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Care home wants more meds because of aggression
My DH has late-stage early-onset Alzheimer’s with aphasia. For his safety and because I work full time, we had to move him to memory care 10 months ago. Before moving he would sometimes strike out at our home caregiver. In memory care he became aggressive when exit seeking and during grooming. We tried medication but ended…
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Emotionally and Mentally Exhausted
Hi everyone, it took me a little while to go ahead and type this ‘new discussion’, hopefully I am doing it correctly. My 78 year old mom was finally diagnosed with moderate dementia last week. My siblings and I knew she had some memory delays, especially after my dad passed a few years ago. I didn’t realize it was bad…
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Transition to wheelchair
has anyone dealt with transition to a wheelchair? Mom has started falling but refuses to stay in or use wheelchair. What do we do?
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
Hi! I was on the boards here 7+ years ago for my dad, and now I'm back for my cousin. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth.…
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Social support?
I just had confirmation of my suspicion and fear that I have an early stage of AD, and like so many others I decided to look for a support group, online or in person. I don't want to go through this alone as the symptoms evolve. At the age of 84, I am caregiver for both a life partner and a daughter with dementia; however,…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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Hot Spots - Wound Care
Hello everyone - Question…. Both my Mom and Dad are under Hospice care, both are in Broda Chairs or in bed, unable to walk or stand. Hospice is treating both of them for wounds. My dad has "mushy heels" I am told, they are putting plates on the bottom of his feet and elevating his feet in his Broda chair as well as using a…
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Memory Care Week 1
DH has been in memory care one week now. Biggest issue is his combativeness when being changed, which was a huge problem for me when he was home, as it is for many of you I’m sure. He’s also difficult to redirect when he’s doing something he shouldn’t, like taking a woman’s shoes from her room. Med adjustments are being…
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Need New Neurologist
Has anyone sought 2nd or 3rd opinions on dementia diagnosis? Does Medicare (Part A & B only) need a referral for second/third opinions for neurologists treating dementia, more specifically a Lewy Body specialist? I'm not happy with our current one who seems only knowledgeable in Alzheimer's. I tried looking for an answer…
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I just cried
Today was the first day for my DW to be in daycare. We’ve been together 24/7 since her diagnoses of EOAD in 2023. I dropped her off and went back to my car and broke down in tears missing her and feeling guilty of abandoning her, I know this is good for both of us and it is only 1 day a week. I can’t even imagine my…
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Assessor tomorrow long term insurance
tomorrow Monday meeting with nurse from our long term insurance. Anyone have any experience with this? I have list of meds doctors his cognitive impairments his ADLs. If anyone has experienced this please share. Thx
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First visit memory care
our visit was terrible. Hubby has been in mc one week. He was crying he wants to go home. Can’t under why he can’t be home. I said all the right things but didn’t do any good. I told him I’d be back tomorrow. I’m hoping he will have forgotten I was there. They say this is normal. How long will it go on. Is he going to do…
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Teepa Snow video on challenging behaviors
When a PWD shows a challenging behavior, I often dismiss it as due to a broken brain, and I often just try to distract or ignore it. In other words, a broken brain means there may not be a good rhyme or reason to consider. So why bother? I learned that some detective work can help. I saw this Teepa Snow video on YouTube,…
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Home Care Agency Recommendations in San Antonio, TX
We are moving to San Antonio, TX 78218 and am asking for any personal recommendations for in-home care agencies in the area. If anyone has used a company in that area for their loved one, I would greatly appreciate hearing from you.
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She thinks she's "done something bad"
My mother has later stage Alzheimers dementia. She sometimes recognizes her children but doesn't know our names and requires assistance with all of her ADLs. We care for her in the home she has lived in for over 60 years. She has recently been perseverating on "I've done something bad" We can't find any pattern or…
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Please remind me I’m not a terrible adult daughter
The past two weeks, after some really bad situations at work, I made some big changes. I stopped visiting during the week I began a new (very low dose) antidepressant medication to get me through this and back on track so I don’t lose my job. The good news is the meds and no interruptions worked great - I am, basically,…
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Placement/Agitiation/Aggression
My father has MS dementia. He acted out against my mother a few weeks ago and he is currently under a doctor's care at a local hospital. The issue now is that no facility will take him if he is agitated/aggressive. He is under restraints at the hospital because he keeps attempting to take IVs/feeding lines out (he refuses…
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When I Become a Memory
My cousin wrote this in 2015. I just found it. When I become a memory… Think of me with a smile. Tears may fill your eyes, But only for a little while. Remember all the good things we did. Remember when I was at my best. Remember only the good times, And let go of all the rest. Remember when I was healthy And so full of…
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Is it getting worse?
How do I know if things are getting worse? My mom’s dementia seems to have gotten noticeably worse over the past few days. We’ve had street repair work going on nearby, with heavy machinery and loud noise, and I think it might have affected her. A few days ago, while the workers were out with their equipment, two of her…
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Exhausted and feeling Overwelmed
Just finished breakfast with my DW after a no sleep night filled with her nonstop talking , yelling at the imaginary people in our house, wandering, looking for "stolen" items and occasional outbursts of anger and aggression. My efforts to distract her constantly failed. She has calmed down now at approx 8 Am for our…
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Ordering Supplements
Hello, this is my first post here, though I have read through many discussions and found them insightful and therapeutic. My DH was diagnosed with AD last year, had been showing symptoms of dementia for several years, and had a previous diagnosis of MCI. For several years, he's been ordering various supplements that claim…
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seeking doctor recommendation
hello all, my parent is finally willing to see a doctor re: alzheimer's/dementia. We have no diagnosis, but ALZ runs in the family and they have been experiencing moderate symptoms for a few years now. i am looking for a doctor, preferably in Monmouth County, NJ who is compassionate and patient- they will need patience to…
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Saw 4 hawks today…
I’m driving to attend a reunion with Marines my husband served with in Vietnam. 3 wives who have lost their husbands since I last attended with my husband 6 years ago will be there. My husband and I traveled in an RV and always counted hawks. He believed in Native American philosophy and hawks are good luck. On my trip…
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Experiences with refrigerator locks
I've seen posts in this forum about refrigerator locks, such as the ones sold at Amazon that adheres to the door and main case, and has a cable connecting to the two parts with a lock. What experiences have people had with them? I suspect that it will trigger anger, and pulling on the door until the glued pads fall off. I…
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Memory & Moving
My DH doesn’t remember anything that has happened in the last 20 years. We are going to need to be moving soon. One minute he seems more normal. After 30 minutes, he has already forgotten us talking about moving. Everything and I mean everything is falling on my shoulders. This move is going to be incredibly difficult. DH…
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Knee Replacement Day 6 - Questions
My DH is on Day 6 of recovery. He is in pain and I am worn out. After surgery in the hospital he started having bladder urgency to the point we couldn’t get the urinal in time. This has continued at home. We were up 7 times last night. He has been wearing pads, but overflows pad and links on underwear. It is time to get…
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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Durable Power of Attorney and More
This may be one of the most important topics on this forum, so I will keep it brief. Disclaimer: This is not legal advice; please seek counsel from a certified elder law attorney. There is a big difference between Power of Attorney (POA) and Durable Power of Attorney (DPOA). The documents you want are certainly the Durable…
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I'm new here
Hi, i'm a caregiver for my husband that was DX with early onset Alzheimers in 2022 at age 52. I work full time from home thankfully and am excited to have support from others that know what i'm going thru.
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Day by day
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