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Mom diagnosed with eo which caused drivers license recall
Hello, I am new to this forum and very much respect all the insight and answers that I have read on the various discussion boards. My mom was recently diagnosed with eo. It was becoming apparent to me with her repeating her questions numerous times, not remembering where items were and minor memory events. She is still…
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Movies about dementia & caregiving — what actually feels real?
Hi everyone I’m a caregiver for a parent with dementia, and I’m still learning how to live in this new reality. Some days are about routines and patience, other days are about grief, exhaustion, and trying to hold on to small moments of connection. Lately I’ve been watching movies about dementia and caregiving - not as…
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What to expect from neurologist appt?
This is my first post, altho I’m sure not my last. My 69 yo husband saw a neurologist in Aug 2025 for memory loss. At that visit, Dr ordered complete labs, PET and MRI & prescribed donepezil 10mg & memantine 10mg. The labs have been completed. My husband was dissatisfied with the Dr and after talking with our children, it…
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Recent passing of my mother
My mother, diagnosed with early-onset Alzheimer’s in 2020, passed away on December 20th at 64 after a long battle. COVID worsened her condition in March 2020, leading to paranoia and violence. Due to state restrictions, we moved her to Florida to an assisted living home. Months later, she contracted COVID and lost her…
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Wife has nothing to do
My wife has ALZ and she has had a rapid change from Stage 4 to 5 in the past few months. She has no interests and is really not capable of doing much anymore. She gets moody and agitated with nothing to do so I try my best to find things. We go for walks in the neighborhood, go to the Mall and walk around, eat lunch out…
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Device to turn off your gas or electric stove if left on
https://fireavert.com/
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First experience with DH hallucination
Hi all, after his typical afternoon nap my husband awoke saying, “ I just saw someone laying right here next to me. “ My DH looked surprised but happy. He then said it was “pretty cool”. And …”I think it was you”- which it was not. Is this what a hallucination can be like? First time so no scary stories please.
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Startled / not able to identify common noises?
Hello everyone. My DH shows signs of being in stage 5, but is able to do most daily care tasks on his own. He is aware he has Alz and often talks about how he's been reading about all the Alz research and how they are coming up with cures. Anyway, I'm curious to know if others experience their person having issues…
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Wondering What’s in Store For 2036
Thinking about all my friends getting ready to party and bring in the New Year while I sit here sipping a single malt wondering what’s in store for me in 2026. Not a very nice thought considering my LO just “graduated “ to what I think is Stage 6. Happy New Year… Really ?? Maybe someone can relate to my rant … it seems…
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Inappropriate Behavior
How do ytou deal with inappropriate behavior such as: Coming to dinner with no pants on —NO PANTS, peeing in the garbage can, eating with his fingers, alcoholism, I don't know how much longer I can put up with this. What can I do?
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Dad calling police in nursing home
Putting my dad in a nursing and getting multiple calls a day was bad enough. Now my dad is calling the police every day from the nursing home. I don't know what to do and I am getting very stressed about it.
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Counting the days
A recent comment by @Jo124c on another thread prompted me to share this poem I recently wrote. The commenter wrote about counting the number of days since their husband died and posting it on a whiteboard as a way of maintaining connection. ********** Sunday, December 21, 2025 Eleven months today (Will I ever stop marking…
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Mom refusing to go to Dr appointments
New here. Mom has ALZ/Dementia and COPD. She is dependent on oxygen concentrator. For years now, Mom has been canceling dr's appointments on the day. Dad, who was her primary caregiver, died in May '25 and my brother and I are trying to care for her in her home. She recently fell and had a gash on her scalp, leading to…
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How to find in-home care
In the last week, my mom's dementia has quickly advanced, and she's having many issues overnight. My dad wants to keep her at home but needs help. Do you have any advice for how to find overnight care, what to look for, etc? We're looking for care in Lake Norman area of NC near Charlotte.
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Bible Verse to Lift You Up 1/1/2026
THE LORD'S GOOD PLANS FOR YOU AND ME Jeremiah 29:11 NIV For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future. 1 Thessalonians 5:16-18 NIV16 Rejoice always, 17 pray continually, 18 give thanks in all circumstances; for this is God’s will for…
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Kisunla infusions- treatment side effects
Hello, My dad is about to start his Kisunla infusions. I am hoping to hear from people whose loved ones or they themselves have experienced some of the infusions what the possible side effects have been. I am familiar with the listed side effects, but would like to hear from individuals who have experienced the infusions…
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Anyone sold a car with durable POA in CA?
