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Guilt
DH has been having episodes of aggression. Not really physical more like everything just aggravates him or makes him mad. We went to see his Nero yesterday and I was telling her about it. She increased his seraquel to 50 mg 2x a day. I don't know if I want to do this. Im afraid it's for me because I'm tired of walking on…
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FYI
For those of you who have adult children who are struggling with their parents dementia. Great place also if you are a husband or partner to your LO who has EOAD.
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CPAP advice
Our 82-year-old LO used a CPAP for years but as rapid onset dementia developed he stopped. He still seems able to sleep OK and the MC people say residents generally don’t have them (unless they know how to use them). Is that just the way it is?
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Elder Law
I know that my DW condition will get worse over time and I may not be able to care for her in our home. If anyone has reached this stage have you got an Elder Attorney involved and is this advisable…God knows I don't have all the answers.
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Cashing US Savings Bonds
Another post about banking and the DPOA reminded me of a different financial topic. When I was clearing out my dad’s safe deposit box before a cross-country move, I found a stash of paper US series EE savings bonds that were well past their maturity date. I was able to arrange to get these cashed by taking him to a bank…
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Bank Doesn't Recognize POA
Hi, What to do when credit union won't allow me to use the POA? I haven't contacted the atty who drafted it yet, full, durable $$ and medical/general POAs. So far my PWD can still come with me or talk to reps on phone but that could change anytime. USA SSA won't accept either- wondering what other agencies don't and how…
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We can’t afford care for my mom
Hello, My mom was recently diagnosed with Alzheimer’s. She’s only 63, so we are highly unprepared for this. To make matters worse, she has very little money saved and my family is not a position to help financially. She also lives in CA while I’m in WA state adding more hurdles to finding her adequate help. We’ve set up…
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Just moved mom in
Our mom was diagnosed with Alzheimer's at 65…it's been a long journey with several moves but today at 79 we moved her into my home for hospice care. She can't talk and is so frail and stiff, my only hope is I've done the right thing for her and my sister and I. I keep wondering if I did the right thing and will I be able…
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Dad passed away
My dad died on Friday. He had memory issues that went unnoticed or swept under the rug for several years. He had knee replacement surgery in January. I stayed with him for a week and then my brother stayed the next week. It became quite apparent that he wasn’t safe to be by himself so he came to stay with me “until his PT…
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Did you keep your LO home too long? Then what?
Fellow travelers: I recently learned that a PWD may have progressed beyond a point where Memory Care will take them. I've always assumed that at some point I might need to put my DH in Memory Care, but the idea was always to have him stay home as long as it was not too difficult and/or expensive to care for him. (I work…
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mild to moderate MCI
My DH was diagnosed last year with MCI. For a few months now I noticed changes. He has memory loss, blames anything or anyone for anything . His temper is off, discussions or conversations are impossible at times, becomes argumentative. I am so sad and fearful that I can not handle this. I cry at night .
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What stage is this.
I wonder if DH is further along in this journey than I suspect. He has had one episode of a delusion. He swore someone was knocking on our door in the middle of the night. We have a ring camera, so I knew this didn't happen. Could have been a vivid dream but he became angry with me when I said it didn't happen. I know in…
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The Stranger Living In My Husband’s Body
There is a man who now lives in my husband’s body that I do not know. He follows me around, repeatedly asks the same questions, is often unable to complete the simplest task even with detailed instructions, blames me when he realizes he forgets things or makes mistakes, loses things that are expensive to replace (like eye…
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Alzheimer’s
My beautiful sweet wife (70) has just be diagnosed with Alzheimer’s. My heart is breaking. I feel numb, lost, disoriented, scared, anxious…etc. My mind races to far ahead and I think of what will be rather then what is for today. It’s early, we just found out last week. it’s raw. Any words of wisdom and/or next steps I can…
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Help Getting the Word Out!
