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Talking with others in early stage dementia
Talking with others in early stage dementia
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Almost died
Good evening, A little over a week ago, on Jan. 9th, my Dad (pwd) went to the ER from memory care after a fall (complaint of head and hip pain). He had had pneumonia in Dec. and still had a bad cough. Turns out he had bronchitis and pneumonia again, and he was put on antibiotics. The CT scan done on his head didn't show…
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Is Memory Care inevitable?
My DH is stage 6. So far I’ve been able to be the sole caregiver. Family sometimes gives me a break. He won’t cooperate with in home care, just follows me everywhere trying to get away from them. Thank God for meds that keep him agreeable (mostly) He is incontinent and at times bowel incontinent. The underwear from…
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DW recently put in MC facility
My DW is 82 , and has middle stage Alzheimer's. After being a 24/7 caregiver for 2 years, I had to place her because I just couldn't do it anymore. She has been there for 3 months now. I visit her often, and she knows who I am and that we are married. However, she seems to be attracted to several men in the facility, and…
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Packing up to go to other home
My DH is packing up the car to go to his house. When I ask him where that is, he says our address. I have him look outside to see the neighbor's house, the street we live on, the yard, etc. He will agree this is the address, but there is another place. He has been going in an out so much the house is freezing! ( it is 21…
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Daughter to Mother with Dementia, just moved from the Lebanon to Los Angeles
My mother, almost 79, was diagnosed in November 2020. We've had to move out of our home of 20+ years in order to make a new life here. The move has been really hard on both of us, especially her. My dad had to stay behind until he can get his visa to move in with us. Her body is suddenly failing to do simple things, she…
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My mom is declining
Hi everyone. My mom is declining now and I am so afraid. I knew eventually this decline would come but I am still struggling so bad with it. She is still awake and eats some. But she is not drinking much, if anything, at all. She doesn't talk or walk anymore. She rarely smiles anymore. She was admitted to hospice 3 months…
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End stage - mom
Hi. My mom has been non verbal for the last year or so. She is end stage. Puréed food, bed/chair bound, help with everything. The past few visits she’s been trying to say something. It’s just weird. Anyone have this happen? I am not sure what to do, if anything. TIA
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Kisunla Treatment
I would like to speak to someone who has taken the Kisunla ( elie lilly) infusion treatment or is currently taking the Kisunla treatment. I have just been qualified by Doctor Joseph Cheng to receive this treatment to reduce the amyloid plaque. and before I start the treatment I would like to speak to someone who has taken…
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From Maybe to Reality
DH in ES thought. Then, several episodes of mis-rememering, including asking our adult son if he remembered a certain episode from his (DH's) youth. For the past 3 weeks he has been just fine, more or less, just the occasional lost word. In my mind I knew he still had Alz, but it just seemed like , well, maybe it will be a…
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Concerned,not sure where to go from here
My mother has dementia and I think it is in her last stage. I was wondering if I could find some information to see where we are at. I know that everyone is different in regards to what symptoms/behaviors they go through to determine what stage they are at, but just starting this week, actually, about 2 days now, she will…
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Looking for Support: MCI Diagnosis with Normal Test Results at 51
Hi everyone. I'm looking for others who might have gone through something similar. I'm 51 and recently received a diagnosis of mild cognitive impairment (MCI) after experiencing memory issues, headaches, and possibly some minor balance issues. Given that my mother has Alzheimer's (I'm her primary caregiver), this diagnosis…
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Leqembi treatments for early dementia
Hello everyone. So my neurologist is sending me to a specialty clinic that does infusion Leqembi treatments. I was wondering if anyone here has been on it and if they have had any problems with brain bleeds or brain swelling. I'm trying to learn as much as I can about it so I can ask the right questions to the specialist.…
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step down symptoms of vascular dementia
Hi, my mom was diagnosed 9 years ago with vascular dementia. She is currently 92. Does anyone know the stages or steps of this disease? Just trying to better prepare myself. I am her only caregiver.
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How can I get DH to sleep at night?
Hubby would probably be a wanderer if we still lived in a large house rather than a condo. He also needs my assistance getting around, even with a walker. So every night we're up and down going from the bed to toilet, to bed, to living room... he wakes me 8-10 times a night. Sometimes he does need to urinate but usually he…
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Paranoia
My wife has become paranoid. She has accused me of stealing her mail, and is convinced that our daughter has stolen bed pillows and jewelry from her. I’ve tried reasoning with her, but to no avail. Any ideas on how to deal with this?
