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Friends, Dad is in care, will probably have to move him to higher level facility soon, but can't right now for a couple reasons, one being a Medicaid technicality. (No idea how people pull off fraud! They are up my butt about EVERYTHING, rightfully.) Meanwhile, I'm going to try the black tape/rug in front of his door. His…

Bonjour, Je suis AMP et je cherche des idées pour une dame atteinte d'Alzheimer qui refuse systématiquement la douche et la toilette. Si vous avez des idées ou des conseils, je suis preneuse. Merci beaucoup

Hello, this is my first post. My father has recently been diagnosed with dementia. He is 81 and lives alone. I am an only child and I do not speak to my mother and neither does he. He is a Vietnam Vet and is struggling with this diagnosis because he feels as if his manhood is being stripped from him watching him decline so…

Weeks now I’ve been hanging on! Washing sheets daily, cleaning bathroom before I get to use it in the morning! Stripping sheets daily , soaking ,washing repeat till no smell remains! Shopping cleaning paying bills ignoring his rants about his car and how he can’t drive! Getting worse and fortunately you all are here for…

https://hiddenheroes.org/resources-online-education/

Shocked about the reality of hospital delirium and the lack of support and empathy from hospital staff. One minute my dad was in early stages of Alzheimer’s taking care of himself, able to carry on a conversation and go out in the world and then he got a uti and sent to the emergency room and over night he’s a different…

My first post. I'm 84 and my adult child was diagnosed with moderate cognitive decline 4 months ago. Has been on doctor prescribed vitamin /depression /antipsychotic protocol since then. Has anyone else got this issue?

This is so hard!! My mom whom I loved so much and supported for 10 years with dementia died in April 2025. during her final decline, my 63 year old wife started showing signs of dementia. She was just formally diagnosed last week (July 15th). She is progressing with this disease at a very rapid pace. She now forgets who I…

My DH was diagnosed initially by a neuropsychologist as severely impaired in the MOCA test in several areas cognitively which led us to further neurological testing. He was then diagnosed at 61 to be in the moderate stage, unsure of the day of the week, place and regularly forgetting our address. He refused to admit to me…

I'm a full time caregiver to my wife. She has good days and bad. She recently had a knee replacement which actually has gone pretty well. She's doing a great job recovering from that. My main concern is my sanity and health. Her Alzheimer's is really progressing and I'm having a hard time diverting her "discussions" which…

Hi there, community. Alzheimer’s and dementia gallop in my family. Currently, my grandfather is advancing and it’s very different from other family members. I think he’s facing a lot of fear as a man who is used to being very in control. My mom and uncle are caring for him though he is still living alone (and driving, god…

I need some advice. I can’t get my ADLO to understand that he goes to his social group only on Tuesday and Thursday. The five days that he is home are trying because he gets up and dressed to go and gets mad at me because I don’t take him there. He says that I don’t get it. Of course he doesn’t explain exactly what I don’t…

I am recovering from my third bout with Covid. I want to remind and warn everyone to continue to take precautions. I let my guard down and I got infected. I usually wear a mask and swab my area with disinfectant on a plane, but I didn't on my last trip, and three days later I came down with Covid. I had all the Covid…

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My husband was diagnosed with Alzhemiers in 2022, and after a fall, he has progressed rapidly. Currently he is in a memory care facility in Vegas. It seems that there arent any body in a similar situation as me, and it feels very isolating. Any one in Vegas in a similar situation?

My DW is at stage 7b per hospice. She has total aphasia. She’s lost about 40lbs over the last year and a half. She’s down to 100 lbs. She’s leveled off here for the last several months. Recently though, maybe the last month and a half, her appetite has really been up. She’s pretty much eating everything we put in front of…

Personal status: secondary caregiver; grandson (Edited for accuracy: Grandpa in hospital on ventilator and ng tube, Grandma watching over him; I visit sometimes) What's something primary caregivers wish a family member/other caregiver had done for you and/or the patient? I visit occasionally and sometimes bring stuff from…

I don’t even know where to begin. I’m just looking to vent and feel seen as I feel most of my friends do not understand and I have no family. My dad is 84 and was diagnosed with frontotemporal dementia about 4 years ago. My parents divorced when I was young and I have 1 younger sister. When dad was no longer able to live…

During the nighttime bathroom break as we both rolled to our own side of the bed, I started crying. I know it was years ago but I want the original version back. The one who would cuddle up next to me. Every day we're together but I am alone. We barely have nice conversations, I tiptoe and she's always right to avoid…

Hello, I recently started to care for my mother-in-law she is recovering from a stroke and has mid stage dementia. We relocated her from another state as she can no longer live alone. She asks about going home every hour it seems like. I try to change the topic and divert the conversation and it works for a couple minutes.…

We periodically check in with DW PCP and have regular visits from our palliative care nurse. DW's behavior has changed quite a bit as the disease progresses. However, it seems no matter what behavior I describe, the response from the medical professionals is always the same, "that is typical". Sleeps all the time or cannot…

My 89 year old step father has become increasingly angry and verbally abusive to my 89 year old mother who is currently caring for him. This has taken a real toll on her and her anxiety level is off the charts. She is reluctant to begin the conversation about locating a facility given his stated desire to remain at home as…

My husband will have his first Leqembi infusion this week. What symptoms should I expect after the first treatment? Will he need to sleep the rest of the day? Will he be nauseated, have a headache, generally be "out of it" and how long will any of these symptoms last after the first infusion. Will these same side effects…

I joined because I feel like I could use some tips, advice and help. I don't do a bad job caring for my wife, but I could improve. I think I am sometimes too impatient with the seemingly endless challenging behaviors. There is rarely a single triggering issue, but usually the accumulation of behaviors, that makes my…

I won’t go into the horror story of my husbands last night in the hospital with delirium, but instead focus on a more humorous story he told. I left the hospital to feed our dogs and when I came back a nurse was in the room. She told me my husband was just telling her how he lost his fingers to a shark attack. I started…

I wake up with panic attacks, if I sleep a full night at all. The stress from my situation is affecting my health. It has taken over my life for over two years now. Let me explain. My parents married as teenagers. They were married long enough to have me and my sister. Then they divorced and remarried. My Dad married a…

Just when I think I’ve got this I am hit with a “you’ve got to be kidding me moment”. My shock rears its head and I want to scream (I didn’t) “what were you thinking”? Today my DH used a serated knife to “clean the sticky stuff” off the dining room table. He took the finish off down to bare wood at least 5 inches across!…

I'm new here, but desperate for help with handling these difficult things, and feeling like I'm really botching this pretty badly. A little over a year ago, I moved in to look after my Mom, who was diagnosed with Alzheimer's when she was still somewhere in the middle stages. My family was never good with communication or…

Looking for a device that my mother can where so I can track her whereabouts? She doesn't always take her phone with her when she goes out. So I thought if she could have a device on that she doesn't remove so I can track here on my phone. She doesn't wander at the moment but I rather be prepared in case she does

Hello, I don't know where to start. My Dad is 88 and has alzheimers and its getting worse. His short term memory is almost gone, now some long term and he has can't understand things very much anymore. He lives in assisted living, but he is getting worse and his physical health is failing. My sister and I are durable…