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Hygiene issues
my wife was diagnosed 4 years ago initially with FTD but turned out to be Alzheimer’s. I’m managing things ok as I will get a caregiver one morning per week to start and then increase as warranted. The problem is that she refuses the bath or shower, was her hair and brush her teeth. Many times she ends up sleeping at night…
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wants to go home
gets angry, thinks people are out there to kill him or he wants to kill himself. This usually last for several hours. Sometimes he falls asleep. when he wakes does not remember what he said. Every day wants to go home, we are in our home and have no other place to go. So far he has not tried to hurt self or anyone Today -…
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New and overwhelming
Hi everyone. I’m new here and am grateful to have found a place where I can talk with other spouses who understand what this is like. My husband is 74 and I’m 68. We’ve been married for 43 years. He was recently diagnosed with mild cognitive impairment, but over the past few weeks we’ve begun experiencing some changes that…
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Dementia/Memory loss
Hi, I am new here. I hear because I know my mom has been having some congnitive decline. She has had afib (controlled) for maybe 9 years and sees a cardiologist yearly for a check up. He made an appointment with a doctor to establish her as a new patient and oddly enough she was willing to let me go with her. I wasn’t…
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Finding engagement for mom
How are you guys keeping your parents engaged? I cannot watch my mother all the time and I find that she needs constant interaction.
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Neuropsych Assessment/role in diagnosis
Husband with recent diagnosis of mild cognitive impairment based on assessments given by PCP & neurologist. Definitely struggling with executive functioning, short term memory and word finding/communication. MRI showed nothing out of the ordinary for his age. Did make note of a gilial scar on frontal lobe but indicated it…
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Alone with no visitors
My DH is transitioning between stage 7 and stage 8. He has mixed dementia and is receiving hospice care. He is now in a memory care facility. There are at least two other people in his section who are also dying. I have been with my DH for 6 to 8 hours each day for a week now. So far I haven't seen anyone in his section…
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My Mom passed away October 5th 2025
Hello, I dreaded the day I would be on this side of the discussion title. It's been two months and I am in unbelievable physical pain, I resigned from a easy job, am in debt, no insurance, searching for a new religion, I have fear, terrible anxiety, had a few panic attacks, am confused, hated people and do not trust…
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Changing Neurologists
We are seeing a new neurologist tomorrow and I'm very nervous. My husband was diagnosed a year ago at age 65. The neurologist was saw wasn't very helpful. Just said take Aricept. We received a letter that the doctor went into research and we needed to find another. Any suggestions on what questions I should ask? The…
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Dietary Changes
Hello! I have found this site very helpful thus far, and am hopeful for any advice regarding meals. My DH is late Stage 5 and moving into Stage 6 (DBAT). Before AD, he had a vast palate and would eat anything I cooked. From simple to complex flavors, textures, tastes, etc….and I have always enjoyed experimenting with…
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Later stages
Mom moving into late stage. She’s been on hospice over a year (gets really good care!) and is not depressed or anxious. But she is progressing. If I bring treats I now sometimes (often) have to feed them to her. It hurts to type this. Any advice on getting through these layer stages? I can’t just check out, but being with…
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Kisunla for homozygous patients
First let me say how grateful I am for all the people here sharing there very personal journeys with this insidious disease. Having browsed the the discussions as a non-member, I can see the fear and confusion, along with the empathy and desire to help. I am having trouble finding any personal experiences with people using…
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Trying new things
Long post, sorry. It has now been one year since my husband passed. I do go to a grief support group. Today I went to a book club for the first time. It was also the meeting's first session. They went around the room and introduced themselves and a bit about them. They all spoke of their spouses. I was the only one that…
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How early should spouse assume all driving or financial matters?
I sometimes wonder if I took on my wife’s usual tasks (driving, finances, etc.) too soon in an effort to avoid seeing her have an accident or to keep finances becoming too complicated. If she’s comfortable with me doing both, should I just continue, or should I encourage her to return to these tasks with a limited role in…
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Moved to NC, 2640 miles one driver, DH with VD and 2 dogs!
