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Tests and medications
Here is a philosophical question for everyone to ponder. As healthy human beings, we all do what we can to insure as long of a life that we can have. We eat right, we exercise, we take supplements. We do all the tests that is required by our age group like mammograms, colonoscopies, and so forth. We get flu vaccinations,…
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“Woozy, Head Feels Heavy”
Question for you caregivers—does your LO ever report their head feels, “heavy” and they are “woozy”? If so, has anyone consulted any doctor about this? Thank you in advance for sharing.
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memory loss
My husband is being treated for a third breast cancer recurrence. It has been 6 years of: masectomy, chemo, radiation, injections and constant meds. He sees an oncologist and neurologist but no one has addressed his memory loss. He is losing words unable to find the label for things, memories, directions to familiar…
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Downsizing with Dementia
It's been three years since the official diagnosis though it was happening way before that. And I realize I haven't looked back. I haven't looked back at how we were before all of this crept in ever so slowly. And I actually forget who he was sometime back in our lives together when I never imagined anything like this. And…
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How to get LO into assisted living
DW is in late stage six, with complications of paranoia, panic attacks, tachycardia, separation anxiety and is highly likely to have a complete meltdown upon being admitted to memory care or assisted living. How is this handled? I have been putting it off for over two years. Are strong sedatives an option? At least to get…
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We Don't Talk Anymore
My wife has ALZ Stage 4, entering Stage 5 this year. There have been many noticeable changes, most obvious is that we don't talk anymore. She is very quiet, sometimes sitting and staring for long periods. Occasionally she tries to speak but can't think of the words and then just drops it. This is creating an atmosphere of…
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Dementia
Lately, my wife doesn't wash herself or use deodorant and she wears the same clothes for days. Her memory is getting worse, but she maintains a good appetite. I would ask her about her hygiene but she feels as though I'm treating as a child.
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Warning
My BF passed away last night unexpectedly. Her Dh has alz. Stage 6 .She took care of him by herself. Her kids have have no idea of what to do with their dad. They know nothing about his meds.,his sleep habits,how to get him changed or anything. She didnt keep them informed on anything. There is no poa or will or guardians…
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SSDI and anosognosia
My DH is 56 and has been diagnosed with EOAD. He knows he has “memory issues,” but he does not know how severe. He accepted a voluntary severance package from his employer last September and has told me nearly every day since that he’s going to apply for jobs. He did apply for one job, and to make a long story short: he…
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New to the group
I have just joined the group and Im not quite sure how it works. My husband (age 65) has early onset alzheimers. We have been struggling with issues for years, had numerous tests, no doctor has been willing to give an official diagnosis. He recently took the PTAU217 test and his numbers were completely off the chart. A…
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Senile Dementia
My wife has been diagnosed with senile dementia with behavioral issues along with schizophrenia, paranoia, and hallucinations, she was discharged from the hospital this week as the hospital says this is her new baseline and there is nothing else they can or will do. What do I do now
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Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
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DH won’t let me change him
My DH is in memory care and won’t let the aides or me change his wet Depends. He gets very agitated if I ask him and has punched me. He does the same with the aides. It doesn’t matter what time of day I try. It is always a battle. The Dr put him on depakote to try to help with these behaviors but it hasn’t made a…
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Lonliness when caring for a spouse with ALZ/dementia
My DH is not quite in the middle stage of ALZ, and most days he is "normal", but he isn't really. His critical thinking has diminished in most everything except math. We used to have spirited discussions about matters of faith, politics and so on. Now, half the time he can't hold a discussion about a movie that we watching…
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I Had A Week Respite
Hey all. Most know I was able to take a week’s respite in early June. It’s been a bit over 5 years for me. I was burnt the heck out and had just decided to retire early this December. I needed it and for those able to somehow cobble something together, I am an even more staunch believer it getting whatever respite you can.…
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Podcast on Caregiver Stress
I found the following podcast by Mel Robbins very helpful… https://youtu.be/892M1vCEuUg?si=GAoYuLuvynSx_RqY
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Laundry day
Ugh! DH mostly made it to the toilet but there is a lot of BM in his underwear, I rinsed that out in the toilet later. So I'm wondering ….do you wash the underwear in the washer by itself maybe with rags or something, or with other regular laundry?
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Drowning
Hi everyone I am a carer for my partners mum. My own mum has had to go into a home and I feel desperately guilty I've now left my work and am looking after someone else and I couldn't mum. I am in a different space now but I'm drowning in guilt.
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Just need to talk to my friends (207)
Judith, I didn't get on the stepstool, stood on the floor and used a mirror. Hopefully, Beth will be able to post on 207 now.
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Is this considered wandering?
DH is in Stage 6 and I’m having an awful time with keeping him busy. One thing we’ve been doing is walking, even in the Florida heat (not ideal, but if he wants to, it occupies some time). However, he walks and walks as if it’s a one way trip - he wants to go a certain way and I have a terrible time getting him to walk…
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Ready to place hubby in memory care
after 4 years I’m ready to put hubby in memory care I have been in touch with the place for 3 years so familiar with director. talking to hubby about it but he doesn’t want to go. I’m facing what I never wanted to do and that is leave him there. Has anyone gone through this. My hubby is 82 and memory is terrible. Won’t…
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Anyone able to keep alzheimer spouse home until death
I have been trying to find anyone with experience keeping spouse at home with help of hospice until the end. My husband is finishing up stage 6 right now. And so far I have been sole caregiver with no outside help. He is 71 can still walk. Can eat on his own like a 2 year old. I have to shower and dress him. He just had…
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Travel and confusion
My DW of 48 years seems to get more agitated and confused when we are away from home. She is mid to late stages of Alzheimer's. We are supposed to go to the coast with our adult children and their families, but I am beginning to have second thoughts. Between the new location and chaotic nature of a large family gathering…
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Girlfriend reprise
You may recall last winter my dh had a girlfriend in his MCF. He was moved to the next higher level of care, and because that higher level of care has two separate wings I thought we had solved that problem. Today I find that girlfriend has been moved over as well and is now two doors down from him. I don't know why they…
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How to remain positive
Many of you on here seem to deal with things really well I have arthritis which makes life more difficult doing everything & sometimes I feel overwhelmed with everything & miss my old life Any advice please
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Respite to hospital
DH is on hospice due to heart condition including Alzheimer’s. My son got him to go to the nursing home by inviting him to go to his favorite place, McDonald’s. I had been sick for 3 weeks with what I thought was a recurring bout of diverticulitis. So I headed to the hospital where The CT scan showed a mass on my pancreas.…
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Paying for MC
we are in the earlier stages but I see so many of you talking about placing your LO in MC. How are you affording it? I am 55 and I can’t see spending all of our investments (which are not huge amounts) on MC because I will need that money to live on for the rest of my life. That sounds cold but I have potentially many…
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Urine smell in pants
Hi yall my bf (46 EOA) Has been fully incontinent for some time. He gets the bed nightly, is there a soap that gets rid of the light urine smell? It's not super bad but I notice it when getting his clothes out of the dryer. Thanks in advance. We are all in this together 💜
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Boyfriend with early stage
Does anyone have a boyfriend with dementia, repeating questions and forgets conversations? I could use some support if anyone out there can relate. He is very easygoing and loving, but wonder what this will do to our relationship in the future.
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Premonition of Memory Care Move
Last year for about 4 months before he went to memory care, my DH talked about being separated from me. He talked about how he didn't want to leave, that he wanted us to be together. He also would take all of his clothes out of his drawers every night and pile them on his bed like he was packing for a trip. There was no…