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Love and Loss in Alzheimer’s
My Journey with this horrible Alzheimer’s disease is coming to an end now that my sweet wife of 55 years, Linda, has died on May 31st, 2025. I have learned so much about how to navigate this process over these past few years and am grateful to each of you who has shared their thoughts, experiences and advice. My life will…
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any experience with short term use of sedatives?
My DW has always been pretty good with air travel. Our last trip was December and it went fairly well. However things have really shifted the past 6 months. Any trip outside the house is now a very frightening experience. I am having trouble imagining her getting through our big city airport experience in her current…
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Hospice diagnosis
In reference to the lady I care for. I have a concern with conflicting information. Medical records from hospice Dr states type 2 diabetes. Nurse from hospice stated she was not diabetic. I mentioned this to her son and he had zero knowledge of his mother being diabetic. Should I press her son to get answers or am I being…
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New Caregiver Advice Needed
Hello - I'm new to this caregiving role and am navigating these responsibilities on top of raising 2 young kids, looking for a new job, and all the other things. Where are the best places to start in seeking help and locating resources? My mother currently has a pseudodementia diagnosis and I'm wondering if anyone else has…
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Breathing a little easier
I am breathing a sigh of relief for a change. A month ago I placed my husband in a very small ALF only housing up to 7 residents. Right now they have 4. I placed him after a stay in Geri Psych. Today I was told he will be getting physical therapy and will be attending an adult day care a couple times a week. This will keep…
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Transistioning to Memory Care/Assisted Living
Hello - my mom was diagnosed with vascular dementia/alzheimer's last spring - but she had been having memory issues for a couple years now. We finally got my dad on board with moving them into an assisted living center in December of last year - he was older and falling quite a bit himself and we felt he needed more care…
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Now or later
I’ve got a question on how to handle this situation. My DW has EOAD. She is in late stage 5 / early stage 6. Her father passed away about 9 months ago. My DW now cries daily saying she wants to see her dad. Today I received news that her mother has been told by doctor that she has only 6 months to live. Her body is full of…
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I’m going crazy out of my mind!
My DH is at the point where finding ways to fill up the day are getting excruciatingly difficult. He no longer is interested in puzzles, which used up a couple of hours a day. He no longer takes care of the yard which gave me a little time alone. We go for walks but two problems have come up with that activity - 1) it’s…
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Infusion tomorrow
After much discussion regarding the risks, my husband decided he wanted to do the Leqembi infusions. It has taken a month but we finally found an infusion center that accepts our secondary insurance. Tomorrow is his first infusion. I know he’s nervous and so am I. The side effects are super scary, but through our friends…
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Home Renovations with LO
My DH was diagnosed with mild cognitive impairment and is exhibiting signs of further decline (no short term memory, repeated questions, etc. etc.). We have been planning/dreaming of some substantial home renovations for many years and finally started getting estimates from contractors, including adding a first floor…
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SOS/Aggression
I’m sending up the white flag and in need of some direction please My father currently had MS dementia. He’s been exceedingly agitated and angry lately and lately and he acted out against my mother tonight and I’m panicked I don’t know what our next steps are ; I obviously do not want this to occur again - nursing home or…
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New here. Overwhelmed
I’m caring for my dad, 84. He’s at home. Still able to walk, bathe, use the bathroom and dress by himself. He gets so depressed, though. Just hangs his head almost to his chest. He often thinks we are at a home that looks like his, but it isn’t. He is getting more and more assertive when talking to me. I just needed to…
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Therapy, counseling for Alz caregiver
What's the best source for me to use to find a therapist/counselor who's familiar with caregivers for people with dimentia? I don't need it yet, but want to start before I do.
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Blood test
I am sure many of you have read about this, but for those who need a diagnosis, there is now an approved blood test for Alzheimer's that doesn't involve a spinal tap or PET scan. Alas, I do not think Medicare pays for it.
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parent telling me mean things about sibling
Hi all, first time poster, I've had this come up recently and wondered if I'm the only one. My sibling and I each equally care for our parent, several times, my parent with dementia will say to me they prefer me to my sibling, this really breaks my heart because my sibling does so much for my parent and always, our whole…
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Permanent catheter with dementia
I’m a caregiver for my mother. She has early onset dementia that she’s had for about 10 years. She does fairly but has a lot of other health issues. One of those being she has issues with her bladder. Her urologist is wanting to put in a catheter that would stay in all the time. I’ve never had any experience with a…
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Death Rally?
