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I'm new here
Hi, i'm a caregiver for my husband that was DX with early onset Alzheimers in 2022 at age 52. I work full time from home thankfully and am excited to have support from others that know what i'm going thru.
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MCI diagnosis
Hello. I was diagnosed with MCI a few months ago. I'm mid 50's and have shown symptoms for the past year which I initially wrote off as normal aging. My PET scan showed structures in my brain that are interfering with my short term memory. A couple of weeks ago I had a lumbar injection of medication. It's been a long road…
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Please remind me I’m not a terrible adult daughter
The past two weeks, after some really bad situations at work, I made some big changes. I stopped visiting during the week I began a new (very low dose) antidepressant medication to get me through this and back on track so I don’t lose my job. The good news is the meds and no interruptions worked great - I am, basically,…
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Day by day
I am the caregiver for my mother (75y) with dementia. I began caring for both parents since the spring of 2024 after father (80y) experienced a heart attack. He survived but became wheelchair dependent. This summer 2025 he had another heart attack and did not survive. I have been caring for my mom but it’s getting harder…
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Caregivers Dealing With Menopause
Hello, Dad is in a care home, but I do all the $$, medical, have moved him 2x, sold his house, etc. I'm 54, menopause has drained so much of my energy and brain fog is real. Was on HRT which fixed these things, but had to go off bc of other side effects (inner ear problems- vertigo, dizzy, motion sick). The fatigue some…
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Double Trouble - New to the group
I moved back to NE from Florida almost 3 years ago. I knew before I moved to Florida that my mom’s memory was getting increasingly worse. Once I moved back, I realized just how bad it had become in that short amount of time. We were able to get her to a neuropsychologist and have her tested. She has Alzheimer’s.…
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struggling
Hi dear community, I know you all will get it. I'm having one of those days. I feel like I can't be all of the places that I need to be. My nerves feel fried. Just wanted to say that if this is also you, my hand is in yours. 💜 And you are not alone. A friend shared this (see pic) about emotional burnout and I felt it in my…
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My 55 yr old DH was recently diagnosed
Hello, I am loving these forums from just a little bit that I have seen so far. My DH had the PET scan in August and it confirmed signs of early on-set Alzheimer's. I noticed about 3 years ago that his personality started to change a little but the since 2024 his decline has been rather rapid (hindsight). I have looked up…
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Anyone interested in a zoom meetup?
Would anyone be interested in doing a Zoom meetup in the evening? I ask because, at least where I am, there are absolutely no caregiver support groups that meet outside of normal working hours. (When my mom's doctor recommended one to me and I told her I can't because I have a job, she was confused and asked "You couldn't…
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False Memories advice
Really struggling with a difficult situation around a false memory. My wife is convinced that our brother-in-law told us to get the heck out of there yard. There was a small dispute between her and her sister on a Friday but was mostly smoothed over by the time we left. We were back there both Saturday and Sunday and…
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Hospice
So I think it's time. Basically, if she's awake, she's agitated. Lot of other things like weight loss, incontinence, inability to feed herself, continual constipation and urine retention. I've been chtgpt'ing this for days now. I just feel so unsure as to whether she is in pain or suffering as much on the inside as she…
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Focus on the Now, the Positive, the Moments
My name is Vickie B. I turn 50 in 4 days, and I've been living with younger onset Alzheimer’s since 2021. Have I cried? Yep- a few short times. BUT I have made it my mission to not stay/live in my sadness. I choose daily to see and find beauty and joy around me. And if I have a bad day, I give myself some grace. Honestly,…
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Falling
In the last six days my dad has fallen 4 times and landed in the ER 4 times. it is always when he is getting out of bed in the morning. He is in AL and he has a UTI at the moment. The facility keeps telling me they have him but they clearly don’t. I believe his weakness is temporary and caused by UTI but we cannot be in…
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Suicidal
Has anyone had there parent with dementia have them become suicidal after they went into nursing home? My mom is apparently talking about suicide but I don't think she would do it. I think she is just miserable being in a nursing home with progressive dementia.
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Life after diagnosis
I’d be interested to hear how you’re dealing with life after dx- like your personality has changed. I feel super sensitive and just different.
