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Wants to "go home"
This is my first post. Husband was diagnosed with Alz/dementia a year ago, but in retrospect I know it began several years ago. Every day he says he wants to go home, even though he is home. When I tell him we are home, he gets upset and says "it's not my home." I don't know what to say or do. Any ideas would be…
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Problem when we walk or bike
I feel like I’m being really whiny lately (and maybe “wine-y also 😉) but I have another question to pose to this group of creative thinkers. This has happened a few times now and I am not handling it correctly. We’ll be walking or biking and he wants to go a certain way. Ok, we go that way. But as we get farther away from…
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Waiting
Hi friends. My bf (45yo eoa) had his neurologist video visit this last week. I also had the conversation of MC admittance via hospice to a facility with his pcp. Pcp said he put the referral in and should have heard by end of last week beginning of this week. His neurologist said he is in stage 7b. My heart aches. I know…
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funny
DH has started Kisunla. I told him we were going to leave soon for his infusion. He asked why we were going as he had enough confusion and didn’t need more.
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For profit memory care
Virtually all the MC facilities in Tucson are run by big nationwide (for the most part) companies. All of them no doubt are responsible for generating income for their investors, who expect returns of 8-10%, All of them have issues related to the need to cut costs so investors may profit. Today I heard of a local entity…
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CBD and Irregular Sleep Patterns
Good Morning from sunny SoCal. Over the last couple of months my husbands has been getting up two or three times a night to "go to work" - which is actually sitting at the kitchen table with his newspapers and other misc stuff. I've tried melatonin and really didn't get any good results. Has anyone tried using CBD or THC…
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recognizing and treating UTIs
My DW is late stage 5, early stage 6. She is still able to toilet by herself, but her hygiene is deteriorating. I am doing my best to help her stay clean and dry, but success is limited due to lack of cooperation. From what I have read, I should expect UTIs to become increasingly common. How will I recognize when she has…
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My wife of 50 years diagnosed with dementia
Hello , my name is Neal and I'm reaching out because I'm so emotionally upset and tired . My wife was diagnosed last nov. In the first few months she was doing everything to be pro active .. Mostly what the neurologist suggested. As of now she has a lot of anxiety and is not eating and drinking right. I do have support…
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Seizure
My DW (EOAD) had a seizure this morning while we were having breakfast. I had never witnessed a seizure before and it was very scary. Luckily I was with my MIL and she was able to call 911. She had a large contusion and we had a CT which found no bleeding in the brain. She is home now. My question is does having a seizure…
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no meds
My DW was diagnosed with dementia of the altzheimer type frontal lobe complicated by depression. The main concern that I have is I do not know how to help her take her meds. When I offer she either becomrs very agitated with the final statement that she is stupid or says she will. She was given 24 amocycilin by a dentist a…
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Words I never thought I would say
We've all said things to our partner with dementia that we wish we could take back — angry, frustrated, sad, words that they can't begin to understand the reason for. Fortunately they forget quickly. Lately I've said something to friends and family that I never expected to. I'm ready for my husband to die. DH has been home…
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Vascular dementia
My husband has had several strokes and has VD. He was diagnosed a few yrs ago. I read many of the alz posts and I understand dementia shares many common behaviors and the ultimate end is the same but instead of memory issues, my husband presents more executive function issues. Difficulty problem solving, multi step…
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VENT - Pooping Confusion
DH has been in disposable briefs for quite a while. I watch him like a hawk when he is my eye sight to get him to the bathroom. And he has gotten much better at telling me when he feels the need to go. This morning DH let me know that he needed to go to the bathroom. I got him successfully to the toilet. He later told me…
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@harshedbuzz
I believe it was you who posted a link to a great article about preventing falls. I have been searching for that discussion but I can't find it. Can you point me in the right direction? Iris
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Not sure
hello everyone. I’m new here. I thought I would try this site before giving up. I joined another site a few years ago when my husband, the love of my life first showed signs of cognitive decline. There was so much negativity on what will happen and people were very harsh. I just wanted support. I got very depressed and…
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Refuses to brush teeth
Over time it’s gotten more and more difficult to get DH to brush. I first resigned to once a day, moved it from bedtime to morning when his mood was better, put the paste on both our brushes and hand him the brush. He knows what to do but now just gets mad and throws the brush in the sink because he “hates doing that and…
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Looking for a group of active early onset people in Seattle/Issaquah area
Hello, I am hoping to find other people in my community with early onset that are still active. My husband is a very active 62 YO with FTD who desperately wants to be out in the community helping and socializing to try and preserve, as best he can, his speech and communication skills. He hates being alone and I work…
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Moment of Being Overwhelmed with WHY?