I'm so frustrated. Twice I'm failing to sell my parents car in CA with power of attorney. I'm coming from out of state to sell the car so I'm so frustrated and not to mention in both cases I called in advance to make sure the transaction could take place. I'm off the charts irritated. I have struck out with carmax and the…
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End of Year Musings
I want to wish all the caregivers a Happy New Year. I began reading these message boards seventeen years ago this week, in 2008. I had a diagnosis of cognitive impairment not otherwise specified and I feared that I might have Alzheimer's Disease. I read every thread on the two patient boards and on the one caregiver board.…
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One Way to Ask for Help
I am terrible at asking for help. Asking for advice - easy … asking for help - so hard. I mean, I've always been self-reliant. But self-reliant is not going to cut it when things get real around here. So, I started looking for ways I could take people up on their offers, like when they say… "Let me know if there's anything…
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Newly Diagnosed - 77 yo father - Infusion Therapy Experience?
Hello all, Just joined today as we received my fathers early ALZ diagnosis right before Christmas. We are seeing the early signs of memory loss, repeating and difficulty with completing simple tasks. He has not decided if he wants to move forward with the therapy or not. Can anyone who has taken the therapy or know someone…
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Can I Do This?
I wonder if anyone else feels fundamentally unsuited to care for someone with dementia? This is who I am. I have had life long depression episodes that I do my best to manage. I thrive best when my physical environment is orderly. . I do not work well under time pressure. I am introverted (do not seek social contact). I am…
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Just need to talk to my friends (213)
Morning, welcome to December! Carl and Ron, it's 32 here, mostly drizzle but it's icy in Tulsa and snow North of there. Lots of accidents and backups in Tulsa. If you get out today, please be careful. I have no plans to be out, maybe on the front porch to feed the birds. I saw a few on the porch looking for food yesterday.…
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Long distance
I am 52 years old and got my mom diagnosed with dementia and she 2 1/2 hours to three hours away and I am struggling with her declining. She was my best friend my rock and just looking for support and whoever else is out there that we can discuss this.
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Bed Rails
The shopping I do these days. Anyone recently purchased a bed rail they're happy with? I need a little help keeping my DW from rolling off of the edge of the bed. Thanks!
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Tamiflu for lessening flu symptoms in advanced Alzheimer’s?
Im wondering if anyone’s frail loved ones with advanced dementia been successful in taming flu symptoms and avoiding medicine side effects by taking Tamiflu? Trying to make decisions in advance as half the residents are showing flu symptoms.
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Another missing person left an AL facility
Please don’t allow people with dementia to live alone or put them in ALs. They are not watched 24/7. This is the 4th case in the last few weeks. Just because they have never wandered before doesn’t mean they won’t. They can wander at any time. This is so sad! 😭 CLEARWATER – Detectives have issued a Purple Alert for…
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Neurologist
How can I get an appointment for my sister before October of next year? UAB has no openings till then and no wait list to get on. The needs of the patient come first and it is a shame appointments are too far off when a train wreck is about to happen.
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Every Day My Dad Wants to leave NH
I don't know how to stop the insanity. My dad is physically disabled and almost bed bound. He keeps saying he is fine and I should pick him up and take him Home. I can't take this every day over and over. This could go on for years. And each time I talk with him 5 minutes later he forgots starting the cycle over again.
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New here, need some help to keep going
Hi there, I have been caring for my mother who is almost 82 to now for about 3 year Directly and indirectly. It's starting to feel over whelming again and seems the disease is taking another progressive step forward. I'm feeling kinda lost, I'm 42 and have been taking care of my mother in one way or another since my father…
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What to do when they won't move
What can we do, or who can we contact, when our person won't move, not even to use the restroom? We went to the ER a few days ago when my husband complained of pain and could not get out of bed. Once at the hospital, he didn't have any more pain, so they sent us home. Today, he's on the couch and wants a cup to pee in…