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She Is Dancing With The Angels
My wife Linda’s journey of this earth ended this afternoon. I have mentioned several times in my post how she loved to dance and she continued dancing almost to the very end. I attached the link below of her dancing. She contracted Covid 3 weeks ago which lead to an infection that got out of control. She passed peacefully…
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Hypersexuality
Its been a long time since I've posted, but his hypersexuality is much worse. He is not angry, or mean, or delusional, just talks about sex non stop. The only thing that makes me feel better is that I have caregivers who aren't nt phased by it, having seen it a million times. It makes me feel like I'm in a more normal world
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Unexpected peaceful moment
I just wanted to share with those who would understand. Tonight, I had one of those truly unanticipated moments of peace and dare I say joy? After getting DH into bed, I poured myself an adult beverage, stepped out onto the patio, sat in my chair, and listened to the wind blowing in the trees (it’s really gusting here in…
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Repeating instructions and forgetting appointments
Hello, new to the forum, excited to get started. My mom not diagnosed with alz yet, but lots of symptoms. Constant repeating instructions, daily occurrence. Confused and forgets doctor appointments. Not sure how much more I can help, daily I remind and go over instructions,
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Memory loss and difficulty speaking
This is my mother's MRI report. Could this be the cause of memory loss and difficulty speaking?Multiplanar multisequence MRI of the brain with I/V contrast was performed. 06-Nov-2024 07:45 Extra axial spaces: A well-defined avidly enhancing extra axial mass showing isointense signals to gray matter on T1/T2 measuring 3.5 x…
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Giving up
My dh is in stage 4,also has vd and multiple health issues. Does all his adls. He appetite is poor,has lost alot of weight. Yes I have tried boost and any thing he will eat. Was talking with him this morning. Ask him if point plank are you giving up? He said why? I said your getting weaker and your voice is getting weaker.…
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Questions about Vascular Dementia
My husband was diagnosed Nov 2024 with Vascular Dementia following a MRI. In looking back the signs were present around 3 years ago……..but I the time we didn’t know it was Vascular Dementia. He had a “spell” Feb 2022 that was diagnosed as ketoacidosis due to being a non-compliant diabetic. In looking back to this day there…
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Struggling to get him to do anything
DH is becoming more and more resistant to things he needs to do, like changing clothes, brushing teeth, washing. Maybe I created this problem myself in the way I’ve been handling it but I’m at a loss as to what to do next. He used to get undressed at bedtime no problem, so could slip clean underwear and clothes at that…
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Follow up on Blount Alzheimer’s Center Cuts.
I was devastated by the cutbacks at the Blount Cenetr for Alzheimer’s research. There is no cure for for my DH, but I know the Center is working so that my children and grandchildren will be spared this vile disease. Not expecting much, I contacted my congressperson. A few days later, my congressperson phoned me! He…
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Onesies
My spouse is about Stage 6 and has lived in memory care/assisted living for 2 1/2 years now. He has moved from the more independent through the middle and is now in the section where residents require the most care. The nurse called me this week and said he is peeing wherever he is, and wonders if I mind them trying him…
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All alone
This is a sad story. My partner (F) and I (M) are both 75. We have been together almost 33 years. She is the love of my life. Over three years ago we moved far away to a new area which is more affordable so we could retire. We have only each other. There are no children, family or friends. After we moved, she developed…
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Sad and scared
I am new here, and I's prefer to exist in denial but I know it's better to connect here. So here I go... My 75y.o. mother was diagnosed with Alzheimer's (early stage) January 2nd, 2025. I live 4 hours away which is close enough to be available and far enough away to make it complicated and difficult. My maternal…
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Hiring through Care.com
Hello - we are looking to hire someone in the immediate term through care.com until we can get mom's long-term plans settled. For those who use or have used care.com: What questions did you ask when interviewing candidates? What red flags should I be on the lookout for with candidates? Any watch-outs to be aware of when…
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Official diagnosis & Medications
Is a official diagnosis needed to start taking medication (Aricept) to slow down memory loss? Mri showed brain atrophy more accelerated for age than should be & chronic vessel ischemic changes. Memory loss & behaviors are declining also Neurologist prescribed Aricept but can't be started without official diagnosis which…
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Repetitive questions
How do you deal with the repetitive questions? My DH is driving me nuts. He will ask the same question 8 times or more in the course of 15 or 20 mins. Then later it will start all over. I know it is not his fault but my patience is wearing thin. I have my own health problems (Pancreatic cancer) which he is oblivious to( no…
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When to cancel the cell phone line
My DW is in stage 5. In the past few months, she has lost complete interest in even trying to use her cell phone. She has not gotten a meaningful call or text on her phone in months. I have been moving all her accounts to my phone number. Every month when I pay the cell phone bill it makes me feel financially stupid. The…
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Advice for surgery?
