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New stage?
Mom states she had been having urinary urgency for the past 2 weeks. She denies any known symptoms of an UTI. She has an upcoming appointment with a urologist nonetheless. Last week, she was mortified when she did not make it to the toilet in time, ending up having her bladder totally emptying itself on the floor of her IL…
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How to help LO adjust to MC
My parent is mid stage of dementia and was placed in a high quality memory care facility (supposedly the best chain in the country per US World News and Reports). This facility has programs for all levels of dementia including higher functioning people like my mom. She has been there for 6 months and she is just not…
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Waking up multiple times a night very agitated and confusedted
I read many posts about spouses sleeping many hours at night and daytime sleepiness. My husband was prescribed trazadone, 150 mg, to help him sleep. It does help him sleep, falls asleep in 5 min or less but only for a 2-3 hrs. He moans and groans then startles awake, appearing scared or confused. When i ask what's wrong he…
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Question severe difficulty walking.
My DH has started shuffling when walking. His ability to walk has severely declined rather rapidly in the last few months. His gate is unstable snd takes baby steps. If anyone can share their experience. I am not sure what to do and if there is any help or therapy. Is this part of the Disease? Thanks for sharing.
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Speech and Language Referral
My DH has AD and Logopenic Aphasia. Last summer his neurologist (in a Memory and Cognition Clinic) referred him for a speech and language evaluation, and after a 2 session lengthy assessment we were basically told that the aphasia was too far progressed for her interventions and it would just be frustrating for him. She…
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The Unexpected Journey 8/26 on abc
https://abcnews.go.com/amp/GMA/Culture/emma-heming-willis-bruce-willis-diane-sawyer-interview/story?id=124616534
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Neighbor Gave my Mom A Cat...
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Two weeks in
My husband was diagnosed with dementia two weeks ago. He is on anti-seizure medication. The insurance continues to deny the doctor's request for a special Pet Scan. I am just beginning and with his denial that he has dementia and the problems with the insurance company, I don't know if I can do this. I have stage 4 cancer…
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Life expectancy
Hello. My husband received a diagnosis of early onset alzheimers. He has lots of questions, one which is about life expectancy. Reading between 4 years to 20. How long after diagnosis do people with early onset alzheiners need more care.
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Mom's been in MC for a week
She is confused by the move. The MC staff say she's handling it better than most. She is "polite and compliant" and willingly joins activities. For that I am grateful, because she was always a very social person. Mom is now early Stage 6, but still has strong social skills, and there are some other ladies in MC like that…
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Moving Day is tomorrow.
I have been with my loved one since July of 2019. Luis was diagnosed in August of 2023 with early onset alzheimerz stage 4/5 at the age of 44. This has been a long journey. I longed for the days to have a normal life. I knew the day would come when he would have to go into a facility of some sort. Well tomorrow is the day.…
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My own irritability as a caregiver
my DH has Alz, early to mid stage. My mood is so up and down in this caregiver role. I can feel very irritable, and angry with his responses. Other days I’m able to cope. I don’t like myself when I get so negative and can’t seem to let it go. I don’t take it out on him but I’m sure it shows. Any suggestions how to stop…
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POA financial decisions
I'm the POA/trustee for my parent. The legal documents say that all costs related to care of the person will be paid by the parent. I live out of state. Flying out there is a significant cost for me and flying out as a family is prohibitively expensive. My husband was laid off a few months ago and my job is at risk. Flying…
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Should we visit every time my LO in MC calls and is scared?
I so appreciate this group the ability to ask this question. I am supporting my mom long distance who is supporting her sister (my aunt) who is in memory care for Alzheimer’s. My aunt never married and has no children of her own. My aunt calls my mom several times a day confused about where she is and sounding scared. My…
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Have no support
Once I reached out to family and friends about DH , they avoid me like a disease. Now I am fully isolated and am constantly apologizing for him or arguing with him.
