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Newly Diagnosed Physician
I am a 60 yo newly diagnosed with Alzheimer's. I am a retired Family Physician who noticed issues approximately 18 months ago and was diagnosed with MCI. I stopped practicing medicine and was given disability benefits. I am fortunate to have had that option but despite all my expertise the process of getting a definitive…
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Overwhelmed? It is the loved ones of those with Alzheimer's who bear the greatest burden.
It is the loved ones of those with Alzheimer's who bear the greatest burden, and often care for them at the expense of their own well-being. It is common for family members and loved ones to find themselves thrust into this nightmare completely unprepared and ill-equipped for it. Sadly, much will be damaged or completely…
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Medical Marijuana
I am the sole caregiver for my wife. Entering stage 7. RSO, gummies, or even flower. Will be helpful for anxiety of the patient and stress for the caregiver. I my case, the use of medical marijuana has added a dimension; a depth within myself and a enhanced relationship and empathy with my wife. Don't know how my wife or I…
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Intimacy.
Moderators. R we allowed to asked questions about intimacy? The issue was I was showing my wife of 45 years, and I became visibly aroused. She got highly agitated and started filing her hands etc. I was able to get her out of the shower and calmed downed. this has never happened since she has had dementia. Has anyone else…
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From the NYT: A Different Type of Dementia Is Changing What’s Known About Cognitive Decline
https://www.nytimes.com/2025/11/28/health/late-dementia-alzheimers.html?unlocked_article_code=1.5E8.jeiC.EuBZiHfxb5a8&smid=url-share An article about LATE, a recently recognized form of dementia.
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Grief Differences Among Family
I wanted to reach out to others here for feedback. I struggle trying to help family understand why their grief for the loss of their mother or grandmother looks so much different than the overwhelming grief they see in me. I know each and every one misses her terribly, so it is definitely not because they cared less or…
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cant do it anymore
I have finally reached breaking point to look after my dad anymore too many obsticales by his ex wife who is involved . if i walk away am i a bad person
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Question
What do the two icons in the upper right and the bottom corner of posts mean? How do I comment on a posts?
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Thank you all who had time to listen
I just want to say thank you to all of you who listened to me earlier in the year, as a new caregiver, to my husband who was diagnosed with HF and Vascular dementia in January 2025. He passed away on Friday, 11/28/205, peacefully. The dementia took it's full course and not the HF. He blew through Stage 3 to Stage 7 in 8…
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Agitation
My DH has recently had episodes of being delusional and gets agitated because he’s so confused. Does anyone know if there are medications that are good for occasional use in this situation. How about THC gummies or other varieties? Any input is appreciated.
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So instead of carrying grief…carrying my love?
I saw this on another site. it spoke to me. I have been trying desperately to leave the grief behind. Maybe this will help. I’m leaving you here. For one night I want to forget. And maybe smile. Grief: You can’t leave me behind. I’m tired. You are heavy. Sometimes you are just too much to bear. Grief: I am a part of you…
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Alone, A New Realization
It came to me overnight when, as is often the case, I found myself awake way too early. Thanksgiving came and went with dinner at one of the daughters home with most all our family and my brother's family attending. I made it through but, as i suspected, the world fell apart afterwards. I felt lost among all my close…
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His Battle Has Ended
The love of my life, my DH Joe, lost his battle with dementia on October 31. He was diagnosed 15 years ago and progression was slow until the last year when he was in memory care. It broke my heart to move him there but it got to the point where I couldn't keep him or myself safe. Hardest decision of my life. In Aug/Sept,…
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Whyyyy!!!?????
