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Found sitting on the floor again
I guess I'm just venting because the nursing home called again at 6 am to tell me that my DH was found sitting on the floor again at 4:30 AM. This is the second time within the past 5 days that he was found on the floor. DH is stage 7 and on hospice. He can no longer walk, but he can slide himself off the bed, which has an…
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Neurologist Visit for mom
Hi everyone- I am new to this. My mom has some kind of dementia. She is very difficult to get to the doctor, talks in circles and lies and makes up excuses why she can’t go. I need for her to see a physician so they can declare her incapacitated so her Medical POA will be invoked, so I can legally help her stay safe. She…
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Noticing changes
I'm only a month into my diagnosis. I had a conversation with my granddaughter today and mentioned to her that I feel like I will notice when changes happen. She thought that might be a good conversation here. Have any of you noticed changes in yourself as the disease progressed?
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Need to vent about my brother
Mom is diabetic and has edema in her legs. She refuses to wear support stockings and eats any sweet treat she is offered, yet asks me every time I bring her snacks if they are low calorie (not low carb), because she is worried about her diabetes. If I buy her low carb stuff she doesn’t like it, so I’m usually vague and…
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How much sleeping is "too much"
Hi, new to this community and have many questions, but the one that's top of mind today is that my DH, who was diagnosed with VD but also elevated levels of Alzheimer's last summer, seems to be slipping away faster all the time. He's now very weak and wants to sleep almost all the time. We've been letting him eat breakfast…
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how to tell others of my diagnosis
I was diagnosed with mild Alzheimers last month. I told my immediate family members (none of them were surprised). They are incredibly supportive. But I feel like I'm in a pressure cooker. I want to tell others and did tell two lifelong friends. Their responses were not helpful—one said tough diagnosis. She clearly didn't…
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I need to vent about my grandmother and an endless cycle.....
I'm 39 and currently my 85 year old grandmother has dementia. I've been living with her for a number of years and 2 years ago she was officially diagnosed with dementia. For the past 4 months, she has been packing multiple bags daily to "go home" when she's already at the home she's lived in for the past 25 years. From…
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Dinner delemena
My down/ regroup time was when I was making dinner. Ahh! Time for me time to do me! But the past few months DH has been coming into the kitchen every 10 minutes with various excuses but I know looking for his dinner! . At first I asked him to wash the pots I used to prepare dinner - got just a rinse , put to the side and…
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indifference to eyeglasses
When DW was diagnosed about 5 years ago, she was wearing contact lenses. Soon after diagnosis, she willingly changed to eyeglasses. Recently, she is increasingly indifferent to wearing her eyeglasses. She is now stage 6. Having been with her during her last two eye exams, I doubt her prescription has changed much. She has…
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first visit to inpatient geri psych hospital to see Dad today
Hello dear community, This afternoon I get to see Dad for the 1st time at the geri psych hospital. I am glad to get to see him and much like going to MC I am wondering what might be awaiting me on the other side of that door. He went Thursday during the night by ems transport from his MC. I scheduled this appt by speaking…
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Need a "buddy"
I'm 67 and caring for my 79 year old DH. I would love to connect with someone living a parallel life…He is on the cusp of 6 and 7 on the FAST scale. I have been trying to take him to the bathroom on a "schedule" that is quickly disappearing and I'm finding myself changing him instead. I don't mind the incontinence as much…
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Sell car
I need advice on what to tell DH about his car. A year and 1/2 ago I gave his truck to my son as DH should not be driving. At the time I told him it was being serviced dead battery engine light coming on - all true. Well 11/2 yrs. later he is still demanding to get his car back- yelling, bagging his cane, calling my…
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Uneasy about leaving for a night
I'm going to my 50th high school reunion. It's 3.5 hours away from here. I'm leaving Saturday at noon and will return on Sunday around noon. Our 25 year old daughter lives at home (which I'm lucky for). Our daughter has watched over my DW for short 1 to 2 hour periods without much of a problem. I didn't want to go to my…
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Do delusions end, go away, stop?