My son and his family live here and now so do we. I felt the window of opportunity closing rapidly. DH's mobity is declining rapidly. Difficult to walk with a walker or stand independently. He is still capable of understanding and thankfully was able to sign the papers for selling and buying the homes. I did underestimate…
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Just a SCREAM day
Dh with mixed dementia didn't sleep well last night. Was incon of stool today, which is new, and is very confused Its just been one of those days. So I'm screaming internally to you guys Hope I didn't bust your eardrums Thank you
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too early?
Is it ever too early for placement? I feel like we could go another year caregiving at home but what is the point? My oldest son (35) has lived with us for 4 years to help practically and financially. My DH is 83 stage 6 & I am 54—-bankrupt & unemployed after 4 years of full time caregiving (and a lifetime before that of…
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Decompressing after a tough visit
I guess all we can do is take a deep breath and exhale, right? I visited my mom yesterday. She is in Memory Care. I put my game face on. I went through the locked doors she now lives behind. I walk through the community to my mom's apartment, and as I do I smile and wave at other residents I have come to know and say their…
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I ran across this. Wanted to share it
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I'm New and Looking Forward to Meeting and Sharing With You.
Hello everyone. I am new to this group and board and have decided to become, I hope, a part of your community because I have been dealing with the Parkinson’s dementia of my Life Partner (my LO = Loved One) now for several years. I’ve thought for quite a long time that I would love to be able to attend a Caregiver’s…
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Paranoia
Hi I'm on here. My partner of 20 years has was diagnosed with early onset alzheimers 18 months ago. We went awy on a short holiday to greece last week and it was a nightmare. My partner accused me of having sex with other men in the hotel toilet.
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In home support
Hi, I am looking for support on finding in home care for my dad once or twice a week and how to navigate it financially. He is not on Medicare and early onset. My parents also most likely would not qualify for free services but cannot afford most private pay places. I am trying to find something in the middle near bucks…
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has anyone experienced this?
Generally, when I post it is not positive. For about a week my mother has been cognizant, has not been frantically looking for either "mother" or her deceased sister. When that gets too intense we have had to medicate her. She has only gotten up once or twice during the night. Is not sleeping 20 hours a day. It is almost…
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Not sure where to start in the Forums
Hello, My name is Mark. My mother is in Stage 4/5 (my assesment based on a Behavioral Assesment Tool from Dr. Tam Cummings). My mother lives in Texas and lives with my little sister. I live in Virginia and my other sister (middle) lives in Washington. My mother and sister have lived together for 30 yrs and very…
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How do I help my dad with sleep and sundowning
How do I help get my dad back in the right sleep pattern when he is sundowning. All week he is has been going to be at 10 pm, and waking up anywhere between 1230 and 430. He is not getting good sleep or quality sleep as far as that goes. He has vascular dementia along with a slew of other health issues.
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Discussing dementia with a PWD
A relative of the PWD is a caregiver for her husband who has dementia. PWD asks how they are doing, and I stated what's going on, and the PWD was sad, saying the caregiver must be under so much stress, not knowing how it will progress, etc. — all true things that we know of. But given anosognosia, there's no realization…
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Lower asset/lower income parent with Alzheimer's
My parent was diagnosed with Alzheimer's a couple of years ago. They live with our family, and with small children we are stretched very thin and increasingly concerned about safety/ability to care for the parent. Parent worked low income jobs and social security amounts to less than $2k per month; they have lifetime…
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Are you taking Leqembi while on Eliquis?
It has been recommended that I start taking Leqembi. I am taking Eliquis for Atrial Fibrillation. I have been told that I cannot ever stop taking the Eliquis. In my research I have read that this combination could lead to a fatal brain bleed. Obviously, I am very concerned! Any input will be greatly appreciated.
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Do we Go?
A relative has passed and my questions is, do I attempt to take my precious wife to the funeral? It will be difficult as she does not get around very well without assistance. She has become very weak over the past months. I am not sure how this will affect her and is it worth the possible stress on her? CWB
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What stage he’s at?
as far as I know hallucinations are not present, my husband will get the mail multiple times if I let him, the day we are in at present are validated. We’ve been to Labcorp, the Neurologist, and SimonMed numerous times and we were never told if this is Alzheimer’s or dementia. My husband was told he carries the Alzheimer’s…