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grupos en espanol
entre a esta pagina esperando encontrar ayuda ya que actualmente llevo 5 meses cuidando a mi suegra y el proceso ha sido en verdad muy difil, tengo ,uchas preguntas y muchas dudas sobre como ayudarla y sobre todo a mi esposo y su familia, espero encontrar ayuda
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Anger problems
do anger issues always come with dementia? I feel so bad- husband getting angry at the dog over nothing- this morning hes on the phone yelling at soliciters.- calling them back over and over to harass them . I cant say anything to him he will blow up at me
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How to file complaints with memory care
I'm super angry about a decision made by the head administrator of the memory care my mom is at. I think it was a terrible decision but probably doubtful that it was legally negligent. In any case when the whole crisis of the situation resolves I want you to file complaints with the board of health as well as corporate.…
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First MC visit in a week
Today was the day I finally got to visit my DH in MC, a week after his placement. There were many scenarios playing in my head about how he would respond to me, but I never dreamed of the situation I encountered. One of the issues I had at home with him is that he would only let me do his personal care, which got to be…
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Stage 8
My vibrant, joyful, beautiful Suze passed peacefully last night. True to the fighter in her, she fought for 11 days without food or drink, giving a frustrated growl with her last breath. She finally let go to be free from this mean, mean disease, but she wasn’t happy about it. Ha! She was the love of my life. I’ll miss her…
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MCF/Hospice Care - Standard Comfort Pack Medications
Hello, Mom has been in a MCF for almost 3 yrs now. I consider her cognitive decline has her in late stages of dementia. She is up and around with a walker, speaks with lots of word salad and eats generally well. She has been on hospice, a partnered hospice connected with the facility, since 10/2024 at a time when mom's…
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First time posting.
I posted this in the general area but think I probably should have posted it here instead I’ve been lurking around for a while, but my kids suggested I actually post in hopes of finding others who are going through the same or similar thing My husband (74) was diagnosed with MCI due to AD and Vascular Cognitive Impairment…
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Can't sleep
I can't seem to sleep trying to wrap my head around the almost daily changes my DH is having with this disease. For the past 2 wks he had to be wheeled from the living room to the bathroom to the bedroom or he would fall. For the last two days he's been back to walking fine but is unable to understand or communicate. Went…
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What to do?
My DW is 70 and I am 67. My DW has Alzheimers. Currently she has forgotten owr 32 years of marriage. At least she still recognizes me. She at times thinks she is still in high school. I don't know where to start or whe r e to go. I am disabled with mobility issues. I can no longer keep up our house. I fix our food,normally…
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Thank you for baring your souls
Sometimes I take a break from reading posts on here, because the feeling of dread can be overwhelming. There's so much to fear of what is to come… Just when we think it can't get any worse, it does. I'm sure you know that feeling. My heart breaks for each and every caregiver on here and it cuts deep sometimes. The grief I…
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Still With the Guilt
My DW passed away two nights ago. I had said goodbye to so many parts of our relationship already, but her actually being gone is the worst feeling I've ever had. I have been crying about never seeing her again, but find myself struggling with the devastation I feel at knowing I'll never look in those beautiful, twinkling…
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Learning to be patient.
Hi, I'm 74 and my wife is 76. How does everyone learn to hold their tung? My wife has had Vascular Dementia for almost 2 years. She contently for what day it is. Our Daughter is now making up her pills. I have to dress her am/pm. Help her shower, bathroom needs. I'm now cooking all meals. I have hired a person to clean the…
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Incontinence bed pads
DH fell and is in rehab. He was continent before the fall, but I want to be prepared for when he comes home. I am currently looking at bed pads - both washable and disposable. Does anyone have a recommendation?
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Religious Caregivers
I was wondering if anyone could suggest some pertinent Bible verses, psalms readings. I have so many Bibles from my Mom and Grandma and 10 years of Catholic School. Just trying to find comfort in written words. Thank You.
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Is there any benefit of getting mom to a specialist for her COPD at this point?
