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At My Wits End
At 830 tonight, my DH called the paramedics on me. So I’m in my locked bedroom and I hear footsteps…. 2 paramedics and 2 policemen are banging on my bedroom door. I’m shaking so bad I can’t even type. He told them I’m not taking my medicine ( I only take one blood pressure pill and a Zyrtec for allergies ). They were…
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Where do you find support?
I am caring for my mom who is only 74. She had an episode that resulted with her moving in with us while we get her into someplace more appropriate for her needs. Since coming to our home she has improved in many ways. Through this experience, I find that I am struggling to understand her diagnosis. The way that her…
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My mom refuses help
My mother has been in decline for about 10 years, probably, but we’ve only just started to notice major decline in the last few years. My mother refuses to get diagnosed and has been very stubborn with regard to accepting help from anyone other than her husband. And even with him she pushes back. Self-care has deteriorated…
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Any spouse caregivers of Alz patient with teens in the house?
This is my first post. My DH was diagnosed with Alzheimer's in February with APOE3/APOE4 variant. He has had two Kisluna infusions. I am 56 and he is 70, and we are both still working, though he will not be as actively working now. We have a 10th grader at home. She knows about the diagnosis. I am so worried about her and…
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Unusual Question
When moving to MC, should I take lots familiar photos in frames….or will this make DH realize people/dogs are not around and be a constant ‘where is everyone’ thought. Any advice of things to take/not take will be appreciated..
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What next when they can't swallow pills?
I know from experience that today's occasional problem is tomorrow's permanent limitation. In recent weeks, my DW has struggled with swallowing her pills. What comes after unable to swallow pills and how do I know it when it is time for that?
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Feedback on Kisunla
Hi. I am 75 F newly diagnosed ES Alz and leaning to try Kisunla. I have Medicare and BSBC but having problems getting a breakout of what is covered and what I must pay $ monthly. Id be so appreciative regarding on what you pay for Kisunla out of pocket. And any feedback on your or your LO has on Kisunla.
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No idea what he's asking...Help me deal please
Sometimes my DH asks me something and I have no idea what he's talking about and when I have no clue what he's talking about he accuses me of needing my head examined and gets so frustrated with me. Example just a moment ago, him: "what was that thing you put on the thing to make it do that thing"? I had no idea what he…
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Phone calls
Probably an insane question, but is there a phone service available for my mom to call and talk to random people? I know this sounds silly but I would love for her to be able to speak to other people going through what she is going through. If not, we need to create one!
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Warning: Avoid Brain Injury in mAb Clinical Trials.
In 2023, I was in a clinical trial similar to those mentioned in the NY Times article posted here by Crushed. (Alzheimer's drug horror story from the NYT, posted 10/23/2023). I was tested and accepted into the study in January. After taking 5 doses, one injection each week for five weeks, I started getting side effects. I…
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Gotta work, DH can't be alone but not ready to be placed, holy Cr. what do I do?
I work part-time because we can't make it without the extra income. Both of us are on SS. I've been able to leave my DH for 6-7 hour stretch for the last year an a half but that's coming to an end. He is good when I'm home and can take care of him and make sure he's safe, but in the past month I am realizing that he's not…
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Hello I'm back
I've been in the hospital almost the entire month of February withe the flu I'm almost back to normal. My main problem is I have hard time standing up without help. I hope pt will help me get better.
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Freedom feels so good!!
I’ve been the solo caretaker for my DW for almost three years. We moved back to California after her diagnosis to be closer to her family. Well to say the least it didn’t help me with her. Virtually no support except maybe a short visit every couple of months. Her best friend since the third grade lives about 900 miles…
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Managing bowels
Hi. Any suggestions on how to help mom keep track of bowel movements? A chart or calendar in the bathroom? Thanks.
