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Hi new here…
My name is Dana, and my husband is in the process of his diagnosis, although we are pretty sure it’s early onset Alzheimer’s as that is an issue on his father’s side of the family. He is upset with a family member right now, unfairly, but there is no way to reason with him. My question is, do any of you have suggestions…
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Buying
It's been a lifelong problem, prepping. A recent move necessitated giving away an entire cellar of goods she had bought, saved for the future. Now at the beginning of our Alzheimer's journey, we're in two rooms. Today I saw her list, we don't need to prep. When I brought it up it became that I wasn't going to control money…
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Buspar and Caregiver Anxiety!
My DH is participating in an annual memory evaluation study through the Alzheimer's Disease Research Center (ADRC). After a thorough evaluation, the team diagnosed him with Alzheimer's and had several useful recommendations about diet, exercise, etc. They also highly recommended that my DH stop taking Lorazepam and start…
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Change in behavior
My mom was diagnosed with Alzheimer’s two years ago. Recently, we have observed some extreme changes in behavior with delusions, anger and agitation. Since her Dr consulted AI for medication suggestions, I thought I would check here. Her doctor prescribed Rexaulti but we are having some issues getting Medicare to cover it.…
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Any guys have have the HHA lady hit on them - How did you handle?
Hello, I am a single man in his late 40s who is caring for his mom with dementia. My mom is now bed-bound and I need help to assist with her. I've had different home health agencies over the years and I live in a very pricey area. We're not moving, not feasible nor can we afford it. So, I'm stuck with what I can get as far…
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DEMENTIA WITH GRACE - book & videos on Youtube
I saw this on a podcast and thought it would be helpful to so many. The book is available on Amazon or the link below is for the Youtube videos https://www.youtube.com/c/dementiawithgrace
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Anxiety and Agitation getting worse
I wrote a couple of weeks ago that my DH in MC is having a lot of what I guess is anxiety and agitation. He is constantly in motion. The nurse and aides told me yesterday that he wanders the halls all night going in and out of other residents rooms. He has trouble sitting still in one place for very long. Now he had gotten…
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FDA Approves First Non-Antipsychotic Drug to Treat Agitation Associated with Dementia
For Immediate Release: April 30, 2026 https://www.fda.gov/news-events/press-announcements/fda-approves-first-non-antipsychotic-drug-treat-agitation-associated-dementia The U.S. Food and Drug Administration today approved an expanded use for Auvelity (dextromethorphan hydrobromide and bupropion hydrochloride)…
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Early Onset Alzheimers - before diagnosis
I would love to see how many of us has 'horrible' years leading up to the unveiling of the diagnosis. The two years prior were full of arguments / fights / resentment. I look back and I cringe now that I can associate all of those times to his EOAD symptoms. I wonder how many marriages crumbled before diagnosis and the LO…
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New here
Hi All, I’m 59 and my DH is 63. He has just been diagnosed with Alzheimer’s/Dementia. He is moderate to severe. I knew something was wrong and tried to get him to seek help earlier, but he refused. He isn’t accepting the diagnosis, he just says he’s going to die. We have been married for 31 years and have had a wonderful…
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long distance
Hi, I live in Hawaii, but my brother Dan was recently diagnosed with dementia in San Diego. My family there is being lacking with details, and I am having a really tough time processing this from a distance. I would love to join a virtual local support group here in Hawaii or anywhere just to listen, connect with others,…
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Non-emergency "lift assist" rather than a 911 call is useful
This is not specific to dementia, but if your LO falls and you can't lift the patient, you can request "lift assist" in some towns, which will avoid dispatching a full set of vehicles with sirens (or even a police car) to provide medical assistance. It may take a bit longer since it a non-emergency. I have not requested…
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Family member's death
My mother has dementia. Her brother died recently (he had Alzheimer's and died of natural causes). My mom is confused and upset by his death and has been believing her brother committed suicide (which is absolutely not true). We are comforting her but does anyone have advice for disabusing her of the suicide notion.
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Exelon patch
went to the neurologist today finally! Mom scored 19 out of 30 on the memory test. 6 months ago she was 21 out of 30. Is that fast decline? Dr mentioned possibly doing an exelon patch. Anyone have any experience with this?
