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Copy of post accidentally placed in the FTD group - please comment for new member
Parpartlinda She/her/hers / Ella Member Posts: 2 Member 11:58AM My sister who lives in another state than I do has dementia. I don't seem to be able to get information from her family as to the type she has or what medication she may be on. I know she is getting worse and I am getting more phone calls from her. I don't…
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frequent crying spells
My 91 year old MIL, for whom I am the primary caregiver in our home, cries for no apparent reason many times a day. She has severe dementia; she can't walk, has trouble talking but is still able to say more than 6 words so is not eligible for hospice yet. She denies pain. Her doctor tried her on Zoloft; it helped the…
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Mom thinks people are stealing her eyeglasses - is this a delusion, paranoia, or just regular alz??
My 95 year old mother was diagnosed with alz last July. I'd say she's in stage 4. She lives in a CCRC and now has a daily companion for supervision. We told her this person is her "driver", because she doesn't think she needs help with anything else. Other people regularly come by for medication management, OT, etc. (I…
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No answers
I am so sorry 😢 you have to live this as part of your life journey. I Like to share with you when my Dad was at heaven’s door, what I said to him. It was a Thursday afternoon and I was at the nursing facility Dad was in. I set by his bedside and I took his hand in my and I said. Dad, you told me you never wanted to be in…
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pain management and further progression
Hi friends, Things are progressing over here (as they always are). We have a low dose of morphine on board now. My dad's legs are extremely stiff and causing him pretty consistent pain, it appears. Brought this up to his hospice nurse when he visited last week and he said we should start morphine now, because once the pain…
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Incontinence and no appetite, part of later stage?
How do you know if incontinence and lack of appetite are due to aging or symptoms of a later stage of AD? My mom is 86 years old, and seven years ago it became clear her cognitive issues were more than just forgetfulness. She and dad refuse official testing for a diagnosis, so I am mostly unofficially thinking she is seven…
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My mom has entered a new stage but i'm not sure where she stands
my 92 year old mom was diagnosed in 2014 with Alzheimers dementia. she's still living at home with health aides since 2015. i moved back in in 2017. all through this illness, she seemed to stay in the same stage. hallucinations and delusions, some incontinence, confusion. infrequent anger/outbursts (fortunately). she's…
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move from SNF to memory care
My mom is 92 and about stage 6 with mixed dementia. She went to the hospital a couple weeks ago with a UTI and pneumonia. They admitted her for a few days and she is now in a SNF. I have been caring for her at home until this point, with caregivers coming in while I'm at work. She has definitely lost strength since being…
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Respiratory Question - Help!
Forum mates, I am giving DH breathing treatments (nebulizer) around the clock these days *for his asthma*, as often as every 4 hours. Stage 7a is throwing us a curve ball today as he is wheezing mightily, and coughing/choking, then OK to sleep for a while. I can't get the breathing treatment to work well enough today. Can…
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for jeanne
Is there now a separate group for FTD and well as newcomers? Would you please post how one gets access to those.
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Why do some people progress faster than others?
Looking at the charts, I recognize all of my LO’s symptoms and her progression through the stages of Alzheimer’s/dementia. However, I feel like her progression has been much faster than what I imagined. I know she was probably farther along than I thought when I got involved 2.5 years ago but it’s been a pretty rapid…
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This made me sad
One of mom’s friends at her AL gave her a small journal to write in. The friend is a recent widow too and thought it would help mom. She’s had it a week. I read it a couple days ago. She makes notes about her day and her thoughts. What made me sad 1) she notes the most basic things that happen 2) sometimes she writes on…
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Now I get the no reasoning at times! This is funny
A couple of times this last couple of weeks my wife has peep but not flushed, so I go inside and ask her why you’re not flushing ! She says I didn’t pee! I said but there’s paper and pee in bowl , she says I didn’t do it, now she’s mad. I say sorry maybe I peed and wiped. Now forsure no more correcting
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Facility Responsibility for Resident Security
My mom is in a memory care facility in NJ. My Dad is in independent living within the same facility. One of the other memory care residents is further along in his disease than my mom is. He is coming into my mom's room often times yelling at her to get out of his house. He has not been violent but very loud and…
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Anxiety(3)
My mother has extreme anxiety before Dr's appts. One time we decided to take her to her appointment 2 hours early, so that she finally understood it was too early. She has another appt in a few days, and I am already dreading it. She doesn't have a good concept of time, anymore. Any suggestions on how to handle this?
