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Police officer called me at 5:30 am
My guy was diagnosed with mci 3 years ago. We lived together until 6 months ago. I told him he needed to move back to his condo. He is able to perform all of the daily living tasks. I felt we were no longer partners, but I was definitely his memory, decision maker, bill payer, etc. I informed his son I no longer wanted to…
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Falling Apart Caring for my Mom
Hello. I am not doing well. My dad had Alzheimers in the last 7 years of his life, and I cared for him. I thought that was all over when he died in 2017. Then in 2020, it started all over again with my mom. It's been 5 years now, and I'm going absolutely bonkers. My life is falling apart caring for her. Almost everything…
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BIBLE VERSE TO LIFT YOU UP 12/29/24
WHEN EVERYTHING IS READY * WE WILL ALWAYS BE WITH JESUS! John 14:1-3 New Living Translation “Don’t let your hearts be troubled. Trust in God, and trust also in me. There is more than enough room in my Father’s home. If this were not so, would I have told you that I am going to prepare a place for you? When everything is…
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Bredesen randomized controlled trial
I recently listened to an interview on People’s Pharmacy with Dale Bredesen. He mentioned that he is the study chair for a randomized controlled trial for his approach to addressing a treatment approach for MCI or early stage dementia. Here’s a link to the page with more info about the trial…
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I didn't plan for this:
I am a fairly good planner. I was a project manager, so I know planning for things that can go wrong is wise. I have not planned for the case where I die before my DW. We have wills, POAs, and family members assigned to take over health care and financial matters. However, I have not planned for someone to take over the…
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Dealing with addiction
Hello all, I'm new to this community so I'm not sure on the etiquette but I desperately need help. I recently had to take on the caregiver role for my grandfather. It's mostly okay I'm learning to handle all kinds of things I never knew I could do but I am struggling to deal with his addictions. He drinks and smokes…
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How do you do it?
I know I have written posts before. I'm sorry to keep writing, but I don't know really where else to turn. I'm hoping someone has advice. All these nights where we go through the "we need to leave" and the need for movers have completely worn me out. I have explained over and over. He is convinced that he had no say in…
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What do you say to LO who is experiencing Hallucinations/delusions?
When my DH has hallucinations, talks about the people sitting around our house (just he and I live here) what should I do? What should I say. I mean, I've said to him that this is "our" home and no one is here but us. He gets mad and tells me that I'm trying to say he's crazy and that I'm planning on putting him in a…
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Vascular dementia
We are new to vascular dementia. My husband was just diagnosed a month ago, as well as frontal lobe syndrome,, , my father has dementia, but I’m finding this vascular dementia different. My husband pushed me yesterday. I’m wondering if there are any medications to help with his mood swings any input would be helpful thank…
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Holiday
My mom moved into memory care AL in September. I am wondering how people have navigated the holidays with outings to the home setting? We are fearful it would be triggering to her but I am also unsure she remembers this house since she was only there June-September. I just want her to be comfortable and happy
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Memory Care ALF
I’m beginning to have concerns with my decision on a facility for my mother. I need advice because I don’t know if I am being unreasonable and maybe what I’m expecting is beyond what this level of care offers. When I visit, my mother has been wearing the same clothes since my last visit (3-4 days ago). Her clothes are…
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Handling SS and Medicare addresses when moving into facility
Hi, What do you do with your LO's Social Security address when s/he moves to a facility? My "understanding" is that it's linked to Medicare, so using any address other than the residence of the recipient will cause problems with the Medicare supplement and Part D plans in place that rely on the residence zip code. (I tried…
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Update on my dad’s a depression
when I last wrote here I talked about my dad’s fall and his depression. I am so grateful for the memory care assisted living he is in, they changed his meds with my permission to help him with his depression. He is doing so amazingly well! Still in the throws of grief as expected (mom died in sept then we moved him), but…
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People don't understand
This is mostly a rant.. I saw a neighbor last night that I don't know well. When I explained who I was, he said that he knows my husband (stage 6) and "talks to him all the time." My husband spends time on the front porch during warm weather (it's been cold for the last 3 months) and talks to people who pass by. I…
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HIghly Recommend Citicoline For Early/Mid Stage
