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Mom's ALZ has dropped a level
Hi All, Over the past few weeks we are seeing a drop in her abilities. Mom lives in Assisted Living which is great. We have watched her cognitive ability drop from time to time and most recently about a month ago she started having hallucinations (thinks she is being held somewhere then realizes she is in her bathroom).…
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How to support emotionally who got diagnosed?
My parent got diagnosed with Alzheimer's. She understood the diagnosis because the dr said that the MRI definitively showed it. My parent accepted this as the truth. For her the diagnosis came out of nowhere as she is unaware of her symptoms of cognitive decline. She was sad and expressed not wanting to be a burden to…
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Wants to go home to his parents
My DH has asked off and on over the last few months if his parents are alive, and I’ve said no they are not and he’s been fine with that. Over the last couple of weeks, around 6:00 or so, he mentions he needs to go home. I tell him you live here with me so you can just stay here - again he’s been fine with that. Today at…
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No idea what to do next…
Hello, my name is Sandy and I am turning 51 years old this coming spring. I have not actually been diagnosed with early onset Alzheimer’s or dementia, but I am in need of help in knowing whether I should accept what my neurologist is telling me or if I should be more aggressive in figuring all this out on my own. A little…
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Approaching stage 8
My DH, who has been on hospice in a nursing home for a month, had a big downturn last night. He can no longer swallow and is aspirating on his saliva. Hospice has discontinued all food and drink, and now it is a waiting game. He’s getting morphine and Ativan every four hours and seems to be comfortable. It’s hard to…
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Memory Care “Incidents”
My mom has been in memory care for two months and has been in three “incidents” so far where other residents grab her (physically) when she’s entering or leaving her room because, in their state, they think my mom’s room is their room or they think she has something of hers, which she doesn’t. After each incident, she…
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New Here - Very Overwhelmed
Taking a deep breath here because I am not exactly sure where to even begin. My father is 75 and we do not yet have a full diagnosis but there is definite memory loss. My father has a lot going on, in addition to trying to figure this out, he also has cancer and is diabetic. He's experienced a lot of loss, as many people…
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In person support group for mom
Hello! Mom has been struggling with "age-related dementia" (malarkey) for a few years. Been working on diagnosis for almost a year. Finally have PET scan diagnosis- Moderate AD. My mil passed w AD so I know what's coming. But I didn't expect it to happen so abruptly. Mom lives with me most of the time. Goes to stay with…
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Help with not eating
My mother has virtually stopped eating. She has lost nearly 50 pounds in the last 4-5 months. Her eating has dropped to maybe a half cup of food maybe twice a day. She a is still active and very independent including cooking for herself and my father. I need help. I have tried everything I can think of. Where can I turn?
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Should I replace my Mom’s Computer?
My mom is now in her third month in AL after a fall presented the opportunity for a change she had been resisting. She’s not as happy as before, but she’s managing and at least she really likes the food. Recently her ancient Chromebook died. She does post on FB occasionally and checks her email maybe once a week. She also…
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This is fantastic! 5 day course from Dr. Natalie Edmonds
A few years ago I took a 5 day course from Dr. Natalie Edmonds. I was told I could share it. This was supposed to not be available anymore, but I was cleaning out my emails tonight, and decided to try the links. They are live. I thought the class was excellent!! If you watch the first one, you'll know if it's for you. I…
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Excellent Handout Packet: dementia, stages, CGs, actively dying - Tam Cummings
(Sharing here as well as Spouse/Partner CG Forum) - Recently there was a post requesting Stage 7 information. The attached includes some staging tools and also 1 pg info sheets on what to expect in final months, weeks, days, hours. I also am seeing for the first time, a nursing care notes section with Tam Cumming's staging…
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Books about Alzheimer's Disease
I want to start a thread for books regarding Alzheimer's Disease and caregiving. I invite anyone with a pertinent book about Alzheimer's Disease or the other dementias to post. If someone has the link for Understanding the Dementia Experience, please post it here, so new members can readily find it. The first book I want…
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Depression since FIL diagnosed
My father in law was recently diagnosed with Alzheimer's and I was doing okay with it until I had a really bad nightmare about it the other night. I dreamed that I went to visit him and found him in his car in someone else's driveway. He had gotten lost on the way home and couldn't figure out how to turn the car off. (In…
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Am I being overly concerned?
