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Losing my Temper With my DW
I feel so sorry for losing my temper with my DW. She just pushes the same issues over and over again to solve issues that I have no control over such as her delusions and hallucinations she continues to have. She demands that I stop imaginary people from our home who are stealing and trying to hurt and kill her. She has…
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Aphasia
I realised this morning at 6 o’clock when we were having an early cup of tea on the front deck as usual that I can no longer have any conversation with my DH virtually no sensible words and only jibberish sentences making no sense. I try as always to piece together the words that he is trying to say and it has become…
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Does It Start Over, And Over, And ....
It has been five months as of January 16 since my dear wife went to sleep for the last time holding my hands. The journey since has been difficult, painful, sleepless, guilt ridden, an abundance of tears at unexpected moments, lonely, oh so lonely and as the previous month began to wane, I found a day here or there when I…
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Bible Verse to Lift You Up 12/1/25
"FOR WHEN I AM WEAK, THEN I AM STRONG” 2 Corinthians 12:6-10 New Living Translation Paul's Words “If I wanted to boast, I would be no fool in doing so, because I would be telling the truth. But I won’t do it, because I don’t want anyone to give me credit beyond what they can see in my life or hear in my message, even…
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Tired
Sometimes life is just tiresome and I just need to vent. This is the scene; the weather here is hot 35c humid rainy and wet. I used to love this time of year swimming in the pool, sweaty bbq’s outside under a balmy night sky, walks along the beach (no swimming due to stingers and the occasional crocodile spotting) but now…
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I Feel Lost, Depressed and So Very Sad
Hello. I am new to ALZ Connect. I am looking to connect with others who have or are experiencing what I am going through as an adult child with a parent with ALZ and another parent who is losing it as the care giver. I am hoping to connect with others who feel similar to what I feel so maybe I won't feel so alone in this…
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Toileting
I am now having to assist my DH in all aspects of using the toilet. I know it is only a matter of time before he will need pads or Depends. My question is whether anyone has considered trimming or shaving around the genitals and anus? I feel as though it would make things easier in the cleanup process. I'm pretty sure my…
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Night at the ER
Well, I am eating my words from a recent post where I said I wanted to avoid ER visits for my mom at her stage. How do you avoid this when she trips and takes a header into the corner of a countertop? When the facility calls and says she's in the ambulance, just two hours after I had dinner with her? Here are the…
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FOR WANDERINGS
https://metalert.shop/products/gps-smartsole?srsltid=AfmBOoomVnrnFFaEk2afyLWGX0KANm7d69tqaHr4VOuuY_eKTiLiY1o0&selling_plan=3595567348&variant=42783777587444 This is one…google for others
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Convincing person with dementia to go to parents' memorial
My parent with dementia had their parents both recently pass away in close proximity of each other. There will be a memorial service at an informal venue. My parent is local to the memorial celebration. My parent with dementia visited her parents regularly in the past year when she moved close to them to go to memory care.…
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Notice to police or first responders
Does anyone know if there is a program or something to alert first responders that the person at home has dementia? This afternoon my husband flagged down the police for no reason. I was on my way home from work and his aide had already left. Apparently they were in the neighborhood and he went out our front door and…
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Physical Aggression
What if he does hit me? Do I call 911? Do I call my son? Do I leave the house? Do I lock myself in the bathroom? What do I do?
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Can’t communicate
My wife is in later stages Alzheimer’s and can’t communicate properly anymore. She speaks to me and I can’t understand what she wants. Likewise she struggles to make sense of anything I say. How do you cope with this? It’s exhausting.
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Just Curious
Don't know what stage my DH is but quite frequently he will look at me and ask where his uncle is or if he went home or if he went to bed already. His uncle died long before I met my DH and we have been married almost 40 years. I know who he's talking about. I usually just answer him that I'm not sure or yes he's already…
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Geographic infusion discussions
My husband had been diagnosed with Mild Cognitive Impairment and we are being advised to begin infusion treatment. The challenge is that we are snowbirds living half a year in Florida and the other half up north. Has anyone had experience navigating this type of situation where the 18 month treatment is coordinated between…
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Continued follow up after diagnosis
DH was diagnosed with FTD Semantic variant. There is no treatment so is there still a need to be followed by a neurologist? I am unsure what the benefits would be if there is no treatment. What have you all done?
