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Early behaviors, pre diagnosis behaviors
I keep thinking about DH’s weird behaviors that took place 5-7 years before diagnosis that caused so many fights and so much frustration, anger, and unhappiness for me which seem, in retrospect, to have been dementia symptoms. Here’s a partial list: Obsessions: no matter how many times we’d talk about a project around the…
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New Drug Treatment , Sarasota Fl
I am looking for the new drug treatment in Sarasota Florida for early onset Alzheimers for my wife when we arrive in Florida in October
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Alz & Down Syndrome
My son was diagnosed with Alz in March of this year. He is non-verbal and incontinent. He lives in a facility with round the clock care but I'm concerned that because he is now down to 1 word, yes that he may be misunderstood. I get him bi-weekly & bring him home but he doesn't do much anymore and has no interest in the…
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Alz & Down Syndrome
my son was recently diagnosed and he is now non-verbal. He lives in a home with 24 hr care but I'm concerned his lack of communication which is only "yes" will be misunderstood. This is all new to me as his decline was sudden & fast. I need help as well emotionally because I cry all the time knowing my son no longer does…
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More intensive home care or a nursing home?
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suggestions for incontinence underwear
I know it's been discussed elsewhere, but in my overwhelm I am not finding it. Can someone recommend a brand of women's incontinence underwear that Mom will think are real underwear? Soft, thin but absorbent feel like fabric not paper? And, then of course… where is the place to buy them? Thank you so much!
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Making prompting or cueing work
Prompting or cueing is defined as "Prompting refers to giving a verbal, physical, or gesture cue to indicate what the person with dementia is expected to do next". https://www.brookdale.com/en/brookdale-life/blogs/2021/use-the-prompting-technique-with-loved-ones-with-dementia.html I try to use that with a PWD when…
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Trying to figure out what I need to know and how best to help my in-laws
Hello all. My MIL was recently diagnosed w/ vascular dementia; her behaviors have moved into stage 4. My FIL is her primary caregiver. They moved to our state 16 months ago so as to have family nearby. I barely knew them before that time but have since then become very involved (frequent visiting, keeping records,…
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T-PAU217
just wondering if your LO had this blood test as part of the AD diagnosis process.
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Advance Directive for Dementia
I saw some brief mention in this forum of an Advance Directive for Dementia but not a detailed discussion on how frequently people use it. It is used as a supplement to a standard advance directive. It is not legally binding, and is also a very uncomfortable thing to perform (e.g. do not prolong life), so I have a feeling…
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My LO and the hired caregiver issues
I am the significant other/POA and official caregiver for my LO. We have been together for 39 years but he now has mid stage dementia. I hired a caregiver to help me at home, 3 times a week for 4 hours. The caregiver helps with toileting, bathing and household chores. The caregiver will keep him company so I can go out to…
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Incontinence before Dementia - forgetting pads
My Mom was diagnosed with dementia 5 years ago. She was having kidney/bladder/incontinence issues before that. She recently started forgetting to put in a pad. Yesterday she stood and peed while we were having dinner with some friends. She knew she was doing it. She had forgot to put a pad in, but didn't realize it. She's…
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First time visiting since he was placed in a nursing home
I'm the daughter of a parent with dementia. My father was in the early stages of dementia the last time I saw him. He was losing his ability to speak clearly, stop frequently, and figure out how to express his thoughts or feelings. That was three or four years ago. His illness spiraled since then and became too difficult…
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How to get her to visit a facility and move ?
We need to move her , we found a good facility ,but they want to meet her first and evaluate her ! She will not accept. She live alone in AL facility, has her meds delivered morning and evening She is morning-downing every day , very agitated ,confused them by afternoon totally normal. She eats ,dresses and bathes on her…
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Alz medication
My Dh was on namenda and was unable to take it . The neurologist put him on Donepezil hcl . Has been taking it for about 2 weeks. Has been incon of stool 2x now. Is this normal at first or is he progressing. Any way he refuses to take it now. We are running out of meds.
