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My Beautiful Husband Passed
I began participating in this forum in May of 2025 after my DH received his Early Onset Alzheimer’s diagnosis. I learned everything from this online forum and the in-person Alzheimer’s Association monthly support group. In October of 2025, my DH had a severe Ulcerative Colitis (UC) flare. In hindsight, I didn’t realize…
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Two Months
Two months ago on this day, my DW passed away peacefully at home. I am sitting on a plane, flying to New York City to see an opera with a friend. A respite trip I arranged when I thought my DW might make it longer into 2026. She didn't, but I'm going anyway. Stage 8 is interesting so far. I spent the first month planning…
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Lost my mother January 27, 2026
I was my mothers full- time caregiver for her last 10 years of her life with Alzheimer’s Having difficulties dealing with the grieving process and nobody seems to understand Thank you
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Weird tears
My grief is showing up in odd ways. I didn't cry at my mother's visitation. I didn't cry at holiday gatherings. I didn't cry at my own daughter's wedding, even though I know my mother would have loved to be there. I cry, sometimes hysterically, only for the weirdest reasons. I accidentally knocked over a plant she used to…
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Any support groups zoom for individuals
who have lost their spouse from Alzheimer’s, it’s been 3 1/2 months for me. Have found it difficult to locate support groups specially for those who have lost their spouses. Thanks.
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Regrets
As care givers for our loved one, our path was long, the struggle to provide care hard and overwhelming, but we did it as best we could. But now, as the dust of my loss begins to settle a little, my reflections and memories of our last few years flood over me. At times it just brings me to me knees, the tears flow…
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Repeated Falls: Tell it to Me Straight
My Dad with advanced dementia is in MC and has been having repeated falls, mostly in the night. After two separate week long stays at the hospital, followed by 3 weeks of skilled nursing, we brought in hospice services. He has declined quite rapidly. Last night he fell twice, both times hitting his head. He is on meds for…
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Caring for my mom from afar
It was suggested that I post over here as the "Caring Long Distance" forum doesn't get as many views. I edited this from the original post with some more detail ... My mom has Alzheimer's which appears to be at stage 4. She lives with my Dad out of state and I'm about an hour away while my brother is closer to 2 hours. My…
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How to get my DW to eat when she's hungry but won't.
I have noticed that my DW get's cranky when she's hungry. I ask her what she would like to eat and she says she doesn't want anything. I know she's hungry but refuses to eat. I ask her about all her favorite foods with no luck. It's just frustrating, because if she does actually eat something, she is in her happy place.
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What stage is this.
I wonder if DH is further along in this journey than I suspect. He has had one episode of a delusion. He swore someone was knocking on our door in the middle of the night. We have a ring camera, so I knew this didn't happen. Could have been a vivid dream but he became angry with me when I said it didn't happen. I know in…
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Delusions
My DW just tried calling her dead Father and when the recording said this number is no longer in service she began rapid firing the "why" questions to me. I couldn't think fast enough so I just said I had to go to the bathroom and will be right back. I needed a little time to get my thoughts together. After returning she…
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Friend recently diagnosed - I'm seeking tips for interacting
Friend has consistent memory lapses. They often can't remember what day of the week it is. I meet them at the gym on Tuesdays and Thursdays. I send them a reminder text the night before and send one again the next morning about 45 minutes before we meet. They are unable to operate the locker combination at the gym without…
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New member, helping my parents
My mom has Alzheimer's - stage 4 or possibly stage 5 (somewhere in between?) - clearly at the stage where she needs extra help but is incredibly resistant to accepting any help outside of family. She will basically scream about how accepting help will make her decline faster… etc (she was an RN for years and has experience…
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Move to MC unit closer to family?
My widowed 92 year old MIL has been living in a MC facility in her small hometown for the last 3 years. She gets excellent care and has adjusted well. BUT it is over an hour and a half from her two closest children. There is only one friend who still comes to visit her there on a regular basis. We are considering moving…
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Nursing facility. Does anyone have advice on mom’s boyfriend who constantly stirs the pot.