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Alzheimer's & Dementia Research Made Accessible - For *All*
Registration is now open for the Alzheimer's Association International Conference special session titled "AAIC For All". This portion of AAIC is free, you can learn from top Alzheimer's & Dementia experts about the latest research/news. There are three key sessions: - AAIC 2026 General Conference Highlights - AAIC 2026 in…
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Potential PoA Challenge
I have PoA (financial and medical) for my LO with dementia. Other family members and I have a difference of opinion on where my LO should live. I’m just trying to honor my LO’s wishes as long as it’s feasible. I received communications from these family members that make me think they are gearing up to challenge my…
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Mother very angry - need help
My mother was diagnosed about 2 years ago, and she's steadily declining. She has haunting memories come every week or so of when my father had an affair over 20 years ago. They got back together and had a whole life after the affair, but she is reliving the experience of when she first found out about it all those years…
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Help with the emotional toll of DH incontinence
For three weeks now, my husband has wet the bed through his Night Depends, and even with a pad and waterproof mattress pad I am doing laundry of his PJ, Shirts and sheets. Out of all the issues we have dealt with over the past 4 years with him losing so many capacities, I feel that I have dealt with them well, but this is…
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knowledge of current events in staging
Last night sweetie and I were having a relaxed conversation about life, the world and past memories. For some reason the recent events in several foreign countries came up. I asked him a couple of questions about several countries that had been prominent in all the news for the past few weeks. Some of the information we…
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Bank Doesn't Recognize POA
Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…
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Brand new and Mom doesn't want to admit dementia.
I moved in with my Mom a year ago and have been taking care of the finances and keeping things going. Mom is 82 and her Dr. diagnosed her with Alzheimer's. She won't talk about it and is now refusing to see the Dr. because he won't listen to her. I think she is fine 90% of the time but is now forgetting the names of family…
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Help for calming
In addition to the donezpril and memantine, has anyone added any cbd products for sleep and or calming? I would also like to recommend the digital publication " What About Me" that I found on womanandwell.com for wives dealing with husbands with dementia, but would also pertain to husbands with wives living with dementia.
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What is happening?
This is just an observation and a feeling, but since my DH passed 4 months ago, I have heard from at least five people, all women, some of whom I know quite well, telling me their husbands are having cognitive issues or have dementia. It’s very unnerving and seems like it’s becoming all too common. What is going on? It’s…
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both parents have dementia
Hi My mom has a diagnosis of Alzheimer's (early stage but noticeably progressing), my dad, while he doesn't have a formal diagnosis, has some form of dementia. They live together in their home. My mom has anosognosia, thus denying anything is wrong with her. It took us 2 years to get her a diagnosis and she refuses to take…
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The Power of Gratitude
I write this while recognizing that so many of you are deep into the brutal journey of caregiving. I hope it does not feel like some lecture. It's the experience I had and I felt like it might help someone if I shared. Early on in this awful journey, I was so blinded by my wife's and my own pain while I was caregiving that…
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Survey
Anyone else receiving a message from angelica.lopez asking to participate in a survey. These days one never knows if these things are legit, so I am very cautious.
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If you have any plans to fly...
My DH and I went on a long weekend away. It was a great time. We flew to FL, enjoyed a weekend of beautiful weather, and shared some much needed time with our daughter, SIL, and grandkids (who met us there). I tell you this because I learned about a sanity saving option when booking our airline tickets. I was able to…
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My DW said she loved me today
Today was a good day. When I was helping my DW get ready for bed she looked at me and said, "I love you". It came out of nowhere. She has rarely made comments about affection. I was taken aback but replied, "I love you too". I got her ready for bed while I was tearing up inside.😥 I so hate this disease!
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First week in memory care
I was persuaded to send my DH with mixed dementia to memory care. He is very hard to care for and fights anyone who tries to help him. It often takes two people to change him because he won't cooperate. I miss him. I don't miss the work. I have no idea what is next for me. I have literally spent the last three years…
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Rough day
My DW went to bed last night thinking I had left for the night and recogonized me as her dead father. She got up this AM and still thinking I am her father and very agitated as to why her husband isn't here and why didn't he leave a note as to where he went. She started telling me everything her and her husband did for the…