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Stage 6 - How Much Medical Care is Appropriate?
My DH is in stage 6 in memory care. He has afib and CHF which is managed with meds. He has a cardiologist appointment the end of July for a check-up. It has become extremely challenging trying to take him for appointments because he is so confused. I am questioning why I should even take him. He is a DNR and I have already…
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Partner’s Legs Won’t Respond — Is This Common in Later Stages?
My partner is in a later stage of Alzheimer’s, and over the past few weeks, their ability to move has drastically declined. They used to be able to stand with some help, but now it’s like the brain isn’t sending the message to the legs anymore. No injury, just a complete lack of response. This has made daily care really…
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Mobility concern
Hello everyone. My mother is 75 years old and was diagnosed with Alzheimer’s and vascular dementia officially in 2020. Lately, my mom has been needing more help with walking around the house. Last week, she fell in the bathroom; she was looking in the mirror and just fell backwards. I’ve also noticed that she leans to her…
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Talking gibberish
My DH is Stage 6 b/c. Physically fit. But he is mostly incoherent, attempting to tell me something or ask me something. I used to be able to figure out what he meant, but very recently I truly have no idea what he is saying. He gets very frustrated with me. Impossible to redirect. We came back from taking our dogs to the…
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Dad has sudden incontinence
My dad who is mid-stage LBD has been wearing Depends since late 2023 although he hasn't really needed them, it is simply easier for both him and his caregivers. He could always verbalize when he needs to go and if he wasn't a fall risk, could toilet independently. He was started on Doxycycline for a stye recently and after…
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The day of the toddler
I went to my mom’s MC today just after lunch had been cleared from the table. Here is the conversation we had: Me: did you have lunch? Mom: no. Me: are you hungry? Mom: yes. ( I then checked with a reliable staff member in the room who told me she had eaten her entire lunch, including ice cream for dessert.) Me: let's go…
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Trapped
Well we are at that stage where I’m feeling really trapped! DH has been obsessing about his car on a daily basis.(previous post about that) . I just nod and walk away as he follows me yelling he wants his car. He just finished with home PT and an aide 3 days a week for 3 weeks. He of course was so nice to them. Did…
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New to this
Hello! This is the first time I have reached out about taking care of my Mom. She is diagnosed with Alzheimer's and probably has been dealing with it for about 2 or 3 years. She moved in with me back in January. She decided she just couldnt do it alone anymore. It has been a huge change for all of us. I have 2 adult…
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Links to helpful videos
Hello all! I was looking through posts recently and found one that was from a woman who has a PhD in Dementia care. It was very informative and helpful for the stages of Alzheimers. But I cant remember where I saw it. If you know what I am talking about, please post the link here. Also, I would love any and all videos that…
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Help with getting a diagnosis
My DH has many AD symptoms. I've called his Drs office and notes were made to give to his med team. He refuses to let me accompany him for checkups. His false accusations, hallucinations and "hearing" things are really affecting my health. What more can I do, I'm at the point of leaving.
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Clinical trial Buntanetap
Is anyone participating in a clinical trial for Alzheimer’s treatment, specifically Buntanetap? We’re going in at the end of the month for a screening to see if DH qualifies. Please share your experiences.
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Sleeping issue
Hello, I am new here. My sister, brother and I are taking care of my mom. She was just diagnosed and is on 2 different medicines to help with her memory. My sister sees my mom more regularly than I do, but my mom went to my sister's today, and my sister could tell my mom was off. My mom said she had trouble sleeping last…
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Nobody can be relied on. Nobody.
The doctor’s office dropped the ball… again… in a way that made things so much harder. Long story short, the way my mom found out she has to give up driving was by getting a letter from the state. No breaking it to her gently. I am finally learning that when caring for someone with this disease there is literally NOBODY…
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Worried about Mom’s Memory
My mom is 73 and she is forgetful. Meaning she forgets to charge her phone at night, get up and out the door for appointments first thing in the morning. Never sets alarms to get up. Forgets her purse and phone when she leaves the house. She sees a neurologist where we live and had been tested for Alzheimer’s by blood test…
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Headaches
My Mom’s dementia is getting worse obviously. She is taking Trazadone and some other drugs to keep her on an even state. Poor thing complains of headaches everyday and not sure why? No mater what we give her to help make it go away does not work. Exedrine, Advil, Tylenol - is like popping Pez, does absolutely nothing.…
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What small joy did you experience yesterday?
