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The Good , the Bad , and the Ugly of late stage 7
I’m posting this mostly for Josey Wales, and for others who are now in 7 . I want to be fair and give an accurate picture of what it looks like for others. So just as a little review, my husband 59 has had Alzheimer’s for 7 years. He has never hit a plateau , but just crawls along at a glacial pace. He is at home on…
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Thinking about infusions.... Leqembi or Kisunla??
I am looking into the two different infusions available for Alzheimer's where I live. I have like a thousand questions but here are a few.... Which "brand" is most effective? Which has least side effects? Are the infusions painful? If they do cause side effects... How long do they typically last? Can you "gut it out" or…
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Could incontinence be from medication?
My DH is on a low dose of risperidone 0.25 mg twice a day and 25 mg Zoloft once a day. A few weeks after starting them he became incontinent. From what I read it’s a rare side effect and at this low dose I thought it was just a coincidence and that it was just the inevitable progression of the disease. Has anyone else…
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Taking Away Driving Privileges
My DH (57) was diagnosed a little over a year ago with EOAD. He’s not quite in stage 4 yet, and still drives only to places in a 5 mile radius of home. And only to places that he goes regularly like the grocery store and they gym. I know that eventually he will have to stop driving but I dread that because he feels that’s…
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Angery Mother
I’m having major problems with my mom. Within the last four weeks if she doesn’t get her way, she will call me names not the nice ones either. I also moved in with her two years ago when she was first diagnosed with dementia she will also tell me that I need to move out. If she’s not getting her way. We have an appointment…
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Doing enough?
My wife is 56 years old, she was diagnosed with Early On Set 2 years ago. She has progressed into early stages of moderate. The day she was diagnosed we were given basic slow down med and off we went. They said there were clinical trials we could try etc, but when I look it doesn’t seem to fit her age range etc. I feel…
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Grief about the loss of relationship with mom
Hi everyone, this is my first post. I was wondering if anyone had been through something like this. My mother has Alzheimer's. I had a friendship with her over the years and now that's obviously changed and shrunk due to the disease. I understand that the disease has affected her brain and stolen her ability to manage…
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PWD calling police repeatedly
What can we do? PWD (Dad) keeps calling the police reporting his car stolen and they’ve had to come out repeatedly. His car is not stolen, though it is gone because he stopped being able to manage maintenance and repairs even with assistance, and should not be driving anyhow. What do we do? This is a huge waste of the PD’s…
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Saw Mom after three weeks
Hello, I basically write updates on here so I remember when I saw my Mom at the nursing home. I need to also vent somewhere that other people understand. I hope I can help others here as well. Mom has lost a lot of weight, I am afraid to feed her because she can choke from food. And I believe I am not qualified to feed…
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Reminder: hospital induced delirium is real
My husband was released from 2.5 days in the hospital. I spent all day Sunday and Monday with him except to run home to feed the dogs and let them out to pee. I left the hospital at 10 both nights to sleep at home. First night he had sun downers, calling me multiple times until 2:20 am. The 2nd night was pure hell. We live…
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Break in the Fog
I wanted to share my recent experience. I visited my mother yesterday, and I wasn't expecting much because she has been showing late stage six behaviors for several weeks now. The last lucid moments I had with Mom were during Mother's Day and early June. The decline was at first rapid when she qualified for hospice care in…
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Guilt, Grief, and Memory Care
My mother and I always had a difficult relationship, but I know she loved me very much. She is in the moderate stages of Alzheimer’s and this disease has actually changed her into the sweetest person, partially due to her taking sertraline. So, in a turn of events I actually really like being around her now. She has enough…
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App for Medication Reminders
Is there an app you would recommend for medication reminders? Thanks in advance.
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Getting support from family members
My DH is at the beginning to mid part of his diagnosis. Does anyone have any advice on getting children involved in caretaking and better understanding the disease? I am a stepmother to my DH’s kids and they have not been very engaged. Any suggestions would be helpful.