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Dental problems
My DH who is in stage 6/7 has been having problems with his teeth for at least a year. He has several front teeth that have decay and lost a crown several months ago that the dentist was not able to replace because of decay underneath it. He said he would likely need about 7 teeth pulled. The dentist said he was unlikely…
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Physical therapy vs Occupational therapy ?
Good morning all. My DH had his first physical therapy spot yesterday. My DH wanted me there for the intro , I was, adding info when he wasn't able to recall time frames of events. When the physical exercise began he wasn't able to follow her verbal directions and kept apologizing. The therapist said it's okay, you've just…
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Trouble finding caregiving help
My husband has early-onset Alzheimer's that has progressed to moderate stage. He doesn't need help with personal care yet but he has difficulty communicating, can no longer drive and can't operate the coffeemaker, microwave, TV, etc. He's still cognitively very aware but finally agreed to let someone come in to help…
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Med Help Needed
Hello! My dear mom is unable to verbalize anything now. She has recently begun to be more combative and agitated with the staff at her nursing home. The Dr. felt she may be in some type of pain, so he prescribed traMADol HCl Oral Tablet 50 MG before bed. He said it is a good place to start. Mom is already on 75mg of…
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Early Memory Loss Lecture
I live in Orange County, California. Yesterday I took my brother to a lecture at the local Senior Center. The lecture was titled "Early Memory Loss". When we went to visit the senior center in June, this was on the calendar for July and DB was interested. I spoke to him this weekend about going to this Monday, per his…
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What qualifies for SNF?
We can’t afford memory care. We can’t afford FT home care. I’ve been FT cater for two years. The first year I was still very angry and in denial. (I’ve been angry at him for years now not knowing what’s going on, being abandoned, etc). It took about 6 months of working on myself to get to the point now where I think I’m…
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She did it again.
last nite out with friends and she was talking to someone and says “ I have dementia but I’m getting better” that’s second time in couple of weeks to mention dementia…
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Bathing, Shower design
Does anyone have any advice for designing/building a shower? We have a leak and are going to replace out tub/shower with an accessible shower. Should it have sliding doors or curtains? Where should the grab bars be located? Is a built in seat useful or better to have separate seat? He is still active but not so flexible,…
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Dementia family member & Theft
I would be very interested to know if anyone has found any - even short term - "tricks", methods, remedies to a dementia family member stealing. It was be sunglasses from a family member or just out in the open someone's personal item on a table when they aren't looking. Not ill-meaning or strategic, simply can't help it.…
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In Home help
We had an incident last week: I left my husband alone for 90 minutes while I ran errands and when I returned he had either allowed a total stranger into our house to "view something" in the backyard or he hallucinated the entire episode. Then this week his diagnosis was changed from mild cognitive impairment to early…
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Baby Doll or Fidget Blanket
My Sweet mom is in a nursing home and is beginning to fidget with her hands. She likes to try to fold her clothing protector, and my one sister wants to get her a baby doll. My other sister suggests a lap blanket with things on it for her to play with. Does anyone have any thoughts on which is better? Thank you!
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Rivastigmine
anyone have experience with Rivastigmine daily patches?
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Constantly organizing and starting over
It seems to me what I'm about to describe is a common behavior, but I didn't see it on the staging tool. It seems akin to the hunting and gathering in early stage 5 but I'm interested in input from other folks. When looking for a check book recently my DB's wife mentioned she had to be careful with her stuff. DB was…
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I don't need help video
This popped up in my feed and I thought I'd share.
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Absolutely CRAZY in the mornings
Every morning now since a month or so .. She is totally confused, agitated, shaking, paces back and forth in the kitchen , crying, does not want to live anymore, terrified of not understanding her surroundings, does not know what to do … Then slowly she calms herself , we supervise her while she makes her coffee, her…