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What do you do for self-care?
My DH received his alz diagnosis 5 mo ago. He is no longer driving but manages most of his ADL’s & putters around our small farm. Most of my caregiving at this point is around appointments, finances, cooking, groceries, mostly typical household things. I can be away from home altho I try to spend as much time here as…
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Constantly saying Help Me please
I am a daughter with autism age 50 and live with my elderly father age 85. He keeps repeating the phrase Help ME please, very insistently, and then switches to Help me Jesus or praying the Hail Mary. He has a caregiver in the morning and my brother comes in the evening for a small amount of time. I’m left alone to hear him…
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What You Took From Me
Dear Friends, I wrote this on July 9, 2025: There is a beautiful woman here making dinner for us. She asked me how my day went today. The kitchen smells so good with dinner on the stove. She put her arm around me and gave me a kiss. It is so nice to have a wonderful wife who really loves me and is here to support me…
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Early stages of the disease
Hello, I am hopeful these discussions can offer me insight and a community to share our journey. My husband is 54 years old and has been experiencing cognitive decline over the past few years. In the Spring of 2025 he had an MRI and a CT scan of his brain. All appeared normal. His blood work showed his p-tau 181 levels…
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4.5 years in caregiving
It’s been 4.5 years since my dad died and I became caregiver for my mom. At this point we’ve fallen into a rhythm (of sorts), she’s settled in MC, but it’s sad and hard and financially scary and I feel sorry for myself. Almost all of my free time on weekends goes to her. I feel guilty for even complaining. I dread seeing…
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I'm new here. My 66 year old wife has Alzheimer's. It's rough!
My wife was recently diagnosed with Alzheimer's but it seems fairly advanced. She was prescribed Rexulti to curb her agitation and sundowning that seems to help but she still falls back into "Who are you. I'm not married to you. Why are you here." What a awful disease this is! It's really tough being a caregiver for my…
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New diagnosis
Hi all, my DW was recently diagnosed with Alzheimer’s at 68 y.o. We are both in disbelief due to the way this has been handled. The APRN who has been the contact for this has only been out of school for 2 years. Yes, she had a PET scan showing the presence of amyloid plaques. No Tau tangles. Some slight decline such as…
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How To Prepare for the End
Hospice ordered a hospital bed and a wheelchair for my DW today. Her progression has been so rapid all through her disease, that I imagine she will be bed bound by the end of January. Who knows if she'll plateau or keep her breakneck pace. It has gotten me thinking more concretely about her end of life and how I might be…
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Caring for my mom
Hi, I'm 58 yrs old and been caring for my mom and dad full time for the last 3 and a half yrs. Mom has alzheimers and dad had dementia. We lost him 2 and a half years ago. I seriously dont know how I've done it, not lost my mind that is, this is very hard, probably the hardest thing I've ever been through as I'm writing…
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memory care and travels for me
I still have my husband at home after an abortive 2 weeks placement when I brought him home because we were both so sad. I still plan to place him since at some point he will be chair bound (really bad knees, bad balance, and firmly in stage 6). One reason for doing so is not being trapped in my house, especially in a hot…
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Suggestions on making the move to MC
My father has been the primary caretaker for my 78 y/o mom for the last 5 years of her Alzheimer's diagnosis. A daily routine was working "well" in that it was predictable, and her ability to live in a well-managed environment was working as good as one might expect. In the past 3 months however, she has experienced…
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Cognitive test.
My wife is at Fast stage 6D/E. I just received a letter from her doctors saying she lacks the ability to make her own decision. This is hard to take in and process. it's final she will never be coming home again. I've mentally known it, but until you get the formal letter it didn't really feel real. At this point it's just…
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Son of an Elderly Father with Alzheimers
Hi, My father was diagnosed with alzheimers in August of 2025. Its been really rough mentally and emotionally. It's hard to watch my mom struggle with my dad. It sucks that the Dad that I known and love is no longer the person I know. What have you done to cope with this change in your life?
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Infusion Treatments Leqembi vs Kisunla which is better treatment?
My dad was recently diagnosed with mild Alzheimers. His doctors selected him to be a good candidate for Leqembi and Kisunla. Has anybody gone through the infusion treatment? Can someone give their best opinion on this topic? Any help would be greatly appreciated.