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ApoE4 homozygote
Hello everyone, I'm 72 years old, was diagnosed with ALZ in Oct 2025 and started Leqembi infusions in Dec. I am still asymptomatic, but as an APoE4 homozygote I find myself waiting for the other shoe to drop. I have not met anyone else with two copies of the APoE4 allele (I understand we make up only 2% of the general…
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Night time bed wetting
My mom wears a diaper all the time but recently we are having issues with her wetting the bed at night.
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Grieving Together
I have seen and read many sources which describe how families as groups, large or small or even as individuals, get together to talk about the loved one lost. Some do it with everyone sharing stories, some funny, some not. Just wondering if anyone has used a technique similar to help grieve and find a way forward. Again, I…
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Giving up on skills
DW was diagnosed with EO in late 2021. She was probably late stage 4 at the time. We are now early stage 6. In the early stages, seeing DW lose skills was hard. I found myself pushing on her, trying to coach her in remembering how to use the washing machine, dishwasher, or where the clean clothes get put away. Later it…
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Mom and assisted living
We recently moved my Mom to an assisted living facility where she has her own apartment and was able to bring her dog with her. She was diagnose with alzheimers. She is calling us constantly, as many as 20 times in a day. She crys and says she wants to go home. It's not possible for her to live in her home any longer…
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Burner Phone, Google Voice . . . Self-Care
I'm new to this group, just over a week in and it has been a life saver to me. I feel I have found "my people'. Thank you ! My mom in early-mid stage Alz is in AL without leveled support. I live half mile down the road; she texts and calls me constantly, I'm her "person"; often she is demanding or in "need" even though it…
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Anger is grief speaking up
As someone walking through dementia and Alzheimer's with my own family, I keep thinking about a line I recently heard: "Anger is grief speaking up." If we want something to change in the next 20 years, we have to speak up…now. Alzheimer's is often approached as, "See a neurologist and wait." But Alzheimer's is not just a…
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Dentist
Hi My husband has Alzheimers and I'm looking for a dentist that is patient and kind when handling someone with Alzheimers. I live in the Lincoln RI area. Any referrals would be much appreciated. Darlene
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Medicare GUIDE Program & local help
In addition to the information on the GUIDE Program I posted about a month ago, I got a call yesterday that we are eligible for 19 four hour increments of respite care per year, from July 1 to June 30. This means up until this June 30th, I can use all 19 segments. The next step is an in-home assessment. After that the…
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PTau 217
Hi everyone… my name is Jason and I am new to this group. Just a little background… My mother was diagnosed with Alzheimer’s a few years ago. So partially due to that fact, coupled with the feeling that I am struggling with recently learned tasks and names, I decided to have a pTau 217 blood test done. I got the results…
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Top three
Just wondering what phrase ( besides I love you) you all use the most with your LO with dementia. Here’s my top 3: You hungry? What are you breaking? ( when I hear something crash in another room) Watch your head! (as she walks with her eyes half closed and head down) Hey, it’s Friday night
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Newly diagnosed father with Alzheimer's
Hi all - so glad I found this site. My dad is 66 years old, and I am 27. He is still living on his own. We only recently got the diagnosis (within the past two weeks), and he is in the mild/moderate range of dementia. I live two states away, but my brother is within an hour. I am having a hard time figuring out what to do,…
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My heart is broken
Here I am again unable to sleep because my mom has said I hate you, get out of here, you won’t give me my meds. I’ve devoted my life to her. Given up my own. It’s hard to wrap my head around this and I’m so burned out and depressed. I can’t find my footing or my hope. I really need someone to talk to who is going through…
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Adjusting to MC
My mom has been in a MC facility going on 7 weeks now. She has been diagnosed with vascular dementia and possibly mixed. We see a Neurologist in June to find out what other type. On top of that she has a history of bipolar/ depression with some schizophrenia. She does have delusions and hallucinations which she is on…
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Don't sweat the small stuff
I read the book several years ago and realize today that I need to apply it to the world I find myself and my LO in. As an example, this means not getting stressed, upset over a toilet not being flushed, or no help preparing meals. The bigger focus should be on keeping my LO safe, secure and also keep myself rested and…
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Missing Joe
Good evening all, I just want to put some timeline out there. I know my situation is unlike those of many who have been married all their adult lives. Joe and I were married about 9.5 years, and together 13. He was in memory care for about a third of our marriage. They put Joe on hospice at the end of February. His dad…
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My husband passed away
Thought I would let you all know my husband passed away a few weeks ago. He woke up night before coughing, appetite decrease a few days, and he was shivering terribly. It was unexpected. I took him to Emergency Room next day. We thought we would be coming back home. He didn't want to go and felt fine. Everything started go…
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Mom (92) mod/sev dementia … suggestions PLEASE
hello … mom (92) has lived with us for 10years but there’s been a gradual decline up until maybe the last year or so … it has gotten worse. i work out of the home so i am pretty much available to her for whatever she needs & at this point i am providing (or assisting/reminding) everything. my husband /my self … our 3boys…
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Grandmother living with dementia REFUSES TO BATHE/SHOWER
I am a 33 yr old granddaughter, taking care of my 86 yr old grandmother living with dementia. I’ve been living with her for the past almost three years providing care to her and my uncle. Recently she has refused to shower. It's been getting harder and harder to convince her, and she instantly switches to anger and puts…
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LOST!