I’m new to the group, and this is my second post. I’ve read many of the past discussions, and one of the messages stood out to me: Take each day as it comes and recognize small joys. Yesterday, I caught myself smiling. We have a goldfish pond, and I briefly caught a glimpse of a goldfish baby dart from under a rock to…
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Removing pictures
has anyone else experienced their LO slowly wanting to remove all family pictures from their room? I don’t know if they upset her, if she doesn’t recognize the faces or what it is but we remove as she asks.
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Dad in nursing home
My Dad is in a nursing home for physical reasons and some dementia. He has started to settle down and doesn't call me 20-30 times a day anymore maybe just 5-10 calls. He keeps asking why am I here and I am tired of explaining it. I have had to harden my heart a little just to create some emotional boundaries between me and…
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Continual Grief: I Miss My Mom
I visited my mom again today at her skilled nursing facility. She was diagnosed with Alzheimer's disease in 2018 (she had probably been experiencing it since the early 2010s, in reality), and I made the gut-wrenching decision to place her into an SNF in 2021. She's currently experiencing late-stage Alzheimer's. She has…
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Feeling overwhelmed and tired of dealing with this disease
I am so tired of the uncertainty. Whenever I think I can handle the behavior, I quickly fall back into a slump. I want a normal life, NOT this new normal. His hallucinations are off the chain. He gets angry constantly, accusing someone of stealing something or that someone was here. He sees people almost every day. I can't…
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Sister w Alzheimer's wanting to take control of everything
My sister who has been diagnosed with Alzheimer's is determined to re-take control of her finances, among other things. Neuro-psychological testing has shown she is incapable of doing so. She can't even write a check. Prior to diagnosis and testing, she had a year of not paying bills, having power or phone shut off…
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Dad very likely has dementia, but Mom terrified to "tell on him"
My sister and I live in Washington, with our parents in Arizona. We don't see them often. Recently, my mom has told us some troubling stories of his memory lapses, weird ideas, not understanding distance and time, etc. She is trying to get him diagnosed, but he gets angry very easily and she is terrified of upsetting him.…
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Any tips to help LO get into bed to rest on their SIDE?
Hello, My DH sleeps better if lying on his side, but he doesn't know how to get into that position, and weighs too much for me to put him into it by lifting or pulling. He suffers from apraxia, so has (cognitive) trouble with coordinated movements. If he starts by sitting on the bed (coming from the side), then lays his…
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In Loving Memory of “Jo C”
I’m reaching out, again, on behalf of my beautiful mom, Johanna “Jo C” Richardson, a passionate Peer Volunteer for nearly 20 years. Many of you knew that Jo C had been diagnosed with a progressive lung disease a couple of years ago. The disease did progress and Mom passed away peacefully at home the evening of June 19,…
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New to Alzheimer's
I'm 58 years old and have been diagnosed with early onset Alzheimer's. I would like to talk with those who have early onset also.
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accept help
How to get DW to accept help with personal hygiene?
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Recommendations of Videos to watch
We are bracing ourself for a long haul ;) would love recommendations on Videos my family and I could watch to help us understand this incredibly destabilizing disease so far I watched a few videos from Teepa Snow , good but not very well filmed ..
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Looking for therapist or support for son caring for his mom with Alzheimer's in NYC
Greetings, I am the primary caregiver for my mother who has Alzheimer's we live in NYC. I am having a hard time finding a therapist who knows how to support me through this process and finding support in general. This is my first time on this post. Thanks
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Next?
Mom has a brain hemorrhage and is in critical condition at a local hospital. She is going to die before my dad. He has step 7 vascular dementia and he will accept the fact that Mom died? Geeze, both parents with life threatening conditions. I'm medical POA and need to make the ultimate decision. This is so hard.
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Sleeping excessive amounts
my dh is 83 with late onset dementia and Alzheimer’s. He is sleeping soundly from midnight until I wake him up about 3 in the afternoon. No behaviors issues. Should I let him sleep that long??