Mom is 87 and in MC for over one year. She has dementia, COPD and newly diagnosed early-stage heart failure. She also recently is on oxygen for her COPD. In addition to all of that, she has limited mobility from a recent fall in memory care where she broke a hip and is now getting around in a wheelchair and shuffling her…
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hearing aids
DH's fall has affected his hearing. My son suggested we get him one of the over the counter hearing aids until I can get him onto the ENT and audiologist. Has anyone bought one of these that they are satisfied with? Any recommendations?
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Mom Won’t Stop Staring Out the Door
This is kind of a funny one, but I don’t know what to do about it. My mom has Alzheimer’s disease (moderate stage), and she loves looking outside through our windows and door. The problem is is that we have a shared driveway, so there’s usually people walking past our door. To be honest I personally would feel kinda…
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Please read my story and thank you
Hello. My father passed away in July 2023. Before my father passed, we had discussed that my mom would have to come live with me. She was not to live alone. Mom had mild dementia at the time.The night my father passed, Mom came with me and stayed with me for 2.5 years. During the first year, she was no longer able to cook…
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Worry about roommate
Mom is in a nursing home. She is probably stage 4 vascular dementia. Her memory isn’t too bad and she remembers family, but her logic and reasoning are not good and anosognosia is so bad. Her current roommate is very nice. She has health issues, but not dementia. They get along well and it has been good for mom. Her…
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Bringing Dad home?
In the mild-moderate-severe way of describing stages of Alzheimer's, my dad has one foot in "severe". He is in MC and the care there is pretty good. But he is so sad not to be with family. My mom is living with my husband and me. We tried to care for both of them, but my dad is very independent and would not let me or my…
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Mom Passed Away & Dad’s Struggling - Advice Needed Badly
Hello! I’m in bad need of some advice. My Mom passed away on January 4th and my Dad, who is in the middle stage of Alzheimer’s, is really struggling. They were married for 66 years and had been living in assisted living for the past couple of years. Neither of them could drive or leave the facility with our help. They were…
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Burn out
Hi, Lately, I feel so tired and burnt out physically, mentally, and emotionally. My dad was diagnosed with Alzheimers in August. He started his first treat with Leqembi on Tuesday. He was sicker than a dog. I am watching my mom struggle to take care of him. I feel like I don't know what to do. I give my mom good advice. I…
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Morphine
I got a call from my mom’s hospice nurse on Friday night that they wanted to start her on a very low dose of morphine. Apparently she had a bad week, and said she wasn’t feeling well/was in pain. She couldn’t say where, they thought maybe her hip, x rays showed nothing. Shes been eating less (we already knew that) and now…
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Every stage of this disease is heart breaking
My DH is not as far a long as some but it is so tough when you see each decline. He can still do most of his ADLs but showering needs some assistance. His memory has been better than declining executive function, mobility, hearing, vision, fine motor and comprehension. He has recently forgotten what we just talked about,…
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Follow up on “what you took from me”
I wrote a follow up of my own from @Bill_2001 . I often hesitate to post cause our relationship doesn’t carry the wonderful long love story that many of you do. But then I realized maybe my post will resonate with someone. Like @BPS penned “how long” I lost my first hubby to leukemia in 1999. I never wanted to move on but…
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How are you? I'm...here.
Sometime I'll have time To properly mourn When people stop asking What year you were born But my time is your time For however long You need me to turn on You favorite song I wake you up gently We'll do it together I write down the day And the time and the weather I carry your books While you search for your name On the…
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New Stubborn Behaviors
I mentioned in a previous post that my DH was recently in a Memory Care facility for 30 days of respite care while I recovered from a broken ankle. He’s been home for 3 weeks now. Since home, he’s experiencing some VERY stubborn and rude behaviors and refusing to cooperate with necessary care. I don’t know if it’s the…
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New to Memory Care
MY DH just moved into MC three days ago. He has now not eaten in 24 hours and is refusing his meds. He sometimes wanders around the unit but cannot find his room to return to. He asks those who come into his room to leave. The nurse tell me this is standard behavior for new residents and that there are others in the MC…
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Heavy heart
We switched neurologists in December. The last one told DH his symptoms and blood work, along with his CT scan and MRI, indicate normal aging. So no PET scan warranted, or further testing for that matter, just come back in 6 months. DH and I did not believe that assessment. At 68 years old, it is not normal to feel lost in…