I am new to both this site and becoming a caregiver. My most precious wife of 58 years was diagnosed with either high mild or moderate dementia about a year ago. After reading all the information I could, it seems to me that her symptoms fall mostly into the FTD type. Of course, we all know that our ability to diagnose via…
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Moving wife to memory care
I'll be moving my stage 4 or 5 dementia wife to memory care soon. Any advice on moving her would be appreciated. Should I try to explain to her that she is moving ahead of time? Should I take her there and wait until she is asleep before going home? Should I bring all of the stuffed animals she likes the most all at once…
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Delusions stop in MC?
We moved my mother to an MC facility approximately four weeks ago. From the chart she is in stage five of Alzheimer’s. One of the main reasons we finally made this decision was because she was having delusions and fixations. Every night for weeks leading up to the change she believed she was having a baby and if we didn’t…
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primary support person, not direct care-giver
Hi, I'm new to the group and looking for support. I don't know this is the right place for me. My mother is in assisted living with mild-to-moderate dementia. She lives 1/2 mile down the road from me. I’m her primary care partner and decision-maker, but I’m not providing hands-on care. I'm mentally and emotionally…
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Hello
I’m new. My mom has dementia. She’s not reliable enough to be on her own, but not quite ready for assisted living. My dad, who has been her grounding force, is about ready to go into long term care for physical debility after fracturing a hip. They, of course, live out of town. They are both resistant to moving to where I…
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Formula1 and fighting dementia
Just an interesting article. https://www.latimes.com/sports/story/2026-05-18/how-formula-one-team-pit-stop-tactics-dementia-battle?utm_source=firefox-newtab-en-us
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Burn out
I am only in my second year of dementia with my 96 year old mother. The 24/7 has gotten to me. Usually I am very patient with her but am losing it. Medicare pays spit, making home health aids very expensive. I joined a support group but I'm not finding them that helpful as I don't think any of the ladies live with the…
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Private Pay One on One in addition at Memory Care Facility
Hello, My 86 year old mom had a stroke and massive heart attack almost 7 years ago. She survived, but now has vascular dementia and Alzheimer's (Alzheimer's started prior to stroke). She was at a memory care facility that was horrible. We moved her to this new place in February and love it. The staff is very caring and…
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New at this and scared
I’m 73 years old and my wife is 68. She was diagnosed with very early Alzheimer’s last November (“mild cognitive impairment”) and started on monoclonal antibody therapy in January. Most people wouldn’t notice anything different about her but I can see that she forgets events, loses her keys (or leaves them in the front…
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Pursue diagnosis?
My 75 yo father is showing signs of dementia. His mother and paternal grandfather both had Alzheimer’s and that’s what to presents like to me—repeating himself, struggling with directions and finding things, mood swings, poor judgement, indecision, a lost look in his eyes—but he hasn’t seen a neurologist. His greatest fear…
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Lost my DH 3 months ago
My DH passed away 2 days before Christmas. I wasn't there when he passed. I visited him the day before. He was sleeping, I talked to him, played Elvis and held his hand. He held my hand so tight it hurt but I didn't let go. He was very peaceful. He had been on Hospice about 6 months for failure to thrive. His hospice nurse…