My wife has is now having delusions. Most are just odd. But now she has decided that I (a 78 year old) have married a wealthy 45 year old woman in Montana! Yes there is some humor to that, but she is intensely angry with me. My wife is in an MC facility here in AZ. I have no idea what triggered this delusion. Will this…
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FTD Complications
Yesterday morning, around 2:00 am I awoke to a crash sound coming from our kitchen. My 76 year old DW who has FTD and has an inverted sleep cycle, meaning she sleeps most of the day and gets up during the night, had fallen in the kitchen while getting a drink without turning on the lights. I rushed to the source of the…
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Paranoia
My father is remembering that we used to have a kerosene heater in the home…like in the 1980’s. He keeps yelling at my sister because he feels she removed it from the home…now. She tries to reassure him that we had to get rid of it years and years ago due to my mom’s copd. Nevertheless, He keeps yelling at her because he…
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P Tau 217 Score Variability
I had a P Tau 217 test score of .2 in November 2025. Anything over .18 was considered positive. I then had a PET scan with a centiloid score of 46. In late May 2026 I participated in a research trial with Care Access and received a P Tau 217 score of .47, with anything over .18 considered positive. I am very concerned…
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Move to be closer to mom? Or move her close to me?
Hi- these forums have been really helpful, thank you. I’m currently struggling with a new dilemma. I moved my mom into memory care this April, 2026. I see her monthly, and stay for 3 to 4 days at a time at my niece‘s house. I’m realizing I don’t even get to see her very much while I’m there because I’m running around…
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Sibling Disagreements
So after my mom's meltdown against having a caregiver on Sundays, she told my sister she wanted to go live in a home for seniors in Orlando. My sister is now insisting I send her to a home instead of keeping her at home with me. Have any of you had siblings that thought they knew what was best of your parent? How do you…
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Do delusions end, go away, stop?
My wife has is now having delusions. Most are just odd. But now she has decided that I (a 78 year old) have married a wealthy 45 year old woman in Montana! Yes there is some humor to that, but she is …
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Disheartening news on Captain 'Sully'
Captain Sullenberger has been diagnosed with alz. This is just disheartening, and yet he is taking the news with such dignity. https://people.com/where-is-captain-sully-now-11885424 I HATE 'this', and to me, Captain Sully is a true hero. And for now, he is accepting that 'this' has happened.
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a move needed after geri psych inpatient treatment
Hello dear community, Dad seems to be doing better thankfully. Discharge back to his MC is planned for Monday. His memory care has suggested that he may need a smaller environment now. Sounds like I need to add him to some waitlists. The constantly shifting sands of Alzheimer's. I think this may mean that they think it is…
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Lock bedroom doors in MC?
About three weeks ago, we moved my mom from Assisted Living to memory care because she was going outside on her own and we were afraid she would wander off. She absolutely hates it memory care and always tells us she wants to go home, which I hear should be expected. To my when he got to her room there was a lady in there…
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Advice Needed After Moving My YOA Mom from AL to MC
I posted here a while back when my mom was first diagnosed with ALZ and I was trying to move her from FL to GA to be closer to me. She’s 65, I’m 30, and I’ve been her POA for about a year. She’s divorced, so this has all been pretty overwhelming at times. After a really tough few months, my sister and I were able to get…
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Suggestions for Sundowning and Agitation? Medications?
I am getting stressed out! DH has been Sun-downing for the past several months to the point where he gets into everything, gets agitated, will not sit down and when it comes to bed time he becomes angry. He had a brother, now passed away, who had this issue but his wife did not remember what medications the doctor put him…
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Thoughts on taking Mom for hometown visit?
My mom moved into AL near me, 2.5 hours away from her house, in April. She has adjusted fairly well, only occasionally talking about the possibility of someday moving back to her house, but for the most part, accepting of her current situation (even if somewhat grudgingly). She was notified recently that my dad's headstone…
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Telling siblings
My DH was recently diagnosed with mild ALZ. We have a family reunion coming up and I feel like we should let his two siblings know. Is that something he should be a part of or should I be telling them without his knowing? So much of this journey makes me feel like I’m having to do or say things behind his back because he…
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Food options
My spouse has been on hospice for 4 weeks. Hasn't gotten out of hospital bed in our living room during that time. Still interested in eating for several hours a day. I put the head of bed up and he self feeds finger foods. Lots of coughing, but his lungs still sounds clear. Lots of food remaining in mouth after eating. Not…
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What has changed in a year and a half
Greetings all. In September 2023, I moved both my parents into my home. My dear mom has Alzheimer's. My dear dad has mild cognitive impairment. They are 85 and 87 respectively. For more background, see the discussion at https://alzconnected.org/discussion/64542/moving-my-folks-into-my-house#latest btw - I copied and pasted…
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New to this
My wife was diagnosed with MCI about 5 years ago and was doing ok until recently. Her thought process is deteriorating right in front of me. I try to keep her motivated with walks and thinking exercising but she seems to be fading. I have promised to take care of her and I will be by her side. I have family that helps but…