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CPAP advice
Our 82-year-old LO used a CPAP for years but as rapid onset dementia developed he stopped. He still seems able to sleep OK and the MC people say residents generally don’t have them (unless they know how to use them). Is that just the way it is?
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Cashing US Savings Bonds
Another post about banking and the DPOA reminded me of a different financial topic. When I was clearing out my dad’s safe deposit box before a cross-country move, I found a stash of paper US series EE savings bonds that were well past their maturity date. I was able to arrange to get these cashed by taking him to a bank…
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We can’t afford care for my mom
Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…
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Dad passed away
My dad died on Friday. He had memory issues that went unnoticed or swept under the rug for several years. He had knee replacement surgery in January. I stayed with him for a week and then my brother stayed the next week. It became quite apparent that he wasn’t safe to be by himself so he came to stay with me “until his PT…
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Did you keep your LO home too long? Then what?
Fellow travelers: I recently learned that a PWD may have progressed beyond a point where Memory Care will take them. I've always assumed that at some point I might need to put my DH in Memory Care, but the idea was always to have him stay home as long as it was not too difficult and/or expensive to care for him. (I work…
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mild to moderate MCI
My DH was diagnosed last year with MCI. For a few months now I noticed changes. He has memory loss, blames anything or anyone for anything . His temper is off, discussions or conversations are impossible at times, becomes argumentative. I am so sad and fearful that I can not handle this. I cry at night .
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The Stranger Living In My Husband’s Body
There is a man who now lives in my husband’s body that I do not know. He follows me around, repeatedly asks the same questions, is often unable to complete the simplest task even with detailed instructions, blames me when he realizes he forgets things or makes mistakes, loses things that are expensive to replace (like eye…
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Alzheimer’s
My beautiful sweet wife (70) has just be diagnosed with Alzheimer’s. My heart is breaking. I feel numb, lost, disoriented, scared, anxious…etc. My mind races to far ahead and I think of what will be rather then what is for today. It’s early, we just found out last week. it’s raw. Any words of wisdom and/or next steps I can…
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Help Getting the Word Out!
I know none of us wish any type of dementia on anyone but it helps when someone with a "bigger voice" is able to help get the word out! https://www.facebook.com/reel/1394793775239563/?mibextid=rS40aB7S9Ucbxw6v
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Keppra anecdotal study
I just saw an article stating that researchers have noticed anecdotal ‘evidence’ that Keppra may prevent dementia or slowdown decline in those already have it. Keppra is an anti seizure drug. I know some members here have loved ones taking Keppra for dementia related seizures. Have you noticed that the dementia progression…
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Retirement Community Question
My husband is in mid-dementia and is OK right now. My dilemma is wanting to move to a retirement community but if he gets worse, he will need his own housing and I can not afford paying for two communities. If he starts being aggressive or wandering he would have to leave and I don't know for how long he will still be OK.…
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Mom newly diagnosed
My 79 year old mom was officially diagnosed with frontotemperal dementia on March 5. Putting a name to her condition is helpful, but devastating at the same time. How can I as her 56 year old daughter be a help to her and my Dad at this stage, where her symptoms are getting worse, but she's still pretty functional. I'm the…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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I’m worried
Hello, I’m here because my dad recently got diagnosed with early onset Alzheimer’s. Everyone says “at least it’s early and there’s awhile”.. but we never really know how quickly this disease can progress. I’m worried, I’m going to lose my dad at some point. And I feel guilty too for feeling like my life is going to be…
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When did it start?
