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DH started on Respiradone night before last...
The Neurologist started my DH stage 5 on Risperidone for agitation. He started .25 night before last. Slept better the first night and yesterday was OK but today was hell. He has ranted and raved almost all day. Does it take awhile to work? The Neurologist referred him to a Neuro Psychologist to monitor and adjust his meds…
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Sundowning and wanting to go home
I know that wanting to go home is fairly common amount our LO with dementia. My mother is no exception. However, things have gotten extremely difficult at night (around 6pm on the nose). For most of the day my mother does fairly well with a few bumps in the road here and there, but over the last several weeks her…
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Prevention and Slowing of Dementia
Hello everybody, I'm new to this forum and I've been reading a lot of posts over the past few days. I've been seeing a lot of people who have unfortunately been recently diagnosed with Dementia or Mild Cognitive Impairment and are unsure of what steps they can take to reduce their risk or slow progression of disease.…
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Thank you Lickityglitz
I was able to meet LG this past weekend and view her film at the film festival in Waco TX. Wine, Women and dementia. My HWD was with me but I do not think he followed the topic very well. It was such a wonderful film. When I first started reading posts on this forum Lickity glitz’s journey with her mother was “winding…
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treatment
Husband is newly diagnosed. I'm curious about the prescriptions and treatments that are highly recommended
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FDG-PET scan does not support clinical FTD diagnosis
Hi, Before I get into the reason for my post (my first), I want to express how much this forum has helped me over the last 5 months. I have learned so much from all of you. Without getting into too much background (because it would be 10+ pages), my 64-year-old husband was diagnosed, separately, by a neuropsychologist and…
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Dementia medications
I am curious if anybody in this forum uses donepezil and memantine for their loved one. My mom has been on it for 3 years now and not sure if it's working or if I should take her off of it. I should also mention that she has vascular dementia. The donepezil really has bad reviews and comments from people who are actually…
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Coping with Grief
Hi Friends - this is my first post. This is pretty long, I appreciate anyone who reads it. I am 31 years old and my mother is going to be 75 in September. I noticed over the last several years a slight decline in her memory but thought nothing of it. Last summer, my sister finally convinced my mom to see a psychiatrist who…
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How to help my friend navigate dementia.
My 77 yo friend has signs of dementia. Her family is ignoring it. She drives her car to and from destinations > 30 miles. I am so worried. How can I help?
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Informations Alzaimer
Bonjour, je m'appelle Cristina actuellement je suis en formation contrat pro,auxiliaire de vie. Lundi je commence travailler avec des personnes vulnérable et avec deux personnes attends de la maladie Alzheimer.(début et avancée)Pourriez-vous s'il vous plaît me conseiller quel comportement je dois avoir pour accompagner…
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Medical Alert/ICE
Someone else asked about the best medic alert for themselves as a solo caregiver. My question is a little different. My mother has never worn any jewelry other than her watch her entire life. I purchased her a simple medic alert bracelet a while ago because she's allergic to penicillin. She wore it briefly but then once…
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Electric Stove Safety
I’m a care giving for my mother-in-law from a previous marriage. Lost the son kept the mom. It’s an unusual situation but I love her so much that I think I got the best part of my divorce. This morning she woke me up by coming into my room and saying she could not find her lighter. She smokes obviously and now isn’t the…
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Absorbing the news
Hello community - I posted not too long ago about having trouble getting an appointment for my mom to get a diagnosis. Everyone was giving us appointment dates a year+ out, and I could not imagine waiting that long as my mom has been worrying us for a while. I did finally find a private practice that was able to take her…
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Acknowledging Tony Bennett
On the old version of this site I would have put this in "musings", but we don't have that anymore so I thought I'd put it here. I saw the news this morning that he passed away at age 96. From the article: He wrote on Twitter: “Life is a gift – even with Alzheimer’s.” It was revealed that while his cognitive function was…
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Unhelpful
I’ve received a lot of comments from my family and coworkers in the last couple of months. “You must be a saint!” “If I lose my memory, I’ll probably kill myself.” “Maybe the kindest thing would be if he died quickly.” And my favorite, “you need to get a man on the side- you’re still a young woman!” I feel angry hearing…
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Leqembi does not help most women with Alzheimer's Disease
The latest news (actual old news that has resurfaced) is that most women with Alzheimer's disease do not benefit from Leqembi: "Third, the most troubling aspect was no statistically significant result – let alone clinically meaningful outcome – in women on the primary outcome or any clinical secondary outcome…
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From Vox: A new era for Alzheimer’s treatment begins
Another perspective on Leqembi.