Hi - it’s been a minute since I’ve posted. I hope everyone is doing as well as they can. I’m here because I could use a little advice. I’m going to be having surgery later in the spring. There is a 4-6 week recovery period, including up to 2 weeks of bed rest. My husband is well cared for in his facility. What I’m trying…
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Tiempo disponible
Soy la unica a cargo del cuidado de mi papa. Estoy cansada, agotada y de muy mal humor. La enfermedad de mi papa se llevo mi vida social, y los pocos amigos que tenia. El vive conmigo y lo cuido de dia y de noche. Se que no soy la unica pasando por esto. Que hacen para tener paciencia?
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Retirement
Well. I worked full-time during these last six+ years of solo caregiving as my DW has progressed to now Stage 5. I’ve been losing my mojo every year of this, with this past year ending up with me completely burnt out. I am lucky, my employer is a Family Medical Leave Act employer,, so I’ve taken the last 1.5 months off on…
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Our parents both have dementia & anxiety
Dad is 85 and has Alzheimer’s and dementia. Mom is 80 and has dementia and aphasia. They are living in their apartment with aides providing care 11am-8pm 7 days a week. Their conditions are advancing and soon we will have to rethink their care. Dad is getting agitated and verbally abusive to mom, which of course gets her…
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Feeling So Sad
what do you do when sadness overtakes you. Today coming home in the car with my DH of 54 years he asked who are you?
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Unbiased input needed - dementia parent with a questionable boyfriend
Mom was diagnosed a little over a year and a half ago with dementia and stage 4 kidney disease. There's a boyfriend in the picture who does not live with her - she's still living alone. There's strong feelings that he's not sticking around for the right reasons. Today, he inquired again about being reimbursed for doing…
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need help
my mom has dementia since 2016 for the past 2 months she has been declining fast. Now she can't stay still and walks out of the house. WHat medications is everyone using to keep her calm.
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Falling apart
It feels like everything is just falling to pieces. I feel like my family is imploding and no matter how hard I try to hold everyone together we're all falling apart in our own self destructive ways. We're in our 40's and DH has EO still in early stages. We got the diagnosis about a year ago and he's still (understandably)…
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Long distance has separated us
Being long distant from a loved one has taken a toll. This has been a heartbreaking journey for all involved. Feeling hopeless and helpless and just want him here with us like he was planning on doing before Alzheimer's overtook him. Everyday is a struggle, everyday that goes by is a huge loss without him.I want to save…
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Increasing comfort meds for mom, caring for her in my home
Hello to the rest of the incredible caregivers here - My mom is 73 with dementia (possibly Fahr’s Disease), and moved in with my husband and I in October after a series of facility failures. We began hospice in late January after home health could no longer help and I ran into safety issues trying to shower her due to her…
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Doubting my caregiving
posted tonight about how DH just won’t stay away from me with his awful cold - not Covid yay! Now have a sore throat headache sneezing and cannot take anything. I asked him why he can’t just stay upstairs so I don’t get sick and surprise he said he doesn’t want to. I am really feeling that I am not the best caregiver for…
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I'm ready for adult day care
I have concluded that I have to have help with this. My wife has stage 5 AD and my 50 year old son has a stew of cognitive disorders, and I am the caretaker for both. He lives in an RCF and she lives with me. Taking the two of them anywhere is very stressful for me and them, because they trigger each other. DW needs 24/7…
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Preventing her from driving is worth it, right??
Oh man. We had several good weeks with my mom but for the past two weeks or so, she's been very upset! She (at one point) knew that she could not drive. And we have let her know that she failed the cognitive test which means she'll never legally drive again. But she is ADAMANT that she wants her keys to her car. And that…
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Defusing unkind behavior
My mom has Alzheimer’s my father is her caregiver. They live in DE, I am in NJ. For several months she’s been annoyed at my husband and i think it’s because she misses me. He is always kind to her and even physically helps her in person. Whatever the reason, she’s just not kind when I mention him. I try not to react to…