I want you to take care of me." I hate this. I say things like, "the doctor says you need to be here to feel better." It breaks my heart so much I don't want to go. I go home…
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Police officer called me at 5:30 am
My guy was diagnosed with mci 3 years ago. We lived together until 6 months ago. I told him he needed to move back to his condo. He is able to perform all of the daily living tasks. I felt we were no longer partners, but I was definitely his memory, decision maker, bill payer, etc. I informed his son I no longer wanted to…
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I didn't plan for this:
I am a fairly good planner. I was a project manager, so I know planning for things that can go wrong is wise. I have not planned for the case where I die before my DW. We have wills, POAs, and family members assigned to take over health care and financial matters. However, I have not planned for someone to take over the…
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How do you do it?
I know I have written posts before. I'm sorry to keep writing, but I don't know really where else to turn. I'm hoping someone has advice. All these nights where we go through the "we need to leave" and the need for movers have completely worn me out. I have explained over and over. He is convinced that he had no say in…
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What do you say to LO who is experiencing Hallucinations/delusions?
When my DH has hallucinations, talks about the people sitting around our house (just he and I live here) what should I do? What should I say. I mean, I've said to him that this is "our" home and no one is here but us. He gets mad and tells me that I'm trying to say he's crazy and that I'm planning on putting him in a…
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People don't understand
This is mostly a rant.. I saw a neighbor last night that I don't know well. When I explained who I was, he said that he knows my husband (stage 6) and "talks to him all the time." My husband spends time on the front porch during warm weather (it's been cold for the last 3 months) and talks to people who pass by. I…