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Mom’s negative trigger
My mom has had vascular dementia since 2020. For many years I was my mom’s main caregiver until we moved her to AL. For the past year she still resides at the same facility but now with a live in aide. I live near my mom 6 months out of the year, and out of state the other 6. When I’m in the area I visit my mom 2 to 3 days…
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Dementia, meds, alcohol
This has taken me a very long time to post and I'm not sure why. Perhaps because I'm disclosing the thing that my DH would most like to keep secret, but I need help. In addition to dementia, hubby has had multiple health problems, including numerous surgeries which have left him with chronic pain. As a result, his pain…
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Buproprion vs. Seroquel
DW has been taking buproprion for many years for anxiety/depression. She has been in MC for three weeks now. She seems to be having some trouble adjusting, and sometimes she's very down. The facility's psychiatrist plans to wean her off the buproprion and start Seroquel. Does this sound like a good idea? (I realize I…
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Next Steps
Hello! I'm new to this group and glad to be here. Wondering what I should be considering for next steps. My DH has MCI which is getting worse. So far, he still takes good care of himself. I prepare all meals, make sure he takes his meds, try to keep him active (He tends to sit and fall asleep otherwise). If I have to leave…
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Hospice care
Today I called hospice care and will be waiting to see if my DW is eligible for their care . This was a very hard decision but I feel that if I can't get my wife to eat and all the weight that she has lost it would be best for both of us .
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Wife called police on me
My wife, who has Alzheimer’s, called the police on me this morning while I was out. Our daughter managed to explain the situation to them on the phone and now my wife seems to have forgotten the whole episode. So far no one has come to the house. My wife has forgotten who I am several times now. I don’t know what to do,…
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Paranoia/Delusions While On Donezepil and Now Memantine?
Hi, all, Long story short, my mom took Donezepil and Sertraline for about a month earlier this year. Her cognitive abilities improved, and we were psyched. And then…she started having paranoia and delusions, nightmares, and something like a psychotic break happened. Her doctors didn't think that Donezepil was the cause,…
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How do you deal with the guilt?
Hello everyone. I recently found this forum and have been reading a little here and there. My mother was diagnosed with Dementia back in 2018, or 2019. Type or cause is unknown, although there is evidence of a small stroke. I, their only child, was living far away and Dad took care of Mom. Then Dad went through a round of…
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Asst Living-VS-??
We recently placed my mother in an Assisted Living facility. She had a heart attack and the doctors said “she can’t live alone anymore, we don’t believe she is managing meds correctly among other things.” And honestly, they were right and we were already on this path, this just sped it up. Physically, she is fine. But we…
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How to arrange a week of respite
I know that all the facilities around that say they do respite care will only do it for assisted living, not memory care, and my DH needs lots of assistance with dressing and navigating. MC facilities don't do it because it's too much work (all the paperwork for placement) and because they are usually full. I have a…
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Resources
Could someone recommend a book that you like that explains stages and symptoms of Alzheimer’s? Thanks
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Period of inactivity
My DH sat down in a chair in our den the other night at 8:30 and sat there with his eyes open and didn’t move for 6 1/2 hours. I checked on him every hour and ask if he wanted to go to bed and I could tell what I was saying wasn’t registering with him. At 3:00 am he finally would get up and go to bed. Has anyone else…
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Anger and anxiety
I am looking for ideas to help my DH deal with anger and anxiety. He is in the Moderate Stage. He seems to be jealous of me and our Grandchildren. He is taking Seroquel, but it might be making things worse.
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Resentful and Losing patience
Truth, my DH and I had problems and about 10 years ago I asked him to leave and we moved to separate bedrooms. I became complacent, we shared the household expenses and eventually became friends and occasional travelling companions. I'd ask him to leave occasionally, he would say no, and that was it. No one with the…
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Sleeping so much
My DH, age 75, is in stage 6 Alzheimer's. He is still physically in pretty good shape, just mentally compromised. In the last month he's been sleeping 18 - 20 hours per day. Is this common? Does this mark a step toward the end of this road? He always says he is tired. He eats well (often only one meal per day because he…
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FRUSTRATED!!
My husband has been approved for the infusion treatments and the center that does them doesn’t take our secondary insurance. Our doctor’s office is trying to find another location but is having difficulty. This stinks. Maybe it’s a sign he shouldn’t have them??