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Now or later
I’ve got a question on how to handle this situation. My DW has EOAD. She is in late stage 5 / early stage 6. Her father passed away about 9 months ago. My DW now cries daily saying she wants to see her dad. Today I received news that her mother has been told by doctor that she has only 6 months to live. Her body is full of…
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Infusion tomorrow
After much discussion regarding the risks, my husband decided he wanted to do the Leqembi infusions. It has taken a month but we finally found an infusion center that accepts our secondary insurance. Tomorrow is his first infusion. I know he’s nervous and so am I. The side effects are super scary, but through our friends…
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Home Renovations with LO
My DH was diagnosed with mild cognitive impairment and is exhibiting signs of further decline (no short term memory, repeated questions, etc. etc.). We have been planning/dreaming of some substantial home renovations for many years and finally started getting estimates from contractors, including adding a first floor…
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SOS/Aggression
I’m sending up the white flag and in need of some direction please My father currently had MS dementia. He’s been exceedingly agitated and angry lately and lately and he acted out against my mother tonight and I’m panicked I don’t know what our next steps are ; I obviously do not want this to occur again - nursing home or…
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Blood test
I am sure many of you have read about this, but for those who need a diagnosis, there is now an approved blood test for Alzheimer's that doesn't involve a spinal tap or PET scan. Alas, I do not think Medicare pays for it.
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Permanent catheter with dementia
I’m a caregiver for my mother. She has early onset dementia that she’s had for about 10 years. She does fairly but has a lot of other health issues. One of those being she has issues with her bladder. Her urologist is wanting to put in a catheter that would stay in all the time. I’ve never had any experience with a…
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Death Rally?
Update: I'm sitting here in my kitchen after bringing my husband home on hospice almost a week ago from MC. He's now on day 31 of not eating anything and day 15 with no meds. He wasn't really drinking much for several days and all of a sudden over the weekend, he decided he was thirsty. He consumed about 3-4 cups of fluid…
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Stages of Alzheimer's
My mother is 82 years old and was officially diagnosed in December of 2023. My sister and I had noticed cognitive impairment for at least 4 years before we managed to get her tested, due to her being in denial. As she progressed, we were "Google Doctor's" trying to get all the information we could. Her neurologist has said…
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Angry and Jealous
It’s been 5 years now since my DW was diagnosed with this terrible disease which I think is worse than cancer . She is physically very fit and looks like a 60 year old, unfortunately every single day I wake up to a new change … and not for the better either. Her memory, temper and aphasia are all getting worse . It is so…
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Mom is constantly angry with my sister
My Mom was diagnosed with Alzheimers in the fall of 2022. She is understandably having a very hard time with the loss of her financial independence and is constantly accusing my sister of controlling her. We have POA and I tell her we're making the decisions together, but her anger is focused on my sister, who is the…
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Update on Jo C
I’m reaching out on behalf of my mom, who most of you will know as “Jo C”. She hasn’t been online for a while, and I know that some in the community have been wondering how she’s doing. I’ve always respected her privacy here, so, while I’ve technically been a “member” for about 14 years, I’ve only ever stopped by quietly…
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Broken bone
I have known two people with stage late 6 early 7 dementia that have died about a week after breaking a hip. I don't why, if it is the shock, or the mind just can't handle that much, or if it was just a coincidence, also is it just the hip or all fracturs. My wife broke her upper arm yesterday so I am just wanting to hear…
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How to cope and help?
My family believes my father is struggling with early onset of dementia. He is very stubborn and does not like anyone telling him nor suggesting on what he can or cannot do. Always has called the shots and at 84 he is still driving his tractor and trying to farm. My mother lives with him and all of his kids me included are…
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Delusions
I am supporting (or trying) to support my brother and SIL. The latter has been diagnosed with Alzheimer’s. I believe the onset was at least 4 years ago when I noticed memory loss. It was not officially diagnosed until 2024. She has always been a very anxious person but more so now. Medication has largely controlled the…
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Out of state sister with early Alzheimer's is stubborn, petulant and resistant to help.