I know none of us wish any type of dementia on anyone but it helps when someone with a "bigger voice" is able to help get the word out! https://www.facebook.com/reel/1394793775239563/?mibextid=rS40aB7S9Ucbxw6v
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When friendship is impacted
I suspect a dear friend of mine has early onset. This person's mother had Alzheimer's and passed away as a result. My friend is in their mid-60s and is dealing with the recent death of a spouse so for the past two or so years I've attributed recent behavior changes (verbal outbursts, mostly) to grief and having to navigate…
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Keppra anecdotal study
I just saw an article stating that researchers have noticed anecdotal ‘evidence’ that Keppra may prevent dementia or slowdown decline in those already have it. Keppra is an anti seizure drug. I know some members here have loved ones taking Keppra for dementia related seizures. Have you noticed that the dementia progression…
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Retirement Community Question
My husband is in mid-dementia and is OK right now. My dilemma is wanting to move to a retirement community but if he gets worse, he will need his own housing and I can not afford paying for two communities. If he starts being aggressive or wandering he would have to leave and I don't know for how long he will still be OK.…
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Mom newly diagnosed
My 79 year old mom was officially diagnosed with frontotemperal dementia on March 5. Putting a name to her condition is helpful, but devastating at the same time. How can I as her 56 year old daughter be a help to her and my Dad at this stage, where her symptoms are getting worse, but she's still pretty functional. I'm the…
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Loved one spouse just passed
Spouse of the loved one with dementia just passed last week. They are good with day to day activities of course have moments of grief but they keep asking when the funeral is although the funeral Was last week. Then get upset to re-live that and to then upset because they cannot remember the funeral happened. How can we…
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I’m worried
Hello, I’m here because my dad recently got diagnosed with early onset Alzheimer’s. Everyone says “at least it’s early and there’s awhile”.. but we never really know how quickly this disease can progress. I’m worried, I’m going to lose my dad at some point. And I feel guilty too for feeling like my life is going to be…
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When did it start?
My DH is currently in stage four, early stage five. He was officially diagnosed three years ago. I really began to suspect something was wrong when he began having trouble with electronics, something he used to excel at. Looking back, I realize his personality had begun to change long before that. What was your first clue…
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My saddest day
Yesterday my wife admitted that she can't read a clock any longer. We just buried her mom last week at 95 years old. She had dementia for at least 15 years. Probably much longer. She lived alone so who knows . My wife was diagnosed last October but has been having problems much longer. She retired in 2021 because she could…
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Firsts
Six months into my grief for the loss of my dear wife and rolling into the new year the changes seem forever and overwhelming. As soon as you think you have completed all the distasteful changes required, another pops up. In trying to encourage friends and family, who are not impacted as directly by a loss, to build…
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My DH just passed
My DH just passed this morning. Although I have been crying and miss him deeply, I knew it was coming and am so grateful that he doesn’t have to suffer any longer. The dementia had taken so much from him and he was just entering stage 7. Along with the dementia, he began to suffer many physical ailments with heart and…
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Husband's Reaction to Caregiver
Two weeks ago, we finally got a caregiver for 30 hours per week through Medicaid HCBS. The caregiver is very helpful, attentive and engages really well with my husband. I tried a few short trips of an hour or so, like grocery shopping, to see how he reacted to being alone with her. It went well, so when I had a dental…
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Showtiming
Anybody have experience with this. My dad presents well, extremely well, you gotta spend enough time to know he has Dementia. He studies for what ppl may ask, watch tv to stay updated, and if he lacks the energy to perform he just stays quiet. He wants to return to much younger gf and friends who were exploiting and…
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I am new
This is my first post here. My mother was diagnosed with mild cognitive impairment most likely due to Alzheimer's about a year ago. She lives alone and I also live alone about half an hour away from her. I have no siblings. My mother firmly does not believe she has Alzheimer's and she does everything possible to hide it.…
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The driving discussion
I know you are not supposed to rationalize and explain with someone who has anosognosia, but what kinds of things can I say to appease my mom, who has become OBSESSED with driving again, especially when she asks why her 3 friends who invite her to lunch can drive themselves but she can’t? Her eye doctor told her earlier…
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Brain swelling (edema) on Kisunla
I'm hoping that others who have had brain swelling as a side effect of Kisunla can give me some ideas and some hope. I've had a really easy time with Kisunla (Donanemab) since I started in August, and all of my MRIs were perfect. There was break in MRIs from month 5 to month 7, but when I had my MRI last week in…