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Should we proceed with testing
my husband has mci(22 score on Moca). We went to neurophysiologist and he ordered a in-depth test. My husband has severe sleep apnea that took almost a year to correct. He was having 36 episodes per night. The neuro wants the test because of that and his low score. my husband feels conflicted to get a diagnosis it just…
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traveling with spouse with dementia- beginning stages
Husband has posterior cortical atrophy so forgets things easily, has no peripheral vision. But we love to travel. Considering the Caribbean to escape MN winter. We love to walk together. Plan to stay in one place from approx march 3-10. any ideas? thanks. Lois
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What do you need to provide for a live-in caretaker?
I am considering hiring a live-in caretaker for my father. I am having trouble finding much information about what sort of living environment you need to provide for the caretaker. Any guidance would be appreciated. To provide some context, my father's house is not in good repair. I would not want to live there but my…
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Getting support for my dad who is my mom's full-time caregiver
Hello, first post here, hoping to get some different perspectives. My mom was diagnosed with early onset alzheimer's nearly 8 years ago (I think) right around 60 years old, though she likely could have been diagnosed earlier, she had been showing symptoms for a few years at that point. My dad has always promised her he…
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looking for advice for "chattering"
For a few weeks now, it has been non stop repetitive nonsense coming from my DW combined with the intense shadowing which means she is rarely more than an arm's length away. I know ALZ is not a mental illness, but that is certainly how it looks and feels. I get to listen to her lose her mind in real time, non stop. Nothing…
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Any tips for a caregiver to work out?
I’ve tried 5 caregivers. Every time, my DH (stage 6) likes them the first day, after that doesn’t want them around. Follows me everywhere very agitated. I’m tired and need help. Caregiver # 6 is starting Monday. So far she is the best I’ve seen, a CNA, works in hospice lots of experience. Very passionate about her work,…
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Suggestions for remaining patient with a parent?
Hello, I'm new here so here's a little introduction before my question: my 87-year-old mother has dementia after several years of living with MCI. My sister lives close by and handles my parents' finances and a lot of other tasks that are too much for them. I live on the opposite coast and do what I can from here, and I…
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first visit to memory care
I made my first visit today to see my DW in memory care. She's been there just over a week. I was advised to stay about an hour and to arrange a signal with the staff so I could excuse myself "to go to the bathroom" and leave. It was hard and terribly sad to see her. DW said over and over, "I miss you so much." She asked…
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Jay Leno caring for wife with dementia
https://www.foxnews.com/entertainment/jay-leno-stands-marriage-vows-faces-challenges-caring-wife-suffering-dementia
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Help! In need of a break
Hi, I am a new caregiver. About 2 months in, my husband and I took over care of his mother from another state, living with us now in our home. She was so much worse than we were led to believe. She needs to be watched 24/7 and we are well aware that it will only get worse from here. We are looking for some kind of…
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Won’t let me help clean him up
This is not a nice topic, but you all know how it is in this forum. 😉 DH is at the point where he isn’t cleaning his behind well after using the toilet. We both have always closed the door when we used the bathroom throughout our long marriage. So now when I knock on the door and ask if I can come in or if he needs any…
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Long Geri-Psych Stay!
At the end of last month/beginning of this month, I posted that DH had a complete mental breakdown at his rehab center, where he was recovering from a fractured tibia. He was transferred to the local ER. Here's the update: After 2 days in the ER, on April 2, he was transferred to an inpatient Geri Psych facility. He's…
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Mom Making Up Stories
HELP! My mom has dementia. I don't know what type, because her primary doctor has been treating her for "memory" issues for several years. She began with taking donepezil and now memantine has been added. She is also on an anti-depressant and mood stabilizer. She knows all her family, so that hasn't been an issue. However,…
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Not eating , can the reason be because of knowing what lyes ahead ?
I 've read that with dementia that eating habits can change . Food tastes different , etc. etc . But my fear is that my DW is starving herself so not to put me or our family through the journey . Is there anyone else who has had this feeling or actually experienced this ?