Please no advice! Just a listening ear is what I need. I am sitting at a Panera alone with an iced tea. I fled our home—literally—-a bit ago because I could not take another moment of being in the presence of DH with mild cognitive impairment from ALZ. I feel utterly alone in this moment and overwhelmed. I have no one to…
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Auditory Hallucinations
My DH has been having memory issues about 3 years now. He is definitely in mid stage of this disease. I noticed about a month ago he seems to be having auditory hallucinations. He would ask me to repeat what I had just said to him when I had not said anything. He is 63 yo and i will be 62 yo tomorrow. I still work full…
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Questions: Cleaning up poop with shaving cream
* Does it matter what kind of shaving cream I use to clean up poop? * Does shaving gel also work to clean up poop? * Should anything menthol be avoided? * Do I just slather the shaving cream on, then wipe it off? * Do I rinse DH after wiping off the shaving cream? * Can shaving cream also be used for the bathroom clean-up,…
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Feeling Conflicted and Guilty about moving on…
My wife is in the mid to later stages of AZ and is struggling to communicate, she sits quietly most of the time. In addition to AZ she has a genetic eye defect that is incurable, she is legally blind and needs help with everything. I am her caregiver and have given up most of my exercise and outdoor activities to support…
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DW just diagnosed with Early onset Alzheimer's
My DW (63) has recently been diagnosed with early onset Alzheimer's so we are in the beginning stages of dealing with it. We've been through 5 months of testing. Her mother is in assisted living and soon to be in memory care for alzheimers so she sees and knows the likely progression. We have 3 grandbabies and more on the…
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Confusion in transition from sleep to awake
I have been searching for information on this site, but cannot find much about this. My DH is developing a pattern of confusion or ??? During the period of coming awake. The duration varies, from a few minutes to half an hour. During that time, he does unexpected things like needing to empty the dishwasher unclothed, or…
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Just when you think thing are doing prettygood
A slight change in a routine about locking the doors while I was at work.He became confused to why we need to.i have grand son I cant quit trust. He knows when I'm gone I I would the doors unlock.dh very upset when just thinks about him. Not quit sure what to do to make him less agitated.
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Accepting
Hello, This is my first post. My DH just turned 67 and was diagnosed with Alzheimer’s less than a year ago. I am still trying to adjust to this new reality and how quickly he seems to be declining. I found the posts on hallucinations very helpful. In the past several weeks he has awoken in the early morning (usually around…
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Experience with Caplyta
Hospice is recommending Caplyta for my DH with EO. Has anyone had experience with this drug?
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New to this Group
I am caring for my DH who has had cognitive decline over the past 4 yrs. As I write this, I can't believe it's been that long. I am trying to abide by the rules, however find myself breaking the rules, especially when I am in the middle of something, (like doing taxes today). He has alcohol dependance with a dementia /…
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An ugly discussion about poop!
Sorry, everyone, but I have a question about poop. My husband is in a memory care facility. Lately, his bowel movements have been very soft, and impossible for him to pass all of it while he is on the toilet. He is unable to wipe himself, so he ends up with poop everywhere. He doesn't tell staff when he has to go, so they…
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Medications?
My husband is starting to show signs of paranoia and hallucinations. He’s currently in a long term care facility. He’s in palliative care. I’d like to bring him home, but he has wandered in the past and sundowns. Does he need to see a neurologist for a diagnosis? How do I find out if he needs medication? I can talk with…
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DH in NH pinched another resident km
DH has been in NH for 2 months. He has been wandering into other people's rooms. Last night got a call that he had pinched a woman and caused bruising. Needless to say the female resident was yelling and extremly upset. I feel terrible he did that to her and today he's having a psych evaluation in house. Anyone ever go…