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Declined fast because of other health issues
My DH is 56 with EOA. He had memory issues for about 4 years and was diagnosed this May. And then I discovered this forum and began asking questions. I'm guessing he was about Stage 3-4 a month ago. He has changed in just one month. He is currently in the hospital for a colitis flare-up and blood clots in his legs. At this…
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Significant other confusion
My DH thinks that I have a twin. I am the only one with him but he is always asking where the other person is. Has anyone else experienced this with their significant other?
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Approved for hospice
DH has had palliative care since early this year. At the last visit 10/29/25, the nurse told me he is at 6e on the FAST scale. She called me the following day and said he now qualifies for hospice. I told her I would call her back to let her know if I want to sign him up. I know it's my decision, but I wanted to know what…
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Incontinence?
My 63 year old husband is in the middle stages of Alzheimers. Although he is not exactly incontinent, there is definitely an issue with bowel movements. He goes to the bathroom, however, much of the feces does not end up in the toilet. It ends up on the floor, the toilet rim, and definitely on his hands. The hands are a…
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COVID Vaccine Side Effects
Is anyone else’s LO’s dementia adversely affected by the COVID vaccine? My DH becomes even foggier than usual, falls a lot & becomes more hostile for about 2 days, then returns to baseline. Trying to avoid hospitalization this time.🤞
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Queen of my Castle ?
Long Rant Sorry I’m waiting to be that “Queen of my castle, Large and in charge”. - reference to Bill’s wonderful essay a few years back! Right now I feel in charge of nothing - playing heat police once again this season as DH keeps turning thermostat up, he refuses to open drapes or blinds b/c he’s cold, he won’t stop…
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Scared
My wife is 54 and was just diagnosed with early onset Alzheimer’s. I’m scared for her and myself. The changes I’ve seen in the past year now has a name. But that’s not much comfort. I think I’m still in denial. But I know I can’t stay in this place and I need this support. 👍
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Am l really losing her now?
My DW is 72. She was diagnosed MCI 12 years ago. The last two weeks things are changing. She asks if I’m her husband, sometimes with a frightened look on her face and sometimes with an embarrassed look. Some mornings I then spend a couple of hours sitting with our coffee convincing her that we are in fact married and this…
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Hubby in MC wants to come home. Help!
I stayed away one week. Hubby happy to see me but crying. Wants to come home. Very difficult to redirect. I’ve been bringing cards games which helps but then he starts up he wants to go home. We are letting a doctor dictate where he can live. Anyway any suggestions how to handle this. Maybe there are meds for him to take…
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Bathing-when the water feels wrong - not refusing-afraid..
I saw this on a Facebook post and hope this helps someone caring for their loved one. In the book "The 36 Hour Day" it lists some reasons your loved one doesn't bathe or shower: Fear, not remembering how to shower (there are steps), water too hot or cold, room too hot or cold, fear of falling, the water may actually hurt…
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Just when you think your loved one is no longer able to understand....
My DH is nearing the end of his journey. He has difficulty swallowing and is losing weight quickly. His speech is usually slurred, and he can't hold any kind of conversation. When I am feeding him, I remind him to swallow (or else he starts coughing violently) but I try to keep it light and smile a lot so he doesn't think…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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$300 speaker
my DW threw away a nice Bose speaker while taking out the trash. I know there’s nothing I can do about it now. Just venting.
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Early onset at age 60
Hello, my husband was recently diagnosed with Early Onset Alzheimer's at age 60. We live in the Erie, PA area. The support groups in the area don't seem to fit our demographic. Although we do enjoy the company of folks older than us, some of the challenges we are facing are a lot different than if we were in our later…
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I'm in the moderately severe stagr
So far I am doing okay Memory is disappearing I'm getting ready to sell my house while I still have my witts about me I will.move into the care center sometime soon
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Lots of ‘Pams’
Looking for some feedback on lorazepam. Hospice is suggesting (for nighttime when it gets very difficult) getting off of temazepam, increasing serequol and start using lorazepam as needed. Anyone been through a similar path? She sleeps well on temazepam it’s just getting there that’s the challenge.