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Alcohol and guns
Hi, I am new to this community and have been desperately trying to find a support system while caring for my partner. we were both widowed 16 years ago when we met. Timing was perfect and we have enjoyed many years of companionship. 3 years ago I notices he could not retain complicated problems. In August he was diagnosed…
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When you have to correct LO
My LO is certain her home is across the street and will head that way from time to time. The only distraction is to offer a ride home. Works. I know we are not supposed to correct lo’s, but how can you tell your LO that that house and others are not their home with out creating a stressful situation… Kind of an odd…
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Spinning our wheels
I got a call this week from a speech therapist my mother saw a year ago. She said the staff at the MC facility had asked her to renew her services with my mother and that she sent me paperwork via email to sign that would allow her to begin a consultation. There is a copay agreement. Apparently, the staff was having…
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MCI-- treatment with Lecanemab or Donanemab
This is my first post. I am a caregiver for my DW who was recently diagnosed with MCI with an APOE 3/4. We will be having an important discussion soon with a neurologist who is going to present us with the two possible treatment options of either Lecanamab or Donanemab; but we are quite fearful of the possible negative…
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MCI Diagnosis
My DH has been diagnosed with MCI after a fairly brief evaluation from a neurologist (with review of his MRI and bloowork). It appears that this is an umbrella term that could mean any number of things, so I'm confused about his actual diagnosis. I'm contemplating getting a more detailed neuropsych evaluation but hear that…
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New here and trying to start vascular dementia discussions
Hello, I am FaustinaMary and am hoping to learn more from you. My loved parent is supposed as suffering from vascular dementia after an extended bout of rapid ventricular response. I am hoping to begin a subgroup here for those associated with "Vascular Dementia". Please join it for discussions if this pertains to you,…
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Excellent Handout Packet: dementia, stages, CGs, actively dying - Tam Cummings
(Sharing here as well as Spouse/Partner CG Forum) - Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours. I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging…
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Sitting Vigil
I am sitting vigil tonight at DH's bedside. It took three tries to insert a new Foley catheter this morning. Each insertion in recent months had been more and more difficult. He began bleeding out. He has an enlarged prostate and a latent tumor that he's had for 23 years. He may have a new tumor, too. He has lost a great…
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I Think It's Time
Not for MC, though that will be coming soon. Time to quit my job. I thought I could hang in there with it, but I simply cannot do it. I find the job so frustrating — a super dysfunctional org with lots of disrespect thrown around. And, I'm an utter wreck from feeling split every hour of the day between trying to keep some…
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They are still there
My wife was formally diagnosed with early onset ALZ in 2018 at age 61. Her symptoms had started 2-3 years earlier. She was enrolled in a research protocol in 2019. Unfortunately the disease has marched on and now she in in a memory care facility with late stage disease. It has been a difficult journey. One thing that keeps…
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Bumbly words in communication
Dad is really at a point now where his words are intelligible choppy and i often cannot even tell what he is saying. I have to guess at everything and I can tell by how he looks at me, that I have gotten it wrong. How frustrating it must be for him. Does anyone have tips on how you coped with this in your lo...maybe you…
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Cost of Memory Care
If you have a LO in memory care or you've done some pricing please post the prices you've found/paid and whether Medicaid or Medicare cover any of the cost. I am in Massachusetts and the average cost of memory care (according to Google) is $8,500. I am sure you can pay much more. Thank you!
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Catheter in RCFE or MC
I've searched posts on catheter issues…and i'm concerned. (i'm a new member). Dad is 82, slow advancing prostate cancer, ALZ and probably undiagnosed Parkinson's. He is in AL but since mid dec we've hired 24 hour care due to fall risk in AL. We have plans to move him in one week to a board and care. Stage 4 or 5 of ALZ. No…
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white matter detected on my brain...
Good evening peeps, I saw my neurologist today and they found some white matter on my MRI which he said could account for my falling, balance problems. He wants to see me back in 3 months after I have another PET scan. He also wants me to go to the Cleveland Clinic Lou Ruvo Center for Brain Health here in Las Vegas. He…