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Dementia Cruises/Vacations
When I searched this topic, I came up with a thread from a few years ago. Has anyone had recent experience with a travel company that takes specialized trips for PWD and their caregiver?
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DH now in MC - give it time-update
I moved my DH into MC late May. He is early stage 6. I got him there by saying our hardwood floors were being refinished and we are staying in a hotel. The first 6 weeks were absolutely awful. Highs and lows but mainly lows. He went from being continent to incontinent. He refused to eat. DH went from going in and out of…
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From the NYT: I’m Losing My Memory. Why Is My Husband Being Insensitive About It?
I thought this was a sensitive reminder of how emotional intelligence remains in dementia/memory loss. I liked, too, that the experience of the spouse was also explored. It should be a gifted link.…
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Seizures, are they part of the journey?
My DH, just turned 56, diagnosed with FD and EOAD, has had what I thought were dizzy spells. He's had 5 in the last 12 days. He's aware and alerts me to what's happening, they last about 15 minutes and his arms shake with exaggerated motion. The doctor thinks they are seizures and has ordered a CT scan. Is this normal,…
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life after memory care?
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DW Seizure
My DW who has been living with ALZ for 7 years (64 yr) had a seizure last week ( first one) about 9:30 AM in the morning. The seizure lasted about a min and to see your wife in convulsions was really shocking for me to and called 911. The EMT checked her out and although she was out of it all her vitals were ok and did not…
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Sister is having trouble utilizing bathroom
My sister recently went into MC, 1 month, and she is not using the bathroom but peeing in a trash can. She also does not bath properly so she smells. when the help assists with the shower my sister will only get wet and then get out. My local sister planned a meeting with the facility to see what we can do about my…
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Who am I?
Just thoughts … Year 5 since DH was diagnosed with vascular dementia. Looking back I realize how naive I was. Not knowing what to expect, what to ask, how to help him, how to help myself. And not surprisingly I still don’t know much! There are no answers! You think you’ve got it and then bam everything changes! I know that…
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Sundowning???
my LO has been on the phone all day now until late at night talking to his buddies from years ago 🤔He has never done this before. It’s almost 9 PM and he’s still talking, I’m confused!
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A helllful
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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Lost
I'm new to these discussions and I feel completely lost. My DH has become increasingly detached from reality. He doesn't know me at all. He thinks I am mean, even though I do everything for him. He daily wants to "go home" even though we are at home. Has anyone else had this experience?
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Wife has stocks in her name
my wife has some securities in her name, what can be done if you don’t want to sell just now, can you have transfer to my name or what to do??
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Tests and medications
Here is a philosophical question for everyone to ponder. As healthy human beings, we all do what we can to insure as long of a life that we can have. We eat right, we exercise, we take supplements. We do all the tests that is required by our age group like mammograms, colonoscopies, and so forth. We get flu vaccinations,…
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“Woozy, Head Feels Heavy”
Question for you caregivers—does your LO ever report their head feels, “heavy” and they are “woozy”? If so, has anyone consulted any doctor about this? Thank you in advance for sharing.
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memory loss
My husband is being treated for a third breast cancer recurrence. It has been 6 years of: masectomy, chemo, radiation, injections and constant meds. He sees an oncologist and neurologist but no one has addressed his memory loss. He is losing words unable to find the label for things, memories, directions to familiar…
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Downsizing with Dementia
It's been three years since the official diagnosis though it was happening way before that. And I realize I haven't looked back. I haven't looked back at how we were before all of this crept in ever so slowly. And I actually forget who he was sometime back in our lives together when I never imagined anything like this. And…
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How to get LO into assisted living
DW is in late stage six, with complications of paranoia, panic attacks, tachycardia, separation anxiety and is highly likely to have a complete meltdown upon being admitted to memory care or assisted living. How is this handled? I have been putting it off for over two years. Are strong sedatives an option? At least to get…
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We Don't Talk Anymore
My wife has ALZ Stage 4, entering Stage 5 this year. There have been many noticeable changes, most obvious is that we don't talk anymore. She is very quiet, sometimes sitting and staring for long periods. Occasionally she tries to speak but can't think of the words and then just drops it. This is creating an atmosphere of…
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Dementia
Lately, my wife doesn't wash herself or use deodorant and she wears the same clothes for days. Her memory is getting worse, but she maintains a good appetite. I would ask her about her hygiene but she feels as though I'm treating as a child.
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Warning
My BF passed away last night unexpectedly. Her Dh has alz. Stage 6 .She took care of him by herself. Her kids have have no idea of what to do with their dad. They know nothing about his meds.,his sleep habits,how to get him changed or anything. She didnt keep them informed on anything. There is no poa or will or guardians…
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SSDI and anosognosia
My DH is 56 and has been diagnosed with EOAD. He knows he has “memory issues,” but he does not know how severe. He accepted a voluntary severance package from his employer last September and has told me nearly every day since that he’s going to apply for jobs. He did apply for one job, and to make a long story short: he…
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New to the group
I have just joined the group and Im not quite sure how it works. My husband (age 65) has early onset alzheimers. We have been struggling with issues for years, had numerous tests, no doctor has been willing to give an official diagnosis. He recently took the PTAU217 test and his numbers were completely off the chart. A…
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Senile Dementia
My wife has been diagnosed with senile dementia with behavioral issues along with schizophrenia, paranoia, and hallucinations, she was discharged from the hospital this week as the hospital says this is her new baseline and there is nothing else they can or will do. What do I do now
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Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
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DH won’t let me change him
My DH is in memory care and won’t let the aides or me change his wet Depends. He gets very agitated if I ask him and has punched me. He does the same with the aides. It doesn’t matter what time of day I try. It is always a battle. The Dr put him on depakote to try to help with these behaviors but it hasn’t made a…
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Lonliness when caring for a spouse with ALZ/dementia
My DH is not quite in the middle stage of ALZ, and most days he is "normal", but he isn't really. His critical thinking has diminished in most everything except math. We used to have spirited discussions about matters of faith, politics and so on. Now, half the time he can't hold a discussion about a movie that we watching…
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I Had A Week Respite
Hey all. Most know I was able to take a week’s respite in early June. It’s been a bit over 5 years for me. I was burnt the heck out and had just decided to retire early this December. I needed it and for those able to somehow cobble something together, I am an even more staunch believer it getting whatever respite you can.…
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Podcast on Caregiver Stress
I found the following podcast by Mel Robbins very helpful… https://youtu.be/892M1vCEuUg?si=GAoYuLuvynSx_RqY
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Laundry day
Ugh! DH mostly made it to the toilet but there is a lot of BM in his underwear, I rinsed that out in the toilet later. So I'm wondering ….do you wash the underwear in the washer by itself maybe with rags or something, or with other regular laundry?