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Is behavior issues already starting
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My first post.
I hope I'm doing this correctly, I'm not very tech savvy. We live in Washington state. My DH was diagnosed with MCI a year ago. But before that, we went and did a research study on alzheimers. He tested positive for the p-tau protein but chose not to participate in the study. His mother died from alzheimers and we've…
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FB Cure Scams
Just need to hear how you have handled your loved ones when he/she comes to you touting this new "cure" that Bill Gates, or Elon Musk, or Phil Donahue, or some other celebrity has discovered. My sister is constantly coming to tell us if this cures and wants to buy the honey or gummy that gets rid of Alzheimers. These fake…
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Is your LO on O2? Have you changed providers?
Bless this community, having a hard time today. 2 questions: Does anyone have experience with an Inogen-like portable concentrator that's continuous flow? What about liquid ogygen? Or another otion besides the clunky green tanks? He's on 4 liters and is in a care home, but not 24 hour nuring care. And, I HATE Preferred…
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wanting to go home/validation
https://www.facebook.com/reel/1172167977204030
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Physical Violence
And today I found out my mom is actually getting physically violent with my father when he presses her on something. I'm back at my parents for the week. I thought it was just screaming when he suggests getting help in but actual hitting as well? The worst part of all of this is that most of the time she is acting fine and…
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Two Months
I posted this on the regular caregiver thread by accident. I'm so used to going to that particular part of this board. Anyway. Here it is. I just needed to get it out. Two months ago on this day, my DW passed away peacefully at home. I am sitting on a plane, flying to New York City to see an opera with a friend. A respite…
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3 weeks tomorrow since husband passed
The quiet , the lack of activity. I had no time to think before he passed away. Now my mind is flooded with thoughts. Taking care of an alzheimer spouse is so hard and the abrupt end is really something else to deal with. My life was consumed for 10 years. Once never thought what the end would actually be
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Anyone have advice about power outage?? and Life in General?? My first post.
Today our home lost power for no apparent reason.. Maybe car hit a pole.. maybe lightning? I don't know.. but my parents, mostly my mom with Alz COULD NOT understand that I couldn't call someone and just have it fixed. It was out for about an hour and the complete off the chain conversation had me completely dumbfounded?!?…
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Adult family/group homes
I never seriously considered adult family homes as a care option but I recently spoke with a care provider specializing in dementia that adult family homes can be a good option for some people. Thoughts?
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New member. Caring for DH
My DH is somewhere between early and middle stage. He was diagnosed in 2022, at age 71, 13 months after my mother died of Alzheimer’s (she stopped taking nourishment) at the age of 93. That was a nightmare because it was Covid with my mom and no paid caregivers were available when she started needing 24 h caregiving so it…
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Wishing you all a peaceful Easter
Our lives are not what we expected them to be but i wish you some peaceful moments today and the ability to find/make some positive memories with your LO's while they are still with us, regardless of how different they are now. Sending hugs and prayers of support to all of you.
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Need Advice
Hello, My dad is being discharged from a hospital soon after treatment for a blood clot and heart failure. We aren't sure what is primary right now, the heart disease or the memory loss, but he's very immobile so we're afraid he'll get a clot again. He lives with my mother and my disabled sister (my mom has her hands very…
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How to answer “I want to go home”
saw this and thought it was helpful: https://www.facebook.com/share/v/1E8hMkJNtW/?mibextid=wwXIfr
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GRIEF
Often I write to help myself cope with my grief. A friend shared his feelings regarding the word "gone". He states that it is a word he dislikes and refuses to use in any way, especially to describe our loved one, as in "sorry he/she is gone". I agree with his feelings and hearing it stated openly triggered some thoughts I…
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Brain swelling (edema) on Kisunla
I'm hoping that others who have had brain swelling as a side effect of Kisunla can give me some ideas and some hope. I've had a really easy time with Kisunla (Donanemab) since I started in August, and all of my MRIs were perfect. There was break in MRIs from month 5 to month 7, but when I had my MRI last week in…
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Coping with delusions toward caregiver
My mother is entering the stage where she has fixations and delusions. One day she feels strongly the cats are trying to warn her of some imminent danger. The next day she is certain she’s pregnant and upset nobody will bring her to the hospital. This all ramped up in the last few months and it’s been a challenge. We’ve…
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Young Adult Daughter of Dad with Dementia
Hi everyone! I'm 22, just came home from graduating college and sadly my Dad was recently diagnosed with Dementia after 2 years of agitation, aggression, and eventually psychosis symptoms. With the help of medication, we are so grateful to now get glimpses of the phenomenal superhero of a man/dad he was for me all my life.…
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How long to visit / What to do
Background context: My father has progressed quite rapidly in the past year. I only get second-hand reports from his doctors appointments but they contain the words "dementia", "Alzheimers" and "Parkinsons". Maybe it doesn't matter. He shuffles very slowly with a walker, and needs someone by his side telling him when to…
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A Brain Tumor & Dementia!