I can't do this. I lost my love Luis (46 yo eoa) just yesterday morning but it feels much longer. I cried going to bed last night thinking what do I do tomorrow? He won't be in the bedroom when I get up, with his legs up in the fetal position cycling them back and forth. Who is going to watch me get ready in the morning…
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Mom was newly diagnosed
my mom was newly diagnosed , and she has lost the ability to keep track of the day , dates , appointment times. She will ask multiple times daily what time an appointment is , or what is the day /date even though it’s a week away , and even wake early in the morning & start to get ready saying I’m picking her up to go. She…
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Using an agency for respite
I have two caregivers who come each week, 3 hour shifts 3 times a week. I don't think they are available for longer periods as they have regular schedules. I would like to take a 4-5 day break after the holidays —maybe go visit my sister in San Francisco. The agency I work with has sent nice people so far, but for a break…
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Advocating for my dad
My father's memory has been affected by untreated sleep apnea and cholesterol that has lead to moderate chronic ischemic changes along with a diagnoses of late stage Alzheimers. When he was first admitted to memory care, he was very upset that my stepmom wasn't visiting and she mislead him to say she was sick and he was…
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Siblings lack of understanding
My DH was diagnosed with AD. He told his siblings and encouraged them to look for information about the disease. One sister is in the medical field. One brother is an educator. Another sister worked with individuals with disabilities. There is one other brother and one other sister. They do not understand their brother's…
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Refusing UTI treatment
she developed UTI and medical team gave her antibiotics without consulting us although she has signed medical directives refusing heath care treatment to prolong her life ,how could UTI be treated without antibiotics and let life take it’s course (don’t want her to suffer ) Would that be a good way to go if that was her…
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Functional Cognitive Disorder
I have a spouse that suffers with this and I am learning how to navigate this process with him. How can you help a spouse learn new things, but also want to make sure you have the patience to help them during the process.
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Is sending a letter to mom with the truth a bad idea?
my second post here. I was light on details the first time. Mom has been in MC for about a year after being diagnosed with dementia. I was concerned about cognitive decline but ignoring it. She has had a lifelong distrust of the medical system so had not had regular medical checkups to monitor anything. There is also some…
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Just need to talk to my friends (212)
Time to go to bed and watch tv a while. It's been a long day. Hope all of you have a good nights sleep. Thought I would start 212 while I thought about it. Good night.
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Bible Verse to Lift You Up 12/1/25
"FOR WHEN I AM WEAK, THEN I AM STRONG” 2 Corinthians 12:6-10 New Living Translation Paul's Words “If I wanted to boast, I would be no fool in doing so, because I would be telling the truth. But I won’t do it, because I don’t want anyone to give me credit beyond what they can see in my life or hear in my message, even…
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Hospice care
I haven't posted anything for a while, but if anyone is considering hospice care I suggest you pursue it. My wife is in memory care and has had several issues. I think the hands-on care givers are doing a good job, but the facility nurse is out a lot and very hands off. She directs the staff based on reports rather than…
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Moved into Stage 4
DH still works Sudoku. I think he will forget my name before he fogets numbers. What has changed is the frequency of wrong word substitution, stopping mid sentance to remember what he was going to say, or stopping to try to remember what "that thing" is called. A month ago, he was having an occasional "bad day" and then 2…
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My Love is home.
Hi friends, My loving partner Luis of 6 years (46 yo eoa) passed away this morning peacefully in bed with me by his side. I am okay as this is all bittersweet. I am sad as my love is gone and I shall move on with my life. I am angry because this disease is horrible and robbed us both of growing old together. I am relieved…
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The list
Mom moved to a nursing home about 4 months ago. She is doing very well. Her memory is not bad and she can carry on what feels like a very normal conversation. Her move to the nursing home was a disaster (my brother thought she should decide what to bring). She has mentioned several times that she has things she wants from…
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Cold Intolerance
I tend to run hot, all the time. My DH has developed cold intolerance. I have managed to put up with the temperature here… he wears jeans, socks, slippers, a t-shirt, and a fleece jacket around the house and complains of being cold. I wear a tank top and short pants, and I am burning up. We keep the thermostat on 73…
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What do you do with your big feelings?
What do you do to keep from exploding inside? (That’s an exaggeration of course.) I’m at the beginning of this long ride and I don’t know how you all do it. My DH keeps forgetting things we’ve agreed to, like replacing our old couch, or planning a trip to visit our grandkids, etc. So, we have the same…
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Thankful
On this Thanksgiving Eve, I wanted to say thanks to everyone who contributes to this forum. I continue to learn much from each person who shares here. Just the act of sharing helps each of us feel less isolated on the caregiving journey! I appreciate all of you. Anyone want to share some caregiver-specific reasons to be…