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Do delusions end, go away, stop?
My wife has is now having delusions. Most are just odd. But now she has decided that I (a 78 year old) have married a wealthy 45 year old woman in Montana! Yes there is some humor to that, but she is intensely angry with me. My wife is in an MC facility here in AZ. I have no idea what triggered this delusion. Will this…
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FTD Complications
Yesterday morning, around 2:00 am I awoke to a crash sound coming from our kitchen. My 76 year old DW who has FTD and has an inverted sleep cycle, meaning she sleeps most of the day and gets up during the night, had fallen in the kitchen while getting a drink without turning on the lights. I rushed to the source of the…
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Paranoia
My father is remembering that we used to have a kerosene heater in the home…like in the 1980’s. He keeps yelling at my sister because he feels she removed it from the home…now. She tries to reassure him that we had to get rid of it years and years ago due to my mom’s copd. Nevertheless, He keeps yelling at her because he…
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P Tau 217 Score Variability
I had a P Tau 217 test score of .2 in November 2025. Anything over .18 was considered positive. I then had a PET scan with a centiloid score of 46. In late May 2026 I participated in a research trial with Care Access and received a P Tau 217 score of .47, with anything over .18 considered positive. I am very concerned…
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Move to be closer to mom? Or move her close to me?
Hi- these forums have been really helpful, thank you. I’m currently struggling with a new dilemma. I moved my mom into memory care this April, 2026. I see her monthly, and stay for 3 to 4 days at a time at my niece‘s house. I’m realizing I don’t even get to see her very much while I’m there because I’m running around…
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Sibling Disagreements
So after my mom's meltdown against having a caregiver on Sundays, she told my sister she wanted to go live in a home for seniors in Orlando. My sister is now insisting I send her to a home instead of keeping her at home with me. Have any of you had siblings that thought they knew what was best of your parent? How do you…
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Disheartening news on Captain 'Sully'
Captain Sullenberger has been diagnosed with alz. This is just disheartening, and yet he is taking the news with such dignity. https://people.com/where-is-captain-sully-now-11885424 I HATE 'this', and to me, Captain Sully is a true hero. And for now, he is accepting that 'this' has happened.
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a move needed after geri psych inpatient treatment
Hello dear community, Dad seems to be doing better thankfully. Discharge back to his MC is planned for Monday. His memory care has suggested that he may need a smaller environment now. Sounds like I need to add him to some waitlists. The constantly shifting sands of Alzheimer's. I think this may mean that they think it is…
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Advice Needed After Moving My YOA Mom from AL to MC
I posted here a while back when my mom was first diagnosed with ALZ and I was trying to move her from FL to GA to be closer to me. She’s 65, I’m 30, and I’ve been her POA for about a year. She’s divorced, so this has all been pretty overwhelming at times. After a really tough few months, my sister and I were able to get…
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Suggestions for Sundowning and Agitation? Medications?
I am getting stressed out! DH has been Sun-downing for the past several months to the point where he gets into everything, gets agitated, will not sit down and when it comes to bed time he becomes angry. He had a brother, now passed away, who had this issue but his wife did not remember what medications the doctor put him…
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Thoughts on taking Mom for hometown visit?
My mom moved into AL near me, 2.5 hours away from her house, in April. She has adjusted fairly well, only occasionally talking about the possibility of someday moving back to her house, but for the most part, accepting of her current situation (even if somewhat grudgingly). She was notified recently that my dad's headstone…
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Food options
My spouse has been on hospice for 4 weeks. Hasn't gotten out of hospital bed in our living room during that time. Still interested in eating for several hours a day. I put the head of bed up and he self feeds finger foods. Lots of coughing, but his lungs still sounds clear. Lots of food remaining in mouth after eating. Not…
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New to this
My wife was diagnosed with MCI about 5 years ago and was doing ok until recently. Her thought process is deteriorating right in front of me. I try to keep her motivated with walks and thinking exercising but she seems to be fading. I have promised to take care of her and I will be by her side. I have family that helps but…
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His journey is over
Dear friends, I wanted to let you know that my beloved husband, Alan, has completed his journey with vascular dementia and is now safely home with the Lord. Over these past months, I came here countless times looking for wisdom, reassurance, and practical advice as each new symptom and challenge appeared. So many of you…
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Advice
So, I am struggling getting my DH to take his meds. He has decided the meds is what is wrong with his brain. The meds are the only thing keeping him functioning as well as he is and he is starting to decline a little faster than in previous years. I don’t argue with him or try to reason with him, but I just say wait until…
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Prepared for so much EXECPT every new symptom my Dad has.