My first post & it will be a lengthy back story. Sorry but I am about to stroke out. My wonderful step father of 52 years passed in March of 2023 & then my Dad passed November 2023. In Jan. 2023 found out my Mother had a very large meningioma brain tumor. Only found because she would have what I call absence seizures. She…
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Was spitting food out, now vomiting
Is anyone dealing with their LO vomiting after eating? Just a short while ago he was spitting food out. Now he throws up after a few bites. He’s losing roughly 4 lbs per week and sleeping 18+ hrs per day. Is he nearing the end? I have a video dr appt tomorrow to get a referral to hospice. Any help or insight greatly…
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Long Term Care
On March 12 my DH was admitted to long term care and it was the hardest thing I've done. On the second day I was ready to bring him home. When I arrived at breakfast time, he was sitting with full glasses of juice and water, a cup of hot chocolate and a plate of food that he didn't know what to do with. I lost it. I called…
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One word.... guilt
We moved mom to Memory care 2 weeks ago. I have 2 brothers and we are all thankfully on the same page. But I am her daughter.... she is my friend. I have talked to her multiple times a day, coordinating who was showing up and holding my breath night after night worried she would walk out her door and get lost. But this…
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When I look back at what I WAS worried about…
I feel foolish. Our problems are slowly getting manageable as far as reigning in my DHs spending and not being able to manage our finances. The real troubles are here now and I just can’t do it. I “feel” so sick. I have amended my statement “I am so sick!” After trying to get help with my lupus and other health issues. I…
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I'm back in this group again
My dad lived with Alzheimer’s for years before he passed six years ago, and it was heartbreaking to watch. This community helped me through that time. I recently lost my mom as well—she didn’t have Alzheimer’s, but caregiving and life without my dad took a heavy toll on her in her final years. Now my best friend, in her…
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Actual caregiving tip...
My DH and i have entered a new stage and I need tips for two issues. He won't let me take off his t-shirt. Tried like always to take it off for the shower and he holds out his arms to stop me. Tried later to change it for a clean one and again, a no -go. Any ideas? He is willingly wearing Depends which is helpful since he…
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In person support for Alzheimers patient
Hi everyone, we have had a very difficult time even through the Alzheimer’s Association finding a support group that meets in person or online. We have been told that they are full and there is a waitlist, but have been n a waitlist for 6 months which is a long time with this disease and it’s very discouraging because I…
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Are digital memory boards helpful?
We have been considering purchasing a digital memory board for my parents. Mom is in LTC and Dad in AL. Mom’s memory is starting to fade. Dad has diagnosed ALZ. Thinking it would help with reminders of hair appointments, activities, share photos, etc. But it’s a good investment so wanted to see if anyone has found them to…
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Just sharing a touching moment of kindness
My husband’s bathroom only has a very deep large soaking tub that’s difficult for him to get in/out of. I had a contractor come by to give me an estimate for replacing the tub with a walk-in shower. My husband had taken my dog for a walk and came back with a “gift” for Melissa (contractor). He gave her a palm sized flat…
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Need resources to find occasional in-home care for LO?
My family and I want to hire a professional aide to stay with my mother periodically for a few hours at a time. This process is new to us and we don't know where to begin or what agencies to contact in the Colorado Springs area. We're beginning to have concerns about leaving her at home alone and need to begin our search…