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Jury duty
Oh my goodness!!! My name is Patty I have heart disease, very close to needing a heart transplant. My Mom was diagnosed with Alzheimer's in 2019 and I am struggling with unbelievable issues. I was denied disability because I'll bite my lip and this has depleted my mom's bank account to the point we now have a negative…
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possibly transitioning to next stage?
Hi friends, It feels late at night even though it's 7:30PM here. Wanted to check-in about the kookiness we've had going on today. Some catch-up from the last couple of weeks: my dad might be starting to struggle with eating/using his hands. More confusion about how to do things (take pills, drink from straw). As he's…
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Depression and suicidal thoughts
My dad, 88 with VD, has been telling me, his daughter, and my mom and his doctor that he doesn't want to wear a catheter anymore and if he dies, he won't care. He reluctantly endured the insertion of another catheter but when he came home, he went straight to bed and seemed so depressed and deflated. I saw in his medical…
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Selling their home
My dad was dx with vascular dementia approximately 2 years ago and we quickly found out that my stepmom was unable to care for him. She has had severe diabetes for years and I knew there was some other issues but she presented very well. In October - she was taken by ambulance to the ER and within days was dx with brittle…
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Funny, but not funny
As some of you know I am caring for my father in law. Well l was cleaning the downstairs bathroom, when l hear from the bathroom some gagging noises coming from the kitchen. I come running into the kitchen asking him if he was alright and he shakes his head no. I look in his hand to find that he drank some of the spicy…
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Dad passed away overnight
I got the call this morning. Dad passed away in his sleep. Hospice, the AL nurse and everyone was surprised because he has a good day yesterday. No services planned until Mom passes. Now we deal with her confused reactions to it all. She’s responding appropriately right now.
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Retired and can't be alone with my wife in house
We have out lived friends. Wife is mobile but we have nowhere to go. My wife could come with me and not be left alone. I need at this stage somewhere to go to socialize for a few hours a day. I need to be with people. Family is not an option. I can't believe there aren't daily social groups. I have to keep her at home as…
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Post from new caregivers group
@MyMomAlice wrote this post in the new caregivers group and I moved it here so members with similar experiences can chime in. MyMomAlice She/her/hers / Ella Unconfirmed, Member Posts: 1 Member 2:21PM Options Hi! I am a caregiver for my Mom 77 who lives an hour and a half away. She was diagnosed with Alzheimer’s in January…
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Sadly, we're nearing the end
I can't even believe I'm typing this, but it's true. The hospice nurse called me yesterday to tell me that Peggy's transitioning. And she is. Her heart rate is 140, even as she's just laying there in bed and her pulse is weak. Yesterday she was cool to the touch, and today she was so hot that we ended up putting on the AC.…
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Community Based Residential Facility Visitation
My neighbor, Wally, had to move his wife of 65 years to an assisted living facility 12 days ago due to her severe dementia. The facility will not allow anyone to visit her. They are saying it will help her to adjust better to the change. Does anyone know if this is standard procedure? I tried to go check on her and they…
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Really dumb question about moving LO to MC
Hi all, My Dad (88, Alz/vascular stage 5/6) is moving to MC tomorrow. He's declined quite a bit in the last month. Facility called us last week encouraging MC, and we all agree he needs it. We visited places and chose his current facility. A few days ago in the flurry of things I made the call to move him tomorrow, which…
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What do do...
My mom has been at a private MC home for just over a month. Things are going as expected, though recently she's become more agitated and has hit one particular caregiver three times on three separate days. I'm told they can't really pinpoint a trigger. For example, one day the CG was putting her plate in front of her for…
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Adult Foster Care
I’m in Massachusetts caring for LO with Alzheimer’s full time. He’s got Medicaid and is almost approved for Adult Foster Care (AFC) which means I’d be paid a non-taxable stipend to care for him. He was evaluated as needing level II care which means he needs help with two or more ADLs and behavioral supervision. Please…
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medication recommendations
My dad recently was put on hospice to help with aggression we were hoping some medications would help., He is end stage but mobile with zero cognitive function. He recently became very violent and aggressive, redirecting is impossible. Hospice encouraged a geriatric psych facility. This was the last resort. He was admitted…
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Dad not recognising his home
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