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Combative and Unreachable
I'm reaching out to the most knowledgeable group of individuals who never wanted to be here, hoping someone may have some insight and guidance as I have reached my wall. My DH, love of my life, married 56 years, has been in memory care since last July - he has mixed Dementia - alzheimers and vascular. Diagnosed 15 yrs ago…
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New to the discussion and terrified
My DH was diagnosed in March 2024 with mild cognitive impairment. We looked at the diagnosis with horror and a gift that we could try and slow the progression. Two weeks ago he had a sudden incident of bizarre walking and falling. He said he felt like he had no control of his movements. We saw our family doctor had an MRI…
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Rookie needs advise on neurologist
Rookie here.I learn a lot from the discussions and I intend to continue. I'm the caretaker of mu 82 year old wife, who was recently diagnosed with lesions on her brain, but no indication of stroke. The docs only say "altered mental status". She was fine one day and then started to lose it the next. She has COPD and is…
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clearing mucus from the chest in late dementia
Alzheimer's has taken my 83yo wife into its late stage, and she recently caught a cold or pneumonia. She improved in the hospital, appears not to have an infection now, but three weeks later at home she still has a wet cough, usually when lying in bed, which is most of her time. The cough interrupts her badly-needed sleep.…
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New Role as Conservator and Guardian after Theft by POA
After a difficult effort to force my sister's POA (her son) to resign when we discovered he had taken more than half of her wealth, I am stepping into the role of her conservator and guardian which I am doing from across the country. My sister, who is in a moderate stage of dementia, is safe in an assisted living residence…
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Waiting for the trainwreck: What do you do when your LO refuses to trust family or doctors
Hi! I was on the boards here 7+ years ago for my dad, and now I'm back for my cousin. My younger cousin, 56, probably has early onset Alzheimer's and it's being exacerbated by self-medicating. She had an MRI in January and a PET scan in April that showed elevated amyloid in three of four lobes and borderline in the fourth.…
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Help with my sister
My only sister and best friend was diagnosed with EO Alzheimers at 55. I am spiraling and want to find a support group for siblings. Can anyone please help? Thank you. Juli
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MY MOM HAS EXTREME PARANOIA TOWARDS ME
Hello-- 8months ago my Mom had an MRi done to her brain but there was no exact diagnosis based on the results of the MRI> We also saw a Neuro-Pysch-- and he only spent a few minutes with her and I had to be the one to tell the story about her accusing me of stealing her under garments, jewelries, clothing, remote control,…
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Need New Neurologist
Has anyone sought 2nd or 3rd opinions on dementia diagnosis? Does Medicare (Part A & B only) need a referral for second/third opinions for neurologists treating dementia, more specifically a Lewy Body specialist? I'm not happy with our current one who seems only knowledgeable in Alzheimer's. I tried looking for an answer…
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Leqembi infusions
Hello. I'm new to the group. My husband was recently diagnosed with MCI due to AD, 66 yo. + APOE 4. Needless to say, we are devastated. He's had mild memory loss for about 6 months. Tried aricept but had terrible GI symptoms. He's been tolerating Namenda. I haven't noticed must improvement with his ST memory. However,…
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Medication
My wife has been recently diagnosed with Early Dementia/ Alzheimer’s. I discovered yesterday that she has not been taking her prescribed medications on an everyday basis. After a huge battle, she finally relinquished control her pill box and leave it in a place where I can conveniently check. I have hidden her dementia…
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1st Lequimbi Infusion..
Is finally on my calendar for Oct 30. YAY!! It's been a long slog but it is almost a reality. Very pleased. 😁
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Newly Diagnosed - Infusion Therapy?
Hi all, I am new to this group and am excited to learn from everyone! My Mom is 85 and recently diagnosed with "early stage" alz. The Neurologist is wanting an updated MRI, but feels that she is a good candidate for infusion therapy. Has anyone has experience with this?? She does very well (still drives and volunteers at…
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Contesting my mom's will.
My sister told me about how family members fight over the will. I've been naive thinking black and white and that the will is going to be carried out as intended by my mom.
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Will CPAP Really Help?
Hello friends, Dad is 79yo, had a CPAP maybe 20 years ago. Neuro thinks new CPAP is going to be a game changer/golden ticket bc of his brain scan and assessments. His sleep study showed low/moderate apnea. He's in a care home, not MC, so staff will check on him but they don't do intensive ADL's- I'd have to get home care…