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Well Meaning Friends
My husband is losing memories. It’s funny, how we’ll be at a dinner party, or run into old friends at the supermarket, and he tells them he is getting forgetful. In most cases, they immediately respond with, “Me too!” and then go on to tell of forgetting where they put their glasses, failing to remember the name of a prior…
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Possible diagnosis
Waiting for the diagnosis to come in but considering what it’ll take to just admit it’s Alzheimer’s. The Amyloid score was 44.3 and he is clearly symptomatic. (Been about 2years) This waiting phase is hard - I want to start reaching out for help and notifying family. But the neurologist follow up isn’t for another month.
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What do you to talk about with your LOs?
My DH with Alz is in late stage 4, perhaps early stage 5. Most days he's still quite independent in caring for himself and doing household chores. The problem I'm having is that chatting with him has become such a mentally exhausting task. I find myself thinking "oh, I'll just tell him about this" and then I realize I…
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Quick question
My DW is in late stage 5. The past month or so she has begun to shadow me wherever I go in the house. I tried daycare last couple of weeks which was a disaster. After about 2 hours there she began to cry uncontrollably saying that I left her there and wasn’t coming back. Today DW,s aunt came over to watch her while I got…
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Palliative care
Hi all it’s been awhile since I had trouble with my password 🤦♀️ my daughter keeps wanting me to get my LO on Palliative Care. He is diagnosed Alzheimer’s stage 4-5. Our biggest problem now is getting him to eat. He just says I already ate or I’m not hungry. He talks to himself ALL day, I just don’t know if he would…
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seroquel
Hope everyone has survived the day. I'm searching for a solution to my newest dilemma and hoping you fine folks on here can shed some light. My DH is experiencing some hallucinations (people in the house, vehicle, etc), as well as ever increasing agitation, temper tantrums and fractured sleep. I've scheduled an appointment…
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I Want To Live With Someone Else
My spouse with nearly complete aphasia has managed to pull out that full sentence for a couple of weeks now. She is soooooo sick of me being her caregiver. I now represent the person controlling her life and keeping her from driving to go see friends, etc. Which I am, though I'm providing her a safe, loving and comfortable…
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Do I let go or keep going?
My SO who is 46yo EOA is on hospice but thus far it has been more of palliative care. This last week has taken a HUGE turn. The week prior he was up and walking around during the day and would be resting/sleeping when I got home after work from about 5pm till bedtime (8pm/9pm). This last Thursday he lost balance and fell…
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Hospice and new strategies
Good morning. Some off you know me. Briefly DW diagnosed in 2019. Clearly in later stages. I tend not to use the stage number because it gets confusing but she's clearly in stage 6 area. Non verbal except jabbers all the time in a sort of distressed manner. I think it would be classified as global aphasia. Not totally…
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Husband has dementia plus OCD
I hardly know where to start! My husband has a physical disability and has had symptoms of OCD (never officially diagnosed) for many years. The first signs of dementia started about ten years ago. I don't think it is Alzheimer's but three different providers have called it dementia (frontal-temporal or even Lewy body are…
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Loved one is too restless, won't sleep or rest
Hello, my wife will only sleep a few hours a night, and when she's awake she cannot sit still or lie down to rest for more than a few minutes. Then she wants to walk around the house, again and again and again. She needs assistance walking, so this need for constant attention puts a strain on myself and even our 24/7…
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Tired and Sad
I thought I was handling things quite well. But short of sleep for the last couple of nights then this morning started at 5.30 with DH saying come on get up, I mumble back, 6 o’clock is get up time and then we’ll have a cup of tea. DH was agitated thinking we had a doctors appointment and we had to get ready. It’s Saturday…
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Agitation emotional swings
My DW is in the moderate stages. She had been sleeping well through the night. But lately she has been waking in the middle of the night or very early in the morning with wet depends. She is then very emotional, often crying uncontrollably, and refusing to let me help her get changed. Her mood swings have become frequent…
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general anxiety
hello-I am new to this group and discussion forum as my husband is now in a group home/assisted living facility and I am on my own. The more time away from each other, the more memories pop up that now seem 'weird' and signs of the dementia beginning, but I had no idea and just shrugged it off. Over and over agin, doctors…