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Becoming a Caregiver
I've heard that individuals can be designated as a paid caregiver, or a care aid. Does anyone have experience with this process? I want to set-up my wife as a care aid, where she checks on my dad (early onset dementia) a few times a week to make sure he is getting his medications right, is eating well, has a clean house,…
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Exhausted By Mood Swings
Hello all. I’m new to the forum. My mom lives with me and was recently diagnosed with Alzheimer’s and vascular dementia. Does anyone else deal with what seems like hourly mood swings? One minute she’s fine and knows who I am and the next she thinks I’m someone else and she’s just visiting. It changes so many times during…
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Moved Mom to Assisted Living
Hello, I am new here and just hoping for some suggestions and insight. My mom was diagnosed about 2 years ago. She recently fell and broke her hip. I have been trying to move her for over a year with no success. She is in complete denial and insists that she can take care of herself. She is 89 years old, doesn't drive, and…
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Need to leave right now
I cannot do this anymore Suicidal must take care of myself Any insight
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Agitated Spouse
My wife has Alzheimer’s and on occasion feels that she has appointments (like hair or nails or something like that). Wants to call to cancel appointment. These are places from over 30 years ago. In another state. I try to let make her think I’ve already cancelled the appointment and sometimes thus works. Other times she…
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APS
Today a very nice lady showed up at our door, Adult Protective Services 🙄I knew they were called because my LO drove the car . He took the DMV test, they passed him, much to my dismay, and I sold his car but he wants to drive if it’s just down the street! I’m a hard No, he took her test and got 25 out of 30. Mild cognitive…
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New Member
Hi Everyone! My name is Laurie and my mom is 78 just diagnosed with early onset Alzheimer’s. She was a nurse for 50 years and I had been noticing that about 5 years ago it was Xmas day and the whole family was together. I remember her sitting down and watching her grandchildren open gifts and she had that far away look in…
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We can do this!
I know some professional caregivers who say that if they had to do this without time off or vacation time, they would go insane. Yet we who do it 24 hours a day, seven days a week without help or respite, can go on this way for years and years. While watching someone we love deteriorate physically and mentally day by day.…
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This is so damn hard
Sigh. My poor DW. She so much wants to tell me things and express her thoughts and she just cannot say it. Seeing her struggle and trying so hard is just killing me right now. I know it's not rational, but I wish that I could make it all better. Daaaaaaaaaaaaaaaaaamnit!
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The state investigated last week's incident and says my DH has to move...help
In my last post I told how DH had groped a female resident at his MC. Now the state has stepped in and says he can no longer stay there. The social said she told them they were willing to keep him and wanted to keep him but the state is adament. When I asked her how long we had to find another facility, she said she was…
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Memory Care Facility for Mom
Thank to all who replied to my first post. Great ideas and insights. I do have another question as my family navigates through this . When and if my dad decides mom needs to be moved to a memory care facility , does anyone know if Medicare will cover any of this expenses of this? I am assuming not, but am just trying to…
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Still at home
Hello. I’m reaching out because I’m wondering if you can make a recommendation for me. I need to speak to someone that can help me in managing the situation with my mother’s Alzheimer’s. I mean managing it from a psychological Perspective to benefit her. And me. And my husband. As an example… My mother simply refuses to…
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Reposting...
My 75 year old wife was recently diagnosed with FTD. I am 77 myself and in compromised physical health due to my Vietnam war injuries. We sold our home and moved into a retirement facility which made life less complicated. But the issues I face caring for my wife are almost more than I can manage. I do not dare leave her…
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DH bothering neighbor with small children
DH has now become fixated with a neighbor family with 3 small children. Their house has very open picture windows and he’s walked over there to talk to them, apparently looking in the window and inviting the little ones to come over to our house. He likes people and likes kids and likes to have people come over. He’s…
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One diaper change away
I'm one gross diaper change away from screaming. If I could run away I would. How do others handle this horrible job without throwing up?