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Any point to Namenda at this point?
I'm so tired. DH was diagnosed with dementia 16 years ago and was placed on Namenda and Galantamine. It appears they did slow progression but at age 78 he is now in a memory care facility. The Galantamine was discontinued a year ago but the Namenda was continued. . At this time his dementia has progressed mentally- he is…
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A Trip
I have to make a confession. I've been telling people here how difficult taking trips with my DW in Stage 5/6 have been and recommending not to do them. Then, the glutton for punishment I am, I decided I'd try again to bring my DW to our old hometown. She went to college here and has wonderful friends and family here that…
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A little tip about door locks
The first time DH locked himself in the bathroom I realized that I don’t have keys to those locks or to the bedroom doors. I bought emergency key pins to open the push button locks. These worked for me, but maybe even a little screwdriver would work. Just make sure you have a way to open all locks so you can get in if they…
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Venting: I'm married to a teenager
My husband had been having colon issues for a couple weeks. He finally called his doctor, and they said to go to the ER. I took him to the ER, and I realized he can't manage his own health anymore. He went back for testing and samples while I waited in the lobby. He came back, and we were to wait for the results—thankfully…
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DH's reaction to memory book for my kids
M6 DH was diagnosed a year ago with Alz, he's 72. I noticed symptoms years before the diagnosis. I'd say he's mid stage, still pretty capable. With that said ... I had been working on a memory book for my children (from a previou marriages) for several years. Now that I'm retired I was finally able to finish it. It's via…
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vv
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Obsession with his cat
My DH was diagnosed with Alz a year ago, but I was seeing symptoms for at least 3 years prior. He still comes across "ok" to others. Just not able to come up with words alot of the time, but I see much more than this of course. We have two cats and DH is particularly attached to one. He now seems rather obsessed with it.…
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Insomnia
hello…me again..so my mother has been tried on Mirtazipine and Celexa and Melatonin and she is not sleeping at night with anything given to her. Her doctor is trying to find a medication that will work, I really would like to keep my mother at home because she always told us that she did not want to be put in a nursing…
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bedtime ritual
Anytime we lay down on the bed, whether for a nap, but especially at bedtime my DW is constantly up and down. She's at that stage where she continually paces and jabbers so I suppose this is an extension. But the bed thing - I can tell she's exhausted but she will spend an hour up and down up and down, in and out. Very…
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in a dilemna re ALZ/divorce...any lawyers or people having had this experience?
My wife and I amicably separated at 65 years with no intention or desire to reconcile. It should have no bearing but to avoid judgement from y'all I will share that I tried FOR YEARS everything I could to address the lack of intimacy (emotional, physical - not talking just sex) and SHE refused and gave me an ultimatum:…
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DW not urinating enough
Lately, my DW is down to one urination in the morning and that's it. I don't believe her fluid intake is any less than usual. I have always known her to have a pretty strong bladder (i.e. not needing to go very often) but this has me worried. I have antibiotics that I give her from time to time but I really don't think…
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🤯😠😩😤🤬 Lost it today 😢
oh boy! Never thought I'd not recognize myself but today after my rant and I mean all day rant I had no idea who I was! He crossed the line, broke my back, went beyond what I could handle. Not just today but building for days maybe weeks and I just lost it! Patience, understanding, etc etc. just done today! Yelling at me…
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Short Term Memory
Just a question…my DH short term memory is almost completely gone. He can do something or ask a question and within one minute have no memory of anything. Here's the question…He can still drive into town and run to the store with no issue. How can his memory be so bad but yet he can navigate into town driving in the car…
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Couldn’t Find the Toilet
I’m thankful that I have had two nights of sleep and could cope with this. In the middle of the night it instantly reminded me of an old joke “he thought it was the WC but it was the cupboard” I didn’t hear my darling DH get up to go to the WC but I woke when I heard the tinkling and he was urinating into our puppy’s…
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I can't believe this life
