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Increased appetite?
Recently DH has had an increase in his appetite. He will get up during the night and eat. I find the evidence of this when I wake up. I don't always wake up during the night when he gets up because I have a cochlear implant which has to be removed at bedtime, and that leaves me completely deaf. So when I do wake up, I find…
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Says he doesn’t have Alzheimer’s
Background: My DH is 56 and was diagnosed with Early Onset Alzheimer’s after an MRI, Neuropsychological Evaluation, and CT PET Scan. The doctor told him he has Alzheimer’s, and he and I talk about it every once in a while. He has been out of work for nearly a year because he accepted an Early Retirement Severance Package…
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Tracking watches
I am looking for a watch with gps tracking. What would you recommend? We have Tile gps trackers on phones, keys, wallets. Anything else you would recommend? Thank you in advance for your suggestions.
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Having a time coping with Husband
I have noticed big changes in behavior and took him to Dr. and have finally got appointment Oct 1 for neurologist. He has been throwing things away, good things, loosing thing, not knowing what day it is, I ask him all day to make his bed and he say he will get to it and it doesn't happen. I had to start checking on him…
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CHERISH THOSE POSITIVE PEOPLE AROUND YOU
If there is anything I have learned…only in the very beginning of this incredibly difficult and challenging disease process is that you truly learn who loves & cares for you.. and spouse (DH) be it family or friends. As much as you will or have gone out on a limb for others in their difficult or challenging times.. it most…
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My husband isn’t diagnosed yet
his memory is worse every day. So frustrating with all the repeated questions, plus he cat hear wear and has a cochlear implant, so lots of yelling answers to him. Good thing I have the patience of a saint!
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PWD refusing to pee with aide, instead ends up going on floor, help!
Looking for tips to improve a situation! My husband is not incontinent but sometimes needs help in the bathroom, either verbal cueing, or sometimes a bit of physical guidance, to either stand close enough to the bowl to aim or to sit down and pee that way. The problem is that now I'm back at work, the aide (who's in her…
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i am so confused
My DH has been diagnosed with early stage dementia. He has been tested and it is not Alzheimer's. His short term memory is getting worse every day. He cant remember where we are going at all. I do the driving now. As an example I will ask him over and over to put is partial plate in. By the time he gets up the stairs he…
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when to stop work
Hello family, My DH is not remembering who I am. Has our wedding picutures from one room to another. Im thinking this might be soon til , the is last time he remembers us. He sleeps alot and is awake til ??? During day I work 4 days 730-5. Should I quit working? I dont know
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How do I make this decision
My DH has had Alzheimer’s for about six years. He eats well, is somewhat responsive but does not engage in conversations, forgets to bathe and brush his teeth etc. He is not incontinent. We have hospice in once a week to help him shower, which he objects to, and a nurse to check vitals. He also has congestive heart…
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Update
I want to give an update on what's been happening with DH. In my last two thread I shared that the facility said the state told them he had to move because of an incident where he wandered and got into bed with a female resident and touched her in an inappropriate place. The Division of Health and Senior Services (DHHS)…
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PBM laser light therapy for Alzheimer’s
Have any of your love ones had PBM laser therapy treatments? If so, has it helped for cognition? The research on this therapy for Alzheimer’s is promising for delaying the progression.
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Need advice
I am hoping someone out there has experienced a something similar and can provide some guidance. Background: My husband was diagnosed with Alzheimer’s “with a vascular contributing factor” in 2023. I would say he is probably in the moderate stage now. To the average person, he seems normal. Short term memory is really bad;…
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The Long Quiet
Dear Friends, I am quickly approaching ten years as a caregiver for my dear wife with late Stage 6 dementia. Alzheimer’s and dementia have long been known as The Long Goodbye because of the painfully long duration of the disease. No one knows how long their journey as a caregiver will go on, but I never imagined myself…
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A little pick-me-up
Sometimes the smallest kindest can make you feel so blessed. An old friend from our ski club who found out my circumstances sent me a gift box with this beautiful mug. I loved the message on it and wanted to pass it on to all of you awesome caregivers. We didn’t choose this life but we’re making the best of it out of love…
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Dementia study done by the UK
https://www.dailymail.co.uk/health/article-15084673/sleep-brain-ageing-dementia-insomnia-brain-ageing.html Interesting.