I am my mom’s HPOA/DPOA. She has a boyfriend she lived with for 28 years. Since she was placed in a nursing facility 6 months ago after a fall he is constantly stirring the pot. Today she told me she’s getting a petition signed to say she doesn’t have dementia and “it’s a secret”. She has Parkinson’s and related dementia.…
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Needing direction
Hello, My mom was diagnosed with Alzheimers with possible vascular dementia as well. We can't get into a neurologist until July. Is that typical? Are there things a neurologist can do that a GP can't or won't? Thanks for any insight.
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How do I take away responsibilities?
I am the person responsible for my sister who has frontal temporal dementia. She has 24/7 care in her home and has been paying her own bills and everyday items. I have been overseeing her accounts to make sure that she doesn't overspend, but now we are at the point where we she can no longer be responsible. This has been a…
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Will not sit
My DH refuses to sit on command. This has become a major issue as he will not sit on the toilet and BMs are regularly on the floor. I have listened to Teepa Snow's videos about assisting to sit and nothing is working. I am at a loss as to how to get him to understand and follow the direction of "Sit". Of note, he is is…
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Looking for ways to help mom whose in denial and thinks I steal from her
Mom is not diagnosed, in denial she has any problems, accuses only me of stealing from her- things I didn’t even know she had, and I live 5 hours away, verbally and emotionally abuses me, I am the only person in her life willing and wanting to help her. What have others done in this situation?
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Will I ever be happy again?
I am feeling so hopeless. Ever since my dad died in December I’ve been so worried about my mother who lives alone 2.5 hours away from me, I can barely function. We now have her set to move into AL near me in 2 weeks, and my anxiety is worse than ever; partially because I’m worried about what to do when she begs to go home,…
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Elder Law
I know that my DW condition will get worse over time and I may not be able to care for her in our home. If anyone has reached this stage have you got an Elder Attorney involved and is this advisable…God knows I don't have all the answers.
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US SSA does not recognize POA
This may be well known to most of you, but it was news to me only a few days ago. Social Security agents could not talk to me about my dad’s benefits, since SSA does not accept DPOA. I had to apply directly to the SSA to be a “representative payee.” It would have helped if I had known that term! The process was not that…
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Just need to talk to my friends (217)
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good books on alzheimers
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Reassure me that I am doing the right thing
My dad passed away in December and my mom has been living alone ever since, 2.5 hours away from closest family (me). She has what my brother and I believe to be stage 4 dementia based on the DBAT assessment. Last month her PCP only diagnosed her with "memory loss," she scored a 24/30 on the MMSE, but he did take away her…
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Dealing with anger
This is my first time here. I've spent a lot of time reading some of the questions and answers but haven't found my specific concern. My father is 90 and has some dementia symptoms (we don't have a diagnosis yet). He and my mom live in their home. My mom does most of the work in the home including cooking, with some…
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DENTAL CARE
What are my options and resources for diagnosing and treating dental pain. My spouse is non ambulatory so an office visit is not possible. She is also under hospice care.
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Doesn't know who I am
When I went to bed last night Doug asked me what my name was. God I hate this disease. It's like death from a thousand cuts.
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The "Trial Period" approach
I posted yesterday about how we are putting my mom into an AL community in a couple weeks. She agreed to go there, thank god, mostly after we followed the facility's recommendation of telling her it's a 30-day trial period. This seems to be a common approach. However, I feel like this is going to backfire on us.…
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Just need to talk to my: friends (216)
Sorry, just forgot, crept up on me. Not doing a very good job of concentrating. Couldn't find my bread knife anywhere so thought I would have to go through the trash. Thought I would give Stormy a milk.bone and it was in the box. I use it to open those big boxes. Thanks for reminding me.