My husband is going into late stage alzheimer this has been going on 10 years now. I feel like a robot most of the time devoid of emotion because the days and nights both keep me from having a normal thought. It has been nearly two weeks since I been out of the house, The ambulance brought him home from a 5 day stay in the…
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Memory Care Day 1
Today I took my DH to MC. Such a hard decision to make and a hard, hard thing to actually do. The staff was wonderfully welcoming, giving him big hugs, making him feel valued. I got an update this afternoon that he was doing well, had a good lunch, checked out every inch of the place, walked the path outside, enjoyed…
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Days with more sleep
My DH is in late stage 6 AD, and been under Hospice care for 16 months. The past 10 days he sits most of the day, as opposed to waking around the house moving items from place to place. I know this is progression and not that unusual, however, every three days he is sleeping most of the day. A normal day he will go to bed…
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caregiver lonleyness
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CBD & Alzheimer’s
an FYI https://www.medicalnewstoday.com/articles/cbd-help-treat-reduce-inflammation-alzheimers-disease
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Feeling so Sad
Hi there - DH was diagnosed with MCI due to AD in July. He's 66; I'm 58. I posted last month and many of your responses to me were so helpful. I'm meeting with a counselor for my newfound anxiety. I'm anxious about his/our future. Although he's doing so well and he's in the early stages, daily I'm witnessing his…
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Just trying to stay alive through this nightmare
I haven’t been active here, where I do need to be because I just got out of the hospital. I was unable to eat for 4 days and lost another 10 pounds from vomiting, diarrhea, and dry heaving. I’m now at 75 pounds. I see my primary tomorrow. DH has been so mean and cruel. I am broken and grieving the loss of 54 years of…
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In hospital and medicine
In the hospital they have him on serquel in day and Ativan at night he is on Ativan, at night He keeps trying to get out of bed but is too groggy. He is very upset and keeps saying he wants to come home. But more aware, sort of. How can I calm him or should I leave him alone for now?
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Talking and doing things together
My DH with Alz often says he misses me . Even though we've been tosh all day. Especially if we've had a particularly quiet day without too much communication between us. I try to think of things to do together, but not every day. We live by the beach and do take walks together most days. He has given up most of his…
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Coconut Oil
I just heard about using coconut oil at one of the caregiver's groups. They said 1and 1/2 tsp per day. Has anyone used this and did they see an improvement?
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It’s finally happening. Placing hubby in MC
this week he gets TB screening required and I get medical forms filled out. Date can be as soon as next week. Telling him we are checking out a new building for brain fog care. He calls what he has brainfog. I’ll work out with place to take him somewhere and then I’ll get suitcase from car and leave with them. Any other…
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Tips for husbands
I mentioned these in a reply a few days ago but thought they might be worth repeating in a post. For those husbands caring for DWs here's a few things I've picked up along the way: bra straps for bra straps. Yes, they make these small straps that go in the back that connect the two that go over the shoulder if your wife…
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help with legal and other issues
I have a friend whose housemate has very significant memory loss, but no diagnosis. The friend has asked for some input from me since I have a little experience in general. I have tried to search some of the discussions about the legal, financial and interpersonal challenges, but haven't hit on exactly what I'm looking…
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Hubby Moving to MC Wednesday
These knots in my stomach come and go. It’s awful thinking about leaving him there without him knowing. I have always been as honest as I could. Getting there 11:30 then noon is lunch when they will transition him. I have to find out what will we be doing for 30 minutes. I keep thinking what if he won’t transition. I was…
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Just Sad
I think this is the saddest and lowest I have felt for a while. It has just struck me how quiet it is in the house if I’m not talking or prattling on or the radio isn’t turned on. My darling DH with Aphasia, VD, now bent over most of the time and creeping silently around the house, it’s quite awful. I’m getting tired, the…
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Tips for getting LO to listen to my advice
My DH with EO is starting to do things that are potentially destructive. Beginning a couple months ago, my LO began getting concerned with the car oil level and has been checking and adding oil. Yesterday, my LO added oil to the car. And the car leaked a lot of oil and smelled like something was burning. My LO got it…