Hi, All, My partner was diagnosed with MCI on 21018 and the diagnosis has moved now to Alzheimer's since it would not be safe for him to live by himself for an extended period of time. About a two years ago, he revisited a naturopath who recommended Citicoline to support focus and battle brain fog. We researched it…
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Wonder if I have PTSD after my dad died
My dad passed away four months ago. I had moved him and my mom to an ALF approximately four months prior to dad's death. Their conditions at home had become unsafe. For one thing, I keep ruminating about the status of their living conditions at home prior to their move to the ALF. In my mind, I still see the glaring red…
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Depression since FIL diagnosed
My father in law was recently diagnosed with Alzheimer's and I was doing okay with it until I had a really bad nightmare about it the other night. I dreamed that I went to visit him and found him in his car in someone else's driveway. He had gotten lost on the way home and couldn't figure out how to turn the car off. (In…
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Anger seems to last longer and longer
Last night, and a couple of nights ago, my DH started again with wanting to go to the "other house" and not understanding how all of our things could have gotten to this house. Of course there is no other house, but he gets angry and tells me that I am horrible and he would never treat me like this. It goes on and on, but…
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Healthcare Representative for Connecticut vs. Medical POA
Hi all, I am new to all of this, as my mom was just evaluated by her primary care doctor after my prompting and is scheduled with geriatric physician for full assessment. She has already signed a healthcare proxy for me for state of NY (where parents currently live). I planned to also do paperwork for healthcare…
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Defusing unkind behavior
My mom has Alzheimer’s my father is her caregiver. They live in DE, I am in NJ. For several months she’s been annoyed at my husband and i think it’s because she misses me. He is always kind to her and even physically helps her in person. Whatever the reason, she’s just not kind when I mention him. I try not to react to…
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Just waiting for this day to be over!
A little rant to save my sanity! I have been patient all day…made a special trip into town (hour drive round trip) so DH could go to Ross to look a shoes (he has approx 50 pairs of shoes in his closet, mostly unworn & still in the boxes). He woke me up at 4:00 am to see what time we should leave, even though we had done a…
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Change of living arrangements
Hi all, first time posting on one of these discussion boards but hoping for some help to support my partner as she navigate’s her grandmother’s dementia. Grandma (in her late 80s) has had several strokes which have accelerated dementia symptoms. Until recently she had been able to live somewhat independently in her own…
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How to get through the holidays
My father passed away from Alzheimer's in July. It's been a rough month since Thanksgiving. I miss having my father around espically around the holidays.
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Just venting
I check in here from time to time, although I seldom post. I’m posting today only to vent a little bit. I’m frustrated, exhausted, angry, depressed — all the things we all experience now and then. My poor DH. I try so hard to keep things light, to laugh and tease the way I always have, to exercise patience (not my best…
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Sleeping a lot
In the last month or so, my wife has started to sleep a lot more—yesterday she woke up at 3PM, even though she went to sleep around 11 PM (and slept soundly through the night). It is now almost 1PM and she is still asleep, again after going to sleep at around 11. Some of this may be due to her medications (although there…
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Other health issues
Hi there! How common is it for an Alzheimer’s patient to have other health issues arise from having alz. And the doctors answers seem to be Alzheimer’s is causing all the issues. Basically heart issues and blood pressure issues are all related to Alzheimer’s. Has anyone experienced this?
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Checking the weather repeatedly
Our father frequently turns on the Weather Channel throughout the day and night. He runs to the door, looks outside, and returns to his room to turn on YouTube and watch animal videos. Six/Seven times a day now. We imagine this is possibly to ensure the Weather Channel isn't lying to him. This cycle repeats several times a…
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My DH is gone
My DH left us this morning. His passing was relatively peaceful, but there was a six-day buildup to it, so I feel wiped out. As he was leaving the nursing home to go to the funeral home, all the staff lined up to see him out. It brought on fresh tears. My DH was a wonderful husband and father, and we will miss him…
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Alzheimers drug horror story from the NYT
https://www.nytimes.com/2024/10/23/health/alzheimers-drug-brain-bleeding.html?ogrp=ctr&unlocked_article_code=1.UU4._7lR.3WFk8efLcVB9&smid=url-share I hope this link works but this is a gift article which I can reprint its all here in a number of sections It is the worst ethical violation I have seen in my entire career…
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I’m Not OK But It’s All Gonna Be Alright…
song by Jelly Roll for those struggling and especially those in Stage 8 💜