Update: I'm sitting here in my kitchen after bringing my husband home on hospice almost a week ago from MC. He's now on day 31 of not eating anything and day 15 with no meds. He wasn't really drinking much for several days and all of a sudden over the weekend, he decided he was thirsty. He consumed about 3-4 cups of fluid…
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Service dogs for people with Alzheimer’s article
https://www.nextavenue.org/canine-companions/ I came across this article on the website for the National Council of Dementia Minds My wife has an interview in June with a service dog organization and we’re hoping to get one soon. We’ve been volunteering with the organization and having a great time so far.
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Stages of Alzheimer's
My mother is 82 years old and was officially diagnosed in December of 2023. My sister and I had noticed cognitive impairment for at least 4 years before we managed to get her tested, due to her being in denial. As she progressed, we were "Google Doctor's" trying to get all the information we could. Her neurologist has said…
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My husband has MCI and blind on rt side.
He’s has Mild Vascular Neuro Cognitive Dementia. I’m exhausted. And I Cry.
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Taking medication in AL
Moms Al does not watch her take her medication. They set it on the table and leave. I was told when she moved in the it is policy that staff must watch residents to make sure the medication is take. This was important to me since I found stray pills all over the floor in her home and many more in old purses that she had…
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Angry and Jealous
It’s been 5 years now since my DW was diagnosed with this terrible disease which I think is worse than cancer . She is physically very fit and looks like a 60 year old, unfortunately every single day I wake up to a new change … and not for the better either. Her memory, temper and aphasia are all getting worse . It is so…
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Mom is constantly angry with my sister
My Mom was diagnosed with Alzheimers in the fall of 2022. She is understandably having a very hard time with the loss of her financial independence and is constantly accusing my sister of controlling her. We have POA and I tell her we're making the decisions together, but her anger is focused on my sister, who is the…
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Infusion #10
Tomorrow afternoon is Leqembi infusion #10. You'd think by now I wouldn't be so anxious about it. I've been taking anti-anxiety medication since the beginning, but ANXIOUS I am! I have all these racing thoughts, feel everything and nothing all at the same time. I know how that sounds, but it's the only way to describe it.…
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Update on Jo C
I’m reaching out on behalf of my mom, who most of you will know as “Jo C”. She hasn’t been online for a while, and I know that some in the community have been wondering how she’s doing. I’ve always respected her privacy here, so, while I’ve technically been a “member” for about 14 years, I’ve only ever stopped by quietly…
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Cataract surgery
Mom is probably to the end of stage 4. She was diagnosed with vascular dementia 2 years ago. I was told average life expectancy is 5 years. I know that’s just a rough number. She has diabetes with edema in her legs. I don’t think she could follow a storyline to read a book. She is able to choose her meals off the menu at…
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Broken bone
I have known two people with stage late 6 early 7 dementia that have died about a week after breaking a hip. I don't why, if it is the shock, or the mind just can't handle that much, or if it was just a coincidence, also is it just the hip or all fracturs. My wife broke her upper arm yesterday so I am just wanting to hear…
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My DH thinks there are four of me living in our home.
DH is convinced there is a group of us (his wife and her imposters) living in our house. Do any of you have a partner/spouse/LO who suffers from "imposter syndrome" or Capgras Syndrome? I am new to the world of dementia/Alzheimer's. I don't even know if what my DH has is dementia or Alzheimer's. What I do know is that my…
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How to cope and help?
My family believes my father is struggling with early onset of dementia. He is very stubborn and does not like anyone telling him nor suggesting on what he can or cannot do. Always has called the shots and at 84 he is still driving his tractor and trying to farm. My mother lives with him and all of his kids me included are…
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Delusions
I am supporting (or trying) to support my brother and SIL. The latter has been diagnosed with Alzheimer’s. I believe the onset was at least 4 years ago when I noticed memory loss. It was not officially diagnosed until 2024. She has always been a very anxious person but more so now. Medication has largely controlled the…