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Anger seems to last longer and longer
Last night, and a couple of nights ago, my DH started again with wanting to go to the "other house" and not understanding how all of our things could have gotten to this house. Of course there is no other house, but he gets angry and tells me that I am horrible and he would never treat me like this. It goes on and on, but…
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Just waiting for this day to be over!
A little rant to save my sanity! I have been patient all day…made a special trip into town (hour drive round trip) so DH could go to Ross to look a shoes (he has approx 50 pairs of shoes in his closet, mostly unworn & still in the boxes). He woke me up at 4:00 am to see what time we should leave, even though we had done a…
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Just venting
I check in here from time to time, although I seldom post. I’m posting today only to vent a little bit. I’m frustrated, exhausted, angry, depressed — all the things we all experience now and then. My poor DH. I try so hard to keep things light, to laugh and tease the way I always have, to exercise patience (not my best…
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Sleeping a lot
In the last month or so, my wife has started to sleep a lot more—yesterday she woke up at 3PM, even though she went to sleep around 11 PM (and slept soundly through the night). It is now almost 1PM and she is still asleep, again after going to sleep at around 11. Some of this may be due to her medications (although there…
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My DH is gone
My DH left us this morning. His passing was relatively peaceful, but there was a six-day buildup to it, so I feel wiped out. As he was leaving the nursing home to go to the funeral home, all the staff lined up to see him out. It brought on fresh tears. My DH was a wonderful husband and father, and we will miss him…
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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I’m Not OK But It’s All Gonna Be Alright…
song by Jelly Roll for those struggling and especially those in Stage 8 💜
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My Step Dad had a stroke.
2024 is ending the way it began for me and our family. My Cancer diagnosis, placing my DH in memory care, my DH passing away in August and now in November my 90 year old Step-Dad had a stroke. He has no children so I’m trying to help as much as I can. Please continue to pray for our family. Love you all. 🙏 💜
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What's my identity tonight?
I love my BF like no other. (45yo eoa) But I freaking HATE this disease. Normally I'm beautiful and he lo lo lo lo loves me (gotta love speech aphasia). But a few weeks ago when I was trying to get him settled for bed. I picked my battle as he was trying to remove the sheet and comforter from the bed i got up and came to…
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Saddened by signs of progression and feelings of inadequacy
We had a nice Christmas but it was evident that DH's disease is progressing. He can usually do a good job of hiding his confusion when the kids/grandkids are present, but that wasn't the case yesterday. And he's really tired today from the effort that it took. Although he's still in the early stages of the disease and I…
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Season's Greetings
Hi friends. I just wanted to stop by to let you know I still think of you all the time. I hope you can find at least a little enjoyment through the holidays, and I wish everyone a better new year. It might seem like an odd thing to say, but I miss you guys and gals, and I know I'm better off not being here every day. Two…
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Got Hysterical
Not sure why this happened. My DW was at the Activity Center this morning when the doorbell suddenly rang . A couple , who were friends of ours for years , showed up today ( Christmas Eve) with a beautiful tray of Christmas sweets. We had not seen or heard from them in maybe 3 years. As they were leaving we shook hands…
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Sleeping and Restlessness
I’m helping with the care of my mother with dementia. My father is the main caregiver but I step in often to give him a chance to rest and reset. Mom has recently started getting up multiple times throughout the night and refuses to go back to bed. As you can imagine both my parents are exhausted the next day and mom is…
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Well, That Didn’t Go Well
Oh, ya’ll. I had such success in getting someone in to clean the house as the cover to getting someone eyes on my DW while I work. That’s just one day and I’ve found I’ve run myself ragged trying to balance working from home, going to the office for a few hours, racing home, etc. Totally unsustainable. So, I tried today to…
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What stage and how long will it last?