My husband is in the mid stage Alzheimer. He showers 3 times a week. On the days he doesn't, he will get dressed before he comes out of our room. I am usually up hours before him. He will put his clothes over his PJ's, won't change his underwear, socks or tee shirt. It drives me crazy. Should I just happy he does it 3…
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Feeling Fragile
I feel so sad. My DH of 54 years has VD stage 5 or 6 our partnership over the years has been so strong, we've worked together in our own business, sailed together, flown together, had our children together, and always relied on and supported each other, and now it's just me calling all the shots. I love him dearly and I am…
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Memory Care Activities
My wife has ALZ Stage 4-5. One of my big problems in caring for her is finding things for her to do. She has lost interest in many things and depends on me to fill in her time. We go to our Senior Center often, go for walks and have lunch out at shopping malls. In the evenings we watch TV together. While she is at home now…
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Unplugging Cord for Fear of Fire
My mother is in memory care and has been diagnosed with moderate dementia. Lately, and especially when she is staying with one of us children, we find her unplugging everything in her room at the assisted living before she leaves and in her bedroom at our houses when she goes to bed because she’s afraid she’s going to…
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Help Please
Hello everyone - I am hoping you can help direct me on next steps. We just got back from an appointment with my husbands general practitioner. I spoke with the Dr outside of the exam room about my concerns about my husbands change in behavior and attitude. While I didn't expect him to fix it at this appointment I was…
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Well, That Didn’t Go Well
Oh, ya’ll. I had such success in getting someone in to clean the house as the cover to getting someone eyes on my DW while I work. That’s just one day and I’ve found I’ve run myself ragged trying to balance working from home, going to the office for a few hours, racing home, etc. Totally unsustainable. So, I tried today to…
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My brother
I'm new here. My brother has early onset dementia. He lives a few states away from me. He is married to a wonderful person. He is very angry at her. He claims there is too much clutter in the house and wants it all removed by a certain date or he is leaving and moving up by me. I love my brother and we are very close. I am…
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Parent in denial
Hello, I am new to this forum and am seeking some assistance in how to best navigate getting someone to be seen for concerns of dementia/alzheimers? My mother has been exhibiting symptoms for a few years and her memory and ability to convey her thoughts clearly are greatly diminishing. She refuses to acknowledge this…
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Finding something for her to do
Lori is 69 years old 5ft tall 110lbs a very healthy women other than the Alzheimer's. She was diagnosed six years ago, now she has no memory, she can't read or write or watch any programming on TV or listen to books. She has a hard time with simple directions and her brain does not recognize or identify simple objects like…
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Hearing aid use and dementia
Another paper found to be wrong. I just read an article about hearing aids aiding in the fight about staving off dementia. I posted a link, but I received a message that their robot would not allow the link. First time I've seen that. I'm sure you could find it with a search. the original paper, “Association between…
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Cameras indoor
Hi, does anyone have a suggestion on indoor cameras? My mother is living alone for now and I put a camera in kitchen & one by her favorite chair & on patio. These cameras follow movement and also have a red light and she notices them and unplugs them. I’m not sure if they make a camera without the red light coming on or…
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New to the group: Mom won’t stop shopping online
Hi there, My mother has been suffering from memory decline for a few years and was just officially diagnosed with Alzheimer’s, in the early enough stages we’re talking about Lecanemab and I’m sure I’ll be back asking questions about that! One thing we’re dealing with that I feel like others have also struggled with is that…
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New to the group: Dad diagnosed with MCI, what now?
First time posting here, glad to have found this group! My dad is a widower and lives alone. In the past few months, his memory and cognitive skills have noticeably declined. Primary care doctor referred us to a neurologist and my dad scored 20 on the MOCA. My dad was very agitated by the appointment, said he didn’t trust…
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Mom is at peace
Mom passed away early this afternoon. My son and I were with her. I hadn’t been there very long. The change between last night and noon today was a lot. She’s at peace now. I’m continuing to feel numb - but l do feel relief.
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How to convince a loved one to move into an assisted living facility
hello. I am a caregiver for my father. He currently lives alone. I live very close to him. His Alzheimer’s has progressed and I’m concerned about him living alone. I’ve had some things in place the last few years that have allowed him to remain home but his behaviors, especially late in the day, are concerning me. The…
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Holiday
My mom moved into memory care AL in September. I am wondering how people have navigated the holidays with outings to the home setting? We are fearful it would be triggering to her but I am also unsure she remembers this house since she was only there June-September. I just want her to be comfortable and happy