My DH is currently in stage four, early stage five. He was officially diagnosed three years ago. I really began to suspect something was wrong when he began having trouble with electronics, something he used to excel at. Looking back, I realize his personality had begun to change long before that. What was your first clue…
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My saddest day
Yesterday my wife admitted that she can't read a clock any longer. We just buried her mom last week at 95 years old. She had dementia for at least 15 years. Probably much longer. She lived alone so who knows . My wife was diagnosed last October but has been having problems much longer. She retired in 2021 because she could…
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My DH just passed
My DH just passed this morning. Although I have been crying and miss him deeply, I knew it was coming and am so grateful that he doesn’t have to suffer any longer. The dementia had taken so much from him and he was just entering stage 7. Along with the dementia, he began to suffer many physical ailments with heart and…
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Husband's Reaction to Caregiver
Two weeks ago, we finally got a caregiver for 30 hours per week through Medicaid HCBS. The caregiver is very helpful, attentive and engages really well with my husband. I tried a few short trips of an hour or so, like grocery shopping, to see how he reacted to being alone with her. It went well, so when I had a dental…
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Showtiming
Anybody have experience with this. My dad presents well, extremely well, you gotta spend enough time to know he has Dementia. He studies for what ppl may ask, watch tv to stay updated, and if he lacks the energy to perform he just stays quiet. He wants to return to much younger gf and friends who were exploiting and…
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I am new
This is my first post here. My mother was diagnosed with mild cognitive impairment most likely due to Alzheimer's about a year ago. She lives alone and I also live alone about half an hour away from her. I have no siblings. My mother firmly does not believe she has Alzheimer's and she does everything possible to hide it.…
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The driving discussion
I know you are not supposed to rationalize and explain with someone who has anosognosia, but what kinds of things can I say to appease my mom, who has become OBSESSED with driving again, especially when she asks why her 3 friends who invite her to lunch can drive themselves but she can’t? Her eye doctor told her earlier…
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Any advice on severe emotional hysteria?
My mom was diagnosed with early onset Posterior Cortical Atrophy (a form of Alzheimer's) around 2 years ago. She is only 59. She has been going through a pretty rapid decline and we ended up moving her into assisted living last year. Obviously this has been tough on her and it's been an emotional roller coaster, but she…
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all the emotions
I am a nurse with my mom having dementia.I have never in my life had a bad patient as this .We used to get along well.Now we clash.She cusses at me.She is not the same loving person .At times I see this look of hatred for me.Im having a hard time dealing with all of this .
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Mom doesn’t want to see me in MC
anyone ever dealt with this? My mom doesn’t want to see me. Like pushes me away and says “exit exit exit.” She won’t talk to me. It’s relatively new but definitely tied to her decline. What can I do? I don’t want to just leave, but don’t want to upset her either. Any advice?
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just an insurance company rant...
This year, my employer changed to the company providing prescription drug insurance coverage. Today I got a letter indicated DW extended release memantine 28mg is no longer a covered. We are instead expected to use the standard version of the pill. So instead of one extended release memantine pill per day we are expected…
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Laundry Obsession
I had previously posted and asked for advice for my Dad who is obssed with doing laundry. It is now getting so bad that the whole facility is trying to come up with something to make him stop. I know he feeels useful and needed but, it's getting out of control. His private caregivers, he has 3 different ones thru the week…
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Am I expecting too much from family?
I’m pretty certain my DH aspirated some fluid night before last. I gave him some medication in the night 2 nights ago, and he immediately began with violent coughing episodes with very wet sounding coughs…which continued all night long. He said he was having trouble breathing and his oxygen level dropped to 86-88. The on…
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DH gets frustrated so easiy
It's really hard to see my DH struggle so with simple daily tasks. Today he struggled getting his seat belt buckled in the car, swearing and calling it a POS. He then complained about how uncomfortable seatbelts are for the rest of the drive. He cussed out the POS TV remote control when it was clearly operator error....He…
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Finally Got POA! Now What?
Hi everyone! So today is the day that I finally focused on getting POA over my mom, and thank god I did. Poor thing could barely do her signature she kept getting so anxious :( But regardless, yay we got it done! Now who do I need to send it to?? Do I just give it to all of her doctors, her bank, her landlord?? Should I be…
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Email account mistake
I thought I would share this in the hopes of preventing others from making the same mistake. Then again maybe maybe it’s obvious to others and I just wasn’t thinking clearly. Mom is old enough that she has never had an email. When I started helping her with bills and finances maybe 5 years ago, over the years I created…