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New here. DW is having issues.
Hi everyone. I joined some time ago but haven't looked around much or posted at all. I'm posting now because my DW had an incident a couple weeks ago, a story you've no doubt heard before but is new to me. She was diagnosed with ES about 18 months ago, along with Parkinson's. Our silver anniversary is this Wednesday, 10/2.…
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New here - Contemplating my future while grappling with current issues
I am glad that I found this place. I have been reading some discussions, and I don't feel as alone anymore. I apologize for the length in advance. I feel like I just need to vent... My backstory - I have been married 30 years. I am 53, husband is 54. We still live together, but have been estranged for about 8 years. We…
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Disability benefits
Hello, I’m new here. My husband who is 48 years old was recently diagnosed with early onset Alzheimer’s. We filed for disability back in March and it still hasn’t been decided on. We are struggling as he is totally unable to work. I guess my question here is has anyone been this route? I know because of his diagnosis his…
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Routine schedule
My SO is 45 with EOA. We had an update visit yesterday with his neurologist. They said he is in the moderate transitioning to severe stage. She also said he can be in this state for a few years still as he is still able to bathe and eat and walk on his own. (Which calmed my heart). With all that being said I got a new job…
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Finding it difficult making decisions for my DH
The knee injections are no longer giving relief for my DH. It tires him to walk short distances. We have an appointment for consultation that’s moved out again to December. I know knee surgery is not an easy one. This week he had oral surgery for extractions of 2 wisdom teeth, and one tooth. Difficult for him to follow…
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Might be losing my husband’s placement
my husband’s been in Geri-psych for about a week after his latest aggressive incident.The nurse at his memory care came to visit him today and told the social worker they may not take him back. I can’t really blame the memory care. The social worker told me he would be very challenging to place because he’s had 7…
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Today it hit me !!!
I’m reading the other day what everyone is doing in my over 55 community, trips , clubs , shows etc. and it hit me my poor wife who worked over 30 yrs with own business raised two great girls was Cheated out of a retirement life she deserved . She’s happy in the things we do everyday, I make sure I take her out everyday…
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DH wants to know diagnosis
my DH keeps asking about his diagnosis and when given facts he denies situation and argues about it. I’ve tried changing the subject but he insists on talking about it. The last two Sat nights started the discussion got annoyed and agitated and went to bed. What am I suppose to say to answer this constant question. He says…
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Conversation with phone
my DW was diagnosed with EOAD about a year ago. She has always been a talker and she still talks a lot except now she doesn’t make much sense even to me. I the past I was Able to fill in the parts of the conversation and was able to figure out what she was saying. Today a new thing happened. My DW has followed a lady on…
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Traditional Medicare assistance with at home long term care
Finally a major candidate is talking about long term care being covered by Medicare for people other than those covered only by Medicaid. I heard Harris talking about it on The View earlier today and now it’s being talked about on several news broadcasts. If only……
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Resources for spouse?
Are there any support groups specifically for spouses of Alz patients? The spouse dynamic is VERY different from the child dynamic. I’m really struggling with the intimacy aspect and desperately need to talk with people who understand.
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Another step down
Since his stay in the ER, my DH has continued to deteriorate. Before, he could speak a little and was able to recognize me and say he loved me. Now, he is not speaking, is eating very little, and sleeping pretty much all of the time. As I live 3 hours distant from the MC, it is devastating to make the trip and not have any…
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First Bout of Pneumonia
A week ago, Monday, had the ambulance take DW to the hospital with what turned out to be right lobe pneumonia. 2 1/2 days in and got her right back home. Week later, she's made almost a complete recovery. Pleased with the nursing she received; CNAs needed prodding though on skills for 1 on 1 feedings, fall risk precautions…
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Am I being written out of DH history?
DH is in ES stage ALZ, but most likely moving into MS. Married 65 years. This week DH has told two stories from our joint history where he has written me out of the story for the most part. What he did was to take credit for things that I had done. I don't care so much about that as I am wondering if this is a "thing" that…
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BIBLE VERSE TO LIFT YOU UP 10/11/24
GOOD WORKS/MUCH FRUIT John 15:5 NIV JESUS’ WORDS “I am the vine; you are the branches. If you remain in me and I in you, you will bear much fruit...” Ephesians 2:8-10 NIV “For it is by grace you have been saved, through faith—and this is not from yourselves, it is the gift of God—not by works, so that no one can boast. For…
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Learning to communicate again
My DW is in her fourth year with Alzhiemers. Lately I find that I have more difficulty understanding what she says. She is unaware thratedat what she says is not always what she means. I get frustrated and that does not help.