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Memory care
My DW is has progressed very quickly. She was diagnosed with mild cognitive impairment about 2 1/2 years ago and is now clearly in the moderate stages. I'm afraid she is moving into the need for memory care and I really don't want to do that. I don't think she's unsafe, but there are sanitary issues, e g. leaving dog feces…
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Neurophysiology test completed
I have been on this journey for over a year trying to find the diagnosis. My DH has severe sleep apnea (36 times per night) so we have had the cpac for 9 months now. Then they wanted his test done. Did all the blood work and MRI. Nothing noted. it’s been hard because it’s clear he is having trouble with organization and…
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I just had to ask how much time he has left
My husband's doctor has been strongly suggesting that I put my husband in memory care. There are days when that option seems attractive but it is unaffordable. I asked the doctor how long he thinks my DH will live. I was shocked when he said "about a year". DH has mixed dementia, Alzhiemer's and Vascular dementia. He is…
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THC for caregiver
So this may not be for everyone. But I became so desperate for some relief I figured, why not. It had been over 40 years since I had my last puff so I went to one of these smoke shops and got some gummies. I go lightly, just using a half of one. My wife of 40 years is in her later stages and we go through all the stuff you…
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What did the techs just do here?
@ALZConnected Moderator I couldn’t get to posts for a few minutes. Now that I can member’s profile are randomly showing up next to their screen name on their comments including mine. So I have edited my profile to say ‘removed’. Which didn’t help because my profile info showed up on this comment
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Processing The Grief
My dear wife left us three weeks ago after her eight year battle with this evil disease. I have been her primary caregiver throughout, supported most recently by a couple of caregivers for several hours each day. The family and friends were there for us at the end and for the week or so after the funeral. They all must go…
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ALZ Caregiver Zoom
For anyone who may be interested, I created a Zoom meeting for next Tuesday, September 23 at 6 PM EST. I hope some of you see this and will join :) Elyse Caldwell is inviting you to a scheduled Zoom meeting. Join Zoom Meeting https://us02web.zoom.us/j/89572217820?pwd=eBt4xrqL3OB87URTZedzCr1ZZ0okPZ.1 Meeting ID: 895 7221…
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Medicare Question
Hi everyone, My mom was just diagnosed with Alzheimer's (mild) state. She currently has Medicare under an Advantage Plan - United Healthcare. Because of her new diagnosis, we are considering moving her back to Original Medicare in order to have more options for care. Does anyone have advice about this (i.e. having Original…
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My 1st Appt w/ Barrows Neurological
So I went to my first Barrows Neurological appointment I think maybe last week or so. It went very rell. The neru I was assigned to was very thorough, companionate and a go getter. He, and two Neuros in traing spend over an hour with me asking me about 1001 questions most of which I had never been asked. All and all a VERY…
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Just need to talk to my friends (210)
I started this months new thread, 210, but entitled it 110. I tried to delete or change it but didn't work. Maybe this will. The other one is saved somewhere. So sorry for the confusion.
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Alzheimer’s
I was diagnosed with Alzheimer’s about 6 months ago. Is anyone being treated with Kisunla? I started infusions about four months ago. After each infusion I get terrible headaches for about two days.
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risperidone vs seroquel
I've recently only learned about seroquel by being on this site. My DW has been on risperidone for a very long time. One of the side effects is akathisia, or restlessness. Over the last several months she literally is spending 90% of the day on her feet pacing. She can't sit for more than a few seconds and she's up again.…
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Wanting to go home
Does it ever end, talking about going home? DH says "I need to head to the house" or "I need to go home." Please tell me it will stop. It's driving me crazy.
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Do You Ever?
Do you ever get so confused listening to your PWD that you wonder if you are the one impaired? There are times my DH’s view of reality is so different from mine that it makes me question who is grounded in accurate memory of the event. It is hard to describe but his verbal skills are excellent and in tact. He made his…
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How to help mom when dad has the disease
My mom and dad are living in a memory care facility. My dad has Alzheimers and my mom does not. My dad is in the later stages of the disease and has recently begun calling my mom his ex-wife AND has been seen holding hands with other female residents. My mom has been sobbing uncontrollably. She's feeling guilty when she…
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Feeling Guilty
Both my father and mother entered a nursing home a few months ago. I stop by each week to visit them. Its so clear they are unhappy there. They look at it as a huge loss to their freedom. The staff tell them what do - "sit here" "sit there". They are adults but treated like children sometimes. I feel terribly guilty and…