My DD stage 4 has been doing really well. He adapted to the lifestyle changes, the MIND diet. His MRI & bloodwork results are encouraging. He wanted to take a trip with me to see my daughter in Law School (it’s always been his dream to have an attorney in the family) we live in PA she is in IL. The plan was to fly out…
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NYT: Minimal Comfort Feeding for late-stage patients
A controversial issue: "Some consider the regular feeding of late-stage dementia patients to be nonnegotiable. Others see it as extending life unnecessarily." Shared gift link.
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Screaming into the Abyss
I am pretty new to this site so I hope if this post is not appropriate a moderator or one of you guys will let me know and I will delete it or have it taken down. So… A while ago when this journey was newer, to relieve pressure I would go into my shop, shove my face into a folded up hoodie sweatshirt and scream until I was…
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Hyperbaric Oxygen Therapy
I need your input, please. Hyperbaric oxygen therapy has been recommended for my MCI/Alz. I was diagnosed on 12/01/2025. It is mild at the moment. Please let me know if you or a loved one has tried this and whether or not it was helpful. Many thanks!
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Stage 5 Sleeping
Hello Dear Friends, My DH is stage 5 and has been sleeping more than usual! Would this be that he is going into a different stage? He talks alot during his sleep. I try to wake him up and he would rather sleep. Any recommendations or thoughts?
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Anyone know how care facilities do this?
Does anyone know how nursing care homes, care facilities,etc handle a patient who refuses to take their meds? What methods do they use? Thank you.
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How to introduce temporary care giver to my mom?
It has been two years that we brought mom to live with us who is diagnosed with Vasular Dementia and Alzheimer. I am her primary care giver who needs some break once a while. What is best way to introduce a temporary care giver? We tried once for only 2 hours but she got so upset that we regret the experience. Need…
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poignant question
We had a scare recently. Sometimes we don't know whether what is happening is mental or physical. She was feeling like her leg was underwater, her feet were cold. It was very disconcerting. I suspected it was mental because the symptoms were so odd. The doctor agreed with me. We just had to let it ride. Her voice is…
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Light therapy
Does anybody have experience with light therapy. I am looking to purchase a 40 hz therapy light and a 10000 lux light box for my husband. I have read good things about using light therapy, I was wondering if anybody has had experience with this
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Negative Nellie here
My therapist wants me to journal something positive or a good thing that happens to me each day. I’m finding that difficult. Today I went to the dentist to have my teeth cleaned & checked. The dentist found a cavity. It’s the story of my life anymore. I really cannot find the good. My husband’s memory lapses are…
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Next steps
Hello, I am new to this group. My mother was recently diagnosed with Alzheimers. In the past month her condition has rapidly worsened. I have asked her neurologist about support and what steps to take next and she referred me to this website. Does anyone know what the next steps should be if my mom has become so paranoid…
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Suggestions for Getting Mom to take her Meds
It's definitely not an issue of compliance—mom is very agreeable about most things, all things considered. It's much more her forgetting. Just appealing to the group to help brainstorm a solution.
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40Hz Light & Sound Brain Stimulation
I have been doing a lot of reading on how 40Hz Light/Sound Brain Stimulation can help Alzheimer (and other dementia) patients. This approach was hatched at MIT by a pair of MIT professors so there is science behind it. Two start-up companies are doing significant trials with their 40Hz products. The most prominent, is…
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Late middle stage dementia
I need some advice about my GF of 13years. My GF's dementia has been getting worse over the last 6 years. We live in Florida. She is at the point that she didn't recognize me when I drove up to her in my golf cart. She also didn't recognize my son last month. She has left at least 1 pot burning on the stove. She has gotten…
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New to this site
My husband of 40 years (he's 85) has dementia and recently the sundowning started. It is so frustrating and I don't even know how to respond. He thinks our bedroom is a hotel, that we are not in a house, that we don't own the house, etc. He is so confused at night. He doesn't know night from daytime. :(