I am her HCPOA and DPOA. Neurologist explained her diagnosis to her, and told her she needs 24/7 aides if she wants to remain in her home, that she may not drive or be responsible for her medication, and must use a walker (many falls.) But she states she does not have Alzheimer's, is rude to and fires every aide we hire,…
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Just need to talk to my friends (205) May 2025
Thanks, CaroLynn, I kept meaning to do this yesterday and never got around to it. Chilly and c!oudy here this morning. I checked and WM will deliver something so had to go out and open the gate so they can come through and turn around without backing all the way to the road. Then. fixed my cereal and hot tea, got back in…
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Diagnosed with EOD a year ago at 55 years old
Hi. Last year I was diagnosed with EOD a day after my 55th birthday. Then after a lumbar puncture, PET scan and MRI the neurologist said she was doubting her original diagnosis. So then I spent about 5 hours doing neuropsych testing and even though it showed I had all the symptoms of LBD, the psychologist said that my…
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My MIL is getting worse
My MIL has dementia and is now starting to forget to eat, and isn't really taking care of herself. My SIL lives with them, but it's more like lives "off" them and she is NO help! I've noticed my MIL losing weight and not looking as put together as normal. When do I know when the time has come to get her more care. She…
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Should we travel?
My DH has been diagnosed with MCI although I suspect that he is further along in the process. He has always been close to his sister who lives several states away; and her husband passed away recently after a difficult battle with ALS. His sister is hosting a "celebration of life" open house at her home in a few weeks in…
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Regressing
DH with ALZ…he has forgotten not only that he loves bbq ribs but also how to eat them. It suddenly occured to me that there have been a number of clues that his eating habits have regressed to early childhood. He now cuts all his foods …asparagus, long green beans, meats…into bite size pieces before eating. I asked him…
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Pairing college students with seniors
new platform “Joey” paired a college student needing housing with a senior couple. DW has EOAD and DH still works. Student can work off some of the rent with chores. It seemed to work out well for this pairing CBS reporting https://x.com/cbseveningnews/status/1928978603959533863?s=61&t=daLMzkQZ7dgrlrf3SDYEoA
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Moving mom from AL to MC
this day is going to be so hard. We need to move mom up to MC. She has been wandering and walked out of the building. It is now a safety issue and we need to do this but it is breaking my heart. I don’t know how to navigate it all and how often I should visit after. I currently go twice a week and sibling goes twice a…
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How to help with dementia and sundowners
I am new to all this. I worked in a dementia care unit as a companion but it is nothing compared to feeling so helpless when it comes to my grandma. My dad wants to put her in a home and I gave her my word I would not let that happen. It breaks my heart seeing her decline and not know who I am. I had never even heard of…
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New to Group
Good morning community, I just connected to this support group. My 86 yo dad is struggling more each day with memory loss. He has always had some sort of learning disability and suffers from profound hearing loss. The increasing level of dementia is complicating daily interactions. I have a sister who lives 5 minutes from…
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Worried
Taking my DH on a 2 hrs trip. He has VD and Alz. Early stages but has lots of anxiety. I so worried first time this far from home. There will be about 30 people there( all my famil). Just making me sorta nervous. Oh well gonna try might be the last time I see some of my aunts and uncles.
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Am I being unreasonable?
I’m 81, my DW is 82. I have been her primary caregiver since she was diagnosed three years ago. We live in rural Western PA. Between our prior marriages we have 8 kids. They all live far away, the closest is her daughter who lives fours away. She is in stage 5. I have had to take over all the finances, medications, meal…
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Falling issues
So, my grandfather continues to prove that he is the most stubborn person in the world. I and my father are currently full time caregivers of my grandfather who has Parkinson's and Alzheimer's. He is currently a medium fall risk as diagnosed by his doc and physical therapist. He is still very independent, being able to do…
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How do I tell my mom we are where we are because of her illness?
First, my mom refuses to come to terms with the fact that she is mentally declining and that we need to address the fact that she is not just forgetful, but that she has severe memory loss, had a small stroke, and is starting to experience delusions. Of course, she denies and becomes enraged when these things are brought…
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Dealing with Medication Management
Hey Y'all! I'm a 27-year-old caregiver for my grandfather with VD, while also working full-time. He is probably mid-stage by now. Medication management has been difficult to deal with, to say the least. He is very resistant to change and likes to feel in control of things. He's been this way all his life. He's been an…
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Brain Exercising
i would really like some opinions. We are involved with a disability sailing group. One particular friend, in her 50’s, double degree, has been a mother, a teacher, piano and trumpet player, sailor and scuba diver, a very accomplished all rounder. She has had 3 traumatic head injuries, lost her memory completely and the…