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New Here
My DH of 64 years has had signs of some dementia for over 20 years. His Mother and her siblings all had full blown Alzheimer’s before they died. So it wasn’t hard to think that he might have it. About 3 years ago it came to a point that I just couldn’t cope and I finally talked to our primary care Dr. who we also consider…
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Enter into their reality…@
❤️
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Seeing DH slowly fade away
The worse part of visiting is leaving & driving 3 hours back to an empty house. The worse part is also seeing the other veterans there that are farther along in their dementia journey knowing what's coming for my DH. This weekly refreshed reminders of loss & grief are dragging me down.
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Early On-Set Rate of Down-Slide?
Hello, My DH has been living with aphasia for the last 2 years and was only recently (within the last month) diagnosed with AD. Since the diagnosis, he appears to be rapidly devolving - - anxiety about a number of different world events (hurricanes, war, covid, etc.) and amnestic symptoms, neither of which had been an…
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Leaving alone
This may be an obvious question, but I'd still like your thoughts. All of the literature says don't leave your person with dementia alone after a certain stage. My husband is clearly stage 5. However, he absolutely does not wander (doesn't leave the house), doesn't try to use appliances, pretty much sits in his chair when…
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How to answer DH's questions?
Here I am, on a beautiful Saturday, all alone, wallowing in self-pity. The need to visit DH is upon me now—ready or not—as he has a telehealth appointment with his neurologist coming up soon and I need to be present for that. Guilt has weighed heavily on me ever since I decided not to visit him after the first visit last…
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Good ways to talk to DH's doctor?
Hi all! DH has a PCP doctor appointment on Wednesday and I usually attend with him. The doctor is aware of DH cognitive issues and is fairly saavy and I usually update her the day before by leaving a message with issues, details, requests. The doc can throw me under the bus sometimes in the appointment by saying, "you wife…
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Help! I am second-guessing my decisions
My DH got COVID last month. For all of his 33-day hospitalization, they forced in to stay in bed (for falls precaution) and would restrain him much of the time. They barely walked him because he required 2 people (staffing issues or laziness?). PT might have come around 4 times in the 33 days. He was transferred to a rehab…
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Robotic therapy cat
I thought about getting a cat at one time but most of the responders on this forum discouraged the idea and I agreed with them that it would be too much stress for me as he gets worse. Even now he leaves the door open a lot so I’d be constantly worried the cat would get out. I’ve been thinking about the robotic cats and…
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My lifeblood is in MC
Hi all, I have not been of much help lately, have not been able to post. As of last Thursday, my Guy has been in a memory care unit, He had a paralysis in mid August, went to hospital for a week, then to a TCU for several weeks.. Now to a memory care facility that, actually, I could live in for $500 more a month. Diagnosis…
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Rapid Decline
My DH dropped 3 points on the MMSE in 6 months. I was told this is rapid decline. His score is 18 but they said he has/had high cognitive reserves. I put him at a solid stage 5 with a foot in stage 6 on Tam Cummings. Has anybody experienced this with their LO? Does it continue dropping at a rapid rate or can it be a one…
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I Would Pay Money for a Little Anosognosia
As my DW loses her ability to speak and has started becoming more anxious and paranoid, she will say to me, "I am about to lose it all." and then she'll cry. So I cry and think of how utterly unfair it is that she knows, really knows that her brain is failing her. I know her thinking she has nothing wrong would bring it's…
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Early On-set sadness
My DH seems to be advancing rapidly in his disease; he is only 61. I feel guilty that it's because I can't provide the level of care he needs. We've made too many trips to the ER lately. Most recently, he fell out of bed, tripped on a metal step stool, broke it, and then snapped the stabilizing bar, and it stabbed him in…
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Don’t know what to respond
My DH has just moved to a new MC after he was “dumped” in the ER by the prior facility. He is now getting great care, but the stay in the ER did a lot of damage. He cannot walk, has vision problems and his speech, which was poor, has become almost unintelligible. So he has lost the ability to communicate with the care…