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RAV phone
My husband can not work the simple Jitterbug phone any longer and I am thinking of getting him a RAV phone. They are $ but I need something for him in case of emergency. Does anyone have any experience with these - good or bad? Thank you
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Dirty habits
HI. My mom is a stage 6 dementia patient and we have a caregiver for her during day time while I am away for work. From evening 5 pm, I take care of her and I have set a daily pattern for her. 1. Take her down for a stroll in the society everyday. Make her sit with her old friends n I socialize with then, such that she…
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Does Memory Care actually help
I obviously have been obsessing about memory care for months. My husband is probably late stage 5, can't do any ADL's without help, very bad arthritis so walking is difficult. We go to twice weekly exercise classes and various musical events and will occasionally take a short walk in a nearby canyon. He will walk short…
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Help with deciding next step with mom
My mom has had ALZ since 2017 and is now in the later stages; not bed ridden yet but now a fall risk, unable to speak in full sentences and very agitated, and needs to move to skilled nursing. This will move her to Medicaid and I need a resource with knowledge of Pennsylvania and Maryland law because my sister and I can’t…
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The Mental Switch
Hey all, Many of you have talked about how at a certain point, you made a mental switch from loving spouse to loving caregiver…or something along those lines. I'm curious about how you've done that. My DW is getting more paranoid and complains about how "I'm not taking care of her needs", which means sitting next to her…
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Life Insurance
Just throwing this out there as food for thought….if any of you are caring for a loved one that is going through any issues related to AD and do not have individual life insurance, be sure YOU protect yourself and your loved ones for future health issues. Get an individual life policy that will potentially cover expenses,…
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Anyone with a parent living for their pet?
Hello to all…I have SO many different things to talk about, but one thing that has been weighing on me since we moved my mom into our home one year ago today is this…we think she is living for her pet. Like most people with pets, it's family. Of course! I have pets of my own and have almost my entire life and can't image…
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Paranoia
DH is 62 and still working. He is constantly telling me that nobody at work talks to him and that I am making life decisions without him. He also is saying our adult sons don’t talk to him and our grandson that lives with us is different. Our grandson has not changed his interactions with DH. Is this paranoia? Is this part…
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Alzheimer’s/Dementia or Just Narcissistic?
My covert narcissistic mom has had some off/on memory issues for the past couple years like where she puts things. My brother and I can’t tell whether it is normal aging or more than that. In the past two months, she has suddenly started making up stories about her youngest sister doing black magic, trying to break into…
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Mental Illness dementia or something else
Hi everyone, I am still coping with my moms memory issues and diagnosis. I am truly baffled: her issues are so obvious to me, my one other family member who knows her, and the people in her AL. But when I bring her to the doctor, desperate to get her some kind of care of evaluation for her memory issues, they either…
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Filing for Long Term Care Insurance too early?
Hi, I am posting for the first time regarding my 83 year old Grandma. She has had cognitive and memory issues for years, but in the past month she was properly diagnosed with dementia. I had previously lived with her 3 years ago after she was a scam victim, but after about a half of year, I moved back home. I am now…
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New diagnosis, new to group. Having a rough ugly cry day.
I have been very emotional, ugly crying today. Today is hard, others are not- those days I am "numb". I am 41, married for 19 years, I have 5 kids ages 8, 10, 17, 18, 20. I have tested positive for PSEN1 which is one of 3 variants known to cause young onset Alzheimer’s. I have had cognitive symptoms since August 2023. I…
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Artis Senior Living Boca Raton
Hi all - I am considering moving my mother to the memory care center at Artis Senior Living Boca Raton. We had a good visit there and spoke with family members of residents. Does anyone have first hand experience with this facility that could provide some thoughts?
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Just dropping by.
I've been around for several years, first as a caregiver for my mother, under a different name. About halfway through my caregiving journey with Mom, which lasted about a decade, I began noticing several red flags with my husband. Now others in our family are seeing those alarms, and we're also dealing with my…
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Suggestions
Hi, I am a new to this group and need any advice or direction as to how to better assist my 86 year old mother that was diagnosed with dementia back in 2023. She had a stroke that affected her short term memory, she couldn't tell you what happened last year of anything at the moment but constantly talks about things that…
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My favorite picture
Today we spent Easter together, just the two of us and looking at pictures. Pamella saw a picture of me and said that it was her favorite. She asked me if I had a favorite. I found one and said that was my favorite. It really made me think about what was really my favorite picture. After thinking about it and the favorite…