-
Sleeping is increasing
My DW has been sleeping 10-13 hours a day. Until recently this sleeping has been all together. Bed at 5:00pm and up between 3:00-5:00am. Of course a couple of times each night to wander the house and return to bed. We were up this morning at 4:00am and it is now 1:00pm and she has already tucked herself in for the night.…
-
Angry
I’m not sure why, but all of a sudden I find myself angry at my husband. I snap at him when he asks me the same thing over and over. When he was diagnosed with ALZ I was able to stay calm and compassionate. Now I feel like I’m falling apart. Has anyone else experienced this. He’s in the early stages so he’s not even bad…
-
Leqembi Infusions
My husband is in early stage Alzheimers and our Neurologist recommended Leqembi. After much discussion my husband decided he wanted to try it even withe the serious side effects. After 3 infusions they did an MRI to look for side effects (brain bleeds). All was good. After the 5th infusion they repeated the MRI and it…
-
Taking a Patient out of Memory Care for Christmas?
This is my first question to the group - my mother has pretty severe Alzheimer's and is in a lovely memory care facility which she believes is temporary while we are putting an addition on our house for her. I live close by the memory care facility and some times take her our for a meal, for church, even over night for…
-
Doctor prescribed 2 different medicines at the same time.
My sister is the main caregiver, but I have concerns. My mother, who has the dementia, went away for a week and had a uti, and loss of appetite, and lots of picking. She put a call into doctor and doctor prescribed antibiotics, and remeron, and zoloft. Took her off the buspar. And added the 2 new meds. My concern is that…
-
Wife with Early Onset Alzheimer's
Hello, My wife is almost 41 and late stage 5 with EO. Both her brothers as well as her mother have already passed from the disease. Its been a struggle lately to say the least but both my parents and her parents are watching her during the day. We need to transition to a caregiver for 30-40 hours a week while I work. We do…
-
The Cavalry Is Not Coming
Reposting for the new platform. I have not posted here for quite a while, and I want to let you know that I am still here. I hope you all are doing well, and I also have a thought process to share with you. October 1, 2022 will mark seven years since my wife’s dementia became obvious, and that I knew for certain that this…
-
Neurological Symptoms
I am here because my DH has been struggling with short-term memory loss for a couple years now. We don't have an official diagnosis yet, but the general consensus seems to be vascular dementia. He asks the same questions over and over again, as if on repeat. We went to his niece's wedding, and then he forgot she got…
-
Take a cruise?
DH sooo wants to travel still. He is in late stage 5, some into 6. He is continent, unstable but still walking especially with me beside.. He is very opposed to using a wheelchair. He knows me, does not sundown, is compliant. He has limited vision so doesn't wander. I would like to travel, too, and I worry about logistics…
-
What do you do with your big feelings?
What do you do to keep from exploding inside? (That’s an exaggeration of course.) I’m at the beginning of this long ride and I don’t know how you all do it. My DH keeps forgetting things we’ve agreed to, like replacing our old couch, or planning a trip to visit our grandkids, etc. So, we have the same…
-
Not Sure Where to Turn
The last 5 years have been a roller coaster. No doctors agree. Some say dementia. Others say not. We've been chasing a diagnosis and hopeful for any help. It's gotten to the point where I know it is dementia. My wife and I are 61 years old. I need a doctor who cares and doesn't want to spend 5 minutes once a month and then…
-
Frustration and Delay getting ID
Yesterday was a day filled with frustration trying to arrange what I would think would be a simple procedure. I want to replace my DW's (now expired) real ID driver's license with a Massachusetts real ID. The procedure is handled by the RMV. I've now realized that my DW no longer has any kind of valid ID for government…
-
More about spitting…
It’s been a long time since I’ve checked in. My husband is still going strong physically and he’s on eighteen years since learning he had a diagnosis of MCI. Probably twenty five years if counting behavioral changes proceeding memory loss. He’s considered to be in advanced stages of loss of cognition, but I’m not…
-
Adolescent Behavior
My DH who I think is in beginning to mid stage 5 acts like a 12 year old. I work full time but when I get home the constant wise cracks and jokes begin. We can’t have any kind of conversation or watch tv because he is constantly trying to make funny wisecracks and sexual innuendo’s. Anyone else experience this?