I know every one is different but just wondering what stage and how long will this last. MY DH has gone from being angry and obsessed about driving to wanting sex all the time. He will not leave me alone and is always asking me if we are husband and wife. When he doesnt get his way he sulks and make comments under his…
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Hoarding
Is hoarding typical of ALZ? When my mother started hoarding I thought it was because she realized what she had lost and didn't want to lose more, even though things have little to do with cognition or mobility. My DH was a child in Budapest on WWII and suffered real malnutrition and deprivation. Now he not only hoards…
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Personality changes
so my husband was diagnosed with early onset within the last year. I (and the kids) have noticed some personality changes, only word I can think of is silly acting. Before we told my son (adult) he said on more than one occasion “why is dad acting weird”? Is this “normal”? Thanks and Merry Xmas
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Finding something for her to do
Lori is 69 years old 5ft tall 110lbs a very healthy women other than the Alzheimer's. She was diagnosed six years ago, now she has no memory, she can't read or write or watch any programming on TV or listen to books. She has a hard time with simple directions and her brain does not recognize or identify simple objects like…
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Wife won't let others know
My wife tells me not to tell anyone that she has Alzheimer's. Her mother had it for decades and told everyone. They were very sympathetic. How do I deal with this?
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Merry Christmas
Wishing all of you a Merry and Blessed Christmas Day. I know things may not seem very merry right now but I hope that each of us can find something to be grateful for today and know that you are blessed and loved. For me, I am grateful that my DH is being well taken care of in MC today even though I can't be with him due…
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Delusion medication
My wife has had delusions for over a year, but I have been able to deal with them, but now she is in Memory care. I see her every day. Her delusions were getting worse and she thought one of the other residents was trying to kill her. She was scared so we started her on some medication and now she is noticeably weaker and…
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It’s not all black-and-white
We are still in the early stage of all this. When I give clear instructions that he seems to understand I go over it again, but then when he acts on it he either has forgotten the instructions or he just determines to do his own thing. So the next day, we had somewhere to go. I gave him clearance instructions, but I didn’t…
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24 hours of crazy
My husband has had a slow progression of Alzheimer's. Normal behaviors currently are frequent repeating the same questions, excessive sleeping, gets angry if I want him to do something like take a shower or brush his teeth. a day ago, out of no where…his speech was all jumbled, he was saying crazy things, didn't think he…
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Apparently dementia can cause Grinchiness
DH took down the Christmas tree I put up last week while I was in the shower. He had been complaining about it being up. He took it off the table and put it by the back door. It was a small fake tree. I am so thankful that none of our beautiful ornaments were broken. I put the tree away but left some ornaments out and hung…
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Alzheimer’s with infidelity delusions
My DH has ongoing infidelity delusions. There are so many stories he comes up with of me being unfaithful I feel they are graphic and they are intensifying. Stories are of me being unfaithful with coworkers, contractors, neighbors, and even participating in a group. He claims I have been unfaithful our entire marriage…
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I Hate Christmas
My OH goes to the Alzheimer’s Activity Center five days a week seven hours a day . Naturally, this gives me a big break to do all the chores without having to look over my shoulder to see what my OH is up to…. folding toilet paper , rearranging her closet etc Unfortunately for me, the Center will be closing for almost 2…
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Lack of showering
Our father has been going for extended periods (40 days at a time) without showering or changing his clothes, which has led to skin lesions. He also has incontinence issues on top of it. We are limited in our ability to intervene due to legal restrictions making these challenges difficult to address, especially when faced…
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On-going hygiene issues
My DH won't shower unless he had to go somewhere which is now once every week to ten days. I can try all the tricks I've read about setting up the bathroom or offering to help and it doesn't make a difference. He doesn't want to go out to eat, or shop, or for a drive so bribing him with those events doesn't help. He may…
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I have Covid and DH in MC is on the verge of pneumonia
What a way to end the year! I came down with Covid this week and the Dr. prescribed Paxlovid. Unfortunatley, I am having a reaction to it and have had to stop taking it. Meanwhile, DH has a deep cough and his lungs are filling up. The nurse said he is heading into pneumonia. His oxygen level is still good though so he is…
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Something I have never seen discussed here
We all know there are conditions that mimic dementia, and when caught early can cause the symptoms to be a thing of the past. But one thing I've always wondered is what percentage of people being tested for dementia are found to have a condition that is treatable, and therefore dementia can be avoided? I've never seen any…