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When is it time for assisted living ?
I a new here-My mom over the past few years has had short term memory issues (ie. forgetting keys, etc..) but more recently has declined and has trouble keeping track of what day it is, keeping up with current events and her calendar, forgot how to start her car (so we took away the keys). She currently lives…
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Trust
My dw was diagnosed with ES in 2019. She has been in semi denial ever since ... She is constantly online reading articles about vitamins that help with memory loss or supplements that can reverse Alzheimer's. She doesn't want to have a discussions about her diagnosis stating that it's too stressful so we've never really…
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VA adopts new caregiving techniques for PWD Vets - "BRO" techniques. Validation etc.
This is outstanding news. A big step in the right direction for Veterans with dementia. Advanced dementia patients often need a BRO - VA News
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Need ideas for a person with dementia that is hyper active
My sister is 73 and loves to walk and be active. She is still in independent living but easily gets bored. She can not drive so for the most part I take her everywhere I go. She needs something to do in her apartment besides watch TV and the birds on her balcony. No on puzzles and bingo! She is in the mid stage of…
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If you saw this Help Wanted ad, would you apply?
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Coping with hospice
Hello everyone, I’m new to this community. I (26 years old) have been a caretaker for my 86 year old grandmother for 6 years since her diagnosis was made (aphasia dementia). She has recently been declining, and just this evening my family had made the decision to begin hospice care for her. It was an emotional decision,…
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Need simple companion for someone in nursing home
I need some advice on finding the right companion situation. I can usually find answers to my questions by searching the other posts, but I couldn't find exactly what I needed this time. My mom has late-stage Alzheimer's & went into a nursing home about a year ago. It's a lovely facility with wonderful staff, especially in…
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Seeking Virtual Support Groups (Video or in real time)
Do these exist? Can someone provide links or info? I am going through some things, and I very much need some support. Not in writing, but in real-time conversation. Thanks!
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CBD
Has anyone in here given LO any CBD products? I was curious to see if anyone has had any luck using. My DH is having to use a medication for his anxiousness and thought that perhaps I could use as an alternative to so much medication. Any suggestions? Aroma therapy and massage only work so much…
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medical emergency bracelet
Hello, As sole caregiver for DH, im looking for a bracelet for me to wear n case i need medical assistance for myself. The choices are a bit overwhelming. The apple watch sounds too complicated, i need something where i can just press a button and get help. Any input would be helpful, as my DH wouldn't have a clue what to…
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Medicaid Assisted Living Waivers (originally from Michael Ellenbogen)
Michael Ellenbogen sent me this information on services Medicaid may cover: https://www.dementiacarecentral.com/medicaid/assisted-living-waivers
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The meaning of "Taking care of yourself"
I see a lot of messages about taking care of yourself, and I think I have a better understanding now. It's not just being selfish, but also to help yourself so you can continue being a caregiver, especially if you are a sole caregiver. Many people say not getting enough sleep is very important, but here are a few things…
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MC for my mom soon. Anticipating the guilt, worry, fears, & overwhelm will increase.
Haven't posted or read for a while. No excuses, but a lot of reasons. Honestly, life has just gotten really hard. My mom ( early - mod dementia) will likely be moving to MC soon and i need to share my fears. (She is in rehab community now.) Ive been told that it's the right move, AND that the responsibilities, feelings of…