-
Heart Breaking
I can’t get over how sweet and normal my DH seems. Sitting watching Love Actually for the 3rd time this season, laughing really enjoying the antics of ‘Miss Dunkin Donuts etc, having a curried egg sandwich for lunch and then he tries to say something and the words won’t form, I try to have a conversation with him and he…
-
Clinginess
Hello all- I was going to reply to another post from a few days ago because she specifically mentioned the increase in unwanted opinions from her DH and so this is related, but also I am kind of thinking perhaps a precursor to shadowing maybe? Want to see what you guys think and what your experience has been. Anyway, my DH…
-
Showtiming Is Fascinating
My husband (56 with EOA) recently had a 4-week hospital stay due to Ulcerative Colitis, which led to blood clots and malnutrition. He is currently at home. He can barely walk. He eats maybe 500 calories a day. He argues with me about taking his medications every single morning. He did the same thing in the hospital and had…
-
Moving to a Care home.
My DW is being moved to a care home. She constantly screams at me. She has been in the hospital for 5 days now. Tomorrow she will be moved to a care home. Today I got her bed etc. moved to the care home. Tomorrow the hospital will move her to the care home. I'm so tired, drained and hurt. She spent most of the day…
-
A new task, self catheterizing my husband
I knew when the urologist informed my husband he needed to learn how to self cath, that meant me. The list of skills I have acquired as a caregiver gets longer and longer. It never crossed my mind this would be in my future. I have now done it successfully 8 times. Enlarged prostate with frequent UTIs and reduced ability…
-
Merry Christmas?
My DH is Stage 6, mostly cognitive age 4. He was diagnosed 4 years ago. Because he was an athlete, he is very physically strong. He still has joy for our dogs, loves to eat, and mostly easy going. Until he's not. I took him to cut down a Christmas Tree as I want to give him a nice Christmas. His family have not stepped up…
-
Libre3 insulin system
Greetings - My husband is 81 and was diagnosed with Alzheimer's as well as vascular dementia about 5 years ago. He has very brittle diabetes and has just been upgraded from the Libre2 to the Libre3, which is different in many ways. The sensors look like little buttons and have a small part that goes under his skin. He's…
-
Hubby in memory care the nurse?
hubby in MC one month and 12 days. His reasoning skills are impaired. He cannot understand he can come home sometimes but has to go back there. Today he cried about going home and I cried too. I just couldn’t stand seeing him this way. One of the nurses or maybe she’s an aide said he’s cries all the time. That I should…
-
Sticker for vehicle…
I saw this and realized it would help if you have a passenger in your car who has dementia. If there is an accident, this would be important. Also put something in your car or phone in case of emergency so they could contact a secondary caregiver. Anyone have their loved one wear a medical alert bracelet? I’m not sure my…
-
How to answer if your DH says he is dying.
My DH is in the late stages of dementia. He has difficulty swallowing, and has lost nearly 40 lbs. He is wheelchair bound, sleeping a lot, and is double incontinent. During this Christmas season, the MC facility where is lives is having a lot of entertainment come in. Their performances are mostly Christmas music. He…
-
Different respite question
Because my husband is on Hospice, I can get a three day respite. He would go to a Hospice house that is secure. My question is this: What would things be like once he came back to our home? Would he be more confused? Would it make things worse with his behaviors? Can anyone comment on their own experiences with their LO…
-
Hurt Feelings
A bit of background. I’m 69, my DH is 81. We have been together 35 years. I was a widow with two young daughters. He was divorced with no children. He raised my girls and they love him. We have 3 grandchildren. About 6 years ago we did a living trust with both girls splitting whatever we have. Last night, out of the blue,…
-
Wants to constantly use the bathroom.
Hi I am new looking for some advise on maybe how to distract my person from this behavior. My DH is in moderate stage Alz. He does not understand time and has just started becoming obsessed about using the bathroom to urinate. He will use the bathroom and a few minutes later wants try again and of course cannot go and…
-
I’ve never lived there.
Tonight my DH asked me to take him to the city he grew up in, home. He even recited his old childhood address which no longer exists. I asked him if he ever lived in _________(the name of our town). He said no, I’ve never lived there, but I did live in Chicago for 11 yrs. I thought how sad, all the memories in our house…
-
Alcohol and dementia
My DH was diagnosed with early onset dementia 3 months ago. It was suggested he limit alcohol to 2 or 3 drinks a day. He has been regularly drinking each day at mid-afternoon and passes out by 6 pm for a couple of hours. He cut back briefly but he’s gradually increasing again. We had an argument about it tonight and I got…
-
Don't know where we are in this
My 65 y.o. DH was diagnosed with early stage Alzheimer's this past July. I know things haven't been right for a couple years even before the diagnosis. I didn't know much of anything about AD and I'm trying to learn. He is still fully functional, has a lot of trouble remembering words, losing his train of thought, working…