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End stage
My father insists on taking care of my mom till the very end. He is struggling medically as well and they need lots of support. They are currently in assisted-living however I’m wondering at one point do I insist on memory care?
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Gentleness and Continuation
I guess after reading about so many other situations I have it very easy. My DH is not aggressive, he’s very sweet and kind the sort of person that everyone loves. He gave up driving relatively easily and is quite good as a passenger, he accommodates most of my wishes if I manipulate the circumstances to suit. We go to the…
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Wedding Ring
My DH lost his wedding a while back but keeps thinking he just lost it. He just told me he lost his wedding ring and said “ I know I had it yesterday” but he didn’t. I’m concerned now cause of the distress this is causing him. I’m acting nonchalant but he’s clearly worried. Should I go buy a new one and pretend I found it?…
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worried about my own memory
My husband was diagnosed with early stage Alzheimers and lately I am wondering if I have alzheimers. I do not know if it is from the stress. He is very negative and constantly talking about what is wrong with him. I try to be patient but it is sometimes difficult with his pessimistic attitude. I am not sure if anyone else…
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"Exhaustion" by Michael J Whelan
I follow Michael on X (Twitter). His is a stage 4 cancer survivor & his wife Rebecca has Parkinson's & now Parkinson's Dementia. He has such a way with words. He expresses what many of us feel. He posted this today: "A Letter to Exhaustion.by Michael Whelan Chapter 21. An except from my memoir. Dear Exhaustion, You didn’t…
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Elizabeth Dole Foundation assistance for caregivers of veterans
if you are the caregiver of a veteran, contact the Elizabeth Dole Foundation for assistance. Veterans do not have to have a disability rating to qualify for assistance. Go on their website and fill out the intake form. I posted further information on the caregiver information page with their phone number and assistance…
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It Is Over
Three weeks ago my dear wife of 57+ years ended her battle with this cruel and heartless disease, Alzheimer/Dementia. She declined very fast over the few weeks prior. I promised her at the start that I would do my best to never put her somewhere for her care but, rather, have her at home forever. While it does nothing to…
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When did you insist they stop driving?
DH is in the early stages - mostly stage 3 with some stage 4. I do 90% of the driving, but on the occasions that he does drive, I haven't noticed any difficulties. However, I am noticing more instances of general confusion in following conversations, understanding instructions, maintaining a calendar, etc. He is awful with…
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DW’s anger
I have noticed that my DW easily angers and directs it at me, but will turn around and be polite to others. Has anyone experienced this?
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Morning thoughts
This morning…The Puzzle I emptied the new puzzle package onto the table I use for my newest obsession, assembling puzzles. I usually work on 1,000-piece puzzles but this one seemed to have 10,000 pieces. It seemed impossible at first, but I resisted the notion of discarding it. I figured there must be a solution. I was…
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Looking into Memory Care and Very Sad
My DH is currently in the hospital after he got out of the car when I was at a stop sign, refused to get back in, and crossed a busy 4 lane street during rush hour. Cars had to stop and change lanes to avoid hitting him. I called 911 while he crossed back over again and still kept walking and wouldn't get in the car.…
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New here... starting to feel lost...
Hello, all my new friends :) … My husband was officially diagnosed almost two years ago, but it's been apparent to those close to him for quite a few years that there were some issues with his memory. He's 75 and I'm 62 and still working full time a job that I LOVE and the insurance at this point is invaluable since he…
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Rivastigmine???
My DH used to be on donepezil but the neurologist took him off of it because he also takes escitolopram for depression. He put him on rivastigmine instead because of concerns about interactions of the drugs. Just the other day, he doubled the rivastigmine dose to 3 mg (from 1.5) as my DH has been having hallucinations and…
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Not Agitation or Aggression, But...
Hi all. Hope folks are having a good as you can get weekend. I feel like, in many ways, I'm one of the luckier ones. My wife has largely been compliant. She gave up driving easily. She doesn't really have it in her to be super aggressive. She has pretty much lost her speech, though, but still has a huge desire to talk. In…